#migrainechat Transcript
Healthcare social media transcript of the #migrainechat hashtag.
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See #migrainechat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Beth Morton @beth_morton 90 minutes to #MigraineChat! I hope you will join me! Details below: |
 | Catherine the Grateful @sugarmag76 RT @beth_morton: 90 minutes to #MigraineChat! I hope you will join me! Details below: |
 | sick lately, words bad (check 📌 for discord info) @bennessb RT @beth_morton: 90 minutes to #MigraineChat! I hope you will join me! Details below: |
 | Democracy Over Demagogues @freeandclear1 RT @beth_morton: 90 minutes to #MigraineChat! I hope you will join me! Details below: |
| Beth Morton @beth_morton @carleen2020 Glad you can join, hope it doesn't get too confusing!! If you put #MigraineChat in Twitter search bar and then sort by "latest," does it let you see tweets un-threaded? Or if you use TweetDeck, maybe? |
| Beth Morton @beth_morton Hello everyone! Welcome to #MigraineChat! I say this every month, but more than ever, I really hope you are doing as well as possible. And thank you for joining. If you are joining for the first time, here are some chat tips & guidelines here: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton Two main tips: (1) I’ll start each question w/Q1, Q2, etc. Remember to start your corresponding reply w/A1, A2, etc. (or quote tweet). (2) Always include the #MigraineChat hashtag! It makes following the conversation easier & ensures your tweets make the transcript. |
| Beth Morton @beth_morton Who is joining #MigraineChat today? If you want, introduce yourself in a way you are comfortable. I’m Beth, your host, joining #MigraineChat from Vermont where it is finally a Spring-y day! My migraines and anxiety have been pretty rough lately, though, so hard to enjoy it. |
| Beth Morton @beth_morton While folks join, a few standing reminders. First, this #MigraineChat is purely informational. Nothing shared should be considered medical advice or a substitute for talking with your doctor. |
| Beth Morton @beth_morton Twitter is a public forum and we are discussing health-related topics. Share only what is comfortable for you. Lastly, please refrain from posting GIFs with flashing media. They can be #migraine triggers for some. #MigraineChat |
| Beth Morton @beth_morton Today's topic is COVID-19. I know this could provoke anxiety for some, but I’m genuinely interested in how we are all coping. If you need to step away and come back to #MigraineChat later, I’ll be checking the hashtag. |
 | Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Twitter is a public forum and we are discussing health-related topics. Share only what is comfortable for you. Lastly, please refrain from posting GIFs with flashing media. They can be #migraine triggers for some. #MigraineChat |
| Beth Morton @beth_morton Q1. How has your life changed since the COVID-19 outbreak? What has stayed the same? #MigraineChat https://t.co/Iy4egMmSXg |
 | Sari C Mauro @ArchivistSariM @beth_morton Sari joining from Boston where I'm still in bed recovering from a particularly obnoxious attack / flare. Possibly participating, possibly lurking. #MigraineChat |
| Beth Morton @beth_morton @Alexandria_SZ Very, very relateable. #MigraineChat |
 | Carleen Marie Connecting Your Story in Body-Mind @carleen2020 @beth_morton I had to move my teaching (yoga, meditation) on line. But I'm self employed and already do a lot of work from home. I had to shift my relationship with the computer- which I generally don't love due to eye strain and migraines, to something more favourable. #Migrainechat Q1A1 |
 | rebecca @blueraccoon A1. The biggest change for me is working from home full time and also having my wife work from home full time. In terms of going out, not much has changed. I had no life before quarantine. #MigraineChat |
 | Brianna or Bri @bnbthehugger RT @beth_morton: Today's topic is COVID-19. I know this could provoke anxiety for some, but I’m genuinely interested in how we are all coping. If you need to step away and come back to #MigraineChat later, I’ll be checking the hashtag. |
