#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Jamie Roger @JamieRoger8
Hope everyone is staying safe and healthy during this crazy time Jamie from CT AND @SalemOaks #pandemic #COVID19 #patientchat
Carly Flumer (she/her) @carlyflumer
Hey, I’m Carly! I’m an #AYA #thyca patient/survivor. :) #patientchat
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat
Alexa Jett 🦋 @ohhiialexa
Hi #patientchat! Tweeting live from home again in East Texas. I’m Alexa Jett, thyroid cancer survivor and AYA Cancer advocate.
Patient Chat @patientchat
You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/4DHg71lp67 #patientchat
@
#patientchat Greetings! I am Honora. I have been a Myeloma Warrior since 2015. Good Morning/Afternoon!
Janet Kennedy @GetSocialHealth
Greetings, All. Happy to be at #PatientChat and look forward to a great conversation today.
Patient Chat @patientchat
Today on #patientchat we offer you, our participants, the "Mic". You are free to ask ?’s, make comments, share your story, etc.
Patient Chat @patientchat
So, for today we won't have our regular labeled Topic Questions (T1: T2: etc.) but will have more of a free flow discussion. #patientchat
Amanda G @LAlupusLady
RT @patientchat: So, for today we won't have our regular labeled Topic Questions (T1: T2: etc.) but will have more of a free flow discussio…
Amanda G @LAlupusLady
RT @patientchat: Today on #patientchat we offer you, our participants, the "Mic". You are free to ask ?’s, make comments, share your story,…
Patient Empowerment Network @power4patients
RT @patientchat: Today on #patientchat we offer you, our participants, the "Mic". You are free to ask ?’s, make comments, share your story,…
Patient Chat @patientchat
There are some starter ideas in today's event listing to get us started :) https://t.co/Uynd4VWgQR #patientchat
Jamie Roger @JamieRoger8
How is everyone doing while being at home? #patientchat
Patient Chat @patientchat
So here we go… #patientchat
Amanda G @LAlupusLady
Hello @patientchatand friends Hope everyone is doing well. #patientchat https://t.co/6Kvl77Z69Y
Patient Chat @patientchat
What is on your mind today? What empowered patient topics would you like to chat about? Jump right in and get us started! :) #patientchat
Amanda G @LAlupusLady
RT @patientchat: There are some starter ideas in today's event listing to get us started :) https://t.co/Uynd4VWgQR #patientchat
Alexa Jett 🦋 @ohhiialexa
@JamieRoger8 I feel like I’m hitting more of a groove. At first it was hard, but the AYA cancer social programs started kicking in. I also loved that we had #ThyCaTalk again with @ThyCaInc! #patientchat
Amanda G @LAlupusLady
Typing too fast during #patientchat already?
Rachel Kate Hiles🥄🦓 ♿ @ChronicOutreach
Hey #PatientChat. I'm Rachel. I live in Texas and advocate for Complex Regional Pain Syndrome (CRPS), mental health awareness, and low vision. Glad to be here :)
Amanda G @LAlupusLady
RT @patientchat: What is on your mind today? What empowered patient topics would you like to chat about? Jump right in and get us started!…
Jamie Roger @JamieRoger8
@ohhiialexa @ThyCaInc It’s so important to stay connected to our communities and to make sure we are practicing #selfcare during all of this. #patientchat
Patient Empowerment Network @power4patients
I saw this opinion piece on @CNN today. Has anyone experienced something similar during #COVID19? #patientchat https://t.co/ZpYkdLJpoS
Carly Flumer (she/her) @carlyflumer
@JamieRoger8 I’m also thankful for support groups online! I’m joining one with @_OurOdyssey_ tonight. :) #patientchat
Amanda G @LAlupusLady
@patientchat Wondering if anyone else is coping by staying physically distant but socially connected? I watch a lot of IG Live. #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
Hello, all. Mighty Casey here, keyboarding from Richmond VA. Member of #bcsm community, too. Just ended a podcast interview w/[REDACTED USER] - he'll be in next week's ep of @hilarious_is #patientchat
Alexa Jett 🦋 @ohhiialexa
