#migrainechat Transcript
Healthcare social media transcript of the #migrainechat hashtag.
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See #migrainechat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Beth Morton @beth_morton Two hours until #MigraineChat begins! Are you joining today? This month we will talk about other conditions that like to tag along with #migraine. We have a special co-host, Jaime Sanders, the @migrainediva! Take a look at today’s questions: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton @migrainediva Hello, @Gotwhaleofatale @DivaMDGarrett @Alexandria_SZ @MigraineMantras @aimee1002 @elxtric_emily @hincmanlorie @CdnPenny @migrainekrista! #MigraineChat is 2 hours away! I hope you're feeling well and free to join. |
 | Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva I’m super excited to be co-hosting today’s #MigraineChat where we will discuss #migraine and #comorbid conditions. Join us at 1 PM ET! |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva Less than one hour until #MigraineChat begins! Are you joining today? This month’s topic is about other conditions that like to tag along with #migraine. I’ll be cohosting with the creator of MigraineChat, Beth… https://t.co/j4lzgWeTLg |
| Beth Morton @beth_morton Hello everyone! Welcome to the November #MigraineChat! Thanks for being here today. I hope you’re doing as well as possible. If you haven’t before, take a quick moment to review the chat tips & guidelines: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton Two tips: (1) I’ll start each question w/ Q1, Q2, etc. Remember to start your corresponding reply w/ A1, A2, etc. (or quote tweet). (2) *Always* remember the #MigraineChat hashtag! It makes following the conversation easier & ensures your tweets make the transcript. |
| Beth Morton @beth_morton Who is joining #MigraineChat today? If you want, introduce yourself in a way you are comfortable. I’m Beth, moderating from Vermont where they are actually forecasting snow later this week so I’m dreaming of packing up and heading south. .#MigraineChat |
| Beth Morton @beth_morton With me today is Jaime Sanders, better known to some of you as the Migraine Diva (@migrainediva). Jaime is a fierce advocate in the #migraine community and I appreciate her so much for joining #MigraineChat today! |
 | My Chronic Brain @mychronicbrain Hello! We’re joining @Beth_Morton's #MigraineChat (1 pm ET, first Monday of month). Mute hashtag if you don’t want to see our participation, but we hope you’ll join instead! Today’s guest is Jaime Sanders @MigraineDiva |
 | Rebecca @PyesMusings @beth_morton Rebecca from the DC area reporting for #MigraineChat |
 | Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: With me today is Jaime Sanders, better known to some of you as the Migraine Diva (@migrainediva). Jaime is a fierce advocate in the #migraine community and I appreciate her so much for joining #MigraineChat today! |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva @mychronicbrain @beth_morton Hi everyone! I’m so excited to join Beth for today’s important topic - living with migraine and other comorbid conditions. I myself have many including depression, anxiety, fibromyalgia and spinal stenosis to name a few. I can’t wait to talk about it all! #MigraineChat |
 | em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 I’m Emily in Toronto and we’re also forecasted to get snow this week, @beth_morton!! Not ready for fall to be over so soon. #MigraineChat |
| Beth Morton @beth_morton A few standing reminders. This #MigraineChat is purely informational. Nothing shared should be considered medical advice or a substitute for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
 | Bridget Walker @bwalker1314 @beth_morton I am Bridget joining from Boston where I hope we are not getting snow.#MigraineChat |
| Beth Morton @beth_morton Also, Twitter is a public forum and we are discussing health-related topics. Share only what is comfortable for you. Okay? Let’s get started! #MigraineChat |
| Beth Morton @beth_morton Q1. Besides #migraine, do you have other diagnoses or health conditions? Remember: only share what you are comfortable disclosing. #MigraineChat https://t.co/uWG1eIi468 |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q1. Besides #migraine, do you have other diagnoses or health conditions? Remember: Q1. Besides #migraine, do you have other diagnoses or health conditions? Remember: only share what you are comfortable disclosing. #MigraineChat https://t.co/uWG1eIi468 |
 | Aparna R. @aparna_r_writer @beth_morton I’m Aparna from Minnesota. It’s already snowing today, so I’m with you on packing up & heading south! Looking forward to this chat! #MigraineChat |
| Rebecca @PyesMusings @beth_morton A1 Depression/anxiety, and something(s) going on involving recurring low grade fevers (which don’t feel like fevers) and body aches. Fibro has been mentioned, but no dx, and regardless those symptoms are minor in the scheme of things. #MigraineChat |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva @beth_morton #MigraineChat |
| Beth Morton @beth_morton @PyesMusings Oh, man, I'm going through this same thing with low grade fevers and body aches! All my labs are fine (so far) and I don't quite fit a fibro dx. Ugh! The mystery is getting old. #MigraineChat |
| Bridget Walker @bwalker1314 @beth_morton A1 I have occipital neuralgia and non-24 sleep wake disorder. Non-24 is a circadian rhythm disorder that frequently effects individuals who work alternating shifts day/night and individuals who are blind who can not regulate light very well. #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A1: Yes, and many of them go back to before I was chronic. I’ve struggled with depression, panic disorder, BPD and an ED since I was a pre pubescent. I also am being treated for two reproductive disorders and an autoimmune GI disorder & possible hypothyroidism. #MigraineChat |
| Rebecca @PyesMusings @beth_morton And this is reminding me to do my PT for some garden-variety arthritis! I’m 39, which I feel is too young for arthritis, but think it’s just a repetitive stress thing, not migraine-related. #migrainechat |
| Rebecca @PyesMusings @beth_morton Do you feel feverish with the fevers?? That’s the weirdest thing to me. #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A1b: I definitely think they’re all inextricably linked and wish my doctors would look at the whole issue without separating it. My mental health dx and my migraine became severe at the same time so it’s hard to think otherwise. #MigraineChat |
