#migrainechat Transcript
Healthcare social media transcript of the #migrainechat hashtag.
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See #migrainechat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Beth Morton @beth_morton @CoalitionCHAMP Hope you can join #MigraineChat! CC: @SarahLerner @bhendykat @PyesMusings @Croomsky @historymincher @illuminatedvoid @CMLifeblog @RieOfLetters @migrainesallday @migrainediva @smithbrainz @aparna_ramen @MoretoreadO |
 | Rie Lopez, MPH (she/her) @RieOfLetters RT @beth_morton: #MigraineChat is a little over 2 hrs away! Are you joining? In honor of #MHAM, we will talk about #migraine stigma with @CoalitionCHAMP. If you aren’t familiar with the term or types of stigma, take a look at the blog & today’s questions before we start: https://t.co/Wuemu2Ihop |
 | Angie Glaser @winedarkme RT @beth_morton: #MigraineChat is a little over 2 hrs away! Are you joining? In honor of #MHAM, we will talk about #migraine stigma with @CoalitionCHAMP. If you aren’t familiar with the term or types of stigma, take a look at the blog & today’s questions before we start: https://t.co/Wuemu2Ihop |
 | CoalitionCHAMP @CoalitionCHAMP Join us and @beth_morton in just 7 min. #MigraineChat |
| Beth Morton @beth_morton Hello everyone! Welcome to #MigraineChat! Thanks for being here today. I hope you’re doing as well as possible. First time here? Take a quick moment to review the chat guidelines: https://t.co/Wuemu2Ihop |
| Beth Morton @beth_morton Here are the two most helpful chat tips: (1) I’ll start each question with Q1, Q2, etc. You should start your corresponding reply tweet with A1, A2, etc. (2) **Always** remember the #MigraineChat hashtag! It helps make following the conversation easier. |
 | My Chronic Brain @mychronicbrain We'll be participating in #MigraineChat for the next hour. Don't want to hear our tweets? Just mute the hashtag! But we hope you'll join in. :) |
 | Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @CoalitionCHAMP: Join us and @beth_morton in just 7 min. #MigraineChat |
| Beth Morton @beth_morton Let's see who is joining #MigraineChat today! I’m Beth and I’m moderating from Vermont where it has already been the Monday-est of Mondays! How's everyone else doing this 3rd day of #MHAM? #MigraineChat |
| Beth Morton @beth_morton We also have a special co-host this month in honor of #MHAM. Joining us from @CoalitionCHAMP is Meghan Buzby. Meghan is the Director of Advocacy and is here to share some of the work CHAMP and its partners are doing around #migraine and stigma. Welcome, Meghan! #MigraineChat https://t.co/aPZ8gePGZn |
| My Chronic Brain @mychronicbrain Hi we're My Chronic Brain, a magazine for Chronic Migraine sufferers and those they interact with. We're so happy to be here this #MigraineChat! |
| My Chronic Brain @mychronicbrain @beth_morton @CoalitionCHAMP Hi Meghan! So glad to have you with us this month! <3 #MigraineChat |
| My Chronic Brain @mychronicbrain @MigraineMelon Jennifer! You made it! So glad to see you. :) #MigraineChat |
| Beth Morton @beth_morton @CoalitionCHAMP (Don't forget the #MigraineChat hashtag, even in replies! So we can see you better!) |
| Beth Morton @beth_morton A few standing reminders. This #MigraineChat is purely informational. Nothing shared should be considered medical advice or a substitute for talking with your doctor. If you don’t have one, find a #headache specialist here: https://t.co/ECwDhBTzAw |
| My Chronic Brain @mychronicbrain @fabriKatie Hello, Katie! You are always welcome to just read through the hashtag. But we're so happy you've decided to say hello! Welcome to June's chat! #MigraineChat |
| Beth Morton @beth_morton Also, Twitter is a public forum and we are discussing health-related topics. Share only what is comfortable for you. #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity @beth_morton I’m Jenn from the San Francisco Bay Area and my migraine is reaaaal bad now, so I may be scarce and grammatically challenged #MigraineChat |
| My Chronic Brain @mychronicbrain @GotWhaleofaTale Welcome, Cass! Migraine since forever? #relatable #MigraineChat |
| My Chronic Brain @mychronicbrain @bhendykat @beth_morton Welcome, Eric! So glad you made it again! Feel like sending us some of that stew? It sounds amazing. #MigraineChat |
| Beth Morton @beth_morton @bhendykat Oh, man, if peanuts weren't a trigger for me.... yumm! #MigraineChat |
| My Chronic Brain @mychronicbrain @Medical_Oddity @beth_morton Glad to see you! Just do what you can. <3 #MigraineChat |
 | illuminated void. Ali 🌸. @illuminatedvoid @beth_morton Hi I’m Ali! From Massachusetts. Chronic migraine for 10 years. Enjoying the beautiful weather #migrainechat |
 | Ody @OdyO11 @beth_morton Hi, I just stumbled upon the chat and I'd like to join in for some of the questions if that's okay. I am from Europe and diagnosed with hEDS & comorbidities.I've had migraine attacks since childhood, though by now they seem related to my craniocervical instability. #MigraineChat |
| Beth Morton @beth_morton @fabriKatie Hello! Join as much or as little as you feel comfortable! #MigraineChat |
| Beth Morton @beth_morton #MHAM has several recognition days. June 3rd is focused on #migraine and #headache in the workplace. In honor of that, we kick off with Q1 related to public and cultural stigma. Ready? #MigraineChat |
| Beth Morton @beth_morton Q1. Because of your #migraine disease, have you ever been treated differently at work, school, or by a healthcare professional? Can you share your experience? #MigraineChat |
 | Bridget Walker @bwalker1314 @beth_morton I’m Bridget from the Boston area diagnosed with chronic migraine with aura and occipital neuralgia. 💜 MHAM #migrainechat |
| My Chronic Brain @mychronicbrain @illuminatedvoid @beth_morton Hi, Ali! So happy to see you today! #MigraineChat |
 | sick lately, words bad (check 📌 for discord info) @bennessb RT @beth_morton: Let's see who is joining #MigraineChat today! I’m Beth and I’m moderating from Vermont where it has already been the Monday-est of Mondays! How's everyone else doing this 3rd day of #MHAM? #MigraineChat |
| Beth Morton @beth_morton @sarie_ellen Yesss!! Welcome to #MigraineChat, Sarah! |
| Beth Morton @beth_morton @OdyO11 Absolutely! Welcome to #MigraineChat! |
| My Chronic Brain @mychronicbrain @OdyO11 @beth_morton Of course you may! Happy to have you. We've heard Migraine is not uncommon with hEDS, but that's just based on patient reports we've had. Make yourself at home and participate as much or as little as you'd like! #MigraineChat |
 | Migraine World Summit @MigraineSummit Migraine in the Workplace Awareness Day- How have accommodations helped you better manage your migraine disease at work? Check out this wonderful article by our founder, Paula Dumas! https://t.co/C9IXmnD3HC #MHAM #SowingTheSeeds @CoalitionCHAMP #migrainechat https://t.co/8BbCfNkGoO |
| CoalitionCHAMP @CoalitionCHAMP @beth_morton A1. Happy Migraine in the Workplace day! #migraine partners have officially launched the Migraine at Work campaign, a project of @headachepolicy. Download resources to start conversations at work about #migrainedisease https://t.co/waXknAgi8J #MigraineChat #mham |
| Beth Morton @beth_morton RT @CoalitionCHAMP: @beth_morton A1. Happy Migraine in the Workplace day! #migraine partners have officially launched the Migraine at Work campaign, a project of @headachepolicy. Download resources to start conversations at work about #migrainedisease https://t.co/waXknAgi8J #MigraineChat #mham |
| My Chronic Brain @mychronicbrain @sarie_ellen @beth_morton Sarah! Hi! Headache hat here too. #MigraineChat |
| Ody @OdyO11 @mychronicbrain @beth_morton Thanks! Migraine is mentioned in some of the current publications about EDS, so it is being recognized as not being uncommon. #MigraineChat |
| My Chronic Brain @mychronicbrain @GotWhaleofaTale That's rough! Migraine in children is too often overlooked. We're so sorry you suffered so long without knowing what it is. #MigraineChat |
| CoalitionCHAMP @CoalitionCHAMP Our first question on the #MigraineChat twitter chat. Join in! |
| My Chronic Brain @mychronicbrain @bwalker1314 @beth_morton Hello, friend! So glad you made it today. #MigraineChat |
 | Democracy Over Demagogues @freeandclear1 A1 #migrainechat I had to file a discrimination complaint with EEOC. My primary migraine trigger is synthetic fragrances. When I requested accommodation, it became a public issue and everyone was awful. |
| My Chronic Brain @mychronicbrain @bhendykat @beth_morton This looks delicious. It may have to join the growing list of recipes to try! Thanks for sharing! #MigraineChat |
| My Chronic Brain @mychronicbrain @OdyO11 @beth_morton That's good to know! So glad you're here to expand our knowledge. <3 We hope we can offer new knowledge in return! #MigraineChat |
| illuminated void. Ali 🌸. @illuminatedvoid @beth_morton A1a. Well my childhood headaches weren’t taken seriously by my pediatrician who told my Mom “kids don’t get headaches”. Years later when I developed migraine disease coworkers either tried to “cure” or told me stories about how I didn’t match their expectations #migrainechat |
| Beth Morton @beth_morton A1a. I’ve had encounters in all of those spaces where people didn’t understand #migraine was as disabling as it is, had unreasonable expectations of me, or tried to make me feel guilty. #MigraineChat |
| My Chronic Brain @mychronicbrain Oh wow! This is a great resource! Thanks for sharing, @CoalitionCHAMP! #MigraineChat |
| Ody @OdyO11 @beth_morton A2. Healthcare professionals seemed quite helpless and at times indifferent towards my migraine symptoms. It felt as if they didn't take it seriously. I was quite perplexed, since that didn't mirror the amount of pain and suffering I experienced. #MigraineChat |
| Democracy Over Demagogues @freeandclear1 @beth_morton I'm Suki in the San Francisco Bay area. I have #chronicmigraine and idiopathic intercranial hypertension (IIH). #migrainechat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @mychronicbrain: Oh wow! This is a great resource! Thanks for sharing, @CoalitionCHAMP! #MigraineChat |
| Democracy Over Demagogues @freeandclear1 RT @CoalitionCHAMP: @beth_morton A1. Happy Migraine in the Workplace day! #migraine partners have officially launched the Migraine at Work campaign, a project of @headachepolicy. Download resources to start conversations at work about #migrainedisease https://t.co/waXknAgi8J #MigraineChat #mham |
| Beth Morton @beth_morton A1b. I was *just* going to share this! Thank you! #MigraineChat |
 | ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday A1: I avoid going to emergency rooms when I have a migraine attack. The one time I did, I was treated as if I was just there to get drugs. It wasn’t until I mentioned my neurologist for the millionth time & that she sent me there for treatment did they listen #migrainechat |
| Angie Glaser @winedarkme @beth_morton I'm Angie from Southern California, bringing my chronic migraine with aura, daily headache, and occipital neuralgia to this #MigraineChat! My light sensitivity is loving the gloomy May Grey today |
| illuminated void. Ali 🌸. @illuminatedvoid @beth_morton A1b. If I pushed through, people assumed I was exaggerating. One coworker told me about his mother who he said “lied about migraines to get out of doing things”. These people worked in healthcare too. #migrainechat |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday RT @beth_morton: A1b. I was *just* going to share this! Thank you! #MigraineChat |
| Bridget Walker @bwalker1314 @beth_morton Q1 part 1 I saw several physicians who told me I had bad headaches because I was an overstressed student, and maybe if I didn’t burden myself I wouldn’t have those headaches.. Needless to say, #migrainechat |
| Beth Morton @beth_morton Q2. When you think about how #migraine is portrayed by the public - in the media, in ads, etc. - what comes to mind? Do those images affect how you talk about migraine disease with friends and family, employers or co-workers? #MigraineChat |
 | Michelle is embracing her DIVAtude @DivaMDGarrett Hi Everyone! First time joining #MigraineChat but I’m glad to be here. I’m Michelle from Columbia, SC |
| Michelle is embracing her DIVAtude @DivaMDGarrett RT @beth_morton: Q1. Because of your #migraine disease, have you ever been treated differently at work, school, or by a healthcare professional? Can you share your experience? #MigraineChat |
| My Chronic Brain @mychronicbrain @freeandclear1 @beth_morton Hi, Suki! Welcome to #MigraineChat! |
| Democracy Over Demagogues @freeandclear1 Ditto |
