#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. Iโll share a couple โground rules" :) #patientchat |
 | Jamie Roger @JamieRoger8 Hope everyone is staying safe and healthy during this crazy time Jamie from CT AND @SalemOaks #pandemic #COVID19 #patientchat |
 | Carly Flumer (she/her) @carlyflumer Hey, Iโm Carly! Iโm an #AYA #thyca patient/survivor. :) #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
 | Alexa Jett ๐ฆ @ohhiialexa Hi #patientchat! Tweeting live from home again in East Texas. Iโm Alexa Jett, thyroid cancer survivor and AYA Cancer advocate. |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/4DHg71lp67 #patientchat |
 | Honora Miller @honoramiller #patientchat Greetings! I am Honora. I have been a Myeloma Warrior since 2015. Good Morning/Afternoon! |
 | Janet Kennedy @GetSocialHealth Greetings, All. Happy to be at #PatientChat and look forward to a great conversation today. |
| Patient Chat @patientchat Today on #patientchat we offer you, our participants, the "Mic". You are free to ask ?โs, make comments, share your story, etc. |
| Patient Chat @patientchat So, for today we won't have our regular labeled Topic Questions (T1: T2: etc.) but will have more of a free flow discussion. #patientchat |
 | Amanda G @LAlupusLady RT @patientchat: So, for today we won't have our regular labeled Topic Questions (T1: T2: So, for today we won't have our regular labeled Topic Questions (T1: T2: etc.) but will have more of a free flow discussion. #patientchat |
| Amanda G @LAlupusLady RT @patientchat: Today on #patientchat we offer you, our participants, the "Mic". You are free to ask ?โs, make comments, share your story, etc. |
 | Patient Empowerment Network @power4patients RT @patientchat: Today on #patientchat we offer you, our participants, the "Mic". You are free to ask ?โs, make comments, share your story, etc. |
| Patient Chat @patientchat There are some starter ideas in today's event listing to get us started :) https://t.co/Uynd4VWgQR #patientchat |
| Jamie Roger @JamieRoger8 How is everyone doing while being at home? #patientchat |
| Patient Chat @patientchat So here we goโฆ #patientchat |
| Amanda G @LAlupusLady Hello @patientchatand friends Hope everyone is doing well. #patientchat https://t.co/6Kvl77Z69Y |
| Patient Chat @patientchat What is on your mind today? What empowered patient topics would you like to chat about? Jump right in and get us started! :) #patientchat |
| Amanda G @LAlupusLady RT @patientchat: There are some starter ideas in today's event listing to get us started :) https://t.co/Uynd4VWgQR #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa @JamieRoger8 I feel like Iโm hitting more of a groove. At first it was hard, but the AYA cancer social programs started kicking in. I also loved that we had #ThyCaTalk again with @ThyCaInc! #patientchat |
| Amanda G @LAlupusLady Typing too fast during #patientchat already? |
 | Rachel Kate Hiles๐ฅ๐ฆ โฟ @ChronicOutreach Hey #PatientChat. I'm Rachel. I live in Texas and advocate for Complex Regional Pain Syndrome (CRPS), mental health awareness, and low vision. Glad to be here :) |
| Amanda G @LAlupusLady RT @patientchat: What is on your mind today? What empowered patient topics would you like to chat about? Jump right in and get us started! :) #patientchat |
| Jamie Roger @JamieRoger8 @ohhiialexa @ThyCaInc Itโs so important to stay connected to our communities and to make sure we are practicing #selfcare during all of this. #patientchat |
| Patient Empowerment Network @power4patients I saw this opinion piece on @CNN today. Has anyone experienced something similar during #COVID19? #patientchat https://t.co/ZpYkdLJpoS |
| Carly Flumer (she/her) @carlyflumer @JamieRoger8 Iโm also thankful for support groups online! Iโm joining one with @_OurOdyssey_ tonight. :) #patientchat |
| Amanda G @LAlupusLady @patientchat Wondering if anyone else is coping by staying physically distant but socially connected? I watch a lot of IG Live. #patientchat |
| Patient Chat @patientchat RT @power4patients: I saw this opinion piece on @CNN today. Has anyone experienced something similar during #COVID19? #patientchat https://t.co/ZpYkdLJpoS |
