#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients.
Patient Chat @patientchat
The Empowered #patientchat is a project of @power4patients and @intakeme
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history. #patientchat
Patient Chat @patientchat
You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHtpts #patientchat
Becky Brandt RN @bbhomebody
Good Morning from chilly Washington state. I'm Becky-RN, CPS patient, advocate & co-founder of @Cpnervecenter #patientchat https://t.co/r6rwdCD9yT
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
Hello! I’m Heather living w 2 rare brain tumors and a hereditary cancer syndrome. #patientchat #btsm #pten
Alan Brewington @abrewi3010
Alan here. Once again trying to work and chat at the same time. #patientchat https://t.co/9aHPh2hcBD
ElizabethKelly, Ph.D @Elizabe85727641
Hello everyone, Liz Kelly, ending the year as yet a new beginning upon which to continue building deeper/broader learning, listening & engaging with others. #patientchat
Dr Anne Townsend @aftjae
RT @patientchat: You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHtpts #patientchat
Becky Brandt RN @bbhomebody
@Elizabe85727641 Hi Liz🖑 #patientchat
Len Starnes @lenstarnes
#patientchat 1st time on this #, hence curious. Lurking & listening from Berlin Germany
Becky Brandt RN @bbhomebody
@abrewi3010 Mornin Alan🖑 #patientchat
Patient Chat @patientchat
Today's #patientchat topic is A Year in Review: Looking back on 2017 and Ahead to 2018 https://t.co/MnZwIOKfTK
Patient Empowerment @power4patients
Hi everyone, it's Andrea from PEN. Happy Friday! Is it me or has this week seemed like 20? #patientchat
Mary MACK @MaryOCMack
Hello everyone my name is Mary #patientchat
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
@lenstarnes Welcome! #patientchat
Patient Chat @patientchat
I will introduce new Topics with T1, T2...Please include corresponding T# at front of every answer - hard to remember but helpful #patientchat
Patient Empowerment @power4patients
RT @patientchat: Today's #patientchat topic is A Year in Review: Looking back on 2017 and Ahead to 2018 https://t.co/MnZwIOKfTK
Alan Brewington @abrewi3010
@bbhomebody Good morning to you too! #patientchat
Rheumatoid Patient @rheumpatient
Hi. I'm a patient and former HCP from the UK with rheumatoid arthritis. #patientchat
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
@patientchat I use A. Easier to differentiate between topics and answers 😉 #patientchat
burtrosen @burtrosen
hi everyone, Burt's here and so happy to be today! I love this chat! #patientchat
Patient Chat @patientchat
Time to start our topics. Here comes T1: #patientchat
Patient Chat @patientchat
T1: What are some things you did in 2017 that made you feel more empowered? What steps have improved your overall quality of life? #patientchat
Becky Brandt RN @bbhomebody
@burtrosen Mornin Burt🖑😀 #patientchat
Richard Zhao @richardzhao
This is Richard from Minneapolis. Sorry for running late. #patientchat
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
A1: Shockingly (to me) I had weight loss surgery. Quick decision but decided I wasn’t giving these brain tumors any more ammunition. #patientchat #btsm
Patient Empowerment @power4patients
RT @patientchat: T1: What are some things you did in 2017 that made you feel more empowered? What steps have improved your overall quality…
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
RT @patientchat: T1: What are some things you did in 2017 that made you feel more empowered? What steps have improved your overall quality…
ElizabethKelly, Ph.D @Elizabe85727641
T1 Engaging with others, based on knowledge & listening for both provider/patient leads to increased care/treatment planning & healthier community #patientchat
Alan Brewington @abrewi3010
A1 I like to believe my writing has continued to improve. I’m willing to be more honest, open, and vulnerable. #patientchat
Mary MACK @MaryOCMack
T1: I went for a second opinion and now have 2 cardiologists for my son. They are both fine with it. #patientchat
Richard Zhao @richardzhao
A1: To leverage #volunteers of this group to do #PatientSentiment annotation, rather than outsourcing to other countries w/o experience in US #patientchat
Melissa VanHouten @melissarvh
A1 Always makes me feel empowered to work in my support & advocacy groups - helps me & (hopefully) makes a difference 4 others. #patientchat
burtrosen @burtrosen
T1: really started to focus inward, to better understand my issues, and to take my treatments more seriously. Im also exploring all avenues. Just started yoga and its helping! #no #patientchat
Patient Empowerment @power4patients
T1: In 2017, we worked to helped older cancer patients become more tech-savvy and empowered through our Digital Sherpa Program by pairing them with tech-savvy college students https://t.co/9P06e8uy5a #patientchat
Len Starnes @lenstarnes
#patientchat T1 Asking my doc personal questions abt issues we have common interest in > running
Rheumatoid Patient @rheumpatient
Earlier this year I spoke at a major #rheumatology conference about how #fatigue impacts patients with rheumatic diseases. Felt good to raise awareness of the issue amongst researchers and HCPs. https://t.co/DF400B50MO #patientchat
Becky Brandt RN @bbhomebody
T1 My awesome partner & I started @Cpnervecenter (@lisadbudzinski ) And we bumped up our #chronicpain advocating to an 11. 😀(spinal tap reference). For a couple chronic pain patients, I'm darn proud of our accomplishments. #patientchat
Alan Brewington @abrewi3010
A1 with the addition of being a #caregiver for dad, my quality of life has changed dramatically. Still adjusting. #patientchat
Lisa Davis Budzinski @lisadbudzinski
Sorry to miss today’s #patientchat. Must get ready for an appt ✨ Alas, the life of a #chronicillness pt
Patient Chat @patientchat
Topic 2 (T2:) coming up..https://t.co/MnZwIOsEva #patientchat
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@patientchat Earlier this year I started my own health blog, https://t.co/o3cbkqP75O!! 👩🏼‍💻 As someone who suffers from a complex case of chronic fatigue/sleep disorder, I wanted to share my journey with others as well as share the vast info I’ve gained. #patientchat
Becky Brandt RN @bbhomebody
@burtrosen Yoga is Amazing. Feels great in the moment and sticks with you after you're done. Namaste . #patientchat
Rheumatoid Patient @rheumpatient
@burtrosen Yoga's good for both body and mind! #patientchat
Patient Chat @patientchat
T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2018? #patientchat
Alan Brewington @abrewi3010
