#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.

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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest to empowered patients.
Patient Chat @patientchat
The Empowered #patientchat is a project of @power4patients and @intakeme
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Patient Chat @patientchat
Today's chat is solely informational and not a substitute for speaking with a doctor who's familiar with your medical needs & history. #patientchat
Patient Chat @patientchat
You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHtpts #patientchat
Heather 🇺🇸 @ZHeatherChamp
Hello! I’m Heather living w 2 rare brain tumors and a hereditary cancer syndrome. #patientchat #btsm #pten
Alan Brewington @abrewi3010
Alan here. Once again trying to work and chat at the same time. #patientchat https://t.co/9aHPh2hcBD
ElizabethKelly, Ph.D @Elizabe85727641
Hello everyone, Liz Kelly, ending the year as yet a new beginning upon which to continue building deeper/broader learning, listening & engaging with others. #patientchat
Patient Chat @patientchat
Today's #patientchat topic is A Year in Review: Looking back on 2017 and Ahead to 2018 https://t.co/MnZwIOKfTK
Patient Empowerment Network @power4patients
Hi everyone, it's Andrea from PEN. Happy Friday! Is it me or has this week seemed like 20? #patientchat
Mary MACK @MaryOCMack
Hello everyone my name is Mary #patientchat
Heather 🇺🇸 @ZHeatherChamp
[REDACTED USER] Welcome! #patientchat
Patient Chat @patientchat
I will introduce new Topics with T1, T2...Please include corresponding T# at front of every answer - hard to remember but helpful #patientchat
Patient Empowerment Network @power4patients
RT @patientchat: Today's #patientchat topic is A Year in Review: Looking back on 2017 and Ahead to 2018 https://t.co/MnZwIOKfTK
Alan Brewington @abrewi3010
@bbhomebody Good morning to you too! #patientchat
Heather 🇺🇸 @ZHeatherChamp
@patientchat I use A. Easier to differentiate between topics and answers 😉 #patientchat
@burtrosen
hi everyone, Burt's here and so happy to be today! I love this chat! #patientchat
Patient Chat @patientchat
Time to start our topics. Here comes T1: #patientchat
Patient Chat @patientchat
T1: What are some things you did in 2017 that made you feel more empowered? What steps have improved your overall quality of life? #patientchat
Richard Zhao @richardzhao
This is Richard from Minneapolis. Sorry for running late. #patientchat
Heather 🇺🇸 @ZHeatherChamp
A1: Shockingly (to me) I had weight loss surgery. Quick decision but decided I wasn’t giving these brain tumors any more ammunition. #patientchat #btsm
Patient Empowerment Network @power4patients
RT @patientchat: T1: What are some things you did in 2017 that made you feel more empowered? What steps have improved your overall quality…
Heather 🇺🇸 @ZHeatherChamp
RT @patientchat: T1: What are some things you did in 2017 that made you feel more empowered? What steps have improved your overall quality…
ElizabethKelly, Ph.D @Elizabe85727641
T1 Engaging with others, based on knowledge & listening for both provider/patient leads to increased care/treatment planning & healthier community #patientchat
Alan Brewington @abrewi3010
A1 I like to believe my writing has continued to improve. I’m willing to be more honest, open, and vulnerable. #patientchat
Mary MACK @MaryOCMack
T1: I went for a second opinion and now have 2 cardiologists for my son. They are both fine with it. #patientchat
Richard Zhao @richardzhao
A1: To leverage #volunteers of this group to do #PatientSentiment annotation, rather than outsourcing to other countries w/o experience in US #patientchat
Melissa VanHouten @melissarvh
A1 Always makes me feel empowered to work in my support & advocacy groups - helps me & (hopefully) makes a difference 4 others. #patientchat
@burtrosen
T1: really started to focus inward, to better understand my issues, and to take my treatments more seriously. Im also exploring all avenues. Just started yoga and its helping! #no #patientchat
Patient Empowerment Network @power4patients
T1: In 2017, we worked to helped older cancer patients become more tech-savvy and empowered through our Digital Sherpa Program by pairing them with tech-savvy college students https://t.co/9P06e8uy5a #patientchat
Alan Brewington @abrewi3010
A1 with the addition of being a #caregiver for dad, my quality of life has changed dramatically. Still adjusting. #patientchat
Patient Chat @patientchat
Topic 2 (T2:) coming up..https://t.co/MnZwIOsEva #patientchat
Patient Chat @patientchat
T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2018? #patientchat
Your GPS Doc, LLC @yourgpsdoc
Sorry I'm late. Happy to be here! #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
Hi all! I made it! Will do my best to catch up. #patientchat
Richard Zhao @richardzhao
T2: Needs more #volunteers participate on this #healthcare AI project, so people know what they will get in the future. #patientchat
