#ayacsm Transcript

Healthcare social media transcript of the #ayacsm hashtag.
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NCI Cancer Stats @NCICancerStats
According to 2012-2016 data, the median age of children diagnosed with brain and other nervous system cancer is 8 years. Check out more stats here: https://t.co/Z844EFaKO8 #AYACSM https://t.co/C4GltMwnMR
Emily K. Drake @EK_Drake
Welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat! We're so glad to have you with us this evening! Be sure to tweet along using: #AYACSM
Cancer Girl @cancergirl730
RT @EK_Drake: Welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat! We're so glad to have you with us this evening! Be sure to tweet along using: #AYACSM
Emily K. Drake @EK_Drake
#AYACSM was co-founded by @EK_Drake, @UKFann00 and @stupidcancer!
Emily K. Drake @EK_Drake
As a reminder, this chat is for advocates involved in the adolescent and young adult cancer societal movement #AYACSM
Emily K. Drake @EK_Drake
An advocate is anyone who speaks, writes or in other ways actively supports the AYA cancer movement as a whole #AYACSM
Emily K. Drake @EK_Drake
ALL are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat starting now!
Cancer Girl @cancergirl730
RT @EK_Drake: ALL are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat starting now!
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @EK_Drake: Welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat! We're so glad to have you with us this evening! Be sure to tweet along using: #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @EK_Drake: ALL are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat starting now!
Emily K. Drake @EK_Drake
For those of you new to #AYACSM this month, we normally gather for a live chat at 8pm ET on the first Tuesday of the month. We discuss topics that are relevant and timely for those advocating for #AYACancer
Lauren Ghazal, PhD, FNP-BC @lghazal
@EK_Drake Hi Everyone! Will be in-and-out tonight, but excited to finally join a chat! I'm an #AYAcancer researcher, nurse practitioner, and patient advocate from NYC. #AYACSM
Emily K. Drake @EK_Drake
We assume that all tweets shared during #AYACSM express your own personal opinions and not those of your employer/organization (unless specified). #AYACSM
Emily K. Drake @EK_Drake
I am pleased to introduce tonight's guest moderator: @DrSadhanaJ! Take it away! #AYACSM
Lauren Ghazal, PhD, FNP-BC @lghazal
RT @EK_Drake: ALL are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat starting now!
Emily K. Drake @EK_Drake
RT @lghazal: @EK_Drake Hi Everyone! Will be in-and-out tonight, but excited to finally join a chat! I'm an #AYAcancer researcher, nurse practitioner, and patient advocate from NYC. #AYACSM
Emily K. Drake @EK_Drake
@lghazal Thrilled for you to join us! #AYACSM
Alexa Jett 🦋 @ohhiialexa
@EK_Drake @DrSadhanaJ Thank you for co-moderating tonight, @DrSadhanaJ ! #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
Q1: With it being heart healthy month ❤️ and Valentine’s Day approaching, I thought it best to address relationships and #cancer. What’s the best and worst ways you’ve experienced or observed an individual keep a relationship strong at the time of diagnosis? #AYACSM
Cancer Girl @cancergirl730
RT @DrSadhanaJ: Q1: Q1: With it being heart healthy month ❤️ and Valentine’s Day approaching, I thought it best to address relationships and #cancer. What’s the best and worst ways you’ve experienced or observed an individual keep a relationship strong at the time of diagnosis? #AYACSM
Cancer Girl @cancergirl730
@DrSadhanaJ A1. I'm not sure that I have seen any AYA relationships survive a cancer diagnosis. Older? Yes. #AYACSM
reanne booker @Rea_Booker
@lghazal @EK_Drake Hi Lauren! Nice to e-meet you! I’m a nurse practitioner as well from Calgary, Alberta 🇨🇦. #ayacsm
Emily K. Drake @EK_Drake
RT @Rea_Booker: @lghazal @EK_Drake Hi Lauren! Nice to e-meet you! I’m a nurse practitioner as well from Calgary, Alberta 🇨🇦. #ayacsm
Emily K. Drake @EK_Drake
Welcome, everyone! Please give your introductions as you reply to Q1! #AYACSM
Emily K. Drake @EK_Drake
RT @cancergirl730: @DrSadhanaJ A1. I'm not sure that I have seen any AYA relationships survive a cancer diagnosis. Older? Yes. #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @EK_Drake: Welcome, everyone! Please give your introductions as you reply to Q1! #AYACSM
Cancer Girl @cancergirl730
@EK_Drake Chris, 11+ year #ThyroidCancer survivor, volunteer, advocate & Director of Social Media for @ThyCaInc #AYACSM
Alexa Jett 🦋 @ohhiialexa
A1: This is a wonderful question! ❤️ I was in a relationship at my diagnosis. He left a week before my thyroidectomy. I found love again with a cancer caregiver, @hesstruck41 , 2 years later. He understands and is a great support to me! #AYACSM
Lauren Ghazal, PhD, FNP-BC @lghazal
@DrSadhanaJ From a friend who was in a very serious relationship at the time of her sarcoma dx, she always said what kept her relationship strong was being honest with her partner & allowing him time for himself ("breaks" she called them)... #AYACSM
Emily K. Drake @EK_Drake
RT @cancergirl730: @EK_Drake Chris, 11+ year #ThyroidCancer survivor, volunteer, advocate & Director of Social Media for @ThyCaInc #AYACSM
Alexa Jett 🦋 @ohhiialexa
Hello! I’m Alexa Jett. I AM an advocate, blogger, and thyroid cancer survivor. And I WILL help change the culture and conversation around “good”/AYA cancer! #WorldCancerDay #IAmAndIWill #AYACSM
Emily K. Drake @EK_Drake
@cancergirl730 @ThyCaInc Welcome!! #AYACSM https://t.co/tZt3BXjTLG
Cancer Girl @cancergirl730
@ohhiialexa @hesstruck41 A1. I was a newlywed when I was diagnosed. It's so challenging, isn't it? Balancing a relationship and a diagnosis? #AYACSM
Joseph Vivens @JosephVivens
RT @DrSadhanaJ: Q1: Q1: With it being heart healthy month ❤️ and Valentine’s Day approaching, I thought it best to address relationships and #cancer. What’s the best and worst ways you’ve experienced or observed an individual keep a relationship strong at the time of diagnosis? #AYACSM
