#migrainechat Transcript
Healthcare social media transcript of the #migrainechat hashtag.
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See #migrainechat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | My Chronic Brain @mychronicbrain T-minus 2 hours and counting! #MigraineChat starts at 1pm EST!! https://t.co/HZWiKdl0u5 |
 | Beth Morton @beth_morton Hey all, two hours to #migrainechat! I'm struggling, but I'll be there and hope you will to. ⌚⌛ Would love to "see" some new faces! https://t.co/Wuemu2Ihop |
 | Katie M Golden @GoldenGraine RT @beth_morton: Tomorrow is #MigraineChat Monday!! Join me and my co-hosts @mychronicbrain at 1pm ET to talk about things related to finding and meeting with a #headache specialist. Chat tips and questions are posted here: https://t.co/Wuemu2Ihop https://t.co/79ho1Xo0yN |
 | Jill Piggott @JillPiggott Looking forward to #MigraineChat w/ my friend & #migraine sister, Dr. @beth_morton, today 1-2 eastern. |
| My Chronic Brain @mychronicbrain @GoldenGraine Hi, Katie! 👋Are you able to join us today for #MigraineChat? T-minus 40 minutes! |
| My Chronic Brain @mychronicbrain 30 minutes to go! #MigraineChat https://t.co/G2WfinsxX6 |
 | headsUPmigraine @headsUPmigraine RT @JillPiggott: Looking forward to #MigraineChat w/ my friend & #migraine sister, Dr. @beth_morton, today 1-2 eastern. |
| My Chronic Brain @mychronicbrain We're just about to kick off #MigraineChat Monday with @beth_morton! The topic is “Planning for and meeting with your headache specialist.” Find chat etiquette and questions here: https://t.co/xQJJK9iAcm |
| Beth Morton @beth_morton Hello everyone! Welcome to our second #migrainechat! If you haven’t already, take a quick moment to review the chat guidelines: https://t.co/Wuemu2Ihop |
 | Jenn Heater, Chief Oddity (she/her) @Medical_Oddity Ready for #MigraineChat!!!! |
| My Chronic Brain @mychronicbrain Here we go! #MigraineChat |
| Beth Morton @beth_morton If you are new to Twitter chats, two tips. 1) We’ll start our questions with Q1, Q2, etc. You should start your corresponding reply tweet with A1, A2, etc. 2) Always remember the hashtag! It helps for following the #migrainechat conversation. |
| Beth Morton @beth_morton Before we dive into questions. Let’s see who is here. I’m Beth and I’ll be co-moderating with my friends, @mychronicbrain. I live in Vermont and have had #migraine for 20+ years (diagnosed), chronic for 3 years. #migrainechat |
| Beth Morton @beth_morton @mychronicbrain Full disclosure, I'm limping into today's chat and may be low on interactions. #migrainechat |
| Beth Morton @beth_morton While you continue introductions, a few notes. This #migrainechat is purely informational. Nothing shared should be considered medical advice or a substitution for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
| My Chronic Brain @mychronicbrain @beth_morton Mia (@BreatheMia) here on behalf of My Chronic Brain and co-hosting with the brilliant @beth_morton! ...anyone else tweeting while snuggled in blankets because, well, Chronic Migraine?😅#MigraineChat |
| Beth Morton @beth_morton Also, don’t forget that Twitter is public forum and we are discussing health-related topics. Share only what is comfortable for you. #migrainechat |
| My Chronic Brain @mychronicbrain @beth_morton We feel you! #migrainechat https://t.co/XgCGW2BrZT |
| My Chronic Brain @mychronicbrain @sarinahoskins @beth_morton Hi, Sarina! So glad you could make it! #migrainechat |
 | em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 I'm Emily, from freezing Toronto, coming to the chat today looking for a distraction from my migraine-y brain. A migraineur for 10 years (chronic for 5, daily for just over a year now). #migrainechat |
| Beth Morton @beth_morton @mychronicbrain @BreatheMia Me!! #migrainechat https://t.co/oz3bhu8pw2 |
| Beth Morton @beth_morton Okay, now that we've gotten that out of the way... Ready for Q1? Let’s jump in! #MigraineChat |
| Beth Morton @beth_morton Q1. How did you find your current #headache specialist (FYI - we may abbreviate this as HAS for tweet space)? #migrainechat |
| My Chronic Brain @mychronicbrain @elxtric_emily Hey, Emily! Happy to "see" you! #migrainechat |
| My Chronic Brain @mychronicbrain Q1 below... #migrainechat |
| My Chronic Brain @mychronicbrain Hi Bridget! So glad you could make it! (Psst -- don't forget to use "#migrainechat" with all tweets!) |
| My Chronic Brain @mychronicbrain Yay, Jenn! Glad you're here. #MigraineChat |
