#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat The Empowered #patientchat is a project of @power4patients and @intakeme |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Patient Chat @patientchat Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history. #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHtpts #patientchat |
 | Heather 🇺🇸 @ZHeatherChamp Hello! I’m Heather living w 2 rare brain tumors and a hereditary cancer syndrome. #patientchat #btsm #pten |
 | Alan Brewington @abrewi3010 Alan here. Once again trying to work and chat at the same time. #patientchat https://t.co/9aHPh2hcBD |
 | ElizabethKelly, Ph.D @Elizabe85727641 Hello everyone, Liz Kelly, ending the year as yet a new beginning upon which to continue building deeper/broader learning, listening & engaging with others. #patientchat |
 | Anne Townsend @aftjae RT @patientchat: You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHtpts #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is A Year in Review: Looking back on 2017 and Ahead to 2018 https://t.co/MnZwIOKfTK |
 | Patient Empowerment Network @power4patients Hi everyone, it's Andrea from PEN. Happy Friday! Is it me or has this week seemed like 20? #patientchat |
 | Mary MACK @MaryOCMack Hello everyone my name is Mary #patientchat |
| Heather 🇺🇸 @ZHeatherChamp @lenstarnes Welcome! #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2...Please include corresponding T# at front of every answer - hard to remember but helpful #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Today's #patientchat topic is A Year in Review: Today's #patientchat topic is A Year in Review: Looking back on 2017 and Ahead to 2018 https://t.co/MnZwIOKfTK |
| Alan Brewington @abrewi3010 @bbhomebody Good morning to you too! #patientchat |
| Heather 🇺🇸 @ZHeatherChamp @patientchat I use A. Easier to differentiate between topics and answers 😉 #patientchat |
 | burtrosen 🟦 @burtrosen hi everyone, Burt's here and so happy to be today! I love this chat! #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| Patient Chat @patientchat T1: What are some things you did in 2017 that made you feel more empowered? What steps have improved your overall quality of life? #patientchat |
 | Richard Zhao @richardzhao This is Richard from Minneapolis. Sorry for running late. #patientchat |
| Heather 🇺🇸 @ZHeatherChamp A1: Shockingly (to me) I had weight loss surgery. Quick decision but decided I wasn’t giving these brain tumors any more ammunition. #patientchat #btsm |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: What are some things you did in 2017 that made you feel more empowered? What steps have improved your overall quality of life? #patientchat |
| Heather 🇺🇸 @ZHeatherChamp RT @patientchat: T1: T1: What are some things you did in 2017 that made you feel more empowered? What steps have improved your overall quality of life? #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T1 Engaging with others, based on knowledge & listening for both provider/patient leads to increased care/treatment planning & healthier community #patientchat |
| Alan Brewington @abrewi3010 A1 I like to believe my writing has continued to improve. I’m willing to be more honest, open, and vulnerable. #patientchat |
| Mary MACK @MaryOCMack T1: I went for a second opinion and now have 2 cardiologists for my son. They are both fine with it. #patientchat |
| Richard Zhao @richardzhao A1: To leverage #volunteers of this group to do #PatientSentiment annotation, rather than outsourcing to other countries w/o experience in US #patientchat |
 | Melissa VanHouten @melissarvh A1 Always makes me feel empowered to work in my support & advocacy groups - helps me & (hopefully) makes a difference 4 others. #patientchat |
| burtrosen 🟦 @burtrosen T1: really started to focus inward, to better understand my issues, and to take my treatments more seriously. Im also exploring all avenues. Just started yoga and its helping! #no #patientchat |
| Patient Empowerment Network @power4patients T1: In 2017, we worked to helped older cancer patients become more tech-savvy and empowered through our Digital Sherpa Program by pairing them with tech-savvy college students https://t.co/9P06e8uy5a #patientchat |
| Alan Brewington @abrewi3010 A1 with the addition of being a #caregiver for dad, my quality of life has changed dramatically. Still adjusting. #patientchat |
 | Lisa Davis Budzinski @lisadbudzinski Sorry to miss today’s #patientchat. Must get ready for an appt ✨ Alas, the life of a #chronicillness pt |
| Patient Chat @patientchat Topic 2 (T2:) coming up..https://t.co/MnZwIOsEva #patientchat |
| Patient Chat @patientchat T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2018? #patientchat |
 | Your GPS Doc, LLC @yourgpsdoc Sorry I'm late. Happy to be here! #patientchat |
