#migrainechat Transcript
Healthcare social media transcript of the #migrainechat hashtag.
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See #migrainechat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Democracy Over Demagogues @freeandclear1 RT @mychronicbrain: #MigraineChat is today! See you at 1p EDT (17:00GMT) for a chat about activities and hobbies with Migraine. https://t.co/dYuQzJaoiT |
 | Beth Morton @beth_morton @4WheelWorkOut A little late, but I moderate a #MigraineChat on the first Monday of every month. We're going to start this month's chat in about 10 minutes. Join us! I also blog (very sporadically) at https://t.co/l5yApnegps |
 | Rev. Dr. 4WheelWorkout @4WheelWorkOut RT @beth_morton: @4WheelWorkOut A little late, but I moderate a #MigraineChat on the first Monday of every month. We're going to start this month's chat in about 10 minutes. Join us! I also blog (very sporadically) at https://t.co/l5yApnegps |
| Beth Morton @beth_morton Hello everyone! Welcome to #MigraineChat! Thanks for being here today. I hope you’re doing as well as possible. If you haven’t before, take a quick moment to review the chat guidelines: https://t.co/Wuemu2Ihop |
 | My Chronic Brain @mychronicbrain It’s time! #MigraineChat https://t.co/C6O7OFE9IC |
| Beth Morton @beth_morton There are two helpful chat tips: (1) I’ll start each question with Q1, Q2, etc. You should start your corresponding reply tweet with A1, A2, etc. (2) Always remember the #MigraineChat hashtag! It helps make following the conversation easier. |
 | Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @mychronicbrain: It’s time! #MigraineChat https://t.co/C6O7OFE9IC |
| Beth Morton @beth_morton Who is joining #MigraineChat today? I’m Beth. I’m your friendly moderator. It finally feels like spring in Vermont! Too bad my #migraine has been in pretty bad flare lately. #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @beth_morton Finished my @_gammaCore_ just in time to make it to the chat. Hope to stay for the whole thing, but it’s a little iffy. #chronicmigraine. #MigraineChat |
| Beth Morton @beth_morton A few standing reminders: This #MigraineChat is purely informational. Nothing shared should be considered medical advice or a substitution for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
| My Chronic Brain @mychronicbrain We’re My Chronic Brain! A magazine for Chronic Migraine sufferers. We’re your friendly, neighborhood co-hosts! #MigraineChat |
| Beth Morton @beth_morton Also, don’t forget that Twitter is public forum and we are discussing health-related topics. Share only what is comfortable for you. #MigraineChat |
 | Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ @beth_morton I'm joining from Big Rock Candy Mountain in New Mexico, where it's sunny and cool, and likely to be up in the 70ºs today. Still have a #migraine that's lasted almost 13 months, but beginning to have an hour or so pain-free each day. #MigraineChat |
 | Autism'sLove @autismslove RT @beth_morton: @4WheelWorkOut A little late, but I moderate a #MigraineChat on the first Monday of every month. We're going to start this month's chat in about 10 minutes. Join us! I also blog (very sporadically) at https://t.co/l5yApnegps |
| Beth Morton @beth_morton @Medical_Oddity Stay for what you can, Jenn. You can always come back to the questions and add your responses later. We love your feedback, but don't push yourself! #MigraineChat |
| Beth Morton @beth_morton Here comes Question 1. Ready? #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @beth_morton I’m Jenn. I am joining you from Fremont California in the Bay Area. I work with @beth_morton at @mychronicbrain Magazine, and I have #chronicMigraineDisease. #MigraineChat |
| My Chronic Brain @mychronicbrain @SarahLerner @beth_morton Hey, Sarah! Glad you could make it! #MigraineChat |
| Beth Morton @beth_morton Q1. Have you had to give up or modify any favorite activities due to #migraine? If so, which ones and how so? #MigraineChat |
| My Chronic Brain @mychronicbrain @llyndseybelle @beth_morton Welcome, Lyndsey! So glad you could make it! #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @SarahLerner @beth_morton My Cali friend! #MigraineChat |
 | Rebecca @PyesMusings @beth_morton A1 gardening is right out—the combination of heat, bright sun, and bending over is murder. Ditto hiking. I’ve given up on concerts and other live performances, and more recently movies as well, because of lights, noise, and crowds. #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q1. Have you had to give up or modify any favorite activities due to #migraine? If so, which ones and how so? #MigraineChat |
| My Chronic Brain @mychronicbrain RT @beth_morton: Q1. Have you had to give up or modify any favorite activities due to #migraine? If so, which ones and how so? #MigraineChat |
| Beth Morton @beth_morton A1. The list of things I've had to give up is long and lately, I've tried not to dwell on it because I'm struggling a bit (understatement). In terms of modifications, I now listen to #audiobooks instead of reading. That was hard at first, but now I enjoy them. @MigraineChat |
| Rebecca @PyesMusings @beth_morton A1b And gave up dancing because anything that raises my heartrate significantly is bad. #migrainechat |
| My Chronic Brain @mychronicbrain @bhendykat @beth_morton It happens to the best of us! Welcome, Eric! #migrainechat |
