Rare Disease Hashtags

Hashtag Type Topics and Description
#2014GGSummitHealthcare ConferencesGlobal Genes Patient Advocacy Summit
11th September 2014 – 13th September 2014
,
Global Genes - Allies in Rare Disease: 2014 Rare Disease Patient Advocacy Summit will offer practical advice, case studies, and networking opportunit…
#AtaxiaDisease Hashtags,
Ataxia describes a lack of muscle coordination during voluntary movements, such as walking or pickin…
#BattenDiseaseDisease Hashtags, ,
Batten Disease is a neurodegenerative genetic condition characterized by progressive mental and motor…
#ChiariDisease Hashtags, ,
Chiari Malformation is a condition in which brain tissue protrudes into the spinal canal as a result …
#CoRDSchatHealthcare Tweet Chats, , , , ,
CoRDSchat is a live Twitter-driven event which takes place the last Friday of every month (Noon CST) CoRDSchat was founded by Liz Donohue, Director of…
#CowdensSyndromeDisease Hashtags, , , , , , ,
Cowden's Syndrome, also known as Multiple Hamartoma Syndrome,#Cryoglobulinemia
Disease Hashtags, , , , ,
Cryoglobulinemia is the presence of abnormal proteins in the blood. These abnormal proteins become th…
#CryoGroupDisease Hashtags, Regular, , , , , ,
Cryoglobulinemia is the presence of abnormal proteins in the blood. These abnormal proteins become th…
#EDSDisease Hashtags, , , , ,
Ehlers-Danlos Syndrome is a group of inherited disorders marked by extremely loose joints, hyperelast…
#FMDDisease Hashtags,
Fibromuscular Dysplasia is the abnormal development or growth of cells in the walls of arteries that …
#FOGM14Healthcare ConferencesThe Future of Genomic Medicine VII
6th March 2014 – 7th March 2014
, , , , , ,
The 7th Future of Genomic Medicine conference will be the next iteration of taking genomic knowledge to transform the daily practice of medicine. This…
#GPFAD2013Disease Hashtags, , , ,
Pulmonary Fibrosis is the formation or development of excess fibrous connective tissue (fibrosis) in …
#MERSDisease Hashtags, , ,
Middle East Respiratory Syndrome is viral respiratory illness first reported in Saudi Arabia in 2012.…
#MyositisDisease Hashtags, ,
Myositis is the inflammation of the skeletal muscles.
#PedInno14Healthcare ConferencesBoston Children's Hospital's Global Pediatric Innovation Summit + Awards 2014
30th October 2014 – 31st October 2014
, , , , , , ,
Taking a worldwide perspective, #PedInno14 is designed to address unmet needs, solve problems and seize opportunities in pediatric health care. Join a…
#ProgeriaDisease Hashtags,
Progeria is a rare condition that is remarkable because its symptoms strongly resemble normal human a…
#PulmonaryFibrosisDisease Hashtags, , , ,
Pulmonary Fibrosis is the formation or development of excess fibrous connective tissue (fibrosis) in …
#rareACTIONRegular, ,
#RareDiseaseDisease Hashtags
A Rare Disease, also referred to as an orphan disease, is any disease that affects a small percentage…
#RareDiseaseDayDisease Hashtags
A Rare Disease, also referred to as an orphan disease, is any disease that affects a small percentage…
#rarePOVHealthcare Tweet Chats
#RarePOV was created for an inaugural Tweetchat on rare disease in October 2013. A discussion question will be posed every Monday. The next Tweetchat …
#RARESummitHealthcare Conferences, ,
#RAREVoiceHealthcare ConferencesRAREVoice Awards
14th November 2012
, , , ,
Rare Disease Legislative RAREVoice Awards: recognizing the generous contributions of advocates, driving legislative processes for rare disease legisla…
#RettSyndromeDisease Hashtags,
Rett Syndrome is a disorder of the nervous system that leads to developmental reversals, especially i…
#SanfordRDDHealthcare Conferences3rd Annual Sanford Rare Disease Symposium
28th February 2013 – 1st March 2013
, , ,
3rd Annual Sanford Rare Disease Symposium in honor of Global Rare Disease Day. Feb. 28 - Mar. 1, 2013. The Sanford Rare Disease Symposium features sci…

Digital Scholar Initiative - University of Southern California
Mayo Clinic Transform Symposium 2014