#paccr Transcript

Healthcare social media transcript of the #paccr hashtag. (). See #paccr Influencers.

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Regina Holliday @reginaholliday
@sharonfterry @Lilly_COI @gfrias @MightyCasey @takmad we have a hashtag #paccr
Jeri Burtchell @fingohead
RT @ReginaHolliday: @sharonfterry @Lilly_COI @gfrias @MightyCasey @takmad we have a hashtag #paccr
Tom Krohn @takmad
RT @ReginaHolliday: @sharonfterry @Lilly_COI @gfrias @MightyCasey @takmad we have a hashtag #paccr
Jeri Burtchell @fingohead
@alsadvocacy raise your hand so I can find you. #paccr
Lilly Trials @lillytrials
We're talking Patients at the Center of Clinical Research today with some amazing patient advocates and industry pros. Follow hashtag #PACCR
Casey Quinlan @mightycasey
At @Lilly_COI talking Patients at Center of Clinical Research today w/some advocates + industry pros. Follow along! #paccr
Jon Bausman @jonbausman
Excited to kick off the #paccr conference! Looking forward to hearing the patients perspective in drug development.
ALS Advocacy @alsadvocacy
Valuing diverse perspectives... Yes! #PACCR
Gilles Frydman @gfry
#PACCR just started. Already hearing that Lilly is in listening mode, ready to learn from patients.
Lilly Trials @lillytrials
RT @JonBausman: Excited to kick off the #paccr conference! Looking forward to hearing the patients perspective in drug development.
Gilles Frydman @gfry
#PACCR: Patient At the Center of Clinical Research meeting at Eli Lilly, w/ e-patient rockstars incl. @AfternoonNapper @ReginaHolliday
Lilly Trials @lillytrials
RT @gfry: #PACCR just started. Already hearing that Lilly is in listening mode, ready to learn from patients.
Regina Holliday @reginaholliday
@FingoHead describes herself as the canary in the coal mine #paccr
Sarah E. Kucharski @afternoonnapper
RT @gfry: #PACCR: Patient At the Center of Clinical Research meeting at Eli Lilly, w/ e-patient rockstars incl. @AfternoonNapper @ReginaHol…
Sharon F. Terry @sharonfterry
RT @gfry: #PACCR just started. Already hearing that Lilly is in listening mode, ready to learn from patients.
Sarah E. Kucharski @afternoonnapper
Kicking off the morning at Eli Lilly w/ @Lilly_COI team & colleagues to workshop clinical trials process & focus more on patients. #PACCR
Casey Quinlan @mightycasey
Just told the assembled multitude that #pharma should view e-patients as their partners in shifting FDA from "stop" to "go" ... #paccr
Lilly Trials @lillytrials
Patient advocate Gary Poteat says he'd like to change the perception that #clinicaltrials are a "Hail Mary." #PACCR #patients
Sarah E. Kucharski @afternoonnapper
Pt comment: we need to move beyond the belief that clinical trials are only for the hopeless. @Lilly_COI #PACCR
Jeri Burtchell @fingohead
Gary Poteat: clinical trials should not be just a hail Mary last resort. #paccr
Gilles Frydman @gfry
The amazing Gary & Susan Poteat introduction at #PACCR: SmartPatients members w/ personal experience with clinical trials, seen as best care
ALS Advocacy @alsadvocacy
RT @FingoHead: Gary Poteat: clinical trials should not be just a hail Mary last resort. #paccr
Jon Bausman @jonbausman
Hearing patient advocates stories and why they do what they do at the #paccr conference.
Casey Quinlan @mightycasey
RT @FingoHead: Gary Poteat: clinical trials should not be just a hail Mary last resort. #paccr
Shantal Feltham @stirispres
Feeling humbled while listening to the introductions at #PACCR and hearing how clinical research changed their lives.
Jeri Burtchell @fingohead
#paccr @ReginaHolliday full access to real time records empowers patients.
Sarah E. Kucharski @afternoonnapper
Going through brief introductions, one can hear a quaver in pt voices—it's hard to tell our stories, both failures & successes. #PACCR
Jeri Burtchell @fingohead
RT @StirisPres: Feeling humbled while listening to the introductions at #PACCR and hearing how clinical research changed their lives.
Regina Holliday @reginaholliday
"Today is going to jilt my perspective in a good way" #paccr
Lilly Trials @lillytrials
Looking forward to announcing the winners of the #CTDesign challenge later this morning. Stay tuned! http://t.co/3McAgLScF5 #PACCR
Shantal Feltham @stirispres
"Do studies that patients want done. If u can improve quality of life in the meantime, that would be awesome." via @AfternoonNapper #PACCR
Jon Bausman @jonbausman
RT @ReginaHolliday "Today is going to jilt my perspective in a good way" #paccr
Jeri Burtchell @fingohead
@AfternoonNapper do trials that patients want done & address issues like geographic isolation. #paccr
Lilly Trials @lillytrials
RT @StirisPres: Feeling humbled while listening to the introductions at #PACCR and hearing how clinical research changed their lives.
Casey Quinlan @mightycasey
RT @StirisPres: "Do studies that patients want done. If u improve quality of life too, that would be awesome." @AfternoonNapper #paccr
Jeri Burtchell @fingohead
@gmatczak #paccr there is passion on both sides to make trials better.
Casey Quinlan @mightycasey
If the stars align, the people in the room with me right now are gonna make history, change healthcare. Booyah. #paccr
Shantal Feltham @stirispres
One goal for today is learning how to incorporate the patient voice throughout the entire lifecycle of drug development. #PACCR
Regina Holliday @reginaholliday
"I am first and foremost an artist." ~@gfry #paccr
Jon Bausman @jonbausman
RT @MightyCasey If the stars align, the people in the room with me right now are gonna make history, change healthcare. Booyah. #paccr
Casey Quinlan @mightycasey
RT @FingoHead: @gmatczak "there is passion on both sides to make trials better." #paccr
Regina Holliday @reginaholliday
RT @MightyCasey: If the stars align, the people in the room with me right now are gonna make history, change healthcare. Booyah. #paccr
Shai X. @shaiunfiltered
RT @ReginaHolliday: "I am first and foremost an artist." ~@gfry #paccr
Sarah Lance @sarahlance
RT @ReginaHolliday: "I am first and foremost an artist." ~@gfry #paccr
Lilly Trials @lillytrials
RT @MightyCasey: If the stars align, the people in the room with me right now are gonna make history, change healthcare. Booyah. #paccr
Regina Holliday @reginaholliday
@gfry telling us about the history of ACOR and the growth of the second iteration SmartPatients #paccr
Regina Holliday @reginaholliday
"We are in charge of own health, ultimately we must live with the consequence.' WE MUST ADVOCATE FOR OURSELVES. #paccr
Sarah E. Kucharski @afternoonnapper
Topics arising in conversations already? Trust. Collaboration. Trust. Innovation. Trust. Information. Did I mention trust? #paccr
Casey Quinlan @mightycasey
RT @AfternoonNapper: Topics arising already? Trust. Collaboration. Trust. Innovation. Trust. Information. Did I mention trust? #paccr
Regina Holliday @reginaholliday
OOHHH, we are going to hear about eConsent #paccr
Lilly Trials @lillytrials
RT @StirisPres: "Do studies that patients want done. If u improve quality of life too, that would be awesome." @AfternoonNapper #paccr
Jeri Burtchell @fingohead
Lilly team tells me to "keep freaking ppl out" with social media and clinical trials conversation. #paccr
Sarah E. Kucharski @afternoonnapper
Regarding consent: I want to hear from any pt who has ever NOT signed the consent form and/or specific clauses therein. #paccr
Regina Holliday @reginaholliday
Lilly member shares the overdose his Mother had in cancer journey and I watch his eyes, I see the memory of terror. I cry with him #paccr
Regina Holliday @reginaholliday
RT @FingoHead: Lilly team tells me to "keep freaking ppl out" with social media and clinical trials conversation. #paccr
Sarah E. Kucharski @afternoonnapper
@FingoHead I can tell you that you've already inspired me to "freak ppl out" by sharing more abt experiences. #paccr
Jeri Burtchell @fingohead
RT @ReginaHolliday: "Today is going to jilt my perspective in a good way" #paccr
Regina Holliday @reginaholliday
RT @AfternoonNapper: @FingoHead I can tell you that you've already inspired me to "freak ppl out" by sharing more abt experiences. #paccr
Casey Quinlan @mightycasey
+1=> RT @AfternoonNapper: @FingoHead I can tell you you've already inspired me to "freak ppl out" by sharing more abt experiences. #paccr
Jeri Burtchell @fingohead
#paccr @RebarInter how can we make clinical trials a better product for patients?
Jeri Burtchell @fingohead
RT @AfternoonNapper: @FingoHead I can tell you that you've already inspired me to "freak ppl out" by sharing more abt experiences. #paccr
Jon Bausman @jonbausman
"What we want to know is, what is useful to you [the patients]. If you can tell us, partner with us, that would be meaningful to us." #paccr
Regina Holliday @reginaholliday
"We usually gather the data useful for FDA, not for patients. We need to get the data that is useful to patients" #paccr
anne townsend @aftjae
@BMC_series #Interviews reveal Y people take prt in health research #MedicalEthics http://t.co/eNeakk7RcZ Pt "To get better care" #paccr MT
Regina Holliday @reginaholliday
RT @FingoHead: #paccr @RebarInter how can we make clinical trials a better product for patients?
anne townsend @aftjae
RT @FingoHead: #paccr @RebarInter how can we make clinical trials a better product for patients?
