#WEGOHealthChat Transcript
Healthcare social media transcript of the #WEGOHealthChat hashtag.
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See #WEGOHealthChat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Amanda G @LAlupusLady @justagoodlife @Spotify Rock with #SugarRed the new single by @tommylondon https://t.co/ZJV3P317yY #WEGOHealthChat soundtrack |
 | HealthSparq @HealthSparq Good morning/afternoon everyone! Anna here from HealthSparq - looking forward to a great #wegohealthchat! |
 | Social Health Network @socialhealthnet Welcome to the January #WEGOHealthChat and thanks for joining us! Today's chat will be hosted by the WEGO Health team and this is honestly one of our favorite chats of the year! We love to hear what you have planned and how we can work together. https://t.co/fZuE78es33 |
 | Kristen @srvingofspprt First #WEGOHealthChat of the year! https://t.co/CiOTCDHzzK |
 | AutonomicRN© @AutonomicRN Hi all, Kim here from Wisconsin! I made it! #WEGOHealthChat |
| Social Health Network @socialhealthnet Let's get started, shall we? #WEGOHealthChat |
 | Deeanne @twistedpsister Hi! Here from Orlando where it's finally not freezing! That week of winter is rough! LOL #wegohealthchat |
| AutonomicRN© @AutonomicRN @HealthSparq Hey Anna! #wegohealthchat |
 | Help You Thru @Help_You_Thru looking forward to it https://t.co/9pnfgCbAzL |
 | JP Summers @authorjpsummers January #WEGOHealthChat https://t.co/buFYIppDJQ |
| Social Health Network @socialhealthnet Q1. What was your biggest accomplishment of 2017? When you started in 2017 was this the goal that you had in mind? #WEGOHealthChat |
 | Must Stop MS! @MustStopMS @spondywolfgirl that "week" hahaha #wegohealthchat |
| Must Stop MS! @MustStopMS RT @wegohealth: Q1. What was your biggest accomplishment of 2017? When you started in 2017 was this the goal that you had in mind? #WEGOHealthChat |
 | Laura Kolaczkowski 😷😷😷😷 @lkay54 Finally making a chat - looking forward to hearing plans from #amazingAdvocates #WEGOHealthChat |
| HealthSparq @HealthSparq @justagoodlife Hey Julie! Great to be here :) #WEGOHealthChat |
| Amanda G @LAlupusLady RT @wegohealth: Q1. What was your biggest accomplishment of 2017? When you started in 2017 was this the goal that you had in mind? #WEGOHealthChat |
 | Lisa Davis Budzinski @lisadbudzinski Hello everyone!Lisa here, from @Cpnervecenter #wegohealthchat |
 | Kayla Cares 4 Kids @KCares4Kids Happy to be joining you today - Andrea #wegohealthchat |
| Deeanne @twistedpsister A1 My biggest accomplishment was training for my race. Was last week but I started back in early summer. I didn't quit! #wegohealthchat |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Greetings. Casey Q here, #opendata #openscience #rightcare #bcsm #healthliteracy community voice. Also comedy writer. Olympic level f-bomber. #journo, too. #WEGOHealthChat |
| AutonomicRN© @AutonomicRN A1: being on @patientslikeme team of Advisors for the year! It was amazing. Also found @wegohealth and #WTFix has become near and dear to me also. Blogging too! #wegohealthchat |
 | Danny van Leeuwen @HealthHats My goals: support the caregiver community, focus on learning what works as we make health choices, improve communication during transitions, advocate for patient experts, and balance for me and as always, keep blowing my horn #wegohealthchat |
| Lisa Davis Budzinski @lisadbudzinski RT @wegohealth: Q1. What was your biggest accomplishment of 2017? When you started in 2017 was this the goal that you had in mind? #WEGOHealthChat |
| Help You Thru @Help_You_Thru #WEGOHealthChat |
| Laura Kolaczkowski 😷😷😷😷 @lkay54 Hi everyone I’m Laura, in Ohio and an #MultipleSclerosis advocate & #healthcareActivist #WEGOHealthChat |
| Must Stop MS! @MustStopMS A1 - My biggest accomplishment was being able to grow my network with other patient leaders thanks to the WEGO Health Awards. While we all may advocate for different reasons, the ideas, thoughts, struggles, etc. are all the same. #WEGOhealthchat |
| HealthSparq @HealthSparq RT @wegohealth: Q1. What was your biggest accomplishment of 2017? When you started in 2017 was this the goal that you had in mind? #WEGOHealthChat |
| Help You Thru @Help_You_Thru #WEGOHealthChat Looking forward to it |
| Lisa Davis Budzinski @lisadbudzinski @justagoodlife @Cpnervecenter Hi Julie! #WEGOHealthChat https://t.co/fprQDCn34A |
| AutonomicRN© @AutonomicRN @lisadbudzinski @Cpnervecenter Hey Lisa! #wegohealthchat |
| Lisa Davis Budzinski @lisadbudzinski @bbhomebody @Cpnervecenter Hey Pard!! #WEGOHealthChat |
 | Barby Ingle Official @BarbyIngle A1. 2017 accomplishments: Being in the #HIT100 and being named top 20 influencers in healthcare by @insidermonkey, and other accomplishments being in @prweek - Read more at - https://t.co/0Wzi4soAKp #WEGOHealthChat https://t.co/3YhGtMqZ6y |
| HealthSparq @HealthSparq Q1. One of our favorite accomplishments of 2017 was that we successfully held the first-ever #WTFix conference (& met so many amazing people in the process)! #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @AutonomicRN @Cpnervecenter Hey Kim!! ✨ #WEGOHealthChat |
| Help You Thru @Help_You_Thru I actually didn't have any. Late 2016 my parents passed so just getting through was accomplishment enough. Now I'm looking to really grow in 2018. https://t.co/6NDnUMVCrx |
| Danny van Leeuwen @HealthHats Q1 Accomplishments: maintain balance, advocate for caregivers, writing my blog and publishing in BMJ and JoPM #wegohealthchat |
| AutonomicRN© @AutonomicRN @bbhomebody @lisadbudzinski @Cpnervecenter Hey there! #wegohealthchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A1: Remaining housed. Truly a challenge for grassroots activist/advocates. Also pulled this off, tho. Jeopardy Meets Price is Right, at #HXR2017 https://t.co/JzhaSFZjMk #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @wegohealth A1 Our biggest accomplishment was setting up & starting @Cpnervecenter #WEGOHealthChat |
| Social Health Network @socialhealthnet We like to think our biggest lesson of 2017 was realizing that although we may all be in different condition areas- we really do have so much to learn from each other #WEGOHealthChat https://t.co/uk440CeoEC |
| Help You Thru @Help_You_Thru Sorry A1. No real accompishment in 2017 but looking to grow in 2018. https://t.co/6NDnUMVCrx |
| Amanda G @LAlupusLady A1 In 2017, shared my story on Capitol Hill, at #Connect2Health, the #LupusPFDD supported #iPain and raised #Lupus Awareness during Gaga's #JOANNEWorldTour "passions collide" #wegohealthchat |
| Kayla Cares 4 Kids @KCares4Kids A1: joining the WEGO Health team & making a decision to do more advocacy work #JuvenileArthritis #Crohns #Eosinphilic #wegohealthchat |
| Amanda G @LAlupusLady RT @HealthSparq: Q1. One of our favorite accomplishments of 2017 was that we successfully held the first-ever #WTFix conference (& met so many amazing people in the process)! #WEGOHealthChat |
| Must Stop MS! @MustStopMS RT @wegohealth: We like to think our biggest lesson of 2017 was realizing that although we may all be in different condition areas- we really do have so much to learn from each other #WEGOHealthChat https://t.co/uk440CeoEC |
| AutonomicRN© @AutonomicRN YES YES YES!!! #WTFix #WEGOHealthChat https://t.co/nToTuTUB29 |
| Deeanne @twistedpsister @Help_You_Thru Prayers for you and your family! #wegohealthchat |
| JP Summers @authorjpsummers HELLO ALL! I'm JP from Green Bay, WI https://t.co/KGZPHj5g6b |
| Deeanne @twistedpsister @justagoodlife You've accomplished so much!!! Always in awe of you! #wegohealthchat |
| Lisa Davis Budzinski @lisadbudzinski @justagoodlife Actually life is giving you more chapters 😉 #WEGOHealthChat |
| Kristen @srvingofspprt A1. My goal of 2017 was to start focusing more on my blog... I did not follow through. However, I did get to meet SO many new #PatientLeaders this year, so it’s still a win! #WEGOHealthChat |
| AutonomicRN© @AutonomicRN @justagoodlife Does being pregnant rank up high for 2017? 💕 #wegohealthchat |
 | Thacher Hussain @thacherhussain @wegohealth .@wegohealth A1: Keeping the momentum as a proactive patient and not letting #T1D get the best of me -- matched my goal, but the execution looked different #WEGOHealthChat |
