#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
– ().
See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients. |
 | Patient Empowerment Network @power4patients RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat here: You can find the topics we'll cover on today’s Empowered #patientchat here: https://t.co/ASykeLdQBH |
| Patient Chat @patientchat The Empowered #patientchat is a project of @power4patients and @intakeme |
 | Enlightening Results 💡 @GraceCordovano Happy, happy Friday #patientchat! Grace, private cancer patient advocate, joining in from NJ https://t.co/ZMuN1WVlWB |
| Patient Chat @patientchat ICYMI: Read about @power4patients new role hosting Empowered #patientchat https://t.co/J2OUBUasbn |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
 | Christina Lizaso @btrfly12 RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Christina Lizaso @btrfly12 RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat here: You can find the topics we'll cover on today’s Empowered #patientchat here: https://t.co/ASykeLdQBH |
| Patient Chat @patientchat I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat. #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
 | Lisa Davis Budzinski @lisadbudzinski RT @patientchat: You can find the topics we'll cover on today’s Empowered #patientchat here: You can find the topics we'll cover on today’s Empowered #patientchat here: https://t.co/ASykeLdQBH |
| Patient Chat @patientchat Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #patientchat |
 | Bob Tufts @TuftsB #patientchat ' Bob Tufts. Putting teaching work aside to be on as long as I can. @MLIWI |
 | Alan Brewington @abrewi3010 Alan here. An #arthritis and #Mentalhealth patient from smokey Boise Idaho. #patientchat https://t.co/WOvVNFF1lT |
| Christina Lizaso @btrfly12 Hi #patientchat - I'm passionate about community engagement and health. You'll find me tweeting #gyncsm #breakthroughcrew #nsgcgenepool |
 | Kimberly Amelia @fireflyrn84 I'm Kim, RN turned full time patient, #breakthroughcrew ambassador @patientslikeme Team of Advisors 2016-2017 #patientchat |
| Patient Chat @patientchat You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat |
| Enlightening Results 💡 @GraceCordovano @btrfly12 Hi Christina! Great to see you here today. #patientchat |
| Patient Empowerment Network @power4patients Andrea here from PEN. Looking forward to talking about the role of #patientempowerment in prevention/risk management #patientchat |
| Kimberly Amelia @fireflyrn84 Also #autonomicdysfunction blogger and #raredisease advocate amongst a few things :) #patientchat |
| Enlightening Results 💡 @GraceCordovano @fireflyrn84 @patientslikeme Hi Kim! Long time no talk 😊 #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is How Does an Empowered Patient Approach Prevention? |
| Lisa Davis Budzinski @lisadbudzinski Lisa here from Florida. Pt & advocate. I'm all about the #PatientPerspective #patientchat |
 | Trisha Bundy @bundytr5 RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Kimberly Amelia @fireflyrn84 @GraceCordovano @patientslikeme I know! Feels like it was just a couple hours ago, strange how that happens! ;) #patientchat |
| Trisha Bundy @bundytr5 RT @patientchat: Today's #patientchat topic is How Does an Empowered Patient Approach Prevention? |
| Kimberly Amelia @fireflyrn84 @lisadbudzinski Hi Lisa! #patientchat |
| Enlightening Results 💡 @GraceCordovano @lisadbudzinski Hi Lisa! How are you managing with Irma prep? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @fireflyrn84 Hi Kim! Always good to see you✨ #Patientchat |
| Patient Empowerment Network @power4patients @lisadbudzinski Glued to weather channel watching #hurricaneirma coverage & praying for family and friends in So FL. Stay safe! #patientchat |
| Patient Chat @patientchat Time to start our topics. Revision to T1 based on conversation on Twitter today #patientchat |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Hey, running in a little late. Casey Quinlan here, #rightcare #s4pm #opendata #openscience activist. #healthliteracy evangelist #patientchat |
| Patient Chat @patientchat T1: Is prevention a misnomer? Should focus be on risk reduction? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano Hi Grace! Slow going #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: T1: T1: Is prevention a misnomer? Should focus be on risk reduction? #patientchat |
 | Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba Hi all. I'm Shereese here in Maryland. #patientchat https://t.co/j0Jk8Y4hvO |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: Is prevention a misnomer? Should focus be on risk reduction? #patientchat |