| My Chronic Brain @mychronicbrain @beth_morton A1. My PCP was a big help in this. I had never heard of a HAS, but he had done clinical rotations with one. He connected me. #migrainechat |
| My Chronic Brain @mychronicbrain @bwalker1314 @beth_morton How did you connect with your current HAS*? #migrainechat *Headache Specialist |
| Beth Morton @beth_morton A1. When I left Boston for my hometown in Vermont, there was really only one #headache clinic within a reasonable driving distance. I "found" mine by default and wish I had other options. Unfortunately, there's just such a shortage. #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A1: I was referred to my headache specialist by my GP after going through all the first line preventive meds with him to no avail and trying a paediatric neurologist as a kid who didn't believe I had migraines. My HAS is under no such delusions, thankfully. #MigraineChat |
 | Bridget Walker @bwalker1314 @beth_morton Q1 I found my current #headache specialist through the AMF tool and by talking to members of various support communities on Facebook. #migrainechat |
| My Chronic Brain @mychronicbrain @elxtric_emily That is SO frustrating. You're not the first former child-patient to have this story. It boils my blood! #migrainechat |
| My Chronic Brain @mychronicbrain @beth_morton Had you heard of HAS before? Or just assumed there was such a doctor? #migrainechat |
| Beth Morton @beth_morton Q2. The wait to see a #headache specialist can take months. What can you suggest someone do while they wait to see a new specialist/doctor? #migrainechat |
| My Chronic Brain @mychronicbrain @bwalker1314 @beth_morton So much important information travels via word of mouth. Do you have any particular FB communities you'd recommend to folks newly diagnosed (or newly on that platform)? #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @mychronicbrain Yup, I've heard it from plenty of others too!! It's so frustrating. Kids get migraines too!! #migrainechat |
| My Chronic Brain @mychronicbrain @bwalker1314 @beth_morton I definitely lucked out! #migrainechat |
| My Chronic Brain @mychronicbrain Oi! It definitely feels like forever while you're waiting... #migrainechat |
 | rebecca @blueraccoon A1: my neuro told he he couldn't help me anymore and gave me a referral to a headache specialist. That didn't work out so well. I saw a different neuro, who referred me to a *different* HAS. She saved my life by agreeing to write for Aimovig. #migrainechat |
 | sarina 🌻 @sarinahoskins A1. We (my mom and I) found my HAS when I was still a minor. We researched online for local neurologists who had experience with #chronicmigraine and found my current HAS. I've had the same HAS since senior year of high school (3rd year of college now). #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @mychronicbrain A1: had been going to Stanford for my Endocrine issues & a former Neuro recommended I go to @StanfordPain for my facial pain & ultimately my migraine. The do a workup with multiple docs and come up with treatment plan. This led me to my current dr, who I really like.#migrainechat |
| My Chronic Brain @mychronicbrain @beth_morton Track. Track. Track. Track EVERYTHING you can. At the very least, track your daily pain levels and what medications you take. If you can track if the medications have any impact, even better. Track if you go to Urgent Care/ER or your PCP. #migrainechat |
| My Chronic Brain @mychronicbrain A2. The more information you can bring about *your* migraine, the better. #migrainechat |
| Beth Morton @beth_morton A2. Keep seeing your PCP if even to maintain treatment. Use resources like @amfmigraine and their #MoveAgainstMigraine FB group. @MigraineAgain and their @MigraineSummit are great resources, too. Follow leading HAS on social media (@AmaalStarling for example). #migrainechat |
| My Chronic Brain @mychronicbrain @blueraccoon Welcome, Rebecca! You hit on an important aspect of finding an HAS--one size doesn't fit all! If you're able, definitely find one who will work with your needs. Finding a doctor who "clicks" with you can make all the difference. #migrainechat |
| My Chronic Brain @mychronicbrain @sarinahoskins Oh wow! That's awesome. And having family members who are able to advocate for you in this way is such a gift! #migrainechat |
| My Chronic Brain @mychronicbrain @sarinahoskins Definitely agree with this! Do you have any specific recommendations on how you find these online support groups? I know I (Mia) sort of stumbled into mine here on Twitter. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity THIS. This right here!!! #migrainechat |
