#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Kimberly Amelia @fireflyrn84 Hey everyone, for the next hour I'll be a guest on #patientchat! Come join us! |
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat I’m Kara from @power4patients and I’m excited to be moderating the last #patientchat of 2018! |
| Kimberly Amelia @fireflyrn84 @JamieRoger8 @SalemOaks Thank you! I'm glad to be here :) #patientchat |
| Patient Chat @patientchat Guest @fireflyrn84 is Kim Hartmann, an RN turned full time patient, advocate, and blogger living with several chronic illnesses. You can see what she’s up to at https://t.co/rzJjmr5Kge #patientchat |
 | Jamie Roger @JamieRoger8 Jamie from CT and @SalemOaks Tuning in from my local library so I could have a bit of change in scenery for the day. Thanks @fireflyrn84 for being the guest host today. FOrgot the hashtag #patientchat |
 | Maya Northen Augelli @mayanorthen Maya from Philly here. Mental health, IBS, and Migraine advocate, & founder of Spread Hope Project. #patientchat |
| Patient Chat @patientchat Please continue with intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
 | HealthSparq @HealthSparq Looking forward to a great #patientchat today w/ @fireflyrn! Come on over and join us #WTFIx #HITsm #hcldr! |
| Kimberly Amelia @fireflyrn84 Hi everyone, it's such an honor to be here today with you. @patient4patients, Kara has done a great job introducing me, so I'll take a bow and say thanks! #patientchat |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Greetings! Casey Quinlan here, loud #data #citizenscience #healthpolicy geek HQed in Richmond VA. But I'm bad, I'm nationwide. I'm also global 😎 #PatientChat |
| Patient Chat @patientchat Today's #patientchat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history. |
| Kimberly Amelia @fireflyrn84 @mayanorthen Great to have you here! #patientchat |
 | Kevin Freiert @K_SalemOaks Kevin from CT here. Looking forward to #patientchat today Hopefully the crowd is growing. #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Kimberly Amelia @fireflyrn84 @HealthSparq @fireflyrn Hey there! I'm looking forward to spending some time with you! It's been a while #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat |
| Kimberly Amelia @fireflyrn84 @MightyCasey Hi Casey! #patientchat |
 | Laurie Reed @LReedptadvocate Laurie here joining from vacation but eager to hear the discussion #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is A Year in Review: Looking back on 2018 and Ahead to 2019 https://t.co/71CyoklrGa https://t.co/YnpZkcG14F |
| Jamie Roger @JamieRoger8 @LReedsbooks Where are you vacationing Laurie? #patientchat |
| Kimberly Amelia @fireflyrn84 @K_SalemOaks @SalemOaks @WestchesterBio @S4PM @savvy_coop @wegohealth @2DD Imagine seeing you here :) it's going to be a great chat! #patientchat |
| Kimberly Amelia @fireflyrn84 @LReedsbooks Glad to see you! #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2...Please include corresponding T# at front of every answer - hard to remember but helpful #patientchat |
 | Rie Lopez, MPH (she/her) @RieOfLetters Rie from chilly MA. Health educator, #mentalhealth and #ChronicPain advocate. Splendiferous patient and public health nerd. #patientchat https://t.co/orvBtcjyDP |
| Kimberly Amelia @fireflyrn84 @RieOfLetters Hi honey! Love the kittten! #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
 | Heather McCullen @H_SalemOaks Hi #patientchat Heather from outside of Ann Arbor, representing @SalemOaks along with @JamieRoger8 and @K_SalemOaks |
| Patient Chat @patientchat T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2019? #patientchat https://t.co/Ngh5jZRBHI |
| Jamie Roger @JamieRoger8 @H_SalemOaks @SalemOaks @K_SalemOaks The whole gang is here @SalemOaks #patientchat |
| Kimberly Amelia @fireflyrn84 T1.1: I got involved with an amazing org that has allowed me to thrive on #advocacy and help others with #dysautonomia. I got to lobby on Capitol Hill, which was something I’ll never take for granted; talk about empowering! #patientchat |
| Laurie Reed @LReedptadvocate @JamieRoger8 A little slice of paradise #patientchat https://t.co/QJnvI9nnia |
 | Patient Empowerment Network @power4patients RT @patientchat: T1: T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2019? #patientchat https://t.co/Ngh5jZRBHI |
 | Inspire @InspireIsHealth Hello to #patientchat and Happy Holidays. John Novack here from Inspire. |
| Kimberly Amelia @fireflyrn84 @LReedsbooks @JamieRoger8 gorgeous #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @fireflyrn84 Hi Kim! You know I had to bring something cute with me. 😊 #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T1: T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2019? #patientchat https://t.co/Ngh5jZRBHI |
| Kimberly Amelia @fireflyrn84 @RieOfLetters of course :) #patientchat |
| Kimberly Amelia @fireflyrn84 @teaminspire Hey John! Long time no see! #patientchat |
| Jamie Roger @JamieRoger8 I am proud of the growth that I have made through my experience as a #patient and how that has affected my career. My goal for 2019 is to continue #empowering others through #storytelling and #dialogue #listen to those around you and spread #compassion #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @LReedsbooks @JamieRoger8 Wow! Gorgeous!! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @fireflyrn84 #patientchat https://t.co/IvXfYGMps6 |
| Kimberly Amelia @fireflyrn84 Compassion and listening are two of the most valuable skills we can possess. #patientchat |
| Jamie Roger @JamieRoger8 @LReedsbooks SO BEAUTIFUL, and I'm soooo jelly. We just planned a trip to El Salvador in January and I can't wait to feel the hot sun again. #patientchat #vacation #selfcare |
| Jamie Roger @JamieRoger8 @teaminspire Hey John, How have you been? ANything fun and exciting? Happy Holidays #patientchat |
| Kevin Freiert @K_SalemOaks A1 Finishing our first full year @SalemOaks has been tremendous. Tripled the staff, quadrupled the talent. Meeting hundreds of new people with the same drive to improve healthcare. #patientchat #pinksocks @SalemOaks @S4PM @Savvy_Coop @WEGOHealth @2DDPodcast |
| Kimberly Amelia @fireflyrn84 T1.2 I got to serve on the digital advisory board for planning #WTFix. It was an amazing experience to be a part of something so special. I have networked with many people and I hope that 2019 has something similar in store. #patientchat |
| Jamie Roger @JamieRoger8 @fireflyrn84 Truth. #patientchat |
