#irishmed Transcript
Healthcare social media transcript of the #irishmed hashtag.
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See #irishmed Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Lisa Davis Budzinski @lisadbudzinski RT @drlfarrell: |
| Lisa Davis Budzinski @lisadbudzinski RT @drlfarrell: |
 | Matthew Loxton is also on Mastodon @mloxton Lurking on #irishmed |
 | Bernadette Keefe MD @nxtstop1 The #Irishmed tweet chat on "Caring for the Carers/ Caregivers" is beginning now ––– #CarersWeek #CarersWeek2018 |
| Lisa Davis Budzinski @lisadbudzinski Hello everyone! Lisa here from across the pond in Florida. Cofounder of @Cpnervecenter with my dynamo partner @beckybrandt Caretaker of my husband of 31yrs #IrishMed |
 | carol moore @carolquovadis #irishmed hi there, I'm a patient & help care for Mother with Alzheimer's, dad with Parkinson's both needing 24 hour care, & daughter with complex condition |
| Bernadette Keefe MD @nxtstop1 Hello host Liam / @drlfarrell & co-host Zoe aka @CareAllianceIr & To Each of You –– Bernadette Keefe MD , delighted to join fr USA #irishmed |
| Lisa Davis Budzinski @lisadbudzinski RT @drlfarrell: |
| Lisa Davis Budzinski @lisadbudzinski @Twomey_A @Cpnervecenter @BeckyBrandt Hi Ann! ✨ #Irishmed |
| Bernadette Keefe MD @nxtstop1 The handle is : Care Alliance Irl @CareAllianceIrl ~ Hello, thank you for co-hosting #Irishmed , honoring #CarersWeek |
| Bernadette Keefe MD @nxtstop1 T1 for the chat–– RT @drlfarrell: T1 How can family carers be encouraged to identify as family carers? #irishmed |
| carol moore @carolquovadis T1 #irishmed Society needs to start valuing work of carers. I keep getting told to put parents in nursing home - (not by HCP's ) |
| Matthew Loxton is also on Mastodon @mloxton T1 what are the benefits of identifying as a carer? Perhaps that's how to start thinking about how to encourage it? #irishmed |
| Bernadette Keefe MD @nxtstop1 T1 Carers may hesitate 2self ID for many reasons: two off the bat: not being respected/recognized or not ready for responsibility #irishmed |
 | Rie Lopez, MPH (she/her) @RieOfLetters Per usual, Rie is late to the chat. I will blame it on #migraine brain. Health educator and professional patient joining you all from the Boston-ish area. #irishmed |
| Bernadette Keefe MD @nxtstop1 RT @drlfarrell: |
| Bernadette Keefe MD @nxtstop1 RT @CareAllianceIrl: |
| Lisa Davis Budzinski @lisadbudzinski RT @mloxton: T1 what are the benefits of identifying as a carer? Perhaps that's how to start thinking about how to encourage it? #irishmed |
| Bernadette Keefe MD @nxtstop1 RT @mloxton: T1 what are the benefits of identifying as a carer? Perhaps that's how to start thinking about how to encourage it? #irishmed |
 | Reinhart Gauss @ReinhartG RT @drlfarrell: |
 | Owen O'Doherty @owen_odoherty Hi all. Owen from Carefolk here... Late to the discussion, but great to be here and thanks for organizing.. necessary and timely subject #irishmed |
| Rie Lopez, MPH (she/her) @RieOfLetters T1: Since it is an unpaid job, there is a tendency to not view being a carer as work or worthy of identifying. In an ideal world, we would work to remove social stigma and start paying people a salary for their work as carers.#irishmed |
| Bernadette Keefe MD @nxtstop1 Yes, or support grps in real life–– MT @drlfarrell: T1 At minimum, identifying as carer can help link into support groups on #SoMe #irishmed |
| Lisa Davis Budzinski @lisadbudzinski @CareAllianceIrl I think it’s wonderful that there’s a #CarersWeek! #IrishMed |
| Lisa Davis Budzinski @lisadbudzinski RT @drlfarrell: |
| Lisa Davis Budzinski @lisadbudzinski RT @CareAllianceIrl: |
