#bccww Transcript

Healthcare social media transcript of the #bccww hashtag.
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See #bccww Influencers/Analytics.

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BreastCancer Chat WW #BCCWW @bccww
RT @futurestand:
BreastCancer Chat WW #BCCWW @bccww
@ducksinrow @futurestand @whatisaletter @TeaLady24 Not to worry #bccww if you think of anything in the future just ask,
BreastCancer Chat WW #BCCWW @bccww
If you are joining the chat make sure you use #bccww in your tweets - otherwise I can’t see you. Nor can anyone else. The hashtag is a way of being visible. Thanks chicks.
BreastCancer Chat WW #BCCWW @bccww
I don’t really have a subject tonight prepared tonight #bccww but I’ve been reminded today of the frustration of being a patient. And I’m mostly not these days.
BreastCancer Chat WW #BCCWW @bccww
So what’s your best tips #bccww of being SEEN and HEARD by your medical teams and the people round you. Human first, ‘patient’ way down the list.
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998: @bccww Anyone out there advise on clothing for my post-reconstruction circs:
coldethyl @coldethyl2
@bccww having twitter issues tonight so may be intermittent ! #bccww
BreastCancer Chat WW #BCCWW @bccww
@Janet9998 I’m o O - try to get slightly fitted tops. I find that actually it looks better rather than flared or very loose ones. #bccww sports bras are a bit more supportive at holding both at more or less the same height.
BreastCancer Chat WW #BCCWW @bccww
RT @coldethyl2: @bccww having twitter issues tonight so may be intermittent ! #bccww
BreastCancer Chat WW #BCCWW @bccww
@coldethyl2 Ok love #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @futurestand:
BreastCancer Chat WW #BCCWW @bccww
@futurestand @ducksinrow @whatisaletter @TeaLady24 Sub type of breast cancer, grade and what that means for your treatment. If you haven’t already been told. It’s important you know what type of breast cancer you have #bccww
BreastCancer Chat WW #BCCWW @bccww
#bccww
BreastCancer Chat WW #BCCWW @bccww
#bccww
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
Totally agree re sports bra. I have Lymphoedema in my spchopped up boob somsports bras are supportive. But oh for a pretty one...#bccww
BreastCancer Chat WW #BCCWW @bccww
@Janet9998 😂 trouble is the big O is the Lymphoedema breast....actually not so bad these days. I had breast conserving surgery but I get the problem. Use what’s comfortable really - people notice less than you realise. #bccww
BreastCancer Chat WW #BCCWW @bccww
@futurestand @ducksinrow @whatisaletter @TeaLady24 😃 they do. A lot of the advocates are switched on. But it is a serious point, know hormone status, HER2 or not etc. Especially when chatting online about treatment remember it can matter how long ago someone was treated. #bccww
BreastCancer Chat WW #BCCWW @bccww
#bccww
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
@whatisaletter @ducksinrow @futurestand @TeaLady24 Looking after the wig, do you need any special products, tips for keeping it clean etc. Maybe consider it an opportunity to get different colours etc #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @futurestand:
BreastCancer Chat WW #BCCWW @bccww
#bccww
BreastCancer Chat WW #BCCWW @bccww
#bccww notebook and a pen. Write questions in it, note s/e and any physical and mental/emotional difficulties during treatment.
