#AlzChat Transcript
Healthcare social media transcript of the #AlzChat hashtag.
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See #AlzChat Influencers/Analytics.
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Hilgos Foundation @IRememberBetter It's time for #AlzChat Topic today: Benefits of online dementia chats and forums @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner @bethyb1886 @UnicornSpark @derekfi77174766 @Mycarematters @artsaging @KellyBMSunshine | |
nursesKidONE @nursesKidONE RT @IRememberBetter: It's time for #AlzChat Topic today: It's time for #AlzChat Topic today: Benefits of online dementia chats and forums @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner @bethyb1886 @UnicornSpark @derekfi77174766 @Mycarematters @artsaging @KellyBMSunshine | |
nursesKidONE @nursesKidONE RT @creativitycare: Hi all and welcome to #AlzChat Topic Today: | |
Hilgos Foundation @IRememberBetter #alzchat RT @derekfi77174766 Online chats are non judgemental and you have freedom of speech. Most importantly, you get peer support. | |
Dennis Fortier @BrainToday So much misinformation in this space, online chats can be great clearing grounds for well-vetted advice. #AlzChat | |
Hilgos Foundation @IRememberBetter #AlzChat RT @derekfi77174766 You learn so much from others and you can share personal experiences. | |
nursesKidONE @nursesKidONE RT @BrainToday: So much misinformation in this space, online chats can be great clearing grounds for well-vetted advice. #AlzChat | |
nursesKidONE @nursesKidONE RT @IRememberBetter: #alzchat RT @derekfi77174766 Online chats are non judgemental and you have freedom of speech. Most importantly, you get peer support. | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
Hilgos Foundation @IRememberBetter #AlzChat RT @derekfi77174766 Friendships are formed online. I’ve made so many friends this way and I’ve met up with a few of them. | |
Dennis Fortier @BrainToday Somewhere between commercial hype promoting false hope about miracle treatments and the nihilistic rebuttals of the academic community, lies the realistic voice of the caregiver in an online forum #AlzChat | |
Hilgos Foundation @IRememberBetter RT @creativitycare: Hi all and welcome to #AlzChat Topic Today: | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
Hilgos Foundation @IRememberBetter RT @helenfindlay: | |
Hilgos Foundation @IRememberBetter RT @BrainToday: Somewhere between commercial hype promoting false hope about miracle treatments and the nihilistic rebuttals of the academic community, lies the realistic voice of the caregiver in an online forum #AlzChat | |
Karrie Marshall @KarrieMarshall Like saying it plain and straight.. living and breathing it.. and sharing what matters and what works and knowing it's different for each person. #AlzChat | |
Hilgos Foundation @IRememberBetter #AlzChat | |
Caroline @journeyofcareM @IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner @bethyb1886 @UnicornSpark @derekfi77174766 @Mycarematters @artsaging @KellyBMSunshine The benefits are many. There is the companionship with people who know from experience what life is either like with dementia, or as a caregiver. Lots of good advice, interesting topics for discussion and bonhomie. A sense of community. #AlzChat | |
Hilgos Foundation @IRememberBetter RT @KarrieMarshall: Like saying it plain and straight.. living and breathing it.. and sharing what matters and what works and knowing it's different for each person. #AlzChat | |
Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @IRememberBetter: #AlzChat RT @derekfi77174766 You learn so much from others and you can share personal experiences. | |
nursesKidONE @nursesKidONE RT @IRememberBetter: #AlzChat RT @derekfi77174766 Friendships are formed online. I’ve made so many friends this way and I’ve met up with a few of them. | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
Health Policy Bot @HealthPolicyBot RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @BrainToday: Somewhere between commercial hype promoting false hope about miracle treatments and the nihilistic rebuttals of the academic community, lies the realistic voice of the caregiver in an online forum #AlzChat | |
nursesKidONE @nursesKidONE RT @helenfindlay: | |