| Owen O'Doherty @owen_odoherty #irishmed T1. I think there are also other contributing factors 1. one sees it as a devotion to a loved one rather than a 'Carer' and 2. Admitting you are a Carer implied your loved one is in need of 'care' or charity, often hard a thing to do in a family situation... |
| Bernadette Keefe MD @nxtstop1 Ans: If isolating, or impacts work (common) Yes. MT @CareAllianceIrl: T1 Do U think is there stigma about being a family carer? #irishmed |
| Rie Lopez, MPH (she/her) @RieOfLetters @carolquovadis Agree! Carers work incredibly hard. Yet, society doesn't seem to view being a carer as worthy or worthwhile. It is incredibly frustrating! #IrishMed |
| Bernadette Keefe MD @nxtstop1 RT @owen_odoherty: #irishmed T1. I think there are also other contributing factors 1. one sees it as a devotion to a loved one rather than a 'Carer' and 2. Admitting you are a Carer implied your loved one is in need of 'care' or charity, often hard a thing to do in a family situation... |
| Bernadette Keefe MD @nxtstop1 RT @RieOfLetters: T1: T1: Since it is an unpaid job, there is a tendency to not view being a carer as work or worthy of identifying. In an ideal world, we would work to remove social stigma and start paying people a salary for their work as carers.#irishmed |
| carol moore @carolquovadis @drlfarrell @mloxton T1 Tut tut doctors suggesting alcohol when so many carers dealing with effects of alcohol abuse 😉 #irishmed |
| Lisa Davis Budzinski @lisadbudzinski @owen_odoherty I totally agree on the devotion aspect✨ When I was caring for my husband, mother & aunt all at the same time while working full time, it was out of love & devotion. I was not even aware of a term✨ #IrishMed |
| Reinhart Gauss @ReinhartG RT @drlfarrell: |
| carol moore @carolquovadis RT @RieOfLetters: @carolquovadis Agree! Carers work incredibly hard. Yet, society doesn't seem to view being a carer as worthy or worthwhile. It is incredibly frustrating! #IrishMed |
| Bernadette Keefe MD @nxtstop1 @RieOfLetters Or at least compensated in some way ––– flexible hours at work, a stipend for the caring, extra help with childcare (if have both eldercare and childcare) ––– not uncommon. #Irishmed Honoring #CarersWeek #carers #caregiving |
| Lisa Davis Budzinski @lisadbudzinski T2 Managing their time. Caregivers often find they have less time for themselves and other family members. ... Emotional and physical stress. ... Lack of privacy. ... Financial strain. ... Sleep deprivation. ... Being afraid to ask for help. ... Depression & isolation.#IrishMed |
| Bernadette Keefe MD @nxtstop1 T2 for the chat RT @drlfarrell: T2 What are the key challenges facing family carers in 2018? #irishmed #irishmed |
| Reinhart Gauss @ReinhartG RT @owen_odoherty: #irishmed T1. I think there are also other contributing factors 1. one sees it as a devotion to a loved one rather than a 'Carer' and 2. Admitting you are a Carer implied your loved one is in need of 'care' or charity, often hard a thing to do in a family situation... |
| Bernadette Keefe MD @nxtstop1 RT @drlfarrell: |
 | Alan Höward 🤦🏽♂️ @AhJaysusHowaya PUBLIC SERVICE ANNOUNCEMENT I can’t make #IrishMed tonite, but the rest of you really should - you’ll learn a lot about something you will all face someday. Tonight’s topic: Caring for carers. |
 | WillWork4Icecream @greengoddess892 RT @RieOfLetters: T1: T1: Since it is an unpaid job, there is a tendency to not view being a carer as work or worthy of identifying. In an ideal world, we would work to remove social stigma and start paying people a salary for their work as carers.#irishmed |
| carol moore @carolquovadis @drlfarrell T2 Trying to navigate systems, (16 phone calls on one transport issue is my record) & not get burnt out. #irishmed |