 | SWHR @SWHR RT @CoalitionCHAMP: @beth_morton A1. Happy Migraine in the Workplace day! #migraine partners have officially launched the Migraine at Work campaign, a project of @headachepolicy. Download resources to start conversations at work about #migrainedisease https://t.co/waXknAgi8J #MigraineChat #mham |
| Democracy Over Demagogues @freeandclear1 RT @MigraineSummit: Migraine in the Workplace Awareness Day- How have accommodations helped you better manage your migraine disease at work? Check out this wonderful article by our founder, Paula Dumas! https://t.co/C9IXmnD3HC #MHAM #SowingTheSeeds @CoalitionCHAMP #migrainechat https://t.co/8BbCfNkGoO |
| CoalitionCHAMP @CoalitionCHAMP @beth_morton A2a. Our #Stigma in Education Committee provides data and education to reduce stigma toward children living with migraine. Phase 1 focused on high school children with #migraine #MigraineChat |
| Beth Morton @beth_morton @MigraineEllie Haha, glad I could help with the procrastination (I have to pack so I sympathize). #MigraineChat |
| CoalitionCHAMP @CoalitionCHAMP @beth_morton A2b. #Stigma in Education Committee creating materials for three audiences - parents, students & educators. Letters, infographics, cheat sheets. #MigraineChat #stigma |
| My Chronic Brain @mychronicbrain @migrainesallday This is such a painful reality of having this disease. We hear versions of this story all the time (and most of us have experienced it ourselves!) Advocating for your primary-headache-doctor to specify that you're going for treatment can be very helpful. #MigraineChat |
| Bridget Walker @bwalker1314 @beth_morton Q1 continued Lightning the course loads does not cure one of migraine, and it bothered me to know a neurologist has such thoughts about a disease I thought they would be willing to treat. #migrainechat |
| Beth Morton @beth_morton RT @CoalitionCHAMP: @beth_morton A2a. Our #Stigma in Education Committee provides data and education to reduce stigma toward children living with migraine. Phase 1 focused on high school children with #migraine #MigraineChat |
| Michelle is embracing her DIVAtude @DivaMDGarrett @illuminatedvoid @beth_morton I’ve had medical professionals tell me the same thing about my daughter. She hasn’t been diagnosed but I recognize the symptoms in her. It’s so frustrating. #MigraineChat |
| Beth Morton @beth_morton RT @CoalitionCHAMP: @beth_morton A2b. #Stigma in Education Committee creating materials for three audiences - parents, students & educators. Letters, infographics, cheat sheets. #MigraineChat #stigma |
| My Chronic Brain @mychronicbrain @CMLifeblog @beth_morton Angie! So happy to see you! #MigraineChat |
| Michelle is embracing her DIVAtude @DivaMDGarrett RT @CoalitionCHAMP: @beth_morton A1. Happy Migraine in the Workplace day! #migraine partners have officially launched the Migraine at Work campaign, a project of @headachepolicy. Download resources to start conversations at work about #migrainedisease https://t.co/waXknAgi8J #MigraineChat #mham |
 | Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: We also have a special co-host this month in honor of #MHAM. Joining us from @CoalitionCHAMP is Meghan Buzby. Meghan is the Director of Advocacy and is here to share some of the work CHAMP and its partners are doing around #migraine and stigma. Welcome, Meghan! #MigraineChat https://t.co/aPZ8gePGZn |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @CoalitionCHAMP: @beth_morton A1. Happy Migraine in the Workplace day! #migraine partners have officially launched the Migraine at Work campaign, a project of @headachepolicy. Download resources to start conversations at work about #migrainedisease https://t.co/waXknAgi8J #MigraineChat #mham |
| My Chronic Brain @mychronicbrain @MigraineEllie @beth_morton Glad to help support the procrastination. 😉 Nice to meet you, by the way! #MigraineChat |
| Ody @OdyO11 @beth_morton A2: I never saw the suffering that migraine actually means represented. It seemed to be trivialized, minimized. And it seemed to be seen as triggered by stress and maladaptive coping ("their own fault"). Blaming patients is always harmful. #migrainechat |
 | Adele Jayde @hawkeye2_ I have not been which honestly annoys me slightly bc people forget that I have chronic daily headaches and migraines and sometimes I need extra support. Most healthcare professionals act like I’m making it up or just fob me off bc they can’t see anything wrong on tests. |
| Michelle is embracing her DIVAtude @DivaMDGarrett RT @mychronicbrain: @migrainesallday This is such a painful reality of having this disease. We hear versions of this story all the time (and most of us have experienced it ourselves!) Advocating for your primary-headache-doctor to specify that you're going for treatment can be very helpful. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: #MHAM has several recognition days. June 3rd is focused on #migraine and #headache in the workplace. In honor of that, we kick off with Q1 related to public and cultural stigma. Ready? #MigraineChat |
| Michelle is embracing her DIVAtude @DivaMDGarrett RT @beth_morton: Q2. When you think about how #migraine is portrayed by the public - in the media, in ads, etc. - what comes to mind? Do those images affect how you talk about migraine disease with friends and family, employers or co-workers? #MigraineChat |
| Adele Jayde @hawkeye2_ RT @beth_morton: A1a. I’ve had encounters in all of those spaces where people didn’t understand #migraine was as disabling as it is, had unreasonable expectations of me, or tried to make me feel guilty. #MigraineChat |
| Democracy Over Demagogues @freeandclear1 @migrainesallday A1 #migrainechat thanks for the reminder. I once went to ER for another reason and staff refused to move me away from heavily fragranced reception area. ER doc had someone come and do a psychiatric evaluation on me instead of listening to me & moving my guerney away from triggers |
| Beth Morton @beth_morton RT @OdyO11: @beth_morton A2: @beth_morton A2: I never saw the suffering that migraine actually means represented. It seemed to be trivialized, minimized. And it seemed to be seen as triggered by stress and maladaptive coping ("their own fault"). Blaming patients is always harmful. #migrainechat |
| Adele Jayde @hawkeye2_ RT @MigraineSummit: Migraine in the Workplace Awareness Day- How have accommodations helped you better manage your migraine disease at work? Check out this wonderful article by our founder, Paula Dumas! https://t.co/C9IXmnD3HC #MHAM #SowingTheSeeds @CoalitionCHAMP #migrainechat https://t.co/8BbCfNkGoO |
| My Chronic Brain @mychronicbrain @bwalker1314 @beth_morton This is exactly what our editor @BreatheMia was told when she first started exhibiting symptoms. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: A1a. I’ve had encounters in all of those spaces where people didn’t understand #migraine was as disabling as it is, had unreasonable expectations of me, or tried to make me feel guilty. #MigraineChat |
| My Chronic Brain @mychronicbrain @DivaMDGarrett Nice to meet you, Michelle! Welcome to #MigraineChat! |
| My Chronic Brain @mychronicbrain @bhendykat @illuminatedvoid @beth_morton Thankfully! #MigraineChat |
| Beth Morton @beth_morton @Alexandria_SZ No problem! I was almost late myself because of an issue with the furnace and repair person was here! #MigraineChat |
| My Chronic Brain @mychronicbrain @CoalitionCHAMP @beth_morton This is wonderful news! #MigraineChat |
| Michelle is embracing her DIVAtude @DivaMDGarrett A2: I’ve finally begun seeing more commercials with professional men. There are very few places I see people who resemble me when migraines are discussed. I think it does impact the conversations and acceptance of my diagnosis. #MigraineChat |
| Ody @OdyO11 @mychronicbrain @beth_morton The article about neurology in EDS that's linked on the website of @TheEDSociety has a paragraph about migraine: https://t.co/3PmXQbEQCT #MigraineChat |
| My Chronic Brain @mychronicbrain @OdyO11 @beth_morton Education is a much better approach. Stress *can* trigger attacks. As can maladaptive coping. But that doesn't mean the attacks are their fault. Patient blaming leads to poor treatment outcomes. #MigraineChat |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday A2: I think things are slowly getting better as to how migraine is portrayed because of patients and advocates like us. We still have a long way to go - Every year though I still see this stupid article telling people to use migraine as an excuse to get out of work. #migrainechat |
| Michelle is embracing her DIVAtude @DivaMDGarrett @Alexandria_SZ @beth_morton This!!! It’s so frustrating and impacts how others see you in the workplace. #MigraineChat |
| illuminated void. Ali 🌸. @illuminatedvoid @beth_morton A2 I think of the movies when the phrase “I think I’m getting a migraine!” Is used in place of “I’m stressed out”. It seems downplayed, like it’s not a disease. #migrainechat |
| Democracy Over Demagogues @freeandclear1 @OdyO11 @beth_morton A2 #migrainechat. I've seen tweets on Twitter with false, stigmatizing info about migraine, from large accounts. Big misapprehension, anyone can get "a migraine" due to annoyances. |
| Democracy Over Demagogues @freeandclear1 RT @OdyO11: @beth_morton A2: @beth_morton A2: I never saw the suffering that migraine actually means represented. It seemed to be trivialized, minimized. And it seemed to be seen as triggered by stress and maladaptive coping ("their own fault"). Blaming patients is always harmful. #migrainechat |
| illuminated void. Ali 🌸. @illuminatedvoid @InfiniteKnot @beth_morton Yes!!! #migrainechat |
| My Chronic Brain @mychronicbrain @Alexandria_SZ @beth_morton Oh dear! Welcome! Glad you could make it. :) #MigraineChat |
 | Oro Sports Performance @OroSportsUSA The 20-minute wonder that is Feng Fu; cooling the base of skull for overall well being. Cooling CoolBands make it that much simpler. #migrainechat @migraine_blog @acupuncture2day @Migrainedotcom @MigraineWriter #acupuncture https://t.co/TuiaJ6WbdN |
 | Chronic night owl @OwlJourney @beth_morton A2. Yes sometimes the media doesn't help especially because it doesn't show #pediatricmigraine but it helps when discussing with my family about aimovig because they have seen the commercials quite often. #MigraineChat |
| Angie Glaser @winedarkme @beth_morton A1. A teacher in HS didn't want to let me make up an assignment because 'migraines don't last a whole week.' (Mine do!) Drs. said my CM is caused by anxiety/depression. No change after treatment. A PCP rudely dismissed my CM as tension headache & RXed ibuprofen #Migrainechat |
| Beth Morton @beth_morton Q3. Do you ever engage in negative self-talk when you have a #migraine attack? What are some examples? Where do you think it comes from? #MigraineChat (BTW -totally forget I had made images - better late than never.) https://t.co/4awu672W11 |
| Adele Jayde @hawkeye2_ A2a. Everything I’ve seen show migraines going away with like 1 dose of a painkiller which is far from the truth, a bad flare up can mean I’m lying in the bathroom throwing up surrounded by heat packs and cold packs with a towel over my head to block out light despite pain meds. |
| My Chronic Brain @mychronicbrain Thanks for highlighting this information about Migraine and EDS! #MigraineChat 💜🦓 |
| Democracy Over Demagogues @freeandclear1 RT @fabriKatie: |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @beth_morton: Q3. Do you ever engage in negative self-talk when you have a #migraine attack? What are some examples? Where do you think it comes from? #MigraineChat (BTW -totally forget I had made images - better late than never.) https://t.co/4awu672W11 |
| Bridget Walker @bwalker1314 @beth_morton A2 some ads have improved over the years, but there are others that are still absolutely horrendous. When someone tells me about an ad they see, I see it as an opportunity to educate. I start by seeing what kind of information they have and if it is accurate or not. #migrainechat |
| My Chronic Brain @mychronicbrain @Alexandria_SZ @beth_morton "I ______ with headaches all the time". We'd be rich if we got even a single penny every time we heard this. #MigraineChat |
| Bridget Walker @bwalker1314 @smithbrainz @beth_morton If it doesn’t fit our current understanding of migraine disease, I take the opportunity to try and teach them as best I can. In general, I encourage anyone to ask questions of us based on information they find. #migrainechat |
| CoalitionCHAMP @CoalitionCHAMP @beth_morton A3. Can come from what we call self #stigma - The internalized belief that migraine is not worthy or effective medical treatment or accommodations by society. #MigraineChat #migraine |