| Beth Morton @beth_morton A1. I've probably had #anxiety for as long as I can remember. I developed #IBS after a GI illness post travel in college. #Depression became a dx when #migraine became chronic. Those are my biggies. #MigraineChat |
 | Peggy Stumhofer @MyGraineHope I’m Peggy in Atlanta! I think this may be the first time I’m actually on time for #MigraineChat 😁 |
| Beth Morton @beth_morton @PyesMusings It's hard to tell since I'm achy all the time anyway. I feel slightly worse when I'm running a fever, though. #migrainechat |
| Beth Morton @beth_morton Q2. Do you think #migraine and your other condition(s) affect one another or are related in any way? How so? #MigraineChat https://t.co/RtnS3pcfkW |
| My Chronic Brain @mychronicbrain @SarahLerner @beth_morton Agreed! There does seem to be a gut-brain connection. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: A1. I've probably had #anxiety for as long as I can remember. I developed #IBS after a GI illness post travel in college. #Depression became a dx when #migraine became chronic. Those are my biggies. #MigraineChat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @SarahLerner @beth_morton As someone with a long history of stomach issues I wish there was more my doctors could tell me about the gut-brain connection and migraine. #MigraineChat |
| Beth Morton @beth_morton @Alexandria_SZ @PyesMusings I know they aren't using the touch points anymore, but I'd love to see the article! Thank you! #migrainechat |
| Beth Morton @beth_morton @emilygayle99 @SarahLerner Yes! Me, too. I think there's more research coming out, but it's sparse. #MigraineChat |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva @beth_morton A2. Absolutely! Esp. w/ migraine and #mentalillness. It’s the battle of the beasts. One one calms down the others show up to party. Learning to cope in a healthy way, #meditation, #breathing all help. #MigraineChat |
| Rebecca @PyesMusings @beth_morton A2 the depression/anxiety and migraine definitely get into a viscious cycle. I think breaking that is part of why I find daily walks so effective. The pain and implications of disability make me sad and worried, which is different from depression/anxiety #migrainechat |
| Peggy Stumhofer @MyGraineHope @beth_morton A1. I’m having eye issues that I thought might be visual snow syndrome but it turns out I have retinal issues and may have an inherited retinal disease. Not sure if this it’s connected to my migraines but both issues have gotten worse together. #migrainechat |
| Bridget Walker @bwalker1314 A2 absolutely! I think my conditions are triggers that increase the likelihood I will experience a Migraine attack. For example, when my occipital neuralgia is not under control, it can trigger a Migraine attack as pathways are connected. #migrainechat |
| Bridget Walker @bwalker1314 RT @beth_morton: A few standing reminders. This #MigraineChat is purely informational. Nothing shared should be considered medical advice or a substitute for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q2. Do you think #migraine and your other condition(s) affect one another or are related in any way? How so? #MigraineChat https://t.co/RtnS3pcfkW |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A2: 100%. My migraine attacks were already chronic but they increased to daily intractable at the same time as I was suffering with a severe mental health relapse. And when I’m having a bad migraine flare I become severely depressed, but who wouldn’t? #MigraineChat |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva @SarahLerner @Alexandria_SZ @beth_morton With there being an extensive nervous system in our gut it makes sense that the two are connected. I have a lot of gastric distress due to #migraine and the #fibromyalgia. #MigraineChat |
| Rebecca @PyesMusings @beth_morton A2b so it’s not a direct “I’m depressed because I hurt all the time,” but migraine interferes w/mental health self-care, and vice versa #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @migrainediva: @beth_morton A2. Absolutely! Esp. w/ migraine and #mentalillness. It’s the battle of the beasts. One one calms down the others show up to party. Learning to cope in a healthy way, #meditation, #breathing all help. #MigraineChat |
| Beth Morton @beth_morton A2. My mental health definitely affects and is affected by #migraine. Same with my #IBS. I balance dietary restrictions for both and when I am having a bad migraine attack, my IBS flares (sorry, TMI). #MigraineChat |
| Bridget Walker @bwalker1314 A2 I also believe my non-24 is related because sleep plays an important role in Migraine management. #migrainechat |
 | MoronicMusings_Of_A_Middle-AgedMigraneur @migrainemusings @beth_morton Forgot the #MigraineChat and I'm thumbing it from Kansas |
| Beth Morton @beth_morton @aparna_r_writer I think there's something to the whole central sensitization thing. Once you have one chronic pain condition, you're more likely to develop another? #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @migrainediva: @SarahLerner @Alexandria_SZ @beth_morton With there being an extensive nervous system in our gut it makes sense that the two are connected. I have a lot of gastric distress due to #migraine and the #fibromyalgia. #MigraineChat |
| Beth Morton @beth_morton Q3. What are some of the challenges you’ve encountered managing #migraine and your other health conditions (e.g. health care access, treatments, personal care, employment, etc.)? #MigraineChat https://t.co/NgWp7Q5GQ4 |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A2b: I also feel certain that my endocrine issues, esp. my PCOS, is related to the migraine, probably worsening it. Definitely contributing to fatigue. And my GI issues can cause severe nausea and other ailments that make it hard to eat, triggering migraines. #MigraineChat |
| Bridget Walker @bwalker1314 RT @migrainediva: @SarahLerner @Alexandria_SZ @beth_morton With there being an extensive nervous system in our gut it makes sense that the two are connected. I have a lot of gastric distress due to #migraine and the #fibromyalgia. #MigraineChat |
