#gbdoc Transcript
Healthcare social media transcript of the #gbdoc hashtag.
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See #gbdoc Influencers/Analytics.
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GBDoc Tweetchat Host @GbdocTChost Evening everyone, and welcome to tonight's tweet chat... Parenting a child with T1D, however the questions are open ended and can be answered by anyone, all advice and help gratefully appreciated #GBDoc | |
GBDoc Tweetchat Host @GbdocTChost By way of introduction Iβm @karenjeffs, I am mum to Zoe who is T1D, she was diagnosed Feb 2018, she uses a Medtronic 640G and the Libre. Zoe is into football, netball and cricket! Iβm a general taxi service and part time pancreas! #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost So, hi all, the ice breaker I have chosen is... Nicknames π I am known at work as the original and rather unprofessional (if you ask me) Jeffers, I was also known as Harvey at another company I worked at! #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @welshscot65 @Karenjeffs Hi - croseo π #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @kathrynrosie @Karenjeffs π₯°#gbdoc | |
Dan M @danm695 @GbdocTChost Iβm Dan, dad to 10-year-old T1D daughter who used Medronic 640g and Libre. In training 11 months. New to this chat forum - keen to support my friend @Karenjeffs who Iβve learnt so much from since DDβs diagnosis. My nickname at school was βDanger Mouseβ #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @DiabeticDadUK @Karenjeffs Hi DD π#gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @danm695 @Karenjeffs Well done! obvs from DM - too funny #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @julesbhrh πππ or Flo π#gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @DiabeticDadUK was going to say keep it clean π#gbdoc | |
Matt πͺπΊ @T1MattT1 @GbdocTChost @Karenjeffs Hi Karen, I'm Matt, T1D since 1986 also using 640G and Libre. Dad to 2 girls neither of which has T1D so not sure how much input I'll have tonight. Various nicknames at different points in my life - obvious one would be Jacko. #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost Q1: We had excellent care at diagnosis, but it was all about the physical careβ¦ The one piece of care that was missing for us was the emotional and psychological side β and fundamentally for the whole family. What piece of the jigsaw was missing for you at diagnosis? #gbdoc | |
Jimmy @jimmyeatworld50 @GbdocTChost Jimmy #T1D 30 years father of 6 ankle biters, none of which are #T1D some of my friends call me Bob ππ#gbdoc https://t.co/za6OXTigH4 | |
GBDoc Tweetchat Host @GbdocTChost @kathrynrosie I am so rubbish at minecraft, my kids find me hilarious trying to build anything! π€#gbdoc | |
Literal chaos πΊπ¦ @OccamRaisedHer @GbdocTChost A1. Thatβs been a staple since I was diagnosed (when this was fields). Absolutely no psychological care #GBDoc | |
GBDoc Tweetchat Host @GbdocTChost @Presalted sad uh πIMO, physical and mental health go hand in hand #GBDoc | |
Dan M @danm695 @GbdocTChost A1: much the same experience for us, HCP did one session with DD on mental health early on in diagnosis, but nothing since, and nothing offered for the whole family to help us all adapt to our new βnormalβ #gbdoc | |
Literal chaos πΊπ¦ @OccamRaisedHer @GbdocTChost Completely agree. Treat the whole person! #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @danm695 Adapting to the new normal is the biggest thing, it does become that... but takes time and effort - both physical and mental to get to the new normal #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @thisislaurent πsome horror stories do make me appreciate the care that DD had at the start #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @DiabeticDadUK those were the days *looks wistfully into middle distance (wham posters on wall) #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @kathrynrosie tis tough, I went through a period of thinking they had got the diagnosis wrong π¬Zoe thought that one injection was going to fix her the first night in hospital βΉοΈ#gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @julesbhrh @DiabeticDadUK proper lol'ing now!!! #gbdoc | |
Deborah @T1_broccoholic @GbdocTChost Hi! Iβm Deb but known to family as Zsheebs & friends as peebso. Only me in family with #t1d, MDI for 5yrs & cgm user for 6mnths #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost Q2: Our HCP provides excellent support for Zoe to make diabuddies and learn about her T1Dβ¦ Sheβs attended diabetes club, Activity Days, Transition days from Primary to Comp. What is the best bit of support your HCP provides for you? #gbdoc | |
Deborah @T1_broccoholic @GbdocTChost The care I received after diagnosis in Chile was absolutely fantastic but absolutely nothing since moving back to the UK π€·πΌββοΈ #gbdoc | |
Dan M @danm695 @GbdocTChost A2: For me as a parent, itβs the time and flexibility they offer us to made ad-hoc appointments, talk on the phone or email for advice and support. They have never been βtoo busyβ to provide help and support when we need(ed) it #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @DiabeticDadUK umm spooky covering this later... in a question π¬ #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @fliss_r I do pick up paeds and adult care is hugely different... π#gbdoc nice touch to have had time alone with DSN to feel independent! π | |