| Bridget Walker @bwalker1314 @beth_morton If it doesn’t fit our current understanding of migraine disease, I take the opportunity to try and teach them as best I can. In general, I encourage anyone to ask questions of us based on information they find. #migrainechat |
| My Chronic Brain @mychronicbrain @DivaMDGarrett Good point. #MigraineChat |
| Angie Glaser @winedarkme @beth_morton A1. I have also been guilt-tripped by coworkers who were asked to cover for me & by managers for 'overusing' sick time. #migrainechat |
| My Chronic Brain @mychronicbrain @fabriKatie Ouch. #MigraineChat |
 | NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @CoalitionCHAMP: @beth_morton A1. Happy Migraine in the Workplace day! #migraine partners have officially launched the Migraine at Work campaign, a project of @headachepolicy. Download resources to start conversations at work about #migrainedisease https://t.co/waXknAgi8J #MigraineChat #mham |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q2. When you think about how #migraine is portrayed by the public - in the media, in ads, etc. - what comes to mind? Do those images affect how you talk about migraine disease with friends and family, employers or co-workers? #MigraineChat |
| Bridget Walker @bwalker1314 RT @beth_morton: A1a. I’ve had encounters in all of those spaces where people didn’t understand #migraine was as disabling as it is, had unreasonable expectations of me, or tried to make me feel guilty. #MigraineChat |
| Beth Morton @beth_morton A3. I used to blame myself for my attacks more. I also thought I should be able to do more/push thru. I’m getting better about this. I think it comes from #migraine not being taken seriously or the idea it's *caused* by a personal shortcoming. That’s just not true. #MigraineChat |
| My Chronic Brain @mychronicbrain @freeandclear1 @OdyO11 @beth_morton Misinformation is everwhere. And it's frustrating when big accounts spread it. It's imporant for us to continue to work together to make accurate information easily available to everyone--from big organizations to tiny online ghosts. #MigraineChat |
| CoalitionCHAMP @CoalitionCHAMP A3. Can come from what we call self #stigma - The internalized belief that migraine is not worthy or effective medical treatment or accommodations by society. #migraine #migrainechat |
| My Chronic Brain @mychronicbrain Yes. Yes. Yes. This. |
| Adele Jayde @hawkeye2_ A2b. And on the flip side when they do show how dibilitaing they are they forget it can be chronic & therefore sometimes you’re able to function. I’ve been judged using my phone when I’ve had one but when it’s < 7/10 pain I’m able to pretty much act normal bc I’m so used to them. |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @beth_morton: Q1. Because of your #migraine disease, have you ever been treated differently at work, school, or by a healthcare professional? Can you share your experience? #MigraineChat |
| illuminated void. Ali 🌸. @illuminatedvoid @beth_morton A3. Unfortunately, yes. I’m working very hard to learn self compassion but I’m prone to blaming myself, especially where my migraines are concerned. As soon as symptoms start I begin to panic and tell myself that I must have done something wrong #migrainechat |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 @beth_morton #Migrainechat |
| My Chronic Brain @mychronicbrain @Alexandria_SZ It doesn't help that Migraine is, in fact, a very common disease. Almost everyone has had an attack or knows of someone who has had an attack. Helping education that it's a disease AND has a spectrum of disability is so important. #MigraineChat |
| Chronic night owl @OwlJourney @beth_morton A3. I have even though I try my hardest not to. I always say "be tougher, don't cry, don't let them see your pain" I think this stems from the #Stigma related to migraine and the public's perception,also not wanting to miss out. #MigraineChat |
| Ody @OdyO11 @beth_morton A3: I don't. I have accepted many years ago that I just need to erase these days from my calendar, so to speak. I need to rest and wait for it to pass; being productive isn't an option. And afterwards, I feel shaky, but so, so thankful that the pain has passed. #migrainechat |
| Bridget Walker @bwalker1314 @beth_morton A3 I always feel guilt and shame during my migraine attacks like I’m never doing enough. Even though I know I quite literally cannot do anything, the words that go through my head tell me that I am failing at life because for extended periods of time I feel useless #migrainechat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: Q3. Do you ever engage in negative self-talk when you have a #migraine attack? What are some examples? Where do you think it comes from? #MigraineChat (BTW -totally forget I had made images - better late than never.) https://t.co/4awu672W11 |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity Happy #MigraineChat birthdays to @DivaMDGarrett & @BreatheMia! |
| Beth Morton @beth_morton @CMLifeblog Yep, I had employers that were good about material accommodations, but then would guilt trip me about sick leave. #MigraineChat |
| CoalitionCHAMP @CoalitionCHAMP #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity So true! |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday A3: I am often really hard on myself when experiencing a migraine attack - especially if it causes me to miss work, social or family events. It definitely comes from society & the fact that for the most part, you can't physically see the amount of pain I'm in #migrainechat |
 | Ebony Grey @DrEbonyGrey @beth_morton A1. #MigraineChat I’d refer a student or employee to the advocate for individuals with disabilities. There is reasonable accommodations that can be made to accommodate migraines. |
| My Chronic Brain @mychronicbrain @CMLifeblog @beth_morton And having ibuprofen as your primary pain relief source from a doctor probably did wonders in you avoiding rebound headache. (insert sarcasm) #MigraineChat |
| Angie Glaser @winedarkme @beth_morton A2. Migraine is expressed in media as an annoyance, like 'oh, she's got another one of her migraines.' It makes me less confident about sharing my own experiences - I assume people will shrug it off (at best) or be annoyed and blame me (at worst.) #MigraineChat |
 | Ellie @MigraineEllie RT @beth_morton: Q3. Do you ever engage in negative self-talk when you have a #migraine attack? What are some examples? Where do you think it comes from? #MigraineChat (BTW -totally forget I had made images - better late than never.) https://t.co/4awu672W11 |
| Migraine World Summit @MigraineSummit Negative self-talk and blame is incredibly common in those with chronic illness, and can exacerbate almost any condition, especially those like migraine where stress is a powerful trigger. (A3 #migrainechat ) @migrainediva #MHAM https://t.co/4zSIXJSPrx |
| Angie Glaser @winedarkme RT @OdyO11: @beth_morton A2: @beth_morton A2: I never saw the suffering that migraine actually means represented. It seemed to be trivialized, minimized. And it seemed to be seen as triggered by stress and maladaptive coping ("their own fault"). Blaming patients is always harmful. #migrainechat |
| Beth Morton @beth_morton @illuminatedvoid It's so hard not to think that. A lot of our treatment plan makes us feel like we should be in control or responsible. That's unfair and unreasonable in most cases. #MigraineChat |
| illuminated void. Ali 🌸. @illuminatedvoid @bwalker1314 @beth_morton Right, there’s also the blame that I may have let others down, or should be more productive. #migrainechat |
| Beth Morton @beth_morton Q4. What can we do individually or collectively to reframe this negative self-talk or blame during a #migraine attack? #MigraineChat |
| Bridget Walker @bwalker1314 This is one of the best things that has ever been said. 💜💜💜 |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @beth_morton: Let's see who is joining #MigraineChat today! I’m Beth and I’m moderating from Vermont where it has already been the Monday-est of Mondays! How's everyone else doing this 3rd day of #MHAM? #MigraineChat |
| CoalitionCHAMP @CoalitionCHAMP RT @MigraineSummit: Negative self-talk and blame is incredibly common in those with chronic illness, and can exacerbate almost any condition, especially those like migraine where stress is a powerful trigger. (A3 #migrainechat ) @migrainediva #MHAM https://t.co/4zSIXJSPrx |
| My Chronic Brain @mychronicbrain This is very true. Migraine attacks can look different for everyone. There are common examples, but that doesn't mean your attack will look like the common example. #MigraineChat |
| CoalitionCHAMP @CoalitionCHAMP @beth_morton A3. Be sure to check out some of CHAMP’s partners programs to help combat self stigma. @Miles4migraine Education Days https://t.co/dnANaF0B3p & #Migraine Community Groups https://t.co/TUjFH6Z3f7 from @Miles4Migraine & @MigraineSummit #MigraineChat #migraine |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @beth_morton: #MHAM has several recognition days. June 3rd is focused on #migraine and #headache in the workplace. In honor of that, we kick off with Q1 related to public and cultural stigma. Ready? #MigraineChat |
| Ody @OdyO11 @Alexandria_SZ @mychronicbrain @beth_morton Patient-blaming seems to be especially common when a patient has incompletely understood, complex neurological symptoms, unfortunately... The concept of hysteria has left its marks, I am afraid. #migrainechat |
| Beth Morton @beth_morton RT @OdyO11: @beth_morton A3: @beth_morton A3: I don't. I have accepted many years ago that I just need to erase these days from my calendar, so to speak. I need to rest and wait for it to pass; being productive isn't an option. And afterwards, I feel shaky, but so, so thankful that the pain has passed. #migrainechat |
| Beth Morton @beth_morton RT @CoalitionCHAMP: @beth_morton A3. Be sure to check out some of CHAMP’s partners programs to help combat self stigma. @Miles4migraine Education Days https://t.co/dnANaF0B3p & #Migraine Community Groups https://t.co/TUjFH6Z3f7 from @Miles4Migraine & @MigraineSummit #MigraineChat #migraine |
| Michelle is embracing her DIVAtude @DivaMDGarrett @Medical_Oddity @BreatheMia Thank you!!!! #MigraineChat |
 | Brandon Scales @movieguy28 RT @beth_morton: Q3. Do you ever engage in negative self-talk when you have a #migraine attack? What are some examples? Where do you think it comes from? #MigraineChat (BTW -totally forget I had made images - better late than never.) https://t.co/4awu672W11 |
| Adele Jayde @hawkeye2_ Every time. I should have done this differently. Maybe that triggered it, I shouldn’t have stressed about thing. I think it’s come from years and years of family, friends, doctors, etc from telling me that I caused the attack by doing something wrong or stressing over nothing. |
| Democracy Over Demagogues @freeandclear1 @beth_morton I do this less and less as I grow accustomed to being a person with disabilities, as I understand my strengths and limitations, and that everything changes all the time. #migrainechat a3 |
| Adele Jayde @hawkeye2_ RT @beth_morton: A3. I used to blame myself for my attacks more. I also thought I should be able to do more/push thru. I’m getting better about this. I think it comes from #migraine not being taken seriously or the idea it's *caused* by a personal shortcoming. That’s just not true. #MigraineChat |
 | Jake Hamby @jhamby RT @beth_morton: Q3. Do you ever engage in negative self-talk when you have a #migraine attack? What are some examples? Where do you think it comes from? #MigraineChat (BTW -totally forget I had made images - better late than never.) https://t.co/4awu672W11 |
| My Chronic Brain @mychronicbrain @illuminatedvoid @beth_morton It's difficult not to internalize blame. But (and this is for your future brain to remember): Migraine is not yourfault. Even if you missed a trigger, it's not your fault. You have a chronic, neurological disease. 💜#MigraineChat |
| Beth Morton @beth_morton A4a. Remember #migraine is complex and disabling. Because it presents on a spectrum, we need to remind ourselves & others that our experience is unique. Comparing experiences with migraine isn’t fair. This goes for how we respond to treatments, cope w/attacks, etc. #MigraineChat https://t.co/iSK1f0wgEz |
 | smithbrainz @smithbrainz RT @CoalitionCHAMP: @beth_morton A3. Be sure to check out some of CHAMP’s partners programs to help combat self stigma. @Miles4migraine Education Days https://t.co/dnANaF0B3p & #Migraine Community Groups https://t.co/TUjFH6Z3f7 from @Miles4Migraine & @MigraineSummit #MigraineChat #migraine |
| Michelle is embracing her DIVAtude @DivaMDGarrett RT @beth_morton: Q3. Do you ever engage in negative self-talk when you have a #migraine attack? What are some examples? Where do you think it comes from? #MigraineChat (BTW -totally forget I had made images - better late than never.) https://t.co/4awu672W11 |
