#dsma Transcript
Healthcare social media transcript of the #dsma hashtag.
– ().
See #dsma Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Diabetes Social Media Advocacy @DiabetesSocMed Hi everyone! Welcome to DSMA. How are you doing? #dsma |
 | Mindy Bartleson (she/her) @mindy_bartleson RT @DiabetesSocMed: Hi everyone! Welcome to DSMA. How are you doing? #dsma |
 | Brenda Bell @tmana @DiabetesSocMed Still finishing up #RoshHashanah dinner #LShanahTovah5778 #dsma |
 | Kelly / Diabetes @diabetesalish RT @DiabetesSocMed: Hi everyone! Welcome to DSMA. How are you doing? #dsma |
 | Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed I'm doing alright. Long days at work, but I have the next two days off! #DSMA |
 | Mike Barry 💉 @mikebarry44 Hi #dsma. I’m fine! PWD are always*fine* #noitsnotmyBG |
| Mindy Bartleson (she/her) @mindy_bartleson Hi hi! Doing pretty dangggg well I must say! Riding a high (not just talking about a blood sugar. But that too!) #DSMA |
 | thelongpointgirl 🇨🇦 @thelongptgirl #DSMA doing great! And you? https://t.co/5pIxsVEPwS |
| Mindy Bartleson (she/her) @mindy_bartleson @SweeterCherise How are you doing??? #dsma |
| Kelly / Diabetes @diabetesalish I'm hanging in there! Is it wrong to say that I'm tired? #dsma |
 | Abby @Abby_Moschell Hi friends going to sneak in here in a little bit but my name is Abby. T1d for 15.5 yrs #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed @diabetesalish Nope, I’m tired too. #dsma |
 | Jenn C @JennMamaBear Evening all! Been fighting a cold for a couple days... I fully get the tired feeling. #dsma |
| Brenda Bell @tmana @mindy_bartleson Interesting... "HiHi" is the Morse Code abbreviation for laughter (like LOL or ROTFL online, in texts and chats, etc) #dsma |
| Mike Barry 💉 @mikebarry44 @diabetesalish #winteriscoming #dsma |
 | StephenS @StephenSType1 Good evening everyone... diabetes-related tweets heading your way during #DSMA during the next hour (or however long I can stay awake) |
| Kelly / Diabetes @diabetesalish @DiabetesSocMed Ok, glad i'm not the only one! #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed Intros: Name, connection to diabetes, blog if you have one and location and favorite thing about #dsma |
| Mike Barry 💉 @mikebarry44 @mindy_bartleson Pass the dutchie! #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson YAYYYYYY @zach618 is here! Y'all will love him! #dsma https://t.co/3L425d1VSu |
| StephenS @StephenSType1 RT @DiabetesSocMed: Intros: Intros: Name, connection to diabetes, blog if you have one and location and favorite thing about #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @StephenSType1: Good evening everyone... diabetes-related tweets heading your way during #DSMA during the next hour (or however long I can stay awake) |
| Mindy Bartleson (she/her) @mindy_bartleson RT @DiabetesSocMed: Intros: Intros: Name, connection to diabetes, blog if you have one and location and favorite thing about #dsma |
| Brenda Bell @tmana @diabetesalish @DiabetesSocMed FWIW, sleep has been at a premium this week during UCI Road World Championships #dsma |
 | Michelle Litchman, PhD, FNP @MichLitch Hi #dsma! Michelle here, I'm a diabetes NP and researcher. I love learning from YOU! I'll be in and out tonight. |
| Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Ryan, Type 1, Maryland, I love #Dsma because it's a great place to connect! #DSMA |
| StephenS @StephenSType1 Hi... Stephen from Baltimore, T1D 26 years, write & podcast at https://t.co/LxlxPhLRr2, and my favorite thing about #DSMA is: People |
 | Rachel Mayo ✨ @therachelmayo Rachel, T1D 12 years, https://t.co/FXFXlQOKmp and...you people get me. #dsma https://t.co/Cn9Ytin9Ek |
| Diabetes Social Media Advocacy @DiabetesSocMed I’m Cherise (@sweetercherise), dx’d w/ LADA in ’04, Indiana and what I like about #dsma? YOU. |
| Jenn C @JennMamaBear Jenn here, T1 for almost 13 yrs, Blog at https://t.co/mhlNy6WOA3 (it's dusty over there, careful) Fav about #dsma? All the people!! #dsma |
| Mike Barry 💉 @mikebarry44 @randallb99 @diabetesalish In 2013, we had two weeks below zero, like -20, and it snowed two feet. I swore I’d never complain about heat. Today turned AC on. #dsma |
| Brenda Bell @tmana Brenda, T2DM, currently sort-of blogging at https://t.co/kG2EKFTDvA, used to blog at @dLife and @TuDiabetes, also tried other venues #dsma |
 | Lesley Kimball @poeticlibrarian Finally here! Lesley, T1 & mom to T1, NH, https://t.co/3fmV1zQRm2, Not feeling alone! #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson Diabadass & work in the field. https://t.co/eaSVrU5X6A. Home is Boston. But currently in San Francisco. Fav thing about #DSMA? Community. |
| thelongpointgirl 🇨🇦 @thelongptgirl #DSMA Shelley pwd2 I contribute to https://t.co/KX1PP871HM and mine is https://t.co/VrIU5cgWMn, Woodstock Ont Canada FT=FUN!!!! https://t.co/MxH5gr9q3b |
| Brenda Bell @tmana Best thing about #dsma - learning more about other people's diabetes and how to help offline folk |
| Kelly / Diabetes @diabetesalish @tmana @DiabetesSocMed I don't know what that is, but OK! #dsma |
| Lesley Kimball @poeticlibrarian @zach618 Welcome! #dsma |
| Kelly / Diabetes @diabetesalish @randallb99 @mikebarry44 That's crazy hot! #dsma |
 | Chris Clem T1D @TwitchyBetes Hello #DSMA it's been a while. |
| Mindy Bartleson (she/her) @mindy_bartleson RT @tmana: Best thing about #dsma - learning more about other people's diabetes and how to help offline folk |
| Mike Barry 💉 @mikebarry44 Mike, Chicago (Naperville), T1 since 1984, like chatting #dsma |
 | Molly Johannes @mollyjoh_T1D Intro: I'm Molly from MA, T1D for 19 years, new blog to be announced (😏) & I love #DSMA for the people! |
| StephenS @StephenSType1 @TwitchyBetes Hello Chris! #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson @SweeterCherise I'm good! Whirlwind of emotions! AND SO EXCITED- and nervous. But mostly grateful for everyone! #dsma |
| Kelly / Diabetes @diabetesalish @shlymbicky @DiabetesSocMed Tm don't take this the wrong way, but YAY. #Dsma |
| thelongpointgirl 🇨🇦 @thelongptgirl @SweeterCherise #DSMA Hi back! Hope school is still going well! |
| Lesley Kimball @poeticlibrarian @mollyjoh_T1D Can't wait for the new blog! #dsma |
| Chris Clem T1D @TwitchyBetes Clem, T1D 20 yrs, SLC, fav thing is that I know it's here whenever I can make it. #DSMA |
| Diabetes Social Media Advocacy @DiabetesSocMed and for my T2 friends-I would love to hear your thoughts as well because kids are being diagnosed with type 2 #dsma |
 | The Practical Diabetic (Leon Tribe) @PracticalDeeb @DiabetesSocMed Doing well. Leon, Sydney, Australia, dx 6 months T1D LADA #DSMA |
| Lesley Kimball @poeticlibrarian @jenmaizel Congrats on a good D week :) #dsma |
| Kelly / Diabetes @diabetesalish Intro: Hi, I'm kelly, t1, east coast, blogs at https://t.co/HJ5ju6zFwU & https://t.co/RIO1NA4CrM love #Dsma & chatting with my dweeps! |
| Brenda Bell @tmana @diabetesalish @DiabetesSocMed Tonite starts the Jewish New Year (in Hebrew, Rosh HaShanah). "L'Shanah Tovah" means "have a good year" #dsma |
| Chris Clem T1D @TwitchyBetes @SweeterCherise Hello there! #dsma |
| Lesley Kimball @poeticlibrarian @randallb99 V interesting! I was dxd as young adult & my daughter at age 3... #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson @SweeterCherise ALSO. I've been weirding the kittens out with my singing and dancing. #dsma https://t.co/bCN7XAOKgO |
| Diabetes Social Media Advocacy @DiabetesSocMed Q1. What type of education, if any did you get as a child to prepare you to live w/diabetes as an adult? Who provided the education? #dsma |
