#ayacsm Transcript
Healthcare social media transcript of the #ayacsm hashtag.
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See #ayacsm Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Emily K. Drake @EK_Drake Welcome to the #ayacsm tweet chat! We’re so glad to have you with us this evening!!!! Be sure to tweet along using #AYACSM https://t.co/9zTziYPnhO |
| Emily K. Drake @EK_Drake #AYACSM was co-founded by @EK_Drake, @UKFANN00, and @stupidcancer! |
 | Anti-Cancer Club @anticancerclub "Gratitude Life, is not easy Yet stronger we emerge..."https://t.co/8fRpfjOwHW #NeverQuit @neverquitcp #Gratitude #Hope #ayacsm https://t.co/VIPU9ynhzZ |
| Emily K. Drake @EK_Drake As a reminder, this chat is for advocates involved in the adolescent and young adult cancer societal movement #AYACSM #YACancer #HCSMCA #AYACancer #TYACancer #YAPChat #MAYACC #BTSM #BCSM #LCSM |
| Emily K. Drake @EK_Drake An #advocate is anyone who speaks, writes or in other ways actively supports the AYA cancer movement as a whole #AYACSM |
| Emily K. Drake @EK_Drake All are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat starting now! #BCSM #BTSM #LCSM #GYNCSM #MAYACC #Cancer #HCSMCA #HCSM #Health #YAPChat #AYACancer #YACancer |
 | Billy Paymaster @ukfann00 RT @EK_Drake: #AYACSM was co-founded by @EK_Drake, @UKFANN00, and @stupidcancer! |
 | Dr. Perri Tutelman @DrPerriTutelman RT @EK_Drake: All are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat starting now! #BCSM #BTSM #LCSM #GYNCSM #MAYACC #Cancer #HCSMCA #HCSM #Health #YAPChat #AYACancer #YACancer |
| Emily K. Drake @EK_Drake Tonight, we will be talking about what motivates you to #blog or not blog about #healthcare The topic comes to us via #HCSMCA #ayacsm |
| Emily K. Drake @EK_Drake Let’s start by doing introductions, giving your name, location, and affiliation with the young adult cancer advocacy. #AYACSM |
| Emily K. Drake @EK_Drake @L8Effects so happy to have you join in tonight! #AYACSM |
| Billy Paymaster @ukfann00 Billy Paymaster COO/Director of Marketing & Communications for @Hope4YAWC & Co-Founder of #AYACSM, San Diego, CA |
 | Team Shan (Lorna Larsen) @TeamShan Hi @EK_Drake Lorna here President @TeamShan breast cancer awareness for young women! Woodstock, ON tweeting in from Brownsville, Texas #ayacsm |
| Emily K. Drake @EK_Drake @ukfann00 @Hope4YAWC Welcome, Big B!! Glad you can join us tonight!! #AYACSM |
| Billy Paymaster @ukfann00 @EK_Drake @Hope4YAWC I made it on time for once! #AYACSM |
| Emily K. Drake @EK_Drake I'm Emily Drake - co-founder of #ayacsm; #PhD in #Health student @DalHealth; #consultant; #HealthPromotionSpecialist - located in #Halifax, #NovaScotia |
 | Mike Craycraft @pharmacistmike @EK_Drake I'm a testicular cancer survivor and founder of the Testicular Cancer Society @tcsociety in Cincinnati, OH-IO. #AYACSM |
| Emily K. Drake @EK_Drake RT @TeamShan: Hi @EK_Drake Lorna here President @TeamShan breast cancer awareness for young women! Woodstock, ON tweeting in from Brownsville, Texas #ayacsm |
| Dr. Perri Tutelman @DrPerriTutelman Hello! I'm Perri, a PhD student in Clinical Psych in Halifax, NS, Canada. Currently studying ways to support AYAs & their healthcare providers #AYACSM |
| Emily K. Drake @EK_Drake @TeamShan Awesome, Lorna!! So happy that you can join us tonight!! Hope you are having some great food like we did during LYAA in 2011 #AYACSM |
| Emily K. Drake @EK_Drake @ukfann00 @Hope4YAWC You did!!! #AYACSM |
 | InvisiYouth Charity @InvisiYouth RT @EK_Drake: As a reminder, this chat is for advocates involved in the adolescent and young adult cancer societal movement #AYACSM #YACancer #HCSMCA #AYACancer #TYACancer #YAPChat #MAYACC #BTSM #BCSM #LCSM |
| Emily K. Drake @EK_Drake @pharmacistmike @TCSociety Welcome, Mike!! Glad you can join us tonight!! #AYACSM |
| Emily K. Drake @EK_Drake @PerriTutelman Welcome, Perri!! #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan @EK_Drake Enjoying some gorgeous weather and the ocean :) Glad to be online tonight :) #ayacsm |
| Emily K. Drake @EK_Drake Oh, I didn't know you are affiliated w/ @RutledgeFndn ! #AYACSM https://t.co/ag8bspFSG0 |
| Emily K. Drake @EK_Drake @TeamShan We are delighted to have you!! #AYACSM |
 | Dee Sparacio @womenofteal Forgot the #ayacsm Dee here #gyncsm co-founder and #ovca survivor and research advocate |
| Emily K. Drake @EK_Drake Q1: Do you #blog about healthcare? Why or why not? #AYACSM |
| Emily K. Drake @EK_Drake Thanks for joining us tonight!! Don't forget to add #AYACSM to the end of your tweets! :) https://t.co/cSsjjbZmsy |
| Emily K. Drake @EK_Drake RT @womenofteal: Forgot the #ayacsm Dee here #gyncsm co-founder and #ovca survivor and research advocate |
