#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Michael Fisch MD MPH @fischmd Good evening! It is nice to be with this inspiring group. This is my first tweet chat. #rookie #bcsm |
 | Aileen Graef @AileenGraef Evening, evryone. Not a cancer patient but my mom was and experienced the hospice/palliative care with her #bcsm |
 | Anne Marie Mercurio @chemobrainfog @colleen_young **waving to you** #bcsm |
 | Jody Schoger @jodyms Hi everyone, I'm Jody Schoger - welcome to our weekly chat. I'm co-moderating along with @drattai and @stales. #bcsm |
 | kathy kastner @KathyKastner Good evening @jodyms @ctsinclair @fischmd : how could I resist a chat with #hpm in it?#bcsm |
| Jody Schoger @jodyms I'm going to make a few announcements before we start officially:) #bcsm |
 | M-anyway @ReadEatWriteRun This is fantastic. MT @jodyms: hat cancer is really like:The Back Story http://t.co/4rty8cdt via @NancysPoint (is author on Twitter?) #bcsm |
| Anne Marie Mercurio @chemobrainfog @fischmd Welcome! #bcsm |
| Jody Schoger @jodyms We usually take a few minutes to introduce ourselves. While you're doing that I want to make a special welcome to our guests... #bcsm |
| Michael Fisch MD MPH @fischmd @chemobrainfog Big smile. Thank you! #bcsm |
| Oncology Education @mdanderson_poe Good evening. This is my first #bcsm tweet chat. Not a cancer patient, but have many loved one's who have been through palliative care. | |
| Jody Schoger @jodyms Two wonderful physicians @fischmd, an oncologist at MDAnderson w/specialties in palliative medicine & survivorship and #bcsm |
 | Christian Sinclair, MD, FAAHPM @ctsinclair Good evening all #BCSM |
| @ThisKatieNow Hey all! Can't stay around tonight, but wanted to say howdy. Enjoy the chatty chat and I'll look for the transcript tomorrow. PEACE #bcsm | |
 | Beth White Thompson @QuiverVoice Thanks all, glad you liked it and hello #bcsm chat tonight! @ReadEatWriteRun @jodyms @NancysPoint |
 | Susan Zager❣️ @a4breastcancer Hi Donna, AnneMarie, Jody..... Just got off flights Dr Attai..AliciaHi Everyone #bcsm |
 | Oliver Bogler @obogler Hi everyone - cool to have Dr. Fisch on tonight - a colleague and friend of mine at MD Anderson #bcsm |
| Jody Schoger @jodyms @CTSinclair, a palliative medicine physicians & advocate, editor of @pallimed & #HPM co-founder. We're lucky to have them tonight. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Hello everyone, glad to be invited to join this very active tweetchat. Have been listening in the last few weeks. #BCSM |
| Jody Schoger @jodyms Welcome @drattai @fischMD @ctsinclair @colleen_young - and welcome all:) #bcsm |
 | Alicia C. Staley @stales Hi everyone! #bcsm |
| kathy kastner @KathyKastner intro: developed BestEndings .com result of learning from #hpm and @ctsinclair #bcsm |
| Alicia C. Staley @stales Welcome to tonight's chat! Looking forward to tonight's chat! #bcsm |
 | Fighting Fancy @fightingfancy know any ladies going through chemo under 40 who need a Fighting Fancy bag? Mailing them out daily! RT and help me spread the word! #bcsm |
 | Colleen Young @colleen_young Hi Colleen here, community manager and moderator for @VirtualHospice. #bcsm |
 | Lela Chapman @chapmanderojas Hanging out at #BCSM chat this evening for first time. Beloved family member currently undergoing chemo for breast cancer. |
| Christian Sinclair, MD, FAAHPM @ctsinclair @DrAttai @jodyms @stales Thank you very much for the invite. I love to connect with other health care tweetchat groups. #BCSM |
 | Ann Wax @annwax Hi to everyone. Glad to make the chat tonite. Nurse, author, consultant speaker on health and wellness. #bcsm |