| Chris Clem T1D @TwitchyBetes @diabetesalish Friend! #dsma |
| Kelly / Diabetes @diabetesalish @mikebarry44 @randallb99 Been there and my AC is on. #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @SweeterCherise @TwitchyBetes Hi Clem! #dsma |
| StephenS @StephenSType1 RT @DiabetesSocMed: Q1. What type of education, if any did you get as a child to prepare you to live w/diabetes as an adult? Who provided the education? #dsma |
| Kelly / Diabetes @diabetesalish @therachelmayo @DiabetesSocMed It must be catching! #dsma |
 | John @joltdude None because I was diagnosed as a YA #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed If you weren’t diagnosed as a kid. what do you think would be helpful for a kid with T1 or T2. #dsma |
| Lesley Kimball @poeticlibrarian Q1. Was too old at dx for this to apply to me, but very concerned about what will happen when my daughter gets to late teens... #dsma |
| Brenda Bell @tmana Q1. Not living with T1, the only education I got was watching my gparents try to manage my ggma's T2, and my other gma managing her T2 #dsma |
| StephenS @StephenSType1 RT @DiabetesSocMed: If you weren’t diagnosed as a kid. what do you think would be helpful for a kid with T1 or T2. #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson SO MANY THOUGHTS #dsma https://t.co/updN7t1gWQ |
| Mike Barry 💉 @mikebarry44 @TwitchyBetes Every now and then there’s a day off. Always sad! I tried food impromptu, which worked, and A1C vs TIR which seemed to work ok. #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed @mindy_bartleson @SweeterCherise LOL! You should be singing and dancing. I need to send you a text message. #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @DiabetesSocMed: Q1. What type of education, if any did you get as a child to prepare you to live w/diabetes as an adult? Who provided the education? #dsma |
| Molly Johannes @mollyjoh_T1D Q1: I learned a lot about diabetes from my mom & my aunt - who are both type 1. & cheesy children's books 😬 #DSMA |
| Mindy Bartleson (she/her) @mindy_bartleson RT @DiabetesSocMed: If you weren’t diagnosed as a kid. what do you think would be helpful for a kid with T1 or T2. #dsma |
| Lesley Kimball @poeticlibrarian Q1. I think it will be helpful for my daughter to get a crash course in how to advocate for herself w her medical team #dsma |
| thelongpointgirl 🇨🇦 @thelongptgirl #DSMA in my area children irregardless of type are seen through the children's hospital. They educate the parent and child. CDE/endos/RN https://t.co/G2IyrQlsyk |
 | Candy Parker @candyp4 @DiabetesSocMed At that time, it was mostly scare tactics. #DSMA |
 | Ilana Lucas @ilanalucas Hi everyone; Ilana, T1 from Toronto, dx 1997, https://t.co/icJ28fAQOT #dsma |
 | Emilie T @SweetHiyachica Emilie, IN, T1D for 9.5 years. Fav thing about #dsma is connecting. |
| Brenda Bell @tmana Q1 alt: Certainly important to know that they did NOT do this to themselves. They DO need to know that they CAN manage D, and how #dsma |
| Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Q1. I had no education at all since I was diagnosed as an adult. If I had when I was younger I would like to know insulin ratio. #dsma |
| Lesley Kimball @poeticlibrarian @mollyjoh_T1D What is up with cheesy T1 kids books?? Wanted something to share w daughter's class but gave up #dsma |
| Jenn C @JennMamaBear Q1: I think it would be helpful for better education on carb counting/guesstimating (we all do it). #dsma |
| Brenda Bell @tmana Q1 alt (cont'd): They also need to know how to deal with bullying not just from kids, but also from ADULTS who don't know better abt D #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @txdiabetic What has been discussed thus far? #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed @ryanryeguy89 Yes it is. #dsma |
| StephenS @StephenSType1 Q1. I think a simple explanation of the various types & symptoms, plus a strong statement that no one is to blame for their diagnosis #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson A1: most of edu from camp & pediatric providers. felt prepared to be adult- As much as you can. Haha. But not for transition of care. #dsma |
 | A Diabetic Comic✊🏾 @ChelcieRice Late I know #dsma |
| John @joltdude Would have liked to have found more folks in a similar predicament. Also not managed for me but with me #dsma |
| Abby @Abby_Moschell Q1 I totally wish i was better educated on transferring from kids world to adult world. #dsma |
| Chris Clem T1D @TwitchyBetes Dx 18, so got the attention of a youth via CDE and hospital. #dsma https://t.co/F68rA0OzMH |
| Lesley Kimball @poeticlibrarian Yes! RT @JennMamaBear: Q1: I think it would be helpful for better education on carb counting/guesstimating (we all do it). #dsma |
| thelongpointgirl 🇨🇦 @thelongptgirl #DSMA need compassion, patience, maybe hugs, and time to absorb and understand. https://t.co/ipusuAzg1J |
| Diabetes Social Media Advocacy @DiabetesSocMed @tmana What did you eat? #dsma |
| Kelly / Diabetes @diabetesalish Q1. When I was DX'd the hospital gave me a book called "Mr Hypo Is My Friend," with a giant walking, talking 💉 on the cover. #NoJoke #dsma https://t.co/GIwUxmJdw0 |
| Ilana Lucas @ilanalucas Q1. Don't know how to answer. Was misdiagnosed at 12, correctly dx at 15, went straight to adolescent angst. Maintenance, not prep. #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @poeticlibrarian: Q1. Was too old at dx for this to apply to me, but very concerned about what will happen when my daughter gets to late teens... #dsma |
| A Diabetic Comic✊🏾 @ChelcieRice My show got cancelled tonight so I'm hanging with you folks tonight #dsma |
| Mike Barry 💉 @mikebarry44 Q1 had cool endo and CDE. And then used insulin like something you’d buy at a Dead show for 25 years. #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed @ryanryeguy89 Enjoy!! #dsma |
| StephenS @StephenSType1 I was diagnosed as an adult, BTW #dsma |
| Lesley Kimball @poeticlibrarian Agree! RT @Abby_Moschell: Q1 I totally wish i was better educated on transferring from kids world to adult world. #dsma |
| Brenda Bell @tmana @DiabetesSocMed Traditionalish: started off with kiddush (wine), apple dipped in honey, challah dipped in honey (for a sweet year) #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson @poeticlibrarian I answered yes for being for adult. But it would be a no for teen years. #dsma |
| Jenn C @JennMamaBear Q1 Better instruction on what D is and what it does to you so you can better explain it when people give you weird looks. #dsma |
| Lesley Kimball @poeticlibrarian @joltdude "not for me, but with me" Very well said #dsma |
| Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed I almost forgot. #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @StephenSType1: Q1. I think a simple explanation of the various types & symptoms, plus a strong statement that no one is to blame for their diagnosis #dsma |
| Ilana Lucas @ilanalucas Q1. Diabetes is the best intro to the adult world: it's capricious, doesn't care about you, is unfair and takes your time and money. #dsma |
| Kelly / Diabetes @diabetesalish @tmana @DiabetesSocMed Yes, I know that. I was talking about your tweet re: road warrior championships. #dsma |
| Brenda Bell @tmana @DiabetesSocMed For the main, we had salad, London Broil, and corn on the cob #dsma |
| Rachel Mayo ✨ @therachelmayo Q1. Diagnosed as an adult. Education was lacking, to say the least. #dsma https://t.co/SfIqEfpzTg |
