#SpoonieChat Transcript
Healthcare social media transcript of the #SpoonieChat hashtag.
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See #SpoonieChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Laura @OakAndRedwood9 @DawnMGibson A6 #SpoonieChat I want doctors to understand that if some treatment doesnβt work, itβs not necessarily b/c the patient is βnot tryingβ. Sometimes the doctor just doesnβt have all the pieces of the puzzle, & sometimes theyβve dismissed detective-work weβve done to provide clues. |
 | Dawn M Gibson @DawnMGibson @VenZenix A1: We're so glad to have you! #SpoonieChat |
 | gray βΏοΈβοΈ @gh0ulpunk @DawnMGibson A3: I've always wanted to go into an anti-gravity chamber. I love being in water but I just think it'd be cool to see what it's like with no gravity. Also, it might feel good on my joints π€£ #SpoonieChat |
| gray βΏοΈβοΈ @gh0ulpunk RT @DawnMGibson: I hope you'll join #SpondyChat next Thursday, to talk about #PainManagement. I need your help getting the word out and reminding folks that they don't need a Spondyloarpathy DX to participate. #SpoonieChat |
 | Tinu, Empress of Twerk, Thirst of My Line @Tinu A4. -Ableds perceptions of #disabled people -Economic opportunities for #disabled people as workers, freelancers, founders, authors & entrepreneurs - sexism & racism in disability, including activism #SpoonieChat |
| gray βΏοΈβοΈ @gh0ulpunk @DawnMGibson A4: Since Trump was elected, he has diverted millions of dollars away from housing funds, especially in Washington (the state). At the same time he is now trying to criminalize homelessness... #SpoonieChat |
| gray βΏοΈβοΈ @gh0ulpunk RT @DawnMGibson: Women, African Americans,and other populations less likely to be DXd with #Spondyloarpathy can gain extra benefits from learning more about PsO PsA & #Spondylitis. #SpoonieChat |
| Dawn M Gibson @DawnMGibson Thanks for another amazing #SpoonieChat! All of our official questions have gone out from this account. Please stay and enjoy our tag. Answer questions for just as long as you'd like to. #Spoonie #Disability |
 | Michelle @wordsbymj @DawnMGibson A5. Unproduced due to lack of funding. #SpoonieChat |
 | Brayden Sylva (check bio for other SM) @BraydenSylva RT @DawnMGibson: Women, African Americans,and other populations less likely to be DXd with #Spondyloarpathy can gain extra benefits from learning more about PsO PsA & #Spondylitis. #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @OakAndRedwood9: @DawnMGibson A6 #SpoonieChat I want doctors to understand that if some treatment doesnβt work, itβs not necessarily b/c the patient is βnot tryingβ. Sometimes the doctor just doesnβt have all the pieces of the puzzle, & sometimes theyβve dismissed detective-work weβve done to provide clues. |
| Laura @OakAndRedwood9 @DawnMGibson A1: #SpoonieChat Iβm Laura, and I am currently in the middle of a cross-country trip to a specialist for 3 days of appointments/testing. Hoping to have a diagnosis for this immune disorder after more than 45 years, typing this in my hotel room. |
| gray βΏοΈβοΈ @gh0ulpunk @DawnMGibson For me? A coming-of-age story. #SpoonieChat |
 | Tapati πΊπ¦ @tapati RT @DawnMGibson: What: What: #SpoonieChat fam, please join @spondylitis & me for an important conversation about #PainManagement. When: Thursday, 9-26-2019, 7PM ET. Where: #SpondyChat Why: You can learn something & educate others. |
| gray βΏοΈβοΈ @gh0ulpunk @DawnMGibson A6: That massage therapy helps greatly with #Fibromyalgia! I wish insurances paid for it more. #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Nice_White_Lady: A4 Non-disabled parents of disabled children. #SpoonieChat |
| gray βΏοΈβοΈ @gh0ulpunk @DawnMGibson A8: Help spread my venmo link? My mom and I are both disabled and she ran out of unemployment. She has JUST enough money in the bank to pay our rent. We won't have food money for the rest of the month. Anything helps! #SpoonieChat https://t.co/3xstmh7MDL |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: Q5: #SpoonieChat: Q5: #SpoonieChat: - If #Spoonie life was a movie or TV show what kind would it be? @DawnMGibson founded the The Original #SpoonieChat back in the mists of time, when giant sloths rode unicorns over the tundra. Okay, so it was actually 2013, but... https://t.co/Xp3QW5bt6B |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @DawnMGibson: Q6: Q6: #SpoonieChat - Whatβs one thing your #Spoonie Fairy Godmother can make docs, other health care providers, & law/policy understand TODAY? @DawnMGibson founded the The Original #SpoonieChat back in the mists of time, when giant sloths rode... https://t.co/i3QTLlKT8S |