 | Open Science @_open_science_ RT @MightyCasey: Hey, running in a little late. Casey Quinlan here, #rightcare #s4pm #opendata #openscience activist. #healthliteracy evangelist #patientchat |
 | ElizabethKelly, Ph.D @Elizabe85727641 Good afternoon everyone, Liz Kelly, relevant 4 both people/#communities, indicates need for both #prevention & #risk study #patientchat |
| Christina Lizaso @btrfly12 Prevention pretty common language and makes some sense in population health. For N=1 risk reduction almost always more accurate #patientchat |
| Kimberly Amelia @fireflyrn84 @power4patients @lisadbudzinski Prayers for all! #Patientchat It's been very interesting from a healthcare standpoint listening to the preparation |
| Bob Tufts @TuftsB #patientchat - and one of my pet peeves, we need to get more men involved in these interactions! |
| Christina Lizaso @btrfly12 With cervical cancer, we actually have the science to prevent almost all of it - about the only time I use the word prevention. #patientchat |
| Enlightening Results 💡 @GraceCordovano @MightyCasey Hi Casey! Happy Friday! #patientchat |
| Enlightening Results 💡 @GraceCordovano @lisadbudzinski Stay safe and keep us posted #patientchat |
| Kimberly Amelia @fireflyrn84 A1: Prevention is a concept; you can't change your genetics, but risk reduction is something you can work on actively #patientchat |
 | Trista @MommyUpgrade RT @btrfly12: With cervical cancer, we actually have the science to prevent almost all of it - about the only time I use the word prevention. #patientchat |
| Alan Brewington @abrewi3010 T1 I think prevention is like perfection, it might be unattainable but is a legit bar to work towards still. #patientchat |
 | Rie Lopez, MPH (she/her) @RieOfLetters RT @fireflyrn84: Marking this on the calendar!! #patientchat #breakthroughcrew https://t.co/zMx827s4iX |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @btrfly12 Personal prevention, a term not used as much as it should be IMHO, offers this hope #patientchat |
| Enlightening Results 💡 @GraceCordovano T1: Depends on disease & status. In general, prefer to encourage wellness. Prevention where supported by clinical evidence. #patientchat |
| Kimberly Amelia @fireflyrn84 @lisadbudzinski @power4patients So ridiculous! That's another #patientchat by itself! Disaster preparedness for a patient and healthcare system |
| Bob Tufts @TuftsB #patientchat - T1 - Sometimes you can't avoid a disease (in my case myeloma), but best to try to be healthy anyway to be able to fight it |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T1 Prevention should be personalized if it's to be realized. You can reduce risk by personalizing your approach to prevention #patientchat |
| Christina Lizaso @btrfly12 @TuftsB always great to see and support male advocates such as u + @abrewi3010 @Rossco006 @martin_lemieux @kreisr1 @gratefull080504 #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T1: I dunno as average humans (aka gen-pop) have enough understanding of what "risk" means to be able to participate? #patientchat |
| Patient Chat @patientchat Topic 2 (T2:) coming up… #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @ShereesePubHlth: T1 Prevention should be personalized if it's to be realized. You can reduce risk by personalizing your approach to prevention #patientchat |
| Alan Brewington @abrewi3010 RT @btrfly12: @TuftsB always great to see and support male advocates such as u + @abrewi3010 @Rossco006 @martin_lemieux @kreisr1 @gratefull080504 #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T1 Prevention not a misnomer =practice/evidence for needed action, risk=result of prevention; relevant 4 health practices dev. #patientchat |
| Kimberly Amelia @fireflyrn84 Prevention has a better "ring" to it for media and also patients. From the healthcare standpoint, risk reduction more accurate #patientchat |
| Lisa Davis Budzinski @lisadbudzinski T1 It probably should be both. There are so many conditions that can be prevented #patientchat https://t.co/NmqdQquiuQ |
| Patient Chat @patientchat T2: How do you identify your risks? Does knowing your risks help you make healthier choices? #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T2: T2: How do you identify your risks? Does knowing your risks help you make healthier choices? #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: T2: T2: How do you identify your risks? Does knowing your risks help you make healthier choices? #patientchat |
| Alan Brewington @abrewi3010 @btrfly12 @TuftsB @Rossco006 @martin_lemieux @kreisr1 @gratefull080504 We definitely need more males telling their stories! #patientchat |