 | Rie Lopez, MPH (she/her) @RieOfLetters Hi all! I made it! Will do my best to catch up. #patientchat |
 | Annette McKinnon @anetto A1 Founding member @patientadvisors. Web site up in January-translated to French in summer. Community of practice for Cdn its #patientchat |
| Richard Zhao @richardzhao T2: Needs more #volunteers participate on this #healthcare AI project, so people know what they will get in the future. #patientchat |
| Annette McKinnon @anetto Hi all, sorry to late. Annette here in Toronto #patientchat |
| Patient Chat @patientchat @RieOfLetters Glad you could join! #patientchat |
| Alan Brewington @abrewi3010 A2 I didn’t let go of a conflict which cost me big time. Anger does not led to go physical or mental health. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @patientchat T1: Your GPS Doc was launched in December 2016 and its sole purpose is to help patients and family caregivers navigate the healthcare system through education and empowerment. #patientchat |
| Richard Zhao @richardzhao A2: Also want to form a #volunteers community on my project, so we all know each other online #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T2 Be more tech savoy, organize reference sources better in order to relate statement to research source. That can stop hearing, “how could you possibly know that?” #patientchat |
| burtrosen 🟦 @burtrosen T2: I don't always advocate for #LymeDisease and patients as well as i could be. I'm getting more involved with @S4PM to make sure i can help even more people #patientchat |
| Heather 🇺🇸 @ZHeatherChamp A2: I’m making some changes to my blog. Hoping that’ll bring more traffic and awareness of Cowden Syndrome and Lhermitte-duclos Disease #patientchat #pten #btsm |
| Alan Brewington @abrewi3010 A2 I walked away from my previous blog. Needed something new & fresh. So I’m starting from scratch again. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters A1: I was able to connect with other empowered patients here, which made a huge difference. I finally got the courage to build a new health care team, from the ground up. #patientchat https://t.co/kWHnlhStrh |
| Mary MACK @MaryOCMack T2: I might have emailed too much #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @patientchat T2: 2018 is going to be an awesome year! I look forward to launching empowerment challenges, a planner/organizer, and more speaking engagements/workshops to teach others how to be the boss of their healthcare team. #patientchat |
| Heather 🇺🇸 @ZHeatherChamp @verylightnosuga What’s FSA? #patientchat |
| Annette McKinnon @anetto A2 Delighted to see a patient appointed to @cihr_irsc Standing Committee on Ethics. @cherylKoehn Big step forward for patients #patientchat |
 | Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Jumping into #patientchat for a bit. Please feel free to join the conversation, read along to learn or simply ignore my extra tweeting! |
| Heather 🇺🇸 @ZHeatherChamp @burtrosen @S4PM Sounds exciting! What does that org do? Only Lyme Disease? #patientchat |
| Melissa VanHouten @melissarvh A2 Wish I'd sooner ignored some who didn't have my best interests @ heart. Plan 2 grow our state-level advocacy groups in 2018. #patientchat |
| Alan Brewington @abrewi3010 @verylightnosuga I’ve never tried one of those accounts. Good luck! #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up...https://t.co/MnZwIOKfTK #patientchat |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Develop better advocacy coping mechanisms! (All ideas are welcome!) MT @patientchat: T2:Plans to try something new in 2018? #patientchat |
| Melissa VanHouten @melissarvh RT @RieOfLetters: A1: A1: I was able to connect with other empowered patients here, which made a huge difference. I finally got the courage to build a new health care team, from the ground up. #patientchat https://t.co/kWHnlhStrh |
| Rie Lopez, MPH (she/her) @RieOfLetters A1 (b): One of the biggest changes has been to focus more on my mental health. I make sure to surround myself with great people. Mindfulness and meditation has been really helpful in improving my quality of life! #patientchat |
| Patient Chat @patientchat T3: Which healthcare trends were important to you in 2017? What trends would you like to see gain momentum? #patientchat |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy WELCOME! RT @lenstarnes: #patientchat 1st time on this #, hence curious. Lurking & listening from Berlin Germany |
| Patient Empowerment Network @power4patients T2: PEN is going to be exploring some new programs to empower patients in 2018. Focusing on health literacy to enable shared decision-making. Send us your thoughts and ideas, we love to collaborate! #patientchat |
| Alan Brewington @abrewi3010 A2 I need a real vacation in 2018. Not a working one like I’ve been doing. A real no adulting vacation. #patientchat |