| Michelle is embracing her DIVAtude @DivaMDGarrett RT @CoalitionCHAMP: @beth_morton A3. Be sure to check out some of CHAMP’s partners programs to help combat self stigma. @Miles4migraine Education Days https://t.co/dnANaF0B3p & #Migraine Community Groups https://t.co/TUjFH6Z3f7 from @Miles4Migraine & @MigraineSummit #MigraineChat #migraine |
| Michelle is embracing her DIVAtude @DivaMDGarrett RT @mychronicbrain: This is very true. Migraine attacks can look different for everyone. There are common examples, but that doesn't mean your attack will look like the common example. #MigraineChat |
| My Chronic Brain @mychronicbrain @MigraineMelon @beth_morton woooooow #MigraineChat |
| Michelle is embracing her DIVAtude @DivaMDGarrett RT @beth_morton: Q4. What can we do individually or collectively to reframe this negative self-talk or blame during a #migraine attack? #MigraineChat |
| Democracy Over Demagogues @freeandclear1 RT @CoalitionCHAMP: A3. Can come from what we call self #stigma - The internalized belief that migraine is not worthy or effective medical treatment or accommodations by society. #migraine #migrainechat |
| Democracy Over Demagogues @freeandclear1 RT @mychronicbrain: @freeandclear1 @OdyO11 @beth_morton Misinformation is everwhere. And it's frustrating when big accounts spread it. It's imporant for us to continue to work together to make accurate information easily available to everyone--from big organizations to tiny online ghosts. #MigraineChat |
 | Roni Jones(she/her)💉💉💉 @MsRoniAnne @beth_morton A3 - "What did I do wrong to bring these #Migraine attacks on?" Now I'm stuck in bed, I'm a rotten wife. My house is a mess, but I'm lazing in bed. Stupid, stupid. It comes from frustration & anger, at having migraine disease, a disease that seems to have all power! #MigraineChat |
| My Chronic Brain @mychronicbrain @OdyO11 @Alexandria_SZ @beth_morton It definitely has #MigraineChat |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday For some reason, a lot of people need "physical proof" that you're in pain. They call us hypochondriacs, so for the first year of living with migraine, I did think that it was all in my head or that it "wasn't that bad". Maybe just #believeus #migrainechat |
 | MigraLens @migralens Hi #migrainechat! At MigraLens we want to know how many of you have tried blue light blocking glasses to prevent and reduce #migraine. Join the conversation, and look out for discounts on our site (coming soon) https://t.co/XBYsHg06aI #MHAM |
| CoalitionCHAMP @CoalitionCHAMP Incredibly true. Our members have so many great resources to help everyone along the migraine spectrum. Visit the member page on our site: https://t.co/aHmccQ5wUw |
| My Chronic Brain @mychronicbrain @fabriKatie @Alexandria_SZ We just need to use that existing awareness to our advantage. :) #MigraineChat |
| Democracy Over Demagogues @freeandclear1 @fabriKatie @illuminatedvoid @beth_morton OMGOsh they can't get it right on a medical- themed show!#migrainechat |
| Ody @OdyO11 @beth_morton A4: I think understanding of the underlying biophysical mechanisms would help, and a clear differentiation. No oversimplifications that make it seem easy to work oneself out of it (avoid stress, eat healthy, sleep hygiene,...). There is no easy solution. #migrainechat |
| Beth Morton @beth_morton @mhill0425 Hopefully this self-awareness will help. It's tough. Go easy on yourself! #MigraineChat |
| My Chronic Brain @mychronicbrain #Realtable (From #MigraineChat) |
| Beth Morton @beth_morton Q5. How intentional are you with the language you use to describe #migraine: e.g. do you say you are having a migraine attack vs. migraine or migraine headache? Do you explain your word choices or let others pick up on it? Is shifting language important? #MigraineChat |
| My Chronic Brain @mychronicbrain @CMLifeblog @beth_morton This is maddening! #MigraineChat |
| Chronic night owl @OwlJourney @beth_morton A4. As a group we can try and reshape the story that #Migraine is just caused by stress or our fault, acknowledge it is trigger with the rest but also acknowledge the many others and always remember that #Migraine is a neurological disease. #MigraineChat |
| Democracy Over Demagogues @freeandclear1 RT @beth_morton: A4a. Remember #migraine is complex and disabling. Because it presents on a spectrum, we need to remind ourselves & others that our experience is unique. Comparing experiences with migraine isn’t fair. This goes for how we respond to treatments, cope w/attacks, etc. #MigraineChat https://t.co/iSK1f0wgEz |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @mychronicbrain: @illuminatedvoid @beth_morton It's difficult not to internalize blame. But (and this is for your future brain to remember): Migraine is not yourfault. Even if you missed a trigger, it's not your fault. You have a chronic, neurological disease. 💜#MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @CoalitionCHAMP: @beth_morton A3. Be sure to check out some of CHAMP’s partners programs to help combat self stigma. @Miles4migraine Education Days https://t.co/dnANaF0B3p & #Migraine Community Groups https://t.co/TUjFH6Z3f7 from @Miles4Migraine & @MigraineSummit #MigraineChat #migraine |
| Adele Jayde @hawkeye2_ Teach/show/understand that they can be chronic and appear out of nowhere no matter how well you look after yourself bc it is an actual disease. More visability for invisible illnesses/disabilities. |
| My Chronic Brain @mychronicbrain @Medical_Oddity @DivaMDGarrett @BreatheMia Happy birthday!! #MigraineChat https://t.co/Py9S0lFK7I |
| Ody @OdyO11 @beth_morton A4: Also, recognizing that there are still open questions, but that research is progressing. We don't have all the answers yet; we shouldn't fill the gaps with seeking blame and responsibility in those who suffer. #migrainechat |
 | Alison McGovern @Alison_McGovern This is really interesting. I don't think I have ever thought of migraines as *not* my fault. Either not enough sleep, or something I ate, or stress, or the medication I took. |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday @InfiniteKnot @beth_morton Very good point. What works for some does not work for everyone! Also, there needs to be something in place when a doctor says "I'm not sure what else to do to help". Hearing that as a patient is very discouraging. It's on us to find other doctors/help. #migrainechat |
| Roni Jones(she/her)💉💉💉 @MsRoniAnne @beth_morton A4 - Remind ourselves that #Migraine disease is a genetic Neurological Disease, it is our DNA. So we have absolutely nothing to feel guilty about! #MigraineChat |
| My Chronic Brain @mychronicbrain @sarie_ellen @beth_morton "neurological meltdown" is such a great phrase to use for a Migraine attack! #MigraineChat |
| CoalitionCHAMP @CoalitionCHAMP @beth_morton A5. We believe words matter & CHAMP members worked collectively to create a guide for everyone living with migraine, headache and cluster, their loved ones and the general public. https://t.co/ycIMsqjdOL #MigraineChat #stigma |
| illuminated void. Ali 🌸. @illuminatedvoid @beth_morton A4a. I touched on this in my last tweet but just being mindful that we are doing it. Recognizing is the first step to self compassion. Also support of a community that understands. I felt so alone and confused until i found different online forums #migrainechat |
 | Alby the Owl Lady אריאלה 🇮🇱🇺🇦 @albyselkie RT @beth_morton: A4a. Remember #migraine is complex and disabling. Because it presents on a spectrum, we need to remind ourselves & others that our experience is unique. Comparing experiences with migraine isn’t fair. This goes for how we respond to treatments, cope w/attacks, etc. #MigraineChat https://t.co/iSK1f0wgEz |
| Democracy Over Demagogues @freeandclear1 I've done a lot of inner, spiritual work on myself around the ability to live completely in the moment without judgement. One very old book about this is called "Spiritual Emergency" https://t.co/e2gJp3x7Wi "Spiritual Emergency" by Christina Grof and Stanislav Grof |
| My Chronic Brain @mychronicbrain @ebonyajohnson @beth_morton There are. But it's suprisingly how few people actually give those accomodations. This stems from a misunderstanding that Migraine causes disability (because that disability is so variable from person to person and one point in time to another). #MigraineChat |
| Beth Morton @beth_morton RT @CoalitionCHAMP: @beth_morton A5. We believe words matter & CHAMP members worked collectively to create a guide for everyone living with migraine, headache and cluster, their loved ones and the general public. https://t.co/ycIMsqjdOL #MigraineChat #stigma |
| CoalitionCHAMP @CoalitionCHAMP RT @CoalitionCHAMP: @beth_morton A5. We believe words matter & CHAMP members worked collectively to create a guide for everyone living with migraine, headache and cluster, their loved ones and the general public. https://t.co/ycIMsqjdOL #MigraineChat #stigma |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @CoalitionCHAMP: @beth_morton A5. We believe words matter & CHAMP members worked collectively to create a guide for everyone living with migraine, headache and cluster, their loved ones and the general public. https://t.co/ycIMsqjdOL #MigraineChat #stigma |
| illuminated void. Ali 🌸. @illuminatedvoid @beth_morton A4b. Getting information about support groups should be part of the diagnosis! #migrainechat |
| Bridget Walker @bwalker1314 @beth_morton Q5 The language we used to talk about migraine disease is critical. It sets the stage to how we will be perceived by others. I think it is important to be deliberate with our word choices. We must be intentional with the lexicon that makes up migraine disease. #MigraineChat |
| Democracy Over Demagogues @freeandclear1 RT @CoalitionCHAMP: @beth_morton A5. We believe words matter & CHAMP members worked collectively to create a guide for everyone living with migraine, headache and cluster, their loved ones and the general public. https://t.co/ycIMsqjdOL #MigraineChat #stigma |
| My Chronic Brain @mychronicbrain @MigraineSummit @migrainediva This is an excellent resource. @migrainediva is so realtable in her stories of Migraine and mental wellness. #MigraineChat |
| illuminated void. Ali 🌸. @illuminatedvoid 🙌🏻 |
| Adele Jayde @hawkeye2_ I say migraine flare up / attack vs daily headaches / chronic migraines to differentiate the main two types I get. I try to explain it to my close friends but not really to general people bc its exhausting and I can’t be bothered most of the time. |
| My Chronic Brain @mychronicbrain Exactly so, @bwalker1314! #MigraineChat |
| Beth Morton @beth_morton A5b. I think shifting language & images to reflect the true experience of people w/#migraine is an important first step. It’s not the only thing we need to do to address stigma, but it is something we can all do relatively easily. #MigraineChat |
| Beth Morton @beth_morton A5a. I'm more intentional with my language, but tend not to correct people. My hope is modeling language will help it spread. #MigraineChat |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday A2 Cont: There also needs to be more portrayal of the long-lasting effects of migraine and the different migraine stages. Sometimes postdrome and brain fog last longer than the pain side of the migraine for me but I'm expected to be back to "normal" working ability. #migrainechat |
| Chronic night owl @OwlJourney RT @CoalitionCHAMP: @beth_morton A5. We believe words matter & CHAMP members worked collectively to create a guide for everyone living with migraine, headache and cluster, their loved ones and the general public. https://t.co/ycIMsqjdOL #MigraineChat #stigma |
| Adele Jayde @hawkeye2_ RT @CoalitionCHAMP: @beth_morton A5. We believe words matter & CHAMP members worked collectively to create a guide for everyone living with migraine, headache and cluster, their loved ones and the general public. https://t.co/ycIMsqjdOL #MigraineChat #stigma |
| Roni Jones(she/her)💉💉💉 @MsRoniAnne @beth_morton A5 - Yes the language we use when talking about #Migraine is very important. I say that I'm having a migraine attack and never use the word headache, instead I will use #head #pain when describing the symptoms of my migraine attack. #MigraineChat |
| Migraine World Summit @MigraineSummit Eliminate the terms migraineur or migraine-type person. The 'migraine personality-type' of an uptight, type-A individual further contributes to stigma and implies that migraine is a personality flaw versus a genetic disease. (A5 #migrainechat ) #MHAM |
| Migraine World Summit @MigraineSummit Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