| Rebecca @PyesMusings @beth_morton But my migraine also has direct mood impacts; one of my earliest symptoms was euphoria during thunderstorms. Still sometimes get euphoria, wish it happened more often! Also also, I find that triptans exacerbate my depression, just while they’re in my system. 🙄 #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: A2. My mental health definitely affects and is affected by #migraine. Same with my #IBS. I balance dietary restrictions for both and when I am having a bad migraine attack, my IBS flares (sorry, TMI). #MigraineChat |
 | Krista @Kristacatlady Hello! I'm joining @Beth_Morton's #MigraineChat (1 pm ET, first Monday of month). Mute hashtag if you don’t want to see our participation, but we hope you’ll join instead! Today’s guest is Jaime Sanders @MigraineDiva#MigraineChat |
| MoronicMusings_Of_A_Middle-AgedMigraneur @migrainemusings @beth_morton I kind of have this merry go round sometimes. I get depressed and I want chocolate real bad. I gorge, eating my feelings. All the sugar affects my IBS. And then my migraine acts up. Hippie #MigraineChat |
| My Chronic Brain @mychronicbrain @beth_morton A3. Compartmentalization of doctor’s specialties can make coordinating treatment hard. #MigraineChat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @PyesMusings @beth_morton @PyesMusings I have the same effect with triptans, it’s horrible!! #MigraineChat |
| Aparna R. @aparna_r_writer @beth_morton Definitely. There are prevalence studies showing these conditions do cluster together. I wish there was more quality research on what causes “central sensitization” though and how to prevent it. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q3. What are some of the challenges you’ve encountered managing #migraine and your other health conditions (e.g. health care access, treatments, personal care, employment, etc.)? #MigraineChat https://t.co/NgWp7Q5GQ4 |
| Bridget Walker @bwalker1314 A3 Before seeing my headache specialist I did not know I had occipital neuralgia. My prior neurologist treated all of the head pain I experienced as the same thing. He frequently used Migraine and headache interchangeably. #migrainechat |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva @beth_morton A3. My biggest challenges have been finding the right combo of multimodal therapies to treat all of my conditions and getting them covered by insurance or affording them on my own. i.e. #acupuncture, #naturopathicmedicine, #nonmedicaldevices, #massagetherapy. #MigraineChat |
| Krista @Kristacatlady @beth_morton Hello, sorry I am late. Was dealing with insurance stuff. I am Krista. I live outside St Louis in southern Illinois. #MigraineChat |
| MoronicMusings_Of_A_Middle-AgedMigraneur @migrainemusings @beth_morton There's a character limit here😜 #MigraineChat |
| Bridget Walker @bwalker1314 I did not know very much about neuralgias until I saw my headache specialist. Neuralgia is nerve pain which is different from Migraine disease. #MigraineChat |
| Rebecca @PyesMusings @beth_morton A3 as noted above, my rescue meds exacerbate my depression; I often decide that I’ll be more functional and happier with the migraine than with the depression; and since mine is intractable, I’m going to have a migraine tomorrow either way, so 🤷♀️ #migrainechat |
| My Chronic Brain @mychronicbrain @migrainediva @beth_morton Yes this! #MigraineChat |
| Beth Morton @beth_morton A3. How much time do we have? Currently my biggest issue. My body parts are connected, so why can't my doctors talk to each other? I'm way too complicated for primary care. #MigraineChat |
| My Chronic Brain @mychronicbrain @migrainemusings @beth_morton 😂 #MigraineChat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @Alexandria_SZ @migrainediva @SarahLerner @beth_morton What’s the research on IBD and migraine? I haven’t seen anything but would definitely be interested in that #MigraineChat |
| Beth Morton @beth_morton @migrainemusings Hahah, I know. Multiple tweets are allowed! #MigraineChat |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva @beth_morton A3. Managing multiple conditions is expensive & physically/emotionally taxing on the individual. Not to mention the hurdles we have to jump through to get basic things covered by our insurers. #MigraineChat |
| Krista @Kristacatlady In addition to #migraine, I have depression and some form of dysautonomia (several dx over the years. Current one is neurogenic orthostatic hypotension). #MigraineChat |
| Aparna R. @aparna_r_writer @beth_morton A3. The biggest challenge has been getting my other comorbids recognized, dx’d, and treated separate from my migraines. For >10 years, my severe body pain and fatigue were dismissed as just symptoms of my chronic migraine, even as they got increasingly worse. #MigraineChat |
| Rebecca @PyesMusings @aparna_r_writer @beth_morton And how to reverse it! #migrainechat |
| Beth Morton @beth_morton @migrainediva Patients do a lot of the heavy lifting in research, managing insurance, etc. It is exhausting. #MigraineChat |
| Bridget Walker @bwalker1314 This! |
 | M 💛 @MissDS17 @SarahLerner @beth_morton A2: I find this type of question really hard to answers the chronic nature often means you’re analyzing a chicken/egg type of relationship between conditions. Is my anxiety worsening my migraine or am I feel anxious because of the pre-migraine stage? #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A3: omg, I can’t even count the ways. To start, about 1.5 yrs ago I had to drop out of a really excellent day treatment program for my depression & panic disorder bc I missed so much of it bc of my migraine. #MigraineChat |
| Beth Morton @beth_morton Q4. Living with #migraine can be challenging enough. What strategies do you use to manage the challenges of multiple health conditions (e.g., self care, health care, finances, errands, relationships, etc.)? #MigraineChat https://t.co/ouDeeBgKex |
| Beth Morton @beth_morton @aparna_r_writer Yes! Sometimes getting one diagnosis just becomes an excuse for health care providers to write off any future symptoms. #MigraineChat |
| Rebecca @PyesMusings @Alexandria_SZ Whaaat. Isn’t that commonly known? I get a sense of impending doom that I don’t even really register as an emotion anymore, just “oh, I’m about to get a spike.” #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A3b: also in the mental health + migraine area, balancing pharmacological treatments has been hard. My depression was very treatment resistant and the antidepressants that helped my migraine slightly (like Nortriptyline) exacerbated my depression and anxiety. #MigraineChat |
