#SpoonieChat Transcript
Healthcare social media transcript of the #SpoonieChat hashtag.
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See #SpoonieChat Influencers/Analytics.
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Hollis @viaholiday @itsmorenamorena @DawnMGibson It's just ice cream and self-rising flour! It's so easy to make! And it just astonishes people because it just sounds so weird #SpoonieChat | |
Dawn M Gibson @DawnMGibson Accepting my disability was the most empowering thing that ever happened to me. I'm proud of our people. I'm on good days I'm in union with my body and what it can do. Honesty with myself and those around me changed everything. I was like 11 years in... #SpoonieChat | |
MsLaur @MissLaur10 @Xtel007 @DawnMGibson I hope my friends and family can get to that level. They all rally so hard for me when I’m sick I’m afraid of seeing that all the time when they know I’m in physical pain. #SpoonieChat | |
Carly by Nature @SynceNerd_Carli RT @DawnMGibson: Accepting my disability was the most empowering thing that ever happened to me. I'm proud of our people. I'm on good days I'm in union with my body and what it can do. Honesty with myself and those around me changed everything. I was like 11 years in... #SpoonieChat | |
Carly by Nature @SynceNerd_Carli RT @bichocolatecat: | |
itsmorenamorena @itsmorenamorena @viaholiday @DawnMGibson I would love to see how this turns out, if you have a chance to share a pic. I'm intrigued LOL #spooniechat | |
Carly by Nature @SynceNerd_Carli RT @DawnMGibson: In time, patients can find their own ways to live a new normal or a new best life, as new people. It takes time to come to terms with all of this, and that's okay. #SpoonieChat | |
Carly by Nature @SynceNerd_Carli RT @DawnMGibson: Illness is not a moral failure pr battle of wills. It's a biological process that may be intensified by social factors such as isolation, lack of #disability accommodations, & other support. #SpoonieChat | |
Carly by Nature @SynceNerd_Carli RT @DawnMGibson: Understanding and meeting our needs is not defeat. Our culture tells us to keep going and never to give in, but that's got nothing to do with illness. #SpoonieChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: @MissLaur10 @DawnMGibson I told my friends straight up that I don't want the pity and the 25 million how-are-you-s. They're still there for me and pay attention to when I seem I need to slow down, without overdoing it. #SpoonieChat | |
Dawn M Gibson @DawnMGibson Maybe a therapist, social worker, or another third party can help untangle things. You deserve to feel your best & to be honest. #SpoonieChat | |
Stacie is Proud of You @StacieMKelly RT @DawnMGibson: Illness is not a moral failure pr battle of wills. It's a biological process that may be intensified by social factors such as isolation, lack of #disability accommodations, & other support. #SpoonieChat | |
Carly by Nature @SynceNerd_Carli RT @DawnMGibson: Maybe a therapist, social worker, or another third party can help untangle things. You deserve to feel your best & to be honest. #SpoonieChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 @SynceNerd_Carli POSTER. PHYSICS CONFERENCE. YOU DO A WHOLE BOMB CHAT. KICKING ASS THROUGH ALL THE BS THAT COMES YOUR WAY. JUST BEING OVERALL EFFORTLESSLY AWESOME. How dare you! #SpoonieChat https://t.co/CEUdLiTOv7 | |
Dawn M Gibson @DawnMGibson Darlings, Thanks for another great #SpoonieChat! As always, I'm inspired by your participation & love for each other. https://t.co/SvQ70dqvao | |
itsmorenamorena @itsmorenamorena It's been fun, #spooniechat..goodnight to all, and may you have a stress-free, pain-free, joyous holiday season! | |
MsLaur @MissLaur10 @DawnMGibson Them not talking about it is keeping it out of my mind for now which is making my life easier. My husband knows I have #RA but he doesn’t know how bad it gets during flares. If he doesn’t talk about it-I don’t need to think about how much it sucks. #SpoonieChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 @MissLaur10 @DawnMGibson I hope so too. If they seem to want to understand and support you, let them exactly how you want to be supported. You deserve to have the support you want. #SpoonieChat | |
Carly by Nature @SynceNerd_Carli @Xtel007 I love youuuuu. I do. But you know my brain computes these things as stuff I should be doing a d not accomplishments of any kind. 😭 HALP. #SpoonieChat | |
Carly by Nature @SynceNerd_Carli RT @Xtel007: @SynceNerd_Carli POSTER. PHYSICS CONFERENCE. YOU DO A WHOLE BOMB CHAT. KICKING ASS THROUGH ALL THE BS THAT COMES YOUR WAY. JUST BEING OVERALL EFFORTLESSLY AWESOME. How dare you! #SpoonieChat https://t.co/CEUdLiTOv7 | |
Dawn M Gibson @DawnMGibson @Jillicious_4 Hi! #Spoonie is in reference to The Spoon Theory, by Christine. Please click through one of our chat questions to my blog to learn more about #SpoonieChat. | |
Dawn M Gibson @DawnMGibson @Jillicious_4 @ me anytime. I hope your DX is settled soon. You deserve answers. #SpoonieChat | |
Carly by Nature @SynceNerd_Carli This! "You deserve to have the support you want." #SpoonieChat | |
