#patientchat Transcript

Healthcare social media transcript of the #patientchat hashtag.
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Patient Chat @patientchat
Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to empowered patients.
Whitney Petit @CfEpilepsy
RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to emp…
Patient Chat @patientchat
The Empowered #patientchat is a project of @power4patients and @intakeme
Amanda @LAlupusLady
RT @patientchat: Welcome to #patientchat - where patients and advocates come to learn from each other and discuss topics of interest to emp…
Kimberly Hartmann @fireflyrn84
@GraceCordovano @patientchat I know! It's crazy when you look up...if only time went that fast for other things 😊#patientchat
Patient Chat @patientchat
We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
I’m Kara from @power4patients and I’m excited to be moderating today’s #patientchat
Patient Chat @patientchat
Please continue intros and welcomes. I’ll share a couple “ground rules" :) #patientchat
Whitney Petit @CfEpilepsy
RT @patientchat: We start out with introductions - Those joining in, please take a moment to introduce yourself. #patientchat
Patient Chat @patientchat
Today's chat is solely informational & not a substitute for speaking w/ a doctor who's familiar w/your medical needs & history. #patientchat
STELLAR Study @stellarstudy
I’ll be at the Empowered #patientchat on Fri 9/22 1pmET. Join me! https://t.co/VUPJT50oAw via @power4patients
Enlightening Results @GraceCordovano
Happy Friday #patientchat! Grace, private cancer patient advocate joining from NJ https://t.co/Nlg5uyBscc
Patient Chat @patientchat
You can view our Chat Etiquette & Guidelines, along with past chat transcripts, at https://t.co/99wmvHL0S2 #patientchat
Breakthrough Crew @brkthrough_crew
So excited to be here and talk to so many amazing patients and advocates! #patientchat
Whitney Petit @CfEpilepsy
Hi! I’m Whitney, Epilepsy Advocate. Tweeting from Dallas, TX! #patientchat
Kevin J. Fowler @gratefull080504
@gratefull080504 : Have my own #patientengagement + #patientadvocacy consulting business #kidneytransplant recipient #patientchat https://t.co/sPxCFJByKJ
Clara @Clara_Health
We love the opportunity to hear from passionate patients and advocates! Your voices shape our work each day! #patientchat
Kimberly Hartmann @fireflyrn84
I’m Kim joining from Wisconsin, I’m RN turned fulltime patient, @patientslikeme Team of Advisors, @brkthrough_crew ambassador #patientchat
Patient Empowerment @power4patients
Hi, it's Andrea from PEN, excited to join you all today from Tampa where we're hosting a Digital Sherpa Workshop tomorrow #patientchat
🦎 Sakinah🦎 @TheMuslimHippie
RT @Clara_Health: We love the opportunity to hear from passionate patients and advocates! Your voices shape our work each day! #patientchat
STELLAR Study @stellarstudy
We're joining today's #patientchat! - The STELLAR Study for patients with #anaplasticastrocytoma #braincancer #btsm
CP Nerve Center @Cpnervecenter
Hi everyone I'm Becky @bbhomebody with @Cpnervecenter from Washington state #patientchat
burtrosen @burtrosen
Hi,, burt here and so excited for today. I LOVE #PatientChat
Ross @Rossco006
@patientchat Ross here from Regina, Saskatchewan #patientchat
Rachel Basso @rachelbasso
Proud #endowarrior and #patientadvocate excited to be here! #patientchat
Rachel Basso @rachelbasso
RT @Clara_Health: We love the opportunity to hear from passionate patients and advocates! Your voices shape our work each day! #patientchat
Enlightening Results @GraceCordovano
@gratefull080504 Hi Kevin! Great to see you on the chat today #patientchat
Enlightening Results @GraceCordovano
@Clara_Health Happy Friday @Clara_Health #patientchat
Alan Brewington @abrewi3010
Alan here. New #caregiver, #arthritis, #MentalHealth patient here who is insanely tired. #medxhangover #patientchat
Rachel Basso @rachelbasso
@GraceCordovano Snoopy is channeling my exact #FridayFeeling #patientchat
Enlightening Results @GraceCordovano
@brkthrough_crew Hey @brkthrough_crew! Looking forward to this afternoon's char #patientchat
Amanda @LAlupusLady
Amanda a woman living with #Lupus and #chronicpain ~ Happy #patientchat https://t.co/tV4GkUVjFR
Whitney Petit @CfEpilepsy
Happy everyone could make it today! Best way to spend my lunch hour! #patientchat
Patient Chat @patientchat
Today's #patientchat topic is Innovation and Disruption in Healthcare https://t.co/3QWEJzARGa
Lilly Stairs @LillyStairs
Lilly here! Autoimmune #patientadvocate passionate about the power of research! #patientchat
Ross @Rossco006
@brkthrough_crew Great to be here as part of the #BreakthroughCrew and represent! #patientchat
Kimberly Hartmann @fireflyrn84
#patientchat https://t.co/csK5GkS4xm
Claire @clairehsnyman
Claire from sunny Vancouver, Canada #braintumoradvocate! #patientchat
Natalie 🦓 @_Nataliea
Sorta here. Working but checking in. #patientchat
Kimberly Hartmann @fireflyrn84
@burtrosen Hey Burt!! #patientchat
Anne Polta @annepolta
Hello from the upper Midwest where we're having record heat on the first day of fall. #patientchat
Whitney Petit @CfEpilepsy
@LillyStairs Hi Lilly!! #patientchat
Enlightening Results @GraceCordovano
@abrewi3010 Hi Alan! Sorry to hear you are exhausted. Wasn't MedX amazing though? #patientchat
Christina Lizaso @btrfly12
Hi #patientchat. I'm passionate about community engagement and health. Find me here + #gyncsm #nsgcgenepool #breakthroughcrew #patientchat
Katie @katie5280
@patientchat Hi! I'm Katie, a breast cancer survivor & t2 diabetic, ed. ambassador for @BeBrightPink & @wegohealth patient leader! #patientchat
Ross @Rossco006
@CfEpilepsy Great to have you here! #patientchat
Kimberly Hartmann @fireflyrn84
@Rossco006 @patientchat You made it! Yay! #patientchat
Patient Chat @patientchat
I will introduce new Topics with T1, T2... Pls include corresponding T# at front of answer - hard to remember but helpful #patientchat
Lilly Stairs @LillyStairs
@power4patients Yes!! LOVE the work you're doing with the digital Sherpa program!! #patientchat
Enlightening Results @GraceCordovano
@RachelBasso I hear you Rachel!! #patientchat
Christina Lizaso @btrfly12
RT @patientchat: Today's #patientchat topic is Innovation and Disruption in Healthcare https://t.co/3QWEJzARGa
Amanda @LAlupusLady
just want to send HUGS to #patientchat friends (even the ones i haven't met yet...)
Whitney Petit @CfEpilepsy
@Rossco006 Good to see you too! #patientchat
Patient Empowerment @power4patients
RT @patientchat: Today's #patientchat topic is Innovation and Disruption in Healthcare https://t.co/3QWEJzARGa
Lisa Davis Budzinski @lisadbudzinski
Hi everyone! Co-founder of @Cpnervecenter advocacy group post stroke & cancer. We believe in the #patientperspective#patientchat https://t.co/JHZXKcONYR
Enlightening Results @GraceCordovano
@LAlupusLady Glad to see you here this afternoon Amanda! Happy Friday! #patientchat
🦎 Sakinah🦎 @TheMuslimHippie
@LillyStairs Hi! #patientchat
Richard Zhao @richardzhao
Richard from Minneapolis is here. Doing project that using #PatientSentiment to #empower patients on selecting clinics. #Patientchat
Rachel Basso @rachelbasso
@fireflyrn84 @Rossco006 @patientchat Always a challenge but so worth it! #patientchat
Alan Brewington @abrewi3010
@GraceCordovano Yes it was! I'm glad I went. How's your hangover doing? #patientchat
PeraHealth @perahealth
PeraHealth here from Charlotte, NC- We are transforming healthcare through the intelligent use of data #patientchat
Patient Chat @patientchat
Time to start our topics. Here comes T1: #patientchat
Kimberly Hartmann @fireflyrn84
@AnnePolta It’s horrible in WI #patientchat
Whitney Petit @CfEpilepsy
RT @patientchat: Time to start our topics. Here comes T1: #patientchat
Patient Chat @patientchat
T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat
Ross @Rossco006
@LAlupusLady Hey Amanda! #patientchat
Christina Lizaso @btrfly12
@CfEpilepsy it's a tweet party here in Dallas now ;) #patientchat
Whitney Petit @CfEpilepsy
RT @patientchat: T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat
Rachel Basso @rachelbasso
@LAlupusLady **Hugs!** #patientchat
Enlightening Results @GraceCordovano
@btrfly12 Hi Christina! It's a party here this afternoon! #patientchat
Christina Lizaso @btrfly12
RT @patientchat: T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat
Patient Empowerment @power4patients
RT @patientchat: T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat
Enlightening Results @GraceCordovano
@Rossco006 @CfEpilepsy Hi Ross! Glad the timing worked! #patientchat
Bob Tufts @TuftsB
#patientchat - Good day, on for awhile until I help.a friend with their myeloma diagnosis questions
Lisa Davis Budzinski @lisadbudzinski
RT @patientchat: Today's #patientchat topic is Innovation and Disruption in Healthcare https://t.co/3QWEJzARGa
Ross @Rossco006
@LillyStairs Great to see you here! #patientchat
Enlightening Results @GraceCordovano
@LillyStairs @power4patients Hi Lilly! Happy Friday #patientchat
Amanda @LAlupusLady
Let's innovate and disrupt... #patientchat style. https://t.co/lTlrjTDZhW
Whitney Petit @CfEpilepsy
@btrfly12 Yessss! Or should I say yee-haww! Haha #patientchat
Christina Lizaso @btrfly12
RT @patientchat: Learn more about the Empowered #patientchat series and how to participate here: https://t.co/UENH6hX6z9
Ross @Rossco006
@fireflyrn84 @patientchat Finally! #patientchat
Amanda @LAlupusLady
RT @RachelBasso: @LAlupusLady **Hugs!** #patientchat
Katie @katie5280
Also a 2017-2018 Young Advocate for @LivingBeyondBC , State Leader, F2F Coord., Survivor Link Mentor & Council of Advisors member @YSCBuzz https://t.co/MrreWAUWQE
Amanda @LAlupusLady
RT @Rossco006: @LAlupusLady Hey Amanda! #patientchat
Enlightening Results @GraceCordovano
@TuftsB Hi Bob! Happy Friday #patientchat
burtrosen @burtrosen
T1: risk aversion. no one wants to try something and fail. and innovations could be simple #PatientChat
Clara @Clara_Health
T1: The first barrier that comes to mind is one we are trying to fix! Lack of patient participation in #clinicalresearch. #patientchat
PeraHealth @perahealth
T1: The willingness to adopt and embrace technology in order to drive future success for patient care #patientchat
Amanda @LAlupusLady
RT @patientchat: T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat
Melissa VanHouten @melissarvh
T1 Lack of motivation & unwillingness to change; lack of understanding abt what needs 2 change; political culture & regulations #patientchat
Anne Polta @annepolta
@fireflyrn84 This weather is cray. I need to run home after the chat so I can turn on the air conditioning. Don't want my cat to melt. #patientchat
Lilly Stairs @LillyStairs
Thanks all for the warm welcome! Excited to have a moment today to join you for #patientchat!!