 | Mighty #HeathenSlut Casey๐บ๐ฆ๐ @MightyCasey Hello, all. Mighty Casey here, keyboarding from Richmond VA. Member of #bcsm community, too. Just ended a podcast interview w/@drlfarrell - he'll be in next week's ep of @hilarious_is #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa @ChronicOutreach Iโm so sorry that you deal with CRPS, both physically and the lack of societal understatement. Thanks for advocating for yourself and the many others with CRPS! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: What is on your mind today? What empowered patient topics would you like to chat about? Jump right in and get us started! :) #patientchat |
| Jamie Roger @JamieRoger8 Wonderful group to be a part of! @Srotberg15 #patientchat |
| Patient Chat @patientchat @LAlupusLady Same here, I actually did an Instagram Live wine tasting last! #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa @LAlupusLady @patientchat Lots of yoga classes here! #patientchat |
| Patient Empowerment Network @power4patients RT @LAlupusLady: @patientchat Wondering if anyone else is coping by staying physically distant but socially connected? I watch a lot of IG Live. #patientchat |
| Amanda G @LAlupusLady RT @patientchat: @LAlupusLady Same here, I actually did an Instagram Live wine tasting last! #patientchat |
| Amanda G @LAlupusLady RT @ohhiialexa: @LAlupusLady @patientchat Lots of yoga classes here! #patientchat |
| Honora Miller @honoramiller #patientchat This is my first patient chat, so I am trying to get a sense of how this flows. Doing reasonably well during this time of โsheltering in placeโ. This reminds me so much of how it felt to be at home recovering from a stem cell transplant. |
| Alexa Jett ๐ฆ @ohhiialexa RT @power4patients: I saw this opinion piece on @CNN today. Has anyone experienced something similar during #COVID19? #patientchat https://t.co/ZpYkdLJpoS |
| Amanda G @LAlupusLady @honoramiller Todayโs #patientchat is an Open Mic, usually a little more structured. Enjoy and welcome. |
| Alexa Jett ๐ฆ @ohhiialexa I have unfortunately heard this story over and over in #AYACancer support group โน๏ธ #patientchat |
| Carly Flumer (she/her) @carlyflumer @honoramiller Yes, I remember being in quarantine during radioactive iodine therapy. #thyca #patientchat |
| Patient Chat @patientchat @honoramiller So glad you could join us today Honora! #patientchat |
| Amanda G @LAlupusLady RT @patientchat: @honoramiller So glad you could join us today Honora! #patientchat |
| Mighty #HeathenSlut Casey๐บ๐ฆ๐ @MightyCasey Since I've been WFH since 2000, life seems relatively same-same but DAYUM I miss movies, bars, live music, even traveling to DC for meetings! #patientchat |
| Carly Flumer (she/her) @carlyflumer @malkabethwendy @patientchat Yes, I feel like this is an extension of my โnew normal.โ For everyone else, I feel like itโs completely new. Maybe an โadvantage?โ #patientchat |
 | Our Odyssey @_OurOdyssey_ RT @carlyflumer: @JamieRoger8 Iโm also thankful for support groups online! Iโm joining one with @_OurOdyssey_ tonight. :) #patientchat |
| Mighty #HeathenSlut Casey๐บ๐ฆ๐ @MightyCasey Every single #cancer patient community I interact with is confronting this issue. It's horrifying. #patientchat |
| Amanda G @LAlupusLady I remember when I was the only one wearing a mask at the supermarket, now everybody is... #HighRiskCOVID19 and/or trendsetter? #patientchat |
| Mighty #HeathenSlut Casey๐บ๐ฆ๐ @MightyCasey One thing to remember in Our Current Situation - "normal" is a dryer setting. I'm here all week. Try the veal. And don't forget to tip the waitstaff! #patientchat |
| Amanda G @LAlupusLady RT @MightyCasey: One thing to remember in Our Current Situation - "normal" is a dryer setting. I'm here all week. Try the veal. And don't forget to tip the waitstaff! #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa @LAlupusLady Iโve thought this myself! I guess we are trendsetters. #patientchat |
| Janet Kennedy @GetSocialHealth What I'm wondering about are the disenfranchised patients impacted by #COVID19. The poor, chronically ill, immuno-compromised and communities of color. How do I help from my home? #patientchat |
| Patient Chat @patientchat RT @GetSocialHealth: What I'm wondering about are the disenfranchised patients impacted by #COVID19. The poor, chronically ill, immuno-compromised and communities of color. How do I help from my home? #patientchat |
| Amanda G @LAlupusLady RT @ohhiialexa: @LAlupusLady Iโve thought this myself! I guess we are trendsetters. #patientchat |
| Patient Empowerment Network @power4patients @LAlupusLady Definitely a trendsetter ๐ท #patientchat |
