#autchat Transcript
Healthcare social media transcript of the #autchat hashtag.
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See #autchat Influencers/Analytics.
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#AutChat mod @autchatmod Welcome to #AutChat, a weekly chat for autistic & similar people Sundays 9pm UTC / 9pm GMT / 4pm EST! https://t.co/rRrhi8Ysri #AutChat hosts chats on topics related to our experiences as neurodivergent people. See our past topics here: https://t.co/F56bZKXGAW | |
#AutChat mod @autchatmod #AutChat is a tag for autistic people & "autistic cousins" (people with similar experiences due to hydrocephalus, cerebral palsy, ADHD, etc). We welcome autistic/similar people whether formally diagnosed, self-dx'd, or questioning/wondering if they are autistic/similar. | |
#AutChat mod @autchatmod We post transcripts of the weekly chats to our website, https://t.co/QrdW2e85Ey. We link to them on the #AutChat tag and on our Facebook page. Transcripts are created with Wakelet, and are visible there and on our site. | |
#AutChat mod @autchatmod Other people can post, retweet, or share any of our posts or links. This includes our tweets, our Facebook posts, links to our website, and links to Wakelet. If you want your tweets excluded from future #AutChat transcripts, DM us. | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr RT @autchatmod: This Sunday's #AutChat will be on shutdowns. Feb 17, 9pm UTC / 9pm GMT / 4pm EST. You can view questions ahead of time here: https://t.co/YbrdZ2NzWL #ActuallyAutistic | |
#AutChat mod @autchatmod For #AutChat announcements and weekly questions, follow this account. DM us to request reminder tweets (we get a lot of notifications during AutChat and sometimes don’t see replies). How to participate in #AutChat and other twitter chats: https://t.co/SkuXgvACRk | |
#AutChat mod @autchatmod Questions are prefaced Q0, Q1, Q2, etc. When you reply, preface tweets with A0, A1, etc & include "#AutChat" so others see them! Please capitalize it as #AutChat to make it more accessible to screenreaders. | |
#AutChat mod @autchatmod Quick reference for this week's #AutChat questions (please wait till they're tweeted to answer): https://t.co/YbrdZ2vZ5d Q0: Introduce yourself! Say anything you like about yourself or your interest in #AutChat or in today's topic, shutdowns. | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr RT @autchatmod: Welcome to #AutChat, a weekly chat for autistic & similar people Sundays 9pm UTC / 9pm GMT / 4pm EST! https://t.co/rRrhi8Ysri #AutChat hosts chats on topics related to our experiences as neurodivergent people. See our past topics here: https://t.co/F56bZKXGAW | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr RT @autchatmod: #AutChat is a tag for autistic people & "autistic cousins" (people with similar experiences due to hydrocephalus, cerebral palsy, ADHD, etc). We welcome autistic/similar people whether formally diagnosed, self-dx'd, or questioning/wondering if they are autistic/similar. | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr RT @autchatmod: We post transcripts of the weekly chats to our website, https://t.co/QrdW2e85Ey. We link to them on the #AutChat tag and on our Facebook page. Transcripts are created with Wakelet, and are visible there and on our site. | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr RT @autchatmod: Other people can post, retweet, or share any of our posts or links. This includes our tweets, our Facebook posts, links to our website, and links to Wakelet. If you want your tweets excluded from future #AutChat transcripts, DM us. | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr RT @autchatmod: For #AutChat announcements and weekly questions, follow this account. DM us to request reminder tweets (we get a lot of notifications during AutChat and sometimes don’t see replies). How to participate in #AutChat and other twitter chats: https://t.co/SkuXgvACRk | |
Dr. Alyssa @yes_thattoo A0: I'm a 26 year old autistic graduate student and I shut down more than I melt down. #AutChat | |
#AutChat mod @autchatmod Shutdowns are sometimes described like meltdowns, but turned inward: instead of a visible response, it becomes harder to respond. #AutChat | |
#AutChat mod @autchatmod Q1: Do you have shutdowns? What is a shutdown like for you? #AutChat | |
pink proletariat @pinkproletariat RT @autchatmod: Shutdowns are sometimes described like meltdowns, but turned inward: Shutdowns are sometimes described like meltdowns, but turned inward: instead of a visible response, it becomes harder to respond. #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr FYI I participate in #AutChat by doing a search on the hashtag. When I tweet from the search results, it will automatically include the hashtag in my tweets. If I remember to do the search capitalized like #AutChat, then the tweets come out capitalized, too. | |
Dr. Alyssa @yes_thattoo I do it that way too! #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr I am Solveig, and I experience a lot of shutdowns... though it feels like they're decreasing in frequency. Which TBH is pretty nice. #AutChat | |
#AutChat mod @autchatmod Useful info for ensuring you include the #AutChat tag and also capitalize it for screenreader accessability. | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr Test post -- I want to know if I can get my device to automatically capitalize #AutChat for me. The answer is yes. I can. If you've got iOS, here's what you do: General > Keyboards > Text Replacement In Phrase, write #AutChat In Shortcut, write #autchat That will fix tags. | |
