#patientchat Transcript
Healthcare social media transcript of the #patientchat hashtag.
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See #patientchat Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Patient Chat @patientchat Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients. |
 | Whitney Petit @CfEpilepsy RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients. |
| Patient Chat @patientchat The Empowered #patientchat is a project of @power4patients and @intakeme |
 | Amanda G @LAlupusLady RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients. |
 | Kimberly Amelia @fireflyrn84 @GraceCordovano @patientchat I know! It's crazy when you look up...if only time went that fast for other things 😊#patientchat |
| Patient Chat @patientchat We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat |
| Patient Chat @patientchat Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat |
| Patient Chat @patientchat Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #patientchat |
 | STELLAR Study @StellarStudy I’ll be at the Empowered #patientchat on Fri 9/22 1pmET. Join me! https://t.co/VUPJT50oAw via @power4patients |
 | Enlightening Results 💡 @GraceCordovano Happy Friday #patientchat! Grace, private cancer patient advocate joining from NJ https://t.co/Nlg5uyBscc |
| Patient Chat @patientchat You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat |
| Whitney Petit @CfEpilepsy Hi! I’m Whitney, Epilepsy Advocate. Tweeting from Dallas, TX! #patientchat |
 | Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @gratefull080504 : Have my own #patientengagement + #patientadvocacy consulting business #kidneytransplant recipient #patientchat https://t.co/sPxCFJByKJ |
 | M&B Sciences @mbsciencesinc We love the opportunity to hear from passionate patients and advocates! Your voices shape our work each day! #patientchat |
| Kimberly Amelia @fireflyrn84 I’m Kim joining from Wisconsin, I’m RN turned fulltime patient, @patientslikeme Team of Advisors, @brkthrough_crew ambassador #patientchat |
 | Patient Empowerment Network @power4patients Hi, it's Andrea from PEN, excited to join you all today from Tampa where we're hosting a Digital Sherpa Workshop tomorrow #patientchat |
 | Sakinah Kaiser (She/Her) @themuslimhippie RT @Clara_Health: We love the opportunity to hear from passionate patients and advocates! Your voices shape our work each day! #patientchat |
| STELLAR Study @StellarStudy We're joining today's #patientchat! - The STELLAR Study for patients with #anaplasticastrocytoma #braincancer #btsm |
 | CP Nerve Center @Cpnervecenter Hi everyone I'm Becky @bbhomebody with @Cpnervecenter from Washington state #patientchat |
 | burtrosen 🟦 @burtrosen Hi,, burt here and so excited for today. I LOVE #PatientChat |
 | Ross @Rossco006 @patientchat Ross here from Regina, Saskatchewan #patientchat |
 | Rachel Rufo @RufoRachel Proud #endowarrior and #patientadvocate excited to be here! #patientchat |
| Rachel Rufo @RufoRachel RT @Clara_Health: We love the opportunity to hear from passionate patients and advocates! Your voices shape our work each day! #patientchat |
| Enlightening Results 💡 @GraceCordovano @gratefull080504 Hi Kevin! Great to see you on the chat today #patientchat |
| Enlightening Results 💡 @GraceCordovano @Clara_Health Happy Friday @Clara_Health #patientchat |
 | Alan Brewington @abrewi3010 Alan here. New #caregiver, #arthritis, #MentalHealth patient here who is insanely tired. #medxhangover #patientchat |
| Rachel Rufo @RufoRachel @GraceCordovano Snoopy is channeling my exact #FridayFeeling #patientchat |
| Enlightening Results 💡 @GraceCordovano @brkthrough_crew Hey @brkthrough_crew! Looking forward to this afternoon's char #patientchat |
| Amanda G @LAlupusLady Amanda a woman living with #Lupus and #chronicpain ~ Happy #patientchat https://t.co/tV4GkUVjFR |
| Whitney Petit @CfEpilepsy Happy everyone could make it today! Best way to spend my lunch hour! #patientchat |
| Patient Chat @patientchat Today's #patientchat topic is Innovation and Disruption in Healthcare https://t.co/3QWEJzARGa |
 | Lilly Stairs @LillyStairs Lilly here! Autoimmune #patientadvocate passionate about the power of research! #patientchat |
| Ross @Rossco006 @brkthrough_crew Great to be here as part of the #BreakthroughCrew and represent! #patientchat |
| Kimberly Amelia @fireflyrn84 #patientchat https://t.co/csK5GkS4xm |
 | Claire Snyman @clairehsnyman Claire from sunny Vancouver, Canada #braintumoradvocate! #patientchat |
 | Natalie 🦓 @_Nataliea Sorta here. Working but checking in. #patientchat |
| Kimberly Amelia @fireflyrn84 @burtrosen Hey Burt!! #patientchat |
 | Anne Polta @AnnePolta Hello from the upper Midwest where we're having record heat on the first day of fall. #patientchat |
| Whitney Petit @CfEpilepsy @LillyStairs Hi Lilly!! #patientchat |
| Enlightening Results 💡 @GraceCordovano @abrewi3010 Hi Alan! Sorry to hear you are exhausted. Wasn't MedX amazing though? #patientchat |
 | Christina Lizaso @btrfly12 Hi #patientchat. I'm passionate about community engagement and health. Find me here + #gyncsm #nsgcgenepool #breakthroughcrew #patientchat |
 | Katie @katie5280 @patientchat Hi! I'm Katie, a breast cancer survivor & t2 diabetic, ed. ambassador for @BeBrightPink & @wegohealth patient leader! #patientchat |
| Ross @Rossco006 @CfEpilepsy Great to have you here! #patientchat |
| Kimberly Amelia @fireflyrn84 @Rossco006 @patientchat You made it! Yay! #patientchat |
| Lilly Stairs @LillyStairs @power4patients Yes!! LOVE the work you're doing with the digital Sherpa program!! #patientchat |
| Patient Chat @patientchat I will introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #patientchat |
| Enlightening Results 💡 @GraceCordovano @RachelBasso I hear you Rachel!! #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: Today's #patientchat topic is Innovation and Disruption in Healthcare https://t.co/3QWEJzARGa |
| Amanda G @LAlupusLady just want to send HUGS to #patientchat friends (even the ones i haven't met yet...) |
| Whitney Petit @CfEpilepsy @Rossco006 Good to see you too! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Today's #patientchat topic is Innovation and Disruption in Healthcare https://t.co/3QWEJzARGa |
 | Lisa Davis Budzinski @lisadbudzinski Hi everyone! Co-founder of @Cpnervecenter advocacy group post stroke & cancer. We believe in the #patientperspective ✨#patientchat https://t.co/JHZXKcONYR |
| Enlightening Results 💡 @GraceCordovano @LAlupusLady Glad to see you here this afternoon Amanda! Happy Friday! #patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie @LillyStairs Hi! #patientchat |
 | Richard Zhao @richardzhao Richard from Minneapolis is here. Doing project that using #PatientSentiment to #empower patients on selecting clinics. #Patientchat |
| Rachel Rufo @RufoRachel @fireflyrn84 @Rossco006 @patientchat Always a challenge but so worth it! #patientchat |
| Alan Brewington @abrewi3010 @GraceCordovano Yes it was! I'm glad I went. How's your hangover doing? #patientchat |
| Patient Chat @patientchat Time to start our topics. Here comes T1: #patientchat |
| Kimberly Amelia @fireflyrn84 @AnnePolta It’s horrible in WI #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: Time to start our topics. Here comes T1: Time to start our topics. Here comes T1: #patientchat |
| Patient Chat @patientchat T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat |
| Ross @Rossco006 @LAlupusLady Hey Amanda! #patientchat |
| Christina Lizaso @btrfly12 @CfEpilepsy it's a tweet party here in Dallas now ;) #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: T1: T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat |
| Rachel Rufo @RufoRachel @LAlupusLady **Hugs!** #patientchat |
| Enlightening Results 💡 @GraceCordovano @btrfly12 Hi Christina! It's a party here this afternoon! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T1: T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: T1: T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat |
| Enlightening Results 💡 @GraceCordovano @Rossco006 @CfEpilepsy Hi Ross! Glad the timing worked! #patientchat |
 | Bob Tufts @TuftsB #patientchat - Good day, on for awhile until I help.a friend with their myeloma diagnosis questions |
| Lisa Davis Budzinski @lisadbudzinski RT @patientchat: Today's #patientchat topic is Innovation and Disruption in Healthcare https://t.co/3QWEJzARGa |
| Ross @Rossco006 @LillyStairs Great to see you here! #patientchat |
| Enlightening Results 💡 @GraceCordovano @LillyStairs @power4patients Hi Lilly! Happy Friday #patientchat |
| Amanda G @LAlupusLady Let's innovate and disrupt... #patientchat style. https://t.co/lTlrjTDZhW |
| Whitney Petit @CfEpilepsy @btrfly12 Yessss! Or should I say yee-haww! Haha #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: Learn more about the Empowered #patientchat series and how to participate here: Learn more about the Empowered #patientchat series and how to participate here: https://t.co/UENH6hX6z9 |
| Ross @Rossco006 @fireflyrn84 @patientchat Finally! #patientchat |
| Amanda G @LAlupusLady RT @RachelBasso: @LAlupusLady **Hugs!** #patientchat |
| Katie @katie5280 Also a 2017-2018 Young Advocate for @LivingBeyondBC , State Leader, F2F Coord., Survivor Link Mentor & Council of Advisors member @YSCBuzz https://t.co/MrreWAUWQE |
| Enlightening Results 💡 @GraceCordovano @TuftsB Hi Bob! Happy Friday #patientchat |
| Amanda G @LAlupusLady RT @Rossco006: @LAlupusLady Hey Amanda! #patientchat |
| burtrosen 🟦 @burtrosen T1: risk aversion. no one wants to try something and fail. and innovations could be simple #PatientChat |
| M&B Sciences @mbsciencesinc T1: The first barrier that comes to mind is one we are trying to fix! Lack of patient participation in #clinicalresearch. #patientchat |
| Amanda G @LAlupusLady RT @patientchat: T1: T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat |
 | Melissa VanHouten @melissarvh T1 Lack of motivation & unwillingness to change; lack of understanding abt what needs 2 change; political culture & regulations #patientchat |
| Anne Polta @AnnePolta @fireflyrn84 This weather is cray. I need to run home after the chat so I can turn on the air conditioning. Don't want my cat to melt. #patientchat |
| Lilly Stairs @LillyStairs Thanks all for the warm welcome! Excited to have a moment today to join you for #patientchat!! |
| Ross @Rossco006 @GraceCordovano @CfEpilepsy It's always a challenge because it's smack in the middle of the day for me. #patientchat |
| Patient Empowerment Network @power4patients RT @Clara_Health: T1: T1: The first barrier that comes to mind is one we are trying to fix! Lack of patient participation in #clinicalresearch. #patientchat |
| Claire Snyman @clairehsnyman A1: Healthcare systems are complex, so being disruptive means figuring out how to navigate through complexities #patientchat |
| Alan Brewington @abrewi3010 T1 the fear that failure is a bad thing and not something to be celebrated/learned from. #patientchat |
| Rachel Rufo @RufoRachel @TuftsB Helping a friend is the best reason to leave! #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 T1: The lack of policy + reimbursement incentives to support Innovation + disruption #patientchat https://t.co/u2zzAbc8ZT |
| Kimberly Amelia @fireflyrn84 @AnnePolta I'm in the AC with a cooling towel and am melting...going to the Packers game on Sunday! #patientchat |
| CP Nerve Center @Cpnervecenter A1-INSURANCE INSURANCE INSURANCE! They get to decide what care I deserve as a patient. IT'S ROTTEN! #patientchat |
| Lilly Stairs @LillyStairs LOVING seeing all these @brkthrough_crew ambassadors here 😊#patientchat https://t.co/V2R1jKowM9 |
| STELLAR Study @StellarStudy Technology is continually changing, but can we keep up? Are doctors willing to keep up? #patientchat |
| Enlightening Results 💡 @GraceCordovano T1: Everyone is trying to be the silver bullet, shatter the glass ceiling. #Healthcare needs enhancement too. Must must refocus #patientchat |
| Bob Tufts @TuftsB #patientchat - Ok, where are the other guys? :( |
