#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
Profile | Tweet |
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![]() | Patient Chat @patientchat Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of interest |
![]() | Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself #patientchat |
![]() | Patient Chat @patientchat I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat |
![]() | Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
![]() | Patient Chat @patientchat Today's #patientchat is solely informational and not a substitute for speaking with a doctor who's familiar w/your medical needs and history |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Greetings, Earthlings!! Casey Q the Mighty Mouth here, all up in #HealthLiteracy + #openscience + #opendata + #RightCare 24/7/365 😎😎 #patientchat |
![]() | Barby Ingle Official @BarbyIngle Hello #PatientChat, I'm @BarbyIngle, Pres. of @powerofpain, author on pain topics, and #CheerleaderOfHOPE glad to be on with all of you this amazing day for an informative chat! https://t.co/y2C8aIQQn2 |
![]() | The Advocate Is In @TheAdvocateIsIn Claire here from DC! In and out today due to (oddly relevant) medical device set-up It’s half of a closed loop pancreas and calibration takes about 9 hours. If I don’t time it right, the machine will wake me up at 1 a.m. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc I'm Nicole Rochester. Physician, caregiver, patient advocate, and Founder/CEO of @yourgpsdoc. Happy to be here! #patientchat |
![]() | Patient Chat @patientchat You can view our Chat Etiquette and Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @patientchat: New to tweet chats? Follow hashtag #patientchat and include it in every tweet during the next hour. You can engage w/other… |
![]() | Alan Brewington @abrewi3010 Alan here. Photographer, #rheum, #chronicpain, #skier, #hiker, #mentalhealth patient storyteller. Hope you enjoy my story. #patientchat |
![]() | Richard Zhao @richardzhao Hello, Richard from Minneapolis is here. I am doing #PatientSentiment for #PtExp transparency. Great to meet everyone here. #patientchat |
![]() | Ken Taylor @KenRayTaylor Hello #PatientChat Glad to be here w you all. I am @KenRayTaylor, VP of @powerofpain, author on pain topics, and a caregiver. https://t.co/m0buQJKJh2 |
![]() | Heather McCullen @H_SalemOaks Hi #patientchat, checking in from Ann Arbor, MI representing @SalemOaks. @K_SalemOaks might be joining as well |
![]() | Patient Chat @patientchat Today's #patientchat topic is How Does Technology Benefit Patients https://t.co/f9TV4n47NO |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @TheAdvocateIsIn HAAAIII!! Looking forward to seeing you f2f in DC in a few weeks at #RightCare @lowninstitute conf 🙃🙃 #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @patientchat: Welcome to #patientchat - where patients, care partners, and advocates come to learn from each other and discuss topics of… |
![]() | Patient Chat @patientchat I will introduce new Topics with T1, T2... Please include corresponding T# at front of answer - hard to remember but helpful #patientchat |
![]() | Patient Empowerment Network @power4patients RT @patientchat: Today's #patientchat topic is How Does Technology Benefit Patients https://t.co/f9TV4n47NO |
![]() | ChronicallyJess @ChronicallyJess Hi! I’m jess! I’ve used varying degrees of technology over the years while managing chronic illness and I look forward to today’s chat! #patientchat https://t.co/aqgLN5mNUd |
![]() | The Advocate Is In @TheAdvocateIsIn @MightyCasey @lowninstitute Me, too! Wish Icould get to Datapalooza,but the day job needs attention,too. #patientchat |
![]() | Patient Chat @patientchat Time to start our topics. Here comes T1: https://t.co/f9TV4n47NO #patientchat |
![]() | Patient Chat @patientchat T1: Would you (or do you) use technology to help manage your health? Why or why not? #patientchat |
![]() | Barby Ingle Official @BarbyIngle T1: As an #ExtremeTimeCheater I know how important it is 2 save my energy pennies So I use tech like online patient portals, timers, apps & calendar 2 help me stay organised, manage my health & quick feedback from providers w/o having to go see them when not needed #PatientChat https://t.co/3ZJHajLBW7 |
![]() | Patient Empowerment Network @power4patients RT @patientchat: T1: Would you (or do you) use technology to help manage your health? Why or why not? #patientchat |
![]() | International Pain Foundation® @iPainOfficial RT @BarbyIngle: T1: As an #ExtremeTimeCheater I know how important it is 2 save my energy pennies So I use tech like online patient portal… |
![]() | Ken Taylor @KenRayTaylor RT @BarbyIngle: T1: As an #ExtremeTimeCheater I know how important it is 2 save my energy pennies So I use tech like online patient portal… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @TheAdvocateIsIn @lowninstitute Lown conf is great choice. Great folx. #patientchat |
![]() | Ken Taylor @KenRayTaylor T1: Yes of course, technology is a great way to manage your appointments, treatments and follow ups. With tech. comes better treatment options. #PatientChat https://t.co/krnc1LKgx3 |
![]() | Barby Ingle Official @BarbyIngle RT @KenRayTaylor: T1: Yes of course, technology is a great way to manage your appointments, treatments and follow ups. With tech. comes bet… |