| Mindy Bartleson (she/her) @mindy_bartleson RT @shlymbicky: #DSMA need compassion, patience, maybe hugs, and time to absorb and understand. https://t.co/ipusuAzg1J |
 | Bec @sweetandsourt1 Hi there! Dropping in as Im a PWD and a youth rep for a transition support service in Australia :) #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed RT @ilanalucas: Q1. Don't know how to answer. Was misdiagnosed at 12, correctly dx at 15, went straight to adolescent angst. Maintenance, not prep. #dsma |
| StephenS @StephenSType1 RT @JennMamaBear: Q1 Better instruction on what D is and what it does to you so you can better explain it when people give you weird looks. #dsma |
| Jenn C @JennMamaBear Same here RT @therachelmayo: Q1. Diagnosed as an adult. Education was lacking, to say the least. #dsma https://t.co/75w2GIOywC |
| Kelly / Diabetes @diabetesalish @LawrPhil Hey, Rick! #dsma |
| Kelly / Diabetes @diabetesalish @randallb99 @mikebarry44 Me either ! #dsma |
| Mike Barry 💉 @mikebarry44 @ChelcieRice Like to see you but sorry about your show #dsma |
| Chris Clem T1D @TwitchyBetes RT @tmana: Q1 alt (cont'd): Q1 alt (cont'd): They also need to know how to deal with bullying not just from kids, but also from ADULTS who don't know better abt D #dsma |
| Brenda Bell @tmana @ChelcieRice Sorry to hear abt the cancellation. Glad to see you here with us. #dsma |
| Jenn C @JennMamaBear @LawrPhil It's almost time to bring Blankie out! First day of autumn is Friday. #blankieboy #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @poeticlibrarian: @joltdude "not for me, but with me" Very well said #dsma |
| Lesley Kimball @poeticlibrarian I had great initial education - but was also a very engaged patient; learned quickly I had to advocate for myself with adult docs #dsma |
| A Diabetic Comic✊🏾 @ChelcieRice @tmana No biggies, the booked some band. I'll be back in a couple of weeks #dsma |
| Bec @sweetandsourt1 A1 I was an adolescent so my endo/CDE gradually brought in topics like driving, finishing school etc. No very formal transition though #dsma |
| Abby @Abby_Moschell Q1 I grew up at the age of 9. Learned how to do most of the stuff myself at a young age. That is probably why I am a bad carb counter. #dsma |
| Mike Barry 💉 @mikebarry44 @diabetesalish LFMAO! Do you still have it? Mr. Hypo is a great band name! #dsma |
| Kelly / Diabetes @diabetesalish Q1/ con't mr. hypo narrated the whole book. it was...interesting. #dsma https://t.co/GIwUxmJdw0 |
| John @joltdude Still felt I was left high and dry as an adult #dsma |
| Emilie T @SweetHiyachica A1. Diagnosed as adult. Don't understand why no ongoing education. Here's how to give shots, see ya. I have to ed myself via #doc #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed We’re getting ready for Q2…BRB…I need glucose tablets. #dsma |
| Brenda Bell @tmana Make that three (and worse, b/c I'm T2) https://t.co/EwNq1n3L4P #dsma |
| Kelly / Diabetes @diabetesalish Q1/ con't mr. hypo narrated the whole book. it was...interesting. #dsma https://t.co/JGzVskejIv |
| StephenS @StephenSType1 @SweeterCherise Take care of you... Q2 can wait #dsma |
| Brenda Bell @tmana @SweetHiyachica Education costs money. SOMEONE (or some company) is unwilling to pay. #dsma |
| Chris Clem T1D @TwitchyBetes @ChelcieRice Hey there! #dsma |
| Bec @sweetandsourt1 @diabetesalish ... disturbing yet oddly hilarious #dsma |
| John @joltdude Still have that haunting comment I heard from a parents. Nothing tastes as good as healthy blood sugars. Doesn’t work for dieters too #dsma |
| Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Yes, take care of yourself. We can wait. #DSMA |
| Michelle Litchman, PhD, FNP @MichLitch @sweetandsourt1 I'd love to hear about the transition program you have! #dsma |
 | Buzz Bishop @buzzbishop Want some awareness about what it’s like to live win diabetes? Just scroll #dsma right now. The weekly twitter chat is on now. #EndDiabetes |
| Kelly / Diabetes @diabetesalish @mikebarry44 @randallb99 The also survived without heat and hot water. #NoWay #dsma |
| Lesley Kimball @poeticlibrarian @joltdude Glad I never heard that one! Have never said it to my daughter either #dsma |
| StephenS @StephenSType1 @DiabetesHeroes That's exactly what they had me do the first time! Second time, for real in my leg #dsma |
 | Kenny @kenny_pal2 Let's talk about " #dsma " right now - Chat channel (free) https://t.co/iPvdewgIfZ |
 | Douglas @salguodmai Late to #dsma but here Doug from North Metro MN looking through the questions to get caught up |
| Diabetes Social Media Advocacy @DiabetesSocMed Q2. What was most helpful to you as you moved from childhood to adulthood with diabetes? what was most helpful to you when dx? #dsma |
 | Anna Dalton @annatdalton Hello! NP student from Utah coming back for a second week! What education do you feel would be most beneficial? #dsma |
| StephenS @StephenSType1 RT @DiabetesSocMed: Q2. What was most helpful to you as you moved from childhood to adulthood with diabetes? what was most helpful to you when dx? #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed @ryanryeguy89 Will do. I’m eating glucose tabs as I type. #dsma |
| Brenda Bell @tmana @poeticlibrarian @joltdude It's that whole idea of education via shame. It was the thing a half-century ago... #dsma |
| John @joltdude Only had an Apple when I learned non D injections. Just handed me a syringe and guided it for D #dsma |
| Bec @sweetandsourt1 @MichLitch The site seems to be down but this is a rundown: https://t.co/1XZRn7wsKJ Caseworker support. I used the service and now advocate :) #dsma |
| Chris Clem T1D @TwitchyBetes @DiabetesSocMed Get em! I need opposite. 💉 #DSMA |
| Douglas @salguodmai #dx at age 20 so I suppose none A1 #dsma |
| Molly Johannes @mollyjoh_T1D Q2: When diagnosed, my parents' support was everything. As an adult? @CollegeDiabetes was an incredible resource (& still is) #DSMA |
| Brenda Bell @tmana Q2. What was most helpful to me was my background in Indexing & Abstracting so I could research online and throw away the hype #dsma |
| Mike Barry 💉 @mikebarry44 @DiabetesSocMed ? That’s what the canarble wagon is for... #dsma |
| Lesley Kimball @poeticlibrarian I'm feeling lucky... no orange training! when daughter dxd we refused the offer of a practice orange... just delaying the inevitable #dsma |
| Chris Clem T1D @TwitchyBetes @salguodmai Heeeeey #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed RT @poeticlibrarian: I'm feeling lucky... no orange training! when daughter dxd we refused the offer of a practice orange... just delaying the inevitable #dsma |
| Jenn C @JennMamaBear Q2 The most helpful was being told it was okay to have a couple "cheat days". At the time it eased my mind... #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @annatdalton Hi Anna! Love that you came tonight! #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @DiabetesSocMed: Q2. What was most helpful to you as you moved from childhood to adulthood with diabetes? what was most helpful to you when dx? #dsma |
| Lesley Kimball @poeticlibrarian @tmana @poeticlibrarian @joltdude Still way too much shame involved even now #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @joltdude Did you get a follow-up visit soon after? #dsma |
| Kelly / Diabetes @diabetesalish Agreed Re: band name& no,I made my mom throw it out when my parents sold the house I grew up in. I made her toss a lot of my d stuff🙄😖 #dsma https://t.co/9rutly3LpA |
| StephenS @StephenSType1 Q2. I was just given a directive to give insulin injections twice per day & the basics of the exchange diet. That's all I had to go on #dsma |
