#ayacsm Transcript
Healthcare social media transcript of the #ayacsm hashtag.
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See #ayacsm Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Kimberly Miller, PhD @KimMillerPhD @EK_Drake Hey Emily unfortunately I have to miss tonight due to work but wanted to wish you and the tweeps a good tweetchat! Will be there next month!! #AYACSM |
 | Emily K. Drake @EK_Drake Welcome to the #AYACSM tweet chat! We're so glad to have you with us this evening! Be sure to tweet along using #ayacsm |
| Emily K. Drake @EK_Drake #AYACSM was co-founded by @ukfann00 , @StupidCancer and I! #ayacsm https://t.co/XEYLxN5s6M |
| Emily K. Drake @EK_Drake As a reminder, this chat is for advocates involved in the adolescent and young adult cancer societal movement #ayacsm |
| Emily K. Drake @EK_Drake An advocate is anyone who speaks, writes or in other ways actively supports the AYA cancer movement as a whole #ayacsm |
| Emily K. Drake @EK_Drake All are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat starting now! #ayacsm |
| Emily K. Drake @EK_Drake Tonight we will be talking about when social media streams go silent. The topic is from our colleagues at #HCSMCA #AYACSM |
| Emily K. Drake @EK_Drake Let's start by doing introductions, giving your name, location, and affiliation with adolescent and young adult cancer advocacy #ayacsm |
 | Judy Fulmer @TCellALLMom RT @EK_Drake: An advocate is anyone who speaks, writes or in other ways actively supports the AYA cancer movement as a whole #ayacsm |
| Emily K. Drake @EK_Drake @TCellALLMom Hi Judy! It does!! Just add #AYACSM to the end of all of your tweets so that everyone can see them! |
 | Stefanie Thomas, MD @StefThomasMD @EK_Drake Hi all! I’m Stef, a pediatric oncologist from @ChildrensLA. Happy to be joining for another #AYACSM chat! |
| Emily K. Drake @EK_Drake RT @StefThomasMD: @EK_Drake Hi all! I’m Stef, a pediatric oncologist from @ChildrensLA. Happy to be joining for another #AYACSM chat! |
| Emily K. Drake @EK_Drake @StefThomasMD @ChildrensLA Welcome, Stef!! So happy that you can attend!! #AYACSM |
| Emily K. Drake @EK_Drake @DrBral and @raphaelyechieli will you be joining in tonight? #AYACSM |
| Emily K. Drake @EK_Drake Emily Drake - Phd in Health student at Dalhousie University in Halifax, Nova Scotia. Co-founder of #AYACSM! |
| Judy Fulmer @TCellALLMom Looking forward to meeting with Members of Congress later this month to discuss pediatric and AYA cancer needs. #AYACSM |
| Emily K. Drake @EK_Drake I've received a few regrets for tonight's chat so hopefully people can join in when they can! #AYACSM |
| Emily K. Drake @EK_Drake RT @TCellALLMom: Looking forward to meeting with Members of Congress later this month to discuss pediatric and AYA cancer needs. #AYACSM |
 | Dr. Perri Tutelman @DrPerriTutelman Hi everyone! I'm Perri, a PhD student in clinical psychology @DalNews and @IWKHealthCentre with interests in pain and psycho-oncology #AYACSM |
 | Dr. Daniel O. Bral @DrBral Daniel Bral. New York. Survivor and Advocate/Champion? Lol #ayacsm. |
| Emily K. Drake @EK_Drake @TCellALLMom That's fantastic, Judy!! Can you tell us a bit about yourself? So happy that you have joined us tonight #AYACSM |
| Emily K. Drake @EK_Drake RT @DrBral: Daniel Bral. New York. Survivor and Advocate/Champion? Lol #ayacsm. |
| Judy Fulmer @TCellALLMom Social media helps spread the word about promising developments for AYA cancer patients and survivors. It helps keep people in the loop! #AYACSM |
| Emily K. Drake @EK_Drake @DrBral Welcome!! I see that you are now officially Dr. Bral! Congrats!! So happy to have you join us this evening! Can you believe it is 5 years this April since we first met? Time flies! #AYACSM |
| Emily K. Drake @EK_Drake RT @TCellALLMom: Social media helps spread the word about promising developments for AYA cancer patients and survivors. It helps keep people in the loop! #AYACSM |
| Emily K. Drake @EK_Drake @TCellALLMom That's true!! #ayacsm |
| Emily K. Drake @EK_Drake RT @PerriTutelman: Hi everyone! I'm Perri, a PhD student in clinical psychology @DalNews and @IWKHealthCentre with interests in pain and psycho-oncology #AYACSM |
| Emily K. Drake @EK_Drake @PerriTutelman @DalNews @IWKHealthCentre Welcome, @PerriTutelman !! Thank you for joining us tonight!! #AYACSM |
| Emily K. Drake @EK_Drake Q1: Who on #SocialMedia sharing about living with #AYACancer has influenced and/or inspired you? #AYACSM |