| Deeanne @twistedpsister @srvingofspprt Same. I barely ever wrote in my blog. Need to start again and find my focus. #wegohealthchat |
 | J Greg Merritt, PhD @patientispard A1: Started a website in an area that I never thought I'd be working in.... but second lifes often can create second careers... :) #wegohealthchat |
| AutonomicRN© @AutonomicRN @lauracsanscarti Hey stranger!!!! Love that you’re here!!!!!! #WEGOHealthChat |
| Social Health Network @socialhealthnet So perfectly said! Cheers to you! #WEGOHealthChat https://t.co/EwBzUPTEtm |
| Thacher Hussain @thacherhussain @wegohealth A1: Keeping the momentum as a proactive patient and not letting #T1D get the best of me -- matched my goal, but the execution looked different #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @justagoodlife It’s ALL about the perspective 💕 #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle I lost both of my parents in 2015-2016 so I do know how hard it is. My oldest brother is the oldest living relative now, that weird. Sorry for your loss, but here's to 2018 being your greatest year! #WEGOHealthChat https://t.co/ms4a7xhgnc |
 | Anthony Leon @anthonynotleon @wegohealth A1: Finding passion and did not expect it. Docs thought I had cancer and after months of tests and diff docs, got cleared. Through this found new purpose, passion, direction, and on fire to change the world. Also dove with Great White Sharks to celebrate 😉 #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A1: also got a regular landing spot for #healthliteracy writing at @power4patients https://t.co/JdelALXdlm #WEGOHealthChat |
| JP Summers @authorjpsummers A1: 2017 was a year of HUGE personal changes in my life. I didn't really achieve my advocating goals, but did focus on #selfcare & contributed articles about my health situation (as well as my teen) to several online sources. #WEGOHealthChat https://t.co/YWcF3QyqsJ |
| AutonomicRN© @AutonomicRN @Help_You_Thru My mom died in 2010. It’s still hard. They are always with us, even when it feels so alone at times. Sending hugs your way! #WEGOHealthChat |
 | Angela Cohen @angelee828 Hi All! Sorry I’m late. Angela from Wisconsin here. :) #WEGOHealthChat |
| AutonomicRN© @AutonomicRN @angelee828 Hey stranger ! #WEGOHealthChat |
| AutonomicRN© @AutonomicRN @bbhomebody @JackieZimm I soooo want to go! Maybe next year! #WEGOHealthChat |
| Thacher Hussain @thacherhussain @justagoodlife that sounds like a more than reasonable delay #WEGOHealthChat |
| Help You Thru @Help_You_Thru #WEGOHealthChat A1 Didn't have much of a plan for 2017 but looking forward to really growing in 2018. |
| Social Health Network @socialhealthnet We love hearing these goals. Let's keep in mind you're biggest goal was indeed achieved: Being a strong a #PatientLeader in the online health community! This includes taking the time to care for YOU! #WEGOHealthChat |
| Social Health Network @socialhealthnet Let's jump to Q2! #WEGOHealthChat Q2: What are some ways that we can work together, across condition areas, to accomplish bigger and better goals this year? |
| JP Summers @authorjpsummers @justagoodlife Same here Julie! I had so much planned for 2017. Of course, I did not plan on separating from then filing for divorce after 19yrs of marriage. On the plus side, I bought a house close to my kids school & we are all very happy now! #lifeisgood #WEGOHealthChat |
| Must Stop MS! @MustStopMS RT @wegohealth: Let's jump to Q2! #WEGOHealthChat Q2: What are some ways that we can work together, across condition areas, to accomplish bigger and better goals this year? |
 | Rie Lopez, MPH (she/her) @RieOfLetters Hi all! Rie from sunny Massachusetts, sneaking in so unsubtly #WEGOHealthChat https://t.co/HztYVXhZGY |
| Help You Thru @Help_You_Thru Thanks. Looking to grow and have Help You Thru become far more visible in 2018. To that end, I'm planning on doing some Meetups https://t.co/bAH36STffR |
| Danny van Leeuwen @HealthHats Rather than bigger, better, persistent and steady #wegohealthchat |
 | alishambridges.com @AlishaMBridges A2: Guest blogging, sharing of other's content, podcast, and videos. #WEGOhealthChat #chroniclife https://t.co/lbPOrUasIR |
| AutonomicRN© @AutonomicRN A2: every #patientleader has at least two things in common: we’re human AND we’re patients. So no matter what projects there are, we all can relate on some level despite what condition it is #wegohealthchat |
| Deeanne @twistedpsister A2 These regular chats and groups on Facebook are excellent for learning more and brainstorming with each other. #wegohealthchat |
| Social Health Network @socialhealthnet Perfectly said! Great reminder as we start a new year #WEGOHealthChat https://t.co/OEpGwvYHYj |
 | Science 37 @Science37x Hello from rainy Los Angeles! #wegohealthchat |
 | JustDave @DaveHead40 RT @wegohealth: Perfectly said! Great reminder as we start a new year #WEGOHealthChat https://t.co/OEpGwvYHYj |
| Lisa Davis Budzinski @lisadbudzinski A2 By collaborating with others we can actually learn more together & achive monumental goals✨ #WEGOHealthChat https://t.co/ye4CWxiqqE |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A2: Um ... Nike that bitch? IOW, just do it. I'm forever throwing bombs at silo walls system-side. DO NOT allow silos to form in #epatient tribes! #WEGOHealthChat |
| Social Health Network @socialhealthnet RT @AutonomicRN: A2: every #patientleader has at least two things in common: A2: every #patientleader has at least two things in common: we’re human AND we’re patients. So no matter what projects there are, we all can relate on some level despite what condition it is #wegohealthchat |
| Laura Kolaczkowski 😷😷😷😷 @lkay54 A2 - would love to cross-pollinate communities by sharing blog posts outside of #multiplesclerosis because we face similar challenges https://t.co/d4hs5o17gu |
| Lisa Davis Budzinski @lisadbudzinski @RieOfLetters Lol! Hi Rie! #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle A2: Research and understand the unique and overlapping challenges of each condition community & collaborate when possible to make change and lasting impact for better access to care for all #WEGOHealthChat https://t.co/UDDumNC31L |
| Angela Cohen @angelee828 @wegohealth A1: My goal for 2017 was to try to share my story more. I’m grateful I was able to share my story a little more in 2017. If in any way helped ppl and raised some awareness great! That’s my ultimate goal for all years ;) #WEGOHealthChat |
| AutonomicRN© @AutonomicRN Gotta head to my next appt. Glad I was able to be on for a little bit. 😊 #wegohealthchat |
| Social Health Network @socialhealthnet A great way to share ideas is to join our closed #PatientLeader FB group. All WEGO Health Account holders are welcome. https://t.co/jTaRa0YDh1 #WEGOHealthChat https://t.co/6YmbNn4RqG |
| J Greg Merritt, PhD @patientispard #wegohealthchat A2: Maybe there is a way for partnering or triads to work together to share what you know and learn from one another? Q2: What are some ways that we can work together, across condition areas, to accomplish bigger and better goals this year? |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A2: f'rinstance, I'm on leadership team of Right Care Alliance. One major RCA goal is REAL universal health coverage for ALL. https://t.co/XMmh50HIbz #rightcare #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski RT @wegohealth: A great way to share ideas is to join our closed #PatientLeader FB group. All WEGO Health Account holders are welcome. https://t.co/jTaRa0YDh1 #WEGOHealthChat https://t.co/6YmbNn4RqG |
| Amanda G @LAlupusLady A2 We can work together, across condition areas, to accomplish bigger and better goals in 2018. Share your story and advocate from where you are. Plans to go to Capitol Hill, presenting at #HIMSS18 & a lot of fun during May aka #LupusAwarenessMonth #WEGOHealthChat |
| Must Stop MS! @MustStopMS A2 - Conditions may be different but many patient struggles can be the same. Maybe group chats or blogs or guest blogging. Anything to help a patient grow their network of connections #WEGOhealthchat |
| Danny van Leeuwen @HealthHats No silos may be more work than I can aspire to. Maybe reduce, bridge silos #wegohealthchat |
