#bccww Transcript
Healthcare social media transcript of the #bccww hashtag.
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See #bccww Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | BreastCancer Chat WW #BCCWW @bccww Why talk about hormone therapy? It’s a critical set of drugs for many & often some - not all of us - will struggle to stick with them at early stage. So what helps living on hormone therapy? What sensible things should we being doing ? #bccww |
| BreastCancer Chat WW #BCCWW @bccww When I was told have I’d have to take these meds for years - not months - I struggled. This surprised me to an extent because I’ve already lived taking meds since I was a teen. #bccww |
| BreastCancer Chat WW #BCCWW @bccww So my question is the emotional implications of being on up to a decade of meds ever taken account of? Can that in itself present an unrecognised burden, adjusting to life on medication (different implications for different stages of course) #bccww |
| BreastCancer Chat WW #BCCWW @bccww Have you struggled #bccww with the implications of years worth of meds or it’s more the over impact of the treatment that affects your mood? Menopause itself - cancer aside - can be a difficult process for women anyway. |
| BreastCancer Chat WW #BCCWW @bccww RT @Janet9998: |
 | Nancy's Point @NancysPoint RT @welliesnseaweed: |
| BreastCancer Chat WW #BCCWW @bccww @Janet9998 Hi Janet. PIL for sure aren’t comforting reading. Would it have helped to talk through that with a BCN or anyone? #bccww I do think it’s an adjustment, a mental shift, even if we aren’t aware of it to go on medication long term. |
| BreastCancer Chat WW #BCCWW @bccww RT @carolinesouthal: |
| BreastCancer Chat WW #BCCWW @bccww @carolinesouthal #bccww that must make it feel worse, not being heard or believed. |
| BreastCancer Chat WW #BCCWW @bccww #bccww |
 | Thanks Cancer! @ThanksCancer RT @bccww: Why talk about hormone therapy? It’s a critical set of drugs for many & often some - not all of us - will struggle to stick with them at early stage. So what helps living on hormone therapy? What sensible things should we being doing ? #bccww |
| BreastCancer Chat WW #BCCWW @bccww @PeggyB63 Hi Peggy - agree on that. I’d like to see supportive interventions (bearing in mind the reality of stretched resources etc) on hormone therapy. #bccww & yes acknowledge that some can never tolerate these “well tolerated drugs” |
| BreastCancer Chat WW #BCCWW @bccww RT @Janet9998: |
| BreastCancer Chat WW #BCCWW @bccww @Janet9998 @cattyfizzle Hello my lovely snoozer #bccww |
| BreastCancer Chat WW #BCCWW @bccww RT @Janet9998: |
| BreastCancer Chat WW #BCCWW @bccww @Janet9998 My thought would be - why not check back with patients after 3 months or 6. Find out how they’re getting on. #bccww |
| BreastCancer Chat WW #BCCWW @bccww #bccww |
| BreastCancer Chat WW #BCCWW @bccww @carolinesouthal Have been offered any supportive mental health interventions? If meds it’s hard causing the problem it’s hard so I’m wondering what might help. #bccww |
| BreastCancer Chat WW #BCCWW @bccww RT @carolinesouthal: |
| BreastCancer Chat WW #BCCWW @bccww @carolinesouthal @BreastCancerH Fantastic - you do your research but it sounds like you have medical professionals who listen to you #bccww |
| BreastCancer Chat WW #BCCWW @bccww RT @rachelmanning11: |
| BreastCancer Chat WW #BCCWW @bccww #bccww |
| BreastCancer Chat WW #BCCWW @bccww #bccww |
| BreastCancer Chat WW #BCCWW @bccww @carolinesouthal @DemeraraDj Having a plan at least might help? Keeping a symptom diary or checking back in 3 months say #bccww |
| BreastCancer Chat WW #BCCWW @bccww RT @Janet9998: |
| BreastCancer Chat WW #BCCWW @bccww #bccww |
| BreastCancer Chat WW #BCCWW @bccww #bccww |
| BreastCancer Chat WW #BCCWW @bccww #bccww |
| BreastCancer Chat WW #BCCWW @bccww @DemeraraDj @Janet9998 Kind of a tension there as you say. I have found as long as you don’t keel over on your meds you get left (anti epileptics since 17). I wouldn’t know a side effect if I fell over it #bccww |
| BreastCancer Chat WW #BCCWW @bccww RT @Janet9998: |
| BreastCancer Chat WW #BCCWW @bccww @Janet9998 I did like it too much - but I had come off for months for a hormone test. Enjoy it! #bccww There’s is research that suggests some women within certain criteria can take a break every so often. |
| BreastCancer Chat WW #BCCWW @bccww #bccww this here 👇🏻 there many of us with long term conditions & meds who struggle on these meds. |
| BreastCancer Chat WW #BCCWW @bccww @flowersorcakes Hi G. #bccww |
| BreastCancer Chat WW #BCCWW @bccww #bccww |
| BreastCancer Chat WW #BCCWW @bccww Hi Caroline #bccww |