| CP Nerve Center @Cpnervecenter RT @Clara_Health: T1: T1: The first barrier that comes to mind is one we are trying to fix! Lack of patient participation in #clinicalresearch. #patientchat |
| Amanda G @LAlupusLady T1 boat-rockers needed... but often financial and institutional forces hinder the innovation process. #patientchat |
| Ross @Rossco006 @LAlupusLady Your all like a second family to me! #patientchat |
| burtrosen 🟦 @burtrosen @abrewi3010 huge hindrance. the concept of failure in health care scares the hell out of people #patientchat |
| Katie @katie5280 @patientchat T1: Funding and current laws with great concern on impending changes to those laws. #patientchat |
| Ross @Rossco006 RT @Clara_Health: T1: T1: The first barrier that comes to mind is one we are trying to fix! Lack of patient participation in #clinicalresearch. #patientchat |
| STELLAR Study @StellarStudy T1: Technology is continually changing, but can we keep up and are doctors willing to keep up? #patientchat |
| Claire Snyman @clairehsnyman RT @GraceCordovano: T1: T1: Everyone is trying to be the silver bullet, shatter the glass ceiling. #Healthcare needs enhancement too. Must must refocus #patientchat |
| Richard Zhao @richardzhao T1: Patients are not included in product or service design. Too much provider or payer focus, rather than patient focus. #Patientchat |
| Whitney Petit @CfEpilepsy @Rossco006 @GraceCordovano I usually try to work my schedule around it and still forget smh. But not today! #patientchat |
| Claire Snyman @clairehsnyman RT @gratefull080504: T1: T1: The lack of policy + reimbursement incentives to support Innovation + disruption #patientchat https://t.co/u2zzAbc8ZT |
| Lilly Stairs @LillyStairs A1: Companies aren't consulting patients and caregivers as they build their platform. It's a critical mistake. #patientchat |
| Patient Empowerment Network @power4patients RT @richardzhao: T1: T1: Patients are not included in product or service design. Too much provider or payer focus, rather than patient focus. #Patientchat |
| Whitney Petit @CfEpilepsy RT @richardzhao: T1: T1: Patients are not included in product or service design. Too much provider or payer focus, rather than patient focus. #Patientchat |
| Christina Lizaso @btrfly12 T1: the stakes in healthcare are high, so leaves many risk-adverse, but standing still in current bad system not safe either... #patientchat |
| Amanda G @LAlupusLady T1 disruption in Healthcare has the hurdle of established guidelines/practices ` difficult to establish a new paradigm. #patientchat |
| Ross @Rossco006 Being inclusive of the patient is the first thing that comes to mind. #patientchat https://t.co/ySsE7yJsKd |
| Christina Lizaso @btrfly12 RT @LillyStairs: A1: A1: Companies aren't consulting patients and caregivers as they build their platform. It's a critical mistake. #patientchat |
| Kimberly Amelia @fireflyrn84 T1: Funding is huge, without money or resources, there is a brick wall! Lot of reluctance waiting to see what happens with #ACA #patientchat |
| Anne Polta @AnnePolta @fireflyrn84 Oooh, the Packers. Better not mention them around all the Vikings fans in my workplace, heh. #patientchat |
| M&B Sciences @mbsciencesinc EVERYONE deserves the best possible care in existence! Crazy that this is still not just a given. #patientchat https://t.co/s2OrCvHSwT |
| Enlightening Results 💡 @GraceCordovano T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners value? #patientchat |
 | Heather 🇺🇸 @ZHeatherChamp Hello! Am I late? #patientchat |
| Christina Lizaso @btrfly12 RT @LAlupusLady: T1 boat-rockers needed... but often financial and institutional forces hinder the innovation process. #patientchat |
| Bob Tufts @TuftsB #patientchat T1 - we need technology to help treat us as individuals, not as an aggregate. We aren't dots on a spreadsheet. @MLIWI |
| Patient Empowerment Network @power4patients RT @GraceCordovano: T1: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners value? #patientchat |
| Whitney Petit @CfEpilepsy RT @GraceCordovano: T1: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners value? #patientchat |
| Patient Chat @patientchat Topic 2 (T2:) coming up… #patientchat |
| Amanda G @LAlupusLady RT @gratefull080504: T1: T1: The lack of policy + reimbursement incentives to support Innovation + disruption #patientchat https://t.co/u2zzAbc8ZT |
| Christina Lizaso @btrfly12 @ZHeatherChamp still on T1 - come along anytime :) #patientchat |
| Amanda G @LAlupusLady RT @Clara_Health: T1: T1: The first barrier that comes to mind is one we are trying to fix! Lack of patient participation in #clinicalresearch. #patientchat |
| M&B Sciences @mbsciencesinc We can't be afraid to fail. If we don't try new things and take risks then innovation will move too slow for waiting patients. #patientchat https://t.co/pvMkmly1vN |
| Heather 🇺🇸 @ZHeatherChamp @btrfly12 I thought it was 9/29? #patientchat |
| Anne Polta @AnnePolta T1 The system is incredibly complex and cumbersome. It tends to resist change. #patientchat |
| Lilly Stairs @LillyStairs A1: I wrote about this topic recently. #digitalhealth companies are falling behind in #patientadvocacy https://t.co/ro3uPljMps #patientchat |
| Amanda G @LAlupusLady RT @GraceCordovano: T1: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners value? #patientchat |
| Richard Zhao @richardzhao RT @LillyStairs: A1: A1: Companies aren't consulting patients and caregivers as they build their platform. It's a critical mistake. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 T1: Speaking for the US the key structural barrier is that #healthcare is not designed for patients It starts + ends here #patientchat |
| Patient Chat @patientchat T2: How could we work to overcome these limitations to more innovation in healthcare? #patientchat |
| Anne Polta @AnnePolta RT @btrfly12: T1: T1: the stakes in healthcare are high, so leaves many risk-adverse, but standing still in current bad system not safe either... #patientchat |
| CP Nerve Center @Cpnervecenter @Clara_Health AGREED! Luckily as an RN I can weed through the BS & have a great Doc who helps. #patientchat |
| Kimberly Amelia @fireflyrn84 T1: The patient needs to be considered every step of the way, yet that key piece is being left out #patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie @patientchat Disruption in healthcare due to disability issues is a big one #patientchat |
| burtrosen 🟦 @burtrosen yup! if we don't take risks, nothing will ever change. No catalyst = no change #patientchat https://t.co/5ptrlOnsj9 |
| Christina Lizaso @btrfly12 RT @patientchat: T2: T2: How could we work to overcome these limitations to more innovation in healthcare? #patientchat |
| Lilly Stairs @LillyStairs RT @gratefull080504: T1: T1: Speaking for the US the key structural barrier is that #healthcare is not designed for patients It starts + ends here #patientchat |
| CP Nerve Center @Cpnervecenter RT @Clara_Health: EVERYONE deserves the best possible care in existence! Crazy that this is still not just a given. #patientchat https://t.co/s2OrCvHSwT |
| Whitney Petit @CfEpilepsy RT @fireflyrn84: T1: T1: The patient needs to be considered every step of the way, yet that key piece is being left out #patientchat |
| Alan Brewington @abrewi3010 T1 to often innovation is about product development, not #HumanCentredDesign. There is a huge difference. #patientchat |
| Enlightening Results 💡 @GraceCordovano T1: Too many organizations/stakeholders claiming buzzwords, but not fully engaged w/pt & care partners. Say too time consuming #patientchat https://t.co/MKuF6fyHGn |
| Ross @Rossco006 @LillyStairs @brkthrough_crew As ambassadors we need to show up in force! United in order to help establish and bring about change in the health community. #patientchat |
| Rachel Rufo @RufoRachel T1: The system is outdated and resistant to change. It needs to catch up to the patients and researchers trying to move ahead. #patientchat |
| Richard Zhao @richardzhao RT @Rossco006: Being inclusive of the patient is the first thing that comes to mind. #patientchat https://t.co/ySsE7yJsKd |
| Rachel Rufo @RufoRachel RT @TuftsB: #patientchat T1 - we need technology to help treat us as individuals, not as an aggregate. We aren't dots on a spreadsheet. @MLIWI |
| Patient Chat @patientchat RT @LillyStairs: A1: A1: I wrote about this topic recently. #digitalhealth companies are falling behind in #patientadvocacy https://t.co/ro3uPljMps #patientchat |
| Kimberly Amelia @fireflyrn84 RT @GraceCordovano: T1: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners value? #patientchat |
| Lilly Stairs @LillyStairs @GraceCordovano YES! #patientchat https://t.co/df0ACTSJZR |
| Patient Empowerment Network @power4patients T1: We r stuck with technology when what we really want is just stuff that works, Douglas Adams,Hitchhikers Guide To The Galaxy #patientchat |
| Patient Chat @patientchat RT @GraceCordovano: T1: T1: Too many organizations/stakeholders claiming buzzwords, but not fully engaged w/pt & care partners. Say too time consuming #patientchat https://t.co/MKuF6fyHGn |
| Kimberly Amelia @fireflyrn84 @ZHeatherChamp Just getting going...you’re good! #patientchat |
| STELLAR Study @StellarStudy T2: More discussion with patients and what they want. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Yes such as #patientcentricity Just a buzzword #patientchat https://t.co/4OH79Pq1XX |
| Lilly Stairs @LillyStairs Music to my ears!! You're the best @Rossco006! #patientchat https://t.co/KCxLIfJxx6 |
| Rachel Rufo @RufoRachel As long as we keep #patientsafety at the core, taking risks can pay off in the big picture. #patinetchat https://t.co/lWZeI1cOeI |
| Richard Zhao @richardzhao RT @GraceCordovano: T1: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners value? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski T1 A successful collaboration among all parties – manufacturers, providers, the NHS and patients – is critical. #patientchat |
| Melissa VanHouten @melissarvh T2 Include patient opinion & ideas from beginning 2 end; need companies 2 welcome/reward new ideas & push change in perspective #patientchat |
| Claire Snyman @clairehsnyman RT @melissarvh: T2 Include patient opinion & ideas from beginning 2 end; need companies 2 welcome/reward new ideas & push change in perspective #patientchat |
| Patient Empowerment Network @power4patients RT @melissarvh: T2 Include patient opinion & ideas from beginning 2 end; need companies 2 welcome/reward new ideas & push change in perspective #patientchat |
| Alan Brewington @abrewi3010 T2 #HumanCentredDesign must be the norm, not celebrated. We need to work with humans in mind first, not profit. #patientchat |
| burtrosen 🟦 @burtrosen @GraceCordovano i've heard a company say "we were going to have patients come in but were afraid we couldn't control the conversation" OY! #patientchat |
| Bob Tufts @TuftsB #patientchat A1 - digital health gold rush created many non interoperable systems. Silos must be broken to benefit patients not VC"s @MLIWI |
| Ross @Rossco006 @LillyStairs Agreed! They often don't see us as part of the equation and need to realize that we can be of huge help. #patientchat |
| Enlightening Results 💡 @GraceCordovano T2: Learn how to become an empowered patient & care partner. Join empowering groups, @S4PM, @BerylInstitute, @brkthrough_crew #patientchat |
| Lilly Stairs @LillyStairs This 🙌🏻 #patientengagement is SO much more than just a buzzword! If you LISTEN to patients you will be successful. #patientchat https://t.co/faMjZKA8jq |
| Kimberly Amelia @fireflyrn84 @burtrosen Innovations like...getting rid of the fax machine?! :) #axthefax #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 T2: Do your homework, learn the issues, use your #patientvoice constructively, request a seat at the table, etc. #patientchat https://t.co/QmieLqQNeR |
| Amanda G @LAlupusLady T2 Embrace innovation w curiosity & explore how it can benefit the HC system including cost savings and be patient inclusive. #patientchat https://t.co/GJcHPLp3Nh |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano Exactly! "If it's for us, please include us" #PatientChat |
