#ayacsm Transcript
Healthcare social media transcript of the #ayacsm hashtag.
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See #ayacsm Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Emily K. Drake @EK_Drake #AYACSM was co-founded by @ukfann00, @StupidCancer and I! |
| Emily K. Drake @EK_Drake As a reminder, this chat is for advocates involved in the adolescent and young adult cancer societal movement #AYACSM |
| Emily K. Drake @EK_Drake An advocate is anyone who speaks, writes or in other ways actively supports the AYA cancer movement as a whole #AYACSM |
 | Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Welcome to the #ayacsm tweet chat! We're so glad to have you with us this evening! Be sure to tweet along using #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: #AYACSM was co-founded by @ukfann00, @StupidCancer and I! |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: As a reminder, this chat is for advocates involved in the adolescent and young adult cancer societal movement #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: An advocate is anyone who speaks, writes or in other ways actively supports the AYA cancer movement as a whole #AYACSM |
| Emily K. Drake @EK_Drake All are welcome to the #AYACSM (adolescent and young adult cancer societal movement) tweet chat starting now! |
| Emily K. Drake @EK_Drake Tonight we will be talking about money and more specifically, grant money for #AYACSM research! |
| Emily K. Drake @EK_Drake Let's start by doing introductions, giving your name, location and affiliation with the young adult cancer movement #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: All are welcome to the #AYACSM (adolescent and young adult cancer societal movement) tweet chat starting now! |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Tonight we will be talking about money and more specifically, grant money for #AYACSM research! |
 | Dr. Perri Tutelman @DrPerriTutelman RT @EK_Drake: Welcome to the #ayacsm tweet chat! We're so glad to have you with us this evening! Be sure to tweet along using #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman Hi everyone! I'm a PhD student in clinical psychology at @DalScience & @IWKHealthCentre studying pain and psychosocial oncology #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston Hi everyone!! I'm Deana in #LdnOnt! Thyroid cancer lifer, diagnosed in December 2014. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Let's start by doing introductions, giving your name, location and affiliation with the young adult cancer movement #AYACSM |
| Emily K. Drake @EK_Drake @PerriTutelman @DalScience @IWKHealthCentre Welcome, Perri!! Thanks for joining us tonight! #AYACSM |
| Emily K. Drake @EK_Drake @deanaruston Thanks a million for joining us tonight, Deana! So happy to have you!! #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @EK_Drake @DalScience @IWKHealthCentre Wouldn't miss it! #AYACSM |
 | Kimberly Miller, PhD @KimMillerPhD Hi everyone! I'm a researcher at USC in Los Angeles working on young adult cancer survivorship. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: @deanaruston Thanks a million for joining us tonight, Deana! So happy to have you!! #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston @EK_Drake Glad to be here! #AYACSM |
| Emily K. Drake @EK_Drake Emily Drake - #PhD in #Health #student at @DalHealth ; Co-Founder of #AYACSM - #Halifax, #NovaScotia |
| Emily K. Drake @EK_Drake @KimMillerPhD So great to have you hear tonight, Kim!! #AYACSM |
| Emily K. Drake @EK_Drake @dtayl will you be joining us tonight too? #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake So happy chats are back! #AYACSM |
 | Stefanie Thomas, MD @StefThomasMD @EK_Drake Hi all, I’m Stefanie Thomas a pediatric oncologist focusing on AYA Cancer @KeckMedUSC and @ChildrensLA #AYACSM |
| Emily K. Drake @EK_Drake @KimMillerPhD Yes - apologies for the hiatus! I had a death in my family and then was in Austria for MASCC. Thank you all for your patience! #AYACSM |
| Emily K. Drake @EK_Drake @StefThomasMD @KeckMedUSC @ChildrensLA So happy to have you joining us tonight, @StefThomasMD #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake So sorry to hear that Emily; and everyone needs a break to appreciate things, right? #AYACSM |
| Emily K. Drake @EK_Drake @KimMillerPhD Thank you and you are right! #AYACSM |
 | Dani Taylor (She/Her) @danimarietaylor @EK_Drake Sure will! I'm Dani, an #aya survivor, now working at @gildastoronto as their Program and Child & Youth Coordinator! #ayacsm |