Patient Chat @patientchat
@RieOfLetters Glad you could join! #patientchat
Alan Brewington @abrewi3010
A2 I didn’t let go of a conflict which cost me big time. Anger does not led to go physical or mental health. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T1: Your GPS Doc was launched in December 2016 and its sole purpose is to help patients and family caregivers navigate the healthcare system through education and empowerment. #patientchat
Richard Zhao @richardzhao
A2: Also want to form a #volunteers community on my project, so we all know each other online #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T2 Be more tech savoy, organize reference sources better in order to relate statement to research source. That can stop hearing, “how could you possibly know that?” #patientchat
@burtrosen
T2: I don't always advocate for #LymeDisease and patients as well as i could be. I'm getting more involved with @S4PM to make sure i can help even more people #patientchat
Heather 🇺🇸 @ZHeatherChamp
A2: I’m making some changes to my blog. Hoping that’ll bring more traffic and awareness of Cowden Syndrome and Lhermitte-duclos Disease #patientchat #pten #btsm
Alan Brewington @abrewi3010
A2 I walked away from my previous blog. Needed something new & fresh. So I’m starting from scratch again. #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
A1: I was able to connect with other empowered patients here, which made a huge difference. I finally got the courage to build a new health care team, from the ground up. #patientchat https://t.co/kWHnlhStrh
Mary MACK @MaryOCMack
T2: I might have emailed too much #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T2: 2018 is going to be an awesome year! I look forward to launching empowerment challenges, a planner/organizer, and more speaking engagements/workshops to teach others how to be the boss of their healthcare team. #patientchat
Heather 🇺🇸 @ZHeatherChamp
@verylightnosuga What’s FSA? #patientchat
Heather 🇺🇸 @ZHeatherChamp
@burtrosen @S4PM Sounds exciting! What does that org do? Only Lyme Disease? #patientchat
Melissa VanHouten @melissarvh
A2 Wish I'd sooner ignored some who didn't have my best interests @ heart. Plan 2 grow our state-level advocacy groups in 2018. #patientchat
Alan Brewington @abrewi3010
@verylightnosuga I’ve never tried one of those accounts. Good luck! #patientchat
Patient Chat @patientchat
Topic 3 (T3:) coming up...https://t.co/MnZwIOKfTK #patientchat
Melissa VanHouten @melissarvh
RT @RieOfLetters: A1: I was able to connect with other empowered patients here, which made a huge difference. I finally got the courage to…
Rie Lopez, MPH (she/her) @RieOfLetters
A1 (b): One of the biggest changes has been to focus more on my mental health. I make sure to surround myself with great people. Mindfulness and meditation has been really helpful in improving my quality of life! #patientchat
Patient Chat @patientchat
T3: Which healthcare trends were important to you in 2017? What trends would you like to see gain momentum? #patientchat
Patient Empowerment Network @power4patients
T2: PEN is going to be exploring some new programs to empower patients in 2018. Focusing on health literacy to enable shared decision-making. Send us your thoughts and ideas, we love to collaborate! #patientchat
Alan Brewington @abrewi3010
A2 I need a real vacation in 2018. Not a working one like I’ve been doing. A real no adulting vacation. #patientchat
Richard Zhao @richardzhao
A2: Getting to know more #patientadvocate that bring more people awareness to potential technology will change healthcare #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
@burtrosen I am so glad that yoga is helping you Burt! I use plenty of modifications, but I love it. 😁#patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T3: I am super excited about a trend toward patient-centeredness in action (not just words) and new companies like @savvy_coop that are truly putting the power back in the hands of patients. #patientchat
@burtrosen
T3: the focus on patients is gaining a ton of steam, especially with groups like @wegohealth and @savvy_coop emerging, hopefully that trend continues #patientchat
Your GPS Doc, LLC @yourgpsdoc
@abrewi3010 Me too! #patientchat
Patient Empowerment Network @power4patients
@abrewi3010 Amen to that. #VacationOrBust...literally #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @power4patients: T2: PEN is going to be exploring some new programs to empower patients in 2018. Focusing on health literacy to enable s…
Your GPS Doc, LLC @yourgpsdoc
RT @burtrosen: T3: the focus on patients is gaining a ton of steam, especially with groups like @wegohealth and @savvy_coop emerging, hopef…
Melissa VanHouten @melissarvh
RT @power4patients: T2: PEN is going to be exploring some new programs to empower patients in 2018. Focusing on health literacy to enable s…
ElizabethKelly, Ph.D @Elizabe85727641
