1. Home
  2. Healthcare Hashtags
  3. #dsma
  4. Transcript

#dsma Transcript

Healthcare social media transcript of the #dsma hashtag.
– ().
See #dsma Influencers/Analytics.

ProfileTweet
Ryan Dane 🇺🇦 @ryanryeguy89
@JanJava I do yes! Thank you! It's great. I used one of the pools today. Didn't wear sunscreen so I'm going to be a lobster tomorrow. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Hi everyone! Welcome to #dsma. How are you doing this evening?
Ryan Dane 🇺🇦 @ryanryeguy89
@DiabetesSocMed Doing great! You? #dsma
Dr. Phyllisa Deroze @not_defeated
#DSMA twitter chat starts RIGHT NOW and I'm so excited to be here. I'm well, jetlagged though since I just arrived in the USA from Paris yesterday.
Janis N. Senungetuk @JanJava
@DiabetesSocMed Hi! I've made it through another day, hurray! Happy to be here. #dsma
Brenda Bell @tmana
@DiabetesSocMed Tired, need sleep (start work 0300 tomorrow), and having to nurse my phone through a full-system backup #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Welcome, Doc P. #DSMA
Pancreassassin @Pancreassassin
Looks like I’ll be able to chat tonight! #dsma
NextWaveT2D @nextwavet2d
Happy to be here! I took a night off from the #treadmill, so I am rested and ready for tonight! #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
@ryanryeguy89 I'm you're doing well! Thank you for asking. Can you pass me a few peanuts? #dsma
StephenS @StephenSType1
Good evening everyone... don't know how long I can last at #DSMA tonight, but I'm here for the time being
Emilie T @SweetHiyachica
@DiabetesSocMed Excited for #dsma!
Diabetes Social Media Advocacy @DiabetesSocMed
If you're new to #dsma (Diabetes Social Media Advocacy), please let us know. We want to make sure we give you a nice warm welcome. 😊
Ryan Dane 🇺🇦 @ryanryeguy89
@DiabetesSocMed Lol. I don't even remember the last time I saw peanuts at a bar. They serve chips here! Homemade! #dsma
Pancreassassin @Pancreassassin
I'm supposed to be reading the emplyee handbook for my new job (!) but I'd rather be here. :) #dsma
StephenS @StephenSType1
RT @DiabetesSocMed: If you're new to #dsma (Diabetes Social Media Advocacy), please let us know. We want to make sure we give you a nice warm welcome. 😊
Janis N. Senungetuk @JanJava
@Pancreassassin well, of course! Glad you're here. #dsma
Ryan Dane 🇺🇦 @ryanryeguy89
@Pancreassassin Yes! This is more important. Lol! #dsma
Scott K. Johnson @scottkjohnson
RT @DiabetesSocMed: If you're new to #dsma (Diabetes Social Media Advocacy), please let us know. We want to make sure we give you a nice warm welcome. 😊
Diabetes Social Media Advocacy @DiabetesSocMed
@SweetHiyachica Hi Emilie! #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
@ryanryeguy89 lol! #dsma
Scott K. Johnson @scottkjohnson
I'm so excited to join this week (finally)! #dsma
Brianna @TheChronicCon
So glad I’m finally off on a Wednesday night to participate in #dsma
NextWaveT2D @nextwavet2d
@scottkjohnson good to see you #dsma
Janis N. Senungetuk @JanJava
@scottkjohnson happy you're here! #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Time to get started. #dsma https://t.co/Dyv1WZprRR
John @joltdude
Still no durable cure yet.... #dsma
Scott K. Johnson @scottkjohnson
@nextwavet2d @JanJava Thanks Bill & Janis! You too! #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Introductions: Name, location, connection to diabetes, and use one word to share how you feel about the stigma associated with diabetes. #dsma
Brianna @TheChronicCon
Brianna, KC, T1D for 7.5 years. My word would be shame #dsma
NextWaveT2D @nextwavet2d
Bill, Maryland, T2D since 2018. Stigma = Tiresome #dsma
Brenda Bell @tmana
@T2DRemission @ryanryeguy89 @DiabetesSocMed A *bear* bar as in, Pride Week? Or as in the large mammal (or its Teddy cousin)? #dsma
Mike Ratrie @YOGA_O
Hi All! Mike from Mount Dora, FL just a bit north of Orlando. T1D for 45 years #dsma
StephenS @StephenSType1
RT @DiabetesSocMed: Introductions: Introductions: Name, location, connection to diabetes, and use one word to share how you feel about the stigma associated with diabetes. #dsma
Ryan Dane 🇺🇦 @ryanryeguy89
@DiabetesSocMed Intro: Ryan, type 1 from Maryland, and one word would be annoyed. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
@Pancreassassin Congratulations! You should, but we want you to #dsma with us. 😊
Diabetes Social Media Advocacy @DiabetesSocMed
@T1NurseFred It's been a while. Welcome back. #dsma
John @joltdude
I miss when they used to serve peanuts at the Ground Round..... #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
@StephenSType1 Hi!!! #dsma
Scott K. Johnson @scottkjohnson
Scott, San Diego, T1D since '80, frustrated #dsma
Pancreassassin @Pancreassassin
Courtney from Georgia. T1 for almost 22 years. I'd say I'm frustrated with the stigma around all types of #diabetes. #dsma
Janis N. Senungetuk @JanJava
Hi, Janis from Madison, WI, T1 for 64 yrs. concerned #dsma
Douglas Michael Massing 🌈 ...but what do I know? @T2DRemission
@tmana @ryanryeguy89 @DiabetesSocMed The bar was definitely frequented by large mammals. #bifurcation #dsma
Emilie T @SweetHiyachica
Emilie, Indiana, T1D for 11+ years. One word to share how I feel about the stigma around diabetes: frustrated #DSMA
=ger= @fnjerseygirl
@DiabetesSocMed ger, tucson az, T2 since 2014, annoyed. #dsma
Mike Ratrie @YOGA_O
One word to go with Stigma? ... Really? #dsma
StephenS @StephenSType1
Stephen from Baltimore, T1D 28 years, write & podcast via https://t.co/LxlxPhLRr2 ~ Only one word about diabetes stigma? Infuriating #dsma
Renza / Diabetogenic @RenzaS
Hey #DSMA! Renza here from Melbourne Australia. It's been a long time since I managed to visit DSMA land!