Casey Quinlan @mightycasey
WRITE A BETTER NARRATIVE for patients. Oh hellz yes. #paccr
Sarah E. Kucharski @afternoonnapper
New favorite word: imagineering. #paccr
Christine Bienvenu @suissepatiente
RT @ReginaHolliday: "We are in charge of own health, ultimately we must live with the consequence.' WE MUST ADVOCATE FOR OURSELVES. #paccr
Casey Quinlan @mightycasey
Me too! => RT @AfternoonNapper: New favorite word: imagineering. #paccr
Jon Bausman @jonbausman
"I want to hear the mismatches, I want to hear the stories. Then we can put them together." #paccr
Regina Holliday @reginaholliday
You can't join a clinical trial if you can't get access to your medical record. #paccr #bluebutton
Regina Holliday @reginaholliday
RT @JonBausman: "I want to hear the mismatches, I want to hear the stories. Then we can put them together." #paccr
Sharon F. Terry @sharonfterry
Barry is looking for the friction in the clinical trial system to fire up his imagineering. Send us at #paccr @lilly_COI your 'friction'!
Jeri Burtchell @fingohead
News flash: pharma ppl are real and passionate to affect change. they are patients too with their own stories to bear. #paccr
Jeri Burtchell @fingohead
@alsadvocacy clinical trials ARE a hail Mary for ALS pts and need to be a FAST hail Mary. #paccr
Lilly Trials @lillytrials
RT @AfternoonNapper: Topics arising already? Trust. Collaboration. Trust. Innovation. Trust. Information. Did I mention trust? #paccr
ALS Advocacy @alsadvocacy
RT @FingoHead: @alsadvocacy clinical trials ARE a hail Mary for ALS pts and need to be a FAST hail Mary. #paccr
Christine Bienvenu @suissepatiente
I LOVE those kinds of days!! Enjoy "@ReginaHolliday: "Today is going to jilt my perspective in a good way" #paccr"
Regina Holliday @reginaholliday
Clinical trials in ALS have to be a very fast Hail Mary. Most my rolladex is gown now. ~ @alsadvocacy #paccr
Jon Bausman @jonbausman
I am most excited to meet so many of you, the patient advocates, today at #paccr
ALS Advocacy @alsadvocacy
RT @sharonfterry: Barry is looking for the friction in the clinical trial system to fire up his imagineering. Send us at #paccr @lilly_COI…
Sarah E. Kucharski @afternoonnapper
Hey, @rareadvocates, @fastercures, @SDFatPhRMA, @lisamjarvis — I hope you'll tune in to this conversation w/ @Lilly_COI. #paccr
Stephanie Fischer @rarepov
@AfternoonNapper @RareAdvocates @fastercures @lisamjarvis @Lilly_COI I am following on Twitter. #Paccr looks like dynamic & important convo
Stephanie Fischer @rarepov
RT @FingoHead: @alsadvocacy clinical trials ARE a hail Mary for ALS pts and need to be a FAST hail Mary. #paccr
Stephanie Fischer @rarepov
RT @AfternoonNapper: Pt comment: we need to move beyond the belief that clinical trials are only for the hopeless. @Lilly_COI #PACCR
John @joltdude
RT @ReginaHolliday: You can't join a clinical trial if you can't get access to your medical record. #paccr #bluebutton
Tracy Zervakis @chiaritracy
EPatient Panelist- Patients at the Center of Clinical Trials Workshop @ Eli Lilly in Indy.Great Group. #Bensfriends #PACCR #RareDisease
PurpleForCourage @purple4courage
RT @AfternoonNapper: Pt comment: we need to move beyond the belief that clinical trials are only for the hopeless. @Lilly_COI #PACCR
Lilly Trials @lillytrials
Help us with our #clinicaltrials "imagineering." Tell us where you think the most friction exists. Tag with #PACCR. #patients
██████████ @haroldsmith3rd
RT @ReginaHolliday: You can't join a clinical trial if you can't get access to your medical record. #paccr #bluebutton
Sarah E. Kucharski @afternoonnapper
Sharing our stories abt not being able to get into a clinical trial (despite our best efforts to do so). #paccr
Tracy Zervakis @chiaritracy
Eclectic Group of E Patients, Patient Advocates, Researchers &, Eli Lilly employees working to improve clinical trials for patients. #PACCR
Jon Bausman @jonbausman
Hearing the stories of the patient advocates on our panel today...powerful. #paccr
Regina Holliday @reginaholliday
In can be really hard to get access to a clinical trial. #paccr
indra sahril @indrasahril
RT @ReginaHolliday: In can be really hard to get access to a clinical trial. #paccr
Lilly Trials @lillytrials
Even I as a pro researcher and journalist could not access clinical trial info. What does that say for everyone else? @MightyCasey #PACCR
Tom Krohn @takmad
RT @sharonfterry: Barry is looking for the friction in the clinical trial system to fire up his imagineering. Send us at #paccr @lilly_COI…
Stephanie Fischer @rarepov
RT @Lilly_COI: Help us with our #clinicaltrials "imagineering." Tell us where you think the most friction exists. Tag with #PACCR. #patients
Lilly Trials @lillytrials
.@AfternoonNapper is pointing out the barriers to participation that #clinicaltrial schedules & locations presented for her. #PACCR
Jeri Burtchell @fingohead
#paccr @AfternoonNapper would throw herself at research to make progress in understanding her rare disorder, but no takers.
Lilly Trials @lillytrials
.@MightyCasey says she's get a barcode tatooed to her neck if it meant she didn't have to fill out another dang form. :) #PACCR
Jon Bausman @jonbausman
"I went on record saying I would get a bar code tattooed to my neck if I didn't have to fill out a darn form." - @mightycasey #paccr
Lilly Trials @lillytrials
RT @FingoHead: #paccr @AfternoonNapper would throw herself at research to make progress in understanding her rare disorder, but no takers.
Jeri Burtchell @fingohead
#paccr @mightyCasey will get a bar code tattooed to her neck if it meant not filling out forms.
Shantal Feltham @stirispres
Px jokingly teling us they would b willing to tattoo a barcode on their neck if it reduced forms they have 2 keep filling out forms #PACCR
Jon Bausman @jonbausman
Geographic location is a major barrier to clinical trials #paccr
Tracy Zervakis @chiaritracy
What are the barriers to Clinical Studies? #PACCR #bensfriends #raredisease
Jeri Burtchell @fingohead
RT @JonBausman: Geographic location is a major barrier to clinical trials #paccr
Regina Holliday @reginaholliday
RT @ChiariTracy: What are the barriers to Clinical Studies? #PACCR #bensfriends #raredisease
Sharon F. Terry @sharonfterry
MT @fingohead: #paccr @MightyCasey will get a bar code tattooed to her neck if it meant not filling out forms. @Reg4ALL provides a solution.
Jon Bausman @jonbausman
Even if a trial fails, you learned from it. Now you know something you didn't before. - @AfternoonNapper #paccr
Lilly Trials @lillytrials
"No one ever asks you if want to be de-identified or not." ~@ReginaHoliday. Many #raredisease #patients excluded. They're "too rare." #PACCR
Sharon F. Terry @sharonfterry
.@ReginaHoliday Noone asks you if you want to be deidentifiable. It's why we created @Reg4ALL as a tool to set sharing and access. #paccr
Rebar Interactive @rebarinter
.@reginaholliday No one even asks if clinical trial participants want to be de-identified. Some people don't want to. #PACCR
Lilly Trials @lillytrials
#Informedconsent is about us (the researcher) informing you about what we want. How do we change it to reflect what #patients want? #PACCR
Lilly Trials @lillytrials
RT @JonBausman: Even if a trial fails, you learned from it. Now you know something you didn't before. - @AfternoonNapper #paccr
CureLauncher @curelauncher
RT @AfternoonNapper: Pt comment: we need to move beyond the belief that clinical trials are only for the hopeless. @Lilly_COI #PACCR
Rebar Interactive @rebarinter
@sharonfterry says we need dynamic and granular consent #PACCR
Regina Holliday @reginaholliday
RT @JonBausman: Geographic location is a major barrier to clinical trials #paccr
Regina Holliday @reginaholliday
RT @RebarInter: @sharonfterry says we need dynamic and granular consent #PACCR
Jeri Burtchell @fingohead
RT @RebarInter: @sharonfterry says we need dynamic and granular consent #PACCR
Regina Holliday @reginaholliday
#paccr past 24 months of onset very few ALS patients are allowed on a trial - @alsadvocacy
Gilles Frydman @gfry
Informed consent (IC) is telling you what we get from you. Missing is reverse IC, where you'd tell what you want from trial sponsor #paccr
Lilly Trials @lillytrials
If your disease is 24 mths past onset you're often excluded from #clinicaltrials. Many #patients not diagnosed that soon @alsadvocacy #PACCR
Stephanie Fischer @rarepov
RT @Lilly_COI: RT @FingoHead: #paccr @AfternoonNapper would throw herself at research to make progress in understanding her rare disorder,…
Elin Silveous @elinsilveous
.@Lilly_COI Include details on possible benefits, risks/harms and unknowns. #PACCR
Regina Holliday @reginaholliday
#paccr not being able to find out what is going on during a clinical trial is a real problem - @alsadvocacy
Lilly Trials @lillytrials
RT @ReginaHolliday: #paccr not being able to find out what is going on during a clinical trial is a real problem - @alsadvocacy
Genetic Alliance @geneticalliance
RT @ElinSilveous: .@Lilly_COI Include details on possible benefits, risks/harms and unknowns. #PACCR
Genetic Alliance @geneticalliance
RT @RebarInter: @sharonfterry says we need dynamic and granular consent #PACCR
Regina Holliday @reginaholliday
RT @ElinSilveous: .@Lilly_COI Include details on possible benefits, risks/harms and unknowns. #PACCR
Genetic Alliance @geneticalliance
RT @Lilly_COI: RT @ReginaHolliday: #paccr not being able to find out what is going on during a clinical trial is a real problem - @alsadvoc…
Sarah E. Kucharski @afternoonnapper
Shout out to #MedX and the "dream big" philosophy for changing healthcare, specifically clinical trials, from @alsadvocacy. #paccr