| Michelle @wordsbymj @DawnMGibson A4. Socializing more. #SpoonieChat |
| gray βΏοΈβοΈ @gh0ulpunk RT @DawnMGibson: What: What: #SpoonieChat fam, please join @spondylitis & me for an important conversation about #PainManagement. When: Thursday, 9-26-2019, 7PM ET. Where: #SpondyChat Why: You can learn something & educate others. |
| gray βΏοΈβοΈ @gh0ulpunk RT @DawnMGibson: Thanks for another amazing #SpoonieChat! All of our official questions have gone out from this account. Please stay and enjoy our tag. Answer questions for just as long as you'd like to. #Spoonie #Disability |
 | Shawna Spain @likesevenspoon RT @DawnMGibson: Q7: #SpoonieChat: Q7: #SpoonieChat: - Whatβs one thing your #Spoonie Fairy Godmother can make docs, other health care providers, & law/policy understand TODAY? @DawnMGibson founded the The Original #SpoonieChat back in the mists of time, when giant sloths rode... https://t.co/MEqyTPVFHy |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu A6. She could make them understand that the UN says leaving people in pain is torture And start treating #ChronicPsin patients accordingly. #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @wordsbymj: @DawnMGibson A5. Unproduced due to lack of funding. #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @VenZenix: @DawnMGibson A5. #SpoonieChat it definitely wouldn't be a medical drama. Those doctors heal everyone. |
| Michelle @wordsbymj @DawnMGibson A6. Weβre more than the sum of our parts. And we need help. #SpoonieChat |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @scifichick25: @DawnMGibson A5: @DawnMGibson A5: It would be a dark comedy. I know myself and many others use humor to cope but it can seem grim to outsiders. After my ostomy was permanent I joked that aliens will be disappointed if they abduct me. #SpoonieChat |
| gray βΏοΈβοΈ @gh0ulpunk RT @Tinu: A6. She could make them understand that the UN says leaving people in pain is torture And start treating #ChronicPsin patients accordingly. #SpoonieChat |
 | Alastair Zaraza's liminal corpse party @outliersgeorg RT @OakAndRedwood9: @DawnMGibson A6 #SpoonieChat I want doctors to understand that if some treatment doesnβt work, itβs not necessarily b/c the patient is βnot tryingβ. Sometimes the doctor just doesnβt have all the pieces of the puzzle, & sometimes theyβve dismissed detective-work weβve done to provide clues. |
 | Rainbow Fox of Foppery @SawyerSweet_Art RT @DawnMGibson: Q1: #SpoonieChat: Q1: #SpoonieChat: - Disclosure NOT required. Introduce yourself & share whatβs happening in your world in a way youβre comfortable with. @DawnMGibson founded the The Original #SpoonieChat back in the mists of time, when giant sloths rode unicorns... https://t.co/Uq7bGtmay6 |
 | ππ Aoife βΏπ @Aoiferocksitout @DawnMGibson @bcxx143 @Tinu @JediMaster941 @TitoTitoq85 @Kirstie_Schultz @Nice_White_Lady @LillyStairs Dawn, I love you,#SpoonieChat is important and if I am able to co-host, that's is always great! πππ |
| ππ Aoife βΏπ @Aoiferocksitout RT @DawnMGibson: What: What: #SpoonieChat fam, please join @spondylitis & me for an important conversation about #PainManagement. When: Thursday, 9-26-2019, 7PM ET. Where: #SpondyChat Why: You can learn something & educate others. |
| Tinu, Empress of Twerk, Thirst of My Line @Tinu RT @Aoiferocksitout: @DawnMGibson @bcxx143 @Tinu @JediMaster941 @TitoTitoq85 @Kirstie_Schultz @Nice_White_Lady @LillyStairs Dawn, I love you,#SpoonieChat is important and if I am able to co-host, that's is always great! πππ |