| Dr. Perri Tutelman @DrPerriTutelman I have written guest blog posts in the past! I think its a great way to disseminate research findings in an easy to understand way to a large audience #AYACSM |
| Mike Craycraft @pharmacistmike @EK_Drake A1: Yes, to raise awareness about testis cancer and AYAO Survivorship but not as much as I would like or that is needed due to the political climate #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: I have written guest blog posts in the past! I think its a great way to disseminate research findings in an easy to understand way to a large audience #AYACSM |
| Emily K. Drake @EK_Drake @PerriTutelman Agreed - it's a great way to get #research into the hands of those who can use it! #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan @EK_Drake I blog about breast cancer awareness & education for young women, self care, @TeamShan messaging, research findings, impact & grief #ayacsm |
| Emily K. Drake @EK_Drake I've blogged for @huffington for the past five years on #ayacsm and #healthcare #innovation https://t.co/psCiyTQNBw |
| Emily K. Drake @EK_Drake RT @pharmacistmike: @EK_Drake A1: @EK_Drake A1: Yes, to raise awareness about testis cancer and AYAO Survivorship but not as much as I would like or that is needed due to the political climate #AYACSM |
| Dee Sparacio @womenofteal A1 Yes, I blog about my journey with ovarian cancer as well as ovarian cancer research and events etc in NJ #ayacsm |
| Emily K. Drake @EK_Drake @pharmacistmike Great! Is there any you'd like to share with us tonight? #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan @EK_Drake I blog to share, reach out #MakeADifference #ayacsm |
| Emily K. Drake @EK_Drake RT @TeamShan: @EK_Drake I blog about breast cancer awareness & education for young women, self care, @TeamShan messaging, research findings, impact & grief #ayacsm |
| Emily K. Drake @EK_Drake Feel free to link in copies of #blogs you've written in the area! #ayacsm |
| Team Shan (Lorna Larsen) @TeamShan RT @PerriTutelman: I have written guest blog posts in the past! I think its a great way to disseminate research findings in an easy to understand way to a large audience #AYACSM |
| Billy Paymaster @ukfann00 A1: No. Do I want to, yes. Do I have the time to dedicate to the relentless back-and-forth conversation that I feel is needed to educate others in the U.S., no. So I stay silent for the most part, regrettably. #AYACSM |
| Emily K. Drake @EK_Drake RT @womenofteal: A1 Yes, I blog about my journey with ovarian cancer as well as ovarian cancer research and events etc in NJ #ayacsm |
| Emily K. Drake @EK_Drake @womenofteal Fantastic! Where can people find your work? #AYACSM |
| Billy Paymaster @ukfann00 RT @pharmacistmike: @EK_Drake A1: @EK_Drake A1: Yes, to raise awareness about testis cancer and AYAO Survivorship but not as much as I would like or that is needed due to the political climate #AYACSM |
| Emily K. Drake @EK_Drake RT @TeamShan: @EK_Drake I blog to share, reach out #MakeADifference #ayacsm |
| Emily K. Drake @EK_Drake @ukfann00 You communicate your knowledge in other ways though through @Hope4YAWC and #Twitter #AYACSM |
| Dee Sparacio @womenofteal @EK_Drake @womenofteal My personal blog is https://t.co/xVJiGAMvK9 and the blog for #gyncsm is https://t.co/5H9knoU2YH #ayacsm |
| Billy Paymaster @ukfann00 @pharmacistmike @EK_Drake Agreed on your last part. The political climate makes me bite-my-tongue much too often on this issue. #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan @pharmacistmike @EK_Drake Hi Mike...please elaborate on 'political climate' #ayacsm |
| Emily K. Drake @EK_Drake Great! Where is the best place for people to find your work? #ayacsm https://t.co/UkdAUqHMPy |
| Billy Paymaster @ukfann00 @EK_Drake @Hope4YAWC I try. I want to fight the fight, but I just can't dedicate the time right now to what seems to be a never-ending conversation in this country. It's beyond frustrating.#AYACSM |
| Dee Sparacio @womenofteal @ukfann00 I find less back and forth on blog posts than on Twitter. #AYACSM |
| Mike Craycraft @pharmacistmike Nope. But, unfortunately, there are issues in the US that distract from what needs to be done for AYAs because the topics get drowned out in political debates without looking at published data. #AYACSM https://t.co/BhC32vZ166 |
| Emily K. Drake @EK_Drake RT @womenofteal: @EK_Drake @womenofteal My personal blog is https://t.co/xVJiGAMvK9 and the blog for #gyncsm is https://t.co/5H9knoU2YH #ayacsm |
| Emily K. Drake @EK_Drake @ukfann00 @pharmacistmike I think this is something we should get into FOR SURE in the next few questions - the platform and what comes with that #AYACSM |