Tracy Zervakis @chiaritracy
What do you think about informed consent? http://t.co/SvrmrFuv5Y #PACCR #BENSFRIENDS #RAREDISEASE #alanROYGBIV
Elin Silveous @elinsilveous
.@Lilly_COI Also, participant access to the clinical trial information/data and a promise that it is reported via #OpenAccess. #PACCR
Sarah E. Kucharski @afternoonnapper
Mention of an information science problem re: clinical trials data management... is this an opportunity for #medlibs? @pfanderson #paccr
Regina Holliday @reginaholliday
#paccr in ALS we have more registries than Carter has liver pills - @alsadvocacy
Jon Bausman @jonbausman
"If you can't cure me, learn from me." @alsadvocacy's mother #paccr
Sarah E. Kucharski @afternoonnapper
"The FDA is protecting me to death," says @alsadvocacy re: her mother's opinion. #paccr
Jon Bausman @jonbausman
"My mother felt like the FDA was 'protecting me' to death." - @alsadvocacy #paccr
Regina Holliday @reginaholliday
RT @AfternoonNapper: "The FDA is protecting me to death," says @alsadvocacy re: her mother's opinion. #paccr
Sarah E. Kucharski @afternoonnapper
"If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Casey Quinlan @mightycasey
"The FDA is protecting us to death." Hard, sad truth. #paccr #s4pm HT @ALSadvocacy
Alan Brewington @abrewi3010
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Rebar Interactive @rebarinter
RT @AfternoonNapper: "The FDA is protecting me to death," says @alsadvocacy re: her mother's opinion. #paccr
Sarah E. Kucharski @afternoonnapper
Re: pts connecting w/ researchers/doctors... I mine articles, studies for email addresses & reach out via @FMDChat's newsletter. #paccr
Tracy Zervakis @chiaritracy
Phases of Clinical Trials. http://t.co/2SlaRsEang #paccr #bensfriends #RareDisease
P. F. Anderson @pfanderson
@AfternoonNapper Absolutely! #medlibs intimately involved with #datacuration #datasci #datamgmt #escience etc #paccr @mandosally
Faisal Qureshi @fqure
RT @MightyCasey: "The FDA is protecting us to death." Hard, sad truth. #paccr #s4pm HT @ALSadvocacy
Elin Silveous @elinsilveous
Sadly true. “.@ReginaHolliday: You can't join a clinical trial if you can't get access to your medical record. #paccr #bluebutton”
Chronically Fearless @spoonieswift91
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Bob Green @wecan4health
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Lilly Trials @lillytrials
RT @RebarInter: @sharonfterry says we need dynamic and granular consent #PACCR
Jon Bausman @jonbausman
Such beautiful words from @alsadvocacy's mother, "If you can't cure me, learn from me." #paccr
Jody Schoger @jodyms
Yes! RT @AfternoonNapper "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Stephanie Fischer @rarepov
RT @AfternoonNapper: "The FDA is protecting me to death," says @alsadvocacy re: her mother's opinion. #paccr
Tracy Zervakis @chiaritracy
Have you ever joined a clinical trial? Why or why not? Tell me your story. #PACCR #bensfriends #RareDisease
Lisa Jarvis @lisamjarvis
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Elin Silveous @elinsilveous
“.@ChiariTracy: Phases of Clinical Trials. http://t.co/hXrRxkL47v #paccr #bensfriends #RareDisease” #CER #Health #pharma
Lilly Trials @lillytrials
Getting kicked out or delayed from starting #clinicaltrials due to technicalities or paperwork issues can be devastating #PACCR #patients
Elin Silveous @elinsilveous
If you're following #PACCR you might also be interested in new #PCORI funding awards for individuals, small groups http://t.co/LHzKaMmq76
Sarah E. Kucharski @afternoonnapper
Don't fear pts using social media, educate them abt the implications w/in the context of a clinical trial, says @fingohead. YES! #paccr
Lynne Nguyen @disparityreport
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Lynne Nguyen @disparityreport
RT @Lilly_COI: RT @ReginaHolliday: #paccr not being able to find out what is going on during a clinical trial is a real problem - @alsadvoc…
Sarah E. Kucharski @afternoonnapper
Shout out to @patientslikeme re: surveys, trial development, pt community via @fingohead. #paccr
vidscrip @vidscrip
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Tracy Zervakis @chiaritracy
EPatients use Social Media to connect for better Illness information, support and understanding that we find from Med. Providers. #paccr
Lilly Trials @lillytrials
A big "Thank You" to the #PACCR Patient Panel for sharing their stories and teaching us so much today. http://t.co/OkRnp0eBiL
Sarah E. Kucharski @afternoonnapper
HA! Invent a great MS drug, package it such that MS pts can't open it = #fail. Remember not to cut corners. #paccr
Elin Silveous @elinsilveous
RT @Lilly_COI: RT @ReginaHolliday: #paccr not being able to find out what is going on during a clinical trial is a real problem - @alsadvoc…
P. F. Anderson @pfanderson
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
P. F. Anderson @pfanderson
RT @AfternoonNapper: Pt comment: we need to move beyond the belief that clinical trials are only for the hopeless. @Lilly_COI #PACCR
Lilly Trials @lillytrials
Up next, we'll announce the winners of Clinical Trial Visualization Redesign Challenge... http://t.co/x5VyME2PiV #PACCR
P. F. Anderson @pfanderson
RT @RebarInter: .@reginaholliday No one even asks if clinical trial participants want to be de-identified. Some people don't want to. #PACCR
CureLauncher @curelauncher
RT @Lilly_COI: Up next, we'll announce the winners of Clinical Trial Visualization Redesign Challenge... http://t.co/x5VyME2PiV #PACCR
Sarah E. Kucharski @afternoonnapper
"Innovation is urgent: bcause the pt is waiting, not at the end of the journey, but at every step along the way."—Eli Lilly banner #paccr
Casey Quinlan @mightycasey
RT @Lilly_COI: Up next, we'll announce the winners of Clinical Trial Visualization Redesign Challenge... http://t.co/7jBqnFt6p5 #paccr
Casey Quinlan @mightycasey
RT @AfternoonNapper: Innovation is urgent: pt is waiting, not at end of journey, but at every step along the way.—Eli Lilly banner #paccr
Jeri Burtchell @fingohead
RT @ElinSilveous: If you're following #PACCR you might also be interested in new #PCORI funding awards for individuals, small groups http:/…
Jeri Burtchell @fingohead
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Rebar Interactive @rebarinter
.@takmad is about to announce the winner of the Clinical Trial Visualization challenge. *drumroll* #PACCR
CureLauncher @curelauncher
@AfternoonNapper YES! This is why CureLauncher exists! To match patient to trial not trial to patient & advocate thru whole journey. #paccr
Lilly Trials @lillytrials
http://t.co/Ly0noPA7Ye gets about 98,000,000 pageviews monthly. Almost half are #patients or caregivers looking for studies. ~@takmad #PACCR
ALS Advocacy @alsadvocacy
RT @MightyCasey: "The FDA is protecting us to death." Hard, sad truth. #paccr #s4pm HT @ALSadvocacy
Jon Bausman @jonbausman
Here comes the reveal of the Clinical Trial Visualization Redesign challenge.... #paccr
ALS Advocacy @alsadvocacy
RT @RebarInter: .@reginaholliday No one even asks if clinical trial participants want to be de-identified. Some people don't want to. #PACCR
Regina Holliday @reginaholliday
RT @RebarInter: .@takmad is about to announce the winner of the Clinical Trial Visualization challenge. *drumroll* #PACCR
Stephanie Fischer @rarepov
RT @Lilly_COI: Up next, we'll announce the winners of Clinical Trial Visualization Redesign Challenge... http://t.co/x5VyME2PiV #PACCR
Regina Holliday @reginaholliday
RT @JonBausman: Here comes the reveal of the Clinical Trial Visualization Redesign challenge.... #paccr
Lilly Trials @lillytrials
The purpose of #CTDesign challenge was to learn how to present information about #clinicaltrials in more patient-friendly way. #PACCR
Sarah E. Kucharski @afternoonnapper
MT @Lilly_COI http://t.co/wgcTYHfz21 gets abt 98,000,000 pageviews/month, abt 1/2 pts or caregivers looking for studies. ~@takmad #paccr
Shantal Feltham @stirispres
Patients usually don't find out about clinical trials through their doctor. They find #clinicaltrials on the internet. #PACCR #in
Stephanie Fischer @rarepov
Drumroll! MT @Lilly_COI: Up next, we'll announce winners of Clinical Trial Visualization Redesign Challenge... http://t.co/rH99wiilkA #PACCR
Tracy Zervakis @chiaritracy
What do patients want to see in Clinical Trials? Does it answer your questions in a user friendly format? #PACCR #Bensfriends #RareDisease
ALS Advocacy @alsadvocacy
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Regina Holliday @reginaholliday
RT @ChiariTracy: What do patients want to see in Clinical Trials? Does it answer your questions in a user friendly format? #PACCR #Bensfrie…
Gilles Frydman @gfry
@takmad presenting winners of the Clinical Trial Visualization Redesign Challenge. http://ctdesign.challenge.post #paccr
EHR Evolution @ehr_evolution
RT @ChiariTracy: What do patients want to see in Clinical Trials? Does it answer your questions in a user friendly format? #PACCR #Bensfrie…
Regina Holliday @reginaholliday
RT @gfry: @takmad presenting winners of the Clinical Trial Visualization Redesign Challenge. http://ctdesign.challenge.post #paccr
Jeri Burtchell @fingohead
RT @AfternoonNapper: Shout out to @patientslikeme re: surveys, trial development, pt community via @fingohead. #paccr
Gretchen Turner @gretchenturner
RT @gfry: @takmad presenting winners of the Clinical Trial Visualization Redesign Challenge. http://ctdesign.challenge.post #paccr
Regina Holliday @reginaholliday