| Emily K. Drake @EK_Drake So a colleague suggested this fantastic topic tonight because we have been seeing people tweeting a lot recently about grants, etc. #AYACSM |
| Emily K. Drake @EK_Drake So, I'm going to jump right into the topic! #AYACSM |
| Emily K. Drake @EK_Drake @dtayl @gildastoronto Awesome!! Thanks for coming tonight, Dani!! Happy to have you back! #AYACSM |
| Emily K. Drake @EK_Drake Q1: It is well known that there is little research funding allocated to the #AYACSM population. Lately on #Twitter people have been asking about specific funding calls. Are there any national or international grants specific to AYA or that fund AYA that you'd like to share? |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Q1: Q1: It is well known that there is little research funding allocated to the #AYACSM population. Lately on #Twitter people have been asking about specific funding calls. Are there any national or international grants specific to AYA or that fund AYA that you'd like to share? |
| Kimberly Miller, PhD @KimMillerPhD RT @EK_Drake: Q1: Q1: It is well known that there is little research funding allocated to the #AYACSM population. Lately on #Twitter people have been asking about specific funding calls. Are there any national or international grants specific to AYA or that fund AYA that you'd like to share? |
| Stefanie Thomas, MD @StefThomasMD @EK_Drake @COGorg sponsors the Archie Bleyer Aflac grant yearly specific to AYAs. @AlexsLemonade and @StBaldricks also support AYA research. #AYACSM |
| Emily K. Drake @EK_Drake A1: I'll start by saying that I don't know of any - for student or project based funding. #AYACSM |
| Emily K. Drake @EK_Drake A1: I retract this statement because of @StefThomasMD' mention of COG! I'll rephrase it that I'm not aware of any at the moment that are calling for AYA and specific to psychosocial oncology. Please someone tell me I am wrong! #AYACSM |
| Emily K. Drake @EK_Drake RT @StefThomasMD: @EK_Drake @COGorg sponsors the Archie Bleyer Aflac grant yearly specific to AYAs. @AlexsLemonade and @StBaldricks also support AYA research. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston A1: Not that I know of. I come to #AYACSM & #MAYACC with two hats- as a patient but also as a clinician/ supporter/ resource background having gone to school for counselling so it's a bit of a balance! I think all grants/ research/ treatment etc needs to be patient/ client driven |
| Emily K. Drake @EK_Drake @StefThomasMD @COGorg @AlexsLemonade @StBaldricks Do any of them fund psychosocial research or research that is just YA and not AYA? #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake A1: The US DoD has a call and one of the emphasis areas is AYA cancer. Some deadlines have passed but I believe early career grant is coming up: https://t.co/WtgGf1yOrI #AYACSM |
| Emily K. Drake @EK_Drake RT @deanaruston: A1: A1: Not that I know of. I come to #AYACSM & #MAYACC with two hats- as a patient but also as a clinician/ supporter/ resource background having gone to school for counselling so it's a bit of a balance! I think all grants/ research/ treatment etc needs to be patient/ client driven |
| Emily K. Drake @EK_Drake @deanaruston Great point! I have a specific patient question coming up too! #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake @StefThomasMD @COGorg @AlexsLemonade @StBaldricks I believe many of them do fund psychosocial and supportive care. #AYACSM |
| Emily K. Drake @EK_Drake RT @KimMillerPhD: @EK_Drake A1: @EK_Drake A1: The US DoD has a call and one of the emphasis areas is AYA cancer. Some deadlines have passed but I believe early career grant is coming up: https://t.co/WtgGf1yOrI #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: @deanaruston Great point! I have a specific patient question coming up too! #AYACSM |
 | Billy Paymaster @ukfann00 I have arrived. #AYACSM |
| Dani Taylor (She/Her) @danimarietaylor @EK_Drake @StefThomasMD A1: @pmcancercentre has the Michael Kamin Hart Award to recognize staff or volunteers excellence in serving #aya populations. Nice for folks already deep in the work, but not a huge draw to get attention that may not have been there before. #ayacsm |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake And I believe this is due to the great efforts of @heycriticalmass among other advocates to get this on the agenda! #AYACSM |
| Emily K. Drake @EK_Drake @KimMillerPhD There's also @stevegfund in the #UnitedStates that I need to mention #AYACSM |
