#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
 | Jack Aiello @JackMAiello @patientchat Jack here, #myeloma pt, checking in #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/6INB5Pmjv3 #patientchat |
 | Jamie Roger @JamieRoger8 Jamie from CT and @salemoaks I hope everyone is having a wonderful week and a productive Friday. #patientchat |
| Patient Chat @patientchat Today on #patientchat we offer you, our participants, the "Mic". You are free to ask ?’s, make comments, share your story, etc. |
 | Patient Empowerment Network @power4patients @JackMAiello @patientchat Hi Jack @JackMAiello! We're so happy that you're here. #patientchat |
| Patient Chat @patientchat So for today we won't have our regular labeled Topic Questions (T1: T2: etc.) but will have more of a free flow discussion. #patientchat |
 | Your GPS Doc, LLC @yourgpsdoc Hi everyone! I’m Nicole Rochester- physician, former caregiver to my dad, health advocate and CEO of @yourgpsdoc. Multitasking today but will try to keep up. #patientchat |
| Patient Chat @patientchat There are some starter ideas in today's event listing to get your brain train rolling :) https://t.co/GDwe1RmIDD #patientchat |
 | Heather McCullen @H_SalemOaks Hi #Patientchat, Heather joining from outside of Ann Arbor. Busy day getting ready to leave for @ConferenceForum #Patients2019 (and a short vacation to Florida right after) |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: So for today we won't have our regular labeled Topic Questions (T1: T2: So for today we won't have our regular labeled Topic Questions (T1: T2: etc.) but will have more of a free flow discussion. #patientchat |
| Patient Chat @patientchat So here we go… What is on your mind today? What empowered patient topics would you like to chat about? Jump right in and get us started! :) #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: There are some starter ideas in today's event listing to get your brain train rolling :) https://t.co/GDwe1RmIDD #patientchat |
 | Maya Northen Augelli @mayanorthen Maya from Philly here! Mental health advocate and founder of Spread Hope Project. #patientchat |
| Jamie Roger @JamieRoger8 @yourgpsdoc How have you been NIcole? #patientchat |
| Jamie Roger @JamieRoger8 RT @H_SalemOaks: Hi #Patientchat, Heather joining from outside of Ann Arbor. Busy day getting ready to leave for @ConferenceForum #Patients2019 (and a short vacation to Florida right after) |
| Jack Aiello @JackMAiello @power4patients @patientchat I see you’re asking for topics but not sure I have any to suggest. #patientchat |
| Jamie Roger @JamieRoger8 @mayanorthen We will be in Philly the next few days for #Patients2019 #patientchat |
| Patient Chat @patientchat Here are some ideas to chat about for today's Open Mic #patientchat https://t.co/q9Yl38Kn9g |
| Patient Empowerment Network @power4patients Here's a ?...we talk a lot about improving health literacy in order for patients and care partners to meaningfully share in decision making with their care team. But what exactly does shared decision making look like/mean in real life? Any examples or ideas? #patientchat |
 | I Slapped FedSoc & Ouiser Boudreaux💉💉💉💉😷🇺🇦 @nwayne66 RT @power4patients: Here's a ?...we talk a lot about improving health literacy in order for patients and care partners to meaningfully share in decision making with their care team. But what exactly does shared decision making look like/mean in real life? Any examples or ideas? #patientchat |
| Maya Northen Augelli @mayanorthen @JamieRoger8 Ahhh exciting! One of these years I will make it there. I'll live vicariously through all of your tweets. :-) #patientchat |
| Patient Chat @patientchat RT @power4patients: Here's a ?...we talk a lot about improving health literacy in order for patients and care partners to meaningfully share in decision making with their care team. But what exactly does shared decision making look like/mean in real life? Any examples or ideas? #patientchat |
| Jamie Roger @JamieRoger8 @mayanorthen @salemoaks will try to get as many out there as we can. #patients2019 #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Here are some ideas to chat about for today's Open Mic #patientchat https://t.co/q9Yl38Kn9g |
| I Slapped FedSoc & Ouiser Boudreaux💉💉💉💉😷🇺🇦 @nwayne66 RT @patientchat: Here are some ideas to chat about for today's Open Mic #patientchat https://t.co/q9Yl38Kn9g |
| Your GPS Doc, LLC @yourgpsdoc I am giving a #TEDx talk in 2 weeks about patients and family caregivers being invisible in healthcare settings and what we can do to rebuild the doctor-patient relationship. Would love your thoughts. #patientchat |