Healthcare has almost been forgotten when it comes to user experience and good design ~"Spread the Cure" team #paccr
Lilly Trials @lillytrials
And the winners of the Clinical Trial Visualization Redesign Challenge are...http://t.co/v6HuOY3GTD Congratulations to all! #PACCR
Shantal Feltham @stirispres
RT @Lilly_COI: Up next, we'll announce the winners of Clinical Trial Visualization Redesign Challenge... http://t.co/x5VyME2PiV #PACCR
Tracy Zervakis @chiaritracy
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Sarah E. Kucharski @afternoonnapper
Are Hassan Seguias and Shajah Junco on Twitter? @Lilly_COI? #paccr
Tracy Zervakis @chiaritracy
RT @AfternoonNapper: "The FDA is protecting me to death," says @alsadvocacy re: her mother's opinion. #paccr
Regina Holliday @reginaholliday
RT @AfternoonNapper: Are Hassan Seguias and Shajah Junco on Twitter? @Lilly_COI? #paccr
Jon Bausman @jonbausman
Interested in the next @Lilly_COI sponsored challenge? Learn more and register here: http://t.co/H7RvfxuV79 #paccr
Eli Lilly & Company @lillypad
RT @Lilly_COI: A big "Thank You" to the #PACCR Patient Panel for sharing their stories and teaching us so much today. http://t.co/OkRnp0eBiL
CureLauncher @curelauncher
@Lilly_COI We are thrilled 2 have won the Popular Choice Award! Thank you everyone who voted! #PACCR #clinicaltrials http://t.co/MoKF5PSE1U
Brian Norris @geek_nurse
RT @gfry: @takmad presenting winners of the Clinical Trial Visualization Redesign Challenge. http://ctdesign.challenge.post #paccr
Lilly Trials @lillytrials
RT @JonBausman: Interested in the next @Lilly_COI sponsored challenge? Learn more and register here: http://t.co/vGKwtNcEBc #paccr
Brian Norris @geek_nurse
RT @Lilly_COI: http://t.co/Ly0noPA7Ye gets about 98,000,000 pageviews monthly. Almost half are #patients or caregivers looking for studies.…
ALS Advocacy @alsadvocacy
RT @ReginaHolliday: #paccr in ALS we have more registries than Carter has liver pills - @alsadvocacy
Regina Holliday @reginaholliday
RT @cureLauncher: @Lilly_COI We are thrilled 2 have won the Popular Choice Award! Thank you everyone who voted! #PACCR #clinicaltrials htt…
Sharon Driver @sdriver_tweet
RT @AfternoonNapper: "Innovation is urgent: bcause the pt is waiting, not at the end of the journey, but at every step along the way."—Eli …
Symplur Hashtags @healthhashtags
New Health Hashtag: #paccr http://t.co/xfTW2YHlim Thank you @ReginaHolliday #hcsm "Patient at the Center of Clinical trials Workshop"
Regina Holliday @reginaholliday
RT @healthhashtags: New Health Hashtag: #paccr http://t.co/xfTW2YHlim Thank you @ReginaHolliday #hcsm "Patient at the Center of Clinical tr…
SusanMcClure @bigsciencemedia
RT @AfternoonNapper: "Innovation is urgent: bcause the pt is waiting, not at the end of the journey, but at every step along the way."—Eli …
Sarah E. Kucharski @afternoonnapper
@healthhashtags I was JUST thinking about tagging you guys! @ReginaHolliday #paccr
Erik Pupo @erikpupo
RT @healthhashtags: New Health Hashtag: #paccr http://t.co/xfTW2YHlim Thank you @ReginaHolliday #hcsm "Patient at the Center of Clinical tr…
Sharon F. Terry @sharonfterry
The suspense is over, we were a judge. Winner of clinical trial design site competition: Spread the Cure. #paccr http://t.co/5f0JdO5yzp
M. Brock Moorer @fevertheory
RT @gfry: Informed consent (IC) is telling you what we get from you. Missing is reverse IC, where you'd tell what you want from trial spons…
Sharon Driver @sdriver_tweet
RT @Lilly_COI: http://t.co/Ly0noPA7Ye gets about 98,000,000 pageviews monthly. Almost half are #patients or caregivers looking for studies.…
Stephanie Fischer @rarepov
RT @JonBausman: Interested in the next @Lilly_COI sponsored challenge? Learn more and register here: http://t.co/H7RvfxuV79 #paccr
Regina Holliday @reginaholliday
#theWalkingGallery in the house at #paccr http://t.co/eIA1ixiopp
John @joltdude
RT @ReginaHolliday: #theWalkingGallery in the house at #paccr http://t.co/eIA1ixiopp
couragesings @couragesings
RT @ReginaHolliday: #theWalkingGallery in the house at #paccr http://t.co/eIA1ixiopp
Lilly Trials @lillytrials
Lookin' good! RT @ReginaHolliday: #theWalkingGallery in the house at #paccr http://t.co/crLyyFKFLo
Lilly Trials @lillytrials
"What if #patients were viewed as collaborators in drug development, instead of sources of data?" ~@takmad #PACCR #clinicaltrials
Gilles Frydman @gfry
What if patients were viewed as collaborators in drug development, not sources of data? #paccr
Lilly Trials @lillytrials
"What if #patients were viewed as the heroes of #clinicalresearch? How would we do things differently?" ~@takmad #PACCR
Regina Holliday @reginaholliday
What if geographic distance, data access and technical language were not barriers to patient participation in clinical trials? #paccr
Regina Holliday @reginaholliday
RT @gfry: What if patients were viewed as collaborators in drug development, not sources of data? #paccr
Gilles Frydman @gfry
What if patients... considered clinical trials as just another part of their HC treatment options #paccr
Daniel Barth-Jones @dbarthjones
Is it ethical to remove rare/genetic diseases within De-identified Data to protect against re-identification? http://t.co/cGRxe9Kzv5 #PACCR
Lilly Trials @lillytrials
MT @ReginaHolliday: What if geography, data access & technical language were not barriers 2 patient participation in #clinicaltrials? #paccr
Peter Gilbert @peterngilbert
RT @gfry: What if patients were viewed as collaborators in drug development, not sources of data? #paccr
Kathleen S. Fliss @medexofme
RT @gfry: What if patients... considered clinical trials as just another part of their HC treatment options #paccr
Regina Holliday @reginaholliday
RT @dbarthjones: Is it ethical to remove rare/genetic diseases within De-identified Data to protect against re-identification? http://t.co/…
Elin Silveous @elinsilveous
“.@Lilly_COI: "What if #patients were viewed as collaborators in drug development..." ~@takmad #PACCR #clinicaltrials” #PCORI .@PCORI #CER
Gilles Frydman @gfry
What if patients... could bring in their own data and determine, in real time, if they are a match for eligibility? #paccr
Jennifer Celio @jmcelio
RT @gfry: What if patients were viewed as collaborators in drug development, not sources of data? #paccr
Regina Holliday @reginaholliday
RT @gfry: What if patients... could bring in their own data and determine, in real time, if they are a match for eligibility? #paccr
Gilles Frydman @gfry
What if patients... could explore what it'll be like to be in a study BEFORE visiting the trial site? #paccr
Lilly Trials @lillytrials
RT @gfry: What if patients... could bring in their own data and determine, in real time, if they are a match for eligibility? #paccr
Patric Kane Williams @ithealthnonprof
RT @dbarthjones: Is it ethical to remove rare/genetic diseases within De-identified Data to protect against re-identification? http://t.co/…
Regina Holliday @reginaholliday
Do you no how amazing it is to be livetweeting a a roundtable at @Lilly_COI? A few years ago there is no way this would be allowed #paccr
ALS Advocacy @alsadvocacy
RT @Lilly_COI: RT @gfry: What if patients... could bring in their own data and determine, in real time, if they are a match for eligibility…
Whitney Zatzkin @mswz
RT @Lilly_COI: MT @ReginaHolliday: What if geography, data access & technical language were not barriers 2 patient participation in #clinic…
Regina Holliday @reginaholliday
RT @gfry: What if patients... could explore what it'll be like to be in a study BEFORE visiting the trial site? #paccr
Elin Silveous @elinsilveous
RT @ReginaHolliday: Do you no how amazing it is to be livetweeting a a roundtable at @Lilly_COI? A few years ago there is no way this would…
Jeri Burtchell @fingohead
@Lilly_COI we need the voice of the patient in development. #paccr
Gilles Frydman @gfry
What if patients... received study information in a form that was easy to understand, in their own context #paccr
Casey Quinlan @mightycasey
WERD => RT @gfry: What if patients... could explore what it'll be like to be in a study BEFORE visiting the trial site? #paccr
ALS Advocacy @alsadvocacy
RT @Lilly_COI: "What if #patients were viewed as the heroes of #clinicalresearch? How would we do things differently?" ~@takmad #PACCR
Regina Holliday @reginaholliday
RT @FingoHead: @Lilly_COI we need the voice of the patient in development. #paccr
Caren Kunst @zorgenzo
RT @FingoHead: @Lilly_COI we need the voice of the patient in development. #paccr
ALS Advocacy @alsadvocacy
RT @ReginaHolliday: Do you no how amazing it is to be livetweeting a a roundtable at @Lilly_COI? A few years ago there is no way this would…
Jenn Sprung @mindthecompany
RT @gfry: What if patients were viewed as collaborators in drug development, not sources of data? #paccr
Daniel Barth-Jones @dbarthjones
Orphan Drugs treat diseases w/ < 200,000 people in U.S., yet 7,000 rare diseases affect ~30 million Americans (1 in 10 people). #PACCR
Jeri Burtchell @fingohead
RT @gfry: What if patients... could bring in their own data and determine, in real time, if they are a match for eligibility? #paccr
Jenn Sprung @mindthecompany
RT @gfry: What if patients... received study information in a form that was easy to understand, in their own context #paccr
Jenn Sprung @mindthecompany
RT @FingoHead: @Lilly_COI we need the voice of the patient in development. #paccr
Jerry Matczak @gmatczak
RT @MightyCasey: RT @FingoHead: @gmatczak "there is passion on both sides to make trials better." #paccr
Trish Whetzel @trishwhetzel