| Jamie Roger @JamieRoger8 RT @K_SalemOaks: A1 Finishing our first full year @SalemOaks has been tremendous. Tripled the staff, quadrupled the talent. Meeting hundreds of new people with the same drive to improve healthcare. #patientchat #pinksocks @SalemOaks @S4PM @Savvy_Coop @WEGOHealth @2DDPodcast |
| Heather McCullen @H_SalemOaks A1: 2018 has been quite a year! I went from being really lost in my career to finding new purpose with @SalemOaks #patientchat |
| Patient Empowerment Network @power4patients T1: We’re proud of our continued partnerships with other advocacy groups and healthcare organizations because we believe that these types of collabs benefit everyone #patientchat |
| Kimberly Amelia @fireflyrn84 @H_SalemOaks @SalemOaks We've met in a lot of chats this year. I think you are doing great things, Heather! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A1: At my age, I'll count "still above ground" as a 2018 highlight! Srsly tho, was delighted I got to attend @cochranecollab this year. Also happy I got @hilarious_is (my podcast) up and running. #PatientChat |
| Maya Northen Augelli @mayanorthen T1: This year I worked on really putting myself out there, which is tough for me b/c of anxiety/deprsession. I submitted articles to more sites, became a #MightyEvents host, joined @savvy_coop , became a #webewarrior @helathbeme, & a #breakthroughcrew member. #patientchat |
| Kevin Freiert @K_SalemOaks A1 Goals for 2019. Broaden our reach to more patients who can benefit from our services. Develop a kick-butt drug development curriculum for @WestchestBio. Grow enough to start hiring patients. #patientchat #pinksocks @SalemOaks @S4PM @Savvy_Coop @WEGOHealth @2DD |
| HealthSparq @HealthSparq RT @patientchat: T1: T1: For your personal Empowered Patient Year in Review, what are you proud of? What are your goals for 2019? #patientchat https://t.co/Ngh5jZRBHI |
| Laurie Reed @LReedptadvocate @patientchat T1 - I'm learning how to harness the power of social media to create dialogue and foster community. #patientchat |
| Kimberly Amelia @fireflyrn84 Yep, @savvy_coop and @savvypuppets all the way #patientchat |
| Maya Northen Augelli @mayanorthen @fireflyrn84 I should know this, but what is #WTFix. I see it a lot, but haven't actually learned what it is. Also, this is awesome, congrats! #patientchat |
| Jamie Roger @JamieRoger8 RT @fireflyrn84: Yep, @savvy_coop and @savvypuppets all the way #patientchat |
| Kimberly Amelia @fireflyrn84 T1.3 2019 is going to be the year of #patientadvocacy. It all has been up to this point but there is much more on the horizon that we, as both leaders & #patients can accomplish. #Healthcare is changing, as will advocacy. #patientchat |
| Kevin Freiert @K_SalemOaks RT @mayanorthen: T1: T1: This year I worked on really putting myself out there, which is tough for me b/c of anxiety/deprsession. I submitted articles to more sites, became a #MightyEvents host, joined @savvy_coop , became a #webewarrior @helathbeme, & a #breakthroughcrew member. #patientchat |
| Kimberly Amelia @fireflyrn84 @K_SalemOaks @SalemOaks @S4PM @savvy_coop @wegohealth @2DD Hiring patients would be HUGE! #patientchat |
 | Melissa VanHouten @melissarvh T1 Proud of my #Gastroparesis group/community members for continuing to raise their voices and share their stories in the hopes of bringing about improvements in care. 2019 goals? #DCGreen2019 - #CureGP #PatientChat |
| Patient Chat @patientchat RT @fireflyrn84: T1.3 2019 is going to be the year of #patientadvocacy. It all has been up to this point but there is much more on the horizon that we, as both leaders & #patients can accomplish. #Healthcare is changing, as will advocacy. #patientchat |
| HealthSparq @HealthSparq T1. We're thrilled about a second successful year of #WTFix and our work bringing #patientvoices to various conferences this year - including #AHIPcx this week! #patientchat |
| Patient Empowerment Network @power4patients RT @fireflyrn84: T1.3 2019 is going to be the year of #patientadvocacy. It all has been up to this point but there is much more on the horizon that we, as both leaders & #patients can accomplish. #Healthcare is changing, as will advocacy. #patientchat |
| Jamie Roger @JamieRoger8 RT @fireflyrn84: T1.3 2019 is going to be the year of #patientadvocacy. It all has been up to this point but there is much more on the horizon that we, as both leaders & #patients can accomplish. #Healthcare is changing, as will advocacy. #patientchat |
| Maya Northen Augelli @mayanorthen @outeresting @savvy_coop Thank you! It was really tough. Still is, but working on it. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters T1: I am proud of the steps I took in my advocacy work. I wrote some articles, said yes to some interviews, and participated in a panel on #mentalhealth at the @S4PM conference. #patientchat |
| Kimberly Amelia @fireflyrn84 #WTFix is "people kicking the hell out of healthcare" ordinary people finding a way around obstacles using imagination and creativity. Succeeding despite the system #patientchat |
| Jamie Roger @JamieRoger8 @fireflyrn84 @K_SalemOaks @SalemOaks @S4PM @savvy_coop @wegohealth @2DD It is definitely something we have discussed and are hopeful about doing. #patientchat #employeewellbeing |
| Heather McCullen @H_SalemOaks A1.2) I spent a lot of this year exploring the landscape and my new role. In 2019 my goal is to be a bit more focused in. my efforts. #patientchat |
| Kimberly Amelia @fireflyrn84 @melissarvh You do so much for #GP, it's a great asset! #patientchat |
| Patient Empowerment Network @power4patients @HealthSparq We were so psyched to participate this year and can’t wait until the next one! #PatientChat |
| Kevin Freiert @K_SalemOaks We've built it into our vision. As we have the need for more horsepower, we think there are may talented people in the patient and caregiver world. (We need revenue first.) #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DDPodcast |
| Kimberly Amelia @fireflyrn84 @HealthSparq that's awesome! #patientchat |
| Melissa VanHouten @melissarvh @fireflyrn84 Thank you kindly, Ms. Kimberly! #PatientChat |
| Kimberly Amelia @fireflyrn84 @RieOfLetters @S4PM You have done a lot of wonderful things this year, my dear! #patientchat |
| HealthSparq @HealthSparq T1. Goals in 2019 include continuing to find & amplify #patient stories, & getting them in front of those that can make change in #healthcare & most need to hear them. We'd also like to continue working to find more partners in these efforts! #patientchat #WTFix |
| Kimberly Amelia @fireflyrn84 @melissarvh Anytime! #patientchat |