 | Amanda G @LAlupusLady T1 it was empowering to be able to share my story and thoughts at the #LupusPFDD meeting with the @US_FDA thanks to @LADAOrg @LupusResearch and @LupusOrg collaborating for #Lupus patients and better treatments. https://t.co/RNVZf7vPNS |
| Richard Zhao @richardzhao A2: Getting to know more #patientadvocate that bring more people awareness to potential technology will change healthcare #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @burtrosen I am so glad that yoga is helping you Burt! I use plenty of modifications, but I love it. 😁#patientchat |
| Your GPS Doc, LLC @yourgpsdoc @patientchat T3: I am super excited about a trend toward patient-centeredness in action (not just words) and new companies like @savvy_coop that are truly putting the power back in the hands of patients. #patientchat |
| burtrosen 🟦 @burtrosen T3: the focus on patients is gaining a ton of steam, especially with groups like @wegohealth and @savvy_coop emerging, hopefully that trend continues #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @abrewi3010 Me too! #patientchat |
| Patient Empowerment Network @power4patients @abrewi3010 Amen to that. #VacationOrBust...literally #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @power4patients: T2: T2: PEN is going to be exploring some new programs to empower patients in 2018. Focusing on health literacy to enable shared decision-making. Send us your thoughts and ideas, we love to collaborate! #patientchat |
| Amanda G @LAlupusLady T3 for me using #VR as a noninvasive treatment for my chronic pain has helped me in important ways. I'll be sharing at https://t.co/nIhOWbiMyg in March, thanks to @BrennanSpiegel https://t.co/rV8GvJ9l3X |
| Annette McKinnon @anetto A3 Hoping that #patientengagement makes as much of a difference as we hope it will; that we see less tokenistic inclusion #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @burtrosen: T3: T3: the focus on patients is gaining a ton of steam, especially with groups like @wegohealth and @savvy_coop emerging, hopefully that trend continues #patientchat |
| Melissa VanHouten @melissarvh RT @power4patients: T2: T2: PEN is going to be exploring some new programs to empower patients in 2018. Focusing on health literacy to enable shared decision-making. Send us your thoughts and ideas, we love to collaborate! #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T3 Increase following of epidemiological data for the state & Community, passing it on to lawmakers & policy development groups that operate openly, follow legislators, their funders & voting records #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @rheumpatient Thank you for the support! It was scary, but I finally feel like someone is listening and taking me and my care as seriously as I do. #patientchat |
| Alan Brewington @abrewi3010 A3 we need more across disease silo collaboration. Let’s combine with #chronicpain smarts with a #narcolepsy pt smarts and see what we can design. #patientchat |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy Candidly, I'm tired of "trends" We've got to move beyond buzzwords to ACTION that makes real difference. Access to personal health data = MUST. Raising overall levels of health literacy = MUST. Improving collaboration btwn clinician/patient/research = MUST #patientchat #hcldr https://t.co/qgoza3RgfU |
| Melissa VanHouten @melissarvh RT @anetto: A3 Hoping that #patientengagement makes as much of a difference as we hope it will; that we see less tokenistic inclusion #patientchat |
 | R @rhrousu T1: I got better at advocating for myself with specialists, asking if invasive tests were really necessary, takin the lead in making informed decisions about when the cure was going to be worse than the disease. #patientchat |
| Alan Brewington @abrewi3010 A3 we need more chronic patients involved in local politics in 2018. We need our stories out to leaders more than ever. #patientchat |
| Alan Brewington @abrewi3010 RT @lenstarnes: |
| Your GPS Doc, LLC @yourgpsdoc @rhrousu Good for you! #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @lenstarnes Welcome Len!! 🎉🎉🎉 #patientchat |
| Patient Chat @patientchat Topic 4 (T4:) coming up...https://t.co/MnZwIOKfTK #patientchat |
 | Solving Chronic Pain @ChronicPainVR RT @LAlupusLady: T3 for me using #VR as a noninvasive treatment for my chronic pain has helped me in important ways. I'll be sharing at https://t.co/nIhOWbiMyg in March, thanks to @BrennanSpiegel https://t.co/rV8GvJ9l3X |
| Patient Chat @patientchat T4: What do you find most helpful about the #patientchat community? What would you like to see in 2018? |
| Alan Brewington @abrewi3010 .#EveryoneIncluded should be the standard at all conference & medical education opportunities. #patientchat https://t.co/7qIBflP7XQ |