Hilgos Foundation @IRememberBetter RT @journeyofcareM: @IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner @bethyb1886 @UnicornSpark @derekfi77174766 @Mycarematters @artsaging @KellyBMSunshine The benefits are many. There is the companionship with people who know from experience what life is either like with dementia, or as a caregiver. Lots of good advice, interesting topics for discussion and bonhomie. A sense of community. #AlzChat | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @KarrieMarshall: Like saying it plain and straight.. living and breathing it.. and sharing what matters and what works and knowing it's different for each person. #AlzChat | |
Hilgos Foundation @IRememberBetter RT @BrainToday: So much misinformation in this space, online chats can be great clearing grounds for well-vetted advice. #AlzChat | |
Dennis Fortier @BrainToday Great strength can come from the mere knowledge that you are not alone; that others are fighting the same battles and can relate to your challenges... #AlzChat | |
nursesKidONE @nursesKidONE RT @journeyofcareM: @IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner @bethyb1886 @UnicornSpark @derekfi77174766 @Mycarematters @artsaging @KellyBMSunshine The benefits are many. There is the companionship with people who know from experience what life is either like with dementia, or as a caregiver. Lots of good advice, interesting topics for discussion and bonhomie. A sense of community. #AlzChat | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
Dennis Fortier @BrainToday Goes without saying but, during a pandemic, an online community might be the only one you can access for support... #AlzChat | |
Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: | |
Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: | |
Dennis Fortier @BrainToday Online forums are where academic studies and medical jargon get translated into plain language solutions to everyday challenges for caregivers and PLWDs... #AlzChat | |
nursesKidONE @nursesKidONE Participants from a variety of countries/states. Much can be learned from comparing experiences in healthcare & long term care systems that have significant differences and similar challenges for people with dementias, their care partners & health/social care providers.#AlzChat | |
Hilgos Foundation @IRememberBetter RT @BrainToday: Goes without saying but, during a pandemic, an online community might be the only one you can access for support... #AlzChat | |
Jemi Fraser 🇨🇦 @jemifraser For me, online forums bring - a variety of perspectives - experience - an outside viewpoint - shoulders to lean on - a safe place to ask questions - people who understand - people ready to listen & help - fresh ideas - support - so many good things!! #AlzChat | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
Hilgos Foundation @IRememberBetter RT @BrainToday: Great strength can come from the mere knowledge that you are not alone; that others are fighting the same battles and can relate to your challenges... #AlzChat | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
Hilgos Foundation @IRememberBetter RT @jemifraser: For me, online forums bring - a variety of perspectives - experience - an outside viewpoint - shoulders to lean on - a safe place to ask questions - people who understand - people ready to listen & help - fresh ideas - support - so many good things!! #AlzChat | |
nursesKidONE @nursesKidONE RT @Shedfieldlodge: | |
Hilgos Foundation @IRememberBetter RT @nursesKidONE: Participants from a variety of countries/states. Much can be learned from comparing experiences in healthcare & long term care systems that have significant differences and similar challenges for people with dementias, their care partners & health/social care providers.#AlzChat | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
Hilgos Foundation @IRememberBetter RT @BrainToday: Online forums are where academic studies and medical jargon get translated into plain language solutions to everyday challenges for caregivers and PLWDs... #AlzChat | |
nursesKidONE @nursesKidONE RT @BrainToday: Goes without saying but, during a pandemic, an online community might be the only one you can access for support... #AlzChat | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @Shedfieldlodge: | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
