#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself #patientchat |
| Patient Chat @patientchat Excited to have guest @HealthSparq here, who is dedicated to empowering people to make smarter health care choices, co-hosting today’s #patientchat |
 | Kimberly Amelia @fireflyrn84 Kim here from Wisconsin. Thrilled to be co-hosting #patientchat with @HealthSparq and fellow #WTFix DAB members. I'm living with multiple #rarediseases and #chronicillnesses. Also a #patientadvocate and #blogger for the healthcare journey and continuum. |
 | Geeky Fox @TechKitsune Hello! I'm Geeky Fox and I am a HealthIT marketer by background and patient of course. :) #patientchat |
 | Parijat - On 🧵s & 🐘 & 💙sky @ParijatDesh RT @ParijatDesh: Who you trust during #infertility , your #highriskpregnancy or when you have a #baby in the #NICU can make or break your experience. The 3 main places you must make sure to place your trust so you don't have any guilt or regret going forward. https://t.co/Z85rPhRckF #patientchat https://t.co/rgBT1hfcGU |
 | Lisa Davis Budzinski @lisadbudzinski RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat w/@HealthSparq here: You can find the topics we'll cover on today’s Empowered #patientchat w/@HealthSparq here: https://t.co/I3De6XRfwC |
 | Inspire @InspireIsHealth Hello to #patientchat, John Novack here on behalf of healthcare social network Inspire. I'm proud to be a Digital Advisory Board member for the upcoming #WTFix conference. |
 | Vera Rulon FAHIMA @vrulon #patientchat Vera here... from NY (where it's finally warm :) ) |
| Patient Chat @patientchat Join @HealthSparq’s #WTFix conference on May 17th for a full day of inspiring stories to change #healthcare. Register here: https://t.co/rJJR4qtDCm #patientchat |
| Patient Chat @patientchat You can find out more about @HealthSparq here: https://t.co/2swNZ8sRRh #patientchat |
 | HealthSparq @HealthSparq So excited to be here w/ @patientchat, hosting #PatientChat with some of our #WTFix Digital Advisory Board members! https://t.co/VHBW8cOIWc |
| Kimberly Amelia @fireflyrn84 @TechKitsune So glad that you're joining us! #patientchat #WTFix |
| HealthSparq @HealthSparq RT @fireflyrn84: Kim here from Wisconsin. Thrilled to be co-hosting #patientchat with @HealthSparq and fellow #WTFix DAB members. I'm living with multiple #rarediseases and #chronicillnesses. Also a #patientadvocate and #blogger for the healthcare journey and continuum. |
 | Max Stroud @MMaxwellStroud Hi Everyone! Max here! Lead Consultant with @GalenHealthcare working in #HealthIT and occasional speaker at conferences talking about #patientengagement and #patientstories with folks like @iestroud and @LAlupusLady #patientchat |
 | laminopathies support group @laminopathies Hi I'm Mary, a patient/advocate @Laminopathies #patientchat |
 | Your GPS Doc, LLC @yourgpsdoc Hi! Nicole Rochester- Physician, former caregiver, health advocate, CEO of Your GPS Doc, LLC. #patientchat |
| Patient Chat @patientchat I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat |
| Kimberly Amelia @fireflyrn84 @teaminspire Hey John! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients |
 | ElizabethKelly, Ph.D @Elizabe85727641 Hello all, Liz Kelly, can this conversation affect change in conference planning? #patientchat |
| Max Stroud @MMaxwellStroud RT @HealthSparq: So excited to be here w/ @patientchat, hosting #PatientChat with some of our #WTFix Digital Advisory Board members! https://t.co/VHBW8cOIWc |
 | Kevin Freiert @K_SalemOaks Kevin from Connecticut tweeting in from Western NY #patientchat #Billsfan |
| Kimberly Amelia @fireflyrn84 @MMaxwellStroud @GalenHealthcare @iestroud @LAlupusLady Hi Max! #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
 | Patient Critical Co-op @PatientCritical Hello, my name is PJ Mierau. I'm the Managing Director of Canada's 100% member-patient owned healthcare advocacy & education co-op @PatientCritical. Good to be representing our members for another #patientchat |
| Kimberly Amelia @fireflyrn84 #patientchat https://t.co/KZ7jIaXRi2 |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: You can find out more about @HealthSparq here: You can find out more about @HealthSparq here: https://t.co/2swNZ8sRRh #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking w/a doctor who's familiar w/your medical needs & history #patientchat |
 | Alan Brewington @abrewi3010 Alan here. Recovering from my third week of C2-C4 cervical spine injections. My story includes #rheum, #chronicpain, #mentalhealth, #photography, possibly #mountainbiking. #patientchat https://t.co/OeycHm5TgG |
 | Angela Cohen @angelee828 Hey All! Angela joining from Wisconsin. I'm excited to be joining in on this #patientchat today!! 😀👋🏽 https://t.co/k9TLJUyr9r |
| HealthSparq @HealthSparq RT @patientchat: Join @HealthSparq’s #WTFix conference on May 17th for a full day of inspiring stories to change #healthcare. Register here: https://t.co/rJJR4qtDCm #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/6INB5Pmjv3 #patientchat |
| Kimberly Amelia @fireflyrn84 You don't want to miss #WTFix 2018, last year was amazing, but this year is going to blow your socks off. Let's kick the hell out of healthcare again! #patientchat https://t.co/EXwZ3YICp5 |
 | Enlightening Results 💡 @GraceCordovano Happy Friday #patientchat! Grace, private patient advocate & #PtExp enhancer, joining from NJ! Who's counting the days until #WTFix?! https://t.co/q6Umx8jYl8 |
| Patient Chat @patientchat Today's #patientchat topic is Including Patients and Care Partners: Let's Talk Healthcare Conferences https://t.co/4adf8e9pPh |
| HealthSparq @HealthSparq @annerskg here on the HealthSparq handle from #PDX this morning, so excited for today's conversation all about including #patients & #carepartners in #healthcare conferences! #patientchat |
 | Jamie Holloway, PhD @jamienholloway Happy Friday, #patientchat crew! I'm Jamie, breast cancer scientist, patient, now advocate. Clinical research advocate with @Science37x. |
| Lisa Davis Budzinski @lisadbudzinski Hello everyone! Lisa here from Florida. Co-founder @Cpnervecenter with fabulous partner @bbhomebody Advocate for #intractablepain & from #PatientPerspective #patientchat #WTFix |
| Kimberly Amelia @fireflyrn84 @RarePOV so glad to have you with us today! #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
 | John M. Trumbo 🖋 @JohnMTrumbo Happy to be joining #patientchat today |
 | Patient Empowerment Network @power4patients @RarePOV Hey Stephanie! Glad you're here! #patientchat |
| Kimberly Amelia @fireflyrn84 @abrewi3010 Good to see you Alan! Hope you're feeling better. #patientchat |
| Max Stroud @MMaxwellStroud RT @patientchat: Today's #patientchat topic is Including Patients and Care Partners: Today's #patientchat topic is Including Patients and Care Partners: Let's Talk Healthcare Conferences https://t.co/4adf8e9pPh |
| Kimberly Amelia @fireflyrn84 @lisadbudzinski @Cpnervecenter @bbhomebody Hey Lisa! #patientchat |
| Enlightening Results 💡 @GraceCordovano @bbhomebody @Cpnervecenter @lisadbudzinski Hi Becky! Great to see you! #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| Patient Chat @patientchat T1: For conference organizers, what’s the benefit in involving patients and care partners? #patientchat |
 | burtrosen 🟦 @burtrosen burt's here from @HealthSparq and #WTFix excited for today's chat! #PatientChat |
| Enlightening Results 💡 @GraceCordovano @lisadbudzinski @Cpnervecenter @bbhomebody Hey Lisa! Happy Friday!! #patientchat |
| Kimberly Amelia @fireflyrn84 @GraceCordovano @HealthSparq @patientchat @lisadbudzinski @EMRAnswers @LillyStairs @burtrosen @teaminspire @WheezyNurse @MMaxwellStroud Yay! Great to see you Grace! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @abrewi3010 I have been dealing with C5-C7 pain due to bulging discs and bony arthritic changes for 3 weeks. Worst pain ever but it’s finally better just before I was scheduled for injections. Hope you feel better! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @fireflyrn84 @Cpnervecenter @bbhomebody #patientchat https://t.co/z5g4GhgajU |
 | Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO Chuck! #patientchat Here because I started a series of chats in virtual reality, and guess what? A majority of attendees are not HIT professionals, rather, they are patients interested in VR! |
| HealthSparq @HealthSparq @JohnMTrumbo Hi John! #patientchat |
| Enlightening Results 💡 @GraceCordovano @jamienholloway @Science37x Hi Jaime! It's been too long! Been missing my chats at #bcsm. Need to get back asap. Need 1 more week. #patientchat |
| Alan Brewington @abrewi3010 @fireflyrn84 Thank you! Good to see you too 🙏 #patientchat |
| Max Stroud @MMaxwellStroud RT @patientchat: T1: T1: For conference organizers, what’s the benefit in involving patients and care partners? #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T1: T1: For conference organizers, what’s the benefit in involving patients and care partners? #patientchat |
| Enlightening Results 💡 @GraceCordovano @HealthSparq @annerskg Great to see you Anna! #Patientchat |
| Lisa Davis Budzinski @lisadbudzinski @bbhomebody @Cpnervecenter #PatientChat https://t.co/gpFmnWIXyb |
| Vera Rulon FAHIMA @vrulon @GraceCordovano Hello @GraceCordovano !! #PatientChat |
| HealthSparq @HealthSparq @bbhomebody @Cpnervecenter @lisadbudzinski Hi Becky! Thank you for joining! #patientchat |
 | Christina Lizaso @btrfly12 RT @patientchat: T1: T1: For conference organizers, what’s the benefit in involving patients and care partners? #patientchat |
| Enlightening Results 💡 @GraceCordovano @RarePOV Great to have you here Stephanie! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: For conference organizers, what’s the benefit in involving patients and care partners? #patientchat |
| Kimberly Amelia @fireflyrn84 @bbhomebody @Cpnervecenter @lisadbudzinski Hey Becky! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @Cpnervecenter @bbhomebody Hi Grace! #PatientChat https://t.co/ej1FVgrk8h |
| Jamie Holloway, PhD @jamienholloway @GraceCordovano @Science37x We've missed you too! But I totally understand, life gets busy and complicated! #patientchat |
| Enlightening Results 💡 @GraceCordovano @abrewi3010 Hi Alan! Sending healing vibes! Glad you could join us. #patientchat |
| Kimberly Amelia @fireflyrn84 @HealthSparq @annerskg Hi Anna! #patientchat |
| Alan Brewington @abrewi3010 @yourgpsdoc The pain is rough! Good luck to you, fingers crossed for you 🙏 #patientchat |
| Enlightening Results 💡 @GraceCordovano @fireflyrn84 Hi Kim! How are you doing today? Been thinking about you. #patientchat |
| Max Stroud @MMaxwellStroud Folks with chronic illness are the "superusers" of healthcare systems, they can tell you where the pain-points are in the healthcare delivery system and give you valuable insights you can't see from the inside. #patientchat |
| Kevin Freiert @K_SalemOaks T1. Adds value to the conference by creating a place for #pharma to bump into #patients and have #realconversations. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @wareFLO Yes! #PatientChat https://t.co/0u5qwQzH7V |
| Geeky Fox @TechKitsune T1: Education, they get to see what is out there! They get to experience panels that educate and inspire new ideas. They get to see how #healthcare works. #patientchat |
| Enlightening Results 💡 @GraceCordovano @K_SalemOaks Great to see you Kevin. How is your mother-in-law? #patientchat |
| HealthSparq @HealthSparq In case you haven't met our #WTFix Digital Advisory Board, get to know a little more about them & what we're up to at: https://t.co/oFfnAxZlhu #patientchat |
 | Dr. Kelly Shanahan @stage4kelly Hi everyone! Kelly, former ob/gyn current metastatic breast cancer patient & advocate, joining from beautiful Lake Tahoe #patientchat |
| Enlightening Results 💡 @GraceCordovano @patientchat @power4patients Great to see you Kara! Hope all is well #patientchat |
| Christina Lizaso @btrfly12 Waving "Hi" to #patientchat and sorry I can't stay. If you are around Twitter, jump right in for a great discussion on patient/carepartner participation in conferences. #patientsincluded |
| Alan Brewington @abrewi3010 T1 Conferences can finally claim to have #everyoneincluded #medx #patientchat |
| Kimberly Amelia @fireflyrn84 @burtrosen @HealthSparq Long time no see, Burt! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @HealthSparq: In case you haven't met our #WTFix Digital Advisory Board, get to know a little more about them & what we're up to at: In case you haven't met our #WTFix Digital Advisory Board, get to know a little more about them & what we're up to at: https://t.co/oFfnAxZlhu #patientchat |
| Jamie Holloway, PhD @jamienholloway @stage4kelly Hi Kelly! #PatientChat |
| Enlightening Results 💡 @GraceCordovano @MMaxwellStroud @GalenHealthcare @iestroud @LAlupusLady HI Max! Happy Friday! #patientchat |