| Billy Paymaster @ukfann00 RT @pharmacistmike: Nope. But, unfortunately, there are issues in the US that distract from what needs to be done for AYAs because the topics get drowned out in political debates without looking at published data. #AYACSM https://t.co/BhC32vZ166 |
| Emily K. Drake @EK_Drake RT @ukfann00: @EK_Drake @Hope4YAWC I try. I want to fight the fight, but I just can't dedicate the time right now to what seems to be a never-ending conversation in this country. It's beyond frustrating.#AYACSM |
| Emily K. Drake @EK_Drake @womenofteal @ukfann00 AGREED!! Leaving comments on blogs is a bit of a thing of the past I find. #AYACSM |
| Emily K. Drake @EK_Drake RT @pharmacistmike: Nope. But, unfortunately, there are issues in the US that distract from what needs to be done for AYAs because the topics get drowned out in political debates without looking at published data. #AYACSM https://t.co/BhC32vZ166 |
| Team Shan (Lorna Larsen) @TeamShan @EK_Drake https://t.co/gmIaNViOgp #ayacsm |
| Mike Craycraft @pharmacistmike It's not necessarily on the blog posts but when trying to disseminate them on social media so that they are read is when the vitriol begins. #AYACSM https://t.co/CGEkS5zFOj |
| Emily K. Drake @EK_Drake @pharmacistmike Do you find the larger debate over healthcare is taking away from smaller public health movements like #AYACSM? |
| Billy Paymaster @ukfann00 @womenofteal I feel that those that need to be educated the most aren't reading the right blogs in most cases. If you want to change peoples mind, you need to meet them at the point of attack to get their attention & to sway their thought process. #AYACSM |
| Emily K. Drake @EK_Drake RT @TeamShan: @EK_Drake https://t.co/gmIaNViOgp #ayacsm |
| Team Shan (Lorna Larsen) @TeamShan @pharmacistmike @EK_Drake Thanks Mike #ayacsm |
| Emily K. Drake @EK_Drake Fantastic! #AYACSM https://t.co/RFrMf9UBFX |
| Emily K. Drake @EK_Drake Q2: What challenges (or potential challenges) do you face with generating blog content? #AYACSM |
| Mike Craycraft @pharmacistmike @TeamShan @EK_Drake Data is showing that the ACA is not the panacea that many think, when it comes to AYA cancer. At least with multiple studies that have ben published. It is a step in the right direction but more needs to be done. #AYACSM |
| Emily K. Drake @EK_Drake For me right now it is essentially time. My blogs are science-based and it can take several hours to produce content #AYACSM https://t.co/8QO07mRD2b |
| Dee Sparacio @womenofteal @EK_Drake A2 my writing ebbs and flows. I wrote a post a day during Sept #ovca Awareness month. Then it was 3 weeks till the next 1 #ayacsm |
| Emily K. Drake @EK_Drake RT @pharmacistmike: @TeamShan @EK_Drake Data is showing that the ACA is not the panacea that many think, when it comes to AYA cancer. At least with multiple studies that have ben published. It is a step in the right direction but more needs to be done. #AYACSM |
| Emily K. Drake @EK_Drake RT @womenofteal: @EK_Drake A2 my writing ebbs and flows. I wrote a post a day during Sept #ovca Awareness month. Then it was 3 weeks till the next 1 #ayacsm |
| Emily K. Drake @EK_Drake RT @ukfann00: @womenofteal I feel that those that need to be educated the most aren't reading the right blogs in most cases. If you want to change peoples mind, you need to meet them at the point of attack to get their attention & to sway their thought process. #AYACSM |
| Mike Craycraft @pharmacistmike Yes. For example, mandating coverage for cancer patients to get treated as "in-network" at any NCI-designated cancer center gets lost in the repeal/keep...you're an idiot debate. #AYACSM https://t.co/jCCfRtXcFL |
| Emily K. Drake @EK_Drake I guess it is who your blog is intended for - politics, patients, caregivers, etc. @ukfann00 @womenofteal #ayacsm |
| Emily K. Drake @EK_Drake What does this normally look like for both of you? #AYACSM https://t.co/gIeaJXR5OB |
| Team Shan (Lorna Larsen) @TeamShan @ukfann00 @EK_Drake @Hope4YAWC After 10 years of trying to #makeadifference I am disenchanted with the lack of real change across North America! Still late diagnosis, still limitations & delays in treatment & support, still disinterest #ayacsm |
| Billy Paymaster @ukfann00 A2: Finding the words to reach those that need educated the most while being able to continue a possible lengthy conversation around the content that is educational & not just a back-and-forth sparring match. #AYACSM |
| Mike Craycraft @pharmacistmike @EK_Drake A2: The same for me. I can blog about my anecdotal experiences but when tying them in with research it takes much longer to produce. #AYACSM |