| Roni Jones(she/her)💉💉💉 @MsRoniAnne RT @CoalitionCHAMP: @beth_morton A5. We believe words matter & CHAMP members worked collectively to create a guide for everyone living with migraine, headache and cluster, their loved ones and the general public. https://t.co/ycIMsqjdOL #MigraineChat #stigma |
| Democracy Over Demagogues @freeandclear1 @beth_morton A5 #migrainechat I'm afraid that I'm a bit pedantic about this, I say "I have migraine disease and today the symptoms are incapacitating". I never say "a migraine". I use episode sometimes, "I'm in the midst of a migraine episode". |
| CoalitionCHAMP @CoalitionCHAMP Excellent suggestion #MigraineChat |
| My Chronic Brain @mychronicbrain Physical evidence of a mostly invisible disease at that! It puts patients in a very tough spot. #MigraineChat |
| Beth Morton @beth_morton RT @bwalker1314: @beth_morton Q5 The language we used to talk about migraine disease is critical. It sets the stage to how we will be perceived by others. I think it is important to be deliberate with our word choices. We must be intentional with the lexicon that makes up migraine disease. #MigraineChat |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday A4: I notice that I get "little" bit more empathy when I use Migraine Attack versus just Migraine. For me, that's how I'm able to explain the severity of it. If there's time, I'll often explain my symptoms and use as many visual words as I can. #migrainechat |
| Democracy Over Demagogues @freeandclear1 RT @MigraineSummit: Negative self-talk and blame is incredibly common in those with chronic illness, and can exacerbate almost any condition, especially those like migraine where stress is a powerful trigger. (A3 #migrainechat ) @migrainediva #MHAM https://t.co/4zSIXJSPrx |
| Adele Jayde @hawkeye2_ I am about to go back to sleep as #MigraineChat started at 3:30AM for me and I have work later on today. I’ll probably re-answer/ tidy up my answers when I’m properly awake at a decent hour. Love to my fellow migraine peeps. ❤️ |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity RT @MsRoniAnne: @beth_morton A5 - Yes the language we use when talking about #Migraine is very important. I say that I'm having a migraine attack and never use the word headache, instead I will use #head #pain when describing the symptoms of my migraine attack. #MigraineChat |
| My Chronic Brain @mychronicbrain Ditch the -s! Ditch the -s! Ditch the -s! #DitchTheS #MigraineChat |
| Beth Morton @beth_morton @sarie_ellen I think we (telling myself, too) need to let go of the shame. It is internalized stigma. And now we know that and it's kinda freeing, right? (Still hard and a process....) #MigraineChat |
| Beth Morton @beth_morton Q6. Do you have a better sense of how stigma affects our lives with migraine? Can you think of ways that patients, advocates, doctors, and/or researchers can continue to address stigma and the barriers it presents? #MigraineChat https://t.co/zIgPj18BqT |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @OwlJourney: @beth_morton A4. As a group we can try and reshape the story that #Migraine is just caused by stress or our fault, acknowledge it is trigger with the rest but also acknowledge the many others and always remember that #Migraine is a neurological disease. #MigraineChat |
| Beth Morton @beth_morton RT @MigraineSummit: Eliminate the terms migraineur or migraine-type person. The 'migraine personality-type' of an uptight, type-A individual further contributes to stigma and implies that migraine is a personality flaw versus a genetic disease. (A5 #migrainechat ) #MHAM |
| Angie Glaser @winedarkme @beth_morton A3. I'm working on neg self-talk but it's a process. For years I would wrack my brain to figure out what I ate/drank to cause it. I'm also a 'should' thinker - tend 2 focus on what I think I 'should' be doing to: a) recover faster or b) push thru & be productive #Migrainechat |
| My Chronic Brain @mychronicbrain @Alexandria_SZ Wait, what?? #MigraineChat https://t.co/pcni5vewiC |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @MsRoniAnne: @beth_morton A4 - Remind ourselves that #Migraine disease is a genetic Neurological Disease, it is our DNA. So we have absolutely nothing to feel guilty about! #MigraineChat |
| Bridget Walker @bwalker1314 @beth_morton I have migraine disease, experience migraine attacks, and it’s the headache of my migraine attack. I don’t have migraines because it’s not a temporary problem, and it’s not a migraine because I live with the disease. #drops #Migrainechat |
| CoalitionCHAMP @CoalitionCHAMP @beth_morton A6. Our Shut the Door on Stigma #migraine symposium joined experts on disease #stigma & patient advocates. We learned from other stigmatized diseases. Newly formed #Stigma Advisory Council will begin work on a stigma intervention program asap. #MigraineChat #migraine #stigma |
| Angie Glaser @winedarkme RT @CoalitionCHAMP: @beth_morton A3. Be sure to check out some of CHAMP’s partners programs to help combat self stigma. @Miles4migraine Education Days https://t.co/dnANaF0B3p & #Migraine Community Groups https://t.co/TUjFH6Z3f7 from @Miles4Migraine & @MigraineSummit #MigraineChat #migraine |
| Democracy Over Demagogues @freeandclear1 I totally agree. #migrainechat A5. I don't have migraineS, I have a genetic neurological disease called Migraine. Going chronic made this quite apparent, there are few days when I experience no symptoms at all. |
 | Me @Jstanthrnobdy RT @beth_morton: Q1. Because of your #migraine disease, have you ever been treated differently at work, school, or by a healthcare professional? Can you share your experience? #MigraineChat |
| illuminated void. Ali 🌸. @illuminatedvoid @beth_morton I’ll admit I need to work on this. I believe language is important. And when I tell people about my disease I always say “chronic migraine”. BUT when an attack is starting I usually say “I’m getting a headache”. I don’t want others to feel uncomfortable. 😳 #migrainechat |
| CoalitionCHAMP @CoalitionCHAMP A6. CHAMP’s recent Shut the Door on Stigma #migraine symposium joined experts on disease #stigma & patient advocates. Newly formed #Stigma Advisory Council will begin work on a stigma intervention program asap. #MigraineChat #migraine #stigma |
| Brandon Scales @movieguy28 RT @beth_morton: Q5. How intentional are you with the language you use to describe #migraine: Q5. How intentional are you with the language you use to describe #migraine: e.g. do you say you are having a migraine attack vs. migraine or migraine headache? Do you explain your word choices or let others pick up on it? Is shifting language important? #MigraineChat |
| My Chronic Brain @mychronicbrain We love this!! Can we <3 multiple times? #MigraineChat |
| Beth Morton @beth_morton A6a. As patients & advocates, pay attention to #MHAM activities this month. Incorporate them year-round. https://t.co/L4H233dWOI Don’t be afraid to tell your story. Continue to educate yourself about #migraine stigma so you recognize it & fight it. #MigraineChat |
| Beth Morton @beth_morton A6b. Show #migraine in its full spectrum, how disabling migraine can be, but also that many of us can still contribute w/better accommodations. Enlist more specialist and researchers to the field to ensure we’re working toward better treatments and treatment access. #MigraineChat |
| Jenn Heater, Chief Oddity (she/her) @Medical_Oddity That’s great to hear! You guys are doing phenomenal work! |
| Beth Morton @beth_morton RT @CoalitionCHAMP: @beth_morton A6. Our Shut the Door on Stigma #migraine symposium joined experts on disease #stigma & patient advocates. We learned from other stigmatized diseases. Newly formed #Stigma Advisory Council will begin work on a stigma intervention program asap. #MigraineChat #migraine #stigma |
| Migraine World Summit @MigraineSummit In this interview, Robert Shapiro, MD discusses the myriad of ways in which stigma drastically impacts our quality of care and quality of life. (A6 #migrainechat ) @headachedoc #MHAM https://t.co/5lwz2IcTGw https://t.co/4hsOBJ5nIc |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @beth_morton: A3. I used to blame myself for my attacks more. I also thought I should be able to do more/push thru. I’m getting better about this. I think it comes from #migraine not being taken seriously or the idea it's *caused* by a personal shortcoming. That’s just not true. #MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @beth_morton: A5b. I think shifting language & images to reflect the true experience of people w/#migraine is an important first step. It’s not the only thing we need to do to address stigma, but it is something we can all do relatively easily. #MigraineChat |
| My Chronic Brain @mychronicbrain @smithbrainz @beth_morton Being an advocate doesn't have to look the same for everyone. We love that you've put your own spin on starting conversations and making information memorable! #MigraineChat |
| Me @Jstanthrnobdy RT @CoalitionCHAMP: @beth_morton A1. Happy Migraine in the Workplace day! #migraine partners have officially launched the Migraine at Work campaign, a project of @headachepolicy. Download resources to start conversations at work about #migrainedisease https://t.co/waXknAgi8J #MigraineChat #mham |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @MsRoniAnne: @beth_morton A5 - Yes the language we use when talking about #Migraine is very important. I say that I'm having a migraine attack and never use the word headache, instead I will use #head #pain when describing the symptoms of my migraine attack. #MigraineChat |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @beth_morton: A6a. As patients & advocates, pay attention to #MHAM activities this month. Incorporate them year-round. https://t.co/L4H233dWOI Don’t be afraid to tell your story. Continue to educate yourself about #migraine stigma so you recognize it & fight it. #MigraineChat |
| My Chronic Brain @mychronicbrain @MigraineMelon @beth_morton Agreed. #MigraineChat |
| Roni Jones(she/her)💉💉💉 @MsRoniAnne @beth_morton The last two times that I was in hospital, so many people would say, I used to have migraines when I was younger, but they went away. Or my sister has migraines. The S added on the end made me cringe every time. #MigraineChat |
 | Sarah @sarie_ellen RT @beth_morton: A6b. Show #migraine in its full spectrum, how disabling migraine can be, but also that many of us can still contribute w/better accommodations. Enlist more specialist and researchers to the field to ensure we’re working toward better treatments and treatment access. #MigraineChat |
| Angie Glaser @winedarkme @beth_morton A4. Keep repeating "Migraine is a disabling disease" over and over and over until we believe it individually and collectively. We can't do certain things sometimes and it's not our fault! A disease is not a punishment - health is not merit-based. #MigraineChat |
| Beth Morton @beth_morton Closing Thoughts (CT): can you share something you learned today? Do you have any questions about #migrainestigma we could answer after the chat? It’s a complex topic, feedback is welcome. Thanks for a great #MigraineChat! https://t.co/lfAGEf76Nz |
| Democracy Over Demagogues @freeandclear1 @beth_morton A6 #migrainechat. In my former career I was a disability advocate. Now I'm grateful for that experience because I am a bit inside the disability community. That means I learn about ALL kinds of #Ableism. Twitter makes connecting easier. |
| Beth Morton @beth_morton RT @CoalitionCHAMP: A6. CHAMP’s recent Shut the Door on Stigma #migraine symposium joined experts on disease #stigma & patient advocates. Newly formed #Stigma Advisory Council will begin work on a stigma intervention program asap. #MigraineChat #migraine #stigma |
| My Chronic Brain @mychronicbrain @Croomsky Oh that's interesting! We've always gotten better feedback with "attack" than "episodes". Perhaps there's a noticable difference between talking with healthcare providers and the general population. Or regionally. This is something to explore further as we advocate! #MigraineChat |
| Democracy Over Demagogues @freeandclear1 RT @mychronicbrain: Ditch the -s! Ditch the -s! Ditch the -s! #DitchTheS #MigraineChat |
| CoalitionCHAMP @CoalitionCHAMP @beth_morton Thank you everyone for allowing CHAMP and me to be a part of this important #MigraineChat. I really enjoyed being here. Happy National Migraine & Headache Awareness Month to everyone! |
| Bridget Walker @bwalker1314 @beth_morton A6 I think The efforts we are making help, but there are certainly areas where I see there can be an improvement. For example, there is seizure awareness taught in schools, and I think headache needs to be taught as well. #migrainechat |