| Beth Morton @beth_morton Learn as much as you can about #migraine and your own own triggers and treatments. Reach out to others when you need help understanding what information to trust. #migrainechat |
| My Chronic Brain @mychronicbrain Good to know. Thanks! #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @beth_morton: Learn as much as you can about #migraine and your own own triggers and treatments. Reach out to others when you need help understanding what information to trust. #migrainechat |
| Beth Morton @beth_morton Q3. What can someone expect during their first appointment with a #headache specialist? What are your appointments like? #migrainechat |
| My Chronic Brain @mychronicbrain Definitely! Just like with other areas, not everything you read online is good information. Connect with other patients to learn how to identify good sources of information and to feel out if others have had success with treatment ideas. #migrainechat |
| Beth Morton @beth_morton @mychronicbrain I had been seeing some HAS since my teens, so each time I move I find a new one. Some have been wonderful... others I've not been sad to leave behind! #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 Hey all, unfortunately my migraine is getting cranky and making it hard to look at the screen so I'm going to sign off for now. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @beth_morton A3: First appointments, make sure you have all your paperwork, even if you’ve filled something out, you’ll be going over it multiple times. Your doc is going to want to know your history and what you have tried and talk about what your treatment plan will look like. #migrainechat |
| My Chronic Brain @mychronicbrain A3. Mine was a lot of talking. About my pain, my medications, what helps/doesn't help, and information about Migraine Disease. I was given an EKG (painless for me) and had some blood work drawn. I also received some new medications to try. #migrainechat |
| Bridget Walker @bwalker1314 @beth_morton A2 Keep track of attacks and get to know your family history of #headache. Also find the words to describe your symptoms. What is it you feel? #migrainechat |
| My Chronic Brain @mychronicbrain @elxtric_emily Feel better, Emily! Thanks for joining us for a bit. Your voice is cherished! #migrainechat |
| My Chronic Brain @mychronicbrain "Find the words to describe your symptoms" This is excellent advice! #migrainechat |
| Beth Morton @beth_morton @NHF @mychronicbrain I'm SO happy to have you here! #migrainechat |
 | National Headache Foundation (NHF) @NHF Find a headache disorder specialist today! https://t.co/E94mH778MU #migrainechat #migraine #migrainedisease #headache |
| Bridget Walker @bwalker1314 @beth_morton A3 Expect to give a detailed history. You will answer several questions. Your history is important to help determine if you have a primary or secondary headache disorder. #migraine is diagnosed from a history, normal neuro assessment, and process of elimination. #migrainechat |
| My Chronic Brain @mychronicbrain @sarinahoskins It bears repeating! Tracking your pain provides very important information for your doctor. I (Mia) started using the "N1 Headache" app (formerly @curelator). Before, I just used paper. Both have provided helpful information for me and my HAS. #migrainechat |
| My Chronic Brain @mychronicbrain @beth_morton @NHF You made it! So happy to have your voice here. :) #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @beth_morton A3(2): My appointments are check-ins, though I keep in pretty regular contact via online portal. We discuss how I’ve been feeling & what adjustments I need in medication & if new treatments are possible. Also what I have been able to do (able to get in a walk etc?) #migrainechat |
| Beth Morton @beth_morton A3. I'm not a patient at Thomas Jeffersons HA clinic, but love their intake forms for thinking about initial conversations with a HAS. https://t.co/qavJSsdU6O #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @blueraccoon: A1: A1: my neuro told he he couldn't help me anymore and gave me a referral to a headache specialist. That didn't work out so well. I saw a different neuro, who referred me to a *different* HAS. She saved my life by agreeing to write for Aimovig. #migrainechat |
| Beth Morton @beth_morton A3. Since I'm low on spoons, I'll just say that at this stage, for me, ditto. #migrainechat |