Ross @Rossco006
@GraceCordovano @CfEpilepsy It's always a challenge because it's smack in the middle of the day for me. #patientchat
Patient Empowerment @power4patients
RT @Clara_Health: T1: The first barrier that comes to mind is one we are trying to fix! Lack of patient participation in #clinicalresearch.…
Claire @clairehsnyman
A1: Healthcare systems are complex, so being disruptive means figuring out how to navigate through complexities #patientchat
Alan Brewington @abrewi3010
T1 the fear that failure is a bad thing and not something to be celebrated/learned from. #patientchat
Rachel Basso @rachelbasso
@TuftsB Helping a friend is the best reason to leave! #patientchat
Kevin J. Fowler @gratefull080504
T1: The lack of policy + reimbursement incentives to support Innovation + disruption #patientchat https://t.co/u2zzAbc8ZT
Kimberly Hartmann @fireflyrn84
@AnnePolta I'm in the AC with a cooling towel and am melting...going to the Packers game on Sunday! #patientchat
CP Nerve Center @Cpnervecenter
A1-INSURANCE INSURANCE INSURANCE! They get to decide what care I deserve as a patient. IT'S ROTTEN! #patientchat
Lilly Stairs @LillyStairs
LOVING seeing all these @brkthrough_crew ambassadors here 😊#patientchat https://t.co/V2R1jKowM9
STELLAR Study @stellarstudy
Technology is continually changing, but can we keep up? Are doctors willing to keep up? #patientchat
Enlightening Results @GraceCordovano
T1: Everyone is trying to be the silver bullet, shatter the glass ceiling. #Healthcare needs enhancement too. Must must refocus #patientchat
Bob Tufts @TuftsB
#patientchat - Ok, where are the other guys? :(
CP Nerve Center @Cpnervecenter
RT @Clara_Health: T1: The first barrier that comes to mind is one we are trying to fix! Lack of patient participation in #clinicalresearch.…
Amanda @LAlupusLady
T1 boat-rockers needed... but often financial and institutional forces hinder the innovation process. #patientchat
Ross @Rossco006
@LAlupusLady Your all like a second family to me! #patientchat
burtrosen @burtrosen
@abrewi3010 huge hindrance. the concept of failure in health care scares the hell out of people #patientchat
Katie @katie5280
@patientchat T1: Funding and current laws with great concern on impending changes to those laws. #patientchat
Breakthrough Crew @brkthrough_crew
Many advocates and organizations are doing great work to innovate. Connecting the dots and working together would help all! #patientchat
Ross @Rossco006
RT @Clara_Health: T1: The first barrier that comes to mind is one we are trying to fix! Lack of patient participation in #clinicalresearch.…
STELLAR Study @stellarstudy
T1: Technology is continually changing, but can we keep up and are doctors willing to keep up? #patientchat
Claire @clairehsnyman
RT @GraceCordovano: T1: Everyone is trying to be the silver bullet, shatter the glass ceiling. #Healthcare needs enhancement too. Must must…
Richard Zhao @richardzhao
T1: Patients are not included in product or service design. Too much provider or payer focus, rather than patient focus. #Patientchat
Whitney Petit @CfEpilepsy
@Rossco006 @GraceCordovano I usually try to work my schedule around it and still forget smh. But not today! #patientchat
Claire @clairehsnyman
RT @gratefull080504: T1: The lack of policy + reimbursement incentives to support Innovation + disruption #patientchat https://t.co/u2zzAbc…
Lilly Stairs @LillyStairs
A1: Companies aren't consulting patients and caregivers as they build their platform. It's a critical mistake. #patientchat
Patient Empowerment @power4patients
RT @richardzhao: T1: Patients are not included in product or service design. Too much provider or payer focus, rather than patient focus.…
Whitney Petit @CfEpilepsy
RT @richardzhao: T1: Patients are not included in product or service design. Too much provider or payer focus, rather than patient focus.…
Christina Lizaso @btrfly12
T1: the stakes in healthcare are high, so leaves many risk-adverse, but standing still in current bad system not safe either... #patientchat
Amanda @LAlupusLady
T1 disruption in Healthcare has the hurdle of established guidelines/practices ` difficult to establish a new paradigm. #patientchat
Ross @Rossco006
Being inclusive of the patient is the first thing that comes to mind. #patientchat https://t.co/ySsE7yJsKd
Christina Lizaso @btrfly12
RT @LillyStairs: A1: Companies aren't consulting patients and caregivers as they build their platform. It's a critical mistake. #patientch
Kimberly Hartmann @fireflyrn84
T1: Funding is huge, without money or resources, there is a brick wall! Lot of reluctance waiting to see what happens with #ACA #patientchat
Amanda @LAlupusLady
RT @brkthrough_crew: Many advocates and organizations are doing great work to innovate. Connecting the dots and working together would help…
Anne Polta @annepolta
@fireflyrn84 Oooh, the Packers. Better not mention them around all the Vikings fans in my workplace, heh. #patientchat
Clara @Clara_Health
EVERYONE deserves the best possible care in existence! Crazy that this is still not just a given. #patientchat https://t.co/s2OrCvHSwT
Enlightening Results @GraceCordovano
T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners value? #patientchat
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
Hello! Am I late? #patientchat
Christina Lizaso @btrfly12
RT @LAlupusLady: T1 boat-rockers needed... but often financial and institutional forces hinder the innovation process. #patientchat
Bob Tufts @TuftsB
#patientchat T1 - we need technology to help treat us as individuals, not as an aggregate. We aren't dots on a spreadsheet. @MLIWI
Patient Empowerment @power4patients
RT @GraceCordovano: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners
Whitney Petit @CfEpilepsy
RT @GraceCordovano: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners
Geneia @geneia
RT @richardzhao: T1: Patients are not included in product or service design. Too much provider or payer focus, rather than patient focus.…
Patient Chat @patientchat
Topic 2 (T2:) coming up… #patientchat
Amanda @LAlupusLady
RT @gratefull080504: T1: The lack of policy + reimbursement incentives to support Innovation + disruption #patientchat https://t.co/u2zzAbc…
Christina Lizaso @btrfly12
@ZHeatherChamp still on T1 - come along anytime :) #patientchat
Amanda @LAlupusLady
RT @Clara_Health: T1: The first barrier that comes to mind is one we are trying to fix! Lack of patient participation in #clinicalresearch.…
h e a t h e r z e e 🇺🇸⏳🦋 @ZHeatherChamp
@btrfly12 I thought it was 9/29? #patientchat
Clara @Clara_Health
We can't be afraid to fail. If we don't try new things and take risks then innovation will move too slow for waiting patients. #patientchat https://t.co/pvMkmly1vN
Anne Polta @annepolta
T1 The system is incredibly complex and cumbersome. It tends to resist change. #patientchat
Lilly Stairs @LillyStairs
A1: I wrote about this topic recently. #digitalhealth companies are falling behind in #patientadvocacy https://t.co/ro3uPljMps #patientchat
Amanda @LAlupusLady
RT @GraceCordovano: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners
Kevin J. Fowler @gratefull080504
T1: Speaking for the US the key structural barrier is that #healthcare is not designed for patients It starts + ends here #patientchat
Richard Zhao @richardzhao
RT @LillyStairs: A1: Companies aren't consulting patients and caregivers as they build their platform. It's a critical mistake. #patientch
Patient Chat @patientchat
T2: How could we work to overcome these limitations to more innovation in healthcare? #patientchat
Anne Polta @annepolta
RT @btrfly12: T1: the stakes in healthcare are high, so leaves many risk-adverse, but standing still in current bad system not safe either.…
CP Nerve Center @Cpnervecenter
@Clara_Health AGREED! Luckily as an RN I can weed through the BS & have a great Doc who helps. #patientchat
Kimberly Hartmann @fireflyrn84
T1: The patient needs to be considered every step of the way, yet that key piece is being left out #patientchat
🦎 Sakinah🦎 @TheMuslimHippie
@patientchat Disruption in healthcare due to disability issues is a big one #patientchat
burtrosen @burtrosen
yup! if we don't take risks, nothing will ever change. No catalyst = no change #patientchat https://t.co/5ptrlOnsj9
Christina Lizaso @btrfly12
RT @patientchat: T2: How could we work to overcome these limitations to more innovation in healthcare? #patientchat
Lilly Stairs @LillyStairs
RT @gratefull080504: T1: Speaking for the US the key structural barrier is that #healthcare is not designed for patients It starts + ends…
Whitney Petit @CfEpilepsy
RT @fireflyrn84: T1: The patient needs to be considered every step of the way, yet that key piece is being left out #patientchat
CP Nerve Center @Cpnervecenter
RT @Clara_Health: EVERYONE deserves the best possible care in existence! Crazy that this is still not just a given. #patientchat https://t.…
Alan Brewington @abrewi3010
T1 to often innovation is about product development, not #HumanCentredDesign. There is a huge difference. #patientchat
Enlightening Results @GraceCordovano
T1: Too many organizations/stakeholders claiming buzzwords, but not fully engaged w/pt & care partners. Say too time consuming #patientchat https://t.co/MKuF6fyHGn
Ross @Rossco006
@LillyStairs @brkthrough_crew As ambassadors we need to show up in force! United in order to help establish and bring about change in the health community. #patientchat
Rachel Basso @rachelbasso
T1: The system is outdated and resistant to change. It needs to catch up to the patients and researchers trying to move ahead. #patientchat
Richard Zhao @richardzhao
RT @Rossco006: Being inclusive of the patient is the first thing that comes to mind. #patientchat https://t.co/ySsE7yJsKd
Patient Chat @patientchat
RT @LillyStairs: A1: I wrote about this topic recently. #digitalhealth companies are falling behind in #patientadvocacy https://t.co/ro3uPl…
Rachel Basso @rachelbasso
RT @TuftsB: #patientchat T1 - we need technology to help treat us as individuals, not as an aggregate. We aren't dots on a spreadsheet. @ML
Kimberly Hartmann @fireflyrn84
RT @GraceCordovano: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners
Lilly Stairs @LillyStairs
@GraceCordovano YES! #patientchat https://t.co/df0ACTSJZR
Patient Empowerment @power4patients
T1: We r stuck with technology when what we really want is just stuff that works, Douglas Adams,Hitchhikers Guide To The Galaxy #patientchat
Patient Chat @patientchat
RT @GraceCordovano: T1: Too many organizations/stakeholders claiming buzzwords, but not fully engaged w/pt & care partners. Say too tim…
Kimberly Hartmann @fireflyrn84
@ZHeatherChamp Just getting going...you’re good! #patientchat
Ross @Rossco006
RT @brkthrough_crew: Many advocates and organizations are doing great work to innovate. Connecting the dots and working together would help…
STELLAR Study @stellarstudy
T2: More discussion with patients and what they want. #patientchat
Kevin J. Fowler @gratefull080504
Yes such as #patientcentricity Just a buzzword #patientchat https://t.co/4OH79Pq1XX
Lilly Stairs @LillyStairs
Music to my ears!! You're the best @Rossco006! #patientchat https://t.co/KCxLIfJxx6
Rachel Basso @rachelbasso
As long as we keep #patientsafety at the core, taking risks can pay off in the big picture. #patinetchat https://t.co/lWZeI1cOeI
Richard Zhao @richardzhao
RT @GraceCordovano: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners
Lisa Davis Budzinski @lisadbudzinski
T1 A successful collaboration among all parties – manufacturers, providers, the NHS and patients – is critical. #patientchat
Melissa VanHouten @melissarvh
T2 Include patient opinion & ideas from beginning 2 end; need companies 2 welcome/reward new ideas & push change in perspective #patientchat
Claire @clairehsnyman
RT @melissarvh: T2 Include patient opinion & ideas from beginning 2 end; need companies 2 welcome/reward new ideas & push change in perspec…
Patient Empowerment @power4patients