 | D. Greene @Imdalegreene RT @beth_morton: A5a. I'm more intentional with my language, but tend not to correct people. My hope is modeling language will help it spread. #MigraineChat |
| Chronic night owl @OwlJourney @beth_morton A6. to address stigma around migraine,patients could share real stories of migraine and it's effects and impact to the public in movies and shows,also advocates and patients could do real ads instead of actors. To help break down barriers. #MigraineChat |
| Ody @OdyO11 @beth_morton A6: I think a misunderstanding of the biopsychosocial model that forgets about the biological part does harm not only for migraine, but other disorders, too, blaming patients' psyche - and leads to misunderstanding in the public eye. It would help to address that. #migrainechat |
| My Chronic Brain @mychronicbrain @smithbrainz @beth_morton "and feel better" is such a key part of this thinking. Because we do go to doctors. But we don't feel better. And that seems to play into many people's belief that we must therefore be faking for attention. #MigraineChat |
| Bridget Walker @bwalker1314 @beth_morton I think colleges and universities need to do a better job at marketing themselves to people with invisible diseases. I think the more public awareness effort that is made, perhaps the more consideration will be made for medical education programs. #MigraineChat |
| Beth Morton @beth_morton Thank you for sharing this. Dr. Shapiro also has this great video I wanted to link in an earlier tweet but couldn't squeeze in! #MigraineChat https://t.co/mbXCDUfOlh |
| My Chronic Brain @mychronicbrain @hawkeye2_ Oh wow! We're so glad you stopped by. Sending you love back and wishing you a good day at work! <3 #MigraineChat |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 @beth_morton I’m Tracy in the nyc suburbs. I have chronic migraines that often present with balance issues & vertigo. I have Trigeminal Neuralgia on the left side. #MigraineChat |
| My Chronic Brain @mychronicbrain @CoalitionCHAMP @beth_morton Thanks so much for coming! We're so grateful for the work you all are doing. Keep being a tireless advocate for Migraine! 💪#MigraineChat |
| CoalitionCHAMP @CoalitionCHAMP Thank you @beth_morton and @mychronicbrain for inviting CHAMP & its Advocacy Director, @megbuzby to be a part of the #stigma #migrainechat today. CHAMP's members have countless ways to get involved. https://t.co/dWAT1qfF5D & don't forget #MHAM https://t.co/znvoPSoKHr |
 | Cascadia Fire Has No Season @barkflight @beth_morton A5: I just call them migraines. The people I choose to tell understand what I mean. I think "migraine attack" may be helpful if someone doesn't understand how migraine can include other symptoms. #migraineChat |
| Chronic night owl @OwlJourney This,especially for some of rarer types that could put a student in danger. Teachers and students should learn.#MigraineChat |
| Dr. Alexandria Szeman: Award-Winning Author @Alexandria_SZ RT @CoalitionCHAMP: @beth_morton A6. Our Shut the Door on Stigma #migraine symposium joined experts on disease #stigma & patient advocates. We learned from other stigmatized diseases. Newly formed #Stigma Advisory Council will begin work on a stigma intervention program asap. #MigraineChat #migraine #stigma |
| illuminated void. Ali 🌸. @illuminatedvoid @beth_morton A6. Unfortunately these invisible illnesses (of which I have at least 2) are hard to accept. However, the stigma is not difficult to see! It affects those close to us and even ourselves. Being mindful of stigma and educating ourselves and others is a place to start #migrainechat |
| Beth Morton @beth_morton @CoalitionCHAMP Thank you so much for joining us today and sharing all the great work CHAMP and your partners are doing to stamp out stigma! #MigraineChat #MHAM #SowingTheSeeds |
 | 🧠 😎 @ChronicallyCope All of this! I am pretty laid back and creative but people see #migraine and make it me. |
| Migraine World Summit @MigraineSummit "If you've ever hidden the fact that you have migraine, it's probably because you felt judged by others who didn't understand the disease. Or you were concerned about losing your job, or an important relationship. That's what stigma feels like. " #migrainechat |
| Migraine World Summit @MigraineSummit "Not only does that affect how others view us and our disease, but it may also affect the treatment we may receive and even the funding dollars that migraine receives for research." -Paula Dumas, cofounder of the Summit and founder of @MigraineAgain #migrainechat |
| My Chronic Brain @mychronicbrain @CoalitionCHAMP @beth_morton @megbuzby Thank you for coming and offering insight and valuable resources! #MigraineChat |
| Beth Morton @beth_morton That hour flew by. I'll be going back to read and reply throughout the day and you should feel free to do the same as you feel up to it. I'll post a transcript later this week. Thanks, everyone! #MigraineChat |
| Roni Jones(she/her)💉💉💉 @MsRoniAnne @beth_morton A6 - The more that #Migraine is talked about, presented in a positive way, facts given so that the layperson can easily understand them. The less stigma we will see. People are naturally, by their very nature, afraid/fear what they don't understand. #MigraineChat |
| Beth Morton @beth_morton With a month between chats, I try to remind a few of the "regulars." But would you like to sign up for chat reminders (or stop getting them)? Sign up here: https://t.co/r8qaMONddk #MigraineChat |
| My Chronic Brain @mychronicbrain We're off for now! But thank you to @beth_morton for being a great moderator and to @CoalitionCHAMP for joining us! If you've just found this hashtag, please feel free to answer the questions and interact with others'! 💜 #MigraineChat https://t.co/7H8FcDq5L9 |
| My Chronic Brain @mychronicbrain Find ways to get involved in Migraine advocacy! From simple steps to the more complext, there's a place for you!👇 #MHAM |
 | Easter 💮 Jenn @jlms_qkw RT @MigraineSummit: Negative self-talk and blame is incredibly common in those with chronic illness, and can exacerbate almost any condition, especially those like migraine where stress is a powerful trigger. (A3 #migrainechat ) @migrainediva #MHAM https://t.co/4zSIXJSPrx |
| ChronicMigraine Girl 🌈✨🌈 she/her @migrainesallday @InfiniteKnot @beth_morton We should always be referred to someone else, a list of resources, pain center, therapists, something. Doctors throwing up their hands and saying that’s all we can do is not helping our outlook on our disease. #Migrainechat |
| Cascadia Fire Has No Season @barkflight RT @beth_morton: Thank you for sharing this. Dr. Shapiro also has this great video I wanted to link in an earlier tweet but couldn't squeeze in! #MigraineChat https://t.co/mbXCDUfOlh |
| Cascadia Fire Has No Season @barkflight RT @beth_morton: A4a. Remember #migraine is complex and disabling. Because it presents on a spectrum, we need to remind ourselves & others that our experience is unique. Comparing experiences with migraine isn’t fair. This goes for how we respond to treatments, cope w/attacks, etc. #MigraineChat https://t.co/iSK1f0wgEz |
| Ellie @MigraineEllie RT @CoalitionCHAMP: @beth_morton A6. Our Shut the Door on Stigma #migraine symposium joined experts on disease #stigma & patient advocates. We learned from other stigmatized diseases. Newly formed #Stigma Advisory Council will begin work on a stigma intervention program asap. #MigraineChat #migraine #stigma |
| Beth Morton @beth_morton @bhendykat These not small steps, so don't beat yourself up if both take practice (I'm kinda speaking to myself, because I'm still learning to do both, too!!). #MigraineChat |
| Beth Morton @beth_morton @OwlJourney @mychronicbrain @CoalitionCHAMP I'm thrilled you joined us! Mark your calendar for every first Monday of the month at 1p ET! #MigraineChat |
| Beth Morton @beth_morton @MsRoniAnne I go to Twitter's search window and type #MigraineChat, then when the results come up, I click "latest" and you should see all the tweets in which someone replied and used the hashtag (in reverse chronological order). Let me know if that doesn't make sense! |
| Beth Morton @beth_morton @HemingwayMuse It's wordy, but there's the trend toward person with migraine or person with migraine disease. That said, I think this also gets into person-first vs identity-first preferences, so it can be a personal choice. #MigraineChat https://t.co/vplGhDTe5k |
| Beth Morton @beth_morton @fortheother All great points! (Don't forget the #MigraineChat hashtag so others will see these!) |
| Beth Morton @beth_morton @fortheother And yes, #MHAM is meant to address all headache disorders and many people with headache - not migraine - are equally disabled and stigmatized. It's never "just" a headache. #MigraineChat |
| Beth Morton @beth_morton RT @CMLifeblog: @beth_morton A4. Keep repeating "Migraine is a disabling disease" over and over and over until we believe it individually and collectively. We can't do certain things sometimes and it's not our fault! A disease is not a punishment - health is not merit-based. #MigraineChat |
| Cascadia Fire Has No Season @barkflight RT @CMLifeblog: @beth_morton A4. Keep repeating "Migraine is a disabling disease" over and over and over until we believe it individually and collectively. We can't do certain things sometimes and it's not our fault! A disease is not a punishment - health is not merit-based. #MigraineChat |
 | Melanie Lou @Melanielou @beth_morton A1. I had to leave a job I truly used to love at a cellular phone company call center due to my migraine. The co is known for their strict attendance policy & I was more of a risk than an asset. My neurologist told me eventually that job would have killed me. #MigraineChat |
 | 😎 Lorraine 🤔 @cookfantoo #MigraineChat |
| Beth Morton @beth_morton @fortheother Sorry, I should clarify. The chat is #migraine focused. Our questions are geared toward migraine, but everyone is welcomed to join #MigraineChat. The month of June is Migraine and Headache Awareness Month, so you'll (hopefully) see a range of initiatives. |
 | TheRainbowBard🌈 @therainbowbard RT @MigraineSummit: "If you've ever hidden the fact that you have migraine, it's probably because you felt judged by others who didn't understand the disease. Or you were concerned about losing your job, or an important relationship. That's what stigma feels like. " #migrainechat |
| Melanie Lou @Melanielou I remember the first day I got sick at work, that trigger was a former Co worker using nail polish in a call center with little to no windows/ventilation. I will never forget that day & how I felt. |
| Beth Morton @beth_morton @Melanielou I'm so sorry. I wish every employer would consider ways to keep people with #migraine in their employment with the right accommodations. It's heartbreaking to leave jobs/careers that we love. I've been there. #MigraineChat |
| Angie Glaser @winedarkme RT @beth_morton: A6b. Show #migraine in its full spectrum, how disabling migraine can be, but also that many of us can still contribute w/better accommodations. Enlist more specialist and researchers to the field to ensure we’re working toward better treatments and treatment access. #MigraineChat |
| Angie Glaser @winedarkme RT @beth_morton: A6a. As patients & advocates, pay attention to #MHAM activities this month. Incorporate them year-round. https://t.co/L4H233dWOI Don’t be afraid to tell your story. Continue to educate yourself about #migraine stigma so you recognize it & fight it. #MigraineChat |
| Angie Glaser @winedarkme RT @migrainesallday: A3: A3: I am often really hard on myself when experiencing a migraine attack - especially if it causes me to miss work, social or family events. It definitely comes from society & the fact that for the most part, you can't physically see the amount of pain I'm in #migrainechat |
| Angie Glaser @winedarkme RT @migrainesallday: For some reason, a lot of people need "physical proof" that you're in pain. They call us hypochondriacs, so for the first year of living with migraine, I did think that it was all in my head or that it "wasn't that bad". Maybe just #believeus #migrainechat |
| Melanie Lou @Melanielou @beth_morton It winded up being a blessing in disguise because I got rehired by the mental health agency I worked for previously & they work really hard to accommodate me as much as they can. It helps that I get to order supplies for my division & can get low odor products. #MigraineChat |
| Beth Morton @beth_morton @ms_rothzch I hear you. Language alone won't always shift everyone's perception of migraine. What about the term #migraine disease? Do you think that holds any more weight? #MigraineChat |