| Melissa VanHouten @melissarvh A3 Inclusion of patients in research design & clinical trial set-up & implementation. Good to see some pharma reaching out 2 us #patientchat |
| Patient Chat @patientchat RT @coffeemommy: Candidly, I'm tired of "trends" We've got to move beyond buzzwords to ACTION that makes real difference. Access to personal health data = MUST. Raising overall levels of health literacy = MUST. Improving collaboration btwn clinician/patient/research = MUST #patientchat #hcldr https://t.co/qgoza3RgfU |
| Alan Brewington @abrewi3010 @GinaMcGalliard Let’s change the world! #patientchat |
| Stacey Tinianov (she/her) MPH, BCPA @coffeemommy A short but sweet visit with #patientchat - THANK YOU! Onto a conference call. (And, in 2017, I've finally acknowledged that my #multitasking is really just me doing two things poorly) I blame Tamoxifen 🙃 Wishing each of you happy, healthy hearts & minds in 2018. |
 | STELLAR Study @StellarStudy @patientchat A3: Advancements in technology are continuous and truly changing the healthcare industry, how we interact with patients and putting the patients needs first! #patientchat |
| Melissa VanHouten @melissarvh A4 Helpful - Diverse perspectives & participants from all segments of healthcare. 2018 - ways to work together outside of chat. #patientchat |
| burtrosen 🟦 @burtrosen T4: this chat is fantastic, it's so filled with inspirational people, honesty, #empathy and caring #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T4 Opportunity to read other’s thinking, personal experiences & how experiences affect ADL’s & importance of variety of support services. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters A3: There were some excellent mental health trends, like mindfulness, which are important in whole-patient care. Some great research coming out regarding #ChronicPain. Would love to see more work towards ending stigma! #patientchat https://t.co/e8Htx9c7Eg |
| Patient Chat @patientchat @coffeemommy Thanks for stopping by! Hope to see you in 2018 :) #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @patientchat T4: As a physician, former caregiver, and patient advocate, I have really learned a lot from this group. The Twitter chats have been a source of information and inspiration. #patientchat |
| Alan Brewington @abrewi3010 A4 #patientchat is a great equalizer. Ideas and conversation is where ideas & collaboration start, not titles. |
| Melissa VanHouten @melissarvh RT @StellarStudy: @patientchat A3: @patientchat A3: Advancements in technology are continuous and truly changing the healthcare industry, how we interact with patients and putting the patients needs first! #patientchat |
| Richard Zhao @richardzhao @abrewi3010 I like the equalizer #patientchat |
| Mary MACK @MaryOCMack T4: most helpful thing is the platform to talk about HC issues. I'd like to see patients have real time access to ICD data in 2018 #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters Yes!! This is definitely a huge trend towards positive patient outcomes! Give us more of this #patientcentered healthcare! #patientchat https://t.co/OGyanbuNg6 |
| STELLAR Study @StellarStudy @patientchat A4: Genuine input and insights from patients dealing with real issues. It's great to see raw, meaningful and honest opinions and feelings. #patientchat |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey <runs in late> HAAAAIIIII! #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming up...https://t.co/MnZwIOKfTK #patientchat |
| Alan Brewington @abrewi3010 @richardzhao If everyone is not considered an expert then conflict with arise. Equalizer is the antidote to conflict. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Catching up: A1 = HAVE YOU MET ME? If I get any more empowered, I'll register on a radiation dosage badge =) #patientchat |
| Patient Chat @patientchat T5: How might we foster collaboration and empower more people in their health? Ideas to get more people involved? #patientchat |
| Alan Brewington @abrewi3010 RT @MightyCasey: Catching up: Catching up: A1 = HAVE YOU MET ME? If I get any more empowered, I'll register on a radiation dosage badge =) #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Catching up: A2 = I'm working on saying "no" to things that don't have a budget. Tired of working for free. Exhausted, really. #patientchat |
 | Enlightening Results 💡 @GraceCordovano Popping in to say hello to #patientchat!! Sorry I can’t join. Duty calls 💪🏻✨. Will catch up later. Have a great chat 🚀 |
 | Katie @katie5280 @patientchat Hi, It's Katie, a 7 yr breast cancer survivor and t2 diabetic joining late! #patientchat |
| Melissa VanHouten @melissarvh T5 Key for me is getting patients to recognize common interests & to understand how working w/other conditions can benefit them #patientchat |