Dennis Fortier @BrainToday RT @jemifraser: For me, online forums bring - a variety of perspectives - experience - an outside viewpoint - shoulders to lean on - a safe place to ask questions - people who understand - people ready to listen & help - fresh ideas - support - so many good things!! #AlzChat | |
Dennis Fortier @BrainToday compelling list... #AlzChat | |
Karrie Marshall @KarrieMarshall 'The Art of Caring for Self and Others' is a 12-week online programme developed with carers over the past 20 years that changes shape to suit the participants. More information from karrie@laughinggeese.com #AlzChat | |
Hilgos Foundation @IRememberBetter RT @KarrieMarshall: 'The Art of Caring for Self and Others' is a 12-week online programme developed with carers over the past 20 years that changes shape to suit the participants. More information from karrie@laughinggeese.com #AlzChat | |
S Olson, B.S, J.D. @ThatVDOVault @DiverseAlz | |
Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
Hilgos Foundation @IRememberBetter RT @BrainToday: compelling list... #AlzChat | |
Jemi Fraser 🇨🇦 @jemifraser @creativitycare Yes! The forums help us shrink the world & our differences to find a core of strength, support & friendship #AlzChat | |
Dennis Fortier @BrainToday Online forums are great at highlighting questions that all caregivers should ask of the MDs in charge of their loved one's care. This is a role where many caregivers feel overwhelmed and a little guidance can yield great benefits for all involved. #AlzChat | |
nursesKidONE @nursesKidONE Major media coverage of care/nursing homes usually focuses on negatives. It is helpful to have providers participate in chats who share how they implement appropriate care/support standards, emergency preparedness, staff support, to highlight what is possible to achieve.#alzchat | |
Karrie Marshall @KarrieMarshall Yes, UK could benefit from more community-led-action that offers practical, on-the-ground, joined-up resources that I saw in rural areas of Japan, where stigma had significantly reduced and community support increased for fellow humans. #AlzChat @creativitycare @IRememberBetter | |
Hilgos Foundation @IRememberBetter RT @nursesKidONE: Major media coverage of care/nursing homes usually focuses on negatives. It is helpful to have providers participate in chats who share how they implement appropriate care/support standards, emergency preparedness, staff support, to highlight what is possible to achieve.#alzchat | |
Hilgos Foundation @IRememberBetter RT @BrainToday: Online forums are great at highlighting questions that all caregivers should ask of the MDs in charge of their loved one's care. This is a role where many caregivers feel overwhelmed and a little guidance can yield great benefits for all involved. #AlzChat | |
nursesKidONE @nursesKidONE RT @BrainToday: Online forums are where academic studies and medical jargon get translated into plain language solutions to everyday challenges for caregivers and PLWDs... #AlzChat | |
Hilgos Foundation @IRememberBetter RT @jemifraser: @creativitycare Yes! The forums help us shrink the world & our differences to find a core of strength, support & friendship #AlzChat | |
Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @jemifraser: For me, online forums bring - a variety of perspectives - experience - an outside viewpoint - shoulders to lean on - a safe place to ask questions - people who understand - people ready to listen & help - fresh ideas - support - so many good things!! #AlzChat | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @KarrieMarshall: 'The Art of Caring for Self and Others' is a 12-week online programme developed with carers over the past 20 years that changes shape to suit the participants. More information from karrie@laughinggeese.com #AlzChat | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @BrainToday: Online forums are great at highlighting questions that all caregivers should ask of the MDs in charge of their loved one's care. This is a role where many caregivers feel overwhelmed and a little guidance can yield great benefits for all involved. #AlzChat | |