@ChronicOutreach I’m so sorry that you deal with CRPS, both physically and the lack of societal understatement. Thanks for advocating for yourself and the many others with CRPS! #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: What is on your mind today? What empowered patient topics would you like to chat about? Jump right in and get us started!…
Jamie Roger @JamieRoger8
Wonderful group to be a part of! @Srotberg15 #patientchat
Patient Chat @patientchat
@LAlupusLady Same here, I actually did an Instagram Live wine tasting last! #patientchat
Alexa Jett 🦋 @ohhiialexa
@LAlupusLady @patientchat Lots of yoga classes here! #patientchat
Patient Empowerment Network @power4patients
RT @LAlupusLady: @patientchat Wondering if anyone else is coping by staying physically distant but socially connected? I watch a lot of IG…
Amanda G @LAlupusLady
RT @ohhiialexa: @LAlupusLady @patientchat Lots of yoga classes here! #patientchat
@
#patientchat This is my first patient chat, so I am trying to get a sense of how this flows. Doing reasonably well during this time of ‘sheltering in place’. This reminds me so much of how it felt to be at home recovering from a stem cell transplant.
Alexa Jett 🦋 @ohhiialexa
RT @power4patients: I saw this opinion piece on @CNN today. Has anyone experienced something similar during #COVID19? #patientchat https://…
Amanda G @LAlupusLady
@honoramiller Today’s #patientchat is an Open Mic, usually a little more structured. Enjoy and welcome.
Alexa Jett 🦋 @ohhiialexa
I have unfortunately heard this story over and over in #AYACancer support group ☹️ #patientchat
Carly Flumer (she/her) @carlyflumer
@honoramiller Yes, I remember being in quarantine during radioactive iodine therapy. #thyca #patientchat
Patient Chat @patientchat
@honoramiller So glad you could join us today Honora! #patientchat
Amanda G @LAlupusLady
RT @patientchat: @honoramiller So glad you could join us today Honora! #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
Since I've been WFH since 2000, life seems relatively same-same but DAYUM I miss movies, bars, live music, even traveling to DC for meetings! #patientchat
Carly Flumer (she/her) @carlyflumer
@malkabethwendy @patientchat Yes, I feel like this is an extension of my “new normal.” For everyone else, I feel like it’s completely new. Maybe an “advantage?” #patientchat
Our Odyssey @_OurOdyssey_
RT @carlyflumer: @JamieRoger8 I’m also thankful for support groups online! I’m joining one with @_OurOdyssey_ tonight. :) #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
Every single #cancer patient community I interact with is confronting this issue. It's horrifying. #patientchat
Amanda G @LAlupusLady
I remember when I was the only one wearing a mask at the supermarket, now everybody is... #HighRiskCOVID19 and/or trendsetter? #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
One thing to remember in Our Current Situation - "normal" is a dryer setting. I'm here all week. Try the veal. And don't forget to tip the waitstaff! #patientchat
Alexa Jett 🦋 @ohhiialexa
@LAlupusLady I’ve thought this myself! I guess we are trendsetters. #patientchat
Janet Kennedy @GetSocialHealth
What I'm wondering about are the disenfranchised patients impacted by #COVID19. The poor, chronically ill, immuno-compromised and communities of color. How do I help from my home? #patientchat
Patient Chat @patientchat
RT @GetSocialHealth: What I'm wondering about are the disenfranchised patients impacted by #COVID19. The poor, chronically ill, immuno-comp…
Amanda G @LAlupusLady
RT @ohhiialexa: @LAlupusLady I’ve thought this myself! I guess we are trendsetters. #patientchat
Patient Empowerment Network @power4patients
@LAlupusLady Definitely a trendsetter 😷 #patientchat
@
#patientchat I had to really think last Friday when I was due for my infusion, but I did ultimately feel that it was a greater risk to put off chemo. My provider did a lot of pre-screening and I wore a mask for the 5 hour session. But still... creepy-feeling the whole time.