| Emily K. Drake @EK_Drake @StefThomasMD @COGorg @AlexsLemonade @StBaldricks @stevegfund Yes! I just tweeted that, but there is a bit of a lag I'm finding tonight on #Twitter! #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston @KimMillerPhD @EK_Drake @StefThomasMD @COGorg @AlexsLemonade @StBaldricks Fantastic- as psychosocial and supportive care is (finally) getting the recognition it deserves. AYAs (and all patients) experience more than just the physical side-effects of cancer and its treatments #AYACSM |
| Emily K. Drake @EK_Drake @KimMillerPhD @StefThomasMD @COGorg @AlexsLemonade @StBaldricks That's fantastic! I also need to add to my comment earlier that much of my knowledge is limited to what's available in Canada and comes across my "desk"/I find! #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake @StefThomasMD @COGorg @AlexsLemonade @StBaldricks @stevegfund I'm getting the lag too! Anyway, whatever one says about research funding can always be repeated. It's how we survive!!! #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake @StefThomasMD @COGorg @AlexsLemonade @StBaldricks Trust me, us too with the US and our desks, lol. #AYACSM |
| Emily K. Drake @EK_Drake @KimMillerPhD @StefThomasMD @COGorg @AlexsLemonade @StBaldricks Fortunately, there are funders like @BHCRI and @CC_ARCC who have recently funded #AYACancer research that I am a part of! @CIHR_IRSC has also funded colleagues who are #AYACancer researchers #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman Yes! A big thanks to @BHCRI for funding our work on #AYACancer with @UrquhartRobin and @EK_Drake #AYACSM |
| Billy Paymaster @ukfann00 I'm also distracted with the fact this ad is targeting me on the #AYACSM thread. #HennythingsPossible https://t.co/X3lfC2vk0X |
| Emily K. Drake @EK_Drake @KimMillerPhD @StefThomasMD @COGorg @AlexsLemonade @StBaldricks @BHCRI @CC_ARCC @CIHR_IRSC My #AYACSM dissertation work is currently funded by @DalHealth, @DalGradStudies, @nsgov and Dalhousie's Department of Surgery. #AYACSM |
| Emily K. Drake @EK_Drake I would agree with that! #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: Yes! A big thanks to @BHCRI for funding our work on #AYACancer with @UrquhartRobin and @EK_Drake #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @StefThomasMD @EK_Drake @COGorg @AlexsLemonade @StBaldricks @NCICancerCtrl @AmericanCancer @ASCO @ASPHO_hq Yes, and there are some specific #YACancer Program Announcements (PAs) out now. If you search the NIH RePORT you'll find them! #AYACSM |
| Emily K. Drake @EK_Drake @ukfann00 WELCOME!!! #AYACSM |
| Stefanie Thomas, MD @StefThomasMD @EK_Drake I keep forgetting to use the #AYACSM tag! Twitter fail. |
| Emily K. Drake @EK_Drake RT @dtayl: @EK_Drake @StefThomasMD A1: @EK_Drake @StefThomasMD A1: @pmcancercentre has the Michael Kamin Hart Award to recognize staff or volunteers excellence in serving #aya populations. Nice for folks already deep in the work, but not a huge draw to get attention that may not have been there before. #ayacsm |
| Emily K. Drake @EK_Drake @dtayl @StefThomasMD @pmcancercentre Yes - that has come through my inbox a few times! That's great!! #AYACSM |
| Emily K. Drake @EK_Drake RT @deanaruston: @KimMillerPhD @EK_Drake @StefThomasMD @COGorg @AlexsLemonade @StBaldricks Fantastic- as psychosocial and supportive care is (finally) getting the recognition it deserves. AYAs (and all patients) experience more than just the physical side-effects of cancer and its treatments #AYACSM |
| Emily K. Drake @EK_Drake RT @KimMillerPhD: @StefThomasMD @EK_Drake @COGorg @AlexsLemonade @StBaldricks @NCICancerCtrl @AmericanCancer @ASCO @ASPHO_hq Yes, and there are some specific #YACancer Program Announcements (PAs) out now. If you search the NIH RePORT you'll find them! #AYACSM |
| Emily K. Drake @EK_Drake Q2: How can you engage patients in the writing of grant proposals? #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Q2: Q2: How can you engage patients in the writing of grant proposals? #AYACSM |
| Emily K. Drake @EK_Drake @StefThomasMD it's okay! I said I knew of no grants and keep thinking of stuff I know! LOL!! It's been a long research day #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD RT @EK_Drake: Q2: Q2: How can you engage patients in the writing of grant proposals? #AYACSM |
| Stefanie Thomas, MD @StefThomasMD @EK_Drake A2: I think this is where patient advisory boards are key. And many #cancerpatients and #cancersurvivors want to be involved. It’s just about building the space to include them. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston A2: Well as I always say, if it's about us- don't do it without us. Include patients/ clients/ family members/ friends/ support system etc from start to finish. Before writing the grant, to develop desired programming etc. #AYACSM |
