#SpoonieChat Transcript

Healthcare social media transcript of the #SpoonieChat hashtag.
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See #SpoonieChat Influencers/Analytics.

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Tapati πŸ‡ΊπŸ‡¦ @tapati
RT @DawnMGibson: A6: To my past self I'd say: A6: To my past self I'd say: Your life-your choice. Your body-your choice. #SpoonieChat
Tapati πŸ‡ΊπŸ‡¦ @tapati
RT @DawnMGibson: A6: To my past self I'd say: A6: To my past self I'd say: Pay attention to how people and other exposures and experiences make you feel. That's important information. #SpoonieChat
MsLaur @MissLaur10
A9: I’ve found a lot of answers with the people in this group so I encourage anyone needing someone to please reach out. Finding happiness is not always easy; but it’s possible. @DawnMGibson #SpoonieChat
Dawn M Gibson @DawnMGibson
#SpoonieChat our #HealthPolicyValentines: Expand coverage AND tax deductions for nondrug pain management like infrared, ultrasound, & various devices. Those of us with intractable pain still need help.
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
RT @DawnMGibson: Paper straws are a menace. #SpoonieChat #LupusChat #Disability
Sharon the Crohnie @FragrantGrace
@DawnMGibson A1a Real time β€œtracking” of referrals Your physician has made the referral with tracking number SDL721989. It has been received at specialist office. It is being processed & reviews. Your referral is now ready for scheduling appointment. #SpoonieChat
Audrey R Sutton @audreyrsutton
Breathe deep & slow. Let your breath out even slower. Take a bath. (Maybe fall asleep in there too & go to bed when you wake up) Read something boring that you've been putting off (& let it lull you to sleep) #SpoonieChat
VenZenix @VenZenix
@DawnMGibson A8. #SpoonieChat every once in a while I like a warm bubble bath. It helps with the aches.
Sharon the Crohnie @FragrantGrace
@DawnMGibson πŸ’© Because I’m a crohnie GIF’s because they’re fun #SpoonieChat A3
Dawn M Gibson @DawnMGibson
Thanks chatsters! I love you all so much. Can't wait until we're together again. Don't be shy about posting your #SpoonieChat #HealthPolicyValentines. https://t.co/dGKmmvubA9
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
@DawnMGibson A1 Aoife, late yet again, Happy Galentine's Day, Happy Valentine's Day, things have been rough but I am looking forward to tomorrow, and my upcoming birthday/ virtual party...more info on that to come. #SpoonieChat
VenZenix @VenZenix
@DawnMGibson A9. Thank you for hosting #SpoonieChat @DawnMGibson maybe next week I'll be on time!
Sharon the Crohnie @FragrantGrace
@DawnMGibson A5 Boundaries. Negativity weighs so heavily. Expressing challenges is one thing but constantly negative & bitter drags me down. I practice self-care by limiting that negativity #SpoonieChat
Dawn M Gibson @DawnMGibson
Q: What do we want? A: Rheumatologists! Q: When do we want them? A: Right now! We're sick now & getting sicker. This #healthpolicyvalentines entry brought to you by #SpoonieChat.
Sharon the Crohnie @FragrantGrace
@DawnMGibson A6 It’s tough, but you’re going to make a difference. Now get out there and change the world spoonie style!!! #SpoonieChat
Dawn M Gibson @DawnMGibson
A1a: #SpoonieChat #HealthPolicyValentines:
Kate Mitchell | Kate the (Almost) Great @kmitchellauthor
RT @DawnMGibson: Q: Q: What do we want? A: Rheumatologists! Q: When do we want them? A: Right now! We're sick now & getting sicker. This #healthpolicyvalentines entry brought to you by #SpoonieChat.
Sharon the Crohnie @FragrantGrace
@DawnMGibson A7 Spoons adjustable to the weather changes & barometric pressure drops #SpoonieChat
Tapati πŸ‡ΊπŸ‡¦ @tapati
A4 Besides right here on #SpoonieChat, at https://t.co/kpy34YS2sb itself and on their Facebook page. #CripLit and #CripTheVote also. There are also sci fi and fantasy authors who represent us, such as @seananmcguire and Mishell Baker. (+ more)
Sharon the Crohnie @FragrantGrace
@DawnMGibson A8 Music Massage Pets Encouraging someone more scared than you are - always calms me down - but I’m weird #SpoonieChat
Dawn M Gibson @DawnMGibson
@marastories Please answer if you'd like to. people will be around #SpoonieChat awhile longer.
