Rare Disease Hashtags

Hashtag Type Topics and Description
#2014GGSummitHealthcare ConferencesGlobal Genes Patient Advocacy Summit
11th September 2014 – 13th September 2014
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Global Genes - Allies in Rare Disease: 2014 Rare Disease Patient Advocacy Summit will offer practical advice, case studies, and networking opportunit…
#AtaxiaDisease Hashtags,
Ataxia describes a lack of muscle coordination during voluntary movements, such as walking or pickin…
#BattenDiseaseDisease Hashtags, ,
Batten Disease is a neurodegenerative genetic condition characterized by progressive mental and motor…
#BehcetsDisease Hashtags, , , ,
Behcets Disease is an illness that causes symptoms in various parts of the body. The more common symp…
#ChiariDisease Hashtags,
Chiari Malformation is a condition in which brain tissue protrudes into the spinal canal as a result …
#cinderblocks2Healthcare ConferencesCinderblocks II, The Partnership with Patients Continues
4th June 2015 – 6th June 2015
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The Partnership with Patients event in Kansas City in 2012 was a big success. For the past two years attendees have been asking to meet again. The n…
#CoRDSchatHealthcare Tweet Chats, , , , ,
CoRDSchat is a live Twitter-driven event which takes place the last Friday of every month (Noon CST) CoRDSchat was founded by Liz Donohue, Director of…
#CowdensSyndromeDisease Hashtags, , , , , , ,
Cowden's Syndrome, also known as Multiple Hamartoma Syndrome,#Cryoglobulinemia
Disease Hashtags, , , , ,
Cryoglobulinemia is the presence of abnormal proteins in the blood. These abnormal proteins become th…
#CryoGroupDisease Hashtags, Regular, , , , , ,
Cryoglobulinemia is the presence of abnormal proteins in the blood. These abnormal proteins become th…
#DIArarediseasesHealthcare ConferencesUS Conference on Rare Diseases & Orphan Products: Shaping the Future Now
22nd October 2012 – 24th October 2012
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US Conference on Rare Diseases & Orphan Products: Shaping the Future Now

October 22-24, 2012 | Washington, DC

Join patients, pat…

#digisummit14Healthcare ConferencesShire Digital Innovation Summit 2014
2nd December 2014 – 3rd December 2014
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Shire Digital Innovation Summit 2014
#EDSDisease Hashtags, , , , ,
Ehlers-Danlos Syndrome is a group of inherited disorders marked by extremely loose joints, hyperelast…
#EhlersDanlosDisease Hashtags, ,
Ehlers-Danlos Syndrome is a group of inherited disorders marked by extremely loose joints, hyperelast…
#eurdchatHealthcare Tweet Chats, ,
Tweetchats run by the European Organization for Rare Diseases (EURORDIS), covering issues relevant to European patients / patient organisations and he…
#fisiotsostenibleHealthcare ConferencesJornadas Iberoamericanas y Mediterráneas de Fisioterapia - Fisioterapia Sostenible: Enfermedades Crónicas y Enfermedades Raras
1st June 2012 – 2nd June 2012
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Jornadas de Fisioterapia en Cádiz, España. Conferencistas de todo España y de Suramérica reunidos para compartir investigación y tratamientos de…
#FMDDisease Hashtags,
Fibromuscular Dysplasia is the abnormal development or growth of cells in the walls of arteries that …
#FOGM14Healthcare ConferencesThe Future of Genomic Medicine VII
6th March 2014 – 7th March 2014
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The 7th Future of Genomic Medicine conference will be the next iteration of taking genomic knowledge to transform the daily practice of medicine. This…
#GPFAD2013Disease Hashtags, , , ,
Pulmonary Fibrosis is the formation or development of excess fibrous connective tissue (fibrosis) in …
#HuntingtonsdiseaseDisease Hashtags, , ,
Huntington's Disease is an inherited disease that causes the progressive breakdown of nerve cells in …
#loweconferenceHealthcare ConferencesI SCIENTIFIC CONFERENCE with Doctors an Rela tives of Patients’ RELATIVES with Lowe Syndrome
9th September 2012 – 7th December 2012
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International Conference about the Research in an ultra-rare disease (Lowe Syndrome). The participants will be the doctors and relatives of the childr…
#loweresearchHealthcare ConferencesI SCIENTIFIC CONFERENCE with Doctors an Rela tives of Patients’ RELATIVES with Lowe Syndrome
8th September 2012 – 7th December 2012
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International Conference about the Research in an ultra-rare disease (Lowe Syndrome). The participants will be the doctors and relatives of the childr…
#MERSDisease Hashtags, , ,
Middle East Respiratory Syndrome is viral respiratory illness first reported in Saudi Arabia in 2012.…
#MRKHDisease Hashtags, , , ,
Mayer-Rokitansky-Küster-Hauser Syndrome is a congenital malformation characterized by a failure of t…
#MultipleEndocrineNeoplasiaDisease Hashtags, , ,
Multiple Endocrine Neoplasia is a group of disorders that affect the body's network of hormone-produc…

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