Diabetes Social Media Advocacy @DiabetesSocMed
I'm Cherise (@sweetercherise), Indiana, diagnosed with LADA in 2004 and one word to describe diabetes stigma...I don't have one word to describe it. I know it makes me angry .#dsma
Tim @metacman
Tim. T1D+celiac+hypothyro And part time punster #dsma
John @joltdude
One word.. Hmm.. is it for the issue itself or how the folks on either side of it? #dsma
EiCan 💙 @eican
Eileen, Saratoga, NY....no pancreas, looking forward to a transplant.....weary
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@DiabetesSocMed Arrived late but doing well. Morning here in Australia, just settling in for an hour of chat and some cheese and paleo crackers (D-lunch) :P #dsma
John @joltdude
Anger #dsma
Mike Ratrie @YOGA_O
@StrongerThanT1D Oh that's just the pits! Sad for you! #dsma
Brenda Bell @tmana
@joltdude I miss the Ground Round. The local one used to have a Saturday night Comedy Club #datenight #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Tonight, we are going to take a trip down memory lane. #dsma
StephenS @StephenSType1
RT @DiabetesSocMed: Tonight, we are going to take a trip down memory lane. #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@DiabetesSocMed Leon, Sydney - Australia, T1D LADA (2 years still insulin free), pill box maker on Etsy. One word: frustration #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Q1. How old were you when you were diagnosed with diabetes? #dsma
Scott K. Johnson @scottkjohnson
Q1. Age 5 #dsma
StephenS @StephenSType1
RT @DiabetesSocMed: Q1. How old were you when you were diagnosed with diabetes? #dsma
Renza / Diabetogenic @RenzaS
And my one word to describe how I feel about stigma - annoyed. (Actually, the word is a swear word, but I'm trying to be nice...) #DSMA
Pancreassassin @Pancreassassin
1. I was 7 years old. #dsma
NextWaveT2D @nextwavet2d
A1: 52 years young. #dsma
=ger= @fnjerseygirl
@DiabetesSocMed 52 yrs old. #dsma
Emilie T @SweetHiyachica
A1. 21 #DSMA
Janis N. Senungetuk @JanJava
A1. I was 8. #dsma
Dr. Phyllisa Deroze @not_defeated
I was 31 years old. #dsma
Brianna @TheChronicCon
Q1: I was 18. I was home for winter break after my fist semester of college #dsma
StephenS @StephenSType1
Q1. I was 28, almost 29 RT @DiabetesSocMed: Q1. How old were you when you were diagnosed with diabetes? #dsma
Tim @metacman
A1. 20 years old in the USAF stationed in Germany. #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@DiabetesSocMed A1: 43 #dsma
Mike Ratrie @YOGA_O
A1. I was 19 when diagnosed with T1D #dsma
Ryan Dane 🇺🇦 @ryanryeguy89
@DiabetesSocMed A1. 26 in a half, with type 1. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @ryanryeguy89: @DiabetesSocMed A1. 26 in a half, with type 1. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @PWPillBox: @DiabetesSocMed A1: @DiabetesSocMed A1: 43 #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @not_defeated: I was 31 years old. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @fnjerseygirl: @DiabetesSocMed 52 yrs old. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
@PWPillBox Hi Leon! #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
@eican I hope you get one soon. #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@DiabetesSocMed Hello :) #dsma
Brenda Bell @tmana
Q1. 42 #dsma
Dr. Phyllisa Deroze @not_defeated
Phyllisa, South Florida, T2 since 2011, and my one word about stigma is ... "death" because stigma causes some people leave this world prematurely from not taking care of themselves properly AND because stigma needs to die. Times up for diabetes stigma. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
I see people were diagnosed between the age of 10-52. I can't wait to read your response to Q2. #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@SweeterCherise I hope it about misdiagnosis :P #dsma
Tim @metacman
Re Q1 - - Wow all these late bloomers. I thought and was taught T1D was a “childhood” disease #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Q2) When you were diagnosed with diabetes, what do you remember being told to you/parent about diabetes management? #dsma
StephenS @StephenSType1
RT @DiabetesSocMed: Q2) When you were diagnosed with diabetes, what do you remember being told to you/parent about diabetes management? #dsma
John @joltdude
That its going to be a lifelong illness and ill likely end up with complications... #dsma
Renza / Diabetogenic @RenzaS
@DiabetesSocMed A1. I was 24. #DSMA
Mike Ratrie @YOGA_O
@metacman A myth we are still trying to eradicate ... #dsma
Pancreassassin @Pancreassassin
2. It's something you'll probably have to deal with for the rest of your life. But science is amazing! Cure is sure to happen soon. #dsma
Scott K. Johnson @scottkjohnson
Q2. Can't remember much that far back. I remember getting really sick (DKA, I assume) and spending about a week in the hospital. #dsma
Brianna @TheChronicCon
Q2: honestly I don’t remember a lot of the details of those days. What I do remember is being told they would start with basics. Sliding scale and injections and eventually I could get a pump. #dsma
Mocha @ECEMocha
Sorry I'm late (and haven't been on in a while!) #dsma
Brenda Bell @tmana
Q2. Since I was also diagnosed w/ high blood pressure, I was given a low-sodium (1000 mg/day) diet sheet & the ADA 1600-calorie sheet #dsma
NextWaveT2D @nextwavet2d
A2: So tough to do on Twitter! Dx told me I was a mess, change diet/exercise. Had a brief chat with a visiting pharmacist, he told me it was going to be ok, and that the drugs prescribed helped most manage. #dsma
Brenda Bell @tmana
Q2 (cont'd) and told there'd be no way I could follow BOTH sheets at the same time, but to try to do my best to use them as guides #dsma
Brianna @TheChronicCon
Q2: definitely got the “a cure is just 5 years away.” Speech #dsma
John @joltdude
Yeah there was some false hope involved involving a cure.... And id be relying on a meter and a sheet of paper for the rest of my life #dsma