RT @bbhomebody: T1 My awesome partner & I started @Cpnervecenter (@lisadbudzinski ) And we bumped up our #chronicpain advocating to an 11.…
Your GPS Doc, LLC @yourgpsdoc
Sorry I'm late. Happy to be here! #patientchat
Len Starnes @lenstarnes
Brilliant idea #patientchat https://t.co/t1T29QNMIh
Rie Lopez, MPH @RieOfLetters
Hi all! I made it! Will do my best to catch up. #patientchat
Annette McKinnon @anetto
A1 Founding member @patientadvisors. Web site up in January-translated to French in summer. Community of practice for Cdn its #patientchat
Richard Zhao @richardzhao
T2: Needs more #volunteers participate on this #healthcare AI project, so people know what they will get in the future. #patientchat
Becky Brandt RN @bbhomebody
@richardzhao We love the #PatientSentiment annotation project. Always happy to share #PatientPerspective #patientchat
Annette McKinnon @anetto
Hi all, sorry to late. Annette here in Toronto #patientchat
Richard Zhao @richardzhao
RT @bbhomebody: @richardzhao We love the #PatientSentiment annotation project. Always happy to share #PatientPerspective #patientchat
Patient Chat @patientchat
@RieOfLetters Glad you could join! #patientchat
Alan Brewington @abrewi3010
A2 I didn’t let go of a conflict which cost me big time. Anger does not led to go physical or mental health. #patientchat
Becky Brandt RN @bbhomebody
@RieOfLetters Mornin friend🖑 #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T1: Your GPS Doc was launched in December 2016 and its sole purpose is to help patients and family caregivers navigate the healthcare system through education and empowerment. #patientchat
Richard Zhao @richardzhao
A2: Also want to form a #volunteers community on my project, so we all know each other online #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T2 Be more tech savoy, organize reference sources better in order to relate statement to research source. That can stop hearing, “how could you possibly know that?” #patientchat
burtrosen @burtrosen
T2: I don't always advocate for #LymeDisease and patients as well as i could be. I'm getting more involved with @S4PM to make sure i can help even more people #patientchat
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
A2: I’m making some changes to my blog. Hoping that’ll bring more traffic and awareness of Cowden Syndrome and Lhermitte-duclos Disease #patientchat #pten #btsm
Alan Brewington @abrewi3010
A2 I walked away from my previous blog. Needed something new & fresh. So I’m starting from scratch again. #patientchat
Rie Lopez, MPH @RieOfLetters
A1: I was able to connect with other empowered patients here, which made a huge difference. I finally got the courage to build a new health care team, from the ground up. #patientchat https://t.co/kWHnlhStrh
Mary MACK @MaryOCMack
T2: I might have emailed too much #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T2: 2018 is going to be an awesome year! I look forward to launching empowerment challenges, a planner/organizer, and more speaking engagements/workshops to teach others how to be the boss of their healthcare team. #patientchat
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
@verylightnosuga What’s FSA? #patientchat
Annette McKinnon @anetto
A2 Delighted to see a patient appointed to @cihr_irsc Standing Committee on Ethics. @cherylKoehn Big step forward for patients #patientchat
Rheumatoid Patient @rheumpatient
A2: I wish I'd done more travel. Been playing it safe since falling ill but want to try and test out my travel boundaries next year e.g. how long can I be on a plane without my joints getting too stiff? #patientchat
Stacey Tinianov @coffeemommy
Jumping into #patientchat for a bit. Please feel free to join the conversation, read along to learn or simply ignore my extra tweeting!
Becky Brandt RN @bbhomebody
T2 I wish I had a better plan to manage my intractable pain downtime. Being an advocate takes loads of effort. And Being a professional patient takes even more! Catch 22 #patientchat
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
@burtrosen @S4PM Sounds exciting! What does that org do? Only Lyme Disease? #patientchat
Melissa VanHouten @melissarvh
A2 Wish I'd sooner ignored some who didn't have my best interests @ heart. Plan 2 grow our state-level advocacy groups in 2018. #patientchat
Alan Brewington @abrewi3010
@verylightnosuga I’ve never tried one of those accounts. Good luck! #patientchat
Patient Chat @patientchat
Topic 3 (T3:) coming up...https://t.co/MnZwIOKfTK #patientchat
Stacey Tinianov @coffeemommy
Develop better advocacy coping mechanisms! (All ideas are welcome!) MT @patientchat: T2:Plans to try something new in 2018? #patientchat
Melissa VanHouten @melissarvh
RT @RieOfLetters: A1: I was able to connect with other empowered patients here, which made a huge difference. I finally got the courage to…
Rie Lopez, MPH @RieOfLetters
A1 (b): One of the biggest changes has been to focus more on my mental health. I make sure to surround myself with great people. Mindfulness and meditation has been really helpful in improving my quality of life! #patientchat
Patient Chat @patientchat
T3: Which healthcare trends were important to you in 2017? What trends would you like to see gain momentum? #patientchat
Stacey Tinianov @coffeemommy
WELCOME! RT @lenstarnes: #patientchat 1st time on this #, hence curious. Lurking & listening from Berlin Germany
Patient Empowerment @power4patients
T2: PEN is going to be exploring some new programs to empower patients in 2018. Focusing on health literacy to enable shared decision-making. Send us your thoughts and ideas, we love to collaborate! #patientchat
Rheumatoid Patient @rheumpatient
@RieOfLetters That's brave - starting over with a new healthcare team. Hope it's working better for you. #patientchat
Alan Brewington @abrewi3010
A2 I need a real vacation in 2018. Not a working one like I’ve been doing. A real no adulting vacation. #patientchat
Amanda @LAlupusLady
T1 it was empowering to be able to share my story and thoughts at the #LupusPFDD meeting with the @US_FDA thanks to @LADAOrg @LupusResearch and @LupusOrg collaborating for #Lupus patients and better treatments. https://t.co/RNVZf7vPNS
Richard Zhao @richardzhao
A2: Getting to know more #patientadvocate that bring more people awareness to potential technology will change healthcare #patientchat
Rie Lopez, MPH @RieOfLetters
@burtrosen I am so glad that yoga is helping you Burt! I use plenty of modifications, but I love it. 😁#patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T3: I am super excited about a trend toward patient-centeredness in action (not just words) and new companies like @savvy_coop that are truly putting the power back in the hands of patients. #patientchat
