#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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Patient Chat @patientchat
Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself #patientchat
Patient Chat @patientchat
I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Patient Chat @patientchat
Today's #patientchat is solely informational and not a substitute for speaking with a doctor who's familiar w/your medical needs and history
Mighty Casey Quinlan @MightyCasey
Greetings, Earthlings!! Casey Q the Mighty Mouth here, all up in #HealthLiteracy + #openscience + #opendata + #RightCare 24/7/365 😎😎 #patientchat
Barby Ingle 📣 @BarbyIngle
Hello #PatientChat, I'm @BarbyIngle, Pres. of @powerofpain, author on pain topics, and #CheerleaderOfHOPE glad to be on with all of you this amazing day for an informative chat! https://t.co/y2C8aIQQn2
The Advocate Is In @TheAdvocateIsIn
Claire here from DC! In and out today due to (oddly relevant) medical device set-up It’s half of a closed loop pancreas and calibration takes about 9 hours. If I don’t time it right, the machine will wake me up at 1 a.m. #patientchat
Your GPS Doc, LLC @yourgpsdoc
I'm Nicole Rochester. Physician, caregiver, patient advocate, and Founder/CEO of @yourgpsdoc. Happy to be here! #patientchat
Patient Chat @patientchat
You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage w/other…
Quin Turner @QuinlanTurner
@patientchat Quin here from Boston. 25 years with #CrohnsDisease #patientchat
Alan Brewington @abrewi3010
Alan here. Photographer, #rheum, #chronicpain, #skier, #hiker, #mentalhealth patient storyteller. Hope you enjoy my story. #patientchat
Richard Zhao @richardzhao
Hello, Richard from Minneapolis is here. I am doing #PatientSentiment for #PtExp transparency. Great to meet everyone here. #patientchat
Ken Taylor @KenRayTaylor
Hello #PatientChat Glad to be here w you all. I am @KenRayTaylor, VP of @powerofpain, author on pain topics, and a caregiver. https://t.co/m0buQJKJh2
Heather McCullen @H_SalemOaks
Hi #patientchat, checking in from Ann Arbor, MI representing @SalemOaks. @K_SalemOaks might be joining as well
Patient Chat @patientchat
Today's #patientchat topic is How Does Technology Benefit Patients https://t.co/f9TV4n47NO
Mighty Casey Quinlan @MightyCasey
@TheAdvocateIsIn HAAAIII!! Looking forward to seeing you f2f in DC in a few weeks at #RightCare @lowninstitute conf 🙃🙃 #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of…
Patient Chat @patientchat
I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat
Nigel H @Crohnoid
Good evening from UK. I'm Nigel, patient #patientchat
Patient Empowerment @power4patients
RT @patientchat: Today's #patientchat topic is How Does Technology Benefit Patients https://t.co/f9TV4n47NO
ChronicallyJess @chronicallyjess
Hi! I’m jess! I’ve used varying degrees of technology over the years while managing chronic illness and I look forward to today’s chat! #patientchat https://t.co/aqgLN5mNUd
The Advocate Is In @TheAdvocateIsIn
@MightyCasey @lowninstitute Me, too! Wish Icould get to Datapalooza,but the day job needs attention,too. #patientchat
Patient Chat @patientchat
Time to start our topics. Here comes T1: https://t.co/f9TV4n47NO #patientchat
Patient Chat @patientchat
T1: Would you (or do you) use technology to help manage your health? Why or why not? #patientchat
Barby Ingle 📣 @BarbyIngle
T1: As an #ExtremeTimeCheater I know how important it is 2 save my energy pennies So I use tech like online patient portals, timers, apps & calendar 2 help me stay organised, manage my health & quick feedback from providers w/o having to go see them when not needed #PatientChat https://t.co/3ZJHajLBW7
Patient Empowerment @power4patients
RT @patientchat: T1: Would you (or do you) use technology to help manage your health? Why or why not? #patientchat
International Pain Foundation® @powerofpain
RT @BarbyIngle: T1: As an #ExtremeTimeCheater I know how important it is 2 save my energy pennies So I use tech like online patient portal…
Ken Taylor @KenRayTaylor
RT @BarbyIngle: T1: As an #ExtremeTimeCheater I know how important it is 2 save my energy pennies So I use tech like online patient portal…
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: T1: As an #ExtremeTimeCheater I know how important it is 2 save my energy pennies So I use tech like online patient portal…
Mighty Casey Quinlan @MightyCasey
@TheAdvocateIsIn @lowninstitute Lown conf is great choice. Great folx. #patientchat
Patient Empowerment @power4patients
RT @BarbyIngle: T1: As an #ExtremeTimeCheater I know how important it is 2 save my energy pennies So I use tech like online patient portal…
Ken Taylor @KenRayTaylor
T1: Yes of course, technology is a great way to manage your appointments, treatments and follow ups. With tech. comes better treatment options. #PatientChat https://t.co/krnc1LKgx3
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: T1: Yes of course, technology is a great way to manage your appointments, treatments and follow ups. With tech. comes bet…
Angela Cohen @angelee828
Hey all! Angela here joining from WI. 👋🏽 #patientchat
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T1: Yes of course, technology is a great way to manage your appointments, treatments and follow ups. With tech. comes bet…
Alan Brewington @abrewi3010
A1 I track workouts/break time walls with my #garmin watch and @CharityMiles. It’s rewarding to see the miles rack up. #patientchat
Mighty Casey Quinlan @MightyCasey
T1: I've always been early adopter of #tech - my 1st instant message was sent/received in 1980. So for me, #healthIT feels like Jetsons ep written by Edgar Allan Poe. #epicfail #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat T1: The main technology I use for my own health and also when I was a caregiver for my dad is my smartphone. I use it to take notes at doctor’s appointments, to document medication lists, and to document the timeline of symptoms, just to name a few. #patientchat
The Advocate Is In @TheAdvocateIsIn
T1: Yup. A lot. After years of "just"using a glucose meter with about 6 shots/day, I moved to a pump, which normalized my life a lot. Now moving to a setup that marries a continuous glucose monitor and pump. The AI almost thinks for itselff. #patientchat
iPain Living Magazine @iPainFoundation
RT @KenRayTaylor: T1: Yes of course, technology is a great way to manage your appointments, treatments and follow ups. With tech. comes bet…
Nigel H @Crohnoid
T1: Yes I do but not specific "health" apps or programmes. They may be fine for simple conditions but once you get it the realms of multiple, inter-related issues then I haven't found one that can cope. #patientchat
Quin Turner @QuinlanTurner