| Maya Northen Augelli @mayanorthen T1.2 For 2019, I'm hoping to take #SpreadHopeProject to the next level. I have an idea for a Spread Hope Road trip to meet & help promote fellow patient advocates that I'm hoping I might be brave enough to do. :-) #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters T1 (b): Goal setting for 2019 is going to include more work in #mentalhealth. I'm also working on a book. Yikes! #patientchat |
| Patient Chat @patientchat T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2019? #patientchat |
| Kimberly Amelia @fireflyrn84 @JamieRoger8 @K_SalemOaks @SalemOaks @S4PM @savvy_coop @wegohealth @2DD I would be very interested in following this #patientchat |
| Maya Northen Augelli @mayanorthen @fireflyrn84 YESSSSS!! I want to be part of this somehow! #WTFix #patientchat |
| Patient Chat @patientchat T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2019? #patientchat https://t.co/osJzKKLyDY |
| Patient Empowerment Network @power4patients T1.2: Our proudest accomplishment is also the focus of our goal for 2019 and that’s to reach more patients and care partners with our Digital Sherpa Program. @CancerSupportHQ and @MoffittNews have been better partners than we could ever have hoped to have! #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T2: T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2019? #patientchat |
| Kimberly Amelia @fireflyrn84 @mayanorthen That would be amazing #patientchat |
| Maya Northen Augelli @mayanorthen @H_SalemOaks @SalemOaks That's amazing. I'd love to hear any tips or tricks (off chat perhaps lol) because I'm experiencing this right now (advocacy not full time career as of now). #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2019? #patientchat |
| Heather McCullen @H_SalemOaks A2: I should have quit my old job sooner #patientchat |
| Kevin Freiert @K_SalemOaks A2: No regrets for 2018. 2019 is full of promise as our shared vision broadens @SalemOaks. New? We are sponsoring conferences. #patientsaspartners #patientexpsym HOPE TO SEE YOU ALL THERE! #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Kimberly Amelia @fireflyrn84 @mayanorthen It is really a great concept. I have blogged both years for #WTFix and it's a great experience #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @fireflyrn84 @S4PM Thank you! Just trying to keep up with you! #patientchat https://t.co/RkxA6wmJXu |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2019? #patientchat https://t.co/osJzKKLyDY |
| Jamie Roger @JamieRoger8 @RieOfLetters Awesome! #patientchat |
| Kimberly Amelia @fireflyrn84 @HealthSparq Aww thanks! You were the ones that recruited such a talented team. It was an honor! #patientchat |
| Maya Northen Augelli @mayanorthen @fireflyrn84 I really want to do it. I'm trying to combine my travel biz experience, advocacy experience, and love of helping people. This seems like it would fit. #patientchat |
| Kimberly Amelia @fireflyrn84 A book, a book! #patientchat |
| Kimberly Amelia @fireflyrn84 T2.1 I wish I had won the lottery, maybe a New Year’s resolution will be to buy a lottery ticket a week 😊. All joking aside, I wish that I had slowed down to soak up the good things. We only live once; we need to make it count. #patientchat |
| Melissa VanHouten @melissarvh T2 Always things I wish I had done differently, better, and more efficiently. Hindsight is 20/20. Mostly, I wish I could do more. #PatientChat |
| Jamie Roger @JamieRoger8 I think it was more something I learned to do towards the end of the year and want to continue. #embrace my #story and accept what I have experienced, what I have learned, and how I can help others. continue to #connect with the world that I live in. #patientchat |
| Kimberly Amelia @fireflyrn84 @K_SalemOaks @SalemOaks @WestchesterBio @S4PM @savvy_coop @wegohealth @2DD Definitely want to hear more! #patientchat |
| Melissa VanHouten @melissarvh RT @K_SalemOaks: A2: A2: No regrets for 2018. 2019 is full of promise as our shared vision broadens @SalemOaks. New? We are sponsoring conferences. #patientsaspartners #patientexpsym HOPE TO SEE YOU ALL THERE! #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| HealthSparq @HealthSparq @mayanorthen This is awesome! #patientchat |
| Patient Empowerment Network @power4patients @fireflyrn84 Agreed, on all points! #patientchat |
| Maya Northen Augelli @mayanorthen T2: I wish I'd started kicking my own butt into gear a little earlier in the year. Also, I wish I had more confidence in my efforts, but that's kind of the ongoing anxiety/depression struggle. #patientchat |
| Kimberly Amelia @fireflyrn84 @melissarvh I think we all wish we could do more #patientchat |
| Kimberly Amelia @fireflyrn84 Perfectly said #patientchat |
| Jamie Roger @JamieRoger8 @H_SalemOaks Good thing you checked your linkedin and saw that my career path had changed. #patientchat |
| Kimberly Amelia @fireflyrn84 T2.2 2019 is hopefully going to be a year of better health. The way this year has gone, the bar doesn’t have to be set very high to hit that goal. The bar is pretty much on the ground at this point, so anywhere up is great! #patientchat |
| Jamie Roger @JamieRoger8 RT @K_SalemOaks: A2: A2: No regrets for 2018. 2019 is full of promise as our shared vision broadens @SalemOaks. New? We are sponsoring conferences. #patientsaspartners #patientexpsym HOPE TO SEE YOU ALL THERE! #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Maya Northen Augelli @mayanorthen This 1000%. Also, when you're leading the way, as we all are in advocacy, there will always be tweaks. They help us grow and learn what to do next. @melissarvh You're doing amazing things IMO. :-) #patientchat |
| Kimberly Amelia @fireflyrn84 @HealthSparq thank you ;) #patientchat |
| Jamie Roger @JamieRoger8 @mayanorthen @fireflyrn84 That sounds perfect for you then! #patientchat |
| Maya Northen Augelli @mayanorthen @HealthSparq Thank you! Dream big, right? #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters T2: I wish I had practiced more #selfcare. It's easy to get caught up in in the work you love, but if you are not taking care of yourself first (especially when you have chronic illness), you can end up worn out quickly. #patientchat |
| HealthSparq @HealthSparq @fireflyrn84 Sending you so many positive thoughts for a much healthier 2019! 2018 has kinda been a beast for ya! ❤️❤️❤️ #patientchat |
| Maya Northen Augelli @mayanorthen @HealthSparq @fireflyrn84 YES!! I'd love to hear more! #WTFix #Patientchat |
| Kimberly Amelia @fireflyrn84 T2.3 Currently I’m serving as the chair of a council that is working on trying to get a longitudinal health record formed. There is a lot of work to be done before it is accomplished, so 2019 has a lot to live up to. #patientchat |