Len Starnes @lenstarnes
Much appreciated ;) https://t.co/DI1W7OI19a
Rheumatoid Patient @rheumpatient
@bbhomebody Agree with you there. #patientchat
burtrosen @burtrosen
T3: the focus on patients is gaining a ton of steam, especially with groups like @wegohealth and @savvy_coop emerging, hopefully that trend continues #patientchat
Your GPS Doc, LLC @yourgpsdoc
@abrewi3010 Me too! #patientchat
Patient Empowerment @power4patients
@abrewi3010 Amen to that. #VacationOrBust...literally #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @power4patients: T2: PEN is going to be exploring some new programs to empower patients in 2018. Focusing on health literacy to enable s…
Amanda @LAlupusLady
T3 for me using #VR as a noninvasive treatment for my chronic pain has helped me in important ways. I'll be sharing at https://t.co/nIhOWbiMyg in March, thanks to @BrennanSpiegel https://t.co/rV8GvJ9l3X
Annette McKinnon @anetto
A3 Hoping that #patientengagement makes as much of a difference as we hope it will; that we see less tokenistic inclusion #patientchat
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@patientchat T2 I have learned to listen to my body’s needs. I took 4 trips in 5 months and caused a major symptom flare. I’m calling the rest of 2017 my season of radical self care. (@abrewi3010 you’re probably sick of me talking about this but these are all new friends here) #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @burtrosen: T3: the focus on patients is gaining a ton of steam, especially with groups like @wegohealth and @savvy_coop emerging, hopef…
Becky Brandt RN @bbhomebody
T3 #patientcentric healthcare. Finally, patients are becoming part of the solution. Hopefully #PatientPerspective is the new norm in 2018 #patientchat https://t.co/SBzzlQZtPg
Melissa VanHouten @melissarvh
RT @power4patients: T2: PEN is going to be exploring some new programs to empower patients in 2018. Focusing on health literacy to enable s…
ElizabethKelly, Ph.D @Elizabe85727641
T3 Increase following of epidemiological data for the state & Community, passing it on to lawmakers & policy development groups that operate openly, follow legislators, their funders & voting records #patientchat
Rie Lopez, MPH @RieOfLetters
@rheumpatient Thank you for the support! It was scary, but I finally feel like someone is listening and taking me and my care as seriously as I do. #patientchat
Alan Brewington @abrewi3010
A3 we need more across disease silo collaboration. Let’s combine with #chronicpain smarts with a #narcolepsy pt smarts and see what we can design. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @bbhomebody: T3 #patientcentric healthcare. Finally, patients are becoming part of the solution. Hopefully #PatientPerspective is the ne…
Melissa VanHouten @melissarvh
RT @anetto: A3 Hoping that #patientengagement makes as much of a difference as we hope it will; that we see less tokenistic inclusion #pati
Stacey Tinianov @coffeemommy
Candidly, I'm tired of "trends" We've got to move beyond buzzwords to ACTION that makes real difference. Access to personal health data = MUST. Raising overall levels of health literacy = MUST. Improving collaboration btwn clinician/patient/research = MUST #patientchat #hcldr https://t.co/qgoza3RgfU
Robin R @rhrousu
T1: I got better at advocating for myself with specialists, asking if invasive tests were really necessary, takin the lead in making informed decisions about when the cure was going to be worse than the disease. #patientchat
Len Starnes @lenstarnes
#patientchat T3 Increase in number of medical societies which understand the need for and value of #patientsincluded conferences
Becky Brandt RN @bbhomebody
@coffeemommy @patientchat My answer was almost identical to yours. Let me know if you find any good coping ideas😀 #patientchat
Rheumatoid Patient @rheumpatient
A3: I'd like to see more use of tech to remotely monitor patients. Easier for docs to then get a complete picture of what goes on between visits. #patientchat
Alan Brewington @abrewi3010
A3 we need more chronic patients involved in local politics in 2018. We need our stories out to leaders more than ever. #patientchat
Alan Brewington @abrewi3010
RT @lenstarnes: #patientchat T3 Increase in number of medical societies which understand the need for and value of #patientsincluded confer…
Your GPS Doc, LLC @yourgpsdoc
@rhrousu Good for you! #patientchat
Rie Lopez, MPH @RieOfLetters
@lenstarnes Welcome Len!! 🎉🎉🎉 #patientchat
Rheumatoid Patient @rheumpatient
RT @anetto: A3 Hoping that #patientengagement makes as much of a difference as we hope it will; that we see less tokenistic inclusion #pati
Patient Chat @patientchat
Topic 4 (T4:) coming up...https://t.co/MnZwIOKfTK #patientchat
Solving Chronic Pain @chronicpainvr
RT @LAlupusLady: T3 for me using #VR as a noninvasive treatment for my chronic pain has helped me in important ways. I'll be sharing at ht…
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@abrewi3010 I’d be up for that!! #patientchat
Patient Chat @patientchat
T4: What do you find most helpful about the #patientchat community? What would you like to see in 2018?
Alan Brewington @abrewi3010
.#EveryoneIncluded should be the standard at all conference & medical education opportunities. #patientchat https://t.co/7qIBflP7XQ
Melissa VanHouten @melissarvh
A3 Inclusion of patients in research design & clinical trial set-up & implementation. Good to see some pharma reaching out 2 us #patientchat
Becky Brandt RN @bbhomebody
@abrewi3010 Yes! From local, to state, to the top! #patientchat
Becky Brandt RN @bbhomebody
RT @rheumpatient: A3: I'd like to see more use of tech to remotely monitor patients. Easier for docs to then get a complete picture of what…
Len Starnes @lenstarnes
Thank you. #patientchat https://t.co/PtXdzwpl97
Patient Chat @patientchat
RT @coffeemommy: Candidly, I'm tired of "trends" We've got to move beyond buzzwords to ACTION that makes real difference. Access to persona…
Alan Brewington @abrewi3010
@GinaMcGalliard Let’s change the world! #patientchat
Rheumatoid Patient @rheumpatient
@RieOfLetters It's so important to feel like your healthcare team is on your side. Bad enough battling illness without having to battle with HCPs too! #patientchat
Stacey Tinianov @coffeemommy
A short but sweet visit with #patientchat - THANK YOU! Onto a conference call. (And, in 2017, I've finally acknowledged that my #multitasking is really just me doing two things poorly) I blame Tamoxifen 🙃 Wishing each of you happy, healthy hearts & minds in 2018.