@patientchat T1. Of course. It gives everyone access to educational resources some can't be trusted but that's another topic). Televisits are very convenient for those of us that travel to see our docs and it also connects pts who are an incredible source of support/resource #patientchat
Rheumatoid Patient @rheumpatient
Sorry, a bit late. Patient from UK with rheumatoid arthritis. Looking forward to the chat! #patientchat
Alan Brewington @abrewi3010
T1 my iPhone has my meds, amounts, appointments. I also store dad’s info on it as his primary care taker #patientchat
Patient Empowerment @power4patients
RT @yourgpsdoc: @patientchat T1: The main technology I use for my own health and also when I was a caregiver for my dad is my smartphone. I…
Mighty Casey Quinlan @MightyCasey
T1: TBH, I don't think #healthIT can hold a candle to the self-tracking tech that folx can use to track health or condition-related stuff. It's like we're on two parallel tracks w/GIANT berm between us, system v #epatient #patientchat
ChronicallyJess @chronicallyjess
A1: I currently use tech to remind me to order/take meds, to maintain my labs (an app), and for virtual visits w/ my GI. I also emails my doc. I find it incredibly helpful, because it puts me in control. I’ve never found any loss of connection with my team, luckily. #patientchat https://t.co/URLagaa5Sk
Rheumatoid Patient @rheumpatient
T1: I think I would but my phone's a bit old and can't cope with too many apps! #patientchat
Patient Chat @patientchat
Topic 2 (T2:) coming up…https://t.co/f9TV4n47NO #patientchat
Mighty Casey Quinlan @MightyCasey
T1: I mean, #diyps BUILT. CODE. FOR. AN. ARTIFICIAL. PANCREAS. using Github + hive-mind, and IT WORKS. Healthcare system? Still a Jetsons ep by EA Poe. #wearenotwaiting #t1d #patientchat
Richard Zhao @richardzhao
T1. Technology can improve my understanding treatment better. Also, monitoring vital signs to be aware my condition. #patientchat
Ruth Laura Edlund @tdgor
RT @MightyCasey: T1: TBH, I don't think #healthIT can hold a candle to the self-tracking tech that folx can use to track health or conditio…
Nigel H @Crohnoid
T1: I've ended up using simple programmes such as Excel, Word, Keynote etc. to hold the information that I consider important and in a format that is easily read #patientchat
Heather McCullen @H_SalemOaks
Is it another topic though? I feel like the reliability of the information from heath tech and healthy skepticism should be central to the conversation. #patientchat https://t.co/q0xISj5szA
Alan Brewington @abrewi3010
T1 with the gross amount of paperwork healthcare requires technology is a must. It’s the only check on healthcare in many respects. #patientchat
Michi Endemann @MichiEndemann
RT @yourgpsdoc: @patientchat T1: The main technology I use for my own health and also when I was a caregiver for my dad is my smartphone. I…
Patient Chat @patientchat
T2: If you don’t use health technology, why not? What are the barriers and challenges? #patientchat
#WeAreNotWaiting RT @RTWeRNotWaiting
RT @MightyCasey: T1: I mean, #diyps BUILT. CODE. FOR. AN. ARTIFICIAL. PANCREAS. using Github + hive-mind, and IT WORKS. Healthcare system?…
Barby Ingle 📣 @BarbyIngle
T2: Some people dont have access to internet, computers, smart phones, tablets or how to use them effectively. Many patients are low income and cant afford the gadgets that others like me use to stay organised and empowered online #PatientChat https://t.co/PTEaq2Ukd8
The Advocate Is In @TheAdvocateIsIn
@MightyCasey I know. I can't think about it too much because the technology of it just blows my luddite mind. #patientchat
Angela Cohen @angelee828
@patientchat T1: I use apps to monitor certain data, my notepad (on my phone) to take notes at appts or make lists to ask questions, my Apple Watch for HR/other tracking data when possible, and contact HCPs via online portal. Unless it’s urgent, then I call for faster response. #patientchat
International Pain Foundation® @powerofpain
RT @BarbyIngle: T2: Some people dont have access to internet, computers, smart phones, tablets or how to use them effectively. Many patient…
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: T2: Some people dont have access to internet, computers, smart phones, tablets or how to use them effectively. Many patient…
Ken Taylor @KenRayTaylor
RT @BarbyIngle: T2: Some people dont have access to internet, computers, smart phones, tablets or how to use them effectively. Many patient…
ChronicallyJess @chronicallyjess
@QuinlanTurner @patientchat Yes! Tech = educational access right at our fingertips - a blessing and a curse. I vote it’s still mainly a blessing when used wisely. This is the most important area that docs need to get on board supporting their patient to use, when used well can be empowering. #patientchat
Your GPS Doc, LLC @yourgpsdoc
T2: I am a tech user but many are reluctant to use technology due to lack of experience or privacy concerns. #patientchat https://t.co/tZUEWA3jG5
ChronicallyJess @chronicallyjess
A2: at times when I avoid technology, it’s simply because pen and paper still feels most comfortable for note taking, listing my main concern, and because there is something satisfying about keeping all my records in a binder, right on my desk. #patientchat https://t.co/H21iJAXW1v
Your GPS Doc, LLC @yourgpsdoc
RT @BarbyIngle: T2: Some people dont have access to internet, computers, smart phones, tablets or how to use them effectively. Many patient…
Alan Brewington @abrewi3010
T2 technology is a privilege, it requires access to money and other resources to many don’t have. #patientchat
Ken Taylor @KenRayTaylor
T2: Health technology can be fun to use on many levels. Genetics and DNA tracking, imaging, scans, medications and much more. Cost barriers come with anything new and waiting times for promising technologies. #PatientChat https://t.co/XVcMgunXxi
Mighty Casey Quinlan @MightyCasey
@TheAdvocateIsIn Have you ever met @danamlewis ?? She's AMAAAAYZING. And a real human. #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @ChronicallyJess: @QuinlanTurner @patientchat Yes! Tech = educational access right at our fingertips - a blessing and a curse. I vote it…
Rheumatoid Patient @rheumpatient
I would like to share my data with my healthcare provider for continuous monitoring of my condition purposes, but I worry about the safety of my data from hackers and whether it will be shared with third parties e.g. Microsoft, Google, insurance companies... #patientchat
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: T2: Health technology can be fun to use on many levels. Genetics and DNA tracking, imaging, scans, medications and much m…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T2: Health technology can be fun to use on many levels. Genetics and DNA tracking, imaging, scans, medications and much m…
