#migrainechat Transcript
Healthcare social media transcript of the #migrainechat hashtag.
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See #migrainechat Influencers/Analytics.
| Profile | Tweet |
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 | Beth Morton @beth_morton Two hrs ‘til #MigraineChat begins! We’ll ring in the New Year by talking about lifestyle changes that can support our #migraine treatment plan. We have two fabulous co-hosts from @MigraineStrong1: Eileen & Alicia (aka @thedizzycook)! See the Qs here: https://t.co/Wuemu2Ihop |
 | Migraine Strong - Eileen @MigraineStrong1 RT @beth_morton: Two hrs ‘til #MigraineChat begins! We’ll ring in the New Year by talking about lifestyle changes that can support our #migraine treatment plan. We have two fabulous co-hosts from @MigraineStrong1: Eileen & Alicia (aka @thedizzycook)! See the Qs here: https://t.co/Wuemu2Ihop |
 | Pia @MoretoreadO RT @beth_morton: Two hrs ‘til #MigraineChat begins! We’ll ring in the New Year by talking about lifestyle changes that can support our #migraine treatment plan. We have two fabulous co-hosts from @MigraineStrong1: Eileen & Alicia (aka @thedizzycook)! See the Qs here: https://t.co/Wuemu2Ihop |
 | Alicia @thedizzycook Can't wait for #migrainechat today at 12CST! |
| Beth Morton @beth_morton @MigraineStrong1 @thedizzycook Late reminder and likely the last month I'll do them. 90 minutes until #MigraineChat. See you soon: @hincmanlorie @Msronianne @Dwsktrader @neurobrainer @barkflight @Tracy330507 @rachel7mcdonald @jen9cat @sociolinguista @RhetoricalTwist @mygrainehope @MarshallAndie |
| Beth Morton @beth_morton Late reminder and likely the last month I'll do them. 90 minutes until #MigraineChat. See you soon: @Melschroeder79 @pyesmusings @Reds0602 @migrainemelon @Hacujo @migrainekrista @MarshallAndie @Alexandria_SZ @jonnynyz @JaimeGrossman |
 | sick lately, words bad (check 📌 for discord info) @bennessb RT @beth_morton: Two hrs ‘til #MigraineChat begins! We’ll ring in the New Year by talking about lifestyle changes that can support our #migraine treatment plan. We have two fabulous co-hosts from @MigraineStrong1: Eileen & Alicia (aka @thedizzycook)! See the Qs here: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton Hello everyone! Welcome to #MigraineChat! Thanks for being here today. I hope you’re doing as well as possible. If you haven’t before, take a quick moment to review the chat tips & guidelines: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton Two tips: (1) I’ll start each question w/Q1, Q2, etc. Remember to start your corresponding reply w/A1, A2, etc. (or quote tweet). (2) *Always* remember the #MigraineChat hashtag! It makes following the conversation easier & ensures your tweets make the transcript. |
| Beth Morton @beth_morton Who is joining #MigraineChat today? If you want, introduce yourself in a way you are comfortable. I’m Beth, tweeting from snowy Vermont. |
| Beth Morton @beth_morton Co-hosting today’s #MigraineChat are Eileen and Alicia, two of the incredibly knowledgeable moderators from Migraine Strong (@migrainestrong1)! I’ll let them say hello and share a bit about themselves as we continue introductions! |
 | Rebecca @PyesMusings @beth_morton Hi! Rebecca from DC #migrainechat |
| Beth Morton @beth_morton @MsRoniAnne Hi, Roni! Not really, but hanging in. I hope you're doing okay today. #MigraineChat |
 | Sari C Mauro @ArchivistSariM @beth_morton Sari, joining from Boston. #migrainechat |
| Beth Morton @beth_morton @PyesMusings Hi Rebecca! Thanks for being here today! #MigraineChat |
| Beth Morton @beth_morton @fabriKatie Hi Katie! #MigraineChat |
| Beth Morton @beth_morton @ArchivistSariM Hi, Sari! #MigraineChat |
| Beth Morton @beth_morton A few standing reminders. This #MigraineChat is purely informational. Nothing shared should be considered medical advice or a substitute for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
| Alicia @thedizzycook @beth_morton I'm Alicia, from Dallas! #MigraineChat |
| Beth Morton @beth_morton Twitter is a public forum and we are discussing health-related topics. Share only what is comfortable for you. Lastly, please refrain from posting GIFs with flashing media. They can be #migraine triggers for some. #MigraineChat |
| Beth Morton @beth_morton #Migraine is not caused by our lifestyle, but lifestyle changes can sometimes help manage attacks. The team at Migraine Strong helps their members with all aspects of “treatment pie.” Today, they are joining us as co-hosts. Let’s dive in! #MigraineChat |
| Beth Morton @beth_morton Q1. What types of lifestyles modifications have you made in an effort to lessen your #migraine frequency: e.g., sleep habits, exercise, stress reduction, diet, etc.? #MigraineChat https://t.co/kDHXPRT9cx |