Karrie Marshall @KarrieMarshall yes, a great place to practice what to ask for, or how to express needs more clearly. #AlzChat #AskAskAsk | |
nursesKidONE @nursesKidONE RT @KarrieMarshall: yes, a great place to practice what to ask for, or how to express needs more clearly. #AlzChat #AskAskAsk | |
Dennis Fortier @BrainToday Online forums w/diverse participants can be eye-opening about how care is provided (especially to elders) in different cultures. Some are significantly more compassionate than others. #AlzChat | |
Dennis Fortier @BrainToday RT @KarrieMarshall: yes, a great place to practice what to ask for, or how to express needs more clearly. #AlzChat #AskAskAsk | |
Jemi Fraser 🇨🇦 @jemifraser @derekfi77174766 @IRememberBetter @creativitycare Exactly! #AlzChat | |
Hilgos Foundation @IRememberBetter #AlzChat | |
Hilgos Foundation @IRememberBetter RT @creativitycare: | |
Hilgos Foundation @IRememberBetter RT @KarrieMarshall: Yes, UK could benefit from more community-led-action that offers practical, on-the-ground, joined-up resources that I saw in rural areas of Japan, where stigma had significantly reduced and community support increased for fellow humans. #AlzChat @creativitycare @IRememberBetter | |
Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: | |
Hilgos Foundation @IRememberBetter RT @DementiaFink: | |
Hilgos Foundation @IRememberBetter RT @BrainToday: Online forums w/diverse participants can be eye-opening about how care is provided (especially to elders) in different cultures. Some are significantly more compassionate than others. #AlzChat | |
Hilgos Foundation @IRememberBetter RT @KarrieMarshall: yes, a great place to practice what to ask for, or how to express needs more clearly. #AlzChat #AskAskAsk | |
nursesKidONE @nursesKidONE Information shared in online chats & forums can lead to greater accountability of governments & organizations for their actions affecting people living with dementias, families, care partners, & communities. #AlzChat | |
Dennis Fortier @BrainToday yep... spot on! | |
nursesKidONE @nursesKidONE @Shedfieldlodge #alzchat & #diversealz have excellent chat hosts and discussion moderators! | |
Karrie Marshall @KarrieMarshall May that be so #AlzChat | |
nursesKidONE @nursesKidONE RT @DementiaFink: | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
nursesKidONE @nursesKidONE RT @creativitycare: Thanks @DementiaFink yes.. that;s a great comparison. They were next on our list of useful online forums: | |
nursesKidONE @nursesKidONE RT @creativitycare: | |
Karrie Marshall @KarrieMarshall RT @helenfindlay: | |
nursesKidONE @nursesKidONE RT @KarrieMarshall: May that be so #AlzChat | |
Hilgos Foundation @IRememberBetter #AlzChat soon winding down for today. Thanks to all for joining / listening in. See you next Monday 3pmEST/8pmUK @creativitycare | |
nursesKidONE @nursesKidONE RT @IRememberBetter: #AlzChat soon winding down for today. Thanks to all for joining / listening in. See you next Monday 3pmEST/8pmUK @creativitycare | |
Hilgos Foundation @IRememberBetter RT @creativitycare: Thanks @DementiaFink yes.. that;s a great comparison. They were next on our list of useful online forums: | |
Hilgos Foundation @IRememberBetter RT @Shedfieldlodge: | |
Hilgos Foundation @IRememberBetter RT @KarrieMarshall: May that be so #AlzChat | |
Hilgos Foundation @IRememberBetter @Shedfieldlodge @nursesKidONE thanks to this amazing community @creativitycare #AlzChat | |
nursesKidONE @nursesKidONE RT @IRememberBetter: @Shedfieldlodge @nursesKidONE thanks to this amazing community @creativitycare #AlzChat | |
Caroline @journeyofcareM @Shedfieldlodge @IRememberBetter @nursesKidONE I admit that care homes have been a bone of contention for me but @Shedfieldlodge has shown that there are exceptions. Their care is exemplary & they should be a benchmark for all care homes. They also give different & educational perspectives from their experience.#AlzChat | |
nursesKidONE @nursesKidONE RT @journeyofcareM: @Shedfieldlodge @IRememberBetter @nursesKidONE I admit that care homes have been a bone of contention for me but @Shedfieldlodge has shown that there are exceptions. Their care is exemplary & they should be a benchmark for all care homes. They also give different & educational perspectives from their experience.#AlzChat | |