RT @melissarvh: T2 Include patient opinion & ideas from beginning 2 end; need companies 2 welcome/reward new ideas & push change in perspec…
Alan Brewington @abrewi3010
T2 #HumanCentredDesign must be the norm, not celebrated. We need to work with humans in mind first, not profit. #patientchat
burtrosen @burtrosen
@GraceCordovano i've heard a company say "we were going to have patients come in but were afraid we couldn't control the conversation" OY! #patientchat
Bob Tufts @TuftsB
#patientchat A1 - digital health gold rush created many non interoperable systems. Silos must be broken to benefit patients not VC"s @MLIWI
Ross @Rossco006
@LillyStairs Agreed! They often don't see us as part of the equation and need to realize that we can be of huge help. #patientchat
PeraHealth @perahealth
T2: Simple, with knowledge and awareness. You cant improve patient care by having a "we've always done it this way" mentality #patientchat
Enlightening Results @GraceCordovano
T2: Learn how to become an empowered patient & care partner. Join empowering groups, @S4PM, @BerylInstitute, @brkthrough_crew #patientchat
Lilly Stairs @LillyStairs
This 🙌🏻 #patientengagement is SO much more than just a buzzword! If you LISTEN to patients you will be successful. #patientchat https://t.co/faMjZKA8jq
Kimberly Hartmann @fireflyrn84
@burtrosen Innovations like...getting rid of the fax machine?! :) #axthefax #patientchat
Kevin J. Fowler @gratefull080504
T2: Do your homework, learn the issues, use your #patientvoice constructively, request a seat at the table, etc. #patientchat https://t.co/QmieLqQNeR
Amanda @LAlupusLady
T2 Embrace innovation w curiosity & explore how it can benefit the HC system including cost savings and be patient inclusive. #patientchat https://t.co/GJcHPLp3Nh
Lisa Davis Budzinski @lisadbudzinski
@GraceCordovano Exactly! "If it's for us, please include us" #PatientChat
CP Nerve Center @Cpnervecenter
A2 It takes a village. When we all speak up our voices are louder. We all need to be engaged & active in forward movements #patientchat
Amanda @LAlupusLady
RT @GraceCordovano: T2: Learn how to become an empowered patient & care partner. Join empowering groups, @S4PM, @BerylInstitute, @brkthroug
burtrosen @burtrosen
T2: the more we listen to people, understand their needs and involve them in design the better things will become #PatientChat
Whitney Petit @CfEpilepsy
I totally agree! #patientchat https://t.co/SENT7qEYp1
Lilly Stairs @LillyStairs
@burtrosen @GraceCordovano 🤦🏼‍♀️#patientchat
Claire @clairehsnyman
RT @abrewi3010: T2 #HumanCentredDesign must be the norm, not celebrated. We need to work with humans in mind first, not profit. #patientchat
Breakthrough Crew @brkthrough_crew
Recognizing our resources and aligning with our allies! Working together will create faster change. #patientchat
Kimberly Hartmann @fireflyrn84
Amen to this! Same here, but it definitely shouldn’t be that way! #Patientchat https://t.co/9WT03KM6Ji
Amanda @LAlupusLady
RT @gratefull080504: T2: Do your homework, learn the issues, use your #patientvoice constructively, request a seat at the table, etc.…
Richard Zhao @richardzhao
@LillyStairs With all the #digitalhealth entrepreneurs that I talked to, this statement is very true. #Patientchat
🦎 Sakinah🦎 @TheMuslimHippie
RT @CfEpilepsy: I totally agree! #patientchat https://t.co/SENT7qEYp1
Lilly Stairs @LillyStairs
T2 Simple: Bring patients and caregivers in from DAY ONE. #patientchat
Christina Lizaso @btrfly12
RT @melissarvh: T2 Include patient opinion & ideas from beginning 2 end; need companies 2 welcome/reward new ideas & push change in perspec…
Amanda @LAlupusLady
RT @PeraHealth: T2: Simple, with knowledge and awareness. You cant improve patient care by having a "we've always done it this way" mentali…
Christina Lizaso @btrfly12
RT @abrewi3010: T2 #HumanCentredDesign must be the norm, not celebrated. We need to work with humans in mind first, not profit. #patientchat
Bob Tufts @TuftsB
#patientchat -A2 Involve patients at earliest stages of drug development. I know BIO NJ is trying to push for this. @MLIWI
Richard Zhao @richardzhao
RT @gratefull080504: T1: Speaking for the US the key structural barrier is that #healthcare is not designed for patients It starts + ends…
Ross @Rossco006
@Clara_Health I agree to often insurance no matter what country you live in gets to call the shots. It's not right! #patientchat
Amanda @LAlupusLady
RT @brkthrough_crew: Recognizing our resources and aligning with our allies! Working together will create faster change. #patientchat
🦎 Sakinah🦎 @TheMuslimHippie
RT @burtrosen: T2: the more we listen to people, understand their needs and involve them in design the better things will become #PatientCh
Enlightening Results @GraceCordovano
@burtrosen I heard a very high up exec of major hospital chain say they were going 2 improve #PtExp scores, but no time to incorporate pts #patientchat https://t.co/KPVUZZdWCv
Richard Zhao @richardzhao
RT @GraceCordovano: T1: Too many organizations/stakeholders claiming buzzwords, but not fully engaged w/pt & care partners. Say too tim…
STELLAR Study @stellarstudy
Join us in today's #patientchat! #btsm #braintumor #braincancer #cancerawareness #braintumorawareness #STELLARstudy
Lisa Davis Budzinski @lisadbudzinski
T2 (also my T1) A successful collaboration among all parties – manufacturers, providers, the NHS and patients – is critical. #patientchat
Melissa VanHouten @melissarvh
T2 Must have people willing to stand up & take a risk, who are able to fundamentally & radically rethink the way things are. #patientchat
Alan Brewington @abrewi3010
T2 return to basics. Active listening to each other with #everyoneincluded. Respect for all sides. #patientchat
CP Nerve Center @Cpnervecenter
@burtrosen @GraceCordovano Precisely why we patients need to be there.... uncontrolled! #patientchat
Clara @Clara_Health
Patient centricity is not just a phase its a state of being! Patient focus needs to be SHOWN not just talked about #demonstrate #patientchat https://t.co/bGt8sSqfDL
Clara @Clara_Health
RT @Rossco006: @LillyStairs @brkthrough_crew As ambassadors we need to show up in force! United in order to help establish and bri…
Christina Lizaso @btrfly12
RT @burtrosen: T2: the more we listen to people, understand their needs and involve them in design the better things will become #PatientCh
Anne Polta @annepolta
Trust is major. There's fear that we won't know how to behave when we're included at the table. #patientchat https://t.co/CEf6jWvliX
Patient Chat @patientchat
RT @abrewi3010: T2 return to basics. Active listening to each other with #everyoneincluded. Respect for all sides. #patientchat
Christina Lizaso @btrfly12
RT @brkthrough_crew: Recognizing our resources and aligning with our allies! Working together will create faster change. #patientchat
Enlightening Results @GraceCordovano
RT @LillyStairs: This 🙌🏻 #patientengagement is SO much more than just a buzzword! If you LISTEN to patients you will be successful.…
Kimberly Hartmann @fireflyrn84
T2: Take the step that everybody thinks is wrong, be the change, take charge, shoot for the moon. #patientchat
Lilly Stairs @LillyStairs
T2: Get all the key players in a room together - Pts, docs, nurses, industry have so much to learn from each other. #patientchat
Babble On, Brooke @babbleonbrooke
@Clara_Health YES! I agree 100%.👍🏻 #patientchat
Patient Chat @patientchat
Topic 3 (T3:) coming up… #patientchat
Clara @Clara_Health
T2: We need to meet patients and families where they are. The technology is out there, let's get barriers out of the way. #patientchat
Clara @Clara_Health
RT @LillyStairs: T2 Simple: Bring patients and caregivers in from DAY ONE. #patientchat
Kevin J. Fowler @gratefull080504
Sorry #patientcentricity is a buzz word with minimal foundational knowledge #patientchat https://t.co/eoJxYvXr7r
Patient Empowerment @power4patients
Agree 100% @brkthrough_crew #patientchat
Christina Lizaso @btrfly12
RT @AnnePolta: Trust is major. There's fear that we won't know how to behave when we're included at the table. #patientchat https://t.co/CE…
CP Nerve Center @Cpnervecenter
RT @fireflyrn84: T2: Take the step that everybody thinks is wrong, be the change, take charge, shoot for the moon. #patientchat
PeraHealth @perahealth
Preventative Instead of Reactive #patientchat https://t.co/tJam1XFQHa by @berci
Kimberly Hartmann @fireflyrn84
RT @GraceCordovano: T2: Learn how to become an empowered patient & care partner. Join empowering groups, @S4PM, @BerylInstitute, @brkthroug
Bob Tufts @TuftsB
@melissarvh Can/should patients assume risk (above and beyond clinical trials?) #patientchat
Patient Chat @patientchat
T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat
Ross @Rossco006
RT @RachelBasso: T1: The system is outdated and resistant to change. It needs to catch up to the patients and researchers trying to move ah…
Alan Brewington @abrewi3010
#caregivers are to often forgotten despite their invaluable expertise. Very human centered people. #patientchat https://t.co/3U8WEZumK1
Christina Lizaso @btrfly12
RT @patientchat: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat
Patient Empowerment @power4patients
Agree! No one wants to be at the center of the circle of centricity, we want a seat at the table! @gratefull080504 #patientchat
Enlightening Results @GraceCordovano
@LillyStairs The entire healthcare ecosystem must be at the table for equilibrium. Otherwise, its just another parasitic relationship #patientchat
Patient Empowerment @power4patients
RT @patientchat: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat
Whitney Petit @CfEpilepsy
RT @patientchat: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat
Rachel Basso @rachelbasso
T2: Patients need to be confident and vocal. Enough doctors and researchers already don't listen to us. We can't lose faith. #patientchat
Katie @katie5280
@patientchat T2: Holding organizations accountable for their promises. #patientchat
Richard Zhao @richardzhao
We want to include patients into our product design now, refining our algorithm. Any recommendations to find Pt ambassadors? #Patientchat
Babble On, Brooke @babbleonbrooke
@abrewi3010 @patientchat Yes, active listening and mutual respect, love it.💗 #patientchat
🦎 Sakinah🦎 @TheMuslimHippie
RT @patientchat: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat
Kevin J. Fowler @gratefull080504
Yes #patientchat https://t.co/W4Qlac8OYe
Kenny @kenny_pal2
If you chat on the theme " #patientchat " Free chat channel https://t.co/C7mBPKCDb2
Enlightening Results @GraceCordovano
T3: Many come from a personal encounter with tragedy which brings to light unmet needs, barriers, fears, & inspires for better #patientchat
Lilly Stairs @LillyStairs
RT @GraceCordovano: @LillyStairs The entire healthcare ecosystem must be at the table for equilibrium. Otherwise, its just another para…
Christina Lizaso @btrfly12
T3: Love the patient #DIY movement and #citizenscience efforts. They are paving good ways but will take more than that. #patientchat
Claire @clairehsnyman
T3: should be more patient driven in collaboration with innovation hubs #patientchat
CP Nerve Center @Cpnervecenter
RT @power4patients: Agree! No one wants to be at the center of the circle of centricity, we want a seat at the table! @gratefull080504 #pat
🦎 Sakinah🦎 @TheMuslimHippie
RT @GraceCordovano: @LillyStairs The entire healthcare ecosystem must be at the table for equilibrium. Otherwise, its just another para…
Amanda @LAlupusLady
T2 Huge barriers to get out of the way may be more than the new technology ~ cultural, geographic & $$$ as well as access #patientchat https://t.co/VxMoupPLri
Mackenzie Moir @mackenzieimoir
RT @patientchat: T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat
Kimberly Hartmann @fireflyrn84
Patient scores weren’t developed by patients...nobody is going to get good scores if it doesn’t actually ask if they CARED 4 u #patientchat
Ross @Rossco006
We need people to realize that the system needs to change. That means bringing the patient into the fold to help. #patientchat https://t.co/VyGOfMnMsM