| CP Nerve Center @Cpnervecenter A2 It takes a village. When we all speak up our voices are louder. We all need to be engaged & active in forward movements #patientchat |
| Amanda G @LAlupusLady RT @GraceCordovano: T2: T2: Learn how to become an empowered patient & care partner. Join empowering groups, @S4PM, @BerylInstitute, @brkthrough_crew #patientchat |
| burtrosen 🟦 @burtrosen T2: the more we listen to people, understand their needs and involve them in design the better things will become #PatientChat |
| Lilly Stairs @LillyStairs @burtrosen @GraceCordovano 🤦🏼♀️#patientchat |
| Whitney Petit @CfEpilepsy I totally agree! #patientchat https://t.co/SENT7qEYp1 |
| Claire Snyman @clairehsnyman RT @abrewi3010: T2 #HumanCentredDesign must be the norm, not celebrated. We need to work with humans in mind first, not profit. #patientchat |
| Kimberly Amelia @fireflyrn84 Amen to this! Same here, but it definitely shouldn’t be that way! #Patientchat https://t.co/9WT03KM6Ji |
| Amanda G @LAlupusLady RT @gratefull080504: T2: T2: Do your homework, learn the issues, use your #patientvoice constructively, request a seat at the table, etc. #patientchat https://t.co/QmieLqQNeR |
| Richard Zhao @richardzhao @LillyStairs With all the #digitalhealth entrepreneurs that I talked to, this statement is very true. #Patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @CfEpilepsy: I totally agree! #patientchat https://t.co/SENT7qEYp1 |
| Lilly Stairs @LillyStairs T2 Simple: Bring patients and caregivers in from DAY ONE. #patientchat |
| Christina Lizaso @btrfly12 RT @melissarvh: T2 Include patient opinion & ideas from beginning 2 end; need companies 2 welcome/reward new ideas & push change in perspective #patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: T2 #HumanCentredDesign must be the norm, not celebrated. We need to work with humans in mind first, not profit. #patientchat |
| Bob Tufts @TuftsB #patientchat -A2 Involve patients at earliest stages of drug development. I know BIO NJ is trying to push for this. @MLIWI |
| Richard Zhao @richardzhao RT @gratefull080504: T1: T1: Speaking for the US the key structural barrier is that #healthcare is not designed for patients It starts + ends here #patientchat |
| Ross @Rossco006 @Clara_Health I agree to often insurance no matter what country you live in gets to call the shots. It's not right! #patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @burtrosen: T2: T2: the more we listen to people, understand their needs and involve them in design the better things will become #PatientChat |
| Enlightening Results 💡 @GraceCordovano @burtrosen I heard a very high up exec of major hospital chain say they were going 2 improve #PtExp scores, but no time to incorporate pts #patientchat https://t.co/KPVUZZdWCv |
| Richard Zhao @richardzhao RT @GraceCordovano: T1: T1: Too many organizations/stakeholders claiming buzzwords, but not fully engaged w/pt & care partners. Say too time consuming #patientchat https://t.co/MKuF6fyHGn |
| STELLAR Study @StellarStudy Join us in today's #patientchat! #btsm #braintumor #braincancer #cancerawareness #braintumorawareness #STELLARstudy |
| Lisa Davis Budzinski @lisadbudzinski T2 (also my T1) A successful collaboration among all parties – manufacturers, providers, the NHS and patients – is critical. #patientchat |
| Melissa VanHouten @melissarvh T2 Must have people willing to stand up & take a risk, who are able to fundamentally & radically rethink the way things are. #patientchat |
| Alan Brewington @abrewi3010 T2 return to basics. Active listening to each other with #everyoneincluded. Respect for all sides. #patientchat |
| CP Nerve Center @Cpnervecenter @burtrosen @GraceCordovano Precisely why we patients need to be there.... uncontrolled! #patientchat |
| M&B Sciences @mbsciencesinc Patient centricity is not just a phase its a state of being! Patient focus needs to be SHOWN not just talked about #demonstrate #patientchat https://t.co/bGt8sSqfDL |
| M&B Sciences @mbsciencesinc RT @Rossco006: @LillyStairs @brkthrough_crew As ambassadors we need to show up in force! United in order to help establish and bring about change in the health community. #patientchat |
| Christina Lizaso @btrfly12 RT @burtrosen: T2: T2: the more we listen to people, understand their needs and involve them in design the better things will become #PatientChat |
| Anne Polta @AnnePolta Trust is major. There's fear that we won't know how to behave when we're included at the table. #patientchat https://t.co/CEf6jWvliX |
| Patient Chat @patientchat RT @abrewi3010: T2 return to basics. Active listening to each other with #everyoneincluded. Respect for all sides. #patientchat |
| Enlightening Results 💡 @GraceCordovano RT @LillyStairs: This 🙌🏻 #patientengagement is SO much more than just a buzzword! If you LISTEN to patients you will be successful. #patientchat https://t.co/faMjZKA8jq |
| Kimberly Amelia @fireflyrn84 T2: Take the step that everybody thinks is wrong, be the change, take charge, shoot for the moon. #patientchat |
| Lilly Stairs @LillyStairs T2: Get all the key players in a room together - Pts, docs, nurses, industry have so much to learn from each other. #patientchat |
 | BabbleOnBrooke @BabbleOnBrooke @Clara_Health YES! I agree 100%.👍🏻 #patientchat |
| Patient Chat @patientchat Topic 3 (T3:) coming up… #patientchat |
| M&B Sciences @mbsciencesinc T2: We need to meet patients and families where they are. The technology is out there, let's get barriers out of the way. #patientchat |
| M&B Sciences @mbsciencesinc RT @LillyStairs: T2 Simple: T2 Simple: Bring patients and caregivers in from DAY ONE. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Sorry #patientcentricity is a buzz word with minimal foundational knowledge #patientchat https://t.co/eoJxYvXr7r |
| Patient Empowerment Network @power4patients Agree 100% @brkthrough_crew #patientchat |
| Christina Lizaso @btrfly12 RT @AnnePolta: Trust is major. There's fear that we won't know how to behave when we're included at the table. #patientchat https://t.co/CEf6jWvliX |
| CP Nerve Center @Cpnervecenter RT @fireflyrn84: T2: T2: Take the step that everybody thinks is wrong, be the change, take charge, shoot for the moon. #patientchat |
| Kimberly Amelia @fireflyrn84 RT @GraceCordovano: T2: T2: Learn how to become an empowered patient & care partner. Join empowering groups, @S4PM, @BerylInstitute, @brkthrough_crew #patientchat |
| Bob Tufts @TuftsB @melissarvh Can/should patients assume risk (above and beyond clinical trials?) #patientchat |
| Patient Chat @patientchat T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat |
| Ross @Rossco006 RT @RachelBasso: T1: T1: The system is outdated and resistant to change. It needs to catch up to the patients and researchers trying to move ahead. #patientchat |
| Alan Brewington @abrewi3010 #caregivers are to often forgotten despite their invaluable expertise. Very human centered people. #patientchat https://t.co/3U8WEZumK1 |
| Christina Lizaso @btrfly12 RT @patientchat: T3: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat |
| Patient Empowerment Network @power4patients Agree! No one wants to be at the center of the circle of centricity, we want a seat at the table! @gratefull080504 #patientchat |
| Enlightening Results 💡 @GraceCordovano @LillyStairs The entire healthcare ecosystem must be at the table for equilibrium. Otherwise, its just another parasitic relationship #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T3: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat |
| Rachel Rufo @RufoRachel T2: Patients need to be confident and vocal. Enough doctors and researchers already don't listen to us. We can't lose faith. #patientchat |
| Whitney Petit @CfEpilepsy RT @patientchat: T3: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat |
| Katie @katie5280 @patientchat T2: Holding organizations accountable for their promises. #patientchat |
| Richard Zhao @richardzhao We want to include patients into our product design now, refining our algorithm. Any recommendations to find Pt ambassadors? #Patientchat |
| BabbleOnBrooke @BabbleOnBrooke @abrewi3010 @patientchat Yes, active listening and mutual respect, love it.💗 #patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @patientchat: T3: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Yes #patientchat https://t.co/W4Qlac8OYe |
 | Kenny @kenny_pal2 If you chat on the theme " #patientchat " Free chat channel https://t.co/C7mBPKCDb2 |
| Enlightening Results 💡 @GraceCordovano T3: Many come from a personal encounter with tragedy which brings to light unmet needs, barriers, fears, & inspires for better #patientchat |
| Lilly Stairs @LillyStairs RT @GraceCordovano: @LillyStairs The entire healthcare ecosystem must be at the table for equilibrium. Otherwise, its just another parasitic relationship #patientchat |
| Christina Lizaso @btrfly12 T3: Love the patient #DIY movement and #citizenscience efforts. They are paving good ways but will take more than that. #patientchat |
| Claire Snyman @clairehsnyman T3: should be more patient driven in collaboration with innovation hubs #patientchat |
| CP Nerve Center @Cpnervecenter RT @power4patients: Agree! No one wants to be at the center of the circle of centricity, we want a seat at the table! @gratefull080504 #patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @GraceCordovano: @LillyStairs The entire healthcare ecosystem must be at the table for equilibrium. Otherwise, its just another parasitic relationship #patientchat |
| Amanda G @LAlupusLady T2 Huge barriers to get out of the way may be more than the new technology ~ cultural, geographic & $$$ as well as access #patientchat https://t.co/VxMoupPLri |
| Kimberly Amelia @fireflyrn84 Patient scores weren’t developed by patients...nobody is going to get good scores if it doesn’t actually ask if they CARED 4 u #patientchat |
| Ross @Rossco006 We need people to realize that the system needs to change. That means bringing the patient into the fold to help. #patientchat https://t.co/VyGOfMnMsM |
| Patient Chat @patientchat RT @btrfly12: T3: T3: Love the patient #DIY movement and #citizenscience efforts. They are paving good ways but will take more than that. #patientchat |
| Lilly Stairs @LillyStairs RT @btrfly12: T3: T3: Love the patient #DIY movement and #citizenscience efforts. They are paving good ways but will take more than that. #patientchat |
| Ross @Rossco006 RT @GraceCordovano: T1: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners value? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski T2 When will true COLLABORATION in healthcare come about? Pts can provide vital info that can help lead the way for disruption #PatientChat |
| M&B Sciences @mbsciencesinc @gratefull080504 For us patient centricity means having patients voices dictating action taken. Their needs and ideas shaping product = action. #patientchat |
| Christina Lizaso @btrfly12 @richardzhao Being on this chat is a great start. @wegohealth helps folks find patient experts but you can also find pt cmty #patientchat |
| Enlightening Results 💡 @GraceCordovano T3: We all need to simplify. In the chaos, we've lost the fact that we are humans helping humans. Human connection. #empathy #patientchat |
| Melissa VanHouten @melissarvh @TuftsB Not sure. Think some are able & willing - but docs, healthcare exes, and other "higher-ups" need to take the risk, too. #patientchat |
| STELLAR Study @StellarStudy T3: #Clinicalresearch helps to advance medicine and support innovations in #healthcare. #patientchat #btsm #STELLARstudy |
| Bob Tufts @TuftsB #patientchat T3 #innovation comes from people not tech, and can/should be found daily thru entire healthcare supply chain. @MLIWI |
| Alan Brewington @abrewi3010 Patients have just as much foundational knowledge as anyone. Our stories our the foundation of #healthcare. #patientchat https://t.co/yVWjcDhKX0 |
| Lilly Stairs @LillyStairs T3 Often times they are coming from industry (who mean well) but will never develop innovations that work w/out patients #patientchat |
