#SpoonieChat Transcript

Healthcare social media transcript of the #SpoonieChat hashtag.
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See #SpoonieChat Influencers/Analytics.

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Dawn M Gibson @DawnMGibson
We've got 30 minutes of #SpoonieChat left! Please make it count by replying to this tweet with any closing thoughts on improving health advocacy.
Yuri @IngredientsWeCh
@DawnMGibson The tragedy of the school shooting today was terrible & my heart goes out to the whole community. The author of "Columbine" said the common denominator of kids that do this is depression and suicidal thoughts. We need to have much better access to mental health care #spooniechat
Rosella Altman 🐱πŸ₯„πŸ“–πŸ¦“ @zelliej1
A10 I'd ask how far they think they could get without food, health care or access to public buildings #SpoonieChat
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
A4 Perhaps not if they aren't patient-based? I would think after a few months, it becomes apparent that one day of public speaking might leave a patient needing almost a week to recover #SpoonieChat https://t.co/mAebn6QfNc
Rosella Altman 🐱πŸ₯„πŸ“–πŸ¦“ @zelliej1
#SpoonieChat A4 I don't really know of many groups
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
A5 As much patient input as possible! Listen to our needs, and experiences, and represent #invisibleillness & #chronicillness , based on that. It's better awareness. better treatments, research, resources, everything! #SpoonieChat https://t.co/PMew9I2A9R
Rosella Altman 🐱πŸ₯„πŸ“–πŸ¦“ @zelliej1
#SpoonieChat A7 That nothing I could have done would have prevented my disabilities or my chronic illness and working more than full time isn't enough to pay for everything
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
A6 The ability to speak fluent Domnican/Puerto Rican/Columbian, and medical Spanish. A space for an inclusive patient advocacy group in my neighborhood. Funding for everything needed for this group #SpoonieChat I will get this done, but with other neighbors to join in! https://t.co/EF8vx8YvlV
Dottie cherry @dottiecherry59
RT @DawnMGibson: Darlings, I urge you to contact your Congressional Representative and both Senators to save the ADA & prevent lifetime #Medicaid caps. #SpoonieChat
Rosella Altman 🐱πŸ₯„πŸ“–πŸ¦“ @zelliej1
#SpoonieChat A8 I'm currently in trouble with a supervisor for not recording my sick time properly
Katrina Davis @butterflEYEz
RT @DawnMGibson: A10: A10: As a patient and dementia caregiver I can't work enough to get my own coverage. #Medicaid is the only way for me to survive. #Medicaid is the only hope for many dementia families. #SpoonieChat https://t.co/c3HveCF5dd
Rosella Altman 🐱πŸ₯„πŸ“–πŸ¦“ @zelliej1
#SpoonieChat A6 more money, a tax break, and all of my lotions available in one store so shopping wouldn't take so many spoons
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
A7 Where to start? #ADA is not a list of suggestions,ppl rely on #ACA #Medicare #Medicaid to live and receive care,ppl need #SNAP to not go hungry. #SpoonieChat These all seem like things they all know, https://t.co/ze6cEWOpNw
Dawn M Gibson @DawnMGibson
RT @Aoiferocksitout: A6 The ability to speak fluent Domnican/Puerto Rican/Columbian, and medical Spanish. A space for an inclusive patient advocacy group in my neighborhood. Funding for everything needed for this group #SpoonieChat I will get this done, but with other neighbors to join in! https://t.co/EF8vx8YvlV
Rosella Altman 🐱πŸ₯„πŸ“–πŸ¦“ @zelliej1
#SpoonieChat A5 by not being run by abled healthy people
Rosella Altman 🐱πŸ₯„πŸ“–πŸ¦“ @zelliej1
RT @Aoiferocksitout: A7 Where to start? #ADA is not a list of suggestions,ppl rely on #ACA #Medicare #Medicaid to live and receive care,ppl need #SNAP to not go hungry. #SpoonieChat These all seem like things they all know, https://t.co/ze6cEWOpNw
Dawn M Gibson @DawnMGibson
A1: #SpoonieChat https://t.co/QdQsKxPXaM
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
A7 If I didn't have ppl, I would need #Section8 housing, which would be far away from my neighborhood, family, and doctors I rely on. No one takes #Section8 anymore. #PublicHousing is full, and needs repair. There are over 63,000 ppl in the shelter system in NYC #SpoonieChat https://t.co/4UGcnzmkAF
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
@FragrantGrace @DawnMGibson I agree, they need to know what it's like when we're feeling our worst, or even on days where things aren't horrible, but they aren't the usual level of hell either. #SpoonieCHat A5
Rosella Altman 🐱πŸ₯„πŸ“–πŸ¦“ @zelliej1
#SpoonieChat A1 I'm doing the first last, but I'm Rosella. I have no thyroid but I do have Thyroid cancer. I also have terrible migraines
Rachel Fee @RachelFee4NY
RT @Aoiferocksitout: A7 If I didn't have ppl, I would need #Section8 housing, which would be far away from my neighborhood, family, and doctors I rely on. No one takes #Section8 anymore. #PublicHousing is full, and needs repair. There are over 63,000 ppl in the shelter system in NYC #SpoonieChat https://t.co/4UGcnzmkAF
πŸ’–πŸ’„ Aoife β™ΏπŸ’œ @Aoiferocksitout
A10 Stop trying to kill tens of millions of people in the US! I don't know any other way to put it at this point. There is a #WarOnThePoor , and a #WarOnDisability. This nonsense needs to stop now before the next suggestion or policy comes out. #SpoonieChat https://t.co/WF1ErFH9Vu
Rosella Altman 🐱πŸ₯„πŸ“–πŸ¦“ @zelliej1
RT @Aoiferocksitout: A10 Stop trying to kill tens of millions of people in the US! I don't know any other way to put it at this point. There is a #WarOnThePoor , and a #WarOnDisability. This nonsense needs to stop now before the next suggestion or policy comes out. #SpoonieChat https://t.co/WF1ErFH9Vu
Rosella Altman 🐱πŸ₯„πŸ“–πŸ¦“ @zelliej1
#SpoonieChat A2 Yes I have and I think it's rediculous
Rosella Altman 🐱πŸ₯„πŸ“–πŸ¦“ @zelliej1
@EasilyEmma Sometimes I feel like being sick is treated as a luxury #SpoonieChat
Dawn M Gibson @DawnMGibson
Night-night, #SpoonieChat!
Tapati πŸ‡ΊπŸ‡¦ @tapati
RT @Aoiferocksitout: A10 Stop trying to kill tens of millions of people in the US! I don't know any other way to put it at this point. There is a #WarOnThePoor , and a #WarOnDisability. This nonsense needs to stop now before the next suggestion or policy comes out. #SpoonieChat https://t.co/WF1ErFH9Vu
#SpoonieChat content from Twitter.