| Emily K. Drake @EK_Drake RT @TeamShan: @ukfann00 @EK_Drake @Hope4YAWC After 10 years of trying to #makeadifference I am disenchanted with the lack of real change across North America! Still late diagnosis, still limitations & delays in treatment & support, still disinterest #ayacsm |
| Dee Sparacio @womenofteal @EK_Drake Time is an issue. I read journal articles and then try to explain results in simpler terms. So it takes time. #ayacsm |
| Emily K. Drake @EK_Drake @TeamShan @ukfann00 @Hope4YAWC I agree. I'll be 10 years next year. It seemed for awhile there were more programs etc., but I feel like resources are now dwindling. Does anyone else feel this way? #AYACSM |
| Emily K. Drake @EK_Drake RT @ukfann00: A2: A2: Finding the words to reach those that need educated the most while being able to continue a possible lengthy conversation around the content that is educational & not just a back-and-forth sparring match. #AYACSM |
| Emily K. Drake @EK_Drake @pharmacistmike Exactly. It can be sometimes 10-20+ hours. #AYACSM |
| Emily K. Drake @EK_Drake RT @womenofteal: @EK_Drake Time is an issue. I read journal articles and then try to explain results in simpler terms. So it takes time. #ayacsm |
| Team Shan (Lorna Larsen) @TeamShan @ukfann00 @EK_Drake @Hope4YAWC Happy with what organizations & professionals have been able to accomplish, but like @pharmacistmike says more needs to be done #ayacsm |
| Emily K. Drake @EK_Drake @womenofteal same - that's what @pharmacistmike was saying too. There's a lot of work behind science-based articles. #ayacsm |
| Billy Paymaster @ukfann00 @L8Effects @EK_Drake @womenofteal Very true. I think at this point my voice is known to those who want to hear it on the #AYACSM-level, it is those on the outside that need a deeper conversation. In the United States, politics have a huge influence on decision-making & voting when it comes to healthcare. |
| Emily K. Drake @EK_Drake RT @TeamShan: @ukfann00 @EK_Drake @Hope4YAWC Happy with what organizations & professionals have been able to accomplish, but like @pharmacistmike says more needs to be done #ayacsm |
| Mike Craycraft @pharmacistmike @EK_Drake @TeamShan @ukfann00 @Hope4YAWC Our site and forum traffic is up so I think content is being consumed but not necessarily longer blog format. #AYACSM |
| Emily K. Drake @EK_Drake RT @ukfann00: @L8Effects @EK_Drake @womenofteal Very true. I think at this point my voice is known to those who want to hear it on the #AYACSM-level, it is those on the outside that need a deeper conversation. In the United States, politics have a huge influence on decision-making & voting when it comes to healthcare. |
| Emily K. Drake @EK_Drake @ukfann00 @L8Effects @womenofteal And you now have over 140 characters to do so! #AYACSM |
| Dee Sparacio @womenofteal @EK_Drake @pharmacistmike I have issues with word recall- too much chemo. So I leave blank spaces in my posts. And have to take a break and come back a few hours later to fill in the blanks. #ayacsm |
| Emily K. Drake @EK_Drake RT @pharmacistmike: @EK_Drake @TeamShan @ukfann00 @Hope4YAWC Our site and forum traffic is up so I think content is being consumed but not necessarily longer blog format. #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @pharmacistmike @EK_Drake @TeamShan @ukfann00 @Hope4YAWC I think that's a great point. What type of information are people interested in consuming? How long is too long? Can short blogs serve a similar purpose? #AYACSM |
| Mike Craycraft @pharmacistmike @ukfann00 @L8Effects @EK_Drake @womenofteal I love your voice @ukfann00 but you face is made for radio...oops. Inappropriate comments, sorry. haha #AYACSM |
| Emily K. Drake @EK_Drake RT @womenofteal: @EK_Drake @pharmacistmike I have issues with word recall- too much chemo. So I leave blank spaces in my posts. And have to take a break and come back a few hours later to fill in the blanks. #ayacsm |
| Billy Paymaster @ukfann00 @EK_Drake @L8Effects @womenofteal Right! I feel like my tweets just go on for FOREVER now! #AYACSM |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @pharmacistmike @EK_Drake @TeamShan @ukfann00 @Hope4YAWC I think that's a great point. What type of information are people interested in consuming? How long is too long? Can short blogs serve a similar purpose? #AYACSM |
| Emily K. Drake @EK_Drake @PerriTutelman @pharmacistmike @TeamShan @ukfann00 @Hope4YAWC Agreed! It seems that people like more short-form information. Times are changing!! #AYACSM |
| Emily K. Drake @EK_Drake RT @ukfann00: @EK_Drake @L8Effects @womenofteal Right! I feel like my tweets just go on for FOREVER now! #AYACSM |
| Anti-Cancer Club @anticancerclub When you are fighting stage IV cancer everything is just that much sweeter. https://t.co/8fRpfjOwHW @neverquitcp #Gratitude #Hope #ayacsm https://t.co/fpRoJPi0xG |