RT @sharonfterry: The suspense is over, we were a judge. Winner of clinical trial design site competition: Spread the Cure. #paccr http://t…
Jenn Sprung @mindthecompany
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Jenn Sprung @mindthecompany
RT @AfternoonNapper: Don't fear pts using social media, educate them abt the implications w/in the context of a clinical trial, says @fingo…
Regina Holliday @reginaholliday
Haven't heard much about the use of archimedes modeling in conjunction with clinical trials... #paccr
Regina Holliday @reginaholliday
RT @dbarthjones: Orphan Drugs treat diseases w/ < 200,000 people in U.S., yet 7,000 rare diseases affect ~30 million Americans (1 in 10 peo…
MDA Portland @pdxmda
RT @AfternoonNapper: "If you can't cure me, learn from me," says @alsadvocacy re: her mother. THIS IS MY NEW BATTLE CRY. #paccr
Caren Kunst @zorgenzo
RT @ReginaHolliday: Haven't heard much about the use of archimedes modeling in conjunction with clinical trials... #paccr
Gilles Frydman @gfry
@jackandraka I am sitting at #paccr with Sharon Terry :-) I read about #freethedata yesterday. #empowerpatients #openaccess
CureLauncher @curelauncher
@ReginaHolliday Great! Our team has developed an UNBIASED,simple language,personal approach w/resources where to find free transport! #paccr
Regina Holliday @reginaholliday
Eligibility requirements form a big blob of free text ~ #paccr
Regina Holliday @reginaholliday
RT @gfry: @jackandraka I am sitting at #paccr with Sharon Terry :-) I read about #freethedata yesterday. #empowerpatients #openaccess
Lilly Trials @lillytrials
RT @gfry: What if patients... could explore what it'll be like to be in a study BEFORE visiting the trial site? #paccr #clinicaltrials
Regina Holliday @reginaholliday
#Bluebutton is a nice structure of data... API could use this to match pts to trials ~ #paccr
Lilly Trials @lillytrials
.@takmad is discussing our recent partnership with @Pfizer and @Novartis. Read more about it here: http://t.co/3NSJ1Ci7SB #PACCR
ALS Advocacy @alsadvocacy
Hearing some good things re information usability for those seeking Clin trials... And mult Pharma cos making it happen together. #PACCR
Regina Holliday @reginaholliday
So many great symbols of access #paccr http://t.co/NOdcd94Uv6
Regina Holliday @reginaholliday
RT @Lilly_COI: .@takmad is discussing our recent partnership with @Pfizer and @Novartis. Read more about it here: http://t.co/3NSJ1Ci7SB #P…
Gilles Frydman @gfry
@jackandraka Will do! We're both at meeting where large pharma company pushing patient-centric vision across. (R)evolution. #paccr
Rebar Interactive @rebarinter
RT @Lilly_COI: .@takmad is discussing our recent partnership with @Pfizer and @Novartis. Read more about it here: http://t.co/3NSJ1Ci7SB #P…
Leonard Kish @leonardkish
RT @ReginaHolliday: #Bluebutton is a nice structure of data... API could use this to match pts to trials ~ #paccr
Regina Holliday @reginaholliday
.@Lilly_COI @pfizer @Novartis are collaborating. Where @cerner @athenahealth and @McKesson are collaborating. Open data here we come #paccr
Regina Holliday @reginaholliday
RT @gfry: @jackandraka Will do! We're both at meeting where large pharma company pushing patient-centric vision across. (R)evolution. #paccr
Lilly Trials @lillytrials
Our @Lilly_COI imagineer @poppabirdy is explaining the importance of transitioning from "yes-but" to "yes-and." #PACCR
Regina Holliday @reginaholliday
RT @Lilly_COI: Our @Lilly_COI imagineer @poppabirdy is explaining the importance of transitioning from "yes-but" to "yes-and." #PACCR
ALS Advocacy @alsadvocacy
RT @Lilly_COI: Our @Lilly_COI imagineer @poppabirdy is explaining the importance of transitioning from "yes-but" to "yes-and." #PACCR
Regina Holliday @reginaholliday
Lilly imagineer says his mother thought she was being asked to be a Guinea pig. #paccr
Cancer for Christmas @cancerforxmas
Winners of Clinical Trial Visualization Redesign competition http://t.co/PR5tq7hkUF HT @Lilly_COI #paccr #s4pm #hcsm http://t.co/jwjdxylQfx
Shantal Feltham @stirispres
#Clinicaltrials are not for guinea pigs & are not a last resort.They're opportunities to own and participate in your healthcare #paccr #in
Tracy Zervakis @chiaritracy
Social Media & E Patients = 1 Clinical Trials & Medical Industry = 0 #PACCR #Bensfriends #RareDisease
Jerry Matczak @gmatczak
So much promise for #Bluebutton data to be used to identify #clinicaltrials options for #patients @Lilly_COI #doingit #paccr
Lilly Trials @lillytrials
.@poppabirdy describes the #informedconsent document his mother received for a #Parkinsons trial as "not very human." #PACCR #clinicaltrials
Casey Quinlan @mightycasey
+1,000,000 => RT @ChiariTracy: Social Media & E Patients = 1 Clinical Trials & Medical Industry = 0 #Bensfriends #RareDisease #paccr
Conor Caffrey @concaff
RT @ReginaHolliday: Haven't heard much about the use of archimedes modeling in conjunction with clinical trials... #paccr
Sarah E. Kucharski @afternoonnapper
Mention of World Diabetes Day in the discussion of making clinical trials more patient focused. Shout out #dsma! #paccr
Genetic Alliance @geneticalliance
RT @gfry: @jackandraka I am sitting at #paccr with Sharon Terry :-) I read about #freethedata yesterday. #empowerpatients #openaccess
Regina Holliday @reginaholliday
If you routinely work at a standing desk or an easel, it is a special kind of torture to stay seated at a round table. #paccr
Lilly Trials @lillytrials
RT @AfternoonNapper: Mention of World Diabetes Day in the discussion of making clinical trials more patient focused. Shout out #dsma! #paccr
Regina Holliday @reginaholliday
#BigBlueTest saves lives. 10 tests = $5 donation by @diabeteshf 2 support ppl w #diabetes in need: http://t.co/zMpkfC44fL #paccr
ALS Advocacy @alsadvocacy
@Lilly_COI @poppabirdy I'm really liking what l'm seeing re patient having tools to build a patient-productive Clin trial experience. #PACCR
Regina Holliday @reginaholliday
Patient Communities: "Oh my, I am not alone in this wheel chair." ~ #paccr
Jorge Scheirer @infomedoc
RT @ReginaHolliday: #Bluebutton is a nice structure of data... API could use this to match pts to trials ~ #paccr
ACRO @acrohealth
.@gfry What could that look like, specifically? #paccr
ACRO @acrohealth
RT @gfry: What if patients... could explore what it'll be like to be in a study BEFORE visiting the trial site? #paccr
Casey Quinlan @mightycasey
LOVING what I'm seeing from @poppabirdy at @Lilly_COI meeting on improving patient UX in clinical trials. #paccr
ACRO @acrohealth
RT @alsadvocacy: Hearing some good things re information usability for those seeking Clin trials... And mult Pharma cos making it happen to…
ACRO @acrohealth
RT @dbarthjones: Orphan Drugs treat diseases w/ < 200,000 people in U.S., yet 7,000 rare diseases affect ~30 million Americans (1 in 10 peo…
cAMP Öther @campother
RT @Lilly_COI: http://t.co/Ly0noPA7Ye gets about 98,000,000 pageviews monthly. Almost half are #patients or caregivers looking for studies.…
Tracy Zervakis @chiaritracy
RT @StirisPres: #Clinicaltrials are not for guinea pigs & are not a last resort.They're opportunities to own and participate in your health…
ACRO @acrohealth
.@FingoHead @Lilly_COI Yes, absolutely. Patients need to feel they are part of the investment and the solution. #paccr
ALS Advocacy @alsadvocacy
RT @MightyCasey: LOVING what I'm seeing from @poppabirdy at @Lilly_COI meeting on improving patient UX in clinical trials. #paccr
Regina Holliday @reginaholliday
I love all the #bluebutton references in this presentation #paccr
Conor Caffrey @concaff
RT @dbarthjones: Is it ethical to remove rare/genetic diseases within De-identified Data to protect against re-identification? http://t.co/…
Regina Holliday @reginaholliday
RT @MightyCasey: LOVING what I'm seeing from @poppabirdy at @Lilly_COI meeting on improving patient UX in clinical trials. #paccr
ALS Advocacy @alsadvocacy
RT @ReginaHolliday: I love all the #bluebutton references in this presentation #paccr
Conor Caffrey @concaff
RT @ReginaHolliday: What if geographic distance, data access and technical language were not barriers to patient participation in clinical …
Rebar Interactive @rebarinter
Agree RT @MightyCasey: LOVING what I'm seeing from @poppabirdy at @Lilly_COI meeting on improving patient UX in clinical trials. #paccr
Sarah E. Kucharski @afternoonnapper
@ACROhealth @gfry Re: exploring being a trial before going to trial site — Yelp for clinical trials? #paccr
Lilly Trials @lillytrials
RT @gmatczak: So much promise for #Bluebutton data to be used to identify #clinicaltrials options for #patients @Lilly_COI #doingit #paccr
Jerry Matczak @gmatczak
RT @StirisPres: #Clinicaltrials are not for guinea pigs & are not a last resort.They're opportunities to own and participate in your health…
Caren Kunst @zorgenzo
RT @ReginaHolliday: .@Lilly_COI @pfizer @Novartis are collaborating. Where @cerner @athenahealth and @McKesson are collaborating. Open dat…
ALS Advocacy @alsadvocacy
RT @AfternoonNapper: @ACROhealth @gfry Re: exploring being a trial before going to trial site — Yelp for clinical trials? #paccr
Sarah E. Kucharski @afternoonnapper
We are prone to sharing our experiences, storytelling, reviewing...why wouldn't we review a clinical trial process? #paccr
Gilles Frydman @gfry
@ACROhealth help us create this patient-centric vision. It can only happen in a partnership, like everything else in HC #paccr
Jerry Matczak @gmatczak
RT @AfternoonNapper: @ACROhealth @gfry Re: exploring being a trial before going to trial site — Yelp for clinical trials? #paccr
Regina Holliday @reginaholliday