| Patient Chat @patientchat RT @K_SalemOaks: T1. Adds value to the conference by creating a place for #pharma to bump into #patients and have #realconversations. #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: Today's #patientchat topic is Including Patients and Care Partners: Today's #patientchat topic is Including Patients and Care Partners: Let's Talk Healthcare Conferences https://t.co/4adf8e9pPh |
| Vera Rulon FAHIMA @vrulon T1: Benefits - listening and acting on #patient #caregiver concerns, ideas - making them partners in healthcare (not dictate, patronize) - only way for meaning change #PatientChat |
| laminopathies support group @laminopathies T1. Not involving them makes no sense. Daily living with the disease, everyone at conference needs to learn what that takes #PatientChat |
| Patient Empowerment Network @power4patients T1: Can I just say that it still shocks & amazes me that patients aren't ALWAYS included in conferences? #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: Join @HealthSparq’s #WTFix conference on May 17th for a full day of inspiring stories to change #healthcare. Register here: https://t.co/rJJR4qtDCm #patientchat |
| Patient Critical Co-op @PatientCritical T1: For conference organizers, what’s the benefit in involving patients and care partners? #patientchat |
| Kimberly Amelia @fireflyrn84 RT @HealthSparq: In case you haven't met our #WTFix Digital Advisory Board, get to know a little more about them & what we're up to at: In case you haven't met our #WTFix Digital Advisory Board, get to know a little more about them & what we're up to at: https://t.co/oFfnAxZlhu #patientchat |
| Max Stroud @MMaxwellStroud RT @HealthSparq: In case you haven't met our #WTFix Digital Advisory Board, get to know a little more about them & what we're up to at: In case you haven't met our #WTFix Digital Advisory Board, get to know a little more about them & what we're up to at: https://t.co/oFfnAxZlhu #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T1: Including patients and care partners in conferences provides opportunities to represent well-rounded, inclusive perspectives. Extremely valuable for HCP, patients, and care partners. #patientchat https://t.co/irGWfSWrQM |
| Enlightening Results 💡 @GraceCordovano #Patients WANT to know more about digital health & tech!! #patientchat https://t.co/bz51nKoGDX |
 | Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients |
| HealthSparq @HealthSparq 👇 #WTFix #PatientChat https://t.co/9MCo5VCSZD |
| Enlightening Results 💡 @GraceCordovano @wareFLO Great to see you Chuck! #patientchat |
| Jamie Holloway, PhD @jamienholloway T1: Patients at conferences build new collaborations, challenge new ideas, bring a sense of urgency and reality to a more abstract concept of science and healthcare #PatientChat |
| Your GPS Doc, LLC @yourgpsdoc @abrewi3010 Thank you! Same to you! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski T1 By engaging the end user in the conversation will bring about more insight as recognized by: https://t.co/s69HoEGUJZ BMJ Patient Involvement #patientchat |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @lisadbudzinski Lisa & @bbhomebody were the very first folks to take the plunge #patientchat |
| Enlightening Results 💡 @GraceCordovano @burtrosen @HealthSparq Hi Burt! Great to see you! Pumped for today's chat. #patientchat #wtfix |
| Dr. Kelly Shanahan @stage4kelly T1. Patients are the ultimate stakeholders. we will work harder than anyone to drive research, report outcomes, figure out solutions #patientchat |
| Max Stroud @MMaxwellStroud RT @power4patients: T1: T1: Can I just say that it still shocks & amazes me that patients aren't ALWAYS included in conferences? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @wareFLO: @lisadbudzinski Lisa & @bbhomebody were the very first folks to take the plunge #patientchat |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hello community. I'm Shereese, fierce advocate, writer, and healthcare tech strategist in Maryland #patientchat https://t.co/aoJwTGttW9 |
| Kimberly Amelia @fireflyrn84 @GraceCordovano Totally wiped out, I'm awake for the chat and then am going back down for the day. The first round of neuro dosing #IVIg royally kicked my butt. Horrible body aches, nausea and shakes. Got out of ICU yesterday...one day at a time #patientchat |
| Vera Rulon FAHIMA @vrulon @yourgpsdoc "Nothing about us without us" #PatientChat |
 | Melissa VanHouten @melissarvh A1 Relationship-building & knowledge of the patient perspective (which, I assume, matters to most organizing and attending). #patientchat |
| HealthSparq @HealthSparq RT @patientchat: T1: T1: For conference organizers, what’s the benefit in involving patients and care partners? #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake Hello! I'm a well-seasoned #caregiver / #youngcarer advocate as well as a caregiver presently. #patientchat |
| Alan Brewington @abrewi3010 T1 my patient story is the basis behind the care in #healthcare. Without patients at conferences it’s just academics. #patientchat |
| HealthSparq @HealthSparq #patientchat |
| Max Stroud @MMaxwellStroud RT @jamienholloway: T1: T1: Patients at conferences build new collaborations, challenge new ideas, bring a sense of urgency and reality to a more abstract concept of science and healthcare #PatientChat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @patientchat: I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat |
| Alan Brewington @abrewi3010 RT @power4patients: T1: T1: Can I just say that it still shocks & amazes me that patients aren't ALWAYS included in conferences? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @burtrosen @HealthSparq Hi Mr Burt! #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T1 Benefits to including HC patients& other include increasing health literacy, trust between provider/others, develop listening/responding skills within a neutral setting, begin to develop new best practices. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @power4patients: T1: T1: Can I just say that it still shocks & amazes me that patients aren't ALWAYS included in conferences? #patientchat |
| Geeky Fox @TechKitsune RT @stage4kelly: T1. Patients are the ultimate stakeholders. we will work harder than anyone to drive research, report outcomes, figure out solutions #patientchat |
| Dr. Kelly Shanahan @stage4kelly And there's a difference between patients attending conferences and being included in conferences. I go to a lot of conferences were patients attend but very few were patients are truly partners #patientchat https://t.co/ktKUkvAk0A |
| HealthSparq @HealthSparq T1. The benefits of including #patients & #caregivers in conferences are innumerable, esp. their unique insights & perspectives. They are critical stakeholders in every #healthcare conversation & they have to be included. #patientchat #WTFix |
| Patient Empowerment Network @power4patients @vrulon @yourgpsdoc AMEN #patientchat |
| HealthSparq @HealthSparq RT @RarePOV: |
 | Annette McKinnon @anetto T1 Often see patients and family are very enthusiastic about passing on what they learn through tweets, blogs.,real life #patientchat |
| Patient Empowerment Network @power4patients RT @RarePOV: |
| Kimberly Amelia @fireflyrn84 T1: There is more of a whole view instead of what can be presented from just the #HCP or organization side. #patients & #carepartners have so much added value for everything in health care. It's us that are the reason everybody is in business #patientchat |
| Inspire @InspireIsHealth @jamienholloway T1: That latter point--the reality--is so important. I've had conference organizers thank me for helping steer patients/caregivers to them, because prior events "never had those perspectives even mentioned." -John N. #PatientChat |
| HealthSparq @HealthSparq @llake Hi Lillian! Thanks for joining the chat! #patientchat #WTFix |
| Vera Rulon FAHIMA @vrulon @abrewi3010 So true. Especially some of the pharma conferences. We're seeing more #patient attendance - yet still not enough #PatientChat |
| Annette McKinnon @anetto Hi, Annette here in Toronto. The sun has come out from the fog. #patientchat |
 | Karen Knops MD @KMKnops RT @lisadbudzinski: T1 By engaging the end user in the conversation will bring about more insight as recognized by: T1 By engaging the end user in the conversation will bring about more insight as recognized by: https://t.co/s69HoEGUJZ BMJ Patient Involvement #patientchat |
| Kimberly Amelia @fireflyrn84 @flareuphope Never late for this party! #patientchat |
| Patient Chat @patientchat Topic 2 (T2:) coming up...https://t.co/4adf8e9pPh #patientchat |
| Lisa Davis Budzinski @lisadbudzinski “Involving patients can spark collaborations with patients in healthcare design, education, research, and clinical care improvements” BMJ article #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A1 During the planning it's important to include a "non-academic" approach if you are expecting a broad audience, also it offers in general a different perspective. During the conference it engages all to have actual stories shared. #patientchat |
| Max Stroud @MMaxwellStroud RT @stage4kelly: And there's a difference between patients attending conferences and being included in conferences. I go to a lot of conferences were patients attend but very few were patients are truly partners #patientchat https://t.co/ktKUkvAk0A |
| Kimberly Amelia @fireflyrn84 Totally agree! #patientchat https://t.co/5C1WpE6Zfa |
| Dr. Kelly Shanahan @stage4kelly Truth #patientchat https://t.co/t0JWtcvRcB |
| Lillian Lake - Host of #SoulNestingChat @llake RT @K_SalemOaks: T1. Adds value to the conference by creating a place for #pharma to bump into #patients and have #realconversations. #patientchat |
| Max Stroud @MMaxwellStroud RT @HealthSparq: T1. The benefits of including #patients & #caregivers in conferences are innumerable, esp. their unique insights & perspectives. They are critical stakeholders in every #healthcare conversation & they have to be included. #patientchat #WTFix |
| Patient Empowerment Network @power4patients @stage4kelly Excellent point, thanks for clarifying. #patientchat |
| Vera Rulon FAHIMA @vrulon @Elizabe85727641 #Trust & #HealthLiteracy - these are key!! #PatientChat |
| Patient Critical Co-op @PatientCritical T1: "For conference organizers, what’s the benefit in involving patients & care partners?" Foster cooperation/#innovation/#outcomes. Avoid creating things patients don't need. Deepen the level of discourse. Efficiently use of time & avoid costly assumptions. #patientchat https://t.co/FVXSgH1rnd |
 | Whitney Petit @CfEpilepsy Well hello #patientchat. It's been a long time for me! |
| Your GPS Doc, LLC @yourgpsdoc @fireflyrn84 @GraceCordovano So sorry Kimberly! Praying you feel better soon! #patientchat |
| Patient Chat @patientchat T2: Can you point to a conference that you were involved in where you made a difference? How? #patientchat |
| Alan Brewington @abrewi3010 T1 the question is are patients just being invited or are we included in conferences. We must be included. #medx #patientchat |
 | Chronic Pain Network @cpn_rdc RT @lisadbudzinski: “Involving patients can spark collaborations with patients in healthcare design, education, research, and clinical care improvements” BMJ article #patientchat |
| Enlightening Results 💡 @GraceCordovano I need more characters but: ✔️refreshing perspectives & humanity ✔️authentic insights into what's truly valuable in #healthcare ✔️opportunity to learn ✔️potential to bridge silos ✔️get away from doing things "the way they've always been done" #patientchat https://t.co/1UIq80ZU8L |
| Kevin Freiert @K_SalemOaks RT @stage4kelly: Truth #patientchat https://t.co/t0JWtcvRcB |
| Lillian Lake - Host of #SoulNestingChat @llake @JECallender @patientchat Yes and I'm sure there are commonalities. Commonalities of problems can lead to commonalities of solutions. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski Involve the patients & caregivers who are the boots on the ground perspective #patientchat |
| Patient Critical Co-op @PatientCritical What a nice metaphor for patients beginning to be recognized at conferences :) #patientchat https://t.co/50O0wAkO7W |
| Kimberly Amelia @fireflyrn84 @yourgpsdoc @GraceCordovano Thank you! Me too, my body has been through the wringer later #patientchat |
 | Lelainia Lloyd (She/Her) ♿️🥌🎙✍️🦄 @tatterededge RT @jamienholloway: T1: T1: Patients at conferences build new collaborations, challenge new ideas, bring a sense of urgency and reality to a more abstract concept of science and healthcare #PatientChat |
| Patient Chat @patientchat RT @GraceCordovano: I need more characters but: ✔️refreshing perspectives & humanity ✔️authentic insights into what's truly valuable in #healthcare ✔️opportunity to learn ✔️potential to bridge silos ✔️get away from doing things "the way they've always been done" #patientchat https://t.co/1UIq80ZU8L |