| Migraine Strong - Eileen @MigraineStrong1 Hi! I’m Eileen, I’m tweeting from Ohio and I have ‘well controlled’ #ChronicMigraine. I write for https://t.co/6JNB9ueu6A and am an admin for the Migraine Strong Facebook group. https://t.co/0JZ1w8Xm9n |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton A1. Diet, regulating sleep, supplements, mindfulness and movement have been my game changers. However, because I am on the severe end of the migraine spectrum, medication still plays a big part in treatment. #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 RT @beth_morton: Q1. What types of lifestyles modifications have you made in an effort to lessen your #migraine frequency: Q1. What types of lifestyles modifications have you made in an effort to lessen your #migraine frequency: e.g., sleep habits, exercise, stress reduction, diet, etc.? #MigraineChat https://t.co/kDHXPRT9cx |
 | Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q1. What types of lifestyles modifications have you made in an effort to lessen your #migraine frequency: Q1. What types of lifestyles modifications have you made in an effort to lessen your #migraine frequency: e.g., sleep habits, exercise, stress reduction, diet, etc.? #MigraineChat https://t.co/kDHXPRT9cx |
| Sari C Mauro @ArchivistSariM @beth_morton A1. I've stopped looking to lifestype modifications to help with frequency, but I have found several that help with pain spikes -- consistent sleep schedule and consistent eating #MigraineChat |
| Alicia @thedizzycook @beth_morton A1a. I have tried so many things - a strict sleep schedule (no napping unless I'm really sick), ballet for balance, restorative yoga for mindfulness, a migraine diet, gluten/dairy free, acupuncture, cranial sacral, massage therapy w/acupressure, CBT, VRT, etc. #MigraineChat |
| Alicia @thedizzycook @beth_morton A1b. - Another big lifestyle change was leaving my stressful job in product development. They weren't supportive of my illness and made it really difficult to take care of myself and keep up with my work. It was devastating to me back then, but so worthwhile now. #MigraineChat |
| Pia @MoretoreadO @beth_morton A1. Diet, Sleep, supplementation and movement #migrainechat |
 | Jessie defund police fund abortions Losch💚🇺🇾🌱 @JessieLosch @beth_morton Hi everyone! I'm Jessie, popping into the #MigraineChat from Brooklyn, with a lovely migraine hangover! |
 | Parenting With Migraine @ParentWmigraine @beth_morton @MigraineStrong1 @EileenZollinger @thedizzycook Damn. #migrainechat !! |
| Alicia @thedizzycook RT @beth_morton: Q1. What types of lifestyles modifications have you made in an effort to lessen your #migraine frequency: Q1. What types of lifestyles modifications have you made in an effort to lessen your #migraine frequency: e.g., sleep habits, exercise, stress reduction, diet, etc.? #MigraineChat https://t.co/kDHXPRT9cx |
| Rebecca @PyesMusings @beth_morton I don’t cut into my nighttime sleep window except in extreme emergencies. Since I’ve got 2 little kids, that means my partner is basically always on night duty now that they’re weaned. I don’t eat my triggers, and I try to walk regularly but avoid cardio #migrainechat |
| Sari C Mauro @ArchivistSariM @beth_morton A1b. Though, to be honest, it's less that these these help manage the pain over all, and more that when I get away from them I can pretty much guarantee a spike in pain and overall badness (I don't know if that difference makes sense outside of my own head) #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ This is so important. People with #migraine can have seizures, and flashing lights in gifs are triggering. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: #Migraine is not caused by our lifestyle, but lifestyle changes can sometimes help manage attacks. The team at Migraine Strong helps their members with all aspects of “treatment pie.” Today, they are joining us as co-hosts. Let’s dive in! #MigraineChat |
| Beth Morton @beth_morton @ArchivistSariM It does! My migraine brain loves consistency, too. #MigraineChat |
 | Roni Jones(she/her)💉💉💉 @MsRoniAnne @beth_morton Like you not so much, but wanted to participate in #MigraineChat |
| Rebecca @PyesMusings @beth_morton A1a I don’t know if it’s a “lifestyle change,” but mindfulness habits (not meditation) and self-hypnosis are also in the mix. #migrainechat |
| Sari C Mauro @ArchivistSariM @fabriKatie @beth_morton Tw: eating schedules Yes! Like, at least there are habits I can maintain that can help me avoid the things I know consistently spike my pain. Does eating every 3 hours reduce my pain? IDK. But not eating for 6+ hours does, so the schedule helps. #MigraineChat |
| Beth Morton @beth_morton Q2. Which lifestyle modification(s) do you think have had the most positive impact on your #migraine attacks? How so? #MigraineChat https://t.co/9BmVGPq77x |
| Alicia @thedizzycook RT @beth_morton: Q2. Which lifestyle modification(s) do you think have had the most positive impact on your #migraine attacks? How so? #MigraineChat https://t.co/9BmVGPq77x |
| Rebecca @PyesMusings @ArchivistSariM @beth_morton That totally makes sense. I low key hate when people are like “do you feel better after [insert self care]?” No, but I don’t feel worse, which is a win. #migrainechat |