RT @gfry: @ACROhealth help us create this patient-centric vision. It can only happen in a partnership, like everything else in HC #paccr
Sarah E. Kucharski @afternoonnapper
All this info abt what a trial may or may not be like is great — but it doesn't address fact that pts learn nothing abt themselves. #paccr
Regina Holliday @reginaholliday
RT @AfternoonNapper: We are prone to sharing our experiences, storytelling, reviewing...why wouldn't we review a clinical trial process? #p…
Regina Holliday @reginaholliday
RT @Lilly_COI: RT @gmatczak: So much promise for #Bluebutton data to be used to identify #clinicaltrials options for #patients @Lilly_COI €¦
Regina Holliday @reginaholliday
RT @AfternoonNapper: All this info abt what a trial may or may not be like is great — but it doesn't address fact that pts learn nothing ab…
Richard Vaughn MD @rvaughnmd
RT @ReginaHolliday: If you routinely work at a standing desk or an easel, it is a special kind of torture to stay seated at a round table. …
Sarah E. Kucharski @afternoonnapper
How many agreements, disclaimers, consent forms do you sign w/o ever even reading? #paccr
Regina Holliday @reginaholliday
@AfternoonNapper I love the @traitwise method, show me where I stand in the larger data group #paccr
Regina Holliday @reginaholliday
RT @AfternoonNapper: How many agreements, disclaimers, consent forms do you sign w/o ever even reading? #paccr
Sarah E. Kucharski @afternoonnapper
Understanding risks, benefits, etc. doesn't take into account pt desperation. Risk=death? Fine. Gonna happen anyway. #paccr
Casey Quinlan @mightycasey
Why not clinical trial info analogous to "Up to Date" ... for PATIENTS? #paccr
Casey Quinlan @mightycasey
@AfternoonNapper Tru dat. Life is guaranteed to be 100% fatal. #paccr
Casey Quinlan @mightycasey
RT @AfternoonNapper: How many agreements, disclaimers, consent forms do you sign w/o ever even reading?<= more than I wanna count! #paccr
ALS Advocacy @alsadvocacy
RT @AfternoonNapper: Understanding risks, benefits, etc. doesn't take into account pt desperation. Risk=death? Fine. Gonna happen anyway. …
Sarah E. Kucharski @afternoonnapper
@MightyCasey Admittedly I've hit a bit of a bitter note w/in myself. Every now & then someone steals my hope. #paccr
Regina Holliday @reginaholliday
RT @AfternoonNapper: Understanding risks, benefits, etc. doesn't take into account pt desperation. Risk=death? Fine. Gonna happen anyway. …
Casey Quinlan @mightycasey
@AfternoonNapper Darlin' grrl, I'm amazed at your equanimity in the face of "who the **** knows?" #paccr
Lilly Trials @lillytrials
MT @AfternoonNapper: this info abt what a trial may be like is great, but doesn't address fact that pts learn nothing abt themselves.#paccr
ALS Advocacy @alsadvocacy
RT @gfry: What if patients were viewed as collaborators in drug development, not sources of data? #paccr
Sarah E. Kucharski @afternoonnapper
@alsadvocacy @gfry It would be lovely to be thought of as more than a data source! But need ethical convo re: researchers' views. #paccr
Manny Hernandez @askmanny
RT @ReginaHolliday: #BigBlueTest saves lives. 10 tests = $5 donation by @diabeteshf 2 support ppl w #diabetes in need: http://t.co/zMpkfC44…
Sarah E. Kucharski @afternoonnapper
What happens, what are pros/cons of researchers beginning to see their subjects as people? #paccr
ALS Advocacy @alsadvocacy
RT @AfternoonNapper: @alsadvocacy @gfry It would be lovely to be thought of as more than a data source! But need ethical convo re: research…
Sarah E. Kucharski @afternoonnapper
If data sources become people, how does the outcome of the study fare? (Playing a bit of devil's advocate here...) #paccr
Inspire @teaminspire
RT @gmatczak: So much promise for #Bluebutton data to be used to identify #clinicaltrials options for #patients @Lilly_COI #doingit #paccr
Ilana @ilanadesigns
RT @Lilly_COI Winners of the Clinical Trial Visualization Redesign Challenge are...http://t.co/Sqm5CqyPq2 Congratulations to all! #PACCR
Lilly Trials @lillytrials
Breakout discussions: Understanding, joining, and getting support during #clinicaltrials & integrating trials into lifestyle. #PACCR
TechnologyTales.com @technologytales
RT @dbarthjones: Orphan Drugs treat diseases w/ < 200,000 people in U.S., yet 7,000 rare diseases affect ~30 million Americans (1 in 10 peo…
Jorge Scheirer @infomedoc
RT @ReginaHolliday: Healthcare has almost been forgotten when it comes to user experience and good design ~"Spread the Cure" team #paccr
Stephanie Fischer @rarepov
RT @gfry: @ACROhealth help us create this patient-centric vision. It can only happen in a partnership, like everything else in HC #paccr
Stephanie Fischer @rarepov
RT @StirisPres: #Clinicaltrials are not for guinea pigs & are not a last resort.They're opportunities to own and participate in your health…
CureLauncher @curelauncher
RT @ilanadesigns: RT @Lilly_COI Winners of the Clinical Trial Visualization Redesign Challenge are...http://t.co/Sqm5CqyPq2 Congratulations…
CureLauncher @curelauncher
RT @StirisPres: #Clinicaltrials are not for guinea pigs & are not a last resort.They're opportunities to own and participate in your health…
Regina Holliday @reginaholliday
I am in the social media breakout session at #paccr
CureLauncher @curelauncher
@StirisPres YES! Very well said! #paccr
imsorry @noni_rainbow
RT @StirisPres: #Clinicaltrials are not for guinea pigs & are not a last resort.They're opportunities to own and participate in your health…
cAMP Öther @campother
RT @ReginaHolliday: Do you no how amazing it is to be livetweeting a a roundtable at @Lilly_COI? A few years ago there is no way this would…
Stephanie Fischer @rarepov
RT @gfry: What if patients... could explore what it'll be like to be in a study BEFORE visiting the trial site? #paccr
Alan Thomas @alanroygbiv
RT @ChiariTracy: What do patients want to see in Clinical Trials? Does it answer your questions in a user friendly format? #PACCR #Bensfrie…
Austin Frakt @afrakt
RT @ReginaHolliday: If you routinely work at a standing desk or an easel, it is a special kind of torture to stay seated at a round table. …
Regina Holliday @reginaholliday
Here we go with our crazy pt social media ideas #paccr
david goldsmith @dsgold
Bring it! (-: RT @ReginaHolliday: Here we go with our crazy pt social media ideas #paccr
Regina Holliday @reginaholliday
RT @dsgold: Bring it! (-: RT @ReginaHolliday: Here we go with our crazy pt social media ideas #paccr
Stephanie Fischer @rarepov
.@Lilly_COI hosting great discussion of Patients at Center of Clinical Research #PACCR. Wish I was there in person! #clinicaltrials #hcsm
Next Generation @nextgenclinical
RT @Lilly_COI: http://t.co/Ly0noPA7Ye gets about 98,000,000 pageviews monthly. Almost half are #patients or caregivers looking for studies.…
Next Generation @nextgenclinical
RT @gfry: Informed consent (IC) is telling you what we get from you. Missing is reverse IC, where you'd tell what you want from trial spons…
Next Generation @nextgenclinical
RT @Lilly_COI: We're talking Patients at the Center of Clinical Research today with some amazing patient advocates and industry pros. Follo…
Next Generation @nextgenclinical
RT @ReginaHolliday: "We are in charge of own health, ultimately we must live with the consequence.' WE MUST ADVOCATE FOR OURSELVES. #paccr
Regina Holliday @reginaholliday
The internet brought the network to disease communities. Social media expanded this effect. #paccr
Lilly Trials @lillytrials
#PACCR tweeps: @AfternoonNapper @ChiariTracy @alsadvocacy @pir_Jeri @ReginaHoliday @MightyCasey @gfry @SharonTerry @StrisPres @RebarInter
Alan Brewington @abrewi3010
RT @ReginaHolliday: The internet brought the network to disease communities. Social media expanded this effect. #paccr
Lilly Trials @lillytrials
#PACCR tweeps: @AfternoonNapper @ChiariTracy @alsadvocacy @PIR_jeri @reginaholiday @MightyCasey @gfry @SharonTerry @StirisPres @RebarInter
Regina Holliday @reginaholliday
.@MDAndersonNews is a great example of a good handle on twitter, @sloan_kettering is not. They are just pushing out data. #paccr
Brave Bosom @bravebosom
RT @gfry: @jackandraka I am sitting at #paccr with Sharon Terry :-) I read about #freethedata yesterday. #empowerpatients #openaccess
Pharma Research @research_pharma
RT @AfternoonNapper: "Innovation is urgent: bcause the pt is waiting, not at the end of the journey, but at every step along the way."—Eli …
MindyRD @kickstarter60
RT @ReginaHolliday: The internet brought the network to disease communities. Social media expanded this effect. #paccr
Kerstin Forsberg @kerfors
RT @dbarthjones: Is it ethical to remove rare/genetic diseases within De-identified Data to protect against re-identification? http://t.co/…
NRC Research @nrcresearch
RT @Lilly_COI: http://t.co/Ly0noPA7Ye gets about 98,000,000 pageviews monthly. Almost half are #patients or caregivers looking for studies.…
Kerstin Forsberg @kerfors
To-Read about "Re-Identification and De-identification Practice" from Harvard Law School HT @dbarthjones @ReginaHolliday #paccr
Shantal Feltham @stirispres
Working together=relationships+value b4 transactions. #clinicaltrials are transactions b4 relationships. Opportunity 4 change! #paccr #in
Jeri Burtchell @fingohead
RT @ACROhealth: .@FingoHead @Lilly_COI Yes, absolutely. Patients need to feel they are part of the investment and the solution. #paccr
Kerstin Forsberg @kerfors
Following #PACCR Patients at Center of Clinical Research discussion hosted by @Lilly_COI #ctdata
Jeri Burtchell @fingohead
#paccr AWESOME breakout session. Making progress. Excited for the future of #clinicaltrials.