Amanda G @LAlupusLady
The answer is #StayHome until they develop clinically proven treatments or a vaccine... This immune-compromised person thanks you. #patientchat
Alexa Jett 🦋 @ohhiialexa
@ChronicOutreach I personally don’t, but I know people who do. I’ve seen the isolation, lack of awareness with doctors, and the horrible comments that come with a diagnosis like that. Things have to change for CRPS patients. #patientchat
Patient Empowerment Network @power4patients
RT @honoramiller: #patientchat I had to really think last Friday when I was due for my infusion, but I did ultimately feel that it was a gr…
Amanda G @LAlupusLady
@GetSocialHealth FYI @OpGratitude has fun at home projects to thank healthcare heroes... #patientchat
Rachel Kate Hiles🥄🦓 ♿ @ChronicOutreach
@honoramiller #PatientChat I'm a newbie, too. I'm glad you're doing well during this time. That's a tough memory to be facing. I'll be thinking about you.
Amanda G @LAlupusLady
@ChronicOutreach @honoramiller Welcome to #patientchat https://t.co/S4PERe1Uel
Janet Kennedy @GetSocialHealth
@LAlupusLady And for me, that's easy. It's no sacrifice to have heat/AC, TV, internet, food and people who will deliver what I need. I want to do more... #PatientChat
Janet Kennedy @GetSocialHealth
Making facemasks is all I can do but it's not enough. #PatientChat (Ugh - I've made this about me, haven't I?)
Alexa Jett 🦋 @ohhiialexa
@malkabethwendy @patientchat I think this statement shows the goodness of your heart ❤️ Yes, I do worry about others dealing with shock like we did at some point in our patient journeys. #patientchat
Janet Kennedy @GetSocialHealth
@LAlupusLady @OpGratitude Sweet! I'm on it! #PatientChat
Amanda G @LAlupusLady
@GetSocialHealth Do you like art? I am decorating meal bags for @kidsfoodbasket helps the hungry youth of Michigan find joy in their sack suppers. #patientchat
Alexa Jett 🦋 @ohhiialexa
RT @LAlupusLady: @GetSocialHealth FYI @OpGratitude has fun at home projects to thank healthcare heroes... #patientchat
Amanda G @LAlupusLady
RT @GetSocialHealth: @LAlupusLady @OpGratitude Sweet! I'm on it! #PatientChat
Patient Empowerment Network @power4patients
We're going to be publishing 3 more of our #PENPowered Activity Guides so please check it out if you haven't already. And let us know what you'd like to see more of in the next editions #patientchat https://t.co/773ARgUf5C
Alexa Jett 🦋 @ohhiialexa
@LAlupusLady @GetSocialHealth @kidsfoodbasket Oh, that is such a lovely idea! #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
RT @power4patients: We're going to be publishing 3 more of our #PENPowered Activity Guides so please check it out if you haven't already. A…
Amanda G @LAlupusLady
Yesterday I wrote notes to be included in to @FYAbox boxes. There are opportunities to contribute that help you, while helping them. #patientchat
Patient Chat @patientchat
So great to see all of you this Friday! What's on your mind today? #patientchat
Amanda G @LAlupusLady
Thank you for helping #patientchat community stay connected. I appreciate @patientchat https://t.co/Oi3B8g2V57
Alan Brewington @abrewi3010
I’ve found that even walking through my own neighborhood looking for signs of spring can be fun and challenging. To often we think of nature as being in the park or mountains, it’s right outside #patientchat https://t.co/Xzl1kh5ce2
Patient Empowerment Network @power4patients
RT @abrewi3010: I’ve found that even walking through my own neighborhood looking for signs of spring can be fun and challenging. To often w…
Amanda G @LAlupusLady
RT @abrewi3010: I’ve found that even walking through my own neighborhood looking for signs of spring can be fun and challenging. To often w…
Carly Flumer (she/her) @carlyflumer