| Christina Lizaso @btrfly12 T2: I finally underwent genetic testing. Now piecing together own plan of action and trying to prioritize nutrition and more. #patientchat |
 | Heather 🇺🇸 @ZHeatherChamp @patientchat A1: Absolutely a misnomer! #PatientChat #pten |
 | Anne Polta @AnnePolta @MightyCasey I think this will require a complete reframing of how we collectively talk about "prevention". #patientchat |
| Christina Lizaso @btrfly12 T2: Knowing the mutation puts me at higher risk has spurred me to focus more on health, but even w/ that road map murky #patientchat |
| Heather 🇺🇸 @ZHeatherChamp RT @fireflyrn84: A1: A1: Prevention is a concept; you can't change your genetics, but risk reduction is something you can work on actively #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T2: Family history. Lifestyle stuff (smoking, exercise, food, etc). Habits are hard to shift, but knowledge is power. #patientchat |
| Enlightening Results 💡 @GraceCordovano T2: Family history may offer insights but lightening can strike even the healthiest person.Genetics & environment = unknowns #patientchat |
| Alan Brewington @abrewi3010 T2 I don't identify my risks 1st. I start with my quality of life then branch out from there. #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T2 Id risk via: environment, diet, exercise, knowledge of family hx, listen to body, yes, knowledge = power to advocate/learn #patientchat |
 | Robyn Stoller @CancerHawk RT @patientchat: Join #patientchat Fri 9/8 1pmET | 10amPT as we discuss health prevention https://t.co/KzY7hrpRdH https://t.co/uUnbRWMNaE |
| Kimberly Amelia @fireflyrn84 A2: Risks ID by dr at times, but we must be aware also. Family hx is so important to know. Once aware then modify to lower risk #patientchat |
| Heather 🇺🇸 @ZHeatherChamp A2: Great benefit to know family history of conditions, etc. if not known, be ACTIVE in your own health management. #patientchat #pten |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @AnnePolta Yep. And with all the #science denial in the public square, along with fake woo-woo bullsh*t, it's a slog. #patientchat |
| Patient Empowerment Network @power4patients T1 Maybe a little of both. Some illness can be prevented, others not but risk, if IDed early and understood, can be managed #patientchat |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T1: T1: Depends on disease & status. In general, prefer to encourage wellness. Prevention where supported by clinical evidence. #patientchat |
| Christina Lizaso @btrfly12 RT @TuftsB: #patientchat - T1 - Sometimes you can't avoid a disease (in my case myeloma), but best to try to be healthy anyway to be able to fight it |
 | Tatyana Fedotova PhD @Dr_Fedotova RT @power4patients: T1 Maybe a little of both. Some illness can be prevented, others not but risk, if IDed early and understood, can be managed #patientchat |
| Kimberly Amelia @fireflyrn84 We're in the prior authorization stages for genetic and mitochondrial testing for myself to try to ID for plan of care/treat #Patientchat https://t.co/hZo5pQ5U2W |
| Christina Lizaso @btrfly12 RT @abrewi3010: T2 I don't identify my risks 1st. I start with my quality of life then branch out from there. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @TuftsB I so agree. To much stigma that should also be addressed when marketing for prevention & risks #patientchat |
| Alan Brewington @abrewi3010 T2 when I #ski I know there are risks but I'm after a smile. Life should be the same. #patientchat |
| Anne Polta @AnnePolta T2 Personal medical history can alter your risks. I accumulated additional long-term risk b/c of cancer tx. #patientchat |
| Bob Tufts @TuftsB #patientchat - Start w/family backgtound & despite what some MPH's say, get regular checkups for a baseline. Caught my cancer just in time. |
| Christina Lizaso @btrfly12 I think prevention can come along with implication that you didn't do something if you still get sick. Tricky proposition. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski T2 It depends on the condition. Obviously we're probably talking about the ones that we're not born with ✨ #Patientchat https://t.co/17bx7h41rW |
| Christina Lizaso @btrfly12 You can reduce your breast cancer risk, but even if caught early and you do "everything right" you may not prevent mets later. #patientchat |
| Enlightening Results 💡 @GraceCordovano @fireflyrn84 Grueling part of the process. Wishing you both luck #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey +1 MT @btrfly12: I think prevention has implication that you didn't do something if you still get sick. Tricky proposition. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @TuftsB Yes! Baselines are so important in healthcare #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up… https://t.co/ASykeLdQBH #patientchat |