| Emily K. Drake @EK_Drake @StefThomasMD This is a great idea! What about when you are a small program or one person just starting out? #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @StefThomasMD: @EK_Drake A2: @EK_Drake A2: I think this is where patient advisory boards are key. And many #cancerpatients and #cancersurvivors want to be involved. It’s just about building the space to include them. #AYACSM |
| Stefanie Thomas, MD @StefThomasMD @EK_Drake A2 (2): I also think recognizing and acknowledging the non-survival outcomes and differences in this population is key. The patients know best what’s important to them. Allowing input into the questions is so important. #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @EK_Drake We have had patient partners involved in guiding the development of grant protocols - key to engage from the very beginning and to be open to different feedback and ideas #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @StefThomasMD @EK_Drake A2: Agreed. Also I think it's important to be very clear at the outset what the expectations, compensation (etc) are, from both sides, to make it meaningful. I've seen it done poorly, seen it done great. #AYACSM |
| Emily K. Drake @EK_Drake @deanaruston What is the best way to start this? #AYACSM |
| Dani Taylor (She/Her) @danimarietaylor @StefThomasMD @EK_Drake And teach #cancerpatients how to amplify their voices through tools like patient advisory boards. Especially patients that also hold identities in racialized and queer communities. Education sessions are often held around side-effects, why not advocacy #ayacsm |
| Emily K. Drake @EK_Drake RT @StefThomasMD: @EK_Drake A2 (2): @EK_Drake A2 (2): I also think recognizing and acknowledging the non-survival outcomes and differences in this population is key. The patients know best what’s important to them. Allowing input into the questions is so important. #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD RT @PerriTutelman: @EK_Drake We have had patient partners involved in guiding the development of grant protocols - key to engage from the very beginning and to be open to different feedback and ideas #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @StefThomasMD: @EK_Drake A2 (2): @EK_Drake A2 (2): I also think recognizing and acknowledging the non-survival outcomes and differences in this population is key. The patients know best what’s important to them. Allowing input into the questions is so important. #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @EK_Drake We have had patient partners involved in guiding the development of grant protocols - key to engage from the very beginning and to be open to different feedback and ideas #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @PerriTutelman: @EK_Drake We have had patient partners involved in guiding the development of grant protocols - key to engage from the very beginning and to be open to different feedback and ideas #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @KimMillerPhD: @StefThomasMD @EK_Drake A2: @StefThomasMD @EK_Drake A2: Agreed. Also I think it's important to be very clear at the outset what the expectations, compensation (etc) are, from both sides, to make it meaningful. I've seen it done poorly, seen it done great. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @dtayl: @StefThomasMD @EK_Drake And teach #cancerpatients how to amplify their voices through tools like patient advisory boards. Especially patients that also hold identities in racialized and queer communities. Education sessions are often held around side-effects, why not advocacy #ayacsm |
| Dr. Perri Tutelman @DrPerriTutelman @KimMillerPhD @StefThomasMD @EK_Drake Absolutely. Compensation should be a given, when possible. The time and expense involved in contributing to research can be prohibitive for some. #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @StefThomasMD @EK_Drake Yes to this! Asking the right questions + studying meaningful outcomes = better science. #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman RT @KimMillerPhD: @StefThomasMD @EK_Drake Yes to this! Asking the right questions + studying meaningful outcomes = better science. #AYACSM |
| Emily K. Drake @EK_Drake Relates to a Q that came up in a course I took this year - what about when the grant is rejected? We know many are - how do we handle that as researchers? How do you communicate that to patients who worked hard along side you? I know my thoughts but interested in yours! #ayacsm |