![]() | Angela Cohen @angelee828 Hey all! Angela here joining from WI. 👋🏽 #patientchat |
![]() | International Pain Foundation® @iPainOfficial RT @KenRayTaylor: T1: Yes of course, technology is a great way to manage your appointments, treatments and follow ups. With tech. comes bet… |
![]() | Alan Brewington @abrewi3010 A1 I track workouts/break time walls with my #garmin watch and @CharityMiles. It’s rewarding to see the miles rack up. #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: I've always been early adopter of #tech - my 1st instant message was sent/received in 1980. So for me, #healthIT feels like Jetsons ep written by Edgar Allan Poe. #epicfail #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc @patientchat T1: The main technology I use for my own health and also when I was a caregiver for my dad is my smartphone. I use it to take notes at doctor’s appointments, to document medication lists, and to document the timeline of symptoms, just to name a few. #patientchat |
![]() | The Advocate Is In @TheAdvocateIsIn T1: Yup. A lot. After years of "just"using a glucose meter with about 6 shots/day, I moved to a pump, which normalized my life a lot. Now moving to a setup that marries a continuous glucose monitor and pump. The AI almost thinks for itselff. #patientchat |
![]() | iPain Foundation Research Projects @iPain_Research RT @KenRayTaylor: T1: Yes of course, technology is a great way to manage your appointments, treatments and follow ups. With tech. comes bet… |
![]() | Alan Brewington @abrewi3010 T1 my iPhone has my meds, amounts, appointments. I also store dad’s info on it as his primary care taker #patientchat |
![]() | Patient Empowerment Network @power4patients RT @yourgpsdoc: @patientchat T1: The main technology I use for my own health and also when I was a caregiver for my dad is my smartphone. I… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: TBH, I don't think #healthIT can hold a candle to the self-tracking tech that folx can use to track health or condition-related stuff. It's like we're on two parallel tracks w/GIANT berm between us, system v #epatient #patientchat |
![]() | ChronicallyJess @ChronicallyJess A1: I currently use tech to remind me to order/take meds, to maintain my labs (an app), and for virtual visits w/ my GI. I also emails my doc. I find it incredibly helpful, because it puts me in control. I’ve never found any loss of connection with my team, luckily. #patientchat https://t.co/URLagaa5Sk |
![]() | Patient Chat @patientchat Topic 2 (T2:) coming up…https://t.co/f9TV4n47NO #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: I mean, #diyps BUILT. CODE. FOR. AN. ARTIFICIAL. PANCREAS. using Github + hive-mind, and IT WORKS. Healthcare system? Still a Jetsons ep by EA Poe. #wearenotwaiting #t1d #patientchat |
![]() | Richard Zhao @richardzhao T1. Technology can improve my understanding treatment better. Also, monitoring vital signs to be aware my condition. #patientchat |
Ruth Laura Edlund @tdgor RT @MightyCasey: T1: TBH, I don't think #healthIT can hold a candle to the self-tracking tech that folx can use to track health or conditio… | |
![]() | Heather McCullen @H_SalemOaks Is it another topic though? I feel like the reliability of the information from heath tech and healthy skepticism should be central to the conversation. #patientchat https://t.co/q0xISj5szA |
![]() | Alan Brewington @abrewi3010 T1 with the gross amount of paperwork healthcare requires technology is a must. It’s the only check on healthcare in many respects. #patientchat |
![]() | Patient Chat @patientchat T2: If you don’t use health technology, why not? What are the barriers and challenges? #patientchat |
![]() | #WeAreNotWaiting RT @RTWeRNotWaiting RT @MightyCasey: T1: I mean, #diyps BUILT. CODE. FOR. AN. ARTIFICIAL. PANCREAS. using Github + hive-mind, and IT WORKS. Healthcare system?… |
![]() | Barby Ingle Official @BarbyIngle T2: Some people dont have access to internet, computers, smart phones, tablets or how to use them effectively. Many patients are low income and cant afford the gadgets that others like me use to stay organised and empowered online #PatientChat https://t.co/PTEaq2Ukd8 |
![]() | The Advocate Is In @TheAdvocateIsIn @MightyCasey I know. I can't think about it too much because the technology of it just blows my luddite mind. #patientchat |
![]() | Angela Cohen @angelee828 @patientchat T1: I use apps to monitor certain data, my notepad (on my phone) to take notes at appts or make lists to ask questions, my Apple Watch for HR/other tracking data when possible, and contact HCPs via online portal. Unless it’s urgent, then I call for faster response. #patientchat |
![]() | International Pain Foundation® @iPainOfficial RT @BarbyIngle: T2: Some people dont have access to internet, computers, smart phones, tablets or how to use them effectively. Many patient… |
![]() | iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T2: Some people dont have access to internet, computers, smart phones, tablets or how to use them effectively. Many patient… |
![]() | Ken Taylor @KenRayTaylor RT @BarbyIngle: T2: Some people dont have access to internet, computers, smart phones, tablets or how to use them effectively. Many patient… |