Patient Chat @patientchat
RT @btrfly12: T3: Love the patient #DIY movement and #citizenscience efforts. They are paving good ways but will take more than that. #pati
Lilly Stairs @LillyStairs
RT @btrfly12: T3: Love the patient #DIY movement and #citizenscience efforts. They are paving good ways but will take more than that. #pati
Ross @Rossco006
RT @GraceCordovano: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners
Lisa Davis Budzinski @lisadbudzinski
T2 When will true COLLABORATION in healthcare come about? Pts can provide vital info that can help lead the way for disruption #PatientChat
Clara @Clara_Health
@gratefull080504 For us patient centricity means having patients voices dictating action taken. Their needs and ideas shaping product = action. #patientchat
Christina Lizaso @btrfly12
@richardzhao Being on this chat is a great start. @wegohealth helps folks find patient experts but you can also find pt cmty #patientchat
Enlightening Results @GraceCordovano
T3: We all need to simplify. In the chaos, we've lost the fact that we are humans helping humans. Human connection. #empathy #patientchat
Melissa VanHouten @melissarvh
@TuftsB Not sure. Think some are able & willing - but docs, healthcare exes, and other "higher-ups" need to take the risk, too. #patientchat
STELLAR Study @stellarstudy
T3: #Clinicalresearch helps to advance medicine and support innovations in #healthcare. #patientchat #btsm #STELLARstudy
Bob Tufts @TuftsB
#patientchat T3 #innovation comes from people not tech, and can/should be found daily thru entire healthcare supply chain. @MLIWI
Alan Brewington @abrewi3010
Patients have just as much foundational knowledge as anyone. Our stories our the foundation of #healthcare. #patientchat https://t.co/yVWjcDhKX0
Lilly Stairs @LillyStairs
T3 Often times they are coming from industry (who mean well) but will never develop innovations that work w/out patients #patientchat
Patient Empowerment @power4patients
T3: Most innovation comes from necessity, I'm really inspired by the amazing work done by parents of kids with rare diseases #patientchat
Clara @Clara_Health
Caregivers have an equal role in the patient journey. They provide so much for patients and have needs that deserve to be met! #patientchat https://t.co/qlyHSaVW11
CP Nerve Center @Cpnervecenter
A3 Healthcare workers notice inside issues that pts may miss & vise versa. Honest feedback cam lead to fixes. #patientchat
Whitney Petit @CfEpilepsy
RT @power4patients: T3: Most innovation comes from necessity, I'm really inspired by the amazing work done by parents of kids with rare dis…
Enlightening Results @GraceCordovano
RT @btrfly12: T3: Love the patient #DIY movement and #citizenscience efforts. They are paving good ways but will take more than that. #pati
Christina Lizaso @btrfly12
RT @power4patients: T3: Most innovation comes from necessity, I'm really inspired by the amazing work done by parents of kids with rare dis…
Ross @Rossco006
Yes! Yes! Yes! #patientchat https://t.co/03cGBeQ7qp
Melissa VanHouten @melissarvh
T3 Seems to me it must be grassroots, bottom to top change rather than top-down imposed change. #patientchat
Kevin J. Fowler @gratefull080504
A3: Broad stakeholders: NIH, industry, + who has the dollars $ drive innovation+risk taking Need greater #patientvoice #patientchat https://t.co/dDtuzEsJyP
Christina Lizaso @btrfly12
RT @Cpnervecenter: A3 Healthcare workers notice inside issues that pts may miss & vise versa. Honest feedback cam lead to fixes. #patientch
Bob Tufts @TuftsB
#patientchat - patient centricity is just another name for a circular firing squad
Amanda @LAlupusLady
T3 Health IT developers come from everywhere, like patients but hope they come to understand then innovate. #patientchat https://t.co/KWU1xygJHt
Rachel Basso @rachelbasso
T3: Innovations in healthcare come from the push of all allied forces working together. Patients caregivers researchers etc.. #patientchat
Kimberly Hartmann @fireflyrn84
T3: Comes from industrial research funded by big pharma many times. Need to have patients as part of innovation process #patientchat
🦎 Sakinah🦎 @TheMuslimHippie
RT @power4patients: T3: Most innovation comes from necessity, I'm really inspired by the amazing work done by parents of kids with rare dis…
sue robins @suerobinsyvr
RT @GraceCordovano: T1: Too many organizations/stakeholders claiming buzzwords, but not fully engaged w/pt & care partners. Say too tim…
Kimberly Hartmann @fireflyrn84
RT @RachelBasso: T2: Patients need to be confident and vocal. Enough doctors and researchers already don't listen to us. We can't lose fait…
Ross @Rossco006
@LillyStairs It has to be a combined effort and the only way to do that is to be inclusive of all parties to work together. #patientchat
Alan Brewington @abrewi3010
RT @Clara_Health: Caregivers have an equal role in the patient journey. They provide so much for patients and have needs that deserve…
Kimberly Hartmann @fireflyrn84
@richardzhao Just ask, there are a lot of patients that want to help. Many of us are right here. #Patientchat
Ross @Rossco006
RT @GraceCordovano: T3: We all need to simplify. In the chaos, we've lost the fact that we are humans helping humans. Human connection. #em
Bob Tufts @TuftsB
T2 - any Hhealthcare bills/rules should first start with patients, doctors and caregivers in the room. @MLIWI https://t.co/Ts7JBfCYye
Kevin J. Fowler @gratefull080504
A3: Have to acknowledge the role of capital to assume risk to generate innovation #patientvoice can mitigate risk #patientchat
Christina Lizaso @btrfly12
T3: When health systems work w/ incubators I think innovation happens, but only success if require start-ups to include pts #patientchat
CP Nerve Center @Cpnervecenter
@fireflyrn84 You're so right Kimberly! #patientchat
Amanda @LAlupusLady
T3 i like how #VR is innovating Healthcare from helping med students practice surgery or helping patients relieve pain. #patientchat https://t.co/KWU1xygJHt
STELLAR Study @stellarstudy
Help us spread the word about our #braincancer study for patients with anaplastic astrocytoma https://t.co/zzQ1Tb1ItU #BTSM #patientchat
Amanda @LAlupusLady
RT @abrewi3010: #caregivers are to often forgotten despite their invaluable expertise. Very human centered people. #patientchat https://t.c…
Clara @Clara_Health
T3: Innovations by nature are solutions to problems. Health problems and the patients who have them should drive the solutions. #patientchat
Patient Chat @patientchat
Topic 4 (T4:) coming up… #patientchat
Enlightening Results @GraceCordovano
But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/ODtFjCvzf3
Patient Empowerment @power4patients
RT @StellarStudy: Help us spread the word about our #braincancer study for patients with anaplastic astrocytoma https://t.co/zzQ1Tb1ItU #B
Clara @Clara_Health
RT @RachelBasso: T3: Innovations in healthcare come from the push of all allied forces working together. Patients caregivers researchers et…
Clara @Clara_Health
RT @fireflyrn84: @richardzhao Just ask, there are a lot of patients that want to help. Many of us are right here. #Patientchat
Amanda @LAlupusLady
RT @clairehsnyman: T3: should be more patient driven in collaboration with innovation hubs #patientchat
Kevin J. Fowler @gratefull080504
Have to leave early for another call. Thanks for the chat #patientchat
Lisa Davis Budzinski @lisadbudzinski
@richardzhao Agree with @wegohealth & there are a lot of us right here in this #patientchat & other chats
Amanda @LAlupusLady
RT @patientchat: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat
Alan Brewington @abrewi3010
T3 @danamlewis is the new center of innovation. #Medx & @SibleyHub excite/inspire others took in other boxes. #patientchat
Melissa VanHouten @melissarvh
@richardzhao Yes, I am here & willing! Check @WegoHealth as well! #patientchat
Amanda @LAlupusLady
RT @Clara_Health: T3: Innovations by nature are solutions to problems. Health problems and the patients who have them should drive the solu…
Bob Tufts @TuftsB
#patientchat -A3 - Very glad to see the efforts of Scott Gottleib at FDA @MLIWI
Anne Polta @annepolta
T3 Innovations often seem based on healthy privilege -- good intentions but no gut knowledge of the pt experience. #patientchat
Patient Health @MD4U
RT @patientchat: Join #patientchat Fri 9/22 1pmET | 10am PT as we discuss innovation and disruption in healthcare…
Rachel Basso @rachelbasso
RT @Clara_Health: @gratefull080504 For us patient centricity means having patients voices dictating action taken. Their needs and ide…
Kimberly Hartmann @fireflyrn84
Exactly, don't just fill the demographics because it's a requirement #patientchat https://t.co/TuFXprOPtS
Patient Empowerment @power4patients
.@richardzhao We can help! #patientchat
Patient Chat @patientchat
@gratefull080504 Thanks for joining in Kevin! #patientchat
Patient Chat @patientchat
T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it address? #patientchat
burtrosen @burtrosen
T3: i think they should come from people and patients, and those that focus on putting them back in the middle of the convo #PatientChat
Lisa Davis Budzinski @lisadbudzinski
T3 1 of many infographics for HIT #Patientchat But do any of these companies talk with pts or caregivers? https://t.co/5ppIQzvh36
Christina Lizaso @btrfly12
RT @patientchat: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it addres…
Patient Empowerment @power4patients
RT @patientchat: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it addres…
Babble On, Brooke @babbleonbrooke
@LAlupusLady Amazing! I didn't know that. What a wonderful application of VR! #patientchat
Christina Lizaso @btrfly12
@gratefull080504 Thanks for all you do. Good to chat with you again here. #patientchat
Alan Brewington @abrewi3010
RT @GraceCordovano: But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/OD…
Breakthrough Crew @brkthrough_crew
T3: The innovations that matter most are the ones that came from patient need. #patientchat
Breakthrough Crew @brkthrough_crew
RT @Cpnervecenter: A2 It takes a village. When we all speak up our voices are louder. We all need to be engaged & active in forward movemen…
Enlightening Results @GraceCordovano
T4: A private, personalized patient advocate for every single patient to assist every step of the way. #patientchat
CP Nerve Center @Cpnervecenter
A3 Perhaps when we visit our Doc/clinic we should ask if patients are included in planning measures. And offer our services #Patientchat
Lilly Stairs @LillyStairs
Absolutely! But how do we show #patientadvocacy's value? Industry struggles w/ the new age of metrics that stem from advocacy #patientchat https://t.co/GOqdYugq04
Christina Lizaso @btrfly12
RT @Clara_Health: T3: Innovations by nature are solutions to problems. Health problems and the patients who have them should drive the solu…
Christina Lizaso @btrfly12
RT @GraceCordovano: But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/OD…
CP Nerve Center @Cpnervecenter
RT @burtrosen: T3: i think they should come from people and patients, and those that focus on putting them back in the middle of the convo…
🦎 Sakinah🦎 @TheMuslimHippie
RT @RachelBasso: T3: Innovations in healthcare come from the push of all allied forces working together. Patients caregivers researchers et…
burtrosen @burtrosen
@lisadbudzinski this image might be a perfect metaphor for healthcare. No people in the center and way too much noise to make sense! #patientchat
🦎 Sakinah🦎 @TheMuslimHippie
RT @fireflyrn84: @richardzhao Just ask, there are a lot of patients that want to help. Many of us are right here. #Patientchat
Christina Lizaso @btrfly12
RT @abrewi3010: T3 @danamlewis is the new center of innovation. #Medx & @SibleyHub excite/inspire others took in other boxes. #patientchat
Patient Empowerment @power4patients
T4: Here's what we would do: https://t.co/O3ofY3i71e @jbbc #patientchat
Rachel Basso @rachelbasso
A4: If I had unlimited resources no patient would ever pay out of pocket for a treatment they needed. #patientchat https://t.co/azAiZzitU1