| My Chronic Brain @mychronicbrain @Alexandria_SZ @beth_morton That’s rough. Eating in a restaurant isn’t just the enjoyment of the food, but the ability to socialize outside of the home. #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity A1: Reading. I used to be a vociferous reader. Now, I listen to a lot of audiobooks, but once in a while I am able to read on the @AmazonKindle app with big font and a darkened screen. So at least there are options for me to still hold on to my love of books. #MigraineChat |
 | Amy Mincher @historymincher @beth_morton A1. I had to skip my gentle yin yoga class today because I'm exhausted after a multi-day migraine attack. #migrainechat |
| Beth Morton @beth_morton @Alexandria_SZ Missing out on food triggers is a hard for me, too. So many social activities are food based and eating outside the home is really tricky. #MigraineChat |
| Democracy Over Demagogues @freeandclear1 RT @beth_morton: Here comes Question 1. Ready? #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @InfiniteKnot @beth_morton It’s a total bitch! I miss riding my bike and walking the dog regularly! #MigraineChat |
 | Morgan 🦄 @LadyofMcCall @beth_morton Hi. #migraines take me out of life at the worst times. Paid for a family trip to Disneyland and was in hotel for most of 4 days with a migraine while kids played with family. Treating with Topomax and Imitrex. Usually get 2-3 bad ones per week. 🤯 #migrainechat |
| My Chronic Brain @mychronicbrain @Medical_Oddity @AmazonKindle Yes! Reading is so difficult when your brain is in the midst of a storm. #migrainechat |
| My Chronic Brain @mychronicbrain @MigraineMelon @beth_morton Running can be such an amazing stress release too. How do you modify to accommodate Migraine? #migrainechat |
| Democracy Over Demagogues @freeandclear1 @beth_morton Q1 #migrainechat my career, when I had reached a good point in it. Dancing and yoga can be triggers so I tend to avoid those two activities that I love. Also, I stay by myself to avoid synthetic fragrances on people and clothing in crowds. |
| Beth Morton @beth_morton @SarahLerner Yoga is so hard. For me, any pose that puts my head lower than my heart.... forget it. I'm good with corpse pose (that's the one where you just lay there, right?!) #MigraineChat. |
| Beth Morton @beth_morton Q2. What activities do you enjoy in spite of #migraine or have you started because of migraine? #MigraineChat |
| My Chronic Brain @mychronicbrain @LadyofMcCall @beth_morton Oof! Sorry you missed out, Morgan. The #migrainethief is a beast. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @Alexandria_SZ @SarahLerner #TRUTH #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ I crave dark chocolate, which actually eases the pain a bit, and isn't a trigger for me. I don't crave any foods that are triggers. They feel like poison once I learn they're #migraine triggers. #MigraineChat |
| My Chronic Brain @mychronicbrain RT @beth_morton: Q2. What activities do you enjoy in spite of #migraine or have you started because of migraine? #MigraineChat |
| Beth Morton @beth_morton @bhendykat @Alexandria_SZ I've developed pretty strong willpower. It's just not worth it. But lately I've been trying to reintroduce foods. It's not an easy process when I have symptoms every day regardless. I don't know what is making them worse. #MigraineChat |
| Democracy Over Demagogues @freeandclear1 @beth_morton A1 #migrainechat I can find time to garden and I started a monarch butterfly waystation in my backyard. #migraine. Early disability retirement ended my career in child development policy but allowed me some time with grandsons. |
| My Chronic Brain @mychronicbrain @MigraineMelon @beth_morton #migrainechat (just tagging so others can find this more easily! Great ideas for modification) |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity A2: For me I would say writing and #advocacy. I write about #chroniclife and #migraine and I have become passionate about being an advocate for people with #migrainedisease. Funding for us is abysmal and that needs to change. #MigraineChat |
| Rebecca @PyesMusings @beth_morton A2 I used to have trouble with reading but be ok with tv, so I learned to crochet and did a lot of binge-watching while crafting. Recently sitting up and tv have been bad, but I’ve been able to read on my smartphone (it’s permanently redshifted, white text on black) #migrainechat |
| Rebecca @PyesMusings @beth_morton A2b so I’ve been reading a lot, basically all fiction bc nonfiction isn’t distracting enough. Last year I set myself the challenge of reading every Hugo-nominated fiction work in time to cast a ballot, and will probably do that again this year. #migrainechat |
| Beth Morton @beth_morton @freeandclear1 Welcome! Thanks for being here! Don't forget the #MigraineChat hashtag when you respond. |
| My Chronic Brain @mychronicbrain @Alexandria_SZ Yes! Any dramatic change in lighting too fast. Even just turning off the lights some days... #migrainechat |
| Rebecca @PyesMusings @beth_morton For a while soon after mine first turned chronic, I did indoor rockclimbing, which I found to be like yoga with no distractions and no bending over, but then my balance got too shaky. #migrainechat |
| My Chronic Brain @mychronicbrain @MigraineMelon @beth_morton No worries! That’s why you have @beth_morton and us! #migrainechat |