Casey Quinlan @mightycasey
OK. @poppabirdy is the shizzle-knizzle. #thatisall #paccr
Jeri Burtchell @fingohead
#paccr get ready for clinical trials version 2.0 Lilly has a handle on what patients need, & determined to make trials patient centric.
Regina Holliday @reginaholliday
RT @FingoHead: #paccr get ready for clinical trials version 2.0 Lilly has a handle on what patients need, & determined to make trials patie…
Regina Holliday @reginaholliday
RT @StirisPres: Working together=relationships+value b4 transactions. #clinicaltrials are transactions b4 relationships. Opportunity 4 chan…
Regina Holliday @reginaholliday
We need looking for clinical trials to feel like a good shopping experience. #paccr
Lilly Trials @lillytrials
"#Patients need searching for #clinicaltrials to feel a lot like a shopping experience." ~Susan Poteat #PACCR
ALS Advocacy @alsadvocacy
RT @gfry: What if patients... considered clinical trials as just another part of their HC treatment options #paccr
Regina Holliday @reginaholliday
Most things that kicks patients out veery based on disease. ALS breathing, Cancer treatment history... #paccr
Regina Holliday @reginaholliday
RT @Lilly_COI: "#Patients need searching for #clinicaltrials to feel a lot like a shopping experience." ~Susan Poteat #PACCR
Sarah E. Kucharski @afternoonnapper
Talking abt better understanding clinical trials ad acute need pt past caring abt side effects. #paccr http://t.co/bIfkcBqlxU
Lilly Trials @lillytrials
It's important for caregivers to have access to #patients clinical trial schedule, too, so they can fit it into their own lifestyles. #PACCR
Symplur Hashtags @healthhashtags
Top Influencers of #paccr: @lilly_coi @afternoonnapper @reginaholliday @gfry @alsadvocacy Real-time Analytics: http://t.co/xfTW2YHlim
Charlene Ngamwajasat @doctorcharlene
RT @ReginaHolliday: We need looking for clinical trials to feel like a good shopping experience. #paccr
ALS Advocacy @alsadvocacy
RT @healthhashtags: Top Influencers of #paccr: @lilly_coi @afternoonnapper @reginaholliday @gfry @alsadvocacy Real-time Analytics: http://t…
Lilly Trials @lillytrials
Idea: provide quick, easy communication channels for #patients doctors 2 talk to trial's lead researcher, so doc can help w/ decision #PACCR
Lilly Trials @lillytrials
Take a look at @Pinterest 's ToS page as an example of how to simply legal/technical language for #patients: http://t.co/Y8uX6yIBQB #PACCR
ALS Advocacy @alsadvocacy
Can we learn how to splain Clin trial consent frm Pinterest terms of use concept? #PACCR
Regina Holliday @reginaholliday
RT @alsadvocacy: Can we learn how to splain Clin trial consent frm Pinterest terms of use concept? #PACCR
Lilly Trials @lillytrials
Informed consent information should be dynamic, granular, matrixed and contextual. @SharonTerry #PACCR #clinicaltrials
Regina Holliday @reginaholliday
RT @Lilly_COI: Informed consent information should be dynamic, granular, matrixed and contextual. @SharonTerry #PACCR #clinicaltrials
ALS Advocacy @alsadvocacy
@sharonfterry teaching me about dynamic and granular consent re patient data sharing... Making me think. #PACCR
Genetic Alliance @geneticalliance
RT @alsadvocacy: @sharonfterry teaching me about dynamic and granular consent re patient data sharing... Making me think. #PACCR
Genetic Alliance @geneticalliance
RT @ReginaHolliday: We need looking for clinical trials to feel like a good shopping experience. #paccr
Genetic Alliance @geneticalliance
RT @ReginaHolliday: The internet brought the network to disease communities. Social media expanded this effect. #paccr
Genetic Alliance @geneticalliance
RT @SDFatPhRMA: .@Lilly_COI hosting great discussion of Patients at Center of Clinical Research #PACCR. Wish I was there in person! #clinic…
Sharon F. Terry @sharonfterry
RT @alsadvocacy: @sharonfterry teaching me about dynamic and granular consent re patient data sharing... Making me think. #PACCR
Shantal Feltham @stirispres
There is a room full of people discussing #paccr because of the authenticity of one man. Thank you Jerry @Lilly_COI
Regina Holliday @reginaholliday
@canozusa please follow. She is speaking right now and diving into social media #paccr
ALS Advocacy @alsadvocacy
RT @StirisPres: There is a room full of people discussing #paccr because of the authenticity of one man. Thank you Jerry @Lilly_COI
Lilly Trials @lillytrials
If you want to connect with #patients, be bold, be vulnerable, be human. Personal connection and trust is key. #PACCR
Stephanie Fischer @rarepov
RT @Lilly_COI: If you want to connect with #patients, be bold, be vulnerable, be human. Personal connection and trust is key. #PACCR
Sharon F. Terry @sharonfterry
RT @ReginaHolliday: @canozusa please follow. She is speaking right now and diving into social media #paccr
Lilly Trials @lillytrials
RT @StirisPres: There is a room full of people discussing #paccr because of the authenticity of one man. Thank you Jerry @Lilly_COI
ALS Advocacy @alsadvocacy
RT @ReginaHolliday: @canozusa please follow. She is speaking right now and diving into social media #paccr
Regina Holliday @reginaholliday
RT @Lilly_COI: If you want to connect with #patients, be bold, be vulnerable, be human. Personal connection and trust is key. #PACCR
Regina Holliday @reginaholliday
RT @Lilly_COI: RT @StirisPres: There is a room full of people discussing #paccr because of the authenticity of one man. Thank you Jerry @L…
Elin Silveous @elinsilveous
In the early 1990s! :) “@ReginaHolliday: The internet brought the network to disease communities. Social media expanded this effect. #paccr”
Elin Silveous @elinsilveous
RT @Lilly_COI: http://t.co/Ly0noPA7Ye gets about 98,000,000 pageviews monthly. Almost half are #patients or caregivers looking for studies.…
Cody R. Barnett @codyrbarnett
Yes! "If you want to connect w/ #patients, be bold, be vulnerable, be human. Personal connection & trust is key." #PACCR (via: @Lilly_COI)
Elin Silveous @elinsilveous
“.@Lilly_COI: If you want to connect with #patients, be bold, be vulnerable, be human. Personal connection and trust is key. #PACCR”
Regina Holliday @reginaholliday
RT @codyrbarnett: Yes! "If you want to connect w/ #patients, be bold, be vulnerable, be human. Personal connection & trust is key." #PACCR…
ALS Advocacy @alsadvocacy
Hearing discussion of patient instigator/investigator... Wish the gang from @alstdi forum were flies on this wall. #PACCR
CCGF @geneticfairness
RT @SDFatPhRMA: .@Lilly_COI hosting great discussion of Patients at Center of Clinical Research #PACCR. Wish I was there in person! #clinic…
Regina Holliday @reginaholliday
RT @alsadvocacy: Hearing discussion of patient instigator/investigator... Wish the gang from @alstdi forum were flies on this wall. #PACCR
Gilles Frydman @gfry
@AfternoonNapper @MightyCasey & @poppabirdy at #paccr http://t.co/aANhVa8XLX
Elin Silveous @elinsilveous
@Lilly_COI @SharonTerry Any idea what the reading level is of typical Informed Consent form? 7th grade? TY. #SMOG #FOG #PACCR #HealthLit
Sharon F. Terry @sharonfterry
.@MightyCasey transforming #freethedata into Give Me My Damn Data! #GMMDD #PACCR
ALS Advocacy @alsadvocacy
RT @sharonfterry: .@MightyCasey transforming #freethedata into Give Me My Damn Data! #GMMDD #PACCR
Tom Krohn @takmad
RT @gfry: @AfternoonNapper @MightyCasey & @poppabirdy at #paccr http://t.co/aANhVa8XLX
Regina Holliday @reginaholliday
RT @sharonfterry: .@MightyCasey transforming #freethedata into Give Me My Damn Data! #GMMDD #PACCR
Gilles Frydman @gfry
Susan & Gary Poteat, wonderful SmartPatients members, presenting at #paccr http://t.co/KMtNUc2Ty0
David Park @daviddpark
RT @Lilly_COI: .@takmad is discussing our recent partnership with @Pfizer and @Novartis. Read more about it here: http://t.co/3NSJ1Ci7SB #P…
Regina Holliday @reginaholliday
RT @gfry: Susan & Gary Poteat, wonderful SmartPatients members, presenting at #paccr http://t.co/KMtNUc2Ty0
Gilles Frydman @gfry
@ReginaHolliday at #paccr http://t.co/efWNFzxPvv
Sarah E. Kucharski @afternoonnapper
Casual poll: do you take an Rx that works well but you have difficultly opening the packaging and/or taking? #paccr #paccr
Gilles Frydman @gfry
Sharon Terry presenting at #paccr workshop http://t.co/VhXWQoYhnX
Regina Holliday @reginaholliday
RT @AfternoonNapper: Casual poll: do you take an Rx that works well but you have difficultly opening the packaging and/or taking? #paccr #p…
Lilly Trials @lillytrials
RT @gfry: Sharon Terry presenting at #paccr workshop http://t.co/RNbjogfFjc
Lilly Trials @lillytrials