STELLAR Study @stellarstudy
T4: Reaching those that don't have the means. Everyone deserves to receive care. #patientchat
Rachel Basso @rachelbasso
RT @GraceCordovano: But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/OD…
Alan Brewington @abrewi3010
T4 #healthcare time management/understanding vs #patient time management/understanding. There needs to be a universal def. #patientchat
Kimberly Hartmann @fireflyrn84
T4: It would put the human touch back into healthcare. Technology is great, but technology doesn’t have empathy or hand to hold #patientchat
Melissa VanHouten @melissarvh
T4 Would need 2 address lack of access to specialists, wait time, lack of education re illness even among medical professionals #patientchat
Amanda @LAlupusLady
T3 sharing how #VR helps me relieve pain at #connect2health w/ @BrennanSpiegel ~ including patients on panels at confs. #patientchat
Christina Lizaso @btrfly12
Sigh. This rings true. #patientchat https://t.co/hP8Xxhk7mL
Kimberly Hartmann @fireflyrn84
RT @burtrosen: T3: i think they should come from people and patients, and those that focus on putting them back in the middle of the convo…
Amanda @LAlupusLady
RT @BabbleOnBrooke: @LAlupusLady Amazing! I didn't know that. What a wonderful application of VR! #patientchat
🦎 Sakinah🦎 @TheMuslimHippie
RT @patientchat: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it addres…
Sexy Health Tips @sexyhealthtips
RT @Clara_Health: T3: Innovations by nature are solutions to problems. Health problems and the patients who have them should drive the solu…
Bob Tufts @TuftsB
#patientchat T4 - direct primary care w/major medical/drug insurance, eliminate PBM's, stop hospital consolidation, incentivize PCPs @MLIWI
Amanda @LAlupusLady
RT @patientchat: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it addres…
CP Nerve Center @Cpnervecenter
A4 Equal Access for all! The government would be on my lousy healthplan or better yet, I GET THEIR HEALTHPLAN! #Patientchat
🦎 Sakinah🦎 @TheMuslimHippie
@patientchat @btrfly12 Medication and supplies delivery for all patients. #patientchat
Ross @Rossco006
RT @GraceCordovano: But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/OD…
Lisa Davis Budzinski @lisadbudzinski
RT @Cpnervecenter: A3 Perhaps when we visit our Doc/clinic we should ask if patients are included in planning measures. And offer our servi…
🦎 Sakinah🦎 @TheMuslimHippie
RT @Cpnervecenter: A2 It takes a village. When we all speak up our voices are louder. We all need to be engaged & active in forward movemen…
Kimberly Hartmann @fireflyrn84
Spot on! Absolutely hits it on the head. #Patientchat https://t.co/PrAkQ1XaYY
Alan Brewington @abrewi3010
T4 create Quality of Life as the most important & universal measurement tool. #patientchat
Patient Chat @patientchat
RT @GraceCordovano: T4: A private, personalized patient advocate for every single patient to assist every step of the way. #patientchat
Clara @Clara_Health
T4: As a startup aiming to change how we connect patients to treatments we wish we could reach EVERY patient in need. #patientchat
Patient Empowerment @power4patients
AMEN! @RachelBasso #patientchat
Ross @Rossco006
RT @Clara_Health: @gratefull080504 For us patient centricity means having patients voices dictating action taken. Their needs and ide…
Patient Empowerment @power4patients
RT @abrewi3010: T4 create Quality of Life as the most important & universal measurement tool. #patientchat
Kimberly Hartmann @fireflyrn84
@RachelBasso I think I love you #Patientchat
Kevin J. Fowler @gratefull080504
@LillyStairs : bring new treatments +products to market quicker, less cost, greater innovation #patientchat https://t.co/xqjDTnj4I5
Christina Lizaso @btrfly12
RT @melissarvh: T4 Would need 2 address lack of access to specialists, wait time, lack of education re illness even among medical professio…
levro @leavery_troy
RT @TuftsB: #patientchat T4 - direct primary care w/major medical/drug insurance, eliminate PBM's, stop hospital consolidation, incentivize…
Sexy Health Tips @sexyhealthtips
RT @patientchat: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it addres…
CP Nerve Center @Cpnervecenter
@GraceCordovano Yes! Love it. #patientchat
CodePurple @codepurplenow
The system IS outdated. Patients, researchers, tech innovators must join together to #DemandANewApproach https://t.co/nAuhedt8t6
Kimberly Hartmann @fireflyrn84
RT @TuftsB: #patientchat T4 - direct primary care w/major medical/drug insurance, eliminate PBM's, stop hospital consolidation, incentivize…
Clara @Clara_Health
Medication that WORKS! Patients need new options developed all the time. Continual patient focused research is the answer #patientchat https://t.co/kE5KOzsR2Q
Kimberly Hartmann @fireflyrn84
RT @Cpnervecenter: A4 Equal Access for all! The government would be on my lousy healthplan or better yet, I GET THEIR HEALTHPLAN! #Patientc
Christina Lizaso @btrfly12
RT @abrewi3010: T4 create Quality of Life as the most important & universal measurement tool. #patientchat
Lilly Stairs @LillyStairs
RT @gratefull080504: @LillyStairs : bring new treatments +products to market quicker, less cost, greater innovation #patientchat https://t.…
Enlightening Results @GraceCordovano
@abrewi3010 And more specifically, QoL as defined by the individual #patient. Not as defined by drs, trials, insurance companies, etc #patientchat
Amanda @LAlupusLady
T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientchat
🦎 Sakinah🦎 @TheMuslimHippie
RT @Clara_Health: Medication that WORKS! Patients need new options developed all the time. Continual patient focused research is the…
Patient Chat @patientchat
RT @LAlupusLady: T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientch
Rachel Basso @rachelbasso
@fireflyrn84 <3 If only I was a billionaire. #patientchat
Amanda @LAlupusLady
RT @Clara_Health: T4: As a startup aiming to change how we connect patients to treatments we wish we could reach EVERY patient in need. #pa
Kimberly Hartmann @fireflyrn84
Quality of life should be integrated as another #vitalsign it’s mandatory to be considered at each interaction #Patientchat https://t.co/l7btG57FuO
Christina Lizaso @btrfly12
RT @LAlupusLady: T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientch
Amanda @LAlupusLady
RT @abrewi3010: T4 create Quality of Life as the most important & universal measurement tool. #patientchat
Alan Brewington @abrewi3010
very very very good point! #patientchat https://t.co/8HPhLGDrBs
Melissa VanHouten @melissarvh
T4 Should address time from treatment research/development 2 approval & other barriers 2 patient access 2 new meds, esp 4 #Rare #patientchat
Richard Zhao @richardzhao
@melissarvh @wegohealth Thank all the patients #ambassadors like you that have the courage to take the power back to patients! #patientchat
Patient Chat @patientchat
Topic 5 (T5:) coming up… #patientchat
Rachel Basso @rachelbasso
My treatment choice has an expiration date. I need new drugs developed FAST. #patientchat https://t.co/dv4mfS4I1o
Alan Brewington @abrewi3010
RT @LAlupusLady: T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientch
Kimberly Hartmann @fireflyrn84
RT @Clara_Health: Medication that WORKS! Patients need new options developed all the time. Continual patient focused research is the…
🦎 Sakinah🦎 @TheMuslimHippie
RT @melissarvh: T4 Would need 2 address lack of access to specialists, wait time, lack of education re illness even among medical professio…
Patient Chat @patientchat
T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat
Melissa VanHouten @melissarvh
RT @richardzhao: @melissarvh @wegohealth Thank all the patients #ambassadors like you that have the courage to take the power back to patie…
🦎 Sakinah🦎 @TheMuslimHippie
RT @LAlupusLady: T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientch
Patient Empowerment @power4patients
RT @patientchat: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat
CP Nerve Center @Cpnervecenter
RT @RachelBasso: My treatment choice has an expiration date. I need new drugs developed FAST. #patientchat https://t.co/dv4mfS4I1o
Lisa Davis Budzinski @lisadbudzinski
T4 A database to provide Drs & pts research/education to illnesses/diseases/conditions #patientchat
Clara @Clara_Health
Even companies like ours that include patient voices couldn't do it right without vocal and willing patients and advocates! #patientchat https://t.co/LweH3VDhV6
Amanda @LAlupusLady
T4 access to care, treatment and medications (including healthy food) for all via the Whole Health Wellness Center. #patientchat
sue robins @suerobinsyvr
RT @GraceCordovano: T1: Too many organizations/stakeholders claiming buzzwords, but not fully engaged w/pt & care partners. Say too tim…
Christina Lizaso @btrfly12
How many of these HIT companies have a functioning and integral Patient Advisory Board? #patientchat #hitsm https://t.co/pYTBtgJBk9
Kimberly Hartmann @fireflyrn84
#rarediseases are on the back burner and should be treated equally. We need advances as much as every other disease #Patientchat https://t.co/T8gh66Dhl8
HTVNetworkConference @htvnc
RT @Clara_Health: We love the opportunity to hear from passionate patients and advocates! Your voices shape our work each day! #patientchat
Lisa Davis Budzinski @lisadbudzinski
@GraceCordovano @abrewi3010 Hear hear!!! 👏👏👏👏 Individual perception #patientchat
Enlightening Results @GraceCordovano
T5: Work with like minded groups, like #patientchat. By personally committing to being engaged & connecting, amazing opportunities arise.
Lilly Stairs @LillyStairs
A4: A delivery model that SUCCESSFULLY educates and empowers patients so there's no question who is in charge! #patientchat
Virginia M. Byrne @VirginiaMByrne
RT @patientchat: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat
Christina Lizaso @btrfly12
RT @patientchat: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat
Rachel Basso @rachelbasso
@patientchat A5: This chat is a great start! We are all here to support patient voices. Let this convo take shape in your actions. #patientchat
Lisa Davis Budzinski @lisadbudzinski
@btrfly12 Exactly! 👏👏👏👏 #patientchat
Melissa VanHouten @melissarvh
T5 Just want to mention #RCAW17 as one specific possibility: https://t.co/SorKPQY6Rr. Incredible efforts here! #patientchat
Amanda @LAlupusLady
T5 Sharing our patient stories where we are whether we are online in a #patientchat or on Capitol Hill for advocacy day. Push and nudge... https://t.co/fyZZ5h8JQs
Kimberly Hartmann @fireflyrn84
I don’t have a treatment choice. Mine is simply #symptommanagement & it’s an epic fail #patientchat https://t.co/poVJar4vlV
Amanda @LAlupusLady
RT @patientchat: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat
Whitney Petit @CfEpilepsy
RT @LillyStairs: A4: A delivery model that SUCCESSFULLY educates and empowers patients so there's no question who is in charge! #patientchat
CP Nerve Center @Cpnervecenter
A5 KEEP ADVOCATING! Advocacy groups like the awesome people here today pull pts together in greater numbers with more voices. #Patientchat
Whitney Petit @CfEpilepsy
RT @RachelBasso: @patientchat A5: This chat is a great start! We are all here to support patient voices. Let this convo take shape i…
Amanda @LAlupusLady
RT @RachelBasso: @patientchat A5: This chat is a great start! We are all here to support patient voices. Let this convo take shape i…
Clara @Clara_Health
@fireflyrn84 As @LillyStairs said- research and innovation shouldn't be driven by numbers. 1 patient matters as much as 1 million patients. #patientchat
Enlightening Results @GraceCordovano
T5: Join organizations like Society for Participatory Medicine, mission: transforming the culture of care & patient empowerment #patientchat
STELLAR Study @stellarstudy
@fireflyrn84 There seems to be a shift in clinical research, more #rarediseases. @StellarStudy is for #anaplasticastrocytoma #braincancer #patientchat
Katie @katie5280
@TheMuslimHippie @patientchat @btrfly12 T4: I agree! #patientchat
Richard Zhao @richardzhao