| Kimberly Amelia @fireflyrn84 Spot on, Grace! #patientchat https://t.co/RLodHkedgq |
| ElizabethKelly, Ph.D @Elizabe85727641 @anetto Has spring come to you yet? #patientchat |
| Vera Rulon FAHIMA @vrulon T2: I ask that a patient or caregiver speak with me often - such as with @HealthHats at a recent @MGMA conference - was doing this for many years @ pharma conf even when it wasn't a very popular notion #PatientChat |
| HealthSparq @HealthSparq RT @GraceCordovano: I need more characters but: ✔️refreshing perspectives & humanity ✔️authentic insights into what's truly valuable in #healthcare ✔️opportunity to learn ✔️potential to bridge silos ✔️get away from doing things "the way they've always been done" #patientchat https://t.co/1UIq80ZU8L |
| Melissa VanHouten @melissarvh T2 Spoke @ AGMD (@gimotility) conference 2 medical pros & others re daily struggles of patients in my #Gastroparesis community #patientchat |
| Max Stroud @MMaxwellStroud Patient voices are mission critical at #healthcare conferences, because it is through stories that we develop empathy, understanding and insights. #WTFix #patientchat |
| Whitney Petit @CfEpilepsy RT @HealthSparq: 👇 #WTFix #PatientChat https://t.co/9MCo5VCSZD |
| Patient Chat @patientchat RT @PatientCritical: T1: T1: "For conference organizers, what’s the benefit in involving patients & care partners?" Foster cooperation/#innovation/#outcomes. Avoid creating things patients don't need. Deepen the level of discourse. Efficiently use of time & avoid costly assumptions. #patientchat https://t.co/FVXSgH1rnd |
| HealthSparq @HealthSparq T2! #PatientChat #WTFix https://t.co/kFoNLR5VF5 |
| Angela Cohen @angelee828 T1: IMO It gives Pts, Drs, scientists, caregivers, etc., a chance to see a different perspective, have an open & perhaps longer dialogue than they could in a clinic/research setting. Ppl meeting/for a mutual goal/mutual interest who might not have met otherwise. #patientchat |
 | Lenny 👩🏼✊🏼🌊 @lltaylor88 Hi! Lori just joined. I have an immune deficiency called CVID #patientchat |
| Inspire @InspireIsHealth @abrewi3010 T1: Agreed. If it feels that the conference organizer is seeking a patient/caregiver speaker as window dressing, it usually is window dressing. When I'm approached to help conference programmers, I ask, "What is the patient expected to DO?" --John N. #patientchat |
| Alan Brewington @abrewi3010 Patients are amazing designers and highly educated in clinical trials. We add value. #patientchat https://t.co/MaNSDTidVL |
| Lisa Davis Budzinski @lisadbudzinski @power4patients Thank you! #PatientChat |
| Enlightening Results 💡 @GraceCordovano @MMaxwellStroud Nailed it. No MBA, PhD, MD, or any degree will give you the value of those perspectives. Engaging & welcoming patients & carepartners is smart business sense. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @GraceCordovano: I need more characters but: ✔️refreshing perspectives & humanity ✔️authentic insights into what's truly valuable in #healthcare ✔️opportunity to learn ✔️potential to bridge silos ✔️get away from doing things "the way they've always been done" #patientchat https://t.co/1UIq80ZU8L |
| Annette McKinnon @anetto @Elizabe85727641 Thanks Yes, we have tulips, daffodils, crocuses and starting to see leaves on the trees #patientchat |
| Vera Rulon FAHIMA @vrulon On point!! #patientchat https://t.co/1rPgTWypQG |
| Max Stroud @MMaxwellStroud RT @patientchat: T2: T2: Can you point to a conference that you were involved in where you made a difference? How? #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T1 Involving patients furthers the notion of transparency, consideration of the patient POV, & furthering the ideals of true collaborative strategies #patientchat https://t.co/lTIhlgv58R |
| Geeky Fox @TechKitsune T2: I'll be honest I haven't been to too many just yet. Though the ones i did go to, I found making someone's day was as simple as conversations. Went to dinner with someone I didn't know because we were both alone. Best conversation in a while. #PatientChat |
| Kimberly Amelia @fireflyrn84 T2: I can say that this year's #WTFix conference has truly taken a lot of feedback from us, their Digital Advisory Board. We really are making a difference. Hopefully it's something that everyone will recognize in a couple of weeks! #patientchat |
| Kevin Freiert @K_SalemOaks RT @teaminspire: @abrewi3010 T1: @abrewi3010 T1: Agreed. If it feels that the conference organizer is seeking a patient/caregiver speaker as window dressing, it usually is window dressing. When I'm approached to help conference programmers, I ask, "What is the patient expected to DO?" --John N. #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: T1: T1: For conference organizers, what’s the benefit in involving patients and care partners? #patientchat |
| Kimberly Amelia @fireflyrn84 Exactly, always included! #patientchat https://t.co/xgcjQCx0KN |
| Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @GraceCordovano Wrote a blog post about my experience, kind like a group therapy session, in virtual reality: Behavioral Health in Social Virtual Reality: Personal, Respectful, Insightful https://t.co/kS62mrGecQ #Patientchat As a result I changed the focus of the series (but still evolving) https://t.co/ByUvyeyTYj |
| John M. Trumbo 🖋 @JohnMTrumbo RT @PatientCritical: T1: T1: "For conference organizers, what’s the benefit in involving patients & care partners?" Foster cooperation/#innovation/#outcomes. Avoid creating things patients don't need. Deepen the level of discourse. Efficiently use of time & avoid costly assumptions. #patientchat https://t.co/FVXSgH1rnd |
| Patient Empowerment Network @power4patients RT @HealthSparq: T2! #PatientChat #WTFix https://t.co/kFoNLR5VF5 |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @wareFLO: @GraceCordovano Wrote a blog post about my experience, kind like a group therapy session, in virtual reality: @GraceCordovano Wrote a blog post about my experience, kind like a group therapy session, in virtual reality: Behavioral Health in Social Virtual Reality: Personal, Respectful, Insightful https://t.co/kS62mrGecQ #Patientchat As a result I changed the focus of the series (but still evolving) https://t.co/ByUvyeyTYj |
| Melissa VanHouten @melissarvh T2 Helped promote understanding of not just physical but mental/emotional aspects of digestive disorders patients; advocacy #patientchat |
| laminopathies support group @laminopathies T2. I'm not sure if I made a real difference, but I shined a light on ridiculous rare disease drug pricing and unfair practices that stem from bizarre medical culture. #patientchat |
 | Patty Keiler @pkeiler RT @MMaxwellStroud: Patient voices are mission critical at #healthcare conferences, because it is through stories that we develop empathy, understanding and insights. #WTFix #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @MMaxwellStroud: Patient voices are mission critical at #healthcare conferences, because it is through stories that we develop empathy, understanding and insights. #WTFix #patientchat |
| Kimberly Amelia @fireflyrn84 @K_SalemOaks Great point! Always good to have patients have opportunities with #pharma, but good overall! #patientchat |
| Max Stroud @MMaxwellStroud When I first presented at @himss with my sister, the experience was incredible and the feedback fantastic. My favorite email after the presentation read "I am a software developer and because of your talk I am changing my approach" #wtfix #patientchat https://t.co/UEs47xcwKL |
| Vera Rulon FAHIMA @vrulon @TechKitsune I love that! Making a difference one person at a time. #PatientChat |
 | IFFGD @IFFGD RT @melissarvh: T2 Helped promote understanding of not just physical but mental/emotional aspects of digestive disorders patients; advocacy #patientchat |
| Inspire @InspireIsHealth RT @wareFLO: @GraceCordovano Wrote a blog post about my experience, kind like a group therapy session, in virtual reality: @GraceCordovano Wrote a blog post about my experience, kind like a group therapy session, in virtual reality: Behavioral Health in Social Virtual Reality: Personal, Respectful, Insightful https://t.co/kS62mrGecQ #Patientchat As a result I changed the focus of the series (but still evolving) https://t.co/ByUvyeyTYj |
| HealthSparq @HealthSparq @RareCandace Hi Candace! Thanks for joining! #WTFix #patientchat |
| Max Stroud @MMaxwellStroud RT @GraceCordovano: @MMaxwellStroud Nailed it. No MBA, PhD, MD, or any degree will give you the value of those perspectives. Engaging & welcoming patients & carepartners is smart business sense. #patientchat |
| Melissa VanHouten @melissarvh RT @laminopathies: T2. I'm not sure if I made a real difference, but I shined a light on ridiculous rare disease drug pricing and unfair practices that stem from bizarre medical culture. #patientchat |
| Enlightening Results 💡 @GraceCordovano @RarePOV So typical. I cringe when I see all the big name healthcare conferences hosting panels & discussions on solving various aspects of healthcare without a patient in sight. #patientchat https://t.co/lhXXrzyOW0 |
| Lisa Davis Budzinski @lisadbudzinski RT @GraceCordovano: @MMaxwellStroud Nailed it. No MBA, PhD, MD, or any degree will give you the value of those perspectives. Engaging & welcoming patients & carepartners is smart business sense. #patientchat |
| HealthSparq @HealthSparq RT @wareFLO: @GraceCordovano Wrote a blog post about my experience, kind like a group therapy session, in virtual reality: @GraceCordovano Wrote a blog post about my experience, kind like a group therapy session, in virtual reality: Behavioral Health in Social Virtual Reality: Personal, Respectful, Insightful https://t.co/kS62mrGecQ #Patientchat As a result I changed the focus of the series (but still evolving) https://t.co/ByUvyeyTYj |
| Melissa VanHouten @melissarvh RT @ShereesePubHlth: T1 Involving patients furthers the notion of transparency, consideration of the patient POV, & furthering the ideals of true collaborative strategies #patientchat https://t.co/lTIhlgv58R |
| Kimberly Amelia @fireflyrn84 @bbhomebody Patients are the "experts" in their own conditions. Why not include us for everything? #patientchat |
| Enlightening Results 💡 @GraceCordovano @vrulon @HealthHats @MGMA Love this! More of this please! #patientchat |
| Alan Brewington @abrewi3010 T2 #Medx has been an incredible experience & growing experience for me. Meeting @nickdawson @danamlewis @RemRunner @emilykg1 @terriwingham & so many others helped me find my voice. #patientchat |
| Vera Rulon FAHIMA @vrulon @laminopathies I'm sure you did. Raising issues is step one... now we need ensure that #healthcare acts on them!! #PatientChat |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @MMaxwellStroud Thank you both very much for saying that!! Most of us are experts by experience #PatientChat |
| Whitney Petit @CfEpilepsy RT @HealthSparq: T1. The benefits of including #patients & #caregivers in conferences are innumerable, esp. their unique insights & perspectives. They are critical stakeholders in every #healthcare conversation & they have to be included. #patientchat #WTFix |
| Inspire @InspireIsHealth @fireflyrn84 T1: If the speaker invitation to patients/caregivers comes early, and there's invitations to shape the session and more, that's a good sign. If it's days before the event? Not so good. #patientchat |
| HealthSparq @HealthSparq @flareuphope Do they have a specific conference (or events) that you participate in & help shape? #WTFix #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T2 working with a group of other community based nurses we met at different locations where the community members shared planning meeting, attended all meetings as panel members, offered their experiences. Terrific experience! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @wareFLO: @GraceCordovano Wrote a blog post about my experience, kind like a group therapy session, in virtual reality: @GraceCordovano Wrote a blog post about my experience, kind like a group therapy session, in virtual reality: Behavioral Health in Social Virtual Reality: Personal, Respectful, Insightful https://t.co/kS62mrGecQ #Patientchat As a result I changed the focus of the series (but still evolving) https://t.co/ByUvyeyTYj |
| Annette McKinnon @anetto FYI #PatientChat: Share your experiences as patient or caregiver at a healthcare conference. Take this @patientadvisors survey https://t.co/Blhr47IDze Beyond #PatientsIncluded How can conferences be improved? |
| Kimberly Amelia @fireflyrn84 That is making a difference no matter what. No matter how big or small, we make a difference! #patientchat https://t.co/cpokiYUgTU |
| Your GPS Doc, LLC @yourgpsdoc @MMaxwellStroud @HIMSS That is so awesome! #patientchat |
