#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself #patientchat |
| @mikebarry44 @patientchat Hi there #patientchat | |
| Patient Chat @patientchat Guest @sixuntilme is Kerri Sparling. Dx’d with type 1 diabetes in 1986, Kerri works to raise awareness for diabetes as a speaker and writer. Her blog is https://t.co/dJEBjRLPwc, and she’s also on the @patientrev board. #patientchat |
 | Enlightening Results 💡 @GraceCordovano Happy Friday #patientchat! Grace, private cancer patient advocate & PtExp enhancer joining from NJ https://t.co/ERvbrsu4Vn |
 | Beth Morton @beth_morton @RieOfLetters Me too. I'm might just lurk in this week's #patientchat. Rest and restore some energy, @RieOfLetters. |
| Patient Chat @patientchat Today’s chat was pulled from @patientrev’s reflection doc, which you can check out here: https://t.co/Upt7eT4LKh #patientchat |
 | Christina Lizaso @btrfly12 RT @patientchat: Today’s chat was pulled from @patientrev’s reflection doc, which you can check out here: https://t.co/Upt7eT4LKh #patientc… |
| Patient Chat @patientchat You can find out more about @patientrev and their mission here: https://t.co/fjaX6TWg2N #patientchat |
 | The Patient Revolution @patientrev Intro: Hi, all! I'm Kerri and I have been living with type 1 diabetes for 31 years. I write at https://t.co/duZAPrktHf and am a proud part of the @patientrev board. Excited to join everyone today! #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: Guest @sixuntilme is Kerri Sparling. Dx’d with type 1 diabetes in 1986, Kerri works to raise awareness for diabetes as a s… |
 | Nirav J. Modi @NiravJModi Greetings from Chicago. Looking forward to the chat today. #patientchat |
 | Alan Brewington @abrewi3010 Alan here. I’m a #chronicpain #inflammatoryarthritis and #caregiver patient from Boise Idaho. #patientchat |
| Patient Chat @patientchat I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat |
| Enlightening Results 💡 @GraceCordovano @beth_morton @RieOfLetters Glad you could check in. Wishing you a cozy rest! #patientchat |
 | Savvy Cooperative | #AskPatients @savvy_coop And that “someone” is actually a co-op of patients, caregivers and helpful citizens trying to improve healthcare by sharing their insights and experiences. Join these awesome people and help change the world ❤️ #savvypatients #hitsm #patientexperience #ptexp #wtfix #patientchat https://t.co/CNOSLnhzPR |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: You can find out more about @patientrev and their mission here: https://t.co/fjaX6TWg2N #patientchat |
| Nirav J. Modi @NiravJModi @GraceCordovano Hi Grace - great to see you! #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs and history #patientchat |
| The Patient Revolution @patientrev RT @patientchat: Today’s chat was pulled from @patientrev’s reflection doc, which you can check out here: https://t.co/Upt7eT4LKh #patientc… |
 | AutonomicRN© @AutonomicRN I'm Kim, from Wisconsin. #raredisease patient and #advocate for healthcare in general. RN turned professional patient (ugh)! Blogger too #patientchat |
 | Dr. Nancy Kusmaul @nancy_kusmaul Hi #patientchat! First time participant, assistant professor in social work @UMBC studying person centered care. |
| Nirav J. Modi @NiravJModi @patientchat @power4patients Thanks for hosting! #patientchat |
| AutonomicRN© @AutonomicRN [REDACTED USER] Hey Lisa #patientchat |
| AutonomicRN© @AutonomicRN @GraceCordovano Hi Grace! #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/UENH6hX6z9 #patientchat |
 | Richard Zhao @richardzhao Hello, everyone. This is Richard Zhao from #Minneapolis . Doing #PatientSentiment analysis to bring transparency to healthcare service. Here to learn. #patientchat |
| The Patient Revolution @patientrev RT @patientchat: Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical need… |
| Christina Lizaso @btrfly12 Hi all :) Lovely to be able to chat with you all again after about 4 months. You can find me tweeting #patientchat #gyncsm #breakthroughcrew #nsgcgenepool |
| Patient Chat @patientchat Today's #patientchat topic is Caring for the Whole Person https://t.co/HmFypNu3WP |
| AutonomicRN© @AutonomicRN @nancy_kusmaul @UMBC you should be awarded the Nobel Peace Prize for person centered care...boy do we need that!! #patientchat |
| Nirav J. Modi @NiravJModi @AutonomicRN Hi Kim! #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| @MMaxwellStroud RT @savvy_coop: And that “someone” is actually a co-op of patients, caregivers and helpful citizens trying to improve healthcare by sharing… | |
| AutonomicRN© @AutonomicRN @richardzhao Hi Richard! Hope you're feeling better. #patientchat |
| Enlightening Results 💡 @GraceCordovano @NiravJModi Hi Nirav! #patientchat |
| Richard Zhao @richardzhao @AutonomicRN Hello, Kimberly. I am getting much better. Thanks. #patientchat |
| AutonomicRN© @AutonomicRN @NiravJModi Hi there! #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: Today's #patientchat topic is Caring for the Whole Person https://t.co/HmFypNu3WP |
| Enlightening Results 💡 @GraceCordovano @AutonomicRN @nancy_kusmaul @UMBC Hi Nancy! Glad you could join. Welcome! #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| Enlightening Results 💡 @GraceCordovano @bbhomebody @Cpnervecenter Hi Becky! Happy Fri! #patientchat |
| Patient Chat @patientchat Q1: What does "treating the whole person" mean to you, as a patient? #patientchat |
| The Patient Revolution @patientrev RT @patientchat: Q1: What does "treating the whole person" mean to you, as a patient? #patientchat |
 | Melissa VanHouten @melissarvh A1 Attending to physical, mental, emotional, & spiritual needs & integrating various approaches which might benefit the patient #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: Q1: What does "treating the whole person" mean to you, as a patient? #patientchat |
| Enlightening Results 💡 @GraceCordovano @btrfly12 Hi Christina! Glad to see you here. #patientchat |
| @StephenSType1 Hello all... Stephen here... diabetes patient and advocate from Baltimore, MD USA. Hope to catch a little #patientchat before my lunch ends | |
 | Heather 🇺🇸 @ZHeatherChamp @patientchat I’m at the doctor but trying to peek in! #patientchat |
| AutonomicRN© @AutonomicRN @bbhomebody @Cpnervecenter Hey Becky! Always coming in swinging in style with bitmoji :) #patientchat |
| Alan Brewington @abrewi3010 A1 it means I’m a person, not a symptom found in a medical textbook. #patientchat |
 | Kelly / Diabetes @diabetesalish Hi guys! #patientchat |
| Nirav J. Modi @NiravJModi @bbhomebody @Cpnervecenter Hi Becky! #patientchat Happy Friday. |
 | Shereese Maynard, MS; MBA @ShereeseMayMba T1 Whole treating is treat the mind, body & spirit of the individual. We now accept that physical and mental health are not mutually exclusive #patientchat |
| The Patient Revolution @patientrev T1. Treating the whole patient means seeing my disease (type 1 diabetes) in the context of my real life, not just in the vacuum of a clinical encounter. #patientchat - ks |
| The Patient Revolution @patientrev RT @ShereesePubHlth: T1 Whole treating is treat the mind, body & spirit of the individual. We now accept that physical and mental health ar… |
| Dr. Nancy Kusmaul @nancy_kusmaul @patientchat A1: I'm not a patient but to me it means considering all aspects of the person's life especially how the disease interacts with the things that are important to that person. #patientchat |
 | Heidi Grabenstatter @PatientIntv Hi everyone, Hope I am finding you all well and that you are having a great Friday! #patientchat |
| Richard Zhao @richardzhao [REDACTED USER] Hello, Lisa #patientchat |
| Heather 🇺🇸 @ZHeatherChamp A1: It means ASKING ME ABOUT MY FEELINGS. Thoughts. Actions. Worries. The whole package! #patientchat #pten #btsm |
| Enlightening Results 💡 @GraceCordovano RT @patientchat: Q1: What does "treating the whole person" mean to you, as a patient? #patientchat |
| Christina Lizaso @btrfly12 T1: To me "treating the whole person" is about discussing how care plans fit into the patient's life and GOALS vs. the patient figuring that out later in a vacuum. #patientchat |
| @StephenSType1 A1. It means treating beyond the original diagnosis #patientchat | |
| Christina Lizaso @btrfly12 RT @melissarvh: A1 Attending to physical, mental, emotional, & spiritual needs & integrating various approaches which might benefit the pat… |
| Nirav J. Modi @NiravJModi T1: Diagnosis and treatment has to go beyond considering presented symptoms. Pre-existing conditions, lifestyle, diet, etc. have to be kept in context. Without doubt, #ptexp #patientexperience, and outcomes could improve if the bigger picture is considered. #SDOH #patientchat |
| The Patient Revolution @patientrev RT @nancy_kusmaul: @patientchat A1: I'm not a patient but to me it means considering all aspects of the person's life especially how the di… |
| Alan Brewington @abrewi3010 T1 it means my quality of life is the bases for every decision. #patientchat |
| Christina Lizaso @btrfly12 RT @ShereesePubHlth: T1 Whole treating is treat the mind, body & spirit of the individual. We now accept that physical and mental health ar… |
| @mikebarry44 A1 #patientchat not just the problem I’m there for. T1Diabetes comes up regularly at other specialties https://t.co/LnHqGpE3P7 | |
| Christina Lizaso @btrfly12 RT @abrewi3010: A1 it means I’m a person, not a symptom found in a medical textbook. #patientchat |
| Christina Lizaso @btrfly12 RT @nancy_kusmaul: @patientchat A1: I'm not a patient but to me it means considering all aspects of the person's life especially how the di… |
| The Patient Revolution @patientrev This. THIS. #patientchat https://t.co/2DMycrCRjY |
| Heather 🇺🇸 @ZHeatherChamp I missed intro as I’m waiting at doctor. Person living with Cowden Syndrome & Lhermitte-duclos Disease. Busy Friday! #patientchat #pten #btsm |
| Nirav J. Modi @NiravJModi @ZHeatherChamp @patientchat :) You can provide a first-hand, live account for some of today's topics! #patientchat I hope everything goes well. |
| Christina Lizaso @btrfly12 RT @abrewi3010: T1 it means my quality of life is the bases for every decision. #patientchat |
 | Anthony Leon @anthonynotleon @patientchat Anthony from Huntington Beach, CA. Work in healthcare on the tech side of things but passionate about patient outcomes as that involves myself as well as my family and friends. #patientchat |
| AutonomicRN© @AutonomicRN A1: The whole person includes physical, emotional and psychosocial. We can't treat a disease if we aren't treating the person themselves. Ask how I'm actually doing, what does it feel like to be in this position? It's hard to be a patient and so many don't understand #patientchat |
 | nobism @nobismhealth RT @savvy_coop: And that “someone” is actually a co-op of patients, caregivers and helpful citizens trying to improve healthcare by sharing… |