Paula Wegrzynek @rtwresearch
Researchers @BathSpaUni are running a study on #chronicpain and work. We are currently recruiting participants for a short telephone interview - could you help? #patientchat https://t.co/MgAr9bHbyD
iPain Living Magazine @iPainFoundation
RT @KenRayTaylor: T2: Health technology can be fun to use on many levels. Genetics and DNA tracking, imaging, scans, medications and much m…
Rheumatoid Patient @rheumpatient
RT @yourgpsdoc: T2: I am a tech user but many are reluctant to use technology due to lack of experience or privacy concerns. #patientchat h…
Patient Empowerment @power4patients
RT @ChronicallyJess: @QuinlanTurner @patientchat Yes! Tech = educational access right at our fingertips - a blessing and a curse. I vote it…
Mighty Casey Quinlan @MightyCasey
T2: I've already confessed to being a tech nerd of the 1st order. But so much of what's out there for health-related [whatever] is still pretty p***-poor when it comes to 360º management of anything. #patientchat
The Advocate Is In @TheAdvocateIsIn
@MightyCasey @danamlewis Saw her talk at 'Palooza last year, but didn't get to meet her. I wonder if she could hack my new one. #patientchat
Michi Endemann @MichiEndemann
Often tech is not there.. or oldfashion fax btw caregiver #patientchat
The Advocate Is In @TheAdvocateIsIn
RT @RTWResearch: Researchers @BathSpaUni are running a study on #chronicpain and work. We are currently recruiting participants for a short…
Patient Chat @patientchat
Topic 3 (T3:) coming up…https://t.co/f9TV4n47NO #patientchat
Mighty Casey Quinlan @MightyCasey
@TheAdvocateIsIn @danamlewis I'd be happy to facilitate an intro. Remind me next week! #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @rheumpatient: I would like to share my data with my healthcare provider for continuous monitoring of my condition purposes, but I worry…
Alan Brewington @abrewi3010
T2 it’s easy for patients to live for the tech, should be living to live. For example, jeans feeling tight is just as good as a scale. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@rheumpatient This is a very valid concern. #patientchat
Patient Chat @patientchat
T3: Has technology changed healthcare to benefit patients? If yes, how so? #patientchat
Geeky Fox @TechKitsune
The patient portals I have seen just being a patient is atrocious. Lack of UX design or lack of meaningful updates is huge. #patientchat
Amanda @LAlupusLady
A2 I use Health IT to help track symptoms, monitor meds & connect to my community but not everyone has access. #patientchat #HIMSS18 https://t.co/qo58jSnqr4
Barby Ingle 📣 @BarbyIngle
T3: Yes, products like medication & symptom tracking, daily health trackers like fitbit have all changed healthcare to benefit patients by helping us organize, be more responsible and help fill in cognitive changes from living with poor physical health #PatientChat https://t.co/ibwZQNeQyu
The Advocate Is In @TheAdvocateIsIn
@MightyCasey One of the best things about my new system is that I can upload info and share by giving my doc and nutritionist my login/password. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@TechKitsune I agree! Most of them are horrible. #patientchat
Ken Taylor @KenRayTaylor
T3: Yes, tech has advanced treatments, medications and more. This speeds up the time of critical conditions that depend on quicker diagnosis. #PatientChat https://t.co/G3FKNf8zpE
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: T3: Yes, products like medication & symptom tracking, daily health trackers like fitbit have all changed healthcare to bene…
Patient Empowerment @power4patients
@BarbyIngle Very true. We saw a need among older cancer patients & their caregivers and so developed the Digital Sherpa Program to help bridge the digital divide. https://t.co/UkOh9b74WU #patientchat
Ken Taylor @KenRayTaylor
RT @BarbyIngle: T3: Yes, products like medication & symptom tracking, daily health trackers like fitbit have all changed healthcare to bene…
iPain Living Magazine @iPainFoundation
RT @KenRayTaylor: T3: Yes, tech has advanced treatments, medications and more. This speeds up the time of critical conditions that depend o…
Amanda @LAlupusLady
RT @patientchat: Today's #patientchat topic is How Does Technology Benefit Patients https://t.co/f9TV4n47NO
International Pain Foundation® @powerofpain
RT @BarbyIngle: T3: Yes, products like medication & symptom tracking, daily health trackers like fitbit have all changed healthcare to bene…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T3: Yes, tech has advanced treatments, medications and more. This speeds up the time of critical conditions that depend o…
Your GPS Doc, LLC @yourgpsdoc
T3: The use of tech in healthcare has benefitted patients, but it is severely underutilized and what is out there is not patient-centric nor physician-centric. Patient portals and the EMR are just two examples of tech with great potential but often miss the mark. #patientchat https://t.co/51f63ptrau
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: T3: Yes, tech has advanced treatments, medications and more. This speeds up the time of critical conditions that depend o…
Amanda @LAlupusLady
RT @patientchat: T3: Has technology changed healthcare to benefit patients? If yes, how so? #patientchat
Barby Ingle 📣 @BarbyIngle
RT @power4patients: @BarbyIngle Very true. We saw a need among older cancer patients & their caregivers and so developed the Digital Sherpa…
Geeky Fox @TechKitsune
I think we are on the right path to creating beneficial apps for patients! I love getting my RX notifications for refills and just pressing a number. Saves me time calling and them decifering. #patientchat
Rheumatoid Patient @rheumpatient
@yourgpsdoc My patient group once was shown an app designed for another department, as they were thinking of designing one for us. We liked the app but not that it had been designed with Microsoft and they were sharing the data. So we said no. #patientchat
Patient Chat @patientchat
RT @BarbyIngle: T3: Yes, products like medication & symptom tracking, daily health trackers like fitbit have all changed healthcare to bene…
Alan Brewington @abrewi3010
T3 I think as everyday passes #EHRs become better. I can now get hurt skiing in Utah and have my Idaho records relatively easy to get. #patientchat
Amanda @LAlupusLady
@patientchat A3 at #HIMSS18 the Health IT community is passionate about improving the #patientexperience #patientchat
ChronicallyJess @chronicallyjess