Ryan Dane 🇺🇦 @ryanryeguy89
@DiabetesSocMed A2. I would need insulin, I would need to court carbs, I would need test blood, and on and on. I was told 800 where I was at I was lucky I was still walking around. #dsma
Mocha @ECEMocha
Q1. I was 13 y.o. #dsma
Tim @metacman
Q2 NOTHING about counting carbs. I was taught how to count food ‘exchanges’ and given a set insulin dosage to inject 2x daily. #dsma
=ger= @fnjerseygirl
@DiabetesSocMed Q2: i had an intern tell me and he was just very stoic. #dsma
StephenS @StephenSType1
Q2. Being 28 then, I actually told my parents, and made managing diabetes sound like something minor, due to my ignorance and (cont.) #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @fnjerseygirl: @DiabetesSocMed Q2: @DiabetesSocMed Q2: i had an intern tell me and he was just very stoic. #dsma
Janis N. Senungetuk @JanJava
A2. I was told anything. The MD only spoke to my parents. My mom was told I needed to be on strict schedule&diet.I shot @ day in AM. #dsma
Dr. Phyllisa Deroze @not_defeated
I remember being told that it will get easier and I didn't see how it could. I thought the nurse was lying to me. (I'm glad my nurse in the hospital was right, it has gotten easier). Having diabuddies help to make it easier. #DSMA
John @joltdude
Yeah I was taught exchanges but had a really poor sliding scale #dsma
Brenda Bell @tmana
I'm noting here some serious differences between T1, T2, and neither-T1-nor-T2 (LADA, Other) diagnoses #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@DiabetesSocMed A2: Finger pricking was taught well. For most of the rest I was pointed to online resources and told to come back in 3 months :) #dsma
Mocha @ECEMocha
Q2. So, I was in a rather unique situation. My older brother was diagnosed as T1D ~5 years earlier and was on an insulin pump. (1/) #dsma
DiabetesMine @DiabetesMine
SO AWESOME!!! #DOC
Diabetes Social Media Advocacy @DiabetesSocMed
@fnjerseygirl I am so sorry. 😬 #dsma
StephenS @StephenSType1
(cont.) and wanting to protect them #DSMA https://t.co/y7ZGhnoOuD
Diabetes Social Media Advocacy @DiabetesSocMed
RT @ryanryeguy89: @DiabetesSocMed A2. I would need insulin, I would need to court carbs, I would need test blood, and on and on. I was told 800 where I was at I was lucky I was still walking around. #dsma
Pancreassassin @Pancreassassin
2. Also, my hospital had a copy of Captain Novolin, AND a NIntendo 64, AND a really cool fountain. And I got a diabetes game for PC! #dsma
jess @jessakah_
@DiabetesSocMed A1. I was 7! #dsma
Brianna @TheChronicCon
Q2: I also specifically remember theresident coming in early that first morning and telling me I would probably need insulin the rest my life. I was half a asleep and just nodded. I don’t think I fully understood what that meant. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
@TKathrynSutton I didn't see this before I sent the tweet with ages. #dsma
John @joltdude
NPH and Humalog was how I started... #dsma
Mike Ratrie @YOGA_O
A2 - When I was diagnosed, I remember being told, "No more sugar." But, I was also told I was going to be "fine" that with my doctor's help, I could manage the disease. No scare tactics for me! #dsma
NextWaveT2D @nextwavet2d
@thehangrywoman @DiabetesSocMed Sounds similar to my experience. #dsma
Renza / Diabetogenic @RenzaS
@DiabetesSocMed I was on MDI with Actrapid and Protophane (evil). Told to check my BGL four times each day. And then saw the dietitian and thought I would never, ever enjoy food again. Thankfully, I was wrong. #DSMA
Mocha @ECEMocha
Q2. My mom had suspected I was T1D for a bit, told bro's endo & the ped. (2/) #dsma
Emilie T @SweetHiyachica
A2. I was told by phone I was T2. At next appt., insisted on right tests, and it was T1. Then got sent to CDE to learn to use a pen and basics of T1D. I was *not* told how hard it would be to manage! #DSMA
=ger= @fnjerseygirl
@DiabetesSocMed yeah, it sucked. i was given metformin when he knew i had IBS all my life. that was hell. then given Lantus and said to watch a video on how to inject. #dsma
EiCan 💙 @eican
I was 35, had my pancreas removed after a Whipple. Had a tumor
John @joltdude
Other than that I really didnt get much out of my diagnosis.. and saw a very disconnected Endo.. #dsma
Janis N. Senungetuk @JanJava
A2. My parents were told if they were VERY careful I could live to my 20's. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Q3. During your life with diabetes, have you had a negative experience with an HCP? If so, please share #dsma
jess @jessakah_
@DiabetesSocMed A2. Ahh 18 years ago. They talked a lot to my mom since I was so little, but I definitely remember the “a cure is in the next 5 years” convo 😂👏🏼 nice. #dsma
John @joltdude
I *was* the youngest patient he had.... And it didnt really help... #dsma
StephenS @StephenSType1
RT @DiabetesSocMed: Q3. During your life with diabetes, have you had a negative experience with an HCP? If so, please share #dsma
Mocha @ECEMocha
Q2. Went in on a Friday for a quick pee in a cup test (which ended up being a bowl, since they were all out of urine sample cups) (3/) #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@thehangrywoman @DiabetesSocMed Two PDFs introducing me to T1D and also links to resources for loved ones. #dsma
=ger= @fnjerseygirl
@DiabetesSocMed Q3: see previous tweet to you. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
This is horrible. #dsma
Pancreassassin @Pancreassassin
3. LOL, so much negativity. #dsma
Ryan Dane 🇺🇦 @ryanryeguy89
@DiabetesSocMed A3. So far no! But my Endo is retiring next month so I have one last appointment next week with him. #dsma
John @joltdude
BTW is someone using todays chat in some form of research study? #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
@fnjerseygirl Not good at all. Did you change HCPs? #dsma
Mocha @ECEMocha