 | Barby Ingle Official @BarbyIngle Social media in healthcare is a great way to get a topic discussion started so that as chronic patients & providers we can go dive deeper into content on the internet and in-person discussions. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @JamieRoger8 Great, Jamie! How are you? #patientchat |
| Patient Empowerment Network @power4patients RT @yourgpsdoc: I am giving a #TEDx talk in 2 weeks about patients and family caregivers being invisible in healthcare settings and what we can do to rebuild the doctor-patient relationship. Would love your thoughts. #patientchat |
 | International Pain Foundation® @iPainOfficial RT @BarbyIngle: Social media in healthcare is a great way to get a topic discussion started so that as chronic patients & providers we can go dive deeper into content on the internet and in-person discussions. #patientchat |
 | Alan Brewington @abrewi3010 My neck surgery is Wednesday. The waiting sucks. I’m excited and grateful for this opportunity but the waiting is rough. #patientchat |
| Jamie Roger @JamieRoger8 @yourgpsdoc I am really excited for this #tedx talk! Way to go NIcole! #patientchat |
| Heather McCullen @H_SalemOaks #patientchat I have conferences on the brain. Anyone going to something interesting or less known in the next few months? I'm really excited for @patientexpsym check out this lineup! https://t.co/DWAONnSy7c |
| Patient Chat @patientchat #patientchat what do you think? |
| Patient Chat @patientchat RT @BarbyIngle: Social media in healthcare is a great way to get a topic discussion started so that as chronic patients & providers we can go dive deeper into content on the internet and in-person discussions. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: Here are some ideas to chat about for today's Open Mic #patientchat https://t.co/q9Yl38Kn9g |
| Patient Chat @patientchat RT @H_SalemOaks: #patientchat I have conferences on the brain. Anyone going to something interesting or less known in the next few months? I'm really excited for @patientexpsym check out this lineup! https://t.co/DWAONnSy7c |
| Jamie Roger @JamieRoger8 @yourgpsdoc Doing well, Had a great time at #bridging2019 and looking forward to #patients2019 on Monday. Busy trying to keep the rest of my life normal in between traveling though. #patientchat #conferences #letsjustignoreeverythingelsegoingon |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey HEY - running in late, in usual too-many-things mode. Casey Quinlan here, Richmond VA, loudmouthed #openscience #epatient firestarter. Greetings! I'll be in'n'out, multitasking. Like I do. #patientchat |
| Barby Ingle Official @BarbyIngle IMHO: Pain Management should be done in teams with the patient as the team leader. We should be treating the whole body, mind and spirit! #patientchat #chronicillness #chronicpainisreal #pain https://t.co/nZGoL1UwWZ |
| Jamie Roger @JamieRoger8 @abrewi3010 I wish you the absolute best care during your surgery and recovery, heal quickly my friend #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @power4patients Share decision-making must account for the patient and family caregiver’s understanding of the illness/diseas, as well as the social determinants of health that will impact their ability to carry out the plan. #patientchat |
 | Richard Zhao @richardzhao When I talked to an pain clinic owners, I see big $$ in their eyes. #patientchat #pain |
| Patient Chat @patientchat RT @yourgpsdoc: @power4patients Share decision-making must account for the patient and family caregiver’s understanding of the illness/diseas, as well as the social determinants of health that will impact their ability to carry out the plan. #patientchat |
| Patient Empowerment Network @power4patients RT @yourgpsdoc: @power4patients Share decision-making must account for the patient and family caregiver’s understanding of the illness/diseas, as well as the social determinants of health that will impact their ability to carry out the plan. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @JamieRoger8 Awesome! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey On my mind, all day ever' day lately, is the utter lack of #dataprivacy for people/patients *everywhere*. IOW, even #HIPAA - the most enragingly paternalistic of "data privacy" rules EVER - hasn't prevented Big Tech from active ****ery toward ... everyone. #patientchat |