A3: tech is sparking a power shift in favor of greater equality between patients and clinicians. It wont/shouldn’t replace clinicians, but It CAN support patients to feel more involved and empowered in their care, which in turn could lead to better QOL + outcomes #patientchat
Nigel H @Crohnoid
T3: Personally I haven't seen the benefits in the UK but I'm sure there must be some examples in the #NHS #patientchat
The Advocate Is In @TheAdvocateIsIn
T3: For me personally, yes. In just the time I've had T1D (27 years) there are more, and smaller, options. ITracking has become easier, and my disease has become more invisible, for better (mostly) or worse. #patientchat
Enlightening Results @GraceCordovano
Happy Friday #patientchat! Grace, private cancer advocate & patient Experience enhancer, joining from NJ
Jim Myers @kidneystories
RT @TheAdvocateIsIn: T3: For me personally, yes. In just the time I've had T1D (27 years) there are more, and smaller, options. ITracking h…
Your GPS Doc, LLC @yourgpsdoc
RT @ChronicallyJess: A3: tech is sparking a power shift in favor of greater equality between patients and clinicians. It wont/shouldn’t rep…
Amanda @LAlupusLady
RT @KenRayTaylor: T3: Yes, tech has advanced treatments, medications and more. This speeds up the time of critical conditions that depend o…
Alan Brewington @abrewi3010
T3 Thanks to tech #cysticfibrosis patients can talk to each other since they can’t be in the same room. #patientchat
Mighty Casey Quinlan @MightyCasey
T3: saddest part of this whole question is the gap between patients' sense of progress, and #healthIT's delivery of patient-friendly tech. 100% certain that everyone on this chat has #polyportalitis syndrome, f'rinstance. SO. MANY. PORTALS. #patientchat
Patient Chat @patientchat
Topic 4 (T4:) coming up… #patientchat
Patient Empowerment @power4patients
RT @ChronicallyJess: A3: tech is sparking a power shift in favor of greater equality between patients and clinicians. It wont/shouldn’t rep…
Alan Brewington @abrewi3010
T3 Thanks to tech patient stories are now validation and comfort to new patients. #patientchat
Amanda @LAlupusLady
Getting ready for the last day of #HIMSS18 and @MagicJohnson is the closing keynote * so excited! #patientchat
Amanda @LAlupusLady
RT @MightyCasey: T3: saddest part of this whole question is the gap between patients' sense of progress, and #healthIT's delivery of patien…
Patient Chat @patientchat
T4: What area of healthcare might positively benefit from health technology that isn’t already? #patientchat
Quin Turner @QuinlanTurner
@patientchat T3. In terms of access to info/quicker test results/health monitoring and pts networking via social media, absolutely. I think social media also provides a forum for acceptance for pts as they see others being vocal/engaged which I can say from my exp is motivating #patientchat
Patient Chat @patientchat
RT @abrewi3010: T3 Thanks to tech patient stories are now validation and comfort to new patients. #patientchat
Mighty Casey Quinlan @MightyCasey
RT @abrewi3010: T3 Thanks to tech #cysticfibrosis patients can talk to each other since they can’t be in the same room. #patientchat
Nigel H @Crohnoid
T3: I suppse the use of health tech in the States is more advanced because the health system is largely driven by insurance funded care, not a model I would want to see copied in the UK #patientchat
Barby Ingle 📣 @BarbyIngle
T4: Being online with health technology helps patients better their lives, but I would like to see more in standardized 1 EHR per patient, where we can incorporate tracking like fitbit, and medication synchronization into the process as well. #PatientChat https://t.co/9hf9Nqifef
Enlightening Results @GraceCordovano
@patientchat T3: Potential won’t be fully unlocked until at least basic tech is reimbursable, prescribable, universally implemented, & accessible. Broad range of tech adoption & use causes silos between patients & drs, between hospitals, between state borders. Get rid of the fax #Patientchat
iPain Living Magazine @iPainFoundation
RT @power4patients: @BarbyIngle Very true. We saw a need among older cancer patients & their caregivers and so developed the Digital Sherpa…
International Pain Foundation® @powerofpain
RT @BarbyIngle: T4: Being online with health technology helps patients better their lives, but I would like to see more in standardized 1 E…
Amanda @LAlupusLady
T3 I have many Drs. but I don’t have a single complete EHR, wonder how that issue alone impacts patient care. #patientchat
Rheumatoid Patient @rheumpatient
T3: They're using this data platform locally to improve patient care. https://t.co/e4gAQaulpg #patientchat
Ken Taylor @KenRayTaylor
T4: Clinical trials and other promising treatment options like Stem Cell therapy can benefit greatly from technology. #PatientChat https://t.co/bgg925zOYD
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: T4: Being online with health technology helps patients better their lives, but I would like to see more in standardized 1 E…
Amanda @LAlupusLady
RT @patientchat: T4: What area of healthcare might positively benefit from health technology that isn’t already? #patientchat
Enlightening Results @GraceCordovano
@MightyCasey Hey Casey! Great to see you #patientchat https://t.co/gWtboss5Cx
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T4: Clinical trials and other promising treatment options like Stem Cell therapy can benefit greatly from technology. #Pa
ChronicallyJess @chronicallyjess
@BarbyIngle So true. Are there any programs in place to support this need among patients (or their caregivers)? #patientchat
Alan Brewington @abrewi3010
T4 paperwork paperwork paperwork. This is a second diagnosis, a second reminder that I’m broken or dad is dead. #patientchat
Mighty Casey Quinlan @MightyCasey
RT @GraceCordovano: @patientchat T3: Potential won’t be fully unlocked until at least basic tech is reimbursable, prescribable, universally…
iPain Living Magazine @iPainFoundation
RT @KenRayTaylor: T4: Clinical trials and other promising treatment options like Stem Cell therapy can benefit greatly from technology. #Pa
Geeky Fox @TechKitsune
I think something as simple as understanding labs would be nice. I know I received mine with a bunch of paperwork trying to do math to understand what were good levels and what wasn't. #patientchat
Ken Taylor @KenRayTaylor
RT @BarbyIngle: T4: Being online with health technology helps patients better their lives, but I would like to see more in standardized 1 E…
Ken Taylor @KenRayTaylor
RT @KenRayTaylor: T4: Clinical trials and other promising treatment options like Stem Cell therapy can benefit greatly from technology. #Pa
Nigel H @Crohnoid
T4: The biggest issue for me is the lack of universally accessible medical records for each patient (in the UK). It would open up so mahy possibilities for both care and research #patientchat