 | illuminated void. Ali 🌸. @illuminatedvoid @beth_morton A1. I’ve had to stop participating in strenuous exercise. Cardio triggers migraines every time no matter how much I hydrate before/during/after. Hiking too and I love it. I still hike occasionally and brace for the inevitable pain. Mostly stick to walking or yoga #MigraineChat |
| Rebecca @PyesMusings @beth_morton A spoonie friend and I used to sing together at my apartment back when I was up half the night with pain. That went by the wayside as I had to start keeping regular hours and she couldn’t do so, #migrainechat |
| Rebecca @PyesMusings @beth_morton but once my kids are old enough for me to be out of the house during bedtime once a week, I’m hope/planning to join a choral group; I might have to take a cab or ask for a ride some weeks, but I think it would be worth it. #migrainechat |
| My Chronic Brain @mychronicbrain @bhendykat @freeandclear1 @beth_morton Just thinking the same thing! #migrainechat |
| Democracy Over Demagogues @freeandclear1 What Jennifer said |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @Medical_Oddity: A2: A2: For me I would say writing and #advocacy. I write about #chroniclife and #migraine and I have become passionate about being an advocate for people with #migrainedisease. Funding for us is abysmal and that needs to change. #MigraineChat |
| Beth Morton @beth_morton @historymincher I felt a little guilty getting my iPad, but streaming Netflix, podcasts, audiobooks in bed on bad days on it is so worth it. #MigraineChat |
| My Chronic Brain @mychronicbrain @freeandclear1 @bhendykat @beth_morton How interesting! Do share pictures with us in the future if you’re able. 🦋 #migrainechat |
 | Kayla McCain @True_Kaylaisms @beth_morton I used to do a lot of workout classes, but after chronic vesitbular migraine, wasn't able to tolerate a lot of lights and sounds. Plus, my dizziness made it hard. That's when I discovered yoga was a great alternative that I absolutely love now! #migrainechat |
| Beth Morton @beth_morton @Alexandria_SZ @MigraineMelon @mychronicbrain Or if you search for #MigraineChat, then click latest, you'll see a stream of the chat in realtime. Plus the "tweet" button in the bottom right should automatically populate the hashtag. |
| Beth Morton @beth_morton Q3. How do you prepare for an activity outside the house? What is in your #migraine to-go (or emergency) kit? #MigraineChat |
| My Chronic Brain @mychronicbrain Relatable. 👇 #migrainechat |
| My Chronic Brain @mychronicbrain @MigraineMelon @Medical_Oddity @AmazonKindle Yeah, everyone’s tolerance is different. #migrainechat |
| My Chronic Brain @mychronicbrain RT @beth_morton: Q3. How do you prepare for an activity outside the house? What is in your #migraine to-go (or emergency) kit? #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @SarahLerner @beth_morton I feel that way quite often. It’s one step forward and one step back for me. And I can go weeks with out leaving the house for anything but doctors appointments. Sometimes it’s all about survival. So squeezing in what you can when you can is great too. #MigraineChat |
| Kayla McCain @True_Kaylaisms @beth_morton I actually blogged about this last year. I still try really hard to persevere through my dizziness and do what I love! https://t.co/kX3okErovh #migrainechat |
| Kayla McCain @True_Kaylaisms @beth_morton I don't go ANYWHERE without my sunglasses or migraine glasses. #migrainechat |
| My Chronic Brain @mychronicbrain How one vestibular migraine patient handles her passions and limitations. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @mychronicbrain: How one vestibular migraine patient handles her passions and limitations. #migrainechat |
| illuminated void. Ali 🌸. @illuminatedvoid @beth_morton A3. Hydrate. Supply of triptans on my person at all times. Have a way to leave if needed. #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity Very much this! #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q3. How do you prepare for an activity outside the house? What is in your #migraine to-go (or emergency) kit? #MigraineChat |
| My Chronic Brain @mychronicbrain @True_Kaylaisms @beth_morton Noise cancelling headphones (@Bose) too #migrainechat |
 | Angie Glaser @winedarkme Hi! I'm Angie checking in (late) from Southern California! I've been living with Migraine since I was born, Chronic Migraine since 2013. #MigraineChat |
| Rebecca @PyesMusings @beth_morton A3 sunglasses. For better and worse, my pain is constant. It’s draining, but I almost never have a sudden spike that’s so dramatic that I *have to* medicate. (It happened last night, though, so I’m kind of looking over my shoulder as I type this...) #migrainechat |
| Beth Morton @beth_morton A3. Any time I leave the house: I check the weather, dress accordingly, bring sunglasses, @TheraSpecs, meds & devices, water, trigger-free food or snacks. Then it depends on the activity how much else I need to prepare. I miss when I could just... leave the house! #migrainechat |
| Democracy Over Demagogues @freeandclear1 #MigraineChat A3 |
| Rebecca @PyesMusings @illuminatedvoid @beth_morton Oh yeah, escape route is critical! #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity A3: Time-padding. Rest before, and make sure there is nothing scheduled for after—for the inevitable crash and much needed recovery. #MigraineChat #chroniclife |
| My Chronic Brain @mychronicbrain @Alexandria_SZ Hey, we’re joining via an ipad as well. Tools like this aren’t something to feel guilty about. #migrainechat |