| Lisa Davis Budzinski @lisadbudzinski RT @BarbyIngle: A2: A2: Research and understand the unique and overlapping challenges of each condition community & collaborate when possible to make change and lasting impact for better access to care for all #WEGOHealthChat https://t.co/UDDumNC31L |
| JP Summers @authorjpsummers @justagoodlife So true! My health issues taught me that I am emotionally/physically much stronger than I ever thought possible and that I can overcome any obstacle thrown my way. #WEGOHealthChat |
 | Roxana Rudzik-Shaw @RRS_consultancy A1. Hello everyone & wishing you all a Mentally Healthy 2018! Biggest accomplishments of 2017:- *Completing specialist Diploma in Online Counselling with @OLTltd 🎓 *Working with @MindBoxChange 📱💻 *Learning something new, treating myself to a ukulele 🎶 #WEGOHealthChat #MHchat https://t.co/GcPPKjUtgI |
| Lisa Davis Budzinski @lisadbudzinski @BarbyIngle Yes! 👏👏👏👏💕 #WEGOHealthChat |
| Amanda G @LAlupusLady RT @BarbyIngle: A2: A2: Research and understand the unique and overlapping challenges of each condition community & collaborate when possible to make change and lasting impact for better access to care for all #WEGOHealthChat https://t.co/UDDumNC31L |
 | Cathy Chester @CathyChes Hello everyone! I'm late and have a lot of catching up to do! #WEGOHealthChat |
| Social Health Network @socialhealthnet Another friendly reminder for our fellow #PatientLeaders! #WEGOHealthChat https://t.co/vnf3gu27We |
| alishambridges.com @AlishaMBridges A2: Working with others outside of our immediate disease focus to show others how a lot of chronic diseases are linked. For example it would be cool to see someone with #psoriasis working with a mental health advocacy since both challenges go hand and hand. #WegohealthChat https://t.co/lbPOrUasIR |
| Thacher Hussain @thacherhussain @wegohealth .@wegohealth engaged listening, stop trying to multitask and focus on whatever it is you're doing -- I promise the results are x10 #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski RT @MustStopMS: A2 - Conditions may be different but many patient struggles can be the same. Maybe group chats or blogs or guest blogging. Anything to help a patient grow their network of connections #WEGOhealthchat |
| Amanda G @LAlupusLady RT @AutonomicRN: A2: every #patientleader has at least two things in common: A2: every #patientleader has at least two things in common: we’re human AND we’re patients. So no matter what projects there are, we all can relate on some level despite what condition it is #wegohealthchat |
| Rie Lopez, MPH (she/her) @RieOfLetters A2: I have been trying out various tweet chats and following people I find interesting, regardless of condition. So... I guess what I am trying to say that I like/find it important to make personal connections. #WEGOHealthChat |
 | Leslie Krongold, EdD @Leslie_GHF A1: Connecting with other patient leaders and serving on MDA's NCAC. A2: Focusing on common experience and goals with other patient leaders #wegohealthchat |
| Science 37 @Science37x @justagoodlife We are here to listen and learn! You might know two members of our Patient Affairs team, @stales and @itsthebunk :) #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @JessicaGimeno @wegohealth Why I'm part of @RightCareNow !! #WEGOHealthChat #rightcare |
| Science 37 @Science37x RT @lisadbudzinski: A2 By collaborating with others we can actually learn more together & achive monumental goals✨ #WEGOHealthChat https://t.co/ye4CWxiqqE |
| Rie Lopez, MPH (she/her) @RieOfLetters @lisadbudzinski Hi Lisa! #WEGOHealthChat |
| Kristen @srvingofspprt This is something I could probably look into a bit more...#wegohealthchat https://t.co/zTe1bo0KZp |
| Science 37 @Science37x RT @AlishaMBridges: A2: A2: Working with others outside of our immediate disease focus to show others how a lot of chronic diseases are linked. For example it would be cool to see someone with #psoriasis working with a mental health advocacy since both challenges go hand and hand. #WegohealthChat https://t.co/lbPOrUasIR |
| Thacher Hussain @thacherhussain .@wegohealth Delayed introduction -- I'm Thacher, Patient Advocate and Front End Developer, joining from Seattle -- and excited to be joining the #WEGOPatientLeaderAdvisoryBoard this year! #WEGOHealthChat |
| Science 37 @Science37x @AlishaMBridges Yes, we love this perspective! It makes perfect sense! #WegohealthChat |
| HealthSparq @HealthSparq RT @lisadbudzinski: A2 By collaborating with others we can actually learn more together & achive monumental goals✨ #WEGOHealthChat https://t.co/ye4CWxiqqE |
| Science 37 @Science37x RT @wegohealth: Another friendly reminder for our fellow #PatientLeaders! #WEGOHealthChat https://t.co/vnf3gu27We |
| Science 37 @Science37x RT @ADVofSpoonieMom: @justagoodlife So true! My health issues taught me that I am emotionally/physically much stronger than I ever thought possible and that I can overcome any obstacle thrown my way. #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @justagoodlife My job is done for the day. Hehehe 😉 #WEGOHealthChat |
| J Greg Merritt, PhD @patientispard Take on transparency of cost issues - work across conditions to find ways to ask/demand? for better communication #wegohealthchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @AlishaMBridges Throw in some @PoetryforPower recovery movement magic on that one! #WEGOHealthChat #rightcare cc @wegohealth |
| Lisa Davis Budzinski @lisadbudzinski @HealthSparq Hi Anna!! Just saw you ✨ #WEGOHealthChat |
| Anthony Leon @anthonynotleon @wegohealth A2: Like someone stated these chats help. Let's document and share our struggles and successes. The documenting helps us along the journey and look back where we came from while inspiring others that maybe starting theirs. Collaboration is key. #WEGOHealthChat |
| Kayla Cares 4 Kids @KCares4Kids RT @RieOfLetters: A2: A2: I have been trying out various tweet chats and following people I find interesting, regardless of condition. So... I guess what I am trying to say that I like/find it important to make personal connections. #WEGOHealthChat |
| Cathy Chester @CathyChes Is there a question we're all answering? Just got here @justagoodlife #wegohealthchat |
| alishambridges.com @AlishaMBridges RT @MightyCasey: @AlishaMBridges Throw in some @PoetryforPower recovery movement magic on that one! #WEGOHealthChat #rightcare cc @wegohealth |
| Science 37 @Science37x @anthonynotleon Good to hear! :) #wegohealthchat |
| Science 37 @Science37x RT @AutonomicRN: A2: every #patientleader has at least two things in common: A2: every #patientleader has at least two things in common: we’re human AND we’re patients. So no matter what projects there are, we all can relate on some level despite what condition it is #wegohealthchat |
| Science 37 @Science37x RT @wegohealth: A great way to share ideas is to join our closed #PatientLeader FB group. All WEGO Health Account holders are welcome. https://t.co/jTaRa0YDh1 #WEGOHealthChat https://t.co/6YmbNn4RqG |
| Social Health Network @socialhealthnet Q3. Learning from other Patient Leaders is a wonderful way to build your own advocacy brand. Tag someone in your community who truly made an impact in 2017. What is one think you learned from this person, that helped you become stronger as a Patient Leader? #WEGOHealthChat |
| Science 37 @Science37x RT @anthonynotleon: @wegohealth A2: @wegohealth A2: Like someone stated these chats help. Let's document and share our struggles and successes. The documenting helps us along the journey and look back where we came from while inspiring others that maybe starting theirs. Collaboration is key. #WEGOHealthChat |
| Must Stop MS! @MustStopMS RT @wegohealth: Q3. Learning from other Patient Leaders is a wonderful way to build your own advocacy brand. Tag someone in your community who truly made an impact in 2017. What is one think you learned from this person, that helped you become stronger as a Patient Leader? #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @JessicaGimeno @HealthcareRC @darlakbrown @mattbc @PatientMiles @stacykstanford One constant w/ @RightCareNow is annual MLK Weekend leadership retreat. PERFECT way to honor memory of #CivilRights leader by driving social justice in healthcare, IMO. #WEGOHealthChat |