![]() | ChronicallyJess @ChronicallyJess @QuinlanTurner @patientchat Yes! Tech = educational access right at our fingertips - a blessing and a curse. I vote it’s still mainly a blessing when used wisely. This is the most important area that docs need to get on board supporting their patient to use, when used well can be empowering. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc T2: I am a tech user but many are reluctant to use technology due to lack of experience or privacy concerns. #patientchat https://t.co/tZUEWA3jG5 |
![]() | ChronicallyJess @ChronicallyJess A2: at times when I avoid technology, it’s simply because pen and paper still feels most comfortable for note taking, listing my main concern, and because there is something satisfying about keeping all my records in a binder, right on my desk. #patientchat https://t.co/H21iJAXW1v |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @BarbyIngle: T2: Some people dont have access to internet, computers, smart phones, tablets or how to use them effectively. Many patient… |
![]() | Alan Brewington @abrewi3010 T2 technology is a privilege, it requires access to money and other resources to many don’t have. #patientchat |
![]() | Ken Taylor @KenRayTaylor T2: Health technology can be fun to use on many levels. Genetics and DNA tracking, imaging, scans, medications and much more. Cost barriers come with anything new and waiting times for promising technologies. #PatientChat https://t.co/XVcMgunXxi |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @TheAdvocateIsIn Have you ever met @danamlewis ?? She's AMAAAAYZING. And a real human. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @ChronicallyJess: @QuinlanTurner @patientchat Yes! Tech = educational access right at our fingertips - a blessing and a curse. I vote it… |
![]() | Barby Ingle Official @BarbyIngle RT @KenRayTaylor: T2: Health technology can be fun to use on many levels. Genetics and DNA tracking, imaging, scans, medications and much m… |
![]() | International Pain Foundation® @iPainOfficial RT @KenRayTaylor: T2: Health technology can be fun to use on many levels. Genetics and DNA tracking, imaging, scans, medications and much m… |
![]() | iPain Foundation Research Projects @iPain_Research RT @KenRayTaylor: T2: Health technology can be fun to use on many levels. Genetics and DNA tracking, imaging, scans, medications and much m… |
![]() | Patient Empowerment Network @power4patients RT @ChronicallyJess: @QuinlanTurner @patientchat Yes! Tech = educational access right at our fingertips - a blessing and a curse. I vote it… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: I've already confessed to being a tech nerd of the 1st order. But so much of what's out there for health-related [whatever] is still pretty p***-poor when it comes to 360º management of anything. #patientchat |
![]() | The Advocate Is In @TheAdvocateIsIn @MightyCasey @danamlewis Saw her talk at 'Palooza last year, but didn't get to meet her. I wonder if she could hack my new one. #patientchat |
![]() | Patient Chat @patientchat Topic 3 (T3:) coming up…https://t.co/f9TV4n47NO #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @TheAdvocateIsIn @danamlewis I'd be happy to facilitate an intro. Remind me next week! #patientchat |
![]() | Alan Brewington @abrewi3010 T2 it’s easy for patients to live for the tech, should be living to live. For example, jeans feeling tight is just as good as a scale. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc [REDACTED USER] This is a very valid concern. #patientchat |
![]() | Patient Chat @patientchat T3: Has technology changed healthcare to benefit patients? If yes, how so? #patientchat |
![]() | Geeky Fox @TechKitsune The patient portals I have seen just being a patient is atrocious. Lack of UX design or lack of meaningful updates is huge. #patientchat |
![]() | Amanda G @LAlupusLady A2 I use Health IT to help track symptoms, monitor meds & connect to my community but not everyone has access. #patientchat #HIMSS18 https://t.co/qo58jSnqr4 |
![]() | Barby Ingle Official @BarbyIngle T3: Yes, products like medication & symptom tracking, daily health trackers like fitbit have all changed healthcare to benefit patients by helping us organize, be more responsible and help fill in cognitive changes from living with poor physical health #PatientChat https://t.co/ibwZQNeQyu |
![]() | The Advocate Is In @TheAdvocateIsIn @MightyCasey One of the best things about my new system is that I can upload info and share by giving my doc and nutritionist my login/password. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc @TechKitsune I agree! Most of them are horrible. #patientchat |
![]() | Ken Taylor @KenRayTaylor T3: Yes, tech has advanced treatments, medications and more. This speeds up the time of critical conditions that depend on quicker diagnosis. #PatientChat https://t.co/G3FKNf8zpE |
![]() | iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T3: Yes, products like medication & symptom tracking, daily health trackers like fitbit have all changed healthcare to bene… |
![]() | Patient Empowerment Network @power4patients @BarbyIngle Very true. We saw a need among older cancer patients & their caregivers and so developed the Digital Sherpa Program to help bridge the digital divide. https://t.co/UkOh9b74WU #patientchat |