| Bec @sweetandsourt1 A2 my transition care coordinator was amazing during transition when I fell through the system. At dx best support was my educators #dsma |
| Mike Barry 💉 @mikebarry44 Q2 figuring out MDI on my own, in like 1986 #dsma |
| Douglas @salguodmai A2) Not sure #dsma is for me tonight, sometimes I feel like I'm really not a full on diabetic bc of the whole childhood factor https://t.co/DhfoT3qx5b |
| Lesley Kimball @poeticlibrarian @SweeterCherise @poeticlibrarian She was only 3 so we did it all at first. Got her on a pump within 30 days of diagnosis which helped #dsma |
| Brenda Bell @tmana @poeticlibrarian Diet options, testing, understanding numbers, understanding effects of food (food itself, serving size, rest of meal) #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson A2: learning from peers. For both! #dsma |
| Kelly / Diabetes @diabetesalish @sweetandsourt1 I agree! #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @sweetandsourt1 Thank you! I'll take a look once #dsma is over. Curious, how did it help/not help you. |
| Mike Barry 💉 @mikebarry44 @diabetesalish “Out, out damned spot!” #dsma |
| Lesley Kimball @poeticlibrarian @SweeterCherise @poeticlibrarian AND - I had been doing my own injections for a long time so I didn't need the practice :( #dsma |
| thelongpointgirl 🇨🇦 @thelongptgirl #DSMA Q2 I'm supposing. can't treat a child the same as teen. Teens need someone with skill to work with them without judgement. Understand https://t.co/t6kvWsmxAt |
| Ilana Lucas @ilanalucas Q2. At dx, allowing me to make my own choices was bad for my health, but likely a psychological necessity. #dsma |
| Brenda Bell @tmana @salguodmai Hey, sometimes I feel that way being T2 on lowest-dose metformin here w/ pumpers & would-be-closed-loopers #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @shlymbicky: #DSMA Q2 I'm supposing. can't treat a child the same as teen. Teens need someone with skill to work with them without judgement. Understand https://t.co/t6kvWsmxAt |
| Jenn C @JennMamaBear @iamsqueeisback Having to do it all myself from the start was overwhelming too. I can only imagine how much more so for kids... #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed RT @StephenSType1: Q2. I was just given a directive to give insulin injections twice per day & the basics of the exchange diet. That's all I had to go on #dsma |
| Candy Parker @candyp4 My endocrinologist when I moved to adulthood. Compassionate and never expects perfection. My family when dx'd Determined to learn. #DSMA https://t.co/oGlrXDs5Jx |
| Mindy Bartleson (she/her) @mindy_bartleson @shlymbicky YASSSSSSSSSSSS. #dsma |
 | Gautam Narang @hylozoists Good Morning everyone, weather in Bombay was wonderful, so went for a early morning walk. Gautam Narang t1d, from Indi? #DSMA |
| Emilie T @SweetHiyachica A2. Most helpful when diagnosed as adult: the #doc, specifically the Children with Diabetes forum & @sixuntilme #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @joltdude Wow! Visiting nurse? Not sure I could get that approved here in UT for a new Dx of diabetes unless there were other circumstances. #dsma |
| Bec @sweetandsourt1 @MichLitch It helped as my transition wasn't smooth at all! My transition coord helped me find the best endo for me, and walked me through it #dsma |
| Ilana Lucas @ilanalucas Q2. Transition from child to adult just sort of happened. Getting a pump at 25 was a MUCH bigger transition-that felt like d-adulthood #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @StephenSType1 How did the follow-up go? Too soon? Not soon enough? #dsma |
| Chris Clem T1D @TwitchyBetes I always feel like it should include previous dr refer & talk to new Dr. #dsma https://t.co/BMmZGu35qN |
| Douglas @salguodmai @SweeterCherise Wait, what...there is a problem with my pancreas? #dsma |
| Lesley Kimball @poeticlibrarian Q2. At my diagnosis both endo & cde had T1--great for education. By time of daughter's dx, we knew questions to ask to get needs met #dsma |
| Brenda Bell @tmana @shlymbicky Teens THINK they know everything. Need to guide but make them think the GOOD decisions are THEIRS #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @salguodmai What about any other transition? Maybe marriage? Kids? New job? #dsma |
| Bec @sweetandsourt1 @ilanalucas Hard to get that balance isn't it #dsma |
| Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Q2.I can't answer from childhood as you already know I was diagnosed as an adult, but most helpful was support from my primary care. #dsma |
| Kelly / Diabetes @diabetesalish @mikebarry44 She kept all of my old records – all The notes she took on legal pads at every dr's apt & I made her get rid of it all. I regret it. #dsma |
| Lesley Kimball @poeticlibrarian Like this idea RT @TwitchyBetes: I always feel like it should include previous dr refer & talk to new Dr. #dsma https://t.co/OUgTaQJVXr |
| Mindy Bartleson (she/her) @mindy_bartleson RT @poeticlibrarian: Q2. At my diagnosis both endo & cde had T1--great for education. By time of daughter's dx, we knew questions to ask to get needs met #dsma |
 | George Simmons @ninjabetic Hi. I'm like months late. I'm George. T1 #dsma |
| Jenn C @JennMamaBear RT @DiabetesHeroes: Time is the great educator in diabetes. Every day you learn something new about your diabetes. Every effing day! #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @tmana: @shlymbicky Teens THINK they know everything. Need to guide but make them think the GOOD decisions are THEIRS #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed Side note: I’m glad they got rid of the exchanges. One word…confusing. #dsma |
| StephenS @StephenSType1 @MichLitch I didn't see an endo for a number of years. Just an internist, who was great but focused on A1c and that's all. It was 1991 #dsma |
| Lesley Kimball @poeticlibrarian @DiabetesHeroes So true! #dsma |
| Gautam Narang @hylozoists @DiabetesSocMed Q1. No education given, 32 years back, what is being given today to a few lucky ones are instructions and advices #DSMA |
| Abby @Abby_Moschell Q2. I just moved from my peds dr last year and I am struggling so hard with it. #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed RT @candyp4: My endocrinologist when I moved to adulthood. Compassionate and never expects perfection. My family when dx'd Determined to learn. #DSMA https://t.co/oGlrXDs5Jx |
| Ryan Dane 🇺🇦 @ryanryeguy89 @therachelmayo Sure was. I had no idea what type 1 was until I was dxd. #dsma. |
| George Simmons @ninjabetic @iamsqueeisback SQUEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE!!!!! #dsma |
| A Diabetic Comic✊🏾 @ChelcieRice @ninjabetic Bruh. #dsma |
| StephenS @StephenSType1 @DiabetesSocMed Menu during recent hospital stay included carb counts AND exchange values (?) #dsma |
| Chris Clem T1D @TwitchyBetes #dsma ⬇️ https://t.co/fJvmqXo6JY |
| Ilana Lucas @ilanalucas @sweetandsourt1 Especially when you're a moody teen and everything is off-balance anyway #dsma |
| Abby @Abby_Moschell Q2. I do like with this adult dr I can bring my meter/pump in and get things figured out in between visits no questions asked #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @StephenSType1 Diabetes is so much more than A1C! My goal is to help people have trouble shooting skills & a support system. What am I missing? #dsma |
| George Simmons @ninjabetic @ChelcieRice Yo! Good to see you! #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @ryanryeguy89: @therachelmayo Sure was. I had no idea what type 1 was until I was dxd. #dsma. |