| Alan Brewington @abrewi3010 @yourgpsdoc Emphasis the concept of time. Caregivers are not on doc time. Without an agreed upon concept of time info will get lost. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @JamieRoger8 Thank you! ❤️❤️ I’m excited too! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @abrewi3010 Ooh, Alan! I spend a lot of time talking about time. Thanks for the confirmation! #patientchat |
| Barby Ingle Official @BarbyIngle Healthy Diet & Exercise education is something we should be starting when kids r in elementary school & reinforced through college. So when we are older, we know & understand the importance of it & use it as prevention instead of after we r already n health troubles #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @JackMAiello Oh no! #patientchat |
| Heather McCullen @H_SalemOaks @MightyCasey I had a great time at #Bridging2019, but man are data scientists ... concerning. #patientchat |
| Patient Chat @patientchat @BarbyIngle What's your advice for building this team? #patientchat |
| Patient Empowerment Network @power4patients @yourgpsdoc Can't wait for this #TEDX talk!! I think a few things are always present in a positive & productive Dr-Patient relationship: empathy, active listening and mutual respect #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: @BarbyIngle What's your advice for building this team? #patientchat |
| Your GPS Doc, LLC @yourgpsdoc I agree 100%! Thanks for your input and support! #patientchat |
| Alan Brewington @abrewi3010 @JamieRoger8 Thank you! How are you holding up lately? #patientchat |
| Richard Zhao @richardzhao Conservative treatments can control #pain without serious illness. People need help to know what they are, where they are and how they treat patients #patientchat |
| Jack Aiello @JackMAiello Will try again to respond. When asked, I suggest both pt and cg attend support group, go together to doc appts, and have various tasks. Cg can help with research, record labs values, handle insurance paperwork, etc. #patientchat |
| Patient Empowerment Network @power4patients RT @JackMAiello: Will try again to respond. When asked, I suggest both pt and cg attend support group, go together to doc appts, and have various tasks. Cg can help with research, record labs values, handle insurance paperwork, etc. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @JackMAiello Excellent advice! Thanks for retyping your comment. 😊 #patientchat |
 | Boss Doctors @BossDoctors RT @yourgpsdoc: I am giving a #TEDx talk in 2 weeks about patients and family caregivers being invisible in healthcare settings and what we can do to rebuild the doctor-patient relationship. Would love your thoughts. #patientchat |
| Jamie Roger @JamieRoger8 @abrewi3010 Not too shabby, hanging in there I suppose. Have to go to calling hours today for a friend from high school who passed and its bringing me down a bit. Scary to think that someone my age passed from a #cardiac event. #patientchat # imonly31 #distracted |
| Patient Chat @patientchat Who or where can patients go to find this information? #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @BarbyIngle: Healthy Diet & Exercise education is something we should be starting when kids r in elementary school & reinforced through college. So when we are older, we know & understand the importance of it & use it as prevention instead of after we r already n health troubles #patientchat |
| Barby Ingle Official @BarbyIngle Get a strong PCP (main doctor) and have all of your specialists communicate with them on any challenges and options. Brainstorm and study with them, learn know and participate with your team #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @JamieRoger8 @abrewi3010 I’m so sorry, Jamie. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Who or where can patients go to find this information? #patientchat |
| Alan Brewington @abrewi3010 Can we quit with the #pain treatment labels. No more conservative or alternative treatment, just treat the pain based on a collaborative and individualized treatment plan. #chronicpain #patientchat #rheum |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @H_SalemOaks Yeah. Lots can be learned from #data aggregation, but not enough social science/#ethics input in #datascience ... yet. #patientchat |
| Richard Zhao @richardzhao @patientchat We are developing technology can help with some of such information. But, we also need help from patients to make it better. I call it collective intelligence. #patientchat |
| Jack Aiello @JackMAiello @yourgpsdoc As many friends also ask “how can I help?”, responses don’t come easy. But when friends take it upon themselves to prune your fruit trees or bring by some meals, that’s true friendship. #patientchat |