Q2. Official lab draw the next day (Saturday). Put on Humalog & Ultra Lente same day. Two weeks later, I was on an insulin pump (4/4) #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@JanJava Wow (sorry I'm the text equivalent of speechless) #dsma
Brianna @TheChronicCon
Q3: I saw an internal med doc early on. He was used you the older population and T2. He was nice. It just wasn’t a good fit. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @ryanryeguy89: @DiabetesSocMed A3. So far no! But my Endo is retiring next month so I have one last appointment next week with him. #dsma
StephenS @StephenSType1
Q3. Oh yes, with two endos. One didn't give me any guidance about managing diabetes, the other yelled at me when I asked a question #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @PWPillBox: @thehangrywoman @DiabetesSocMed Two PDFs introducing me to T1D and also links to resources for loved ones. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @jessakah_: @DiabetesSocMed A2. Ahh 18 years ago. They talked a lot to my mom since I was so little, but I definitely remember the “a cure is in the next 5 years” convo 😂👏🏼 nice. #dsma
Pancreassassin @Pancreassassin
3b In the ER for abdominal pain, doc suggested high BG=organ swelling, causing pain. Yeah. It was a 10 cm uterine fibroid. #DSMA
Janis N. Senungetuk @JanJava
A3. Yes. In my teens I was told if I didn't stay on strict diet I'd be dead in 5 yrs. MD only lectured me & only spoke w my mom. #dsma
NextWaveT2D @nextwavet2d
A3: My numbers came down pretty quickly, and my HCP and I have had a good working relationship. Sounds pretty boring, and right now, I feel comfortable with that. #dsma
=ger= @fnjerseygirl
@DiabetesSocMed i had no choice in who i got. hubz works for a teaching hospital so we get new interns every 6 months. i hate telling my history to them over and over. ugh. #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@SweeterCherise A3: Being an insulin-free T1D means HCPs who are unaware of LADA ALWAYS ask "Are you sure you're Type 1?" No easier way to annoy a diabetic than to challenge their Type. #dsma
John @joltdude
Anyone have the orange/apple demonstration? #dsma
Mocha @ECEMocha
Q3. Yes. Many. I often end up never going back to the practice (not just the HCP) if possible. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
@KayeVanessa HOLA! Welcome. #dsma
Pancreassassin @Pancreassassin
@joltdude YES! I remember sitting in my grandma's kitchen and we were both injecting oranges to practice. Lol. #dsma
Tim @metacman
A3. One HCP actually took me off insulin altogether and put me on a fish diet. The HCP was convinced fish oils would control BG. After 2 days of BG over 400 I started insulin again. #dsma
Mocha @ECEMocha
Q3. I refuse to go back to the same hospital network that did my MFM and all my pregnancy, labor, delivery stuff. Never. Again. #dsma
jess @jessakah_
@DiabetesSocMed A3. When I was about 10 or so, was hospitalized with DKA & one of the doctors made me cry because they scared me, told me my brain was swelling and I could die. I was 10..... I had no idea what I was doing. #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@SweeterCherise A3: I was diagnosed after getting a mild DKA. The hospital 'experts' misdiagnosed me as Type 2. It was my GP doctor who was smart enough to get the autoimmune blood tests done #dsma
Dr. Phyllisa Deroze @not_defeated
Yep, too many to name. Here's one...Once a HCP treated me very poorly, then upon learning that I have a PhD, the HCP completely changed her attitude (from nasty to pleasant) and asked for help with her dissertation. 🙄 #DSMA
Diabetes Social Media Advocacy @DiabetesSocMed
@ECEMocha It’s been a long time! Nice to ‘see’ you again. #dsma
James Elliott @Jandelliott
@Pancreassassin @joltdude I've heard a nurse say that they had a patient get confused; was injecting into the orange and eating the orange. Stopped using that education technique after that one! #dsma
Brenda Bell @tmana
Q3. Yes: I was sent to a pulmonologist for some tests. He had mostly general patients. He treated me as if I were a *thing*... #dsma
Janis N. Senungetuk @JanJava
@joltdude Yes! I saw my mom doing that just before she gave me a shot for the first time. #dsma
Emilie T @SweetHiyachica
A3. Most negative is that ERs don't know anything about T1D. Last time, they didn't let me have insulin for 6 hours when my BG was over 300. Actually in patient was horrible, too. #DSMA
John @joltdude
I got a review of the orange/apple technique before I was admitted to the hospital ... Already had *experience* with injections though #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
The response from Q3 varies between types and age. A lot of you did not have a positive experience. We are going to circle back in a few. #dsma
Pancreassassin @Pancreassassin
3c. I've had so many doctors who can't see past diabetes to make a better diagnosis. Dude, sometimes there's more to it than that! #dsma
Mike Ratrie @YOGA_O
A3 - The biggest negative experiences I've with HCPs are when shopping for a new Endo after nearly 40 years as a T1D, one nurse declared that I couldn't be T1D because I wasn't diagnosed as a child. 1/ #dsma
Janis N. Senungetuk @JanJava
RT @Pancreassassin: 3c. I've had so many doctors who can't see past diabetes to make a better diagnosis. Dude, sometimes there's more to it than that! #dsma
StephenS @StephenSType1
RT @Pancreassassin: 3c. I've had so many doctors who can't see past diabetes to make a better diagnosis. Dude, sometimes there's more to it than that! #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Q4. During your life with diabetes, have you had a positive experience with an HCP? If so, please share. #dsma
StephenS @StephenSType1
RT @DiabetesSocMed: Q4. During your life with diabetes, have you had a positive experience with an HCP? If so, please share. #dsma
StephenS @StephenSType1