| Patient Empowerment Network @power4patients T3: Most innovation comes from necessity, I'm really inspired by the amazing work done by parents of kids with rare diseases #patientchat |
| M&B Sciences @mbsciencesinc Caregivers have an equal role in the patient journey. They provide so much for patients and have needs that deserve to be met! #patientchat https://t.co/qlyHSaVW11 |
| CP Nerve Center @Cpnervecenter A3 Healthcare workers notice inside issues that pts may miss & vise versa. Honest feedback cam lead to fixes. #patientchat |
| Whitney Petit @CfEpilepsy RT @power4patients: T3: T3: Most innovation comes from necessity, I'm really inspired by the amazing work done by parents of kids with rare diseases #patientchat |
| Enlightening Results 💡 @GraceCordovano RT @btrfly12: T3: T3: Love the patient #DIY movement and #citizenscience efforts. They are paving good ways but will take more than that. #patientchat |
| Christina Lizaso @btrfly12 RT @power4patients: T3: T3: Most innovation comes from necessity, I'm really inspired by the amazing work done by parents of kids with rare diseases #patientchat |
| Ross @Rossco006 Yes! Yes! Yes! #patientchat https://t.co/03cGBeQ7qp |
| Melissa VanHouten @melissarvh T3 Seems to me it must be grassroots, bottom to top change rather than top-down imposed change. #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 A3: Broad stakeholders: NIH, industry, + who has the dollars $ drive innovation+risk taking Need greater #patientvoice #patientchat https://t.co/dDtuzEsJyP |
| Christina Lizaso @btrfly12 RT @Cpnervecenter: A3 Healthcare workers notice inside issues that pts may miss & vise versa. Honest feedback cam lead to fixes. #patientchat |
| Bob Tufts @TuftsB #patientchat - patient centricity is just another name for a circular firing squad |
| Amanda G @LAlupusLady T3 Health IT developers come from everywhere, like patients but hope they come to understand then innovate. #patientchat https://t.co/KWU1xygJHt |
| Rachel Rufo @RufoRachel T3: Innovations in healthcare come from the push of all allied forces working together. Patients caregivers researchers etc.. #patientchat |
| Kimberly Amelia @fireflyrn84 T3: Comes from industrial research funded by big pharma many times. Need to have patients as part of innovation process #patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @power4patients: T3: T3: Most innovation comes from necessity, I'm really inspired by the amazing work done by parents of kids with rare diseases #patientchat |
 | sue robins (she/her) @suerobinsyvr RT @GraceCordovano: T1: T1: Too many organizations/stakeholders claiming buzzwords, but not fully engaged w/pt & care partners. Say too time consuming #patientchat https://t.co/MKuF6fyHGn |
| Kimberly Amelia @fireflyrn84 RT @RachelBasso: T2: T2: Patients need to be confident and vocal. Enough doctors and researchers already don't listen to us. We can't lose faith. #patientchat |
| Ross @Rossco006 @LillyStairs It has to be a combined effort and the only way to do that is to be inclusive of all parties to work together. #patientchat |
| Alan Brewington @abrewi3010 RT @Clara_Health: Caregivers have an equal role in the patient journey. They provide so much for patients and have needs that deserve to be met! #patientchat https://t.co/qlyHSaVW11 |
| Kimberly Amelia @fireflyrn84 @richardzhao Just ask, there are a lot of patients that want to help. Many of us are right here. #Patientchat |
| Ross @Rossco006 RT @GraceCordovano: T3: T3: We all need to simplify. In the chaos, we've lost the fact that we are humans helping humans. Human connection. #empathy #patientchat |
| Bob Tufts @TuftsB T2 - any Hhealthcare bills/rules should first start with patients, doctors and caregivers in the room. @MLIWI https://t.co/Ts7JBfCYye |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 A3: Have to acknowledge the role of capital to assume risk to generate innovation #patientvoice can mitigate risk #patientchat |
| Christina Lizaso @btrfly12 T3: When health systems work w/ incubators I think innovation happens, but only success if require start-ups to include pts #patientchat |
| CP Nerve Center @Cpnervecenter @fireflyrn84 You're so right Kimberly! #patientchat |
| Amanda G @LAlupusLady T3 i like how #VR is innovating Healthcare from helping med students practice surgery or helping patients relieve pain. #patientchat https://t.co/KWU1xygJHt |
| STELLAR Study @StellarStudy Help us spread the word about our #braincancer study for patients with anaplastic astrocytoma https://t.co/zzQ1Tb1ItU #BTSM #patientchat |
| Amanda G @LAlupusLady RT @abrewi3010: #caregivers are to often forgotten despite their invaluable expertise. Very human centered people. #patientchat https://t.co/3U8WEZumK1 |
| M&B Sciences @mbsciencesinc T3: Innovations by nature are solutions to problems. Health problems and the patients who have them should drive the solutions. #patientchat |
| Patient Chat @patientchat Topic 4 (T4:) coming up… #patientchat |
| Enlightening Results 💡 @GraceCordovano But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/ODtFjCvzf3 |
| Patient Empowerment Network @power4patients RT @StellarStudy: Help us spread the word about our #braincancer study for patients with anaplastic astrocytoma https://t.co/zzQ1Tb1ItU #BTSM #patientchat |
| M&B Sciences @mbsciencesinc RT @RachelBasso: T3: T3: Innovations in healthcare come from the push of all allied forces working together. Patients caregivers researchers etc.. #patientchat |
| M&B Sciences @mbsciencesinc RT @fireflyrn84: @richardzhao Just ask, there are a lot of patients that want to help. Many of us are right here. #Patientchat |
| Amanda G @LAlupusLady RT @clairehsnyman: T3: T3: should be more patient driven in collaboration with innovation hubs #patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 Have to leave early for another call. Thanks for the chat #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @richardzhao Agree with @wegohealth & there are a lot of us right here in this #patientchat & other chats |
| Amanda G @LAlupusLady RT @patientchat: T3: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat |
| Alan Brewington @abrewi3010 T3 @danamlewis is the new center of innovation. #Medx & @SibleyHub excite/inspire others took in other boxes. #patientchat |
| Melissa VanHouten @melissarvh @richardzhao Yes, I am here & willing! Check @WegoHealth as well! #patientchat |
| Amanda G @LAlupusLady RT @Clara_Health: T3: T3: Innovations by nature are solutions to problems. Health problems and the patients who have them should drive the solutions. #patientchat |
| Bob Tufts @TuftsB #patientchat -A3 - Very glad to see the efforts of Scott Gottleib at FDA @MLIWI |
| Anne Polta @AnnePolta T3 Innovations often seem based on healthy privilege -- good intentions but no gut knowledge of the pt experience. #patientchat |
| Rachel Rufo @RufoRachel RT @Clara_Health: @gratefull080504 For us patient centricity means having patients voices dictating action taken. Their needs and ideas shaping product = action. #patientchat |
| Kimberly Amelia @fireflyrn84 Exactly, don't just fill the demographics because it's a requirement #patientchat https://t.co/TuFXprOPtS |
| Patient Empowerment Network @power4patients .@richardzhao We can help! #patientchat |
| Patient Chat @patientchat @gratefull080504 Thanks for joining in Kevin! #patientchat |
| Patient Chat @patientchat T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it address? #patientchat |
| burtrosen 🟦 @burtrosen T3: i think they should come from people and patients, and those that focus on putting them back in the middle of the convo #PatientChat |
| Lisa Davis Budzinski @lisadbudzinski T3 1 of many infographics for HIT #Patientchat But do any of these companies talk with pts or caregivers? https://t.co/5ppIQzvh36 |
| Christina Lizaso @btrfly12 RT @patientchat: T4: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it address? #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T4: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it address? #patientchat |
| BabbleOnBrooke @BabbleOnBrooke @LAlupusLady Amazing! I didn't know that. What a wonderful application of VR! #patientchat |
| Christina Lizaso @btrfly12 @gratefull080504 Thanks for all you do. Good to chat with you again here. #patientchat |
| Alan Brewington @abrewi3010 RT @GraceCordovano: But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/ODtFjCvzf3 |
| Enlightening Results 💡 @GraceCordovano T4: A private, personalized patient advocate for every single patient to assist every step of the way. #patientchat |
| CP Nerve Center @Cpnervecenter A3 Perhaps when we visit our Doc/clinic we should ask if patients are included in planning measures. And offer our services #Patientchat |
| Lilly Stairs @LillyStairs Absolutely! But how do we show #patientadvocacy's value? Industry struggles w/ the new age of metrics that stem from advocacy #patientchat https://t.co/GOqdYugq04 |
| Christina Lizaso @btrfly12 RT @Clara_Health: T3: T3: Innovations by nature are solutions to problems. Health problems and the patients who have them should drive the solutions. #patientchat |
| Christina Lizaso @btrfly12 RT @GraceCordovano: But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/ODtFjCvzf3 |
| CP Nerve Center @Cpnervecenter RT @burtrosen: T3: T3: i think they should come from people and patients, and those that focus on putting them back in the middle of the convo #PatientChat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @RachelBasso: T3: T3: Innovations in healthcare come from the push of all allied forces working together. Patients caregivers researchers etc.. #patientchat |
| burtrosen 🟦 @burtrosen @lisadbudzinski this image might be a perfect metaphor for healthcare. No people in the center and way too much noise to make sense! #patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @fireflyrn84: @richardzhao Just ask, there are a lot of patients that want to help. Many of us are right here. #Patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: T3 @danamlewis is the new center of innovation. #Medx & @SibleyHub excite/inspire others took in other boxes. #patientchat |
| Patient Empowerment Network @power4patients T4: Here's what we would do: https://t.co/O3ofY3i71e @jbbc #patientchat |
| Rachel Rufo @RufoRachel A4: If I had unlimited resources no patient would ever pay out of pocket for a treatment they needed. #patientchat https://t.co/azAiZzitU1 |
| STELLAR Study @StellarStudy T4: Reaching those that don't have the means. Everyone deserves to receive care. #patientchat |
| Rachel Rufo @RufoRachel RT @GraceCordovano: But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/ODtFjCvzf3 |
| Alan Brewington @abrewi3010 T4 #healthcare time management/understanding vs #patient time management/understanding. There needs to be a universal def. #patientchat |
| Kimberly Amelia @fireflyrn84 T4: It would put the human touch back into healthcare. Technology is great, but technology doesn’t have empathy or hand to hold #patientchat |
| Melissa VanHouten @melissarvh T4 Would need 2 address lack of access to specialists, wait time, lack of education re illness even among medical professionals #patientchat |
| Amanda G @LAlupusLady T3 sharing how #VR helps me relieve pain at #connect2health w/ @BrennanSpiegel ~ including patients on panels at confs. #patientchat |
| Christina Lizaso @btrfly12 Sigh. This rings true. #patientchat https://t.co/hP8Xxhk7mL |
| Kimberly Amelia @fireflyrn84 RT @burtrosen: T3: T3: i think they should come from people and patients, and those that focus on putting them back in the middle of the convo #PatientChat |
| Amanda G @LAlupusLady RT @BabbleOnBrooke: @LAlupusLady Amazing! I didn't know that. What a wonderful application of VR! #patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @patientchat: T4: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it address? #patientchat |
 | Sexy Health Tips @sexyhealthtips RT @Clara_Health: T3: T3: Innovations by nature are solutions to problems. Health problems and the patients who have them should drive the solutions. #patientchat |
