rare disease research influencers and hashtags

Discover who to follow and where the rare disease research conversation is taking place

Rare Disease Research Hashtags

3rd Annual Sanford Rare Disease Symposium
Healthcare Conferences | Topics: , , ,

3rd Annual Sanford Rare Disease Symposium in honor of Global Rare Disease Day. Feb. 28 – Mar. 1, 2013. The Sanford Rare Disease Symposium features scientists, healthcare providers, and patient advocates from around the nation who work to improve care for individuals affected by rare disorders. All are welcome! View the agenda and register (free!) today: https://www.signup4.net/Public/ap.aspx?EID=SANF28E

Healthcare Tweet Chats | Topics: , , , , ,

CoRDSchat is a live Twitter-driven event which takes place the last Friday of every month (Noon CST) CoRDSchat was founded by Liz Donohue, Director of the CoRDS (Coordination of Rare Diseases at Sanford) @SanfordCoRDS in February 2012. CoRDS chat brings together rare disease patient groups, but also other key stakeholders to discuss topics around #raredisease

Healthcare Social Media Newsletter

LeAnna J. Carey, MBA - Healthcare social media consultant