| Douglas @salguodmai @MichLitch I suppose getting connected helped me transition from a non athlete to athlete. 12x Marathon finisher. Friends help. #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed @ryanryeguy89 Did you transition from primary to Endo? How did it go? #dsma |
| Abby @Abby_Moschell Q2 AS for when I was diagnosed I feel like I was too young to know any different so I just did what they told me to do so I didn't die #dsma |
| Bec @sweetandsourt1 @DiabetesSocMed Did they? I didn't start carb grams until I got a pump! Never got the exchanges #dsma |
| Chris Clem T1D @TwitchyBetes @SweeterCherise That activity actually helped me a ton in the hospital. Needlephobia AF until that day. #dsma |
| thelongpointgirl 🇨🇦 @thelongptgirl #DSMA I would expect rebellion, some anger. Adults do it and feel it too. But we still need to listen to them. Their reality, diff than r's https://t.co/chmrM8pEMf |
| Rachel Mayo ✨ @therachelmayo Most helpful at dx was just the support from my family and close friends. When my lifestyle changed, theirs did too! #dsma https://t.co/o8IckJwy7S |
| Kelly / Diabetes @diabetesalish @mikebarry44 Yep, what did I know – I was like 20 & hated my diabetes. She was cleaning out 30 years of crap from the house & moving. #dsma |
| Lesley Kimball @poeticlibrarian I could have (and still could!) used more education around exercise & physical activity #dsma |
| Bec @sweetandsourt1 @ilanalucas Precisely! I look back and wonder why they let 14 year old me at dx take charge of anything 😂 #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @shlymbicky: #DSMA I would expect rebellion, some anger. Adults do it and feel it too. But we still need to listen to them. Their reality, diff than r's https://t.co/chmrM8pEMf |
 | Mitch Blimkie @MitchBlimkie RT @candyp4: My endocrinologist when I moved to adulthood. Compassionate and never expects perfection. My family when dx'd Determined to learn. #DSMA https://t.co/oGlrXDs5Jx |
| Bec @sweetandsourt1 YES. I know nothing except exercise brings me hypos. #dsma https://t.co/yA5OAtllEL |
| StephenS @StephenSType1 @MichLitch You're definitely on the right track. Diabetes is minute by minute, day by day. I could've used trouble shooting skills #DSMA |
| Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Sort of. I went to get blood work done because I felt terrible. BS was 800 and was hospitalized, and after that got an endo. #dsma. |
| Mindy Bartleson (she/her) @mindy_bartleson RT @poeticlibrarian: I could have (and still could!) used more education around exercise & physical activity #dsma |
| Lesley Kimball @poeticlibrarian RT @StephenSType1: @MichLitch You're definitely on the right track. Diabetes is minute by minute, day by day. I could've used trouble shooting skills #DSMA |
| Mike Barry 💉 @mikebarry44 @diabetesalish I tossed my blood-spotted pre-pump log when we moved in ‘09 and it annoys me! #dsma |
| John @joltdude RT @MichLitch: @StephenSType1 Diabetes is so much more than A1C! My goal is to help people have trouble shooting skills & a support system. What am I missing? #dsma |
| Abby @Abby_Moschell @iamsqueeisback It's confusing, It's hard, It doesn't like to listen, It is frustrating. The list goes on and on! #dsma |
| Emilie T @SweetHiyachica @MichLitch @StephenSType1 I wish my D team brought tech info (like CGM tips) to me, not the other way around. #dsma |
| Lesley Kimball @poeticlibrarian @StephenSType1 @MichLitch "I could've used trouble shooting skills" This - so much yes #dsma |
| Chris Clem T1D @TwitchyBetes @LawrPhil @SweeterCherise Ya, that's how I learned t at first (1997) and was stumped. When I learned carb counting, I started winning. #dsma |
| Abby @Abby_Moschell @iamsqueeisback YES!!! That is very accurate! #dsma |
| Gautam Narang @hylozoists #DSMA.Education only by experience,since what fits one need not fit all.Diabetes is not only unique to each one of us, it changes every day |
| John @joltdude RT @StephenSType1: Q2. I was just given a directive to give insulin injections twice per day & the basics of the exchange diet. That's all I had to go on #dsma |
| Brenda Bell @tmana @ninjabetic Hi, George! #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed Q3. What was the most harmful to you as you moved from childhood to adulthood with diabetes? primary care to endo? diabetes and work? #dsma |
| Kelly / Diabetes @diabetesalish @mikebarry44 Let's focus on the future and not what are "smooth moves, " haunt us! #dsma |
| StephenS @StephenSType1 RT @DiabetesSocMed: Q3. What was the most harmful to you as you moved from childhood to adulthood with diabetes? primary care to endo? diabetes and work? #dsma |
| Bec @sweetandsourt1 @DiabetesHeroes Haha I've heard that's common but never had to do the orange practice! #dsma |
| Mike Barry 💉 @mikebarry44 @SweeterCherise Exchange= some food, dose= some insulin #dsma |
| Chris Clem T1D @TwitchyBetes @iamsqueeisback @Abby_Moschell Mine is an adult (20yrs) and needs to get a job and move out. #dsma |
| Ryan Dane 🇺🇦 @ryanryeguy89 @therachelmayo Of course! Mine did as well. I was half way across the country at the time, but a big reason I moved back home. #dsma |
| Brenda Bell @tmana Q3. Trying to hide my dx (1st post-dx job) for fear of coworker shaming me like he did another coworker upon dx #dsma |
| Lesley Kimball @poeticlibrarian Q3. Most difficult has been forced changes of endos. Lots of turnover locally until they finally closed practice completely. #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed RT @tmana: Q3. Trying to hide my dx (1st post-dx job) for fear of coworker shaming me like he did another coworker upon dx #dsma |
| Chris Clem T1D @TwitchyBetes 😆 #dsma https://t.co/TI787fkjxn |
| Abby @Abby_Moschell @TwitchyBetes @iamsqueeisback HA! If only it was that easy right?! #dsma |
| Mike Barry 💉 @mikebarry44 @diabetesalish Back to the future, as #waronhealth lurches towards NPH! #dsma |
| Brenda Bell @tmana Q3. Most harmful in retail & phone support are company rules that don't let you carry fluid/glucose on the floor or treat as needed #dsma |
| Bec @sweetandsourt1 A3 Loss of personal support for a while. I ended up needing to go private for an endo because the public clinic didn't meet needs 1/2 #dsma |
| thelongpointgirl 🇨🇦 @thelongptgirl #DSMA guessing here. Blame would be harmful to anyone. https://t.co/wwFnGAbzCD |
| Lesley Kimball @poeticlibrarian Q3. Dealing with endos who don't work with you (as @joltdude said before) but try to impose "care" onto you #dsma |
| Ilana Lucas @ilanalucas Q3. Not having to worry about/pay for insurance -> having to worry about and pay for insurance. Life/worth now 100% linked to job. #dsma |
| Bec @sweetandsourt1 A3 2/2 I felt like a number in the public clinic who should be happy with my okay a1c (nvm fluctuations and want for more control) #dsma |
| Jenn C @JennMamaBear Q3 Most harmful was the feeling of having to start all over, and not being told it would be okay. #dsma |
| Brenda Bell @tmana @SweeterCherise No -- but I hid it from him for the better part of a year, and when he guessed, I said, "something like that" #dsma |
| StephenS @StephenSType1 Q3. Most harmful at diagnosis? Typical: I didn't know anything. Not sure why I couldn't do better. Thought it was my fault #dsma |
| Gautam Narang @hylozoists @DiabetesSocMed Q3. The transition from "what is written & accepted by all" to "even this is a possibility" was the most satisfying.It took away fear #DSMA |