| Bob Tufts @TuftsB #patientchat T4 - direct primary care w/major medical/drug insurance, eliminate PBM's, stop hospital consolidation, incentivize PCPs @MLIWI |
| Amanda G @LAlupusLady RT @patientchat: T4: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it address? #patientchat |
| CP Nerve Center @Cpnervecenter A4 Equal Access for all! The government would be on my lousy healthplan or better yet, I GET THEIR HEALTHPLAN! #Patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie @patientchat @btrfly12 Medication and supplies delivery for all patients. #patientchat |
| Ross @Rossco006 RT @GraceCordovano: But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/ODtFjCvzf3 |
| Lisa Davis Budzinski @lisadbudzinski RT @Cpnervecenter: A3 Perhaps when we visit our Doc/clinic we should ask if patients are included in planning measures. And offer our services #Patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @Cpnervecenter: A2 It takes a village. When we all speak up our voices are louder. We all need to be engaged & active in forward movements #patientchat |
| Kimberly Amelia @fireflyrn84 Spot on! Absolutely hits it on the head. #Patientchat https://t.co/PrAkQ1XaYY |
| Alan Brewington @abrewi3010 T4 create Quality of Life as the most important & universal measurement tool. #patientchat |
| Patient Chat @patientchat RT @GraceCordovano: T4: T4: A private, personalized patient advocate for every single patient to assist every step of the way. #patientchat |
| M&B Sciences @mbsciencesinc T4: As a startup aiming to change how we connect patients to treatments we wish we could reach EVERY patient in need. #patientchat |
| Patient Empowerment Network @power4patients AMEN! @RachelBasso #patientchat |
| Ross @Rossco006 RT @Clara_Health: @gratefull080504 For us patient centricity means having patients voices dictating action taken. Their needs and ideas shaping product = action. #patientchat |
| Patient Empowerment Network @power4patients RT @abrewi3010: T4 create Quality of Life as the most important & universal measurement tool. #patientchat |
| Kimberly Amelia @fireflyrn84 @RachelBasso I think I love you #Patientchat |
| Kevin J. Fowler Principal The Voice of the Patient @gratefull080504 @LillyStairs : bring new treatments +products to market quicker, less cost, greater innovation #patientchat https://t.co/xqjDTnj4I5 |
| Christina Lizaso @btrfly12 RT @melissarvh: T4 Would need 2 address lack of access to specialists, wait time, lack of education re illness even among medical professionals #patientchat |
| Sexy Health Tips @sexyhealthtips RT @patientchat: T4: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it address? #patientchat |
| CP Nerve Center @Cpnervecenter @GraceCordovano Yes! Love it. #patientchat |
| Kimberly Amelia @fireflyrn84 RT @TuftsB: #patientchat T4 - direct primary care w/major medical/drug insurance, eliminate PBM's, stop hospital consolidation, incentivize PCPs @MLIWI |
| M&B Sciences @mbsciencesinc Medication that WORKS! Patients need new options developed all the time. Continual patient focused research is the answer #patientchat https://t.co/kE5KOzsR2Q |
| Kimberly Amelia @fireflyrn84 RT @Cpnervecenter: A4 Equal Access for all! The government would be on my lousy healthplan or better yet, I GET THEIR HEALTHPLAN! #Patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: T4 create Quality of Life as the most important & universal measurement tool. #patientchat |
| Lilly Stairs @LillyStairs RT @gratefull080504: @LillyStairs : @LillyStairs : bring new treatments +products to market quicker, less cost, greater innovation #patientchat https://t.co/xqjDTnj4I5 |
| Enlightening Results 💡 @GraceCordovano @abrewi3010 And more specifically, QoL as defined by the individual #patient. Not as defined by drs, trials, insurance companies, etc #patientchat |
| Amanda G @LAlupusLady T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @Clara_Health: Medication that WORKS! Patients need new options developed all the time. Continual patient focused research is the answer #patientchat https://t.co/kE5KOzsR2Q |
| Patient Chat @patientchat RT @LAlupusLady: T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientchat |
| Rachel Rufo @RufoRachel @fireflyrn84 <3 If only I was a billionaire. #patientchat |
| Amanda G @LAlupusLady RT @Clara_Health: T4: T4: As a startup aiming to change how we connect patients to treatments we wish we could reach EVERY patient in need. #patientchat |
| Kimberly Amelia @fireflyrn84 Quality of life should be integrated as another #vitalsign it’s mandatory to be considered at each interaction #Patientchat https://t.co/l7btG57FuO |
| Christina Lizaso @btrfly12 RT @LAlupusLady: T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientchat |
| Amanda G @LAlupusLady RT @abrewi3010: T4 create Quality of Life as the most important & universal measurement tool. #patientchat |
| Alan Brewington @abrewi3010 very very very good point! #patientchat https://t.co/8HPhLGDrBs |
| Melissa VanHouten @melissarvh T4 Should address time from treatment research/development 2 approval & other barriers 2 patient access 2 new meds, esp 4 #Rare #patientchat |
| Richard Zhao @richardzhao @melissarvh @wegohealth Thank all the patients #ambassadors like you that have the courage to take the power back to patients! #patientchat |
| Patient Chat @patientchat Topic 5 (T5:) coming up… #patientchat |
| Rachel Rufo @RufoRachel My treatment choice has an expiration date. I need new drugs developed FAST. #patientchat https://t.co/dv4mfS4I1o |
| Alan Brewington @abrewi3010 RT @LAlupusLady: T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientchat |
| Kimberly Amelia @fireflyrn84 RT @Clara_Health: Medication that WORKS! Patients need new options developed all the time. Continual patient focused research is the answer #patientchat https://t.co/kE5KOzsR2Q |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @melissarvh: T4 Would need 2 address lack of access to specialists, wait time, lack of education re illness even among medical professionals #patientchat |
| Patient Chat @patientchat T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat |
| Melissa VanHouten @melissarvh RT @richardzhao: @melissarvh @wegohealth Thank all the patients #ambassadors like you that have the courage to take the power back to patients! #patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @LAlupusLady: T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T5: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat |
| CP Nerve Center @Cpnervecenter RT @RachelBasso: My treatment choice has an expiration date. I need new drugs developed FAST. #patientchat https://t.co/dv4mfS4I1o |
| Lisa Davis Budzinski @lisadbudzinski T4 A database to provide Drs & pts research/education to illnesses/diseases/conditions #patientchat |
| M&B Sciences @mbsciencesinc Even companies like ours that include patient voices couldn't do it right without vocal and willing patients and advocates! #patientchat https://t.co/LweH3VDhV6 |
| Amanda G @LAlupusLady T4 access to care, treatment and medications (including healthy food) for all via the Whole Health Wellness Center. #patientchat |
| sue robins (she/her) @suerobinsyvr RT @GraceCordovano: T1: T1: Too many organizations/stakeholders claiming buzzwords, but not fully engaged w/pt & care partners. Say too time consuming #patientchat https://t.co/MKuF6fyHGn |
| Christina Lizaso @btrfly12 How many of these HIT companies have a functioning and integral Patient Advisory Board? #patientchat #hitsm https://t.co/pYTBtgJBk9 |
| Kimberly Amelia @fireflyrn84 #rarediseases are on the back burner and should be treated equally. We need advances as much as every other disease #Patientchat https://t.co/T8gh66Dhl8 |
 | HTVNetworkConference @htvnc RT @Clara_Health: We love the opportunity to hear from passionate patients and advocates! Your voices shape our work each day! #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @GraceCordovano @abrewi3010 Hear hear!!! 👏👏👏👏 Individual perception #patientchat |
| Enlightening Results 💡 @GraceCordovano T5: Work with like minded groups, like #patientchat. By personally committing to being engaged & connecting, amazing opportunities arise. |
| Lilly Stairs @LillyStairs A4: A delivery model that SUCCESSFULLY educates and empowers patients so there's no question who is in charge! #patientchat |
 | Lung Cancer #1 cancer killer of women @VirginiaMByrne RT @patientchat: T5: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat |
| Rachel Rufo @RufoRachel @patientchat A5: This chat is a great start! We are all here to support patient voices. Let this convo take shape in your actions. #patientchat |
| Christina Lizaso @btrfly12 RT @patientchat: T5: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat |
| Lisa Davis Budzinski @lisadbudzinski @btrfly12 Exactly! 👏👏👏👏 #patientchat |
| Melissa VanHouten @melissarvh T5 Just want to mention #RCAW17 as one specific possibility: https://t.co/SorKPQY6Rr. Incredible efforts here! #patientchat |
| Amanda G @LAlupusLady T5 Sharing our patient stories where we are whether we are online in a #patientchat or on Capitol Hill for advocacy day. Push and nudge... https://t.co/fyZZ5h8JQs |
| Kimberly Amelia @fireflyrn84 I don’t have a treatment choice. Mine is simply #symptommanagement & it’s an epic fail #patientchat https://t.co/poVJar4vlV |
| Amanda G @LAlupusLady RT @patientchat: T5: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat |
| Whitney Petit @CfEpilepsy RT @LillyStairs: A4: A4: A delivery model that SUCCESSFULLY educates and empowers patients so there's no question who is in charge! #patientchat |
| CP Nerve Center @Cpnervecenter A5 KEEP ADVOCATING! Advocacy groups like the awesome people here today pull pts together in greater numbers with more voices. #Patientchat |
| Whitney Petit @CfEpilepsy RT @RachelBasso: @patientchat A5: @patientchat A5: This chat is a great start! We are all here to support patient voices. Let this convo take shape in your actions. #patientchat |
| Amanda G @LAlupusLady RT @RachelBasso: @patientchat A5: @patientchat A5: This chat is a great start! We are all here to support patient voices. Let this convo take shape in your actions. #patientchat |
| M&B Sciences @mbsciencesinc @fireflyrn84 As @LillyStairs said- research and innovation shouldn't be driven by numbers. 1 patient matters as much as 1 million patients. #patientchat |
| Enlightening Results 💡 @GraceCordovano T5: Join organizations like Society for Participatory Medicine, mission: transforming the culture of care & patient empowerment #patientchat |
| STELLAR Study @StellarStudy @fireflyrn84 There seems to be a shift in clinical research, more #rarediseases. @StellarStudy is for #anaplasticastrocytoma #braincancer #patientchat |
| Katie @katie5280 @TheMuslimHippie @patientchat @btrfly12 T4: I agree! #patientchat |
| Richard Zhao @richardzhao @GraceCordovano And, working with like minded entrepreneurs as well. I call it #Consumerism of healthcare. #Patientchat |
| Christina Lizaso @btrfly12 T5: a "Patient Entrepreneur" pathway as @darlakbrown proposed would be amazing. Like for other under-rep'd groups in start-ups. #patientchat |
| Ross @Rossco006 One that assures that a patients needs are met! #PatientChat https://t.co/QPAnQXVd9c |
| Patient Empowerment Network @power4patients T5: for starters, advocacy groups need to get better at working together to achieve better outcomes and improve quality of life #patientchat |
| Patient Chat @patientchat RT @btrfly12: How many of these HIT companies have a functioning and integral Patient Advisory Board? #patientchat #hitsm https://t.co/pYTBtgJBk9 |
| Kimberly Amelia @fireflyrn84 T5: Join forces with advocacy groups @wegohealth @brkthrough_crew @patientslikeme @savvy_coop @Clara_Health and use the power #patientchat |
| Lilly Stairs @LillyStairs RT @Clara_Health: @fireflyrn84 As @LillyStairs said- research and innovation shouldn't be driven by numbers. 1 patient matters as much as 1 million patients. #patientchat |