| Patient Empowerment Network @power4patients T2: Agree with Kevin @SalemOaks, no regrets! But rather focusing on the future! We're going to be launching a bunch of new programs in 2019 focused on improving #healthliteracy and #patientempowerment #carepartnersupport so stay tuned! #patientchat |
| Kimberly Amelia @fireflyrn84 @HealthSparq an enormous beast! #patientchat |
| Melissa VanHouten @melissarvh @mayanorthen You are very kind, Ms. Maya. Thank you! I think you are pretty fabulous yourself. 😊 #PatientChat |
| Kimberly Amelia @fireflyrn84 can't wait to see/hear #patientchat |
| Maya Northen Augelli @mayanorthen @JamieRoger8 @fireflyrn84 It really is. It's the money/time off factor that I think trips me up. But I'm working on how to rectify that (slowly). #patientchat |
| Patient Chat @patientchat T3: Which healthcare trends were important to you in 2018? What trends would you like to see gain momentum? #patientchat https://t.co/qFTo9F3Mfr |
| Maya Northen Augelli @mayanorthen @melissarvh 😊😊Thank you! #patientchat |
| Kimberly Amelia @fireflyrn84 I'm also collaborating with someone on a book. Also need to publish my e-book of the first year of blogs! #patientchat |
| Kevin Freiert @K_SalemOaks Yay #healthliteracy Also working with @sarahkrug1 on something on this for middle and high school students (That's right Sarah - I didn't forget) #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Maya Northen Augelli @mayanorthen @GinaMcGalliard @patientchat This is amazing!! #patientchat |
| Kimberly Amelia @fireflyrn84 T3.1 A top trend that is in the news every day is the #opioidepidemic. This is something that we do have a problem with. At the same time, many #chronicpain patients are being caught in the middle, with limited options. #patientchat |
| Maya Northen Augelli @mayanorthen Same! #patientchat |
| Patient Empowerment Network @power4patients @RieOfLetters So true! Self care was a personal goal of mine this year and I have definitely benefited from it. It wasn't always easy to follow through one but I really benefited when I did #patientchat |
| Heather McCullen @H_SalemOaks RT @K_SalemOaks: A2: A2: No regrets for 2018. 2019 is full of promise as our shared vision broadens @SalemOaks. New? We are sponsoring conferences. #patientsaspartners #patientexpsym HOPE TO SEE YOU ALL THERE! #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| HealthSparq @HealthSparq @fireflyrn84 Ohhhh! So exciting! Can't wait to hear more! #patientchat |
| Jamie Roger @JamieRoger8 @mayanorthen @fireflyrn84 find a slow and steady income that will continue while you are traveling, as long as you KNOW that there will be some money coming in, the thought of just going won't be as stressful. Find something you can do on the road, or even a sponsor for the trip #patientchat |
| HealthSparq @HealthSparq RT @patientchat: T3: T3: Which healthcare trends were important to you in 2018? What trends would you like to see gain momentum? #patientchat https://t.co/qFTo9F3Mfr |
| Kevin Freiert @K_SalemOaks A2: Participatory Medicine. We need to amplify the movement of enlightened patients and healthcare providers to working together. #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Kimberly Amelia @fireflyrn84 @HealthSparq You'll be hearing soon! #patientchat |
| Kimberly Amelia @fireflyrn84 @GinaMcGalliard I find writing so therapeutic, it has gotten me through a lot of bad days. It's cathartic. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters You heard it here first, so now I am locked in. #AmWriting #patientchat |
 | Angela Radcliffe @theaimomma RT @MightyCasey: Greetings! Casey Quinlan here, loud #data #citizenscience #healthpolicy geek HQed in Richmond VA. But I'm bad, I'm nationwide. I'm also global 😎 #PatientChat |
| Jamie Roger @JamieRoger8 @fireflyrn84 @abrewi3010 has a thing or two to say about this. I agree, they are two VERY different struggles but are regarding the same medication. It is something that needs to be worked on in 2019. #patientchat |
| Maya Northen Augelli @mayanorthen @fireflyrn84 Ha yes on the lottery piece. If I did that, the road trip would be a go for sure! LOL. Also working on the soaking up the good things day by day though. :-) #patientchat |
| Kimberly Amelia @fireflyrn84 T3.2 We need to acknowledge that #patients are people too and so much more than a diagnosis or number. We all deserve to have a good #qualityoflife and that needs to become a priority across the board. #patientchat |
| Kimberly Amelia @fireflyrn84 @JamieRoger8 @abrewi3010 absolutely! #patientchat |
| Jamie Roger @JamieRoger8 RT @fireflyrn84: T3.2 We need to acknowledge that #patients are people too and so much more than a diagnosis or number. We all deserve to have a good #qualityoflife and that needs to become a priority across the board. #patientchat |
| Melissa VanHouten @melissarvh RT @K_SalemOaks: A2: A2: Participatory Medicine. We need to amplify the movement of enlightened patients and healthcare providers to working together. #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @power4patients: @RieOfLetters So true! Self care was a personal goal of mine this year and I have definitely benefited from it. It wasn't always easy to follow through one but I really benefited when I did #patientchat |
| Kevin Freiert @K_SalemOaks A3 Patient-led biopharmaceutical R&D. The patient voice is powerful in more places than the doctor's office. More @PhRMA members need to step up. #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Heather McCullen @H_SalemOaks Just remembered another one for A1: Convince @K_SalemOaks to do a regular podcast. #patientchat |
| Kimberly Amelia @fireflyrn84 @mayanorthen one day at a time is always the way to go #patientchat |
| Maya Northen Augelli @mayanorthen @JamieRoger8 @fireflyrn84 Also, I clearly wear a lot of random hats interest/career wise. :-) #patientchat |
| Melissa VanHouten @melissarvh T3 Well, I happen to love #HealthTech so I am looking forward to new and innovative patient tools. #PatientChat |
| Laurie Reed @LReedptadvocate T3 - I believe there are greater efforts to take back healthcare (direct primary care, etc...). Such efforts, while not perfect are taking steps in the right direction for people to get the healthcare they need and deserve.#patientchat |
| Kimberly Amelia @fireflyrn84 T3.3 #Medicalrecord access and #PHR are going to be gaining a lot more momentum in 2019. It’s something long overdue and is a right. We have already paid for the medical care, we shouldn’t have to pay to obtain our records. #patientchat |
