#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
โ ().
See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients |
 | Your GPS Doc, LLC @yourgpsdoc Iโll be at the Empowered #patientchat on Fri 10/6 1pmET. Join me! https://t.co/EMV4WAsSyi via @power4patients |
| Patient Chat @patientchat The Empowered #patientchat is a project of @power4patients and @intakeme |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself #patientchat |
 | Amanda G @LAlupusLady RT @patientchat: The Empowered #patientchat is a project of @power4patients and @intakeme |
 | Melissa VanHouten @melissarvh #Gastroparesis patient and advocate. #patientchat |
 | Patient Empowerment Network @power4patients Iโm Kara from @power4patients and Iโm excited to be moderating todayโs #patientchat |
 | Whitney Petit @CfEpilepsy RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients |
| Whitney Petit @CfEpilepsy RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage w/ others on the topic |
| Patient Chat @patientchat Please continue intros and welcomes. Iโll share a couple โground rules" :) #patientchat |
 | burtrosen ๐ฆ @burtrosen hi Burt here from @HealthSparq on a great day in #PDX #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients |
| Patient Chat @patientchat Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history #patientchat |
 | Kat Quinn, MBA HIT @DPCNavigator Kat the @DPCNavigator ready to join #patientchat about "How to Find a Doctor Who Listens" #PatientEmpowerment with #DirectPrimaryCare!๐ #DPC |
| Patient Chat @patientchat You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat |
| Patient Empowerment Network @power4patients Hi, it's Andrea from PEN. Happy Friday, everyone #patientchat |
 | Mary MACK @MaryOCMack Hi all, my name is Mary #patientchat |
 | HealthSparq @HealthSparq Hi there #patientchat! Excited to be here (@annerskg on behalf of HealthSparq) from #PDX today! |
| Whitney Petit @CfEpilepsy I made it! Hey all! Whit here. Epilepsy and healthcare advocate. #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history #patientchat |
 | CP Nerve Center @Cpnervecenter Hi Becky here from @Cpnervecenter #patientchat |
 | Bob Tufts @TuftsB #patientchat - Bob Tufts, 8+ year myeloma patient, currently 6 months into clinical trial. Same oncologist and team for that entire time. |
 | Tatiana Skomski @tatiskomski HI everyone! Tatiana from Portland here. Joining my first #patientchat |
 | Christina Lizaso @btrfly12 via buffer: First #patientchat since Feb 2015 that I've missed! Waving hi and sending you all positive energy. Excited to guest mod 10/20 |
 | Enlightening Results ๐ก @GraceCordovano Happy, happy Friday #patientchat!! Grace, private cancer patient advocate joining in from NJ. https://t.co/n2DohxaVjw |
| HealthSparq @HealthSparq @CfEpilepsy Hi Whitney!!! How are you? #PatientChat |
| HealthSparq @HealthSparq @Cpnervecenter Hi Becky! How has your week been? #patientchat |
| Enlightening Results ๐ก @GraceCordovano @burtrosen @HealthSparq Hi Burt! Long time no see (speak?) #patientchat |
| HealthSparq @HealthSparq @GraceCordovano Heck yes! Friday! #patientchat |
| CP Nerve Center @Cpnervecenter RT @btrfly12: via buffer: via buffer: First #patientchat since Feb 2015 that I've missed! Waving hi and sending you all positive energy. Excited to guest mod 10/20 |
| Patient Chat @patientchat Today's #patientchat topic is How to Find a Doctor That Listens https://t.co/9qVBNzzqNw |
| Patient Empowerment Network @power4patients RT @patientchat: Today's #patientchat topic is How to Find a Doctor That Listens https://t.co/9qVBNzzqNw |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Your GPS Doc, LLC @yourgpsdoc I'm Nicole Rochester, pediatrician, former caregiver to my dad, patient advocate, and founder of @yourgpsdoc. #patientchat |
| Enlightening Results ๐ก @GraceCordovano Come join us! #patientchat https://t.co/8J1HAWoa7m |
 | Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 #patientchat Hi everyone! Happy to be part of the conversation today |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: Today's #patientchat topic is How to Find a Doctor That Listens https://t.co/9qVBNzzqNw |
| Whitney Petit @CfEpilepsy @HealthSparq Hey!!!! Iโm good! Long time no tweet! โบ๏ธ #PatientChat |
| CP Nerve Center @Cpnervecenter @HealthSparq Hi. Great week here minus the chill in the air. #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: Today's #patientchat topic is How to Find a Doctor That Listens https://t.co/9qVBNzzqNw |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| HealthSparq @HealthSparq @CfEpilepsy I know! I've been terrible the last couple months, back on it for fall! #PatientChat |
| Patient Chat @patientchat T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat |
| Enlightening Results ๐ก @GraceCordovano Calling all doctors & nurses! There are so many incredible ones who are taking the time to truly listen, empathize, & care. #patientchat https://t.co/jixPZA7o8H |
| HealthSparq @HealthSparq RT @patientchat: T1: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat |
| CP Nerve Center @Cpnervecenter @FieldingPolly @patientchat Hi Polly. #patientchat |
| Amanda G @LAlupusLady Amanda #Lupus #Fibro patient/advocate/warrior ready to rock #patientchat despite the ice pack on my wrist. |
 | Kimberly Amelia @fireflyrn84 Sorry a little late, Kim here! #patientchat |
| Amanda G @LAlupusLady RT @patientchat: T1: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: T1: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator RT @GraceCordovano: Calling all doctors & nurses! There are so many incredible ones who are taking the time to truly listen, empathize, & care. #patientchat https://t.co/jixPZA7o8H |
| CP Nerve Center @Cpnervecenter @fireflyrn84 Hi Kim๐#patientchat |
| Enlightening Results ๐ก @GraceCordovano T1: Come prepared for your appt! Speak up. Engage the dr. Take the front seat every single time. You need to drive your appt. #patientchat |
| Melissa VanHouten @melissarvh T1 Make written list of questions & topics you'd like 2 discuss in advance. Prioritize so most important concerns are addressed #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T1- You must openly share your concerns with doctors, ask questions, and make sure you understand the answers. #patientchat |
 | gail simmons @jurylady5 RT @GraceCordovano: Calling all doctors & nurses! There are so many incredible ones who are taking the time to truly listen, empathize, & care. #patientchat https://t.co/jixPZA7o8H |
 | Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba Hello all. #patientchat was on my mind in a meeting today. Let's find some docs who listen. I'm Shereese here in Maryland. https://t.co/RvxPgbW802 |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 #patientchat burden really lies on the clinician to identify patient's anxieties and communicate appropriately to alleviate such anxiety |
| Amanda G @LAlupusLady A1 Make a list, take notes but during the appointment look your HCP in the eyes and connect, engage and share. #patientchat |
| Kimberly Amelia @fireflyrn84 T1: Make list of ?s before visit, be frank, this is a relationship that needs developed. Let your doc really know your needs #patientchat |
| HealthSparq @HealthSparq T1. Always speaking up for yourself and asking questions certainly helps make sure the care is at least personalized! #patientchat |
| Enlightening Results ๐ก @GraceCordovano @fireflyrn84 Hey stranger! Wouldn't be a chat without you :) #patientchat |
| HealthSparq @HealthSparq @fireflyrn84 Morning Kimberly! Happy Friday! #PatientChat |
| Kimberly Amelia @fireflyrn84 @Cpnervecenter Hey there! #patientchat |
| burtrosen ๐ฆ @burtrosen T1: Make sure you have some understanding of issues (if you can) and be prepared to ask about new concepts if they can help #patientchat |
| Tatiana Skomski @tatiskomski T1: Coming prepared with what you want to discuss before the visit and being persistent to cover those topics during the visit! #patientchat |