| Dr. Daniel O. Bral @DrBral @EK_Drake So happy to reconnect and be joining the #ayacsm community tonight! |
| Emily K. Drake @EK_Drake @katie_harmoney @URMed_GCH @muhealth So happy that you've found us!! Great to have you join!! #AYACSM |
| Emily K. Drake @EK_Drake RT @DrBral: @EK_Drake So happy to reconnect and be joining the #ayacsm community tonight! |
| Judy Fulmer @TCellALLMom @EK_Drake My AYA daughter is 2 yrs OT for T-Cell ALL and deals with extensive AVN and other tx effects. I see a huge need for better tx and supportive care. AYAs are biologically different from young children and older adults. They also have much diff psychosocial needs. #AYACSM |
 | EstherG2016 @G2016Esther RT @TCellALLMom: Social media helps spread the word about promising developments for AYA cancer patients and survivors. It helps keep people in the loop! #AYACSM |
 | Dr. PNW Ex-pat (she/her) @katie_harmoney @EK_Drake A1: honestly, a girl I went to high school with. She was diagnosed with Ewing Sarcoma and went through treatment. She unfortunately recurred with metastatic disease and passed away. She did it with such grace and kindness. #ayacsm |
| Emily K. Drake @EK_Drake RT @TCellALLMom: @EK_Drake My AYA daughter is 2 yrs OT for T-Cell ALL and deals with extensive AVN and other tx effects. I see a huge need for better tx and supportive care. AYAs are biologically different from young children and older adults. They also have much diff psychosocial needs. #AYACSM |
| Emily K. Drake @EK_Drake @TCellALLMom So happy to have you join us and share your story this evening #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @EK_Drake Too many to list!! @dtayl @michelerhee @deanaruston @MatthewZachary @ovarshare to name a few #ayacsm |
| Emily K. Drake @EK_Drake @DrBral @marklewismd I finally got to meet him in December!! We presented in the same session at @AYAGlobalCancer He has offered us all so much wisdom and insight #AYACSM |
 | #sophiastrong @mightysophia RT @TCellALLMom: Looking forward to meeting with Members of Congress later this month to discuss pediatric and AYA cancer needs. #AYACSM |
| Judy Fulmer @TCellALLMom As underfunded as peds cancer is, AYA cancer funding is nonexistent. Social media helps us spread the word about this need outside our immediate circle. Without it, info flow would stall #AYACSM |
| Emily K. Drake @EK_Drake @shads_mo Fantastic!! Thank you so much for joining us tonight. Our crew normally spans pediatric and adult care/research so you are in the right place! #AYACSM |
| Emily K. Drake @EK_Drake @katie_harmoney Oh I'm so sorry to hear. Thank you for sharing her story #AYACSM |
 | Kyle Vader @vader_kyle Hi all! I'm Kyle, a physiotherapist and PhD student at @KingstonHSC & @queensu. I am interested in pain management in primary care and my connection to adolescent & young adult cancer advocacy comes through @PerriTutelman. Looking forward to following the chat tonight! #AYACSM |
| Emily K. Drake @EK_Drake @eschles Thank you for eavesdropping!! #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @EK_Drake Too many to list!! @dtayl @michelerhee @deanaruston @MatthewZachary @ovarshare to name a few #ayacsm |
 | Cancer Girl @cancergirl730 @EK_Drake I think I'm here now. Sorry to be late to the party. #AYACSM |
| Emily K. Drake @EK_Drake @PerriTutelman @dtayl @michelerhee @deanaruston @MatthewZachary @ovarshare Agree!!! I can't forget those who have formed/run incredible organizations: @MatthewZachary @JenMerschdorf @mallorycaspersn @TheSamfundCEO #AYACSM |
| Emily K. Drake @EK_Drake @cancergirl730 No problem! Happy you are here!! #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @vader_kyle @KingstonHSC @queensu YAY WELCOME! #ayacsm |
| Emily K. Drake @EK_Drake RT @TCellALLMom: As underfunded as peds cancer is, AYA cancer funding is nonexistent. Social media helps us spread the word about this need outside our immediate circle. Without it, info flow would stall #AYACSM |
| Emily K. Drake @EK_Drake RT @vader_kyle: Hi all! I'm Kyle, a physiotherapist and PhD student at @KingstonHSC & @queensu. I am interested in pain management in primary care and my connection to adolescent & young adult cancer advocacy comes through @PerriTutelman. Looking forward to following the chat tonight! #AYACSM |
| Cancer Girl @cancergirl730 RT @TCellALLMom: As underfunded as peds cancer is, AYA cancer funding is nonexistent. Social media helps us spread the word about this need outside our immediate circle. Without it, info flow would stall #AYACSM |