Len Starnes @lenstarnes
#patientchat #HCSMeu https://t.co/4zgTGTvzU5
STELLAR Study @stellarstudy
@patientchat A3: Advancements in technology are continuous and truly changing the healthcare industry, how we interact with patients and putting the patients needs first! #patientchat
Alan Brewington @abrewi3010
RT @bbhomebody: @abrewi3010 Yes! From local, to state, to the top! #patientchat
Richard Zhao @richardzhao
RT @bbhomebody: T3 #patientcentric healthcare. Finally, patients are becoming part of the solution. Hopefully #PatientPerspective is the ne…
Melissa VanHouten @melissarvh
A4 Helpful - Diverse perspectives & participants from all segments of healthcare. 2018 - ways to work together outside of chat. #patientchat
burtrosen @burtrosen
T4: this chat is fantastic, it's so filled with inspirational people, honesty, #empathy and caring #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T4 Opportunity to read other’s thinking, personal experiences & how experiences affect ADL’s & importance of variety of support services. #patientchat
Rie Lopez, MPH @RieOfLetters
A3: There were some excellent mental health trends, like mindfulness, which are important in whole-patient care. Some great research coming out regarding #ChronicPain. Would love to see more work towards ending stigma! #patientchat https://t.co/e8Htx9c7Eg
Rheumatoid Patient @rheumpatient
@bbhomebody Sadly, I think we've still got years to go before it's the 'new norm'. Feel the landscape is positively changing though. #patientchat
Becky Brandt RN @bbhomebody
@verylightnosuga Exactly! It's a medical condition....plain and simple. Treat it appropriately with no stigma attached! #patientchat
Patient Chat @patientchat
@coffeemommy Thanks for stopping by! Hope to see you in 2018 :) #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T4: As a physician, former caregiver, and patient advocate, I have really learned a lot from this group. The Twitter chats have been a source of information and inspiration. #patientchat
Alan Brewington @abrewi3010
A4 #patientchat is a great equalizer. Ideas and conversation is where ideas & collaboration start, not titles.
Melissa VanHouten @melissarvh
RT @StellarStudy: @patientchat A3: Advancements in technology are continuous and truly changing the healthcare industry, how we interact wi…
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@patientchat A3 The Doctor/patient relationship continues to transition from authoritarian to collaborative. However, there’s still resistance, and we patients need to fight the perception that this equals a lowering of scientific standards. (Hence the phrase “Dr. Google”) #patientchat
Richard Zhao @richardzhao
@abrewi3010 I like the equalizer #patientchat
Mary MACK @MaryOCMack
T4: most helpful thing is the platform to talk about HC issues. I'd like to see patients have real time access to ICD data in 2018 #patientchat
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@abrewi3010 Yes!!!! #patientchat
Rie Lopez, MPH @RieOfLetters
Yes!! This is definitely a huge trend towards positive patient outcomes! Give us more of this #patientcentered healthcare! #patientchat https://t.co/OGyanbuNg6
Alan Brewington @abrewi3010
RT @GinaMcGalliard: @patientchat A3 The Doctor/patient relationship continues to transition from authoritarian to collaborative. However, t…
Your GPS Doc, LLC @yourgpsdoc
RT @GinaMcGalliard: @patientchat A3 The Doctor/patient relationship continues to transition from authoritarian to collaborative. However, t…
STELLAR Study @stellarstudy
@patientchat A4: Genuine input and insights from patients dealing with real issues. It's great to see raw, meaningful and honest opinions and feelings. #patientchat
Len Starnes @lenstarnes
@abrewi3010 Standard yes. But still many med soc exec comms stuck in 19C paternalistic mentality #patientchat https://t.co/6HnlSv0MFc
Mighty Casey Quinlan @MightyCasey
<runs in late> HAAAAIIIII! #patientchat
Rheumatoid Patient @rheumpatient
A4: It actually feels like a 'community'. That's what I like. Even though we have different illnesses and are across different continents, there's a shared understanding. #patientchat
Patient Chat @patientchat
Topic 5 (T5:) coming up...https://t.co/MnZwIOKfTK #patientchat
Alan Brewington @abrewi3010
@richardzhao If everyone is not considered an expert then conflict with arise. Equalizer is the antidote to conflict. #patientchat
Mighty Casey Quinlan @MightyCasey
Catching up: A1 = HAVE YOU MET ME? If I get any more empowered, I'll register on a radiation dosage badge =) #patientchat
Patient Chat @patientchat
T5: How might we foster collaboration and empower more people in their health? Ideas to get more people involved? #patientchat
Becky Brandt RN @bbhomebody
@rheumpatient I know you're right. I'm a bit too optimistic for 2018. We'll keep working on it and maybe by 2023 we'll have a much different outlook. #patientchat
Alan Brewington @abrewi3010
RT @MightyCasey: Catching up: A1 = HAVE YOU MET ME? If I get any more empowered, I'll register on a radiation dosage badge =) #patientchat
Mighty Casey Quinlan @MightyCasey
Catching up: A2 = I'm working on saying "no" to things that don't have a budget. Tired of working for free. Exhausted, really. #patientchat
Enlightening Results @GraceCordovano
Popping in to say hello to #patientchat!! Sorry I can’t join. Duty calls 💪🏻✨. Will catch up later. Have a great chat 🚀
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@patientchat A4 Honestly, sometimes the most meaningful thing is someone supporting and empathizing with you. Patients often don’t feel understood by the general public, doctors, or even families. In a situation that can be very isolating a kind word can make all the difference. #patientchat
Katie @katie5280
@patientchat Hi, It's Katie, a 7 yr breast cancer survivor and t2 diabetic joining late! #patientchat
Melissa VanHouten @melissarvh
T5 Key for me is getting patients to recognize common interests & to understand how working w/other conditions can benefit them #patientchat
Annette McKinnon @anetto
T5 It is not easy to find the road to becoming an engaged patient. We need to help patients new to the idea get involved #patientchat
Mary MACK @MaryOCMack
T5: culture of medicine is still relatively the same-- hierarchies, etc. culture needs to change and collaboration will get better #patientchat
Richard Zhao @richardzhao
Thanks for the mention! bbhomebody: @richardzhao We love the #PatientSentiment annotation project. Always happy to share #PatientPerspective #patientchat
Richard Zhao @richardzhao
Thanks for the mention! abrewi3010: @richardzhao If everyone is not considered an expert then conflict with arise. Equalizer is the antidote to conflict. #patientchat