| Sari C Mauro @ArchivistSariM @beth_morton A1. I'm in week 4 of working from home and I've found I've had a lot more energy and capacity for things like cooking, which is amazing. #MigraineChat |
| Beth Morton @beth_morton @carleen2020 Yes! More screen time is a definite issue to contend with. I need to be better about taking breaks. I've had more work lately, though not as a consequence of the outbreak, just coincidence. But it has added to my screen time, too. #MigraineChat |
| rebecca @blueraccoon @Alexandria_SZ good morning! #migrainechat |
| Beth Morton @beth_morton Q2. How has the COVID-19 outbreak affected your #migraine healthcare? Are your providers switching to #telemedicine? Are they still providing hands-on treatments (e.g., Botox and other injections)? Cancelling some or all of the above? #MigraineChat https://t.co/9M86JuZTPI |
| Beth Morton @beth_morton @ArchivistSariM Ooh, I love to hear that! #MigraineChat |
| rebecca @blueraccoon @beth_morton hey, I'm becc. I'm glad to have this chat today, I've had a pounding tension migraine for five days now and I could use some community. I'm so sorry you're also having a rough time. *hugs if wanted* #MigraineChat |
| Beth Morton @beth_morton @blueraccoon I've had a rough stretch, too, so hugs welcome and sent back! I was also very much looking forward to this month's #MigraineChat even if I'm a little tired of hearing about the topic. (Sorry!) |
| Sari C Mauro @ArchivistSariM @beth_morton It's been really refreshing to be able to do so many of the things I've felt I "should" be able to do and can't! And also it's provoking all kinds of anxiety about the future. #MigraineChat |
| rebecca @blueraccoon A2: I am not scheduled to see my headache specialist until May 12 for Botox, no idea if that'll happen or not. I hope it does but also I'm not wholly convinced it helped last time but it's worth a try again. #MigraineChat |
| rebecca @blueraccoon @hazelmaddie @beth_morton On the one hand I don't have to commute into Seattle every day or spend hours under fluorescent lights, so that helps. But anxiety = tense becc = tension migraine. I hope if you're having a rough time it eases soon. 💜💙#MigraineChat |
| Sari C Mauro @ArchivistSariM @beth_morton A2. I'm due for Botox in 10 days. No word yet on whether the appointment will be cancelled. My provider is in a hospital which also comes with some stress and additional considerations. #MigraineChat |
| rebecca @blueraccoon @ArchivistSariM @beth_morton I have noticed the same thing, although it's been hard lately with the tension migraine. But I've been stress-baking, and I've noticed an increase in my ability to get stuff done around the house. I'm not as exhausted when Saturday hits. #MigraineChat |
| Sari C Mauro @ArchivistSariM @hazelmaddie @beth_morton A few weeks before this all started I began a WFH schedule of one day a week. I wasn't at it long enough to know if it helped. #migraineChat |
| Beth Morton @beth_morton @MissDS17 I think I'm sensing that there have been trade-offs in "triggers". Hopefully it ends up being more positive, though. #MigraineChat |
| rebecca @blueraccoon @hazelmaddie @beth_morton I live up near Lynnwood/Mill Creek and normally commute to Belltown. I work 6a-2p normally so I can avoid traffic. It's been really nice not having to do that. #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q2. How has the COVID-19 outbreak affected your #migraine healthcare? Are your providers switching to #telemedicine? Are they still providing hands-on treatments (e.g., Botox and other injections)? Cancelling some or all of the above? #MigraineChat https://t.co/9M86JuZTPI |
| rebecca @blueraccoon @hazelmaddie @beth_morton cool! Always nice to meet folks in the area. Not that we can do anything about it right now... #migrainechat |
| Beth Morton @beth_morton @fabriKatie Yes! Great point! Some of my appointments have been cancelled (PT), others switched to telemed. But getting scripts is still tough and requires going to the pharmacy in-person and multiple times. Eeek! #MigraineChat |
| Beth Morton @beth_morton Q3. Do you feel like you are taking precautions like physical distancing more seriously than others (either out of necessity for your health or otherwise)? #MigraineChat https://t.co/GIUp1xGWL6 |