| Honora Miller @honoramiller #patientchat I had to really think last Friday when I was due for my infusion, but I did ultimately feel that it was a greater risk to put off chemo. My provider did a lot of pre-screening and I wore a mask for the 5 hour session. But still... creepy-feeling the whole time. |
| Patient Empowerment Network @power4patients RT @GetSocialHealth: What I'm wondering about are the disenfranchised patients impacted by #COVID19. The poor, chronically ill, immuno-compromised and communities of color. How do I help from my home? #patientchat |
| Amanda G @LAlupusLady The answer is #StayHome until they develop clinically proven treatments or a vaccine... This immune-compromised person thanks you. #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa @ChronicOutreach I personally donโt, but I know people who do. Iโve seen the isolation, lack of awareness with doctors, and the horrible comments that come with a diagnosis like that. Things have to change for CRPS patients. #patientchat |
| Patient Empowerment Network @power4patients RT @honoramiller: #patientchat I had to really think last Friday when I was due for my infusion, but I did ultimately feel that it was a greater risk to put off chemo. My provider did a lot of pre-screening and I wore a mask for the 5 hour session. But still... creepy-feeling the whole time. |
| Amanda G @LAlupusLady @GetSocialHealth FYI @OpGratitude has fun at home projects to thank healthcare heroes... #patientchat |
| Rachel Kate Hiles๐ฅ๐ฆ โฟ @ChronicOutreach @honoramiller #PatientChat I'm a newbie, too. I'm glad you're doing well during this time. That's a tough memory to be facing. I'll be thinking about you. |
| Amanda G @LAlupusLady @ChronicOutreach @honoramiller Welcome to #patientchat https://t.co/S4PERe1Uel |
| Janet Kennedy @GetSocialHealth @LAlupusLady And for me, that's easy. It's no sacrifice to have heat/AC, TV, internet, food and people who will deliver what I need. I want to do more... #PatientChat |
| Janet Kennedy @GetSocialHealth Making facemasks is all I can do but it's not enough. #PatientChat (Ugh - I've made this about me, haven't I?) |
| Alexa Jett ๐ฆ @ohhiialexa @malkabethwendy @patientchat I think this statement shows the goodness of your heart โค๏ธ Yes, I do worry about others dealing with shock like we did at some point in our patient journeys. #patientchat |
| Janet Kennedy @GetSocialHealth @LAlupusLady @OpGratitude Sweet! I'm on it! #PatientChat |
| Amanda G @LAlupusLady @GetSocialHealth Do you like art? I am decorating meal bags for @kidsfoodbasket helps the hungry youth of Michigan find joy in their sack suppers. #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa RT @LAlupusLady: @GetSocialHealth FYI @OpGratitude has fun at home projects to thank healthcare heroes... #patientchat |
| Amanda G @LAlupusLady RT @GetSocialHealth: @LAlupusLady @OpGratitude Sweet! I'm on it! #PatientChat |
| Patient Empowerment Network @power4patients We're going to be publishing 3 more of our #PENPowered Activity Guides so please check it out if you haven't already. And let us know what you'd like to see more of in the next editions #patientchat https://t.co/773ARgUf5C |
| Alexa Jett ๐ฆ @ohhiialexa @LAlupusLady @GetSocialHealth @kidsfoodbasket Oh, that is such a lovely idea! #patientchat |
| Mighty #HeathenSlut Casey๐บ๐ฆ๐ @MightyCasey RT @power4patients: We're going to be publishing 3 more of our #PENPowered Activity Guides so please check it out if you haven't already. And let us know what you'd like to see more of in the next editions #patientchat https://t.co/773ARgUf5C |
| Amanda G @LAlupusLady Yesterday I wrote notes to be included in to @FYAbox boxes. There are opportunities to contribute that help you, while helping them. #patientchat |
| Patient Chat @patientchat So great to see all of you this Friday! What's on your mind today? #patientchat |
| Amanda G @LAlupusLady Thank you for helping #patientchat community stay connected. I appreciate @patientchat https://t.co/Oi3B8g2V57 |
 | Alan Brewington @abrewi3010 Iโve found that even walking through my own neighborhood looking for signs of spring can be fun and challenging. To often we think of nature as being in the park or mountains, itโs right outside #patientchat https://t.co/Xzl1kh5ce2 |
| Patient Empowerment Network @power4patients RT @abrewi3010: Iโve found that even walking through my own neighborhood looking for signs of spring can be fun and challenging. To often we think of nature as being in the park or mountains, itโs right outside #patientchat https://t.co/Xzl1kh5ce2 |