Dawn M Gibson @DawnMGibson
Some of you might not know that Werewolves Of London is one of my all time fave songs. Mostly, it's the howling. #SpoonieChat https://t.co/Y7fyHILa97 via @YouTube
Dawn M Gibson @DawnMGibson
Our #SpoonieChat #HealthPolicyValentines: We need more #Rheum, now!
Tapati πŸ‡ΊπŸ‡¦ @tapati
A 5 Pay attention to our own feelings and refuse to allow anyone to invalidate them. #SpoonieChat
Dawn M Gibson @DawnMGibson
Darlings, we ran out of peanut butter three days ago. This is a very emotional time in my life. Hope to go shopping tomorrow. #SpoonieChat
Tapati πŸ‡ΊπŸ‡¦ @tapati
A6 Don't listen to dire predictions based on doctors' anti-fat bias. Just work on the risk factors you can. You will prevail! #SpoonieChat
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
RT @DawnMGibson: A1a: A1a: On behalf of #SpoonieChat our #HealthPolicyValentines are as follows: 1. #PainManagement for chronic pain patients. 2. Accessible streets, buildings, and shopping. 3. Repeal of prior authorization for maintenance meds, even expensive ones. <thread>
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
RT @DawnMGibson: 4. #HandsOffSNAP 5. Awareness & understanding of immune mediated DXs like lupus, RA, PsA, & AS that includes the potential for disability. #SpoonieChat #HealthPolicyValentines
Tapati πŸ‡ΊπŸ‡¦ @tapati
RT @DawnMGibson: Thanks chatsters! I love you all so much. Can't wait until we're together again. Don't be shy about posting your #SpoonieChat #HealthPolicyValentines. https://t.co/dGKmmvubA9
Tapati πŸ‡ΊπŸ‡¦ @tapati
RT @FragrantGrace: @DawnMGibson A1a Real time β€œtracking” of referrals Your physician has made the referral with tracking number SDL721989. It has been received at specialist office. It is being processed & reviews. Your referral is now ready for scheduling appointment. #SpoonieChat
Tapati πŸ‡ΊπŸ‡¦ @tapati
RT @DawnMGibson: #SpoonieChat our #HealthPolicyValentines: Expand coverage AND tax deductions for nondrug pain management like infrared, ultrasound, & various devices. Those of us with intractable pain still need help.
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
@DawnMGibson A4 On #Disability/#Disabled communities online, and Nowhere else. #SpoonieChat
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
RT @tapati: A1a "Dear Valentine, We are pleased to announce an initiative to educate doctors about unconscious bias with regard to patients' race, ethnicity, sexual orientation, gender identification, body size or appearance and religion." #HealthPolicyValentine #SpoonieChat
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
@DawnMGibson A4 Be better and kinder to ourselves if we are struggling #SpoonieChat
Dawn M Gibson @DawnMGibson
@Aoiferocksitout Just took this one for you! #SpoonieChat https://t.co/cbJFlI78nD
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
@DawnMGibson A6 Keep listening to yourself, do not let others make you feel less-than bc you are #Disabled, keep being an advocate for yourself and others, keep laughing, keep going. #SpoonieChat
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
RT @DawnMGibson: A6: To my past self I'd say: A6: To my past self I'd say: Find people who believe in your future. That's got to be docs, friends, family, and community. Find a self that's just for you. Go to therapy or take other steps to break bad patterns and install good ones. #SpoonieChat <thread>
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
@DawnMGibson A7 Where is my list? Since it's Valentine's Day, how about the ability to eat chocolate without awful consequences, and some chocolate! #SpoonieChat
β™ΏβœŠπŸΎπŸ––πŸΎMallory @_brown_recluse_
RT @DawnMGibson: Q: Q: What do we want? A: Rheumatologists! Q: When do we want them? A: Right now! We're sick now & getting sicker. This #healthpolicyvalentines entry brought to you by #SpoonieChat.
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
@DawnMGibson A8 Meditation, Mindfulness meditation, deep breathing and focusing on your breathing, checking out something calming, or funny, anipal snuggles #SpoonieChat
Dawn M Gibson @DawnMGibson
@_brown_recluse_ A8: Would you please say more or share links about these concepts? #SpoonieChat
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
RT @DawnMGibson: #SpoonieChat our #HealthPolicyValentines: Expand coverage AND tax deductions for nondrug pain management like infrared, ultrasound, & various devices. Those of us with intractable pain still need help.
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
@DawnMGibson If you can't go shopping tomorrow, I will get you PB off amazon....no PB when you are able to eat it is cruel. πŸ’–πŸ’– #SpoonieChat
#SpoonieChat content from Twitter.