| Emily K. Drake @EK_Drake RT @dtayl: @StefThomasMD @EK_Drake And teach #cancerpatients how to amplify their voices through tools like patient advisory boards. Especially patients that also hold identities in racialized and queer communities. Education sessions are often held around side-effects, why not advocacy #ayacsm |
| Deana Ruston 🇨🇦 ♿️ @deanaruston @EK_Drake Connect with patients/ clients & see who'd like to be involved. Get to know your patients. Some of them want to turn this experience into a positive and give back to others who make be experiencing similar. They may want to help start up an AYA program for example #AYACSM |
| Emily K. Drake @EK_Drake @dtayl @StefThomasMD Agree!!! #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @KimMillerPhD @StefThomasMD @EK_Drake Absolutely. Compensation should be a given, when possible. The time and expense involved in contributing to research can be prohibitive for some. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @PerriTutelman: @KimMillerPhD @StefThomasMD @EK_Drake Absolutely. Compensation should be a given, when possible. The time and expense involved in contributing to research can be prohibitive for some. #AYACSM |
| Emily K. Drake @EK_Drake RT @KimMillerPhD: @StefThomasMD @EK_Drake Yes to this! Asking the right questions + studying meaningful outcomes = better science. #AYACSM |
| Stefanie Thomas, MD @StefThomasMD @EK_Drake Great question! It’s hard, but there are a lot of organization in existence that can be partnered with.m. Meeting face to face with leadership. Explaining reasoning for wanting involvement. It can go far. Or a social media call through @StupidCancer #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @PerriTutelman @StefThomasMD @EK_Drake Right? And yet, not everyone takes this approach. It's a lot to ask a patient to volunteer their time, especially younger ones still in the workforce and with other commitments. #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @dtayl @StefThomasMD @EK_Drake Excellent point! Training and evaluation of patient engagement for both researchers and patients is so important. This area is in its infancy. @PatientsCanada has some great resources https://t.co/4KyzBdkzpd #AYACSM |
| Emily K. Drake @EK_Drake @deanaruston I'm asking another follow-up question because I wonder this and I get asked this a lot - what about for researchers who aren't also clinicians? So, they don't have patients per se. What would be good ways to find interested people? #ayacsm |
| Emily K. Drake @EK_Drake RT @StefThomasMD: @EK_Drake Great question! It’s hard, but there are a lot of organization in existence that can be partnered with.m. Meeting face to face with leadership. Explaining reasoning for wanting involvement. It can go far. Or a social media call through @StupidCancer #AYACSM |
| Dani Taylor (She/Her) @danimarietaylor @EK_Drake Honesty from the outside, even when it threatens to damper enthusiasm. #ayacsm |
| Dr. Perri Tutelman @DrPerriTutelman @StefThomasMD @EK_Drake @StupidCancer Yes! We've also engaged individuals by reaching out to clinical teams who may have interested patients #AYACSM |
| Emily K. Drake @EK_Drake RT @KimMillerPhD: @PerriTutelman @StefThomasMD @EK_Drake Right? And yet, not everyone takes this approach. It's a lot to ask a patient to volunteer their time, especially younger ones still in the workforce and with other commitments. #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @dtayl @StefThomasMD @EK_Drake Excellent point! Training and evaluation of patient engagement for both researchers and patients is so important. This area is in its infancy. @PatientsCanada has some great resources https://t.co/4KyzBdkzpd #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: @deanaruston I'm asking another follow-up question because I wonder this and I get asked this a lot - what about for researchers who aren't also clinicians? So, they don't have patients per se. What would be good ways to find interested people? #ayacsm |
| Emily K. Drake @EK_Drake RT @dtayl: @EK_Drake Honesty from the outside, even when it threatens to damper enthusiasm. #ayacsm |
| Emily K. Drake @EK_Drake @dtayl My thoughts exactly. The funding landscape is what it is and there are a lot of great studies that don't get funded. Also, communicating why the studies can't be conducted without funds is important too I think #ayacsm |