 | Talk UK Telecoms @talkuktelecoms RT @LucyAlexandria: |
| Bob Tufts @TuftsB #patientchat T1 - time is limited, I always come with 5 questions to focus discussion. I will not leave until they are answered @MLIWI |
| Amanda G @LAlupusLady RT @ShereesePubHlth: Hello all. #patientchat was on my mind in a meeting today. Let's find some docs who listen. I'm Shereese here in Maryland. https://t.co/RvxPgbW802 |
| HealthSparq @HealthSparq RT @fireflyrn84: T1: T1: Make list of ?s before visit, be frank, this is a relationship that needs developed. Let your doc really know your needs #patientchat |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat |
| Kimberly Amelia @fireflyrn84 @GraceCordovano Aww thanks! You too! #patientchat |
| Melissa VanHouten @melissarvh T1 Make certain doc has rec'd all medical records before appointment & research your illness as much as possible prior 2 visit #patientchat |
| CP Nerve Center @Cpnervecenter A1 Write down your issues in order of importance. Ask for a long enough appt to cover your list #patientchat |
| Kimberly Amelia @fireflyrn84 @HealthSparq Same to you! #patientchat |
| Amanda G @LAlupusLady RT @burtrosen: T1: T1: Make sure you have some understanding of issues (if you can) and be prepared to ask about new concepts if they can help #patientchat |
| Whitney Petit @CfEpilepsy T1: always be prepared for your appointments. Bring questions, notes. Listen but also ask questions. Have a two way convo #PatientChat |
 | Alan Brewington @abrewi3010 T1 come to the visit as a whole person with a quality of life, not a collection of symptoms #patientchat |
 | Emily K. Drake @EK_Drake RT @ShereesePubHlth: Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat |
| Melissa VanHouten @melissarvh RT @ShereesePubHlth: Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat |
| Enlightening Results ๐ก @GraceCordovano T1: Bring a #carepartner! Having a support person & advocate, especially during difficult conversations, is essential. #patientchat |
 | Rie Lopez, MPH (she/her) @RieOfLetters Hello all! Mostly lurking today. Looking forward to learning from all of you. #patientchat |
| Patient Chat @patientchat RT @GraceCordovano: T1: T1: Bring a #carepartner! Having a support person & advocate, especially during difficult conversations, is essential. #patientchat |
| Amanda G @LAlupusLady There it is... #patientchat the best reason to be an "empowered patient." https://t.co/TM1G0A4lKb |
| Kimberly Amelia @fireflyrn84 Cannot stress how important this is !!!! #patientchat https://t.co/PuvRR7mF3J |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 #patientchat Attentive observation peaks curiosity which can improve listening skills...a necessity for optimal healthcare delivery |
| Whitney Petit @CfEpilepsy RT @tatiskomski: T1: T1: Coming prepared with what you want to discuss before the visit and being persistent to cover those topics during the visit! #patientchat |
| Patient Empowerment Network @power4patients T1: We published a list of 15 helpful tips to help you get ready for your next Dr's appt https://t.co/48vQoEmhM8 #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator RT @ShereesePubHlth: Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat |
| Melissa VanHouten @melissarvh RT @yourgpsdoc: T1- You must openly share your concerns with doctors, ask questions, and make sure you understand the answers. #patientchat |
| Enlightening Results ๐ก @GraceCordovano @melissarvh Being prepared is key! You wouldn't show up to a business meeting unprepared. 1000X more important than any meeting you go to #patientchat |
| Mary MACK @MaryOCMack T1: If you don't understand something ask for examples #patientchat |
| CP Nerve Center @Cpnervecenter A2 Be concise. Healthcare providers are looking for certain objective, facts more than longwinded explanations. Be honest #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @GraceCordovano: T1: T1: Bring a #carepartner! Having a support person & advocate, especially during difficult conversations, is essential. #patientchat |
| Amanda G @LAlupusLady T1 but will the HCPs be willing and able to see patients as people not a collection of symptoms with a list of meds? #PatientChat https://t.co/1tQ9c7L9KP |
| Enlightening Results ๐ก @GraceCordovano @ShereesePubHlth Hey Shereese! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @CfEpilepsy: T1: T1: always be prepared for your appointments. Bring questions, notes. Listen but also ask questions. Have a two way convo #PatientChat |
| Patient Chat @patientchat Topic 2 (T2:) coming upโฆ #patientchat |
| CP Nerve Center @Cpnervecenter RT @ShereesePubHlth: Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @TuftsB: #patientchat T1 - time is limited, I always come with 5 questions to focus discussion. I will not leave until they are answered @MLIWI |
| Amanda G @LAlupusLady RT @power4patients: T1: T1: We published a list of 15 helpful tips to help you get ready for your next Dr's appt https://t.co/48vQoEmhM8 #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator RT @power4patients: T1: T1: We published a list of 15 helpful tips to help you get ready for your next Dr's appt https://t.co/48vQoEmhM8 #patientchat |
 | LibsLikeMe @DaniScotchIrish Quit making Drs and other practitioners schedule 15 minute appointments! You can't listen and answer everything in 15 minutes! #patientchat |
| Kimberly Amelia @fireflyrn84 Especially with new docs and new diagnosis...this is essential! So much information and you forget things. #patientchat https://t.co/bvTzjs676Y |
| CP Nerve Center @Cpnervecenter RT @burtrosen: T1: T1: Make sure you have some understanding of issues (if you can) and be prepared to ask about new concepts if they can help #patientchat |
| Whitney Petit @CfEpilepsy RT @ShereesePubHlth: Know thyself. Being an empowered patient goes a long way toward finding the right care and provider. #patientchat |
| Bob Tufts @TuftsB #patientchat T1 - whenever there is a conference on a change in treatment, a caregiver's presence is almost mandatory. @MLIWI |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 RT @CfEpilepsy: T1: T1: always be prepared for your appointments. Bring questions, notes. Listen but also ask questions. Have a two way convo #PatientChat |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba @LAlupusLady Seems I followed you here, lol #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @power4patients: T1: T1: We published a list of 15 helpful tips to help you get ready for your next Dr's appt https://t.co/48vQoEmhM8 #patientchat |
| Enlightening Results ๐ก @GraceCordovano @TuftsB @MLIWI Preparation is key! Also, knowing next steps & being clear on what to do AFTER you leave the appt is essential #patientchat |
| Alan Brewington @abrewi3010 T1 Want doc to see you has a person, come with good & bad symptoms. People care about people. #patientchat |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 RT @melissarvh: T1 Make certain doc has rec'd all medical records before appointment & research your illness as much as possible prior 2 visit #patientchat |
| Patient Chat @patientchat T2: When you are โinterviewingโ a potential doctor, what questions should you ask them? #patientchat |
| Kimberly Amelia @fireflyrn84 Once you have a relationship established, then it is much easier to address the whole person. Initially difficult #patientchat https://t.co/F6jJMCxAlh |
| Kat Quinn, MBA HIT @DPCNavigator #DirectPrimaryCare doctors join the #patientchat happening right now by including "#patientchat" in your tweets & replies. ๐ค |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 RT @yourgpsdoc: T1- You must openly share your concerns with doctors, ask questions, and make sure you understand the answers. #patientchat |
| HealthSparq @HealthSparq RT @patientchat: T2: T2: When you are โinterviewingโ a potential doctor, what questions should you ask them? #patientchat |
