#ResNetSLT Transcript
Healthcare social media transcript of the #ResNetSLT hashtag.
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See #ResNetSLT Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Wendy Cohen @DrWendyCohen @ReSNetSLT Somewhere between Carlisle and Glasgow joining in while I’ve got battery power #ReSNetSLT |
 | Chiara Vivaldi @VivaldiC @KathBroomfield Hello. I had only vaguely come across #ppi before, so looking forward to this discussion. #ResNetSLT |
| Wendy Cohen @DrWendyCohen @ReSNetSLT #ReSNetSLT 1. While a great way to check research instruments are user friendly we can do more in generating research priorities |
 | Elisa Heikkinen @heikkinen_elisa RT @ReSNetSLT: |
| Wendy Cohen @DrWendyCohen @KathBroomfield #ReSNetSLT a little - responding to patient / family queries about whether or not their concerns are similar to others with same diagnosis |
| Chiara Vivaldi @VivaldiC @ReSNetSLT Ii've recently read that one of the problems with QoL and HRQoL measures is the lack of #ppi in their development. In particularity of people with comm. difficulties. #ResNetSLT |
| Wendy Cohen @DrWendyCohen @KathBroomfield #ReSNetSLT so we designed a study taking into account that perspective. In hindsight I wish I we could had done more to fully involve #ppi |
| Wendy Cohen @DrWendyCohen @VivaldiC @ReSNetSLT #ReSNetSLT but perhaps as #slt we can really have input here in evaluating adaptations with the people we work with? |
| Chiara Vivaldi @VivaldiC @KathBroomfield It would be interesting to hear how assessments specifically for pple with comm. diff have been developed such as the Stroke and Aphasia Quality of Life Scale - I imagine they would have tips to share. #ResNetSLT |
 | Amit Kulkarni @AmitSaLT Hi #ReSNetSLT. Look forward to discussing all things PPI ... @RCSLTResearch |
| Chiara Vivaldi @VivaldiC @KathBroomfield @ReSNetSLT Here's the reference: Cruice, M., Hill, R., Worrall, L. and Hickson, L. (2010), Conceptualising Quality of Life for older people with aphasia, Aphasiology, 24 (3), 327-347 #ResNetSLT |
| Wendy Cohen @DrWendyCohen @Lois_Cameron @ReSNetSLT I agree. I think we need to explain more about that process as it is a big part of research #ReSNetSLT |
| Chiara Vivaldi @VivaldiC @Lois_Cameron @KathBroomfield @ScotLDO That sounds really interesting and super important. Will look forward to hearing more! #ResNetSLT |
| Chiara Vivaldi @VivaldiC @ReSNetSLT I wonder if it would also have an impact on making research outcomes and findings more clinically applicable? #ResNetSLT |
| Wendy Cohen @DrWendyCohen @ReSNetSLT The whole research process improves if it’s fully thought through from a #ppi perspective. #resnetslt any gaps in the design can be ironed out in advance |
| Amit Kulkarni @AmitSaLT @ReSNetSLT Q2. I found the breakdown of beneficial (&challenging) impacts at different stages of research very interesting #ReSNetSLT Highlights the possibility (need) for PPI input across the life of a study, and the challenges to this @RCSLTResearch |
| Amit Kulkarni @AmitSaLT @Lois_Cameron @KathBroomfield @ScotLDO Agreed - sounds very interesting and would love to hear more #ReSNetSLT @RCSLTResearch |
| Wendy Cohen @DrWendyCohen @MCAsupporttool Many funders have pots to support #ppi and we should not undervalue that #ReSNetSLT |
 | Dundee healthcare research @DundeeResearch Now this is an exciting thought #ResNetSLT |
| Wendy Cohen @DrWendyCohen RT @DundeeResearch: Now this is an exciting thought #ResNetSLT |
| Dundee healthcare research @DundeeResearch Am so frustrated my connection is awful and I keep missing important tweets #ResNetSLT. I am never more frustrated than when I can't get involved! Good Lord, that sounds like the same frustration the public feel with research!!! I am trying to get better connection.... |
| Wendy Cohen @DrWendyCohen @KathBroomfield Is there a context that doesn’t given that our raisin d’etre is to support #slcn ? #ReSNetSLT |
| Amit Kulkarni @AmitSaLT @ReSNetSLT @KathBroomfield A.3 Attitude, funding, policy as mentioned in article #ReSNetSLT. Travel has been a big one for the @RCSLTResearch Priorities project: have accessed more #PPI by travelling to service users / service user groups @SLTLaurenL |
| Wendy Cohen @DrWendyCohen @Lois_Cameron @MCAsupporttool @careopinion @ginaaalexander 🧁 and #slt. Always a good match 🤤 #ReSNetSLT |
| Dundee healthcare research @DundeeResearch #ResNetSLT I too want genuine involvement from the public, not manipulated, but real, transparent involvement. Open up the research team! |
| Wendy Cohen @DrWendyCohen @LouiseKellySLT Though I do worry we may lose site if the value of the #ppi input if we become driven by a ‘rubric’ to showcase it all? #resnetslt |
| Wendy Cohen @DrWendyCohen @KathBroomfield @LouiseKellySLT Not necessarily but we should use it wisely. Ethics committees welcome applications where #ppi is clearly articulated #ReSNetSLT |
| Amit Kulkarni @AmitSaLT @ReSNetSLT A.4 Felt like could help with planning PPI across all aspects of study, as well as appraising #ReSNetSLT. Like the idea of seeing the short form used to structure reporting of #PPI @RCSLTResearch |
| Wendy Cohen @DrWendyCohen @KathBroomfield @LouiseKellySLT So I was just putting out a counter argument for relying on something formulaic #ReSNetSLT |
| Wendy Cohen @DrWendyCohen @MCAsupporttool @LouiseKellySLT Totally. While our #ppi ‘colleagues’ are invaluable we mustn’t lose sight of the original goal #ReSNetSLT |
| Chiara Vivaldi @VivaldiC @KathBroomfield @wmmc70 @LouiseKellySLT I would hope that as we get better at measuring #ppi and the positive impact it has on outcomes for all, it would become pointless to do it halfheartedly, especially if the right incentives are in place. Or at the very least those papers would be easy to spot. #ResNetSLT |
| Wendy Cohen @DrWendyCohen @KathBroomfield @MCAsupporttool @LouiseKellySLT Full circle! #ReSNetSLT |
| Dundee healthcare research @DundeeResearch My computer let me down. I couldn't get involved as much as I wanted and I am utterly frustrated. Thank you #ResNetSLT, please do this again soon. So useful |
| Chiara Vivaldi @VivaldiC @MCAsupporttool @wmmc70 @LouiseKellySLT That's interesting. It isn't something I had considered. #ReSNetSLT |
| Wendy Cohen @DrWendyCohen @VivaldiC @KathBroomfield @LouiseKellySLT And when making ethics applications use it to add to the study not as a ‘tick box’ exercise. #ReSNetSLT |
| Dundee healthcare research @DundeeResearch #ResNetSLT It's a date!! I cannot emphasise enough how useful these chats are to me. They are helping drive how I risk assess projects for sponsorship and open up my world. Thank you |
| Amit Kulkarni @AmitSaLT @ReSNetSLT Really interesting topic and resources #ReSNetSLT! |
| Wendy Cohen @DrWendyCohen @ReSNetSLT Thank you for hosting tonight. Great chat #ReSNetSLT happy holidays when they come 🎄 |
 | Elena Loraine @SLTElena RT @HazelRoddam1: |
#ResNetSLT content from Twitter.