| Patient Empowerment Network @power4patients T2: 1 of the best ways to become more health literate is to understand your risk https://t.co/QUXhS74pkw @MightyCasey #patientchat |
| Patient Empowerment Network @power4patients RT @btrfly12: I think prevention can come along with implication that you didn't do something if you still get sick. Tricky proposition. #patientchat |
| Christina Lizaso @btrfly12 @TuftsB @abrewi3010 @Rossco006 @martin_lemieux @kreisr1 @gratefull080504 adding in @Crohnoid as well! :) #patientchat |
| Patient Chat @patientchat T3: What are some challenges in getting regular screenings? #patientchat |
| Enlightening Results 💡 @GraceCordovano @btrfly12 Yes very true. Some cancers clearly don't care about what preventive & healthy choices you made. #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @patientchat: T3: T3: What are some challenges in getting regular screenings? #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: T3: T3: What are some challenges in getting regular screenings? #patientchat |
| Alan Brewington @abrewi3010 RT @RonnyAllan1: |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: What are some challenges in getting regular screenings? #patientchat |
| Bob Tufts @TuftsB #patientchat - T2 I am now in a clinical ttial. Oncologist spent the time with me to outline the program and + and - of it. Helpful. |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba T3 Access, SDOH, trust #patientchat |
| Alan Brewington @abrewi3010 T3 social stigma. Money. Time. #patientchat |
 | CP Nerve Center @Cpnervecenter Hi everyone. I'm Becky jumping in late from Washington state #patientchat |
| Christina Lizaso @btrfly12 #patientchat related reading from @coffeemommy - Prevention vs. Risk Reduction vs. Screening https://t.co/wR2cqSEGDW |
| Enlightening Results 💡 @GraceCordovano T3: Reimbursement! You may want earlier screening, in light of family history, but it may not be covered. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T3: ACCESS TO CARE (health coverage). Social determinants. Lack of trust in system. Risk of incidentalomas + wallet biopsies. #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters Being a chat bystander today. Amazing information on prevention & patient empowerment. Follow #patientchat. |
| Patient Empowerment Network @power4patients T3: getting screenings paid for, making time to fit regular screenings into already packed schedules, the list goes on...&on... #patientchat |
| Kimberly Amelia @fireflyrn84 Quality of life is so important and honestly not acknowledged nearly often enough with #chronic or #incurable conditions. #Patientchat https://t.co/Wfoaw1yVkD |
| Patient Chat @patientchat RT @MightyCasey: T3: T3: ACCESS TO CARE (health coverage). Social determinants. Lack of trust in system. Risk of incidentalomas + wallet biopsies. #patientchat |
| Bob Tufts @TuftsB #patientchat - T3 - Will insurance cover the tests? Will.they nickel and dime us? |
| Patient Empowerment Network @power4patients RT @TuftsB: #patientchat - T2 I am now in a clinical ttial. Oncologist spent the time with me to outline the program and + and - of it. Helpful. |
| Alan Brewington @abrewi3010 T3 health literacy - the value of screening vs idea that screenings just make money for healthcare #patientchat |
| Enlightening Results 💡 @GraceCordovano T3: Disagreement in scientific reports justifying early screening benefits. Seems there's always a new study refuting the last #patientchat |
| Kimberly Amelia @fireflyrn84 A3: Honestly for me, I have so many doctor appts already and see my primary monthly, so it feels like annual physical is a joke #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T3 $$$ to pay for initial testing to support symptoms without signs, MD. support for testing, HC research that limits focus #patientchat |
| Enlightening Results 💡 @GraceCordovano @TuftsB No. And yes. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T3: Screening is revenue chase like all US healthcare. I.e. colonoscopy only 1 of 3 CDC guideline screens, but MDs don't tell. #patientchat |
| Enlightening Results 💡 @GraceCordovano RT @MightyCasey: T3: T3: ACCESS TO CARE (health coverage). Social determinants. Lack of trust in system. Risk of incidentalomas + wallet biopsies. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @Cpnervecenter Hi partner! I'm here for a bit. Glad we could tag team today✨ #patientchat |
| Alan Brewington @abrewi3010 T3 if I feel good why should I go to the doc? #patientchat |
| CP Nerve Center @Cpnervecenter A3 Getting insurance to pay for it & an MD to order it. If it's not on the list of routine issues it's often huge pain. #patientchat |