| nobism @nobismhealth RT @NiravJModi: T1: Diagnosis and treatment has to go beyond considering presented symptoms. Pre-existing conditions, lifestyle, diet, etc.… |
 | Stephanie Crabb @stephaniecrabb Good afternoon all. Former social worker, perpetual patient/caregiver advocate, recent caregiver to mom. #patientchat |
| Patient Chat @patientchat RT @btrfly12: T1: To me "treating the whole person" is about discussing how care plans fit into the patient's life and GOALS vs. the patien… |
| Kelly / Diabetes @diabetesalish Kelly, #diabetes patient advocate https://t.co/HJ5ju6zFwU #IWishPeopleKnewThatDiabetes .org currently eating lunch :) #patientchat |
| Dr. Nancy Kusmaul @nancy_kusmaul @patientchat A1: It also means considering the psychosocial barriers to treatment and care such as access to prescribed treatments and responsibilities that could impair ability to follow plan. #patientchat |
| The Patient Revolution @patientrev Thanks for being here, Ally. Your perspectives are always spot on for me. - ks #patientchat https://t.co/H6SatH2Ldr |
 | Patient Empowerment Network @power4patients Q1: A Person Centered Approach to Care: https://t.co/KsLpOzK0Tp #patientchat |
| Nirav J. Modi @NiravJModi RT @patientrev: This. THIS. #patientchat https://t.co/2DMycrCRjY |
| Heather 🇺🇸 @ZHeatherChamp @NiravJModi Thank you much! #patientchat |
| Dr. Nancy Kusmaul @nancy_kusmaul RT @btrfly12: T1: To me "treating the whole person" is about discussing how care plans fit into the patient's life and GOALS vs. the patien… |
| Alan Brewington @abrewi3010 T1 it needs to include my caregivers too. They are an important part of my whole person. #patientchat |
| AutonomicRN© @AutonomicRN #qualityoflife all the way! Yes yes yes!! #patientchat https://t.co/tHyLawt3Qw |
| The Patient Revolution @patientrev @nancy_kusmaul @patientchat Agreed. The best strategy includes discussions about access and potential barriers. #patientchat |
| Enlightening Results 💡 @GraceCordovano A1: Recognizing that treatment planning must consider a person’s values, needs, preferences, not just the diagnosis at hand. Treating he whole person is dynamic, can change daily. Revisit frequently. #patientchat https://t.co/nER461znLh |
| Heidi Grabenstatter @PatientIntv T1: I am a wife, mom, a professional, and I chronic patient. Caring for me knowing my crazy lifestyle and that I want to be crazy good at every aspect regardless of adversity is "treating the whole patient." #patientchat |
| Alan Brewington @abrewi3010 RT @AutonomicRN: #qualityoflife all the way! Yes yes yes!! #patientchat https://t.co/tHyLawt3Qw |
| The Patient Revolution @patientrev "Revisit frequently" is key. #patientchat https://t.co/eIKF10lBRW |
| Shereese Maynard, MS; MBA @ShereeseMayMba Pardon my rudeness. I'm Shereese, hopping on late from Maryland #patientchat https://t.co/QucVjk5vSl |
| Patient Chat @patientchat Topic 2 (T2:) coming up...https://t.co/HmFypNu3WP #patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: T1 it needs to include my caregivers too. They are an important part of my whole person. #patientchat |
| Alan Brewington @abrewi3010 RT @patientchat: Topic 2 (T2:) coming up...https://t.co/HmFypNu3WP #patientchat |
| Nirav J. Modi @NiravJModi @ShereesePubHlth Hi Shereese! #patientchat |
| Patient Chat @patientchat Q2: What is one NON-MEDICAL thing about your life that you think your clinician should know? #patientchat |
| Kelly / Diabetes @diabetesalish q1 treating/talking to me as a person, not my condition. Talking to and with me, not at me. And listening to what I have to say. #PatientChat https://t.co/X9Myg4MNia |
| AutonomicRN© @AutonomicRN @ShereesePubHlth Hey there! #patientchat |
| @StephenSType1 RT @patientchat: Q2: What is one NON-MEDICAL thing about your life that you think your clinician should know? #patientchat | |
| Enlightening Results 💡 @GraceCordovano @ShereesePubHlth Hey Shereese! So great to have you here! Hitting the crux of it today. #patientchat |
| Dr. Nancy Kusmaul @nancy_kusmaul @sixuntilme A1: Absolutely. Patients, as well as their diseases, are not static. Circumstances and situations change continuously. #patientchat |
| Kelly / Diabetes @diabetesalish RT @patientchat: Q2: What is one NON-MEDICAL thing about your life that you think your clinician should know? #patientchat |
| Enlightening Results 💡 @GraceCordovano @AutonomicRN @ShereesePubHlth Hi Kim!! Long time no see 😜 #patientchat |
| Melissa VanHouten @melissarvh A2 I am independent and strong-willed and do not take kindly to being "instructed" or "ordered" to comply. I am capable. #patientchat |
| Heather 🇺🇸 @ZHeatherChamp A2: It’s non medical, but caused BY my medical status. I’m financially destitute and ruined. Bankruptcy. Can’t afford to live yet alone thrive now post dx. #pten #btsm #patientchat |
| Stephanie Crabb @stephaniecrabb Q1: Mind, body, spirit. It means that my providers care about/know my values/beliefs about living and dying - how I want to live/how I want to die. It means that we share an understanding about what “good outcomes” are...not just how a quality committee defines them. #patientchat https://t.co/aEYgtYCYCO |
| Heather 🇺🇸 @ZHeatherChamp [REDACTED USER] Love this! #patientchat |
| The Patient Revolution @patientrev T2. One non-medical thing my clinician should know is how motivating my children are to my follow through. Their health and well-being is what fuels me to maintain my health and well-being. #patientchat - ks |
| The Patient Revolution @patientrev This is a hugely important point. Thank you for sharing this. #patientchat - ks https://t.co/LM3lLvP757 |
| Alan Brewington @abrewi3010 T2 first, there is no medical/non medical category in my life, it’s my life! Skiing, hiking, photography are my life, treat with that in mind. #patientchat |
| Anthony Leon @anthonynotleon @patientchat A2: Having kids or someone else to take care of adds a whole other dynamic to everything. Time, sleep, priorities, all has to be considered when thinking of a treatment plan. #patientchat |
| Shereese Maynard, MS; MBA @ShereeseMayMba A2 I'm intelligent and I can read. Please stop sending your nurse to "explain" things. She seems to know less than I do. #patientchat |
| AutonomicRN© @AutonomicRN A2: Hobbies; even though non-clinical, they can ultimately have an impact on the overall psychosocial well being #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: Q2: What is one NON-MEDICAL thing about your life that you think your clinician should know? #patientchat |
| @StephenSType1 Q2. Despite my calm demeanor (or because of it), I won't ask permission to break a ridiculous rule #patientchat | |
| Nirav J. Modi @NiravJModi T2: This will clearly vary from one patient to the next #SDOH, but I think stress-level is probably singly the most important non-clinical symptom that impacts my health acutely. #patientchat #stress |
| Kelly / Diabetes @diabetesalish RT @AutonomicRN: A2: Hobbies; even though non-clinical, they can ultimately have an impact on the overall psychosocial well being #patient… |
| Dr. Nancy Kusmaul @nancy_kusmaul @melissarvh A2: So often "patient non-compliance" is really code for "poor assessment" or "poor communication." #patientchat |
| The Patient Revolution @patientrev @StephenSType1 Say more about this? #patientchat - ks |
| Stephanie Crabb @stephaniecrabb Q2: That my favorite place to “recharge” - my most healing place - is in the mountains. #patientchat https://t.co/2T95HjOaj7 |
| Christina Lizaso @btrfly12 RT @stephaniecrabb: Q1: Mind, body, spirit. It means that my providers care about/know my values/beliefs about living and dying - how I wan… |
| Kelly / Diabetes @diabetesalish RT @ZHeatherChamp: A2: It’s non medical, but caused BY my medical status. I’m financially destitute and ruined. Bankruptcy. Can’t afford to… |
| @StephenSType1 Love this! #patientchat https://t.co/9oQOiK65yq | |
| Melissa VanHouten @melissarvh RT @nancy_kusmaul: @melissarvh A2: So often "patient non-compliance" is really code for "poor assessment" or "poor communication." #patien… |
| Dr. Nancy Kusmaul @nancy_kusmaul @AutonomicRN A2: Hobbies are the "self care" we talk about, and diseases can impact someone's ability to participate in them. They are an essential part of a good clinical assessment in my opinion. #patientchat |
| AutonomicRN© @AutonomicRN Ultimately this does become a clinical issue, especially when you start looking at #medicationcosts and transportation to and from appts. These are things that we might not think the clinician should know, but really they do. #patientchat https://t.co/EZmuNZrQQ6 |
| Kelly / Diabetes @diabetesalish Q2: my time is important, please respect. #PatientChat |
| Christina Lizaso @btrfly12 RT @NiravJModi: T2: This will clearly vary from one patient to the next #SDOH, but I think stress-level is probably singly the most importa… |
| Heather 🇺🇸 @ZHeatherChamp @NiravJModi Yes!!!!!!!!! #patientchat |
| Alan Brewington @abrewi3010 RT @diabetesalish: Q2: my time is important, please respect. #PatientChat |
 | Geeky Fox @TechKitsune I am hopeful that you have the answer I am looking for. I trust your judgement. #patientchat https://t.co/zltEVPBUI5 |
| AutonomicRN© @AutonomicRN BINGO #patientchat https://t.co/364GRABlKQ |
| The Patient Revolution @patientrev RT @nancy_kusmaul: @melissarvh A2: So often "patient non-compliance" is really code for "poor assessment" or "poor communication." #patien… |
| Christina Lizaso @btrfly12 RT @nancy_kusmaul: @AutonomicRN A2: Hobbies are the "self care" we talk about, and diseases can impact someone's ability to participate in… |
| Patient Chat @patientchat Topic 3 (T3:) coming up...https://t.co/HmFypNu3WP #patientchat |
| Shereese Maynard, MS; MBA @ShereeseMayMba T2 All minorities are not the same, don't have the same income, don't all lack education, and most of us don't trust you to have our best interest. Thus the questions and quizzical brow #patientchat https://t.co/zv0GLJyal4 |
| Patient Empowerment Network @power4patients T2: Why Your Patient Story Matters: https://t.co/naQF4dt3bX #patientchat |
| Dr. Nancy Kusmaul @nancy_kusmaul @AutonomicRN That's why it is important to include social work in the assessment. A good social worker can connect patients to resources that the clinician does not even know exist. #patientchat |
| Stephanie Crabb @stephaniecrabb @ShereesePubHlth You are relentless. :) |
| Alan Brewington @abrewi3010 T2 my idea of risk matches my personality. Present options that match me, not some stupid step therapy progression. #patientchat |
| Kelly / Diabetes @diabetesalish RT @patientchat: Topic 3 (T3:) coming up...https://t.co/HmFypNu3WP #patientchat |
| Patient Chat @patientchat Q3: How can doctors engage patients in conversation that uncovers this information? #patientchat |