| Bridget Walker @bwalker1314 RT @beth_morton: A2. Keep seeing your PCP if even to maintain treatment. Use resources like @amfmigraine and their #MoveAgainstMigraine FB group. @MigraineAgain and their @MigraineSummit are great resources, too. Follow leading HAS on social media (@AmaalStarling for example). #migrainechat |
| Beth Morton @beth_morton These are super long, but very thorough and I think mirror what you might get in prep from a new HAS. #MigraineChat |
| My Chronic Brain @mychronicbrain A3. If you're up for a bit of paperwork, the intake paperwork for @JeffHeadacheCtr has you think through and articulate a lot of helpful information #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity This is so true. It has worked for me a million times, and made me some great friends! #migrainechat |
| Beth Morton @beth_morton Q4. Appointments are short! What are some tips you can share for preparing for an appointment with a #headache specialist? #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @mychronicbrain: A3. If you're up for a bit of paperwork, the intake paperwork for @JeffHeadacheCtr has you think through and articulate a lot of helpful information #migrainechat |
| My Chronic Brain @mychronicbrain Bah! My internet connection is SO bad today. ...here's the paperwork I was referring to: https://t.co/Gl9dMVsUPi | #migrainechat |
| My Chronic Brain @mychronicbrain Q5. Many #headache specialists ask for a #migraine diary: yea or nay? If you use one, what/how do you track? #migrainechat |
| Beth Morton @beth_morton A4. Prioritize questions, time will be limited. Be clear about how the time has gone since you last saw your doc (how meds worked, what you were able to do/not do, etc.). I'm sure there is more but I'm running low on steam... sorry, folks! #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @beth_morton A4: I keep a running list of questions on my phone in the notes section since that bad boy is never far from me. I also usually have a patient advocate (ie, mom) w/ me at said appt because I usually have a migraine & brain fog and she can ask clearer qs then I can #migrainechat |
| My Chronic Brain @mychronicbrain A4. Prepare! Have questions you want to ask listed and prioritized. I've never met a doctor who thinks it's weird that I have my questions written out. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @mychronicbrain @beth_morton Me, but with iPhone. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity This is a FANTASTIC idea and I have no idea why I did not do it years ago. #migrainechat |
| Beth Morton @beth_morton @sarinahoskins Checking reviews or asking in support groups is a really good idea! #migrainechat |
| Beth Morton @beth_morton @PyesMusings @Medical_Oddity Yessss!! Another spreadsheet person!! #migrainedata #migrainechat |
| My Chronic Brain @mychronicbrain A4. If you can, bring someone with you to act as a second brain. You'll get a LOT of information in a short amount of time. Having someone with you will help you remember everything. #migrainechat |
| My Chronic Brain @mychronicbrain @Medical_Oddity Really great idea! What do you do on days you just can't handle the screen? Fill it in later? Record on paper? Seems like a silly question perhaps, but a real struggle in down times. #migrainechat |
| Bridget Walker @bwalker1314 @beth_morton A4 I recall Dr. Goadsby suggesting to consolidate info. ahead of time, write down, how many attacks, how many were severe, if you experienced any new symptoms or side effects, and any questions as some suggestions #migrainechat |
| Beth Morton @beth_morton A5. I'm mixed on this. I looove data and spreadsheets and tracking stuff. It's what I went to school forever to do! I do track and it varies what. I always track symptoms, meds and major possible triggers. #migrainechat |
| National Headache Foundation (NHF) @NHF @mychronicbrain Q5 Has anyone downloaded a migraine tracking app and shared the data with their doctor? #headachespecialist #migrainechat |
 | Rebecca @PyesMusings @Medical_Oddity I mean, it's an enormous pain in the ass to put together initially, and demoralizing to look at, are 2 good reasons 😉 But it does save a lot of time in appointments. #migrainechat |
| My Chronic Brain @mychronicbrain @Medical_Oddity Ha ha, nevermind. I thought you meant you were tracking each instance, not that you were tracking in general. #migrainechat |
| Beth Morton @beth_morton A5. Where I worry is that, for me, I can get anxious about triggers. And so many I can't control. I tend to use it so that I know if treatments are helping/hurting or if I'm overmedicating. #MigraineChat |