| Christina Lizaso @btrfly12 @TuftsB @abrewi3010 @Rossco006 @martin_lemieux @kreisr1 @gratefull080504 and @RonnyAllan1 - who else? :) #patientchat |
| Kimberly Amelia @fireflyrn84 A3.2 I also think that those of us in healthcare are the worst at practicing what we preach to our own patients #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey In US, too much screening of those with health coverage, too little of populations without. #sdoh #rightcare #patientchat https://t.co/s5fwAlvp2X |
| Lisa Davis Budzinski @lisadbudzinski RT @Cpnervecenter: A3 Getting insurance to pay for it & an MD to order it. If it's not on the list of routine issues it's often huge pain. #patientchat |
| Enlightening Results 💡 @GraceCordovano @MightyCasey Incidentalomas are almost a given & direct roller coaster ride to terror. Scanxiety is real. #patientchat |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T3: T3: Reimbursement! You may want earlier screening, in light of family history, but it may not be covered. #patientchat |
| Alan Brewington @abrewi3010 RT @MightyCasey: In US, too much screening of those with health coverage, too little of populations without. #sdoh #rightcare #patientchat https://t.co/s5fwAlvp2X |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @GraceCordovano I know, I have a #cancer history. But the wallet biopsy stuff is also still too present in US system. #patientchat |
| Enlightening Results 💡 @GraceCordovano @RonnyAllan1 @patientchat Excellent point. Understanding guidelines is important though can be difficult for many patients. #patientchat |
| Christina Lizaso @btrfly12 T3 screening guidelines change - the changes in longer pap intervals actually play out to less yearly appointments for some... #patientchat |
| Bob Tufts @TuftsB T2 -Fortunate my GP did the extra test. Saw I was exhibiting results closer to a 75 year old. #PATIENTCHAT https://t.co/6qiIDui3cu |
| Christina Lizaso @btrfly12 RT @abrewi3010: T3 health literacy - the value of screening vs idea that screenings just make money for healthcare #patientchat |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T3: T3: Disagreement in scientific reports justifying early screening benefits. Seems there's always a new study refuting the last #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @GraceCordovano IOW, if you have coverage, too much incentive to find something to "treat" you for. #patientchat |
| Patient Chat @patientchat Topic 4 (T4:) coming up…https://t.co/ASykeLdQBH #patientchat |
| Enlightening Results 💡 @GraceCordovano @MightyCasey It's terrible. So important that you pointed that out. #patientchat |
| Kimberly Amelia @fireflyrn84 Also screening guidelines change so frequently. It's hard enough for providers to keep up, let alone a patient! #patientchat |
| Christina Lizaso @btrfly12 RT @Cpnervecenter: A3 Getting insurance to pay for it & an MD to order it. If it's not on the list of routine issues it's often huge pain. #patientchat |
| Christina Lizaso @btrfly12 RT @fireflyrn84: A3.2 I also think that those of us in healthcare are the worst at practicing what we preach to our own patients #patientchat |
| Patient Chat @patientchat T4: Why do you think it often takes a serious illness before people take their health seriously? #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @patientchat: Topic 4 (T4:) coming up…https://t.co/ASykeLdQBH #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: Why do you think it often takes a serious illness before people take their health seriously? #patientchat |
| Enlightening Results 💡 @GraceCordovano @MightyCasey There's always another test just in case. Does the ruling out and monitoring ever stop? #patientchat |
| Alan Brewington @abrewi3010 @btrfly12 @TuftsB @Rossco006 @martin_lemieux @kreisr1 @gratefull080504 @RonnyAllan1 @JamieChurch2 @mattfit4lyfe @nickdawson @ProstheticMedic @iam_spartacus are great male advocates. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T3: Paying attention to the "Glover effect" (use Dartmouth Atlas for that) can also open people's eyes to over/underuse, too #patientchat |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba RT @patientchat: T4: T4: Why do you think it often takes a serious illness before people take their health seriously? #patientchat |
| Rie Lopez, MPH (she/her) @RieOfLetters This! At least a million times over. https://t.co/X4OyhmfXFh |
| Christina Lizaso @btrfly12 RT @fireflyrn84: Also screening guidelines change so frequently. It's hard enough for providers to keep up, let alone a patient! #patientchat |
| Christina Lizaso @btrfly12 RT @Crohnoid: |