nursesKidONE @nursesKidONE @journeyofcareM @Shedfieldlodge @IRememberBetter I think we have to look at some of the initiatives for reform, such as this one in the US: #alzchat @ThatVDOVault | |
Mary Margaret @AlzJoyThruTears #AlzChat I can’t believe I missed #AlzChat, today! I planned my tweet early this morning, then, slept all afternoon. Great, timely topic. 💜 | |
Mary Margaret @AlzJoyThruTears RT @creativitycare: | |
Mary Margaret @AlzJoyThruTears #AlzChat The benefits ARE many…most important is the leadership and the leadership of #AlzChat is SUPERIOR…educated, caring, compassionate, accepting, validating…the BEST. BOUQUETS @creativitycare and @IRememberBetter! 🎊💕💐 | |
Mary Margaret @AlzJoyThruTears RT @jemifraser: For me, online forums bring - a variety of perspectives - experience - an outside viewpoint - shoulders to lean on - a safe place to ask questions - people who understand - people ready to listen & help - fresh ideas - support - so many good things!! #AlzChat | |
Mary Margaret @AlzJoyThruTears RT @creativitycare: | |
Mary Margaret @AlzJoyThruTears #AlzChat I have been in in-person caregiver groups where there appears to be competition as to who is most this or that. #AlzChat is so accepting of everyone and everything. There is no doubt what is a perfect response for one person may not befor another, but kindness prevails. | |
Senior discovery @SeniorTypes RT @jemifraser: For me, online forums bring - a variety of perspectives - experience - an outside viewpoint - shoulders to lean on - a safe place to ask questions - people who understand - people ready to listen & help - fresh ideas - support - so many good things!! #AlzChat | |
Agnes Houston MBE @agnes_houston RT @BrainToday: Great strength can come from the mere knowledge that you are not alone; that others are fighting the same battles and can relate to your challenges... #AlzChat | |
Beth Britton @bethyb1886 RT @helenfindlay: | |
Beth Britton @bethyb1886 RT @journeyofcareM: @IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner @bethyb1886 @UnicornSpark @derekfi77174766 @Mycarematters @artsaging @KellyBMSunshine The benefits are many. There is the companionship with people who know from experience what life is either like with dementia, or as a caregiver. Lots of good advice, interesting topics for discussion and bonhomie. A sense of community. #AlzChat | |
Dawn H @DawnDonja ❤#UnpaidCarers ❤#family | |
Hilgos Foundation @IRememberBetter RT @AlzJoyThruTears: #AlzChat I have been in in-person caregiver groups where there appears to be competition as to who is most this or that. #AlzChat is so accepting of everyone and everything. There is no doubt what is a perfect response for one person may not befor another, but kindness prevails. | |
Shhhhh @Shhhhh85981591 Extended Interview with Alzheimer's Patient, Don Hayen https://t.co/n32maVZ5nH via @YouTube @AlzResearchUK @AlzheimersGuide @Alzheimers_NIH My dad did this to help you please watch my longest best friend ever. #ItsOkayToNotBeOkay #bravedadssavekids #AlzheimersDisease #AlzChat | |
nursesKidONE @nursesKidONE RT @AlzJoyThruTears: #AlzChat I have been in in-person caregiver groups where there appears to be competition as to who is most this or that. #AlzChat is so accepting of everyone and everything. There is no doubt what is a perfect response for one person may not befor another, but kindness prevails. | |
nursesKidONE @nursesKidONE RT @DementiaFink: | |
Senior discovery @SeniorTypes RT @journeyofcareM: @IRememberBetter @creativitycare @nursesKidONE @AlzJoyThruTears @SrCareCorner @bethyb1886 @UnicornSpark @derekfi77174766 @Mycarematters @artsaging @KellyBMSunshine The benefits are many. There is the companionship with people who know from experience what life is either like with dementia, or as a caregiver. Lots of good advice, interesting topics for discussion and bonhomie. A sense of community. #AlzChat | |
Alex Holland, LMSW @AlexHolland714 #Cades #PST #DSJ #AlzheimersDisease #AlzChat | |
nursesKidONE @nursesKidONE “As of 15 July 2021, the U.S. population immunity against COVID-19 may still have been insufficient to contain the outbreaks and safely revert to prepandemic social behavior.” #alzchat #diversealz |
#AlzChat content from Twitter.