| Emily K. Drake @EK_Drake @vader_kyle @KingstonHSC @queensu @PerriTutelman Thanks a million for joining!! Perri is a rock star! #AYACSM |
| Judy Fulmer @TCellALLMom AYA funding is almost nonexistent. #AYACSM |
| Cancer Girl @cancergirl730 RT @EK_Drake: Q1: Q1: Who on #SocialMedia sharing about living with #AYACancer has influenced and/or inspired you? #AYACSM |
| Emily K. Drake @EK_Drake Q2: What obligations may be unexpectedly thrust upon them because of a growing audience? #AYACSM |
| Cancer Girl @cancergirl730 RT @EK_Drake: Q2: Q2: What obligations may be unexpectedly thrust upon them because of a growing audience? #AYACSM |
| Cancer Girl @cancergirl730 RT @TCellALLMom: AYA funding is almost nonexistent. #AYACSM |
| Cancer Girl @cancergirl730 @EK_Drake A2. To be a SME about all things cancer all the time. #AYACSM |
 | Melissa Coombs @MelissaCoombs3 RT @TCellALLMom: As underfunded as peds cancer is, AYA cancer funding is nonexistent. Social media helps us spread the word about this need outside our immediate circle. Without it, info flow would stall #AYACSM |
 | Christina Lizaso @btrfly12 RT @EK_Drake: Tonight we will be talking about when social media streams go silent. The topic is from our colleagues at #HCSMCA #AYACSM |
| Emily K. Drake @EK_Drake RT @cancergirl730: @EK_Drake A2. To be a SME about all things cancer all the time. #AYACSM |
| Christina Lizaso @btrfly12 RT @EK_Drake: All are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat starting now! #ayacsm |
| Emily K. Drake @EK_Drake RT @TCellALLMom: AYA funding is almost nonexistent. #AYACSM |
| Emily K. Drake @EK_Drake Just to clarify - this is about those whose accounts we believe to be influential! #AYACSM |
| Cancer Girl @cancergirl730 RT @EK_Drake: Just to clarify - this is about those whose accounts we believe to be influential! #AYACSM |
| Cancer Girl @cancergirl730 RT @vader_kyle: Hi all! I'm Kyle, a physiotherapist and PhD student at @KingstonHSC & @queensu. I am interested in pain management in primary care and my connection to adolescent & young adult cancer advocacy comes through @PerriTutelman. Looking forward to following the chat tonight! #AYACSM |
| Emily K. Drake @EK_Drake @DrBral Sorry I just clarified because it's unclear unless you read the questions together - but it's those #SocialMedia accounts of people that we believe to be influential. What pressures do they face as their followings grow? #AYACSM |
| Emily K. Drake @EK_Drake A2: From the experiences I have in working with people, some can get inundated with speaking, writing and other requests which can be hard to manage. How do you say no? What do you prioritize? What do you ask for in return? #AYACSM |
| Cancer Girl @cancergirl730 RT @EK_Drake: A2: A2: From the experiences I have in working with people, some can get inundated with speaking, writing and other requests which can be hard to manage. How do you say no? What do you prioritize? What do you ask for in return? #AYACSM |
| Judy Fulmer @TCellALLMom @EK_Drake I agree with @cancergirl730 CancerGirl Survivors could be expected to know all there is to know about AYA cancer and speak publically. They may not be ready or able to do that #AYACSM |
| Cancer Girl @cancergirl730 RT @TCellALLMom: @EK_Drake I agree with @cancergirl730 CancerGirl Survivors could be expected to know all there is to know about AYA cancer and speak publically. They may not be ready or able to do that #AYACSM |
| Emily K. Drake @EK_Drake RT @TCellALLMom: @EK_Drake I agree with @cancergirl730 CancerGirl Survivors could be expected to know all there is to know about AYA cancer and speak publically. They may not be ready or able to do that #AYACSM |
| Emily K. Drake @EK_Drake @TCellALLMom @cancergirl730 I agree with you both! Some people often feel guilty saying no too. That can make them feel uncomfortable. #AYACSM |
| Cancer Girl @cancergirl730 @TCellALLMom @EK_Drake Thanks! They may not even know everything about their type of cancer, they may only know about their personal experience. 1 size does not fit all. #AYACSM |
| Emily K. Drake @EK_Drake @DrBral Agree and I think sometimes people feel accountable too to have to continue sharing their story and be so open, if they've been open in the past. That can be hard for people as things change and their lives take new shape #AYACSM |