Emily K. Drake @EK_Drake
RT @ohhiialexa: A1: A1: This is a wonderful question! ❤️ I was in a relationship at my diagnosis. He left a week before my thyroidectomy. I found love again with a cancer caregiver, @hesstruck41 , 2 years later. He understands and is a great support to me! #AYACSM
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 @hesstruck41 Oh man, newlywed at diagnosis?? That’s a challenge!! I’m sorry you had to go through that! #AYACSM
Emily K. Drake @EK_Drake
RT @lghazal: @DrSadhanaJ From a friend who was in a very serious relationship at the time of her sarcoma dx, she always said what kept her relationship strong was being honest with her partner & allowing him time for himself ("breaks" she called them)... #AYACSM
Emily K. Drake @EK_Drake
RT @ohhiialexa: Hello! I’m Alexa Jett. I AM an advocate, blogger, and thyroid cancer survivor. And I WILL help change the culture and conversation around “good”/AYA cancer! #WorldCancerDay #IAmAndIWill #AYACSM
Michele Rhee @michelerhee
@DrSadhanaJ A1: One of my best friends was diagnosed in her early 30s, & her husband was phenomenal thru chemo, trying clinical trials, etc. They had been together for over 1/2 their lives when she died. #AYACSM
Cancer Girl @cancergirl730
@ohhiialexa @hesstruck41 Oh my goodness! You're so sweet. Thank you. #AYACSM
Christina Lizaso @btrfly12
RT @EK_Drake: Welcome, everyone! Please give your introductions as you reply to Q1! #AYACSM
Christina Lizaso @btrfly12
RT @DrSadhanaJ: Q1: Q1: With it being heart healthy month ❤️ and Valentine’s Day approaching, I thought it best to address relationships and #cancer. What’s the best and worst ways you’ve experienced or observed an individual keep a relationship strong at the time of diagnosis? #AYACSM
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 @hesstruck41 #AYACSM https://t.co/ARPZltrTwq
Charyse 💜⁷|| peds heme onc || I miss Jin @c_diazepine
Very interested and ready to learn about patient experiences as a Pgy 5 peds Heme-onc fellow! #AYASCM
Cancer Girl @cancergirl730
@Rea_Booker @lghazal @EK_Drake Hey, girl! #AYACSM https://t.co/ruKtH6OqEN
YAKidneyCancer @YAKidneyCancer
@DrSadhanaJ Hi, I’m Mallory. I’m a 9 year survivor of state 4 kidney cancer. I’m also a mental health therapist, licensed in Washington state. The worst way is ignoring the other persons illness like it isn’t happening... that was my experience. #ayacsm
Alexa Jett 🦋 @ohhiialexa
@michelerhee @DrSadhanaJ This is so bittersweet. I am so glad she got support! ❤️ #AYACSM
Emily K. Drake @EK_Drake
@michelerhee Thanks for joining us tonight, Michele! #AYACSM
Alexa Jett 🦋 @ohhiialexa
@YAKidneyCancer @DrSadhanaJ Hello, Mallory! You are AWESOME!! #AYACSM
Emily K. Drake @EK_Drake
RT @YAKidneyCancer: @DrSadhanaJ Hi, I’m Mallory. I’m a 9 year survivor of state 4 kidney cancer. I’m also a mental health therapist, licensed in Washington state. The worst way is ignoring the other persons illness like it isn’t happening... that was my experience. #ayacsm
Michele Rhee @michelerhee
@ohhiialexa @DrSadhanaJ They grew into adults with each other, & I think that helped keep their relationship strong throughout. They were both amazing. #AYACSM
Alexa Jett 🦋 @ohhiialexa
RT @michelerhee: @ohhiialexa @DrSadhanaJ They grew into adults with each other, & I think that helped keep their relationship strong throughout. They were both amazing. #AYACSM
Alexa Jett 🦋 @ohhiialexa
RT @michelerhee: @DrSadhanaJ A1: @DrSadhanaJ A1: One of my best friends was diagnosed in her early 30s, & her husband was phenomenal thru chemo, trying clinical trials, etc. They had been together for over 1/2 their lives when she died. #AYACSM
Emily K. Drake @EK_Drake
RT @michelerhee: @DrSadhanaJ A1: @DrSadhanaJ A1: One of my best friends was diagnosed in her early 30s, & her husband was phenomenal thru chemo, trying clinical trials, etc. They had been together for over 1/2 their lives when she died. #AYACSM
Emily K. Drake @EK_Drake
RT @michelerhee: @ohhiialexa @DrSadhanaJ They grew into adults with each other, & I think that helped keep their relationship strong throughout. They were both amazing. #AYACSM
Lauren Ghazal, PhD, FNP-BC @lghazal
@DrSadhanaJ Also re: friendships. It was hard to have friendships that didn't survive throughout cancer, because friends "didn't know how to be there." As a survivor, you forget how hard it is for others, but you also feel so isolated. It's a struggle... #AYACSM
Stefanie Thomas, MD @StefThomasMD
@EK_Drake Hi all! Stef Thomas- pediatric/AYA oncologist at #cleclinickids. Will likely be mostly lurking and learning tonight. #AYACSM
Alexa Jett 🦋 @ohhiialexa
RT @lghazal: @DrSadhanaJ Also re: @DrSadhanaJ Also re: friendships. It was hard to have friendships that didn't survive throughout cancer, because friends "didn't know how to be there." As a survivor, you forget how hard it is for others, but you also feel so isolated. It's a struggle... #AYACSM
Stefanie Thomas, MD @StefThomasMD
RT @lghazal: @DrSadhanaJ Also re: @DrSadhanaJ Also re: friendships. It was hard to have friendships that didn't survive throughout cancer, because friends "didn't know how to be there." As a survivor, you forget how hard it is for others, but you also feel so isolated. It's a struggle... #AYACSM
Cancer Girl @cancergirl730
@michelerhee @ohhiialexa @DrSadhanaJ Oh man! Breaking my heart. #AYACSM https://t.co/YcSmcWKUvS
Alexa Jett 🦋 @ohhiialexa
@StefThomasMD @EK_Drake Always good to see you!! #AYACSM
Emily K. Drake @EK_Drake
RT @StefThomasMD: @EK_Drake Hi all! Stef Thomas- pediatric/AYA oncologist at #cleclinickids. Will likely be mostly lurking and learning tonight. #AYACSM
Alexa Jett 🦋 @ohhiialexa
@lghazal @DrSadhanaJ Excellent point! Friendships and cancer are complicated too. #AYACSM
Emily K. Drake @EK_Drake
@StefThomasMD Thanks for joining us tonight, Stef! #AYACSM
Cancer Girl @cancergirl730