| Dr. Perri Tutelman @DrPerriTutelman @EK_Drake @pharmacistmike @TeamShan @ukfann00 @Hope4YAWC I think visuals are key too #AYACSM |
| Emily K. Drake @EK_Drake @ukfann00 @L8Effects @womenofteal it's like I'm breaking to read blogs! #ayacsm |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @EK_Drake @pharmacistmike @TeamShan @ukfann00 @Hope4YAWC I think visuals are key too #AYACSM |
| Mike Craycraft @pharmacistmike Too add to this, it feels that many times our voice is being heard by the same people, same conversations and is cloistered instead of spreading. #AYACSM https://t.co/qHH1nFzKjH |
| Emily K. Drake @EK_Drake I'm skipping Q3 - Q4: #How do you encourage engagement once the blog post has been published? #ayacsm |
| Dr. Perri Tutelman @DrPerriTutelman @pharmacistmike The "preaching to the choir effect" #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan @pharmacistmike @EK_Drake @ukfann00 @Hope4YAWC Interesting...I have noticed a decrease in social media interaction on Twitter over the past year...diminished newsletter relevance, but Facebook & blogs still seem to be viewed #ayacsm |
| Billy Paymaster @ukfann00 @PerriTutelman @pharmacistmike @EK_Drake @TeamShan @Hope4YAWC Interestingly enough, with more characters on Twitter now, you can get more of a point across while still having a link to a longer blog post. You can influence those who want a little content & those who want a lot more. #AYACSM |
| Billy Paymaster @ukfann00 RT @pharmacistmike: Too add to this, it feels that many times our voice is being heard by the same people, same conversations and is cloistered instead of spreading. #AYACSM https://t.co/qHH1nFzKjH |
| Team Shan (Lorna Larsen) @TeamShan RT @PerriTutelman: @EK_Drake @pharmacistmike @TeamShan @ukfann00 @Hope4YAWC I think visuals are key too #AYACSM |
| Emily K. Drake @EK_Drake I feel this way too sometimes, but then I will meet someone at a conference who tells me they read my blog and they live on the other side of the world. Sometimes you don't know who is following your work! #AYACSM https://t.co/l1mxQaQ8ou |
| Dr. Perri Tutelman @DrPerriTutelman So true! #AYACSM https://t.co/FBdjKPWgMR |
| Team Shan (Lorna Larsen) @TeamShan @PerriTutelman @EK_Drake @pharmacistmike @ukfann00 @Hope4YAWC Agreed...our @TeamShan & national #ayacancer infographics have been well received by AYA & professionals #ayacsm |
| Billy Paymaster @ukfann00 @pharmacistmike Exactly. I know that there are those out there that like to hear a similar voice & like reassurance, but the message has to go further to educate those who just have a knee-jerk reaction to ACA or just healthcare in general. #AYACSM |
| Dee Sparacio @womenofteal @pharmacistmike Yes very true. My taking part in other tweet chats helps to be known to other survivors, docs, researchers. #ayacsm |
| Mike Craycraft @pharmacistmike @EK_Drake A3: Non-linear order makes me nervous. A4: Social media and we have a microvolunteering platform that we can push posts to as well. Sometimes newsletters. #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan RT @ukfann00: @PerriTutelman @pharmacistmike @EK_Drake @TeamShan @Hope4YAWC Interestingly enough, with more characters on Twitter now, you can get more of a point across while still having a link to a longer blog post. You can influence those who want a little content & those who want a lot more. #AYACSM |
| Emily K. Drake @EK_Drake Knowing @CBlotner_ reads my blogs has encouraged me many times to write. Even if no one else did I knew that it was at least reaching someone else on the other side of the continent. #AYACSM |
| Emily K. Drake @EK_Drake RT @pharmacistmike: @EK_Drake A3: Non-linear order makes me nervous. A4: @EK_Drake A3: Non-linear order makes me nervous. A4: Social media and we have a microvolunteering platform that we can push posts to as well. Sometimes newsletters. #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan @ukfann00 @PerriTutelman @pharmacistmike @EK_Drake @Hope4YAWC Excellent Billy...Twitter needs to be revitalized #ayacsm |
| Emily K. Drake @EK_Drake @pharmacistmike I hope everyone says #AYACSM to this answer! LOL JJ |
| Billy Paymaster @ukfann00 RT @TeamShan: @ukfann00 @PerriTutelman @pharmacistmike @EK_Drake @Hope4YAWC Excellent Billy...Twitter needs to be revitalized #ayacsm |
| Emily K. Drake @EK_Drake Interesting!! #AYACSM https://t.co/n99Go2drPL |
| Billy Paymaster @ukfann00 @TeamShan @PerriTutelman @pharmacistmike @EK_Drake @Hope4YAWC I agree. Hopefully this will help do that. #AYACSM |