![]() | Ken Taylor @KenRayTaylor RT @BarbyIngle: T3: Yes, products like medication & symptom tracking, daily health trackers like fitbit have all changed healthcare to bene… |
![]() | iPain Foundation Research Projects @iPain_Research RT @KenRayTaylor: T3: Yes, tech has advanced treatments, medications and more. This speeds up the time of critical conditions that depend o… |
![]() | Amanda G @LAlupusLady RT @patientchat: Today's #patientchat topic is How Does Technology Benefit Patients https://t.co/f9TV4n47NO |
![]() | International Pain Foundation® @iPainOfficial RT @BarbyIngle: T3: Yes, products like medication & symptom tracking, daily health trackers like fitbit have all changed healthcare to bene… |
![]() | International Pain Foundation® @iPainOfficial RT @KenRayTaylor: T3: Yes, tech has advanced treatments, medications and more. This speeds up the time of critical conditions that depend o… |
![]() | Your GPS Doc, LLC @yourgpsdoc T3: The use of tech in healthcare has benefitted patients, but it is severely underutilized and what is out there is not patient-centric nor physician-centric. Patient portals and the EMR are just two examples of tech with great potential but often miss the mark. #patientchat https://t.co/51f63ptrau |
![]() | Barby Ingle Official @BarbyIngle RT @KenRayTaylor: T3: Yes, tech has advanced treatments, medications and more. This speeds up the time of critical conditions that depend o… |
![]() | Amanda G @LAlupusLady RT @patientchat: T3: Has technology changed healthcare to benefit patients? If yes, how so? #patientchat |
![]() | Geeky Fox @TechKitsune I think we are on the right path to creating beneficial apps for patients! I love getting my RX notifications for refills and just pressing a number. Saves me time calling and them decifering. #patientchat |
![]() | Patient Chat @patientchat RT @BarbyIngle: T3: Yes, products like medication & symptom tracking, daily health trackers like fitbit have all changed healthcare to bene… |
![]() | Alan Brewington @abrewi3010 T3 I think as everyday passes #EHRs become better. I can now get hurt skiing in Utah and have my Idaho records relatively easy to get. #patientchat |
![]() | Amanda G @LAlupusLady @patientchat A3 at #HIMSS18 the Health IT community is passionate about improving the #patientexperience #patientchat |
![]() | ChronicallyJess @ChronicallyJess A3: tech is sparking a power shift in favor of greater equality between patients and clinicians. It wont/shouldn’t replace clinicians, but It CAN support patients to feel more involved and empowered in their care, which in turn could lead to better QOL + outcomes #patientchat |
![]() | The Advocate Is In @TheAdvocateIsIn T3: For me personally, yes. In just the time I've had T1D (27 years) there are more, and smaller, options. ITracking has become easier, and my disease has become more invisible, for better (mostly) or worse. #patientchat |
![]() | Enlightening Results 💡 @GraceCordovano Happy Friday #patientchat! Grace, private cancer advocate & patient Experience enhancer, joining from NJ |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @ChronicallyJess: A3: tech is sparking a power shift in favor of greater equality between patients and clinicians. It wont/shouldn’t rep… |
![]() | Amanda G @LAlupusLady RT @KenRayTaylor: T3: Yes, tech has advanced treatments, medications and more. This speeds up the time of critical conditions that depend o… |
![]() | Alan Brewington @abrewi3010 T3 Thanks to tech #cysticfibrosis patients can talk to each other since they can’t be in the same room. #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T3: saddest part of this whole question is the gap between patients' sense of progress, and #healthIT's delivery of patient-friendly tech. 100% certain that everyone on this chat has #polyportalitis syndrome, f'rinstance. SO. MANY. PORTALS. #patientchat |
![]() | Patient Chat @patientchat Topic 4 (T4:) coming up… #patientchat |
![]() | Patient Empowerment Network @power4patients RT @ChronicallyJess: A3: tech is sparking a power shift in favor of greater equality between patients and clinicians. It wont/shouldn’t rep… |
![]() | Alan Brewington @abrewi3010 T3 Thanks to tech patient stories are now validation and comfort to new patients. #patientchat |
![]() | Amanda G @LAlupusLady Getting ready for the last day of #HIMSS18 and @MagicJohnson is the closing keynote * so excited! #patientchat |
![]() | Amanda G @LAlupusLady RT @MightyCasey: T3: saddest part of this whole question is the gap between patients' sense of progress, and #healthIT's delivery of patien… |
![]() | Patient Chat @patientchat T4: What area of healthcare might positively benefit from health technology that isn’t already? #patientchat |
![]() | Patient Chat @patientchat RT @abrewi3010: T3 Thanks to tech patient stories are now validation and comfort to new patients. #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @abrewi3010: T3 Thanks to tech #cysticfibrosis patients can talk to each other since they can’t be in the same room. #patientchat |
![]() | Barby Ingle Official @BarbyIngle T4: Being online with health technology helps patients better their lives, but I would like to see more in standardized 1 EHR per patient, where we can incorporate tracking like fitbit, and medication synchronization into the process as well. #PatientChat https://t.co/9hf9Nqifef |