RT @lghazal: @DrSadhanaJ Also re: @DrSadhanaJ Also re: friendships. It was hard to have friendships that didn't survive throughout cancer, because friends "didn't know how to be there." As a survivor, you forget how hard it is for others, but you also feel so isolated. It's a struggle... #AYACSM
reanne booker @Rea_Booker
@DrSadhanaJ I’m Reanne Booker, oncology & palliative care NP from Calgary. I also run a sexual health clinic at our cancer centre. A1. Such an important question. I’ve seen relationships fall apart after a cancer diagnosis but I’ve also seen relationships get stronger. #ayacsm
Cancer Girl @cancergirl730
RT @ohhiialexa: @lghazal @DrSadhanaJ Excellent point! Friendships and cancer are complicated too. #AYACSM
Emily K. Drake @EK_Drake
RT @lghazal: @DrSadhanaJ Also re: @DrSadhanaJ Also re: friendships. It was hard to have friendships that didn't survive throughout cancer, because friends "didn't know how to be there." As a survivor, you forget how hard it is for others, but you also feel so isolated. It's a struggle... #AYACSM
Michele Rhee @michelerhee
@lghazal @DrSadhanaJ Agree! Relationships aren’t just romantic. All relationships can be strained with a cancer diagnosis, at any age. In my day job as a #patientadvocate, I see couples, friends, all relationships break. #AYACSM
Emily K. Drake @EK_Drake
RT @ohhiialexa: @lghazal @DrSadhanaJ Excellent point! Friendships and cancer are complicated too. #AYACSM
Stefanie Thomas, MD @StefThomasMD
RT @michelerhee: @lghazal @DrSadhanaJ Agree! Relationships aren’t just romantic. All relationships can be strained with a cancer diagnosis, at any age. In my day job as a #patientadvocate, I see couples, friends, all relationships break. #AYACSM
Emily K. Drake @EK_Drake
RT @Rea_Booker: @DrSadhanaJ I’m Reanne Booker, oncology & palliative care NP from Calgary. I also run a sexual health clinic at our cancer centre. A1. Such an important question. I’ve seen relationships fall apart after a cancer diagnosis but I’ve also seen relationships get stronger. #ayacsm
Cancer Girl @cancergirl730
RT @michelerhee: @lghazal @DrSadhanaJ Agree! Relationships aren’t just romantic. All relationships can be strained with a cancer diagnosis, at any age. In my day job as a #patientadvocate, I see couples, friends, all relationships break. #AYACSM
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 @michelerhee @DrSadhanaJ ME TOO!! 😭 #AYACSM https://t.co/UPRUVdgyIo
Cancer Girl @cancergirl730
@michelerhee @lghazal @DrSadhanaJ That must be challenging mentally for you. You're a strong woman. #ayacsm
Emily K. Drake @EK_Drake
Guys - everyone's GIF game tonight is unreal! #AYACSM
Alexa Jett 🦋 @ohhiialexa
@Rea_Booker @DrSadhanaJ So glad to see you tonight, Reanne! #AYACSM
Alexa Jett 🦋 @ohhiialexa
RT @michelerhee: @lghazal @DrSadhanaJ Agree! Relationships aren’t just romantic. All relationships can be strained with a cancer diagnosis, at any age. In my day job as a #patientadvocate, I see couples, friends, all relationships break. #AYACSM
Cancer Girl @cancergirl730
RT @EK_Drake: Guys - everyone's GIF game tonight is unreal! #AYACSM
Cancer Girl @cancergirl730
@EK_Drake We aim to please? #AYACSM
Alexa Jett 🦋 @ohhiialexa
RT @EK_Drake: Guys - everyone's GIF game tonight is unreal! #AYACSM
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 @EK_Drake We are #AYACSM !! https://t.co/TNW0BP7E0C
Christina Lizaso @btrfly12
RT @EK_Drake: For those of you new to #AYACSM this month, we normally gather for a live chat at 8pm ET on the first Tuesday of the month. We discuss topics that are relevant and timely for those advocating for #AYACancer
Cancer Girl @cancergirl730
Amen! #AYACSM
Emily K. Drake @EK_Drake
@BeyondTheCoat @DrSadhanaJ Welcome!! #AYACSM
reanne booker @Rea_Booker
@ohhiialexa @DrSadhanaJ Great to see you too 😊! #ayacsm
Emily K. Drake @EK_Drake
@mtllatina Thank you for joining us tonight! Don't forget to add: #AYACSM to the end of all of your tweets so that others can see them in the conversation! I used to work in #Montreal at @Hope_Cope! I was the Director of @CancerFightClub
Michele Rhee @michelerhee
@cancergirl730 @lghazal @DrSadhanaJ I learned the hard way that I can’t work in specific diseases that are too close to my personal experiences. I couldn’t work directly at an #AYACancer org, & I couldn’t work in the cancer my friend died from. I can work w/ other disease communities, w/ some distance. #AYACSM
Emily K. Drake @EK_Drake
RT @michelerhee: @lghazal @DrSadhanaJ Agree! Relationships aren’t just romantic. All relationships can be strained with a cancer diagnosis, at any age. In my day job as a #patientadvocate, I see couples, friends, all relationships break. #AYACSM
Michele Rhee @michelerhee
@EK_Drake #AYACSM https://t.co/OBiaUKCOqZ
Alexa Jett 🦋 @ohhiialexa
RT @michelerhee: @cancergirl730 @lghazal @DrSadhanaJ I learned the hard way that I can’t work in specific diseases that are too close to my personal experiences. I couldn’t work directly at an #AYACancer org, & I couldn’t work in the cancer my friend died from. I can work w/ other disease communities, w/ some distance. #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
Q2: What are some strategies you’ve used or individuals use to maintain good family and friendships during treatment? #AYACSM
Cancer Girl @cancergirl730
@michelerhee @lghazal @DrSadhanaJ That is totally understandable! I'm proud of you for being aware enough to establish those boundaries. That's not easy to do. Love you for giving back! #ayacsm
Emily K. Drake @EK_Drake
RT @michelerhee: @cancergirl730 @lghazal @DrSadhanaJ I learned the hard way that I can’t work in specific diseases that are too close to my personal experiences. I couldn’t work directly at an #AYACancer org, & I couldn’t work in the cancer my friend died from. I can work w/ other disease communities, w/ some distance. #AYACSM
Emily K. Drake @EK_Drake
RT @DrSadhanaJ: Q2: Q2: What are some strategies you’ve used or individuals use to maintain good family and friendships during treatment? #AYACSM
YAKidneyCancer @YAKidneyCancer