 | elmtree π³οΈβπ @elmtree916 RT @DawnMGibson: The #Spoonie Fairy Godmother Sheβs here to do good deeds, help boost the communityβs sense of worthiness, & to make us feel a little bit better. Some people think sheβs nice, when sheβ militantly invested in toppling ableism & everything that makes us feel less. #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @Aoiferocksitout: @DawnMGibson @bcxx143 @Tinu @JediMaster941 @TitoTitoq85 @Kirstie_Schultz @Nice_White_Lady @LillyStairs Dawn, I love you,#SpoonieChat is important and if I am able to co-host, that's is always great! πππ |
| Dawn M Gibson @DawnMGibson A1: #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout @itsdaniibby @Omnomynous @DawnMGibson Good luck Daniel! I hope your school is being as accommodating as possible. #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout @OakAndRedwood9 @DawnMGibson Good luck with this trip! β€οΈ #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout @DawnMGibson A1 Hello all! Aoife, chronically ill and chronically late to #SpoonieChat Feeling beyond frustrated about patients having less or no options for seeing specialists. I hope there is an org. in NYC working on this issue. I can't deal with this anymore. |
 | Carly by Nature @SynceNerd_Carli RT @DawnMGibson: Q1: #SpoonieChat: Q1: #SpoonieChat: - Disclosure NOT required. Introduce yourself & share whatβs happening in your world in a way youβre comfortable with. @DawnMGibson founded the The Original #SpoonieChat back in the mists of time, when giant sloths rode unicorns... https://t.co/Uq7bGtmay6 |
| Carly by Nature @SynceNerd_Carli RT @DawnMGibson: Q6: Q6: #SpoonieChat - Whatβs one thing your #Spoonie Fairy Godmother can make docs, other health care providers, & law/policy understand TODAY? @DawnMGibson founded the The Original #SpoonieChat back in the mists of time, when giant sloths rode... https://t.co/i3QTLlKT8S |
| Carly by Nature @SynceNerd_Carli RT @DawnMGibson: Attending educational events outside of our official DX groups is important. We can make friends, build community, and learn new things. AND, if your treatments aren't working you might see something that leads to a revised DX and success. #SpoonieChat |
| Carly by Nature @SynceNerd_Carli RT @DawnMGibson: I hope you'll join #SpondyChat next Thursday, to talk about #PainManagement. I need your help getting the word out and reminding folks that they don't need a Spondyloarpathy DX to participate. #SpoonieChat |
 | Dr. Openly Black Conscientização, M.A. Ph.D @CCG_NoLAGirL47 RT @Aoiferocksitout: @DawnMGibson A1 Hello all! Aoife, chronically ill and chronically late to #SpoonieChat Feeling beyond frustrated about patients having less or no options for seeing specialists. I hope there is an org. in NYC working on this issue. I can't deal with this anymore. |
| Carly by Nature @SynceNerd_Carli RT @DawnMGibson: Q3: #SpoonieChat: Q3: #SpoonieChat: - Whatβs something youβve always wanted to do? Why? @DawnMGibson founded the The Original #SpoonieChat back in the mists of time, when giant sloths rode unicorns over the tundra. Okay, so it was actually 2013, but that was... https://t.co/rQg84MsujA |
| Dr. Openly Black Conscientização, M.A. Ph.D @CCG_NoLAGirL47 #SpoonieChat #ChronicPain |
| ππ Aoife βΏπ @Aoiferocksitout RT @DawnMGibson: Q4: #SpoonieChat: Q4: #SpoonieChat: - Which aspects of our culture should your #Spoonie Fairy Godmother point her wand at? @DawnMGibson founded the The Original #SpoonieChat back in the mists of time, when giant sloths rode unicorns over the tundra. Okay, so it... https://t.co/A32J0LeRDJ |
| ππ Aoife βΏπ @Aoiferocksitout RT @DawnMGibson: Women, African Americans,and other populations less likely to be DXd with #Spondyloarpathy can gain extra benefits from learning more about PsO PsA & #Spondylitis. #SpoonieChat |
| Dawn M Gibson @DawnMGibson A1: #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout @DawnMGibson A dark comedy! #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout A6 Let low income patients on Medicaid & insurance no one wants to take have #access to specialists and other doctors. Never let any low income patient go without care, or neglect ever again. Let doctors understand that low income patients badly need them. #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout RT @Nice_White_Lady: A6: A6: We need combination physical therapists/personal trainers who are covered by health insurance, like, yesterday. At least 150 sessions per year. #SpoonieChat |