Q4. Definitely Yes... my current endocrinologist is the best. I've never done better managing my diabetes. Funny how that works #dsma
John @joltdude
Most positive experience I had was somehow ending up with a hospital Endo after having no insurance... #dsma
Brenda Bell @tmana
@DiabetesSocMed Q4. My PCP and I are usually able to talk on a collegial level. Also, her DH is a PWT2D so sometimes we trade tips #dsma
Mike Ratrie @YOGA_O
A3 - part deux. Last year I had an ortho who was pretty insistent on giving me a cortisone shot; he was dismissive of my high BG concerns. Sadly, he won me over and I spent nearly a month @ 200+ #dsma
Ryan Dane 🇺🇦 @ryanryeguy89
@DiabetesSocMed A4. All the time! My Endo takes great interest in my life outside of diabetes. It's more than just an office visit. #dsma
Emilie T @SweetHiyachica
@mydiabeticheart Oh yeah! Me, too! #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @tmana: @DiabetesSocMed Q4. My PCP and I are usually able to talk on a collegial level. Also, her DH is a PWT2D so sometimes we trade tips #dsma
Pancreassassin @Pancreassassin
4. I love my endo who is on sabbatical. #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@DiabetesSocMed A4: Very happy with my health care team now. Very supportive and open to challenge. I'm even telling them the meds to put me on :P #dsma
John @joltdude
Actually seemed to understand where iv been, what im doing, and tried other things untill he said.. You need a pump... #dsma
Tim @metacman
A4. Both my last two Endos have been great: trusting, listening, caring, encouraging. Never condescending. #dsma
John @joltdude
Answered my questions, answered my emails, and returned my calls.. and didnt play games with refills #dsma
Janis N. Senungetuk @JanJava
A4. YES! I have a wonderful experience w a CDE who several times kept we alive w sample insulin when I had no $. . #dsma
Pancreassassin @Pancreassassin
4. My pediatric endo was the best though. No offense to current endo, but she was the bomb DOT COM #dsma
John @joltdude
I had a clinic PCP who was refilling my insulin scripts as I was waiting 6+ months to see an endo #dsma
Pancreassassin @Pancreassassin
Also, oh hey, I'm supposed to email my endo today... #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @ryanryeguy89: @DiabetesSocMed A4. All the time! My Endo takes great interest in my life outside of diabetes. It's more than just an office visit. #dsma
Brent @bgarner8988
@DiabetesSocMed A4. Love my current endo. Very supportive of Looping, newer technology, keto, driving to Canada to buy insulin, etc. #dsma
Renza / Diabetogenic @RenzaS
@DiabetesSocMed YES! I've been seeing the same endo for almost 18 years and have never had a bad experience with her. She is simply awesome - completely understands that it's my diabetes and I need to do things my way. And she always supports that. #DSMA
Brenda Bell @tmana
I think I'm going to have to reboot the computer to finish the phone backup... Back in a bit (maybe) #dsma
Dr. Phyllisa Deroze @not_defeated
Yes, once my Endo gave me some free samples when I was strapped and couldn't afford diabetes managment. #DSMA
Brianna @TheChronicCon
Q4: I love my team now. Everyone is great. My NP and Endo are great and I adore the LPN who works with my NP. She makes me smile every visit. Since I’m not moving around now I can build a relationship with my team. #dsma
Mike Ratrie @YOGA_O
A4 - My diagnosis doctor (internist) & last two Endos have been really great. They have treated me as an adult who can make my own decisions; they provide the expert advice. #dsma
John @joltdude
Unfortunately I have more problems with the front office staff than I do with my HCPs... #dsma
Janis N. Senungetuk @JanJava
A4. Also have a great endo for 10 years! He really listened to me and understood my frustrations. We became good friends. #dsma
jess @jessakah_
@DiabetesSocMed A4. My endo’s have all been incredible. I have had 3, 2 pediatric and now that I’m 25, an “adult doctor”, and they never make me feel inferior or guilty. I can talk to my Dr about anything, my current PCP is also incredible. I’m truly lucky!! #dsma
Janis N. Senungetuk @JanJava
RT @not_defeated: Yes, once my Endo gave me some free samples when I was strapped and couldn't afford diabetes managment. #DSMA
Matt Maggio @MaggioMatt
Sleeper issue No. 1 of 2020: Americans risking death due to unaffordability of life-essential meds due to skyrocketed prices. #insulin
Diabetes Social Media Advocacy @DiabetesSocMed
It is good to see that everyone has had a positive experience with an HCP. We are going to go back to Q3...well, kind of. #dsma
John @joltdude
Very different than that Sick Call appt at my Primary Care's office with a HCP that flat out lied in my EHR ... Said HCP blocks in PHR #dsma
Brianna @TheChronicCon
Q4: my NP always makes it a point to say something like “thank you letting me participate in your care. I know this is 24/7 and it’s not easy.” #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@not_defeated @JanJava Love the freebies. I was travelling to the USA and feared the honeymoon would end while over there so my Endo gave me insulin pens and a crash course on injecting, just in case #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Q5. If you could provide feedback on the negative interaction with the HCP, what would it be, and why? #dsma
Emilie T @SweetHiyachica
A4. The CDE I saw at diagnosis was very nice and encouraging and patient. My family and I had planned a big road trip, and she encouraged us to still go. She went back to school, and now she's my NP! #DSMA
StephenS @StephenSType1
RT @DiabetesSocMed: Q5. If you could provide feedback on the negative interaction with the HCP, what would it be, and why? #dsma
John @joltdude
Have every right to see my own data... And fire your reception desk.... #dsma
David Strain @DocStrain
To anyone in the UK complaining about the NHS, imagine if this was your idea of a good doctor experience.