@michelerhee @cancergirl730 @lghazal @DrSadhanaJ I found that during my internship during grad school for counseling, working with other cancer survivors was the best! The rapport happened much quicker cause they knew I’d been there. But I always made sure to check how I was feeling along the way. #ayacsm
Stefanie Thomas, MD @StefThomasMD
RT @michelerhee: @cancergirl730 @lghazal @DrSadhanaJ I learned the hard way that I can’t work in specific diseases that are too close to my personal experiences. I couldn’t work directly at an #AYACancer org, & I couldn’t work in the cancer my friend died from. I can work w/ other disease communities, w/ some distance. #AYACSM
The Girl Next Door Meets Cancer @ThisGirl_Cancer
RT @ohhiialexa: A1: A1: This is a wonderful question! ❤️ I was in a relationship at my diagnosis. He left a week before my thyroidectomy. I found love again with a cancer caregiver, @hesstruck41 , 2 years later. He understands and is a great support to me! #AYACSM
Cancer Girl @cancergirl730
@DrSadhanaJ A2. I lost everyone - family, friends, coworkers... absolutely everyone, I was left with nothing but my diagnosis. So I had no choice but to rebuild. My cancer family is AMAZING & I am truly blessed to have them! #ayacsm
Michele Rhee @michelerhee
@cancergirl730 @lghazal @DrSadhanaJ I learn every day from my patients & advocates. I’m always amazed with everyone who can work & advocate in their (or their loved one’s) disease. It’s a remarkable strength that I admire so much. #AYACSM
Cancer Girl @cancergirl730
RT @michelerhee: @cancergirl730 @lghazal @DrSadhanaJ I learn every day from my patients & advocates. I’m always amazed with everyone who can work & advocate in their (or their loved one’s) disease. It’s a remarkable strength that I admire so much. #AYACSM
Alexa Jett 🦋 @ohhiialexa
A2: Communication and space. For both the patient and caregiver. I think both sides need to openly listen and genuinely hear each other out. Both have complicated and difficult circumstances that need to be validated. I think separate hobbies help too #AYACSM
YAKidneyCancer @YAKidneyCancer
@DrSadhanaJ A2: Keeping a blog. As cliche as it sounds, that helped me keep the line of communication open. If I wasn’t posting, I wasn’t in a good place mentally and people could know to reach out. #ayacsm
Alexa Jett 🦋 @ohhiialexa
RT @cancergirl730: @michelerhee @lghazal @DrSadhanaJ That is totally understandable! I'm proud of you for being aware enough to establish those boundaries. That's not easy to do. Love you for giving back! #ayacsm
Michele Rhee @michelerhee
@DrSadhanaJ I know I’m not supposed to say comfort eating or drinking...but...sometimes comfort eating and drinking? #AYACSM https://t.co/nJDdgHzMvN
Stefanie Thomas, MD @StefThomasMD
https://t.co/mf5vw7jhxW
Emily K. Drake @EK_Drake
RT @michelerhee: @cancergirl730 @lghazal @DrSadhanaJ I learn every day from my patients & advocates. I’m always amazed with everyone who can work & advocate in their (or their loved one’s) disease. It’s a remarkable strength that I admire so much. #AYACSM
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 @DrSadhanaJ You are so valuable to us!! #AYACSM https://t.co/TA0hpWvK9q
YAKidneyCancer @YAKidneyCancer
@michelerhee @DrSadhanaJ #ayacsm https://t.co/fEErlnY3Dp
Cancer Girl @cancergirl730
@michelerhee @DrSadhanaJ I'm guilty of that, too! I think many of us are (even if we don't admit it). #AYACSM https://t.co/9gXzQyKegF
Alexa Jett 🦋 @ohhiialexa
@YAKidneyCancer @DrSadhanaJ Blogging is wonderful. And in full disclosure level honesty, it helped me work through my denial about my diagnosis. Very therapeutic! #AYACSM
Alexa Jett 🦋 @ohhiialexa
RT @michelerhee: @DrSadhanaJ I know I’m not supposed to say comfort eating or drinking...but...sometimes comfort eating and drinking? #AYACSM https://t.co/nJDdgHzMvN
Michele Rhee @michelerhee
@cancergirl730 @DrSadhanaJ #AYACSM https://t.co/x7psBakdWc
Lauren Ghazal, PhD, FNP-BC @lghazal
@cancergirl730 @michelerhee @DrSadhanaJ A2: Ditto the blog above. Was such a great way to keep all who wanted to be in touch updated. And having a therapist throughout everything has been wonderful to help me work through relationships. #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @michelerhee: @DrSadhanaJ I know I’m not supposed to say comfort eating or drinking...but...sometimes comfort eating and drinking? #AYACSM https://t.co/nJDdgHzMvN
Michele Rhee @michelerhee
@YAKidneyCancer @DrSadhanaJ #AYACSM https://t.co/N4t9FYFWQE
Cancer Girl @cancergirl730
@ohhiialexa @YAKidneyCancer @DrSadhanaJ Blogging is a great tool! It forced me to be honest with myself about how I really felt and how I was really coping (or not coping). #ayacsm
Dani Taylor (She/Her) @danimarietaylor
@EK_Drake I’m Dani! Jumping in late from class but I’m completing my MSW at @UofT. Also an #ayacancer survivor and huge supporter of @yacancercanada. Currently at @pmcancercentre completing a practicum with their supportive care department. #ayacsm
Alexa Jett 🦋 @ohhiialexa
@michelerhee @DrSadhanaJ #AYACSM dinner party?? https://t.co/LjQejm2ClF
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 @YAKidneyCancer @DrSadhanaJ Co-Signed!! #AYACSM
Cancer Girl @cancergirl730
@ohhiialexa @michelerhee @DrSadhanaJ OMG! Totes magotes! #ayacsm
Emily K. Drake @EK_Drake
RT @danimarietaylor: @EK_Drake I’m Dani! Jumping in late from class but I’m completing my MSW at @UofT. Also an #ayacancer survivor and huge supporter of @yacancercanada. Currently at @pmcancercentre completing a practicum with their supportive care department. #ayacsm
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @michelerhee: @cancergirl730 @DrSadhanaJ #AYACSM https://t.co/x7psBakdWc
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @ohhiialexa: @michelerhee @DrSadhanaJ #AYACSM dinner party?? https://t.co/LjQejm2ClF
Michele Rhee @michelerhee
@DrSadhanaJ The friends and family who cooked for me were the keepers lol. #AYACSM https://t.co/YwwvFiqp6B
Stefanie Thomas, MD @StefThomasMD