 | Alexander @alpamo7 RT @beth_morton: Q2. When you think about how #migraine is portrayed by the public - in the media, in ads, etc. - what comes to mind? Do those images affect how you talk about migraine disease with friends and family, employers or co-workers? #MigraineChat |
| Alexander @alpamo7 RT @beth_morton: Let's see who is joining #MigraineChat today! I’m Beth and I’m moderating from Vermont where it has already been the Monday-est of Mondays! How's everyone else doing this 3rd day of #MHAM? #MigraineChat |
| Beth Morton @beth_morton @ms_rothzch Interesting points. Thanks for sharing that perspective! #MigraineChat |
 | Sheridan Ruiz @sheridanruiz About to tweet at @AlexVandermaas for #MigraineAwarenessMonth and she’s already in a #MigraineChat telling people what they need to know. |
| Beth Morton @beth_morton @ms_rothzch Fair enough! It is a language change being proposed in the migraine community, but I agree that it takes so getting used to. #MigraineChat |
| Bridget Walker @bwalker1314 RT @MigraineSummit: Eliminate the terms migraineur or migraine-type person. The 'migraine personality-type' of an uptight, type-A individual further contributes to stigma and implies that migraine is a personality flaw versus a genetic disease. (A5 #migrainechat ) #MHAM |
 | Migraine Strong - Eileen @MigraineStrong1 @beth_morton Shoot. #migrainechat |
| Beth Morton @beth_morton @Alexandria_SZ @CMLifeblog Me, three. Let's start a support group. #MigraineChat #MigraineChatSupport? 😉 |
 | grumpy nat @nathyssauro RT @CMLifeblog: @beth_morton A4. Keep repeating "Migraine is a disabling disease" over and over and over until we believe it individually and collectively. We can't do certain things sometimes and it's not our fault! A disease is not a punishment - health is not merit-based. #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 @beth_morton At the doctor with my son and can’t seem to remember to add #MigraineChat 🙄 |
| Beth Morton @beth_morton @CMLifeblog Or passed off as the butt of a joke - a husband giving a wife a migraine - used as a excuse to get out of something, a euphemism, etc. I agree, I have the same worries. #MigraineChat |
| Beth Morton @beth_morton @MigraineStrong1 It's okay, I made lovely graphics to go with each text question and forgot to add them to half the tweets. Ugh. Migraine brain in full force. Feel free to jump on and reply later. I won't pull/post the transcript until Wednesday-ish! #MigraineChat |
 | Rebecca @PyesMusings @beth_morton Oh hell yes. I feel like it’s my fault it’s happening, I could be better if I tried, and I should be able to ignore the migraine and work and be an infinitely patient parent. #migrainechat |
| Rebecca @PyesMusings @beth_morton Stigma+absurd cultural ideals re mothers, plus the weird emotional and cognitive distortions from the migraine itself. I try to remind myself that those thoughts are real but not true, and that my brain is fucking with me; it helps. #migrainechat |
| Rebecca @PyesMusings @beth_morton Besides what I said on Q3, I remind myself that people (incl me) want to believe that illness is a personal failing bc the alternative is that it can happen to anyone, no matter how “good” you are. Which is true. #migrainechat |
| Rebecca @PyesMusings @beth_morton Also, I tell myself migraine is a sign I have repressed magical powers #migrainechat (no idea what that gif says; is it Malayalam?) https://t.co/qDbsgU5q4m |
| Beth Morton @beth_morton An important point. #MigraineChat |
| Rebecca @PyesMusings @beth_morton I’ve been trying to think of an accurate semi-popular portrayal of migraine, and all that’s coming to mind is Marilla’s “sick headaches” in the Anne of Green Gables books. IIRC she had to go to bed with them, and there was no implication that she was slacking. #migrainechat |
 | Rachel Graves @rachel_x_graves @beth_morton I struggle to describe it to people who hear the word #migraine & immediately assume I have occasional terrible headaches. #MigraineChat |
 | Krista @Kristacatlady @OdyO11 @beth_morton Yes. Avoiding stress, eating clean, moving more, good sleep hygiene, etc may help a little sometimes, but unfortunately they often make little to no difference with chronic migraines. Most of us, I think, need a lot more aggressive treatments to combat them. #MigraineChat |
| Krista @Kristacatlady @sarie_ellen @beth_morton I am so sorry you feel this way. I can relate. It doesn't help that some people in he migraine community say things like " I have no choice but to push through." As if those of us who can't push through are making a choice to be disabled. #MigraineChat |
 | Parenting With Migraine @ParentWmigraine @beth_morton Yes we need to change the language!! And the change is happening. At the @MigraineSummit this year the speakers discussed how it’s important to refer to migraine as “migraine disease” and the symptoms as “A migraine attack”. #MigraineChat |
| Beth Morton @beth_morton @migrainekrista @sarie_ellen I feel this, too. I don't know what the answer is except that within the community we need more empathy. Everyone's experience is different. Migraine is disabling. Period. #MigraineChat |
 | CSBG @CheyenneSierraG RT @MigraineSummit: Migraine in the Workplace Awareness Day- How have accommodations helped you better manage your migraine disease at work? Check out this wonderful article by our founder, Paula Dumas! https://t.co/C9IXmnD3HC #MHAM #SowingTheSeeds @CoalitionCHAMP #migrainechat https://t.co/8BbCfNkGoO |
| Krista @Kristacatlady @beth_morton sorry I missed #MigraineChat. I felt good enough to leave the house and completely forgot. |
 | BrainlessBlogger🧠 @brainless_blog Q1: Yes, I have been discrimated against in the workplace. And many healthcare professionals didn't comprehend that level of pain every single day is a problem... as in a problem if not assisted with one rather doesn't want to exist |
| Beth Morton @beth_morton @Jan_Southern Ah, this sounds like something @joannakempner would say. Someone I didn't cite enough in today's #MigraineChat given the topic. |
| Beth Morton @beth_morton Read this a few times. It's important. #MigraineChat #MigraineStigma #MHAM #SowingTheSeeds |
| Beth Morton @beth_morton @migrainekrista I was looking for a <happy dance> gif but there are some weird ones, so I’ll just say, “Hooray!” Never apologize for missing #MigraineChat because you actually got out of the house! |
 | Australian and New Zealand Headache Society @AusNZHeadSoc RT @MigraineSummit: Migraine in the Workplace Awareness Day- How have accommodations helped you better manage your migraine disease at work? Check out this wonderful article by our founder, Paula Dumas! https://t.co/C9IXmnD3HC #MHAM #SowingTheSeeds @CoalitionCHAMP #migrainechat https://t.co/8BbCfNkGoO |
| Adele Jayde @hawkeye2_ RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
 | Lady Sharon @SharonofCamelot RT @MigraineSummit: "If you've ever hidden the fact that you have migraine, it's probably because you felt judged by others who didn't understand the disease. Or you were concerned about losing your job, or an important relationship. That's what stigma feels like. " #migrainechat |
 | Aparna R. @aparna_r_writer RT @migrainesallday: For some reason, a lot of people need "physical proof" that you're in pain. They call us hypochondriacs, so for the first year of living with migraine, I did think that it was all in my head or that it "wasn't that bad". Maybe just #believeus #migrainechat |
| Aparna R. @aparna_r_writer RT @beth_morton: A6b. Show #migraine in its full spectrum, how disabling migraine can be, but also that many of us can still contribute w/better accommodations. Enlist more specialist and researchers to the field to ensure we’re working toward better treatments and treatment access. #MigraineChat |
 | Noni @RhiannonCreasey RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
| Aparna R. @aparna_r_writer RT @OdyO11: @beth_morton A2: @beth_morton A2: I never saw the suffering that migraine actually means represented. It seemed to be trivialized, minimized. And it seemed to be seen as triggered by stress and maladaptive coping ("their own fault"). Blaming patients is always harmful. #migrainechat |
| Cascadia Fire Has No Season @barkflight RT @beth_morton: @Jan_Southern Ah, this sounds like something @joannakempner would say. Someone I didn't cite enough in today's #MigraineChat given the topic. |
| Aparna R. @aparna_r_writer RT @CMLifeblog: @beth_morton A2. Migraine is expressed in media as an annoyance, like 'oh, she's got another one of her migraines.' It makes me less confident about sharing my own experiences - I assume people will shrug it off (at best) or be annoyed and blame me (at worst.) #MigraineChat |
| Beth Morton @beth_morton @aparna_ramen That irony is not lost on any of us during #MigraineChat. That’s why it’s always okay to come late and add when you’re feeling up to it. I usually wait to generate a transcript for a day or two to catch everyone! |
| Angie Glaser @winedarkme RT @MigraineSummit: Negative self-talk and blame is incredibly common in those with chronic illness, and can exacerbate almost any condition, especially those like migraine where stress is a powerful trigger. (A3 #migrainechat ) @migrainediva #MHAM https://t.co/4zSIXJSPrx |
| Aparna R. @aparna_r_writer RT @CMLifeblog: @beth_morton A4. Keep repeating "Migraine is a disabling disease" over and over and over until we believe it individually and collectively. We can't do certain things sometimes and it's not our fault! A disease is not a punishment - health is not merit-based. #MigraineChat |
 | Tam @Tambelou RT @MigraineSummit: "If you've ever hidden the fact that you have migraine, it's probably because you felt judged by others who didn't understand the disease. Or you were concerned about losing your job, or an important relationship. That's what stigma feels like. " #migrainechat |
| Angie Glaser @winedarkme RT @MigraineSummit: "If you've ever hidden the fact that you have migraine, it's probably because you felt judged by others who didn't understand the disease. Or you were concerned about losing your job, or an important relationship. That's what stigma feels like. " #migrainechat |
| Angie Glaser @winedarkme RT @MigraineSummit: "Not only does that affect how others view us and our disease, but it may also affect the treatment we may receive and even the funding dollars that migraine receives for research." -Paula Dumas, cofounder of the Summit and founder of @MigraineAgain #migrainechat |
 | Mia @BreatheMia Yes! Love the phrasing “neurological meltdown”. |
| Aparna R. @aparna_r_writer RT @PyesMusings: @beth_morton I’ve been trying to think of an accurate semi-popular portrayal of migraine, and all that’s coming to mind is Marilla’s “sick headaches” in the Anne of Green Gables books. IIRC she had to go to bed with them, and there was no implication that she was slacking. #migrainechat |
| Angie Glaser @winedarkme RT @beth_morton: Thank you for sharing this. Dr. Shapiro also has this great video I wanted to link in an earlier tweet but couldn't squeeze in! #MigraineChat https://t.co/mbXCDUfOlh |
 | Ayn.ayyy.zed.eye @nazb12 RT @migrainesallday: For some reason, a lot of people need "physical proof" that you're in pain. They call us hypochondriacs, so for the first year of living with migraine, I did think that it was all in my head or that it "wasn't that bad". Maybe just #believeus #migrainechat |
| Aparna R. @aparna_r_writer @beth_morton A2. Too often I’ve seen migraine used as a plot device in books. As someone trying to get out of doing something. It’s an awful stereotype that really contributes to migraine stigma. We need better rep showing the real severity & dysfunction of this disease. #migrainechat |
| Aparna R. @aparna_r_writer @migrainesallday I gaslighted myself constantly. It’s caused me to ignore my own body & mind, often to my detriment. Surely it wasn’t that bad if everyone said it wasn’t. But no, it really was and is that bad. #migrainechat |
| Bridget Walker @bwalker1314 RT @beth_morton: Read this a few times. It's important. #MigraineChat #MigraineStigma #MHAM #SowingTheSeeds |
| Aparna R. @aparna_r_writer @beth_morton A6. Drs should be nuanced in the way they speak of triggers, and avoid blaming patients. Stress may be a trigger, but it’s often one of many, and often not under our control. Be ok with saying “I don’t know” rather than blaming the patient for not getting better. #MigraineChat |
| Aparna R. @aparna_r_writer @beth_morton A1. I’ve encountered resentment & suspicion in all these places. Resentment from drs that I had attacks so frequently & didn’t get better. Suspicion at work that it couldn’t be as bad as I said it was because my supervisor was able to work through headaches. #migrainechat |