| Patient Chat @patientchat RT @MMaxwellStroud: Folks with chronic illness are the "superusers" of healthcare systems, they can tell you where the pain-points are in the healthcare delivery system and give you valuable insights you can't see from the inside. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @wareFLO @GraceCordovano You're doing a great job Dr. Webster! #PatientChat |
| Vera Rulon FAHIMA @vrulon @flareuphope My old alma mater!! @Roslyndoc is doing great work in #patient inclusion there! #PatientChat |
| Alan Brewington @abrewi3010 This X 10000000. No more window dressing, let’s get to work. #patientchat https://t.co/pKat7TC0hb |
| HealthSparq @HealthSparq RT @GraceCordovano: @RarePOV So typical. I cringe when I see all the big name healthcare conferences hosting panels & discussions on solving various aspects of healthcare without a patient in sight. #patientchat https://t.co/lhXXrzyOW0 |
 | 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @RarePOV: |
| Kimberly Amelia @fireflyrn84 @teaminspire Great point, John! We want the invites early. It shows that there is definitely an interest and that it wasn't casually thrown out and an afterthought. #patientchat |
| Patient Critical Co-op @PatientCritical T2: I've consulted to a few conferences to ensure patient perspective represented in a way that would allow patients to feel welcomed AND involved in meaningful ways--where patients have equal value, no power differential, & life experience means as much as degrees. #patientchat |
| HealthSparq @HealthSparq @MMaxwellStroud @HIMSS That is AMAZING!!! #WTFix #PatientChat |
| Patient Chat @patientchat Topic 3 (T3:) coming up...https://t.co/4adf8e9pPh #patientchat |
| Enlightening Results 💡 @GraceCordovano @MMaxwellStroud @HIMSS That is so awesome! Its so true. Words matter. Stories are powerful. All we need to do is include them and listen. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @GraceCordovano: @RarePOV So typical. I cringe when I see all the big name healthcare conferences hosting panels & discussions on solving various aspects of healthcare without a patient in sight. #patientchat https://t.co/lhXXrzyOW0 |
| Lisa Davis Budzinski @lisadbudzinski @melissarvh This very s huge! Emotional health is a huge aspect of #chronicillness ✨ #PatientChat |
| Lelainia Lloyd (She/Her) ♿️🥌🎙✍️🦄 @tatterededge RT @stage4kelly: And there's a difference between patients attending conferences and being included in conferences. I go to a lot of conferences were patients attend but very few were patients are truly partners #patientchat https://t.co/ktKUkvAk0A |
| Dr. Kelly Shanahan @stage4kelly RT @RarePOV: |
| Lisa Davis Budzinski @lisadbudzinski RT @RarePOV: |
| Annette McKinnon @anetto T2 I'll be on a panel and was also on organizing committee for #eHealth2018. Their first year as #patientsincluded #patientchat |
| Patient Chat @patientchat T3: What’s unique about the perspectives that you can bring to healthcare conferences? #patientchat |
| Melissa VanHouten @melissarvh RT @lisadbudzinski: @melissarvh This very s huge! Emotional health is a huge aspect of #chronicillness ✨ #PatientChat |
| Enlightening Results 💡 @GraceCordovano @fireflyrn84 @teaminspire So true! And patients & carepartners know that that is a "check the box" tokenism move. Not a great start to any relationship. #patientchat |
| HealthSparq @HealthSparq #Patient stories are so key to changing perspectives! #patientchat https://t.co/Ps0qdEudlA |
| HealthSparq @HealthSparq RT @patientchat: Topic 3 (T3:) coming up...https://t.co/4adf8e9pPh #patientchat |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @anetto: T2 I'll be on a panel and was also on organizing committee for #eHealth2018. Their first year as #patientsincluded #patientchat |
| Enlightening Results 💡 @GraceCordovano @bbhomebody @Cpnervecenter You guys rock! #patientchat |
| Vera Rulon FAHIMA @vrulon T3: Unique - real life stories - those that raise the shortcoming of #healthcare - also bring in those aspects of health that are "beyond the pill" or surgery or etc. #PatientChat |
| Lisa Davis Budzinski @lisadbudzinski @melissarvh Yikes! I need more coffee😀 I hope you were able to decipher the above✨ #PatientChat |
| HealthSparq @HealthSparq RT @patientchat: T3: T3: What’s unique about the perspectives that you can bring to healthcare conferences? #patientchat |
| Enlightening Results 💡 @GraceCordovano RT @RarePOV: |
| Max Stroud @MMaxwellStroud RT @GraceCordovano: @MMaxwellStroud @HIMSS That is so awesome! Its so true. Words matter. Stories are powerful. All we need to do is include them and listen. #patientchat |
| Patient Critical Co-op @PatientCritical A2: Patients at established conferences make some others takeholders nervous, or resentful. Just as some dr's don't want feedback or to #codesign care, some events resist change or patient input in priorities. It's a struggle.We can't lash out, & can't back down. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: What’s unique about the perspectives that you can bring to healthcare conferences? #patientchat |
| Max Stroud @MMaxwellStroud RT @patientchat: T3: T3: What’s unique about the perspectives that you can bring to healthcare conferences? #patientchat |
| Melissa VanHouten @melissarvh T3 Know hidden daily struggles (mine & group members'), major symptoms/burdens, & QoL issues of #Gastroparesis #FGID patients. #patientchat |
| Annette McKinnon @anetto T2 Just as a tip for other Canadian engaged patients @CMA_Docs is supporting up to 20 patients to their Winnipeg #CMASummit #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @anetto Annette this is great!! 👏👏👏👏 #PatientChat |
| Vera Rulon FAHIMA @vrulon @GraceCordovano @fireflyrn84 @teaminspire Yes!! #nomoreboxchecking #PatientChat |
| Dr. Kelly Shanahan @stage4kelly T3. I'm a patient AND a doctor, so I get the hurdles of regulations and how time consuming science can be, but as a patient I understand the urgency. I know we can think outside the box to make change happen. #PatientChat |
| Geeky Fox @TechKitsune T3: I work on the digital side of marketing. And I have told other technical chats that websites and social media use is subpar in healthcare. It could be better with what digital patients expect to see! Proper internet etiquette if you will? #patientchat |
| Alan Brewington @abrewi3010 T3 I only speak chronic patient. This language is unique to fellow patients & are #caregivers. It’s not included in med school enough. Need common language for active communication #patientchat |
| laminopathies support group @laminopathies T3 natural history of the disease. #patientchat |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @anetto: T2 Just as a tip for other Canadian engaged patients @CMA_Docs is supporting up to 20 patients to their Winnipeg #CMASummit #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: T2: T2: Can you point to a conference that you were involved in where you made a difference? How? #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: T3: T3: What’s unique about the perspectives that you can bring to healthcare conferences? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski T3 I am a patient and caregiver with 30+ years of experience. Living with my conditions on a daily basis gives me more insight. Daily exposure whether being a patient or caregiver, brings a lot of knowledge that is missing from the conversation #PatientChat https://t.co/lRRhsJCQfC |
| Enlightening Results 💡 @GraceCordovano @teaminspire @abrewi3010 Please don't only invite patients as your success story (AKA the trophy patient). Ask them how things could have been done better, where did things fall short? Ask for their insights! Don't cut them off on stage to share the marvels of your treatment/expertise #patientchat |
| Melissa VanHouten @melissarvh @lisadbudzinski I got it just fine, Ms. Lisa! And, boy, do I ever understand the coffee need! Cup in hand right now. #PatientChat |
| Max Stroud @MMaxwellStroud RT @stage4kelly: T3. I'm a patient AND a doctor, so I get the hurdles of regulations and how time consuming science can be, but as a patient I understand the urgency. I know we can think outside the box to make change happen. #PatientChat |
| Inspire @InspireIsHealth T2: I myself had zero to do with it, but the Sheridans' session at #HIMSS18 was fantastic--one of the best I've seen lately: https://t.co/cwNw01e1n7. Smart, practical, warm, solutions-oriented. HT @K_Sheridan1 #patientchat |
| Kimberly Amelia @fireflyrn84 T3: No patient has a story that is the same. We bring uniqueness just by showing up. Our stories and journeys have led us all on different paths. You aren't going to get the same answer from any patient. We ALL have a million things that are unique to contribute #patientchat |
| Patient Critical Co-op @PatientCritical A2: Have to mention that #healthliteracy isn't just teaching patients how to advocate for the best care... it's aslo teaching advocates how to interact with partner stakeholders. It's our job to create fertile ground for cooperation, cautions not to widen divides. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @melissarvh #PatientChat https://t.co/2Vl3QvaM3v |
| Kevin Freiert @K_SalemOaks T3. I have always been a translator. I speak fluent pharm-ese and can rephrase in plain language. #patientchat #WTFix |
| Kimberly Amelia @fireflyrn84 RT @lisadbudzinski: @melissarvh This very s huge! Emotional health is a huge aspect of #chronicillness ✨ #PatientChat |
 | Manishree Bhattacharya @ManishreeBhatt1 @patientchat Involving patients and caregivers in conferences will bring out real world stories, pain-points, evidences and help industry stakeholders identify the real challenges they need to solve, or get real-time feedback. #patientchat |
| HealthSparq @HealthSparq RT @teaminspire: T2: T2: I myself had zero to do with it, but the Sheridans' session at #HIMSS18 was fantastic--one of the best I've seen lately: https://t.co/cwNw01e1n7. Smart, practical, warm, solutions-oriented. HT @K_Sheridan1 #patientchat |
| Melissa VanHouten @melissarvh RT @fireflyrn84: T3: T3: No patient has a story that is the same. We bring uniqueness just by showing up. Our stories and journeys have led us all on different paths. You aren't going to get the same answer from any patient. We ALL have a million things that are unique to contribute #patientchat |
| Vera Rulon FAHIMA @vrulon @stage4kelly Thank you!! The culture of #healthcare must change. Can't be addressed if we silo each perspective. #Collaborate #Simplify #PatientChat |
| Max Stroud @MMaxwellStroud RT @GraceCordovano: @teaminspire @abrewi3010 Please don't only invite patients as your success story (AKA the trophy patient). Ask them how things could have been done better, where did things fall short? Ask for their insights! Don't cut them off on stage to share the marvels of your treatment/expertise #patientchat |
| Enlightening Results 💡 @GraceCordovano @stage4kelly Missing all of my #bcsm friends! SO happy to see you here. Yes, understanding that urgency first hand can move mountains and then some. Loving the @bonniejaddario story on the #ROS1nders. #patientchat |
| HealthSparq @HealthSparq RT @GraceCordovano: @teaminspire @abrewi3010 Please don't only invite patients as your success story (AKA the trophy patient). Ask them how things could have been done better, where did things fall short? Ask for their insights! Don't cut them off on stage to share the marvels of your treatment/expertise #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A2 Caregivers conference open to the public. Doctors and "professionals" presented, geared to credits, rather than the public. The two should have been separate. It turned to "burnout" only in regard to nurses I spoke for the caregivers which lead to more sharing. #patientchat |
| Angela Cohen @angelee828 T2: I will be co-moderating a conference for my first time on May 12th. I was flattered and humbled that I was even asked. But also, we were asked for imput from the start. The doctor putting it together ensured that there were #patientsincluded the whole way. #patientchat |
| Melissa VanHouten @melissarvh RT @lisadbudzinski: T3 I am a patient and caregiver with 30+ years of experience. Living with my conditions on a daily basis gives me more insight. Daily exposure whether being a patient or caregiver, brings a lot of knowledge that is missing from the conversation #PatientChat https://t.co/lRRhsJCQfC |
| Max Stroud @MMaxwellStroud RT @teaminspire: T2: T2: I myself had zero to do with it, but the Sheridans' session at #HIMSS18 was fantastic--one of the best I've seen lately: https://t.co/cwNw01e1n7. Smart, practical, warm, solutions-oriented. HT @K_Sheridan1 #patientchat |
| HealthSparq @HealthSparq @GraceCordovano @teaminspire @abrewi3010 Real people, real stories, true experiences! #WTFix #patientchat |