Angela Cohen @angelee828
@patientchat T2: One challenge is msgs/info isnt shared between health systems on some portals. IMO it can cause a communication barrier. Even in same health system, currently I can’t msg more than one of my drs/HCPs abt the same issue regarding multiple specialties. #patientchat
Enlightening Results @GraceCordovano
@ChronicallyJess @BarbyIngle @lisagualtieri has an exciting program for wearables #Patientchat
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: T4: Clinical trials and other promising treatment options like Stem Cell therapy can benefit greatly from technology. #Pa
Amanda @LAlupusLady
@patientchat A4 the growth of VR will continue to make important strides in healthcare from training the next gen of MDs to reducing pain in patients. #patientchat #HIMSS18
Amanda @LAlupusLady
RT @BarbyIngle: T4: Being online with health technology helps patients better their lives, but I would like to see more in standardized 1 E…
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
Sorry to miss the #patientchat everyone! Will try to check in later. #pten #btsm
ChronicallyJess @chronicallyjess
A4: in small ways, my life is already made better by tech in psychosocial aspects of managing chronic illness, but it’s no where near where it could be, and it doesn’t reach enough varied populations just yet. #patientchat https://t.co/Fm8aDrDufP
Your GPS Doc, LLC @yourgpsdoc
T4: I think telemedicine could be used more broadly among primary care providers, particularly for the elderly and those with disabilities, but really for everyone. Why sit in a waiting room for 30 minutes if you don't have to? #patientchat https://t.co/mYDD3gt516
Mighty Casey Quinlan @MightyCasey
T4: fully enabling #telehealth via phone/tablet/computer interface. BP, O2 sats, temp, otoscopes, all have interface tech avail. Would prevent need for many office visits, partic for rural populations. #patientchat
Patient Chat @patientchat
RT @GraceCordovano: @patientchat T3: Potential won’t be fully unlocked until at least basic tech is reimbursable, prescribable, universally…
Sherry Reynolds 🌟 @Cascadia
@patientchat Tech has changed the relationship from passive recipient of care to partner in care with real time anywhere access My Epic EHR mobile interface lets me message the care team has my records, lets me chat with a nurse, shows real time waits #patientchat https://t.co/Ar1mo5Vxh2
Heidi Grabenstatter @PatientIntv
T3: Patients and caregivers involved in designed of tech "to make life work" will benefit patients in powerful way. 2/2 #patientchat
Mighty Casey Quinlan @MightyCasey
RT @LAlupusLady: @patientchat A4 the growth of VR will continue to make important strides in healthcare from training the next gen of MDs t…
Enlightening Results @GraceCordovano
@patientchat T4: Virtual #clinicaltrials & #telemedicine across all disease states. Remote monitoring to assess behaviors outside the clinic will provide powerful insights #patientchat
Patient Chat @patientchat
Topic 5 (T5:) coming up…https://t.co/f9TV4n47NO #patientchat
Barby Ingle 📣 @BarbyIngle
not that I know of, the companies that make EHR programs/technology are not too willing to make programs that are shareable, that would be like Target/Walmart or Apple/Microsoft becoming one, can it happen? Yes. Will it... probably not :( #patientchat https://t.co/5vZfLOQwmr
Amanda @LAlupusLady
FYI I have some 3D printed dice created by @wareFLO to help me decide what to do on social media in case I can’t decide. #patientchat #HIMSS18 https://t.co/hkuz2bJkbU
Nigel H @Crohnoid
T4: The engagement of more HCPs on SoMe would be good, not for individual communication with patients, but giving updates on new research, techniques etc. to "disease" communities such as the #IBDCommunity. Makes patients feel more included #patientchat
Mighty Casey Quinlan @MightyCasey
@angelee828 @patientchat No real #data interchange between portals ever, at least that I'm aware of. Best you can do is download a CCD in PDF, and then share it in the other portal as attachment. How ... 2005. #patientchat #healthIT #polyportalitis
ChronicallyJess @chronicallyjess
A4: tech could also help link providers across the country and globe to better support a consistent approach to care for patients, focusing on quality of life measurements and outcomes on a grand scale. #patientchat https://t.co/Fm8aDrDufP
Your GPS Doc, LLC @yourgpsdoc
@MightyCasey Great minds think alike! Telemedicine was my answer as well. #patientchat
Patient Chat @patientchat
T5: What emerging health technology gives you hope for the future? #patientchat
Enlightening Results @GraceCordovano
@patientchat T4: Machine learning to predict which patient populations will benefit from particular therapies where there aren’t gold standard biomarkers. #patientchat
Rheumatoid Patient @rheumpatient
@Crohnoid There are some examples in the #NHS but there needs to be more tech which requires investment. Let's not forget we still have pagers & faxes, and my information cannot be shared across Trusts (other than by letter) so I'm always having to repeat myself over and over. #patientchat
Barby Ingle 📣 @BarbyIngle
T5: 3D technology and VR are my favorite emerging health technologies. I have taken classes on both and created some of my own 3D pieces at the local library her in AZ, and I create VR content with my husband for @powerofpain #iPain available on our youtube channel. #PatientChat https://t.co/wUWYuqixUW
Quin Turner @QuinlanTurner
@patientchat T4. Honestly, health records. Need to have one comprehensive platform that stores all patient records so they can be accessed regardless of where the patient may be in order to limit excessive exposure to radiation, steroids, narcotics etc. #patientchat
Heidi Grabenstatter @PatientIntv
T3: Tech aimed at filling gaps and improving workflow in flawed healthcare system often forgets patients and caregivers. 1/2 #patientchat
Ken Taylor @KenRayTaylor
RT @BarbyIngle: T5: 3D technology and VR are my favorite emerging health technologies. I have taken classes on both and created some of my…
Ken Taylor @KenRayTaylor
T5: I believe Stem Cell therapies is still in the early sages and provides hope to many conditions. #PatientChat https://t.co/VMipcKN0Si
Amanda @LAlupusLady
RT @GraceCordovano: @patientchat T4: Virtual #clinicaltrials & #telemedicine across all disease states. Remote monitoring to assess behavio…
Mighty Casey Quinlan @MightyCasey
RT @GraceCordovano: @patientchat T4: Machine learning to predict which patient populations will benefit from particular therapies where the…
Michi Endemann @MichiEndemann
IT Standards #hl7 #patientchat
International Pain Foundation® @powerofpain