| Kimberly Amelia @fireflyrn84 T4: I think a serious illness gives a glimpse of mortality. Until then we are all invincible or so we think! #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: T4: T4: Why do you think it often takes a serious illness before people take their health seriously? #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @GraceCordovano <snark font> CYA Medicine - best in the world!! </snark font> #patientchat |
| Enlightening Results 💡 @GraceCordovano T4: Taking life for granted can be so easy. It's human nature to feel the next moment is promised. #patientchat |
| Lisa Davis Budzinski @lisadbudzinski T4 I think life gets in the way. Taking our minds in so many directions in a daily basis. A lot of juggling #patientchat https://t.co/ujZLhuPwu8 |
| ElizabethKelly, Ph.D @Elizabe85727641 T4 Health = blessing, doing the right things, illness = results of not doing/behaving correctly & need to be awakened #patientchat |
| Kimberly Amelia @fireflyrn84 Amen to this!! CYA! #Patientchat https://t.co/oGMzYiO7eC |
| Bob Tufts @TuftsB #patientchat T4 - we think we are indestructible, that (fill.in the blank) will never happen to us. |
| Shereese Maynard, MS; MBA 😷 She/Her @ShereeseMayMba @patientchat T4 Heightened awareness. The threat of a serious illness prompts makes QOL negative impact a real possibility for most #patientchat |
| Christina Lizaso @btrfly12 T4 I definitely think it is challenging to get people involved w/ healthcare change who only go to doc once/year. #patientchat |
| Alan Brewington @abrewi3010 T4 quality of life is better eating cookies, #skiing, #hiking, #photographer, creating art, #designthinking #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T4: Stigma of "illness" is #1 in our culture. Sickness is seen as punishment for [something] in Calvinist thinking. #patientchat |
 | Sexy Health Tips @sexyhealthtips RT @patientchat: T4: T4: Why do you think it often takes a serious illness before people take their health seriously? #patientchat |
| CP Nerve Center @Cpnervecenter A4 Until u have a crisis of your own or with someone close to you, you're invincible! We feel GREAT until suddenly we don't. #patientchat |
| Kimberly Amelia @fireflyrn84 Absolutely spot on! #patientchat https://t.co/x6nk2udOIF |
| Kimberly Amelia @fireflyrn84 RT @Cpnervecenter: A4 Until u have a crisis of your own or with someone close to you, you're invincible! We feel GREAT until suddenly we don't. #patientchat |
| Enlightening Results 💡 @GraceCordovano @MightyCasey Seriously love you casey! #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T4: Also, absent any impetus otherwise, who TF wants to wind up dealing with US medical-industrial complex bill-o-rama? #patientchat |
| Alan Brewington @abrewi3010 T4 it's bc we treat #healthcare as a commodity instead of a right. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @GraceCordovano #patientchat https://t.co/VvGM6jtNng |
| Christina Lizaso @btrfly12 RT @MightyCasey: T4: T4: Stigma of "illness" is #1 in our culture. Sickness is seen as punishment for [something] in Calvinist thinking. #patientchat |
| Patient Empowerment Network @power4patients T4: It's human nature to take our health for granted & making changes based on our risk isn't easy. #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @Crohnoid WHAT. A. GREAT. IDEA. #patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: T4 it's bc we treat #healthcare as a commodity instead of a right. #patientchat |
| Bob Tufts @TuftsB @fireflyrn84 And let's be honest. The healthcare system is awful, even if you like your physician. We avoid it if we can. #patientchat |
| Christina Lizaso @btrfly12 RT @TuftsB: @fireflyrn84 And let's be honest. The healthcare system is awful, even if you like your physician. We avoid it if we can. #patientchat |
| Alan Brewington @abrewi3010 T4 we lose control of our time to #healthcare time. Healthcare time is not conducive to a high #QOL #patientchat |
| Kimberly Amelia @fireflyrn84 @TuftsB It is horrible! Who wants to get into something that isn't going to give adequate care if/when you need it? #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming up…https://t.co/ASykeLdQBH #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T4: Simply trying to make an appt, or deal with an insurance issue, can be a day you'll never get back. Add $$$? #fail #patientchat |
| Bob Tufts @TuftsB #patientchat T4 - due to my trial, I have to see my oncologist once a week. Burdensome early. Now resigned/accepting. Paying it forward. |
| Christina Lizaso @btrfly12 RT @abrewi3010: T4 we lose control of our time to #healthcare time. Healthcare time is not conducive to a high #QOL #patientchat |