| Patient Chat @patientchat RT @BarbyIngle: Get a strong PCP (main doctor) and have all of your specialists communicate with them on any challenges and options. Brainstorm and study with them, learn know and participate with your team #patientchat |
| Jamie Roger @JamieRoger8 @yourgpsdoc @abrewi3010 Thanks. We were much closer in High School, have only talked a few times the last few years, but it's the realization of the situation that is mind-boggling. #patientchat #aging ? |
| Patient Empowerment Network @power4patients On this #InternationalWomensDay2019 does anyone think there is, or has personally experienced a gender disparity in terms of achieving diagnosis, access to care and/or patient/care partner empowerment? #patientchat |
| Patient Empowerment Network @power4patients RT @JackMAiello: @yourgpsdoc As many friends also ask “how can I help?”, responses don’t come easy. But when friends take it upon themselves to prune your fruit trees or bring by some meals, that’s true friendship. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @JamieRoger8 @abrewi3010 Yeah, that sucks. I'm old AF now, but remembering the wollop of losing friends in my 20s and 30s. Life is 100% fatal, live accordingly. #patientchat |
| Barby Ingle Official @BarbyIngle Illness and intimacy is important. I discussed this last week on #HealtheVoicesRadio last week - Check it out when you get a chance! https://t.co/EctoBMBrtd #patientchat https://t.co/a0VSRKdlPH |
| Patient Chat @patientchat "Collective intelligence" - I like that! Please keep us updated on this technology as it moves forward #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @BarbyIngle This is often easier said than done. So many struggle to find a PCP who will truly coordinate care. Good PCPs also struggle to keep up with clinical care, administrative tasks, EMR, etc. #patientchat |
| Patient Chat @patientchat RT @JackMAiello: @yourgpsdoc As many friends also ask “how can I help?”, responses don’t come easy. But when friends take it upon themselves to prune your fruit trees or bring by some meals, that’s true friendship. #patientchat |
| Patient Empowerment Network @power4patients RT @richardzhao: @patientchat We are developing technology can help with some of such information. But, we also need help from patients to make it better. I call it collective intelligence. #patientchat |
| Patient Chat @patientchat RT @power4patients: On this #InternationalWomensDay2019 does anyone think there is, or has personally experienced a gender disparity in terms of achieving diagnosis, access to care and/or patient/care partner empowerment? #patientchat |
| Jamie Roger @JamieRoger8 @MightyCasey @abrewi3010 #truth #patientchat |
| Alan Brewington @abrewi3010 @JamieRoger8 I’m sorry to hear that! A close friend of mine from high school had a bad stroke. I know what you mean! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @malkabethwendy @patientchat This sounds horrible. I hope it works out. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @JackMAiello: @yourgpsdoc As many friends also ask “how can I help?”, responses don’t come easy. But when friends take it upon themselves to prune your fruit trees or bring by some meals, that’s true friendship. #patientchat |
| Patient Empowerment Network @power4patients @ZachmeyerHannah @patientchat Welcome Hannah! #patientchat |
| Jamie Roger @JamieRoger8 @power4patients YES my OBGYN was a HUGE asshole, despite choosing to deal with women as a career he was rude, harsh, and insensitive about my diagnosis and efficiency of my treatment #patientchat |
| Barby Ingle Official @BarbyIngle Very true, I have worked hard to create and keep my team communicating over the years ... #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @JackMAiello I always advise caregivers to give friends and family members a specific list of tasks/ways in which they help. You’re right, the generic “how can I help?” typically results in no help. #patientchat |
| Richard Zhao @richardzhao @patientchat Sure, I will. We also need patients from different communities to join this movement to correct the wrong setup of our healthcare system. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @ZachmeyerHannah I agree! Thanks for you input, Hannah. #patientchat |
| Patient Empowerment Network @power4patients RT @yourgpsdoc: @JackMAiello I always advise caregivers to give friends and family members a specific list of tasks/ways in which they help. You’re right, the generic “how can I help?” typically results in no help. #patientchat |