| Krista @Kristacatlady @emilygayle99 It is so frustrating when they look at each dx as separate. I, too, developed dysautonomia, migraines, and scoliosis all at the same time (age 8) so it is hard for me to think that they might somehow be linked. I guess it might be a coincidence. #MigraineChat |
| Beth Morton @beth_morton @HemingwayMuse @SarahLerner +1. Me, three. #MigraineChat |
| Bridget Walker @bwalker1314 A4 To manage Migraine Disease and other conditions I A. Try to keep consistent routines like sleep, eating, and exercise B. I have recently paid attention to my need for a hobby C. I have started to say YES to saying NO so I can take care of my needs. #MigraineChat |
| Beth Morton @beth_morton @migrainemusings I want to use a lot of four letter words. I'm sorry. Migraine really sucks. #MigraineChat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A3c: I take sertraline now and it’s saved my life but I think either hasn’t effected or slightly worsened my migraine. But it’s a non-negotiable part of my mental health treatment. Other migraine meds worsen my ED by causing weight gain. Everything has its cost. #MigraineChat |
| Beth Morton @beth_morton @bwalker1314 Love these, Bridget! #MigraineChat |
| My Chronic Brain @mychronicbrain “It’s hard to feel hopeful when you feel like a medical mystery.” So. Relatable. #MigraineChat |
| Aparna R. @aparna_r_writer @beth_morton Exactly! This is basically the story of my last 10 years and it’s so damaging. #MigraineChat |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva @beth_morton A4. SELF CARE IS IMPORTANT! #1. Saying no to what I can’t do. #2. Being okay with not being okay. #3. Not over-burdening myself #4. Delegate, delegate, delegate! #5. It’s not selfish to take care of my needs. #MigraineChat |
| Beth Morton @beth_morton RT @migrainediva: @beth_morton A4. SELF CARE IS IMPORTANT! #1. Saying no to what I can’t do. #2. Being okay with not being okay. #3. Not over-burdening myself #4. Delegate, delegate, delegate! #5. It’s not selfish to take care of my needs. #MigraineChat |
| Krista @Kristacatlady A2: I have a hard time not thinking some of my chronic conditions might be related. When I was 8, I developed scoliosis, migraines (along with a daily headache), and dysautonomia. It was a time of high stress and others in my fam have migraine & scoliosis. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @migrainekrista: In addition to #migraine, I have depression and some form of dysautonomia (several dx over the years. Current one is neurogenic orthostatic hypotension). #MigraineChat |
| MoronicMusings_Of_A_Middle-AgedMigraneur @migrainemusings @beth_morton I have asked, what Rx will benefit more than one of my conditions. My anti-depressant and my current blood pressure meds are also beneficial for my migraine. #MigraineChat |
 | NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @migrainediva: @beth_morton A4. SELF CARE IS IMPORTANT! #1. Saying no to what I can’t do. #2. Being okay with not being okay. #3. Not over-burdening myself #4. Delegate, delegate, delegate! #5. It’s not selfish to take care of my needs. #MigraineChat |
| Peggy Stumhofer @MyGraineHope A2. It’s hard to determine what’s a separate comorbid condition & what’s a symptom of migraine itself. For ex, anxiety. I do experience anxiety on its own. But often, anxiety is part of migraine or my prodrome phase & my signal migraine pain is coming or worsening. #MigraineChat |
| Bridget Walker @bwalker1314 RT @migrainediva: @beth_morton A4. SELF CARE IS IMPORTANT! #1. Saying no to what I can’t do. #2. Being okay with not being okay. #3. Not over-burdening myself #4. Delegate, delegate, delegate! #5. It’s not selfish to take care of my needs. #MigraineChat |
| MoronicMusings_Of_A_Middle-AgedMigraneur @migrainemusings @migrainediva @beth_morton Learning how to say no should be everyone's #1 #MigraineChat |
 | ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday @beth_morton Pretty late to the party. I’m Sarah from NJ. Trying to battle through my weekend migraine while at work. #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @fabriKatie: |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q4. Living with #migraine can be challenging enough. What strategies do you use to manage the challenges of multiple health conditions (e.g., self care, health care, finances, errands, relationships, etc.)? #MigraineChat https://t.co/ouDeeBgKex |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A4: Luckily I’ve found a lot of strategies that help manage all of my conditions, esp. migraine & mental health. Keeping stable routines (sleep especially) helps. Gratitude, mindfulness, therapy. Staying focused on growth & healing instead of everything I’m missing. #MigraineChat |
| Peggy Stumhofer @MyGraineHope RT @migrainediva: @beth_morton A4. SELF CARE IS IMPORTANT! #1. Saying no to what I can’t do. #2. Being okay with not being okay. #3. Not over-burdening myself #4. Delegate, delegate, delegate! #5. It’s not selfish to take care of my needs. #MigraineChat |
| MoronicMusings_Of_A_Middle-AgedMigraneur @migrainemusings @beth_morton I'm currently in the waiting room to see about changing some of those meds though😕 #MigraineChat |
| Bridget Walker @bwalker1314 RT @beth_morton: @aparna_r_writer Yes! Sometimes getting one diagnosis just becomes an excuse for health care providers to write off any future symptoms. #MigraineChat |
 | CripDBot @FTSImKMSing RT @migrainekrista: In addition to #migraine, I have depression and some form of dysautonomia (several dx over the years. Current one is neurogenic orthostatic hypotension). #MigraineChat |
| Krista @Kristacatlady A2b: So maybe it was the stress. But I have always wondered if the change in my spine might have somehow contributed to the other issues. The curve developed rapidly, and I ended up needing to get my upper spine fused and some rods put in a few years later. #MigraineChat |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @bwalker1314: I did not know very much about neuralgias until I saw my headache specialist. Neuralgia is nerve pain which is different from Migraine disease. #MigraineChat |