| Bob Tufts @TuftsB #patientchat A5 - work with FDA as group to streamline phase trials, make them easier for us/better, use tech to shorten process @MLIWI |
| Alan Brewington @abrewi3010 T5 Accept patient to include all diagnoses, not just ones similar to mine. I don't care if a #cf or #cancer pt cures me. #patientchat |
| Christina Lizaso @btrfly12 RT @melissarvh: T4 Should address time from treatment research/development 2 approval & other barriers 2 patient access 2 new meds, esp 4 #Rare #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @Cpnervecenter: A5 KEEP ADVOCATING! Advocacy groups like the awesome people here today pull pts together in greater numbers with more voices. #Patientchat |
| Ross @Rossco006 RT @gratefull080504: @LillyStairs : @LillyStairs : bring new treatments +products to market quicker, less cost, greater innovation #patientchat https://t.co/xqjDTnj4I5 |
| Melissa VanHouten @melissarvh T5 In general, advocacy grps & nonprofits designed 2 amplify patient voice are good start; share info & your message everywhere #patientchat |
| sue robins (she/her) @suerobinsyvr I used to be a paid 'family engagement advisor' at 2 children's hospitals. I'm despondent at what's happening w/ patient engagement field.1/ https://t.co/qhvcH4gqVb |
| Patient Empowerment Network @power4patients RT @btrfly12: T5: T5: a "Patient Entrepreneur" pathway as @darlakbrown proposed would be amazing. Like for other under-rep'd groups in start-ups. #patientchat |
| Melissa VanHouten @melissarvh RT @fireflyrn84: #rarediseases are on the back burner and should be treated equally. We need advances as much as every other disease #Patientchat https://t.co/T8gh66Dhl8 |
| Christina Lizaso @btrfly12 RT @GraceCordovano: T5: T5: Work with like minded groups, like #patientchat. By personally committing to being engaged & connecting, amazing opportunities arise. |
| Enlightening Results 💡 @GraceCordovano @richardzhao 100%. It's an all-inclusive initiative to all who truly what better healthcare. #patientchat |
| Christina Lizaso @btrfly12 RT @LillyStairs: A4: A4: A delivery model that SUCCESSFULLY educates and empowers patients so there's no question who is in charge! #patientchat |
| Amanda G @LAlupusLady T5 The Society of Participatory Medicine and connect with @MandiBPro or @ReginaHolliday simple ways... connect. #patientchat |
| Melissa VanHouten @melissarvh RT @GraceCordovano: T5: T5: Work with like minded groups, like #patientchat. By personally committing to being engaged & connecting, amazing opportunities arise. |
| burtrosen 🟦 @burtrosen t5: work with @wegohealth and @savvy_coop, participate in events like #MedX and #WTFix, and @S4PM #PatientChat |
| Christina Lizaso @btrfly12 RT @LAlupusLady: T5 Sharing our patient stories where we are whether we are online in a #patientchat or on Capitol Hill for advocacy day. Push and nudge... https://t.co/fyZZ5h8JQs |
| Alan Brewington @abrewi3010 RT @btrfly12: T5: T5: a "Patient Entrepreneur" pathway as @darlakbrown proposed would be amazing. Like for other under-rep'd groups in start-ups. #patientchat |
| Melissa VanHouten @melissarvh RT @power4patients: T5: T5: for starters, advocacy groups need to get better at working together to achieve better outcomes and improve quality of life #patientchat |
| Anne Polta @AnnePolta T5 Start local. Develop relationships with hcare folks. Talk abt what matters to pts. Ask to be included. Persist. #patientchat |
| Rachel Rufo @RufoRachel @PeraHealth Patient here- YES PLEASE! #patientchat |
| Christina Lizaso @btrfly12 RT @Cpnervecenter: A5 KEEP ADVOCATING! Advocacy groups like the awesome people here today pull pts together in greater numbers with more voices. #Patientchat |
| Patient Chat @patientchat Topic 6 (T6:) coming up… #patientchat |
| Melissa VanHouten @melissarvh @power4patients Amen to that! #patientchat |
| Lilly Stairs @LillyStairs A5: COLLABORATION IS KEY! Both industry and non-profits need to stop their infighting and work together...& always w/patients! #patientchat |
| Enlightening Results 💡 @GraceCordovano Can't emphasize enough. We must look out for our doctors & nurses too! There is too much suffering on both ends of the spectrum #patientchat https://t.co/yo71e1BjLg |
| Ross @Rossco006 It all comes down to the patients voice. We need to get louder more vocal and more organized! #patientchat https://t.co/3i1dpDg4g8 |
| Christina Lizaso @btrfly12 RT @fireflyrn84: T5: T5: Join forces with advocacy groups @wegohealth @brkthrough_crew @patientslikeme @savvy_coop @Clara_Health and use the power #patientchat |
| Amanda G @LAlupusLady T5 where do i sign up? #patientchat https://t.co/KXcXGOnKXk |
| Enlightening Results 💡 @GraceCordovano What can you do? Here's a few great starters: #patientchat https://t.co/Wd6WnAO5vU |
| Patient Chat @patientchat T6: How do we ensure patient’s needs are the primary focus of new healthcare innovations? #patientchat |
| Alan Brewington @abrewi3010 RT @LillyStairs: A5: A5: COLLABORATION IS KEY! Both industry and non-profits need to stop their infighting and work together...& always w/patients! #patientchat |
| Kimberly Amelia @fireflyrn84 I am a nurse walking in my own patient shoes. I would love better care delivered to myself and everyone else. #Patientchat https://t.co/v8ZUtpYb8S |
| M&B Sciences @mbsciencesinc RT @fireflyrn84: T5: T5: Join forces with advocacy groups @wegohealth @brkthrough_crew @patientslikeme @savvy_coop @Clara_Health and use the power #patientchat |
| Amanda G @LAlupusLady RT @Rossco006: It all comes down to the patients voice. We need to get louder more vocal and more organized! #patientchat https://t.co/3i1dpDg4g8 |
| Christina Lizaso @btrfly12 RT @burtrosen: t5: t5: work with @wegohealth and @savvy_coop, participate in events like #MedX and #WTFix, and @S4PM #PatientChat |
 | Inspire @InspireIsHealth RT @patientchat: T6: T6: How do we ensure patient’s needs are the primary focus of new healthcare innovations? #patientchat |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne RT @GraceCordovano: But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/ODtFjCvzf3 |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne RT @Clara_Health: T3: T3: Innovations by nature are solutions to problems. Health problems and the patients who have them should drive the solutions. #patientchat |
| Ross @Rossco006 @patientchat in the weeds with this chat because it's moving so fast! #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: T6: T6: How do we ensure patient’s needs are the primary focus of new healthcare innovations? #patientchat |
| Christina Lizaso @btrfly12 RT @LillyStairs: A5: A5: COLLABORATION IS KEY! Both industry and non-profits need to stop their infighting and work together...& always w/patients! #patientchat |
 | Oscar’s Mom 🩺🟧🇺🇦 @dachshundmom14 @patientchat CVS will dispense 1 week of pain medication at a time! The disabled pt. must go to cvs 4x / month? #patientchat Not good |
| burtrosen 🟦 @burtrosen T4: i'd build an incubator that funded patient led health care start ups. just think what those could do and look like! #PatientChat |
| Christina Lizaso @btrfly12 RT @patientchat: T6: T6: How do we ensure patient’s needs are the primary focus of new healthcare innovations? #patientchat |
| Ross @Rossco006 RT @gratefull080504: T2: T2: Do your homework, learn the issues, use your #patientvoice constructively, request a seat at the table, etc. #patientchat https://t.co/QmieLqQNeR |
 | Participatory Medicine @S4PM RT @burtrosen: T4: T4: i'd build an incubator that funded patient led health care start ups. just think what those could do and look like! #PatientChat |
| CP Nerve Center @Cpnervecenter @GraceCordovano Yes! As a patient and RN I agree wholeheartedly #patientchat |
| Richard Zhao @richardzhao T5: Crowd intelligence & experience from lots of patients are so important for the future of healthcare. At least, for us! #Patientchat |
| Rachel Rufo @RufoRachel T6: Patients can continue to vocalize needs and work together across industry, advocacy organizations and researchers! #patientchat |
| Enlightening Results 💡 @GraceCordovano @Rossco006 @patientchat I hear you! #patientchat https://t.co/rx1IP3oE8c |
| Kimberly Amelia @fireflyrn84 T6: We include #patients on the ground floor development of everything. Things develop different if you have that perspective #patientchat |
| Lilly Stairs @LillyStairs Patient advisory boards, patient consultants and regular engagement from day 1 to ensure your innovation is hitting the mark #patientchat https://t.co/MFbiqPWyF0 |
| Alan Brewington @abrewi3010 T6 greater sharing of patient stories across silos. If a story moves you, share it. Signal boosts for stories is key. #patientchat |
| Lilly Stairs @LillyStairs RT @burtrosen: T4: T4: i'd build an incubator that funded patient led health care start ups. just think what those could do and look like! #PatientChat |
 | I AM TAKING CHARGE™ @IAmTakingCharge When you empower a #patient, you empower their entire #family to think better, do better to maintain a #healthier lifestyle. #patientchat |
| Bob Tufts @TuftsB #patientchat A5 - patients have a powerful narrative we have to use to speed up novel therapies- from beginning to end of process @MLIWI |
| M&B Sciences @mbsciencesinc T6: Patients & caregivers can claim their power by educating themselves and taking charge of their care. #patientchat #patientshavepower |
| Ross @Rossco006 @GraceCordovano We need organizations that have no borders and encompass patients from around the globe. #patientchat |
| Patient Chat @patientchat RT @IAmTakingCharge: When you empower a #patient, you empower their entire #family to think better, do better to maintain a #healthier lifestyle. #patientchat |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne Data hoarding. It serves researchers institutions, not patients. https://t.co/NOYisRjHHD |
| M&B Sciences @mbsciencesinc RT @fireflyrn84: T6: T6: We include #patients on the ground floor development of everything. Things develop different if you have that perspective #patientchat |
| Ross @Rossco006 RT @Clara_Health: @fireflyrn84 As @LillyStairs said- research and innovation shouldn't be driven by numbers. 1 patient matters as much as 1 million patients. #patientchat |
| Oscar’s Mom 🩺🟧🇺🇦 @dachshundmom14 #PatientChat https://t.co/ESJZSzxodJ |
| Christina Lizaso @btrfly12 Join @S4PM https://t.co/lNKI35BXGn and/or sign up for mailing list https://t.co/rRP28TcyFa (scroll down and look for box) #patientchat https://t.co/6VPGcAQP1o |
| CP Nerve Center @Cpnervecenter A6 Patients are included every step of the way. No decisions about patients without patients! #Patientchat |
| Enlightening Results 💡 @GraceCordovano @djuba52 @patientchat Awful. Guess they aren't going on a vacation or traveling anywhere for more than a week either. Wrong answer #patientchat |
| Kimberly Amelia @fireflyrn84 RT @IAmTakingCharge: When you empower a #patient, you empower their entire #family to think better, do better to maintain a #healthier lifestyle. #patientchat |
| Ross @Rossco006 @Clara_Health @LillyStairs @fireflyrn84 So very true! #patientchat |
| I AM TAKING CHARGE™ @IAmTakingCharge @patientchat Without #patient involvement, you won't get the right outcome in making things better for them. #patientchat #innovation #healthcare |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne RT @GraceCordovano: T1: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners value? #patientchat |
| Richard Zhao @richardzhao T5: Patient ambassadors here are doing such important thing for our future of healthcare. You guys have big hearts! #Patientchat |
| Christina Lizaso @btrfly12 RT @burtrosen: T4: T4: i'd build an incubator that funded patient led health care start ups. just think what those could do and look like! #PatientChat |
| Amanda G @LAlupusLady RT @btrfly12: Join @S4PM https://t.co/lNKI35BXGn and/or sign up for mailing list https://t.co/rRP28TcyFa (scroll down and look for box) #patientchat https://t.co/6VPGcAQP1o |