RT @gfry: Susan & Gary Poteat, wonderful SmartPatients members, presenting at #paccr http://t.co/Seq4kTwZfx
Whitney Zatzkin @mswz
@AfternoonNapper Yes. That and it keeps changing so I never know what to expect for the inhaler function. #paccr
Regina Holliday @reginaholliday
Just a shout out with @sharonfterry about the wonder of @traitwise surveys. #paccr
Regina Holliday @reginaholliday
RT @MsWZ: @AfternoonNapper Yes. That and it keeps changing so I never know what to expect for the inhaler function. #paccr
Dee Sparacio @womenofteal
@Lilly_COI Informed consent information should be dynamic, granular, matrixed and contextual. @SharonTerry #PACCR #clinicaltrials #gyncsm
ALS Advocacy @alsadvocacy
RT @ReginaHolliday: Just a shout out with @sharonfterry about the wonder of @traitwise surveys. #paccr
Lilly Trials @lillytrials
"It should be like Github and http://t.co/WryHMbvlJO had a baby." ~@MightyCasey talking about #clinicaltrials info sites. #PACCR
ALS Advocacy @alsadvocacy
RT @Lilly_COI: "It should be like Github and http://t.co/WryHMbvlJO had a baby." ~@MightyCasey talking about #clinicaltrials info sites. #P…
Regina Holliday @reginaholliday
Basically clinical trials do not integrate at all into patient lives right now ~ #paccr
Regina Holliday @reginaholliday
RT @Lilly_COI: "It should be like Github and http://t.co/WryHMbvlJO had a baby." ~@MightyCasey talking about #clinicaltrials info sites. #P…
Traitwise @traitwise
RT @ReginaHolliday: Just a shout out with @sharonfterry about the wonder of @traitwise surveys. #paccr
ALS Advocacy @alsadvocacy
RT @ReginaHolliday: Basically clinical trials do not integrate at all into patient lives right now ~ #paccr
Gilles Frydman @gfry
RT @Lilly_COI: "It should be like Github & http://t.co/eQPFccKTet had baby." ~@MightyCasey talking about #clinicaltrials info sites. #PACCR
Gilles Frydman @gfry
We can do a lot better! RT @ReginaHolliday: Basically clinical trials do not integrate at all into patient lives right now ~ #paccr
Lilly Trials @lillytrials
"#Clinicaltrials don't integrate into #patients lives at all right now. It's takes a lot of work on their part." ~@rebarinter #PACCR
Whitney Zatzkin @mswz
e-hi back to you ladies! @ReginaHolliday and @sharonfterry #PACCR
Lilly Trials @lillytrials
"We tend to only talk to #patients when we want to get them into a trial. We don't build relationship before we ask." ~@rebarinter #PACCR
Regina Holliday @reginaholliday
Don't just spam people by only wanting to talk to them for a clinical trial ~ #paccr
Pajama Daze @pajamadaze
RT @AfternoonNapper: Casual poll: do you take an Rx that works well but you have difficultly opening the packaging and/or taking? #paccr #p…
Kathi Apostolidis @kgapo
@Lilly_COI If you want to connect w #patients, be bold, be vulnerable, be human. Personal connection & trust is key. #PACCR #pharma #hcsmeu
Regina Holliday @reginaholliday
RT @Lilly_COI: "We tend to only talk to #patients when we want to get them into a trial. We don't build relationship before we ask." ~@reba…
IDEA Pharma @ideapharma
RT @Lilly_COI: "We tend to only talk to #patients when we want to get them into a trial. We don't build relationship before we ask." ~@reba…
Doctor as Designer @joyclee
RT @sharonfterry: The suspense is over, we were a judge. Winner of clinical trial design site competition: Spread the Cure. #paccr http://t…
Casey Quinlan @mightycasey
Winners of Clinical Trial Visualization Redesign competition http://t.co/3LXUo8OZSy HT @Lilly_COI #paccr #s4pm #hcsm
Sarah E. Kucharski @afternoonnapper
"Keep us honest," says @takmat re: continuing conversations b/w pharma/industry and patients. #paccr
ALS Advocacy @alsadvocacy
Grateful for meaningful conversation epatient rock stars and Lly @lilly_coi rock stars. Thx to all. And we get action items! #PACCR
Sarah E. Kucharski @afternoonnapper
"Keep us honest," says @takmad re: continuing conversations b/w pharma/industry and patients. #paccr
ZakirThomas @zakirthomas
RT @Lilly_COI: "#Clinicaltrials don't integrate into #patients lives at all right now. It's takes a lot of work on their part." ~@rebarinte…
Lilly Trials @lillytrials
That's a wrap on #PACCR. We can't say thank you enough to everyone for sharing their wisdom and insights. Let's keep the conversation going!
Lilly Trials @lillytrials
RT @AfternoonNapper: "Keep us honest," says @takmad re: continuing conversations b/w pharma/industry and patients. #paccr
CancerGeek @cancergeek
RT @MightyCasey: Winners of Clinical Trial Visualization Redesign competition http://t.co/3LXUo8OZSy HT @Lilly_COI #paccr #s4pm #hcsm
sue robins @suerobinsyvr
RT @codyrbarnett: Yes! "If you want to connect w/ #patients, be bold, be vulnerable, be human. Personal connection & trust is key." #PACCR…
Cody R. Barnett @codyrbarnett
"What about my kids?' asks powerful video looking at clinical trials in the @wsj http://t.co/XhJxgBV1Rn #PACCR #MedTrials
Stephanie Fischer @rarepov
RT @codyrbarnett: "What about my kids?' asks powerful video looking at clinical trials in the @wsj http://t.co/XhJxgBV1Rn #PACCR #MedTrials
ALS Advocacy @alsadvocacy
RT @Lilly_COI: That's a wrap on #PACCR. We can't say thank you enough to everyone for sharing their wisdom and insights. Let's keep the con…
ALS Advocacy @alsadvocacy
RT @Lilly_COI: "We tend to only talk to #patients when we want to get them into a trial. We don't build relationship before we ask." ~@reba…
Ruth Skinner-Smith @ruthy_ss
RT @Lilly_COI: "We tend to only talk to #patients when we want to get them into a trial. We don't build relationship before we ask." ~@reba…
Sharon F. Terry @sharonfterry
RT @ReginaHolliday: Just a shout out with @sharonfterry about the wonder of @traitwise surveys. #paccr
Ann Becker-Schutte @drbeckerschutte
RT @AfternoonNapper: Shout out to #MedX and the "dream big" philosophy for changing healthcare, specifically clinical trials, from @alsadvo…
Adam Amdur @sleepapneabook
RT @AfternoonNapper: Shout out to #MedX and the "dream big" philosophy for changing healthcare, specifically clinical trials, from @alsadvo…
Lauren Still @laurencstill
RT @ReginaHolliday: You can't join a clinical trial if you can't get access to your medical record. #paccr #bluebutton
Chris Hempel @hempelfamily
RT @codyrbarnett: "What about my kids?' asks powerful video looking at clinical trials in the @wsj http://t.co/XhJxgBV1Rn #PACCR #MedTrials
Tom Krohn @takmad
RT @FingoHead: #paccr get ready for clinical trials version 2.0 Lilly has a handle on what patients need, & determined to make trials patie…
Tom Krohn @takmad
RT @MightyCasey: OK. @poppabirdy is the shizzle-knizzle. #thatisall #paccr
Tom Krohn @takmad
RT @Lilly_COI: RT @MightyCasey: If the stars align, the people in the room with me right now are gonna make history, change healthcare. Boo…
Matt Murray @murraymatt
RT @codyrbarnett: "What about my kids?' asks powerful video looking at clinical trials in the @wsj http://t.co/XhJxgBV1Rn #PACCR #MedTrials
Lilly Trials @lillytrials
#paccr = @AfternoonNapper @MightyCasey @ChiariTracy @ReginaHolliday @FingoHead @alsadvocacy @gfry @sharonfterry @RebarInter @StirisPres Thx!
Scott Strange @strangely_t1
RT @AfternoonNapper: "Keep us honest," says @takmad re: continuing conversations b/w pharma/industry and patients. #paccr
Scott Strange @strangely_t1
RT @Lilly_COI: "It should be like Github & http://t.co/KJoixXdx7n had a baby." @MightyCasey talking about #clinicaltrials info sites. #PACCR
Scott Strange @strangely_t1
RT @ReginaHolliday: "We are in charge of own health, ultimately we must live with the consequence.' WE MUST ADVOCATE FOR OURSELVES. #paccr
Daniel Barth-Jones @dbarthjones
RT @Lilly_COI: "No one ever asks you if want to be de-identified or not." ~@ReginaHoliday. Many #raredisease #patients excluded. They're "t…
Scott Strange @strangely_t1
RT @AfternoonNapper: Mention of World Diabetes Day in the discussion of making clinical trials more patient focused. Shout out #dsma! #paccr
John @joltdude
RT @Strangely_T1: RT @AfternoonNapper: Mention of World Diabetes Day in the discussion of making clinical trials more patient focused. Shou…
Gary Takher @gtakh67
RT @gfry: What if patients... considered clinical trials as just another part of their HC treatment options #paccr
Gary Takher @gtakh67
RT @sharonfterry: The suspense is over, we were a judge. Winner of clinical trial design site competition: Spread the Cure. #paccr http://t…
Dan Sfera @therealdansfera
RT @Lilly_COI: http://t.co/Ly0noPA7Ye gets about 98,000,000 pageviews monthly. Almost half are #patients or caregivers looking for studies.…
 

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