| Science 37 @Science37x RT @thacherT1D: .@wegohealth Delayed introduction -- I'm Thacher, Patient Advocate and Front End Developer, joining from Seattle -- and excited to be joining the #WEGOPatientLeaderAdvisoryBoard this year! #WEGOHealthChat |
| Thacher Hussain @thacherhussain RT @AlishaMBridges: A2: A2: Working with others outside of our immediate disease focus to show others how a lot of chronic diseases are linked. For example it would be cool to see someone with #psoriasis working with a mental health advocacy since both challenges go hand and hand. #WegohealthChat https://t.co/lbPOrUasIR |
| Rie Lopez, MPH (she/her) @RieOfLetters This is so very important! It is easy to expend a lot of energy when you are passionate about patients and advocacy. We can, should, and do help each other! #WEGOHealthChat https://t.co/DHLMFnxKnJ |
| Science 37 @Science37x RT @MightyCasey: @JessicaGimeno @wegohealth Why I'm part of @RightCareNow !! #WEGOHealthChat #rightcare |
| Barby Ingle Official @BarbyIngle @lkay54 I dedicate time on (good) days to research, reading, learning about diseases (symptoms, conditions, treatment options) and people send me opportunities to colaborate, I check them out and see if it is a fit. #WEGOHealthChat |
| Cathy Chester @CathyChes @justagoodlife hi! What are we talking about? #wegohealthchat |
| Danny van Leeuwen @HealthHats Q3 @MightyCasey Courage #wegohealthchat |
| J Greg Merritt, PhD @patientispard A2: Is there a way to capture these chats and then create some sort of collective effort we will move forward on doing together? #wegohealthchat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @AlishaMBridges: A2: A2: Working with others outside of our immediate disease focus to show others how a lot of chronic diseases are linked. For example it would be cool to see someone with #psoriasis working with a mental health advocacy since both challenges go hand and hand. #WegohealthChat https://t.co/lbPOrUasIR |
| Social Health Network @socialhealthnet Yes yes yes yes YES! #WEGOHealthChat https://t.co/Ak8CTiRfDk |
| Roxana Rudzik-Shaw @RRS_consultancy I believe Health & Mental Health are equally important. TOGETHER everyone achieves much more via awareness, being there & supporting one another where able to. Gifting time to listen & really try to understand is a powerful tool. #MentalHealth #WEGOHealthChat #ParityOfEsteem https://t.co/nfUEXzzEpw |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @justagoodlife Civil rights in healthcare MIA in the US. "Best care in the world" = total f'ing lie, since YMMV rules within cities, states, regions, nation. #MoneyMedicine is evil, gotta get burnt down. #sdoh #WEGOHealthChat #rightcare |
| Thacher Hussain @thacherhussain @bbhomebody ...so many spoons #spoonies #WEGOHealthChat |
| Amanda G @LAlupusLady A3 The "Cheerleader of Hope" @BarbyIngle teaches and reminds me that strength and courage are essential when struggling with invisible illness and pain in 2017. She has taught me to tackle one task at a time. #WEGOHealthChat https://t.co/cbbSig4eeZ |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @Science37x @stales @itsthebunk HAIIII THERE!!!! #wegohealthchat |
| Danny van Leeuwen @HealthHats @MightyCasey @justagoodlife What is YMMV? #wegohealthchat |
| Laura Kolaczkowski 😷😷😷😷 @lkay54 @MightyCasey & https://t.co/mUj4iO1hyj has given me even more commitment to patient advocates being compensated equitably for our knowledge #wegohealthchat https://t.co/6bHZsfSg1b |
| Deeanne @twistedpsister A3 @Justagoodlife for sure as we both have PsA. I think the best thing I learn is it's ok to have good days and not so good #wegohealthchat |
| Lisa Davis Budzinski @lisadbudzinski A3 @Cpnervecenter would love to tag & thank @HealthSparq @Clara_Health @TheResearchLoop @powerofpain for all their help, knowledge & collaboration. #hcldr #HITsm #Irishmed #Wtfix for believing in us✨ #WEGOHealthChat https://t.co/xVsLRVEzT9 |
| Cathy Chester @CathyChes @bbhomebody Exactly. We are still patients fighting our own battles yet continue to want to help others. Banding together will help us individually and also helps the communities! #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle A3. @NicoleArbour made an impact on me... she is a #CheerleaderofHOPE (like I am) and motivates me to share more, show more REALity truths, and make an impact that makes a difference #GoTeam #HeroOfHope #iPainMagazine cover story 2017 - #WEGOHealthChat https://t.co/DuBMWjn2jt |
| Leslie Krongold, EdD @Leslie_GHF A2: With my podcast episodes I love to take a topic and include perspectives from multiple patients, i.e. "medical cannabis" and heear from people with chronic pain, depression, post-cancer, muscular dystrophy, etc. #wegohealthchat |
| Roxana Rudzik-Shaw @RRS_consultancy @justagoodlife @OLTltd @MindBoxChange Thank you kindly Julie. Admittedly the uke is still a work in progress. I've learnt to play a few tunes on it and sing along too. 🎼🎸 #Learning #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle RT @LAlupusLady: A3 The "Cheerleader of Hope" @BarbyIngle teaches and reminds me that strength and courage are essential when struggling with invisible illness and pain in 2017. She has taught me to tackle one task at a time. #WEGOHealthChat https://t.co/cbbSig4eeZ |
| Amanda G @LAlupusLady a3 also @KathleenArntsen of @LADAOrg has given me opportunities to impact and support the #Lupus community with a patient-run national organization, one change at a time. #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters A3: Just one?! Ha! @lisadbudzinski & @bbhomebody are doing awesome things for awareness. @AutonomicRN is fabulous with personal support and knowledge. I love @btrfly12 and @womenofteal for their amazing community building w/#gyncsm #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A3: @richvsmm Grace under extreme pressure + f'ing amazing writer. #MMSM #WEGOHealthChat |
| Deeanne @twistedpsister A3 ct @tiffanyofIFAA too! She constantly amazes me with her strength to get things done but know her limits. Helps so much! #wegohealthchat |
| Kristen @srvingofspprt A3 I’m also inspired by @gabehoward29 for his work in the #mentalhealth. Along with @LeenahBeenah @lindseyhallblog @ProjectHEALbost #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski RT @RieOfLetters: A3: A3: Just one?! Ha! @lisadbudzinski & @bbhomebody are doing awesome things for awareness. @AutonomicRN is fabulous with personal support and knowledge. I love @btrfly12 and @womenofteal for their amazing community building w/#gyncsm #WEGOHealthChat |
| Cathy Chester @CathyChes @chronic_hopeful @wegohealth YAY for you!!! #WEGOHealthChat |
| Thacher Hussain @thacherhussain @wegohealth .@wegohealth Other Patient Leaders are what pulled me out of post-diagnosis depression and brought me to where I am now in advocacy... starting with @iam_spartacus .. he reminded me that it's okay to not be okay, both physically and with #mHealth too #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @RieOfLetters @bbhomebody @AutonomicRN @btrfly12 @womenofteal Thank you so so much Rie! We love having you with us✨ #WEGOHealthChat |
 | CP Nerve Center @Cpnervecenter @lisadbudzinski @HealthSparq @Clara_Health @TheResearchLoop @powerofpain I Wholeheartedly agree! We love these collaborations! And many more... on any given day we connect with many new tweet advocates....its such a rich environment around here! #WEGOHealthChat |
 | Enlightening Results 💡 @GraceCordovano Hi #WEGOHealthChat! On a call, sad can’t join but looking forward to catching up on the discussion later! |
| Angela Cohen @angelee828 @wegohealth A2: Share resources & accurate info since many conditions/specialties intersect. Even if they don’t, help support one another. There are so many commonalities w/ the struggles of chronic illnesses that we all know (unfortunately) far too well. #WEGOHealthChat |
| alishambridges.com @AlishaMBridges A3: Definitely @imstilljosh! He did a workshop at a conference on how to improve your advocacy videos. It was so awesome and I incorporated some of his tips. #WegohealthChat #Chroniclife https://t.co/JRKQoX6YTD |
