#SpoonieChat Transcript
Healthcare social media transcript of the #SpoonieChat hashtag.
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See #SpoonieChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Dawn M Gibson @DawnMGibson Thanks for another great #SpoonieChat! See you soon. & @ me if you need to. I'll do my best to reply. |
 | 🌽🥕🥦Composer DeaconFATAL BLM🥬🥒🌶 @fullofbass RT @SocialMediaShan: A2: A2: Most people wouldn’t know that I’m a Watercolour pigment nerd. Unless you were in a forum with me on the topic in the past 20 years. #actuallyautistic #encyclopedicknowledge #SpoonieChat |
 | Sharon the Crohnie @FragrantGrace @DawnMGibson A9 Maybe a "clearinghouse" of information. Someone investigates a clinical trial from a patient perspective and gives a summary & automatic disqualifiers or other vital info. #spooniechat |
| Sharon the Crohnie @FragrantGrace @DawnMGibson A9 part 2 For example. Someone could have said, the Stelara trial will require a colonoscopy, regular travel for infusions, & a health survey each appointment. Automatically disqualified if you are already on a biologic. #spooniechat |
 | Sjogrens_Speaks ♿️ ✝️ @elisa_comer @tiEliza @SocialMediaShan oh yeah, have heard about the vagal nerve stimulation thing, sounds so promising! Would totally do a trial. Also abdominal pacemaker, I'd consider that, too. #SpoonieChat |
 | ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs @DawnMGibson #SpoonieChat A6: imo just like how many of us spoonies end up needing to actively advocate for ourselves toward health professionals, we need to be proactive in keeping abreast of happenings in the universe of our illnesses, new research, research done in our local hospitals etc. |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs @DawnMGibson #SpoonieChat A7: provided it doesn't require a lotta spoons to use over a very long period of time. If it needs something like a day to day diary of symptoms and other data like a pain diary app I used to use, I might not be able to keep up with it for long (hence 'used to' use). |
| Dawn M Gibson @DawnMGibson RT @moniquedhooghe: |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs RT @moniquedhooghe: |
| Dawn M Gibson @DawnMGibson RT @FragrantGrace: @DawnMGibson A9 Maybe a "clearinghouse" of information. Someone investigates a clinical trial from a patient perspective and gives a summary & automatic disqualifiers or other vital info. #spooniechat |
 | 💖💄 Aoife ♿💜 @Aoiferocksitout RT @wordsbymj: Hey #DisabilityTwitter, any tips/comments/suggestions for my first assessment for possible in-home services? Someone’s coming to evaluate me Tuesday. #Spoonie #SpoonieChat #Disability #ChronicIllness #Medicaid #LTSS #ADL |
| ｢ꤍ･ꤕ｣ @𐐼ᘁ𑰈꜕᭜𐔍 ៲𑈏𐐽𐐫꤂𑂯𖦪៹ @avarecs @moniquedhooghe #SpoonieChat I'm still having to explain to people I meet what fibromyalgia is. Once I was even asked, how come it isn't talked about in various mass media more often, and this is very true here locally, unless I'm talking to more well read folks or fellow spoonies. |
| 💖💄 Aoife ♿💜 @Aoiferocksitout @DawnMGibson A1 Welcome to everyone joining for the first time! Aoife, chronically ill & chronically late to #SpoonieChat I'm having a hard time atm...physical awful but also emotionally bc of my Oma passing. Her apt. is being cleaned out which is hard for everyone. |
| 💖💄 Aoife ♿💜 @Aoiferocksitout @itsamuddylife @DawnMGibson A2 You are not alone! I'm the same way. When Muji had a large pen selection I would be stuck there for an hour picking out pens! They have the best pens. #SpoonieChat @mujiusa |
| Dawn M Gibson @DawnMGibson RT @moniquedhooghe: |
| Dawn M Gibson @DawnMGibson Real Talk? I didn't send out a single Valentine out this year. Life is just a lot right now. Deep #Spoonie sigh. Image description in Alt Text. #Disability #SpoonieChat https://t.co/Oqlp1P41e6 |
 | Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: "Treatment Research generally involves an intervention such as medication, psychotherapy, new devices, or new approaches to surgery or radiation therapy." #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: "Prevention Research looks for better ways to prevent disorders from developing or returning. Different kinds of prevention research may study medicines, vitamins, vaccines, minerals, or lifestyle changes." #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: Phase I trials "Researchers test an experimental drug or treatment in a small group of people for the first time. The researchers evaluate the treatment’s safety, determine a safe dosage range, and identify side effects." #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: Phase II trials "The experimental drug or treatment is given to a larger group of people to see if it is effective and to further evaluate its safety." #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: Phase III trials "The experimental study drug/treatment given to large groups...Researchers confirm effectiveness, monitor side effects, compare it to commonly used treatments, +collect information that will allow... experimental drug/treatment to be used safely." #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: Phase IV trials "Post-marketing studies, which are conducted after a treatment is approved for use by the FDA, provide additional information including the treatment or drug’s risks, benefits, and best use." #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: I hope that you all will educate yourselves about all kinds of medical research. We need to know what's happening out there. #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: A solid intro into the relative levels of risk at each stage of medical research. #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: Fun story, I was just scrolling down to see an older tweet. Couldn't find it. I was looking at my mentions NOT my profile. Sigh. #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: What kind of medical research is happening out there? #SpoonieChat |
 | Reading, Gardening. Surviving @MichellePraiz RT @DawnMGibson: I hope that you all will educate yourselves about all kinds of medical research. We need to know what's happening out there. #SpoonieChat |
#SpoonieChat content from Twitter.