![]() | Enlightening Results 💡 @GraceCordovano @patientchat T3: Potential won’t be fully unlocked until at least basic tech is reimbursable, prescribable, universally implemented, & accessible. Broad range of tech adoption & use causes silos between patients & drs, between hospitals, between state borders. Get rid of the fax #Patientchat |
![]() | Amanda G @LAlupusLady T3 I have many Drs. but I don’t have a single complete EHR, wonder how that issue alone impacts patient care. #patientchat |
![]() | Ken Taylor @KenRayTaylor T4: Clinical trials and other promising treatment options like Stem Cell therapy can benefit greatly from technology. #PatientChat https://t.co/bgg925zOYD |
![]() | Amanda G @LAlupusLady RT @patientchat: T4: What area of healthcare might positively benefit from health technology that isn’t already? #patientchat |
![]() | Enlightening Results 💡 @GraceCordovano @MightyCasey Hey Casey! Great to see you #patientchat https://t.co/gWtboss5Cx |
![]() | International Pain Foundation® @iPainOfficial RT @KenRayTaylor: T4: Clinical trials and other promising treatment options like Stem Cell therapy can benefit greatly from technology. #Pa… |
![]() | ChronicallyJess @ChronicallyJess @BarbyIngle So true. Are there any programs in place to support this need among patients (or their caregivers)? #patientchat |
![]() | Alan Brewington @abrewi3010 T4 paperwork paperwork paperwork. This is a second diagnosis, a second reminder that I’m broken or dad is dead. #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @GraceCordovano: @patientchat T3: Potential won’t be fully unlocked until at least basic tech is reimbursable, prescribable, universally… |
![]() | iPain Foundation Research Projects @iPain_Research RT @KenRayTaylor: T4: Clinical trials and other promising treatment options like Stem Cell therapy can benefit greatly from technology. #Pa… |
![]() | Geeky Fox @TechKitsune I think something as simple as understanding labs would be nice. I know I received mine with a bunch of paperwork trying to do math to understand what were good levels and what wasn't. #patientchat |
![]() | Ken Taylor @KenRayTaylor RT @BarbyIngle: T4: Being online with health technology helps patients better their lives, but I would like to see more in standardized 1 E… |
![]() | Ken Taylor @KenRayTaylor RT @KenRayTaylor: T4: Clinical trials and other promising treatment options like Stem Cell therapy can benefit greatly from technology. #Pa… |
![]() | Angela Cohen @angelee828 @patientchat T2: One challenge is msgs/info isnt shared between health systems on some portals. IMO it can cause a communication barrier. Even in same health system, currently I can’t msg more than one of my drs/HCPs abt the same issue regarding multiple specialties. #patientchat |
![]() | Enlightening Results 💡 @GraceCordovano @ChronicallyJess @BarbyIngle @lisagualtieri has an exciting program for wearables #Patientchat |
![]() | Barby Ingle Official @BarbyIngle RT @KenRayTaylor: T4: Clinical trials and other promising treatment options like Stem Cell therapy can benefit greatly from technology. #Pa… |
![]() | Amanda G @LAlupusLady @patientchat A4 the growth of VR will continue to make important strides in healthcare from training the next gen of MDs to reducing pain in patients. #patientchat #HIMSS18 |
![]() | Heather 🇺🇸 @ZHeatherChamp Sorry to miss the #patientchat everyone! Will try to check in later. #pten #btsm |
![]() | ChronicallyJess @ChronicallyJess A4: in small ways, my life is already made better by tech in psychosocial aspects of managing chronic illness, but it’s no where near where it could be, and it doesn’t reach enough varied populations just yet. #patientchat https://t.co/Fm8aDrDufP |
![]() | Your GPS Doc, LLC @yourgpsdoc T4: I think telemedicine could be used more broadly among primary care providers, particularly for the elderly and those with disabilities, but really for everyone. Why sit in a waiting room for 30 minutes if you don't have to? #patientchat https://t.co/mYDD3gt516 |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T4: fully enabling #telehealth via phone/tablet/computer interface. BP, O2 sats, temp, otoscopes, all have interface tech avail. Would prevent need for many office visits, partic for rural populations. #patientchat |
![]() | 🌟 Sherry Reynolds ✨ Person-Centered Health @Cascadia @patientchat Tech has changed the relationship from passive recipient of care to partner in care with real time anywhere access My Epic EHR mobile interface lets me message the care team has my records, lets me chat with a nurse, shows real time waits #patientchat https://t.co/Ar1mo5Vxh2 |
![]() | Heidi Grabenstatter @PatientIntv T3: Patients and caregivers involved in designed of tech "to make life work" will benefit patients in powerful way. 2/2 #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @LAlupusLady: @patientchat A4 the growth of VR will continue to make important strides in healthcare from training the next gen of MDs t… |
![]() | Enlightening Results 💡 @GraceCordovano @patientchat T4: Virtual #clinicaltrials & #telemedicine across all disease states. Remote monitoring to assess behaviors outside the clinic will provide powerful insights #patientchat |