| Annette McKinnon @anetto T5 It is not easy to find the road to becoming an engaged patient. We need to help patients new to the idea get involved #patientchat |
| Mary MACK @MaryOCMack T5: culture of medicine is still relatively the same-- hierarchies, etc. culture needs to change and collaboration will get better #patientchat |
| Richard Zhao @richardzhao Thanks for the mention! bbhomebody: @richardzhao We love the #PatientSentiment annotation project. Always happy to share #PatientPerspective #patientchat |
| Richard Zhao @richardzhao Thanks for the mention! abrewi3010: @richardzhao If everyone is not considered an expert then conflict with arise. Equalizer is the antidote to conflict. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters A4: I love this community!! It is filled with so many amazing and passionate people at different stages of our journey. We all have different areas of expertise and experience, so it's a place for learning as well as support. #patientchat |
| Melissa VanHouten @melissarvh T5 Many in my community seriously ill & cannot "waste" time. They must see benefits of using their "spoons" in these endeavors. #patientchat |
| Katie @katie5280 @patientchat T1: In addition to being appointed as a 2017-2018 Young Advocate for @LivingBeyondBC , I joined the @wegohealth Health Experts #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @patientchat T5: We can all be ambassadors and share with our social media followers. Partner with large healthcare organizations. National conference? #patientchat |
| Annette McKinnon @anetto T5 Getting involved in #meded (medical education) is one way to find your voice as a patient #patientchat |
 | couragesings @couragesings RT @MightyCasey: Catching up: Catching up: A2 = I'm working on saying "no" to things that don't have a budget. Tired of working for free. Exhausted, really. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Catching up: A3 = @S4PM and @rightcarenow are trends always on my radar. Plus, emerging #PatientsIncluded thinking at confs/in journals in US and beyond = #winning, IMO #PatientChat |
| Alan Brewington @abrewi3010 A5 right now entertainment is the new engagement in politics. We need to remember that love, quality content, compassion, & curiosity will always lead to engagement #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T5 Ongoing reinforcement that “everyone knows something,” include patients in medical conferences & research, get to know patient’s assets & then needs, increase health/wellness information not just illness because it pays better.#patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @Elizabe85727641: T5 Ongoing reinforcement that “everyone knows something,” include patients in medical conferences & research, get to know patient’s assets & then needs, increase health/wellness information not just illness because it pays better.#patientchat |
| Alan Brewington @abrewi3010 RT @MightyCasey: Catching up: Catching up: A3 = @S4PM and @rightcarenow are trends always on my radar. Plus, emerging #PatientsIncluded thinking at confs/in journals in US and beyond = #winning, IMO #PatientChat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Catching up: A4 = more direct cross-pollination/collaboration w/ #rightcare #s4pm #patientsincluded #openscience communities. #patientchat |
| Katie @katie5280 @patientchat T2: I need to plan out my social media posts more and plan on doing that in 2018. #patientchat |
| Annette McKinnon @anetto T5 Learned value of the patient voice at #MedX through @IDEO design challenge. Good solutions need patients at the heart. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @Elizabe85727641 I love that- "everyone knows something". #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters Absolutely agree, 100%!!! If I could like this more than once, I would! Support and empathy mean so much. #patientchat https://t.co/4FbaZSinyT |
 | JeanBurns @ridemytrike If only this were true. I see patient involvement as token at best. https://t.co/eMO8QmaZM1 |
| Patient Chat @patientchat Topic 6 (T6:) coming up...https://t.co/MnZwIOKfTK #patientchat |
| Katie @katie5280 @patientchat T3: I am seeing more interaction via Twitter chats and FB live events between healthcare orgs & providers & I think that it's a great way for all to learn from another. #patientchat |
| Patient Chat @patientchat RT @MightyCasey: Catching up: Catching up: A4 = more direct cross-pollination/collaboration w/ #rightcare #s4pm #patientsincluded #openscience communities. #patientchat |
| STELLAR Study @StellarStudy @patientchat T5: No patient is the same! We all battle our situations differently, and emphasizing that is important for us to feel comfortable engaging and talking about our patient experiences. #Patientchat |