Rheumatoid Patient @rheumpatient
@bbhomebody 👍🏼#patientchat
Rie Lopez, MPH @RieOfLetters
A4: I love this community!! It is filled with so many amazing and passionate people at different stages of our journey. We all have different areas of expertise and experience, so it's a place for learning as well as support. #patientchat
Melissa VanHouten @melissarvh
T5 Many in my community seriously ill & cannot "waste" time. They must see benefits of using their "spoons" in these endeavors. #patientchat
Katie @katie5280
@patientchat T1: In addition to being appointed as a 2017-2018 Young Advocate for @LivingBeyondBC , I joined the @wegohealth Health Experts #patientchat
Becky Brandt RN @bbhomebody
T4 The people who chat here are full of support! Good day or bad, you are accepted here and people really want to help #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T5: We can all be ambassadors and share with our social media followers. Partner with large healthcare organizations. National conference? #patientchat
Annette McKinnon @anetto
T5 Getting involved in #meded (medical education) is one way to find your voice as a patient #patientchat
couragesings @couragesings
RT @MightyCasey: Catching up: A2 = I'm working on saying "no" to things that don't have a budget. Tired of working for free. Exhausted, rea…
Mighty Casey Quinlan @MightyCasey
Catching up: A3 = @S4PM and @rightcarenow are trends always on my radar. Plus, emerging #PatientsIncluded thinking at confs/in journals in US and beyond = #winning, IMO #PatientChat
Alan Brewington @abrewi3010
A5 right now entertainment is the new engagement in politics. We need to remember that love, quality content, compassion, & curiosity will always lead to engagement #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T5 Ongoing reinforcement that “everyone knows something,” include patients in medical conferences & research, get to know patient’s assets & then needs, increase health/wellness information not just illness because it pays better.#patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @Elizabe85727641: T5 Ongoing reinforcement that “everyone knows something,” include patients in medical conferences & research, get to k…
Alan Brewington @abrewi3010
RT @MightyCasey: Catching up: A3 = @S4PM and @rightcarenow are trends always on my radar. Plus, emerging #PatientsIncluded thinking at conf…
Mighty Casey Quinlan @MightyCasey
Catching up: A4 = more direct cross-pollination/collaboration w/ #rightcare #s4pm #patientsincluded #openscience communities. #patientchat
Katie @katie5280
@patientchat T2: I need to plan out my social media posts more and plan on doing that in 2018. #patientchat
Rheumatoid Patient @rheumpatient
RT @MightyCasey: Catching up: A2 = I'm working on saying "no" to things that don't have a budget. Tired of working for free. Exhausted, rea…
Annette McKinnon @anetto
T5 Learned value of the patient voice at #MedX through @IDEO design challenge. Good solutions need patients at the heart. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@Elizabe85727641 I love that- "everyone knows something". #patientchat
Rie Lopez, MPH @RieOfLetters
Absolutely agree, 100%!!! If I could like this more than once, I would! Support and empathy mean so much. #patientchat https://t.co/4FbaZSinyT
JeanBurns @ridemytrike
If only this were true. I see patient involvement as token at best. https://t.co/eMO8QmaZM1
Rheumatoid Patient @rheumpatient
RT @GinaMcGalliard: @patientchat A4 Honestly, sometimes the most meaningful thing is someone supporting and empathizing with you. Patients…
Patient Chat @patientchat
Topic 6 (T6:) coming up...https://t.co/MnZwIOKfTK #patientchat
Rheumatoid Patient @rheumpatient
@GinaMcGalliard @patientchat Well said! #patientchat
MH lived experience @CharterSub
RT @GinaMcGalliard: @patientchat A4 Honestly, sometimes the most meaningful thing is someone supporting and empathizing with you. Patients…
Katie @katie5280
@patientchat T3: I am seeing more interaction via Twitter chats and FB live events between healthcare orgs & providers & I think that it's a great way for all to learn from another. #patientchat
Len Starnes @lenstarnes
#patientchat T5 Perhaps more patients should share exactly how they have collaborated with their HCPs. No abstractions, no jargon, just the facts. Miss this sometimes
Patient Chat @patientchat
RT @MightyCasey: Catching up: A4 = more direct cross-pollination/collaboration w/ #rightcare #s4pm #patientsincluded #openscience communiti…
James Turner @jamesturnerux
RT @GinaMcGalliard: @patientchat A3 The Doctor/patient relationship continues to transition from authoritarian to collaborative. However, t…
Open Science @_open_science_
RT @MightyCasey: Catching up: A4 = more direct cross-pollination/collaboration w/ #rightcare #s4pm #patientsincluded #openscience communiti…
STELLAR Study @stellarstudy
@patientchat T5: No patient is the same! We all battle our situations differently, and emphasizing that is important for us to feel comfortable engaging and talking about our patient experiences. #Patientchat
Rie Lopez, MPH @RieOfLetters
RT @abrewi3010: A5 right now entertainment is the new engagement in politics. We need to remember that love, quality content, compassion, &…
Rheumatoid Patient @rheumpatient
RT @MaryOCMack: T5: culture of medicine is still relatively the same-- hierarchies, etc. culture needs to change and collaboration will get…
Alan Brewington @abrewi3010
RT @RieOfLetters: Absolutely agree, 100%!!! If I could like this more than once, I would! Support and empathy mean so much. #patientchat ht…
Becky Brandt RN @bbhomebody
T5 I think it's important to provide online "gathering" opportunities. Many of us used to live full, rich lives outside the home. Now, we're stuck inside alot more than we'd like to be because of poor health. Let's get together in 2018 #patientchat
Annette McKinnon @anetto
T1 This year I was part of #ArthritisHack, my first hackathon ever. Huge enthusiasm among the developer teams @arthritissoc #patientchat
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@patientchat @power4patients Hello Kara! #patientchat
Patient Chat @patientchat
T6: We want to hear from you! What topics are you passionate about and would like to hear more of in 2018? #patientchat
Mighty Casey Quinlan @MightyCasey
A5: work ceaselessly to build #healthliteracy and #science literacy in our communities. "No junk science" = my mantra. #patientchat
PVI @patientvoices
RT @GinaMcGalliard: @patientchat A4 Honestly, sometimes the most meaningful thing is someone supporting and empathizing with you. Patients…
Rie Lopez, MPH @RieOfLetters
@katie5280 @patientchat Welcome Katie! 🎉🎉🎉#patientchat
Becky Brandt RN @bbhomebody