| AutonomicRN© @AutonomicRN As annoying and aggravating as that does get, CYA concept comes into play. It's a requirement to document that teaching was done or else there is a deficiency by the facility #patientchat https://t.co/zno0IRP24A |
 | Richard Kreis @kreisr1 RT @patientchat: Q2: What is one NON-MEDICAL thing about your life that you think your clinician should know? #patientchat |
| Richard Kreis @kreisr1 RT @power4patients: Q1: A Person Centered Approach to Care: https://t.co/KsLpOzK0Tp #patientchat |
| Richard Zhao @richardzhao Patient non-compliance could relate to many reasons. Engaging patients to compliance should be the mentality for providers. #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Q1: What does "treating the whole person" mean to you, as a patient? #patientchat |
| @StephenSType1 @sixuntilme @patientrev Maybe not the best example... but if I have to make an appointment to renew a prescription, I might search for another way to get it #patientchat | |
| Richard Kreis @kreisr1 RT @btrfly12: Hi all :) Lovely to be able to chat with you all again after about 4 months. You can find me tweeting #patientchat #gyncsm #b… |
| The Patient Revolution @patientrev RT @patientchat: Q3: How can doctors engage patients in conversation that uncovers this information? #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Today's #patientchat topic is Caring for the Whole Person https://t.co/HmFypNu3WP |
| Richard Kreis @kreisr1 RT @patientchat: Topic 2 (T2:) coming up...https://t.co/HmFypNu3WP #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: A1: The whole person includes physical, emotional and psychosocial. We can't treat a disease if we aren't treating the per… |
| Heather 🇺🇸 @ZHeatherChamp @nancy_kusmaul I reached out to one. No help whatsoever. #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Today’s chat was pulled from @patientrev’s reflection doc, which you can check out here: https://t.co/Upt7eT4LKh #patientc… |
 | Kaitlyn G. O’Hagan, PhD @KaitlynOHagan RT @nancy_kusmaul: @melissarvh A2: So often "patient non-compliance" is really code for "poor assessment" or "poor communication." #patien… |
| Richard Kreis @kreisr1 RT @patientchat: Guest @sixuntilme is Kerri Sparling. Dx’d with type 1 diabetes in 1986, Kerri works to raise awareness for diabetes as a s… |
| Richard Kreis @kreisr1 RT @patientchat: I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat |
| Richard Kreis @kreisr1 RT @power4patients: T2: Why Your Patient Story Matters: https://t.co/naQF4dt3bX #patientchat |
| AutonomicRN© @AutonomicRN @nancy_kusmaul You're exactly right. I always asked for #consults from social workers for my patients. You should be as involved in the care circle as everyone else. #patientchat |
| Richard Kreis @kreisr1 RT @abrewi3010: T1 it needs to include my caregivers too. They are an important part of my whole person. #patientchat |
| Heidi Grabenstatter @PatientIntv A2: I love talking to med students, PA students, trainees of any kind. . . send them in. I will gladly be your guinea pig. #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Join us in a few minutes for the Empowered #patientchat. Info/Topics: https://t.co/HmFypNu3WP https://t.co/qj5PgfzSi6 |
| Richard Zhao @richardzhao RT @AutonomicRN: BINGO #patientchat https://t.co/364GRABlKQ |
| Richard Kreis @kreisr1 RT @patientchat: Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Richard Kreis @kreisr1 RT @stephaniecrabb: Good afternoon all. Former social worker, perpetual patient/caregiver advocate, recent caregiver to mom. #patientchat |
| Dr. Nancy Kusmaul @nancy_kusmaul Yes. THIS! And that often care providers do not reflect the populations they serve. I watched something yesterday by @choo_ek @feminemtweets about how ER physicians do not reflect the population, and how by improving this we will improve care. #patientchat https://t.co/35FfnuVPkR |
| Richard Kreis @kreisr1 RT @patientchat: Topic 3 (T3:) coming up...https://t.co/HmFypNu3WP #patientchat |
 | Edward Canvas @SMashWordsBClub Dealing with mental illness can be hard #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/UENH6hX6z9 #patientchat |
| @StephenSType1 This has been great! Unfortunately, I have to get back to work. Hope to catch the next #patientchat! #patientchat | |
| The Patient Revolution @patientrev T3. I feel that the humanity is missing, at times, from healthcare. Eye contact isn't "reimbursable," but it's crucial to trust, honesty, and productive conversation between clinicians and patients. #patientchat - ks |
| Richard Kreis @kreisr1 RT @patientchat: Q3: How can doctors engage patients in conversation that uncovers this information? #patientchat |
| Alan Brewington @abrewi3010 Noncompliance runs both ways. Providers need to accept this responsibility more. #patientchat https://t.co/d9M9dDBzBT |
| Kelly / Diabetes @diabetesalish .@StephenSType1 that’s very important! #PatientChat https://t.co/eA3Ogsii5b |
| Shereese Maynard, MS; MBA @ShereeseMayMba @AutonomicRN I really get annoyed when I end up educating the nurse. If my Dr. ever listened he'd take a different approach. #patientchat |
| Dr. Nancy Kusmaul @nancy_kusmaul @patientchat A3: Treat them like a person. Don't be in a hurry, even if you're in a hurry. Respect that they know themselves better than you do and treat their knowledge like it is valuable. #patientchat |
| Geeky Fox @TechKitsune By not brushing over small talk. I hate the "let's just get to the point" aspect of appointments. #patientchat https://t.co/oHfYoqtHmp |
| Christina Lizaso @btrfly12 RT @nancy_kusmaul: @AutonomicRN That's why it is important to include social work in the assessment. A good social worker can connect pati… |
| Patient Chat @patientchat @StephenSType1 glad you could stop by! #patientchat |
| Melissa VanHouten @melissarvh A3 Converse. Ask me what my wishes & treatment goals are; don't assume. My definition of QoL might not match yours, Good Doctor #patientchat |
| Nirav J. Modi @NiravJModi T3: Patients are people...have a conversation. #providers need time to get to know the #patient. Treating the symptoms without understanding the circumstance happens all too often. We need a system and framework that supports and encourages this type of interaction #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: Q3: How can doctors engage patients in conversation that uncovers this information? #patientchat |
| Anthony Leon @anthonynotleon @patientchat A3: Coming from the tech side, having the doctor look away from the computer screen to actually engage me. That is a good portion of the tech sides fault, but I've had some providers where they look like Wilson #patientchat https://t.co/ZUWkpwgWQo |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @melissarvh A2: So often "patient non-compliance" is really code for "poor assessment" or "poor communication." #patien… |
| AutonomicRN© @AutonomicRN A3: When doing a full history and physical, the clinician will turn it into a dialogue. It's a conversation that generally will evolve and start to uncover hobbies, preferences, barriers to care. All of which are equally important for the care of the patient #patientchat |
| Dr. Nancy Kusmaul @nancy_kusmaul @ZHeatherChamp That's why I said a good social worker. I realize that like in any other profession, not all social workers are created equal. Sadly. #patientchat |
| Richard Kreis @kreisr1 RT @NiravJModi: T2: This will clearly vary from one patient to the next #SDOH, but I think stress-level is probably singly the most importa… |
| Richard Kreis @kreisr1 RT @stephaniecrabb: Q2: That my favorite place to “recharge” - my most healing place - is in the mountains. #patientchat https://t.co/2T95H… |
| Richard Kreis @kreisr1 RT @AutonomicRN: A2: Hobbies; even though non-clinical, they can ultimately have an impact on the overall psychosocial well being #patient… |
| Richard Kreis @kreisr1 RT @AutonomicRN: #qualityoflife all the way! Yes yes yes!! #patientchat https://t.co/tHyLawt3Qw |
| Patient Chat @patientchat RT @NiravJModi: T3: Patients are people...have a conversation. #providers need time to get to know the #patient. Treating the symptoms wit… |
| Richard Kreis @kreisr1 RT @AutonomicRN: Ultimately this does become a clinical issue, especially when you start looking at #medicationcosts and transportation to… |
| Richard Kreis @kreisr1 RT @stephaniecrabb: Q1: Mind, body, spirit. It means that my providers care about/know my values/beliefs about living and dying - how I wan… |
| Richard Zhao @richardzhao @abrewi3010 Bundle payment is an improvement to fee-for-service model, from healthcare insurance perspective #patientchat |
| Nirav J. Modi @NiravJModi @patientrev Agreed. There is no substitute for the conversation that should happen between patient and provider - and for continuity. There has to be quality-time spent together. #patientchat |
| The Patient Revolution @patientrev T3. Kind and careful care isn't a catchphrase, but instead a real, reachable goal. Remembering that clinicians and patients are all PEOPLE makes a big difference. #patientchat - ks |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @patientchat A1: I'm not a patient but to me it means considering all aspects of the person's life especially how the di… |
| Richard Kreis @kreisr1 RT @patientrev: T3. I feel that the humanity is missing, at times, from healthcare. Eye contact isn't "reimbursable," but it's crucial to t… |
| Richard Kreis @kreisr1 RT @NiravJModi: T3: Patients are people...have a conversation. #providers need time to get to know the #patient. Treating the symptoms wit… |
| Shereese Maynard, MS; MBA @ShereeseMayMba [REDACTED USER] Right? It's pretty hard to cultivate a collaborative relationship 15 minutes at a time #PatientChat |
| Richard Kreis @kreisr1 RT @diabetesalish: Q2: my time is important, please respect. #PatientChat |
| AutonomicRN© @AutonomicRN @ShereesePubHlth I do too, and I’m a nurse #patientchat |
| Alan Brewington @abrewi3010 T3 I’m a person in pain, not a commodity found in a balance sheet. Talk to me as an equal human & I will return the favor. #patientchat |
| Richard Kreis @kreisr1 RT @ShereesePubHlth: T2 All minorities are not the same, don't have the same income, don't all lack education, and most of us don't trust y… |
| Richard Kreis @kreisr1 RT @StephenSType1: This has been great! Unfortunately, I have to get back to work. Hope to catch the next #patientchat! #patientchat |
 | Participatory Medicine @S4PM RT @patientchat: Q1: What does "treating the whole person" mean to you, as a patient? #patientchat |