RT @lghazal: @cancergirl730 @michelerhee @DrSadhanaJ A2: @cancergirl730 @michelerhee @DrSadhanaJ A2: Ditto the blog above. Was such a great way to keep all who wanted to be in touch updated. And having a therapist throughout everything has been wonderful to help me work through relationships. #AYACSM
Michele Rhee @michelerhee
@cancergirl730 @ohhiialexa @DrSadhanaJ #AYACSM https://t.co/YyVWXVZS5I
Emily K. Drake @EK_Drake
@danimarietaylor @UofT @yacancercanada @pmcancercentre Welcome! #AYACSM https://t.co/gyBFB0fcgV
Dani Taylor (She/Her) @danimarietaylor
@DrSadhanaJ I think a cancer diagnosis on a young romantic relationship can bring a lot of challenge. It can mature a relationship beyond what it may have been able to cope with. I think there is a lot of guilt and pressure to keep things together in the face of cancer. #ayacsm
Alexa Jett 🦋 @ohhiialexa
#AYACSM knows how to party!! #thisishowwedoit
Cancer Girl @cancergirl730
RT @danimarietaylor: @DrSadhanaJ I think a cancer diagnosis on a young romantic relationship can bring a lot of challenge. It can mature a relationship beyond what it may have been able to cope with. I think there is a lot of guilt and pressure to keep things together in the face of cancer. #ayacsm
Emily K. Drake @EK_Drake
RT @ohhiialexa: @YAKidneyCancer @DrSadhanaJ Blogging is wonderful. And in full disclosure level honesty, it helped me work through my denial about my diagnosis. Very therapeutic! #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @danimarietaylor: @DrSadhanaJ I think a cancer diagnosis on a young romantic relationship can bring a lot of challenge. It can mature a relationship beyond what it may have been able to cope with. I think there is a lot of guilt and pressure to keep things together in the face of cancer. #ayacsm
Emily K. Drake @EK_Drake
RT @lghazal: @cancergirl730 @michelerhee @DrSadhanaJ A2: @cancergirl730 @michelerhee @DrSadhanaJ A2: Ditto the blog above. Was such a great way to keep all who wanted to be in touch updated. And having a therapist throughout everything has been wonderful to help me work through relationships. #AYACSM
Stefanie Thomas, MD @StefThomasMD
RT @danimarietaylor: @DrSadhanaJ I think a cancer diagnosis on a young romantic relationship can bring a lot of challenge. It can mature a relationship beyond what it may have been able to cope with. I think there is a lot of guilt and pressure to keep things together in the face of cancer. #ayacsm
Michele Rhee @michelerhee
@YAKidneyCancer @DrSadhanaJ I love https://t.co/1i5THpZDV9. My friends told me they knew I was hospitalized when they stopped hearing from me or if they got an email from my sister saying I had gotten out of surgery alive. @CaringBridge is an AWESOME resource for keeping people up to date. #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
This 👇🏽
Alexa Jett 🦋 @ohhiialexa
RT @michelerhee: @YAKidneyCancer @DrSadhanaJ I love https://t.co/1i5THpZDV9. My friends told me they knew I was hospitalized when they stopped hearing from me or if they got an email from my sister saying I had gotten out of surgery alive. @CaringBridge is an AWESOME resource for keeping people up to date. #AYACSM
Emily K. Drake @EK_Drake
RT @danimarietaylor: @DrSadhanaJ I think a cancer diagnosis on a young romantic relationship can bring a lot of challenge. It can mature a relationship beyond what it may have been able to cope with. I think there is a lot of guilt and pressure to keep things together in the face of cancer. #ayacsm
Dani Taylor (She/Her) @danimarietaylor
@DrSadhanaJ Maintain grace for the people you love. Just as we aren’t equipped to manage a serious illnesss at a young age; our people are likely unprepared to provide the care we need. We learn together. Sometimes that is messy. #ayacsm
reanne booker @Rea_Booker
@DrSadhanaJ As a healthcare provider, I’d love to know how we can better support patients in their relationships (be it relationships with fam/friends or romantic relationships). #ayacsm
Cancer Girl @cancergirl730
@ohhiialexa Now that song is stuck in my head. #AYACSM https://t.co/33EkPnH6KA
Cancer Girl @cancergirl730
RT @Rea_Booker: @DrSadhanaJ As a healthcare provider, I’d love to know how we can better support patients in their relationships (be it relationships with fam/friends or romantic relationships). #ayacsm
Emily K. Drake @EK_Drake
Not to age myself, but I wrote this blog back in 2012 for the @HuffPost about #Sex and #AYACSM https://t.co/JcB1MjlBDU
Cancer Girl @cancergirl730
RT @EK_Drake: Not to age myself, but I wrote this blog back in 2012 for the @HuffPost about #Sex and #AYACSM https://t.co/JcB1MjlBDU
YAKidneyCancer @YAKidneyCancer
RT @danimarietaylor: @DrSadhanaJ Maintain grace for the people you love. Just as we aren’t equipped to manage a serious illnesss at a young age; our people are likely unprepared to provide the care we need. We learn together. Sometimes that is messy. #ayacsm
Emily K. Drake @EK_Drake
RT @Rea_Booker: @DrSadhanaJ As a healthcare provider, I’d love to know how we can better support patients in their relationships (be it relationships with fam/friends or romantic relationships). #ayacsm
Cancer Girl @cancergirl730
@EK_Drake @HuffPost Hush up! You're forever young! #AYACSM
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 Me too!! #AYACSM https://t.co/Q7HkLm9aTP
Emily K. Drake @EK_Drake
@cancergirl730 @HuffPost #AYACSM https://t.co/GsBQaf3t4E
Alexa Jett 🦋 @ohhiialexa
Dani, you nailed it!! #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
Q3: In chatting about relationship intimacy, what are the best ways for patients to have an open conversation with their significant other, family (and sometimes strangers) about physical and emotional sexual side effects from cancer/cancer treatment? #AYACSM
Cancer Girl @cancergirl730
🤣🤣🤣 #AYACSM
Michele Rhee @michelerhee
@Rea_Booker @DrSadhanaJ If possible, speak with your patient privately (1:1) for at least part of the visit (if family members, etc. are present). Then ask some of the mental status questions. Patients put up a front for their loved ones—a lot. #AYACSM