T3 Increase following of epidemiological data for the state & Community, passing it on to lawmakers & policy development groups that operate openly, follow legislators, their funders & voting records #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
[REDACTED USER] Thank you for the support! It was scary, but I finally feel like someone is listening and taking me and my care as seriously as I do. #patientchat
Alan Brewington @abrewi3010
A3 we need more across disease silo collaboration. Let’s combine with #chronicpain smarts with a #narcolepsy pt smarts and see what we can design. #patientchat
R @rhrousu
T1: I got better at advocating for myself with specialists, asking if invasive tests were really necessary, takin the lead in making informed decisions about when the cure was going to be worse than the disease. #patientchat
Alan Brewington @abrewi3010
A3 we need more chronic patients involved in local politics in 2018. We need our stories out to leaders more than ever. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@rhrousu Good for you! #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
[REDACTED USER] Welcome Len!! 🎉🎉🎉 #patientchat
Patient Chat @patientchat
Topic 4 (T4:) coming up...https://t.co/MnZwIOKfTK #patientchat
Patient Chat @patientchat
T4: What do you find most helpful about the #patientchat community? What would you like to see in 2018?
Alan Brewington @abrewi3010
.#EveryoneIncluded should be the standard at all conference & medical education opportunities. #patientchat https://t.co/7qIBflP7XQ
Melissa VanHouten @melissarvh
A3 Inclusion of patients in research design & clinical trial set-up & implementation. Good to see some pharma reaching out 2 us #patientchat
Alan Brewington @abrewi3010
@GinaMcGalliard Let’s change the world! #patientchat
STELLAR Study @StellarStudy
@patientchat A3: Advancements in technology are continuous and truly changing the healthcare industry, how we interact with patients and putting the patients needs first! #patientchat
Melissa VanHouten @melissarvh
A4 Helpful - Diverse perspectives & participants from all segments of healthcare. 2018 - ways to work together outside of chat. #patientchat
@burtrosen
T4: this chat is fantastic, it's so filled with inspirational people, honesty, #empathy and caring #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T4 Opportunity to read other’s thinking, personal experiences & how experiences affect ADL’s & importance of variety of support services. #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
A3: There were some excellent mental health trends, like mindfulness, which are important in whole-patient care. Some great research coming out regarding #ChronicPain. Would love to see more work towards ending stigma! #patientchat https://t.co/e8Htx9c7Eg
Patient Chat @patientchat
[REDACTED USER] Thanks for stopping by! Hope to see you in 2018 :) #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T4: As a physician, former caregiver, and patient advocate, I have really learned a lot from this group. The Twitter chats have been a source of information and inspiration. #patientchat
Alan Brewington @abrewi3010
A4 #patientchat is a great equalizer. Ideas and conversation is where ideas & collaboration start, not titles.
Melissa VanHouten @melissarvh
RT @StellarStudy: @patientchat A3: Advancements in technology are continuous and truly changing the healthcare industry, how we interact wi…
Richard Zhao @richardzhao
@abrewi3010 I like the equalizer #patientchat
Mary MACK @MaryOCMack
T4: most helpful thing is the platform to talk about HC issues. I'd like to see patients have real time access to ICD data in 2018 #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
Yes!! This is definitely a huge trend towards positive patient outcomes! Give us more of this #patientcentered healthcare! #patientchat https://t.co/OGyanbuNg6
STELLAR Study @StellarStudy
@patientchat A4: Genuine input and insights from patients dealing with real issues. It's great to see raw, meaningful and honest opinions and feelings. #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
HAAAAIIIII! #patientchat
Patient Chat @patientchat
Topic 5 (T5:) coming up...https://t.co/MnZwIOKfTK #patientchat
Alan Brewington @abrewi3010
@richardzhao If everyone is not considered an expert then conflict with arise. Equalizer is the antidote to conflict. #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
Catching up: A1 = HAVE YOU MET ME? If I get any more empowered, I'll register on a radiation dosage badge =) #patientchat
Patient Chat @patientchat
T5: How might we foster collaboration and empower more people in their health? Ideas to get more people involved? #patientchat
Alan Brewington @abrewi3010
RT @MightyCasey: Catching up: A1 = HAVE YOU MET ME? If I get any more empowered, I'll register on a radiation dosage badge =) #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
Catching up: A2 = I'm working on saying "no" to things that don't have a budget. Tired of working for free. Exhausted, really. #patientchat