![]() | Patient Chat @patientchat Topic 5 (T5:) coming up…https://t.co/f9TV4n47NO #patientchat |
![]() | Barby Ingle Official @BarbyIngle not that I know of, the companies that make EHR programs/technology are not too willing to make programs that are shareable, that would be like Target/Walmart or Apple/Microsoft becoming one, can it happen? Yes. Will it... probably not :( #patientchat https://t.co/5vZfLOQwmr |
![]() | Amanda G @LAlupusLady FYI I have some 3D printed dice created by @wareFLO to help me decide what to do on social media in case I can’t decide. #patientchat #HIMSS18 https://t.co/hkuz2bJkbU |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @angelee828 @patientchat No real #data interchange between portals ever, at least that I'm aware of. Best you can do is download a CCD in PDF, and then share it in the other portal as attachment. How ... 2005. #patientchat #healthIT #polyportalitis |
![]() | ChronicallyJess @ChronicallyJess A4: tech could also help link providers across the country and globe to better support a consistent approach to care for patients, focusing on quality of life measurements and outcomes on a grand scale. #patientchat https://t.co/Fm8aDrDufP |
![]() | Your GPS Doc, LLC @yourgpsdoc @MightyCasey Great minds think alike! Telemedicine was my answer as well. #patientchat |
![]() | Patient Chat @patientchat T5: What emerging health technology gives you hope for the future? #patientchat |
![]() | Enlightening Results 💡 @GraceCordovano @patientchat T4: Machine learning to predict which patient populations will benefit from particular therapies where there aren’t gold standard biomarkers. #patientchat |
![]() | Barby Ingle Official @BarbyIngle T5: 3D technology and VR are my favorite emerging health technologies. I have taken classes on both and created some of my own 3D pieces at the local library her in AZ, and I create VR content with my husband for @powerofpain #iPain available on our youtube channel. #PatientChat https://t.co/wUWYuqixUW |
![]() | Heidi Grabenstatter @PatientIntv T3: Tech aimed at filling gaps and improving workflow in flawed healthcare system often forgets patients and caregivers. 1/2 #patientchat |
![]() | Ken Taylor @KenRayTaylor T5: I believe Stem Cell therapies is still in the early sages and provides hope to many conditions. #PatientChat https://t.co/VMipcKN0Si |
![]() | Amanda G @LAlupusLady RT @GraceCordovano: @patientchat T4: Virtual #clinicaltrials & #telemedicine across all disease states. Remote monitoring to assess behavio… |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @GraceCordovano: @patientchat T4: Machine learning to predict which patient populations will benefit from particular therapies where the… |
![]() | International Pain Foundation® @iPainOfficial RT @BarbyIngle: T5: 3D technology and VR are my favorite emerging health technologies. I have taken classes on both and created some of my… |
![]() | International Pain Foundation® @iPainOfficial RT @BarbyIngle: not that I know of, the companies that make EHR programs/technology are not too willing to make programs that are shareable… |
![]() | Amanda G @LAlupusLady RT @BarbyIngle: T5: 3D technology and VR are my favorite emerging health technologies. I have taken classes on both and created some of my… |
![]() | Geeky Fox @TechKitsune Cloud-based technology, integrations with other #healthcareIT systems. We need that bridge for better collaboration as patients. #patientchat |
![]() | iPain Foundation Research Projects @iPain_Research RT @KenRayTaylor: T5: I believe Stem Cell therapies is still in the early sages and provides hope to many conditions. #PatientChat https://… |
![]() | The Advocate Is In @TheAdvocateIsIn T5: see previous (closed loop pancreas) .. We are steps away from an entirely AI version. #patientchat |
![]() | Amanda G @LAlupusLady A5 as a patient/panelist at @virtualmedconf later this month I can’t say how important VR is and will be to impacting care and health #patientchat https://t.co/QWMpIjGHMy |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T5: Now that #diyps has proved that PATIENTS can create real tools to manage their conditions, gloves (and blinders) are OFF. Time for #epatient leaders to rally their communities to DIY #tech that WORKS. #wearenotwaiting #patientchat |
![]() | Alan Brewington @abrewi3010 T5 what gives me hope is patients like @danamlewis practicing #wearenotwaiting. The passion and design capabilities of patients is amazing. Tech is a tool, #QOL comes from people #patientchat |
![]() | #WeAreNotWaiting RT @RTWeRNotWaiting RT @MightyCasey: T5: Now that #diyps has proved that PATIENTS can create real tools to manage their conditions, gloves (and blinders) are O… |
![]() | #WeAreNotWaiting RT @RTWeRNotWaiting RT @abrewi3010: T5 what gives me hope is patients like @danamlewis practicing #wearenotwaiting. The passion and design capabilities of pati… |
![]() | Enlightening Results 💡 @GraceCordovano @patientchat T5: Blockchain!! Patient data ownership, transparency as to how data is used, transfer power to patients to choose who they share data with, own data readily available. Enough with these medical records requests & everyone profiting off patient data except patient #patientchat |