| Deana Ruston 🇨🇦 ♿️ @deanaruston @EK_Drake Connect with folks in the field that are "front-line" providers/ oncology/ social work etc and they can connect patient/ client with researcher as a "bridge" per se. #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @StefThomasMD @EK_Drake @StupidCancer Yes! We've also engaged individuals by reaching out to clinical teams who may have interested patients #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake Agree with Dani. Manage expectations because most grants are funded and almost none of the first try these days in the US at least. Let everyone know it's a marathon not a sprint, but you're committed to trying. #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @deanaruston @EK_Drake Yes! Through your clinical colleagues / collaborators #AYACSM |
| Emily K. Drake @EK_Drake RT @deanaruston: @EK_Drake Connect with folks in the field that are "front-line" providers/ oncology/ social work etc and they can connect patient/ client with researcher as a "bridge" per se. #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake NOT funded that should be. WISHFUL THINKING. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @PerriTutelman: @deanaruston @EK_Drake Yes! Through your clinical colleagues / collaborators #AYACSM |
| Emily K. Drake @EK_Drake @KimMillerPhD Do you mean most grants aren't funded? If not, I'm moving to the US LOL JJ! #ayacsm |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @deanaruston @EK_Drake Yes! Through your clinical colleagues / collaborators #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @KimMillerPhD @StefThomasMD @EK_Drake Completely agree. @DrCChambers has set an amazing precedent for meaningful patient engagement in our lab #AYACSM |
| Emily K. Drake @EK_Drake @KimMillerPhD I was like: #AYACSM https://t.co/io0gTlsfij |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @KimMillerPhD @StefThomasMD @EK_Drake Completely agree. @DrCChambers has set an amazing precedent for meaningful patient engagement in our lab #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake YES that's what I meant. Paylines are shrunken. Stay in Canada trust me!! I'm joining you! #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @KimMillerPhD @EK_Drake Yes! I think a big part of meaningful patient engagement is building long term relationships - not seeking input on a whim #AYACSM |
| Emily K. Drake @EK_Drake We can always use more brilliant minds! #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @KimMillerPhD @EK_Drake Yes! I think a big part of meaningful patient engagement is building long term relationships - not seeking input on a whim #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake Not so brilliant; but, you sure do have a nice and committed #YACancer research community there! #AYACSM |
| Emily K. Drake @EK_Drake @PerriTutelman @KimMillerPhD I'd say this about what we see on #SocialMedia too! Patient communities aren't just for you to dip in to when you need something. You should be offering back #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @KimMillerPhD @EK_Drake Sounds like you have to come to #Halifax for a research visit ;) #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @PerriTutelman @EK_Drake @dtayl @StefThomasMD @PatientsCanada That's a great resource! #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @PerriTutelman: @KimMillerPhD @EK_Drake Yes! I think a big part of meaningful patient engagement is building long term relationships - not seeking input on a whim #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: @PerriTutelman @KimMillerPhD I'd say this about what we see on #SocialMedia too! Patient communities aren't just for you to dip in to when you need something. You should be offering back #AYACSM |
| Emily K. Drake @EK_Drake @KimMillerPhD We do! I'm fortunate to be involved in a project with @benderjack that is just starting up and we will be sharing more soon with the #AYACSM community soon! |
| Emily K. Drake @EK_Drake @PerriTutelman @KimMillerPhD Agreed!! I mean @PerriTutelman and I are here! #ayacsm |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake @PerriTutelman Yes, in my master's public health training we called this "helicopter research" with regards to communities--fly in fly out--as in, don't be like that! #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @KimMillerPhD: @EK_Drake @PerriTutelman Yes, in my master's public health training we called this "helicopter research" with regards to communities--fly in fly out--as in, don't be like that! #AYACSM |
| Emily K. Drake @EK_Drake @KimMillerPhD @PerriTutelman Oh that's such a brilliant term that I am totally stealing for a presentation! THANK YOU! It's so true. Offer resources, share expertise, connect, etc. #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake @PerriTutelman Sold! Sign me up. I need to see some Canadian models of #YA #cancer #survivorship #care stat! #AYACSM |