| BreastCancer Chat WW #BCCWW @bccww RT @carolinesouthal: |
| BreastCancer Chat WW #BCCWW @bccww RT @carolinesouthal: |
| BreastCancer Chat WW #BCCWW @bccww #bccww |
| BreastCancer Chat WW #BCCWW @bccww Understanding your meds: taking a pro-active approach to meds prescribed very long term #bccww might be helpful. Knowing AIs can affect bone health might be a prompt into reducing that risk. https://t.co/HAOyqfoqrs |
| BreastCancer Chat WW #BCCWW @bccww I am going to share some general info from charities I’ve found helpful. The Royal Oestoporosis Society firstly - because I’m discharged from hospital I’ve find them a great help. #bccww |
| BreastCancer Chat WW #BCCWW @bccww Bone health: do you live with other (non cancer) conditions &/or take non-cancer medications? #bccww some can cause a risk to bone health; always check & know your meds. https://t.co/p0br8UoXl3… |
| BreastCancer Chat WW #BCCWW @bccww Bone health: Check out the Royal Osteoporosis Society. The charity provides a range of resources & general advice for maintaining bone health & for those dealing with oestopenia/oestoporosis. #bccww https://t.co/0jdQR2Do4L https://t.co/wguPdSxfVJ |
| BreastCancer Chat WW #BCCWW @bccww Out of interest #bccww did any of you receive general advice on looking after your bone health, heart health and cholesterol levels or gynae health? Do you know your blood,pressure and cholesterol numbers? |
| BreastCancer Chat WW #BCCWW @bccww @DemeraraDj @Janet9998 That’s a tricky one. Yes age related changes happen but treatment can accelerate possibly those issues - #bccww |
| BreastCancer Chat WW #BCCWW @bccww #bccww |
| BreastCancer Chat WW #BCCWW @bccww @cattyfizzle It would seem really sensible to address this right at the start of taking hormone therapy - tailored for pre-meno and post meno onset/dx. #bccww |
 | Liz Johnson @wired4story @bccww As someone with METs, I've accepted years worth of meds. Mood, well that's a treatment side effect and the cost of staying live for me. Working with various coping skills (exercise, meditation, relaxation) to help...well, cope. #bccww #cancersucks |
| BreastCancer Chat WW #BCCWW @bccww RT @wired4story: @bccww As someone with METs, I've accepted years worth of meds. Mood, well that's a treatment side effect and the cost of staying live for me. Working with various coping skills (exercise, meditation, relaxation) to help...well, cope. #bccww #cancersucks |
| BreastCancer Chat WW #BCCWW @bccww @wired4story Hi Liz. Sensible tip - building up a personal ‘toolkit’ of coping strategies. #bccww |
| BreastCancer Chat WW #BCCWW @bccww RT @rachelmanning11: |
| BreastCancer Chat WW #BCCWW @bccww #bccww this 👇🏻 |
| BreastCancer Chat WW #BCCWW @bccww @rachelmanning11 Surely it would be sensible to do. #bccww |
| BreastCancer Chat WW #BCCWW @bccww @emmacorkydublin Thank god for other people #bccww |
| BreastCancer Chat WW #BCCWW @bccww RT @carolinesouthal: |
| BreastCancer Chat WW #BCCWW @bccww @carolinesouthal I make sure i have my cholesterol tested. #bccww prehab/rehab is all the ‘rage’ - surely it applies here. |
| BreastCancer Chat WW #BCCWW @bccww RT @rachelmanning11: |
| BreastCancer Chat WW #BCCWW @bccww #bccww please folks even if you don’t need glasses/contacts have regular sight tests. Tell your optometrist your drugs & know your family’s eye history. |
| BreastCancer Chat WW #BCCWW @bccww https://t.co/NEMCJFWlu1 and here is information on drugs given to pre-menopausal women (& some post meno women take them too) with #breastcancer #bccww know your drugs. |
| BreastCancer Chat WW #BCCWW @bccww Heart Health: Check out the British Heart Foundation: with a nurse helpline, advice on eating well and information on cholesterol. Remember speak to your GP for specific medical advice & a heart risk assessment etc. #bccww https://t.co/5Zn20gOKSK |
| BreastCancer Chat WW #BCCWW @bccww RT @Janet9998: |
| BreastCancer Chat WW #BCCWW @bccww RT @carolinesouthal: |
| BreastCancer Chat WW #BCCWW @bccww #bccww |
| BreastCancer Chat WW #BCCWW @bccww @wired4story @ThanksCancer It helps my letrozole knees for sure. #bccww |
| BreastCancer Chat WW #BCCWW @bccww RT @carolinesouthal: |
| BreastCancer Chat WW #BCCWW @bccww @carolinesouthal The monitoring is good, I didn’t have herceptin. But had chemo & Ietrzole so had a risk assessment with the GP - not sure rads are factored in though. #bccww . |
| BreastCancer Chat WW #BCCWW @bccww RT @carolinesouthal: |
| BreastCancer Chat WW #BCCWW @bccww RT @carolinesouthal: |
| BreastCancer Chat WW #BCCWW @bccww Thanks everyone for tonight #bccww apologies for the disjointed tweeting. Old iPad! |
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