| Jack Aiello @JackMAiello @richardzhao @power4patients @patientchat How are you getting help from pts? Do you have a pt advisory board where patient perspectives can easily be provided? Many pts are willing to help when asked. #patientchat |
| Alan Brewington @abrewi3010 @richardzhao If we want to battle #opioidstigma we need to get ride of treatment labels. #patientchat |
| Patient Empowerment Network @power4patients RT @JackMAiello: @richardzhao @power4patients @patientchat How are you getting help from pts? Do you have a pt advisory board where patient perspectives can easily be provided? Many pts are willing to help when asked. #patientchat |
| Patient Chat @patientchat RT @JackMAiello: @richardzhao @power4patients @patientchat How are you getting help from pts? Do you have a pt advisory board where patient perspectives can easily be provided? Many pts are willing to help when asked. #patientchat |
 | Alice Lee @alee7095 RT @BarbyIngle: Very true, I have worked hard to create and keep my team communicating over the years ... #patientchat |
| Alan Brewington @abrewi3010 @ZachmeyerHannah @yourgpsdoc Simply understanding everyone of the care teams schedule is a lost consideration in today’s healthcare. #patientchat |
| Patient Chat @patientchat @JamieRoger8 Wow, just wow. #patientchat https://t.co/1AFlhSf8z3 |
 | Jerry Durham @Jerry_DurhamPT RT @richardzhao: When I talked to an pain clinic owners, I see big $$ in their eyes. #patientchat #pain |
| Jamie Roger @JamieRoger8 @patientchat It was brutal. #patientchat |
| Richard Zhao @richardzhao @JackMAiello @power4patients @patientchat We have #patients or just people patriciate our program, providing patient's perspective judgment. That is all. Just a couple hours of their time and get a pair of #PinkSocks of supporting #PatientCentered healthcare movement. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc Many have experienced gender disparities in healthcare. Even in 2019 women are sometimes disregarded as “hysterical” when reporting medical concerns me #patientchat #InternationalWomensDay |
 | Natalie 🦓 @_Nataliea #chronicpain sucks, but do I have the time mine/energy/whatever to do anything about it? AKA, not pursuing it and coping is potentially easier, albeit painful. #patientchat |
| Alice Lee @alee7095 RT @BarbyIngle: Illness and intimacy is important. I discussed this last week on #HealtheVoicesRadio last week - Check it out when you get a chance! https://t.co/EctoBMBrtd #patientchat https://t.co/a0VSRKdlPH |
| Patient Empowerment Network @power4patients RT @yourgpsdoc: Many have experienced gender disparities in healthcare. Even in 2019 women are sometimes disregarded as “hysterical” when reporting medical concerns me #patientchat #InternationalWomensDay |
| Jack Aiello @JackMAiello @richardzhao @power4patients @patientchat You said you needed pt help. Do you bring these pts (small group 5-10) together to share what you’re doing and what perspectives you need from them. Sometimes group dynamics can be very enlightening. Check with then f2f once a year and conference call once a year. #patientchat |
| Patient Empowerment Network @power4patients RT @JackMAiello: @richardzhao @power4patients @patientchat You said you needed pt help. Do you bring these pts (small group 5-10) together to share what you’re doing and what perspectives you need from them. Sometimes group dynamics can be very enlightening. Check with then f2f once a year and conference call once a year. #patientchat |
| Richard Zhao @richardzhao @JackMAiello @power4patients @patientchat We use technology to do it online, back to back. So, people’s opinions don’t influence others. #Patientchat |
 | ♿🔯 ⏳🍀🔥 🌸 Origami artist @malkabethwendy @yourgpsdoc @patientchat #Spodylelothesis, #Spondylitis , #POTS , #hEDS & Early onset #Osteoarthritis being the mainstay. These things don't "get better with time",nor will surgery or drugs really help #patientchat - so asking for extensive paper trails that just don't exist as "proof"=mess #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @JackMAiello @richardzhao @power4patients @patientchat And consider paying for their time, the same way we pay other experts for their input and opinions. #patientchat |
| Patient Empowerment Network @power4patients RT @yourgpsdoc: @JackMAiello @richardzhao @power4patients @patientchat And consider paying for their time, the same way we pay other experts for their input and opinions. #patientchat |
| Barby Ingle Official @BarbyIngle If you would like to donate to a charity that is doing great things and is rated platinum (the highest GuideStar rating) for transparency - Every penny counts! - https://t.co/30O8p0LoO3 #patientchat https://t.co/FvGjw5j4Te |