GBDoc Tweetchat Host @GbdocTChost @kathrynrosie You have got this - yes we have! π even on the rubbish days! #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost Q3: Everyoneβs journey with their childβs T1D is different, however at the outset, what one piece of advice would you give to a family dealing with a T1D diagnosis #gbdoc | |
Literal chaos πΊπ¦ @OccamRaisedHer @GbdocTChost Q3. It becomes like second nature. It wonβt always feel this terrifying. The tech nowadays makes some of it feel β easyβ#gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @sk3ll3rs Welcome! on Q3 π #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @OceanTragic AGAIN! ππ#gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @welshscot65 V handy! #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @DiabeticDadUK As Zoe quotes, and I've seen from other ' I have Diabetes but it doesn't have me' I do sometimes get annoyed at the 'so sorry to hear that' 'poor her'... just me, not sure... #gbdoc | |
Matt πͺπΊ @T1MattT1 @GbdocTChost A3. Try not to get too obsessed with numbers as perfection is impossible. Do your best with it but don't let it stop you enjoying life. #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @JBJgirl16 eeek! that must have been horrendous! π#gbdoc | |
Dan M @danm695 @GbdocTChost A3: As @Karenjeffs told me about Ellieβs diagnosis when I was struggling with it all: βIt sucks right now, itβs relentless and never ending, but YOU HAVE GOT THIS. She will be the bravest, most resilient, complete warrior and empathic young lady because of it' So true #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @danm695 @Karenjeffs True dat! π#gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @welshscot65 I love the twitter sphere for the #gbdoc support... even if just reading tweets and knowing everyone's out thereπ | |
Serena Coleman @LiterarySa @GbdocTChost Was called Weed as a kid, now get Ser-mean-a if @DanielMColeman thinks I'm being mean! #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @DiabeticDadUK yeah, true, tis probably a natural response... and yes kids are #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost Q4: I struggle sometimes with dealing with today versus overthinking the future. Every high can start a spiral of thoughts around future complications that I have to compartmentalise. What is the biggest thing you struggle with around managing your T1D or childs T1D? #gbdoc | |
Serena Coleman @LiterarySa @GbdocTChost At diagnosis it was quite chaotic. Two days in hospital, then one clinic appointment with a DSN and discharged with very little info. GP was great #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @thisislaurent Agreed... π’... one days basal can give a straight line, the next spikey mcspike face.. #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @chloebean Great to have support network and reassurance #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @kathrynrosie yep with you on that one #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost Last question... Q5: Dealing with T1D is relentless and never ending, however what makes you proudest about you or your child dealing with T1D and what are the positives of dealing with T1D? #gbdoc | |
Serena Coleman @LiterarySa @GbdocTChost Being able to email DSN in between appointments, and getting a fairly prompt response, and having been referred for 'health coaching' which is really talking therapies for long term conditions #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @chloebean ππ#gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @Moodwife wow 4 bubbas π₯° #gbdoc | |
Dan M @danm695 @GbdocTChost Everything she deals with every single day without complaining and just gets on with itβ¦β¦ so proud of how she has adapted in the past 11 months and takes it all in her stride #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @danm695 Go Els π₯°#gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @kathrynrosie I like that! π#gbdoc | |
Jimmy @jimmyeatworld50 @GbdocTChost I suppose I'm proudest of managing my #T1D for 30 years and apart from a bit of wear and tear I'm doing OK π€π€#gbdoc | |
Serena Coleman @LiterarySa @GbdocTChost Managing my anxiety around it, although this is an improving picture #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost So BG Bingo to end... I have a score in from Zoe (I am currently working away from home), there's been a set change.. I have a horrible feeling it may have failed people... So can anyone match 21.5 #gbdoc https://t.co/0h5viJ7Qsc | |
GBDoc Tweetchat Host @GbdocTChost Or if anyone wants to match the muggle's reading, I'm using an old meter, and I'm 8.2 #gbdoc https://t.co/LD8aBfY1fO | |
Matt πͺπΊ @T1MattT1 @GbdocTChost A5. Not sure it's anything to be proud of but despite T1 had a pretty normal life really - Uni, job, kids. Always enjoy my bike rides - proud of my 200km (126 mile) one. Can't think of any positives with T1D - well it's a bit crap innit? π #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @danm695 lower than me!!! #gbdoc | |
GBDoc Tweetchat Host @GbdocTChost @OceanTragic not cheating, love it! π#gbdoc | |
GBDoc Tweetchat Host @GbdocTChost hang on, I seem to be higher than all the T1D'ers π€#gbdoc | |
Matt πͺπΊ @T1MattT1 @GbdocTChost Taming the beast. π #gbdoc https://t.co/sChkPSloHO | |
GBDoc Tweetchat Host @GbdocTChost From the scores that have come in - you're all beautifully in range! π₯°π₯°π₯° #gbdoc closest so far @jimmyeatworld50 π | |
GBDoc Tweetchat Host @GbdocTChost Well, tis 22:02 and I'm signing off... has been fun... thanks all for joining me! Bit scary but I've enjoyed myself... Diolch and thanks #GBDoc https://t.co/yvK0BIzlIN |
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