Alexa Jett 🦋 @ohhiialexa
@Rea_Booker @DrSadhanaJ Please ask about them! It helped me talking to my doctor at the AYA clinic about relationship issues. And it also felt great to be validated about getting therapy for the aftermath of my diagnosis. #AYACSM
Dani Taylor (She/Her) @danimarietaylor
@DrSadhanaJ We also teach people how to care for us! Communicate your needs and you are more likely to have them met. If that’s happening and there is still a disconnect- no shame in tapping in some professional support! #ayacsm
Charyse 💜⁷|| peds heme onc || I miss Jin @c_diazepine
RT @DrSadhanaJ: Q3: Q3: In chatting about relationship intimacy, what are the best ways for patients to have an open conversation with their significant other, family (and sometimes strangers) about physical and emotional sexual side effects from cancer/cancer treatment? #AYACSM
Michele Rhee @michelerhee
@mtllatina @DrSadhanaJ Whenever I lost my appetite, my family and friends knew it was bad lol. As soon as my appetite came back, everyone would heave a huge sigh of relief bc they knew I’d be ok hahaha. #AYACSM https://t.co/hq1n611jBE
Wendy Allen-Rhoades, MD, PhD @BeyondTheCoat
@DrSadhanaJ My hashtag game is not strong tonight. #ayacsm
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @danimarietaylor: @DrSadhanaJ We also teach people how to care for us! Communicate your needs and you are more likely to have them met. If that’s happening and there is still a disconnect- no shame in tapping in some professional support! #ayacsm
Cancer Girl @cancergirl730
@DrSadhanaJ A3. Maybe share reading materials on the subject? So that the unspoken message is, "please read about what I don't know how to talk about." #AYACSM
Emily K. Drake @EK_Drake
RT @DrSadhanaJ: Q3: Q3: In chatting about relationship intimacy, what are the best ways for patients to have an open conversation with their significant other, family (and sometimes strangers) about physical and emotional sexual side effects from cancer/cancer treatment? #AYACSM
Emily K. Drake @EK_Drake
RT @michelerhee: @Rea_Booker @DrSadhanaJ If possible, speak with your patient privately (1:1) for at least part of the visit (if family members, etc. are present). Then ask some of the mental status questions. Patients put up a front for their loved ones—a lot. #AYACSM
YAKidneyCancer @YAKidneyCancer
@DrSadhanaJ A3: I don’t have much experience in this sector... heh... but I would say clear and open conversation. Any pain or insecurities need to be talked about instead of “just trying to work thru it” on your own. #ayacsm
Emily K. Drake @EK_Drake
RT @danimarietaylor: @DrSadhanaJ We also teach people how to care for us! Communicate your needs and you are more likely to have them met. If that’s happening and there is still a disconnect- no shame in tapping in some professional support! #ayacsm
Stefanie Thomas, MD @StefThomasMD
RT @danimarietaylor: @DrSadhanaJ Maintain grace for the people you love. Just as we aren’t equipped to manage a serious illnesss at a young age; our people are likely unprepared to provide the care we need. We learn together. Sometimes that is messy. #ayacsm
Alexa Jett 🦋 @ohhiialexa
A3: I think there are a lot of body issues. I had a hard time adjusting to new scars, especially since I was single after my diagnosis. I actually cried when @hesstruck41 said my scars were beautiful to him, and that he accepted my journey! #AYACSM
Cancer Girl @cancergirl730
@ohhiialexa @hesstruck41 Awww! He sounds like a keeper! #AYACSM
Ginger Riley ~Eternal Optimist~ @gingerly21
RT @NCICancerStats: According to 2012-2016 data, the median age of children diagnosed with brain and other nervous system cancer is 8 years. Check out more stats here: https://t.co/Z844EFaKO8 #AYACSM https://t.co/C4GltMwnMR
Michele Rhee @michelerhee
@DrSadhanaJ A3: It might help to start the conversation as a general reproductive side effects convo. That’s a topic that needs to be addressed anyway (or should be), & there’s a natural flow in topic to the reproductive act. #AYACSM
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 This is how we do it, it’s Tuesday night. The party is here on the Twitter. I’m following hashtags and it’s all because THIS IS HOW WE DO IT. #AYACSM coming from the cancer side, THIS IS HOW WE DO IT!
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @michelerhee: @DrSadhanaJ A3: @DrSadhanaJ A3: It might help to start the conversation as a general reproductive side effects convo. That’s a topic that needs to be addressed anyway (or should be), & there’s a natural flow in topic to the reproductive act. #AYACSM
Emily K. Drake @EK_Drake
RT @ohhiialexa: A3: A3: I think there are a lot of body issues. I had a hard time adjusting to new scars, especially since I was single after my diagnosis. I actually cried when @hesstruck41 said my scars were beautiful to him, and that he accepted my journey! #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @EK_Drake: Not to age myself, but I wrote this blog back in 2012 for the @HuffPost about #Sex and #AYACSM https://t.co/JcB1MjlBDU
Emily K. Drake @EK_Drake
RT @mtllatina:
reanne booker @Rea_Booker
@ohhiialexa @DrSadhanaJ Thank you 🙏! I’ve also noticed that partners sometimes have no idea how cancer/treatment can impact sexual function, body image, relationships. #ayacsm
Emily K. Drake @EK_Drake
RT @michelerhee: @DrSadhanaJ A3: @DrSadhanaJ A3: It might help to start the conversation as a general reproductive side effects convo. That’s a topic that needs to be addressed anyway (or should be), & there’s a natural flow in topic to the reproductive act. #AYACSM
Alexa Jett 🦋 @ohhiialexa
@Rea_Booker @DrSadhanaJ 100%. Partners need help too. #AYACSM
Cancer Girl @cancergirl730
RT @ohhiialexa: @cancergirl730 This is how we do it, it’s Tuesday night. The party is here on the Twitter. I’m following hashtags and it’s all because THIS IS HOW WE DO IT. #AYACSM coming from the cancer side, THIS IS HOW WE DO IT!