| Emily K. Drake @EK_Drake @ThanksCancer @dtayl Unfortunately a lot of promising research does not get funded. However, most will do exactly what you say and keep trying - repackaging, trying new funders, redeveloping, etc. Persistence is important! Also, nice to meet you! Glad you joined in!! #ayacsm |
| Emily K. Drake @EK_Drake @KimMillerPhD @PerriTutelman #Montreal has a fantastic model at the Jewish General Hospital. I used to be the Director of their YA cancer support program at @Hope_Cope #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake @ThanksCancer @dtayl I learned a Korean proverb recently: keep digging your well. That's what we say in my lab; we'll hit water eventually if we focus and keep at it. #AYACSM |
| Emily K. Drake @EK_Drake @KimMillerPhD @benderjack One less "soon"! Sorry - been a long research day! :) It's almost 10 at night here #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman RT @KimMillerPhD: @EK_Drake @ThanksCancer @dtayl I learned a Korean proverb recently: @EK_Drake @ThanksCancer @dtayl I learned a Korean proverb recently: keep digging your well. That's what we say in my lab; we'll hit water eventually if we focus and keep at it. #AYACSM |
| Emily K. Drake @EK_Drake #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake @PerriTutelman @Hope_Cope Awesome! And I love #Montreal. #Poutine and research! #AYACSM |
| Emily K. Drake @EK_Drake RT @KimMillerPhD: @EK_Drake @ThanksCancer @dtayl I learned a Korean proverb recently: @EK_Drake @ThanksCancer @dtayl I learned a Korean proverb recently: keep digging your well. That's what we say in my lab; we'll hit water eventually if we focus and keep at it. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston @EK_Drake @KimMillerPhD @benderjack You're just excited to share with us- when the time is right! Haha! #Soon 😂🤪 #AYACSM |
| Emily K. Drake @EK_Drake RT @KimMillerPhD: @EK_Drake @PerriTutelman @Hope_Cope Awesome! And I love #Montreal. #Poutine and research! #AYACSM |
| Emily K. Drake @EK_Drake @deanaruston @KimMillerPhD @benderjack Soon I will share soon! Yes - I am excited! It is a really fantastic project that she is leading. #Soon #AYACSM |
| Emily K. Drake @EK_Drake WELL there's good and bad news. The bad news is that we only got through two questions tonight! The good news is that now I don't have to create a new script for next month! Part 2 of this chat will be coming now on September 4th at 8pm ET!! #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: WELL there's good and bad news. The bad news is that we only got through two questions tonight! The good news is that now I don't have to create a new script for next month! Part 2 of this chat will be coming now on September 4th at 8pm ET!! #AYACSM |
| Kimberly Miller, PhD @KimMillerPhD @EK_Drake Excellent! Thanks Emily and all for a GREAT chat. Discussing funding is so important. See you next month! #AYACSM |
| Dani Taylor (She/Her) @danimarietaylor @EK_Drake Thanks again @EK_Drake and all #AYACSM contributors for all you do for my community. Love to see where the seeds of progress are planted. |
| Deana Ruston 🇨🇦 ♿️ @deanaruston @EK_Drake See everyone soon! 😂🤪 #AYACSM |
| Emily K. Drake @EK_Drake Thank you everyone for joining us again! It was so nice connecting with all of you. Take care and let me know if you have any suggestions for future chats! #AYACSM |
| Emily K. Drake @EK_Drake Agreed!! Wouldn't be the same without your contribution! Thank you for coming!! #ayacsm |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Thank you everyone for joining us again! It was so nice connecting with all of you. Take care and let me know if you have any suggestions for future chats! #AYACSM |
| Emily K. Drake @EK_Drake Thank you for your contributions too, Dani! Please keep us posted with what you are up to. You are such an important part of our community #AYACSM |
| Emily K. Drake @EK_Drake @deanaruston Thanks for coming, girl!! #AYACSM https://t.co/auz7fvMbIO |
| Deana Ruston 🇨🇦 ♿️ @deanaruston @EK_Drake #AYACSM https://t.co/YBKF5puvvk |
| Kimberly Miller, PhD @KimMillerPhD @ThanksCancer @EK_Drake @dtayl Thank you. We're keeping at it. :) #AYACSM |
| Emily K. Drake @EK_Drake .@ukfann00 - I’m late and why do you keep apologizing? Me - I’m #Canadian #AYACSM https://t.co/tep99TOksZ |
| Billy Paymaster @ukfann00 RT @EK_Drake: .@ukfann00 - I’m late and why do you keep apologizing? Me - I’m #Canadian #AYACSM https://t.co/tep99TOksZ |
| Emily K. Drake @EK_Drake @StefThomasMD See you then!! #AYACSM |
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