![]() | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Sorry, all, but I gotta bail. I'm caregiver team for a buddy who just had double knee replacement, I'm off to do my helper thing! Have a great weekend 🙃🙃 #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc T5: I'm hopeful that there will be continued improvements in the EMR. My wish is that one day (soon) we will have ONE unified EMR across all platforms and facilities. Magical thinking? Maybe. #patientchat https://t.co/BIR8wrvKXc |
![]() | Barby Ingle Official @BarbyIngle [REDACTED USER] @GraceCordovano @patientchat I actually still use mine quite often. fax machines still have purpose... for real. #patientchat |
![]() | Amanda G @LAlupusLady RT @abrewi3010: T5 what gives me hope is patients like @danamlewis practicing #wearenotwaiting. The passion and design capabilities of pati… |
![]() | Patient Chat @patientchat Topic 6 (T6:) coming up… #patientchat |
![]() | Angela Cohen @angelee828 @patientchat T3: So many wonderful ways! Access to my appt notes, (most) test results, contacting HCPs, and data tracking apps. Not to mention, the endless possibilities as is unfolds with (it seems) patients involved in the process which is a plus of course! ;) #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc RT @GraceCordovano: @patientchat T5: Blockchain!! Patient data ownership, transparency as to how data is used, transfer power to patients t… |
![]() | Enlightening Results 💡 @GraceCordovano @BarbyIngle [REDACTED USER] @patientchat What if there was an easier way? What if you didn’t have access to one? What if you didn’t know how to use a fax machine? I use a fax daily. Bc have to. #patientchat |
![]() | Amanda G @LAlupusLady FYI @brianeastwood is on #HIMSSTV during #patientchat |
![]() | ChronicallyJess @ChronicallyJess A5: tech is allowing me to connect w/ my clinician in really helpful ways. I love telehealth visits and apps that can track my labs, scopes, and scans. I look forward to a future with a 3D map of my own diseased organs with personalized care to my specific needs. #patientchat https://t.co/vf8ROyLQoW |
![]() | Patient Chat @patientchat T6: If you had unlimited resources to make a major change in healthcare, what technology would you create? #patientchat |
![]() | Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO @LAlupusLady That's right! If you can't decide what to do next, or simply wish to inject some healthy randomization into your Twitter life, contact @LAlupusLady and she will consult the Twitter dice 🎲🎲 and get right back to you! #patientchat #HIMSS18 #HIMSSmakers 😉 https://t.co/Hbx2pH5Mwa |
![]() | Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO RT @wareFLO: @LAlupusLady That's right! If you can't decide what to do next, or simply wish to inject some healthy randomization into your… |
![]() | Chuck Webster MD, MS AI, MS Systems Engineering @wareFLO RT @LAlupusLady: FYI I have some 3D printed dice created by @wareFLO to help me decide what to do on social media in case I can’t decide. #… |
![]() | Barby Ingle Official @BarbyIngle There is an easier way if you have internet access but not all do. :( but a lot dont have a landline anymore either, both landline and fax are still useful for me in personal and pro life #patientchat https://t.co/9LlVb5B4pr |
![]() | Barby Ingle Official @BarbyIngle T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But since I dont have unlimited funding, I will continue to create content that helps people achieve proper & timely access to care more reliably #PatientChat https://t.co/cVBXhDAr5l |
![]() | Geeky Fox @TechKitsune Everyone wants an all in one system. But I think that goes back to my last answer, I'd rather have a bridge for healthcare systems to talk to each other. I believe companies specialize in certain tech for a reason. #patientchat |
![]() | Amanda G @LAlupusLady Truly incredible experiences at #HIMSS18 and to start wrapping up the last day w/ #patientchat is a powerful reminder of why I share my #patientexperience |
![]() | Amanda G @LAlupusLady RT @patientchat: T6: If you had unlimited resources to make a major change in healthcare, what technology would you create? #patientchat |
![]() | Ken Taylor @KenRayTaylor T6: A machine that scans the body in real time 3D and allows you to pinpoint your own aches and pains along with blood work to find abnormalties and early diagnosis.#PatientChat https://t.co/T1r0NJaOnJ |
![]() | Patient Chat @patientchat RT @BarbyIngle: T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But si… |
![]() | International Pain Foundation® @iPainOfficial RT @BarbyIngle: T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But si… |
![]() | Barby Ingle Official @BarbyIngle RT @KenRayTaylor: T6: A machine that scans the body in real time 3D and allows you to pinpoint your own aches and pains along with blood wo… |
![]() | Ken Taylor @KenRayTaylor RT @BarbyIngle: T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But si… |
![]() | Ken Taylor @KenRayTaylor RT @BarbyIngle: There is an easier way if you have internet access but not all do. :( but a lot dont have a landline anymore either, both l… |
![]() | International Pain Foundation® @iPainOfficial RT @KenRayTaylor: T6: A machine that scans the body in real time 3D and allows you to pinpoint your own aches and pains along with blood wo… |