Emily K. Drake @EK_Drake
RT @Rea_Booker: @ohhiialexa @DrSadhanaJ Thank you 🙏! I’ve also noticed that partners sometimes have no idea how cancer/treatment can impact sexual function, body image, relationships. #ayacsm
Cancer Girl @cancergirl730
@ohhiialexa This might be the greatest tweet ever. #ayacsm
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @ohhiialexa: @Rea_Booker @DrSadhanaJ 100%. Partners need help too. #AYACSM
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 😆!!! #AYACSM https://t.co/uPWhO4uEMK
Michele Rhee @michelerhee
@ohhiialexa @hesstruck41 Dude, seriously. It took me years to wear clothing with necklines that showed my collarbones. (I had surgery by my collarbones lol.) Years. My sister got me a tshirt that says, “Scars are tattoos with better stories.” I still have it over a decade later. #AYACSM
Cancer Girl @cancergirl730
@ohhiialexa Actually, I take that back. This IS the greatest tweet ever! #AYACSM
Cancer Girl @cancergirl730
RT @michelerhee: @ohhiialexa @hesstruck41 Dude, seriously. It took me years to wear clothing with necklines that showed my collarbones. (I had surgery by my collarbones lol.) Years. My sister got me a tshirt that says, “Scars are tattoos with better stories.” I still have it over a decade later. #AYACSM
Alexa Jett 🦋 @ohhiialexa
RT @michelerhee: @ohhiialexa @hesstruck41 Dude, seriously. It took me years to wear clothing with necklines that showed my collarbones. (I had surgery by my collarbones lol.) Years. My sister got me a tshirt that says, “Scars are tattoos with better stories.” I still have it over a decade later. #AYACSM
Dani Taylor (She/Her) @danimarietaylor
@DrSadhanaJ My pelvic physiotherapist was open to my partner joining for a session. I found the experience very validating and bonding. It gave him some insight and practical knowledge. #ayacsm
Cancer Girl @cancergirl730
@michelerhee @ohhiialexa @hesstruck41 Dude, you're not alone. I didn't leave the house for YEARS because my scar freaked people out. #AYACSM https://t.co/DNhSLvO5Jw
Alexa Jett 🦋 @ohhiialexa
@danimarietaylor @DrSadhanaJ This is awesome! (And should be the norm if both are comfortable!) #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @ohhiialexa: @cancergirl730 This is how we do it, it’s Tuesday night. The party is here on the Twitter. I’m following hashtags and it’s all because THIS IS HOW WE DO IT. #AYACSM coming from the cancer side, THIS IS HOW WE DO IT!
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 @michelerhee @hesstruck41 #thyroidcancer crew gets it! Our scar is so visible for so long. Not to mention the questions we get! 😳 #AYACSM
Cancer Girl @cancergirl730
RT @ohhiialexa: @cancergirl730 @michelerhee @hesstruck41 #thyroidcancer crew gets it! Our scar is so visible for so long. Not to mention the questions we get! 😳 #AYACSM
Cancer Girl @cancergirl730
@ohhiialexa @michelerhee @hesstruck41 #ThyCa4Life baby! #AYACSM
Emily K. Drake @EK_Drake
@DrSadhanaJ @cancergirl730 @HuffPost I am very fortunate that survivors have trusted me with their stories throughout my career. It is an honour. #Research can't be done unless we all work together! #AYACSM
Cancer Girl @cancergirl730
Love this! #AYACSM
Cancer Girl @cancergirl730
RT @EK_Drake: @DrSadhanaJ @cancergirl730 @HuffPost I am very fortunate that survivors have trusted me with their stories throughout my career. It is an honour. #Research can't be done unless we all work together! #AYACSM
Michele Rhee @michelerhee
@cancergirl730 @ohhiialexa @hesstruck41 I came up with wild stories about where my scars came from. “I was attacked by a shark.” 😳 “I thought I escaped my old gang life, but they found me.” 😲 “I cut myself shaving.” 🤔 #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
Q4: How are some ways cancer patients/survivors/thrivers who are single, may optimally share their journey with a new partner; with hopes of developing a lasting relationship? #AYACSM
Emily K. Drake @EK_Drake
RT @michelerhee: @ohhiialexa @hesstruck41 Dude, seriously. It took me years to wear clothing with necklines that showed my collarbones. (I had surgery by my collarbones lol.) Years. My sister got me a tshirt that says, “Scars are tattoos with better stories.” I still have it over a decade later. #AYACSM
Cancer Girl @cancergirl730
Genius! #AYACSM https://t.co/sXOGyaOZYY
Stefanie Thomas, MD @StefThomasMD
RT @michelerhee: @ohhiialexa @hesstruck41 Dude, seriously. It took me years to wear clothing with necklines that showed my collarbones. (I had surgery by my collarbones lol.) Years. My sister got me a tshirt that says, “Scars are tattoos with better stories.” I still have it over a decade later. #AYACSM
Emily K. Drake @EK_Drake
RT @DrSadhanaJ: Q4: Q4: How are some ways cancer patients/survivors/thrivers who are single, may optimally share their journey with a new partner; with hopes of developing a lasting relationship? #AYACSM
Alexa Jett 🦋 @ohhiialexa
WE IN THE HOUSE! #THYCA4LIFE (because, you know, it is for life! 😂) 🦋 💙💜💚#AYACSM
Stefanie Thomas, MD @StefThomasMD
RT @michelerhee: @DrSadhanaJ A3: @DrSadhanaJ A3: It might help to start the conversation as a general reproductive side effects convo. That’s a topic that needs to be addressed anyway (or should be), & there’s a natural flow in topic to the reproductive act. #AYACSM
I’m Not Done Yet @mengesAYAcancer
RT @DrSadhanaJ: Q4: Q4: How are some ways cancer patients/survivors/thrivers who are single, may optimally share their journey with a new partner; with hopes of developing a lasting relationship? #AYACSM
Stefanie Thomas, MD @StefThomasMD
RT @mtllatina:
Alexa Jett 🦋 @ohhiialexa
RT @michelerhee: @cancergirl730 @ohhiialexa @hesstruck41 I came up with wild stories about where my scars came from. “I was attacked by a shark.” 😳 “I thought I escaped my old gang life, but they found me.” 😲 “I cut myself shaving.” 🤔 #AYACSM
Alexa Jett 🦋 @ohhiialexa
RT @EK_Drake: @DrSadhanaJ @cancergirl730 @HuffPost I am very fortunate that survivors have trusted me with their stories throughout my career. It is an honour. #Research can't be done unless we all work together! #AYACSM
Dani Taylor (She/Her) @danimarietaylor
@DrSadhanaJ Grace with yourself. It can be easy to decide for other people what they can or can’t handle. While there is risk in putting yourself out there and being rejected, there can also be massive reward in having someone see you, your “damage”, and say “I’m in.” #ayacsm
Cancer Girl @cancergirl730
@DrSadhanaJ A4. Eventually I was just too tired to give a f---. So, I put it all out at the start. Lots of rejection, but I didn't waste my time. That's how I found Hubs. No. 2. #AYACSM
Alexa Jett 🦋 @ohhiialexa