Mike Ratrie @YOGA_O
@T2DRemission I initially started to educate my primary, but then I realized my education effort wasn't going to be well-received. I now keep my primary in a lane. #DSMA
Ryan Dane 🇺🇦 @ryanryeguy89
@DiabetesSocMed A5. I can't answer this question since so far it hasn't happened. #dsma
jess @jessakah_
@DiabetesSocMed A5. LEARN HOW TO SPEAK TO CHILDREN lmao that is all :-) #dsma
John @joltdude
@ryanrhyguy89 Your lucky... #dsma
Brenda Bell @tmana
Q5. Consults are there for your expertise... but they're no less people than your regular patients #dsma
Pancreassassin @Pancreassassin
5. I'm sorry if they didn't adequately cover diabetes in your med school, but if you have a question, I can probably answer it. ;) #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@DiabetesSocMed A5 Get educated! Misdiagnosis is so common and all it takes is for people to understand that a Type 2 diagnosis (no known cause) is the last conclusion to make, not the first. #dsma
jess @jessakah_
This this this this this #dsma
StephenS @StephenSType1
Q5. I'd remind them that I'm the patient and it's my diabetes. And I might show them this: https://t.co/b29KKxXuOU #dsma
John @joltdude
Oh man.. I forgot about the Plastic Surgeon from Hades when I was younger .. Before DIabetes... Told me to Shut the eff up as a child #dsma
Tim @metacman
A5. Never trust a quack quack quack. But seriously don’t be afraid to get a second opinion. Especially with major issues or changes to treatment. #dsma
Brenda Bell @tmana
I've SO had that experience, tho NOT d-related RT @jessakah_: @DiabetesSocMed A5. LEARN HOW TO SPEAK TO CHILDREN lmao that is all : #dsma
Renza / Diabetogenic @RenzaS
@DiabetesSocMed A5. I would remind them that their words and actions stay in our minds for a long time. And that I am doing the very best I can at that moment. #DSMA
Diabetes Social Media Advocacy @DiabetesSocMed
RT @tmana: I've SO had that experience, tho NOT d-related RT @jessakah_: I've SO had that experience, tho NOT d-related RT @jessakah_: @DiabetesSocMed A5. LEARN HOW TO SPEAK TO CHILDREN lmao that is all : #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @RenzaS: @DiabetesSocMed A5. I would remind them that their words and actions stay in our minds for a long time. And that I am doing the very best I can at that moment. #DSMA
John @joltdude
Did not ask, did not say Can you be quiet so i can work.. No.. Told a youngish kid to Shut the eff up in front of my mother.. #dsma
Hope Warshaw RD CDCES @HopeWarshaw
RT @RenzaS: Hey #DSMA! Renza here from Melbourne Australia. It's been a long time since I managed to visit DSMA land!
Mocha @ECEMocha
Q4. My current endo is pretty awesome. He's good about working with me (not just giving directions) #dsma
Brenda Bell @tmana
@joltdude My dad would have told that doc where to get off, in No Uncertain Terms. He made sure our docs treated us as intelligent ppl #dsma
NextWaveT2D @nextwavet2d
A5: Y’know, although I had a negative experience, it really motivated me to do well (and in a way, it still does), so I guess the feedback would, be: you didn’t break me, but I don’t think this approach is for most people. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Amen! This happens way too often. #dsma
Brenda Bell @tmana
Dang, I think I need to do a total shut down and reboot, not just a warm boot... #dsma
John @joltdude
Brenda: Got Karmic Revenge a few times.... #dsma
Janis N. Senungetuk @JanJava
A5. I'd tell him to listen & make an attempt 2 hear what I was saying. Leave all of his disbelief at the exam room door & start fresh. #dsma
Mocha @ECEMocha
Q5. I wouldn't even know where to begin. #dsma
Dr. Phyllisa Deroze @not_defeated
5. The degrees that I have should never be an indicator as to how well I am treated. #DSMA I think it's important that we are all treated with good care.
StephenS @StephenSType1
RT @JanJava: A5. I'd tell him to listen & make an attempt 2 hear what I was saying. Leave all of his disbelief at the exam room door & start fresh. #dsma
Janis N. Senungetuk @JanJava
RT @not_defeated: 5. The degrees that I have should never be an indicator as to how well I am treated. #DSMA I think it's important that we are all treated with good care.