RT @BarbyIngle: T5: 3D technology and VR are my favorite emerging health technologies. I have taken classes on both and created some of my…
International Pain Foundation® @powerofpain
RT @BarbyIngle: not that I know of, the companies that make EHR programs/technology are not too willing to make programs that are shareable…
Amanda @LAlupusLady
RT @BarbyIngle: T5: 3D technology and VR are my favorite emerging health technologies. I have taken classes on both and created some of my…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T5: I believe Stem Cell therapies is still in the early sages and provides hope to many conditions. #PatientChat https://…
Geeky Fox @TechKitsune
Cloud-based technology, integrations with other #healthcareIT systems. We need that bridge for better collaboration as patients. #patientchat
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: T5: I believe Stem Cell therapies is still in the early sages and provides hope to many conditions. #PatientChat https://…
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: T5: 3D technology and VR are my favorite emerging health technologies. I have taken classes on both and created some of my…
iPain Living Magazine @iPainFoundation
RT @KenRayTaylor: T5: I believe Stem Cell therapies is still in the early sages and provides hope to many conditions. #PatientChat https://…
The Advocate Is In @TheAdvocateIsIn
T5: see previous (closed loop pancreas) .. We are steps away from an entirely AI version. #patientchat
Amanda @LAlupusLady
A5 as a patient/panelist at @virtualmedconf later this month I can’t say how important VR is and will be to impacting care and health #patientchat https://t.co/QWMpIjGHMy
Mighty Casey Quinlan @MightyCasey
T5: Now that #diyps has proved that PATIENTS can create real tools to manage their conditions, gloves (and blinders) are OFF. Time for #epatient leaders to rally their communities to DIY #tech that WORKS. #wearenotwaiting #patientchat
Rheumatoid Patient @rheumpatient
@GraceCordovano @patientchat I'm with you on getting rid of the fax machine. It's 2018!!! #patientchat
Alan Brewington @abrewi3010
T5 what gives me hope is patients like @danamlewis practicing #wearenotwaiting. The passion and design capabilities of patients is amazing. Tech is a tool, #QOL comes from people #patientchat
Rheumatoid Patient @rheumpatient
RT @LAlupusLady: T3 I have many Drs. but I don’t have a single complete EHR, wonder how that issue alone impacts patient care. #patientchat
#WeAreNotWaiting RT @RTWeRNotWaiting
RT @MightyCasey: T5: Now that #diyps has proved that PATIENTS can create real tools to manage their conditions, gloves (and blinders) are O…
#WeAreNotWaiting RT @RTWeRNotWaiting
RT @abrewi3010: T5 what gives me hope is patients like @danamlewis practicing #wearenotwaiting. The passion and design capabilities of pati…
Enlightening Results @GraceCordovano
@patientchat T5: Blockchain!! Patient data ownership, transparency as to how data is used, transfer power to patients to choose who they share data with, own data readily available. Enough with these medical records requests & everyone profiting off patient data except patient #patientchat
Mighty Casey Quinlan @MightyCasey
Sorry, all, but I gotta bail. I'm caregiver team for a buddy who just had double knee replacement, I'm off to do my helper thing! Have a great weekend 🙃🙃 #patientchat
Your GPS Doc, LLC @yourgpsdoc
T5: I'm hopeful that there will be continued improvements in the EMR. My wish is that one day (soon) we will have ONE unified EMR across all platforms and facilities. Magical thinking? Maybe. #patientchat https://t.co/BIR8wrvKXc
Kim from Kansas ☭ @kim_from_kansas
RT @LAlupusLady: FYI I have some 3D printed dice created by @wareFLO to help me decide what to do on social media in case I can’t decide. #…
Barby Ingle 📣 @BarbyIngle
@rheumpatient @GraceCordovano @patientchat I actually still use mine quite often. fax machines still have purpose... for real. #patientchat
Amanda @LAlupusLady
RT @abrewi3010: T5 what gives me hope is patients like @danamlewis practicing #wearenotwaiting. The passion and design capabilities of pati…
Patient Chat @patientchat
Topic 6 (T6:) coming up… #patientchat
Angela Cohen @angelee828
@patientchat T3: So many wonderful ways! Access to my appt notes, (most) test results, contacting HCPs, and data tracking apps. Not to mention, the endless possibilities as is unfolds with (it seems) patients involved in the process which is a plus of course! ;) #patientchat
Your GPS Doc, LLC @yourgpsdoc
RT @GraceCordovano: @patientchat T5: Blockchain!! Patient data ownership, transparency as to how data is used, transfer power to patients t…
Enlightening Results @GraceCordovano
@BarbyIngle @rheumpatient @patientchat What if there was an easier way? What if you didn’t have access to one? What if you didn’t know how to use a fax machine? I use a fax daily. Bc have to. #patientchat
Amanda @LAlupusLady
FYI @brianeastwood is on #HIMSSTV during #patientchat
ChronicallyJess @chronicallyjess
A5: tech is allowing me to connect w/ my clinician in really helpful ways. I love telehealth visits and apps that can track my labs, scopes, and scans. I look forward to a future with a 3D map of my own diseased organs with personalized care to my specific needs. #patientchat https://t.co/vf8ROyLQoW
Nigel H @Crohnoid
T5: This is my take on the key information that I need to pass on when seeing a new HCP. (Yes I have posted this before and had 30k hits). If someone could design a system that allows customisable, data driven graphics then count me in #patientchat https://t.co/cJspi2VFaq
Patient Chat @patientchat
T6: If you had unlimited resources to make a major change in healthcare, what technology would you create? #patientchat
Chuck Webster MD MS AI MS Industrial Engineering @wareFLO
@LAlupusLady That's right! If you can't decide what to do next, or simply wish to inject some healthy randomization into your Twitter life, contact @LAlupusLady and she will consult the Twitter dice 🎲🎲 and get right back to you! #patientchat #HIMSS18 #HIMSSmakers 😉 https://t.co/Hbx2pH5Mwa
Chuck Webster MD MS AI MS Industrial Engineering @wareFLO
RT @wareFLO: @LAlupusLady That's right! If you can't decide what to do next, or simply wish to inject some healthy randomization into your…
Chuck Webster MD MS AI MS Industrial Engineering @wareFLO
RT @LAlupusLady: FYI I have some 3D printed dice created by @wareFLO to help me decide what to do on social media in case I can’t decide. #…
Quin Turner @QuinlanTurner
@patientchat T5. AR and VR will be amazing educational tools. As patients, we read and live with our respective illnesses but actually being able to SEE how a disease impacts the body and how processes are carried out (like digestion) would be incredible. #patientchat