| Migraine Strong - Eileen @MigraineStrong1 RT @beth_morton: Q2. Which lifestyle modification(s) do you think have had the most positive impact on your #migraine attacks? How so? #MigraineChat https://t.co/9BmVGPq77x |
| Alicia @thedizzycook @beth_morton A2a. The biggest things that helped me were finding the right doctor who understood #vestibularmigraine, staying active and keeping a positive mindset as much as possible, magnesium threonate for brain fog, and the Heal Your Headache diet. #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton A2. Combining diet with preventive meds for sure. One doesn’t work without the other. Also using @calm app and ginger to help derail or limit an oncoming attack. Protecting my sleep routine will lessen my sensitivity to an attack as well. #MigraineChat |
| Alicia @thedizzycook @beth_morton A2b. A migraine diet really changed my life not just because it happened to work well, but because it allowed me to be creative somewhere when I felt pretty worthless. Cooking at home gave me a new purpose and got my mind off how horrible #VestibularMigraine is. #MigraineChat |
| Sari C Mauro @ArchivistSariM @thedizzycook @beth_morton I have found ballet to be so helpful for me, on so many levels! Balance, cognitive processing of choreography, knowing my body can do something besides be in pain, etc. I can't always make it through floor, but it's one of my joys, especially now that I'm chronic. #MigraineChat |
| Rebecca @PyesMusings @beth_morton A2 daily walk, hands-down. I’ve been having a hard time with that recently; gonna grab my phone and do it during this chat! It’s frequently a trigger in the moment, but over time reduces frequency and severity. #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q2. Which lifestyle modification(s) do you think have had the most positive impact on your #migraine attacks? How so? #MigraineChat https://t.co/9BmVGPq77x |
| Rebecca @PyesMusings @alanasaltz @beth_morton GOD I wish insurance covered massage. #migrainechat |
| Beth Morton @beth_morton @PyesMusings I think that's probably reassuring for people to hear if they are nervous about adding exercise. Starting with short walks seems do-able. #MigraineChat |
| Roni Jones(she/her)💉💉💉 @MsRoniAnne @PyesMusings @alanasaltz @beth_morton So do I. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ Making everything I eat at home had the biggest impact in somewhat reducing the number of #migraine attacks since it lets me avoid all chemicals, sweeteners, preservatives, additives, etc, some of which were definitely triggering attacks #MigraineChat |
| Beth Morton @beth_morton Q3. What lifestyle modification seemed to provide the least return on investment in terms of managing your #migraine? #MigraineChat https://t.co/Rse9RZmfSa |
| Rebecca @PyesMusings @Alexandria_SZ Yeah. The mindfulness is helpful everywhere (“this is unpleasant and I’m unhappy about it and that’s ok” is pretty universal). Self-hypnosis has to be at a relatively low starting pain level. #migrainechat |
| Migraine Strong - Eileen @MigraineStrong1 RT @beth_morton: Q3. What lifestyle modification seemed to provide the least return on investment in terms of managing your #migraine? #MigraineChat https://t.co/Rse9RZmfSa |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton A3. For me it was not doing anything and getting stuck in ‘analysis paralysis’. I talk more about it in our blog about the Treatment Pie and how we approach treating #Migraine. #MigraineChat https://t.co/0Ye9ZH3Smn |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ My insurance company literally laughed when I phoned and asked if they covered medical massage for #migraine #MigraineChat |
 | Rachel Sussman @RachelxSussman @beth_morton Rachel, joining from Pennsylvania where the sun is actually shining! #migrainechat |
| Alicia @thedizzycook @beth_morton A3a. For me, this was definitely acupuncture. I didn’t find it very relaxing to have a bunch of needles in my head and maybe that’s why! I gave it a good 4 months but decided my money was best spent on bi-weekly massage with acupressure and reflexology. #MigraineChat |
| Alicia @thedizzycook RT @beth_morton: Q3. What lifestyle modification seemed to provide the least return on investment in terms of managing your #migraine? #MigraineChat https://t.co/Rse9RZmfSa |
| Alicia @thedizzycook @beth_morton A3b. And essential oils. They smell nice, & I like the tingly feeling or ability to mask scents, but they didn’t do much for my symptoms. I used to diffuse frankincense everywhere because I read it helped with #vertigo & #dizziness. Then I gave up and took my meds😂 #MigraineChat |
| Sari C Mauro @ArchivistSariM @beth_morton A3. I tried eliminating all caffeine and chocolate, to no effect. (More substantive dietary changes aren't possible for me right now.) #MigraineChat |
| Rebecca @PyesMusings @beth_morton A3 we have to pick just one? 😉 Probably the elimination diets. Gluten, sodium, etc aren’t triggers for me, it seems, and the added stress made them a net negative. #migrainechat |