 | Open Science @_open_science_ RT @MightyCasey: Catching up: Catching up: A4 = more direct cross-pollination/collaboration w/ #rightcare #s4pm #patientsincluded #openscience communities. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @abrewi3010: A5 right now entertainment is the new engagement in politics. We need to remember that love, quality content, compassion, & curiosity will always lead to engagement #patientchat |
| Alan Brewington @abrewi3010 RT @RieOfLetters: Absolutely agree, 100%!!! If I could like this more than once, I would! Support and empathy mean so much. #patientchat https://t.co/4FbaZSinyT |
| Annette McKinnon @anetto T1 This year I was part of #ArthritisHack, my first hackathon ever. Huge enthusiasm among the developer teams @arthritissoc #patientchat |
| Patient Chat @patientchat T6: We want to hear from you! What topics are you passionate about and would like to hear more of in 2018? #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A5: work ceaselessly to build #healthliteracy and #science literacy in our communities. "No junk science" = my mantra. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @katie5280 @patientchat Welcome Katie! 🎉🎉🎉#patientchat |
| Patient Chat @patientchat @GinaMcGalliard @power4patients Hi Gina! So happy you could join us today :) #patientchat |
| Melissa VanHouten @melissarvh A6 Not sure there is anything healthcare-related I am NOT passionate about. :) Looks to me like you all are doing a good job. #patientchat |
| Katie @katie5280 @patientchat T4: It's always great to learn things and connect with others I might not connect with otherwise. I'd like to see more evening chats in 2018. #patientchat |
| Katie @katie5280 @patientchat T6: Breast Cancer & T2 diabetes! #patientchat |
| Annette McKinnon @anetto T6 Passionate about #patientsincluded. It does not take specialized knowledge to learn and network at conferences #patientchat |
| Alan Brewington @abrewi3010 T6 health literacy will always need attention, especially as the everyone included movement continues to grow. #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @patientchat T6: health literacy, price transparency, patient-centered care, future of healthcare, containing health insurance costs. #patientchat |
 | Bob Tufts @TuftsB #patientchat - Late to the game, en route to DC and FDA patient meeting Monday. More about clinical trials and access |
| Rie Lopez, MPH (she/her) @RieOfLetters @MightyCasey You say this like it is a bad thing 😉😂 #patientchat |
| Melissa VanHouten @melissarvh RT @anetto: T6 Passionate about #patientsincluded. It does not take specialized knowledge to learn and network at conferences #patientchat |
| Mary MACK @MaryOCMack T6: Passionate about immediate access to cardiac device data. Patients have zero access. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @RieOfLetters Well, I'm all about truth in labeling =) #PatientChat https://t.co/DYspWiAIOX |
| JeanBurns @ridemytrike #patientchat T3 protections including health care and long term care for patients injured in medical research. @patientchat @MIghyCasey |
| Annette McKinnon @anetto T6 Patients as partners on research teams is becoming more common. Patients help determine the question, broaden the outlook... #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T6 Topics = how to read medical research, use as a response to questions/build support when speaking to “care” provider, more emphasis on health definitions than only on illness, measure cost benefits of illness #patientchat |
 | PVI @PatientVoices RT @yourgpsdoc: @patientchat T6: @patientchat T6: health literacy, price transparency, patient-centered care, future of healthcare, containing health insurance costs. #patientchat |
| Alan Brewington @abrewi3010 A6 how might we get more patients involved locally? It’s more dynamic to be apart of a national campaign but local legislators, mayors, governors need to hear our stories now. #patientchat |
| Annette McKinnon @anetto RT @Elizabe85727641: T6 Topics = how to read medical research, use as a response to questions/build support when speaking to “care” provider, more emphasis on health definitions than only on illness, measure cost benefits of illness #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters A5: Collaboration is key! Pool resources and knowledge. Talk to others about projects of mutual benefit. See if there are organizations you can work with locally. #patientchat |
| STELLAR Study @StellarStudy @patientchat T6: Would love to see more on meditation, yoga and other therapeutic practices and the effects it has on different indications #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @Elizabe85727641: T6 Topics = how to read medical research, use as a response to questions/build support when speaking to “care” provider, more emphasis on health definitions than only on illness, measure cost benefits of illness #patientchat |