| Dawn M Gibson @DawnMGibson RT @Aoiferocksitout: A6 Let low income patients on Medicaid & insurance no one wants to take have #access to specialists and other doctors. Never let any low income patient go without care, or neglect ever again. Let doctors understand that low income patients badly need them. #SpoonieChat |
 | gaffney π» @vl_gaffney Iβm in need of a new doctor and Iβm willing to travel if it means actual care. Mine is retiring and his knowledge of dysautonomia goes with him, so tell me about your physicians. I want to know whoβs out there. #disabledtwitter #SpoonieChat |
 | Lindsay @ElleSturm RT @Aoiferocksitout: A6 Let low income patients on Medicaid & insurance no one wants to take have #access to specialists and other doctors. Never let any low income patient go without care, or neglect ever again. Let doctors understand that low income patients badly need them. #SpoonieChat |
 | Lord Cornwallis @cornwallis_lord RT @vl_gaffney: Iβm in need of a new doctor and Iβm willing to travel if it means actual care. Mine is retiring and his knowledge of dysautonomia goes with him, so tell me about your physicians. I want to know whoβs out there. #disabledtwitter #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout @marastories @DawnMGibson I had braces as a preteen now I need them again. I hope we can both get invisalign! #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout RT @gh0ulpvnk: @DawnMGibson A8: @DawnMGibson A8: Help spread my venmo link? My mom and I are both disabled and she ran out of unemployment. She has JUST enough money in the bank to pay our rent. We won't have food money for the rest of the month. Anything helps! #SpoonieChat https://t.co/3xstmh7MDL |
 | SuchFinanceWow @ChronicFinance RT @gh0ulpvnk: @DawnMGibson A8: @DawnMGibson A8: Help spread my venmo link? My mom and I are both disabled and she ran out of unemployment. She has JUST enough money in the bank to pay our rent. We won't have food money for the rest of the month. Anything helps! #SpoonieChat https://t.co/3xstmh7MDL |
| ππ Aoife βΏπ @Aoiferocksitout RT @DawnMGibson: Q8: Q8: Itβs The #SpoonieChat Wrap Up! - What could your #Spoonie Fairy Godmother do for you right now? @DawnMGibson founded the The Original #SpoonieChat back in the mists of time, when giant sloths rode unicorns over the tundra. Okay, so it was... https://t.co/xZvVb20Aos |
| ππ Aoife βΏπ @Aoiferocksitout A8 Charm a connective tissue disorder specialist to take my Medicaid HMO so I can get some help here before things get more worse! #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout RT @dieselgirlpdx: @malkabethwendy @DawnMGibson A6: @malkabethwendy @DawnMGibson A6: #SpoonieChat this. All of this. I have hearing loss and I put off making appointments because I donβt even want to try to deal with making a phone call. Itβs frustrating for me. Itβs frustrating for the person on the other end. Encrypted chat exists. Why canβt we use that? |
| Dawn M Gibson @DawnMGibson RT @Aoiferocksitout: A8 Charm a connective tissue disorder specialist to take my Medicaid HMO so I can get some help here before things get more worse! #SpoonieChat |
| ππ Aoife βΏπ @Aoiferocksitout @DawnMGibson Thank you Dawn, for eternally being the hostess with the mostest! πππ #SpoonieChat |
 | Cakelin @thecakelin @DawnMGibson A6 #spooniechat that the systems we have to navigate are almost/as or sometimes even harder than being sick. And that *they* can change it. I think some do understand but don't feel like they can change it. |
 | ann wall @shopshi RT @Aoiferocksitout: A8 Charm a connective tissue disorder specialist to take my Medicaid HMO so I can get some help here before things get more worse! #SpoonieChat |
| ann wall @shopshi RT @Aoiferocksitout: A6 Let low income patients on Medicaid & insurance no one wants to take have #access to specialists and other doctors. Never let any low income patient go without care, or neglect ever again. Let doctors understand that low income patients badly need them. #SpoonieChat |
#SpoonieChat content from Twitter.