| rebecca @blueraccoon @beth_morton @fabriKatie my pain doc has switched to telehealth but will only write for 2 weeks that way. I'm not sure why the restriction but they're letting me do telehealth so I'm not really going to question it. #MigraineChat |
| Beth Morton @beth_morton @rachel_x_graves Yeah, this. I'm glad he is understanding! I moved in with my mom last summer and sometimes I just need to hide in my room because I can't make sentences anymore or am too cranky. Migraine has made me a teenager again. 😯 #MigraineChat |
| Sari C Mauro @ArchivistSariM @carleen2020 @beth_morton It's been hard for me lately to delineate the end of one attack and the beginning of another. "Flare" seems more true to my experience -- the symptoms I'm already always feeling got worse and more intense. #MigraineChat |
| Beth Morton @beth_morton @evelyn_mevelyn This is such a good point. Now that everyone is hopping on FaceTime and Zoom to connect, it is a bit overwhelming. Being *that* social when I don't feel well can be exhausting. Is it for you, too? #MigraineChat |
| rebecca @blueraccoon A3: Anxiety brain had me preparing for pandemic starting end of January, so that was fun, but I don't think I'm taking precautions more seriously than those around me? Just seriously enough? But I live in Seattle and we've been dealing for a while. #MigraineChat |
| Carleen Marie Connecting Your Story in Body-Mind @carleen2020 @beth_morton Q3A3 #MigraineChat Not more serious because I'm afraid of migraines, but more serious because I have a background in infection control. Also my partner is 65... |
 | Rachel Graves @rachel_x_graves @beth_morton I'm Rachel, also in the Pacific Northwest. Are any of you PNWers in Tacoma? I've been sick, probably not #COVID19, but will I ever know for sure? Anyway, I have all kinds of weird dizziness/ear/head things. Hard to know where virus stops & migraine begins. #MigraineChat |
| rebecca @blueraccoon @rachel_x_graves I'm sorry :( #MigraineChat |
| Beth Morton @beth_morton Q4. Do you think your experience w/#migraine - or another condition - is allowing you to cope with current changes like greater physical distancing, loss, and/or anxiety better than others? Is it making it harder in some ways? #MigraineChat https://t.co/L2wZk5upaO |
| Beth Morton @beth_morton @hazelmaddie @rachel_x_graves I've had a head cold off an on, too. Now maybe allergies. Combined with migraine symptoms, I feel like I'm always on edge! Is it COVID?!! #MigraineChat |
| rebecca @blueraccoon @rachel_x_graves @beth_morton Alas I'm north of Seattle. Closer than Oregon, but about an hour from Tacoma. I'm sorry you're having dizziness issues. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q4. Do you think your experience w/#migraine - or another condition - is allowing you to cope with current changes like greater physical distancing, loss, and/or anxiety better than others? Is it making it harder in some ways? #MigraineChat https://t.co/L2wZk5upaO |
| Beth Morton @beth_morton @GaryAspinall10 I'm so sorry about being furloughed. That does sound stressful. Good for you on staying upbeat! #MigraineChat |
| rebecca @blueraccoon A4: On the one hand, I'm used to being home all the time and only going out for essentials so that's easy. I'm used to not seeing people, so that's fine. Working from home is proving to be good for my health. It's just the anxiety I'm struggling with. #MIgraineChat |
| Beth Morton @beth_morton @evelyn_mevelyn Same for me. I live with my mother who may not like to admit it, but in the high-risk group. #MigraineChat |
| Beth Morton @beth_morton @barkflight Great point. For some of us, the "distancing" we experienced before had at least some element of choice. We still had some autonomy on our better days. #MigraineChat |
| Carleen Marie Connecting Your Story in Body-Mind @carleen2020 @beth_morton #Migrainechat Q4A4: I am coping so much better than most because of migraines and the life changes I've made because of migraines (reflection, insight, meditation, yoga) I sleep soundly, love my down time, appreciate social distancing, self regulate, I feel totally prepared. |