| Enlightening Results 💡 @GraceCordovano @nancy_kusmaul @melissarvh "Doctors orders" certainly needs to be transformed to "discussed together" #patientchat |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @AutonomicRN That's why it is important to include social work in the assessment. A good social worker can connect pati… |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: Hi #patientchat! First time participant, assistant professor in social work @UMBC studying person centered care. |
| Richard Kreis @kreisr1 RT @PatientIntv: A2: I love talking to med students, PA students, trainees of any kind. . . send them in. I will gladly be your guinea pig… |
| Richard Kreis @kreisr1 RT @btrfly12: T1: To me "treating the whole person" is about discussing how care plans fit into the patient's life and GOALS vs. the patien… |
| Richard Kreis @kreisr1 RT @GraceCordovano: A1: Recognizing that treatment planning must consider a person’s values, needs, preferences, not just the diagnosis at… |
| Richard Kreis @kreisr1 RT @melissarvh: A1 Attending to physical, mental, emotional, & spiritual needs & integrating various approaches which might benefit the pat… |
| Richard Kreis @kreisr1 RT @StephenSType1: Q2. Despite my calm demeanor (or because of it), I won't ask permission to break a ridiculous rule #patientchat |
| The Patient Revolution @patientrev @NiravJModi Interactions can be expedited. I realize the time constraints placed by the system. But interactions have to have soul. #patientchat - ks |
| Richard Zhao @richardzhao @bbhomebody @kreisr1 @Cpnervecenter Hello, Becky. How are you? #patientchat |
| Richard Kreis @kreisr1 RT @StephenSType1: Hello all... Stephen here... diabetes patient and advocate from Baltimore, MD USA. Hope to catch a little #patientchat b… |
| Richard Kreis @kreisr1 RT @abrewi3010: T1 it means my quality of life is the bases for every decision. #patientchat |
| Richard Kreis @kreisr1 RT @richardzhao: Patient non-compliance could relate to many reasons. Engaging patients to compliance should be the mentality for providers… |
| Richard Kreis @kreisr1 RT @hanyouakumu: By not brushing over small talk. I hate the "let's just get to the point" aspect of appointments. #patientchat https://t.c… |
| Christina Lizaso @btrfly12 RT @nancy_kusmaul: @patientchat A3: Treat them like a person. Don't be in a hurry, even if you're in a hurry. Respect that they know them… |
| Richard Kreis @kreisr1 RT @ZHeatherChamp: @patientchat I’m at the doctor but trying to peek in! #patientchat |
| Dr. Nancy Kusmaul @nancy_kusmaul @ShereesePubHlth [REDACTED USER] [REDACTED USER] In the USA, it's not any better. #patientchat |
| Richard Kreis @kreisr1 RT @patientrev: T3. Kind and careful care isn't a catchphrase, but instead a real, reachable goal. Remembering that clinicians and patient… |
| Patient Chat @patientchat Topic 4 (T4:) coming up...https://t.co/HmFypNu3WP #patientchat |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: Yes. THIS! And that often care providers do not reflect the populations they serve. I watched something yesterday by… |
| Kelly / Diabetes @diabetesalish Q3: look me in the eye, talk to and with me, not at me. Ask me something that has nothing to do with my #diabetes after you say hello. Little things that take less than 2 minutes, but disarm my defense mechanisms so I can focus on my apt & what you have to say #PatientChat https://t.co/MNZdTcHkSc |
| Richard Kreis @kreisr1 RT @abrewi3010: Noncompliance runs both ways. Providers need to accept this responsibility more. #patientchat https://t.co/d9M9dDBzBT |
| Christina Lizaso @btrfly12 RT @melissarvh: A3 Converse. Ask me what my wishes & treatment goals are; don't assume. My definition of QoL might not match yours, Good Do… |
| The Patient Revolution @patientrev Yes. #patientchat https://t.co/NzmjSCdlUP |
| Richard Kreis @kreisr1 RT @SMashWordsBClub: Dealing with mental illness can be hard #patientchat |
| Richard Kreis @kreisr1 RT @NiravJModi: @patientrev Agreed. There is no substitute for the conversation that should happen between patient and provider - and for c… |
| Richard Kreis @kreisr1 RT @mikebarry44: A1 #patientchat not just the problem I’m there for. T1Diabetes comes up regularly at other specialties https://t.co/LnHqG… |
| Richard Kreis @kreisr1 RT @abrewi3010: A1 it means I’m a person, not a symptom found in a medical textbook. #patientchat |
| Richard Kreis @kreisr1 RT @abrewi3010: T2 my idea of risk matches my personality. Present options that match me, not some stupid step therapy progression. #patien… |
| Enlightening Results 💡 @GraceCordovano A2: Patients are people who have a whole life they need to get back to; listen to their stories. They'll let you know what needs are a priority to get them back to what's most important. #patientchat https://t.co/hTnmaGkzOZ |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @patientchat A3: Treat them like a person. Don't be in a hurry, even if you're in a hurry. Respect that they know them… |
| Richard Kreis @kreisr1 RT @melissarvh: A3 Converse. Ask me what my wishes & treatment goals are; don't assume. My definition of QoL might not match yours, Good Do… |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @ZHeatherChamp That's why I said a good social worker. I realize that like in any other profession, not all social work… |
| Participatory Medicine @S4PM @patientchat We believe that treating the entire person is predicated upon listening, empathy and need. Each patient is different, there's no one recipe to follow- start the conversation, you'll be amazed at what you can learn. #patientchat |
| Richard Kreis @kreisr1 RT @anthonynotleon: @patientchat A2: Having kids or someone else to take care of adds a whole other dynamic to everything. Time, sleep, pri… |
| Richard Kreis @kreisr1 RT @ZHeatherChamp: A2: It’s non medical, but caused BY my medical status. I’m financially destitute and ruined. Bankruptcy. Can’t afford to… |
| Patient Chat @patientchat RT @GraceCordovano: @nancy_kusmaul @melissarvh "Doctors orders" certainly needs to be transformed to "discussed together" #patientchat |
| Richard Kreis @kreisr1 RT @ShereesePubHlth: T1 Whole treating is treat the mind, body & spirit of the individual. We now accept that physical and mental health ar… |
| Patient Chat @patientchat Q4: What is one thing your clinical is asking you to do that is not improving your help or feels like a burden? #patientchat |
| The Patient Revolution @patientrev RT @S4PM: @patientchat We believe that treating the entire person is predicated upon listening, empathy and need. Each patient is different… |
| Richard Kreis @kreisr1 RT @AutonomicRN: I'll be at #patientchat! Are you coming along? https://t.co/OeJs6qAHAx |
| The Patient Revolution @patientrev RT @patientchat: Q4: What is one thing your clinical is asking you to do that is not improving your help or feels like a burden? #patientch… |
| Participatory Medicine @S4PM RT @diabetesalish: Q3: look me in the eye, talk to and with me, not at me. Ask me something that has nothing to do with my #diabetes after… |
| Shereese Maynard, MS; MBA @ShereeseMayMba @AutonomicRN Shouldn't physician consider your level of education (SDOH) when coordinating the "coaching" part of your care. Ex. having the nurse read a form instead of the Dr just handing it to me to read...and then ask questions if I need to #PatientChat |
| Richard Kreis @kreisr1 RT @NiravJModi: @ZHeatherChamp @patientchat :) You can provide a first-hand, live account for some of today's topics! #patientchat I hope… |
| Dr. Nancy Kusmaul @nancy_kusmaul @GraceCordovano @melissarvh I love that wording! Social worker educators talk about "doing with" rather than "doing for" - more of that mentality is needed across the board. #patientchat |
| Heather 🇺🇸 @ZHeatherChamp A3: My Primary Doctor usually sits down. We are facing each other as I update her on things. I feel more “equaled” and she’s actually hearing me. Means a lot! #patientchat #pten |
| AutonomicRN© @AutonomicRN @estarianne Aww, thank you. It is so frustrating when clinicians either think we are noncompliant or just don’t care.. Sometimes it’s that we can’t or don’t have the energy. It goes both ways. We have to be open and honest. #patientchat |
| Melissa VanHouten @melissarvh A4 Follow "typical" #Gastroparesis diet. Perhaps "typical" GP diet on paper isn't what "typical" patients can actually consume #patientchat |
| Richard Kreis @kreisr1 RT @abrewi3010: T3 I’m a person in pain, not a commodity found in a balance sheet. Talk to me as an equal human & I will return the favor.… |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @sixuntilme A1: Absolutely. Patients, as well as their diseases, are not static. Circumstances and situations change c… |
| Christina Lizaso @btrfly12 RT @NiravJModi: @patientrev Agreed. There is no substitute for the conversation that should happen between patient and provider - and for c… |
| Richard Kreis @kreisr1 RT @patientchat: Q4: What is one thing your clinical is asking you to do that is not improving your help or feels like a burden? #patientch… |
| Richard Kreis @kreisr1 RT @diabetesalish: Q3: look me in the eye, talk to and with me, not at me. Ask me something that has nothing to do with my #diabetes after… |
| Richard Kreis @kreisr1 RT @patientchat: Topic 4 (T4:) coming up...https://t.co/HmFypNu3WP #patientchat |
| Richard Kreis @kreisr1 RT @GraceCordovano: @nancy_kusmaul @melissarvh "Doctors orders" certainly needs to be transformed to "discussed together" #patientchat |
| Heidi Grabenstatter @PatientIntv [REDACTED USER] Young energetic docs want to listen and want to learn, you'll be in there forever and the supervising doc will review everything in detail. Can't miss! #patientchat |
| Richard Kreis @kreisr1 RT @StephenSType1: @sixuntilme @patientrev Maybe not the best example... but if I have to make an appointment to renew a prescription, I mi… |
| Richard Kreis @kreisr1 RT @diabetesalish: q1 treating/talking to me as a person, not my condition. Talking to and with me, not at me. And listening to what I have… |
| Richard Kreis @kreisr1 RT @abrewi3010: T2 first, there is no medical/non medical category in my life, it’s my life! Skiing, hiking, photography are my life, treat… |
| Kelly / Diabetes @diabetesalish RT @melissarvh: A4 Follow "typical" #Gastroparesis diet. Perhaps "typical" GP diet on paper isn't what "typical" patients can actually cons… |
| Richard Kreis @kreisr1 RT @diabetesalish: Hi guys! #patientchat |
 | Inspire @InspireIsHealth RT @patientchat: Q1: What does "treating the whole person" mean to you, as a patient? #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: @bbhomebody @Cpnervecenter Hey Becky! Always coming in swinging in style with bitmoji :) #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: As annoying and aggravating as that does get, CYA concept comes into play. It's a requirement to document that teaching wa… |
| Richard Kreis @kreisr1 RT @ZHeatherChamp: A1: It means ASKING ME ABOUT MY FEELINGS. Thoughts. Actions. Worries. The whole package! #patientchat #pten #btsm |