| Kimberly Amelia @fireflyrn84 You and me both! #patientchat |
| Kevin Freiert @K_SalemOaks Where's the put-on-the-spot button? #patientchat |
| Kimberly Amelia @fireflyrn84 Great point #patientchat |
| Jamie Roger @JamieRoger8 @mayanorthen @fireflyrn84 What if you map out a journey (roughly) and talk to yoga studios in those areas to see if you can teach a class or two while you are there? @lululemon help her out! #sponsors #sponsorship #travel #patient #patientchat |
| Patient Empowerment Network @power4patients T3: I'm happy to see more of a focus on educating patients and care partners about the need for and the importance of #genomic testing, and potentially retesting, in this age of #precisionmedicine #patientchat |
| Patient Empowerment Network @power4patients RT @LReedsbooks: T3 - I believe there are greater efforts to take back healthcare (direct primary care, etc...). Such efforts, while not perfect are taking steps in the right direction for people to get the healthcare they need and deserve.#patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @power4patients That's awesome! I'm glad you noticed the difference. Looking forward to having us both enjoying plenty of self care in 2019! #patientchat |
| Kimberly Amelia @fireflyrn84 You kind of got thrown into the ring, Kevin! #patientchat |
| Maya Northen Augelli @mayanorthen T3: Love seeing increasing patient involvement each step (or at least many more) steps of the way in the healthcare process. It has a long way to go, but I think we're making progress. #patientchat |
| Melissa VanHouten @melissarvh RT @fireflyrn84: T3.3 #Medicalrecord access and #PHR are going to be gaining a lot more momentum in 2019. It’s something long overdue and is a right. We have already paid for the medical care, we shouldn’t have to pay to obtain our records. #patientchat |
| Jamie Roger @JamieRoger8 @fireflyrn84 He's used to that. #patientchat |
| Patient Chat @patientchat T4: We want to hear from you! What topics are you passionate about and would like to hear more of in 2019? #patientchat https://t.co/pUUpXT39Ro |
| Melissa VanHouten @melissarvh RT @mayanorthen: T3: T3: Love seeing increasing patient involvement each step (or at least many more) steps of the way in the healthcare process. It has a long way to go, but I think we're making progress. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @JamieRoger8 @mayanorthen @fireflyrn84 @lululemon That sounds fantastic! Love it! #patientchat |
| Kimberly Amelia @fireflyrn84 Absolutely! #genomic medicine is the wave and #precisionmedicine is how we are truly going to treat patients appropriately #patientchat |
 | IFFGD @IFFGD RT @fireflyrn84: T1.3 2019 is going to be the year of #patientadvocacy. It all has been up to this point but there is much more on the horizon that we, as both leaders & #patients can accomplish. #Healthcare is changing, as will advocacy. #patientchat |
| IFFGD @IFFGD RT @melissarvh: T1 Proud of my #Gastroparesis group/community members for continuing to raise their voices and share their stories in the hopes of bringing about improvements in care. 2019 goals? #DCGreen2019 - #CureGP #PatientChat |
| Kimberly Amelia @fireflyrn84 T4.1 I personally enjoyed the chat where we all brought up our own topics and guided the discussion. It was a different experience, but all seemed to flow well. Maybe quarterly do something similar. #patientchat |
| Jamie Roger @JamieRoger8 @RieOfLetters @mayanorthen @fireflyrn84 @lululemon It would combine a few of her favorite interests, as well as a source of income. #teaching #yoga #patientempowerment #patients #travel #patientchat |
 | Enlightening Results 💡 @GraceCordovano Peeking in to say hello but need to put the phone away before the dr sees me 😬 #patientchat https://t.co/KKId6b6Okg |
| Kimberly Amelia @fireflyrn84 Amen to this! I believe I'm the poster child for forgetting #selfcare occasionally #patientchat |
| Maya Northen Augelli @mayanorthen @JamieRoger8 @fireflyrn84 @lululemon Yeah, @lululemon help me out! I would love something like this. Thank you!! More brains together so much better than one (esp mine some days lol). :#patientchat |
| Jamie Roger @JamieRoger8 @fireflyrn84 I loved that one too! We kept it really focused but on topics we all enjoyed! #patientchat |
| Patient Empowerment Network @power4patients @K_SalemOaks @PhRMA @SalemOaks @WestchesterBio @S4PM @savvy_coop @wegohealth @2DD Yes! Seeing the shift toward patient-led R&D has been one of the most rewarding and satisfying things I've seen in my career. Still a looooong way to go but the fact it's happening is amazing to witness and be a part of #patientchat |
| Kimberly Amelia @fireflyrn84 @GraceCordovano Hi Grace! #patientchat |
| Kimberly Amelia @fireflyrn84 T4.2 Asking if people want to be guests is a fabulous idea! This has been a fun chat to prep for, especially with the holidays and getting ready to ring in the New Year soon. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey <runs back in from multitasking> A2: I dunno, I think every year I should be more aggressive about #FYPM aka getting PAID for my expertise vs. the all volunteer army protocol still prevalent for patient-side experts 🙄 #PatientChat |
| Heather McCullen @H_SalemOaks RT @K_SalemOaks: A3 Patient-led biopharmaceutical R&D. The patient voice is powerful in more places than the doctor's office. More @PhRMA members need to step up. #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Maya Northen Augelli @mayanorthen @JamieRoger8 @RieOfLetters @fireflyrn84 @lululemon My yoga instructor knows people all over, and my sister is an instructor in WA (though that would be a long road trip lol), so I just have to connect the dots. Also, have to finish my certification! :-) #yoga #patientempowerment #roadtrip #patientchat |
| Kimberly Amelia @fireflyrn84 Totally agree! We're professional patients and don't get compensated for what we do. #patientchat |
| Heather McCullen @H_SalemOaks RT @MightyCasey: <runs back in from multitasking> A2: I dunno, I think every year I should be more aggressive about #FYPM aka getting PAID for my expertise vs. the all volunteer army protocol still prevalent for patient-side experts 🙄 #PatientChat |
| Kevin Freiert @K_SalemOaks A4 See A3 below. Patient-led biopharmaceutical R&D. #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD @globalgenes |
| Melissa VanHouten @melissarvh T4 What healthcare topic am I NOT passionate about? Ha Ha! I would most like to see more of a focus on legislative changes & research funding for the #Gastroparesis community. More emphasis on conferences & collaboration among organizations as well. #PatientChat #CureGP |