@GraceCordovano And, working with like minded entrepreneurs as well. I call it #Consumerism of healthcare. #Patientchat
Christina Lizaso @btrfly12
T5: a "Patient Entrepreneur" pathway as @darlakbrown proposed would be amazing. Like for other under-rep'd groups in start-ups. #patientchat
Ross @Rossco006
One that assures that a patients needs are met! #PatientChat https://t.co/QPAnQXVd9c
Patient Empowerment @power4patients
T5: for starters, advocacy groups need to get better at working together to achieve better outcomes and improve quality of life #patientchat
Patient Chat @patientchat
RT @btrfly12: How many of these HIT companies have a functioning and integral Patient Advisory Board? #patientchat #hitsm https://t.co/pYTB…
Kimberly Hartmann @fireflyrn84
T5: Join forces with advocacy groups @wegohealth @brkthrough_crew @patientslikeme @savvy_coop @Clara_Health and use the power #patientchat
Lilly Stairs @LillyStairs
RT @Clara_Health: @fireflyrn84 As @LillyStairs said- research and innovation shouldn't be driven by numbers. 1 patient matters as muc…
Bob Tufts @TuftsB
#patientchat A5 - work with FDA as group to streamline phase trials, make them easier for us/better, use tech to shorten process @MLIWI
Breakthrough Crew @brkthrough_crew
RT @fireflyrn84: I don’t have a treatment choice. Mine is simply #symptommanagement & it’s an epic fail #patientchat https://t.co/poVJar4vlV
Alan Brewington @abrewi3010
T5 Accept patient to include all diagnoses, not just ones similar to mine. I don't care if a #cf or #cancer pt cures me. #patientchat
Christina Lizaso @btrfly12
RT @melissarvh: T4 Should address time from treatment research/development 2 approval & other barriers 2 patient access 2 new meds, esp 4 #…
Lisa Davis Budzinski @lisadbudzinski
RT @Cpnervecenter: A5 KEEP ADVOCATING! Advocacy groups like the awesome people here today pull pts together in greater numbers with more vo…
Ross @Rossco006
RT @gratefull080504: @LillyStairs : bring new treatments +products to market quicker, less cost, greater innovation #patientchat https://t.…
Melissa VanHouten @melissarvh
T5 In general, advocacy grps & nonprofits designed 2 amplify patient voice are good start; share info & your message everywhere #patientchat
sue robins @suerobinsyvr
I used to be a paid 'family engagement advisor' at 2 children's hospitals. I'm despondent at what's happening w/ patient engagement field.1/ https://t.co/qhvcH4gqVb
Patient Empowerment @power4patients
RT @btrfly12: T5: a "Patient Entrepreneur" pathway as @darlakbrown proposed would be amazing. Like for other under-rep'd groups in start-up…
PeraHealth @perahealth
T5: If you were walking in the shoes of a patient wouldn't you want innovation to help nurses deliver better care for you? #patientchat
Melissa VanHouten @melissarvh
RT @fireflyrn84: #rarediseases are on the back burner and should be treated equally. We need advances as much as every other disease…
Christina Lizaso @btrfly12
RT @GraceCordovano: T5: Work with like minded groups, like #patientchat. By personally committing to being engaged & connecting, amazing op…
Enlightening Results @GraceCordovano
@richardzhao 100%. It's an all-inclusive initiative to all who truly what better healthcare. #patientchat
Christina Lizaso @btrfly12
RT @LillyStairs: A4: A delivery model that SUCCESSFULLY educates and empowers patients so there's no question who is in charge! #patientchat
Amanda @LAlupusLady
T5 The Society of Participatory Medicine and connect with @MandiBPro or @ReginaHolliday simple ways... connect. #patientchat
Melissa VanHouten @melissarvh
RT @GraceCordovano: T5: Work with like minded groups, like #patientchat. By personally committing to being engaged & connecting, amazing op…
burtrosen @burtrosen
t5: work with @wegohealth and @savvy_coop, participate in events like #MedX and #WTFix, and @S4PM #PatientChat
Christina Lizaso @btrfly12
RT @LAlupusLady: T5 Sharing our patient stories where we are whether we are online in a #patientchat or on Capitol Hill for advocacy…
Alan Brewington @abrewi3010
RT @btrfly12: T5: a "Patient Entrepreneur" pathway as @darlakbrown proposed would be amazing. Like for other under-rep'd groups in start-up…
Melissa VanHouten @melissarvh
RT @power4patients: T5: for starters, advocacy groups need to get better at working together to achieve better outcomes and improve quality…
Anne Polta @annepolta
T5 Start local. Develop relationships with hcare folks. Talk abt what matters to pts. Ask to be included. Persist. #patientchat
Rachel Basso @rachelbasso
@PeraHealth Patient here- YES PLEASE! #patientchat
Christina Lizaso @btrfly12
RT @Cpnervecenter: A5 KEEP ADVOCATING! Advocacy groups like the awesome people here today pull pts together in greater numbers with more vo…
Patient Chat @patientchat
Topic 6 (T6:) coming up… #patientchat
Melissa VanHouten @melissarvh
@power4patients Amen to that! #patientchat
Lilly Stairs @LillyStairs
A5: COLLABORATION IS KEY! Both industry and non-profits need to stop their infighting and work together...& always w/patients! #patientchat
Enlightening Results @GraceCordovano
Can't emphasize enough. We must look out for our doctors & nurses too! There is too much suffering on both ends of the spectrum #patientchat https://t.co/yo71e1BjLg
Ross @Rossco006
It all comes down to the patients voice. We need to get louder more vocal and more organized! #patientchat https://t.co/3i1dpDg4g8
Christina Lizaso @btrfly12
RT @fireflyrn84: T5: Join forces with advocacy groups @wegohealth @brkthrough_crew @patientslikeme @savvy_coop @Clara_Health and use the po…
Amanda @LAlupusLady
T5 where do i sign up? #patientchat https://t.co/KXcXGOnKXk
Enlightening Results @GraceCordovano
What can you do? Here's a few great starters: #patientchat https://t.co/Wd6WnAO5vU
Patient Chat @patientchat
T6: How do we ensure patient’s needs are the primary focus of new healthcare innovations? #patientchat
Alan Brewington @abrewi3010
RT @LillyStairs: A5: COLLABORATION IS KEY! Both industry and non-profits need to stop their infighting and work together...& always w/patie…
Kimberly Hartmann @fireflyrn84
I am a nurse walking in my own patient shoes. I would love better care delivered to myself and everyone else. #Patientchat https://t.co/v8ZUtpYb8S
Clara @Clara_Health
RT @fireflyrn84: T5: Join forces with advocacy groups @wegohealth @brkthrough_crew @patientslikeme @savvy_coop @Clara_Health and use the po…
Amanda @LAlupusLady
RT @Rossco006: It all comes down to the patients voice. We need to get louder more vocal and more organized! #patientchat https://t.co/3i1d…
Christina Lizaso @btrfly12
RT @burtrosen: t5: work with @wegohealth and @savvy_coop, participate in events like #MedX and #WTFix, and @S4PM #PatientChat
Inspire @teaminspire
RT @patientchat: T6: How do we ensure patient’s needs are the primary focus of new healthcare innovations? #patientchat
Virginia M. Byrne @VirginiaMByrne
RT @GraceCordovano: But please, not just 1 patient. Please don't include ONE patient so as to check off a box. #patientchat https://t.co/OD…
Virginia M. Byrne @VirginiaMByrne
RT @Clara_Health: T3: Innovations by nature are solutions to problems. Health problems and the patients who have them should drive the solu…
Ross @Rossco006
@patientchat in the weeds with this chat because it's moving so fast! #patientchat
Patient Empowerment @power4patients
RT @patientchat: T6: How do we ensure patient’s needs are the primary focus of new healthcare innovations? #patientchat
Christina Lizaso @btrfly12
RT @LillyStairs: A5: COLLABORATION IS KEY! Both industry and non-profits need to stop their infighting and work together...& always w/patie…
🎆Juba🎆 @djuba52
@patientchat CVS will dispense 1 week of pain medication at a time! The disabled pt. must go to cvs 4x / month? #patientchat Not good
burtrosen @burtrosen
T4: i'd build an incubator that funded patient led health care start ups. just think what those could do and look like! #PatientChat
Christina Lizaso @btrfly12
RT @patientchat: T6: How do we ensure patient’s needs are the primary focus of new healthcare innovations? #patientchat
Ross @Rossco006
RT @gratefull080504: T2: Do your homework, learn the issues, use your #patientvoice constructively, request a seat at the table, etc.…
Participatory Med @S4PM
RT @burtrosen: T4: i'd build an incubator that funded patient led health care start ups. just think what those could do and look like! #Pat
Richard Zhao @richardzhao
T5: Crowd intelligence & experience from lots of patients are so important for the future of healthcare. At least, for us! #Patientchat
CP Nerve Center @Cpnervecenter
@GraceCordovano Yes! As a patient and RN I agree wholeheartedly #patientchat
Rachel Basso @rachelbasso
T6: Patients can continue to vocalize needs and work together across industry, advocacy organizations and researchers! #patientchat
levro @leavery_troy
@MDaware this was essentially the point of the oil change analogy. Decrease system and insurance cost and incentivize more PC https://t.co/5EeHQnw5BM
levro @leavery_troy
RT @TuftsB: #patientchat T4 - direct primary care w/major medical/drug insurance, eliminate PBM's, stop hospital consolidation, incentivize…
Enlightening Results @GraceCordovano
@Rossco006 @patientchat I hear you! #patientchat https://t.co/rx1IP3oE8c
Kimberly Hartmann @fireflyrn84
T6: We include #patients on the ground floor development of everything. Things develop different if you have that perspective #patientchat
Lilly Stairs @LillyStairs
Patient advisory boards, patient consultants and regular engagement from day 1 to ensure your innovation is hitting the mark #patientchat https://t.co/MFbiqPWyF0
Alan Brewington @abrewi3010
T6 greater sharing of patient stories across silos. If a story moves you, share it. Signal boosts for stories is key. #patientchat
Lilly Stairs @LillyStairs
RT @burtrosen: T4: i'd build an incubator that funded patient led health care start ups. just think what those could do and look like! #Pat
I AM TAKING CHARGE™ @iamtakingcharge
When you empower a #patient, you empower their entire #family to think better, do better to maintain a #healthier lifestyle. #patientchat
Bob Tufts @TuftsB
#patientchat A5 - patients have a powerful narrative we have to use to speed up novel therapies- from beginning to end of process @MLIWI
Clara @Clara_Health
T6: Patients & caregivers can claim their power by educating themselves and taking charge of their care. #patientchat #patientshavepower
Ross @Rossco006
@GraceCordovano We need organizations that have no borders and encompass patients from around the globe. #patientchat
Patient Chat @patientchat
RT @IAmTakingCharge: When you empower a #patient, you empower their entire #family to think better, do better to maintain a #healthier life…
Virginia M. Byrne @VirginiaMByrne
Data hoarding. It serves researchers institutions, not patients. https://t.co/NOYisRjHHD
Clara @Clara_Health
RT @fireflyrn84: T6: We include #patients on the ground floor development of everything. Things develop different if you have that perspect…
Ross @Rossco006
RT @Clara_Health: @fireflyrn84 As @LillyStairs said- research and innovation shouldn't be driven by numbers. 1 patient matters as muc…
🎆Juba🎆 @djuba52
#PatientChat https://t.co/ESJZSzxodJ
Christina Lizaso @btrfly12
Join @S4PM https://t.co/lNKI35BXGn and/or sign up for mailing list https://t.co/rRP28TcyFa (scroll down and look for box) #patientchat https://t.co/6VPGcAQP1o
CP Nerve Center @Cpnervecenter
A6 Patients are included every step of the way. No decisions about patients without patients! #Patientchat
Enlightening Results @GraceCordovano
@djuba52 @patientchat Awful. Guess they aren't going on a vacation or traveling anywhere for more than a week either. Wrong answer #patientchat
Kimberly Hartmann @fireflyrn84
RT @IAmTakingCharge: When you empower a #patient, you empower their entire #family to think better, do better to maintain a #healthier life…
Ross @Rossco006
@Clara_Health @LillyStairs @fireflyrn84 So very true! #patientchat
I AM TAKING CHARGE™ @iamtakingcharge