| Richard Kreis @kreisr1 RT @WeightDebate: Powerful, but too often underused in healthcare. #patientchat #Healthcare https://t.co/3PJtb3uuz3 |
| Richard Kreis @kreisr1 RT @abrewi3010: Alan here. I’m a #chronicpain #inflammatoryarthritis and #caregiver patient from Boise Idaho. #patientchat |
| Participatory Medicine @S4PM @patientchat @sixuntilme This is Linda, my daughter struggles with Type 2 Diabetes. Lower your blood sugar. Eat better. These are empty words if not followed by actionable ways in which to improve. She has no support system- #patientchat |
| Alan Brewington @abrewi3010 A4 The paperwork on top of paperwork. Paperwork is a symptom magnifier and multiplier. #patientchat |
| Richard Kreis @kreisr1 RT @LyfeBulb: "I have been labeled a “professional patient” before by friends and family." https://t.co/hIyTyoS0H2 #PatientChat #ChronicIll… |
| Enlightening Results 💡 @GraceCordovano T3: Sitting down, making eye contact, and asking "What is one thing I may help you with today?", followed by listening. #empathy #narrativemedicine #patientchat https://t.co/1U17oyc8kJ |
| Richard Kreis @kreisr1 RT @GraceCordovano: @btrfly12 Hi Christina! Glad to see you here. #patientchat |
| AutonomicRN© @AutonomicRN @ShereesePubHlth I agree with you. There are many times that I'm given the info and we don't review. #patientchat |
| Richard Kreis @kreisr1 RT @richardzhao: @abrewi3010 Bundle payment is an improvement to fee-for-service model, from healthcare insurance perspective #patientchat |
| Richard Kreis @kreisr1 RT @melissarvh: A4 Follow "typical" #Gastroparesis diet. Perhaps "typical" GP diet on paper isn't what "typical" patients can actually cons… |
| Richard Kreis @kreisr1 RT @AutonomicRN: @nancy_kusmaul @UMBC you should be awarded the Nobel Peace Prize for person centered care...boy do we need that!! #patient… |
 | 💬Jen Horonjeff | #askpatients @jhoronjeff My PhD and academic research was/is about measuring things that are relevant to the #patientexperience. We can't treat the whole person until we understand the whole person, so we need to ask patients what matters to them, not assume we know. #patientinsights #patientchat https://t.co/msHuKvivbS |
| Richard Kreis @kreisr1 RT @AutonomicRN: @estarianne Aww, thank you. It is so frustrating when clinicians either think we are noncompliant or just don’t care.. Som… |
| Richard Kreis @kreisr1 RT @savvy_coop: And that “someone” is actually a co-op of patients, caregivers and helpful citizens trying to improve healthcare by sharing… |
| Nirav J. Modi @NiravJModi T4: There is very little prep a patient can do up front. We arrive for appts mostly unable to prep - and then go thru a set of repetitive admission processes without any consideration of the context of why I'm there to begin with. #patientchat |
| Richard Kreis @kreisr1 RT @GraceCordovano: A2: Patients are people who have a whole life they need to get back to; listen to their stories. They'll let you know w… |
| Richard Kreis @kreisr1 RT @ShereesePubHlth: @AutonomicRN Shouldn't physician consider your level of education (SDOH) when coordinating the "coaching" part of your… |
| Richard Kreis @kreisr1 RT @ShereesePubHlth: @AutonomicRN I really get annoyed when I end up educating the nurse. If my Dr. ever listened he'd take a different app… |
| Richard Kreis @kreisr1 RT @patientrev: This is a hugely important point. Thank you for sharing this. #patientchat - ks https://t.co/LM3lLvP757 |
| Richard Kreis @kreisr1 RT @abrewi3010: A4 The paperwork on top of paperwork. Paperwork is a symptom magnifier and multiplier. #patientchat |
| Heather 🇺🇸 @ZHeatherChamp A4: All my appointments with all the specialists are a burden. But they aren’t “asking” this of me. It’s what needs to be done managing Cowden Syndrome. #patientchat #pten |
| Richard Kreis @kreisr1 RT @PatientIntv: [REDACTED USER] Young energetic docs want to listen and want to learn, you'll be in there forever and the supervising doc… |
| Richard Kreis @kreisr1 RT @GraceCordovano: T3: Sitting down, making eye contact, and asking "What is one thing I may help you with today?", followed by listening.… |
| Stephanie Crabb @stephaniecrabb Q3: Just asking the questions in a sincere way would be a great start. What makes this so hard? #patientchat https://t.co/l3XbUbQ8ih |
| Enlightening Results 💡 @GraceCordovano @richardzhao I would say working together to shaping a treatment plan that matters and is financially responsible is better than aiming for compliance. #patientchat |
| Richard Zhao @richardzhao @bbhomebody @kreisr1 @Cpnervecenter Thanks. I feel much better, just some lingering headache left #patientchat |
| Richard Kreis @kreisr1 RT @GraceCordovano: Happy Friday #patientchat! Grace, private cancer patient advocate & PtExp enhancer joining from NJ https://t.co/ERvbrsu… |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @patientchat A1: It also means considering the psychosocial barriers to treatment and care such as access to prescribed… |
| Geeky Fox @TechKitsune Brushing off mental health concerns, not exactly helping me find a way to better it. #patientchat |
| Richard Kreis @kreisr1 RT @ShereesePubHlth: [REDACTED USER] Right? It's pretty hard to cultivate a collaborative relationship 15 minutes at a time #PatientChat |
| The Patient Revolution @patientrev T4. My clinicians want to approach my diabetes care by the numbers (tweaking insulin:carb ratios or basal rates) instead of addressing anxiety that causes highs, or fear of low BGs causing overeating. The data needs the full story. #patientchat - ks |
| Richard Kreis @kreisr1 RT @AutonomicRN: A3: When doing a full history and physical, the clinician will turn it into a dialogue. It's a conversation that generally… |
| Dr. Nancy Kusmaul @nancy_kusmaul @jhoronjeff Mine too! #patientchat |
| Richard Kreis @kreisr1 RT @gbscidp: We will be at the Empowered #patientchat on Fri 1/26 at 10amPT | 1pmET. Join me! https://t.co/qcCGi1Gzit via @power4patients |
| Richard Kreis @kreisr1 RT @NiravJModi: T4: There is very little prep a patient can do up front. We arrive for appts mostly unable to prep - and then go thru a set… |
| Richard Kreis @kreisr1 RT @AutonomicRN: I'm Kim, from Wisconsin. #raredisease patient and #advocate for healthcare in general. RN turned professional patient (ugh… |
| Savvy Cooperative | #AskPatients @savvy_coop THIS! #patientchat https://t.co/VGQM69Jryc |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @GraceCordovano @melissarvh I love that wording! Social worker educators talk about "doing with" rather than "doing for"… |
| Richard Kreis @kreisr1 RT @jhoronjeff: My PhD and academic research was/is about measuring things that are relevant to the #patientexperience. We can't treat the… |
| The Patient Revolution @patientrev YES! #patientchat - ks https://t.co/SbjkPysJYm |
| Melissa VanHouten @melissarvh RT @ShereesePubHlth: [REDACTED USER] Right? It's pretty hard to cultivate a collaborative relationship 15 minutes at a time #PatientChat |
| Richard Kreis @kreisr1 RT @AutonomicRN: @ShereesePubHlth I agree with you. There are many times that I'm given the info and we don't review. #patientchat |
| Richard Kreis @kreisr1 RT @patientrev: @NiravJModi Interactions can be expedited. I realize the time constraints placed by the system. But interactions have to ha… |
| Savvy Cooperative | #AskPatients @savvy_coop RT @GraceCordovano: A2: Patients are people who have a whole life they need to get back to; listen to their stories. They'll let you know w… |
| Richard Kreis @kreisr1 RT @patientrev: This. THIS. #patientchat https://t.co/2DMycrCRjY |
| Richard Kreis @kreisr1 RT @stephaniecrabb: Q3: Just asking the questions in a sincere way would be a great start. What makes this so hard? #patientchat https://t.… |
| Richard Kreis @kreisr1 RT @patientrev: T1. Treating the whole patient means seeing my disease (type 1 diabetes) in the context of my real life, not just in the va… |
| Richard Kreis @kreisr1 RT @AutonomicRN: @ShereesePubHlth I do too, and I’m a nurse #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: @nancy_kusmaul You're exactly right. I always asked for #consults from social workers for my patients. You should be as in… |
| Christina Lizaso @btrfly12 RT @S4PM: @patientchat @sixuntilme This is Linda, my daughter struggles with Type 2 Diabetes. Lower your blood sugar. Eat better. These are… |
| AutonomicRN© @AutonomicRN A5: You need to eat fewer carbs at night. Yes, I'm quite aware that I've packed on a few pounds in the last year. But, since I'm banned from being outside without supervision (syncopal episodes), what exactly do you want me to do on a daily basis in between symptoms #patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: A4 The paperwork on top of paperwork. Paperwork is a symptom magnifier and multiplier. #patientchat |
| Richard Kreis @kreisr1 RT @S4PM: @patientchat @sixuntilme This is Linda, my daughter struggles with Type 2 Diabetes. Lower your blood sugar. Eat better. These are… |
| Savvy Cooperative | #AskPatients @savvy_coop Absolutely. #patientchat https://t.co/hrR2QCpZT9 |
| Heidi Grabenstatter @PatientIntv @ZHeatherChamp I saw a pediatrician do this, but on one of those mini, kindergarten-sized chairs so he was eye level with the kid. It was awesome! #patientchat |
| Dr. Nancy Kusmaul @nancy_kusmaul @hanyouakumu Mental health concerns are so critical to overall health and quality of life, and the physical health outcomes with which clinicians are concerned. This is a significant gap in our care system. #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop RT @abrewi3010: T3 I’m a person in pain, not a commodity found in a balance sheet. Talk to me as an equal human & I will return the favor.… |
| The Patient Revolution @patientrev How do they brush them off? #patientchat - ks https://t.co/YhaT1ATYim |
| Richard Kreis @kreisr1 RT @NiravJModi: @ShereesePubHlth Hi Shereese! #patientchat |
| Christina Lizaso @btrfly12 RT @jhoronjeff: My PhD and academic research was/is about measuring things that are relevant to the #patientexperience. We can't treat the… |
| Richard Kreis @kreisr1 RT @NiravJModi: @bbhomebody @Cpnervecenter Hi Becky! #patientchat Happy Friday. |
| Richard Kreis @kreisr1 RT @AutonomicRN: @richardzhao Hi Richard! Hope you're feeling better. #patientchat |
| Richard Zhao @richardzhao @GraceCordovano Totally agreed. But, I do not know many HMO or providers provide that kind of estimation for now. #PatientChat |
| Richard Kreis @kreisr1 RT @NiravJModi: @GraceCordovano Hi Grace - great to see you! #patientchat |
| Richard Kreis @kreisr1 RT @harriseve: Agree! RT @btrfly12: #patientchat- Great thread HT @DrAttai https://t.co/z3iJc6YKPA |
| Patient Chat @patientchat Topic 5 (T5:) coming up...https://t.co/HmFypNu3WP #patientchat |