| Annette McKinnon @anetto T3 I spent 20 years as a market researcher, using over 5500 questionnaires, often in medical areas. Useful background. #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T3 Health & illness perspective after 40 years working in HC, + community health development education/program development, & recipient of several years of miss dx. #patientchat |
| Patient Critical Co-op @PatientCritical If you're inviting a patient as a token, a proof of your enlightened results (sorry :) you've already lost. Conferences discuss what the empowered decide to discuss. Patients need to have a voice in setting the agenda, or their voices get cut off at the pass. #patientchat https://t.co/DWKEAqSmlH |
| Kevin Freiert @K_SalemOaks RT @PatientCritical: A2: A2: Have to mention that #healthliteracy isn't just teaching patients how to advocate for the best care... it's aslo teaching advocates how to interact with partner stakeholders. It's our job to create fertile ground for cooperation, cautions not to widen divides. #patientchat |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @anetto: T3 I spent 20 years as a market researcher, using over 5500 questionnaires, often in medical areas. Useful background. #patientchat |
| Enlightening Results 💡 @GraceCordovano RT @anetto: T2 Just as a tip for other Canadian engaged patients @CMA_Docs is supporting up to 20 patients to their Winnipeg #CMASummit #patientchat |
 | Javeed Sukhera MD PhD @javeedsukhera RT @PatientCritical: If you're inviting a patient as a token, a proof of your enlightened results (sorry :) you've already lost. Conferences discuss what the empowered decide to discuss. Patients need to have a voice in setting the agenda, or their voices get cut off at the pass. #patientchat https://t.co/DWKEAqSmlH |
| Kimberly Amelia @fireflyrn84 @angelee828 that's awesome! Congrats!! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T3: Nothing compares to hearing about a disease from a patient’s perspective. As a doc, this has truly enriched my conference experience. #patientchat https://t.co/M5hA1wUmfa |
| HealthSparq @HealthSparq @angelee828 That is awesome! Congrats! Which conference?? #PatientChat #WTFix |
 | Laurus @LaurusT001 RT @anetto: T3 I spent 20 years as a market researcher, using over 5500 questionnaires, often in medical areas. Useful background. #patientchat |
| Alan Brewington @abrewi3010 Also, ask patients what they did right? Give patients the opportunity to break what does work to see what growth can happen. If it’s not broke, break it. #patientchat https://t.co/er0KnqZ3ii |
| John M. Trumbo 🖋 @JohnMTrumbo RT @GraceCordovano: @teaminspire @abrewi3010 Please don't only invite patients as your success story (AKA the trophy patient). Ask them how things could have been done better, where did things fall short? Ask for their insights! Don't cut them off on stage to share the marvels of your treatment/expertise #patientchat |
| burtrosen 🟦 @burtrosen T3: we can bring the human being side and the needs perspective which is something events don't take into account enough #PatientChat |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @bbhomebody @Cpnervecenter That means a lot to us, thank you✨#PatientChat https://t.co/0IOxAt3nDo |
| Lillian Lake - Host of #SoulNestingChat @llake RT @GraceCordovano: I need more characters but: ✔️refreshing perspectives & humanity ✔️authentic insights into what's truly valuable in #healthcare ✔️opportunity to learn ✔️potential to bridge silos ✔️get away from doing things "the way they've always been done" #patientchat https://t.co/1UIq80ZU8L |
| Kimberly Amelia @fireflyrn84 @GraceCordovano @teaminspire @abrewi3010 Great point, Grace! #patientchat |
| Alan Brewington @abrewi3010 RT @fireflyrn84: T3: T3: No patient has a story that is the same. We bring uniqueness just by showing up. Our stories and journeys have led us all on different paths. You aren't going to get the same answer from any patient. We ALL have a million things that are unique to contribute #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @RarePOV: |
| HealthSparq @HealthSparq 🙌🏼#WTFix #PatientChat #patientsincluded🙌🏼 https://t.co/28tORBsffG |
| Kimberly Amelia @fireflyrn84 RT @yourgpsdoc: T3: T3: Nothing compares to hearing about a disease from a patient’s perspective. As a doc, this has truly enriched my conference experience. #patientchat https://t.co/M5hA1wUmfa |
| Annette McKinnon @anetto T3 The experience of being a member of patient groups since pre-google has informed my insights. I know what patients say. #patientchat |
| Enlightening Results 💡 @GraceCordovano T3: Many practicing doctors enjoy hearing patients & carepartners speak from the stage or at a conference. They say they don't have the opportunity or time to hear such powerful accounts. #BeTheChange #Patientchat https://t.co/AbFhlrOoku |
| Patient Chat @patientchat Topic 4 (T4:) coming up...https://t.co/4adf8e9pPh #patientchat |
 | John Lynn @techguy If the conference is organized properly, then there are plenty of engagement opportunities for patients voices to be heard. I think the impact patients can have on a conference is often through the individual engagements as much or more than the overall agenda. #patientchat https://t.co/sjTVqTTrL4 |
| Dr. Kelly Shanahan @stage4kelly @K_SalemOaks I have a similar skill in translating medicalese (doctor speak) into plain English. #PatientChat |
| Alan Brewington @abrewi3010 RT @HealthSparq: @GraceCordovano @teaminspire @abrewi3010 Real people, real stories, true experiences! #WTFix #patientchat |
| Max Stroud @MMaxwellStroud So often in #healthcare people want answers, and embracing #patientstories means also embracing questions, problems, frustrations. Conference organizers benefit when they are able to embrace the discomfort that some patient stories can bring. #wtfix #patientchat |
| Whitney Petit @CfEpilepsy T3: As a patient, I have one of the best perspectives. Why not have real-time, human, personable feedback to go off of than data only backed research to help advance the studies of MY care. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @EMRAnswers @patientchat Hi Linda!! #PatientChat This chat is going so fast, I didn't want to miss you ✨ |
| Lisa Davis Budzinski @lisadbudzinski RT @GraceCordovano: T3: T3: Many practicing doctors enjoy hearing patients & carepartners speak from the stage or at a conference. They say they don't have the opportunity or time to hear such powerful accounts. #BeTheChange #Patientchat https://t.co/AbFhlrOoku |
| HealthSparq @HealthSparq @GraceCordovano Couldn't a practicing doctor ask their patients for this kind of story/input/experience directly? #WTFix #PatientChat |
| Annette McKinnon @anetto @K_SalemOaks Good skill. When I retired my ambition was to learn to speak 'medical' (without acronyms) #patientchat |
| Patient Chat @patientchat T4: If you could tell conference organizers one thing, what would it be and why? #patientchat |
| HealthSparq @HealthSparq RT @MMaxwellStroud: So often in #healthcare people want answers, and embracing #patientstories means also embracing questions, problems, frustrations. Conference organizers benefit when they are able to embrace the discomfort that some patient stories can bring. #wtfix #patientchat |
| Kimberly Amelia @fireflyrn84 Ditto! #patientchat https://t.co/CuLMGCcQ2O |
 | Erin Moriarty Wade @EMoriartyWade @patientchat T1 It also helps researchers to remember why they are doing this...for patients...these are the people whose lives and quality of lives is at stake. #patientchat |
| Enlightening Results 💡 @GraceCordovano T3: Bringing awareness to the unmet needs, the barriers, the grief, the joy, the financial toxicities, the challenges people face daily in the midst of a diagnosis. #patientchat https://t.co/AbFhlrOoku |
| HealthSparq @HealthSparq T4! #patientchat #WTFix https://t.co/16udNdS7KI |
| Vera Rulon FAHIMA @vrulon T4: One thing (well maybe 2 or 3 or 4) - treat #patients as you would any experts - invite, listen, act on, reimburse #PatientChat |
| Lisa Davis Budzinski @lisadbudzinski RT @ManishreeBhatt1: @patientchat Involving patients and caregivers in conferences will bring out real world stories, pain-points, evidences and help industry stakeholders identify the real challenges they need to solve, or get real-time feedback. #patientchat |
| Patient Critical Co-op @PatientCritical A3: Patients and those speaking for them bring a perspective historically absent from #healthcare. One way is to tell stories to share understanding & #empathy, to hold a mirror to every other stakeholder. People see things in a mirror they didn't notice before. #patientchat https://t.co/XNU1ZomGyH |
| Inspire @InspireIsHealth @flareuphope @GraceCordovano @abrewi3010 T1: This raises the point of patients/caregivers feeling good about the moderator. I recall helping get a man with stage IV lung cancer on a panel & a fellow panelist turning it into an advertorial about his solution. The moderator, to his credit, cut the guy off. #patientchat |
| HealthSparq @HealthSparq @lisadbudzinski @EMRAnswers @patientchat It REALLY is going so fast! Hi to both of you :) #WTFix #patientchat |
| John M. Trumbo 🖋 @JohnMTrumbo T3: innovative #healthIT solutions can be powerful tools but only if they work together and advance the #PatientExperience #PatientChat |
| HealthSparq @HealthSparq RT @GraceCordovano: T3: T3: Bringing awareness to the unmet needs, the barriers, the grief, the joy, the financial toxicities, the challenges people face daily in the midst of a diagnosis. #patientchat https://t.co/AbFhlrOoku |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: If you could tell conference organizers one thing, what would it be and why? #patientchat |
| Enlightening Results 💡 @GraceCordovano T4: Read & embrace #PatientsIncluded now! 🚀🎯 #patientchat https://t.co/iRTmoEWmPE |
| Lillian Lake - Host of #SoulNestingChat @llake @JECallender @patientchat I was saying that by including all sides commonalities can be found. And both sides need to do the inviting. And sometimes as caregivers, we can't and shouldn't wait for an invite, we have to invite ourselves. #patientchat |
 | nobism @nobismhealth RT @JohnMTrumbo: T3: T3: innovative #healthIT solutions can be powerful tools but only if they work together and advance the #PatientExperience #PatientChat |
| HealthSparq @HealthSparq @EMoriartyWade @patientchat Yes! Giving a face to the research! #WTFix #PatientChat |
| Vera Rulon FAHIMA @vrulon @anetto @K_SalemOaks A sorely needed skill #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @angelee828 Awww yay!!! 👏👏👏👏✨💕 #Patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @GraceCordovano: T3: T3: Bringing awareness to the unmet needs, the barriers, the grief, the joy, the financial toxicities, the challenges people face daily in the midst of a diagnosis. #patientchat https://t.co/AbFhlrOoku |
| Lisa Davis Budzinski @lisadbudzinski RT @HealthSparq: @GraceCordovano @teaminspire @abrewi3010 Real people, real stories, true experiences! #WTFix #patientchat |
| HealthSparq @HealthSparq RT @vrulon: T4: T4: One thing (well maybe 2 or 3 or 4) - treat #patients as you would any experts - invite, listen, act on, reimburse #PatientChat |
| HealthSparq @HealthSparq RT @EMRAnswers: @HealthSparq T2: |
| Annette McKinnon @anetto T4 I would talk to them about the valuable perspectives patients bring, and their skill at spreading what they learn. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @HealthSparq @EMRAnswers @patientchat Hi Anna!!! #PatientChat |
| Patient Empowerment Network @power4patients T4: If nothing else works, show them this: https://t.co/Jx9Y3yPpSq the ultimate WIIFM for conf organizers #patientchat |
| Max Stroud @MMaxwellStroud RT @patientchat: T4: T4: If you could tell conference organizers one thing, what would it be and why? #patientchat |
| Alan Brewington @abrewi3010 T4 Access is how beneficial conversation happens. This means free live streaming, thought out hashtags, Patient scholarships, pay patients for their expertise #patientchat |
| Vera Rulon FAHIMA @vrulon @bbhomebody @GraceCordovano @Cpnervecenter I couldn't agree more about Grace!!! #PatientChat |
| Lisa Davis Budzinski @lisadbudzinski RT @Elizabe85727641: T3 Health & illness perspective after 40 years working in HC, + community health development education/program development, & recipient of several years of miss dx. #patientchat |
| Patient Critical Co-op @PatientCritical You're so right John, individual engagements matter. But many opportunities only happen when conferences are designed to put different pairs together to allow surprise discoveries & connections. That only happens when patients are part of planning beforehand. #patientchat https://t.co/0thaDwhPst |
| Enlightening Results 💡 @GraceCordovano @HealthSparq Not all patients are comfortable engaging with their doctors. Many attending conferences and speaking from the stage have a voice that doctors are not used to seeing in their daily clinic. #patientchat |