| Patient Chat @patientchat Greatly enjoyed our free flow discussion this week. Almost time to start gathering your Closing Thoughts (CT:) for today's chat. #patientchat |
| Richard Zhao @richardzhao @yourgpsdoc @JackMAiello @power4patients @patientchat We had volunteers to help us on that front as well. #Patientchat |
| Your GPS Doc, LLC @yourgpsdoc @richardzhao @JackMAiello @power4patients @patientchat @wegohealth is doing a great job organizing patient advocates/experts in a meaningful way. #patientchat |
 | Patient Experience Symposium @patientexpsym RT @H_SalemOaks: #patientchat I have conferences on the brain. Anyone going to something interesting or less known in the next few months? I'm really excited for @patientexpsym check out this lineup! https://t.co/DWAONnSy7c |
| Barby Ingle Official @BarbyIngle #SelfAdvocacy is so important to our daily living and self-care. Take care of yourself and then help others. Check out https://t.co/aBxf3J6RF6 for how @BarbyIngle does it! #patientchat https://t.co/WPdEsQcSHW |
| Patient Empowerment Network @power4patients RT @yourgpsdoc: @richardzhao @JackMAiello @power4patients @patientchat @wegohealth is doing a great job organizing patient advocates/experts in a meaningful way. #patientchat |
| Alan Brewington @abrewi3010 It’s ok to be ok please remember! To often patients forget this. #patientchat |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: #SelfAdvocacy is so important to our daily living and self-care. Take care of yourself and then help others. Check out https://t.co/aBxf3J6RF6 for how @BarbyIngle does it! #patientchat https://t.co/WPdEsQcSHW |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: If you would like to donate to a charity that is doing great things and is rated platinum (the highest GuideStar rating) for transparency - Every penny counts! - https://t.co/30O8p0LoO3 #patientchat https://t.co/FvGjw5j4Te |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: Illness and intimacy is important. I discussed this last week on #HealtheVoicesRadio last week - Check it out when you get a chance! https://t.co/EctoBMBrtd #patientchat https://t.co/a0VSRKdlPH |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: Get a strong PCP (main doctor) and have all of your specialists communicate with them on any challenges and options. Brainstorm and study with them, learn know and participate with your team #patientchat |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: Healthy Diet & Exercise education is something we should be starting when kids r in elementary school & reinforced through college. So when we are older, we know & understand the importance of it & use it as prevention instead of after we r already n health troubles #patientchat |
| Patient Empowerment Network @power4patients RT @abrewi3010: It’s ok to be ok please remember! To often patients forget this. #patientchat |
| Richard Zhao @richardzhao If people only talk about changing #healthcare system without doing any contribution, that’s just complaining in my eyes. #PatientCare #Patientchat #PatientCentered |
| International Pain Foundation® @iPainOfficial RT @BarbyIngle: IMHO: IMHO: Pain Management should be done in teams with the patient as the team leader. We should be treating the whole body, mind and spirit! #patientchat #chronicillness #chronicpainisreal #pain https://t.co/nZGoL1UwWZ |
| Patient Chat @patientchat RT @abrewi3010: It’s ok to be ok please remember! To often patients forget this. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @JamieRoger8 @patientchat Sadly, there are a pernicious, and small (gratefully) subset of assholes in #obgyn. And even more sadly, some of 'em are women. #patientchat |
| Jack Aiello @JackMAiello @richardzhao @power4patients @patientchat Maybe “influencing others” is ok when getting folks together. Pts may say “I hadn’t thought of that” or “My experience was different”. Pick the right pts who are able to represent themselves and others (e.g. maybe support group led, or are active on social media). #patientchat |
| Barby Ingle Official @BarbyIngle RT @abrewi3010: It’s ok to be ok please remember! To often patients forget this. #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Alan Brewington @abrewi3010 RT @BarbyIngle: #SelfAdvocacy is so important to our daily living and self-care. Take care of yourself and then help others. Check out https://t.co/aBxf3J6RF6 for how @BarbyIngle does it! #patientchat https://t.co/WPdEsQcSHW |