| Abby @Abby_Moschell Q3 I think the hardest thing for me was the relationship I had with my peds endo and now trying to figure that out again w/ the adult1 #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed RT @hylozoists: @DiabetesSocMed Q3. The transition from "what is written & accepted by all" to "even this is a possibility" was the most satisfying.It took away fear #DSMA |
| Diabetes Social Media Advocacy @DiabetesSocMed RT @Abby_Moschell: Q3 I think the hardest thing for me was the relationship I had with my peds endo and now trying to figure that out again w/ the adult1 #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @DiabetesSocMed: Q3. What was the most harmful to you as you moved from childhood to adulthood with diabetes? primary care to endo? diabetes and work? #dsma |
| George Simmons @ninjabetic @tmana Hi Brenda!!! #dsma |
| Candy Parker @candyp4 @DiabetesSocMed Understanding diabetes at all. That's why my endo was/ is such a valuable resource. #DSMA |
| Mike Barry 💉 @mikebarry44 Q3 Chopping 1/2 my ear off in a bike wreck after a night of partying #dsma |
| Bec @sweetandsourt1 @ilanalucas That's so frightening. Honestly you're all amazing in the US for what you're dealing with insurance/price wise. It's unfair #dsma |
| Brenda Bell @tmana @SweeterCherise I was also in a sort of denial for about six months - but it was "I'll do as they say so I can prove them wrong!" #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson A3: little support in finding adult providers. #DSMA |
| Michelle Litchman, PhD, FNP @MichLitch @randallb99 How could your parents been more helpful to you? Backing off at a certain age? Something else? #dsma |
| Abby @Abby_Moschell Q3. Honestly I think work was good for me. When I was not in school my A1c was getting so much better and I felt so good. #dsma |
| Chris Clem T1D @TwitchyBetes Moved alone to a different state 1yr after dx, 19, unprepared to handle it. Took a whole year on my own to finally work things out. #dsma https://t.co/P6VBkbA3sJ |
| Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Q3. Most harmful I will answer with work. I have an active job, so sometimes I might not realize my low and when I check I may be 50 #dsma |
| Abby @Abby_Moschell Q3 cont. Now I am back at school riding the rollercoaster again and I hate it! #dsma |
| Lesley Kimball @poeticlibrarian @Abby_Moschell I have only observed how diff relationship with peds endo/daughter is from mine w adult endo. Can't imagine transition #dsma |
| George Simmons @ninjabetic Q3 my 20's I simply took my required insulin and rarely checked my bg. I would go MONTHS and never check. #dsma |
| Brenda Bell @tmana @DiabetesHeroes That's why I think the most important thing (other than facts/mgmt) is how to handle bullying and shaming #dsma |
| George Simmons @ninjabetic @SweeterCherise CHERISE!!!! I finally made it! It has been WAY too long. #dsma |
| StephenS @StephenSType1 @ninjabetic Me too #dsma |
| Chris Clem T1D @TwitchyBetes @Abby_Moschell @iamsqueeisback I keep telling him to GTFO, but he never even leaves. #dsma |
| Abby @Abby_Moschell @poeticlibrarian It is so hard. I did not go to my last peds endo appt bc I knew I was going to cry! I think thats where I went wrong #dsma |
| Ilana Lucas @ilanalucas @sweetandsourt1 I actually live in Canada; it's better than the US, but prescriptions still mostly aren't covered without insurance, which is huge #dsma |
| George Simmons @ninjabetic @StephenSType1 hello my friend! Miss you dude. #dsma |
| Bec @sweetandsourt1 @mindy_bartleson Really common, which is ridiculous when you consider how huge a deal that is #dsma |
| Brenda Bell @tmana @poeticlibrarian @Abby_Moschell I think u will do your best to guide her through that transition. Bring her w/ u into exam room etc #dsma |
| Gautam Narang @hylozoists #DSMA. It is imperative that we observe our responses and reactions, and use logic and reasoning to know more about what insulin does. https://t.co/5jhmDNCE4H |
| Molly Johannes @mollyjoh_T1D Oops temporarily forgot about #DSMA, too distracted by the #BB19 finale 🙈 |
| George Simmons @ninjabetic @diabetesalish so much <3 to you k2!!! #dsma |
| StephenS @StephenSType1 @ninjabetic You too! Hope you are well #DSMA |
| Bec @sweetandsourt1 @ilanalucas Then I certainly extend that out to Canada as well. Definitely huge #dsma |
| George Simmons @ninjabetic @DiabetesHeroes Good to see you buddy! Woot! #dsma |
| Brenda Bell @tmana @SweeterCherise Probably about the time I found that my understanding of correct #s was wrong (I thought fasting bg < 200 mg/dl) #dsma |
| Abby @Abby_Moschell @poeticlibrarian it is nice your daughter has you I am sure that will help her transition a lot! #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @schomj What do you mean by "sketchy"? #dsma |
 | Erin M Akers❤️🔥 (she/her) @ErinMAkers @DiabetesSocMed Education loosely describe what I got. "Here's how to give a shot, here's how to become obsessed with food && here's the door" #DSMA |
| Lesley Kimball @poeticlibrarian @Abby_Moschell @poeticlibrarian Except it will be right when she doesn't listen to anything I say!! #dsma |
| Brenda Bell @tmana @SweeterCherise That said, I try not to be like the stereotypical AK who can only talk about her poor health! U DON'T need to know #dsma |
| Lesley Kimball @poeticlibrarian @Abby_Moschell @poeticlibrarian That's amazing... so helpful to hear about your experience. Did you already have adult endo lined up? #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson @sweetandsourt1 Oh yeah. I'm super aware. Sadly. With the work I do. #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed Q4. If you could go back in time, what education/support would you tell your parents or HCP to give you to better prepare you? #dsma |
| Brenda Bell @tmana @SweeterCherise Most people do NOT need to know my health issues, so it's pretty much don't ask/don't tell #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @schomj Not cool. I'm so sorry! #dsma |
| Kelly / Diabetes @diabetesalish @ninjabetic Right back at you,G! ♥️♥️♥️ #dsma |
| Chris Clem T1D @TwitchyBetes @DiabetesHeroes @SweeterCherise Well I know what I'm doing tonight... how many "shots" of vodka should I use? In oz, not cc's... #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @DiabetesSocMed: Q4. If you could go back in time, what education/support would you tell your parents or HCP to give you to better prepare you? #dsma |
| Lesley Kimball @poeticlibrarian Q4. Even tho I can sometimes think of what I wish I had known, I don't know if I could have heard or understood it at that time... #dsma |
| Brenda Bell @tmana Q4. It took me long enough to realize that most of the HCPs at my PCPs facility are NOT equally good at what they do #dsma |
| StephenS @StephenSType1 RT @DiabetesSocMed: Q4. If you could go back in time, what education/support would you tell your parents or HCP to give you to better prepare you? #dsma |
 | Kelly Rawlings, MPH, PWD @KellyRawlings @zach618 Welcome! #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson A4: let's just go about and change the entire teen years' approach- parents & HCP's. (Soapbox). But listen to me (us). #dsma |
| Jenn C @JennMamaBear Q4 I'm with @iamsqueeisback MENTAL HEALTH support. They left that completely out!! #dsma |
| Mike Barry 💉 @mikebarry44 Q4 Nothing really. I had pretty good support for a year and then moved to figure it out myself. 25 years later, got a pump and did. #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @poeticlibrarian @Abby_Moschell Would it have been better if there was some sort of meet and greet with adult endos in your area? #dsma |