| Beth Morton @beth_morton Q5. People with #migraine are more likely to experience #depression or #anxiety than those without migraine. How do you keep your mood up/manage anxiety during a prolonged migraine attack? #MigraineChat https://t.co/skabgye0eB |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q5. People with #migraine are more likely to experience #depression or #anxiety than those without migraine. How do you keep your mood up/manage anxiety during a prolonged migraine attack? #MigraineChat https://t.co/skabgye0eB |
| Rebecca @PyesMusings @beth_morton A4: daily walk! It’s important to be able to say “no,” but I’ve already got that part down thanks to depression, so saying “yes” even just a tiny bit helps a lot with both. #migrainechat |
 | DrYohannesውብሸት @Yohannes_WW RT @beth_morton: Q4. Living with #migraine can be challenging enough. What strategies do you use to manage the challenges of multiple health conditions (e.g., self care, health care, finances, errands, relationships, etc.)? #MigraineChat https://t.co/ouDeeBgKex |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday A1: It does feel like as I get older, I finally am getting diagnosed for things that I've always kind of lived with but couldn't put a name to. I currently live with Chronic Migraine, Anxiety, Endometriosis and CFS. #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A4b: one thing I’m working on right now is stabilizing my eating schedule. Bc of a long-standing ED, being on meds that cause weight gain & chronic nausea I really struggle with eating regularly but I recognize how important it is to stabilizing my health. #MigraineChat |
| My Chronic Brain @mychronicbrain Yes!! #MigraineChat |
| Aparna R. @aparna_r_writer @beth_morton A4. I’ve finally found a health care team that does listen to each other & communicate. That helps enormously for me in cutting down my workload. Self care is deep breathing, meditating, reading, & being kind to myself when I can’t do things. Still a WIP though! #MigraineChat |
| Beth Morton @beth_morton @MigraineStrong1 Eileen! I'm so glad you're here! Don't forget the #MigraineChat hashtag so that your replies are searchable to folks joining later (and get included in the transcript). |
| Bridget Walker @bwalker1314 A5 Quite honestly my Migraine attacks bring with them depressed mood and anxiety. Sometimes I need to remind myself the feelings will change. However, they do take a lot out of me. #migrainechat |
| Krista @Kristacatlady @beth_morton A2c: my dysautonomia does trigger migraine and visa versa. Migraine has affected my depression from time to time but oddly enough my worst periods of depression were long before my migraines went chronic. #MigraineChat |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva @beth_morton A5. It’s important for me to not personify depression and anxiety. We say things like “I am depressed” and “I’m anxious”. I prefer to say I’m having a flare up because mental illness doesn’t own me. Seeing it that way allows me to cope in a much healthier way. #MigraineChat |
| Rebecca @PyesMusings @beth_morton A5 ha, see A4. My migraine has been intractable for well over a decade, so it’s a prolonged attack, but even during extra bad spells, if I can physically get out the door and not risk ending up fetal position on the sidewalk, I do it. #migrainechat |
| Beth Morton @beth_morton @SarahLerner Hey, I could have written this (minus a sister)! #MigraineChat |
 | Migraine Strong - Eileen @MigraineStrong1 @beth_morton A2. The ears are definitely interrelated. When I have a #migraine attack, my ears are wonky (official medical term). I also feel like I might feel pain more intensely due to #CentralSentizitation. #MigraineChat |
| Aparna R. @aparna_r_writer @beth_morton A4. Also, my mom is an enormous support. She makes sure I eat on days when I can’t, takes me to appointments, etc. Couldn’t do this without my family! #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton #MigraineChat |
| Beth Morton @beth_morton Yes, I think I overshare because I hope I'm going to help someone going through the same thing solve a problem faster than I did. #MigraineChat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A5: I struggle badly with this. I try very hard to focus on positive mantras & reminders that it will pass. I can easily become suicidal in a long flare so keeping up with therapy, even over Skype, is super important. #migrainechat |
| Beth Morton @beth_morton RT @migrainediva: @beth_morton A5. It’s important for me to not personify depression and anxiety. We say things like “I am depressed” and “I’m anxious”. I prefer to say I’m having a flare up because mental illness doesn’t own me. Seeing it that way allows me to cope in a much healthier way. #MigraineChat |
| Krista @Kristacatlady A3: I stopped pursuing treatment for my dysautonomia a few years after my migraines went chronic. It is too hard to find a good doc, get to appointments, etc being so sick with migraine. Dys. effects my daily but I just don't have the energy to pursue it all now. #MigraineChat |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva @beth_morton A5. Also, trying to do things that make me feel better in any way. Whether it’s watching my fave movie for the millionth time or walking around @Target for a while. Distraction is the name of the game. #MigraineChat |
| Bridget Walker @bwalker1314 RT @migrainediva: @beth_morton A5. It’s important for me to not personify depression and anxiety. We say things like “I am depressed” and “I’m anxious”. I prefer to say I’m having a flare up because mental illness doesn’t own me. Seeing it that way allows me to cope in a much healthier way. #MigraineChat |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday A2: Absolutely! My physical therapist once told me is that certain pain or symptoms are tied together & can be indicators or coping mechanisms for the body. I know that my anxiety and depression gets so much worse the longer I have a migraine attack #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A5b: I think ultimately the #1 thing keeping me going during bad flares and even just day to day are my really healthy, joyful and loving relationships. My close friends, my aunt, other migraineurs, etc. Being reminded that I’m loved the way I am is so reassuring. #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @MigraineStrong1: @beth_morton A2. The ears are definitely interrelated. When I have a #migraine attack, my ears are wonky (official medical term). I also feel like I might feel pain more intensely due to #CentralSentizitation. #MigraineChat |