| Patient Chat @patientchat Also, feel free to share links to your blogs or other good sites that you are passionate about :) #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @richardzhao I've seen zero real-life instances calling for healthcare system change fm anyone unwilling to participate in creating that change. Real-world, tho, those of us who ARE showing up, doing work, ain't valued by the system itself. At least not enough to compensate us. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc CT: Time is a significant barrier to building effective doctor-patient relationships. We must all have an understanding of time and ways we can efficiently bridge the gap and make meaningful connections. #patientchat |
| Jack Aiello @JackMAiello @patientchat Gotta leave a few minutes early. Thanks for hosting. #patientchat |
| Patient Empowerment Network @power4patients Whenever I get discouraged I think about how far we've come with #PatientEmpowerment. As evidenced by this #patientchat we still have a long way to go but we've made progress & that gives me hope & inspiration to keep going. This group give us endless hope & inspiration. TY all! |
| Patient Chat @patientchat RT @yourgpsdoc: CT: CT: Time is a significant barrier to building effective doctor-patient relationships. We must all have an understanding of time and ways we can efficiently bridge the gap and make meaningful connections. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Also, feel free to share links to your blogs or other good sites that you are passionate about :) #patientchat |
| Barby Ingle Official @BarbyIngle CT: We are all individual and need find what works for us personally... use others ideas to come up with a plan that works for us. Dont be guilt-ed into any treatment that you are not OK with. Study, learn and be the best You, You can be. #patientchat |
| Patient Chat @patientchat @JackMAiello Thanks for stopping by Jack! #patientchat |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. I will tweet out the transcript about 15 minutes past the hour |
 | Lillian Lake - Host of #SoulNestingChat @llake @malkabethwendy @patientchat Wow! I hope you have support negotiating your way through this. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc I do a weekly Facebook Live show Mondays at 8pm ET, Navigator Nuggets™️, where I provide useful tips about navigating the healthcare system. We have a wonderful and engaging dialogue. Please join us! https://t.co/kynNvvSCnF #patientchat |
| Patient Chat @patientchat The next Empowered #patientchat will be Friday, March 22nd at 1pm ET | 10am PT. Hope to see you there! https://t.co/LU6GVBkYLX |
| Your GPS Doc, LLC @yourgpsdoc RT @MightyCasey: @richardzhao I've seen zero real-life instances calling for healthcare system change fm anyone unwilling to participate in creating that change. Real-world, tho, those of us who ARE showing up, doing work, ain't valued by the system itself. At least not enough to compensate us. #patientchat |
| Patient Chat @patientchat RT @yourgpsdoc: I do a weekly Facebook Live show Mondays at 8pm ET, Navigator Nuggets™️, where I provide useful tips about navigating the healthcare system. We have a wonderful and engaging dialogue. Please join us! https://t.co/kynNvvSCnF #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @power4patients: Whenever I get discouraged I think about how far we've come with #PatientEmpowerment. As evidenced by this #patientchat we still have a long way to go but we've made progress & that gives me hope & inspiration to keep going. This group give us endless hope & inspiration. TY all! |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake Absolutely. I love this! #patientchat |
| Patient Empowerment Network @power4patients RT @llake: Absolutely. I love this! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @patientchat Thanks for a wonderful discussion! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: The next Empowered #patientchat will be Friday, March 22nd at 1pm ET | 10am PT. Hope to see you there! https://t.co/LU6GVBkYLX |
| Lillian Lake - Host of #SoulNestingChat @llake RT @JackMAiello: Will try again to respond. When asked, I suggest both pt and cg attend support group, go together to doc appts, and have various tasks. Cg can help with research, record labs values, handle insurance paperwork, etc. #patientchat |
 | R @rhrousu @patientchat Doctors need to give specific, detailed info in writing about recovery, aftercare, and restrictions well before a procedure “he won’t be able to drive for two wks, needs a walker & can’t sleep in a waterbed” would have been helpful to know BEFORE the day of discharge #patientchat |
#patientchat content from Twitter.