| Enlightening Results ๐ก @GraceCordovano @JotallyWalksome Reviewing medical history & current meds prior to doctor coming in saves time. Use the time with the nurse to your benefit #patientchat |
| Bob Tufts @TuftsB @DaniScotchIrish #patientchat - and that 15 minutes includes infuriating computer time. Want my doc to look in my eyes, see my fears not a screen @MLIWI |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba @GraceCordovano #patientchat https://t.co/b0BhyEp14p |
| CP Nerve Center @Cpnervecenter @burtrosen So true! My Doc is more inclined to try my suggestions when I can back them up with Data #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: When you are โinterviewingโ a potential doctor, what questions should you ask them? #patientchat |
| Kimberly Amelia @fireflyrn84 T2: number of pts, time for visit, experience with this condition, best communication route, staff coverage when gone, priority #patientchat |
| Amanda G @LAlupusLady Great minds chat together. #HITsm #patientchat Happy Friday. https://t.co/6fx3Vb3Jjt |
| CP Nerve Center @Cpnervecenter RT @DPCNavigator: #DirectPrimaryCare doctors join the #patientchat happening right now by including "#patientchat" in your tweets & replies. ๐ค |
| Amanda G @LAlupusLady RT @fireflyrn84: Once you have a relationship established, then it is much easier to address the whole person. Initially difficult #patientchat https://t.co/F6jJMCxAlh |
| Kimberly Amelia @fireflyrn84 RT @DPCNavigator: #DirectPrimaryCare doctors join the #patientchat happening right now by including "#patientchat" in your tweets & replies. ๐ค |
| HealthSparq @HealthSparq T2. Its not always just about Qs, its also about personality & seeing if we "click"...that ensures we can work together! #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @GraceCordovano A #carepartner was so helpful for me. It can be overwhelming that you forget things or your notes become unreadable. #patientchat |
| HealthSparq @HealthSparq @fireflyrn84 It definitely takes time to establish a strong relationship. #Patientchat |
| Mary MACK @MaryOCMack T2: How familiar are you with rare diseases and the fact that they can be syndromic?#patientchat |
| Kat Quinn, MBA HIT @DPCNavigator @patientchat T2: How much time do visits last? How long of wait time to see my doctor? Does my doctor offer discounted Rx & lab work? #patientchat #DPC |
| Melissa VanHouten @melissarvh T2 How long have you specialized in my condition & how many patients w/ my condition have you treated? #patientchat |
| Kimberly Amelia @fireflyrn84 @Cpnervecenter @burtrosen I've gone to dr appts with studies pulled up on my phone so that I can show them the research #patientchat |
| Enlightening Results ๐ก @GraceCordovano T2: Conversation should be natural, discuss what you value. You don't necessarily need answers to get a sense of a good fit. #patientchat |
| CP Nerve Center @Cpnervecenter A2 Be disease specific! If they aren't sure how to treat you will they learn so they can treat u effectively #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator T2: How much time do visits last? How long of wait time to see my doctor? Does my doctor offer discounted Rx & lab work? #patientchat #DPC https://t.co/qp92WmOTcj |
| Amanda G @LAlupusLady Since my #ptexp in healthcare is a journey as a person wish that the HCPs could understand my concern for QOL and ROM. #patientchat |
| CP Nerve Center @Cpnervecenter RT @fireflyrn84: Especially with new docs and new diagnosis...this is essential! So much information and you forget things. #patientchat https://t.co/bvTzjs676Y |
| Kat Quinn, MBA HIT @DPCNavigator RT @HealthSparq: T2. Its not always just about Qs, its also about personality & seeing if we "click"...that ensures we can work together! #patientchat |
| Alan Brewington @abrewi3010 T2 what's the docs definition of quality of life? What do they do for fun? #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T2- Ask how they deal with uncertainty. Most docs can handle the common stuff. What do they do when they don't know? #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator RT @HealthSparq: @fireflyrn84 It definitely takes time to establish a strong relationship. #Patientchat |
| Patient Empowerment Network @power4patients T2 Finding the right oncologist is difficult, We're here to help make this important decision easier https://t.co/9yq3xXxAg5 #patientchat |
| Kimberly Amelia @fireflyrn84 @HealthSparq BINGO! You usually get that feeling within the first visit or two #patientchat |
| burtrosen ๐ฆ @burtrosen T2: what they like to read and how they like to learn about new ways to treat people, i want holistic care, not just a pill #patientchat |
| Amanda G @LAlupusLady RT @HealthSparq: T2. Its not always just about Qs, its also about personality & seeing if we "click"...that ensures we can work together! #patientchat |
| Enlightening Results ๐ก @GraceCordovano @MaryOCMack So important! Similar to patients opting for particular procedures. Asking how often the dr does the procedure is key. #patientchat |
| Melissa VanHouten @melissarvh T2 Interview is also about how attentive doc is & how well he communicates & demonstrates concern/empathy. Just as significant. #patientchat |
| Amanda G @LAlupusLady RT @patientchat: T2: T2: When you are โinterviewingโ a potential doctor, what questions should you ask them? #patientchat |
| Patient Empowerment Network @power4patients RT @abrewi3010: T2 what's the docs definition of quality of life? What do they do for fun? #patientchat |
| Bob Tufts @TuftsB #patientchat T2 - What is their experience w/the disease? What is menu of treatments? You suggest X, why? What are signs of failure? @MLIWI |
| Tatiana Skomski @tatiskomski T2: For me, it's more about that gut feeling (no pun intended) I get when talking with a doctor #IBDpuns #patientchat |
| CP Nerve Center @Cpnervecenter RT @burtrosen: T2: T2: what they like to read and how they like to learn about new ways to treat people, i want holistic care, not just a pill #patientchat |
| burtrosen ๐ฆ @burtrosen @fireflyrn84 @Cpnervecenter i try to remember to always bring my purple binder with all my test results so that all my docs can see what each other do #patientchat https://t.co/U3ydJO9x19 |
| Your GPS Doc, LLC @yourgpsdoc RT @patientchat: T2: T2: When you are โinterviewingโ a potential doctor, what questions should you ask them? #patientchat |
| Enlightening Results ๐ก @GraceCordovano @RieOfLetters It can be a lot to process. We've been taught to use the buddy system as children. Then we grew up. Should still apply #patientchat |
| Kimberly Amelia @fireflyrn84 @abrewi3010 Knowing their hobbies helps to find a common ground and that's a perfect starting point for forming a relationship #patientchat |
| CP Nerve Center @Cpnervecenter @yourgpsdoc GREAT QUESTION TO ASK! #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator RT @burtrosen: T2: T2: what they like to read and how they like to learn about new ways to treat people, i want holistic care, not just a pill #patientchat |
| CP Nerve Center @Cpnervecenter RT @abrewi3010: T2 what's the docs definition of quality of life? What do they do for fun? #patientchat |
| HealthSparq @HealthSparq @fireflyrn84 And that is when you have to decide to stay with them or move on...too much longer & the breakup becomes harder! #PatientChat |
| Patient Chat @patientchat Topic 3 (T3:) coming upโฆ #patientchat |
| Alan Brewington @abrewi3010 T2 Are they open to multiple forms of communication? #patientchat |
| Enlightening Results ๐ก @GraceCordovano @tatiskomski Communication is more than verbal. Shared decision making relationship that values the patient's voice requires more than words #PatientChat |
| Amanda G @LAlupusLady T2 get the basic info on Dr. online but i ask human questions to engage them get the HCP to "understand" that i am a ePatient. #patientchat |