@patientchat Without #patient involvement, you won't get the right outcome in making things better for them. #patientchat #innovation #healthcare
Virginia M. Byrne @VirginiaMByrne
RT @GraceCordovano: T1: Innovators- important to understand the problem u are trying to solve. Have u asked what #patients & #carepartners
Richard Zhao @richardzhao
T5: Patient ambassadors here are doing such important thing for our future of healthcare. You guys have big hearts! #Patientchat
Amanda @LAlupusLady
RT @btrfly12: Join @S4PM https://t.co/lNKI35BXGn and/or sign up for mailing list https://t.co/rRP28TcyFa (scroll down and look fo…
Christina Lizaso @btrfly12
RT @burtrosen: T4: i'd build an incubator that funded patient led health care start ups. just think what those could do and look like! #Pat
CP Nerve Center @Cpnervecenter
RT @fireflyrn84: T6: We include #patients on the ground floor development of everything. Things develop different if you have that perspect…
🦎 Sakinah🦎 @TheMuslimHippie
RT @Clara_Health: T6: Patients & caregivers can claim their power by educating themselves and taking charge of their care. #patientchat #pa
Lisa Davis Budzinski @lisadbudzinski
T5 Peering beyond the walls of healthcare is the catalyst for innovation. As pts, weve made movements just by using tweet chats #patientchat
Savvy Co-op | #askpatients @savvy_coop
RT @IAmTakingCharge: @patientchat Without #patient involvement, you won't get the right outcome in making things better for them.…
Rachel Basso @rachelbasso
Organizations should be there to break down barriers, not build them! #patientchat
Richard Zhao @richardzhao
Thanks for the mention! lisadbudzinski: @richardzhao Agree with @wegohealth & there are a lot of us right here in this #patientchat & other…
Richard Zhao @richardzhao
Thanks for the mention! melissarvh: @richardzhao Yes, I am here & willing! Check @WegoHealth as well! #patientchat
Amanda @LAlupusLady
@btrfly12 @S4PM Brain fog happens and forgot to @S4PM #patientchat
Alan Brewington @abrewi3010
T6 need industry/nonprofits to use their platforms to boost human patient stories. #patientchat
Virginia M. Byrne @VirginiaMByrne
But we've always done it this way ... https://t.co/5DPkfgr3dI
Richard Zhao @richardzhao
Thanks for the mention! power4patients: .@richardzhao We can help! #patientchat
Melissa VanHouten @melissarvh
T6 Good article on this very topic: 5 Ways Healthcare Organizations Can Amplify Voice Of The Patient https://t.co/NoziRs7nt4 #patientchat
Savvy Co-op | #askpatients @savvy_coop
We agree! #patientchat https://t.co/u75FlQhzoa
Christina Lizaso @btrfly12
RT @abrewi3010: T6 greater sharing of patient stories across silos. If a story moves you, share it. Signal boosts for stories is key. #pati
Christina Lizaso @btrfly12
RT @IAmTakingCharge: When you empower a #patient, you empower their entire #family to think better, do better to maintain a #healthier life…
Rachel Basso @rachelbasso
RT @Cpnervecenter: A6 Patients are included every step of the way. No decisions about patients without patients! #Patientchat
I AM TAKING CHARGE™ @iamtakingcharge
@patientchat Participate in survey, drop suggestions in #pharmacy box, write to #healthcare publishing companies. #patientchat #patientvoice #health
Bob Tufts @TuftsB
#patientchat A6 Rate/call out members of the medical supply chain who do not have real patient relations professionals in house @MLIWI
Patient Empowerment @power4patients
@IAmTakingCharge Exactly the sentiment I was going to write but you said it beautifully! It's our mission as an organization #patientchat
Virginia M. Byrne @VirginiaMByrne
Or profit focus? https://t.co/zuOfhJVuQs
Savvy Co-op | #askpatients @savvy_coop
Jumping in late here, thanks for the shout outs @fireflyrn84 and @burtrosen #PatientChat
Kenny @kenny_pal2
Let's chat with the topic of " #patientchat "? Try the chat channel Free and anonymous https://t.co/C7mBPKUe2A
Kimberly Hartmann @fireflyrn84
@richardzhao Many of us are healthcare professionals who changed roles. Our hearts get us through the day, helping others is what we do #patientchat
Ross @Rossco006
@LillyStairs Yes! Again the common thread is that it's about coming together and working together towards a common goal! #patientchat
Clara @Clara_Health
@melissarvh Thanks for sharing! #patientchat
Lilly Stairs @LillyStairs
@VirginiaMByrne Ah yes! The classic red tape and slow moving pace of industry. Patients are demanding better. I love it #patientchat
Rhinase @rhinase_
RT @patientchat: T1: What are some of the current limitations to innovation and disruption in healthcare? #patientchat
Christina Lizaso @btrfly12
RT @TuftsB: #patientchat A6 Rate/call out members of the medical supply chain who do not have real patient relations professionals in house…
Enlightening Results @GraceCordovano
Here's another example of what patients & care partners can do right now! Look into @savvy_coop #patientchat https://t.co/Hg14tnPyHg
Rhinase @rhinase_
RT @LillyStairs: A1: I wrote about this topic recently. #digitalhealth companies are falling behind in #patientadvocacy https://t.co/ro3uPl…
Rhinase @rhinase_
RT @patientchat: T2: How could we work to overcome these limitations to more innovation in healthcare? #patientchat
Savvy Co-op | #askpatients @savvy_coop
This is powerful. Must not forget the family and#caregivers. Unsung heroes! #patientchat https://t.co/X1aQapB2vw
Rhinase @rhinase_
RT @abrewi3010: T2 return to basics. Active listening to each other with #everyoneincluded. Respect for all sides. #patientchat
Lilly Stairs @LillyStairs
RT @IAmTakingCharge: When you empower a #patient, you empower their entire #family to think better, do better to maintain a #healthier life…
Capricorn - It's Me! @_capricorn_247
Awesome Capricorn See here=> https://t.co/tJE4lywf8V #capricornhoodie #capricornmug #capricornlongsleeve #patientchat https://t.co/1BcdOOzQlk
🎆Juba🎆 @djuba52
#PatientChat #Spoonies #chronicillness https://t.co/BFMCHGb7Eh
CP Nerve Center @Cpnervecenter
RT @power4patients: @IAmTakingCharge Exactly the sentiment I was going to write but you said it beautifully! It's our mission as an organiz…
Patient Empowerment @power4patients
We design cars with the driver in mind, why is it so revolutionary to suggest designing treatments w/ the patient in mind??? #patientchat
Jerry Durham @Jerry_DurhamPT
Love this!!! #FOCUSonPatient https://t.co/WHT3AXGiTt
Amanda @LAlupusLady
T6 Start by including patients before the development begins, include pts in research and ask us "what do we need?" #patientchat easy fix. https://t.co/FlVBEs1Rwd
Melissa VanHouten @melissarvh
RT @power4patients: We design cars with the driver in mind, why is it so revolutionary to suggest designing treatments w/ the patient in mi…
Bob Tufts @TuftsB
#patientchat - conventions are rated on whether there are #patientsincluded, so should others in system. @MLIWI https://t.co/UdngxvrpUi
Amanda @LAlupusLady
RT @patientchat: T6: How do we ensure patient’s needs are the primary focus of new healthcare innovations? #patientchat
Lilly Stairs @LillyStairs
Preach!! 🙌🏻 #Patientchat https://t.co/A0X8enzvwu
Savvy Co-op | #askpatients @savvy_coop
This our soapbox! Our goal @savvy_coop is to make it so easy to work w patients, innovators have no excuse to not collaborate #patientchat https://t.co/hw0qwFoIZw
Ross @Rossco006
@fireflyrn84 @btrfly12 @wegohealth @brkthrough_crew @patientslikeme @savvy_coop @Clara_Health You have a very strong point here! #patientchat
Christina Lizaso @btrfly12
@power4patients Advocacy groups can be so protective of own little space. Collab is how things will change w/ true pt involvement in the groups #patientchat
Nicole Saphier, MD @nbsaphiermd
As a #radiologist I daily encourage my colleagues to get out of the dark and communicate directly w patients. #RadsHaveAFace #patientchat
Lisa Davis Budzinski @lisadbudzinski
Another great stand out 👇 emerging in healthcare! #PatientChat https://t.co/rmg7XvNBBW
Patient Chat @patientchat
Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT: #patientchat
Alan Brewington @abrewi3010
RT @savvy_coop: This our soapbox! Our goal @savvy_coop is to make it so easy to work w patients, innovators have no excuse to not c…
Kimberly Hartmann @fireflyrn84
I’m getting so many notifications that I can’t keep up with what everyone is putting! Definitely need the recap on this one! #patientchat
Bob Tufts @TuftsB
No one wants to put the patient behind the wheel. #patientchat https://t.co/OK8AceDypT
Patient Empowerment @power4patients
RT @patientchat: Time to start sharing closing thoughts (CT) on what you learned, were reminded of or can implement. Start your tweet w/ CT…
Amanda @LAlupusLady
i should have put on my #pinksocks for #patientchat today as we discuss innovation and disruption. Tribe. Community. Collaboration.
CP Nerve Center @Cpnervecenter
RT @lisadbudzinski: Another great stand out 👇 emerging in healthcare! #PatientChat https://t.co/rmg7XvNBBW
Christina Lizaso @btrfly12
icymi: Link to join @S4PM https://t.co/lNKI35BXGn and/or sign up for mailing list https://t.co/rRP28TcyFa (look for box) #patientchat
Isabel Jordan @seastarbatita
RT @suerobinsyvr: I used to be a paid 'family engagement advisor' at 2 children's hospitals. I'm despondent at what's happening w/ pa…
Amanda @LAlupusLady
RT @LillyStairs: Preach!! 🙌🏻 #Patientchat https://t.co/A0X8enzvwu
Christina Lizaso @btrfly12
RT @NBSaphierMD: As a #radiologist I daily encourage my colleagues to get out of the dark and communicate directly w patients. #RadsHaveAFa
Savvy Co-op | #askpatients @savvy_coop
@lisadbudzinski Thanks for your continued support! Patients empowerment through a patient co-op! #patientchat
I AM TAKING CHARGE™ @iamtakingcharge
Every individual should say to themselves: " My Health is important to me and I have a Voice to make changes in #healthcare. " #patientchat
Lilly Stairs @LillyStairs
RT @NBSaphierMD: As a #radiologist I daily encourage my colleagues to get out of the dark and communicate directly w patients. #RadsHaveAFa
Lisa Davis Budzinski @lisadbudzinski
This 👇! #patientchat https://t.co/WOrXqpFHtw
Ross @Rossco006
Including the patient in the process is a start. #patientchat https://t.co/B9bn7jaekw
Lilly Stairs @LillyStairs
RT @btrfly12: @power4patients Advocacy groups can be so protective of own little space. Collab is how things will change w/ true…
Kandi Yarberry @kandiyarberry
RT @power4patients: We design cars with the driver in mind, why is it so revolutionary to suggest designing treatments w/ the patient in mi…
Kandi Yarberry @kandiyarberry
RT @melissarvh: T6 Good article on this very topic: 5 Ways Healthcare Organizations Can Amplify Voice Of The Patient https://t.co/NoziRs7nt…
Christina Lizaso @btrfly12
@power4patients yet I got blank stares from a heart device guy who thinks docs are his only customer #patientchat
Kandi Yarberry @kandiyarberry
RT @power4patients: T5: for starters, advocacy groups need to get better at working together to achieve better outcomes and improve quality…
Kandi Yarberry @kandiyarberry
RT @GraceCordovano: T5: Work with like minded groups, like #patientchat. By personally committing to being engaged & connecting, amazing op…
Savvy Co-op | #askpatients @savvy_coop
Thank you! Need this. Every day. #patientchat https://t.co/z5oR4a9WIQ
Lisa Davis Budzinski @lisadbudzinski
RT @btrfly12: icymi: Link to join @S4PM https://t.co/lNKI35BXGn and/or sign up for mailing list https://t.co/rRP28TcyFa (look for box) #pa
Kandi Yarberry @kandiyarberry
RT @fireflyrn84: #rarediseases are on the back burner and should be treated equally. We need advances as much as every other disease…
🦎 Sakinah🦎 @TheMuslimHippie
RT @LillyStairs: Preach!! 🙌🏻 #Patientchat https://t.co/A0X8enzvwu
Clara @Clara_Health
@TuftsB We do!!!! Here's a key for you! #patientchat https://t.co/DI88kpH9I9
Kandi Yarberry @kandiyarberry
RT @melissarvh: T5 In general, advocacy grps & nonprofits designed 2 amplify patient voice are good start; share info & your message everyw…
Bob Tufts @TuftsB
#patientchat - CT Always remember that Big Data only gets us in the ballpark, a caring physician gets us to the right seat. @MLIWI