| Lisa Davis Budzinski @lisadbudzinski RT @AhJaysusHowaya: PUBLIC SERVICE ANNOUNCEMENT I can’t make #IrishMed tonite, but the rest of you really should - you’ll learn a lot about something you will all face someday. Tonight’s topic: Caring for carers. |
| carol moore @carolquovadis RT @nxtstop1: @RieOfLetters Or at least compensated in some way ––– flexible hours at work, a stipend for the caring, extra help with childcare (if have both eldercare and childcare) ––– not uncommon. #Irishmed Honoring #CarersWeek #carers #caregiving |
| carol moore @carolquovadis RT @22Q11_Ireland: |
| carol moore @carolquovadis RT @CareAllianceIrl: |
| Bernadette Keefe MD @nxtstop1 Caring alone, without family and friends, really difficult –––– we depend on them. RT @22Q11_Ireland: T2 Many are caring alone #irishmed |
| carol moore @carolquovadis RT @drlfarrell: |
| Lisa Davis Budzinski @lisadbudzinski I’ve found the lone “soldier syndrome” applicable when it comes to other siblings/family members not wanting to help #IrishMed |
| Bernadette Keefe MD @nxtstop1 T2 KEY point: via @climurphy: Access to respite care: planned short or long term caregiving when the burden of caring too much #irishmed |
| Lisa Davis Budzinski @lisadbudzinski Where in the world did my T2 go?! ✨#IrishMed |
| Rie Lopez, MPH (she/her) @RieOfLetters This is spot on! Carers, regardless of whom they are caring for, deserve far more supports than they receive and the ability to access them fully. #IrishMed https://t.co/T8EnEpL2ON |
| carol moore @carolquovadis RT @drlfarrell: |
| Bernadette Keefe MD @nxtstop1 T2 When caring for a younger person with serious & complex chronic disease such as progressive multiple sclerosis, it takes a team #irishmed |
| Rie Lopez, MPH (she/her) @RieOfLetters @lisadbudzinski I was thirsty and assumed it was a double serving of #tea and drank it. Sorry Lisa! #IrishMed |
| Bernadette Keefe MD @nxtstop1 T2 A team, not only of carers but also on the medical and social support side: neurologists, nurses, wound care (if paralyzed) etc #irishmed |
| Bernadette Keefe MD @nxtstop1 RT @CareAllianceIrl: |
| Owen O'Doherty @owen_odoherty T2 on an individual basis: access to info, access to respite, stress, burnout, gradual isolation creep, and gradual erosion of one's own time (despite best efforts) will continue to be the major issues. #irishmed |
| Rie Lopez, MPH (she/her) @RieOfLetters T2: Carers face a potential loss of income and even loss of identity if they have to leave the workforce. #mentalhealth strain from isolation, physical and emotional demands are challenges, as well. There is no breaks for carers. #irishmed |
| Bernadette Keefe MD @nxtstop1 @Pmjk1 @drlfarrell @OrderofMaltaIRL Outings are so important. ——#Irishmed |
| Lisa Davis Budzinski @lisadbudzinski @KJFinlay So very true✨ #IrishMed |
| Bernadette Keefe MD @nxtstop1 RT @KJFinlay: |
| Bernadette Keefe MD @nxtstop1 RT @owen_odoherty: T2 on an individual basis: T2 on an individual basis: access to info, access to respite, stress, burnout, gradual isolation creep, and gradual erosion of one's own time (despite best efforts) will continue to be the major issues. #irishmed |
| Bernadette Keefe MD @nxtstop1 RT @RieOfLetters: T2: T2: Carers face a potential loss of income and even loss of identity if they have to leave the workforce. #mentalhealth strain from isolation, physical and emotional demands are challenges, as well. There is no breaks for carers. #irishmed |
| Rie Lopez, MPH (she/her) @RieOfLetters @KJFinlay @lisadbudzinski Excellent addition and certainly one that applies to my situation. I think it is easy to question: "who am I?"#IrishMed |