Diabetes Social Media Advocacy @DiabetesSocMed
@Carriellaandgaz I am so sorry to hear that. I hope you were able to find someone who understands you and your diabetes now. #dsma
Hope Warshaw RD CDCES @HopeWarshaw
FYI y’all...Today 1A NPR radio show was focused on insulin pricing. I’m on a plane to CLT. Listening to the podcast now. A rep from @AmDiabetesAssn is on with parent of child with #T1D #dsma @NPR
Mike Ratrie @YOGA_O
A5 - Feedback for negative HCP experience? 1 - Get some continuing Ed creds b4 spouting out nonsense 2 - Chronic condition means I spend over 60,000 hours a year with this condition, so don't dismiss my experience #dsma
Emilie T @SweetHiyachica
A5. Everyone in ER needs to train on T1D and DKA. There should be floor nurses who take extra training in T1D and assign those to T1D patients. And they should let me use my pump while I'm an in patient! #DSMA
Hope Warshaw RD CDCES @HopeWarshaw
RT @tmana: @DiabetesSocMed Q4. My PCP and I are usually able to talk on a collegial level. Also, her DH is a PWT2D so sometimes we trade tips #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Amazing feedback: 1) Treat the person first, diabetes second 2) You cannot talk to people like crap 3) Education on all types of diabetes is a must 4) scare/fear tactics do not work #dsma
Hope Warshaw RD CDCES @HopeWarshaw
RT @JanJava: A4. YES! I have a wonderful experience w a CDE who several times kept we alive w sample insulin when I had no $. . #dsma
Tim @metacman
RT @DiabetesSocMed: Amazing feedback: Amazing feedback: 1) Treat the person first, diabetes second 2) You cannot talk to people like crap 3) Education on all types of diabetes is a must 4) scare/fear tactics do not work #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
We have time for one or two more questions. I cannot keep up! This is an amazing conversation. #dsma
John @joltdude
Yeah there is a lot of... When in doubt, blame Diabetes and the patient for everything wrong... #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@T2DRemission @DiabetesSocMed If there is a chart saying you cannot get on the ride after this age, it is wrong :) #dsma
Mike Ratrie @YOGA_O
Some things to consider if you're a HCP struggling with connecting with your patients #DSMA
jess @jessakah_
I haven’t participated in a #dsma talk in a WHILE and I’m so glad this is the one I came back to ☺️☺️☺️
Diabetes Social Media Advocacy @DiabetesSocMed
Q6. True or false: Stick and stones may break your bones, but words will never hurt you. #dsma
Renza / Diabetogenic @RenzaS
RT @DiabetesSocMed: Amazing feedback: Amazing feedback: 1) Treat the person first, diabetes second 2) You cannot talk to people like crap 3) Education on all types of diabetes is a must 4) scare/fear tactics do not work #dsma
StephenS @StephenSType1
RT @DiabetesSocMed: Q6. True or false: Q6. True or false: Stick and stones may break your bones, but words will never hurt you. #dsma
Janis N. Senungetuk @JanJava
RT @DiabetesSocMed: Q6. True or false: Q6. True or false: Stick and stones may break your bones, but words will never hurt you. #dsma
John @joltdude
false #dsma
Pancreassassin @Pancreassassin
6. False. I've heard some real zingers in my day that still sting to this day. #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@SweeterCherise A6: False. Words matter and contribute to diabetic burnout is used poorly. That can not only hurt, it can kill. #dsma
NextWaveT2D @nextwavet2d
A6: False, words hurt, but if they do hurt, I’m not going to let you have the last word. #dsma
Janis N. Senungetuk @JanJava
A7. False. Words can do lots of damage! #dsma
Brianna @TheChronicCon
Q6: false. Words hurt. A lot. #dsma
Mike Ratrie @YOGA_O
That's a great success story! #DSMA
John @joltdude
Some words are the equivalent of verbal assault.. #dsma
Ryan Dane 🇺🇦 @ryanryeguy89
@DiabetesSocMed A6. Hard to say. I'm not easily offended, so it would take a lot to say true. #dsma
Janis N. Senungetuk @JanJava
RT @joltdude: Some words are the equivalent of verbal assault.. #dsma
Brenda Bell @tmana
6. They hurt in different ways. Names can empower you or oppress you, or overwhelm you. They can tag you and make you insignificant #dsma
StephenS @StephenSType1
Q6. False. I tend to get angry rather than hurt these days, but regardless, #LanguageMatters #dsma
Janis N. Senungetuk @JanJava
RT @ryanryeguy89: @DiabetesSocMed A6. Hard to say. I'm not easily offended, so it would take a lot to say true. #dsma
StephenS @StephenSType1
RT @joltdude: Some words are the equivalent of verbal assault.. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
RT @ryanryeguy89: @DiabetesSocMed A6. Hard to say. I'm not easily offended, so it would take a lot to say true. #dsma
John @joltdude
Though the reverse can be just as damaging.. Sugarcoating something and making it seem "minor" #dsma
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@joltdude You said 'sugarcoating' in a D-forum hehehe :) #dsma
Renza / Diabetogenic @RenzaS
@DiabetesSocMed A6. False. Completely and utterly false. I can still remember every single negative, judgemental and stigmatising word the words spoken to me. I remember how terrible and paralysed I felt at the time and afterwards. #DSMA
Brenda Bell @tmana
Q6. May I invoke Godwin's Law by mentioning a word, starts with "n", and refers to Americans with ancestors from sub-Saharan Africa? #dsma
Renza / Diabetogenic @RenzaS
RT @StephenSType1: Q6. False. I tend to get angry rather than hurt these days, but regardless, #LanguageMatters #dsma
Renza / Diabetogenic @RenzaS
RT @PWPillBox: @SweeterCherise A6: @SweeterCherise A6: False. Words matter and contribute to diabetic burnout is used poorly. That can not only hurt, it can kill. #dsma
