#SpoonieChat Transcript
Healthcare social media transcript of the #SpoonieChat hashtag.
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See #SpoonieChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Dawn M Gibson @DawnMGibson RT @RebeccaCokley: @DawnMGibson A7. That only allowing a Rx of nine pills of Medicine at a time is crap. #SpoonieChat |
| Dawn M Gibson @DawnMGibson A1: #SpoonieChat |
 | ππ Aoife βΏπ @Aoiferocksitout A3 So many things, more #DisabilityRights & #DisabilityJustice. The @MTA should settle all of its lawsuits by making every subway station in #NYC #accessible| We could elect a president who will make things better for us & everyone. #SpoonieChat |
 | Rebecca Cokley @RebeccaCokley @DawnMGibson A3. 2020 makes me hope so many of my friends in activism and campaign that have chronic illnesses or disabilities find places like #SpoonieChat where they find support. I hear from so many that are struggling. |
 | Malka Goldberg @Malka_G RT @RebeccaCokley: @DawnMGibson A4. Climate change. I wonder how many od our ailments and illnesses are exacerbated by whatβs happening To the planet and how that will continue as things get worse. Climate and disability/chronic health are doing a heck of a tango π #SpoonieChat |
 | Sharon the Crohnie @FragrantGrace @DawnMGibson A8 Develop a spoonie website like Crohnies have on "Crohnology." I get a monthly question of "rate your health" and it tracks if I've gone up or down - catches trends. I can ask questions of other Crohnies and see latest research on meds. #SpoonieChat |
| Dawn M Gibson @DawnMGibson A1: #SpoonieChat |
 | K. Terry @imaginarymou @DawnMGibson Sorry I'm late: feeling like rubbish & trying to avoid twitter. Q8: I'd love any support from family & friends. I wish everyone in the #spooniechat community a happy 2020, even if you don't feel like getting out of bed & curse the #chronicpain you endure. Best to you all! Karenβ€οΈ |
| Rebecca Cokley @RebeccaCokley @DawnMGibson A3. This reminds me i need to write my book. Donβt know if it will be 2020 or 2021. But it will happen. #SpoonieChat |
| Dawn M Gibson @DawnMGibson @CreakyJoints @spondylitis |
 | Nicole LeBlanc @nleblanc12 RT @RebeccaCokley: @DawnMGibson A3. 2020 makes me hope so many of my friends in activism and campaign that have chronic illnesses or disabilities find places like #SpoonieChat where they find support. I hear from so many that are struggling. |
| Malka Goldberg @Malka_G @RebeccaCokley @DawnMGibson Yes! Yo-yo weather and extreme weather exacerbate so many chronic conditions, and climate change is just going to keep making that worse. #SpoonieChat |
| Dawn M Gibson @DawnMGibson A8: #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @RebeccaCokley: @DawnMGibson A3. 2020 makes me hope so many of my friends in activism and campaign that have chronic illnesses or disabilities find places like #SpoonieChat where they find support. I hear from so many that are struggling. |
| Dawn M Gibson @DawnMGibson @RebeccaCokley If this makes sense, maybe we need to look at grants, etc. I am game if it's sustainable for my household. #SpoonieChat |
 | π TS Negro Genesis Evangelion π¦― π @afrodykee @DawnMGibson #SpoonieChat A2: Jazz, Loona, physics makeup, skincare, analyzing things and learning in general. |
| Dawn M Gibson @DawnMGibson A1: #SpoonieChat |
| π TS Negro Genesis Evangelion π¦― π @afrodykee @DawnMGibson #SpoonieChat A3: a diagnosis and a therapist. |
| Dawn M Gibson @DawnMGibson @imaginarymou Please take your time. This space is for you. #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout RT @DawnMGibson: Q4: #SpoonieChat: Q4: #SpoonieChat: - Which aspects of our culture should your #Spoonie Fairy Godmother point her wand at? @DawnMGibson founded the The Original #SpoonieChat back in the mists of time, when giant sloths rode unicorns over the tundra. Okay, so it... https://t.co/fvQKsIM1v3 |
| Dawn M Gibson @DawnMGibson RT @1tsundere_child: @DawnMGibson #SpoonieChat A3: @DawnMGibson #SpoonieChat A3: a diagnosis and a therapist. |