 | John Lynn @techguy I talked about this with @surescripts and how ePrescribing can help this issue: https://t.co/GqQgLZ52jk #PatientChat #opioidcrisis https://t.co/YOsnd1qEuq |
| Alan Brewington @abrewi3010 X 1000000000000007 #patientchat #opioidawareness #chronicpain https://t.co/mi7S9kJZWX |
| Annette McKinnon @anetto T6 Would love to see a new approach to treatment - we are not just one disease/problem at a time. Treat the whole person. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @abrewi3010: T6 health literacy will always need attention, especially as the everyone included movement continues to grow. #patientchat |
| Katie @katie5280 @yourgpsdoc @patientchat Agreed! Lots of orgs to partner with that could be very beneficial. A national conference is a great idea! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A6: here are the battle cries I issued this year (total of 5). First, my #MeToo (before big wave), 'cause #socialdeterminants! https://t.co/9CK4ZNAb8d #PatientChat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| John Lynn @techguy RT @patientchat: T6: T6: We want to hear from you! What topics are you passionate about and would like to hear more of in 2018? #patientchat |
| Melissa VanHouten @melissarvh A6 Personally love #HealthTech & processes/systems. Would like discussions abt how they can benefit patients/increase impact #patientchat |
| Alan Brewington @abrewi3010 A6 using #patientchat platform to bring awareness to conferences/business/Pharma/educational institutions that use patients as assets. #patientchat |
| Annette McKinnon @anetto T6 how can we encourage health literacy. Should be taught in grade school. Kids are smart and can teach moms, dads, grandmas #patientchat |
 | Inspire @InspireIsHealth RT @patientchat: T6: T6: We want to hear from you! What topics are you passionate about and would like to hear more of in 2018? #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @patientchat CT: If we want different results we must do things differently. The healthcare system MUST include patients and their care partners at the very beginning, the middle, and through the end of care. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A6: Link #2, this one on #gmdd + #opendata https://t.co/wuBhDF9066 #PatientChat |
| Patient Chat @patientchat RT @yourgpsdoc: @patientchat CT: @patientchat CT: If we want different results we must do things differently. The healthcare system MUST include patients and their care partners at the very beginning, the middle, and through the end of care. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters @bbhomebody This is definitely a pressing issue. I see far too much equating #opiod use and dependence with addiction. They are not the same! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A6: Link number 3, #opendata thought bomb related directly to health data: https://t.co/djb1RGtICN #PatientChat |
| Melissa VanHouten @melissarvh .@IFFGD @gimotility @RightCareNow @wegohealth @ShaneSchulzSpks @powerofpain @ZubiaLive https://t.co/IdLJChWlaZ |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A6: Link number 5, on a #WomensRights issue in #healthcare that is evergreen, and hot-button: https://t.co/RTWpRD6J6J #PatientChat |
 | Clay Anderson @AnglerMD RT @techguy: I talked about this with @surescripts and how ePrescribing can help this issue: I talked about this with @surescripts and how ePrescribing can help this issue: https://t.co/GqQgLZ52jk #PatientChat #opioidcrisis https://t.co/YOsnd1qEuq |
 | nobism @nobismhealth RT @lenstarnes: |
| Your GPS Doc, LLC @yourgpsdoc RT @anetto: T6 how can we encourage health literacy. Should be taught in grade school. Kids are smart and can teach moms, dads, grandmas #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 CT Best wishes all for another prosperous year, belief in self & confidence to speak up & out, courage to engage with others without fear of judgment. #patientchat |
| Alan Brewington @abrewi3010 Ct Remember that it is ok to be ok. Just like we have earned the right to bad days, we have a right to good days too! #patientchat |
| Mary MACK @MaryOCMack RT @MightyCasey: A6: Link number 3, #opendata thought bomb related directly to health data: A6: Link number 3, #opendata thought bomb related directly to health data: https://t.co/djb1RGtICN #PatientChat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime |
| John Lynn @techguy RT @melissarvh: A6 Personally love #HealthTech & processes/systems. Would like discussions abt how they can benefit patients/increase impact #patientchat |