| CP Nerve Center @Cpnervecenter RT @fireflyrn84: T6: T6: We include #patients on the ground floor development of everything. Things develop different if you have that perspective #patientchat |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @Clara_Health: T6: T6: Patients & caregivers can claim their power by educating themselves and taking charge of their care. #patientchat #patientshavepower |
| Lisa Davis Budzinski @lisadbudzinski T5 Peering beyond the walls of healthcare is the catalyst for innovation. As pts, weve made movements just by using tweet chats #patientchat |
 | Savvy Cooperative | #AskPatients @savvy_coop RT @IAmTakingCharge: @patientchat Without #patient involvement, you won't get the right outcome in making things better for them. #patientchat #innovation #healthcare |
| Rachel Rufo @RufoRachel Organizations should be there to break down barriers, not build them! #patientchat |
| Richard Zhao @richardzhao Thanks for the mention! lisadbudzinski: @richardzhao Agree with @wegohealth & there are a lot of us right here in this #patientchat & other… |
| Richard Zhao @richardzhao Thanks for the mention! melissarvh: @richardzhao Yes, I am here & willing! Check @WegoHealth as well! #patientchat |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne But we've always done it this way ... https://t.co/5DPkfgr3dI |
| Richard Zhao @richardzhao Thanks for the mention! power4patients: .@richardzhao We can help! #patientchat |
| Alan Brewington @abrewi3010 T6 need industry/nonprofits to use their platforms to boost human patient stories. #patientchat |
| Amanda G @LAlupusLady @btrfly12 @S4PM Brain fog happens and forgot to @S4PM #patientchat |
| Melissa VanHouten @melissarvh T6 Good article on this very topic: 5 Ways Healthcare Organizations Can Amplify Voice Of The Patient https://t.co/NoziRs7nt4 #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop We agree! #patientchat https://t.co/u75FlQhzoa |
| Christina Lizaso @btrfly12 RT @abrewi3010: T6 greater sharing of patient stories across silos. If a story moves you, share it. Signal boosts for stories is key. #patientchat |
| Christina Lizaso @btrfly12 RT @IAmTakingCharge: When you empower a #patient, you empower their entire #family to think better, do better to maintain a #healthier lifestyle. #patientchat |
| Rachel Rufo @RufoRachel RT @Cpnervecenter: A6 Patients are included every step of the way. No decisions about patients without patients! #Patientchat |
| I AM TAKING CHARGE™ @IAmTakingCharge @patientchat Participate in survey, drop suggestions in #pharmacy box, write to #healthcare publishing companies. #patientchat #patientvoice #health |
| Bob Tufts @TuftsB #patientchat A6 Rate/call out members of the medical supply chain who do not have real patient relations professionals in house @MLIWI |
| Lung Cancer #1 cancer killer of women @VirginiaMByrne Or profit focus? https://t.co/zuOfhJVuQs |
| Patient Empowerment Network @power4patients @IAmTakingCharge Exactly the sentiment I was going to write but you said it beautifully! It's our mission as an organization #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop Jumping in late here, thanks for the shout outs @fireflyrn84 and @burtrosen #PatientChat |
| Kenny @kenny_pal2 Let's chat with the topic of " #patientchat "? Try the chat channel Free and anonymous https://t.co/C7mBPKUe2A |
| Kimberly Amelia @fireflyrn84 @richardzhao Many of us are healthcare professionals who changed roles. Our hearts get us through the day, helping others is what we do #patientchat |
| Ross @Rossco006 @LillyStairs Yes! Again the common thread is that it's about coming together and working together towards a common goal! #patientchat |
| M&B Sciences @mbsciencesinc @melissarvh Thanks for sharing! #patientchat |
| Lilly Stairs @LillyStairs @VirginiaMByrne Ah yes! The classic red tape and slow moving pace of industry. Patients are demanding better. I love it #patientchat |
 | Rhinase @Rhinase_ RT @patientchat: T1: T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat |
| Christina Lizaso @btrfly12 RT @TuftsB: #patientchat A6 Rate/call out members of the medical supply chain who do not have real patient relations professionals in house @MLIWI |
| Enlightening Results 💡 @GraceCordovano Here's another example of what patients & care partners can do right now! Look into @savvy_coop #patientchat https://t.co/Hg14tnPyHg |
| Rhinase @Rhinase_ RT @LillyStairs: A1: A1: I wrote about this topic recently. #digitalhealth companies are falling behind in #patientadvocacy https://t.co/ro3uPljMps #patientchat |
| Rhinase @Rhinase_ RT @patientchat: T2: T2: How could we work to overcome these limitations to more innovation in healthcare? #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop This is powerful. Must not forget the family and#caregivers. Unsung heroes! #patientchat https://t.co/X1aQapB2vw |
| Rhinase @Rhinase_ RT @abrewi3010: T2 return to basics. Active listening to each other with #everyoneincluded. Respect for all sides. #patientchat |
| Lilly Stairs @LillyStairs RT @IAmTakingCharge: When you empower a #patient, you empower their entire #family to think better, do better to maintain a #healthier lifestyle. #patientchat |
 | Capricorn - It's Me! @_capricorn_247 Awesome Capricorn See here=> https://t.co/tJE4lywf8V #capricornhoodie #capricornmug #capricornlongsleeve #patientchat https://t.co/1BcdOOzQlk |
| Oscar’s Mom 🩺🟧🇺🇦 @dachshundmom14 #PatientChat #Spoonies #chronicillness https://t.co/BFMCHGb7Eh |
| CP Nerve Center @Cpnervecenter RT @power4patients: @IAmTakingCharge Exactly the sentiment I was going to write but you said it beautifully! It's our mission as an organization #patientchat |
| Patient Empowerment Network @power4patients We design cars with the driver in mind, why is it so revolutionary to suggest designing treatments w/ the patient in mind??? #patientchat |
 | Jerry Durham @Jerry_DurhamPT Love this!!! #FOCUSonPatient https://t.co/WHT3AXGiTt |
| Amanda G @LAlupusLady T6 Start by including patients before the development begins, include pts in research and ask us "what do we need?" #patientchat easy fix. https://t.co/FlVBEs1Rwd |
| Melissa VanHouten @melissarvh RT @power4patients: We design cars with the driver in mind, why is it so revolutionary to suggest designing treatments w/ the patient in mind??? #patientchat |
| Bob Tufts @TuftsB #patientchat - conventions are rated on whether there are #patientsincluded, so should others in system. @MLIWI https://t.co/UdngxvrpUi |
| Amanda G @LAlupusLady RT @patientchat: T6: T6: How do we ensure patient’s needs are the primary focus of new healthcare innovations? #patientchat |
| Lilly Stairs @LillyStairs Preach!! 🙌🏻 #Patientchat https://t.co/A0X8enzvwu |
| Savvy Cooperative | #AskPatients @savvy_coop This our soapbox! Our goal @savvy_coop is to make it so easy to work w patients, innovators have no excuse to not collaborate #patientchat https://t.co/hw0qwFoIZw |
| Ross @Rossco006 @fireflyrn84 @btrfly12 @wegohealth @brkthrough_crew @patientslikeme @savvy_coop @Clara_Health You have a very strong point here! #patientchat |
| Christina Lizaso @btrfly12 @power4patients Advocacy groups can be so protective of own little space. Collab is how things will change w/ true pt involvement in the groups #patientchat |
| Lisa Davis Budzinski @lisadbudzinski Another great stand out 👇 emerging in healthcare! #PatientChat https://t.co/rmg7XvNBBW |
 | Nicole Saphier, MD @NBSaphierMD As a #radiologist I daily encourage my colleagues to get out of the dark and communicate directly w patients. #RadsHaveAFace #patientchat |
| Patient Chat @patientchat Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Alan Brewington @abrewi3010 RT @savvy_coop: This our soapbox! Our goal @savvy_coop is to make it so easy to work w patients, innovators have no excuse to not collaborate #patientchat https://t.co/hw0qwFoIZw |
| Kimberly Amelia @fireflyrn84 I’m getting so many notifications that I can’t keep up with what everyone is putting! Definitely need the recap on this one! #patientchat |
| Bob Tufts @TuftsB No one wants to put the patient behind the wheel. #patientchat https://t.co/OK8AceDypT |
| Patient Empowerment Network @power4patients RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat |
| Amanda G @LAlupusLady i should have put on my #pinksocks for #patientchat today as we discuss innovation and disruption. Tribe. Community. Collaboration. |
| CP Nerve Center @Cpnervecenter RT @lisadbudzinski: Another great stand out 👇 emerging in healthcare! #PatientChat https://t.co/rmg7XvNBBW |
| Christina Lizaso @btrfly12 icymi: Link to join @S4PM https://t.co/lNKI35BXGn and/or sign up for mailing list https://t.co/rRP28TcyFa (look for box) #patientchat |
 | Isabel Jordan (She/Her) @seastarbatita RT @suerobinsyvr: I used to be a paid 'family engagement advisor' at 2 children's hospitals. I'm despondent at what's happening w/ patient engagement field.1/ https://t.co/qhvcH4gqVb |
| Amanda G @LAlupusLady RT @LillyStairs: Preach!! 🙌🏻 #Patientchat https://t.co/A0X8enzvwu |
| Christina Lizaso @btrfly12 RT @NBSaphierMD: As a #radiologist I daily encourage my colleagues to get out of the dark and communicate directly w patients. #RadsHaveAFace #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop @lisadbudzinski Thanks for your continued support! Patients empowerment through a patient co-op! #patientchat |
| I AM TAKING CHARGE™ @IAmTakingCharge Every individual should say to themselves: " My Health is important to me and I have a Voice to make changes in #healthcare. " #patientchat |
| Lilly Stairs @LillyStairs RT @NBSaphierMD: As a #radiologist I daily encourage my colleagues to get out of the dark and communicate directly w patients. #RadsHaveAFace #patientchat |
| Lisa Davis Budzinski @lisadbudzinski This 👇! #patientchat https://t.co/WOrXqpFHtw |
| Ross @Rossco006 Including the patient in the process is a start. #patientchat https://t.co/B9bn7jaekw |
| Lilly Stairs @LillyStairs RT @btrfly12: @power4patients Advocacy groups can be so protective of own little space. Collab is how things will change w/ true pt involvement in the groups #patientchat |
 | Kandi Yarberry @kandiyarberry RT @power4patients: We design cars with the driver in mind, why is it so revolutionary to suggest designing treatments w/ the patient in mind??? #patientchat |
| Kandi Yarberry @kandiyarberry RT @melissarvh: T6 Good article on this very topic: T6 Good article on this very topic: 5 Ways Healthcare Organizations Can Amplify Voice Of The Patient https://t.co/NoziRs7nt4 #patientchat |
| Christina Lizaso @btrfly12 @power4patients yet I got blank stares from a heart device guy who thinks docs are his only customer #patientchat |
| Kandi Yarberry @kandiyarberry RT @power4patients: T5: T5: for starters, advocacy groups need to get better at working together to achieve better outcomes and improve quality of life #patientchat |
| Kandi Yarberry @kandiyarberry RT @GraceCordovano: T5: T5: Work with like minded groups, like #patientchat. By personally committing to being engaged & connecting, amazing opportunities arise. |
| Savvy Cooperative | #AskPatients @savvy_coop Thank you! Need this. Every day. #patientchat https://t.co/z5oR4a9WIQ |
| Lisa Davis Budzinski @lisadbudzinski RT @btrfly12: icymi: icymi: Link to join @S4PM https://t.co/lNKI35BXGn and/or sign up for mailing list https://t.co/rRP28TcyFa (look for box) #patientchat |
| Kandi Yarberry @kandiyarberry RT @fireflyrn84: #rarediseases are on the back burner and should be treated equally. We need advances as much as every other disease #Patientchat https://t.co/T8gh66Dhl8 |
| Sakinah Kaiser (She/Her) @themuslimhippie RT @LillyStairs: Preach!! 🙌🏻 #Patientchat https://t.co/A0X8enzvwu |
| Kandi Yarberry @kandiyarberry RT @melissarvh: T5 In general, advocacy grps & nonprofits designed 2 amplify patient voice are good start; share info & your message everywhere #patientchat |
| M&B Sciences @mbsciencesinc @TuftsB We do!!!! Here's a key for you! #patientchat https://t.co/DI88kpH9I9 |
| Bob Tufts @TuftsB #patientchat - CT Always remember that Big Data only gets us in the ballpark, a caring physician gets us to the right seat. @MLIWI |