| Kimberly Amelia @fireflyrn84 @burtrosen @Cpnervecenter Oh I never forget about your binder! I would need a lot of them and aubergine a wagon to pull it with ๐.#patientchat |
| Patient Chat @patientchat T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.? #patientchat |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @GraceCordovano: @JotallyWalksome Reviewing medical history & current meds prior to doctor coming in saves time. Use the time with the nurse to your benefit #patientchat |
| CP Nerve Center @Cpnervecenter RT @fireflyrn84: @burtrosen @Cpnervecenter Oh I never forget about your binder! I would need a lot of them and aubergine a wagon to pull it with ๐.#patientchat |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @patientchat: T3: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.? #patientchat |
| HealthSparq @HealthSparq RT @LAlupusLady: T2 get the basic info on Dr. online but i ask human questions to engage them get the HCP to "understand" that i am a ePatient. #patientchat |
| Bob Tufts @TuftsB #patientchat T2 - problem w/ specialists is that they are brilliant about the disease but not the person - lack communication skills @MLIWI |
| Kat Quinn, MBA HIT @DPCNavigator RT @GraceCordovano: @tatiskomski Communication is more than verbal. Shared decision making relationship that values the patient's voice requires more than words #PatientChat |
| Enlightening Results ๐ก @GraceCordovano @abrewi3010 Different patients have different preferences for communication. Its hard to have a relationship with someone you can't reach #Patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters Yes! I want a health care partnership. My provider should be interested in my conditions and be open to learn with me! #patientchat https://t.co/ZGb18h2JEW |
| burtrosen ๐ฆ @burtrosen @LucyAlexandria @morgan_gleason said it best, focus on what i want to be able to do (for her, ride horses), not just my test results #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @GraceCordovano: @tatiskomski Communication is more than verbal. Shared decision making relationship that values the patient's voice requires more than words #PatientChat |
 | Jim Katzaman - Get Debt-Free One Family at a Time @JKatzaman T1 On a doctor visit, take along all your medications prescribed by this doc and other specialists. I need to remember that. #patientchat |
| Kimberly Amelia @fireflyrn84 Autocorrect everytime...a wagon to pull #patientchat https://t.co/rvg0DY29lr |
| Amanda G @LAlupusLady wrist pain is stronger than #patientchat ~ taking a Twitter time out. |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @JKatzaman: T1 On a doctor visit, take along all your medications prescribed by this doc and other specialists. I need to remember that. #patientchat |
| Melissa VanHouten @melissarvh T3 Respected science-based medical sites are good place 2 begin research, but patient support groups can also provide good info #patientchat |
| Amanda G @LAlupusLady RT @patientchat: T3: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.? #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.? #patientchat |
| Enlightening Results ๐ก @GraceCordovano @TuftsB @MLIWI Lack #empathy too often too. #patientchat |
 | Kenny @kenny_pal2 Talk of " #patientchat " on free chat Chat channel https://t.co/sycoW9r9yn |
| Melissa VanHouten @melissarvh #patientchat https://t.co/EFyMWhjo3c |
| Alan Brewington @abrewi3010 T3 what is going on with my quality of life at that moment? Does my definition need updating with circumstances? #PatientChat |
| Patient Empowerment Network @power4patients RT @LucyAlexandria: |
| Amanda G @LAlupusLady T3 i use the internet to help me prep for HCP appointments and phone calls ~ having the right questions and info is essential. #patientchat |
| Kimberly Amelia @fireflyrn84 T3: Use nursing resources, medscape, along with friends who are HCP. Find online resources for particular dx and common sense #patientchat |
| Bob Tufts @TuftsB #patientchat T3 - never use Wikipedia. For myeloma, checked with researchers, doctors and sites like MMRF, IMF and Myeloma Beacon. @MLIWI |
| Jim Katzaman - Get Debt-Free One Family at a Time @JKatzaman T2 Ask doctors what insurance they accept. This is key in case your plan changes, and you have to find another provider. #patientchat |
| CP Nerve Center @Cpnervecenter A3 I research @ NIH, medscape, mayo, webmd etc & Pt Blogs, which are rich in honest pt info #patientchat |
| Enlightening Results ๐ก @GraceCordovano T3: Patients must ask for help. Too easy to be mislead by information that isn't evidence-based. Stay away from @goop #patientchat |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 #patientchat Clinicians... please do become defensive when encountering patients perceived as unpleasant attitude https://t.co/7Z4m4fqc4X |
| Alan Brewington @abrewi3010 @GraceCordovano Very true! #PatientChat |
| Kimberly Amelia @fireflyrn84 @tatiskomski @melissarvh I'm a human with a story and a life...treat me like that #patientchat |
| CP Nerve Center @Cpnervecenter RT @fireflyrn84: T3: T3: Use nursing resources, medscape, along with friends who are HCP. Find online resources for particular dx and common sense #patientchat |
| Melissa VanHouten @melissarvh T3 Bring summary of information you've found. Discuss w/ your physician whether your research is pertinent 2 your circumstances #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator RT @Cpnervecenter: A3 I research @ NIH, medscape, mayo, webmd etc & Pt Blogs, which are rich in honest pt info #patientchat |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @melissarvh: T3 Bring summary of information you've found. Discuss w/ your physician whether your research is pertinent 2 your circumstances #patientchat |
| Tatiana Skomski @tatiskomski T3: I use my network of fellow #IBD patients as well as the internet. Being empowered and informed to talk with your dr is key #patientchat |
| Melissa VanHouten @melissarvh RT @fireflyrn84: @tatiskomski @melissarvh I'm a human with a story and a life...treat me like that #patientchat |
| Bob Tufts @TuftsB #patientchat T3 - and I would never trust a Yelp review of a physician. |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @tatiskomski: T3: T3: I use my network of fellow #IBD patients as well as the internet. Being empowered and informed to talk with your dr is key #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters Love! Patients are more than just numbers or a case to figure out. Make sure that your health care team knows what you value. #patientchat https://t.co/iM52PUwGmd |
| HealthSparq @HealthSparq YES!! โฌ๏ธ #PatientChat #WTFix https://t.co/NpXitODgMG |
 | ๅฐ็ฃๅณๆๆฐ่ๅคงๅ
จ @YQQWE1982 find all kinds of backpacks for you with the loweset price at https://t.co/pSqlmaIpfe #patientchat #MFGDay17 https://t.co/PFnCTin5mX |
| Kimberly Amelia @fireflyrn84 @GraceCordovano @goop and webmd...you will be dead every time... don't look there either! #patientchat |
 | claire morris @msclairemorris RT @LucyAlexandria: |
| Jim Katzaman - Get Debt-Free One Family at a Time @JKatzaman T3 Talk with friends and family members about issues -- good and bad -- they've had with their docs to prep your own questions. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T3- Reputable internet sources, medical journals, other patients. #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator RT @HealthSparq: YES!! โฌ๏ธ #PatientChat #WTFix https://t.co/NpXitODgMG |
| claire morris @msclairemorris RT @LucyAlexandria: |
| CP Nerve Center @Cpnervecenter @Crohnoid LOVE THIS. Saw it when u posted b4 . #patientchat |
| CP Nerve Center @Cpnervecenter RT @Crohnoid: |
 | Ben White @drbenwhite RT @Crohnoid: |
| Patient Chat @patientchat Topic 4 (T4:) coming up #patientchat |
| Bob Tufts @TuftsB #patientchat T3 - take charge if your disease, keep journsls, do "homework" between visits to prep. @MLIWI |