| Beth Morton @beth_morton @PyesMusings I know, right? We all have had dozens of failed experiments, I'm sure! #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ I totally agree with the low level pain for the self-hypnosis to help more with the #migraine pain reduction. Mindfulness helps reduce the stress, like @SarahLerner was mentioning, so I try to consciously be more aware of lowering stress #MigraineChat |
 | Robin Artemis social distancing @RobinArtemis1 RT @beth_morton: Q2. Which lifestyle modification(s) do you think have had the most positive impact on your #migraine attacks? How so? #MigraineChat https://t.co/9BmVGPq77x |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @MigraineStrong1: @beth_morton A3. For me it was not doing anything and getting stuck in ‘analysis paralysis’. I talk more about it in our blog about the Treatment Pie and how we approach treating #Migraine. #MigraineChat https://t.co/0Ye9ZH3Smn |
| Robin Artemis social distancing @RobinArtemis1 RT @beth_morton: Q1. What types of lifestyles modifications have you made in an effort to lessen your #migraine frequency: Q1. What types of lifestyles modifications have you made in an effort to lessen your #migraine frequency: e.g., sleep habits, exercise, stress reduction, diet, etc.? #MigraineChat https://t.co/kDHXPRT9cx |
| Rebecca @PyesMusings @Alexandria_SZ I’ve been told that DC insurance plans are required to cover it, but (a) that was 10+ years ago and (b) the federal government (which is obviously a major employer around here) doesn’t have to do what DC says, so 🤷♀️ #migrainechat |
| Alicia @thedizzycook @SarahLerner @beth_morton Overall it just decreased the severity of my daily dizziness until I had breaks. I wanted to stick with certain meds that were ok during pregnancy since I was TTC. So I started with meds & supplements which got me to about 60-70% but the diet helped me to 100% days. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @thedizzycook: @beth_morton A3b. And essential oils. They smell nice, & I like the tingly feeling or ability to mask scents, but they didn’t do much for my symptoms. I used to diffuse frankincense everywhere because I read it helped with #vertigo & #dizziness. Then I gave up and took my meds😂 #MigraineChat |
| Robin Artemis social distancing @RobinArtemis1 RT @beth_morton: Q3. What lifestyle modification seemed to provide the least return on investment in terms of managing your #migraine? #MigraineChat https://t.co/Rse9RZmfSa |
| Rachel Sussman @RachelxSussman @MigraineStrong1 @beth_morton @PyesMusings Daily walks are big for me. They don’t reduce the frequency and sometimes I walk and then have to crawl back into bed, BUT committing to walking every day that I’m physically able has been huge for my mental well-being and for recovery from the really awful days. #migrainechat |
| Beth Morton @beth_morton Q4. What #migraine-related lifestyle modification has been the easiest to make? What about the hardest change to stick with? #MigraineChat https://t.co/JxhzzHAM97 |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ And since each insurance company gets to decide what it wants to do, we're the ones who ultimately suffer twice in any of these situations: pay for the alternative treatment ourselves AND suffer from #migraine attacks #MigraineChat |
| Rebecca @PyesMusings @SarahLerner @beth_morton My only neuro who actually gets migraines himself told me that people generally know their triggers, and often hate them because they associate them with feeling shitty. Which seems accurate in my case, anyway. #migrainechat |
| Sari C Mauro @ArchivistSariM @SarahLerner @beth_morton Same! And honestly, the cost-benefit analysis, for me, doesn't make the elimination diet make sense for me right now. I already struggle to cook/do food prep, and I don't think the benefit will be worth the extra stress. #MigraineChat |
 | rebecca @blueraccoon Honestly? Caffeine. Everyone told me to cut my intake or cut it out entirely but doing that just gave me withdrawal headaches. Made zero difference on the #migraine. So I said eff that and have a lot of tea & the occasional Excedrin. #MigraineChat |
| Alicia @thedizzycook @SarahLerner @MigraineStrong1 @beth_morton Its a horrible place to be. I thought my life was pretty much over with chronic VM so I was pretty much willing to saw my arm off if it helped. So a migraine diet seemed a little less painful 😂. I will say I did think it was garbage until about 2-3 months in! #MigraineChat. |
| Sari C Mauro @ArchivistSariM @beth_morton A4 Sleep schedule has been both the easiest and the hardest. I normally keep a pretty solid routine, but sometimes (like Friday) slip out of it. I can watch it happening and struggle to correct it, and then I'm out the next day. #MigraineChat |
| rebecca @blueraccoon A2: I honestly don't know of anything I've tried that has provided relief in either the short-term or long term except avoiding #migraine triggers. #MigraineChat |