| carol moore @carolquovadis @drlfarrell T3 Accept as equal partners, our GP very supportive but feel like we a nuisance to many others. Have to say the new integrated services team in Gallagher have good approach though. They ask what we need & acknowledge how difficult it is. #irishmed |
| carol moore @carolquovadis RT @KJFinlay: |
 | Nóra @nora_eats RT @drlfarrell: |
| Bernadette Keefe MD @nxtstop1 @CareAllianceIrl Indeed! Also a major problem with respite care, especially with complex patients (who are not know to the respite home)is poor quality care & worsening of condition. #Irishmed honoring #CarersWeek |
| Lisa Davis Budzinski @lisadbudzinski @KJFinlay OMGosh yes! Throwing paperwork, meds & directives at the carer can become so overwhelming #IrishMed |
| Rie Lopez, MPH (she/her) @RieOfLetters T3: In the quiet moments, many carers can see the positive role they are playing. However, we need to make sure they have respite, that down-time or time away from caring duties. Just hearing "thank you" can make a difference. #irishmed |
| Lisa Davis Budzinski @lisadbudzinski @22Q11_Ireland It truly does. A heavy toll on the carer’s adrenal & endocrine Systems as well as mental health✨ #IrishMed |
| Bernadette Keefe MD @nxtstop1 RT @DCCNIRL: |
| carol moore @carolquovadis @CareAllianceIrl T3 We use this & meditation. Would nt have got this far without it #irishmed |
 | Mimi McCormack Micah @molowa26 RT @CareAllianceIrl: |
| Lisa Davis Budzinski @lisadbudzinski @drlfarrell Oh my goodness, if only this could happen for everyone ✨ #IrishMed |
| Lisa Davis Budzinski @lisadbudzinski RT @drlfarrell: |
| Bernadette Keefe MD @nxtstop1 RT @RieOfLetters: T3: T3: In the quiet moments, many carers can see the positive role they are playing. However, we need to make sure they have respite, that down-time or time away from caring duties. Just hearing "thank you" can make a difference. #irishmed |
| Mimi McCormack Micah @molowa26 RT @Twomey_A: |
| Lisa Davis Budzinski @lisadbudzinski RT @RieOfLetters: T3: T3: In the quiet moments, many carers can see the positive role they are playing. However, we need to make sure they have respite, that down-time or time away from caring duties. Just hearing "thank you" can make a difference. #irishmed |
 | Lisa Fields @lisafieldsms RT @drlfarrell: |
| Rie Lopez, MPH (she/her) @RieOfLetters @CareAllianceIrl I have recently started using mindfulness to help with many areas of my life. I started using it for #pain management, but it is now spilling over into other areas of my life. Mindfulness along with meditation is a favorite of mine for #selfcare. #IrishMed |
| Lisa Davis Budzinski @lisadbudzinski @CareAllianceIrl And nowadays #VR can help play a vital role of sharing with the caree or getaways for the carers ✨ #IrishMed |
| Bernadette Keefe MD @nxtstop1 T3 There is a local support group for men who are caring for wives with dementia –––– These men range from 60s-80s , it's wondeful #irishmed |
| Owen O'Doherty @owen_odoherty #irishmed T3. Most Carers see the positive aspects of their role, but we are all human, burnout (combined with creeping isolation) leads to diminishing quality of sleep, etc so tackling and raising awareness & educating on self care will help mental heath. Community helps too |
| Lisa Davis Budzinski @lisadbudzinski RT @CareAllianceIrl: |
| Lisa Davis Budzinski @lisadbudzinski RT @IrishDementiaWG: |
| Lisa Davis Budzinski @lisadbudzinski This 👇✨ #IrishMed https://t.co/6Pk5KyHQoT |
| carol moore @carolquovadis T4 Better design. Example of poor design. Lovely easy to use online check in portal in tallaght hospital. Q. For this but only covers doc. Appointments & physio & some scans. But not dexa. So join q. For reception, then q for x ray. Poor Dad frazzled,tired,feels stupid #irishmed https://t.co/jQQVvNq4yc |