| Patient Chat @patientchat When #patientchat starts trending we get more spam. Please ignore/report. |
| Patient Empowerment Network @power4patients T3 Most important tip for patient & caregivers don't be passive. Do your research, ask questions & when you need help, ask us! #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: T2: T2: When you are โinterviewingโ a potential doctor, what questions should you ask them? #patientchat |
| Patient Chat @patientchat T4: Say you found out about a new treatment or trial and your doctor wonโt discuss it with you. What should you do? #patientchat |
| Enlightening Results ๐ก @GraceCordovano @RieOfLetters Yes! Patient is the expert of living w/their diagnosis. Treatment plans may have different meanings & needs from patient vs dr #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator RT @power4patients: T3 Most important tip for patient & caregivers don't be passive. Do your research, ask questions & when you need help, ask us! #patientchat |
| HealthSparq @HealthSparq RT @power4patients: T3 Most important tip for patient & caregivers don't be passive. Do your research, ask questions & when you need help, ask us! #patientchat |
| Whitney Petit @CfEpilepsy True #patientchat https://t.co/bPYjLmAPyu |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 #patientchat Avoid the awkwardness.....Learn effective, strategic clinician-patient communication tools https://t.co/L0fzDQOwlH |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: Say you found out about a new treatment or trial and your doctor wonโt discuss it with you. What should you do? #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @power4patients: T3 Most important tip for patient & caregivers don't be passive. Do your research, ask questions & when you need help, ask us! #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: T3: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.? #patientchat |
| Alan Brewington @abrewi3010 T4 Ask why? If you don't like the answer then fire them. #PatientChat |
| CP Nerve Center @Cpnervecenter @power4patients And if you're too tired to research & ask questions, grab a friend, caregiver, helper etc to assist #patientchat |
| Melissa VanHouten @melissarvh T4 Honestly, I'd likely look 4 new doc. I'm not 1 to be left out of convos about my own life & goals. Doc should b open 2 this. #patientchat |
| Kimberly Amelia @fireflyrn84 T4: Actually had this happen. I found a med that could ? help symptoms. Neuro said it was a cancer med ... #patientchat |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 RT @fireflyrn84: @tatiskomski @melissarvh I'm a human with a story and a life...treat me like that #patientchat |
| Enlightening Results ๐ก @GraceCordovano T4: Speak to the nurse after the appt. See if they can address your questions w/dr. #patientchat |
| Bob Tufts @TuftsB #patientchat - Leave. We need access to & choice in care. If your doctor is close mouthed & minded, you are missing treatment options @MLIWI |
| Whitney Petit @CfEpilepsy RT @patientchat: T4: T4: Say you found out about a new treatment or trial and your doctor wonโt discuss it with you. What should you do? #patientchat |
 | Lisa Davis Budzinski @lisadbudzinski RT @Cpnervecenter: A3 I research @ NIH, medscape, mayo, webmd etc & Pt Blogs, which are rich in honest pt info #patientchat |
| Whitney Petit @CfEpilepsy RT @melissarvh: T4 Honestly, I'd likely look 4 new doc. I'm not 1 to be left out of convos about my own life & goals. Doc should b open 2 this. #patientchat |
| Kimberly Amelia @fireflyrn84 T4...he said I didn't have cancer. I told him to use the "phone a friend" option and talk with oncology. Guess who won? Me! #patientchat |
| Tatiana Skomski @tatiskomski T4: I would find a new dr. Your dr should be your advocate and discuss everything possible having to do with your disease #patientchat |
| Enlightening Results ๐ก @GraceCordovano T4: Recognize that not every doctor patient relationship works out. Sometimes you must get your medical records and move on. #patientchat |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba T4 Often trials fail due to low participation. If you see something; say something. Ask your Dr about clinical trials #patientchat |
| Kimberly Amelia @fireflyrn84 @GraceCordovano Always ask the nurse ;) #patientchat |
| Melissa VanHouten @melissarvh T4 Beyond finding a new doc, I might search 4 clinical trials (& make contact w/those leading them) & continue my own research. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @Crohnoid: |
| Jim Katzaman - Get Debt-Free One Family at a Time @JKatzaman T4 Ask why the doctor won't discuss new treatments. Trials might be closed. Insurance companies might prohibit discussions. #patientchat |
| Kimberly Amelia @fireflyrn84 @FieldingPolly @abrewi3010 Amen! #patientchat |
 | Rhinase @Rhinase_ RT @patientchat: T1: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat |
| Alan Brewington @abrewi3010 @FieldingPolly Yes but if possible fire any doc in any system if they don't listen. #Patientchat |
| Rhinase @Rhinase_ RT @patientchat: T2: T2: When you are โinterviewingโ a potential doctor, what questions should you ask them? #patientchat |
| Rhinase @Rhinase_ RT @patientchat: T3: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.? #patientchat |
| Bob Tufts @TuftsB #patientchat T4 - fortunate my doctor regularly works w/ industry, got me on clinical trial in March. His "conflict" is my benefit. @MLIWI |
| Rie Lopez, MPH (she/her) @RieOfLetters T4: It depends on why they don't want to discuss a particular treatment or trial. Ask why and go from there. #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator RT @ShereesePubHlth: T4 Often trials fail due to low participation. If you see something; say something. Ask your Dr about clinical trials #patientchat |
| Rhinase @Rhinase_ RT @patientchat: T4: T4: Say you found out about a new treatment or trial and your doctor wonโt discuss it with you. What should you do? #patientchat |
| CP Nerve Center @Cpnervecenter A4 Ask doctor why they won't discuss it. They'll answer, someway. Then decide what to do.Stay, leave, find new Doc. Report it! #patientchat |
| Enlightening Results ๐ก @GraceCordovano T4: I contact clinical trial study coordinators. Have had great experiences. They spend the time & point you in right direction #patientchat |
| Kimberly Amelia @fireflyrn84 Second opinions are always a good idea. Any dr that disagrees, probably shouldn't be on your careteam #patientchat |
| Patient Empowerment Network @power4patients RT @fireflyrn84: Second opinions are always a good idea. Any dr that disagrees, probably shouldn't be on your careteam #patientchat |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba If Dr. won't discuss w/ you, you can contact sponsoring org directly & work conversation backwards. Most have a outreach plan #patientchat |
| Enlightening Results ๐ก @GraceCordovano @ShereesePubHlth I like reaching out to trial study coordinators. Often eager to help. Spend time answering all questions. #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming upโฆ #patientchat |
| Patient Empowerment Network @power4patients T4 If your Dr isn't open to talking with you, it's time to find a new Dr #patientchat |
| CP Nerve Center @Cpnervecenter @fireflyrn84 @GraceCordovano YES! I tell all my non nurse friends the same thing! Nurses know! #patientchat |
| Bob Tufts @TuftsB #patientchat T4 - sites are popping up that help connect patients to trials, trying to make process easier. @MLIWI |
| CP Nerve Center @Cpnervecenter RT @fireflyrn84: @GraceCordovano Always ask the nurse ;) #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @power4patients: T2 Finding the right oncologist is difficult, We're here to help make this important decision easier https://t.co/9yq3xXxAg5 #patientchat |