Patient Health @MD4U
RT @patientchat: Today's #patientchat topic is How Does Technology Benefit Patients https://t.co/f9TV4n47NO
Barby Ingle 📣 @BarbyIngle
There is an easier way if you have internet access but not all do. :( but a lot dont have a landline anymore either, both landline and fax are still useful for me in personal and pro life #patientchat https://t.co/9LlVb5B4pr
Nigel H @Crohnoid
T6: Same as my previous answer. Universal health records that are accessible anywhere and can overcome all the "patient confidentiality" hurdles that often get thrown in the way of innovation #patientchat
Barby Ingle 📣 @BarbyIngle
T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But since I dont have unlimited funding, I will continue to create content that helps people achieve proper & timely access to care more reliably #PatientChat https://t.co/cVBXhDAr5l
Geeky Fox @TechKitsune
Everyone wants an all in one system. But I think that goes back to my last answer, I'd rather have a bridge for healthcare systems to talk to each other. I believe companies specialize in certain tech for a reason. #patientchat
Amanda @LAlupusLady
Truly incredible experiences at #HIMSS18 and to start wrapping up the last day w/ #patientchat is a powerful reminder of why I share my #patientexperience
Amanda @LAlupusLady
RT @patientchat: T6: If you had unlimited resources to make a major change in healthcare, what technology would you create? #patientchat
Michi Endemann @MichiEndemann
T6 no new tech, again interoperability first and thats quite a lot of work... after that thk abt tech maybe like blockchain and others #patientchat
Ken Taylor @KenRayTaylor
T6: A machine that scans the body in real time 3D and allows you to pinpoint your own aches and pains along with blood work to find abnormalties and early diagnosis.#PatientChat https://t.co/T1r0NJaOnJ
Patient Chat @patientchat
RT @BarbyIngle: T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But si…
International Pain Foundation® @powerofpain
RT @BarbyIngle: T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But si…
Barby Ingle 📣 @BarbyIngle
RT @KenRayTaylor: T6: A machine that scans the body in real time 3D and allows you to pinpoint your own aches and pains along with blood wo…
Ken Taylor @KenRayTaylor
RT @BarbyIngle: T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But si…
Ken Taylor @KenRayTaylor
RT @BarbyIngle: There is an easier way if you have internet access but not all do. :( but a lot dont have a landline anymore either, both l…
International Pain Foundation® @powerofpain
RT @KenRayTaylor: T6: A machine that scans the body in real time 3D and allows you to pinpoint your own aches and pains along with blood wo…
iPain Living Magazine @iPainFoundation
RT @KenRayTaylor: T6: A machine that scans the body in real time 3D and allows you to pinpoint your own aches and pains along with blood wo…
iPain Living Magazine @iPainFoundation
RT @BarbyIngle: T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But si…
Alan Brewington @abrewi3010
T6 something to make the communication between hospitals/doctors and caregivers, especially for young caregivers. #patientchat
Savanna @SavannaBraun
T1: I love patient portals, it makes it so that I can have everything of importance my doctors tell me or diagnose me with. I also appreciate symptom trackers like statwise, I have pain so many places from so many things, and they help me stay organized by condition. #PatientChat https://t.co/75uPP6B9VG
Nigel H @Crohnoid
T6: A bit of kit that could measure pain against an absolute scale #patientchat
Heidi Grabenstatter @PatientIntv
T6: It's not about taking on healthcare, it's about complementing what it offers. See https://t.co/oB8GiidiYD As patients and caregivers, we are experts. That is the one major takeaway from #HIMSS18. That makes you untapped innovators. #patientchat
Rheumatoid Patient @rheumpatient
@BarbyIngle @GraceCordovano @patientchat 😂I've still never used one. All those buttons - they look scary! #patientchat
Your GPS Doc, LLC @yourgpsdoc
T6: I would create technology that securely stores all patient information, allows for cloud-based uploads of new info during doctor visits/hospitalizations, and allows for 2-way communication with healthcare team. #patientchat https://t.co/2a0PDq7R85
Amanda @LAlupusLady
A6 if unlimited funds existed I would work with @BrennanSpiegel and a team to create a vast #VR pharmacy while finding partners to supply enough headsets for all chronic and hospitalized patients that need them. #patientchat
Amanda @LAlupusLady
RT @BarbyIngle: T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But si…
Savanna @SavannaBraun
T2: Some stuff I don’t use, like certain symptom trackers or medication reminders because I simply forget they’re there, I need it to annoy me so I remember! #PatientChat https://t.co/ZMwdfix5cm
Alan Brewington @abrewi3010
T6 there has to be a better paperwork solution than we have now. We should be able to see a doc without having to sign 5 minutes worth of paperwork before and 2 hours worth afterwards #patientchat
Nigel H @Crohnoid
@yourgpsdoc ...and first we would need to agree a standard dataset that would be held and how it would be presented. Would need to take into account complex relationships between conditions #patientchat
Quin Turner @QuinlanTurner
RT @ChronicallyJess: A3: tech is sparking a power shift in favor of greater equality between patients and clinicians. It wont/shouldn’t rep…
Rie Lopez, MPH @RieOfLetters
Slept through the majority of #patientchat, as I am having a challenging day. Still trying to figure out this intense fatigue and joint pain. #chronicillness #ChronicPain
Rheumatoid Patient @rheumpatient
@Crohnoid I do remember a lot of money going to an IT company for this in the noughties and nothing ever happening! #patientchat
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
Julie Maas @juliewmaas
RT @LAlupusLady: T3 I have many Drs. but I don’t have a single complete EHR, wonder how that issue alone impacts patient care. #patientchat
Rheumatoid Patient @rheumpatient
RT @Crohnoid: T4: The biggest issue for me is the lack of universally accessible medical records for each patient (in the UK). It would ope…
Alan Brewington @abrewi3010
T6 #medx ideation and companionship and love without the travel. #patientchat
Barby Ingle 📣 @BarbyIngle
CT: Be good to each other, Do what you can, Try your best and remember to follow @BarbyIngle, @powerofpain and @KenRayTaylor for motivation, inspiration, tools, and positive care! #CheerleaderofHOPE signing off of this weeks #PatientChat https://t.co/EcNWK5fcbD