@abrewi3010 Beautiful! I, too, have been taking pictures of spring-y things. 🌸 #patientchat
Alexa Jett 🦋 @ohhiialexa
@LAlupusLady @patientchat Agreed! #patientchat https://t.co/WrnWYF1pVt
Amanda G @LAlupusLady
RT @ohhiialexa: @LAlupusLady @patientchat Agreed! #patientchat https://t.co/WrnWYF1pVt
Carly Flumer (she/her) @carlyflumer
I’ve been crocheting scarves for battered women in shelters while listening to audiobooks and podcasts. Not related to Covid-19, but it’s my way of giving back. #patientchat
Patient Chat @patientchat
What's everyone's plans for the weekend? Anything fun? #patientchat
Alan Brewington @abrewi3010
@carlyflumer Thanks! It’s a fun game to play and a great #chronicpain distraction #patientchat
Alexa Jett 🦋 @ohhiialexa
@carlyflumer This is great, Carly! I’ve been very concerned about domestic violence and people who are being housed with their abuser right now during #COVID19. This is a way to help! #patientchat
Amanda G @LAlupusLady
Going to dance and enjoy @AngiePontani ‘s GoGoRobics today, Tomorrow is the #TogetherAtHome event, 6 hours before it airs on prime time... Thank you @GlblCtzn [REDACTED USER] and @ladygaga #patientchat plans.
@
#patientchat If the weather cooperates and I have energy at the right time, I am going to do some gardening this weekend. Love digging in the earth!
Janet Kennedy @GetSocialHealth
@carlyflumer That's excellent. Just because #COVID19 has all our attention does not mean that the poor, hungry, sad or lonely don't still have needs. If anything, their needs are greater. #PatientChat
Patient Chat @patientchat
@LAlupusLady @AngiePontani @GlblCtzn [REDACTED USER] @ladygaga Ooh GoGoRobics sounds fun! #patientchat
@Srotberg15
Sorry I couldn’t make it to this one but I hope everyone is staying safe and healthy. Remember to take some time for yourself even if it’s 15 minutes of exercising, journaling, or reading. #patientchat
Amanda G @LAlupusLady
RT @GetSocialHealth: @carlyflumer That's excellent. Just because #COVID19 has all our attention does not mean that the poor, hungry, sad or…
@Srotberg15
@JamieRoger8 Thanks for sharing Jamie! Hope you are doing well. #patientchat
Amanda G @LAlupusLady
Follow @AngiePontani on Instagram today at 3PM Eastern / Noon Pacific, simply fun... she goes live and even has a dance party after we learn the “moves” #patientchat
Alan Brewington @abrewi3010
To often #HealthcareHeroes don’t get to see the positive in our life’s, they only see us at our worse. During #COVID19 if u set a new neighborhood walking record tell ur doc. Did u take amazing photos, show your docs office. Create amazing art, show healthcare. #patientchat
Patient Chat @patientchat
RT @power4patients: We're going to be publishing 3 more of our #PENPowered Activity Guides so please check it out if you haven't already. A…
Amanda G @LAlupusLady
RT @abrewi3010: To often #HealthcareHeroes don’t get to see the positive in our life’s, they only see us at our worse. During #COVID19 if u…
Alexa Jett 🦋 @ohhiialexa
@abrewi3010 This is really a awesome idea! #patientchat
Amanda G @LAlupusLady
@abrewi3010 Send thank you notes via @OpGratitude #patientchat
Alan Brewington @abrewi3010
Hopefully going to some local mountain trails for needed vitamin D and fun! #patientchat
Alan Brewington @abrewi3010
We need to remember to say thank you throughout the year too. #patientchat
Amanda G @LAlupusLady
RT @abrewi3010: We need to remember to say thank you throughout the year too. #patientchat
Shereese Maynard, MS; MBA @ShereeseMayMba
Trying to catch the end of #patientchat https://t.co/1etj0TkMHA
Janet Kennedy @GetSocialHealth
Even with being home for more than a month, I haven't found time to do anything except vacuum and run laundry. I think I'm going to organize my cabinets. #PatientChat #MarieKondo