| Science 37 @Science37x @justagoodlife @stales @itsthebunk We do believe we have great taste ;) ! Thank you, Julie! 2018 is going to be full of great things! #wegohealthchat |
| Lisa Davis Budzinski @lisadbudzinski @thacherT1D @wegohealth @iam_spartacus That’s wonderful!! #WEGOHealthChat |
| Kristen @srvingofspprt A3 Alright honestly I can’t even single it down to just ten #PatientLeaders. You’re all just tremendous! #WEGOHealthChat https://t.co/7HucDOrllO |
| Roxana Rudzik-Shaw @RRS_consultancy RT @wegohealth: Q3. Learning from other Patient Leaders is a wonderful way to build your own advocacy brand. Tag someone in your community who truly made an impact in 2017. What is one think you learned from this person, that helped you become stronger as a Patient Leader? #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @JessicaGimeno @CathyChes @wegohealth F*** AWARENESS. OMFG, who with an illness/condition/whatevs is NOT aware? Time for ACTION. Burn the gotdam ribbons, pick up a torch and storm the castle. #WEGOHealthChat |
| Laura Kolaczkowski 😷😷😷😷 @lkay54 A3 other amazing advocates who inspire me are those who remind me to not take this so seriously 100% of time such as @MrEscombe - finding joy even in our advocacy work is important lesson #WEGOHealthChat |
 | Tommy London @tommylondon RT @LAlupusLady: @justagoodlife @Spotify Rock with #SugarRed the new single by @tommylondon https://t.co/ZJV3P317yY #WEGOHealthChat soundtrack |
 | International Pain Foundation® @iPainOfficial RT @LAlupusLady: A3 The "Cheerleader of Hope" @BarbyIngle teaches and reminds me that strength and courage are essential when struggling with invisible illness and pain in 2017. She has taught me to tackle one task at a time. #WEGOHealthChat https://t.co/cbbSig4eeZ |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: A3. @NicoleArbour made an impact on me... she is a #CheerleaderofHOPE (like I am) and motivates me to share more, show more REALity truths, and make an impact that makes a difference #GoTeam #HeroOfHope #iPainMagazine cover story 2017 - #WEGOHealthChat https://t.co/DuBMWjn2jt |
| Science 37 @Science37x RT @CathyChes: @bbhomebody Exactly. We are still patients fighting our own battles yet continue to want to help others. Banding together will help us individually and also helps the communities! #WEGOHealthChat |
| Leslie Krongold, EdD @Leslie_GHF A3: When you have a rare disease (myotonic dystrophy), you must look out to other patient communities. I was happy to find @CathyChes and learn about patient leaders from her #wegohealthchat |
| Rie Lopez, MPH (she/her) @RieOfLetters A3b To be fair, I overlap in a lot of communities, with diagnosis or risk, so I am inspired by so many of you all. 💜💚🧡#WEGOHealthChat |
| Cathy Chester @CathyChes Was diagnosed with another chronic illness in 2017. Wasn't as active in advocacy as I wanted to B. New learning curve. Ugh #WEGOHealthChat |
 | Amy Fesmire @amy_fes RT @wegohealth: A great way to share ideas is to join our closed #PatientLeader FB group. All WEGO Health Account holders are welcome. https://t.co/jTaRa0YDh1 #WEGOHealthChat https://t.co/6YmbNn4RqG |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @lkay54 #WEGOHealthChat https://t.co/NXTn2vwFhg |
| Rie Lopez, MPH (she/her) @RieOfLetters @bbhomebody @lisadbudzinski @AutonomicRN @btrfly12 @womenofteal How did you know what I was eating? LOL! Seriously... Chocolate! #WEGOHealthChat https://t.co/FkViCt0PuP |
 | CareMo @caring_mobile RT @thacherT1D: @wegohealth .@wegohealth Other Patient Leaders are what pulled me out of post-diagnosis depression and brought me to where I am now in advocacy... starting with @iam_spartacus .. he reminded me that it's okay to not be okay, both physically and with #mHealth too #WEGOHealthChat |
| Science 37 @Science37x @JackieZimm @patientispard Please share the link! Thanks :) #WEGOHealthChat |
| Cathy Chester @CathyChes @JessicaGimeno @MightyCasey @wegohealth Great analogy. I am so tired of campaigns. We need action. We need answers. We need good research. We need to use our collective voices! #WEGOHealthChat |
| Social Health Network @socialhealthnet Lesson learned from Question 3: There are TONS of #PatientLeaders making a big impact! #WEGOHealthChat https://t.co/rNI1PvokOm |
| Social Health Network @socialhealthnet Let's jump to Q4 #WEGOHealthChat. When thinking about 2018, are there any big projects, conferences, or movements you’re really excited about? |
| Anthony Leon @anthonynotleon @wegohealth A3: 1/2 My possible cancer scare came from abnormally low T scores (I'm 34). I knew something was wrong because mentally things weren't right on top of physical. Scary times with young fam. I wasn't on Twitter or found support yet but @garyvee podcasts changed me #WEGOHealthChat |
| HealthSparq @HealthSparq RT @Cpnervecenter: @lisadbudzinski @HealthSparq @Clara_Health @TheResearchLoop @powerofpain I Wholeheartedly agree! We love these collaborations! And many more... on any given day we connect with many new tweet advocates....its such a rich environment around here! #WEGOHealthChat |
| Science 37 @Science37x RT @MightyCasey: @Science37x @stales @itsthebunk HAIIII THERE!!!! #wegohealthchat |
| Help You Thru @Help_You_Thru RT @patientispard: A2: A2: Is there a way to capture these chats and then create some sort of collective effort we will move forward on doing together? #wegohealthchat |
| Science 37 @Science37x RT @CathyChes: @JessicaGimeno @MightyCasey @wegohealth Great analogy. I am so tired of campaigns. We need action. We need answers. We need good research. We need to use our collective voices! #WEGOHealthChat |
| HealthSparq @HealthSparq @lisadbudzinski @Cpnervecenter @Clara_Health @TheResearchLoop @powerofpain Aw thank you!!! We are so glad to have met you and to be able to collaborate with you, @lisadbudzinski! #WEGOHealthChat |
| Help You Thru @Help_You_Thru I would love that? https://t.co/wT4eAobckM |
| Roxana Rudzik-Shaw @RRS_consultancy Having launched in Nov 2017, @MindBoxChange's co-directors @AnnaRichardso @GarethOgdenCH @LesleyHibberdCH most certainly made a positive impact with a clear mission "To provide the best therapy, in the right place, when you need it the most" #WEGOHealthChat #MentalHealth #MindBox https://t.co/vecNxt3KzG |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @CathyChes @JessicaGimeno @wegohealth HELLO, #openscience!! + @Science37x + @cochranecollab + #PatientsIncluded #WEGOHealthChat |
| Help You Thru @Help_You_Thru I meant I would love that! https://t.co/wT4eAobckM |
| Cathy Chester @CathyChes @wegohealth For me it's The Consortium of Multiple Sclerosis Centers annual meeting. I am their blogger & get 2 speak to docs, nurses, researchers, pharma & listen to great talks! #WEGOHealthChat |
| Deeanne @twistedpsister A4 excited to have a couple ways of meeting with state legislators for health issues. Would love to find more opportunities #wegohealthchat |
| Anthony Leon @anthonynotleon @wegohealth @garyvee A3: 2/2 I've been talking to other men about checking T levels because it is more important to mental health than we realize. I haven't found the right avenue yet but taking steps to improve it have changed my life so much with passion came my direction. #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski A4 We At @Cpnervecenter are excited to go to #raredisease day on Capitol Hill! Still have our fingers crossed for @StanfordMedX @StanfordPain #WEGOHealthChat https://t.co/MfURxPWNri |
| J Greg Merritt, PhD @patientispard A4: Being a patient voice on the @MillionHeartsUS collaborative and increasing utilization of cardiac rehab from 20 to 70% #wegohealthchat |
| Barby Ingle Official @BarbyIngle A4. iPain will being doing new #iPainFeaturettes, I am so excited to be apart of putting these together!!!! Also, #iPainLivingMagazine #NERVEmber #MusicMovesAwareness #RareDiseaseDay #WEGOHealthChat https://t.co/hG0BouHoFA |
| Cathy Chester @CathyChes Like @spondywolfgirl I'd like to find more opportunities to speak to state legislators. We need more of that! #WEGOHealthChat |