| Emily K. Drake @EK_Drake RT @ukfann00: @PerriTutelman @pharmacistmike @EK_Drake @TeamShan @Hope4YAWC Interestingly enough, with more characters on Twitter now, you can get more of a point across while still having a link to a longer blog post. You can influence those who want a little content & those who want a lot more. #AYACSM |
| Emily K. Drake @EK_Drake @ukfann00 @PerriTutelman @pharmacistmike @TeamShan @Hope4YAWC #guru #AYACSM |
| Dee Sparacio @womenofteal @EK_Drake A4 I post a link to each post I write to Twitter and to the Facebook page I have for my blog. #ayacsm |
| Billy Paymaster @ukfann00 RT @EK_Drake: I feel this way too sometimes, but then I will meet someone at a conference who tells me they read my blog and they live on the other side of the world. Sometimes you don't know who is following your work! #AYACSM https://t.co/l1mxQaQ8ou |
| Emily K. Drake @EK_Drake RT @TeamShan: @PerriTutelman @EK_Drake @pharmacistmike @ukfann00 @Hope4YAWC Agreed...our @TeamShan & national #ayacancer infographics have been well received by AYA & professionals #ayacsm |
| Emily K. Drake @EK_Drake RT @TeamShan: @ukfann00 @PerriTutelman @pharmacistmike @EK_Drake @Hope4YAWC Excellent Billy...Twitter needs to be revitalized #ayacsm |
| Dr. Perri Tutelman @DrPerriTutelman RT @TeamShan: @PerriTutelman @EK_Drake @pharmacistmike @ukfann00 @Hope4YAWC Agreed...our @TeamShan & national #ayacancer infographics have been well received by AYA & professionals #ayacsm |
| Emily K. Drake @EK_Drake RT @ukfann00: @TeamShan @PerriTutelman @pharmacistmike @EK_Drake @Hope4YAWC I agree. Hopefully this will help do that. #AYACSM |
| Emily K. Drake @EK_Drake RT @womenofteal: @EK_Drake A4 I post a link to each post I write to Twitter and to the Facebook page I have for my blog. #ayacsm |
| Emily K. Drake @EK_Drake @womenofteal Want to share your Facebook page with the group? Mine is: https://t.co/sYrYQBdme8 I do the same! #AYACSM |
| Dee Sparacio @womenofteal @EK_Drake Sure -- https://t.co/KvAFFzFJaC #ayacsm |
| Dr. Perri Tutelman @DrPerriTutelman @EK_Drake It can be helpful to blog for organizations that are already well established who can promote the blog (which also helps to reach a broader and perhaps more diverse audience than one's own network) #AYACSM |
| Emily K. Drake @EK_Drake A4: I try to find those who are interested in sharing my work and notify them when I have a new piece. Some people will not share and that is their choice, but I think it is important to translate science in our field for #ayacsm |
| Emily K. Drake @EK_Drake RT @PerriTutelman: @EK_Drake It can be helpful to blog for organizations that are already well established who can promote the blog (which also helps to reach a broader and perhaps more diverse audience than one's own network) #AYACSM |
| Emily K. Drake @EK_Drake RT @womenofteal: @EK_Drake Sure -- https://t.co/KvAFFzFJaC #ayacsm |
 | Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Welcome to the #ayacsm tweet chat! We’re so glad to have you with us this evening!!!! Be sure to tweet along using #AYACSM https://t.co/9zTziYPnhO |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: #AYACSM was co-founded by @EK_Drake, @UKFANN00, and @stupidcancer! |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: As a reminder, this chat is for advocates involved in the adolescent and young adult cancer societal movement #AYACSM #YACancer #HCSMCA #AYACancer #TYACancer #YAPChat #MAYACC #BTSM #BCSM #LCSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: An #advocate is anyone who speaks, writes or in other ways actively supports the AYA cancer movement as a whole #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: All are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat starting now! #BCSM #BTSM #LCSM #GYNCSM #MAYACC #Cancer #HCSMCA #HCSM #Health #YAPChat #AYACancer #YACancer |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Tonight, we will be talking about what motivates you to #blog or not blog about #healthcare The topic comes to us via #HCSMCA #ayacsm |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Let’s start by doing introductions, giving your name, location, and affiliation with the young adult cancer advocacy. #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan @EK_Drake Time is a challenge, but content passion is a great motivator for me #ayacsm |
| Team Shan (Lorna Larsen) @TeamShan RT @ukfann00: @womenofteal I feel that those that need to be educated the most aren't reading the right blogs in most cases. If you want to change peoples mind, you need to meet them at the point of attack to get their attention & to sway their thought process. #AYACSM |
