#autchat Transcript
Healthcare social media transcript of the #autchat hashtag.
– ().
See #autchat Influencers/Analytics.
Profile | Tweet |
---|---|
#AutChat mod @autchatmod Welcome to #autchat, a weekly chat for autistic & similar people Sundays 9pm UTC/GMT / 4pm EST! https://t.co/rRrhi8Ysri #autchat hosts chats on topics related to our experiences as neurodivergent people. See our past topics here: https://t.co/F56bZKXGAW | |
#AutChat mod @autchatmod #autchat is a tag for autistic people & "autistic cousins" (people with similar experiences due to hydrocephalus, cerebral palsy, ADHD, etc). We welcome autistic/similar people whether formally diagnosed, self-dx'd, or questioning/wondering if they are autistic/similar. | |
#AutChat mod @autchatmod #autchat posts transcripts of the weekly chats; please tell @autchatmod if you don’t want your tweets included. For announcements and weekly questions, follow this account. Reply here to receive reminder tweets. | |
#AutChat mod @autchatmod How to participate in #autchat and other twitter chats: https://t.co/SkuXgvACRk Quick reference for this week's #autchat questions (please wait till they're tweeted to answer): https://t.co/r9GimUh9dd | |
#AutChat mod @autchatmod This #autchat is about privacy and privacy violations, including medical information (physical health, mental health, neurodivergence-related). Remember that if talking or reading about this is upsetting or triggering, you can mute the hashtag or step away as needed. | |
#AutChat mod @autchatmod Questions are prefaced Q0, Q1, Q2, etc. When you reply, preface tweets with A0, A1, etc & include "#autchat" so others see them! Q0: Introduce yourself! Say anything you like about yourself or your interest in #autchat or in today's topic: Privacy and privacy violations. | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr A0 I am Solveig! Hello #autchat ! | |
#AutChat mod @autchatmod Q1: Have you ever experienced a violation of privacy, either about your neurodivergence or because someone thought your neurodivergence made it ok? Have you seen someone else’s be violated? (1/2) #autchat | |
#AutChat mod @autchatmod Q1 (2/2): ***Please keep others’ privacy in mind when answering! Anonymize, or if that isn’t enough to protect their identity, refrain from sharing.*** #autchat | |
Sarah Owl @OwlStory A0 I am actually here! And unfortunately have some experience with the topic. #autchat https://t.co/FFyowICCqC | |
#AutChat mod @autchatmod Q2: Is privacy important to you? Why? What has happened as a result of privacy violations? What do you worry might happen (for you or others)? #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr A1 I'm vaguely aware that invasions of privacy happened routinely because I am austitic. But fleshing out details is hard #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr One thing is that I wanted to be able to dictate when and where to disclose that I'm autistic, but that choice is made for me a lot #autchat | |
Sarah Owl @OwlStory A1 Yes. My family member would routinely tell people at church about my neurodivergence without my permission. #autchat https://t.co/1eyGlgXeVQ | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr I've definitely witnessed the privacy of other autistic people be violated. But this is a case where I cannot go into details #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr I've definitely witnessed the privacy of other autistic people be violated. But this is a case where I cannot go into details #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr A2 People tend to make assumptions about me and my ability if they find out I'm autistic before they get to know me. It's not good #autchat https://t.co/JeLGlFwWGo | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr A2 When people find out that I'm autistic before they really get to know me, they'll treat me like I'm fragile... #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr A2 Not let me go places because it is too overwhelming, not let me take on jobs because they're too hard, kick me out of classes #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr A2 As much as I hate the idea of masking and swear that I'm done with it, there's definitely hazards - and... #autchat | |
#AutChat mod @autchatmod Q3: Have you ever been in a position where you had to share personal details you’d rather keep private, to be believed about something neurodivergence-related? #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr It strips me of autonomy and makes it harder to dodge concern trolls and such when people decide to disclose for me w/o permission #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @crankyautistic Me too! I hate not showering daily, it makes me uncomfortable #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @BasicBirch My litmus test: if someone wrote it about you and you would be mortified about it, then it should not be public information. #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @BasicBirch Don't get me wrong -- I think it is important for you to have support when it comes to raising kids -- ANY KIDS #autchat | |
#AutChat mod @autchatmod Q4: What can people do to better respect your (and others’) privacy? #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @waterprinciple @crankyautistic Well I have a very bad sense of smell, so I have no idea whether or not I need washed. So I assume that I do. #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr @BasicBirch But those support networks tend to happen over private communications methods, i.e. Private email, twitter DM is okay, or offline #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr Yes. #autchat A3 https://t.co/7yZdKlIdoz | |
#AutChat mod @autchatmod The scheduled #autchat is wrapping up. It's fine to keep chatting, join in late, or use the tag at other times! | |
#AutChat mod @autchatmod Next Sunday’s #autchat is on cooking and meal prep, Sun Dec 17, 9pm UTC/GMT / 4pm EST. We'll also be posting chat reminders and storifys to our Facebook page: https://t.co/nFxb0YPhhD #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr I'm going to thread specifically for parents of autistic children who wants to write memoirs about their kids and their phones #autchat A4 https://t.co/jPOL1oVqfq | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr [cn:ToSiri] When you're writing a book about your autistic kids, regardless of their age, it's important to respect their privacy #autchat | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr [cn:ToSiri] It's incredibly important for your kids to be involved in the whole process of writing, and they need editing power #autchat A4 | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr [cn:ToSiri] If they say they don't want certain details in the book, listen. Their opinions trump yours #sorry not sorry #autchat A4 | |
CLE change the world @Bluebirdlouise @autchatmod #autchat a2. violations of privacy can have long lasting psychological consequences. for me it triggered a long time problem with hoarding and clutter. i felt safer, less exposed, as if neatness would leave me vulnerable. | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr [cn:ToSiri] I've seen parents coauthor books w/ their kids and those tend to be better and more respectful and less stigmatizing #autchat A4 | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr [cn:ToSiri] Also... let's put it this way... if it's a medical condition involving their abdomen, don't include it. Please. #autchat A4 | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr I'd go a step further because there's things nobody's allowed to disclose but me. Even if it seems like public knowledge #autchat A4 https://t.co/66aVeh3fPk | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr I also want to point out that things are hard to anonomyze in small town settings, and embarrassing stories never die #autchat A4 | |
Solveig ⚧ - Autistic Acceptance Worldwide @autisticb4mmr My siblings and I all have stories immortalized from when we were less than three years old, and they're still damaging to us #autchat A4 |
#autchat content from Twitter.