Amanda @LAlupusLady
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT…
Rheumatoid Patient @rheumpatient
@yourgpsdoc On the whole, I still prefer face-to-face (or maybe I'm old school). #patientchat
Nigel H @Crohnoid
@abrewi3010 I've had a go at an interactive version of the diagram I posted earlier - https://t.co/mfAyBpJfeD #patientchat
Your GPS Doc, LLC @yourgpsdoc
CT: So many of us posted about a universal EMR and easy access to health records by patients and caregivers. It's 2018 and the time is NOW. #patientchat https://t.co/ecxUUmRtQ6
Savanna @SavannaBraun
T3: Its not perfect, but yes! It has made things so much easier for me because of all the brain fog that can get in the way and I can email my doctor whenever, knowing they’ll get back to me fairly quickly. #PatientChat https://t.co/JRqmIN15bZ
Amanda @LAlupusLady
CT wondering why my EMR is not complete, Drs portals won’t connect to share my data. It is 2018, we each have one SS# and one driver’s license, why not one EMR? #patientchat
Alan Brewington @abrewi3010
RT @Crohnoid: @abrewi3010 I've had a go at an interactive version of the diagram I posted earlier - https://t.co/mfAyBpJfeD #patientchat
Tom Goffe @thomasgoffe
Technology only benefits patients with the ability to access it. If you’re choosing between food and medicine, the greatest health tech in the world is not even a dream. #patientchat https://t.co/v1qmQ0lM5a
Quin Turner @QuinlanTurner
@patientchat T6. As mentioned before, I'd focus on a service that houses all pt records and overall history which can be accessed anywhere by a clinician with the pt's consent. Access to accurate/current records is crucial, especially for ED visits and other emergency situations #patientchat
Alan Brewington @abrewi3010
@Crohnoid Interesting! Thank you for sharing. I will study this more. #patientchat
Nigel H @Crohnoid
@rheumpatient Yes. It was called NPfIT. cost £12bn pounds and was then scrapped into the "too difficult" drawer. If you search online there is a long report about what went wrong. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@rheumpatient I get it. But what about on days when you're really not feeling up to it but want to "see" your doctor anyway? It certainly doesn't replace face-to-face but can be a nice supplement. #patientchat
Your GPS Doc, LLC @yourgpsdoc
The painful truth! #patientchat https://t.co/pFpZDmT6rU
Patient Chat @patientchat
#patientchat is your community. Thanks for joining in today, please reach out to @power4patients or @patientchat anytime
Nigel H @Crohnoid
@abrewi3010 Most of the shapes can be clicked on and the supporting document should appear. I've removed all patient and doctor details but eventually will put on the cloud, password protected #patientchat
Rheumatoid Patient @rheumpatient
@GraceCordovano @patientchat Ooooh...interesting! #patientchat
Alan Brewington @abrewi3010
Ct in order to continue to encourage and support patients like @danamlewis we need to ensure info remains free and celebrated. This includes failures, especially failures #patientchat
Rheumatoid Patient @rheumpatient
RT @QuinlanTurner: @patientchat T4. Honestly, health records. Need to have one comprehensive platform that stores all patient records so th…
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour
Quin Turner @QuinlanTurner
@patientchat CT. Interesting to see some of the similarities in answers. There's definitely a baseline that I feel most people touched on that identifies a good place to start looking in order to make effective change. #patientchat
Sherry Reynolds 🌟 @Cascadia
CT: We need to change the culture of healthcare and the role of “patients" It isn’t that “everyone will be a patient some day” but that "people who are sometimes patients are the real primary care givers." #patientchat #HIMSS18 https://t.co/JRZbtcmqJB
Patient Chat @patientchat
The next Empowered #patientchat will be Friday, March 23rd at 10amPT | 1pmPT. Hope to see you there!
Alan Brewington @abrewi3010
RT @Crohnoid: @abrewi3010 Most of the shapes can be clicked on and the supporting document should appear. I've removed all patient and doct…
Rheumatoid Patient @rheumpatient
@QuinlanTurner @patientchat Yep. I asked the hospital recently for a print out of my blood test results so my GP wouldn't send me again the next day for the same blood tests! #mybloodisprecious #patientchat
Nigel H @Crohnoid
T6: One last thought for unlimited funds - a way of carrying out a "virtual" colonoscopy so we don't have to drink that awful prep and have a camera stuck where the sun don't shine #patientchat
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Alan Brewington @abrewi3010
@RieOfLetters That would be the dream! #patientchat
Nigel H @Crohnoid
Goodnight #patientchat. Until next time
Rheumatoid Patient @rheumpatient
@yourgpsdoc True. As long as there's choice and remote consultations are not the only option. #patientchat
Your GPS Doc, LLC @yourgpsdoc
@patientchat Thanks for hosting! Awesome, as always. #patientchat
Savanna @SavannaBraun
T4: I’d really like to have a sort of Cloud for all of my health information in one place that I can upload stuff from my patient portals to, in case I’m seeing doctors from all different places then I can give them access to it, that could make life much easier. #PatientChat https://t.co/jqnpsbX6uQ
Your GPS Doc, LLC @yourgpsdoc
@Crohnoid :-) #patientchat
Your GPS Doc, LLC @yourgpsdoc
@SavannaBraun See my answer for T6. Almost identical! This needs to happen. #patientchat
Becky Brandt RN @bbhomebody
Darnit! I've been working on a website issue and missed #patientchat So bummed. I've really missed you All! I'll catch up via transcript.
Rheumatoid Patient @rheumpatient
@abrewi3010 Makes me glad I live in the UK, though I think we're heading for a US-style system so maybe I'll have to get used to the paperwork 😱. #patientchat
Ken Taylor @KenRayTaylor
CT: Glad I was able to join today. So nice to hear all the thoughts from everyone who participated. #PatientChat https://t.co/H6DAmsPVZK
nobism @nobismhealth
RT @LAlupusLady: Truly incredible experiences at #HIMSS18 and to start wrapping up the last day w/ #patientchat is a powerful reminder of w…
Savanna @SavannaBraun
T5: Having all the information about every treatment available for all conditions, even those in clinical trials, in one place. #PatientChat https://t.co/RPp4eoItaC
Jess Havens @jesshavens_
RT @ChronicallyJess: A3: tech is sparking a power shift in favor of greater equality between patients and clinicians. It wont/shouldn’t rep…
Savanna @SavannaBraun
T6: I’d make all the technology available and accessible for everyone to be able to use. #PatientChat https://t.co/R1gPIhqp3E
#patientchat content from Twitter.