| Emily K. Drake @EK_Drake RT @cancergirl730: @TCellALLMom @EK_Drake Thanks! They may not even know everything about their type of cancer, they may only know about their personal experience. 1 size does not fit all. #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @EK_Drake What to ask for in return is an important piece. These skills and expertise should be valued and compensated appropriately. However this isn't always the case. #ayacsm |
| Judy Fulmer @TCellALLMom #AYACSM |
| Cancer Girl @cancergirl730 RT @PerriTutelman: @EK_Drake What to ask for in return is an important piece. These skills and expertise should be valued and compensated appropriately. However this isn't always the case. #ayacsm |
| Cancer Girl @cancergirl730 100% True. #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @EK_Drake What to ask for in return is an important piece. These skills and expertise should be valued and compensated appropriately. However this isn't always the case. #ayacsm |
 | Pavlos Bobos @pavlosbob RT @vader_kyle: Hi all! I'm Kyle, a physiotherapist and PhD student at @KingstonHSC & @queensu. I am interested in pain management in primary care and my connection to adolescent & young adult cancer advocacy comes through @PerriTutelman. Looking forward to following the chat tonight! #AYACSM |
| Judy Fulmer @TCellALLMom @EK_Drake @cancergirl730 Survivors may block out and not remember some of their cancer experience because of the trauma they endured #AYACSM |
| Cancer Girl @cancergirl730 #AYACSM |
| Cancer Girl @cancergirl730 RT @TCellALLMom: @EK_Drake @cancergirl730 Survivors may block out and not remember some of their cancer experience because of the trauma they endured #AYACSM |
| Judy Fulmer @TCellALLMom #AYACSM |
| Emily K. Drake @EK_Drake @DrBral Did you feel that people began expecting updates from you? I see a lot of channels go quiet on here and people reaching out, wondering what is going on with them - which isn't always giving people the space that they may need or asking for #AYACSM |
| Emily K. Drake @EK_Drake RT @TCellALLMom: @EK_Drake @cancergirl730 Survivors may block out and not remember some of their cancer experience because of the trauma they endured #AYACSM |
| Emily K. Drake @EK_Drake @cancergirl730 Was it you who I first saw using the term cancerlebrity? Like way back in the day? #AYACSM |
| Judy Fulmer @TCellALLMom #AYACSM |
| Dr. Daniel O. Bral @DrBral @EK_Drake I think I did a good job of going radio silent and taking the space I needed after being “Mr AYA Cancer” for so long. I didn’t feel like I was hounded. Not sure if I’m insulted now that no one reached out. 😂 #ayacsm |
| Cancer Girl @cancergirl730 @EK_Drake Might be? I called myself a "Thylebrity" for Thyroid Cancer. I was young then. ;-) Good memory! #AYACSM |
| Cancer Girl @cancergirl730 RT @DrBral: @EK_Drake I think I did a good job of going radio silent and taking the space I needed after being “Mr AYA Cancer” for so long. I didn’t feel like I was hounded. Not sure if I’m insulted now that no one reached out. 😂 #ayacsm |
| Emily K. Drake @EK_Drake #AYACSM |
| Emily K. Drake @EK_Drake @ViolentKuchar There seems to be this really weird expectation we have in society to "always be positive". I think that truly cuts out raw human experience and I don't understand telling people how to act when discussing THIER illness experience. I'm sorry that you felt shamed #AYACSM |
| Judy Fulmer @TCellALLMom @EK_Drake All of my advocacy is voluntary and I must juggle my schedule. I tend to go "all in," so it is hard for me to say no to opportunities to advocate. It is the most fulfilling thing in my life and greatest passion after my faith and family #AYACSM |
| Cancer Girl @cancergirl730 @ViolentKuchar @EK_Drake You definitely aren't alone in feeling that way. #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @EK_Drake @ViolentKuchar A lot of people feel uncomfortable with negative emotions. It's unfortunate and unfair that it can come out in in shaming :( #ayacsm |
| Judy Fulmer @TCellALLMom @EK_Drake Not having a travel budget makes it difficult for me to attend many worthwhile meetings and events. I want to go to ASCO, CancerCon, and Global AYA Congress, but don't have a way to get there. That probably affects other parent advocates, too #AYACSM |
| Emily K. Drake @EK_Drake @DrBral Maybe they just assumed that you were studying! #AYACSM |
| Emily K. Drake @EK_Drake RT @cancergirl730: @EK_Drake Might be? I called myself a "Thylebrity" for Thyroid Cancer. I was young then. ;-) Good memory! #AYACSM |
| Emily K. Drake @EK_Drake @cancergirl730 It comes and goes! :) #AYACSM |