| Jamie Holloway, PhD @jamienholloway I think it's important to consider the main conference audience. The patient role will be different when talking to regulators, doctors, nurses, scientists... #PatientChat |
| Melissa VanHouten @melissarvh T4 We are educated, passionate, capable people who wish to be involved in our own care. You can speak to us. It will be okay. #patientchat |
| Dr. Kelly Shanahan @stage4kelly T4. Have patients as equal partners on the planning committee - involve us from day one for a richer, more meaningful conference for everyone #PatientChat |
| Jamie Holloway, PhD @jamienholloway RT @stage4kelly: T4. Have patients as equal partners on the planning committee - involve us from day one for a richer, more meaningful conference for everyone #PatientChat |
| HealthSparq @HealthSparq #patientsincluded 👉 https://t.co/sufhy8M7DF #patientchat #WTFix https://t.co/PMNK0TsMSp |
| Patient Chat @patientchat RT @EMoriartyWade: @patientchat T1 It also helps researchers to remember why they are doing this...for patients...these are the people whose lives and quality of lives is at stake. #patientchat |
 | Jeremy Murphy @jeremypmurphy RT @patientchat: T3: T3: What’s unique about the perspectives that you can bring to healthcare conferences? #patientchat |
| laminopathies support group @laminopathies T4. I would tell them there should be no conference too elite to disallow patients to attend. Ahem, Heart Rhythm Societ. HRS. #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T4: T4: If you could tell conference organizers one thing, what would it be and why? #patientchat |
| Geeky Fox @TechKitsune T4: Create a world where patients can come, be heard, explore, learn, and meet all that healthcare has to offer. They will want to come back if that can be done. I know I want to go back to places I enjoyed. #PatientChat |
| HealthSparq @HealthSparq RT @power4patients: T4: If nothing else works, show them this: T4: If nothing else works, show them this: https://t.co/Jx9Y3yPpSq the ultimate WIIFM for conf organizers #patientchat |
| Kimberly Amelia @fireflyrn84 As RN, we can share from numerous perspectives and the roles that we have been forced to take on, including: patient, nurse, case manager, utilization review, pharmacist, and social worker. The skills to go with each are overwhelming. I just want to be a patient! #patientchat https://t.co/Ve8tv0fSA7 |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T2: T2: Can you point to a conference that you were involved in where you made a difference? How? #patientchat |
| Angela Cohen @angelee828 @HealthSparq Thank you! It’s an IBD Conference for patients and providers to come and learn together. My co-moderator (and the other patient who gave input), is Megan from @TheGreatBM who is awesome, not to mention very experienced, so I know it will be fantastic! #PatientChat #WTFix |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T1: T1: For conference organizers, what’s the benefit in involving patients and care partners? #patientchat |
| Jeremy Murphy @jeremypmurphy RT @patientchat: Today's #patientchat topic is Including Patients and Care Partners: Today's #patientchat topic is Including Patients and Care Partners: Let's Talk Healthcare Conferences https://t.co/4adf8e9pPh |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A3 I have not only caregiving experience, but as an advocate for all ages can bring a variety of voices to the table, as well as compassionate knowledge which is often left out. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @yourgpsdoc: T3: T3: Nothing compares to hearing about a disease from a patient’s perspective. As a doc, this has truly enriched my conference experience. #patientchat https://t.co/M5hA1wUmfa |
| Enlightening Results 💡 @GraceCordovano @HealthSparq @lisadbudzinski @EMRAnswers @patientchat My phone just made an ungodly sound. I think #patientchat is melting it. https://t.co/T503cA11IY |
| Annette McKinnon @anetto T3 We can bring the perspective of the patient citizen, who ultimately pays for the whole health care edifice. #patientchat |
| Enlightening Results 💡 @GraceCordovano RT @stage4kelly: T4. Have patients as equal partners on the planning committee - involve us from day one for a richer, more meaningful conference for everyone #PatientChat |
| Inspire @InspireIsHealth T4: Problems usually result if conference organizers aren't sure whether they're seeking a patient/caregiver as an inspiring storyteller, or as someone to speak, as a subject matter expert, directly to a single topic--clinical trials recruitment, for example. #patientchat |
| Vera Rulon FAHIMA @vrulon @GraceCordovano @HealthSparq This goes back to #trust and changing #culture - your health is such a personal thing - it's sad that some #patients aren't comfortable #PatientChat |
| ElizabethKelly, Ph.D @Elizabe85727641 T4 ? Whom have you included in the planning, level of competence of presenters and their diversity, variety of presentation methods & ways to increase active evaluation? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski Very high praise right here👇✨ #PatientChat https://t.co/T5MehPuj64 |
| Whitney Petit @CfEpilepsy RT @patientchat: T4: T4: If you could tell conference organizers one thing, what would it be and why? #patientchat |
| Whitney Petit @CfEpilepsy RT @power4patients: T4: If nothing else works, show them this: T4: If nothing else works, show them this: https://t.co/Jx9Y3yPpSq the ultimate WIIFM for conf organizers #patientchat |
| Dr. Kelly Shanahan @stage4kelly This!! Free streaming of conferences for patients who cannot physically attend. I applaud @LivingBeyondBC for doing this #patientchat https://t.co/WzUsgEihbN |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @HealthSparq @EMRAnswers @patientchat You got that right! 😀 #PatientChat |
| Alan Brewington @abrewi3010 T4 Ask @nickdawson @dennisjboyle @joyclee @danamlewis to give presentations/workshops on #designthinking. How might we...? #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @GraceCordovano: @teaminspire @abrewi3010 Please don't only invite patients as your success story (AKA the trophy patient). Ask them how things could have been done better, where did things fall short? Ask for their insights! Don't cut them off on stage to share the marvels of your treatment/expertise #patientchat |
| Patient Critical Co-op @PatientCritical T4: *Involve #patients from day one of planning *Invite DIFFERENT patients to planning committees every couple years *Don't just have 1 patient 'track' *Pay patients in advance (or risk ignoring those without means) *Open & close event with patient participation #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @abrewi3010: Also, ask patients what they did right? Give patients the opportunity to break what does work to see what growth can happen. If it’s not broke, break it. #patientchat https://t.co/er0KnqZ3ii |
| Kimberly Amelia @fireflyrn84 The patient role will be different, but also the same. Everyone needs to hear what it's like to be a patient and face the struggles, how we've overcome things and what resources would have helped. We can frame things differently, but why isn't pt routinely involved? #patientchat https://t.co/cCPLQl3ge8 |
| Lisa Davis Budzinski @lisadbudzinski RT @EMRAnswers: @patientchat T3: |
| HealthSparq @HealthSparq @stage4kelly @LivingBeyondBC This is what we're doing at #WTFix as well! Hope you can join us! #PatientChat |
| laminopathies support group @laminopathies T4. I would tell them there should be no conference too elite for patients to attend. Ahem, Heart Rhythm Society HRS. #Patientchat |
| Alan Brewington @abrewi3010 RT @teaminspire: T4: T4: Problems usually result if conference organizers aren't sure whether they're seeking a patient/caregiver as an inspiring storyteller, or as someone to speak, as a subject matter expert, directly to a single topic--clinical trials recruitment, for example. #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming up...https://t.co/4adf8e9pPh #patientchat |
| Lisa Davis Budzinski @lisadbudzinski This is what’s needed at conferences! 👇 #PatientChat https://t.co/6fx2aVIrBx |
| Your GPS Doc, LLC @yourgpsdoc T4: Include patients from the beginning AND have a way for people to attend virtually. #patientchat https://t.co/b1CZjagrxG |
| Dr. Kelly Shanahan @stage4kelly Yes! 👇🏻👇🏻#PatientChat https://t.co/sZBUwHVrUh |
| Kimberly Amelia @fireflyrn84 T4: I might be just a "patient" to you, but to me I'm an entire army of people. I don't get paid to do all the jobs that I'm forced to do. Ask me anything, chances are that I've probably dealt with it. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @melissarvh: T4 We are educated, passionate, capable people who wish to be involved in our own care. You can speak to us. It will be okay. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @patientchat A3 Also, patients and caregivers are each in unique situations doing unique observations and solutions. We have much to offer beyond the lab and text books. So really, it's all unique. #PatientChat |
| Enlightening Results 💡 @GraceCordovano @flareuphope @teaminspire @abrewi3010 It happens often, too often. That’s why I’ve added “trophy patient” as my describer for this particular situation. #patientchat |
| HealthSparq @HealthSparq RT @EMRAnswers: |
| Patient Chat @patientchat T5: What does true involvement of patients and care partners in healthcare conferences look like? Is there a good example? #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T5: T5: What does true involvement of patients and care partners in healthcare conferences look like? Is there a good example? #patientchat |
| HealthSparq @HealthSparq RT @patientchat: T5: T5: What does true involvement of patients and care partners in healthcare conferences look like? Is there a good example? #patientchat |
| Vera Rulon FAHIMA @vrulon T5: True #patient #caregiver involvement means including in content planning, as speakers, as audience participants, commentators, bloggers, etc. Need to think of examples.... #PatientChat |
| Lisa Davis Budzinski @lisadbudzinski T4 If you aren’t involving patients; you are missing the most important voices in #healthcare #patientchat |
| Kimberly Amelia @fireflyrn84 Bingo! Stipends, scholarships...help us get there, we don't have the extra funds laying around for travel. We WANT to be there and participate! #patientchat https://t.co/bZmp8K2sua |
 | Patient Advisors @PatientAdvisors RT @anetto: FYI #PatientChat: FYI #PatientChat: Share your experiences as patient or caregiver at a healthcare conference. Take this @patientadvisors survey https://t.co/Blhr47IDze Beyond #PatientsIncluded How can conferences be improved? |
| laminopathies support group @laminopathies T4 Patients at conferences also democratizes interactions. And I think that results in better outcomes down the line. #Patientchat |
 | couragesings @couragesings RT @RarePOV: |
| Max Stroud @MMaxwellStroud RT @patientchat: T5: T5: What does true involvement of patients and care partners in healthcare conferences look like? Is there a good example? #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @PatientCritical: You're so right John, individual engagements matter. But many opportunities only happen when conferences are designed to put different pairs together to allow surprise discoveries & connections. That only happens when patients are part of planning beforehand. #patientchat https://t.co/0thaDwhPst |
| Vera Rulon FAHIMA @vrulon Ooops... a little ahead of myself and of #patientchat (sorry) |
| Lisa Davis Budzinski @lisadbudzinski T5 #MedX https://t.co/L132pHe1oS by @susannafox but like she states, “Only if you are lucky enought to attend”. #patientchat |
| Whitney Petit @CfEpilepsy RT @PatientCritical: You're so right John, individual engagements matter. But many opportunities only happen when conferences are designed to put different pairs together to allow surprise discoveries & connections. That only happens when patients are part of planning beforehand. #patientchat https://t.co/0thaDwhPst |
| Whitney Petit @CfEpilepsy RT @HealthSparq: #patientsincluded 👉 https://t.co/sufhy8M7DF #patientchat #WTFix https://t.co/PMNK0TsMSp |
| Lillian Lake - Host of #SoulNestingChat @llake RT @melissarvh: T4 We are educated, passionate, capable people who wish to be involved in our own care. You can speak to us. It will be okay. #patientchat |
| Jamie Holloway, PhD @jamienholloway T4: Patient perspective included on most panels. Patient education programs with scholarships. @AAADVWorkshop and @AACR do an excellent job for cancer advocates! #PatientChat |