RT @melissarvh: T5 Many in my community seriously ill & cannot "waste" time. They must see benefits of using their "spoons" in these endeav…
Patient Chat @patientchat
@GinaMcGalliard @power4patients Hi Gina! So happy you could join us today :) #patientchat
Melissa VanHouten @melissarvh
A6 Not sure there is anything healthcare-related I am NOT passionate about. :) Looks to me like you all are doing a good job. #patientchat
Katie @katie5280
@patientchat T4: It's always great to learn things and connect with others I might not connect with otherwise. I'd like to see more evening chats in 2018. #patientchat
Katie @katie5280
@patientchat T6: Breast Cancer & T2 diabetes! #patientchat
Annette McKinnon @anetto
T6 Passionate about #patientsincluded. It does not take specialized knowledge to learn and network at conferences #patientchat
Alan Brewington @abrewi3010
T6 health literacy will always need attention, especially as the everyone included movement continues to grow. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T6: health literacy, price transparency, patient-centered care, future of healthcare, containing health insurance costs. #patientchat
Bob Tufts @TuftsB
#patientchat - Late to the game, en route to DC and FDA patient meeting Monday. More about clinical trials and access
Rie Lopez, MPH @RieOfLetters
@MightyCasey You say this like it is a bad thing 😉😂 #patientchat
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@MightyCasey I think the act of saying you will no longer work for free is a big step. It let’s organizations know you put value on what you do. #patientchat
Melissa VanHouten @melissarvh
RT @anetto: T6 Passionate about #patientsincluded. It does not take specialized knowledge to learn and network at conferences #patientchat
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@RieOfLetters Thanks you!!! 💜💜💜💙💙💙 #patientchat
Mary MACK @MaryOCMack
T6: Passionate about immediate access to cardiac device data. Patients have zero access. #patientchat
Mighty Casey Quinlan @MightyCasey
@RieOfLetters Well, I'm all about truth in labeling =) #PatientChat https://t.co/DYspWiAIOX
JeanBurns @ridemytrike
#patientchat T3 protections including health care and long term care for patients injured in medical research. @patientchat @MIghyCasey
Annette McKinnon @anetto
T6 Patients as partners on research teams is becoming more common. Patients help determine the question, broaden the outlook... #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T6 Topics = how to read medical research, use as a response to questions/build support when speaking to “care” provider, more emphasis on health definitions than only on illness, measure cost benefits of illness #patientchat
PVI @patientvoices
RT @yourgpsdoc: @patientchat T6: health literacy, price transparency, patient-centered care, future of healthcare, containing health insura…
Alan Brewington @abrewi3010
A6 how might we get more patients involved locally? It’s more dynamic to be apart of a national campaign but local legislators, mayors, governors need to hear our stories now. #patientchat
Becky Brandt RN @bbhomebody
T6 Opioid success stories! It's time to Treat chronic & intractable pain patients like they matter. Enough of the "opioids are the devil" fear-mongoring! #patientchat
Annette McKinnon @anetto
RT @Elizabe85727641: T6 Topics = how to read medical research, use as a response to questions/build support when speaking to “care” provide…
Rie Lopez, MPH @RieOfLetters
A5: Collaboration is key! Pool resources and knowledge. Talk to others about projects of mutual benefit. See if there are organizations you can work with locally. #patientchat
STELLAR Study @stellarstudy
@patientchat T6: Would love to see more on meditation, yoga and other therapeutic practices and the effects it has on different indications #patientchat
Rie Lopez, MPH @RieOfLetters
RT @Elizabe85727641: T6 Topics = how to read medical research, use as a response to questions/build support when speaking to “care” provide…
Len Starnes @lenstarnes
#patientchat T6 Is anyone out there working full or part-time for a pharma, contributing to clinical or R&D? Big topic within the industry
John Lynn @techguy
I talked about this with @surescripts and how ePrescribing can help this issue: https://t.co/GqQgLZ52jk #PatientChat #opioidcrisis https://t.co/YOsnd1qEuq
Alan Brewington @abrewi3010
X 1000000000000007 #patientchat #opioidawareness #chronicpain https://t.co/mi7S9kJZWX
Becky Brandt RN @bbhomebody
@abrewi3010 Yes! It starts at the local level. #patientchat
Annette McKinnon @anetto
T6 Would love to see a new approach to treatment - we are not just one disease/problem at a time. Treat the whole person. #patientchat
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@patientchat A6 How to shorten the gap between medical research and medical practice might be a good one. Also, how to think for critically about various industries influence on Medicine and how it doesn’t always benefit patients #patientchat
Becky Brandt RN @bbhomebody
RT @anetto: T6 Patients as partners on research teams is becoming more common. Patients help determine the question, broaden the outlook...…
Rie Lopez, MPH @RieOfLetters
RT @abrewi3010: T6 health literacy will always need attention, especially as the everyone included movement continues to grow. #patientchat
Katie @katie5280
@yourgpsdoc @patientchat Agreed! Lots of orgs to partner with that could be very beneficial. A national conference is a great idea! #patientchat
Rheumatoid Patient @rheumpatient
RT @GinaMcGalliard: @MightyCasey I think the act of saying you will no longer work for free is a big step. It let’s organizations know you…
Mighty Casey Quinlan @MightyCasey
A6: here are the battle cries I issued this year (total of 5). First, my #MeToo (before big wave), 'cause #socialdeterminants! https://t.co/9CK4ZNAb8d #PatientChat
Becky Brandt RN @bbhomebody
@MightyCasey @RieOfLetters Great pic! Winter is coming......#patientchat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
Becky Brandt RN @bbhomebody
RT @MaryOCMack: T6: Passionate about immediate access to cardiac device data. Patients have zero access. #patientchat
Nicola Nestor @nicnestor
RT @GinaMcGalliard: @patientchat A4 Honestly, sometimes the most meaningful thing is someone supporting and empathizing with you. Patients…
John Lynn @techguy
RT @patientchat: T6: We want to hear from you! What topics are you passionate about and would like to hear more of in 2018? #patientchat
Rie Lopez, MPH @RieOfLetters
RT @bbhomebody: T6 Opioid success stories! It's time to Treat chronic & intractable pain patients like they matter. Enough of the "opioid…
Becky Brandt RN @bbhomebody