| Cancer Girl @cancergirl730 Hey Matzah Loca! @allieemorse #AYACSM |
| Emily K. Drake @EK_Drake RT @TCellALLMom: @EK_Drake All of my advocacy is voluntary and I must juggle my schedule. I tend to go "all in," so it is hard for me to say no to opportunities to advocate. It is the most fulfilling thing in my life and greatest passion after my faith and family #AYACSM |
| Judy Fulmer @TCellALLMom @vader_kyle @EK_Drake @KingstonHSC @queensu @PerriTutelman My daughter sure needed pain management during and after tx. #AYACSM |
| Emily K. Drake @EK_Drake @TCellALLMom How do you find balance in those commitments and your family? #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @EK_Drake @ViolentKuchar A lot of people feel uncomfortable with negative emotions. It's unfortunate and unfair that it can come out in in shaming :( #ayacsm |
 | Allie Morse | 🍑➡️🦞 @allieemorse Hoo boy, I'm awful and LATE to #AYACSM. And y'all have to go and flatter me with all your mentions. https://t.co/7Ngsom0s5j |
| Cancer Girl @cancergirl730 @EK_Drake I seriously had to go look at my profile to figure it out. LOL #AYACSM |
| Emily K. Drake @EK_Drake RT @TCellALLMom: @EK_Drake Not having a travel budget makes it difficult for me to attend many worthwhile meetings and events. I want to go to ASCO, CancerCon, and Global AYA Congress, but don't have a way to get there. That probably affects other parent advocates, too #AYACSM |
 | Michele Rhee @michelerhee I'm joining LAAAATE!!!!! I had WOOOOOORK. I'm SOOOOOOOOORYYYYYYYY! #ayacsm |
| Allie Morse | 🍑➡️🦞 @allieemorse A1. As I've approached (and adjusted, and adjusted again) how I want to engage in survivorship, I've been particularly inspired by @lpackard, @TheSamfundCEO & @tamikafelder. Not to mention the wonderful #ayacsm Twitterverse. |
| Emily K. Drake @EK_Drake @TCellALLMom Agree!! Cost is a huge barrier for all advocates and I'm sure for parent advocates too who have children at home they may have to care for as well! #AYACSM |
| Cancer Girl @cancergirl730 @michelerhee Lame excuse. ;-) #AYACSM |
| Judy Fulmer @TCellALLMom @PerriTutelman @EK_Drake @DalNews @IWKHealthCentre We needed your help too! Pain was unbearable for my daughter. We felt dismissed when std meds didn't help. #AYACSM |
| Emily K. Drake @EK_Drake RT @cancergirl730: @EK_Drake I seriously had to go look at my profile to figure it out. LOL #AYACSM |
| Emily K. Drake @EK_Drake RT @allieemorse: A1. As I've approached (and adjusted, and adjusted again) how I want to engage in survivorship, I've been particularly inspired by @lpackard, @TheSamfundCEO & @tamikafelder. Not to mention the wonderful #ayacsm Twitterverse. |
| Michele Rhee @michelerhee @EK_Drake A1: You inspire me!! #AYACSM https://t.co/92IAgi50gx |
| Emily K. Drake @EK_Drake @allieemorse @lpackard @TheSamfundCEO @tamikafelder YES! @tamikafelder of course!! I can't believe I forgot to mention her earlier - LONG DAY! Sorry, T! I remember the first night I met her - I went home that night and called my husband and said I just met the most remarkable group of women: Sam, T, Leah and a few others! #AYACSM |
| Emily K. Drake @EK_Drake @michelerhee #AYACSM https://t.co/PFIS8U5L3Y |
| Dr. Perri Tutelman @DrPerriTutelman @TCellALLMom @EK_Drake @DalNews @IWKHealthCentre Pain is a such a common yet underrecognized challenge during and after cancer. This is the topic of my PhD research. I'm sorry to hear what your daughter has gone through. #ayacsm |
| Dr. Perri Tutelman @DrPerriTutelman RT @TCellALLMom: @vader_kyle @EK_Drake @KingstonHSC @queensu @PerriTutelman My daughter sure needed pain management during and after tx. #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman RT @TCellALLMom: @PerriTutelman @EK_Drake @DalNews @IWKHealthCentre We needed your help too! Pain was unbearable for my daughter. We felt dismissed when std meds didn't help. #AYACSM |
| Allie Morse | 🍑➡️🦞 @allieemorse When you're a few steps ahead in the cancer experience, it's easy to become someone else's life raft. Speaking about your own experience does not make you trained to effectively support others through their trauma, & boundaries can be particularly challenging. #ayacsm |
| Emily K. Drake @EK_Drake RT @michelerhee: I'm joining LAAAATE!!!!! I had WOOOOOORK. I'm SOOOOOOOOORYYYYYYYY! #ayacsm |
| Emily K. Drake @EK_Drake @michelerhee Forgiven!! #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @TCellALLMom @EK_Drake @DalNews @IWKHealthCentre Pain is a such a common yet underrecognized challenge during and after cancer. This is the topic of my PhD research. I'm sorry to hear what your daughter has gone through. #ayacsm |