| Rebecca @PyesMusings @beth_morton A4 easiest: avoiding walnuts and dry white wine. Hardest (only considering things that seemed at all helpful): PT and daily self-hypnosis. They’re just not helpful enough to get me over the motivation hump. #migrainechat |
| Rachel Sussman @RachelxSussman Q2: Quitting work and writing more. I worked part-time, but it took up full-time space in my head trying to balance when Ato go or not. And teaching preschool just wrecked my body. Writing gives me creative outlet without a set schedule. (& I can do it in my pjs!) #migrainechat |
| Alicia @thedizzycook RT @beth_morton: Q4. What #migraine-related lifestyle modification has been the easiest to make? What about the hardest change to stick with? #MigraineChat https://t.co/JxhzzHAM97 |
| Alicia @thedizzycook @beth_morton A4a. Massages and magnesium supplements were the easiest to do for obvious reasons. The hardest was probably the #migrainediet and exercise. I used to get really frustrated reading labels and realizing everything had hidden msg. It took me forever to grocery shop. #MigraineChat |
| Alicia @thedizzycook @beth_morton A4b. But even with cooking more and exercise, you start to get into a routine. I found myself missing it when I didn't do it. I think it was being able to accomplish something with #migraine. Gave me such a good feeling about myself. #MigraineChat |
| Alicia @thedizzycook @PyesMusings @beth_morton Walnuts are a huge trigger for me too! #MigraineChat |
| Beth Morton @beth_morton Q5. What is a lifestyle modification for #migraine you haven’t tried that you still think you might? Need any tips for getting started? #MigraineChat https://t.co/T6gMtEhUMG |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ My intractable #migraine finally broke (at about 20 months). I had two cracked teeth that had been damaged so long the nerve was dying (presenting as intractable migraine rather than as any tooth pain). Migraines still chronic, but... #MigraineChat |
 | Missy Woford @Missy_Woford @blueraccoon Agreed. As long as I'm not going nuts, caffeine isn't a trigger for me. A few cups of coffee in the morning is fine. I stop by noon because I need to sleep, and I *am* sensitive. #migrainechat |
| Migraine Strong - Eileen @MigraineStrong1 @Alexandria_SZ A4. Sleep regulation has been the easiest for me. Aside from the occasional unavoidable late night, going to bed and getting up at the same time each day was an easy change for me. The hardest is probably daily movement of some kind. #MigraineChat |
| Rebecca @PyesMusings @RachelxSussman Oh my God, I can’t imagine trying to teach preschool with a migraine. Or I kind of can, because I have preschoolers, but there are only two of them! #migrainechat |
| Beth Morton @beth_morton @Mar_Wetzel @thedizzycook OOoh, that just made me wrinkle my toes thinking of when my acupuncturist would go in for a stab there. The worst spot! #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton A4. Sleep regulation has been the easiest for me. Aside from the occasional unavoidable late night, going to bed and getting up at the same time each day was an easy change for me. The hardest is probably daily movement of some kind. #MigraineChat |
| Alicia @thedizzycook @rachel_x_graves @beth_morton I think most people find it really difficult to commit to and tend to give up before they see results. I didn't have major results till about 6-8 months in, so I can see why people don't stick with it. I almost gave up a few times. #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton A5. Therapy is the one I haven’t tried. I think this can be a hugely beneficial piece of the Treatment Pie. We often recommend @DawnBuse as a resource because she is fantastic. #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 RT @beth_morton: Q5. What is a lifestyle modification for #migraine you haven’t tried that you still think you might? Need any tips for getting started? #MigraineChat https://t.co/T6gMtEhUMG |
| Alicia @thedizzycook @beth_morton @Mar_Wetzel YEEEK! 😝 #MigraineChat |
| Beth Morton @beth_morton @MigraineStrong1 @DawnBuse Therapy is important for me. But finding a therapist with the right mix of credentials in my area has been tough. I'm between therapists at the moment and I can tell the difference. More need knowledge of chronic illness/pain. #MigraineChat |
| Missy Woford @Missy_Woford A2. Avoid triggers like bright lights, loud noise, and strong scents; even if I have to remove myself from a location to do so. Learning to use sunglasses, earplugs, and flat out leaving areas with triggers was big. #MigraineChat |
| Robin Artemis social distancing @RobinArtemis1 RT @beth_morton: Q5. What is a lifestyle modification for #migraine you haven’t tried that you still think you might? Need any tips for getting started? #MigraineChat https://t.co/T6gMtEhUMG |
| Alicia @thedizzycook @beth_morton A5. Not necessarily lifestyle but my neurologist really loves Cefaly and I’d like to incorporate it one day. I haven’t had enough attacks lately to warrant the price, but as I go through fertility treatments I’m keeping my script in my back pocket. #MigraineChat |