BreastCancer Chat WW #BCCWW @bccww
#bccww
BreastCancer Chat WW #BCCWW @bccww
RT @futurestand:
BreastCancer Chat WW #BCCWW @bccww
@futurestand @ducksinrow @whatisaletter @TeaLady24 Ah ok. You could ask about any trials for your sub type. Just a thought and of course entirely up to you as well as how rare it is ornot, what’s the latest research on it. I was bog standard ER+ HER2- (so to speak 😬) #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
RT @MaureenKenny1:
BreastCancer Chat WW #BCCWW @bccww
@whatisaletter @MaureenKenny1 @ducksinrow @futurestand @TeaLady24 There are hairdressers who will cut wigs - Trevor Sorbie runs a hair charity #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
@Janet9998 Good idea on the prosthesis - try @KnitKnockersUK they knit then in lightweight cotton. #bccww
BreastCancer Chat WW #BCCWW @bccww
@Janet9998 Also love this. #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
RT @futurestand:
BreastCancer Chat WW #BCCWW @bccww
#bccww
BreastCancer Chat WW #BCCWW @bccww
@futurestand @whatisaletter @TeaLady24 @ducksinrow I think it is. #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @futurestand:
BreastCancer Chat WW #BCCWW @bccww
@futurestand @ducksinrow @whatisaletter @TeaLady24 Good idea - it is important for your peace of mind anyway. #bccww
BreastCancer Chat WW #BCCWW @bccww
#bccww
BreastCancer Chat WW #BCCWW @bccww
@whatisaletter @Janet9998 @MaureenKenny1 @ducksinrow @futurestand @TeaLady24 See what you feel comfy with. You can always change your mind later. #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @welliesnseaweed:
BreastCancer Chat WW #BCCWW @bccww
#bccww life saver having a notebook. Also pack a small overnight bag with basic essentials & nightwear in case of a stay in hospital if unwell during chemo. This is a practical measure and hopefully you should never need it.
BreastCancer Chat WW #BCCWW @bccww
RT @futurestand:
BreastCancer Chat WW #BCCWW @bccww
@whatisaletter I’m just laughing at all my typos. Cup or back? #bccww try Debenhams for cup size. I take a larger cup size.
BreastCancer Chat WW #BCCWW @bccww
RT @MaureenKenny1:
BreastCancer Chat WW #BCCWW @bccww
@MaureenKenny1 @ducksinrow Hi M #bccww
BreastCancer Chat WW #BCCWW @bccww
#bccww
BreastCancer Chat WW #BCCWW @bccww
RT @futurestand:
BreastCancer Chat WW #BCCWW @bccww
@welliesnseaweed @whatisaletter @ducksinrow @futurestand @TeaLady24 Biotene was fantastic and my dentist put it on prescription for me. Fake saliva is just awful.... but sip lots of water and unfashionable as it is to say - plastic straws for drinks protects your mouth if sore. #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @MaureenKenny1:
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
RT @welliesnseaweed:
BreastCancer Chat WW #BCCWW @bccww
Impressed #bccww
BreastCancer Chat WW #BCCWW @bccww
@welliesnseaweed Bloody hell keep forgetting it’s in iplayer #bccww
BreastCancer Chat WW #BCCWW @bccww
#bccww
BreastCancer Chat WW #BCCWW @bccww
RT @welliesnseaweed:
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
RT @welliesnseaweed:
BreastCancer Chat WW #BCCWW @bccww
RT @MaureenKenny1:
Breast Advocate @BreastAdvocate
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
RT @abcdiagnosis:
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
@Janet9998 @abcdiagnosis Looks great. My hair seemed very slow to come back. #bccww
BreastCancer Chat WW #BCCWW @bccww
RT @welliesnseaweed:
BreastCancer Chat WW #BCCWW @bccww
#bccww
BreastCancer Chat WW #BCCWW @bccww
#bccww
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
RT @welliesnseaweed:
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
Thank you all #bccww & remember folks starting or about to start treatment. Your health & well being comes first during treatment. You can’t carry family & they can’t carry you - support/hold up each other to get through it.
BreastCancer Chat WW #BCCWW @bccww
RT @Janet9998:
BreastCancer Chat WW #BCCWW @bccww
If you’ve joined in for the first time tonight #bccww hope It was helpful and big thanks to everyone that contributed.
BreastCancer Chat WW #BCCWW @bccww
#bccww @mynewhairorg is a U.K. charity for people with medical hair loss. They also train hairdressers to style wigs.
#bccww content from Twitter.