| Christina Lizaso @btrfly12 RT @NiravJModi: T4: There is very little prep a patient can do up front. We arrive for appts mostly unable to prep - and then go thru a set… |
| Alan Brewington @abrewi3010 T4 with the passing of dad, I’m a burned out, fried chronic patient. I’m not scheduling appointments to make you mad, I’ve lost the ability to take care of me. #patientchat |
| AutonomicRN© @AutonomicRN Oops..A4 #patientchat https://t.co/oDYgp244Yw |
| Savvy Cooperative | #AskPatients @savvy_coop @abrewi3010 That's why the term "noncompliance" is not awesome. Puts onus on patient, yet it's the system is what can keep them from adhering to recommendations to treatment plan. #patientchat #patientexperience |
| Patient Chat @patientchat Q5: What is one thing your clinician is asking you do that is improving your health? #patientchat |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @jhoronjeff Mine too! #patientchat |
| Richard Kreis @kreisr1 RT @patientrev: T4. My clinicians want to approach my diabetes care by the numbers (tweaking insulin:carb ratios or basal rates) instead of… |
| The Patient Revolution @patientrev RT @patientchat: Q5: What is one thing your clinician is asking you do that is improving your health? #patientchat |
| Richard Kreis @kreisr1 RT @PatientIntv: @ZHeatherChamp I saw a pediatrician do this, but on one of those mini, kindergarten-sized chairs so he was eye level with… |
| Richard Kreis @kreisr1 RT @AutonomicRN: A5: You need to eat fewer carbs at night. Yes, I'm quite aware that I've packed on a few pounds in the last year. But, sin… |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @hanyouakumu Mental health concerns are so critical to overall health and quality of life, and the physical health outco… |
| Richard Kreis @kreisr1 RT @patientchat: Q5: What is one thing your clinician is asking you do that is improving your health? #patientchat |
| Shereese Maynard, MS; MBA @ShereeseMayMba @AutonomicRN Don't get me wrong, I love nurses & the job they do but a little engagement goes a long way. Not blaming nurse, but Dr's approach my care. A Dr actually said in front of me, "Can you read this to her?" Is he asking if the nurse can read or assuming that I can't #patientchat https://t.co/S4yAI8SU1v |
| Melissa VanHouten @melissarvh A5 Take a moment to relax every now & then. I do not like this - but I admit it is necessary and helpful at times. :) #patientchat |
| Richard Kreis @kreisr1 RT @AutonomicRN: Oops..A4 #patientchat https://t.co/oDYgp244Yw |
| Richard Kreis @kreisr1 RT @abrewi3010: T4 with the passing of dad, I’m a burned out, fried chronic patient. I’m not scheduling appointments to make you mad, I’ve… |
| Enlightening Results 💡 @GraceCordovano T4: The general "you need to exercise, eat better" recommendation is a failure whether you are someone w/chronic disease or cancer. Understand why person is struggling? Uncontrolled pain, med side effects, mental health.Need realism that applies to patient personally #patientchat https://t.co/45EuggnvtP |
| Richard Kreis @kreisr1 RT @patientchat: Topic 5 (T5:) coming up...https://t.co/HmFypNu3WP #patientchat |
| Dr. Nancy Kusmaul @nancy_kusmaul @verylightnosuga And poor communication affects costs AND outcomes, which beyond the #patientexperience medical systems and insurance providers care about too. #patientchat |
| Richard Kreis @kreisr1 RT @richardzhao: @GraceCordovano Totally agreed. But, I do not know many HMO or providers provide that kind of estimation for now. #Patient… |
| Kelly / Diabetes @diabetesalish Q4: I know when student dr hasn’t looked@ my file, when they ask if #t1d #diabetes runs in my family. My dad,me, 2 out of 3 Sisters, 2aunts, and 2cousins have/had t1d. Know the basics of my file so we can discuss other stuff. Also, it makes me mad. #NotRocketScience #PatientChat |
| Richard Kreis @kreisr1 RT @savvy_coop: @abrewi3010 That's why the term "noncompliance" is not awesome. Puts onus on patient, yet it's the system is what can keep… |
| Richard Kreis @kreisr1 RT @GraceCordovano: T4: The general "you need to exercise, eat better" recommendation is a failure whether you are someone w/chronic diseas… |
| Richard Kreis @kreisr1 RT @melissarvh: A5 Take a moment to relax every now & then. I do not like this - but I admit it is necessary and helpful at times. :) #pat… |
| Richard Kreis @kreisr1 RT @ShereesePubHlth: @AutonomicRN Don't get me wrong, I love nurses & the job they do but a little engagement goes a long way. Not blaming… |
| AutonomicRN© @AutonomicRN OMG, these things are HUGE in medicine and yet aren't used enough...eye contact, touch and #empathy #patientchat https://t.co/i8GwnAXquV |
| Christina Lizaso @btrfly12 RT @nancy_kusmaul: @hanyouakumu Mental health concerns are so critical to overall health and quality of life, and the physical health outco… |
| Enlightening Results 💡 @GraceCordovano @rachvoo @patientchat I can not understand why a nutritionist specializing in particular diseases and a trainer aren't included in treatment planning and care team. #patientchat |
 | Dr Mary Ann Wilmarth @Back2backPT Hello #patientchat So glad to be on this chat! Set 2 alarms to remind me.⏰📱 But cannot #sleep well #coughing #painsomnia Even spoke w/daughter who called, got up, but #fatigue now is overwhelming. Disappointed to miss half of chat. So #Storyofmylife @Back2backPT @patientchat https://t.co/EgMRlRXTHF |
| The Patient Revolution @patientrev T5. My primary care clinician encouraged me to consult a mental health resource when anxiety was impeding diabetes "compliance." Props to her for hearing me. #patientchat - ks |
| Richard Kreis @kreisr1 RT @diabetesalish: Q4: I know when student dr hasn’t looked@ my file, when they ask if #t1d #diabetes runs in my family. My dad,me, 2 out o… |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @verylightnosuga And poor communication affects costs AND outcomes, which beyond the #patientexperience medical systems… |
| 💬Jen Horonjeff | #askpatients @jhoronjeff @nancy_kusmaul Buddies! #patientchat |
| AutonomicRN© @AutonomicRN @ShereesePubHlth I would have had a total meltdown!! #patientchat |
 | 👸🏽💓Mother Strawberry Sativa Pharmaceutica🍓🏥 @Mae_DayJ RT @patientchat: Q5: What is one thing your clinician is asking you do that is improving your health? #patientchat |
| The Patient Revolution @patientrev @hanyouakumu @sixuntilme Sending a ton of empathy your way. I'm sorry you were left hanging in that way. :( #patientchat - ks |
| Richard Kreis @kreisr1 RT @patientrev: T5. My primary care clinician encouraged me to consult a mental health resource when anxiety was impeding diabetes "complia… |
| Kelly / Diabetes @diabetesalish RT @patientchat: Q5: What is one thing your clinician is asking you do that is improving your health? #patientchat |
| Melissa VanHouten @melissarvh @ShereesePubHlth @AutonomicRN How condescending is that? |
| Alan Brewington @abrewi3010 @verylightnosuga I’m so exhausted I’m not even sure what self care is right now. Confusion from exhaustion is a odd and powerful symptom. #patientchat |
| Kelly / Diabetes @diabetesalish RT @abrewi3010: T4 with the passing of dad, I’m a burned out, fried chronic patient. I’m not scheduling appointments to make you mad, I’ve… |
| Shereese Maynard, MS; MBA @ShereeseMayMba @melissarvh @AutonomicRN right? #patientchat |
| Participatory Medicine @S4PM RT @NiravJModi: @patientrev Agreed. There is no substitute for the conversation that should happen between patient and provider - and for c… |
| Enlightening Results 💡 @GraceCordovano @abrewi3010 Alan, I'm so sorry for your loss. Wish there was a convenient way to bring gentle care to you. Hopeful for #telemedicine. #patientchat |
| Patient Chat @patientchat @Back2backPT Happy you could make it! We're on Topic 5 :) #patientchat |
| The Patient Revolution @patientrev @abrewi3010 I'm really sorry for your loss, Alan. #patientchat - ks |
| Christina Lizaso @btrfly12 RT @patientchat: Q5: What is one thing your clinician is asking you do that is improving your health? #patientchat |
| Alan Brewington @abrewi3010 T5 my rheum has accepted/understands I’m going to decide what being a chronic patient means, not him. I smile more bc of this. #patientchat |
| Kelly / Diabetes @diabetesalish @hanyouakumu I am so sorry. #patientchat |
 | RaquelRoschell @raquelonpurpose Hello..just stumbled upon this chat. #patientchat |
| Richard Kreis @kreisr1 My GP wants me to exercise more. How do you do that with chronic back pain and a 15 month long 6” square open wound that they recently grafted closed? My GP needs to wake up and see the wounds #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: @Back2backPT Happy you could make it! We're on Topic 5 :) #patientchat |
| AutonomicRN© @AutonomicRN Now it's A5 time: talking about home environment, safety, ways to improve #qualityoflife, pain management #patientchat |
| Inspire @InspireIsHealth RT @patientchat: Q5: What is one thing your clinician is asking you do that is improving your health? #patientchat |
| Richard Kreis @kreisr1 RT @GraceCordovano: @abrewi3010 Alan, I'm so sorry for your loss. Wish there was a convenient way to bring gentle care to you. Hopeful for… |
| Richard Kreis @kreisr1 RT @ShereesePubHlth: @melissarvh @AutonomicRN right? #patientchat |
| Patient Chat @patientchat @mommade4change Hi Raquel! #patientchat |
| Kelly / Diabetes @diabetesalish @abrewi3010 @verylightnosuga Grief can be debilitating. #IGetIt #patientchat |
| Richard Zhao @richardzhao @kreisr1 Sorry to know that you are one of the long-term back pain patient. #patientchat |
| Enlightening Results 💡 @GraceCordovano @AutonomicRN @ShereesePubHlth You have my sympathy. Personally a fan of the deer in headlights look I get when I speak with clinical acumen and can articulate. Masters and PhD here, plus a big mouth. Don't let the blonde hair throw you ;) #patientchat |
| Heidi Grabenstatter @PatientIntv A5: Get enough sleep and manage your stress. The "manage your stress" request is a pipe dream, but is directly related to symptoms so I can't fault her. #patientchat |
| AutonomicRN© @AutonomicRN Wow, today is a great topic! I seriously can't keep up between notifications and trying to read everything else!! #patientchat |
| Patient Chat @patientchat Topic 6 (T6:) coming up...https://t.co/HmFypNu3WP #patientchat |
| The Patient Revolution @patientrev RT @AutonomicRN: Wow, today is a great topic! I seriously can't keep up between notifications and trying to read everything else!! #patient… |
| Dr. Nancy Kusmaul @nancy_kusmaul @AutonomicRN So back to Q1- assessing the whole patient, and taking bio-psycho-social factors into consideration. You're a person, not a disease, and you have a life to live. #patientchat |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T4: The general "you need to exercise, eat better" recommendation is a failure whether you are someone w/chronic diseas… |