RT @abrewi3010: X 1000000000000007 #patientchat #opioidawareness #chronicpain https://t.co/mi7S9kJZWX
Melissa VanHouten @melissarvh
A6 Personally love #HealthTech & processes/systems. Would like discussions abt how they can benefit patients/increase impact #patientchat
Alan Brewington @abrewi3010
A6 using #patientchat platform to bring awareness to conferences/business/Pharma/educational institutions that use patients as assets. #patientchat
Annette McKinnon @anetto
T6 how can we encourage health literacy. Should be taught in grade school. Kids are smart and can teach moms, dads, grandmas #patientchat
ingevdln @ingevdln
The importance of #empathy in #healthcare and far beyond, feeling understood in what we experience (as a patient BUT ALSO AS nurse or other HCP)! The importance of communities #benurse #bedoc #patientchat https://t.co/sh4A9McBAM
Alan Brewington @abrewi3010
RT @GinaMcGalliard: @patientchat A6 How to shorten the gap between medical research and medical practice might be a good one. Also, how to…
Inspire @teaminspire
RT @patientchat: T6: We want to hear from you! What topics are you passionate about and would like to hear more of in 2018? #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat CT: If we want different results we must do things differently. The healthcare system MUST include patients and their care partners at the very beginning, the middle, and through the end of care. #patientchat
Mighty Casey Quinlan @MightyCasey
A6: Link #2, this one on #gmdd + #opendata https://t.co/wuBhDF9066 #PatientChat
Patient Chat @patientchat
RT @yourgpsdoc: @patientchat CT: If we want different results we must do things differently. The healthcare system MUST include patients an…
Rie Lopez, MPH @RieOfLetters
@bbhomebody This is definitely a pressing issue. I see far too much equating #opiod use and dependence with addiction. They are not the same! #patientchat
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@patientchat CT As someone who started a new health blog this year I would love to connect with other chronic illness/health/wellness bloggers. If you have a blog please tweet me your link! Mine is https://t.co/o3cbkqP75O. #patientchat
Mighty Casey Quinlan @MightyCasey
A6: Link number 3, #opendata thought bomb related directly to health data: https://t.co/djb1RGtICN #PatientChat
Alan Brewington @abrewi3010
RT @GinaMcGalliard: @patientchat CT As someone who started a new health blog this year I would love to connect with other chronic illness/h…
Len Starnes @lenstarnes
#patientchat Made this point many yrs ago during @s4pm convo, Everyone agrees, no one acts https://t.co/w9Icjevcrv
Melissa VanHouten @melissarvh
.@IFFGD @gimotility @RightCareNow @wegohealth @ShaneSchulzSpks @powerofpain @ZubiaLive https://t.co/IdLJChWlaZ
Mighty Casey Quinlan @MightyCasey
A6: Link number 5, on a #WomensRights issue in #healthcare that is evergreen, and hot-button: https://t.co/RTWpRD6J6J #PatientChat
Becky Brandt RN @bbhomebody
@techguy @Surescripts 👍This is awesome John! It's interesting in my state, WA, opioid prescriptions aren't allowed to go via electronic. You must hand deliver the written/printed Rx to the pharmacy. How does this make things any easier!? #patientchat
Becky Brandt RN @bbhomebody
RT @techguy: I talked about this with @surescripts and how ePrescribing can help this issue: https://t.co/GqQgLZ52jk #PatientChat #opioidcr
Clay Anderson @anglermd
RT @techguy: I talked about this with @surescripts and how ePrescribing can help this issue: https://t.co/GqQgLZ52jk #PatientChat #opioidcr
nobism @nobismhealth
RT @bbhomebody: T3 #patientcentric healthcare. Finally, patients are becoming part of the solution. Hopefully #PatientPerspective is the ne…
nobism @nobismhealth
RT @lenstarnes: #patientchat #HCSMeu https://t.co/4zgTGTvzU5
Your GPS Doc, LLC @yourgpsdoc
RT @anetto: T6 how can we encourage health literacy. Should be taught in grade school. Kids are smart and can teach moms, dads, grandmas #p
Rheumatoid Patient @rheumpatient
@GinaMcGalliard @patientchat Unfortunately a lot of research wouldn't get funded without pharma. What to do? #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
CT Best wishes all for another prosperous year, belief in self & confidence to speak up & out, courage to engage with others without fear of judgment. #patientchat
Alan Brewington @abrewi3010
Ct Remember that it is ok to be ok. Just like we have earned the right to bad days, we have a right to good days too! #patientchat
Mary MACK @MaryOCMack
RT @MightyCasey: A6: Link number 3, #opendata thought bomb related directly to health data: https://t.co/djb1RGtICN #PatientChat
John Lynn @techguy
RT @melissarvh: A6 Personally love #HealthTech & processes/systems. Would like discussions abt how they can benefit patients/increase impac…
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime
Patient Health @MD4U
All that empowers patients like health literacy, integrative medical treatment, medical records, find right doctors https://t.co/a1qGspkq8k
Annette McKinnon @anetto
@GinaMcGalliard @patientchat Here's a link to mine https://t.co/rfjUpcT59J though I confess to being a tired blogger. #patientchat
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour. #patientchat
Mighty Casey Quinlan @MightyCasey
A6: and last but not least, link number 6, on the "no one gets out of here alive" thing that doesn't get enuf air: https://t.co/LRA2viOR1O #eol #PatientChat
Annette McKinnon @anetto
RT @Elizabe85727641: CT Best wishes all for another prosperous year, belief in self & confidence to speak up & out, courage to engage with…
Patient Chat @patientchat
Thank you for a great year of #patientchat! There will be no chat on 12/29 due to the holidays. We hope to see you all in 2018 on January 12th! https://t.co/af64O14k9d
Melissa VanHouten @melissarvh
RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour. #patientch
Rheumatoid Patient @rheumpatient
RT @yourgpsdoc: @patientchat CT: If we want different results we must do things differently. The healthcare system MUST include patients an…
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Becky Brandt RN @bbhomebody
@GinaMcGalliard @patientchat 👍👍👍 #patientchat
Liz Kennerley @LifeAccrdingLiz
T1: Overwhelmed just thinking about my advocacy in 2017 on Capitol Hill and beyond. I advocated for #ACA (pre-existing conditions) twice, #OrphanDrug Tax Credit, #OPENACT, @Dysautonomia (#POTS), #Mito (@umdf). #patientchat. @RareAdvocates @RareDiseases
Liz Kennerley @LifeAccrdingLiz
T1: I also spoke at two conferences, @BIOConvention about the #PatientExperience in a variety of settings as well as a smaller event about #PatientRegistries. In June, I received the Energy Award from the @umdf. #patientchat.