| Beth Morton @beth_morton @blueraccoon Yup, this is basically my answer, too. #MigraineChat |
 | Cascadia Fire Has No Season @barkflight RT @beth_morton: @barkflight Great point. For some of us, the "distancing" we experienced before had at least some element of choice. We still had some autonomy on our better days. #MigraineChat |
| Beth Morton @beth_morton Q5. Related, have you been able to provide tips or support during this time to your more “healthy” friends and family based on your experience with #migraine or other chronic illnesses? Is that affirming or challenging? #MigraineChat https://t.co/kAHWAlToOL |
| rebecca @blueraccoon @beth_morton it took me a couple days to figure out why my head hurt so much and why it felt differently than my normal migraines and then I realized it was all tension, the band around the head & knot at the base of my skull. What I'd give for a massage... #MigraineChat |
 | Raven Mae @MaeNena73 @beth_morton A5 #MigraineChat Some coworkers are getting stress headaches so I can give suggestions to handle those. It's both affirming & frustrating. I'm glad I can help & I get that they're not used to pain, but sometimes I want to point out that I deal with worse than that 24/7. |
| Beth Morton @beth_morton @SorchaHolloway Yay, another chat! I miss wine, but retweeting for those who can drink it! #MigraineChat |
| Carleen Marie Connecting Your Story in Body-Mind @carleen2020 @migrainesallday Q3A1 #Migrainechat re-funding. Labeling it consistently and often as a neurovascular disease. Not an episodic condition brought on by stress or environment-though this can exacerbate. Teaching migrainers to NOT PUSH THROUGH, this teaches others that you can and should keep going. |
| Beth Morton @beth_morton @carleen2020 @migrainesallday Yes, yes! Love this recognition! #MigraineChat |
| Beth Morton @beth_morton @fabriKatie Hahaha, noooo! I'm sure you are a good friend! #MigraineChat |
| Sari C Mauro @ArchivistSariM @beth_morton A4. I think it's allowed me to appreciate being at home, to see the benefits instead of the frustrations. It's forced me to rest more and allowed me to care for myself more. #MigraineChat |
| Beth Morton @beth_morton @evelyn_mevelyn I'm so glad you joined our #MigraineChat today! Thank you for being here. |
| Beth Morton @beth_morton Q6. This has come up in a few answers, but what is currently keeping you grounded? What are you doing to pass the time or relieve stress during periods of (potentially greater) isolation? #MigraineChat https://t.co/B67vfRL7Fp |
| Beth Morton @beth_morton My question pacing was terrible this month folks, sorry! If you aren't feeling well and want to jump off, I understand. I have one more question, then a few wrap up tweets. #MigraineChat |
| Beth Morton @beth_morton @hazelmaddie Not gonna lie, kinda looking at buying a Switch so i can get in on this addiction. #MigraineChat |
| Carleen Marie Connecting Your Story in Body-Mind @carleen2020 @beth_morton Q6A6 #Migrainechat My routine is similar instead of teaching out, it's on-line. Rise and meditate-love it. Eat, mild exercise and THEN connect to the outer world. I limit the negative or triggering information I take in and remember at all times someone somewhere is suffering. |
| Beth Morton @beth_morton @SorchaHolloway Ah, yeah. Do you have pets to torture by hugging!? I've seen some people virtual hugging on Zoom calls (eyes shut, give yourself a hug at the same time). Sounds corny, but might give a little boost! #MigraineChat |
| Beth Morton @beth_morton Q7. What societal changes or accommodations that have popped up in response to the COVID-19 outbreak have been helpful to you? How can we advocate for these changes to become permanent? #MigraineChat https://t.co/Q3CT2hGYmP |
| Beth Morton @beth_morton @rachel_x_graves Yeah, this is the hardest for me. Having a mix of sympathy/wanting to help and feeling like "see what I mean, this sucks!" reactions for my "healthier" friends newly going through this. #MigraineChat |
