Rare Disease Hashtags

Hashtag Type Topics and Description
#2014GGSummitHealthcare ConferencesGlobal Genes Patient Advocacy Summit
11th September 2014 – 13th September 2014
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Global Genes - Allies in Rare Disease: 2014 Rare Disease Patient Advocacy Summit will offer practical advice, case studies, and networking opportunit…
#AtaxiaDisease Hashtags,
Ataxia describes a lack of muscle coordination during voluntary movements, such as walking or pickin…
#BattenDiseaseDisease Hashtags, ,
Batten Disease is a neurodegenerative genetic condition characterized by progressive mental and motor…
#ChiariDisease Hashtags, ,
Chiari Malformation is a condition in which brain tissue protrudes into the spinal canal as a result …
#cinderblocks2Healthcare ConferencesCinderblocks II, The Partnership with Patients Continues
4th June 2015 – 6th June 2015
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The Partnership with Patients event in Kansas City in 2012 was a big success. For the past two years attendees have been asking to meet again. The n…
#CoRDSchatHealthcare Tweet Chats, , , , ,
CoRDSchat is a live Twitter-driven event which takes place the last Friday of every month (Noon CST) CoRDSchat was founded by Liz Donohue, Director of…
#CowdensSyndromeDisease Hashtags, , , , , , ,
Cowden's Syndrome, also known as Multiple Hamartoma Syndrome,#Cryoglobulinemia
Disease Hashtags, , , , ,
Cryoglobulinemia is the presence of abnormal proteins in the blood. These abnormal proteins become th…
#CryoGroupDisease Hashtags, Regular, , , , , ,
Cryoglobulinemia is the presence of abnormal proteins in the blood. These abnormal proteins become th…
#EDSDisease Hashtags, , , , ,
Ehlers-Danlos Syndrome is a group of inherited disorders marked by extremely loose joints, hyperelast…
#FMDDisease Hashtags,
Fibromuscular Dysplasia is the abnormal development or growth of cells in the walls of arteries that …
#FOGM14Healthcare ConferencesThe Future of Genomic Medicine VII
6th March 2014 – 7th March 2014
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The 7th Future of Genomic Medicine conference will be the next iteration of taking genomic knowledge to transform the daily practice of medicine. This…
#GPFAD2013Disease Hashtags, , , ,
Pulmonary Fibrosis is the formation or development of excess fibrous connective tissue (fibrosis) in …
#MERSDisease Hashtags, , ,
Middle East Respiratory Syndrome is viral respiratory illness first reported in Saudi Arabia in 2012.…
#MyositisDisease Hashtags, ,
Myositis is the inflammation of the skeletal muscles.
#NewbornscreeningRegular, , ,
#NIRDchatHealthcare Tweet Chats,
Northern Ireland Rare Disease chat, initially to cover the consultation period for the NI Rare Disease Implementation Plan. Coinciding with public mee…
#PedInno14Healthcare ConferencesBoston Children's Hospital's Global Pediatric Innovation Summit + Awards 2014
30th October 2014 – 31st October 2014
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Taking a worldwide perspective, #PedInno14 is designed to address unmet needs, solve problems and seize opportunities in pediatric health care. Join a…
#ProgeriaDisease Hashtags,
Progeria is a rare condition that is remarkable because its symptoms strongly resemble normal human a…
#PulmonaryFibrosisDisease Hashtags, , , ,
Pulmonary Fibrosis is the formation or development of excess fibrous connective tissue (fibrosis) in …
#rareACTIONRegular, ,
#RareDiseaseDisease Hashtags
A Rare Disease, also referred to as an orphan disease, is any disease that affects a small percentage…
#RareDiseaseDayDisease Hashtags
A Rare Disease, also referred to as an orphan disease, is any disease that affects a small percentage…
#rarePOVHealthcare Tweet Chats
#RarePOV was created for an inaugural Tweetchat on rare disease in October 2013. A discussion question will be posed every Monday. The next Tweetchat …
#RARESummitHealthcare Conferences, ,

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