| Patient Critical Co-op @PatientCritical A5: The best standard for true involvement of #patients & other #healthcare stakeholders so far is the evolving one at #patientsincluded https://t.co/H9WeKI2NbJ Key for me: reimburse in advance, incl patients from beginning of plan, stream event to patients outside. #patientchat https://t.co/vpSFwtqoBe |
| Whitney Petit @CfEpilepsy RT @patientchat: T5: T5: What does true involvement of patients and care partners in healthcare conferences look like? Is there a good example? #patientchat |
| Kimberly Amelia @fireflyrn84 T5: True involvement is having a patient and care partner involved in each conference. Have them on each panel, each discussion. All conferences have numerous sessions. Integrate patients into every session. There is a lot to be learned. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @lisadbudzinski: T4 If you aren’t involving patients; you are missing the most important voices in #healthcare #patientchat |
| Erin Moriarty Wade @EMoriartyWade @llake @patientchat A3 I agree @llake, as a caregiver, I often feel left out of the patient-provider equation. But my daughter’s #RareDisease has changed my life dramatically. #patientchat |
| Alan Brewington @abrewi3010 T5 Regardless of topic, everyone included must be the starting point of all conferences. #patients & #caregivers are equals. #patientchat |
| Melissa VanHouten @melissarvh T5 Patients aren't simply audience members but are invited to speak, engage in discussions/panels; contribute in meaningful way #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @abrewi3010: Also, ask patients what they did right? Give patients the opportunity to break what does work to see what growth can happen. If it’s not broke, break it. #patientchat https://t.co/er0KnqZ3ii |
| Vera Rulon FAHIMA @vrulon @EMRAnswers @patientchat Thank you! It's unfortunate that I cannot come up with an example of #patientinclusion @ #healthcare conferences being done right!! #patientchat Can anyone? |
| Annette McKinnon @anetto RT @lisadbudzinski: T5 #MedX https://t.co/L132pHe1oS by @susannafox but like she states, “Only if you are lucky enought to attend”. #patientchat |
| Geeky Fox @TechKitsune T5: Patient advocates and patient presenters on stage answering questions and giving answers. Patients in the audience mixed in to ask what they may have been afraid to ask. A mingling of voices being heard! #PatientChat |
| John M. Trumbo 🖋 @JohnMTrumbo RT @EMRAnswers: |
| ElizabethKelly, Ph.D @Elizabe85727641 T5 Creative poster spaces or listening posts where attendees gather to write, speak, share questions with others, leave thoughts, experiences in both verbal/written/creative ways. #patientchat |
| Vera Rulon FAHIMA @vrulon @EMRAnswers That is GREAT news. I'll need to research more!! #patientchat |
 | Init4Health #CaithClúdachAghaidhe #SábháilBeathaí. @Init4Health @GraceCordovano T3 #patientchat ..this is v. important in the field of #rarediseases. #RareDisease patients often face a diagnostic odyssey, typically waiting yrs for a diagnosis & receiving multiple misdiagnoses along the way; their stories are NB to raise awareness of lesser known conditions |
| Lillian Lake - Host of #SoulNestingChat @llake @EMoriartyWade @patientchat A3 Trauma has a way of redirecting us. I wish you extended courage and strength on your journey. #carechat is Tuesdays at 1pmET if you want to stop by. Everyone is a caregiver in the chat. All ages and stages. #patientchat |
| Kimberly Amelia @fireflyrn84 RT @lisadbudzinski: This is what’s needed at conferences! 👇 #PatientChat https://t.co/6fx2aVIrBx |
| Melissa VanHouten @melissarvh RT @lisadbudzinski: T4 If you aren’t involving patients; you are missing the most important voices in #healthcare #patientchat |
| Alan Brewington @abrewi3010 T5 What @larrychu & @StanfordMedX have accomplished is amazing and refreshing. #patientchat https://t.co/ElIbyhm1iY |
| John M. Trumbo 🖋 @JohnMTrumbo RT @lisadbudzinski: T4 If you aren’t involving patients; you are missing the most important voices in #healthcare #patientchat |
| Erin Moriarty Wade @EMoriartyWade Exactly! There are so many conferences I’d love to attend but my situation is pretty complicated...#patientchat https://t.co/7osS9EbtLy |
| Lillian Lake - Host of #SoulNestingChat @llake Yes! Yes you can. I think we all continue to be amazed. #patientchat https://t.co/mxVDECmfQJ |
| Annette McKinnon @anetto T4 Including patients from the beginning and in the budget is a good start. Most patients can't afford to attend on their own. #patientchat |
| Kimberly Amelia @fireflyrn84 Exactly! There is a difference between the latest drug that is on the market and a patient talking about their journey. I'd prefer to hear something that actually gives me a takeaway. Anything with a personal aspect is a win! #WTFix #patientchat https://t.co/79mXmahwxx |
| Vera Rulon FAHIMA @vrulon @ataxiaandme @RarePOV Yes! I spoke at one of their #patient conference a few year back (with a #patient, of course) #patientchat |
| Melissa VanHouten @melissarvh RT @anetto: T4 Including patients from the beginning and in the budget is a good start. Most patients can't afford to attend on their own. #patientchat |
| HealthSparq @HealthSparq @flareuphope Such a critical distinction, well put! #WTFix #patientchat |
| Patient Critical Co-op @PatientCritical A5: True involvement means getting RESULTS. In every industry people revolt when a new party is given a seat at the table. We have a right to be angry about #healthcare... but we can't afford to indulge in anger. Use it! Channel it. Convince others, defuse anger. #patientchat https://t.co/anjzXq3uJ6 |
| Annette McKinnon @anetto RT @vrulon: @EMRAnswers @patientchat Thank you! It's unfortunate that I cannot come up with an example of #patientinclusion @ #healthcare conferences being done right!! #patientchat Can anyone? |
| Lillian Lake - Host of #SoulNestingChat @llake @power4patients Yes! #patientchat https://t.co/6iLIkHRntT |
| Your GPS Doc, LLC @yourgpsdoc @EMoriartyWade @llake @patientchat I ❤️ caregivers! They are a vital part of the healthcare team and should be included always. #patientchat |
| HealthSparq @HealthSparq @EMoriartyWade We really do believe the online component is critical to conferences & are excited to try some new things this year at #WTFix to make the experience even better! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @anetto: T4 Including patients from the beginning and in the budget is a good start. Most patients can't afford to attend on their own. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @yourgpsdoc: @EMoriartyWade @llake @patientchat I ❤️ caregivers! They are a vital part of the healthcare team and should be included always. #patientchat |
| Vera Rulon FAHIMA @vrulon RT @PatientCritical: A5: A5: True involvement means getting RESULTS. In every industry people revolt when a new party is given a seat at the table. We have a right to be angry about #healthcare... but we can't afford to indulge in anger. Use it! Channel it. Convince others, defuse anger. #patientchat https://t.co/anjzXq3uJ6 |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @CitizenHealthio @lisadbudzinski @BenMaisano @GraceCordovano @burtrosen @MI_turnaround @clayforsberg @Underpaidnurse @misterchambo @DutchRojas @EMRAnswers Honored & humbled by the recognition #patientchat #FF https://t.co/TJgR1V7zZG |
| Kimberly Amelia @fireflyrn84 @GraceCordovano @HealthSparq @lisadbudzinski @EMRAnswers @patientchat 10 min left, come on phone!!! #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @yourgpsdoc @EMoriartyWade @patientchat #patientchat https://t.co/m9dO4tfIuv |
| 𝓝𝓪𝓽𝓻𝓲𝓬𝓮𝓡 😷🇨🇦❤️ 🥀 @NatriceR RT @anetto: T4 I would talk to them about the valuable perspectives patients bring, and their skill at spreading what they learn. #patientchat |
| Melissa VanHouten @melissarvh RT @techguy: If the conference is organized properly, then there are plenty of engagement opportunities for patients voices to be heard. I think the impact patients can have on a conference is often through the individual engagements as much or more than the overall agenda. #patientchat https://t.co/sjTVqTTrL4 |
| laminopathies support group @laminopathies T5. I don't have an example, but I think a conference with break- out sessions that include panels of patients with different disorders present to answer doctor's and researcher's questions would be great. #patientchat |
 | Leigh Anne Naas @lanaasindy T4: I have begun to ask my colleagues in pharma: if we don't include patients in the conversation, what won't we learn? #patientchat https://t.co/OO3qPCVu2m |
| Dr. Kelly Shanahan @stage4kelly .@AACR scientist<->survivor program has patients/advocates present posters during regular poster session #patientchat https://t.co/NGb0C0m6bD |
| Patient Critical Co-op @PatientCritical RT @RarePOV: |
| Lisa Davis Budzinski @lisadbudzinski RT @HealthSparq: @EMoriartyWade We really do believe the online component is critical to conferences & are excited to try some new things this year at #WTFix to make the experience even better! #patientchat |
| Alan Brewington @abrewi3010 T5 any conference that asks “how might we...?” Is on the right track towards engagement of everyone. #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| HealthSparq @HealthSparq RT @lanaasindy: T4: I have begun to ask my colleagues in pharma: T4: I have begun to ask my colleagues in pharma: if we don't include patients in the conversation, what won't we learn? #patientchat https://t.co/OO3qPCVu2m |
 | Veronica Waks MD,ND. @doctorveronica RT @stage4kelly: And there's a difference between patients attending conferences and being included in conferences. I go to a lot of conferences were patients attend but very few were patients are truly partners #patientchat https://t.co/ktKUkvAk0A |
| Your GPS Doc, LLC @yourgpsdoc T5: Involving patients beginning with the planning stages, valuing their perspectives, incorporating their ideas, and including them as presenters. #patientchat https://t.co/7WA1PLP41Z |
| Vera Rulon FAHIMA @vrulon @RarePOV That's awful. So wrong.... #patientchat |
| HealthSparq @HealthSparq Whew, can't believe it's already #CT time! So much to still digest from today's chat as we prep for #WTFix in less than 2 weeks! #patientchat https://t.co/Dylfkrv1bj |
| HealthSparq @HealthSparq RT @EMRAnswers: |
| Lisa Davis Budzinski @lisadbudzinski @RareCandace Always! Never attend any meeting without being truly prepared ✨#PatientChat |
| Dr. Kelly Shanahan @stage4kelly RT @lanaasindy: T4: I have begun to ask my colleagues in pharma: T4: I have begun to ask my colleagues in pharma: if we don't include patients in the conversation, what won't we learn? #patientchat https://t.co/OO3qPCVu2m |
| Angela Cohen @angelee828 RT @abrewi3010: T5 any conference that asks “how might we...?” Is on the right track towards engagement of everyone. #patientchat |
 | sunil malhotra @SunilMalhotra @GraceCordovano @llake Empathy matters most. Followed by compassion. #patientchat |
| Kimberly Amelia @fireflyrn84 @RarePOV Totally inappropriate and rude! This is what needs to change, no I take that back! MUST change! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @lanaasindy I love this! #patientchat |
| Annette McKinnon @anetto T4 Ability of patients to learn from many, in various venues can often provide insights that focused professionals don't see #patientchat |
| Melissa VanHouten @melissarvh @RarePOV Oh, my. How condescending. Speaks volumes about the low value they placed on your perspective. #PatientChat |
| Max Stroud @MMaxwellStroud I really loved "listening" today. Thanks everyone for so much great feedback and for the time you take to make the space better for the next patient who encounters the same things as you. #patientchat #WTFix |
| Patient Chat @patientchat RT @lanaasindy: T4: I have begun to ask my colleagues in pharma: T4: I have begun to ask my colleagues in pharma: if we don't include patients in the conversation, what won't we learn? #patientchat https://t.co/OO3qPCVu2m |
| Lillian Lake - Host of #SoulNestingChat @llake I LOVE this! Spot on. Yes, active listening not to ask questions and fix (that can come later) but to listen with intent to hear the story. Wow! #patientchat https://t.co/Jw2cvW1dVv |
| ElizabethKelly, Ph.D @Elizabe85727641 T5 Wondering If we could think in terms of a health conference that is not limited to illness or biology related? What about a topic like healthy living and the community? #patientchat |
| Alan Brewington @abrewi3010 CT Healthcare needs to revolve around the idea of everyone included. Paternalistic medicine is failing bc it doesn’t support everyone. #patientchat |
| laminopathies support group @laminopathies CT. Patients will teach doctors and researchers what is important to them, if you let them. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @Elizabe85727641: T5 Wondering If we could think in terms of a health conference that is not limited to illness or biology related? What about a topic like healthy living and the community? #patientchat |