Ross @Rossco006
RT @NBSaphierMD: As a #radiologist I daily encourage my colleagues to get out of the dark and communicate directly w patients. #RadsHaveAFa
Savvy Co-op | #askpatients @savvy_coop
RT @power4patients: We design cars with the driver in mind, why is it so revolutionary to suggest designing treatments w/ the patient in mi…
Kandi Yarberry @kandiyarberry
RT @melissarvh: T5 Just want to mention #RCAW17 as one specific possibility: https://t.co/SorKPQY6Rr. Incredible efforts here! #patientchat
CP Nerve Center @Cpnervecenter
CT Get involved! Ask your clinic if they include patients in decision making. If not, offer yourself in that role. #Patientchat
Kandi Yarberry @kandiyarberry
RT @richardzhao: @melissarvh @wegohealth Thank all the patients #ambassadors like you that have the courage to take the power back to patie…
Whitney Petit @CfEpilepsy
RT @Clara_Health: T6: Patients & caregivers can claim their power by educating themselves and taking charge of their care. #patientchat #pa
Kandi Yarberry @kandiyarberry
RT @melissarvh: T3 Seems to me it must be grassroots, bottom to top change rather than top-down imposed change. #patientchat
Kandi Yarberry @kandiyarberry
RT @melissarvh: T2 Must have people willing to stand up & take a risk, who are able to fundamentally & radically rethink the way things are…
Kandi Yarberry @kandiyarberry
RT @melissarvh: T2 Include patient opinion & ideas from beginning 2 end; need companies 2 welcome/reward new ideas & push change in perspec…
Christina Lizaso @btrfly12
RT @TuftsB: #patientchat - CT Always remember that Big Data only gets us in the ballpark, a caring physician gets us to the right seat. @M
Kimberly Hartmann @fireflyrn84
CT: Patients first, patients always! If we want a system that works, ask the patient! #patientchat
Kandi Yarberry @kandiyarberry
RT @melissarvh: T4 Should address time from treatment research/development 2 approval & other barriers 2 patient access 2 new meds, esp 4 #…
Lisa Davis Budzinski @lisadbudzinski
RT @Cpnervecenter: CT Get involved! Ask your clinic if they include patients in decision making. If not, offer yourself in that role. #Pati
Anne Polta @annepolta
@NBSaphierMD Thank you for this. #patientchat
Kandi Yarberry @kandiyarberry
RT @melissarvh: T4 Would need 2 address lack of access to specialists, wait time, lack of education re illness even among medical professio…
Christina Lizaso @btrfly12
RT @Cpnervecenter: CT Get involved! Ask your clinic if they include patients in decision making. If not, offer yourself in that role. #Pati
Kandi Yarberry @kandiyarberry
RT @melissarvh: T1 Lack of motivation & unwillingness to change; lack of understanding abt what needs 2 change; political culture & regulat…
Christina Lizaso @btrfly12
RT @AnnePolta: T5 Start local. Develop relationships with hcare folks. Talk abt what matters to pts. Ask to be included. Persist. #patientc
Alan Brewington @abrewi3010
CT tell my story in my voice in a quality/vulnerable way & the world will change. #patientchat
burtrosen @burtrosen
going to be a great event with an amazing lineup of speakers https://t.co/7eD1iZWc8t
Rhinase @rhinase_
RT @patientchat: T3: Where do you think innovations in healthcare currently come from? Where should they come from? #patientchat
Rhinase @rhinase_
RT @btrfly12: T3: Love the patient #DIY movement and #citizenscience efforts. They are paving good ways but will take more than that. #pati
Christina Lizaso @btrfly12
@abrewi3010 love, love this #patientchat
Christina Lizaso @btrfly12
RT @abrewi3010: CT tell my story in my voice in a quality/vulnerable way & the world will change. #patientchat
Ross @Rossco006
@NBSaphierMD @btrfly12 This is the type of communication that we the patient need if we are going to work together! #patientchat
Christina Lizaso @btrfly12
RT @melissarvh: T5 Just want to mention #RCAW17 as one specific possibility: https://t.co/SorKPQY6Rr. Incredible efforts here! #patientchat
Savvy Co-op | #askpatients @savvy_coop
Hooray! We may be bias, but we sure think it's the future. Our Savvy Crowd of patients are here to help. We do better together! #patientchat https://t.co/vzUVCkju52
Ross @Rossco006
RT @btrfly12: @power4patients Advocacy groups can be so protective of own little space. Collab is how things will change w/ true…
Richard Zhao @richardzhao
It was great experience for my 1st time here. Good to know so many patient ambassadors here are willing to take actions! #Patientchat
Lilly Stairs @LillyStairs
CT: I want ALL #digitalhealth companies to see this chat to recognize value of patient engagement. Let's change status quo! #patientchat
Christina Lizaso @btrfly12
RT @LillyStairs: CT: I want ALL #digitalhealth companies to see this chat to recognize value of patient engagement. Let's change status quo…
Patient Empowerment @power4patients
.@btrfly12 Sadly, it's evolution, not revolution...yet ;) #patientchat
burtrosen @burtrosen
CT: not easy, but never stop fighting to get your voice and the voice of patients and people heard in HC. Cant happen enough #PatientChat
Alan Brewington @abrewi3010
@btrfly12 Thank you! 🙏 #patientchat
Kimberly Hartmann @fireflyrn84
@abrewi3010 So true! Love this #patientchat
Lisa Davis Budzinski @lisadbudzinski
CT: Pts have yrs of experience that can be a formidable force via innovation/disruption in #healthcare #patientchat
Patient Chat @patientchat
#patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime
Amanda @LAlupusLady
CT Next TUESDAY join the #Connect2Health @PCHAlliance @JohnSharp hosts @BrennanSpiegel and me #VR in HC #patientchat https://t.co/q6vdRF7SVG
Christina Lizaso @btrfly12
#HITsm #HITmc #HealthIThchicks https://t.co/B3RE1knQvH
Katie @katie5280
@patientchat CT: There are many organizations that need to start patient advisory boards or start including patient opinion for innovation #patientchat
Patient Chat @patientchat
Thanks to all for joining our Empowered #patientchat. We'll tweet out the transcript about 15min past the hour
Ross @Rossco006
@fireflyrn84 I'm having the same problem! Lol! #Patientchat
Kimberly Hartmann @fireflyrn84
@richardzhao We’re always here! #patientchat
Patient Empowerment @power4patients
RT @LAlupusLady: CT Next TUESDAY join the #Connect2Health @PCHAlliance @JohnSharp hosts @BrennanSpiegel and me #VR in HC #patientchat https…
Christina Lizaso @btrfly12
RT @LAlupusLady: CT Next TUESDAY join the #Connect2Health @PCHAlliance @JohnSharp hosts @BrennanSpiegel and me #VR in HC #patientchat https…
burtrosen @burtrosen
@richardzhao one of the best tweet chats out there. so hearfelt, caring and empathetic #patientchat is great!
Lisa Davis Budzinski @lisadbudzinski
@richardzhao Thank you ✨ We work so very hard on a daily basis #PatientChat
Richard Zhao @richardzhao
Sorry that I have to drop out early, even I don't want to. Have to go to another meeting now.Have a nice weekend everyone Love #Patientchat
Nick Adkins @nickisnpdx
RT @LAlupusLady: i should have put on my #pinksocks for #patientchat today as we discuss innovation and disruption. Tribe. Community. Colla…
Christina Lizaso @btrfly12
RT @burtrosen: @richardzhao one of the best tweet chats out there. so hearfelt, caring and empathetic #patientchat is great!
Patient Chat @patientchat
Join us for the next Empowered #patientchat on Fri October 6th at 1pm ET | 10am PT https://t.co/9go81MXVm8
Inspire @teaminspire
RT @LAlupusLady: T4 I would create and support Whole Health Wellness (Physical, Emotional, Mental, Sexual and Spiritual) Center. #patientch
Enlightening Results @GraceCordovano
Have a fabulous weekend #patientchat! Til next time
CP Nerve Center @Cpnervecenter
Amazing chat today. THANKS AGAIN #Patientchat. I'm feeling even more empowered after this hour. #empowerhour https://t.co/gLFNgyQn3p
Inspire @teaminspire
RT @patientchat: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat
Melissa VanHouten @melissarvh
Huge thanks to @patientchat for hosting another informative & engaging chat! #patientchat
Amanda @LAlupusLady
CT A Patient’s Perspective on Virtual Reality https://t.co/p8PTv3vm2K #Connect2Health insight #patientchat share.
Patient Chat @patientchat
Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Patient Empowerment @power4patients
RT @patientchat: Join us for the next Empowered #patientchat on Fri October 6th at 1pm ET | 10am PT https://t.co/9go81MXVm8
Christina Lizaso @btrfly12
RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Melissa VanHouten @melissarvh
RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Anne Polta @annepolta
What?? We're done already?! Fastest hour ever. #patientchat
Melissa VanHouten @melissarvh
RT @patientchat: Join us for the next Empowered #patientchat on Fri October 6th at 1pm ET | 10am PT https://t.co/9go81MXVm8
Patient Empowerment @power4patients
RT @patientchat: Keep the conversation going between chats - tweet things of interest to empowered patients with hashtag #patientchat
Ross @Rossco006
@LillyStairs Yes! I think we're making a huge impact in this with @brkthrough_crew and others! #patientchat
Bingle @TheBingle
Very True! Could even be a reason for Breaking News In Medicine. However, sometimes other people take credit IMHO. #patientchat #healthcare https://t.co/Q69v0gfJ7T
Ross @Rossco006
RT @patientchat: #patientchat is your community. Thanks for helping make it great. Reach out to @power4patients or @patientchat anytime
Savvy Co-op | #askpatients @savvy_coop
We created a patient co-op to give power back to patients and give them a marketplace to share their savvy with innovators. #patientchat https://t.co/8T0jmpnVxP
Amanda @LAlupusLady
i promised to not say anything but beware because MONDAY is coming... #patientchat
Ross @Rossco006
RT @LAlupusLady: CT Next TUESDAY join the #Connect2Health @PCHAlliance @JohnSharp hosts @BrennanSpiegel and me #VR in HC #patientchat https…
Ferdinand Reyes @ferranrego
RT @savvy_coop: We created a patient co-op to give power back to patients and give them a marketplace to share their savvy with inn…
Patient Critical Co-op @PatientCritical
CT: Patients will never be priority of HCP/policy groups that have own members to serve. It's why we created @PatientCritical #patientchat https://t.co/eLuvvlpJdR
Savvy Co-op | #askpatients @savvy_coop
Important point here too about privilege. We aren't capturing diverse patient voices, and therefore innovating for subset of pop #paientchat https://t.co/QsmnHOlNBk
Patient Health @MD4U
RT @btrfly12: icymi: Link to join @S4PM https://t.co/lNKI35BXGn and/or sign up for mailing list https://t.co/rRP28TcyFa (look for box) #pa
Patient Critical Co-op @PatientCritical
RT @patientchat: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it addres…
Rhinase @rhinase_
RT @patientchat: T4: If you had unlimited resources to create a new company/tech to disrupt health care delivery, what need would it addres…
Anne Polta @annepolta
RT @lisadbudzinski: CT: Pts have yrs of experience that can be a formidable force via innovation/disruption in #healthcare #patientchat
EndHeartDisease @endheartdisease
#patientchat https://t.co/lOehF2wVa7
Anne Polta @annepolta
RT @burtrosen: CT: not easy, but never stop fighting to get your voice and the voice of patients and people heard in HC. Cant happen enough…
Rhinase @rhinase_
RT @power4patients: T4: Here's what we would do: https://t.co/O3ofY3i71e @jbbc #patientchat
Ross @Rossco006
@patientchat Thanks everybody! Great chat and look forward to catching the next! Off to deal with a sick kid! #patientchat
Rhinase @rhinase_
RT @RachelBasso: A4: If I had unlimited resources no patient would ever pay out of pocket for a treatment they needed. #patientchat https:/…
Rhinase @rhinase_
RT @fireflyrn84: T4: It would put the human touch back into healthcare. Technology is great, but technology doesn’t have empathy or hand to…
Rhinase @rhinase_
RT @patientchat: T5: How might patients organize together to push for more innovation and disruption in healthcare? #patientchat
#patientchat content from Twitter.