| Malka Goldberg @Malka_G @RebeccaCokley @DawnMGibson Sorry to hear. I knew barometric pressure had some correlation with some of symptoms, but I couldn't tell if it was high pressure or low pressure. Got a tracking app, and turns out rapid swings in either direction make me feel awful... Yay for DC weather :( #SpoonieChat |
 | Jen Turner βΏ @SpoonieJen RT @yes_thattoo: A7: A7: Pain is not the only symptom we need to care about, AND we need to address it when it's present. #SpoonieChat |
| π TS Negro Genesis Evangelion π¦― π @afrodykee @DawnMGibson A4: Education equity, mental health service access, people being aware of sensory needs and climate justice. #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout @DawnMGibson A4 This alllllllll day. Fresh produce shouldn't be this hard to find in NYC in 2020 and it shouldn't be as expensive as it is. Same with any other food item, but especially produce. #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @Aoiferocksitout: @DawnMGibson A4 This alllllllll day. Fresh produce shouldn't be this hard to find in NYC in 2020 and it shouldn't be as expensive as it is. Same with any other food item, but especially produce. #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @1tsundere_child: @DawnMGibson A4: @DawnMGibson A4: Education equity, mental health service access, people being aware of sensory needs and climate justice. #SpoonieChat |
| Malka Goldberg @Malka_G @Aoiferocksitout @DawnMGibson Factor in pre-cut produce to make it easier for Spoonies to prep and you might as well fork over your paycheck in exchange for produce. #SpoonieChat |
| π TS Negro Genesis Evangelion π¦― π @afrodykee @DawnMGibson A5: A humidifier, a weighted blanket because I like how heavy my sheets are but I tend to over heat, a functioning skin barrier, a diagnosis and less migraine and fatigue inducing weather. #SpoonieChat |
| Dawn M Gibson @DawnMGibson @Malka_G @Aoiferocksitout Yep. It's brutal. #SpoonieChat |
| π TS Negro Genesis Evangelion π¦― π @afrodykee @DawnMGibson A6: this is straight truth #SpoonieChat |
| π TS Negro Genesis Evangelion π¦― π @afrodykee @DawnMGibson A7: things are pretty frustrating right now and Iβve been meeting to join in yoof awhile after accidentally intruding. Iβve felt like the disability community in Twitter has really helped me make some important realizations. #SpoonieChat |
 | Joe Cheray @wildheart4vr A1: I am Joe Cheray and I have hypothyroidism. I was diagnosed in 2012 #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @1tsundere_child: @DawnMGibson A7: @DawnMGibson A7: things are pretty frustrating right now and Iβve been meeting to join in yoof awhile after accidentally intruding. Iβve felt like the disability community in Twitter has really helped me make some important realizations. #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout @DawnMGibson Hahahahaaaa! I like that the only place someone can find the One True Salad is in hell! Let's get this greenlighted! #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @Aoiferocksitout: @DawnMGibson Hahahahaaaa! I like that the only place someone can find the One True Salad is in hell! Let's get this greenlighted! #SpoonieChat |
 | Ada Hubrig @AdaHubrig RT @helenrottier: A7: A7: I wish there were better ways to communicate/articulate pain to doctors. Too many still think that migraines are βjust a bad headacheβ or that endo is βjust bad cramps.β #SpoonieChat |
| Ada Hubrig @AdaHubrig RT @helenrottier: A4: A4: I want Spoonie Fairy Godmother to wave her wand at #AcademicAbleism. Iβm already feeling exhaustion from navigating ableism and school, and itβs the first week! #SpoonieChat |
| π TS Negro Genesis Evangelion π¦― π @afrodykee @DawnMGibson #SpoonieChat A8: itβs kind of upsetting because I feel itβs really wreaked havoc on my social life and distanced me from my peers. I fear opening up about how sick I am because it scares my classmates. |
 | Dr. Alyssa @yes_thattoo RT @Aoiferocksitout: @DawnMGibson A4 This alllllllll day. Fresh produce shouldn't be this hard to find in NYC in 2020 and it shouldn't be as expensive as it is. Same with any other food item, but especially produce. #SpoonieChat |