| Stephanie Crabb @stephaniecrabb Q3: As a social worker, it was very hard to ask questions that I knew were “charged” like #SDoH, emotional health, death/dying, organ donation, but more often than not, I was the icebreaker for patients, families and care teams. #patientchat |
| Richard Kreis @kreisr1 @bbhomebody Wow! My workers compensation insurance just denied all my pain Meds and all treatments after 25 yrs of pain. All they will pay for is depression and constipation med, go figure. #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: Topic 6 (T6:) coming up...https://t.co/HmFypNu3WP #patientchat |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @AutonomicRN So back to Q1- assessing the whole patient, and taking bio-psycho-social factors into consideration. You'r… |
| Richard Kreis @kreisr1 RT @PatientIntv: A5: Get enough sleep and manage your stress. The "manage your stress" request is a pipe dream, but is directly related to… |
| Richard Kreis @kreisr1 RT @AutonomicRN: Wow, today is a great topic! I seriously can't keep up between notifications and trying to read everything else!! #patient… |
| Richard Kreis @kreisr1 RT @patientchat: @mommade4change Hi Raquel! #patientchat |
| Richard Kreis @kreisr1 RT @richardzhao: @kreisr1 Sorry to know that you are one of the long-term back pain patient. #patientchat |
| Richard Kreis @kreisr1 RT @GraceCordovano: @AutonomicRN @ShereesePubHlth You have my sympathy. Personally a fan of the deer in headlights look I get when I speak… |
| Richard Kreis @kreisr1 RT @AutonomicRN: Now it's A5 time: talking about home environment, safety, ways to improve #qualityoflife, pain management #patientchat |
| Patient Chat @patientchat T6: Tell us about the best appointment you've had with a clinician. What made it awesome? #patientchat |
| Shereese Maynard, MS; MBA @ShereeseMayMba @rachvoo @GraceCordovano @patientchat This is where #PrecisionMedicine is needed most. What is the tx for the whole you. the nutritionist may be right. I keep hoping solutions like @MymeeApp will evolve for these types of situation, collaboration between nutrition and clinician #PatientChat |
| nobism @nobismhealth RT @jhoronjeff: My PhD and academic research was/is about measuring things that are relevant to the #patientexperience. We can't treat the… |
| Richard Kreis @kreisr1 RT @diabetesalish: @hanyouakumu I am so sorry. #patientchat |
| Richard Kreis @kreisr1 RT @mommade4change: Hello..just stumbled upon this chat. #patientchat |
| Richard Kreis @kreisr1 RT @abrewi3010: T5 my rheum has accepted/understands I’m going to decide what being a chronic patient means, not him. I smile more bc of th… |
| AutonomicRN© @AutonomicRN @nancy_kusmaul Amen! #patientchat |
| Melissa VanHouten @melissarvh A6 GI sat beside me & sincerely listened. Told me he couldn't make things perfect but could get me closer 2 where I wanted 2 be #patientchat |
| Richard Kreis @kreisr1 @richardzhao Thank you #patientchat |
| Richard Kreis @kreisr1 RT @patientchat: T6: Tell us about the best appointment you've had with a clinician. What made it awesome? #patientchat |
| Richard Kreis @kreisr1 RT @ShereesePubHlth: @rachvoo @GraceCordovano @patientchat This is where #PrecisionMedicine is needed most. What is the tx for the whole yo… |
| Richard Kreis @kreisr1 RT @stephaniecrabb: Q3: As a social worker, it was very hard to ask questions that I knew were “charged” like #SDoH, emotional health, deat… |
| Dr. Nancy Kusmaul @nancy_kusmaul @stephaniecrabb Been there. It's a hard place to be but at least then I knew that SOMEONE had addressed it. #patientchat |
 | Natalie 🦓 @_Nataliea @patientchat #patientchat A6 it’s hard to top the @NIHClinicalCtr! Clinicians were invested in my #raredisease, doing fascinating work & were appreciative of me taking my time to be there. |
| AutonomicRN© @AutonomicRN @bbhomebody And that's how it should be! You're doctor knows you well enough and knows that pain is what you say it is, which is what we are all taught. #patientchat |
| Shereese Maynard, MS; MBA @ShereeseMayMba @GraceCordovano @AutonomicRN Or my color and sex, am I right? They do looked shocked when I used med terms and quote state specs #PatientChat |
| Alan Brewington @abrewi3010 T6 any appointment that doesn’t restrict my quality of life, as I define it, is the best appointment ever. #patientchat |
| Richard Kreis @kreisr1 @patientchat A6: The Best appointment was after 5 years of chronic pain the doctor who actually agreed that I was in pain and that he could treat it. #patientchat |
| Richard Kreis @kreisr1 RT @abrewi3010: T6 any appointment that doesn’t restrict my quality of life, as I define it, is the best appointment ever. #patientchat |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @stephaniecrabb Been there. It's a hard place to be but at least then I knew that SOMEONE had addressed it. #patientch… |
| Richard Kreis @kreisr1 RT @AutonomicRN: @nancy_kusmaul Amen! #patientchat |
| The Patient Revolution @patientrev T6. When my endo said, "I know this is hard. This work will pay off. We're going to make it pay off together." Validation. Made me feel like I was on the path toward success, even if A1C didn't reflect my efforts yet. #patientchat - ks |
| Richard Kreis @kreisr1 RT @melissarvh: A6 GI sat beside me & sincerely listened. Told me he couldn't make things perfect but could get me closer 2 where I wanted… |
| Enlightening Results 💡 @GraceCordovano T6: My PCP is awesome! Always starts encounter w/specific questions about my life, not diagnosis. He empathizes, pauses to suffer with me, always wishes he could do more & continues to connect me with resources. We work together. More of this please. #patientchat https://t.co/Wc49dAPo0X |
| Dr. Nancy Kusmaul @nancy_kusmaul @patientchat The two times my PCP kept me out of the emergency room by going above and beyond during office visits. #patientchat |
| Richard Kreis @kreisr1 RT @patientrev: T6. When my endo said, "I know this is hard. This work will pay off. We're going to make it pay off together." Validation.… |
| Shereese Maynard, MS; MBA @ShereeseMayMba @kreisr1 @patientchat Don't you love the simple, overdue Dx? "Mr Jones, it appears you're in some real pain." Yeah Doc, I said that 2 months ago." #patientchat |
| The Patient Revolution @patientrev Yes!! #patientchat #callmefrank - ks https://t.co/yyjb3W9uzC |
| Alan Brewington @abrewi3010 T6 for example, if a surgeon says I need my hip replaced then I can ski in 3 months that is a bestest appointment. I’m recovering an opp for a higher quality of life. #patientchat |
| Geeky Fox @TechKitsune Oh man best appointment goes to any clinicians I've had in the past that listened to me! Took time to chat with me even while they were busy, remembered me, didn't brush off my concerns, it's all about the little things! #patientchat |
| Richard Kreis @kreisr1 Thanks for the chat but I need to run to an appointmentwith Mom for her recent blackout. Have a great weekend. #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop @kreisr1 @patientchat It's so nice to feel heard. Simple in theory, but not always practiced. So glad you got that from your doctor! #patientchat |
| Heidi Grabenstatter @PatientIntv @verylightnosuga I've used this same line and had similar experience. . . we found a better time for procedure that matched my timeline. #patientchat |
| Richard Kreis @kreisr1 RT @patientrev: Yes!! #patientchat #callmefrank - ks https://t.co/yyjb3W9uzC |
| Nirav J. Modi @NiravJModi @GraceCordovano I believe we are among the lucky few in our experience! #patientchat |
| Richard Kreis @kreisr1 RT @abrewi3010: T6 for example, if a surgeon says I need my hip replaced then I can ski in 3 months that is a bestest appointment. I’m reco… |
| Richard Kreis @kreisr1 RT @ShereesePubHlth: @kreisr1 @patientchat Don't you love the simple, overdue Dx? "Mr Jones, it appears you're in some real pain." Yeah Doc… |
| Richard Kreis @kreisr1 RT @nancy_kusmaul: @patientchat The two times my PCP kept me out of the emergency room by going above and beyond during office visits. #pa… |
| Richard Kreis @kreisr1 RT @GraceCordovano: T6: My PCP is awesome! Always starts encounter w/specific questions about my life, not diagnosis. He empathizes, pauses… |
| AutonomicRN© @AutonomicRN A6: Last May, I switched to a new neurologist for my #dysautonomia. He spent 90 minutes with my husband and I. He had read the records, but wanted to hear everything from my #patientperspective. My voice was heard more than it ever has been. #patientchat |
| Nirav J. Modi @NiravJModi T6: My #provider is very accessible, leverages electronic communications effectively and has been remarkable in focusing on our conversation vs. the #EHR. I think I am one of a lucky few! #ptexp #patientchat |
| Enlightening Results 💡 @GraceCordovano @ShereesePubHlth @AutonomicRN 💯%. Just continue the conversation and let the surprise wear off. Pause if they need extra time to readjust 😁 #patientchat |
| Melissa VanHouten @melissarvh RT @GraceCordovano: T6: My PCP is awesome! Always starts encounter w/specific questions about my life, not diagnosis. He empathizes, pauses… |
 | 💜⚽🇭🇹♊ Xtel Bond @Xtel007 RT @GraceCordovano: A2: Patients are people who have a whole life they need to get back to; listen to their stories. They'll let you know w… |
| Alan Brewington @abrewi3010 T6 my first rheum never wore a watch, you always had his attention. That was awesome. #patientchat |
| Enlightening Results 💡 @GraceCordovano @rachvoo @ShereesePubHlth @patientchat @MymeeApp Love, love, love @MymeeApp!! A must see #Patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop Shout out to the awesomeness happening on today's #patientchat. Popping in during meetings and blown away by the stories, suggestions and charge from those participating. Keep up the awesomeness! 🙌🏽 |
| Shereese Maynard, MS; MBA @ShereeseMayMba @rachvoo @GraceCordovano @patientchat @MymeeApp If your doctor agrees to utilize it, most insurances will pay for it. "No promo; & no incentive here" I just think its a good option for Pts w/ nutritional challenges #patientchat |
| Kelly / Diabetes @diabetesalish 6: Lucky for me, my endo visits!the times when my endo tells me he’s proud of me - the time when I cried & said I hd #diabetesburnout & my #cde was like: of course you do! #compassionreaction https://t.co/QyS78DTcjs #PatientChat https://t.co/3DNKKXfdK2 |
| Melissa VanHouten @melissarvh RT @savvy_coop: Shout out to the awesomeness happening on today's #patientchat. Popping in during meetings and blown away by the stories, s… |
| AutonomicRN© @AutonomicRN My PCP is like this also! They are few and far between and when you find them, don't ever let go! #patientchat https://t.co/kEpE2FYhIE |