| Beth Morton @beth_morton Alright, I want to respect your time and migraine-y brains, so we'll wrap up. Feel free to keep replying, though. That went fast! I'll check the hashtag tonight and tomorrow, and reply as I can. CT: Is there anything you need that the #MigraineChat community can help with? |
| Beth Morton @beth_morton Please be well over the next month. If I can help with anything, reach out (DMs or use the #MigraineChat hashtag). You can also join our FB group: https://t.co/u8tt0Afqoo |
| Democracy Over Demagogues @freeandclear1 @beth_morton A1. Positive difference, activities are now accessible to me via Zoom that weren't in the past. I can participate more in spiritual group activities. #migrainechat |
| Democracy Over Demagogues @freeandclear1 @beth_morton A1 negative difference, i don't see my grandsons except on a screen! They are major source of well being for me, since I'm retired and single.#migrainechat |
 | Angie Glaser @winedarkme RT @beth_morton: Q1. How has your life changed since the COVID-19 outbreak? What has stayed the same? #MigraineChat https://t.co/Iy4egMmSXg |
 | JeepTHEECopacetic💛 @Mznewzz RT @beth_morton: Q7. What societal changes or accommodations that have popped up in response to the COVID-19 outbreak have been helpful to you? How can we advocate for these changes to become permanent? #MigraineChat https://t.co/Q3CT2hGYmP |
 | Rebecca @PyesMusings @beth_morton A4a I’ve already done my grieving over being largely homebound, so that’s good. And social norms from chronic illness spaces are helpful: don’t compare stress levels/how hard this is. You can bitch even if you’re not objectively the worst-off person in the world #migrainechat |
| Rebecca @PyesMusings @beth_morton A4b and you shouldn’t respond to someone who’s bitching with “my life is worse.” The only time comparisons are appropriate is if you need to decide who’s more able to take on a burden, and even then, be gentle with each other and be compassionate. #migrainechat |
| Democracy Over Demagogues @freeandclear1 @beth_morton Sorry I missed most of #migrainechat I'm coming down with a #migraine today. A storm is overhead. Trying to decide which abortive to take, probably dihydroergotomine spray. |
| Rebecca @PyesMusings @beth_morton A1a I’m still working from home, more hours than usual bc stuff is busier than usual, but now I’m doing everything (chores, too) with 2 preschoolers. I’ve never felt so socially overwhelmed (major introvert). So I’m not doing any self-care besides getting to bed... #migrainechat |
| Rebecca @PyesMusings @beth_morton A1b on time, bc that’s the only thing I can cut without immediate repercussions. There will be medium-term repercussions, but 🤷♀️ Also, getting grocery delivery (I can rarely drive) has become an exercise in frustration. #migrainechat |
| Rebecca @PyesMusings @beth_morton I hope we can recognize that minimum-wage workers really are essential and increase the minimum wage. Fewer in-person meetings would be nice, but everyone I work with is openly pining for getting together in a conference room with bad coffee, so I’m not sanguine #migrainechat |
| Rebecca @PyesMusings @beth_morton A5 don’t add to your suffering by feeling bad about your reaction to it. You’re allowed to feel how you feel. Breaking down over oreos doesn’t mean you don’t care about ER drs; unless you’re a sadist, other people’s pain doesn’t decrease yours #migrainechat |
| Rebecca @PyesMusings @beth_morton A5b obvs don’t be a dick, though. All feelings are acceptable; some actions/words aren’t. #migrainechat |
 | Katie M Golden @GoldenGraine A4 I feel prepared. I'm also hunkered down in the country with my parents, so that's extremely helpful. #migrainechat https://t.co/gcnkWXmZkp |
 | Teresa Hartman @thartman2u RT @beth_morton: Q7. What societal changes or accommodations that have popped up in response to the COVID-19 outbreak have been helpful to you? How can we advocate for these changes to become permanent? #MigraineChat https://t.co/Q3CT2hGYmP |
 | Blackberie 🍇 @Blackberie69 damn... migraines from hell hath hit me and forced me to hit the sheets and avoid all sources of light >.< please leave my brain pain #migrainechat #migraine #clusterheadcheproblems #simplelife #livingthedream |
#migrainechat content from Twitter.