| Science 37 @Science37x RT @anthonynotleon: @wegohealth @garyvee A3: @wegohealth @garyvee A3: 2/2 I've been talking to other men about checking T levels because it is more important to mental health than we realize. I haven't found the right avenue yet but taking steps to improve it have changed my life so much with passion came my direction. #WEGOHealthChat |
| Science 37 @Science37x RT @MightyCasey: @CathyChes @JessicaGimeno @wegohealth HELLO, #openscience!! + @Science37x + @cochranecollab + #PatientsIncluded #WEGOHealthChat |
| Cathy Chester @CathyChes @BarbyIngle What is iPain? Thank you. #WEGOHealthChat |
| Leslie Krongold, EdD @Leslie_GHF A4: I gravitate toward events/conferences with a focus on self-care practice, food = medicine, and other natural, holistic modalities. #WEGOHealthChat |
| Danny van Leeuwen @HealthHats A4: clinical decision support to manage chronic pain #wegohealthchat |
| Cathy Chester @CathyChes @Leslie_GHF That's fabulous! I need to listen to your podcasts, Leslie! #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski And this 👇is why we love @powerofpain! #WEGOHealthChat https://t.co/7Qldl86GUc |
| Kristen @srvingofspprt Q4. I’m excited to participate in the 2018 @NEDAstaff walks. For so long I’ve been too ashamed of my mental illness but the online health community has inspired me to the max these last 2 years! I’m excited to finally raise awareness for my community CONFIDENTLY! #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle #iPain is short for International Pain Foundation (@powerofpain) ... https://t.co/sxETR2ejHa - you are welcome :) #WEGOHealthChat https://t.co/qEYmKjCGDN |
| J Greg Merritt, PhD @patientispard #wegohealthchat |
| Barby Ingle Official @BarbyIngle Awe! Thank you! #WEGOHealthChat https://t.co/FVLrzlQOyI |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A4: I'm sure you'll be SHOCKED, SHOCKED to hear me pimp #RightCare. Also @Science37x + their goal to increase #clinicaltrial access for humans w/"stuff" of all sorts. #openscience #scienceliteracy #Healthliteracy #WEGOHealthChat |
| JP Summers @authorjpsummers A4: Headache on the Hill in February, writing several novels (fiction romance/suspense & non-fiction), networking with patients like myself by attending more conferences, & starting a #migraine/#clusterheadache support in my area that helps caregivers/patients #WEGOHealthChat https://t.co/FRpiAGweM7 |
| Laura Kolaczkowski 😷😷😷😷 @lkay54 A4 #WEGOHealthChat- so many on horizon #CMSC2018 in Nashville. #RIMS2018 in Amsterdam perhaps! #ACTRIMS IN San Diego. #DIA2018 in Boston all but #DIA are #multiplesclerosis science mtgs. #healthevoices2018 would be great to meet other disease advocates |
 | iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: #iPain is short for International Pain Foundation (@powerofpain) ... https://t.co/sxETR2ejHa - you are welcome :) #WEGOHealthChat https://t.co/qEYmKjCGDN |
| International Pain Foundation® @iPainOfficial RT @lisadbudzinski: And this 👇is why we love @powerofpain! #WEGOHealthChat https://t.co/7Qldl86GUc |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: #iPain is short for International Pain Foundation (@powerofpain) ... https://t.co/sxETR2ejHa - you are welcome :) #WEGOHealthChat https://t.co/qEYmKjCGDN |
| Rie Lopez, MPH (she/her) @RieOfLetters A4: I will be talking to @LillyStairs tomorrow, so I am very excited about that. I'm hoping to write more and become more involved with my local #Mentalhealth working group. #WEGOHealthChat |
| Laura Kolaczkowski 😷😷😷😷 @lkay54 Bring the baby along - plenty of surrogate aunts, uncles and grandparents in attendance. https://t.co/ye5Z3PvuDf |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: Awe! Thank you! #WEGOHealthChat https://t.co/FVLrzlQOyI |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: A4. iPain will being doing new #iPainFeaturettes, I am so excited to be apart of putting these together!!!! Also, #iPainLivingMagazine #NERVEmber #MusicMovesAwareness #RareDiseaseDay #WEGOHealthChat https://t.co/hG0BouHoFA |
| Lisa Davis Budzinski @lisadbudzinski A4 Being a part of @savvy_coop is another wonderful thing for 2018! #WEGOHealthChat |
| Social Health Network @socialhealthnet Q5: Are there any hashtags you’ll follow/participate in that inspire you to achieve your goals? #WEGOHealthChat |
| Help You Thru @Help_You_Thru Q4. I would love to do a meditation retreat being I'm a yoga teacher of long-standing. https://t.co/OkBLKfq51Y |
| HealthSparq @HealthSparq RT @AutonomicRN: A2: every #patientleader has at least two things in common: A2: every #patientleader has at least two things in common: we’re human AND we’re patients. So no matter what projects there are, we all can relate on some level despite what condition it is #wegohealthchat |
| J Greg Merritt, PhD @patientispard A4: Finding ways for health care conferences to pay/sponsor patients and ask for their help and expertise to evaluate whether what they are discussing is translating to us (not just the echo chamber) -- how might this change healthcare? #wegohealthchat |
| Laura Kolaczkowski 😷😷😷😷 @lkay54 RT @MightyCasey: @lkay54 #WEGOHealthChat https://t.co/NXTn2vwFhg |
| JP Summers @authorjpsummers I forgot to ADD participating in my very 1st @miles4migraine #5K in #Chicago this spring #WEGOHealthChat |
| Science 37 @Science37x @wegohealth We are excited about many things coming in 2018 and will share them when we can! For now, take a peek at what we learned when our team members attended the @TCOYD conf https://t.co/ZhfPjKHIqw #diabetes #pwd #dsma #WEGOHealthChat |
| Help You Thru @Help_You_Thru I think that's a great idea! https://t.co/OkBLKfq51Y |
| HealthSparq @HealthSparq RT @wegohealth: Let's jump to Q4 #WEGOHealthChat. When thinking about 2018, are there any big projects, conferences, or movements you’re really excited about? |
| Rie Lopez, MPH (she/her) @RieOfLetters How could I possibly forget @savvy_coop?! So. Excited. 🎉🎉🎉 #WEGOHealthChat https://t.co/Vt39kn1uvY |
| Deeanne @twistedpsister A5 I love @hurtblogger's tag #chroniclife. So great for accomplishments &4 when things don't go right.Perfect for advocating #wegohealthchat |
| Deeanne @twistedpsister RT @RieOfLetters: How could I possibly forget @savvy_coop?! So. Excited. 🎉🎉🎉 #WEGOHealthChat https://t.co/Vt39kn1uvY |
| Cathy Chester @CathyChes @RieOfLetters @LillyStairs Excellent goals, Rie. Where can I read your talk with @LillyStairs? #WEGOHealthChat |
| Roxana Rudzik-Shaw @RRS_consultancy Learning is exciting as it either entails absorbing some new ideas or re-thinking what I think I might know. In 2018 I'm excited to attend No Limits - Diversity Festival learning from top key speakers @kelliefmaloney @MrJonnyBenjamin @neillaybourn 😊#WEGOHealthChat #MentalHealth https://t.co/De5PHMZLEe |
| Lisa Davis Budzinski @lisadbudzinski A5 #WEGOHealthChat #hcldr #irishmed #patientchat #patientshavepower #WTFix #PWChat #MEQAPI #HITsm #KareoChat https://t.co/qFAFZ6uJXw |
| Leslie Krongold, EdD @Leslie_GHF Q5: Can WEGO do a hashtag 101 tutorial? 😬 #WEGOHealthChat |
| Angela Cohen @angelee828 @wegohealth A3: I feel truly lucky that the #IBDFamily is so supportive. I could tag all day between the advice & support I received from so many. I hope to one day pay it forward. #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey I'm Steering Committee for #HDP2018 in DC in April. Also crossing fingers to make it to #HIMSS18 + Cochrane Colloquium in Edinburgh in Sept. #PatientsIncluded #WEGOHealthChat |
| Cathy Chester @CathyChes @wegohealth I agree with @JackieZimm I don't do that many twitter chats but now that I have another chronic illness from 2017 I need to learn and learn and..I need new hashtags! Thoughts? .#WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @CathyChes @LillyStairs It's just informal brainstorming, but I will absolutely let you know if we do something fab together 😘 #WEGOHealthChat |
| Deeanne @twistedpsister @justagoodlife @HurtBlogger YES! I so totally agree. #wegohealthchat |
| Social Health Network @socialhealthnet Whoa this hour is coming up fast! #WEGOHealthChat |
| Science 37 @Science37x RT @MightyCasey: A4: A4: I'm sure you'll be SHOCKED, SHOCKED to hear me pimp #RightCare. Also @Science37x + their goal to increase #clinicaltrial access for humans w/"stuff" of all sorts. #openscience #scienceliteracy #Healthliteracy #WEGOHealthChat |