| Enlightening Results 💡 @GraceCordovano [REDACTED USER] @AutonomicRN @ShereesePubHlth Don’t let that sweet southern accent fool you ✨💪🏻 #patientchat |
| Nirav J. Modi @NiravJModi RT @savvy_coop: Shout out to the awesomeness happening on today's #patientchat. Popping in during meetings and blown away by the stories, s… |
| Shereese Maynard, MS; MBA @ShereeseMayMba @GraceCordovano @AutonomicRN lol, Tell them: I'll wait for you to pick your jaw up off the floor" #patientchat |
| Dr Mary Ann Wilmarth @Back2backPT A3: To start, there's simple question: Is there anything right now that's affecting your treatment & care that I should know about? It should be asked "sincerely" w/eye contact by MD, not the assistants each visit! @Back2backPT #patientchat @patientchat My main #Rheum never did. https://t.co/oDTOlsooCE |
| The Patient Revolution @patientrev RT @savvy_coop: Shout out to the awesomeness happening on today's #patientchat. Popping in during meetings and blown away by the stories, s… |
| Christina Lizaso @btrfly12 RT @hanyouakumu: Oh man best appointment goes to any clinicians I've had in the past that listened to me! Took time to chat with me even wh… |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/CT: #patientchat |
| AutonomicRN© @AutonomicRN #mySavvy #patientchat https://t.co/vUWLteiFlm |
| Enlightening Results 💡 @GraceCordovano @bbhomebody @kreisr1 Richard, has anyone suggested palliative care to complement your current treatment? #patientchat |
| RaquelRoschell @raquelonpurpose @patientchat A6 My rheumatologist is very much a "I am the doctor and the expert" type. One day he actually stopped telling me what was right and just listened..and agreed with me. It was great and a what just happened moment. #patientchat |
| Nirav J. Modi @NiravJModi @GraceCordovano [REDACTED USER] @AutonomicRN @ShereesePubHlth This thread delivers! #patientchat |
| The Patient Revolution @patientrev RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/CT:… |
| Stephanie Crabb @stephaniecrabb RT @patientchat: T6: Tell us about the best appointment you've had with a clinician. What made it awesome? #patientchat |
| Kelly / Diabetes @diabetesalish [REDACTED USER] Exactly! Time management FTW!! Skim my file so I don’t have to take five minutes to go over my #Diabetes family history - there’s a lot to go over! #patientchat |
| Patient Chat @patientchat RT @savvy_coop: Shout out to the awesomeness happening on today's #patientchat. Popping in during meetings and blown away by the stories, s… |
| 💜⚽🇭🇹♊ Xtel Bond @Xtel007 My life/career goals, so that our medical treatment plan can be set up in context of that and towards helping me achieve those goals. #patientchat https://t.co/PxSDsVc8tG |
| AutonomicRN© @AutonomicRN [REDACTED USER] @GraceCordovano @ShereesePubHlth Lisa, it is a little deceiving at first...I wasn’t expecting it when we had our meeting. But knew you from the twitter-sphere already and know how intelligient you were! #patientchat |
| Enlightening Results 💡 @GraceCordovano @ShereesePubHlth @AutonomicRN haha It's just business as usual. Now, where we? Let's continue #patientchat https://t.co/sKqsPFsx9K |
| Alan Brewington @abrewi3010 CT mistakes will be made. The good news is human caused mistakes have a human centered solution. This causes to many bad days but we still have a right to a good life. #patientchat |
| The Patient Revolution @patientrev CT: Whole person care matters! I'm not just a (lazy) pancreas. The more my clinicians treat the whole of me, the better the whole of me becomes. #patientchat - ks |
| Patient Empowerment Network @power4patients T6: 15 Tips to Get the Most From Your Doctor's Visit: https://t.co/5CxkAXYG72 #patientchat |
| Geeky Fox @TechKitsune That there are things I can do to help facilitate conversation and things I need to speak up on when I'm not feeling like the answer was "Ok." #patientchat |
| Shereese Maynard, MS; MBA @ShereeseMayMba RT @power4patients: T6: 15 Tips to Get the Most From Your Doctor's Visit: https://t.co/5CxkAXYG72 #patientchat |
| Christina Lizaso @btrfly12 RT @Back2backPT: A3: To start, there's simple question: Is there anything right now that's affecting your treatment & care that I should k… |
| Dr. Nancy Kusmaul @nancy_kusmaul @patientchat As a researcher, I need to know what can be explored on a systems level to address the concerns we discussed. I know more time, better insurance, better communication, and more coordination were themes I heard. Do you have a research question? #patientchat |
| AutonomicRN© @AutonomicRN [REDACTED USER] Hugs have so much healing power and do so much for a person! I never was afraid to give a patient a hug if they needed it. #patientchat |
| Christina Lizaso @btrfly12 RT @Xtel007: My life/career goals, so that our medical treatment plan can be set up in context of that and towards helping me achieve those… |
| Stephanie Crabb @stephaniecrabb A6: As crappy as it sounds, my mom’s rad onc MD, first year out of his fellowship, went like this...”Your cancer is a wildfire that I cannot stop. You have weeks, not months. Let’s make them the best weeks possible.” He looked right into her eyes. He held her hands. #patientchat https://t.co/29rG5OgElW |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime |
| Melissa VanHouten @melissarvh Many thanks to @PatientChat for providing this forum! Looking forward to the next discussion! #patientchat |
| Christina Lizaso @btrfly12 RT @power4patients: T6: 15 Tips to Get the Most From Your Doctor's Visit: https://t.co/5CxkAXYG72 #patientchat |
| Patient Chat @patientchat Thanks so much @sixuntilme for sharing your insights and working towards a careful and kind healthcare system #patientchat |
| The Patient Revolution @patientrev @patientchat @sixuntilme Thanks for letting me join the #patientchat party! |
| AutonomicRN© @AutonomicRN CT: The whole person matters. Don't make false assumptions. Know that we are vulnerable and don't like being ill in the first place. There are a lot of better things that we could be doing, like napping! Thanks for another great chat!!#patientchat |
| Patient Chat @patientchat Don’t forget to to check out the work Kerri is doing for @patientrev here: https://t.co/VwEfoT7iPU #patientchat |
| Shereese Maynard, MS; MBA @ShereeseMayMba RT @patientchat: Don’t forget to to check out the work Kerri is doing for @patientrev here: https://t.co/VwEfoT7iPU #patientchat |
| Patient Chat @patientchat Thank you all for joining today's Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour |
| Nirav J. Modi @NiravJModi RT @patientchat: Thank you all for joining today's Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour |
| Patient Chat @patientchat The next Empowered #patientchat will be Friday, February 9th at 1pmET https://t.co/GjfD3hCQaP |
| Christina Lizaso @btrfly12 Amazing to spend time thinking big and listening to everyone's patient experiences. Have a great week all. #patientchat |
 | Better Diabetes Life @BetterDiabetes A4 - sking why a particular BG reading was high 3 weeks ago. "Oooh, what happened here?" Makes me feel judged, If you need that info, aske me to record it and then LOOK at it when I do. Once in a while I need an "atta girl", but a critic. I am not numbers. #patientchat |
| AutonomicRN© @AutonomicRN [REDACTED USER] I go back in three weeks! #patientchat |
| Shereese Maynard, MS; MBA @ShereeseMayMba [REDACTED USER] @AutonomicRN @GraceCordovano But I do enjoy proving them wrong, lol #patientchat https://t.co/Q2fcPF42Rg |
| Dr Mary Ann Wilmarth @Back2backPT A4: Biggest thing holding me back is fact I have to do #advocating & #carecoordination w/dozens+ of medical specialists who rarely communicate: leave that to me & w/20-25 #meds & 1 #injection & 2 #infusions +homework/everyday! @Back2backPT #patientchat @patientchat @sixuntilme |
| Christina Lizaso @btrfly12 RT @patientchat: Don’t forget to to check out the work Kerri is doing for @patientrev here: https://t.co/VwEfoT7iPU #patientchat |
| Heidi Grabenstatter @PatientIntv Thanks #patientchat for a great discussion. Have a great weekend, everyone. |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat Have a great weekend everyone! |
| Shereese Maynard, MS; MBA @ShereeseMayMba Have a great rest of the day & a great weekend everyone #patientchat https://t.co/F165ijvmhE |
| AutonomicRN© @AutonomicRN @ShereesePubHlth [REDACTED USER] @GraceCordovano It is definitely fun one-upping someone. I’ve been around a lot that you wonder how they even got a job. Let alone filled out an application. #patientchat |
| Dr Mary Ann Wilmarth @Back2backPT Will definitely checkout @patientrev @Back2backPT Thanks👍 @patientchat #patientchat https://t.co/1C2B7ZZwU3 |
| Nirav J. Modi @NiravJModi @ShereesePubHlth Likewise Shereese! #patientchat |
| Better Diabetes Life @BetterDiabetes Q2 - that I didn't come packaged with all the coping skills I needed to manage a chronic illness. they expect you to just "do it". Counselling was the ticket to my happiness. I needed to grieve the loss of my former life. Education is not enough #patientchat |
| Christina Lizaso @btrfly12 RT @WeightDebate: Glad I found you #patientchat! I must point out that that #weightstigma in the health community is also a real issue for… |
| AutonomicRN© @AutonomicRN @bbhomebody Absolutely! We loved our careers with all our heart, but thought being a junky might be more fun! #patientchat |
| Christina Lizaso @btrfly12 RT @DragonflyLite4U: Q2 - that I didn't come packaged with all the coping skills I needed to manage a chronic illness. they expect you to… |
| Patient Chat @patientchat @WeightDebate Agreed! Glad you could join in today and hope to see you next time! #patientchat |
 | GLHC_HIE @GLHC_HIE @ShereesePubHlth @GraceCordovano @AutonomicRN Sheesh! Rule #1 - DON'T make Shereese angry! You wouldn't like her when she's angry! #PatientChat https://t.co/8HGelst0kl |
| AutonomicRN© @AutonomicRN @WeightDebate Totally agree about the #weightstigma! #patientchat |
| Shereese Maynard, MS; MBA @ShereeseMayMba This is scary #hitsm #patientchat https://t.co/0cYzjmqCQt |
| Enlightening Results 💡 @GraceCordovano @AutonomicRN [REDACTED USER] @ShereesePubHlth Look out for unmarked secret weapons #patientchat https://t.co/BwjfJVIQcM |
| GLHC_HIE @GLHC_HIE @ShereesePubHlth Mission accomplished! LOL! 😀😉 |
| Dr Mary Ann Wilmarth @Back2backPT Thank you @patientchat @sixuntilme &all involved in the Empowered #patientchat It's so very important to have +accurate communication w/you&your Healthcare professionals! I spent>35yrs on other side;now as #patient I have both types:it makes all the difference‼️ @Back2backPT |
| Inspire @InspireIsHealth RT @patientchat: T6: Tell us about the best appointment you've had with a clinician. What made it awesome? #patientchat |
#patientchat content from Twitter.