| Beth Morton @beth_morton @TracySt You're always welcome to go back and answer the questions (don't forget the #MigraineChat hashtag). I won't post the transcript for a couple days. See you in July! |
 | Jasmin Roussy @jasmin_roussy RT @MigraineSummit: "If you've ever hidden the fact that you have migraine, it's probably because you felt judged by others who didn't understand the disease. Or you were concerned about losing your job, or an important relationship. That's what stigma feels like. " #migrainechat |
| Jasmin Roussy @jasmin_roussy RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
 | Matthew Robbins, MD @mrobbinsmd RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
| Matthew Robbins, MD @mrobbinsmd RT @MigraineSummit: Eliminate the terms migraineur or migraine-type person. The 'migraine personality-type' of an uptight, type-A individual further contributes to stigma and implies that migraine is a personality flaw versus a genetic disease. (A5 #migrainechat ) #MHAM |
 | RuthK @desertlibrarian RT @MigraineSummit: Eliminate the terms migraineur or migraine-type person. The 'migraine personality-type' of an uptight, type-A individual further contributes to stigma and implies that migraine is a personality flaw versus a genetic disease. (A5 #migrainechat ) #MHAM |
| RuthK @desertlibrarian RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
 | Jessica @shupik RT @MigraineSummit: "If you've ever hidden the fact that you have migraine, it's probably because you felt judged by others who didn't understand the disease. Or you were concerned about losing your job, or an important relationship. That's what stigma feels like. " #migrainechat |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 #MigraineChat this is so true. If i see another person running in the fields smiling on a “migraine” day i feel like my pain is being underestimated. |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 All of this. #MigraineChat |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 #MigraineChat |
 | Nadia. @18_nadia_18 RT @MigraineSummit: "If you've ever hidden the fact that you have migraine, it's probably because you felt judged by others who didn't understand the disease. Or you were concerned about losing your job, or an important relationship. That's what stigma feels like. " #migrainechat |
| Nadia. @18_nadia_18 RT @MigraineSummit: "Not only does that affect how others view us and our disease, but it may also affect the treatment we may receive and even the funding dollars that migraine receives for research." -Paula Dumas, cofounder of the Summit and founder of @MigraineAgain #migrainechat |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @migrainesallday: A4: A4: I notice that I get "little" bit more empathy when I use Migraine Attack versus just Migraine. For me, that's how I'm able to explain the severity of it. If there's time, I'll often explain my symptoms and use as many visual words as I can. #migrainechat |
| NYCresistance 🥦❤️🪴💘🌈🍇❤️ @Tracy330507 RT @freeandclear1: I totally agree. #migrainechat A5. I don't have migraineS, I have a genetic neurological disease called Migraine. Going chronic made this quite apparent, there are few days when I experience no symptoms at all. |
 | Kim Ward @mik_draw RT @MigraineSummit: In this interview, Robert Shapiro, MD discusses the myriad of ways in which stigma drastically impacts our quality of care and quality of life. (A6 #migrainechat ) @headachedoc #MHAM https://t.co/5lwz2IcTGw https://t.co/4hsOBJ5nIc |
 | Denise @goldfishies RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
 | breea (3AM edition) ⸆⸉ @breeabaddie #ChronicLife #chronicpain #MigraineChat #pwME #pwEDS . . . Does anyone else experience postural migraines? Like legit when I stand or move I feel like heavy pounding but if I lie still I’m almost ok? |
 | Lisa Slevin Pierce @lisa3pierce RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
 | Michele Turpin @micturp #flexibility is key! #MigraineInTheWorkplace ⚡️#accomodations don’t have to mean loss of productivity! ❤️ |
 | Nicole Carbon @nmcarbon RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
| Nicole Carbon @nmcarbon RT @MigraineSummit: Eliminate the terms migraineur or migraine-type person. The 'migraine personality-type' of an uptight, type-A individual further contributes to stigma and implies that migraine is a personality flaw versus a genetic disease. (A5 #migrainechat ) #MHAM |
| Nicole Carbon @nmcarbon RT @MigraineSummit: "If you've ever hidden the fact that you have migraine, it's probably because you felt judged by others who didn't understand the disease. Or you were concerned about losing your job, or an important relationship. That's what stigma feels like. " #migrainechat |
 | s df @samdf10 RT @beth_morton: Q5. How intentional are you with the language you use to describe #migraine: Q5. How intentional are you with the language you use to describe #migraine: e.g. do you say you are having a migraine attack vs. migraine or migraine headache? Do you explain your word choices or let others pick up on it? Is shifting language important? #MigraineChat |
| s df @samdf10 RT @CoalitionCHAMP: A3. Can come from what we call self #stigma - The internalized belief that migraine is not worthy or effective medical treatment or accommodations by society. #migraine #migrainechat |
 | PinkPistachio @PinkPistachio13 #MigraineChat #Migraineawareness #migrainemonth .... https://t.co/PnvZL9m1jg |
 | joy lee johnson @johnson8142joy RT @beth_morton: Q3. Do you ever engage in negative self-talk when you have a #migraine attack? What are some examples? Where do you think it comes from? #MigraineChat (BTW -totally forget I had made images - better late than never.) https://t.co/4awu672W11 |
 | Sammy Chen @apelmanis101 RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
| Beth Morton @beth_morton #MigraineChat |
| Beth Morton @beth_morton #MigraineChat |
| Beth Morton @beth_morton #MigraineChat |
| Beth Morton @beth_morton #MigraineChat |
| Beth Morton @beth_morton I'm tagging this conversation in the #MigraineChat so it gets captured in our transcript and others can see it... |
| Beth Morton @beth_morton #MigraineChat |
| Beth Morton @beth_morton #MigraineChat |
| illuminated void. Ali 🌸. @illuminatedvoid RT @CMLifeblog: @beth_morton A4. Keep repeating "Migraine is a disabling disease" over and over and over until we believe it individually and collectively. We can't do certain things sometimes and it's not our fault! A disease is not a punishment - health is not merit-based. #MigraineChat |
 | Aria Rockford @Aria_Rockford RT @MigraineSummit: "If you've ever hidden the fact that you have migraine, it's probably because you felt judged by others who didn't understand the disease. Or you were concerned about losing your job, or an important relationship. That's what stigma feels like. " #migrainechat |
 | Andrea Fisher @mamafish0316 RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
 | natasha.m.g. @natashamg4 @beth_morton I think of a perceived link between suppressed feelings & #migraine, or emotional sensitivity at the core of it. Even in “When Nietzsche Wept” by Irwin D. Yalom it’s implied that #migraine can be cured by psychoanalysis #MigraineChat |
| Migraine Strong - Eileen @MigraineStrong1 @MigraineSummit #Migrainechat |
 | JUNIQUE @winged_things RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
 | MakeThisLookAwesome♿️ @MakeThisLookAwe RT @beth_morton: I'm tagging this conversation in the #MigraineChat so it gets captured in our transcript and others can see it... |
| Krista @Kristacatlady @joannakempner @Jan_Southern @beth_morton #MigraineChat I think this would be the case for many. But honestly there are no policies that make me able to work. When I had less migraine days a month (I am thinking maybe 12ish?), this would have helped. |
| Krista @Kristacatlady @joannakempner @Jan_Southern @beth_morton Once the disease progressed, anythng that required my mind to be more active for very long triggered a migraine. Thinking, talking, concentrating, figuring things out, conversing, etc trigger a migraine. So I have to remain very passive mentally most of the time. #Migrainechat |
| Krista @Kristacatlady RT @beth_morton: Read this a few times. It's important. #MigraineChat #MigraineStigma #MHAM #SowingTheSeeds |
 | Rachel Sussman @RachelxSussman The self-blame cycle is a real and devastating part of living with migraine. |
| Beth Morton @beth_morton @migrainekrista @joannakempner @Jan_Southern If you think of the spectrum of migraine, there was a period where better work accommodations would have maybe kept me traditionally employed longer. #MigraineChat |
| Beth Morton @beth_morton @migrainekrista @joannakempner @Jan_Southern But like Krista, I'm at a point where I feel like the whole social support system needs to be reworked to allow me to continue contributing to society with chronic daily #migraine. #MigraineChat |
| Democracy Over Demagogues @freeandclear1 RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
| Democracy Over Demagogues @freeandclear1 RT @MigraineSummit: Eliminate the terms migraineur or migraine-type person. The 'migraine personality-type' of an uptight, type-A individual further contributes to stigma and implies that migraine is a personality flaw versus a genetic disease. (A5 #migrainechat ) #MHAM |
| Angie Glaser @winedarkme RT @aparna_ramen: @beth_morton A6. Drs should be nuanced in the way they speak of triggers, and avoid blaming patients. Stress may be a trigger, but it’s often one of many, and often not under our control. Be ok with saying “I don’t know” rather than blaming the patient for not getting better. #MigraineChat |
 | 🌻J.Ann @joyannheart RT @aparna_ramen: @beth_morton A6. Drs should be nuanced in the way they speak of triggers, and avoid blaming patients. Stress may be a trigger, but it’s often one of many, and often not under our control. Be ok with saying “I don’t know” rather than blaming the patient for not getting better. #MigraineChat |
| Beth Morton @beth_morton RT @CoalitionCHAMP: Thank you @beth_morton and @mychronicbrain for inviting CHAMP & its Advocacy Director, @megbuzby to be a part of the #stigma #migrainechat today. CHAMP's members have countless ways to get involved. https://t.co/dWAT1qfF5D & don't forget #MHAM https://t.co/znvoPSoKHr |
 | Zest 2 Recruitment @Zest2Rec Do you suffer the odd #headache? Hi-tech gadget will be used to relieve severe headaches under raft of new NHS treatments https://t.co/gg5BlNBdG7 via @TelegraphSci #medical #science #tech #wellness #migrainechat #wednesdaymotivation #Zest2Rec #Recruitment #RajNasta |
 | Peggy Stumhofer @MyGraineHope @beth_morton We also need to talk about how we treat each other. I was doing advocacy work when someone w/ cluster said I couldn’t be in constant pain b/c I was at the event. They had great wisdom about advocacy but discounted my pain b/c mine was different from theirs. #stigma #migrainechat |
| Beth Morton @beth_morton @MyGraineHope Yes, this has come up a lot recently - the comparing of health/suffering w/in our community & what people can/can't do. #Migraine is a spectrum. So is how people live with it. Those two things are correlated but not the same for everyone. We need to remember empathy #MigraineChat |
 | Teri Kirchner @limegreenteri RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
| Teri Kirchner @limegreenteri So true |
 | Amy @tweebirdie RT @MigraineSummit: "If you've ever hidden the fact that you have migraine, it's probably because you felt judged by others who didn't understand the disease. Or you were concerned about losing your job, or an important relationship. That's what stigma feels like. " #migrainechat |
| natasha.m.g. @natashamg4 I love Zumba but had to give it up as it was a #MigraineTrigger I now do circuit full body workout and it helps me reduce frequency & intensity of #Migraine It even sometimes helps abort a non-hormonal attack #MigraineChat |
| Beth Morton @beth_morton @therapywindow Late to the party and looks like you had a huge response! I have chronic migraine. Happy to help whenever possible. If interested, I lead a chat the first Monday of every month with a rotating topic focused on something migraine related (#MigraineChat). We'd love to have you! |
 | Lynda Hillebrenner @LyndaHil4 RT @MigraineSummit: Ditch the "s" in Migraines. Migraine disease is a permanent condition; it does not solely exist when one is in the middle of an attack. While talking of a specific episode, refer to them as migraine attacks or flares. (A5 #migrainechat) https://t.co/9AwdP9V2aU |
#migrainechat content from Twitter.