Enlightening Results 💡 @GraceCordovano
Popping in to say hello to #patientchat!! Sorry I can’t join. Duty calls 💪🏻✨. Will catch up later. Have a great chat 🚀
Katie @katie5280
@patientchat Hi, It's Katie, a 7 yr breast cancer survivor and t2 diabetic joining late! #patientchat
Melissa VanHouten @melissarvh
T5 Key for me is getting patients to recognize common interests & to understand how working w/other conditions can benefit them #patientchat
Mary MACK @MaryOCMack
T5: culture of medicine is still relatively the same-- hierarchies, etc. culture needs to change and collaboration will get better #patientchat
Richard Zhao @richardzhao
Thanks for the mention! bbhomebody: @richardzhao We love the #PatientSentiment annotation project. Always happy to share #PatientPerspective #patientchat
Richard Zhao @richardzhao
Thanks for the mention! abrewi3010: @richardzhao If everyone is not considered an expert then conflict with arise. Equalizer is the antidote to conflict. #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
A4: I love this community!! It is filled with so many amazing and passionate people at different stages of our journey. We all have different areas of expertise and experience, so it's a place for learning as well as support. #patientchat
Melissa VanHouten @melissarvh
T5 Many in my community seriously ill & cannot "waste" time. They must see benefits of using their "spoons" in these endeavors. #patientchat
Katie @katie5280
@patientchat T1: In addition to being appointed as a 2017-2018 Young Advocate for @LivingBeyondBC , I joined the @wegohealth Health Experts #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T5: We can all be ambassadors and share with our social media followers. Partner with large healthcare organizations. National conference? #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
Catching up: A3 = @S4PM and @rightcarenow are trends always on my radar. Plus, emerging #PatientsIncluded thinking at confs/in journals in US and beyond = #winning, IMO #PatientChat
Alan Brewington @abrewi3010
A5 right now entertainment is the new engagement in politics. We need to remember that love, quality content, compassion, & curiosity will always lead to engagement #patientchat
ElizabethKelly, Ph.D @Elizabe85727641
T5 Ongoing reinforcement that “everyone knows something,” include patients in medical conferences & research, get to know patient’s assets & then needs, increase health/wellness information not just illness because it pays better.#patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @Elizabe85727641: T5 Ongoing reinforcement that “everyone knows something,” include patients in medical conferences & research, get to k…
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
Catching up: A4 = more direct cross-pollination/collaboration w/ #rightcare #s4pm #patientsincluded #openscience communities. #patientchat
Katie @katie5280
@patientchat T2: I need to plan out my social media posts more and plan on doing that in 2018. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@Elizabe85727641 I love that- "everyone knows something". #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
Absolutely agree, 100%!!! If I could like this more than once, I would! Support and empathy mean so much. #patientchat https://t.co/4FbaZSinyT
Patient Chat @patientchat
Topic 6 (T6:) coming up...https://t.co/MnZwIOKfTK #patientchat
Katie @katie5280
@patientchat T3: I am seeing more interaction via Twitter chats and FB live events between healthcare orgs & providers & I think that it's a great way for all to learn from another. #patientchat
Open Science @_open_science_
RT @MightyCasey: Catching up: A4 = more direct cross-pollination/collaboration w/ #rightcare #s4pm #patientsincluded #openscience communiti…
STELLAR Study @StellarStudy
@patientchat T5: No patient is the same! We all battle our situations differently, and emphasizing that is important for us to feel comfortable engaging and talking about our patient experiences. #Patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
RT @abrewi3010: A5 right now entertainment is the new engagement in politics. We need to remember that love, quality content, compassion, &…
Alan Brewington @abrewi3010
RT @RieOfLetters: Absolutely agree, 100%!!! If I could like this more than once, I would! Support and empathy mean so much. #patientchat ht…
Patient Chat @patientchat
T6: We want to hear from you! What topics are you passionate about and would like to hear more of in 2018? #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
A5: work ceaselessly to build #healthliteracy and #science literacy in our communities. "No junk science" = my mantra. #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
@katie5280 @patientchat Welcome Katie! 🎉🎉🎉#patientchat
Patient Chat @patientchat
@GinaMcGalliard @power4patients Hi Gina! So happy you could join us today :) #patientchat
Melissa VanHouten @melissarvh