| My Chronic Brain @mychronicbrain @sarinahoskins @NHF A5. One of my HAS had me use @curelator, but oddly, never had me submit the full data. They're only ever interested in overall trends it seems. However, I've found it helpful for myself. #migrainechat |
| My Chronic Brain @mychronicbrain We hear this! #migrainechat |
| My Chronic Brain @mychronicbrain @sarinahoskins @NHF @sarinahoskins Did you find the experience helpful? Do you still use Migraine Buddy? #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @mychronicbrain A5: I did keep a paper diary for a few months when my dr asked, but we never actually looked at the data. I do have @MigraineBuddy on my phone now and use @RoundHealthCo to track my medicine. But as of yet have not shared with the doctor. #migrainechat |
| Beth Morton @beth_morton @InfiniteKnot Mostly she helps manage my other conditions that my HAS won't touch, but that impact #migraine. She also calls in meds in a pinch when I'm not able to connect with my HAS. For those with no other option, it at least offers some treatment until they see a HAS. #migrainechat |
| My Chronic Brain @mychronicbrain @NHF It's all good! #migrainechat https://t.co/E7sraJFUMI |
| My Chronic Brain @mychronicbrain @MigraineAssist Hey, coffee is also important. Maybe go over what we chatted about and add your thoughts? We'd love to have them included! #migrainechat |
| Bridget Walker @bwalker1314 @mychronicbrain A5 I include very very brief notes including date, duration, pain intensity, other symptoms, and anything concerning. I like Migraine Buddy for my personal use, but my doctor likes hard copy info #migrainechat |
| My Chronic Brain @mychronicbrain @Medical_Oddity @MigraineBuddy @RoundHealthCo @RoundHealthCo was a game changer for me! #migrainechat |
| Beth Morton @beth_morton CT. Okay, I know the hour went fast, but time for closing thoughts. What did you learn or what will you take away from today’s chat? Do you have any lingering questions? #migrainechat |
| My Chronic Brain @mychronicbrain @bwalker1314 A5. Mine too. Does Migraine Buddy export for printing? #migrainechat |
| sarina 🌻 @sarinahoskins @mychronicbrain @NHF I found the experience useful and in the beginning I used Migraine Buddy all the time. But as I learned more about my #migraine and symptoms, I found it less useful. I would still recommend it to those trying to get an overview of their #migraine symptoms. #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @mychronicbrain @MigraineBuddy @RoundHealthCo Me too, so glad you recommended it to me! Thank you friend!!! #Migrainechat |
| Beth Morton @beth_morton @NHF @mychronicbrain A5. I've yet to find one that works really well given my #migraine attacks don't really ever break. I find apps frustrating for that reason. I also have a really hard time identifying triggers anymore. #migrainechat |
| My Chronic Brain @mychronicbrain @Medical_Oddity @MigraineBuddy @RoundHealthCo Anytime! #migrainechat |
| My Chronic Brain @mychronicbrain @beth_morton @NHF This has been a major frustration for me too. @curelator (aka N1 Headache) is the only app I've found to date that will allow for attacks that last apparently indefinitely while still tracking changes in pain, triggers, etc. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @beth_morton I think it great to have this community to gather together with and learn from. Thanks for all of the tips and stories. Thank you @beth_morton & @mychronicbrain. And with that it’s off to go use the @_gammaCore_ to try to tackle this beast of a #migraine. #migrainechat |
| My Chronic Brain @mychronicbrain Hi Rose! How have you found the tracking process? Helpful? Not helpful? #migrainechat |
| Beth Morton @beth_morton I'm going to wrap up, but feel free to keep adding thoughts. Thank you all for joining in our #migrainechat today! We’ll tweet out a link to a chat transcript as soon as it is ready. Feel free to DM me or my friends at @mychronicbrain with any feedback. |
| My Chronic Brain @mychronicbrain @Medical_Oddity @beth_morton @_gammaCore_ You'll have to share with us about your @_gammaCore_ in the future! #migrainechat |
| Beth Morton @beth_morton Second, today is the final day to register for RetreatMigraine! Experience support, community, education, training. #migraine #migrainedisease #retreatmigraine #MigraineChat https://t.co/V5ZaOhSyox |