| Thacher Hussain @thacherhussain @wegohealth .@wegohealth A4: the #WEGOPatientLeaderAdvisoryBoard !! building a side project with another #T1D and continuing fine-tuning/leveraging my use of #OpenAPS #WEGOHealthChat |
| Science 37 @Science37x @MightyCasey Thank you so much, Casey! #WEGOHealthChat |
 | Savvy Cooperative | #AskPatients @savvy_coop RT @RieOfLetters: How could I possibly forget @savvy_coop?! So. Excited. 🎉🎉🎉 #WEGOHealthChat https://t.co/Vt39kn1uvY |
| Help You Thru @Help_You_Thru This was great! https://t.co/2EgclHjxgW |
| Must Stop MS! @MustStopMS @JackieZimm @wegohealth Love to have you! #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle A5. My favorite hashtags: #GenerationP #NERVEmber #iPainPOP #IHaveTheNerveToBeHeard #DoYouHveTheNerveToBeHeard #HopeIsTrue #CheerleaderOfHOPE #PatientsHavePower #BreakthroughCrew #iFightPain #FightPain #CanyoUheaRmE #iPain #iPainLiving #WEGOHealthChat https://t.co/gP0BfF2kV6 |
| Savvy Cooperative | #AskPatients @savvy_coop RT @lisadbudzinski: A4 Being a part of @savvy_coop is another wonderful thing for 2018! #WEGOHealthChat |
| Thacher Hussain @thacherhussain RT @spondywolfgirl: A5 I love @hurtblogger's tag #chroniclife. So great for accomplishments &4 when things don't go right.Perfect for advocating #wegohealthchat |
| Social Health Network @socialhealthnet Let's chat new goals! #WEGOHealthChat Q6. If you could pick one goal to accomplish in 2018, what would it be? |
| Science 37 @Science37x RT @MightyCasey: I'm Steering Committee for #HDP2018 in DC in April. Also crossing fingers to make it to #HIMSS18 + Cochrane Colloquium in Edinburgh in Sept. #PatientsIncluded #WEGOHealthChat |
 | Gareth Ogden @GarethOgdenCH RT @RRS_consultancy: Having launched in Nov 2017, @MindBoxChange's co-directors @AnnaRichardso @GarethOgdenCH @LesleyHibberdCH most certainly made a positive impact with a clear mission "To provide the best therapy, in the right place, when you need it the most" #WEGOHealthChat #MentalHealth #MindBox https://t.co/vecNxt3KzG |
| Science 37 @Science37x RT @lisadbudzinski: A5 #WEGOHealthChat #hcldr #irishmed #patientchat #patientshavepower #WTFix #PWChat #MEQAPI #HITsm #KareoChat https://t.co/qFAFZ6uJXw |
| Laura Kolaczkowski 😷😷😷😷 @lkay54 Totally off topic - why doesn't my #Fitbit recognize I am climbing stairs and also doesn't know I'm riding my stationary bike while tweeting? My legs and thigh muscles know! #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @Science37x #WEGOHealthChat https://t.co/Dj74MSvYoF |
| Danny van Leeuwen @HealthHats A6: focus on learning what works as we make health choices #wegohealthchat |
| Rie Lopez, MPH (she/her) @RieOfLetters A5: #WEGOHealthChat of course, #PatientsHavePower #patientchat #gyncsm #IrishMed and #WTFix I think that's it... For now. |
| Anthony Leon @anthonynotleon @wegohealth A6: Getting more people to deploy empathy. #WEGOHealthChat |
| Social Health Network @socialhealthnet Q6 cont. We want to encourage you to commit to accomplishing at least one goal this year and we’ll help hold you accountable! If you fill out this form and tag us, we’ll reach out at the end of the year to see if you were successful (which you will be)! #WEGOHealthChat https://t.co/J8NN2SdnIK |
| Cathy Chester @CathyChes @wegohealth To branch out from writing, perhaps speaking, and finding ways to collaborate with other Patient Leaders. I would LOVE that. #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski RT @wegohealth: Q6 cont. We want to encourage you to commit to accomplishing at least one goal this year and we’ll help hold you accountable! If you fill out this form and tag us, we’ll reach out at the end of the year to see if you were successful (which you will be)! #WEGOHealthChat https://t.co/J8NN2SdnIK |
| Roxana Rudzik-Shaw @RRS_consultancy A5. There are oodles of #'s around twitterville, right? One of my favs has to be > #MHchat < meaning Mental Health Chat. You're all welcome to attend & share your opinions with @MHchat. #WEGOHealthChat #MentalHealth https://t.co/76CWA1Y7P1 |
| Thacher Hussain @thacherhussain @wegohealth .@wegohealth A5: #OpenAPS always, since that's part of my daily life, #T1D ... more than hashtags I just follow all the people that are doing great things and watch for what they are doing/talking about #WEGOHealthChat |
| Deeanne @twistedpsister A6 only 1? lol. To make it to Tallahassee as often as groups go there to change two of Florida's main issues in healthcare #wegohealthchat |
| Social Health Network @socialhealthnet Q6 cont. You can stay extra accountable by writing a blog post with this graphic or challenging a friend to write out their goal and check in on each other! #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle A6. My 2018 goal is be better at fundraising so that I can do more projects and collaborate more meaningful lasting projects that change lives for the better! It is my weakest area personally which affects my advocacy ability. #WEGOHealthChat https://t.co/sTn3O2kObU |
| Danny van Leeuwen @HealthHats Bye #wegohealthchat |
 | Christina Lowe @thursdaysageek5 RT @wegohealth: Q3. Learning from other Patient Leaders is a wonderful way to build your own advocacy brand. Tag someone in your community who truly made an impact in 2017. What is one think you learned from this person, that helped you become stronger as a Patient Leader? #WEGOHealthChat |
| Deeanne @twistedpsister @BarbyIngle I need to learn about that too! So disappointed in my fundraising last year! #wegohealthchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A6: Will continue to try to stay sheltered/fed in '18. IOW, make MONEY, honey. Signals are mixed, but positive, there. We'll see ... Stay tuned for my Patreon page, launching soon 😜😜😜 #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters A6: Main goal is to use my #publichealth and #mentalhealth background to become a much better patient leader, especially for #ChronicPain patients. #WEGOHealthChat |
| Help You Thru @Help_You_Thru That's a really good idea https://t.co/vCnodOEN1N |
| Lisa Davis Budzinski @lisadbudzinski @BarbyIngle OMGOSH I need to mention #NERVEmber! We are truly grateful for thus #hashtag 💕 #WEGOHealthChat |
| Kristen @srvingofspprt #WEGOHealthChat @NEDAstaff @ProjectHEAL https://t.co/oRSWi4DyNA |
| Thacher Hussain @thacherhussain @wegohealth .@wegohealth oh shit... keeping it real... I just thought of this and I'll probably regret committing to this out loud... have the first beta of my side project out to users... that means, built, tested, available... #T1D #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @anthonynotleon @wegohealth This is an amazing goal. It seems that in some spheres, there's really a lack of empathy. #WEGOHealthChat |
| Deeanne @twistedpsister A6 cont, personal goal is several more races for @racinforacure. Hoping to afford a handcycle for the bigger races. #wegohealthchat |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: A5. My favorite hashtags: A5. My favorite hashtags: #GenerationP #NERVEmber #iPainPOP #IHaveTheNerveToBeHeard #DoYouHveTheNerveToBeHeard #HopeIsTrue #CheerleaderOfHOPE #PatientsHavePower #BreakthroughCrew #iFightPain #FightPain #CanyoUheaRmE #iPain #iPainLiving #WEGOHealthChat https://t.co/gP0BfF2kV6 |
| JP Summers @authorjpsummers A6: I'd love MORE than anything 2b able to work full-time again! I started working part-time n 2016, but it was not w/o many difficulties. Despite my often debilitating #vestibularmigraine #Fibromyalgia & #rheumatoidarthritis I'm still working 2 achieve this goal #WEGOHealthChat https://t.co/ZFIxPTPhgI |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: A6. My 2018 goal is be better at fundraising so that I can do more projects and collaborate more meaningful lasting projects that change lives for the better! It is my weakest area personally which affects my advocacy ability. #WEGOHealthChat https://t.co/sTn3O2kObU |
| J Greg Merritt, PhD @patientispard A6: LEARN!Make a Difference. Specific- impact cardiac rehab awareness and utilization. Get patient engaged in changing primary care and get hired to harvest power of patient ideas. Create a culture of curiosity in health care BHAG- write a book. #wegohealthchat |