| Jamie Roger @JamieRoger8 @mayanorthen @RieOfLetters @fireflyrn84 @lululemon #goals for 2019. Make it happen. Make the world your oyster! Roadtrips can be as long or short as you choose... Also on your journeys you can visit the best docs #patientchat |
| Kimberly Amelia @fireflyrn84 I agree 110%, more research for many illnesses #dysautonomia #gastroparesis #mastocytosis #MCAD #EDS there's a whole string that need more research @DysSupport #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A3: THIS ONE IS EASY. Excited to see emerging co-op model for patient #data control, including ECONOMIC dividend. @NebulaGenomics @hu_manityco are breakthrough players. #My31 #FYPMdata #PatientChat |
| IFFGD @IFFGD RT @melissarvh: T4 What healthcare topic am I NOT passionate about? Ha Ha! I would most like to see more of a focus on legislative changes & research funding for the #Gastroparesis community. More emphasis on conferences & collaboration among organizations as well. #PatientChat #CureGP |
| Maya Northen Augelli @mayanorthen I was basically just typing this as well. "Passionate about everything" related to health/healthcare (and also just a lot in general). #patientchat |
| Melissa VanHouten @melissarvh RT @fireflyrn84: I agree 110%, more research for many illnesses #dysautonomia #gastroparesis #mastocytosis #MCAD #EDS there's a whole string that need more research @DysSupport #patientchat |
 | Alan Brewington @abrewi3010 @fireflyrn84 @JamieRoger8 Just got out of a meeting at work. Missing the fun! #patientchat |
| Kimberly Amelia @fireflyrn84 @abrewi3010 @JamieRoger8 We miss you! #patientchat |
 | Katarina Bot @amwritingbot RT @RieOfLetters: You heard it here first, so now I am locked in. #AmWriting #patientchat |
| Maya Northen Augelli @mayanorthen @JamieRoger8 @RieOfLetters @fireflyrn84 @lululemon Ha yes! Thank you! Goal: recorded. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters T3: I saw a lot more discussion on generational #trauma and #ACEs. There is finally a lot more attention on diversity in #clinicaltrials. I feel we need a lot more attention focused on #mentalhealth and chronic illness. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A4: More patient-directed #clinicalresearch + #clinicaltrials participation, including research question and trial design. #citizenscience #countmein #allofus #PatientChat |
| Kimberly Amelia @fireflyrn84 This this this! #patientchat |
| Maya Northen Augelli @mayanorthen Yes! To all of it. Of course I'm always a big yes to anything focused on #mentalhealth. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @mayanorthen: T1.2 For 2019, I'm hoping to take #SpreadHopeProject to the next level. I have an idea for a Spread Hope Road trip to meet & help promote fellow patient advocates that I'm hoping I might be brave enough to do. :-) #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @fireflyrn84 Yeah, like we don't also like living indoors, eating from time to time, or ... PAYING FOR MEDICAL CARE. #patientchat #FYPM |
| Kimberly Amelia @fireflyrn84 @MightyCasey BINGO #patientchat |
| Patient Chat @patientchat T5: How can we empower others and get more people involved? What can we do to foster collaboration? #patientchat https://t.co/FKjOTRa4Xf |
| Heather McCullen @H_SalemOaks RT @MightyCasey: @fireflyrn84 Yeah, like we don't also like living indoors, eating from time to time, or ... PAYING FOR MEDICAL CARE. #patientchat #FYPM |
| Kimberly Amelia @fireflyrn84 T5.1 We need to reach out, tag more organizations, take place in more chats…make #patientchat a staple on Twitter and let’s start trending on the newsfeeds! |
| Alan Brewington @abrewi3010 @fireflyrn84 @JamieRoger8 I miss you too! #patientchat |
| Kimberly Amelia @fireflyrn84 @abrewi3010 @JamieRoger8 aww #patientchat |
| Maya Northen Augelli @mayanorthen YES! All of it. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @abrewi3010 @fireflyrn84 @JamieRoger8 We are decidedly more fun than meetings at work. ❤️ #patientchat |
| Patient Chat @patientchat RT @fireflyrn84: T5.1 We need to reach out, tag more organizations, take place in more chats…make #patientchat a staple on Twitter and let’s start trending on the newsfeeds! |
| Melissa VanHouten @melissarvh RT @fireflyrn84: T5.1 We need to reach out, tag more organizations, take place in more chats…make #patientchat a staple on Twitter and let’s start trending on the newsfeeds! |
| Patient Empowerment Network @power4patients @RieOfLetters Speaking of diversity in #clinicaltrials, we produced a program on the topic in our Clinical Trial Mythbusters series. Check it out and let us know what you think because we'd like to continue to talk about it in a meaningful way: https://t.co/e4t0Sjx5J0 #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A5: Look for opportunities to partner with communities in allied interest fields. IOW don't just play in your own condition community, find other communities interested in #research, or #datascience, join forces. #PatientChat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: How can we empower others and get more people involved? What can we do to foster collaboration? #patientchat https://t.co/FKjOTRa4Xf |
| Maya Northen Augelli @mayanorthen T5: I think a lot of it is increasing visibility. I continuously stumble on new chats, conferences, organizations. I'd love to have a more consolidated way to let other advocates know what's happening, how they can be involved, etc. #patientchat |
| Kimberly Amelia @fireflyrn84 ooh! definitely will be checking it out #patientchat |
| Kimberly Amelia @fireflyrn84 T5.2 Collaboration comes by building trust and not being afraid of change. Take the leap that you have been holding onto, 2019 is our year! #patientchat |
| Kevin Freiert @K_SalemOaks A5. Equip them. People need knowledge, skills, and confidence to do public speaking. Speaking out about our health is a-whole-nother challenge. We need a place to nurture new advocates. #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Kimberly Amelia @fireflyrn84 @RieOfLetters @abrewi3010 @JamieRoger8 It doesn't take much to be more fun than meetings, but we are a lot more fun #patientchat |
| Laurie Reed @LReedptadvocate T5 - It seems like there's already a lot of collaboration happening. Each of you are involved in many different patient organizations and are building community. #patientchat |
| Melissa VanHouten @melissarvh T5 I think getting info out is key. I can do that fairly effectively on FB & Twitter, but there's a whole "real" world out there which seems more difficult 2reach. Including addtn'l disease-specific orgs in collaboration would be great. So much we all have in common. #PatientChat |