| Amanda G @LAlupusLady RT @abrewi3010: Iโve found that even walking through my own neighborhood looking for signs of spring can be fun and challenging. To often we think of nature as being in the park or mountains, itโs right outside #patientchat https://t.co/Xzl1kh5ce2 |
| Carly Flumer (she/her) @carlyflumer @abrewi3010 Beautiful! I, too, have been taking pictures of spring-y things. ๐ธ #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa @LAlupusLady @patientchat Agreed! #patientchat https://t.co/WrnWYF1pVt |
| Amanda G @LAlupusLady RT @ohhiialexa: @LAlupusLady @patientchat Agreed! #patientchat https://t.co/WrnWYF1pVt |
| Carly Flumer (she/her) @carlyflumer Iโve been crocheting scarves for battered women in shelters while listening to audiobooks and podcasts. Not related to Covid-19, but itโs my way of giving back. #patientchat |
| Patient Chat @patientchat What's everyone's plans for the weekend? Anything fun? #patientchat |
| Alan Brewington @abrewi3010 @carlyflumer Thanks! Itโs a fun game to play and a great #chronicpain distraction #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa @carlyflumer This is great, Carly! Iโve been very concerned about domestic violence and people who are being housed with their abuser right now during #COVID19. This is a way to help! #patientchat |
| Amanda G @LAlupusLady Going to dance and enjoy @AngiePontani โs GoGoRobics today, Tomorrow is the #TogetherAtHome event, 6 hours before it airs on prime time... Thank you @GlblCtzn @WHO and @ladygaga #patientchat plans. |
| Honora Miller @honoramiller #patientchat If the weather cooperates and I have energy at the right time, I am going to do some gardening this weekend. Love digging in the earth! |
| Janet Kennedy @GetSocialHealth @carlyflumer That's excellent. Just because #COVID19 has all our attention does not mean that the poor, hungry, sad or lonely don't still have needs. If anything, their needs are greater. #PatientChat |
| Patient Chat @patientchat @LAlupusLady @AngiePontani @GlblCtzn @WHO @ladygaga Ooh GoGoRobics sounds fun! #patientchat |
 | Seth Rotberg @Srotberg15 Sorry I couldnโt make it to this one but I hope everyone is staying safe and healthy. Remember to take some time for yourself even if itโs 15 minutes of exercising, journaling, or reading. #patientchat |
| Amanda G @LAlupusLady RT @GetSocialHealth: @carlyflumer That's excellent. Just because #COVID19 has all our attention does not mean that the poor, hungry, sad or lonely don't still have needs. If anything, their needs are greater. #PatientChat |
| Seth Rotberg @Srotberg15 @JamieRoger8 Thanks for sharing Jamie! Hope you are doing well. #patientchat |
| Amanda G @LAlupusLady Follow @AngiePontani on Instagram today at 3PM Eastern / Noon Pacific, simply fun... she goes live and even has a dance party after we learn the โmovesโ #patientchat |
| Alan Brewington @abrewi3010 To often #HealthcareHeroes donโt get to see the positive in our lifeโs, they only see us at our worse. During #COVID19 if u set a new neighborhood walking record tell ur doc. Did u take amazing photos, show your docs office. Create amazing art, show healthcare. #patientchat |
| Patient Chat @patientchat RT @power4patients: We're going to be publishing 3 more of our #PENPowered Activity Guides so please check it out if you haven't already. And let us know what you'd like to see more of in the next editions #patientchat https://t.co/773ARgUf5C |
| Amanda G @LAlupusLady RT @abrewi3010: To often #HealthcareHeroes donโt get to see the positive in our lifeโs, they only see us at our worse. During #COVID19 if u set a new neighborhood walking record tell ur doc. Did u take amazing photos, show your docs office. Create amazing art, show healthcare. #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa @abrewi3010 This is really a awesome idea! #patientchat |
| Alan Brewington @abrewi3010 Hopefully going to some local mountain trails for needed vitamin D and fun! #patientchat |
| Amanda G @LAlupusLady @abrewi3010 Send thank you notes via @OpGratitude #patientchat |
| Alan Brewington @abrewi3010 We need to remember to say thank you throughout the year too. #patientchat |
| Amanda G @LAlupusLady RT @abrewi3010: We need to remember to say thank you throughout the year too. #patientchat |
 | Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba Trying to catch the end of #patientchat https://t.co/1etj0TkMHA |
| Janet Kennedy @GetSocialHealth Even with being home for more than a month, I haven't found time to do anything except vacuum and run laundry. I think I'm going to organize my cabinets. #PatientChat #MarieKondo |
| Alexa Jett ๐ฆ @ohhiialexa @ShereesePubHlth There is still time!! #patientchat https://t.co/vbsMNAp4SX |
| Mighty #HeathenSlut Casey๐บ๐ฆ๐ @MightyCasey Back after a bit of actual work packaging @ACEPNow podcast for the folks at Wiley - gotta earn a living. AFA weekend goes, I'm doing 2019 taxes (PAR-TAY!), catching up on work stuff I couldn't get to this week. IOW, same-same as not-pandemic. #patientchat |
 | Inspire @InspireIsHealth RT @abrewi3010: Iโve found that even walking through my own neighborhood looking for signs of spring can be fun and challenging. To often we think of nature as being in the park or mountains, itโs right outside #patientchat https://t.co/Xzl1kh5ce2 |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @abrewi3010: Iโve found that even walking through my own neighborhood looking for signs of spring can be fun and challenging. To often we think of nature as being in the park or mountains, itโs right outside #patientchat https://t.co/Xzl1kh5ce2 |
| Alexa Jett ๐ฆ @ohhiialexa @GetSocialHealth Iโve been doing LOTS of #quarantinecleaning and it is amazing. Therapeutic AND helps your daily life! #patientchat |
| Carly Flumer (she/her) @carlyflumer @GetSocialHealth #noshame #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa @MightyCasey @ACEPNow Oh man, is the โCasey 2019 Tax Prep Partyโ invite only? Any celebrities coming? It sounds exclusive. #patientchat |
| Mighty #HeathenSlut Casey๐บ๐ฆ๐ @MightyCasey @ohhiialexa @ACEPNow VERY exclusive. Since I'm unlikely to be wearing pants ๐คฃ#patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa @MightyCasey @ACEPNow #patientchat https://t.co/4jT1hYKtRn |
| Patient Chat @patientchat Also, feel free to share links to your blogs or other good sites for what you are passionate about :) #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa CT: We could dance! ๐ ๐ ๐ |
| Alexa Jett ๐ฆ @ohhiialexa #patientchat |
| Mighty #HeathenSlut Casey๐บ๐ฆ๐ @MightyCasey Well, there's always my podcast @hilarious_is for anyone's listening pleasure/diversion ... https://t.co/Rd0qNWE6NW #patientchat |
 | Barby Ingle Official @BarbyIngle RT @MightyCasey: One thing to remember in Our Current Situation - "normal" is a dryer setting. I'm here all week. Try the veal. And don't forget to tip the waitstaff! #patientchat |
| Carly Flumer (she/her) @carlyflumer Iโm case you missed it, I joined @teaminspire in their #keepusallsafe campaign. :) https://t.co/09VWHHof6H #patientchat |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. I will tweet out the transcript about 15 minutes past the hour |
| Amanda G @LAlupusLady https://t.co/L7hz30k9Kh #patientchat |
| Mighty #HeathenSlut Casey๐บ๐ฆ๐ @MightyCasey @carlyflumer @teaminspire Did you work w/Paul Shepherd @PrescriptionSM on that? #patientchat |
| Patient Chat @patientchat The next Empowered #patientchat will be Friday, May 1st with special guest @LAlupusLady. Hope to see you there! https://t.co/40G6kGrKue |
| Carly Flumer (she/her) @carlyflumer @MightyCasey @teaminspire @PrescriptionSM Yes! Heโs the BEST! #patientchat |
| Seth Rotberg @Srotberg15 RT @patientchat: Also, feel free to share links to your blogs or other good sites for what you are passionate about :) #patientchat |
| Alexa Jett ๐ฆ @ohhiialexa @carlyflumer @teaminspire I learned when I watched this video that Carly has some guns! #patientchat https://t.co/sVjnWeiQRE |
| Amanda G @LAlupusLady CT Stay safe. Lean in to hope. We are here. #patientchat https://t.co/bvEw0dtDpf |
| Amanda G @LAlupusLady RT @patientchat: The next Empowered #patientchat will be Friday, May 1st with special guest @LAlupusLady. Hope to see you there! https://t.co/40G6kGrKue |
| Inspire @InspireIsHealth RT @carlyflumer: Iโm case you missed it, I joined @teaminspire in their #keepusallsafe campaign. :) https://t.co/09VWHHof6H #patientchat |
| Janet Kennedy @GetSocialHealth @carlyflumer @teaminspire I did see that and Congratulations! #PatientChat |
| Carly Flumer (she/her) @carlyflumer @ohhiialexa @teaminspire ๐๐ thanks girl! #patientchat |
#patientchat content from Twitter.