 | NJ Rare Diseases @NJRareDiseases RT @myopennotes: Patient advocates: Patient advocates: Let us know if you have questions on how to access these passes! #patientsincluded #everyoneincluded #patientchat https://t.co/AaIBw5NEkH |
 | Ellynn Szoke @ellynnszoke RT @myopennotes: Patient advocates: Patient advocates: Let us know if you have questions on how to access these passes! #patientsincluded #everyoneincluded #patientchat https://t.co/AaIBw5NEkH |
| Patient Chat @patientchat T5: How can we keep this conversation going? #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Srsly, folks, we gotta go waaaay upstream to really fix this. Like K-12 upstream. #healthliteracy https://t.co/BY4g7tDh0o #patientchat |
| Kimberly Amelia @fireflyrn84 It's literally almost a full time job dealing with insurance and dr offices who don't speak to each other. Pay me not them! #patientchat |
| Patient Empowerment Network @power4patients T4: On anti-inflam diet due to fam history of AI diseases. Often wonder if it's worth it but look at my kids & keep on truckin #patientchat |
| Alan Brewington @abrewi3010 T5 we need to get health literacy and community health into our education system.#patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: How can we keep this conversation going? #patientchat |
| Kimberly Amelia @fireflyrn84 T5: Raise awareness, practice what we preach, and identify risks along with modifying what we can. That's what we all can do #patientchat |
| Christina Lizaso @btrfly12 RT @MightyCasey: Srsly, folks, we gotta go waaaay upstream to really fix this. Like K-12 upstream. #healthliteracy https://t.co/BY4g7tDh0o #patientchat |
| Patient Chat @patientchat RT @fireflyrn84: T5: T5: Raise awareness, practice what we preach, and identify risks along with modifying what we can. That's what we all can do #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @Crohnoid I've got one brewing on #data brokers, based on a shit show I had with @AnthemInc + @QuestDX this week. They poked the bear. #patientchat |
| Bob Tufts @TuftsB #patientchat T5 - need to make our physicians allies in the process to push back against the forces that make access & choice in care hard |
| Patient Empowerment Network @power4patients RT @MightyCasey: Srsly, folks, we gotta go waaaay upstream to really fix this. Like K-12 upstream. #healthliteracy https://t.co/BY4g7tDh0o #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 T5 in US advocate for one-payer HC system, increase health literacy, show cost savings from healthy practices, not just illness #patientchat |
| Enlightening Results 💡 @GraceCordovano @MightyCasey Teaching my kids to speak for themselves at the dr, ask ?'s, repeat ?'s not answered. Culture changes require teaching next gen #patientchat |
 | Faces of Lung Cancer @LungCancerFaces Lung Cancer comes to mind... #patientchat #lcsm https://t.co/46YuCI72wZ |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey T5: Ongoing conversations in our communities - where we live, not just disease-related. Join #rightcare https://t.co/1mLidV7Cpq #patientchat |
| Christina Lizaso @btrfly12 At lot of things still go back to drinking lots of water, balance in diet and walking. Some things w/in our control. Rest... #patientchat |
| CP Nerve Center @Cpnervecenter A5 Keep networking with likeminded people(like all these tweeters) who want to change the system & help others in the process #patientchat |
| Alan Brewington @abrewi3010 T5 we need human centered #healthcare discussion in federal & state politics. #patientchat |
| Patient Empowerment Network @power4patients @abrewi3010 This is critically important #patientchat |
| Enlightening Results 💡 @GraceCordovano @abrewi3010 With a serious dose of #empathy included. #patientchat |
| Christina Lizaso @btrfly12 T5: We definitely need to keep encouraging people to get engaged in their own health - have to support with tools and systems. #patientchat |
| Bob Tufts @TuftsB @btrfly12 If we could only all get together for a drink or two we could solve many issues #patientchat |
| Enlightening Results 💡 @GraceCordovano @MightyCasey Zip codes often matter more than genetics #patientchat |
| Christina Lizaso @btrfly12 RT @GraceCordovano: @MightyCasey Zip codes often matter more than genetics #patientchat |
| Patient Empowerment Network @power4patients RT @GraceCordovano: @MightyCasey Zip codes often matter more than genetics #patientchat |
| Christina Lizaso @btrfly12 RT @fireflyrn84: T5: T5: Raise awareness, practice what we preach, and identify risks along with modifying what we can. That's what we all can do #patientchat |
| Christina Lizaso @btrfly12 RT @TuftsB: #patientchat T5 - need to make our physicians allies in the process to push back against the forces that make access & choice in care hard |