| Melissa VanHouten @melissarvh RT @K_SalemOaks: A5. Equip them. People need knowledge, skills, and confidence to do public speaking. Speaking out about our health is a-whole-nother challenge. We need a place to nurture new advocates. #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Alan Brewington @abrewi3010 @fireflyrn84 @RieOfLetters @JamieRoger8 I work in state government, I’ve had more fun at surgeries! #patientchat |
| Kevin Freiert @K_SalemOaks A5 We need to break out of our twitter-bubble. How many of us are on their 2nd or 3rd TwC today? Where else can we go and spread the word? #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Melissa VanHouten @melissarvh RT @mayanorthen: T5: T5: I think a lot of it is increasing visibility. I continuously stumble on new chats, conferences, organizations. I'd love to have a more consolidated way to let other advocates know what's happening, how they can be involved, etc. #patientchat |
| Kimberly Amelia @fireflyrn84 No flak here! You are spot on #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters T4: If you know me even a little, I cover a lot of ground. I'm passionate about everything relating to health/improving health outcomes for everyone. I breathe #publichealth and #mentalhealth. Policy, advocacy, research, patient care ... It's so exciting! #patientchat |
| Maya Northen Augelli @mayanorthen @fireflyrn84 @RieOfLetters @abrewi3010 @JamieRoger8 Legit, we're building my whole 2019 goal plan/strategy and shouting out for sponsors over here. :-) Meetings def don't do that! #patientchat |
| Jamie Roger @JamieRoger8 @abrewi3010 @fireflyrn84 @RieOfLetters Come on, the FDA isn't that bad. HAHAH . How was your week? #patientchat |
| Heather McCullen @H_SalemOaks RT @mayanorthen: @fireflyrn84 @RieOfLetters @abrewi3010 @JamieRoger8 Legit, we're building my whole 2019 goal plan/strategy and shouting out for sponsors over here. :-) Meetings def don't do that! #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T4: T4: We want to hear from you! What topics are you passionate about and would like to hear more of in 2019? #patientchat https://t.co/pUUpXT39Ro |
| Melissa VanHouten @melissarvh I could not agree with this more! People are willing to help but they are sometimes easily intimidated & think they must possess a certain skill level or status to participate. This perception must change! #PatientChat |
| Kimberly Amelia @fireflyrn84 Everyone has great ideas today. This has been a great conversation, I can't believe we're starting to wind down already! #patientchat |
| Kimberly Amelia @fireflyrn84 Amen to this #patientchat |
| Kevin Freiert @K_SalemOaks A5 Being relatively new, I have noticed this too. 'Celebrity' can be a powerful tool but can also be used to build barriers. We all need to remember the day the doctor said "I'm sorry but..." #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Patient Empowerment Network @power4patients T5: We need more collab b/w advocacy grps. None of us has all the answers & we're 100x better when we work together. Most importantly, it benefits patients & care partners so that, IMHO, should be enough to make it happen. It's my goal to make it happen more often. #patientchat |
| Jamie Roger @JamieRoger8 RT @K_SalemOaks: A5 Being relatively new, I have noticed this too. 'Celebrity' can be a powerful tool but can also be used to build barriers. We all need to remember the day the doctor said "I'm sorry but..." #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Alan Brewington @abrewi3010 @JamieRoger8 @fireflyrn84 @RieOfLetters I work for Medicaid. #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Jamie Roger @JamieRoger8 @abrewi3010 @fireflyrn84 @RieOfLetters Sorry, my bad... forgetful day. Just as fun #patientchat |
| Kimberly Amelia @fireflyrn84 Not more often; it needs to happen every. single. day. always #patientchat |
| Patient Empowerment Network @power4patients RT @melissarvh: T5 I think getting info out is key. I can do that fairly effectively on FB & Twitter, but there's a whole "real" world out there which seems more difficult 2reach. Including addtn'l disease-specific orgs in collaboration would be great. So much we all have in common. #PatientChat |
| Patient Empowerment Network @power4patients RT @fireflyrn84: T5.2 Collaboration comes by building trust and not being afraid of change. Take the leap that you have been holding onto, 2019 is our year! #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @power4patients I bookmarked it so I can read it later. I'll let you know what I think. Thanks! 😊 #patientchat |
| Kimberly Amelia @fireflyrn84 @GinaMcGalliard It is absolutely about supporting each other. That's why we are all here! #patientchat |
| Maya Northen Augelli @mayanorthen @melissarvh This is one of the reasons I want to try to get out "on the road" for 2019. It might not be big stuff or major collaboration, but I want to try to connect w/people & orgs offline too. #patientchat |
| Patient Empowerment Network @power4patients RT @MightyCasey: A5: A5: Look for opportunities to partner with communities in allied interest fields. IOW don't just play in your own condition community, find other communities interested in #research, or #datascience, join forces. #PatientChat |
| Patient Chat @patientchat RT @power4patients: T5: T5: We need more collab b/w advocacy grps. None of us has all the answers & we're 100x better when we work together. Most importantly, it benefits patients & care partners so that, IMHO, should be enough to make it happen. It's my goal to make it happen more often. #patientchat |
| Kimberly Amelia @fireflyrn84 CT: Thank you for the opportunity to allow me to be a guest today! It’s been an honor and privilege. This has been a great chat as always and am looking forward to many, many more! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @K_SalemOaks @SalemOaks @WestchesterBio @S4PM @savvy_coop @wegohealth @2DD Yup. Every day I remind myself, out loud, "it's not about you." I'm in this for humanity, not myself. Which is patently obvious if you look at my balance sheet 😜😜 #patientchat |
| Jamie Roger @JamieRoger8 My closing thoughts for today, and 2018, don't give up. Don't lose sight of what your goals are and what you want to accomplish in the coming year. AND don't forget to practice #selfcare especially during the holiday season. HAPPY HOLIDAYS #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @power4patients: T5: T5: We need more collab b/w advocacy grps. None of us has all the answers & we're 100x better when we work together. Most importantly, it benefits patients & care partners so that, IMHO, should be enough to make it happen. It's my goal to make it happen more often. #patientchat |