| Barby Ingle Official @BarbyIngle Yah, and you can read about the history of #NERVEmber here... https://t.co/34PG9DTB1S #WEGOHealthChat https://t.co/jtXhZQcYUP |
| Social Health Network @socialhealthnet RT @patientispard: A6: A6: LEARN!Make a Difference. Specific- impact cardiac rehab awareness and utilization. Get patient engaged in changing primary care and get hired to harvest power of patient ideas. Create a culture of curiosity in health care BHAG- write a book. #wegohealthchat |
| Laura Kolaczkowski 😷😷😷😷 @lkay54 Thanks everyone. Gotta run to next call - I hope to catch you around soon but be sure to tweet me if we can share action and ideas #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski A6 Our goal @Cpnervecenter is to make it to & back from #raredisease week on Capitol Hill. Bring #chronicillness patients, this is going to be a huge achievement for is ✨#WEGOHealthChat https://t.co/FHAH2QjVxB |
| Lisa Davis Budzinski @lisadbudzinski RT @BarbyIngle: Yah, and you can read about the history of #NERVEmber here... https://t.co/34PG9DTB1S #WEGOHealthChat https://t.co/jtXhZQcYUP |
 | Arthritis National Research Foundation @CureArthritis RT @spondywolfgirl: A6 cont, personal goal is several more races for @racinforacure. Hoping to afford a handcycle for the bigger races. #wegohealthchat |
| Social Health Network @socialhealthnet RT @RieOfLetters: A6: A6: Main goal is to use my #publichealth and #mentalhealth background to become a much better patient leader, especially for #ChronicPain patients. #WEGOHealthChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Adios, amigos!! Gotta go earn some coin splicing/dicing audio content for Wiley journals ... #journo #podcasting #WEGOHealthChat |
| Science 37 @Science37x Thank you so much for this inspiring and energized chat — we learned a lot! Looking forward to spending more time with this great #wegohealthchat community of advocates in 2018! |
| Cathy Chester @CathyChes This has been wonderful and I am so appreciative of WEGO offering a way for all of us to have a chat! Have a lovely day #WEGOHealthChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @CathyChes @anthonynotleon @wegohealth I am so ready for it! #BeKind 😍 #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle I put everything on my calendar - even 'blue box time' ;) #ExtremeTimeCheaters #TLC - if its not on the calendar, it doesn't get done. #WEGOHealthChat https://t.co/J3akxUFhbV |
| Cathy Chester @CathyChes @JackieZimm @lauracsanscarti @wegohealth @ChaleneJohnson #WEGOHealthChat What is that @JackieZimm ? |
| Anthony Leon @anthonynotleon @RieOfLetters @wegohealth I believe it is missing in a lot of today's social media in younger generations & we need to fix that. Comments on FB, IG, etc are riddled with negativity and not always because of anonymity. I have a project where I want to make it actionalble and 2018 is phase1 #wegohealthchat |
| Social Health Network @socialhealthnet A GREAT start to another year of #WEGOHealthChat! Thank you all who participated- we'll be checking in on your goals for 2018! |
| Cathy Chester @CathyChes @RieOfLetters @anthonynotleon @wegohealth YES! Love #BeKind #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski Everyone have a wonderful week no matter where you are✨ #wegohealthchat |
| Social Health Network @socialhealthnet RT @lisadbudzinski: Everyone have a wonderful week no matter where you are✨ #wegohealthchat |
 | Mika Love-Rogers, L.M.T. @mikaloverogers @justagoodlife I missed this week but will chime in on the next one. #WEGOHealthChat |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: Yah, and you can read about the history of #NERVEmber here... https://t.co/34PG9DTB1S #WEGOHealthChat https://t.co/jtXhZQcYUP |
| iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: Yah, and you can read about the history of #NERVEmber here... https://t.co/34PG9DTB1S #WEGOHealthChat https://t.co/jtXhZQcYUP |
| Rie Lopez, MPH (she/her) @RieOfLetters @anthonynotleon @wegohealth Oh my goodness! That sounds amazing! I cannot wait to see what you do in 2018!! #WEGOHealthChat |
| HealthSparq @HealthSparq @JackieZimm Yayyy!!! #WEGOHealthChat |
| Cathy Chester @CathyChes @justagoodlife Thank YOU Julie, for ALL you and Jackie @JackieZimm do! I love you guys!#WEGOHealthChat |
| Roxana Rudzik-Shaw @RRS_consultancy A6. Goal for 2018: Parity of esteem... *Mental Health & Health are equal. *We ALL have both. Issues with one may impact on the other. *Let's end the stigma & remember It's OK to Not Be OK. Please access support >https://t.co/IEQarzw3vM < #WEGOHealthChat #MHchat #MentalHealth https://t.co/v4x5pTtngn |
 | Bev Hope @BevHope YASS!!! 2018 is going to be epic my friends! Inspired by #WEGOHealthChat #wellness #PatientsIncluded #PatientsHavePower https://t.co/lOhYD7A4DJ |
| Roxana Rudzik-Shaw @RRS_consultancy RT @wegohealth: Q6 cont. We want to encourage you to commit to accomplishing at least one goal this year and we’ll help hold you accountable! If you fill out this form and tag us, we’ll reach out at the end of the year to see if you were successful (which you will be)! #WEGOHealthChat https://t.co/J8NN2SdnIK |
| Social Health Network @socialhealthnet What are your goals for 2018? https://t.co/HJSP4x9bLJ |
| Social Health Network @socialhealthnet RT @srvingofspprt: #WEGOHealthChat @NEDAstaff @ProjectHEAL https://t.co/oRSWi4DyNA |
| Mika Love-Rogers, L.M.T. @mikaloverogers @justagoodlife Missed this week, will chime into the next #WEGOHealthChat 😊 |
| Social Health Network @socialhealthnet Whew, that hour went quickly! We have a few more moments, so let's begin to wrap up. Use CT to share with us any closing thoughts you have from today's chat. #wegohealthchat |
| Cathy Chester @CathyChes @justagoodlife I was just thinking about that. I need a fresh start this year and networking would certainly help. Thanks, Julie! #WEGOHealthChat |
| Angela Cohen @angelee828 Thank you so much for hosting. This was a fantastic/informative chat as always. I can’t wait to catch up on what I missed after an appt. :) #WEGOHealthChat |
| Social Health Network @socialhealthnet Don't forget, we have #wegohealthchat the second Tuesday of every month at 1pm ET. Mark it on your calendar 📆! |
| Rie Lopez, MPH (she/her) @RieOfLetters Glad to 'see' everyone and learn about your plans for 2018! This was amazing, as always! #WEGOHealthChat |
| Barby Ingle Official @BarbyIngle CT: Best wishes and lots of motivation to each advocate for all of 2018, lean on each other for motivation, inspiration and remember 'No Squirrel'ing' #WEGOHealthChat https://t.co/2gUnTgt3Pq |
| Social Health Network @socialhealthnet Thanks to everyone who came to #WEGOHealthChat today! So great to hear what you've got planned & to see how you plan to work together! If you'd like to do this more often, join our private FB group, available only to Network members! https://t.co/k79PgLJO5o |
| Lisa Davis Budzinski @lisadbudzinski RT @wegohealth: Thanks to everyone who came to #WEGOHealthChat today! So great to hear what you've got planned & to see how you plan to work together! If you'd like to do this more often, join our private FB group, available only to Network members! https://t.co/k79PgLJO5o |
 | MentalHealth Guy @mymntlhealth RT @RRS_consultancy: Learning is exciting as it either entails absorbing some new ideas or re-thinking what I think I might know. In 2018 I'm excited to attend No Limits - Diversity Festival learning from top key speakers @kelliefmaloney @MrJonnyBenjamin @neillaybourn 😊#WEGOHealthChat #MentalHealth https://t.co/De5PHMZLEe |
| Anthony Leon @anthonynotleon @RieOfLetters @wegohealth I'm excited for everyone this year! 2017 was a transition from 2016 for many people but 2018....this is all of our year! #WEGOHealthChat |
| MentalHealth Guy @mymntlhealth RT @RieOfLetters: A6: A6: Main goal is to use my #publichealth and #mentalhealth background to become a much better patient leader, especially for #ChronicPain patients. #WEGOHealthChat |
| Lisa Davis Budzinski @lisadbudzinski @justagoodlife @wegohealth That sounds fun! #WEGOHealthChat |
#WEGOHealthChat content from Twitter.