| Christina Lizaso @btrfly12 RT @Elizabe85727641: T5 in US advocate for one-payer HC system, increase health literacy, show cost savings from healthy practices, not just illness #patientchat |
 | Dennis Keim @denniskeim RT @btrfly12: At lot of things still go back to drinking lots of water, balance in diet and walking. Some things w/in our control. Rest... #patientchat |
| Christina Lizaso @btrfly12 RT @MightyCasey: T5: T5: Ongoing conversations in our communities - where we live, not just disease-related. Join #rightcare https://t.co/1mLidV7Cpq #patientchat |
| Christina Lizaso @btrfly12 RT @Cpnervecenter: A5 Keep networking with likeminded people(like all these tweeters) who want to change the system & help others in the process #patientchat |
| Christina Lizaso @btrfly12 RT @Crohnoid: |
| Kimberly Amelia @fireflyrn84 RT @Cpnervecenter: A5 Keep networking with likeminded people(like all these tweeters) who want to change the system & help others in the process #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Make that ALWAYS >> RT @GraceCordovano: Zip codes often matter more than genetics #sdoh #rightcare #patientchat |
| CP Nerve Center @Cpnervecenter RT @TuftsB: @btrfly12 If we could only all get together for a drink or two we could solve many issues #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Patient Empowerment Network @power4patients T5: empowerment is key. Armed with knowledge & support you can focus on what you can prevent and manage the risks you face #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
 | burtrosen 🟦 @burtrosen better late than never? sorry i missed today, i love #patientchat |
| Bob Tufts @TuftsB #patientchat - CT Have a HC game plan. Show up with specific questions on paper that you need answered by your physician. |
| Patient Empowerment Network @power4patients RT @TuftsB: #patientchat - CT Have a HC game plan. Show up with specific questions on paper that you need answered by your physician. |
| Kimberly Amelia @fireflyrn84 CT: Another great chat, as usual! Everyone can always use the gentle reminder for more healthy practices for risk reduction #patientchat |
| Christina Lizaso @btrfly12 RT @power4patients: T5: T5: empowerment is key. Armed with knowledge & support you can focus on what you can prevent and manage the risks you face #patientchat |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey CT: Embedded in this 24/7/365. Helping people figure out how to get what they need, avoid what they don't. Lather/rinse/repeat. #patientchat |
| Christina Lizaso @btrfly12 RT @TuftsB: #patientchat - CT Have a HC game plan. Show up with specific questions on paper that you need answered by your physician. |
| Christina Lizaso @btrfly12 RT @Crohnoid: |
| Kimberly Amelia @fireflyrn84 RT @Crohnoid: |
| Christina Lizaso @btrfly12 @MightyCasey Thanks so much for your great insights today and for the work you are out there doing everyday! #patientchat |
| Patient Empowerment Network @power4patients CT Some tips for reducing your cancer risk. Some are obvious but all good reminders! https://t.co/3NBw5Cim9Q #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Christina Lizaso @btrfly12 RT @patientchat: #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients and @patientchat anytime. |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour. |
| Alan Brewington @abrewi3010 CT keep sharing our story!#patientchat |
| Kimberly Amelia @fireflyrn84 I think until someone is ill, it's difficult to truly understand quality of life. That needs to be addressed also. #patientchat |
| ElizabethKelly, Ph.D @Elizabe85727641 CT Reminded=good health/practices saves lives/$$, need broader practice for HC in US beyond illness & making $$ > people focus #patientchat |
| Patient Chat @patientchat Join us for the next Empowered #patientchat on Fri September 22nd at 1pm ET | 10am PT https://t.co/NZTyqEoV2X |
| Sexy Health Tips @sexyhealthtips RT @Crohnoid: |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| Enlightening Results 💡 @GraceCordovano CT: thanks for continuing the conversation & inspiration #patientchat. Til next time #PatientAdvocacy |
| Patient Empowerment Network @power4patients Thanks everyone, a useful chat, as always. Stay well! #BeEmpowered #patientchat |
| CP Nerve Center @Cpnervecenter CT Great strides come when we get tired of doing things the old way. Together we can change healthcare & help heal one another #patientchat |
| Christina Lizaso @btrfly12 RT @Cpnervecenter: CT Great strides come when we get tired of doing things the old way. Together we can change healthcare & help heal one another #patientchat |
#patientchat content from Twitter.