| Michele Rhee @michelerhee @EK_Drake A2: It's weird bc I'm a *very* open person, but I hesitate to post/tweet sometimes now bc I know more people are following/listening/paying attention. I want to be mindful that not everyone has full context to everything I say. Not that I have a huge following...lol. #AYACSM |
| Judy Fulmer @TCellALLMom @ViolentKuchar @EK_Drake Agree..we tend to show the highlights because others get uncomfortable with the realities. Remember, it is ok to be real. It is part of your experience. #AYACSM |
| Emily K. Drake @EK_Drake RT @allieemorse: When you're a few steps ahead in the cancer experience, it's easy to become someone else's life raft. Speaking about your own experience does not make you trained to effectively support others through their trauma, & boundaries can be particularly challenging. #ayacsm |
| Emily K. Drake @EK_Drake @allieemorse Wonderful point!! #AYACSM |
| Judy Fulmer @TCellALLMom #AYACSM |
| Michele Rhee @michelerhee @cancergirl730 I know, right?!?! Work is the LAMEST lol. I"m such a loser. 😜 #AYACSM https://t.co/N6uGpQaVpf |
| Emily K. Drake @EK_Drake RT @michelerhee: @EK_Drake A2: @EK_Drake A2: It's weird bc I'm a *very* open person, but I hesitate to post/tweet sometimes now bc I know more people are following/listening/paying attention. I want to be mindful that not everyone has full context to everything I say. Not that I have a huge following...lol. #AYACSM |
| Allie Morse | 🍑➡️🦞 @allieemorse And I say that from both sides of the equation. I flailed like a limp doll at anyone who would listen early on. A few years later, I struggled to tell people who were reaching out to me with the same desperation that I couldn't provide the level of care they needed. #ayacsm |
| Emily K. Drake @EK_Drake @michelerhee You do and I can completely understand that #ayacsm |
| Michele Rhee @michelerhee @EK_Drake BECAUSE YOU'RE THE BESTEST. #AYACSM https://t.co/dv86k4sdUH |
| Judy Fulmer @TCellALLMom @EK_Drake There's the rub!!! I have to prioritize #AYACSM |
| Emily K. Drake @EK_Drake RT @TCellALLMom: @ViolentKuchar @EK_Drake Agree..we tend to show the highlights because others get uncomfortable with the realities. Remember, it is ok to be real. It is part of your experience. #AYACSM |
 | vivian gregory @viv4usc RT @TCellALLMom: As underfunded as peds cancer is, AYA cancer funding is nonexistent. Social media helps us spread the word about this need outside our immediate circle. Without it, info flow would stall #AYACSM |
| Michele Rhee @michelerhee @allieemorse It's because you're *magical* and AMAZING. #AYACSM https://t.co/UGk7EQLEAF |
| Cancer Girl @cancergirl730 @michelerhee Oh no. You're going to make me laugh so hard that seltzer comes out my nose. I should know better by now. #AYACSM |
| Emily K. Drake @EK_Drake RT @allieemorse: And I say that from both sides of the equation. I flailed like a limp doll at anyone who would listen early on. A few years later, I struggled to tell people who were reaching out to me with the same desperation that I couldn't provide the level of care they needed. #ayacsm |
| Emily K. Drake @EK_Drake @allieemorse Is there a good place that you direct them to for support? #AYACSM |
| Emily K. Drake @EK_Drake @michelerhee The memes are now next level!! #ayacsm |
| Emily K. Drake @EK_Drake RT @TCellALLMom: @EK_Drake There's the rub!!! I have to prioritize #AYACSM |
| Michele Rhee @michelerhee @EK_Drake @allieemorse @lpackard @TheSamfundCEO @tamikafelder OMG and @JonnyImerman!! THE BEST HUGGER EVER. #AYACSM https://t.co/NvYmCLn2cb |
| Cancer Girl @cancergirl730 OMG! TOTALLY. THE. BEST. HUGGER. EVER. @JonnyImerman #AYACSM @michelerhee |
 | Violet Kuchar, Crazy Colorectal Cancer Cat Lady @ViolentKuchar @allieemorse I often find newer people thinking I have some secret & can even feel afraid to be honest with them about how difficult it still can be for me. #ayacsm |
| Allie Morse | 🍑➡️🦞 @allieemorse @EK_Drake This sounds dismissive, but therapy - particularly cognitive behavioral therapy. Sometimes people just need to be told that it's OK to take their mental health as seriously as physical. #ayacsm |
| Emily K. Drake @EK_Drake @michelerhee @allieemorse @lpackard @TheSamfundCEO @tamikafelder @JonnyImerman YES!! Sorry - I'm off my game today!! I met @JonnyImerman that night too. And MZ and KK and @mAssKicker1 #AYACSM |