| Beth Morton @beth_morton Q6. We have talked about stigma in the past. Of your multiple conditions, which do you feel is the most stigmatized? How so? #MigraineChat https://t.co/YRkVq3dFKw |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton A3. My biggest challenge was finding a doctor that knew his way around #chronic #intractable #Migraine and wouldn’t give up on me. Once I found him, and realized he was the type to partner with me, it’s been awesome since. #MigraineChat |
| Krista @Kristacatlady @Alexandria_SZ My old doc told me migraine attacks mess with our neurotransmitters so changes in mood are to be expected with migraine attacks. #MigraineChat |
| Beth Morton @beth_morton @fabriKatie Not defeatist at all. I like to call that self care, ha! #MigraineChat |
 | Bungalow Girls @BungalowGirls RT @migrainediva: @beth_morton A5. It’s important for me to not personify depression and anxiety. We say things like “I am depressed” and “I’m anxious”. I prefer to say I’m having a flare up because mental illness doesn’t own me. Seeing it that way allows me to cope in a much healthier way. #MigraineChat |
| Aparna R. @aparna_r_writer @beth_morton A5. It’s something I honestly struggle with, as my depression is very situational (tracks closely with the severity of my migraines). I listen to audiobooks to distract myself. Fantasy, adventure, romance, anything to escape for a while into another world. #MigraineChat |
| Bridget Walker @bwalker1314 A6 I believe #migraine is the most stigmatized out of everything I have going on. Most people do not know what occipital neuralgia is, and being that I cannot see they put to and to together with my non-24. I have even found depression is accepted over Migraine. #MigraineChat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A5c: also, distraction is super important. Netflix, audiobooks, talking to ppl online, working on my course when I can handle it— all of these take my mind off the depression, anxiety and migraine #migrainechat |
| My Chronic Brain @mychronicbrain @fabriKatie It sounds like taking care of yourself. ☺️ Our culture is so focused on doing doing doing that when we have to stop and rest we too often feel guilty. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @MigraineStrong1: @beth_morton A3. My biggest challenge was finding a doctor that knew his way around #chronic #intractable #Migraine and wouldn’t give up on me. Once I found him, and realized he was the type to partner with me, it’s been awesome since. #MigraineChat |
| Bridget Walker @bwalker1314 is accepted over Migraine. #MigraineChat A6 pt 2 From my experience, I feel like people tend to blame my Migraine Disease on other conditions I have. For example, You have depression… no wonder you have Migraine. #MigraineChat |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva @beth_morton A6. This is a hard one. I think both #migraine & #mentalillness are extremely stigmatized, discounted, & disrespected in similar ways. Living with both means I’m doubly diminished - my physical pain is minimized to a character flaw & my mental health is a weakness. #MigraineChat |
| Beth Morton @beth_morton @aparna_r_writer My depression is very situational, too, which makes figuring out whether/how I should treat it hard. Distraction has been my preference since - so far - meds have seemed to make my migraine attacks worse. #MigraineChat |
| Rebecca @PyesMusings @fabriKatie Sonya Huber’s Pain Woman Takes Your Keys does an amazing job of articulating this (even, or especially, if it’s *not* going to pass, you have to make peace with it), and also the fact that this is systemically unacceptable; we should not be in this much pain. #migrainechat |
| Bridget Walker @bwalker1314 A6 pt 3 I think people generally do not understand the complexities of Migraine and they try to prescribe a reason for it. As in, they treat Migraine Disease as a symptom of another problem which is hard to break through at times. #MigraineChat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 Q6: it’s strange for me to say, actually, but definitely migraine. I’ve been advocating for #mentalhealth much longer so I’m used to pushing back against that stigma. But lately I think that in my life, I encounter more stigma around migraine. #migrainechat |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton Q4. First and foremost, No is a complete sentence. We have to be able to say this, mean it and set aside any guilt over using it. Sometimes we can’t do what other want or expect from us, and that’s completely ok. #MigraineChat |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday I like this! I need to change the way I talk about anxiety. |
| My Chronic Brain @mychronicbrain @SarahLerner @DWSKTrader @beth_morton How helpful! What’s it called? #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @migrainediva: @beth_morton A6. This is a hard one. I think both #migraine & #mentalillness are extremely stigmatized, discounted, & disrespected in similar ways. Living with both means I’m doubly diminished - my physical pain is minimized to a character flaw & my mental health is a weakness. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @bwalker1314: A6 I believe #migraine is the most stigmatized out of everything I have going on. Most people do not know what occipital neuralgia is, and being that I cannot see they put to and to together with my non-24. I have even found depression is accepted over Migraine. #MigraineChat |
| Beth Morton @beth_morton CT: That hour FLEW by! Did you learn anything new? Have questions or feedback for myself or Jaime? Please let us know. #MigraineChat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A6b: maybe it’s because I’m young & bc my family is used to my mental health issues, but I get a lot more flack for my migraine (“not a real disability” “you should still be able to work” “just a headache” “aren’t you better yet” etc) #migrainechat |
| Aparna R. @aparna_r_writer @beth_morton A6. I think ME/CFS is the most stigmatized. It’s dismissed as just fatigue, when it’s actually a specific pattern of fatigue (post-exertional malaise) and other symptoms. It’s the condition I’ve had the most trouble accessing treatment for (no FDA approved meds). #MigraineChat |