| Beth Morton @beth_morton Q4. What are some effective ways you’ve found to make plans for either solo or group activities that take into account the unpredictability of #migraine attacks? #MigraineChat |
| My Chronic Brain @mychronicbrain @CMLifeblog Welcome, Angie! #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q4. What are some effective ways you’ve found to make plans for either solo or group activities that take into account the unpredictability of #migraine attacks? #MigraineChat |
| Democracy Over Demagogues @freeandclear1 @beth_morton A4 #migrainechat I don't write any plans in ink, only pencil. |
 | Rie Lopez, MPH (she/her) @RieOfLetters Ridiculously late for #migrainechat. The traffic was unfortunately brutal, but I made it! Rie here! Living my best life with chronic migraine with the occasional hemiplegic migraine thrown in for fun. #ChronicPain and #mentalhealth advocate. |
| My Chronic Brain @mychronicbrain @Alexandria_SZ Do you find they get dark enough for you? #migrainechat |
 | TheraSpecs @TheraSpecs RT @beth_morton: A3. Any time I leave the house: A3. Any time I leave the house: I check the weather, dress accordingly, bring sunglasses, @TheraSpecs, meds & devices, water, trigger-free food or snacks. Then it depends on the activity how much else I need to prepare. I miss when I could just... leave the house! #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity A4: I am very upfront with those I am going out with that I have a “shelf-life” I may need to leave early. Sometimes selfcare is the priority (and now that I typed it I have to make sure I follow it!!!) #MigraineChat #chronicmigraine |
| My Chronic Brain @mychronicbrain @SarahLerner @beth_morton Which we’re sure you’re rockin’! #migrainechic should be a hashtag... 🤔😂 #migrainechat |
| Beth Morton @beth_morton @RieOfLetters Ugh, traffic. But you made it! Catch up as you can. No rush. #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @freeandclear1: @beth_morton A4 #migrainechat I don't write any plans in ink, only pencil. |
| My Chronic Brain @mychronicbrain Yup. Don’t forget noise canceling headphones or ear plugs, and a mask for the inevitable scents (which, by the way, makes vomiting a bit more of a planned event... 😂) #migrainechat |
| Rie Lopez, MPH (she/her) @RieOfLetters @Alexandria_SZ I know exactly what you mean. I just got the self-darkening feature on my new pair of glasses. They are tinted all the time for maximum light blocking. They have been amazing! #MigraineChat |
| Kayla McCain @True_Kaylaisms RT @mychronicbrain: How one vestibular migraine patient handles her passions and limitations. #migrainechat |
| Beth Morton @beth_morton @freeandclear1 I love this phrasing. Definitely going to borrow it to use with friends. #MigraineChat |
| My Chronic Brain @mychronicbrain @Alexandria_SZ Nice! Thanks for the information. The majority of transition lenses we’ve encountered haven’t gotten that dark. #migrainechat |
| Angie Glaser @winedarkme @beth_morton A1. I've pretty much given up or modified every activity! Audiobooks replaced books, gentle yoga replaced power yoga, walking replaced hiking. I held onto running for years - now I mostly walk with lots of stretching. Concerts, bike rides, and movies are rare. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ All my friends (the few that are close to me) know that the #migraine attacks are very unpredictable, and they are very empathetic. Self-care is more important than hurting someone else's "feelings" at some event #MigraineChat |
| My Chronic Brain @mychronicbrain @RieOfLetters Welcome, Rie! #migrainechat |
| Rebecca @PyesMusings @beth_morton A4 I don’t make any plans that are contingent on me driving or doing anything more strenuous than getting into my husband’s car. And I don’t see people besides family and coworkers. That second bit is obviously not a recommendation; it blows. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @mychronicbrain @SarahLerner @beth_morton Our lovely Editor-in Chief, @BreatheMia, wears headphones quite often and she sure rocks hers! #MigraineChat |
 | 🧠 😎 @ChronicallyCope @beth_morton A4 plan ahead as much as possible, but be okay with canceled plans I back out of lots of plans. #migraine forces people to say no and focus on the self. We want to be there but the body takes us down. #MigraineChat |
| Beth Morton @beth_morton Q5. A few of you have already touched on this, but how do you handle having to postpone or cancel plans due to #migraine? This might mean managing others' expectations or your own disappointment. #MigraineChat |
| Beth Morton @beth_morton @InfiniteKnot I finding the hoarding spoons doesn't work for me. #Migraine just comes anyway. That's super frustrating to me, that rest doesn't matter. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q5. A few of you have already touched on this, but how do you handle having to postpone or cancel plans due to #migraine? This might mean managing others' expectations or your own disappointment. #MigraineChat |
| My Chronic Brain @mychronicbrain RT @beth_morton: Q5. A few of you have already touched on this, but how do you handle having to postpone or cancel plans due to #migraine? This might mean managing others' expectations or your own disappointment. #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @MigraineMelon @beth_morton #advocatesrock #migrainechat |