| My Chronic Brain @mychronicbrain Thank you for hosting, @beth_morton, and for everyone who came to chat! If you're reading this after our chat, please add your thoughts and ideas! We know that migraine can make coming at a specific time hard, so we monitor this hashtag outside of the chat hour! #migrainechat |
| My Chronic Brain @mychronicbrain Woo hoo! We're so excited! #migrainechat |
| My Chronic Brain @mychronicbrain @rosevalade Oi, do they ever. Here's hoping #Aimovig will give you some relief! #migrainechat |
| My Chronic Brain @mychronicbrain @OwlJourney @NHF @MigraineBuddy Tracking is so helpful for that! #migrainechat |
| My Chronic Brain @mychronicbrain @llyndseybelle @beth_morton Hey, Lyndsey! Happy to "see" you! #migrainechat |
| My Chronic Brain @mychronicbrain @rosevalade We've talked w/ many patients on it. Your story isn't unique. For some, it's bc they try to do more as they're feeling better. For others, it's a mystery as to why. But stay strong! It takes time to reach maximum efficacy. And you have us on your side cheering! #migrainechat |
 | Angie Glaser @winedarkme RT @beth_morton: A2. Keep seeing your PCP if even to maintain treatment. Use resources like @amfmigraine and their #MoveAgainstMigraine FB group. @MigraineAgain and their @MigraineSummit are great resources, too. Follow leading HAS on social media (@AmaalStarling for example). #migrainechat |
 | Krista @Kristacatlady @InfiniteKnot @beth_morton @amfmigraine @MigraineAgain @MigraineSummit @AmaalStarling My pcp doesn't do anything for my migraines. I don't think PCPs are qualified to treat #ChronicMigraine, so that is fine with me. #MigraineChat |
| Krista @Kristacatlady @beth_morton Keep a list of everything you have tried, including dosages of medications, and bring it to your first appointment.. #MigraineChat |
 | PPM Journal @PracticalPain RT @mychronicbrain: Q5. Many #headache specialists ask for a #migraine diary: Q5. Many #headache specialists ask for a #migraine diary: yea or nay? If you use one, what/how do you track? #migrainechat |
| My Chronic Brain @mychronicbrain @migrainekrista @beth_morton @NHF @curelator Agreed! Hey @MigraineBuddy, we all love your app, but we have ideas to make it more useful for those of us with unrelenting migraine that can last for weeks, months, even years! #migrainechat |
| My Chronic Brain @mychronicbrain @migrainekrista @Medical_Oddity @beth_morton @_gammaCore_ Let us know how you like it if you get a chance to try it? #migrainechat |
| My Chronic Brain @mychronicbrain Focus on triggers can be a vicious cycle. Knowing your triggers? Helpful. Obsessing? Hurtful. But such a fine line! #migrainechat |
| My Chronic Brain @mychronicbrain @rosevalade We definitely understand the drive to make up for lost time. Chronic Migraine patients aren’t lazy, we’re in pain. When it’s gone? BAM! We hit the ground running. Learning to pace when you want to run is hard. #migrainechat |
| Beth Morton @beth_morton @migrainekrista @InfiniteKnot I agree! We should all be seeing #headache specialists. The spirit of my suggestion was don't give up care if a PCP *is* able to maintain treatment while someone waits to see a HAS for the first time. #MigraineChat |
| Krista @Kristacatlady @NHF @mychronicbrain I haven't had a doc who wanted to see my migraone diary in years. I track with @MigraineBuddy and it is invaluable for allowing me to determine if meds impact the frequency, duration, or pain level of my migraines. #MigraineChat |
| Krista @Kristacatlady @PyesMusings @Medical_Oddity @beth_morton Me, too! It is so helpful to just add to it and print it out. I wish I had kept track of dosages because in the last few years, docs have asked and I can't remember. #migrainechat |
| Beth Morton @beth_morton @Audionut612 I'm pretty limited, too. The shortage of available #headache docs is frustrating for patients, but I know groups like @NHF are working to certify more healthcare professionals. #MigraineChat |
 | Sam Morkous, MD, FAAP, FAAN, FAASM, ABPN Diplomate @samehserry20 RT @NHF: @mychronicbrain Q5 Has anyone downloaded a migraine tracking app and shared the data with their doctor? #headachespecialist #migrainechat |
| Sam Morkous, MD, FAAP, FAAN, FAASM, ABPN Diplomate @samehserry20 RT @NHF: Find a headache disorder specialist today! https://t.co/E94mH778MU #migrainechat #migraine #migrainedisease #headache |
 | URLifeBack @URLifeBack Basic tips for the Migraine Monster #migrainechat https://t.co/OweWHNnXE0 https://t.co/v94Y7HRYKf |
 | Courtney Val @courtneywval Migraine madness today but the show must go on. 😫 Iced coffee, come to my rescue! ☕️ #migrainechat #coffeeplease |
#migrainechat content from Twitter.