![]() | iPain Foundation Research Projects @iPain_Research RT @KenRayTaylor: T6: A machine that scans the body in real time 3D and allows you to pinpoint your own aches and pains along with blood wo… |
![]() | iPain Foundation Research Projects @iPain_Research RT @BarbyIngle: T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But si… |
![]() | Alan Brewington @abrewi3010 T6 something to make the communication between hospitals/doctors and caregivers, especially for young caregivers. #patientchat |
![]() | Heidi Grabenstatter @PatientIntv T6: It's not about taking on healthcare, it's about complementing what it offers. See https://t.co/oB8GiidiYD As patients and caregivers, we are experts. That is the one major takeaway from #HIMSS18. That makes you untapped innovators. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc T6: I would create technology that securely stores all patient information, allows for cloud-based uploads of new info during doctor visits/hospitalizations, and allows for 2-way communication with healthcare team. #patientchat https://t.co/2a0PDq7R85 |
![]() | Amanda G @LAlupusLady A6 if unlimited funds existed I would work with @BrennanSpiegel and a team to create a vast #VR pharmacy while finding partners to supply enough headsets for all chronic and hospitalized patients that need them. #patientchat |
![]() | Amanda G @LAlupusLady RT @BarbyIngle: T6: I would create a universal EHR system usable by the patient, all of their providers & caregivers simultaneously. But si… |
![]() | Alan Brewington @abrewi3010 T6 there has to be a better paperwork solution than we have now. We should be able to see a doc without having to sign 5 minutes worth of paperwork before and 2 hours worth afterwards #patientchat |
![]() | Rie Lopez, MPH (she/her) @RieOfLetters Slept through the majority of #patientchat, as I am having a challenging day. Still trying to figure out this intense fatigue and joint pain. #chronicillness #ChronicPain |
![]() | Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
![]() | Julie Maas @JulieWMaas RT @LAlupusLady: T3 I have many Drs. but I don’t have a single complete EHR, wonder how that issue alone impacts patient care. #patientchat |
![]() | Alan Brewington @abrewi3010 T6 #medx ideation and companionship and love without the travel. #patientchat |
![]() | Barby Ingle Official @BarbyIngle CT: Be good to each other, Do what you can, Try your best and remember to follow @BarbyIngle, @powerofpain and @KenRayTaylor for motivation, inspiration, tools, and positive care! #CheerleaderofHOPE signing off of this weeks #PatientChat https://t.co/EcNWK5fcbD |
![]() | Amanda G @LAlupusLady RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT… |
![]() | Your GPS Doc, LLC @yourgpsdoc CT: So many of us posted about a universal EMR and easy access to health records by patients and caregivers. It's 2018 and the time is NOW. #patientchat https://t.co/ecxUUmRtQ6 |
![]() | Amanda G @LAlupusLady CT wondering why my EMR is not complete, Drs portals won’t connect to share my data. It is 2018, we each have one SS# and one driver’s license, why not one EMR? #patientchat |
![]() | Alan Brewington @abrewi3010 [REDACTED USER] Interesting! Thank you for sharing. I will study this more. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc [REDACTED USER] I get it. But what about on days when you're really not feeling up to it but want to "see" your doctor anyway? It certainly doesn't replace face-to-face but can be a nice supplement. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc The painful truth! #patientchat https://t.co/pFpZDmT6rU |
![]() | Patient Chat @patientchat #patientchat is your community. Thanks for joining in today, please reach out to @power4patients or @patientchat anytime |
![]() | Alan Brewington @abrewi3010 Ct in order to continue to encourage and support patients like @danamlewis we need to ensure info remains free and celebrated. This includes failures, especially failures #patientchat |
![]() | Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15 minutes past the hour |
![]() | 🌟 Sherry Reynolds ✨ Person-Centered Health @Cascadia CT: We need to change the culture of healthcare and the role of “patients" It isn’t that “everyone will be a patient some day” but that "people who are sometimes patients are the real primary care givers." #patientchat #HIMSS18 https://t.co/JRZbtcmqJB |
![]() | Patient Chat @patientchat The next Empowered #patientchat will be Friday, March 23rd at 10amPT | 1pmPT. Hope to see you there! |
![]() | Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
![]() | Alan Brewington @abrewi3010 @RieOfLetters That would be the dream! #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc @patientchat Thanks for hosting! Awesome, as always. #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc [REDACTED USER] :-) #patientchat |
![]() | Your GPS Doc, LLC @yourgpsdoc @SavannaBraun See my answer for T6. Almost identical! This needs to happen. #patientchat |
![]() | Ken Taylor @KenRayTaylor CT: Glad I was able to join today. So nice to hear all the thoughts from everyone who participated. #PatientChat https://t.co/H6DAmsPVZK |
![]() | nobism @nobismhealth RT @LAlupusLady: Truly incredible experiences at #HIMSS18 and to start wrapping up the last day w/ #patientchat is a powerful reminder of w… |