| Rie Lopez, MPH (she/her) @RieOfLetters Q4: Just making the decision to LIVE with #migraine was huge. I have friends/family that offer to drive. I plan activities close by, or with built in rests. I avoid known triggers (so long movie theatre!), and I keep my schedule flexible/open to last minute plans. #migrainechat |
 | Judyth Mermelstein☮️ @GadflyQuebec @beth_morton A1: My main triggers are barometric pressure and flashing lights. The latter are avoidable (I work at home) but not the former. In acute migraine, I'm unable to do anything; when less severe, I use an eyepatch to deal with blurred vision but can't read much or edit. #migrainechat |
| My Chronic Brain @mychronicbrain @MigraineMelon @beth_morton #migrainechat https://t.co/r9Kjklix0F |
| My Chronic Brain @mychronicbrain Yes. This. So much this. #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ Yeah, the hoarding spoons metaphor doesn't work for me either. It's more like lighting matches that can't be re-used or breaking a glass that can't be put back together when #migraine attacks hit #MigraineChat |
| Kayla McCain @True_Kaylaisms @beth_morton A5 Last weekend I had a 5K race but had such a bad migraine that I canceled. I cried because I felt so defeated. However, once I was feeling better I decided to run 3.1 miles the following week. You have to celebrate the good days! #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @mychronicbrain: Yes. This. So much this. #migrainechat |
 | Roni Jones(she/her)💉💉💉 @MsRoniAnne @beth_morton A3. Zofran ODT, Injectable Diphenhydramine already drawn up and ready to use, Tizanidine 4mg and Clonazepam .5mg. This is my "cocktail", may sound strange to others. But I'm allergic to Triptans and Toradol, those being the go to abortive and rescue medications. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ A4: Yes, I, too, had to make a decision to just LIVE with #migraine last year when this 13-month migraine started. After 3 solid months in bed, I decided not to become bed-ridden. I have to be flexible but I have to live, too #MigraineChat |
| Angie Glaser @winedarkme @beth_morton A2 Audiobooks and podcasts, for sure. Much of my entertainment is passive audio. Migraine has taught me to enjoy meditating & coloring, which has been a long process. I also like to sing to my cat, look at birds and gardens in my neighborhood, journal, and crochet #MigraineChat |
| My Chronic Brain @mychronicbrain @True_Kaylaisms @beth_morton We know this feeling well. But you do have to celebrate those good days (or hours or moments). And focus on what you can do while acknowledging what you can’t. Amazing job running when you were able! 👏 #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @True_Kaylaisms @beth_morton Celebrating the good days is key! And knowing you have a supportive community here on the bad days is important too. You can always reach out. #MigraineChat |
| Beth Morton @beth_morton Q6. I wasn't sure if I should include this "what if" question, so skip it if you don't want to go there... but if you could have a guaranteed #migraine-free day (or week), what activity/hobby would you do that you might not have been able to do for a while? #MigraineChat |
| illuminated void. Ali 🌸. @illuminatedvoid @beth_morton A5. I’m still learning. Historically, I’ve either pushed myself to do too much when l should be in bed or I feel tremendous guilt for letting people/myself down. In my 30s now and learning to listen to my body and do what it needs. #MigraineChat |
| My Chronic Brain @mychronicbrain @Medical_Oddity @True_Kaylaisms @beth_morton Indeed! Remember too: staying in bed with pain isn’t defeat. It happens. To all of us. Regardless of if we admit it or not. #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @illuminatedvoid @beth_morton My guess is most people here are still learning too. :) #MigraineChat |
| Kayla McCain @True_Kaylaisms @bhendykat @beth_morton Haha! Sure did! #MigraineChat https://t.co/TRfNtMGPQm |
| My Chronic Brain @mychronicbrain @bhendykat @True_Kaylaisms @beth_morton If you did, share!! We’ll retweet to help celebrate! #migrainechat |
| Rie Lopez, MPH (she/her) @RieOfLetters A5: As my migraine episodes escalated, I had to cancel a lot of plans. My friends and family, the ones who matter most, have adjusted really well. I am blessed! As for myself, I had to practice a lot of self-compassion and mindfulness. Therapy was helpful! #migrainechat |
| Beth Morton @beth_morton A6. I would hop on a plane and take the trip I was planning as my gift to myself for finishing my PhD. I miss traveling so freakin' much. #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity This is a GREAT point. And so important to take to heart. #MigraineChat |
| My Chronic Brain @mychronicbrain @Medical_Oddity @illuminatedvoid @beth_morton 100% agreed. #migrainechat |
| Judyth Mermelstein☮️ @GadflyQuebec @beth_morton A3: Aspirins, preserved ginger for the nausea, clip-on sunglasses (made for my glasses), always an eye-shading hat, layered clothing for chills. #Migrainechat |
 | Achy Smile Feels Migraine @achysmileblog RT @beth_morton: Q1. Have you had to give up or modify any favorite activities due to #migraine? If so, which ones and how so? #MigraineChat |
| Achy Smile Feels Migraine @achysmileblog RT @beth_morton: Q2. What activities do you enjoy in spite of #migraine or have you started because of migraine? #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @True_Kaylaisms @bhendykat @beth_morton I love this picture so much!!!! #MigraineChat |