| Bernadette Keefe MD @nxtstop1 Or youth carers? RT @drlfarrell: T4 How to improve support 4 minority carers (such as LGBT) or members of travelling community? #irishmed |
| Lisa Davis Budzinski @lisadbudzinski RT @KJFinlay: |
| Bernadette Keefe MD @nxtstop1 T4 There are children taking care of sick mothers, or fathers before they go to school ––– Not always out in the open, known. #irishmed |
| Lisa Davis Budzinski @lisadbudzinski RT @tharry: |
| Lisa Davis Budzinski @lisadbudzinski RT @IrishDementiaWG: |
| carol moore @carolquovadis T4 #irishmed Stop with all the separate forms for every different type of service. Takes hours to complete & for people with literacy issues..... Have a Masters & find them dreadful to complete. |
| Bernadette Keefe MD @nxtstop1 T4 For the LGBTQ community, all manner of challenges RE: caregiving. Firstly , is their relationship/ their standing recognized?? #irishmed |
| Rie Lopez, MPH (she/her) @RieOfLetters T4: We are doing terribly at supporting carers from 'non-traditional' *cringe* backgrounds. In both of these instances, social #stigma needs a kicking. I would think that the traveling community would benefit from portable benefits and known & safe resource centers. #irishmed |
| Lisa Davis Budzinski @lisadbudzinski T4 Education & Awareness for every community at all times✨ #IrishMed |
| Lisa Davis Budzinski @lisadbudzinski RT @drlfarrell: |
| Bernadette Keefe MD @nxtstop1 T5 for the chat ––– RT @drlfarrell: T5 What changes would you like to see for family carers before Carers Week 2019? #irishmed |
| Rie Lopez, MPH (she/her) @RieOfLetters T4: LGBTQ+ carers need legal and societal recognition and access to the same supports. In the U.S. I have heard about carers being unable to access their loved ones in hospital. Sadly, we lack adequate #research, as well. #irishmed |
| Bernadette Keefe MD @nxtstop1 T5 No doubt some particular desires for the Irish population, but I sense that many of these issues are shared @ the world 1/ #irishmed |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @CareAllianceIrl: |
| Mimi McCormack Micah @molowa26 RT @CareAllianceIrl: |
| Bernadette Keefe MD @nxtstop1 T5 So:1/ recognition of carers by HCPs so medical/ social info easily shared & accessed, 2/some $ compensation, 3/work flexibility #irishmed |
| Rie Lopez, MPH (she/her) @RieOfLetters T5: In the US, I would like to see more people talking about carers, like we have just done in this chat. I don't expect change overnight, but we must address the stigma of carers being "less than" or overly inflated in value for their "supreme sacrifice" #irishmed |
 | Dr Patricia McCarthy @mccartpm RT @22Q11_Ireland: |
| Lisa Davis Budzinski @lisadbudzinski @Twomey_A @drlfarrell @SimonHarrisTD @jimdalytd I would love this in the US as well✨ 👏👏👏 #IrishMed |
 | Christine Collins MBE @christinezoo RT @drlfarrell: |
| Lisa Davis Budzinski @lisadbudzinski RT @Twomey_A: |
| Rie Lopez, MPH (she/her) @RieOfLetters @drlfarrell That seems like a lovely idea and very practical. Sadly, I doubt we would see such a learning program here... It would take away from "more important" subjects. #IrishMed |
| Lisa Davis Budzinski @lisadbudzinski RT @drlfarrell: |
| Bernadette Keefe MD @nxtstop1 @CareAllianceIrl Advance care directives are a must for everyone. Simply must be a given. Written and re-reviewed every JAN 1 -#irishmed |
| carol moore @carolquovadis @drlfarrell T5 1. Access to high quality respite care of family choice in home or elsewhere.2. HCP's instructed to release Patient data on request within one week. (Without having to hassle GP for help 3. Professional carers to be treated better. We would nt survive without them #irishmed |