| Dr. Alyssa @yes_thattoo RT @DawnMGibson: A4: A4: I need to see needs mainstreamed. Like, I need specific foods to stay alive. This should not be ultra expensive. And a so called luxury, like birthday cake or coffee creamer shouldn't cost a mint. #SpoonieChat |
| Joe Cheray @wildheart4vr A4: For it not to take so long for people to "get" what it is we have and how we have to manage it #SpoonieChat |
 | like a Dexcom G6 @shulamithbond RT @DawnMGibson: A4: A4: I need to see needs mainstreamed. Like, I need specific foods to stay alive. This should not be ultra expensive. And a so called luxury, like birthday cake or coffee creamer shouldn't cost a mint. #SpoonieChat |
| Joe Cheray @wildheart4vr A4: It feels like it literally took me most of the last 7 years to finally get my friends to understand why my sleep schedule has to be the way it is. #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout RT @DawnMGibson: Q7: #SpoonieChat: Q7: #SpoonieChat: - Whatβs one thing your #Spoonie Fairy Godmother can make docs, other health care providers, & law/policy understand TODAY? @DawnMGibson founded the The Original #SpoonieChat back in the mists of time, when giant sloths rode... https://t.co/5NM42LQrf6 |
 | M @PlanetLoBattery RT @Tinu: A2. Iβve mostly been focused on #NoSocialSecurityCuts thanks to @mattbc @SFdirewolf & @RebeccaCokley. #CripTheVote did a debate chat too. And @Imani_Barbarin had a couple up that I canβt quite recall... #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout A7 When people have no #access to care, they die or their conditions worsen. This is not a game. Low income people need the same access to #healthcare as anyone else. Prior Authorizations end lives or leave ppl suffering from conditions that can be treated. #SpoonieChat |
 | Heidi Jane Wangelin Kalman @AspieWriter6390 RT @helenrottier: A6: A6: How To Survive Spoonie Academic Life, The Big Book of Spoonie Life Hacks, and probably a good murder mystery. #SpoonieChat |
| Malka Goldberg @Malka_G RT @Aoiferocksitout: A7 When people have no #access to care, they die or their conditions worsen. This is not a game. Low income people need the same access to #healthcare as anyone else. Prior Authorizations end lives or leave ppl suffering from conditions that can be treated. #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout A8 Please give me access to a Connective Tissue Disorder specialist, an allergist and an eye doctor who all either take Medicaid or will let me pay out of pocket on a sliding scale. Also a pain management doctor in my neighborhood! #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout @DawnMGibson β€οΈβ€οΈβ€οΈβ€οΈ It should be alright, years of #MedicalTrauma are probably why so many of us have pre-appointment #Anxiety, even if it's routine and our doctors treat us like human beings. #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout RT @RebeccaCokley: @DawnMGibson A3. 2020 makes me hope so many of my friends in activism and campaign that have chronic illnesses or disabilities find places like #SpoonieChat where they find support. I hear from so many that are struggling. |
| ππ Aoife βΏπ @Aoiferocksitout @RebeccaCokley @DawnMGibson A3 Will this year please be a year where not everyone and their grandmother is really struggling? It should not be like this at all. #SpoonieChat |
 | Angel @sdfashionista3 RT @Aoiferocksitout: A8 Please give me access to a Connective Tissue Disorder specialist, an allergist and an eye doctor who all either take Medicaid or will let me pay out of pocket on a sliding scale. Also a pain management doctor in my neighborhood! #SpoonieChat |
| M @PlanetLoBattery RT @BalloonRaptor: A4: A4: I wish the #Spoonie Fairy Godmother could wave her wand over food access! It costs so much to eat in a way that doesn't make me sick. I also have to use delivery, which is even more expensive. Food shouldn't be so hard to access. #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout @1tsundere_child @DawnMGibson It's great that you found #DisabilityTwitter! It was/is a lifeline for me, especially #SpoonieChat! |
 | Joanna Spaghetti @joannaspaghetti Oh nooo!! I accidentally slept through #SpoonieChat π |
#SpoonieChat content from Twitter.