A4: That’s up to you. I hid my diagnosis until I got into advocacy, and then I became upfront. I’ll be honest, there are lots of people who have issues with cancer. Especially the “my grandma died of cancer” types. But good ones ARE out there! #AYACSM
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 @DrSadhanaJ YES!!! #AYACSM https://t.co/WuvuInmYbm
Cancer Girl @cancergirl730
@DrSadhanaJ A2. There's nothing quite like telling someone new, "the doctor said I've got less than 6 months." That's been 7.5 years #AYACSM
YAKidneyCancer @YAKidneyCancer
A4: for me, I let them know pretty much from the start that I’m a survivor. However, all the details and more sensitive information around it is left until much much later in a relationship. #AYACSM
Dr. Sadhana Jackson, MD @DrSadhanaJ
@ohhiialexa @cancergirl730 I would recommend to have a discussion with yourself first about what’s most comfortable for you in telling your cancer journey (of course leave in the juicy parts and maybe hold on explaining the parts that would cause you to sob uncontrollably on the first date) #AYACSM
Alexa Jett 🦋 @ohhiialexa
Oh my! #AYACSM https://t.co/pAKrkedQIo
Emily K. Drake @EK_Drake
RT @danimarietaylor: @DrSadhanaJ Grace with yourself. It can be easy to decide for other people what they can or can’t handle. While there is risk in putting yourself out there and being rejected, there can also be massive reward in having someone see you, your “damage”, and say “I’m in.” #ayacsm
Cancer Girl @cancergirl730
@ohhiialexa Everyone is so different about telling their story, and everyone is so different about hearing the story. I don't know if there are any "best practices" or one size fits all solutions. #ayacsm
Emily K. Drake @EK_Drake
RT @cancergirl730: @DrSadhanaJ A4. Eventually I was just too tired to give a f---. So, I put it all out at the start. Lots of rejection, but I didn't waste my time. That's how I found Hubs. No. 2. #AYACSM
Stefanie Thomas, MD @StefThomasMD
RT @cancergirl730: @ohhiialexa Everyone is so different about telling their story, and everyone is so different about hearing the story. I don't know if there are any "best practices" or one size fits all solutions. #ayacsm
Alexa Jett 🦋 @ohhiialexa
This is awesome advice for #AYACancer fam! #AYACSM
Emily K. Drake @EK_Drake
RT @DrSadhanaJ: @ohhiialexa @cancergirl730 I would recommend to have a discussion with yourself first about what’s most comfortable for you in telling your cancer journey (of course leave in the juicy parts and maybe hold on explaining the parts that would cause you to sob uncontrollably on the first date) #AYACSM
Emily K. Drake @EK_Drake
RT @YAKidneyCancer: A4: A4: for me, I let them know pretty much from the start that I’m a survivor. However, all the details and more sensitive information around it is left until much much later in a relationship. #AYACSM
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 Because there aren’t, unfortunately! 😩 #AYACSM
Emily K. Drake @EK_Drake
RT @cancergirl730: @ohhiialexa Everyone is so different about telling their story, and everyone is so different about hearing the story. I don't know if there are any "best practices" or one size fits all solutions. #ayacsm
Alexa Jett 🦋 @ohhiialexa
RT @YAKidneyCancer: A4: A4: for me, I let them know pretty much from the start that I’m a survivor. However, all the details and more sensitive information around it is left until much much later in a relationship. #AYACSM
Michele Rhee @michelerhee
@DrSadhanaJ A4: that’s v personal & v dependent on treatment & cancer stage, I think. And!! There’s https://t.co/RQjkLtp8s0! Everyone (theoretically) has cancer, so it’s all upfront. #AYACSM
Cancer Girl @cancergirl730
@ohhiialexa This is one of the times you have to go with your gut. If he stays, great! If he doesn't, great! Now you can find someone who will. #AYACSM
Alexa Jett 🦋 @ohhiialexa
@cancergirl730 And 👏🏻 there 👏🏻 are 👏🏻 good 👏🏻 ones 👏🏻 out 👏🏻 there 👏🏻!!!! Keep going! #AYACSM
YAKidneyCancer @YAKidneyCancer
I’ve been fortunate that every guy I’ve dated since my cancer journey has been super positive and supportive about it. Even if they weren’t so much in other areas... 😂 #AYACSM
Emily K. Drake @EK_Drake
Thank you for guest moderating tonight, @DrSadhanaJ! Thank you also to everyone who joined in on the conversation. Your time, tweets and comments are appreciated and important! #AYACSM Please tune in March 3rd @ 8PM ET for the next #AYACSM chat! https://t.co/wvmpUEIbGZ
Cancer Girl @cancergirl730
@michelerhee @DrSadhanaJ That makes me so uncomfortable. I dated so many people with Florence Nightingale Syndrome. To me, that just seems like an unsafe situation. #AYACSM
Joseph Vivens @JosephVivens
RT @DrSadhanaJ: Q4: Q4: How are some ways cancer patients/survivors/thrivers who are single, may optimally share their journey with a new partner; with hopes of developing a lasting relationship? #AYACSM
YAKidneyCancer @YAKidneyCancer
@EK_Drake @DrSadhanaJ Unagi!! I’m watching friends right now. 😂 #ayacsm https://t.co/SFb5TuIxtV
Alexa Jett 🦋 @ohhiialexa
Thank you @EK_Drake and @DrSadhanaJ for another incredible #AYACSM chat tonight. Great work! Loved catching up!!! https://t.co/5jrHcnaKyH
Dr. Sadhana Jackson, MD @DrSadhanaJ
Yeah we did it!!! Thank you @EK_Drake and thank you #AYACSM community for engaging and being so welcoming. Please follow and feel free to reach out to me for collaborations, questions and thoughts! Happy ❤️ healthy month and #WorldCancerDay2020
Cancer Girl @cancergirl730
RT @DrSadhanaJ: Yeah we did it!!! Thank you @EK_Drake and thank you #AYACSM community for engaging and being so welcoming. Please follow and feel free to reach out to me for collaborations, questions and thoughts! Happy ❤️ healthy month and #WorldCancerDay2020
Alexa Jett 🦋 @ohhiialexa
RT @DrSadhanaJ: Yeah we did it!!! Thank you @EK_Drake and thank you #AYACSM community for engaging and being so welcoming. Please follow and feel free to reach out to me for collaborations, questions and thoughts! Happy ❤️ healthy month and #WorldCancerDay2020
Dr. Sadhana Jackson, MD @DrSadhanaJ
RT @ohhiialexa: @cancergirl730 And 👏🏻 there 👏🏻 are 👏🏻 good 👏🏻 ones 👏🏻 out 👏🏻 there 👏🏻!!!! Keep going! #AYACSM
Emily K. Drake @EK_Drake
RT @DrSadhanaJ: Yeah we did it!!! Thank you @EK_Drake and thank you #AYACSM community for engaging and being so welcoming. Please follow and feel free to reach out to me for collaborations, questions and thoughts! Happy ❤️ healthy month and #WorldCancerDay2020
Emily K. Drake @EK_Drake
@DrSadhanaJ @KennyKane Quite possibly the best reaction to a @KennyKane tweet ever #AYACSM
#ayacsm content from Twitter.