| Jamie Roger @JamieRoger8 RT @mayanorthen: @melissarvh This is one of the reasons I want to try to get out "on the road" for 2019. It might not be big stuff or major collaboration, but I want to try to connect w/people & orgs offline too. #patientchat |
| Laurie Reed @LReedptadvocate CT - I'm so impressed with the level of commitment among all of you to make change happen! #patientchat |
| Kimberly Amelia @fireflyrn84 My thoughts on advocacy are that we are forging a new path to discoveries that will leave a lasting legacy for generations to come. Many of us aren't going to see cures in our lifetime, but others certainly will who come after us. #patientchat |
| Inspire @InspireIsHealth RT @patientchat: T5: T5: How can we empower others and get more people involved? What can we do to foster collaboration? #patientchat https://t.co/FKjOTRa4Xf |
| Patient Empowerment Network @power4patients RT @fireflyrn84: My thoughts on advocacy are that we are forging a new path to discoveries that will leave a lasting legacy for generations to come. Many of us aren't going to see cures in our lifetime, but others certainly will who come after us. #patientchat |
| Melissa VanHouten @melissarvh Happy Holidays and best wishes for a beautiful 2019 to all! #PatientChat |
| Kevin Freiert @K_SalemOaks CT May you all enjoy your holidays! Given today's chat, we all should rest up for a powerful 2019! #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Maya Northen Augelli @mayanorthen My CT for today: this has been one of the most inspiring & collaborative chats I've participated in recently. There is so much passion and so many great ideas among our community. Let's keep up the momentum for 2019. #patientchat |
| Kimberly Amelia @fireflyrn84 @melissarvh Happy holidays to you too, Melissa #patientchat |
| Patient Chat @patientchat RT @K_SalemOaks: CT May you all enjoy your holidays! Given today's chat, we all should rest up for a powerful 2019! #patientchat #pinksocks @SalemOaks @WestchesterBio @S4PM @Savvy_Coop @WEGOHealth @2DD |
| Maya Northen Augelli @mayanorthen RT @JamieRoger8: My closing thoughts for today, and 2018, don't give up. Don't lose sight of what your goals are and what you want to accomplish in the coming year. AND don't forget to practice #selfcare especially during the holiday season. HAPPY HOLIDAYS #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime |
| Maya Northen Augelli @mayanorthen RT @LReedsbooks: CT - I'm so impressed with the level of commitment among all of you to make change happen! #patientchat |
| Kimberly Amelia @fireflyrn84 @K_SalemOaks @SalemOaks @WestchesterBio @S4PM @savvy_coop @wegohealth @2DD Agreed, we have a lot of work to do in 2019 #patientchat |
| Kimberly Amelia @fireflyrn84 @mayanorthen So glad that you could join us #patientchat |
| Jamie Roger @JamieRoger8 #sponsors #roadtrip #yoga #PatientAdvocacy #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters CT: I am so glad that I made it to this chat. I feel like 2019 is going to be really great for patient advocacy. And if you are new or seasoned, feel free to holler at me any time. We're all in this together!! 😊#patientchat |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour. |
| Patient Chat @patientchat Thank you all for a great year of #patientchat There will be no chat on 12/28 due to the holidays. We hope to see you again in 2019! |
| Maya Northen Augelli @mayanorthen Couldn't agree more, on all of it! My twitter (or however you reach me) door is always open! #patientchat |
| Kimberly Amelia @fireflyrn84 Thank you for having me. #patientchat |
| Patient Chat @patientchat If you have a topic in mind for a future #patientchat or would like to be a guest host in 2019, please let us know! :) |
| Patient Empowerment Network @power4patients CT: We're grateful for this #patientchat community & each and every one of you. You're a constant source of ideas, inspiration & motivation for the work we do to empower patients & care partners. Wishing you Happy Holidays and a peaceful, joyful & health-ful New Year xo |
| Rie Lopez, MPH (she/her) @RieOfLetters @GinaMcGalliard @fireflyrn84 I agree with you completely, @GinaMcGalliard! Thank you for coming out and saying this. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: If you have a topic in mind for a future #patientchat or would like to be a guest host in 2019, please let us know! :) |
 | Cameron J. Navy @navy_cameron RT @RieOfLetters: CT: CT: I am so glad that I made it to this chat. I feel like 2019 is going to be really great for patient advocacy. And if you are new or seasoned, feel free to holler at me any time. We're all in this together!! 😊#patientchat |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| Patient Empowerment Network @power4patients RT @mayanorthen: My CT for today: My CT for today: this has been one of the most inspiring & collaborative chats I've participated in recently. There is so much passion and so many great ideas among our community. Let's keep up the momentum for 2019. #patientchat |
| Maya Northen Augelli @mayanorthen You all, that #patientchat was so interactive, I forgot to eat my lunch. Not great for #selfcare, but awesome for #patientadvocacy motivation! |
 | DarshanTalks Podcast @DarshanTalks #healthcare #pharmacist #patientcentricity #patientchat #hcsm #patientsinvolved #patientengagement #pharmacy https://t.co/XBLErIY498 |
| Patient Empowerment Network @power4patients RT @fireflyrn84: T5.1 We need to reach out, tag more organizations, take place in more chats…make #patientchat a staple on Twitter and let’s start trending on the newsfeeds! |
| Rie Lopez, MPH (she/her) @RieOfLetters @power4patients Wishing you the very same- from now and throughout 2019! 🎉 #patientchat |
 | 🌟 Sherry Reynolds ✨ Person-Centered Health @Cascadia @fireflyrn84 @power4patients Many many of us grew up doing #patientadvocacy My mom did it in women’s health. I did it in the AIDS community. Each “round” is a generation apart so people often don’t know or learn the lessons #patientchat |
| Patient Empowerment Network @power4patients Join #patientchat today at 1pmET as we round out 2018's Empowered Patient Chats with a look back on 2018 and look ahead to 2019 w/special guest @fireflyrn84 https://t.co/IywF6Pnrki https://t.co/8US0CG3tt6 |
#patientchat content from Twitter.