| CP Nerve Center @Cpnervecenter RT @GraceCordovano: @ShereesePubHlth I like reaching out to trial study coordinators. Often eager to help. Spend time answering all questions. #patientchat |
| Kimberly Amelia @fireflyrn84 @Cpnervecenter @GraceCordovano You gor that right! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat |
| Patient Chat @patientchat T5: Have you ever had to change doctors? If so, how do you do this? #patientchat |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba @GraceCordovano Exactly. They are sometimes more informed & more willing to discuss than some Drs. #patientchat |
| Enlightening Results ๐ก @GraceCordovano @RieOfLetters Sometimes the patriarchial way of practicing medicine gets in the way of authentic patient care. No fix. Move on #patientchat |
| Patient Chat @patientchat RT @yourgpsdoc: T4: T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat |
| Kimberly Amelia @fireflyrn84 @Clara_Health has great resources for clinical trials as well as #NIH too #patientchat |
| CP Nerve Center @Cpnervecenter My office sends a review after almost every appt. If i have an issue with doc I relay it EVERY TIME #patientchat |
| Enlightening Results ๐ก @GraceCordovano @fireflyrn84 Nurses are often the ones who truly "care" for the patient. #patientchat |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 #patientchat Clinicians... please DO NOT become defensive with PATIENTS encounter perceived as unpleasant attitude https://t.co/7Z4m4fqc4X |
| HealthSparq @HealthSparq RT @patientchat: T5: T5: Have you ever had to change doctors? If so, how do you do this? #patientchat |
| HealthSparq @HealthSparq RT @yourgpsdoc: T4: T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat |
| burtrosen ๐ฆ @burtrosen T5: absolutely. when a dr tells you your condition doesn't exist it might be time to find someone new! #patientchat |
| Enlightening Results ๐ก @GraceCordovano RT @fireflyrn84: @Clara_Health has great resources for clinical trials as well as #NIH too #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: Have you ever had to change doctors? If so, how do you do this? #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator If you can't find another doctor near you, try @SherpaaHealth. It's an online #primarycare platform that's relationship-based. #patientchat https://t.co/Vto4dJt0dh |
| Kimberly Amelia @fireflyrn84 That's why I became a nurse...because I cared #patientchat https://t.co/Ie30bBx3mN |
| Melissa VanHouten @melissarvh T5 Yes. Left previous 1 unannounced. Asked 4 recommendations 4 new doc from friends & support groups. Searched online reviews. #patientchat |
 | Zarifa Roberson ๐ง๐ธโ๏ธ ๐๐๐ฉ @zarifaroberson RT @patientchat: T4: T4: Say you found out about a new treatment or trial and your doctor wonโt discuss it with you. What should you do? #patientchat |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @melissarvh: T5 Yes. Left previous 1 unannounced. Asked 4 recommendations 4 new doc from friends & support groups. Searched online reviews. #patientchat |
| Bob Tufts @TuftsB #patientchat - T5 never changed but didn't want ASCT if possible. Doc helped arrange 2nd opinion, knowing I may leave as patient. @MLIWI |
| Alan Brewington @abrewi3010 T5 ask for another referral. #PatientChat |
| Your GPS Doc, LLC @yourgpsdoc T5: I've changed doctors because of the doc and because of the staff. Review your insurance directory, get personal referrals. #patientchat |
| Jim Katzaman - Get Debt-Free One Family at a Time @JKatzaman T5 I've changed docs within a network because first doc moved farther away (something I said?). Easy to reconnect locally. #patientchat |
| Enlightening Results ๐ก @GraceCordovano T5: Very straightforward. Go to front desk. Sign medical records request. Decline follow-up appt. #patientchat https://t.co/PudlzWy6eI |
| CP Nerve Center @Cpnervecenter A5 Fired my husbands doc in hospital. I asked the nurse, she handled the rest. Wasn't difficult in Hosp setting #patientchat |
 | PVI @PatientVoices RT @GraceCordovano: T1: T1: Bring a #carepartner! Having a support person & advocate, especially during difficult conversations, is essential. #patientchat |
| Shereese Maynard, MS; MBA ๐ท She/Her @ShereeseMayMba RT @GraceCordovano: T5: T5: Very straightforward. Go to front desk. Sign medical records request. Decline follow-up appt. #patientchat https://t.co/PudlzWy6eI |
| Rie Lopez, MPH (she/her) @RieOfLetters @GraceCordovano I absolutely agree, @GraceCordovano! That is one huge reason I am looking for a new rheumatologist. #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator RT @GraceCordovano: T5: T5: Very straightforward. Go to front desk. Sign medical records request. Decline follow-up appt. #patientchat https://t.co/PudlzWy6eI |
| Tatiana Skomski @tatiskomski T5: Oh yeah! My entire childhood consisted of Drs telling me I was ok. Thank god for my mom who wouldn't take no for an answer #patientchat |
| Mary MACK @MaryOCMack T5: Yes, a few times. I have to great doc's that helped facilitate. I quietly just don't return. #patientchat |
| Kimberly Amelia @fireflyrn84 T5: Iโve changed doctors multiple times. Ultimately at the end of the day there is a detachment but itโs a business #PatientChat |
| Patient Chat @patientchat Topic 6 (T6:) coming upโฆ #patientchat |
| Enlightening Results ๐ก @GraceCordovano @tatiskomski Thank God for moms. They are often the secret weapon. #patientchat https://t.co/6rIFLUCAQf |
| Kimberly Amelia @fireflyrn84 @yourgpsdoc @GraceCordovano My doctor cares a lot. I've worked with so any who also do. But there are ones that aren't there for the right reasons #patientchat |
| CP Nerve Center @Cpnervecenter So hard to change docs if u need chronic pain/opioid tx. U get a bit stuck with whoever will help u & may have no other choice #patientchat |
| Bob Tufts @TuftsB #patientchat T5 - under new value rubrics doctors may pawn you off as difficult case: too costly or hurt their scoring. Be careful! @MLIWI |
| Patient Chat @patientchat T6: Who else can you go to, beside the doctor, to ask questions, seek information, or lean on? #patientchat |
| Melissa VanHouten @melissarvh RT @GraceCordovano: T5: T5: Very straightforward. Go to front desk. Sign medical records request. Decline follow-up appt. #patientchat https://t.co/PudlzWy6eI |
| Tatiana Skomski @tatiskomski @GraceCordovano I don't know where I would be without her and her persistence #patientchat |
| Jim Katzaman - Get Debt-Free One Family at a Time @JKatzaman T5 Had to change dentists three times in few years because they stopped accepting insurance. Had to go online to find next doc. #patientchat |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 RT @melissarvh: T2 Interview is also about how attentive doc is & how well he communicates & demonstrates concern/empathy. Just as significant. #patientchat |
| Enlightening Results ๐ก @GraceCordovano @yourgpsdoc @fireflyrn84 ๐ฏ many wish for more time with their patients. But there is a different demeanor exhibited. #patientchat |
| Melissa VanHouten @melissarvh T6 Online groups specific 2 illness have been best source of support & info; patient orgs & medical assocs relevant 2 disease. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @RieOfLetters So true!I was interviewing a new Endo Dr & he stated,โThatโs how we did it in the Navyโ If lab #s show fine then you are fine ๐ณ #patientchat |
| Enlightening Results ๐ก @GraceCordovano T6: incredible support groups on twitter. Like #patientchat |
 | Tiffany โท @TiffanyAndLupus RT @patientchat: T2: T2: When you are โinterviewingโ a potential doctor, what questions should you ask them? #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @burtrosen This, along with my favorite: "are you feeling depressed?" If a provider uses that as a 'go to' instead of listening. Bye! #patientchat |
| Patient Empowerment Network @power4patients T5 Many Drs are good but your health is MUCH TOO important to work w/ Dr whom isn't a good fit for you https://t.co/qlTwI4MS1e #patientchat |