| George Simmons @ninjabetic Q4: That I was not alone and to try and find a community. It wasn't until I met others like me did I get my act "together." #dsma |
| Bec @sweetandsourt1 A4 that I have high standards and value a sense of control over my diabetes (if rare). I need encouragement, not told to cruise along #dsma |
| Kelly Rawlings, MPH, PWD @KellyRawlings @ChelcieRice Just "hearted." Not that your show was cancelled, but that you get to hang out w/ #dsma |
| thelongpointgirl 🇨🇦 @thelongptgirl #DSMA I needed one on one, not the group stuff. I was a different age, by a lot of yrs. first cde i met was insulting as hell. https://t.co/iwH0pLLzL5 |
| Brenda Bell @tmana RT @sweetandsourt1: A4 that I have high standards and value a sense of control over my diabetes (if rare). I need encouragement, not told to cruise along #dsma |
| Mike Barry 💉 @mikebarry44 @DiabetesHeroes @SweeterCherise “I seem to have hit a water buffalo, can I borrow that bottle...?” #dsma |
| Lesley Kimball @poeticlibrarian @MichLitch @poeticlibrarian @Abby_Moschell That sounds good! But maybe also peds endos there to ease meeting new docs? #dsma |
| Kelly Rawlings, MPH, PWD @KellyRawlings @joltdude That is the best line NOT to every say! #dsma |
| Ilana Lucas @ilanalucas Q4. Don't think I'd have listened as a teen, but HCPs, please convince kids used to excelling that support doesn't mean you're broken. #dsma |
| Chris Clem T1D @TwitchyBetes Community. Absolutely community. #dsma https://t.co/gSLgDU1o6C |
| Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Q4. I would tell parents and HCP and anyone what signs to look for. I suffered 6 months of weight loss and drinking water and peeing #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @schomj But you didn't see the power differential with the ped endo? #dsma |
| Gautam Narang @hylozoists @DiabetesSocMed Q4. I think, I would change nothing,only wish that every child w/diabetes,understands the disease through his own self, a person first #DSMA |
| Abby @Abby_Moschell Q4. Find support I don't care where it comes from but if you don't have that man life is hard by yourself and diabetes! #dsma |
| Jenn C @JennMamaBear RT @TwitchyBetes: Community. Absolutely community. #dsma https://t.co/gSLgDU1o6C |
| Ilana Lucas @ilanalucas Q4. Create a support group for teens that isn't permeated with hospital smell, so they can associate diabetes with living, not dying. #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @JennMamaBear @iamsqueeisback In a perfect world, what would be offered or done to support mental health? #dsma |
 | Eat - Sleep - Yoga @_iheartyoga I Am A Yoga Grandma Just L... Grab it=> https://t.co/xd6wSIU9O0 #yogatshirts #iloveyogar #yogalovers #yogaleggings #yogasweatshirts #dsma https://t.co/EQnjvpeHvW |
| StephenS @StephenSType1 Q4. I would give them resources for 1) Peer-to-peer support 2) Access to drugs, technology, and education #dsma |
| Abby @Abby_Moschell @poeticlibrarian @MichLitch I think it would have been nice to maybe have conversations with both my peds and my adult dr together so everyone got filled in. #dsma |
| Brenda Bell @tmana @randallb99 That sounds like "don't be a helicopter parent w/ your kid's life" #dsma |
| Lesley Kimball @poeticlibrarian Great point! And not enuf parents get this message - there are choices RT @randallb99: technology tools can sometimes be TOO MUCH #dsma |
| Candy Parker @candyp4 @DiabetesSocMed It would have helped to be aware of the consequences (dealing with now) of ignoring/denying diab. Real conseq of progressive disease. #dsma |
| Chris Clem T1D @TwitchyBetes @ninjabetic Same! #dsma |
| thelongpointgirl 🇨🇦 @thelongptgirl @randallb99 #DSMA Say more please... |
| Kelly Rawlings, MPH, PWD @KellyRawlings 1/ Q4: My parents did their best at the time. Now, I do what I can professionally & as donor to encourage "transitions" info research #dsma |
| Kelly / Diabetes @diabetesalish RT @ninjabetic: Q4: Q4: That I was not alone and to try and find a community. It wasn't until I met others like me did I get my act "together." #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed RT @KellyRawlings: 1/ Q4: 1/ Q4: My parents did their best at the time. Now, I do what I can professionally & as donor to encourage "transitions" info research #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @ilanalucas I will carry this tip with me into my practice. #dsma |
| Abby @Abby_Moschell @poeticlibrarian @MichLitch Personally I regret not talking to my peds dr in the end about transitioning bc I know she would have led me in the right direction #dsma |
| Lesley Kimball @poeticlibrarian @tmana @randallb99 Sometimes it is HCPs pushing all the tech & parents feel like they aren't doing enuf 4 child if they don't do all #dsma |
| StephenS @StephenSType1 RT @KellyRawlings: 1/ Q4: 1/ Q4: My parents did their best at the time. Now, I do what I can professionally & as donor to encourage "transitions" info research #dsma |
| Jenn C @JennMamaBear @MichLitch @iamsqueeisback Sincere inquiry into how we are doing in life, not just D. Point out important outside support as needed.. #dsma |
| Kelly Rawlings, MPH, PWD @KellyRawlings 2/ Q4 and I'm super interested in all life stage transitions: child to YA, YA to independent adult, retirement, elderly. Yay, ppl live #dsma |
| Brenda Bell @tmana @iamsqueeisback @MichLitch @JennMamaBear LOL. Of course, w/ only PCP, not unusual 4 it to b abt tendinitis, cycling, muscle tightness #dsma |
| Michelle Litchman, PhD, FNP @MichLitch @Abby_Moschell @poeticlibrarian Great idea! How to get insurance to cover. 🤔 #dsma |
| StephenS @StephenSType1 And vice versa RT @SweeterCherise: I wish there were better transitions for people who are misdiagnosed w/ type 2 & really have type 1 #dsma |
| Jenn C @JennMamaBear YES!!!!!! RT @SweeterCherise: I wish there were better transitions for people who are misdiagnosed w/ type 2 and really have type 1 #dsma |
| Brenda Bell @tmana @poeticlibrarian @randallb99 Well, that's part of society's ridiculously high expectations of parents. One reason I never had kids #dsma |
| Lesley Kimball @poeticlibrarian @MichLitch @Abby_Moschell @poeticlibrarian Stupid insurance #dsma |
| Kelly Rawlings, MPH, PWD @KellyRawlings 3/3 well, at least more ppl live so much longer w/ diabetes. We now HAVE life stages. But not all of us, & not enough of us. #dsma |
| Ilana Lucas @ilanalucas Thank you. I don't know how easy it will be, but even keeping it in mind is a significant start. #dsma https://t.co/zsSxceDzyS |
| thelongpointgirl 🇨🇦 @thelongptgirl @candyp4 #DSMA individual people, individual care plan. System is stressed, I get it but classes aren't helpful or useful if you're the outlier |
| Brenda Bell @tmana @JennMamaBear @SweeterCherise Heck, I'd rather see a full antibody and peptide check at dx and at 2-month follow-up to verify sooner #dsma |
| Kelly / Diabetes @diabetesalish Q4: I'd tell my parents & HCP to reinforce 2me that my #Diabetes wasn't my fault & that they weren't mad @ me, they were scared of D. #dsma https://t.co/nmjJWlgGVB |
| Kenny @kenny_pal2 Do you want to chat about " #dsma "? Please join the chat channel Free / Anonymous https://t.co/iPvdewgIfZ |
| Abby @Abby_Moschell @MichLitch @poeticlibrarian I feel like care conferences should just come along w/ health care of a chronic disease. #patientcentered #dsma |
| Brenda Bell @tmana @shlymbicky @candyp4 Would it be easier if, instead of same age/same type, it were varied age/same type/similar mgmt goals? #dsma |