A6 Not sure there is anything healthcare-related I am NOT passionate about. :) Looks to me like you all are doing a good job. #patientchat
Katie @katie5280
@patientchat T4: It's always great to learn things and connect with others I might not connect with otherwise. I'd like to see more evening chats in 2018. #patientchat
Katie @katie5280
@patientchat T6: Breast Cancer & T2 diabetes! #patientchat
Alan Brewington @abrewi3010
T6 health literacy will always need attention, especially as the everyone included movement continues to grow. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T6: health literacy, price transparency, patient-centered care, future of healthcare, containing health insurance costs. #patientchat
Bob Tufts @TuftsB
#patientchat - Late to the game, en route to DC and FDA patient meeting Monday. More about clinical trials and access
Rie Lopez, MPH (she/her) @RieOfLetters
@MightyCasey You say this like it is a bad thing 😉😂 #patientchat
Mary MACK @MaryOCMack
T6: Passionate about immediate access to cardiac device data. Patients have zero access. #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
@RieOfLetters Well, I'm all about truth in labeling =) #PatientChat https://t.co/DYspWiAIOX
JeanBurns @ridemytrike
#patientchat T3 protections including health care and long term care for patients injured in medical research. @patientchat @MIghyCasey
ElizabethKelly, Ph.D @Elizabe85727641
T6 Topics = how to read medical research, use as a response to questions/build support when speaking to “care” provider, more emphasis on health definitions than only on illness, measure cost benefits of illness #patientchat
Patients’ View Partners (formerly PVI) @PatientVoices
RT @yourgpsdoc: @patientchat T6: health literacy, price transparency, patient-centered care, future of healthcare, containing health insura…
Alan Brewington @abrewi3010
A6 how might we get more patients involved locally? It’s more dynamic to be apart of a national campaign but local legislators, mayors, governors need to hear our stories now. #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
A5: Collaboration is key! Pool resources and knowledge. Talk to others about projects of mutual benefit. See if there are organizations you can work with locally. #patientchat
STELLAR Study @StellarStudy
@patientchat T6: Would love to see more on meditation, yoga and other therapeutic practices and the effects it has on different indications #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
RT @Elizabe85727641: T6 Topics = how to read medical research, use as a response to questions/build support when speaking to “care” provide…
John Lynn @techguy
I talked about this with @surescripts and how ePrescribing can help this issue: https://t.co/GqQgLZ52jk #PatientChat #opioidcrisis https://t.co/YOsnd1qEuq
Alan Brewington @abrewi3010
X 1000000000000007 #patientchat #opioidawareness #chronicpain https://t.co/mi7S9kJZWX
Rie Lopez, MPH (she/her) @RieOfLetters
RT @abrewi3010: T6 health literacy will always need attention, especially as the everyone included movement continues to grow. #patientchat
Katie @katie5280
@yourgpsdoc @patientchat Agreed! Lots of orgs to partner with that could be very beneficial. A national conference is a great idea! #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
A6: here are the battle cries I issued this year (total of 5). First, my #MeToo (before big wave), 'cause #socialdeterminants! https://t.co/9CK4ZNAb8d #PatientChat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
John Lynn @techguy
RT @patientchat: T6: We want to hear from you! What topics are you passionate about and would like to hear more of in 2018? #patientchat
Melissa VanHouten @melissarvh
A6 Personally love #HealthTech & processes/systems. Would like discussions abt how they can benefit patients/increase impact #patientchat
Alan Brewington @abrewi3010
A6 using #patientchat platform to bring awareness to conferences/business/Pharma/educational institutions that use patients as assets. #patientchat
Inspire @InspireIsHealth
RT @patientchat: T6: We want to hear from you! What topics are you passionate about and would like to hear more of in 2018? #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat CT: If we want different results we must do things differently. The healthcare system MUST include patients and their care partners at the very beginning, the middle, and through the end of care. #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
A6: Link #2, this one on #gmdd + #opendata https://t.co/wuBhDF9066 #PatientChat
Patient Chat @patientchat
RT @yourgpsdoc: @patientchat CT: If we want different results we must do things differently. The healthcare system MUST include patients an…
Rie Lopez, MPH (she/her) @RieOfLetters
@bbhomebody This is definitely a pressing issue. I see far too much equating #opiod use and dependence with addiction. They are not the same! #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