| Achy Smile Feels Migraine @achysmileblog RT @beth_morton: Q3. How do you prepare for an activity outside the house? What is in your #migraine to-go (or emergency) kit? #MigraineChat |
| Achy Smile Feels Migraine @achysmileblog RT @beth_morton: Q4. What are some effective ways you’ve found to make plans for either solo or group activities that take into account the unpredictability of #migraine attacks? #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @True_Kaylaisms: @bhendykat @beth_morton Haha! Sure did! #MigraineChat https://t.co/TRfNtMGPQm |
| Achy Smile Feels Migraine @achysmileblog RT @beth_morton: Q5. A few of you have already touched on this, but how do you handle having to postpone or cancel plans due to #migraine? This might mean managing others' expectations or your own disappointment. #MigraineChat |
| My Chronic Brain @mychronicbrain Woo hoo, Kayla for finishing her 5k! 🏃♀️ The #migrinethief takes from us, but we push back and celebrate what we CAN do. You rock, Kayla! #migrainechat |
| Angie Glaser @winedarkme @beth_morton A3. Zofran, Om balm or peppermint essential oil, water, ginger candies, sunglasses + Theraspecs for indoors, a hat, earplugs or noise canceling headphones (or both if I'm traveling), Dramamine ( for vertigo if traveling), bags of peppermint tea #MigraineChat |
| My Chronic Brain @mychronicbrain @RieOfLetters Self compassion can be so much harder than compassion for others. #migrainechat |
| Democracy Over Demagogues @freeandclear1 @beth_morton #migrainechat A6 this is difficult. It just happened to me since new meds that I've had 10 days and recently 16! I really don't know what to do with myself when that happens, so I'm going to set aside some plans for when it happens again. Knock wood. |
| Achy Smile Feels Migraine @achysmileblog @beth_morton A5. It gets depressing having to cancel all the time, but my body needs me to rest. If I push too hard I'll only get worse. It's definitely annoying to those who don't understand, but that's their problem. Not mine. It took me a while to understand that. #migrainechat |
| Rie Lopez, MPH (she/her) @RieOfLetters A6: If I could have a guaranteed #migraine-free day, I would go to the movies with my kids, have a high-octane coffee, and climb one of the local mountains and bask in the sunshine without my sunglasses on! I might even go to a concert!! #migrainechat |
| Rebecca @PyesMusings @beth_morton #migrainechat 🤦♀️ |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @RieOfLetters: A6: A6: If I could have a guaranteed #migraine-free day, I would go to the movies with my kids, have a high-octane coffee, and climb one of the local mountains and bask in the sunshine without my sunglasses on! I might even go to a concert!! #migrainechat |
| Achy Smile Feels Migraine @achysmileblog @beth_morton A6. Guaranteed? Wow, I have no idea!!! Probably nothing and enjoy doing nothing with NO PAIN!! 💜 #migrainechat |
| Beth Morton @beth_morton Closing Thoughts (CT): did you learn something new today? Do you have any questions we could answer after the chat? Feedback is welcome, as always. Thanks for a great #MigraineChat! |
| Achy Smile Feels Migraine @achysmileblog RT @beth_morton: Q6. I wasn't sure if I should include this "what if" question, so skip it if you don't want to go there... but if you could have a guaranteed #migraine-free day (or week), what activity/hobby would you do that you might not have been able to do for a while? #MigraineChat |
| Rie Lopez, MPH (she/her) @RieOfLetters #MentalHealthMonth |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ @beth_morton Thank you, Beth! And thank you all, my fellow #migraine warriors, for reminding me that I am not alone #MigraineChat |
| Judyth Mermelstein☮️ @GadflyQuebec @beth_morton A4: I've had frequent #migraine since childhood so my family and friends know what I mean when I make plans on a "barring disasters" basis and understand when I have to cancel. #Migrainechat |
| Angie Glaser @winedarkme @beth_morton A4. I try to clear my schedule the day before and after to save energy. I also like to have a backup plan or backup date, if possible. I stay close to home or the home of a family member in case I need to check out. At family events, I stake out a rest room/ bed. #MigraineChat |
| Rie Lopez, MPH (she/her) @RieOfLetters @PyesMusings @beth_morton That sounds amazing! #migrainechat |
| My Chronic Brain @mychronicbrain Thank you everyone for coming and @beth_morton for her thoughtful preparation of questions! We’ll hop on this hashtag again later, so don’t hesitate to interact with questions and answers given earlier. Sending wishes for low-pain today to you all! #MigraineChat |
| Beth Morton @beth_morton Before we sign off, we’re excited to announce that the next edition of @MyChronicBrain will be released in a little over a week! Watch for its release on May 15th (https://t.co/a7hLsaaHAE). #MigraineChat |
| Roni Jones(she/her)💉💉💉 @MsRoniAnne @beth_morton A5. Most plans would be w family & they totally understand. I'm more disappointed especially if it's a holiday. We've had family holiday dinners at our home w our sons & their significant others. I was too sick to join😭, they all understood, even visited me.💜#MigraineChat |