| Michele Rhee @michelerhee @EK_Drake I have found myself deleting tweets after posting bc I worry about offending or about things being taken out of context. It's difficult to try to balance hope with truth with my personality...lol. Which is where GIFs are super useful...or not... #AYACSM https://t.co/UPxIuvpidJ |
| Emily K. Drake @EK_Drake RT @ViolentKuchar: @allieemorse I often find newer people thinking I have some secret & can even feel afraid to be honest with them about how difficult it still can be for me. #ayacsm |
| Emily K. Drake @EK_Drake RT @allieemorse: @EK_Drake This sounds dismissive, but therapy - particularly cognitive behavioral therapy. Sometimes people just need to be told that it's OK to take their mental health as seriously as physical. #ayacsm |
| Judy Fulmer @TCellALLMom Such a big barrier! I want to learn all I can and advocate until the issues are common knowledge and change happens. #AYACSM |
| Violet Kuchar, Crazy Colorectal Cancer Cat Lady @ViolentKuchar @EK_Drake @DCYACancer shares a lot of valuable articles & resources. #ayacsm |
| Michele Rhee @michelerhee @cancergirl730 If I can make one person spray liquid outside of an inappropriate orifice, then I feel that my day/night is complete. #AYACSM https://t.co/CXmPrEhujR |
| Emily K. Drake @EK_Drake @DrBral @ImermanAngels YES! @JonnyImerman did such a fantastic job starting that organization #AYACSM |
| Michele Rhee @michelerhee @EK_Drake #AYACSM https://t.co/Wz1Z5sOh0T |
| Cancer Girl @cancergirl730 @michelerhee I seriously can't decide if I NEED to hang out with you or if I should hide from you. Either way... #AYACSM |
| Emily K. Drake @EK_Drake RT @TCellALLMom: Such a big barrier! I want to learn all I can and advocate until the issues are common knowledge and change happens. #AYACSM |
| Emily K. Drake @EK_Drake @TCellALLMom You sounds like you are well on your way - I'm so happy that you found our chat! #ayacsm |
| Emily K. Drake @EK_Drake RT @ViolentKuchar: @EK_Drake @DCYACancer shares a lot of valuable articles & resources. #ayacsm |
| Dr. Daniel O. Bral @DrBral @EK_Drake @ImermanAngels @JonnyImerman @ImermanAngels was actually my first involvement as an AYA advocate ... I was one of the first angels in 2006!! #13years - I can’t believe it! Can you @JonnyImerman?! #ayacsm |
| Emily K. Drake @EK_Drake @cancergirl730 @michelerhee Should "Either way... #AYACSM" be our new slogan? LOL! :) |
| Judy Fulmer @TCellALLMom #AYACSM |
| Emily K. Drake @EK_Drake RT @DrBral: @EK_Drake @ImermanAngels @JonnyImerman @ImermanAngels was actually my first involvement as an AYA advocate ... I was one of the first angels in 2006!! #13years - I can’t believe it! Can you @JonnyImerman?! #ayacsm |
| Judy Fulmer @TCellALLMom @PerriTutelman @EK_Drake @DalNews @IWKHealthCentre I think pain is disregarded at times. We certainly don't want to add to the opiod crisis, but to ignore it is cruel. My daughter said her bones throbbed inside. She felt that in every spot that now has AVN #AYACSM |
| Michele Rhee @michelerhee @EK_Drake @allieemorse @lpackard @TheSamfundCEO @tamikafelder @JonnyImerman @mAssKicker1 RIGHT?!? @JonnyImerman is my favorite hugger ever. Literally, whenever I describe him to anyone or introduce him to anyone, I say that he is THE BEST HUGGER. BECAUSE HE IS. #AYACSM https://t.co/eYe8lFtpFg |
| Cancer Girl @cancergirl730 @EK_Drake @michelerhee YES! Totally! Either way.... #AYACSM |
| Emily K. Drake @EK_Drake @DrBral @ImermanAngels @JonnyImerman I kind of wish his twitter account automatically posted "I don't read my twitter; no disrespect :)" to every @ he gets as per his bio #AYACSM |
| Allie Morse | 🍑➡️🦞 @allieemorse @EK_Drake @ViolentKuchar I felt intense pressure during treatment to make everyone around me feel better. It was as exhausting as the chemo! In survivorship, I've been able to give myself space to feel angry, bitter, pissed, & so gosh darn negative. #ayacsm |
| Judy Fulmer @TCellALLMom @EK_Drake Cost is a big factor in a lot of things, isn't it? #AYACSM |
| Michele Rhee @michelerhee @cancergirl730 A lot of people feel that way. A LOT. That's how I've made a lot of my best friends...through a combination of fear and attraction. #AYACSM https://t.co/gqcHfs3GUs |
| Allie Morse | 🍑➡️🦞 @allieemorse @cancergirl730 @michelerhee Come visit usssssss. Boston is nice. #ayacsm https://t.co/lzONVJIYCT |