| Init4Health #CaithClúdachAghaidhe #SábháilBeathaí. @Init4Health @EMRAnswers @fireflyrn84 @ReginaHolliday #patientchat ... totally agree - Regina and her walking gallery is soooo powerful https://t.co/2YnZWfAjtN each patient story/journey is personal & these jackets ignite interest, are great conversation starters & cannot be ignored. |
| Jamie Holloway, PhD @jamienholloway CT: One of the most valuable parts of going to conferences is relationship building. Talk to people at posters, sit next to strangers at meals or coffee breaks. Start a conversation at every opportunity. #patientchat |
| Vera Rulon FAHIMA @vrulon CT: Great chat. Thank you for the learnings: #patients as part of the inner circle when it comes to conferences - contribute to content, as speakers - the need to change #culture - not only at conferences but in #healthcare in general, build #trust (address #costs) #patientchat |
 | Holly Kirkland-Walsh @KirklandWalsh RT @vrulon: T5: T5: True #patient #caregiver involvement means including in content planning, as speakers, as audience participants, commentators, bloggers, etc. Need to think of examples.... #PatientChat |
| HealthSparq @HealthSparq RT @MMaxwellStroud: I really loved "listening" today. Thanks everyone for so much great feedback and for the time you take to make the space better for the next patient who encounters the same things as you. #patientchat #WTFix |
| Lisa Davis Budzinski @lisadbudzinski @HealthSparq Closing thoughts?! I'm still trying to read the tweets : ) #PatientChat |
| Lillian Lake - Host of #SoulNestingChat @llake @RarePOV A4 Yes, and allow me to take the opportunity to include respite care/ respite reimbursement So many "barriers to entry" that we face. Thank you! #patientchat |
| HealthSparq @HealthSparq @jamienholloway And do the same things if you are attending online!!! #WTFix #patientchat |
| Patient Chat @patientchat RT @laminopathies: CT. Patients will teach doctors and researchers what is important to them, if you let them. #patientchat |
| Kimberly Amelia @fireflyrn84 CT: Industry needs to change so that patients are included in every aspect of planning. Live-stream conferences so that people can participate. #WTFix 2018 will be doing just that in a couple weeks. Looking forward to that. Thanks for another great chat today! #patientchat |
| Dr. Kelly Shanahan @stage4kelly Got so engrossed in this #PatientChat that my French press coffee has been steeping forever! Oh well, I'll froth some almond milk and turn it into a latte! ☕️ |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Your GPS Doc, LLC @yourgpsdoc CT: patients and care partners offer a valuable perspective and should be included in all health conferences. #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 CT Let’s start with the goal of healthy living for all, illness is a part of health but not the whole picture. No one has referenced mental health. Are we just following the current $$ stream? #patientchat |
| Angela Cohen @angelee828 @lisadbudzinski @HealthSparq Phew, it's not just me! :) #PatientChat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @angelee828: T2: T2: I will be co-moderating a conference for my first time on May 12th. I was flattered and humbled that I was even asked. But also, we were asked for imput from the start. The doctor putting it together ensured that there were #patientsincluded the whole way. #patientchat |
| Patient Chat @patientchat Thank you so much to @HealthSparq for sharing your insights and being our guest on today’s #patientchat |
| Patient Critical Co-op @PatientCritical CT: #patients, #providers, #policymakers, #businesses all should be accorded equal respect, equal access. No one can heal, innovate, profit or reduce costs in #healthcare until all partners WORK together. Model respect, accomplish change in #healthcare. #patientchat https://t.co/CyBVf3Bohf |
| Vera Rulon FAHIMA @vrulon @Elizabe85727641 I like it. #PatientChat |
| Jamie Holloway, PhD @jamienholloway CT Also, have coffee with people... There is so much value in the connections made at conferences. Often more important than the sessions attended. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @PatientCritical: T4: T4: *Involve #patients from day one of planning *Invite DIFFERENT patients to planning committees every couple years *Don't just have 1 patient 'track' *Pay patients in advance (or risk ignoring those without means) *Open & close event with patient participation #patientchat |
| Lisa Davis Budzinski @lisadbudzinski CR: #healthcare please listen to your main stakeholders, your end users, from beginning to end & everything in between. Treasure troves of info to help direct change for the better✨ #patientchat |
| Melissa VanHouten @melissarvh RT @patientchat: Thank you so much to @HealthSparq for sharing your insights and being our guest on today’s #patientchat |
| Patient Chat @patientchat Don’t forget to to register for @HealthSparq’s free, virtual #WTFix conference today! https://t.co/rJJR4qtDCm #patientchat |
| Erin Moriarty Wade @EMoriartyWade RT @PatientCritical: T4: T4: *Involve #patients from day one of planning *Invite DIFFERENT patients to planning committees every couple years *Don't just have 1 patient 'track' *Pay patients in advance (or risk ignoring those without means) *Open & close event with patient participation #patientchat |
| HealthSparq @HealthSparq RT @PatientCritical: CT: CT: #patients, #providers, #policymakers, #businesses all should be accorded equal respect, equal access. No one can heal, innovate, profit or reduce costs in #healthcare until all partners WORK together. Model respect, accomplish change in #healthcare. #patientchat https://t.co/CyBVf3Bohf |
| Melissa VanHouten @melissarvh RT @PatientCritical: CT: CT: #patients, #providers, #policymakers, #businesses all should be accorded equal respect, equal access. No one can heal, innovate, profit or reduce costs in #healthcare until all partners WORK together. Model respect, accomplish change in #healthcare. #patientchat https://t.co/CyBVf3Bohf |
| Patient Critical Co-op @PatientCritical @vrulon #grassroots! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @lisadbudzinski: CR: CR: #healthcare please listen to your main stakeholders, your end users, from beginning to end & everything in between. Treasure troves of info to help direct change for the better✨ #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: Don’t forget to to register for @HealthSparq’s free, virtual #WTFix conference today! https://t.co/rJJR4qtDCm #patientchat |
| Max Stroud @MMaxwellStroud RT @patientchat: Don’t forget to to register for @HealthSparq’s free, virtual #WTFix conference today! https://t.co/rJJR4qtDCm #patientchat |
| Patient Chat @patientchat The next Empowered #patientchat will be Friday, May 18th https://t.co/BDMRaoH5zt Hope to see you there! |
| burtrosen 🟦 @burtrosen So sorry that i was so in and out today #PatientChat is hands down one of my fave chats and i wish i could've been more active today. It looks like i missed a lot of great thoughts! i will catch up. |
| Lisa Davis Budzinski @lisadbudzinski Oh good gravy! CT not CR #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @PatientCritical @RarePOV I really love the last suggestion. They're all great suggestions. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @patientchat: Don’t forget to to register for @HealthSparq’s free, virtual #WTFix conference today! https://t.co/rJJR4qtDCm #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @RarePOV: |
| Jeremy Murphy @jeremypmurphy RT @patientchat: T5: T5: What does true involvement of patients and care partners in healthcare conferences look like? Is there a good example? #patientchat |
 | Citizen Health @CitizenHealthio RT @GraceCordovano: I need more characters but: ✔️refreshing perspectives & humanity ✔️authentic insights into what's truly valuable in #healthcare ✔️opportunity to learn ✔️potential to bridge silos ✔️get away from doing things "the way they've always been done" #patientchat https://t.co/1UIq80ZU8L |
 | Richard Kreis @kreisr1 RT @patientchat: Don’t forget to to register for @HealthSparq’s free, virtual #WTFix conference today! https://t.co/rJJR4qtDCm #patientchat |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with the hashtag #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @patientchat: The next Empowered #patientchat will be Friday, May 18th https://t.co/BDMRaoH5zt Hope to see you there! |
| HealthSparq @HealthSparq We hope you all can join us at #WTFix! Special thanks to our Digital Advisory Board for co-hosting today's chat with us & to #patientchat for driving this amazing conversation! https://t.co/rB4o4e2QGf |
| Your GPS Doc, LLC @yourgpsdoc @lisadbudzinski 😂😂 We knew what you meant. #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake RT @laminopathies: CT. Patients will teach doctors and researchers what is important to them, if you let them. #patientchat |
 | Soren Kierkegaard @sorkierkegardy The moon is preserved, the music expresses, the unknown land and nisses and compelling, and at the music. #patientchat |
| Laurus @LaurusT001 RT @burtrosen: So sorry that i was so in and out today #PatientChat is hands down one of my fave chats and i wish i could've been more active today. It looks like i missed a lot of great thoughts! i will catch up. |
| Lillian Lake - Host of #SoulNestingChat @llake I picked up some important tips I had forgotten in planning a local conference, plus some ideas I hadn't even considered. Love it! Thank you all! #patientchat https://t.co/Gb8iQZoGcK |
| Leigh Anne Naas @lanaasindy CT: What do you all think of the #MedX model of expecting patient participants tweet/blog their experience at the conference so others who can't attend can learn about it online? #patientchat https://t.co/n2JLJ28G2Z |
| Lillian Lake - Host of #SoulNestingChat @llake RT @PatientCritical: CT: CT: #patients, #providers, #policymakers, #businesses all should be accorded equal respect, equal access. No one can heal, innovate, profit or reduce costs in #healthcare until all partners WORK together. Model respect, accomplish change in #healthcare. #patientchat https://t.co/CyBVf3Bohf |
| Angela Cohen @angelee828 CT: I think things are slowing improving but there is a long way to go. We still need to work together to build awareness, sharing resources, and being supportive of each other, so the progress can continue. :) #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @llake That’s wonderful! 👏👏👏👏 #patientchat |
| Lillian Lake - Host of #SoulNestingChat @llake @EMRAnswers @fireflyrn84 @ReginaHolliday Regina is the bomb when it comes to shedding light on Patient stories. #patientchat |
 | Sam Falsetti @DrFalsetti RT @RarePOV: |
| Lillian Lake - Host of #SoulNestingChat @llake RT @Init4Health: @EMRAnswers @fireflyrn84 @ReginaHolliday #patientchat ... totally agree - Regina and her walking gallery is soooo powerful https://t.co/2YnZWfAjtN each patient story/journey is personal & these jackets ignite interest, are great conversation starters & cannot be ignored. |
| Lisa Davis Budzinski @lisadbudzinski @lanaasindy It’s always great to have social media ambassadors ✨ #patientchat |
| Angela Cohen @angelee828 Thanks so much for such a fun and insightful chat. That hour zipped by. I'm going to have to go through and see what I missed. I'm looking forward to #WTFix even MORE if that was possible!!! #patientchat |
 | Espaço Jovem @twjovem #patientchat RadioGlobal top5. Play! https://t.co/86eD9ag4mK |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @bbhomebody Yeah, let's all get out of here.Have a great weekend everyone #patientchat https://t.co/ePvwzvnrOR |
| Jamie Holloway, PhD @jamienholloway @lanaasindy You know I do that all the time! I think it's really valuable for patients to be able to follow along when they can't attend in person! #patientchat |
 | Jandis Price @jandis_price RT @EMRAnswers: |
| Citizen Health @CitizenHealthio RT @patientchat: Don’t forget to to register for @HealthSparq’s free, virtual #WTFix conference today! https://t.co/rJJR4qtDCm #patientchat |
| HealthSparq @HealthSparq @lisadbudzinski YES!!! We are so happy to have you all!!! #WTFix #PatientChat |
| Manishree Bhattacharya @ManishreeBhatt1 RT @ManishreeBhatt1: @patientchat Involving patients and caregivers in conferences will bring out real world stories, pain-points, evidences and help industry stakeholders identify the real challenges they need to solve, or get real-time feedback. #patientchat |
| Erin Moriarty Wade @EMoriartyWade @lanaasindy I love this!! I can’t always take a break from the daily grind to watch an entire webcast, but I can always find a few minutes here and there to read and learn something new on Twitter! #patientchat,#patientsincluded |
#patientchat content from Twitter.