| Rachel Sussman @RachelxSussman @beth_morton A3. Trying to ignore #migraine and push through. I tried this approach for years and I’m *still* tempted to try it sometimes when the neg. voice in my head says I’m just being melodramatic. 🙄 That voice is such a lying jerk, but so convincing. #MigraineChat |
| Alicia @thedizzycook @beth_morton @MigraineStrong1 @DawnBuse Took me a while too. I went through quite a few weirdos. It's harder than you would think! Luckily insurance refunded me for the really strange ones. #MigraineChat |
| Beth Morton @beth_morton @SarahLerner Maybe find someone who can do telehealth appointments? I know that means looking at a bright screen, though! #MigraineChat |
| rebecca @blueraccoon @Mar_Wetzel @ParentWmigraine @beth_morton I agree with you. I've been chronic for 20 years and chronic intractable for close to 10; at this point I don't need or want anyone but my headache specialist recommending stuff to try. #MigraineChat |
| Beth Morton @beth_morton Q6. Which lifestyle modifications for #migraine has your doctor suggested? Which have you had to research and make on your own? How has this affected your adoption of these changes (i.e., easier/harder to find info, incorporate into practice, etc.)? #MigraineChat https://t.co/Z6kZleOBf4 |
| Alicia @thedizzycook @SarahLerner @beth_morton I have a friend who is a therapist with chronic VM and she writes for the site. I'm sure she wouldn't mind if you reached out to her. She even does phone appointments. It's nice to talk to someone who gets it. #MigraineChat https://t.co/PUE0voHivn |
| Migraine Strong - Eileen @MigraineStrong1 RT @beth_morton: Q6. Which lifestyle modifications for #migraine has your doctor suggested? Which have you had to research and make on your own? How has this affected your adoption of these changes (i.e., easier/harder to find info, incorporate into practice, etc.)? #MigraineChat https://t.co/Z6kZleOBf4 |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton A6. Aside from diet, he recommended meditation which I wouldn’t have tried w/o his push. He sends patients to our group for help with lifestyle changes. Having a group of people that are all doing the same thing makes changes somewhat easier. #MigraineChat |
| rebecca @blueraccoon @thedizzycook @beth_morton I found that acupuncture gave me very limited, temporary relief that I often thought was more due to the "lie quietly in a dark room for 45 min" than the actual needles. I didn't mind doing it but I didn't see any major benefit from it. #MigraineChat |
| Rachel Sussman @RachelxSussman @PyesMusings Ha! It was often easier to teach than to manage my own kids when they were that age because I knew the kids I taught would go home eventually! But I feel you, parenting preschool age kids with migraine. It is really tough. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @blueraccoon: A2: A2: I honestly don't know of anything I've tried that has provided relief in either the short-term or long term except avoiding #migraine triggers. #MigraineChat |
| Rebecca @PyesMusings @RachelxSussman @beth_morton I read something recently saying that voice sounds like it should be right and like it’s coming from a trusted authority but it’s actually just internalized ableism, or sthing like that. #migrainechat |
| Beth Morton @beth_morton @blueraccoon @Mar_Wetzel @ParentWmigraine I just had a conversation like this over the weekend re: starting a new CGRP. Even those of us with #migraine have different levels of risk tolerance and willing/able-ness to try. It's very individual, for sure. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @blueraccoon: Honestly? Caffeine. Everyone told me to cut my intake or cut it out entirely but doing that just gave me withdrawal headaches. Made zero difference on the #migraine. So I said eff that and have a lot of tea & the occasional Excedrin. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q3. What lifestyle modification seemed to provide the least return on investment in terms of managing your #migraine? #MigraineChat https://t.co/Rse9RZmfSa |
| Missy Woford @Missy_Woford A4. Well, I gave up soda because of Topamax, if that counts! Lol. Easy to stick to it since it makes it taste icky! Once I got past the cravings it was worth it as it started a pretty decent weight loss. 👍 |
| Alicia @thedizzycook @rachel_x_graves @beth_morton For a long time I used to color in those adult coloring books. It's literally all I could do without throwing up from the #vertigo and #dizziness. Putting puzzles together was another one. And cooking. I used to just sit on a stool and make my way through a recipe. #MigraineChat |
| Alicia @thedizzycook RT @beth_morton: Q5. What is a lifestyle modification for #migraine you haven’t tried that you still think you might? Need any tips for getting started? #MigraineChat https://t.co/T6gMtEhUMG |
| Alicia @thedizzycook RT @beth_morton: Q6. Which lifestyle modifications for #migraine has your doctor suggested? Which have you had to research and make on your own? How has this affected your adoption of these changes (i.e., easier/harder to find info, incorporate into practice, etc.)? #MigraineChat https://t.co/Z6kZleOBf4 |