Mike Kennelly @mvkennelly
RT @MightyCasey: A6: Link #2, this one on #gmdd + #opendata https://t.co/wuBhDF9066 #PatientChat
Richard Zhao @richardzhao
Thanks for #patientchat and all the #healthcare #advocate ! 🙏🙏
Melissa VanHouten @melissarvh
RT @patientchat: Thank you for a great year of #patientchat! There will be no chat on 12/29 due to the holidays. We hope to see you all in…
Mighty Casey Quinlan @MightyCasey
Have a terrific 2018, everybody!! Let's drive some CHANGE up in this joynt! #rightcare #s4pm #openscience #opendata #sdoh #patientchat
Rie Lopez, MPH @RieOfLetters
CT We all bring something to the table. Strong communities help foster ideas and connections that WILL bring change to the patient experience. #hope #PatientsHavePower #patientchat
Gregg Masters MPH @2healthguru
RT @HealthSparq: #WTFix Wednesday returns next week, with special guest @nickisnpdx! We couldn't be more excited & we hope you all will be…
Your GPS Doc, LLC @yourgpsdoc
@MightyCasey This is absolutely brilliant! #patientchat
Melissa VanHouten @melissarvh
#HappyHolidays to all! Many thanks to @PatientChat for hosting one of the best chats on Twitter! #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @MightyCasey: A6: and last but not least, link number 6, on the "no one gets out of here alive" thing that doesn't get enuf air: https:/…
Annette McKinnon @anetto
CT Another passion is finding sustainable funding for patient groups. It's not done well anywhere #patientchat
Melissa VanHouten @melissarvh
RT @RieOfLetters: CT We all bring something to the table. Strong communities help foster ideas and connections that WILL bring change to th…
Alan Brewington @abrewi3010
RT @GinaMcGalliard: @patientchat T2 I have learned to listen to my body’s needs. I took 4 trips in 5 months and caused a major symptom flar…
Mighty Casey Quinlan @MightyCasey
@GinaMcGalliard True. Trying not to wind up living in my car while waiting for them to LISTEN and HEAR. #patientchat
Rie Lopez, MPH @RieOfLetters
RT @Elizabe85727641: CT Best wishes all for another prosperous year, belief in self & confidence to speak up & out, courage to engage with…
Annette McKinnon @anetto
RT @lenstarnes: #patientchat Made this point many yrs ago during @s4pm convo, Everyone agrees, no one acts https://t.co/w9Icjevcrv
Open Science @_open_science_
RT @MightyCasey: Have a terrific 2018, everybody!! Let's drive some CHANGE up in this joynt! #rightcare #s4pm #openscience #opendata #sdoh
Mighty Casey Quinlan @MightyCasey
@yourgpsdoc #patientchat https://t.co/7cPbHaSDYQ
Becky Brandt RN @bbhomebody
CT Thanks everyone for your amazing support and ideas. I hope that together we can all make leaps and bounds for healthcare in 2018 #patientchat https://t.co/tYiiUKQ2Xk
Becky Brandt RN @bbhomebody
RT @MightyCasey: Have a terrific 2018, everybody!! Let's drive some CHANGE up in this joynt! #rightcare #s4pm #openscience #opendata #sdoh
Katie @katie5280
@patientchat Happy New Year #patientchat community!
Becky Brandt RN @bbhomebody
@anetto @GinaMcGalliard @patientchat No shame in being a tired blogger. You're in great company 😀 #patientchat
Mighty Casey Quinlan @MightyCasey
@bbhomebody @RieOfLetters Thass me, the Boudica of #healthcare. Also call myself the Facilitator of Fesitvus in Healthcare: "I GOT PROBLEMS WITH YOU PEOPLE!" Airing of grievances, anyone?!? #PatientChat
Liz Kennerley @LifeAccrdingLiz
T3: My gosh! I would LOVE to see more mainstream publications discussing how our #mitochondrial are central to a PLETHORA of disease processes. Further explaining that treatments for these conditions treat Parkinson's, MS, Cancers, Heart Attack, Obesity, etc. #patientchat
Becky Brandt RN @bbhomebody
@abrewi3010 We'll said! #patientchat
Brian Mulder @insidestat
RT @lenstarnes: #patientchat #HCSMeu https://t.co/4zgTGTvzU5
GinaMcGalliard 🧜🏻‍♀️☘️🌙 @GinaMcGalliard
@rheumpatient @patientchat Pharma only backs drug research so we need to raise awareness about other effective evidence-based treatments. I have had huge success reducing symptoms with magnesium and I would love for this to become part of standard care. Here’s my story. https://t.co/i1YHg1fk9B #patientchat
Becky Brandt RN @bbhomebody
@MightyCasey @RieOfLetters PROFESSIONAL PATIENTS UNITE! 😀 #patientchat
Rie Lopez, MPH @RieOfLetters
My sister took me out to lunch after driving me to see my son perform in a Christmas recital. I followed this with a cookie and a rousing #patientchat. Mood has improved drastically! #winning #chronicillness
#patientchat content from Twitter.