Alexa Jett 🦋 @ohhiialexa
@ShereesePubHlth There is still time!! #patientchat https://t.co/vbsMNAp4SX
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
Back after a bit of actual work packaging @ACEPNow podcast for the folks at Wiley - gotta earn a living. AFA weekend goes, I'm doing 2019 taxes (PAR-TAY!), catching up on work stuff I couldn't get to this week. IOW, same-same as not-pandemic. #patientchat
Inspire @InspireIsHealth
RT @abrewi3010: I’ve found that even walking through my own neighborhood looking for signs of spring can be fun and challenging. To often w…
Shereese Maynard, MS; MBA @ShereeseMayMba
RT @abrewi3010: I’ve found that even walking through my own neighborhood looking for signs of spring can be fun and challenging. To often w…
Alexa Jett 🦋 @ohhiialexa
@GetSocialHealth I’ve been doing LOTS of #quarantinecleaning and it is amazing. Therapeutic AND helps your daily life! #patientchat
Carly Flumer (she/her) @carlyflumer
@GetSocialHealth #noshame #patientchat
Alexa Jett 🦋 @ohhiialexa
@MightyCasey @ACEPNow Oh man, is the “Casey 2019 Tax Prep Party” invite only? Any celebrities coming? It sounds exclusive. #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
@ohhiialexa @ACEPNow VERY exclusive. Since I'm unlikely to be wearing pants 🤣#patientchat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
Alexa Jett 🦋 @ohhiialexa
@MightyCasey @ACEPNow #patientchat https://t.co/4jT1hYKtRn
Patient Chat @patientchat
Also, feel free to share links to your blogs or other good sites for what you are passionate about :) #patientchat
Alexa Jett 🦋 @ohhiialexa
CT: We could dance! 💃 💃 💃
Alexa Jett 🦋 @ohhiialexa
#patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
Well, there's always my podcast @hilarious_is for anyone's listening pleasure/diversion ... https://t.co/Rd0qNWE6NW #patientchat
Carly Flumer (she/her) @carlyflumer
I’m case you missed it, I joined @teaminspire in their #keepusallsafe campaign. :) https://t.co/09VWHHof6H #patientchat
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. I will tweet out the transcript about 15 minutes past the hour
Amanda G @LAlupusLady
https://t.co/L7hz30k9Kh #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
@carlyflumer @teaminspire Did you work w/Paul Shepherd @PrescriptionSM on that? #patientchat
Patient Chat @patientchat
The next Empowered #patientchat will be Friday, May 1st with special guest @LAlupusLady. Hope to see you there! https://t.co/40G6kGrKue
Carly Flumer (she/her) @carlyflumer
@MightyCasey @teaminspire @PrescriptionSM Yes! He’s the BEST! #patientchat
@Srotberg15
RT @patientchat: Also, feel free to share links to your blogs or other good sites for what you are passionate about :) #patientchat
Amanda G @LAlupusLady
CT Stay safe. Lean in to hope. We are here. #patientchat https://t.co/bvEw0dtDpf
Alexa Jett 🦋 @ohhiialexa
@carlyflumer @teaminspire I learned when I watched this video that Carly has some guns! #patientchat https://t.co/sVjnWeiQRE
Amanda G @LAlupusLady
RT @patientchat: The next Empowered #patientchat will be Friday, May 1st with special guest @LAlupusLady. Hope to see you there! https://t.…
Inspire @InspireIsHealth
RT @carlyflumer: I’m case you missed it, I joined @teaminspire in their #keepusallsafe campaign. :) https://t.co/09VWHHof6H #patientchat
Inspire @InspireIsHealth
@carlyflumer @MightyCasey @PrescriptionSM Paul Shepherd's work with Stanford Medicine X speaks for itself, and he's been great to collaborate with on this campaign.
Janet Kennedy @GetSocialHealth
@carlyflumer @teaminspire I did see that and Congratulations! #PatientChat
Carly Flumer (she/her) @carlyflumer
@ohhiialexa @teaminspire 😂😂 thanks girl! #patientchat
#patientchat content from Twitter.