A6: Link number 3, #opendata thought bomb related directly to health data: https://t.co/djb1RGtICN #PatientChat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
A6: Link number 5, on a #WomensRights issue in #healthcare that is evergreen, and hot-button: https://t.co/RTWpRD6J6J #PatientChat
Clay Anderson @AnglerMD
RT @techguy: I talked about this with @surescripts and how ePrescribing can help this issue: https://t.co/GqQgLZ52jk #PatientChat #opioidcr
ElizabethKelly, Ph.D @Elizabe85727641
CT Best wishes all for another prosperous year, belief in self & confidence to speak up & out, courage to engage with others without fear of judgment. #patientchat
Alan Brewington @abrewi3010
Ct Remember that it is ok to be ok. Just like we have earned the right to bad days, we have a right to good days too! #patientchat
John Lynn @techguy
RT @melissarvh: A6 Personally love #HealthTech & processes/systems. Would like discussions abt how they can benefit patients/increase impac…
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour. #patientchat
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
A6: and last but not least, link number 6, on the "no one gets out of here alive" thing that doesn't get enuf air: https://t.co/LRA2viOR1O #eol #PatientChat
Patient Chat @patientchat
Thank you for a great year of #patientchat! There will be no chat on 12/29 due to the holidays. We hope to see you all in 2018 on January 12th! https://t.co/af64O14k9d
Melissa VanHouten @melissarvh
RT @patientchat: Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour. #patientch
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Liz Kennerley #LongCOVID #RareDisease @LifeAccrdingLiz
T1: Overwhelmed just thinking about my advocacy in 2017 on Capitol Hill and beyond. I advocated for #ACA (pre-existing conditions) twice, #OrphanDrug Tax Credit, #OPENACT, @Dysautonomia (#POTS), #Mito (@umdf). #patientchat. @RareAdvocates @RareDiseases
Liz Kennerley #LongCOVID #RareDisease @LifeAccrdingLiz
T1: I also spoke at two conferences, @BIOConvention about the #PatientExperience in a variety of settings as well as a smaller event about #PatientRegistries. In June, I received the Energy Award from the @umdf. #patientchat.
Richard Zhao @richardzhao
Thanks for #patientchat and all the #healthcare #advocate ! 🙏🙏
Melissa VanHouten @melissarvh
RT @patientchat: Thank you for a great year of #patientchat! There will be no chat on 12/29 due to the holidays. We hope to see you all in…
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
Have a terrific 2018, everybody!! Let's drive some CHANGE up in this joynt! #rightcare #s4pm #openscience #opendata #sdoh #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
CT We all bring something to the table. Strong communities help foster ideas and connections that WILL bring change to the patient experience. #hope #PatientsHavePower #patientchat
Your GPS Doc, LLC @yourgpsdoc
@MightyCasey This is absolutely brilliant! #patientchat
Melissa VanHouten @melissarvh
#HappyHolidays to all! Many thanks to @PatientChat for hosting one of the best chats on Twitter! #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @MightyCasey: A6: and last but not least, link number 6, on the "no one gets out of here alive" thing that doesn't get enuf air: https:/…
Melissa VanHouten @melissarvh
RT @RieOfLetters: CT We all bring something to the table. Strong communities help foster ideas and connections that WILL bring change to th…
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
@GinaMcGalliard True. Trying not to wind up living in my car while waiting for them to LISTEN and HEAR. #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
RT @Elizabe85727641: CT Best wishes all for another prosperous year, belief in self & confidence to speak up & out, courage to engage with…
Open Science @_open_science_
RT @MightyCasey: Have a terrific 2018, everybody!! Let's drive some CHANGE up in this joynt! #rightcare #s4pm #openscience #opendata #sdoh
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
@yourgpsdoc #patientchat https://t.co/7cPbHaSDYQ
Katie @katie5280
@patientchat Happy New Year #patientchat community!
Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey
@bbhomebody @RieOfLetters Thass me, the Boudica of #healthcare. Also call myself the Facilitator of Fesitvus in Healthcare: "I GOT PROBLEMS WITH YOU PEOPLE!" Airing of grievances, anyone?!? #PatientChat
Liz Kennerley #LongCOVID #RareDisease @LifeAccrdingLiz
T3: My gosh! I would LOVE to see more mainstream publications discussing how our #mitochondrial are central to a PLETHORA of disease processes. Further explaining that treatments for these conditions treat Parkinson's, MS, Cancers, Heart Attack, Obesity, etc. #patientchat
Rie Lopez, MPH (she/her) @RieOfLetters
My sister took me out to lunch after driving me to see my son perform in a Christmas recital. I followed this with a cookie and a rousing #patientchat. Mood has improved drastically! #winning #chronicillness
#patientchat content from Twitter.