| Alicia @thedizzycook @beth_morton A6a. My neuro suggested most of the ones I do since he knew I wanted to have kids soon and it was just easier to try to manage as naturally as possible. I found Heal Your Headache on my own and he supported me trying it (but thought it was strict...which it is!). #MigraineChat |
| Alicia @thedizzycook @beth_morton A6b. Magnesium threonate was another one I tried through my own research and it did amazing things for my memory and brain fog. I tested it with my other #vestibularmigraine friend Jenn, and we texted each other at the same time like “is this working for you too?!”. #MigraineChat |
| rebecca @blueraccoon @beth_morton @Mar_Wetzel @ParentWmigraine I think some of it is also just how many spoons a person has that they're willing to give to a new thing. Chronic #migraine isn't my only chronic illness and I don't have the spoons to make major lifestyle modifications at this point. I have to work full time. #MigraineChat |
| Beth Morton @beth_morton CT. Remember that all these changes can help raise the threshold at which a #migraine attack might occur, but attacks can still happen and it is not your fault. #MigraineChat https://t.co/x1xX80hDhn |
| Alicia @thedizzycook @beth_morton A6c. I discovered Mag Threonate/Cognimag just by going through all the types of magnesium out there and saw this particular one crossed the blood brain barrier and helped Alzheimer’s patients with cognitive function. #MigraineChat https://t.co/gzd2FmSWGR |
| Alicia @thedizzycook @beth_morton A6d. So Jenn and I did a very unscientific study where we both tested it for a month and we wrote about our experiences on The Dizzy Cook. Some people think it’s an ad cause we both loved it! 😂Now I see other people talking about it/trying it, which makes me smile. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @RachelxSussman: @beth_morton A3. Trying to ignore #migraine and push through. I tried this approach for years and I’m *still* tempted to try it sometimes when the neg. voice in my head says I’m just being melodramatic. 🙄 That voice is such a lying jerk, but so convincing. #MigraineChat |
| Alicia @thedizzycook @beth_morton A6e. Sometimes you just have to be your own guinea pig. Especially for VM, the studies are so small. If you let every scientific study dictate what you do, you may be waiting a while. Having a neuro that supports this (even if they think you're nuts) is everything. #MigraineChat |
| Rebecca @PyesMusings @rachel_x_graves @beth_morton Ooh, me too. I had noticed that on bad days, especially with weather flares, the little bits of chips at the bottom of the tortilla chip bag were really helpful. And then read a study about salt and migraine, and that seem to fit. #migrainechat |
| Rachel Sussman @RachelxSussman @Alexandria_SZ @beth_morton This is really good advice! And so true! #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q6. Which lifestyle modifications for #migraine has your doctor suggested? Which have you had to research and make on your own? How has this affected your adoption of these changes (i.e., easier/harder to find info, incorporate into practice, etc.)? #MigraineChat https://t.co/Z6kZleOBf4 |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @thedizzycook: @rachel_x_graves @beth_morton For a long time I used to color in those adult coloring books. It's literally all I could do without throwing up from the #vertigo and #dizziness. Putting puzzles together was another one. And cooking. I used to just sit on a stool and make my way through a recipe. #MigraineChat |
| rebecca @blueraccoon A5: My next step is going to be having a sleep study done and getting some kind of machine to help me breathe through the night. I keep putting it off and I need to have it done. I wake up with #migraine often due to sleep apnea. #MigraineCnat |
| Rebecca @PyesMusings @rachel_x_graves @beth_morton I may give this a try! There’s a limit to how salty I can make my food. #migrainechat |
| Beth Morton @beth_morton Thank you, Eileen & Alicia, for co-hosting today! And for everyone who joined in. I'll post a transcript soon. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @blueraccoon: @beth_morton @Mar_Wetzel @ParentWmigraine I think some of it is also just how many spoons a person has that they're willing to give to a new thing. Chronic #migraine isn't my only chronic illness and I don't have the spoons to make major lifestyle modifications at this point. I have to work full time. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: CT. Remember that all these changes can help raise the threshold at which a #migraine attack might occur, but attacks can still happen and it is not your fault. #MigraineChat https://t.co/x1xX80hDhn |