| Savvy Cooperative | #AskPatients @savvy_coop RT @power4patients: We design cars with the driver in mind, why is it so revolutionary to suggest designing treatments w/ the patient in mind??? #patientchat |
| Ross @Rossco006 RT @NBSaphierMD: As a #radiologist I daily encourage my colleagues to get out of the dark and communicate directly w patients. #RadsHaveAFace #patientchat |
| Kandi Yarberry @kandiyarberry RT @melissarvh: T5 Just want to mention #RCAW17 as one specific possibility: T5 Just want to mention #RCAW17 as one specific possibility: https://t.co/SorKPQY6Rr. Incredible efforts here! #patientchat |
| CP Nerve Center @Cpnervecenter CT Get involved! Ask your clinic if they include patients in decision making. If not, offer yourself in that role. #Patientchat |
| Kandi Yarberry @kandiyarberry RT @richardzhao: @melissarvh @wegohealth Thank all the patients #ambassadors like you that have the courage to take the power back to patients! #patientchat |
| Whitney Petit @CfEpilepsy RT @Clara_Health: T6: T6: Patients & caregivers can claim their power by educating themselves and taking charge of their care. #patientchat #patientshavepower |
| Kandi Yarberry @kandiyarberry RT @melissarvh: T3 Seems to me it must be grassroots, bottom to top change rather than top-down imposed change. #patientchat |
| Kandi Yarberry @kandiyarberry RT @melissarvh: T2 Must have people willing to stand up & take a risk, who are able to fundamentally & radically rethink the way things are. #patientchat |
| Kandi Yarberry @kandiyarberry RT @melissarvh: T2 Include patient opinion & ideas from beginning 2 end; need companies 2 welcome/reward new ideas & push change in perspective #patientchat |
| Christina Lizaso @btrfly12 RT @TuftsB: #patientchat - CT Always remember that Big Data only gets us in the ballpark, a caring physician gets us to the right seat. @MLIWI |
| Kimberly Amelia @fireflyrn84 CT: Patients first, patients always! If we want a system that works, ask the patient! #patientchat |
| Kandi Yarberry @kandiyarberry RT @melissarvh: T4 Should address time from treatment research/development 2 approval & other barriers 2 patient access 2 new meds, esp 4 #Rare #patientchat |
| Lisa Davis Budzinski @lisadbudzinski RT @Cpnervecenter: CT Get involved! Ask your clinic if they include patients in decision making. If not, offer yourself in that role. #Patientchat |
| Anne Polta @AnnePolta @NBSaphierMD Thank you for this. #patientchat |
| Kandi Yarberry @kandiyarberry RT @melissarvh: T4 Would need 2 address lack of access to specialists, wait time, lack of education re illness even among medical professionals #patientchat |
| Christina Lizaso @btrfly12 RT @Cpnervecenter: CT Get involved! Ask your clinic if they include patients in decision making. If not, offer yourself in that role. #Patientchat |
| Kandi Yarberry @kandiyarberry RT @melissarvh: T1 Lack of motivation & unwillingness to change; lack of understanding abt what needs 2 change; political culture & regulations #patientchat |
| Christina Lizaso @btrfly12 RT @AnnePolta: T5 Start local. Develop relationships with hcare folks. Talk abt what matters to pts. Ask to be included. Persist. #patientchat |
| Alan Brewington @abrewi3010 CT tell my story in my voice in a quality/vulnerable way & the world will change. #patientchat |
| burtrosen 🟦 @burtrosen going to be a great event with an amazing lineup of speakers https://t.co/7eD1iZWc8t |
| Rhinase @Rhinase_ RT @patientchat: T3: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat |
| Rhinase @Rhinase_ RT @btrfly12: T3: T3: Love the patient #DIY movement and #citizenscience efforts. They are paving good ways but will take more than that. #patientchat |
| Christina Lizaso @btrfly12 @abrewi3010 love, love this #patientchat |
| Christina Lizaso @btrfly12 RT @abrewi3010: CT tell my story in my voice in a quality/vulnerable way & the world will change. #patientchat |
| Ross @Rossco006 @NBSaphierMD @btrfly12 This is the type of communication that we the patient need if we are going to work together! #patientchat |
| Christina Lizaso @btrfly12 RT @melissarvh: T5 Just want to mention #RCAW17 as one specific possibility: T5 Just want to mention #RCAW17 as one specific possibility: https://t.co/SorKPQY6Rr. Incredible efforts here! #patientchat |
| Savvy Cooperative | #AskPatients @savvy_coop Hooray! We may be bias, but we sure think it's the future. Our Savvy Crowd of patients are here to help. We do better together! #patientchat https://t.co/vzUVCkju52 |
| Ross @Rossco006 RT @btrfly12: @power4patients Advocacy groups can be so protective of own little space. Collab is how things will change w/ true pt involvement in the groups #patientchat |
| Richard Zhao @richardzhao It was great experience for my 1st time here. Good to know so many patient ambassadors here are willing to take actions! #Patientchat |
| Lilly Stairs @LillyStairs CT: I want ALL #digitalhealth companies to see this chat to recognize value of patient engagement. Let's change status quo! #patientchat |
| Christina Lizaso @btrfly12 RT @LillyStairs: CT: CT: I want ALL #digitalhealth companies to see this chat to recognize value of patient engagement. Let's change status quo! #patientchat |
| Patient Empowerment Network @power4patients .@btrfly12 Sadly, it's evolution, not revolution...yet ;) #patientchat |
| burtrosen 🟦 @burtrosen CT: not easy, but never stop fighting to get your voice and the voice of patients and people heard in HC. Cant happen enough #PatientChat |
| Alan Brewington @abrewi3010 @btrfly12 Thank you! 🙏 #patientchat |
| Kimberly Amelia @fireflyrn84 @abrewi3010 So true! Love this #patientchat |
| Lisa Davis Budzinski @lisadbudzinski CT: Pts have yrs of experience that can be a formidable force via innovation/disruption in #healthcare #patientchat |
| Patient Chat @patientchat #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime |
| Amanda G @LAlupusLady CT Next TUESDAY join the #Connect2Health @PCHAlliance @JohnSharp hosts @BrennanSpiegel and me #VR in HC #patientchat https://t.co/q6vdRF7SVG |
| Christina Lizaso @btrfly12 #HITsm #HITmc #HealthIThchicks https://t.co/B3RE1knQvH |
| Katie @katie5280 @patientchat CT: There are many organizations that need to start patient advisory boards or start including patient opinion for innovation #patientchat |
| Patient Chat @patientchat Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour |
| Kimberly Amelia @fireflyrn84 @richardzhao We’re always here! #patientchat |
| Ross @Rossco006 @fireflyrn84 I'm having the same problem! Lol! #Patientchat |
| Patient Empowerment Network @power4patients RT @LAlupusLady: CT Next TUESDAY join the #Connect2Health @PCHAlliance @JohnSharp hosts @BrennanSpiegel and me #VR in HC #patientchat https://t.co/q6vdRF7SVG |
| Christina Lizaso @btrfly12 RT @LAlupusLady: CT Next TUESDAY join the #Connect2Health @PCHAlliance @JohnSharp hosts @BrennanSpiegel and me #VR in HC #patientchat https://t.co/q6vdRF7SVG |
| burtrosen 🟦 @burtrosen @richardzhao one of the best tweet chats out there. so hearfelt, caring and empathetic #patientchat is great! |
| Lisa Davis Budzinski @lisadbudzinski @richardzhao Thank you ✨ We work so very hard on a daily basis #PatientChat |
| Richard Zhao @richardzhao Sorry that I have to drop out early, even I don't want to. Have to go to another meeting now.Have a nice weekend everyone Love #Patientchat |
 | Nick Adkins @nickisnpdx RT @LAlupusLady: i should have put on my #pinksocks for #patientchat today as we discuss innovation and disruption. Tribe. Community. Collaboration. |
| Christina Lizaso @btrfly12 RT @burtrosen: @richardzhao one of the best tweet chats out there. so hearfelt, caring and empathetic #patientchat is great! |
| Patient Chat @patientchat Join us for the next Empowered #patientchat on Fri October 6th at 1pm ET | 10am PT https://t.co/9go81MXVm8 |
| Inspire @InspireIsHealth RT @LAlupusLady: T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientchat |
| Enlightening Results 💡 @GraceCordovano Have a fabulous weekend #patientchat! Til next time |
| CP Nerve Center @Cpnervecenter Amazing chat today. THANKS AGAIN #Patientchat. I'm feeling even more empowered after this hour. #empowerhour https://t.co/gLFNgyQn3p |
| Inspire @InspireIsHealth RT @patientchat: T5: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat |
| Melissa VanHouten @melissarvh Huge thanks to @patientchat for hosting another informative & engaging chat! #patientchat |
| Amanda G @LAlupusLady CT A Patient’s Perspective on Virtual Reality https://t.co/p8PTv3vm2K #Connect2Health insight #patientchat share. |
| Patient Chat @patientchat Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| Patient Empowerment Network @power4patients RT @patientchat: Join us for the next Empowered #patientchat on Fri October 6th at 1pm ET | 10am PT https://t.co/9go81MXVm8 |
| Christina Lizaso @btrfly12 RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| Melissa VanHouten @melissarvh RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| Anne Polta @AnnePolta What?? We're done already?! Fastest hour ever. #patientchat |
| Melissa VanHouten @melissarvh RT @patientchat: Join us for the next Empowered #patientchat on Fri October 6th at 1pm ET | 10am PT https://t.co/9go81MXVm8 |
| Patient Empowerment Network @power4patients RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat |
| Ross @Rossco006 @LillyStairs Yes! I think we're making a huge impact in this with @brkthrough_crew and others! #patientchat |
 | Bingle @TheBingle Very True! Could even be a reason for Breaking News In Medicine. However, sometimes other people take credit IMHO. #patientchat #healthcare https://t.co/Q69v0gfJ7T |
| Ross @Rossco006 RT @patientchat: #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime |
| Savvy Cooperative | #AskPatients @savvy_coop We created a patient co-op to give power back to patients and give them a marketplace to share their savvy with innovators. #patientchat https://t.co/8T0jmpnVxP |
| Amanda G @LAlupusLady i promised to not say anything but beware because MONDAY is coming... #patientchat |
| Ross @Rossco006 RT @LAlupusLady: CT Next TUESDAY join the #Connect2Health @PCHAlliance @JohnSharp hosts @BrennanSpiegel and me #VR in HC #patientchat https://t.co/q6vdRF7SVG |
 | Patient Critical Co-op @PatientCritical CT: Patients will never be priority of HCP/policy groups that have own members to serve. It's why we created @PatientCritical #patientchat https://t.co/eLuvvlpJdR |
| Savvy Cooperative | #AskPatients @savvy_coop Important point here too about privilege. We aren't capturing diverse patient voices, and therefore innovating for subset of pop #paientchat https://t.co/QsmnHOlNBk |
| Patient Critical Co-op @PatientCritical RT @patientchat: T4: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it address? #patientchat |
| Rhinase @Rhinase_ RT @patientchat: T4: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it address? #patientchat |
| Anne Polta @AnnePolta RT @lisadbudzinski: CT: CT: Pts have yrs of experience that can be a formidable force via innovation/disruption in #healthcare #patientchat |
 | EndHeartDisease @EndHeartDisease #patientchat https://t.co/lOehF2wVa7 |
| Anne Polta @AnnePolta RT @burtrosen: CT: CT: not easy, but never stop fighting to get your voice and the voice of patients and people heard in HC. Cant happen enough #PatientChat |
| Rhinase @Rhinase_ RT @power4patients: T4: Here's what we would do: T4: Here's what we would do: https://t.co/O3ofY3i71e @jbbc #patientchat |
| Ross @Rossco006 @patientchat Thanks everybody! Great chat and look forward to catching the next! Off to deal with a sick kid! #patientchat |
| Rhinase @Rhinase_ RT @RachelBasso: A4: A4: If I had unlimited resources no patient would ever pay out of pocket for a treatment they needed. #patientchat https://t.co/azAiZzitU1 |
| Rhinase @Rhinase_ RT @fireflyrn84: T4: T4: It would put the human touch back into healthcare. Technology is great, but technology doesn’t have empathy or hand to hold #patientchat |
| Rhinase @Rhinase_ RT @patientchat: T5: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat |
#patientchat content from Twitter.