| Rebecca @PyesMusings @beth_morton A6 My colleagues know about my migraine but definitely not my depression! Among friends, I feel like people are ok with the existence of both depression and migraine, probably bc both are so common; but the flip side of that is people don’t get how bad it is #migrainechat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 A6c: I also get a lot of ppl in my family who kind of assume that my migraines are caused by or directly related to the mental health stuff— like that I should be seeing a psychiatrist for my migraine in particular. #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @emilygayle99: Q6: Q6: it’s strange for me to say, actually, but definitely migraine. I’ve been advocating for #mentalhealth much longer so I’m used to pushing back against that stigma. But lately I think that in my life, I encounter more stigma around migraine. #migrainechat |
| Beth Morton @beth_morton Please keep chatting. I'll pop back throughout the afternoon to reply and generate a transcript later this week. This was a fantastic chat! Thank you, Jaime, and everyone else for joining this month. See you for the next #MigraineChat on December 2nd! |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday A3: My struggling is balancing work & conditions. I am super guilty of pushing my body over the limit (numerous times) to get through a work deadline or work event and then either functioning at half capacity (or no capacity) later on at work or in my personal life. #migrainechat |
| My Chronic Brain @mychronicbrain @beth_morton Thank you for hosting, @beth_morton & @migrainediva! #MigraineChat |
| Peggy Stumhofer @MyGraineHope @beth_morton A4. My hubby is a huge help & support. He does most of our cooking & driving these days. Friends are a lifeline. Walks, yoga, mindfulness, prayer, breathing - as many said. #Audiobooks & the #library have taken me many places this year when stuck inside! #MigraineChat |
| Krista @Kristacatlady @emilygayle99 I have this experience as well. I don't know if it because mental illness is discussed much more. Whereas someone having migraines more days than not is something many people don't even know can happen. It is so much more rare. #MigraineChat |
 | Ody @OdyO11 @beth_morton I'm late to #MigraineChat, but I'll write some replies to the questions anyway. :) I'm from Europe, and I'll write "migraine", since in my case it clearly correlates with subluxations related to craniocervical instability. |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton A5. I usually reach out to family or my admin team on Migraine Strong. Our fellow blogger Jennifer Bragdon wrote this piece on how to stop feeling anxious which has a lot of tips in it. The @calm app is my jam. #MigraineChat https://t.co/tSY37siCgc |
 | Angel Dwyer @theangeldwyer RT @migrainediva: @beth_morton A6. This is a hard one. I think both #migraine & #mentalillness are extremely stigmatized, discounted, & disrespected in similar ways. Living with both means I’m doubly diminished - my physical pain is minimized to a character flaw & my mental health is a weakness. #MigraineChat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @beth_morton @aparna_r_writer (Tw) For me, the only antidepressant to help my migraine at all was nortriptyline, but I attempted suicide on it. Fluoxetine and now sertraline are the only ones to help my anxiety and depression and both I believe have made my migraines slightly worse. #migrainechat |
| Rebecca @PyesMusings @beth_morton A6b They think (and say) “I take antidepressants and that takes care of it,” or “yeah, migraines suck, but life goes on,” and think you should also be fine. If only! #migrainechat |
| Ody @OdyO11 @beth_morton A1: hEDS, dysautonomia, spastic hemisyndrome/mild incomplete tetraplegia, MCAS etc. #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 @SarahLerner @beth_morton I think the reminder of having made it out the other side before is powerful. 💕#MigraineChat |
| em 🌹✨🏳️🌈✡️🌿✨🌹 @emilygayle99 @migrainekrista Yeah, that’s what I think too. Especially these days mental health is discussed a lot— and that’s great and so important. But when you say you have a constant migraine, ppl don’t really take you seriously. #migrainechat |
| Beth Morton @beth_morton @OdyO11 Welcome! I'm glad you can join! Don't forget the #MigraineChat hashtag so your replies are searchable and get included in the transcript (if you want them to). |
| Ody @OdyO11 @beth_morton A2: What was once diagnosed as migraine now clearly correlates with subluxations related to craniocervical instability, a comorbidity of my hEDS. When I lie on my side, I feel my upper vertebrae slip and "migraine" pain sets in. #MigraineChat |
| Rebecca @PyesMusings @migrainesallday Oh, this is a big one. I can generally push through a deadline (thanks to stress-related vasoconstriction, I now know), but the migraine spike afterwards invariably comes with a depression flare that outlasts the migraine. #migrainechat |
| Krista @Kristacatlady @beth_morton A5: Distraction (intense audio books, and TV help a lot), mindfulness, reminding myself that high pain will pass, spiritual reading, playing with my kitties, finding joy in small things, self compassion. How to be sick. By Toni Bernhard is full of helpful practices. #MigraineChat |
 | Tinu Abayomi-Paul @Tinu RT @beth_morton: Q5. People with #migraine are more likely to experience #depression or #anxiety than those without migraine. How do you keep your mood up/manage anxiety during a prolonged migraine attack? #MigraineChat https://t.co/skabgye0eB |
| Ody @OdyO11 @beth_morton A2: When my upper cervical vertebrae slip back into place, the pain stops. My hemisyndrome/mild incomplete tetraplegia is thought to be a result of my CCI, too. It's worse when my upper vertebrae feel subluxed. There's also a correlation with my dysautonomia. #MigraineChat |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday A4: The chronic migraine & chronic pain community I've found online have been some of the most helpful, encouraging and supportive people. That along with my partner helps me know that I'm not alone in this which makes each day a little easier #migrainechat |