| Billy Paymaster @ukfann00 A4: If the content thought-provoking it will generate the voice that is need with a broader audience. You can always "Preach To The Choir" but getting a more educated conversation with many is the key. Some want to go viral. I'll just take a deeply educating conversation. #AYACSM |
| Emily K. Drake @EK_Drake RT @TeamShan: @EK_Drake Time is a challenge, but content passion is a great motivator for me #ayacsm |
| Mike Craycraft @pharmacistmike My @feedly & @Pocket is full of posts but i never get a chance to read them unless someone pokes me to do so (not a reference to you) but those heads up do help. Other people poke ad nauseam though and it falls on deaf ears. (again not you) #AYACSM https://t.co/eqzq1WYDzr |
| Billy Paymaster @ukfann00 RT @PerriTutelman: @EK_Drake It can be helpful to blog for organizations that are already well established who can promote the blog (which also helps to reach a broader and perhaps more diverse audience than one's own network) #AYACSM |
| Emily K. Drake @EK_Drake @TeamShan Agreed! You have to have that. I'm motivated to share information I know to others in a way that I hope is understandable and meaningful #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Q1: Q1: Do you #blog about healthcare? Why or why not? #AYACSM |
| Dee Sparacio @womenofteal @PerriTutelman @EK_Drake Posting again . I forgot the #ayacsm Good suggestion. I blogged for an oncology society for a bit to offer a patient point of view. If you attend conferences be sure to go with business cards with your blog info on it. |
| Emily K. Drake @EK_Drake @pharmacistmike @feedly @Pocket I try to just tell people once and if they'd like to share my post that's great, but I agree - repeated reminders make it less desirable #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston A1: I don't necessarily blog about healthcare but I am not shy about sharing my AYA cancer story as well as my mental health struggles. Those are both online. #AYACSM |
| Billy Paymaster @ukfann00 @TeamShan @pharmacistmike @EK_Drake @Hope4YAWC People are even taking pictures of blog posts & posting them on Instagram to generate a conversation. But if that is where the audience is & that's what you have to do to get your point across to the right people, so be it. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: @PerriTutelman Agreed - it's a great way to get #research into the hands of those who can use it! #AYACSM |
| Dr. Perri Tutelman @DrPerriTutelman @EK_Drake @pharmacistmike @feedly @Pocket Sadly there's some political/financial barriers that impede people's sharing sometimes :( #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan @EK_Drake Posting, reposting & special posts! Hope that AYA colleagues will share, RT :) Personal connections work the best, but also time consuming #ayacsm |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Q2: Q2: What challenges (or potential challenges) do you face with generating blog content? #AYACSM |
| Emily K. Drake @EK_Drake RT @ukfann00: A4: A4: If the content thought-provoking it will generate the voice that is need with a broader audience. You can always "Preach To The Choir" but getting a more educated conversation with many is the key. Some want to go viral. I'll just take a deeply educating conversation. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston A2: Some folks aren't comfortable with sharing their story publicly/ or online & that's totally okay! #AYACSM |
| Emily K. Drake @EK_Drake RT @deanaruston: A1: A1: I don't necessarily blog about healthcare but I am not shy about sharing my AYA cancer story as well as my mental health struggles. Those are both online. #AYACSM |
| Emily K. Drake @EK_Drake @deanaruston Welcome!! #AYACSM |
| Emily K. Drake @EK_Drake RT @ukfann00: @TeamShan @pharmacistmike @EK_Drake @Hope4YAWC People are even taking pictures of blog posts & posting them on Instagram to generate a conversation. But if that is where the audience is & that's what you have to do to get your point across to the right people, so be it. #AYACSM |
| Emily K. Drake @EK_Drake @ukfann00 @TeamShan @pharmacistmike @Hope4YAWC Maybe I should start snap chatting my blogs? LOL #AYACSM |
| Dee Sparacio @womenofteal Got to run. My dog has been whinning at me to go out. I've put it off because it is raining but duty calls. Great conversation. #ayacsm |
| Billy Paymaster @ukfann00 RT @EK_Drake: @ukfann00 @TeamShan @pharmacistmike @Hope4YAWC Maybe I should start snap chatting my blogs? LOL #AYACSM |
| Dee Sparacio @womenofteal @EK_Drake Thanks for the invite. Happy Blogging everyone. #ayacsm |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: @PerriTutelman @pharmacistmike @TeamShan @ukfann00 @Hope4YAWC Agreed! It seems that people like more short-form information. Times are changing!! #AYACSM |