| Dr. Perri Tutelman @DrPerriTutelman RT @TCellALLMom: @PerriTutelman @EK_Drake @DalNews @IWKHealthCentre I think pain is disregarded at times. We certainly don't want to add to the opiod crisis, but to ignore it is cruel. My daughter said her bones throbbed inside. She felt that in every spot that now has AVN #AYACSM |
| Cancer Girl @cancergirl730 @michelerhee Yup. There it is. BRB. #AYACSM |
| Emily K. Drake @EK_Drake I didn't get to half of my questions. It somehow turned into a @JonnyImerman appreciation hour (which we are all okay with). I hope in the end we all enjoyed the connections which is what #AYACSM is all about! Thanks for sharing your wisdom! We will be back April 2nd at 8pm ET! |
| Emily K. Drake @EK_Drake @DrBral @ImermanAngels @JonnyImerman Also, 2006?? You are an OG! #AYACSM |
| Judy Fulmer @TCellALLMom #AYACSM |
 | Dani Taylor (She/Her) @danimarietaylor @EK_Drake @CultPerfectMoms @annamecraig @laydeewinx @LeeshLou Anna’s work was incredible. #AYACSM |
| Judy Fulmer @TCellALLMom @EK_Drake Me too! #AYACSM |
| Emily K. Drake @EK_Drake RT @cancergirl730: @EK_Drake @michelerhee YES! Totally! Either way.... #AYACSM |
| Emily K. Drake @EK_Drake RT @allieemorse: @EK_Drake @ViolentKuchar I felt intense pressure during treatment to make everyone around me feel better. It was as exhausting as the chemo! In survivorship, I've been able to give myself space to feel angry, bitter, pissed, & so gosh darn negative. #ayacsm |
| Michele Rhee @michelerhee @DrBral @EK_Drake I actually have that unicorn onesie. If you do too, we might be unicorn soulmates. #AYACSM https://t.co/ap9WA5Ozxw |
| Cancer Girl @cancergirl730 RT @EK_Drake: I didn't get to half of my questions. It somehow turned into a @JonnyImerman appreciation hour (which we are all okay with). I hope in the end we all enjoyed the connections which is what #AYACSM is all about! Thanks for sharing your wisdom! We will be back April 2nd at 8pm ET! |
| Emily K. Drake @EK_Drake @TCellALLMom Absolutely!! Fortunately not for this tweet chat!! We've run for nearly five years with a budget of..... $0!!! :) #AYACSM |
| Michele Rhee @michelerhee @allieemorse @cancergirl730 YASSSSSS!!!!! #AYACSM https://t.co/OqEpprGotm |
| Cancer Girl @cancergirl730 @allieemorse @michelerhee I will as soon as I can! Might need to see a specialist in that area. #AYACSM |
| Emily K. Drake @EK_Drake @dtayl @CultPerfectMoms @annamecraig @laydeewinx @LeeshLou Absolutely!! It was such an honour to co-create work with her! #AYACSM |
| Judy Fulmer @TCellALLMom #AYACSM |
| Dr. Daniel O. Bral @DrBral Compliment of the Highest Order! #AYACSM |
| Emily K. Drake @EK_Drake @michelerhee @DrBral This is the spirit of #AYACSM chats! |
| Judy Fulmer @TCellALLMom #AYACSM |
| Dani Taylor (She/Her) @danimarietaylor @EK_Drake Too many to name, but I found a lot of support through tumblr and instagram while I was ill. I found hashtags such a great way too find people. #AYACSM |
| Emily K. Drake @EK_Drake @shads_mo I hope that you will come back next month! Same bat time. Same bat channel! First Tuesday of the month at 8pm ET! #ayacsm |
| Michele Rhee @michelerhee @DrBral @EK_Drake @ImermanAngels @JonnyImerman YASSSSS!!!!!!!!! I was an angel...ohhhh...I don't remember how long ago. A LOOOOONG time ago. And I still refer people to @ImermanAngels *all the time* bc it's still amazing. #AYACSM https://t.co/ngstzx7rnJ |
| Emily K. Drake @EK_Drake RT @dtayl: @EK_Drake Too many to name, but I found a lot of support through tumblr and instagram while I was ill. I found hashtags such a great way too find people. #AYACSM |
| Dani Taylor (She/Her) @danimarietaylor @EK_Drake Shifting boundaries. Ethical responsibilities of influence. Acknowledging what privileges make out story more accessible to a wider audience (language, education, race, etc.) #AYACSM |
| Michele Rhee @michelerhee @TCellALLMom @EK_Drake I hate that patients & families can't afford to go to the very meetings & conferences that are supposedly about them. It's so frustrating & nonsensical. #AYACSM https://t.co/9dHBoxjaB8 |
| Judy Fulmer @TCellALLMom #AYACSM |
| Dani Taylor (She/Her) @danimarietaylor @EK_Drake Experience becoming identity. Can you transition out of patienthood and retain a sense of identity and audience. #ayacsm |
| Judy Fulmer @TCellALLMom #AYACSM |
| Emily K. Drake @EK_Drake RT @dtayl: @EK_Drake Shifting boundaries. Ethical responsibilities of influence. Acknowledging what privileges make out story more accessible to a wider audience (language, education, race, etc.) #AYACSM |
#ayacsm content from Twitter.