#AutChat mod @autchatmod Also, if you forget the tag, you can retweet your own tweet and add the tag, like this. #AutChat | |
Dr. Alyssa @yes_thattoo A1: Yes. I'll get stuck, I'll be distressed and not be able to figure out how to address it or even necessarily what's wrong. #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr Yes, I hav shutdowns. What are they like? I think it depends on what causes the shutdown. But I get sensory overload shutdowns that feel like a ton of pressure on me from everywhere. I'll get trauma-induced shutdowns that have me staring off into space... #AutChat A1 | |
#AutChat mod @autchatmod Q2: What triggers a shutdown for you? If you also have meltdowns, are the triggers the same? Different? #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr But my shutdowns all involve going nonverbal. And they sometimes involve people asking me what’s wrong, and I can’t tell them. #AutChat A1 | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr RT @autchatmod: Also, if you forget the tag, you can retweet your own tweet and add the tag, like this. #AutChat | |
A. J. Sass SAYGAY (he/they) @matokah @Everthecrafter So relatable. I had meltdowns a lot more as a kid. Now I’ve noticed they only occur when I actively can’t get away from a stimulant that overwhelms me. Meltdowns can be a one-off due to unexpected overwhelm. Shutdowns tens to relate more to a gradual build-up. #Autchat | |
Kassiane @UVGKassi A0. I'm kassiane, 36, diagnosed at 3. Also epileptic, ADHD, &have CPTSD. I cant find the actual question I'm sorry #AutChat | |
Dr. Alyssa @yes_thattoo A2: Any kind of overload can cause a shutdown, as can a last-minute schedule change (especially if I try to work in the time slot a cancellation theoretically freed.) #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr I get shutdowns from sensory overload. I will also get shutdowns from when people will ask me lots of questions or ask me to do lots of things in super fast pace, and I can't keep track of what's being said or done. #AutChat A2 | |
Dr. Alyssa @yes_thattoo A2: The causes for melt vs. shut-downs are similar for me, but if the cause *keeps going* after I've shut down I'm more likely to "explode" with the meltdown. #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr The triggers for meltdowns are different. I think meltdowns come when my coping mechanism systems and objects stop working or go missing. Like if I can’t find my phone or keys or something vital that I need to get through the day. #AutChat A2 | |
Dr. Alyssa @yes_thattoo @mindtheflap A1: I definitely do that! Also "I thought I was going to come home and do reading for grad school, but nope. /flop" #AutChat | |
Dr. Alyssa @yes_thattoo @Anne_typist Too aware, sometimes? Because my sensory stuff bothers me way more when I'm already shut down #AutChat | |
#AutChat mod @autchatmod Q3: What else helps you during a shutdown? What makes shutdowns worse? #AutChat | |
Dr. Alyssa @yes_thattoo @Everthecrafter @Sarahmarieob Yes I love the fight or flight. I tend to shut down (flight or maybe freeze) but if flight is cut off I'm more likely to fight. #AutChat | |
Jae Casper @theamazinj @autchatmod Hi!! I am a graduate student in my last semester. I shutdown sometimes. I struggled in the past with meltdowns, but have come a long way to work out scenarios much better. I am still work in progress like everyone else is. I also enjoy painting and film. #AutChat | |
Dr. Alyssa @yes_thattoo A3: Time, mostly -- I've got to wait the shutdown out. If someone I trust can help me get to a quiet place and arrange for food that is also good. #AutChat | |
Dr. Alyssa @yes_thattoo @endeverstar Yes, if you're a person I trust, please help me get home if I shutdown away from home! #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @endeverstar @yes_thattoo @mindtheflap Ahh my problem is I will say "It has been a long day, I must now sleep..." Then I will get home and stare into space instead of actually sleeping. #AutChat | |
Jae Casper @theamazinj @autchatmod Yes, this is an important distinction to make. #AutChat | |
Dr. Alyssa @yes_thattoo @autisticb4mmr @endeverstar @mindtheflap I also do the this and it is a not great #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr AAC will help me during some meltdowns. If I can just decide to stop talking altogether, and if my environment allows me to do that, that's ideal. But when people get too aggressive about trying to help me and understand what's going on, that is hard. #AutChat | |
Tiara ☀️🌻☀️ @Tiara_Princess7 RT @autchatmod: Shutdowns are sometimes described like meltdowns, but turned inward: Shutdowns are sometimes described like meltdowns, but turned inward: instead of a visible response, it becomes harder to respond. #AutChat | |
Ava Gurba (she/her) @Ava_Nicole23 A0 hi my name is Ava I'm currently an undergraduate almost graduate student studying neuroscience with ASD. I experience both shutdowns and meltdowns, but I think I have meltdowns more frequently #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr Something important I’ll add. Some people will think that making physical contact will be helpful. It is and it isn’t. So if someone takes my hand and holds it, it’ll make the shutdown worse. If they invite me to hold hands, and I accept/initiate, that’s helpful. #AutChat A3 | |