Carly by Nature @SynceNerd_Carli RT @DawnMGibson: Darlings, Thanks for another great #SpoonieChat! As always, I'm inspired by your participation & love for each other. https://t.co/SvQ70dqvao | |
Dawn M Gibson @DawnMGibson A7: #SpoonieChat | |
Carly by Nature @SynceNerd_Carli What a wonderful discussion. Thanks to everyone who engaged tonight. Such a treat. Thank you @DawnMGibson for creating and holding such important and much needed space for everyone. 💜💜 #SpoonieChat | |
💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @SynceNerd_Carli: What a wonderful discussion. Thanks to everyone who engaged tonight. Such a treat. Thank you @DawnMGibson for creating and holding such important and much needed space for everyone. 💜💜 #SpoonieChat | |
Dawn M Gibson @DawnMGibson A1: 👊 #SpoonieChat | |
VenZenix @VenZenix @DawnMGibson #spooniechat A2. Cold, pain, depression. The cold and darkness is hard on my health. I get the seasonal depression this tune of year. | |
Dawn M Gibson @DawnMGibson @SprinklesnBooze You are a #Spoonie & always welcome at #SpoonieChat & everywhere else I go. 💌💜💙💌💜💙💌💜💙💌💜💙💌 | |
Dawn M Gibson @DawnMGibson A1: 💖 #SpoonieChat | |
VenZenix @VenZenix @DawnMGibson #spooniechat A5. I love family time, the smells and the joyful feelings. | |
🌽🥕🥦Composer DeaconFATAL BLM🥬🥒🌶 @fullofbass RT @DawnMGibson: A1: A1: I'm Dawn, the baseball loving #Spondylitis patient from Detroit! I founded #SpoonieChat in 2013. Where has the time gone? | |
Kanika Monga, MD @DrKanikaMonga @DawnMGibson Great question! It's so important to be mindful #SpoonieChat | |
Dawn M Gibson @DawnMGibson I hope we can move some of this advocacy work off of patients. Society is all too comfortable making us do this rather than asking how to make patients welcome & well loved. This should be top of mind for all hosts. #SpoonieChat | |
Kanika Monga, MD @DrKanikaMonga @DawnMGibson Agreed. This should be the norm, and should be a collective effort to advocate. #SpoonieChat | |
Kanika Monga, MD @DrKanikaMonga @DawnMGibson The effort should continue with the best interest in mind -- all should listen. I'm sorry that it's been difficult. The patient's needs should ALWAYS be a priority. Best to acknowledge that the patient and doctors are batting for the same side and make a solid team #SpoonieChat | |
moth𓆏 @wailingalien @DawnMGibson A1: Meowdy howdy I’m Mike, I have hip dysplasia and scoliosis and I’m pretty mentally ill. I’ve been taking meds for some of my illnesses though, so my MH is a lot better! #SpoonieChat | |
moth𓆏 @wailingalien @DawnMGibson A2: stressful, exhausting, and a tad bit annoying. Unfortunately. #SpoonieChat | |
moth𓆏 @wailingalien @DawnMGibson A3: Unfortunately going home from college is the biggest thing, but also struggling with an ED isn’t great at all and my mental health takes an absolute dive during the holidays. #SpoonieChat | |
moth𓆏 @wailingalien @DawnMGibson A4: Resting, relaxing, only doing as much as I know I’m capable of. An already stressful time isn’t a time to be pushed out of my comfort zone. #SpoonieChat | |
moth𓆏 @wailingalien @DawnMGibson A5: I like seeing my little cousins, and I’m excited this year because now I can show them some ASL so they can still talk with me in the future. #SpoonieChat | |
moth𓆏 @wailingalien @DawnMGibson A6: Not force me to eat something they know I can’t stomach, use a bit of ASL if they know it, let me take things at my own pace. A lot of my hosts sort of ignore my physical and mental needs and if they could acknowledge them it would be great. #SpoonieChat | |
Dawn M Gibson @DawnMGibson @borderIinebulI Good job on the meds! Is there anything from your life at school that could transfer over to help stay on track? Do you feel like a plan could help reduce some of the holiday risks? #SpoonieChat | |
💖💄 Aoife ♿💜 @Aoiferocksitout @DawnMGibson A1. Aoife, still not right from a virus I had two months ago. Been enjoying holidays, looking forward to Christmas, even though I feel worse than before October. #SpoonieChat | |
Dawn M Gibson @DawnMGibson RT @borderIinebulI: @DawnMGibson A6: @DawnMGibson A6: Not force me to eat something they know I can’t stomach, use a bit of ASL if they know it, let me take things at my own pace. A lot of my hosts sort of ignore my physical and mental needs and if they could acknowledge them it would be great. #SpoonieChat | |
moth𓆏 @wailingalien @DawnMGibson A7: Sprite and toast. Because of my ED I don’t eat much during the holidays, so I always make sure I have something I know I like. #SpoonieChat | |
Dawn M Gibson @DawnMGibson A7: What else could we add to this list? #SpoonieChat | |
moth𓆏 @wailingalien @DawnMGibson A8: I’ve been remembering to take my meds, and thankfully my health has improved a bit since I began them. I also got a huge extension in a class I otherwise would have failed so I’m very glad for that. #SpoonieChat | |
Dawn M Gibson @DawnMGibson A3: What do you think about scheduling a call or two with them in advance? +Inbox me, okay? #SpoonieChat |
#SpoonieChat content from Twitter.