| Annette McKinnon @anetto @GinaMcGalliard @patientchat Here's a link to mine https://t.co/rfjUpcT59J though I confess to being a tired blogger. #patientchat |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey A6: and last but not least, link number 6, on the "no one gets out of here alive" thing that doesn't get enuf air: https://t.co/LRA2viOR1O #eol #PatientChat |
| Annette McKinnon @anetto RT @Elizabe85727641: CT Best wishes all for another prosperous year, belief in self & confidence to speak up & out, courage to engage with others without fear of judgment. #patientchat |
| Patient Chat @patientchat Thank you for a great year of #patientchat! There will be no chat on 12/29 due to the holidays. We hope to see you all in 2018 on January 12th! https://t.co/af64O14k9d |
| Melissa VanHouten @melissarvh RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour. #patientchat |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
 | Liz Kennerley (she/her) #COVIDIsntOver #PBMTReform @LifeAccrdingLiz T1: I also spoke at two conferences, @BIOConvention about the #PatientExperience in a variety of settings as well as a smaller event about #PatientRegistries. In June, I received the Energy Award from the @umdf. #patientchat. |
| Liz Kennerley (she/her) #COVIDIsntOver #PBMTReform @LifeAccrdingLiz T1: Overwhelmed just thinking about my advocacy in 2017 on Capitol Hill and beyond. I advocated for #ACA (pre-existing conditions) twice, #OrphanDrug Tax Credit, #OPENACT, @Dysautonomia (#POTS), #Mito (@umdf). #patientchat. @RareAdvocates @RareDiseases |
| Richard Zhao @richardzhao Thanks for #patientchat and all the #healthcare #advocate ! 🙏🙏 |
| Melissa VanHouten @melissarvh RT @patientchat: Thank you for a great year of #patientchat! There will be no chat on 12/29 due to the holidays. We hope to see you all in 2018 on January 12th! https://t.co/af64O14k9d |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Have a terrific 2018, everybody!! Let's drive some CHANGE up in this joynt! #rightcare #s4pm #openscience #opendata #sdoh #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters CT We all bring something to the table. Strong communities help foster ideas and connections that WILL bring change to the patient experience. #hope #PatientsHavePower #patientchat |
| Your GPS Doc, LLC @yourgpsdoc @MightyCasey This is absolutely brilliant! #patientchat |
| Melissa VanHouten @melissarvh #HappyHolidays to all! Many thanks to @PatientChat for hosting one of the best chats on Twitter! #patientchat |
| Your GPS Doc, LLC @yourgpsdoc RT @MightyCasey: A6: and last but not least, link number 6, on the "no one gets out of here alive" thing that doesn't get enuf air: A6: and last but not least, link number 6, on the "no one gets out of here alive" thing that doesn't get enuf air: https://t.co/LRA2viOR1O #eol #PatientChat |
| Melissa VanHouten @melissarvh RT @RieOfLetters: CT We all bring something to the table. Strong communities help foster ideas and connections that WILL bring change to the patient experience. #hope #PatientsHavePower #patientchat |
| Annette McKinnon @anetto CT Another passion is finding sustainable funding for patient groups. It's not done well anywhere #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @GinaMcGalliard True. Trying not to wind up living in my car while waiting for them to LISTEN and HEAR. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters RT @Elizabe85727641: CT Best wishes all for another prosperous year, belief in self & confidence to speak up & out, courage to engage with others without fear of judgment. #patientchat |
| Annette McKinnon @anetto RT @lenstarnes: |
| Open Science @_open_science_ RT @MightyCasey: Have a terrific 2018, everybody!! Let's drive some CHANGE up in this joynt! #rightcare #s4pm #openscience #opendata #sdoh #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @yourgpsdoc #patientchat https://t.co/7cPbHaSDYQ |
| Katie @katie5280 @patientchat Happy New Year #patientchat community! |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @bbhomebody @RieOfLetters Thass me, the Boudica of #healthcare. Also call myself the Facilitator of Fesitvus in Healthcare: "I GOT PROBLEMS WITH YOU PEOPLE!" Airing of grievances, anyone?!? #PatientChat |
| Liz Kennerley (she/her) #COVIDIsntOver #PBMTReform @LifeAccrdingLiz T3: My gosh! I would LOVE to see more mainstream publications discussing how our #mitochondrial are central to a PLETHORA of disease processes. Further explaining that treatments for these conditions treat Parkinson's, MS, Cancers, Heart Attack, Obesity, etc. #patientchat |
| Brian Mulder @insidestat RT @lenstarnes: | |
| Rie Lopez, MPH (she/her) @RieOfLetters My sister took me out to lunch after driving me to see my son perform in a Christmas recital. I followed this with a cookie and a rousing #patientchat. Mood has improved drastically! #winning #chronicillness |
#patientchat content from Twitter.