| Beth Morton @beth_morton **LAST BUT NOT LEAST** I hate spam tweeting, but with a month between chats, also don’t want you to forget. Would you like to get chat reminders (or stop getting reminders)? Sign up here: https://t.co/r8qaMONddk #MigraineChat |
| Achy Smile Feels Migraine @achysmileblog RT @beth_morton: Before we sign off, we’re excited to announce that the next edition of @MyChronicBrain will be released in a little over a week! Watch for its release on May 15th (https://t.co/a7hLsaaHAE). #MigraineChat |
| Rie Lopez, MPH (she/her) @RieOfLetters CT: There was a lot of insightful responses and I cannot wait to get through them all. I hope everyone has a fantastic week! #migrainechat |
| Roni Jones(she/her)💉💉💉 @MsRoniAnne @beth_morton This was my first ever #MigraineChat kinda got in at the middle, but I really enjoyed it! Thank you Beth I will look forward to the next one. How often do you have these? |
| Beth Morton @beth_morton @MsRoniAnne Thanks for coming, Roni! It is the first Monday of every month. If you want me to remind you, you can sign up here: https://t.co/r8qaMONddk #MigraineChat |
 | Sara Blazar Sharpe @zebrawrites Ended up missing #MigraineChat because my nurse was here, but going to go ahead and answer the questions anyhow! Remember that it’s #NationalNursesWeek - and recognize the nurses in your life who have made things better for you, if you have them! |
| Rie Lopez, MPH (she/her) @RieOfLetters @CMLifeblog @beth_morton I was reading your post and I realized that we have a lot of these things & modifications in common! Well, except for the power yoga. 😊 #MigraineChat |
| Sara Blazar Sharpe @zebrawrites A1. #MigraineChat #Migraine really started to impact my ability to do the things I love in college & grad school. At this point pretty much everything must be modified. I used to be very physically active and loved hiking and camping. |
| Beth Morton @beth_morton @PyesMusings @freeandclear1 I am trying to write a blog about this - hope, acceptance, change - but can't get my thoughts out in a clear way. #MigraineChat |
| Angie Glaser @winedarkme @beth_morton A5. Canceling plans is really hard. I make a lot fewer plans than I used to, & usually with people close to me. I still try to include a caveat like "if my brain is up for it." Practicing mindfulness helps me honor my disappointment without being too mean to myself. #MigraineChat |
 | OneGoodDad (He, Him) @TheJasonGreene @beth_morton Eat a giant banana split. #migrainechat |
| Beth Morton @beth_morton @TheJasonGreene Omg, yes! Excellent choice! #MigraineChat |
| Angie Glaser @winedarkme @beth_morton A6. I would go on a road trip. If I could guarantee a whole month of no migraine, I would break out my passport. A good friend moved to Lisbon and I'm dying to visit. I was also planning/dreaming up a backpacking trip in SE Asia when I became chronic #MigraineChat |
| Sara Blazar Sharpe @zebrawrites A2. I have picked up hobbies that I wouldn’t have without my illness - its hard for me separate #Migraine from the rest of my conditions - but I now enjoy crocheting, and being a stay at home dog mom 😂 I also still love to travel although it’s much more complicated now! |
| Beth Morton @beth_morton @CMLifeblog I had a multi-week trip through the UK - starting in London ending in Northern Ireland, spending a good chunk of time in Scotland. I'd love to do more of Europe and South America. Heck, anywhere. But, alas, not in the cards right now. #MigraineChat |
| Beth Morton @beth_morton @CMLifeblog I am renewing my passport and I wouldn't rule out a trip, but it would have to be with someone who is ready to take on the planning and be super flexible. #MigraineChat |
| Sara Blazar Sharpe @zebrawrites A3. #MigraineChat - I don’t leave the house without migraine glasses/FL-41 tinted glasses, water w/ electrolytes like @NormaLyte pure, PRN meds (zofran, phenergan, baclofen, dye-free benedryl, compounded pain cream etc...) & my @vogmask |
| Sara Blazar Sharpe @zebrawrites A4. #MigraineChat - I like to make plans 1-1, during the afternoon (my best time of day). I choose locations that I know are less likely to be loud/busy. It also really helps to have friends who are also living #chroniclife - we check in with each other the morning of our plans! |
| TheraSpecs @TheraSpecs RT @CMLifeblog: @beth_morton A3. Zofran, Om balm or peppermint essential oil, water, ginger candies, sunglasses + Theraspecs for indoors, a hat, earplugs or noise canceling headphones (or both if I'm traveling), Dramamine ( for vertigo if traveling), bags of peppermint tea #MigraineChat |
| Sara Blazar Sharpe @zebrawrites A5. #MigraineChat - it is a hard thing to have to do. But it is easier when the people in your life understand that we aren’t unreliable, our bodies are! And yes, really truly enjoying and soaking in the good days helps to soften the blow. |
| Sara Blazar Sharpe @zebrawrites A6. #MigraineChat - I’m totally with you on this one. I’d travel and do it in a way you just can’t when you have to consider our finicky bodies. Eat ALL of the food, drink as I please, have new and beautiful experiences. |
 | BPD Babe @BPDbabe99 Pretty much all of them. And even all activities that aren’t my favorite. Just all of existence. |
 | Adele Jayde @hawkeye2_ @beth_morton I’ve been an avid reader since I was 3 but I have to set myself limits and make sure I don’t do things like read on something that’s moving (train, car, bus). One of my earliest memories is triggering a migraine and subsequently a seizure from reading in the car 😩 #MigraineChat |