Janis N. Senungetuk @JanJava
RT @StephenSType1: Q6. False. I tend to get angry rather than hurt these days, but regardless, #LanguageMatters #dsma
Tim @metacman
@joltdude I will definitely be using that (sugarcoating) in a future #DDJD #DSMA
Emilie T @SweetHiyachica
A6. True and false. Sometimes what people say really gets to me. Depends on the person and their attitude. #DSMA
Diabetes Social Media Advocacy @DiabetesSocMed
RT @RenzaS: @DiabetesSocMed A6. False. Completely and utterly false. I can still remember every single negative, judgemental and stigmatising word the words spoken to me. I remember how terrible and paralysed I felt at the time and afterwards. #DSMA
The Practical Diabetic (Leon Tribe) @PracticalDeeb
@SweeterCherise The irony of a typo in a post about 'words matter' is not lost on me. #dsma
Janis N. Senungetuk @JanJava
RT @SweetHiyachica: A6. True and false. Sometimes what people say really gets to me. Depends on the person and their attitude. #DSMA
Mike Ratrie @YOGA_O
A6 - Kinda false. While I can choose to give certain words power and make others powerless on a personal level, words used incorrectly can cause others to have a skewed image of who I am and can lead to negative consequences. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
We ran out of time. I had one more question. #dsma https://t.co/dSutymrNev
Diabetes Social Media Advocacy @DiabetesSocMed
Closing thoughts...#dsma
Janis N. Senungetuk @JanJava
@DiabetesSocMed next week! #dsma
jess @jessakah_
@DiabetesSocMed A6. False. Ive been incredibly vulnerable my entire life with this disease and in high school, I had gotten into fights with people for making fun of me and my insulin pump. I developed other mental issues from things people have said to me, just one being diabulimia #dsma
Dr. Phyllisa Deroze @not_defeated
@DiabetesSocMed false. Words do hurt. #dsma
jess @jessakah_
RT @RenzaS: @DiabetesSocMed A6. False. Completely and utterly false. I can still remember every single negative, judgemental and stigmatising word the words spoken to me. I remember how terrible and paralysed I felt at the time and afterwards. #DSMA
Ryan Dane 🇺🇦 @ryanryeguy89
@DiabetesSocMed Save it for opening next week. #dsma
=ger= @fnjerseygirl
@DiabetesSocMed all i know is i have flareups all the time cuz i have conflicting diseases/disorders and haven't a clue what to eat anymore. it really sucks alot. #dsma
StephenS @StephenSType1
Closing: Super chat. Grateful for people who understand. Thank you @SweeterCherise, and I still owe you #dsma
Renza / Diabetogenic @RenzaS
@DiabetesSocMed Always lovely to pop into #DSMA. Thanks for the chat! (And for highlighting just why #languagematters!)
Tim @metacman
Great session tonight. Please plan a similar memory lane #dsma soon. Thanks👏🏻👍🏻
Janis N. Senungetuk @JanJava
Closing: Remember to BE KIND to yourself & others, but also PERSIST & RESIST hate! LOVE WINS! #dsma
Brianna @TheChronicCon
Closing... so glad I was able to chat tonight #DSMA
Mike Ratrie @YOGA_O
@DiabetesSocMed But how happy you'll be in the future when you're in need of a question ... #DSMA
Ryan Dane 🇺🇦 @ryanryeguy89
@DiabetesSocMed CT: I loved this topic! We should do it at least twice a year. Different questions each time. #dsma
Janis N. Senungetuk @JanJava
Thank you Cherise! Very good chat! #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
CT: Great conversation as always. I learned a lot and wanted to hug a lot of you. Please do not be a stranger, we hope to see you next week. #dsma https://t.co/srHzXarTBo
Emilie T @SweetHiyachica
CT: Wow, where did that hour go?! Had trouble keeping up, but great questions and great responses! So happy so many could make it to #DSMA tonight.
Janis N. Senungetuk @JanJava
RT @YOGA_O: @DiabetesSocMed But how happy you'll be in the future when you're in need of a question ... #DSMA
Diabetes Social Media Advocacy @DiabetesSocMed
@YOGA_O True! I am going to use it next week. #dsma
Mike Ratrie @YOGA_O
CT: Thanks for a wonderful hosting. I've been off for the last few weeks, so it was great to "see" you and everyone else this week. #dsma
Diabetes Social Media Advocacy @DiabetesSocMed
Thank you! I am adding it to the list. #dsma
jess @jessakah_
I missed #dsma so much 😭😭😭 so nice to speak with people who just get it sometimes. And this weeks prompted questions were amazing. Hope to be back next week!! ❤️❤️
Janis N. Senungetuk @JanJava
RT @YOGA_O: CT: CT: Thanks for a wonderful hosting. I've been off for the last few weeks, so it was great to "see" you and everyone else this week. #dsma
NextWaveT2D @nextwavet2d
Closing: had a great time tonight! So impressed with all the stories of overcoming adversity in the HCP setting. I hope everyone, even those that did not have a chance to reply, got something out of tonight. See you next week. #dsma
Brenda Bell @tmana
I need to figure out if I need to back up my contacts b/c it's an Android phone and Google manages them anyway... #dsma
Mike Ratrie @YOGA_O
I was just reading that the heroes are those who do these things ... #DSMA
Michelle Litchman, PhD, FNP @MichLitch
🙌🏽 Great tips for HCPs on how to support people with diabetes! I’ll add one. I always try to treat my own patients the way I want HCPs to treat my immigrant deaf mother. Kindness and patience (and an interpreter when needed) is key for excellent communication. #DSMA
Scott K. Johnson @scottkjohnson
RT @nextwavet2d: Closing: Closing: had a great time tonight! So impressed with all the stories of overcoming adversity in the HCP setting. I hope everyone, even those that did not have a chance to reply, got something out of tonight. See you next week. #dsma
#dsma content from Twitter.