| Alicia @thedizzycook @blueraccoon @beth_morton Haha that's a good point. It just wasn't worth the expense and I feel like 4 months or so is a fair shot to see if it's going to work. #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton @DawnBuse I went to one when I was sent to a pain clinic specializing in #Migraine years ago. He was part of the team and he was amazing. #MigraineChat |
| Beth Morton @beth_morton Lastly, I’m going to do away with individual reminders. Please put a recurring reminder for #MigraineChat on your calendars - the first Monday of every month at 1pm ET (make sure to convert to your time zone). |
| Rebecca @PyesMusings @beth_morton A6 I don’t think my neuro has suggested any lifestyle changes, although when I ask, they’ll tell me the statistics on various things. 🤷♀️ #migrainechat |
| Migraine Strong - Eileen @MigraineStrong1 RT @beth_morton: Lastly, I’m going to do away with individual reminders. Please put a recurring reminder for #MigraineChat on your calendars - the first Monday of every month at 1pm ET (make sure to convert to your time zone). |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton Thanks Beth!! That was really great!! #MigraineChat |
| Alicia @thedizzycook @beth_morton Thanks for having us, Beth!! It was fun to meet everyone and share our stories. #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 @rachel_x_graves @blueraccoon I don't have caffeine every day, but it is a great abortive for my attacks. It's not a trigger for everyone. #MigraineChat |
| Alicia @thedizzycook @RobinArtemis1 @beth_morton Wow, that's so rude! They should be open to learn from their patients too. #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton That was really fun. Thanks for inviting us!! It's great being part of this group!! #MigraineChat |
| Robin Artemis social distancing @RobinArtemis1 RT @beth_morton: Q6. Which lifestyle modifications for #migraine has your doctor suggested? Which have you had to research and make on your own? How has this affected your adoption of these changes (i.e., easier/harder to find info, incorporate into practice, etc.)? #MigraineChat https://t.co/Z6kZleOBf4 |
| Migraine Strong - Eileen @MigraineStrong1 @dayseymay @beth_morton #MigraineChat |
| Alicia @thedizzycook @Alexandria_SZ @PyesMusings @rachel_x_graves @beth_morton I bet it's a little bit of caffeine in the chocolate that helps! #MigraineChat I still don't understand why people avoid sodium unless they have Meniere's Disease. |
| Rebecca @PyesMusings @thedizzycook @Alexandria_SZ @rachel_x_graves @beth_morton Me neither, but given that blood pressure meds help some patients who don’t have HBP to begin with, I could imagine salt reduction having some weird beneficial effect as well. Not for me, though, at any rate! #migrainechat |
| Migraine Strong - Eileen @MigraineStrong1 @Alexandria_SZ That’s possible. I hold out hope!!! #MigraineChat |
 | Kristin 💉x6 💙💜💚 @mini2z RT @beth_morton: CT. Remember that all these changes can help raise the threshold at which a #migraine attack might occur, but attacks can still happen and it is not your fault. #MigraineChat https://t.co/x1xX80hDhn |
 | 🌎Sara Losch🌏 @SaraLosch #MigraineChat New year so insurance changes. Just paid $280 for six Imitrex sprays. Then my husband found a coupon through good RX that I could’ve paid $110. This is really stupid. |
 | Lia Pas @lia_pas @blueraccoon @thedizzycook @beth_morton Acupuncture has always helped with my migraines but I had to stop going while I was on blood thinners for something else. I got myself an Aku Ball and use it on the same points my acupuncturist used and it seems to work just as well! #MigraineChat |
 | Evolve Wellness @EvolveWellness_ @SELFmagazine - What your headaches can #tell you about your #Health "Here's what could be causing all the #throbbing in your noggin." https://t.co/1ESrNZE79H #headache #healthylifestyle #HealthyLiving #HealthyLife #healthandwellness #pain #migraine #MigraineChat #stress https://t.co/CGfU5azs9F |
| rebecca @blueraccoon I know #MigraineChat is over but... I gained 100lbs from Depakote. Then I had gastric bypass surgery to lose the weight. I was told my migraines would improve with weight loss. they became intractable & my health is a total mess. |
 | PodcastDX @PodcastDx RT @beth_morton: Who is joining #MigraineChat today? If you want, introduce yourself in a way you are comfortable. I’m Beth, tweeting from snowy Vermont. |
 | Quinn Young👩💻✍️📚🌈👩❤️👩 @QuinnYoungWrite See...now the days begin to blur..I think this day 8! #WritingCommunity #migrainechat This is where I randomly cry. What do you do? |
| Beth Morton @beth_morton @_livingthedx_ #MigraineChat is every first Monday of the month at 1pm ET (US). |
 | Court! @darlingdarko I want this day to be over with already. #migrainechat #migraine #thissuck #myownpersonalhell |
 | 𝔊reenthumb 𝐖iżd🌻m @Greenthumb_one Full-text: https://t.co/Via7AfkcUz #migrainechat https://t.co/enT2kzPFT3 |
 | sarah coh @sarah_coh_ RT @beth_morton: CT. Remember that all these changes can help raise the threshold at which a #migraine attack might occur, but attacks can still happen and it is not your fault. #MigraineChat https://t.co/x1xX80hDhn |
#migrainechat content from Twitter.