| Adele Jayde @hawkeye2_ I take proper painkillers everywhere, emergency ones in every bag I own. I have either a balm or roll on of peppermint & lavender oil with me. And a vomit bag stays in my handbag/backpack at all times. #MigraineChat |
| Roni Jones(she/her)💉💉💉 @MsRoniAnne @CMLifeblog @beth_morton A1. I switched hard copy books to Kindle🔥. W the options to adjust text size, background color, brightness & blue shade. Reading helps me get through the rough times. Movies are out I wait until it's available on Amazon Prime. I gave up⛪too loud & lost "friends" #MigraineChat |
| Roni Jones(she/her)💉💉💉 @MsRoniAnne @beth_morton @CMLifeblog Those are all places that I'd love to visit one day, (when my ship comes in) especially Ireland and Scotland! One day Beth, it will be in your cards! Hang on to that and don't let your dreams die! 💜 #MigraineChat |
 | Migraine, Chronic Illness, Mental Health @MigraineMantras RT @beth_morton: A few standing reminders: A few standing reminders: This #MigraineChat is purely informational. Nothing shared should be considered medical advice or a substitution for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
| Migraine, Chronic Illness, Mental Health @MigraineMantras RT @beth_morton: @4WheelWorkOut A little late, but I moderate a #MigraineChat on the first Monday of every month. We're going to start this month's chat in about 10 minutes. Join us! I also blog (very sporadically) at https://t.co/l5yApnegps |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @beth_morton: Before we sign off, we’re excited to announce that the next edition of @MyChronicBrain will be released in a little over a week! Watch for its release on May 15th (https://t.co/a7hLsaaHAE). #MigraineChat |
 | Helen McCormack 💫 @InfoHmc55 RT @mychronicbrain: Thank you everyone for coming and @beth_morton for her thoughtful preparation of questions! We’ll hop on this hashtag again later, so don’t hesitate to interact with questions and answers given earlier. Sending wishes for low-pain today to you all! #MigraineChat |
| Helen McCormack 💫 @InfoHmc55 RT @RieOfLetters: Ridiculously late for #migrainechat. The traffic was unfortunately brutal, but I made it! Rie here! Living my best life with chronic migraine with the occasional hemiplegic migraine thrown in for fun. #ChronicPain and #mentalhealth advocate. |
| Beth Morton @beth_morton @rachel_x_graves Ooooooh, I've been dreaming about Alaska since reading The Great Alone. I've thought about a cruise maybe as a compromise. Post pictures. I can't wait to live vicariously!! #MigraineChat |
| Beth Morton @beth_morton @rachel_x_graves But sometimes you get a really great narrator who adds to the story! (It's rare, but it happens for me.) #MigraineChat |
 | God(dess) of Mischief @Option__B RT @beth_morton: Q1. Have you had to give up or modify any favorite activities due to #migraine? If so, which ones and how so? #MigraineChat |
| Beth Morton @beth_morton @OpalOfTheMind Same for me. And that is so limiting. I live where you have to drive everywhere. Winter, especially, is long. #MigraineChat |
 | Olivia @mistfitsgalaxy Attention Migraine community: If you know of an eye/sleep mask that cuts out light and doesn't squeeze or put pressure on the head, can you let me know? Infinite thanks!! #migraine #migraines #MigraineChat #eyemask #sleepmask #lightsensitivity #lightsout #help |
 | JenX 👻 @Jen9Cat @beth_morton A1) I'm doing PT and sometimes I wear my headache hat & sunglasses. He knows to take it really easy on me those days. I try to go to smaller, indoor, seated concerts. Driving at night can be difficult. So glad for the longer days now! 2) #MigraineChat |
| Beth Morton @beth_morton @thedizzycook @True_Kaylaisms If you're cooking, you can invite me over anytime! #MigraineChat |
| My Chronic Brain @mychronicbrain @starsabove_OKC Have you tried the masks with convex eyes? Most of them are feather light and work well. This is the first result when we searched online. But we’ve purchased them cheaper. https://t.co/z0K8wBTPIH @Medical_Oddity How’s the mask-pillow hybrid you got? #migrainechat |
| My Chronic Brain @mychronicbrain @MsRoniAnne @CMLifeblog @beth_morton @AmazonKindle has allowed many of us to keep reading. Technology can be a real gift! #migrainechat |
| My Chronic Brain @mychronicbrain @zebrawrites “Eat ALL the food” 👈Miss this #migrainechat |
| My Chronic Brain @mychronicbrain @zebrawrites @NormaLyte @vogmask @NormaLyte is new to us. Thanks for the tip! #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @mychronicbrain @starsabove_OKC Yes! I got a great three pack on amazon and you can adjust the strap. There is a puffed out space around the eye when you put it on. #MigraineChat https://t.co/8nmyHyeWOc |
| My Chronic Brain @mychronicbrain @zebrawrites Nurses make such an impact on our lives. The good ones are so hard to forget! #migrainechat |
| My Chronic Brain @mychronicbrain @MsRoniAnne @beth_morton So glad you made it, Roni! We look forward to seeing you next month.* *brain permitting, of course #migrainechat |
| Democracy Over Demagogues @freeandclear1 @MigraineWarbler I hear you #MigraineChat |
 | natasha.m.g. @natashamg4 To the dumb question "Why me?" the cosmos barely bothers to return the reply: why not? - Christopher Hitchens #migraine #MigraineChat Although I would love to know specific genes that are responsible for my own weekly misery |
#migrainechat content from Twitter.