Ava Gurba (she/her) @Ava_Nicole23 @yes_thattoo It's the same for me too, but I think I meltdown first and then the shutdown happens at the last straw #AutChat | |
#AutChat mod @autchatmod Q4: How do other people respond when you have a shutdown? What could they do to be more helpful? #AutChat | |
Tiara ☀️🌻☀️ @Tiara_Princess7 RT @Anne_typist: | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr Something I'm thinking about is that I very rarely melt down in public. So for me, meltdowns and shutdowns are almost always equally invisible. #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @Anne_typist @autchatmod Yes, this whole list applies to me, too! #AutChat | |
Jae Casper @theamazinj @autchatmod A1: shutdowns can happen when I become overloaded & confused I just cannot communicate whatsoever. It can get frustrating & people around me may have to stay away from me. I Iike to stay focused to avoid Being all over the place cause that’s when stuff happens. #AutChat | |
Dr. Alyssa @yes_thattoo A4: So many people can't read me at all and therefore act like normal. If normal means interacting with me and asking me to do stuff, this is going to be a problem. #AutChat | |
Dr. Alyssa @yes_thattoo A4: Ideally, leave me the heck alone. #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr Okay... here's what can help me in a shutdown. Please give me one or more of the above: Hot tea Food Stuffed animal Blanket My bag Fidgets Soft chairs or sofas are nice And don't make me respond to stuff. At least nothing beyond a head nod for yes or no. #AutChat A3 | |
Tiara ☀️🌻☀️ @Tiara_Princess7 @autchatmod A4: They say that I look scared due to my staring and lack of expression. They shouldn't comment on my staring or my lack of observation of what is going on around me. I am tired and overwhelmed and don't like to observe things around me during shutdowns. #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @willaful @Everthecrafter @mindtheflap I tweeted something about shutdowns, and I got in a lot of trouble because of it. :( I basically said "The trouble with shutdowns is that you can't tell anyone you're in shutdown, because you're in shutdown." And then I got told off for not saying something about it! #AutChat | |
Dr. Alyssa @yes_thattoo @willaful @endeverstar @autisticb4mmr I *might* be able to handle yes/no with head nods, and I *might* be able to do more with access to typing, but if it can possibly wait it should and even if it can't it might have to. Decidey part may be broke #AutChat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr A lot of my shutdowns come from when people place lots of demands on me, like when they need me to answer questions faster and louder, and I can't, no matter how hard I try. It would be helpful if people didn't always insist I "just speak up" because I can't. #AutChat A4 | |
#AutChat mod @autchatmod The scheduled #AutChat is wrapping up. It's fine to keep chatting, join in late, or use the tag at other times! | |
#AutChat mod @autchatmod Next Sunday’s #AutChat is on service dogs/emotional support animals. Sun Feb 24, 9pm UTC / 9pm GMT / 4pm EST. Questions TBA. https://t.co/9ZsqWd8orz If you know anyone who might be interested and is autistic or similarly neurodivergent, we encourage you to invite them. | |
#AutChat mod @autchatmod Reminder: We create weekly transcripts of #AutChat using Wakelet, and post them to our website. We also link to them from our Facebook and Twitter accounts. To be excluded from transcripts, DM us. | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr OH OH OH OH OH!!!!! Offer accomodations, but do not impose them on someone. Offer to hold my hand, but let me refuse. Literally anything you offer, I should be allowed to refuse. And never force me to talk or make eye contact. #AutChat A4 | |
#AutChat mod @autchatmod Feel free to suggest ideas for #AutChat topics (or offer to help write questions)! For scheduled topics, see https://t.co/QrdW2e85Ey Every topic we've ever run: https://t.co/F56bZKXGAW We're happy to rerun past chats we haven't revisited in a while. | |
Dr. Alyssa @yes_thattoo RT @autisticb4mmr: OH OH OH OH OH!!!!! Offer accomodations, but do not impose them on someone. Offer to hold my hand, but let me refuse. Literally anything you offer, I should be allowed to refuse. And never force me to talk or make eye contact. #AutChat A4 | |
Mykki is Writing @OnTh3Cusp RT @autisticb4mmr: OH OH OH OH OH!!!!! Offer accomodations, but do not impose them on someone. Offer to hold my hand, but let me refuse. Literally anything you offer, I should be allowed to refuse. And never force me to talk or make eye contact. #AutChat A4 | |
Heather Ure @riotheatherrr RT @autisticb4mmr: OH OH OH OH OH!!!!! Offer accomodations, but do not impose them on someone. Offer to hold my hand, but let me refuse. Literally anything you offer, I should be allowed to refuse. And never force me to talk or make eye contact. #AutChat A4 | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr Also... If I don't want to talk, don't take put personally. If I want to be alone, don't take it personally. Sometimes you've gotta wait it out. I'll come back and usually be my cheerful self in the end, if I'm given enough space. #AutChat A4 |
#autchat content from Twitter.