| Patient Chat @patientchat RT @GraceCordovano: T6: T6: incredible support groups on twitter. Like #patientchat |
| Tiffany โท @TiffanyAndLupus RT @LucyAlexandria: |
| Patient Empowerment Network @power4patients RT @patientchat: T6: T6: Who else can you go to, beside the doctor, to ask questions, seek information, or lean on? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano Iโve done that. Time to part ways #patientchat |
| Tatiana Skomski @tatiskomski T6: Fellow #IBD patients, friends, and family. Sometimes educating my friends and family is where I learn the most #patientchat |
| Kimberly Amelia @fireflyrn84 T6: #patientadvocate, case managers, family, friends, support groups for similar conditions #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator @lisadbudzinski @SherpaaHealth @SherpaaHealth is your personal healthcare advocate at your fingertips They have a network of specialists they can refer you to #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @Cpnervecenter: So hard to change docs if u need chronic pain/opioid tx. U get a bit stuck with whoever will help u & may have no other choice #patientchat |
| Jim Katzaman - Get Debt-Free One Family at a Time @JKatzaman T6 Your friends and relatives aren't doctors, but they have experience to tap into. Make their questions your questions to ask. #patientchat |
| Tiffany โท @TiffanyAndLupus A2: I ask potential physicians if they are open to trying new treatment options & if they value my input when making decisions #patientchat |
| Tiffany โท @TiffanyAndLupus RT @patientchat: T1: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat |
| Tatiana Skomski @tatiskomski Also, nurses! #patientchat |
| Bob Tufts @TuftsB #patientchat -T6 Too often we hide our illness. I reached out to my entire network. Didn't just get sympathy, also got great info! @MLIWI |
| Enlightening Results ๐ก @GraceCordovano @lisadbudzinski @RieOfLetters "That's the way we've always done it". *yawn* #patientchat |
| Kimberly Amelia @fireflyrn84 @lisadbudzinski @GraceCordovano @RieOfLetters I actually got asked it I was a munchausen patient!!!! #patientchat |
| Enlightening Results ๐ก @GraceCordovano RT @TuftsB: #patientchat -T6 Too often we hide our illness. I reached out to my entire network. Didn't just get sympathy, also got great info! @MLIWI |
| Patient Empowerment Network @power4patients RT @yourgpsdoc: T4: T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat |
| CP Nerve Center @Cpnervecenter A6 Clinic or hosp med director, nurse, #patientchat, online groups, friends, family. Most will help if u ask. #patientchat |
| Melissa VanHouten @melissarvh RT @Crohnoid: |
| Melissa VanHouten @melissarvh RT @fireflyrn84: T6: T6: #patientadvocate, case managers, family, friends, support groups for similar conditions #patientchat |
| Tiffany โท @TiffanyAndLupus A1: Make a list of questions for each physician before your visit. Always ask what you can do to help them in-between visits. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @lisadbudzinski @GraceCordovano Yikes! I assume that was the last time you saw that endocrinologist, @lisadbudzinski! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @fireflyrn84 @GraceCordovano @RieOfLetters Oh good gravy alive! #patientchat |
 | Tinu Abayomi-Paul @Tinu RT @TiffanyAndLupus: A2: A2: I ask potential physicians if they are open to trying new treatment options & if they value my input when making decisions #patientchat |
| Alan Brewington @abrewi3010 T6 if you have a tribe them. Science sucks, patient stories are much easier to understand and relate too #PatientChat |
| Enlightening Results ๐ก @GraceCordovano @TuftsB @MLIWI We must disrupt stigma of a diagnosis. We have to stop being so embarrassed, ashamed, afraid. Ask for help. People want to help #patientchat |
| Tiffany โท @TiffanyAndLupus RT @patientchat: T3: T3: What resources do you use to prepare to ask your doctor questions regarding treatment options, genetic testing, etc.? #patientchat |
| Tinu Abayomi-Paul @Tinu RT @Cpnervecenter: So hard to change docs if u need chronic pain/opioid tx. U get a bit stuck with whoever will help u & may have no other choice #patientchat |
| Kimberly Amelia @fireflyrn84 @lisadbudzinski @GraceCordovano @RieOfLetters I asked if they were a munchausen is return ๐ #patientchat |
| CP Nerve Center @Cpnervecenter @fireflyrn84 @lisadbudzinski @GraceCordovano @RieOfLetters Ugh! Wow. Insulting! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc T6- Patient advocates, friends and family members, other patients. #patientchat |
| Tiffany โท @TiffanyAndLupus A3: May be taboo, but I google health concerns 1st & then discuss it w/ my patient community. Last step is asking Dr about it #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @power4patients: T5 Many Drs are good but your health is MUCH TOO important to work w/ Dr whom isn't a good fit for you https://t.co/qlTwI4MS1e #patientchat |
| Kenny @kenny_pal2 If you chat on the theme " #patientchat " Free chat channel https://t.co/sycoW9r9yn |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 #patientchat T1: We must overcome our fears and reservations about clinicians in order to improve trust/connect. https://t.co/3FPS3r9bFJ |
| Tiffany โท @TiffanyAndLupus A3: Our patient community always has vast knowledge on new symptoms I may be experiencing or treatments I am considering. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @fireflyrn84 @lisadbudzinski @GraceCordovano What a thing to ask!! I can't even imagine.... That is horrid. #patientchat |
| Alan Brewington @abrewi3010 T6 #PatientChat, #hcsm, #wtfix are excellent hashtags to follow for help/advice/friendship |
| Kimberly Amelia @fireflyrn84 #patientchat https://t.co/IuFgHArVvH |
| Tiffany โท @TiffanyAndLupus RT @patientchat: T4: T4: Say you found out about a new treatment or trial and your doctor wonโt discuss it with you. What should you do? #patientchat |
| Enlightening Results ๐ก @GraceCordovano @lisadbudzinski @RieOfLetters Sometimes it just doesn't work. There are plenty of drama who want to help and do care. Move on with pride. #patientchat |
 | Katrina Davis @butterflEYEz RT @yourgpsdoc: T4: T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat |
| Enlightening Results ๐ก @GraceCordovano This ๐ช๐ป #patientchat https://t.co/08br0g2LRp |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 RT @patientchat: T1: T1: What are your tips to make sure you get the best, personalized care every time you see a doctor? #patientchat |
| Tiffany โท @TiffanyAndLupus A4: I have asked old Drs about new treatments when current one wasn't effective. If continuously resistant...time for a new Dr! #patientchat |
| Bob Tufts @TuftsB #patientchat T6 - off the track, but do any of you use email, texts to communicate? I do on my clinical trial and it is helpful. @MLIWI |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| CP Nerve Center @Cpnervecenter @TiffanyAndLupus I don't think that's taboo at all! Thats just Smart. Patients know specifics and they'll tell u honestly . #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @melissarvh: T6 Online groups specific 2 illness have been best source of support & info; patient orgs & medical assocs relevant 2 disease. #patientchat |
| Kimberly Amelia @fireflyrn84 Same boat here! I did ask for one though and it helps...a little...I still do most of the work though he. #patientchat https://t.co/WBaYiXLmN2 |
| CP Nerve Center @Cpnervecenter RT @abrewi3010: T6 #PatientChat, #hcsm, #wtfix are excellent hashtags to follow for help/advice/friendship |
| Tiffany โท @TiffanyAndLupus A4: My current doctor & I make compromises. When my levels are consistently stable for x time then we can try something new. #patientchat |
| Tiffany โท @TiffanyAndLupus RT @yourgpsdoc: T4: T4: Time to move on. I blogged about the 5 signs it's time to fire you doctor. https://t.co/hwoEGyGTv2 #patientchat |