| Emily K. Drake @EK_Drake RT @TeamShan: @EK_Drake Posting, reposting & special posts! Hope that AYA colleagues will share, RT :) Personal connections work the best, but also time consuming #ayacsm |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @PerriTutelman: @EK_Drake @pharmacistmike @TeamShan @ukfann00 @Hope4YAWC I think visuals are key too #AYACSM |
| Emily K. Drake @EK_Drake @TeamShan Agree - I read something lately that it should take you more effort to share your post than it does to write it! #AYACSM |
| Billy Paymaster @ukfann00 @EK_Drake @TeamShan @pharmacistmike @Hope4YAWC Hahaha, at this point it's probably not a bad idea, lol. People snapchat nothing but messages a lot these days. Whatever it takes I guess. #AYACSM |
| Emily K. Drake @EK_Drake RT @deanaruston: A2: A2: Some folks aren't comfortable with sharing their story publicly/ or online & that's totally okay! #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston @EK_Drake Thank you!!! #AYACSM |
| Emily K. Drake @EK_Drake @womenofteal Thank you so much for joining in tonight! #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston A4: Share!! Share first with those who you know that are interested & may also share as well so there is even more reach. #Community #Connection #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan @EK_Drake Sounds about right #ayacsm |
| Emily K. Drake @EK_Drake @ukfann00 @TeamShan @pharmacistmike @Hope4YAWC Could be my new thing!! 2018! #AYACSM |
| Emily K. Drake @EK_Drake RT @deanaruston: A4: A4: Share!! Share first with those who you know that are interested & may also share as well so there is even more reach. #Community #Connection #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan @ukfann00 @EK_Drake @pharmacistmike @Hope4YAWC Are people listening? #ayacsm |
| Emily K. Drake @EK_Drake @deanaruston I tend to go to you guys first and let you know I've written something and then to a broader network like you suggested. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @PerriTutelman: @EK_Drake It can be helpful to blog for organizations that are already well established who can promote the blog (which also helps to reach a broader and perhaps more diverse audience than one's own network) #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: A4: A4: I try to find those who are interested in sharing my work and notify them when I have a new piece. Some people will not share and that is their choice, but I think it is important to translate science in our field for #ayacsm |
| Billy Paymaster @ukfann00 @TeamShan @EK_Drake @pharmacistmike @Hope4YAWC Listening? Maybe. Visually-consuming? Hopefully, worst-case. #AYACSM |
| Team Shan (Lorna Larsen) @TeamShan @pharmacistmike @EK_Drake That just might work Mike or a recipe or two! #ayacsm |
| Deana Ruston 🇨🇦 ♿️ @deanaruston @PerriTutelman @EK_Drake @pharmacistmike @feedly @Pocket People can be especially self-conscious about sharing their AYA experiences & struggles within the healthcare system for fear of judgment, repercussion etc. #AYACSM |
| Emily K. Drake @EK_Drake Well great chat tonight folks!! #ayacsm |
| Emily K. Drake @EK_Drake RT @deanaruston: @PerriTutelman @EK_Drake @pharmacistmike @feedly @Pocket People can be especially self-conscious about sharing their AYA experiences & struggles within the healthcare system for fear of judgment, repercussion etc. #AYACSM |
| Emily K. Drake @EK_Drake Thank you for joining us. Please tune in December 5th @ 8PM ET for the next #AYACSM chat! |
| Deana Ruston 🇨🇦 ♿️ @deanaruston As someone mentioned earlier, people LOVE visuals- infographics that are easy to understand & eye-catching is key! Quick bits of memorable info. #AYACSM |
| Deana Ruston 🇨🇦 ♿️ @deanaruston RT @EK_Drake: Thank you for joining us. Please tune in December 5th @ 8PM ET for the next #AYACSM chat! |
| Team Shan (Lorna Larsen) @TeamShan @EK_Drake Excellent #thanks Emily <3 #ayacsm |
| Billy Paymaster @ukfann00 RT @EK_Drake: Thank you for joining us. Please tune in December 5th @ 8PM ET for the next #AYACSM chat! |
| Team Shan (Lorna Larsen) @TeamShan @pharmacistmike So true Mike #ayacsm |
 | Dani Taylor (She/Her) @danimarietaylor #AYACSM I'm Dani. I'm a social work student @gildastoronto but I come from a personal experience with colorectal cancer! |
 | rap stars @rapstarsca RT @EK_Drake: All are welcome to the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) tweet chat starting now! #BCSM #BTSM #LCSM #GYNCSM #MAYACC #Cancer #HCSMCA #HCSM #Health #YAPChat #AYACancer #YACancer |
| Team Shan (Lorna Larsen) @TeamShan RT @EK_Drake: Interesting!! #AYACSM https://t.co/n99Go2drPL |
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