| Ilana Lucas @ilanalucas @SweeterCherise Yes! My situation might be unusual even for that; most aren't misdx as T2 as a child then age in to T1. Very confusing #dsma |
| StephenS @StephenSType1 Could not agree more RT @SweeterCherise: also, family should be included and receive education as well. #dsma |
| Brenda Bell @tmana @SweeterCherise No. It's important. How many stories have we read on TuD and dLife abt ppl w/complications b/c of mis-dx? #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed We have a few minutes for it is time to wrap things up…Closing thoughts? #dsma |
| StephenS @StephenSType1 RT @DiabetesSocMed: We have a few minutes for it is time to wrap things up…Closing thoughts? #dsma |
| George Simmons @ninjabetic 4: That, "don't eat sugar or ketchup," is not enough education as far as diet goes. #dsma |
| Brenda Bell @tmana @SweeterCherise If family isn't educated, they can't support - and become the WRONG type of diabetes police (or high-bg enablers) #dsma |
| Lesley Kimball @poeticlibrarian @iamsqueeisback OMG - struggle so much with anxiety about disordered eating/body image for my daughter. #dsma |
| StephenS @StephenSType1 Closing: So glad I could stay up for this discussion. This topic, these questions deserve a lot more attention #dsma |
| Mindy Bartleson (she/her) @mindy_bartleson RT @DiabetesSocMed: We have a few minutes for it is time to wrap things up…Closing thoughts? #dsma |
| Abby @Abby_Moschell CT: Wait what it was just 8:15 like 5 min ago! where did the time go! Thank you guys for this great study break it really helped! #dsma |
| Ilana Lucas @ilanalucas Closing: The idea of diabetes camp made me shudder as a teen, but now I think an adult d-camp (with booze) would be kind of awesome. #dsma |
| Jenn C @JennMamaBear CT: There is a lot more now than before, but we've still a long ways to go to help all newly dx'd and transitioning from kid to adult. #dsma |
| Brenda Bell @tmana There are a lot of transitions in diabetes management: age, changing/mis diagnosis, mgmt changes. We nd a better system to manage them #dsma |
| StephenS @StephenSType1 Thanks @SweeterCherise! Get some rest... #dsma |
| George Simmons @ninjabetic Closing: Sorry I am late. Sorry I am not around much. I am gonna try because my A1C reflects my absence from the DOC. #dsma |
| StephenS @StephenSType1 RT @JennMamaBear: CT: CT: There is a lot more now than before, but we've still a long ways to go to help all newly dx'd and transitioning from kid to adult. #dsma |
| Gautam Narang @hylozoists #DSMA. Even though I interacted for a short time, it still rejuvenates just by connecting with others of the same type. Thank you. |
| thelongpointgirl 🇨🇦 @thelongptgirl #DSMA great discussion. Night all! https://t.co/v78oeMXT0L |
| Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed What? Closing thoughts already? Well, it's been another great Wednesday, and I always look forward to the next! #DSMA |
| Bec @sweetandsourt1 Thanks for having me! Transition support is so important. Check out https://t.co/1XZRn7wsKJ for a rundown of what we do in NSW Aus #dsma |
| Emilie T @SweetHiyachica CT: Always glad to have the chance to participate. Thanks everyone! #dsma |
| Lesley Kimball @poeticlibrarian CT: I have really missed #dsma - thanks for always being here, making tough topics a little easier, and bringing a sense of humor! |
| Brenda Bell @tmana @randallb99 @nickinichols21 There's a certain level of "kid, u gotta grow up sooner than expected and deal with it" needed, too #dsma |
| Lesley Kimball @poeticlibrarian @iamsqueeisback @poeticlibrarian Yes - I was lucky to get connected with therapist who specialized in chronic illness right away 1/2 #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed CT: Thank you for participating tonight. Sometimes be creative in how we answer questions that we “think” don’t pertain to us. #dsma |
| Brenda Bell @tmana The thing I suspect we've all NOT said here is that kids w/ D have to mature more quickly than their peers - accept dx. tx, etc #dsma |
| Kelly Rawlings, MPH, PWD @KellyRawlings @ninjabetic Seeing you more here would be lovely, whatever your A1C. #dsma |
| Lesley Kimball @poeticlibrarian @poeticlibrarian @iamsqueeisback And practice for daughter includes nutrition, mental health as well as medical care #dsma |
| Kelly Rawlings, MPH, PWD @KellyRawlings @poeticlibrarian Because ... #dsma ppl are smarter, kinder, more humorous, and better looking, of course. |
| Brenda Bell @tmana Mental healthcare can help these kids adjust to their "have to grow up quick" status, esp when beyond their endurance limits #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed CT: thanks for stepping outside the box to answer questions tonight. I was dx as an adult. I enjoyed learning from my ped onset peeps. #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed RT @tmana: Mental healthcare can help these kids adjust to their "have to grow up quick" status, esp when beyond their endurance limits #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed @txdiabetic great advice. #dsma |
| Lesley Kimball @poeticlibrarian @tmana I don't know if "have to" is true for all, but it seems that they do whether they have to or not. Hard. #dsma |
| Lesley Kimball @poeticlibrarian LOVE! RT @KellyRawlings: @poeticlibrarian Because ... #dsma ppl are smarter, kinder, more humorous, and better looking, of course. |
 | tagdef @tagdef Wonder what #dsma means? Look it up on https://t.co/VYMsCxW4te |
| Kelly / Diabetes @diabetesalish @nickinichols21 YW. It's hard for children to always differentiate the anger/fear adults have re: BG's, insurance crap, etc. They are kids. #dsma |
| Lesley Kimball @poeticlibrarian @schomj Cool! Will check it out #dsma |
| Erin M Akers❤️🔥 (she/her) @ErinMAkers A4: Dont talk to me about consequences 20 years down the road, my brain's only developed enough to think about NOW. STOP THE LECTURES! #DSMA |
| Diabetes Social Media Advocacy @DiabetesSocMed Good night, everyone! Have a good evening. See you next week. #dsma |
 | Stoned Kidney @stonedkidney Q3: No insurance or access to a Dr. Insulin was still avail OTC, but I was flying solo most of the 90s. #dsma https://t.co/DRd8of11qC |
| Brenda Bell @tmana @poeticlibrarian Agreed. Went through a traumatic hospital experience @ age 4, then had to endure another hospitalization @ age 5 #dsma |
| Erin M Akers❤️🔥 (she/her) @ErinMAkers @DiabetesSocMed Endos need to FOLLOW UP && ensure their patients actually find an adult doc. A lot of #PWD fall between the cracks during this time! #DSMA |
| Ryan Dane 🇺🇦 @ryanryeguy89 @DiabetesSocMed Be safe! #DSMA |
| Brenda Bell @tmana @poeticlibrarian I was able to put up with it for about half of the duration. Then it got real old, real quick. Roommate had it worse #dsma |
| Brenda Bell @tmana @schomj I was given an ADA exchange diet sheet and a low-sodium diet sheet and told to figure my way btwn the two #dsma |
| Lesley Kimball @poeticlibrarian And now, to stay up waiting to see if hypo treatment for daughter is working, or if more is needed. Oh #diabetes #dsma |
| Brenda Bell @tmana @schomj FWIW, the low-sodium sheet (1000 mg/day) had 6 slices of bread (average: 150 mg Na). Really? NONSENSE in perspective #dsma |
| Diabetes Social Media Advocacy @DiabetesSocMed @txdiabetic Wow! You’ve been participating in DSMA since you were in eighth grade? I remember when you first started tweeting with us. #dsma |
| Brenda Bell @tmana @DiabetesSocMed @txdiabetic Goes to show that age doesn't matter as much as we think it does! #dsma |
#dsma content from Twitter.