| Tiffany โท @TiffanyAndLupus RT @patientchat: T5: T5: Have you ever had to change doctors? If so, how do you do this? #patientchat |
| CP Nerve Center @Cpnervecenter RT @RieOfLetters: Yes! I want a health care partnership. My provider should be interested in my conditions and be open to learn with me! #patientchat https://t.co/ZGb18h2JEW |
| Jim Katzaman - Get Debt-Free One Family at a Time @JKatzaman CT When seeking a doctor who listens, try to find current patients to get their opinions. Mouth-to-mouth referrals are best. #patientchat |
| Kimberly Amelia @fireflyrn84 CT: Use your gut instincts when choosing a dr. You know your body better than anyone else and don't let them tell it different #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters T6: I have met so many wonderful people online, which is especially helpful with a #RareDisease! I lean on my husband, a lot. #patientchat |
| Tiffany โท @TiffanyAndLupus A5: If u need to change doctors make sure to request your entire medical record (including notes) from them. Illegal to say no! #patientchat |
| Tiffany โท @TiffanyAndLupus RT @patientchat: T6: T6: Who else can you go to, beside the doctor, to ask questions, seek information, or lean on? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @LucyAlexandria @TuftsB @MLIWI OMGosh! That would be greatโจ #patientchat |
| Patient Empowerment Network @power4patients CT: It's all about shared decision making = patient is at the center of care, not on the periphery https://t.co/RfqpVcnK4k #patientchat |
| Kat Quinn, MBA HIT @DPCNavigator If you want doctor that listens & advocate for your #wellbeing, #DirectPrimaryCare is way to go! i.e. https://t.co/RTCuOTJika #patientchat |
| CP Nerve Center @Cpnervecenter @Crohnoid @IBDAZDelta Maybe That's why those docs chose colorectal. Not much front end face to face discussion Lol. #patientchat |
| Tiffany โท @TiffanyAndLupus A6: Find an online patient community that you can trust with your health concerns & questions. Many have been where we are b4 #patientchat |
| Nonye Tochi Aghanya Msc. RN. FNP-C @nonyet777 #patientchat T2: Focus more on the clinician's qualifications, mannerisms, empathy....Not on culture, nationality https://t.co/IawGw2TCrv |
| Enlightening Results ๐ก @GraceCordovano CT: Looking to for an amazing group of people that supports shared decision making, patient empowerment? Follow & join @S4PM #patientchat |
| Alan Brewington @abrewi3010 CT Keep it Simple Stupid. Start with your QOL and go. Remember human causes errors/mistakes have human centered answers #PatientChat |
 | AmericasLastChance @BeholdAmerica RT @DPCNavigator: If you want doctor that listens & advocate for your #wellbeing, #DirectPrimaryCare is way to go! i.e. https://t.co/RTCuOTJika #patientchat |
| CP Nerve Center @Cpnervecenter @LucyAlexandria @TuftsB @MLIWI Yes! I love the email system. Usually it's faster than. Callback. #patientchat |
| CP Nerve Center @Cpnervecenter RT @LucyAlexandria: |
| Melissa VanHouten @melissarvh CT Find doc who relates & consider switching to 1 who's better fit if you're not satisfied w/ your care & can't resolve issues. #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime |
| Enlightening Results ๐ก @GraceCordovano Thanks for a terrific chat! Til next time #patientchat https://t.co/MynPZjJ3cq |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour #patientchat |
| Tiffany โท @TiffanyAndLupus A6: Patient/health communities I have found helpful: #rheumchat #lupuschat #bcsm #dsma #lcsm #btsm & #patientchat |
| Kimberly Amelia @fireflyrn84 @Cpnervecenter @LucyAlexandria @TuftsB @MLIWI I use the portal all the time for messages. So much easier #patientchat |
| Patient Empowerment Network @power4patients RT @LucyAlexandria: CT: |
| Patient Empowerment Network @power4patients RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour #patientchat |
| burtrosen ๐ฆ @burtrosen CT: tons of ways to find help & support & to learn more about what you are going through. help teach the Drs too! #patientchat |
| Patient Empowerment Network @power4patients RT @TiffanyAndLupus: A6: Patient/health communities I have found helpful: A6: Patient/health communities I have found helpful: #rheumchat #lupuschat #bcsm #dsma #lcsm #btsm & #patientchat |
| Tatiana Skomski @tatiskomski CT: Trust yourself and your body! Never feel bad for finding a new dr or speaking up during your appointment! #patientchat |
| Patient Chat @patientchat Join us for the next Empowered #patientchat on Fri October 20th at 1pm ET | 10am PT https://t.co/hM6TvegKBD |
| Your GPS Doc, LLC @yourgpsdoc CT- The doctor-patient relationship is a partnership. If you're not an equal partner look for a new doc. #patientchat |
| Kimberly Amelia @fireflyrn84 #patientchat https://t.co/wfkQ1JnYII |
 | teens get cancer too @trials4now Ask -- How many children with this type of cancer have you treated AND What #ClinicalTrials do you have open #patientchat #childhoodcancer https://t.co/K3925qaRhi |
| Tiffany โท @TiffanyAndLupus CT: There is an online twitter community for almost every health condition, find yours! ๐ #patientchat |
| Tiffany โท @TiffanyAndLupus RT @Cpnervecenter: @TiffanyAndLupus I don't think that's taboo at all! Thats just Smart. Patients know specifics and they'll tell u honestly . #patientchat |
 | Capricorn - It's Me! @_capricorn_247 Capricorn Tshirt, I Love C... Buy now=> https://t.co/Q0Vx3I1Duu #capricornsweatshirt #capricorncup #capricornhoodie #patientchat https://t.co/x2kDZt36Lb |
| Patient Chat @patientchat RT @TiffanyAndLupus: CT: CT: There is an online twitter community for almost every health condition, find yours! ๐ #patientchat |
| burtrosen ๐ฆ @burtrosen this is always such a human, authentic and caring chat. I love when i can be a part of it! #patientchat |
| Patient Chat @patientchat RT @yourgpsdoc: CT- The doctor-patient relationship is a partnership. If you're not an equal partner look for a new doc. #patientchat |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| CP Nerve Center @Cpnervecenter CT Be honest & concise with Dr. Suggest what u need for good QOL & research all of your options from Doc to treatments to meds #patientchat |
| Bob Tufts @TuftsB #patientchat - CT - you are a unique person, not a disease. Find people who will be positive and acknowledge your basic humsnity @MLIWI |
| Melissa VanHouten @melissarvh RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| CP Nerve Center @Cpnervecenter @burtrosen Agreed! This chat is SPECIAL! #patientchat |
| Alan Brewington @abrewi3010 RT @fireflyrn84: @abrewi3010 Knowing their hobbies helps to find a common ground and that's a perfect starting point for forming a relationship #patientchat |
| CP Nerve Center @Cpnervecenter RT @burtrosen: this is always such a human, authentic and caring chat. I love when i can be a part of it! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @TiffanyAndLupus Definitely! Find your tribe ๐ #patientchat |
| CP Nerve Center @Cpnervecenter RT @TiffanyAndLupus: CT: CT: There is an online twitter community for almost every health condition, find yours! ๐ #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @yourgpsdoc: CT- The doctor-patient relationship is a partnership. If you're not an equal partner look for a new doc. #patientchat |
| Kimberly Amelia @fireflyrn84 I got asked to moderate a caregiver/family forum for rare diseases this week...shh it's a secret :) #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters CT: Be your own best advocate and push for the best care possible. You deserve it! Remember to ask for help when you need it. #patientchat |
 | Samantha Wayne @samanthamwayne My YouTube subscribers. We all have overlapping experiences. https://t.co/Ywf8H6VGCI |
| Melissa VanHouten @melissarvh RT @RieOfLetters: CT: CT: Be your own best advocate and push for the best care possible. You deserve it! Remember to ask for help when you need it. #patientchat |
#patientchat content from Twitter.