| Lisa Davis Budzinski @lisadbudzinski @RieOfLetters @drlfarrell Home Ec should be brought back & this be on the syllabus #IrishMed |
| Rie Lopez, MPH (she/her) @RieOfLetters @CareAllianceIrl @CGraceTweet Brilliant! Thanks so much! #IrishMed |
| Bernadette Keefe MD @nxtstop1 RT @lacanlune: |
| Lisa Davis Budzinski @lisadbudzinski @HCACarersConf @clancy_care That’s what’s going on in the US. Taking life savings away & not enough oversight. All for the profit & not for true care #IrishMed |
| Lisa Davis Budzinski @lisadbudzinski RT @carolquovadis: @drlfarrell T5 1. Access to high quality respite care of family choice in home or elsewhere.2. HCP's instructed to release Patient data on request within one week. (Without having to hassle GP for help 3. Professional carers to be treated better. We would nt survive without them #irishmed |
| Bernadette Keefe MD @nxtstop1 RT @carolquovadis: @drlfarrell T5 1. Access to high quality respite care of family choice in home or elsewhere.2. HCP's instructed to release Patient data on request within one week. (Without having to hassle GP for help 3. Professional carers to be treated better. We would nt survive without them #irishmed |
| Rie Lopez, MPH (she/her) @RieOfLetters @lisadbudzinski @drlfarrell You are reading my mind again. My certification to teach health (not gym/physical education) also includes "consumer science". When I was working, I got to do nothing with that bit. Home Economics needs to come back! #IrishMed |
| Lisa Davis Budzinski @lisadbudzinski RT @flowepower66: |
| Matthew Loxton is also on Mastodon @mloxton @lisadbudzinski @RieOfLetters @drlfarrell Yes! Just not done by gender - everyone should be able to cook, clean, balance a housekeeping budget. #IrishMed |
| Bernadette Keefe MD @nxtstop1 Thanks so much host Liam / @drlfarrell and co host @CareAllianceIrl & Each of U for this important convo, honoring #CarersWeek ~ #irishmed |
| carol moore @carolquovadis @drlfarrell T6 Thanks Liam @drlfarrell for organising. Send on that alcohol free tequila would love to try it 😁 #irishmed |
| Lisa Davis Budzinski @lisadbudzinski Good night everyone & thank you for having us from across the pond ✨ #IrishMed |
| Owen O'Doherty @owen_odoherty #Irishmed Thanks for organising & @CareAllianceIrl for co-hosting. Extremely engaging insights here. https://t.co/a4AxuLMm0t |
| Rie Lopez, MPH (she/her) @RieOfLetters Thank you all for some very stimulating conversation on carers. Loved being here, as always. #irishmed |
| Bernadette Keefe MD @nxtstop1 A Carer/ Caregiving Thread ––––– Honoring #CarersWeek #CarersWeek2018 and our just concluded #Irishmed convo via host @drlfarrell and guest @CareAllianceIrl Tags: #carers #caregiving #family #friends #SeriousIllness #dementia https://t.co/e0NJJum1Sn |
| carol moore @carolquovadis #irishmed Could I just give a shout out to Tracey @addressing life currently caring for child with complex needs & fundraising for adapted home so he can come home after scoliosis op. Any help you can give appreciated. |
| Owen O'Doherty @owen_odoherty I'd like to mention also: We have a free resource for Family Carers called Carefolk Family, a private hub & tools to help with care & Carers can connect with each other for support/reduce isolation. https://t.co/rGitAHMX8K Our aim is do our bit to help address issues #irishmed https://t.co/O4SzlNrYzN |
| Reinhart Gauss @ReinhartG @Pmjk1 @drlfarrell I'm hoping to see even part of this in #Ontario #Canada in the near future #IrishMed |
#irishmed content from Twitter.