| Krista @Kristacatlady @fabriKatie I see it as a form of acceptance. Fighting it just wears me out and increases my pain. And there is no winning a fight with a migraine. Just have to wait it out and do what you can to get through it. #MigraineChat |
| Rebecca @PyesMusings @emilygayle99 @migrainekrista Yeah. I’ve had some luck with “you know how when you have a migraine, you have to put stuff off and play catch-up the next day?” “Yeah...?” #migrainechat |
| Bridget Walker @bwalker1314 RT @migrainesallday: A4: A4: The chronic migraine & chronic pain community I've found online have been some of the most helpful, encouraging and supportive people. That along with my partner helps me know that I'm not alone in this which makes each day a little easier #migrainechat |
| Rebecca @PyesMusings @emilygayle99 @migrainekrista “I can’t do that. I always have a migraine, and there is nowhere near enough low-pain time to do everything that needs doing. So whatever I do, I do with a migraine.” #migrainechat |
| M 💛 @MissDS17 @beth_morton Q5: I struggle with this, but try little things- watch comedies, do a face mask, try some at-home back/neck massage. Interested in seeing what others say. #migrainechat |
 | Añaìd....😃 Irritable Cat Syndrome @NiceKiTTy4u RT @bwalker1314: A6 pt 3 I think people generally do not understand the complexities of Migraine and they try to prescribe a reason for it. As in, they treat Migraine Disease as a symptom of another problem which is hard to break through at times. #MigraineChat |
 | nocturnal era dea @deannejello @beth_morton A1. Anxiety, chronic back pain, depression, IBS. #migraine came relatively later-- ive had anxiety for as long as i can remember. #migrainechat |
| Ody @OdyO11 @beth_morton A3: Making plans is problematic since I often have to cancel due to attacks. Also, I've encountered diagnostic overshadowing: My other diagnoses were missed for some time because it was thought to "just be part of the migraine". #MigraineChat |
| nocturnal era dea @deannejello @beth_morton A2. oh absolutely. being physically limited fuels my depression, having an invisible #chronicillness fuels my anxiety. on the reverse side, my chronic pain fuels my #migraine almost as much as my migraine fuels my chronic pain. #migrainechat |
| nocturnal era dea @deannejello @beth_morton A3. right now, it's mostly about credibility. i'm not getting the medical support i need, which in turn means i'm not getting the academic support i need. i'm so close to graduation and my #migraine attacks are pulling it further and further from my grasp. #migrainechat |
| Ody @OdyO11 @beth_morton A5: I'm really lucky insofar that my "migraines" don't influence my mood. I'm mainly dazed, can't think clearly anyways during these attacks, just wait it out and try to find relief in sleep. #MigraineChat |
| Peggy Stumhofer @MyGraineHope @beth_morton A6. Ppl don’t understand what they can’t see/feel. Migraine/anxiety/depression = #InvisibleIllness What’s worse, b/c everyone has had a headache, felt down or anxious they THINK they understand. Makes me think of the country song, that was a river this is an ocean. #MigraineChat |
| MoronicMusings_Of_A_Middle-AgedMigraneur @migrainemusings @beth_morton Sorry, ran out of room #MigraineChat |
| Krista @Kristacatlady @bwalker1314 I am tired of that random person in migraine threads who says "find your root cause." I just want to scream. It feels so dismissive. I don't know if I have a root cause. But chronic migraine is rampant in my fam, so I tend to think genetics is my root cause. #MigraineChat |
| Peggy Stumhofer @MyGraineHope @bwalker1314 I’ve started to actually explain to ppl there are secondary headache disorders caused by something else w/root cause & there are primary headache disorders where migraine is the disease itself. (I’m just not sure how we really know for sure which camp we fall into?) #MigraineChat |
| Peggy Stumhofer @MyGraineHope RT @mychronicbrain: “It’s hard to feel hopeful when you feel like a medical mystery.” So. Relatable. #MigraineChat |
| Beth Morton @beth_morton Based on today’s #MigraineChat, I’m curious: Those who have a chronic illness(es) (mental or physical), how often are the symptoms used by your healthcare providers to dismiss/down play new symptoms or symptoms of another, undiagnosed illness? |
 | sick lately, words bad (check 📌 for discord info) @bennessb RT @beth_morton: Based on today’s #MigraineChat, I’m curious: Those who have a chronic illness(es) (mental or physical), how often are the symptoms used by your healthcare providers to dismiss/down play new symptoms or symptoms of another, undiagnosed illness? |
| My Chronic Brain @mychronicbrain @alisonpalk @beth_morton Incredibly difficult! #MigraineChat |
 | Morgan (soupgargoyle at bsky dot social) @SoupGargoyle constantly |
 | Migraine, Chronic Illness, Mental Health @MigraineMantras If you missed #MigraineChat, you can go to @Beth_Morton's account and catch up on the recap. Today's topic was #migraine and co-morbidities, with guest Jaime Sanders @MigraineDiva Alexandria for MM |
| Jaime M Sanders | The Migraine Diva (she/her/hers) @migrainediva RT @MigraineMantras: If you missed #MigraineChat, you can go to @Beth_Morton's account and catch up on the recap. Today's topic was #migraine and co-morbidities, with guest Jaime Sanders @MigraineDiva Alexandria for MM |
 | BeautifulMessyBall @YodaKnows3 I have gotten used to the stigma of #migraine and people thinking it’s not real, or that I exaggerate, or that I’m not really sick because I don’t look sick; but I will never get over my own mother not believing my illness. #invisibleillness #invisibledisability #MigraineChat https://t.co/mOhvohabWJ |
 | Edel Loko @eloko901 RT @mychronicbrain: Yes!! #MigraineChat |
 | natasha.m.g. @natashamg4 @beth_morton Bruxisam and vertigo #MigraineChat |
 | Mrs Mulein @MrsMulein @beth_morton AZ I have lived with #migraine since I was 4 years old. I have #hEDS which is a rare genetic disease that has to do with faulty collagen in my body. I also have #Fibromyalgia and I feel like everything else that happens must be connected to at least 1 of the 3. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ All the time. New symptoms are constantly dismissed with "I wouldn't worry about it" or "I've never heard of #migraine having symptoms like that." Hemiplegic migraines weren't diagnosed till I was in my late 30s: before that, everyone dismissed them or said I was imagining things |
#migrainechat content from Twitter.