| Jody Schoger @jodyms Tonight's topic -- palliative care & hospice - has been on my mind for a long time. The mopre we know, the less fearful we are. #bcsm |
 | CJ CorneliussenJames @CJMeta Hi! Hope everyone had a wonderful Thanksgiving! I'm CJ .. Pres of METAvivor & living 6 yrs with MBC to lung. #bcsm |
 | AdvancedCancerAZ @advancedcancera Advanced #Holistic & Medical treatments in #Scottsdale AZ 480-240-2600; Breast Cancer Cause and Consequences >> http://t.co/tGbHBya3 #BCSM |
 | AdvancedMedAZ @advancedmedaz Advanced #Holistic & Medical treatments in #Scottsdale AZ 480-240-2600; Breast Cancer Cause and Consequences >> http://t.co/IUAOaTi0 #BCSM |
| Jody Schoger @jodyms My mother died of cancer when I was 32; she had beautiful care. I have a special place in my heart for professionals in this field. #bcsm |
 | Canadian Virtual Hospice @VirtualHospice Tonight #bcsm is talking palliative and hospice care. We'll be participating for the next hour. @colleen_young tweeting. |
| Christian Sinclair, MD, FAAHPM @ctsinclair Great to see some familiar faces from #hpm chats here. Looking forward to making some new friends tonight and learn from each other #BCSM |
| Alicia C. Staley @stales @xeni HA HA. Love that disclaimer #bcsm |
| CJ CorneliussenJames @CJMeta RT @jodyms: Tonights topic -- palliative care/hospice. The more we know, the less fearful we are. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @xeni I love your disclaimer for flooding your tweetstream. #BCSM |
| Alicia C. Staley @stales RT @jodyms: Tonights topic -palliative care & hospice has been on my mind for a long time. The more we know, the less fearful we are #bcsm |
| Jody Schoger @jodyms I have two more announcements then I'll start the questions! 1) Please keep your RT volume down. This leaves room for more convo:) #bcsm |
| kathy kastner @KathyKastner RT @CJMeta: RT @jodyms: Tonights topic -- palliative care/hospice. The more we know, the less fearful we are. #bcsm |
 | BestEndings @mybestendings RT @CJMeta: RT @jodyms: Tonights topic -- palliative care/hospice. The more we know, the less fearful we are. #bcsm |
 | Nancy's Point @NancysPoint Good evening all. Nancy here. Writer, blogger, advocate, 2 1/2 yrs post bc dx. welcome to guests. #bcsm |
| Alicia C. Staley @stales Great to see so many people here tonight! #bcsm |
| Ann Wax @annwax @ChapmandeRojas You will meet amazing ppl in this #BCSm chat. Also you will gather a gr8t deal of information |
| Michael Fisch MD MPH @fischmd My Mom was diagnosed with #breastcancer when I was 11 yrs old, was treated and recurred on the other side #bcsm |
| CJ CorneliussenJames @CJMeta Homecared my father-in-law for his last yr - lung cancer. Hospice was a great help. #bcsm |
 | nancy @uvmer Hello to everyone. I'm a lurking #fearlessfriend. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair RT @jodyms: Tonights topic-palliative care & hospice - has been on my mind for long time. The more we know, the less fearful we are. #BCSM |
| Jody Schoger @jodyms 2) I'll pose questions to @fischmd and @ctsinclair then open up the forum for questions and sharing. How's that? #bcsm |
| CJ CorneliussenJames @CJMeta Helped my mom homecared my dad ... he died Alzheimers age 73. She had no help. It was pretty rough. Hospice wld've been such a help. #bcsm |
| Beth White Thompson @QuiverVoice ,@ReadEatWriteRun @jodyms @NancysPoint Yes #bcsm is a great group as I have recently had the privilege to learn! |
| Michael Fisch MD MPH @fischmd My Mom survived breast cancer and lived long enough to develop 2 additional cancers. I'm grateful.. #bcsm |
| Anne Marie Mercurio @chemobrainfog I just held my best friend's hand. Her dad died last week. In home hospice was incredible. #bcsm |
| BestEndings @mybestendings RT @DrAttai: Hospice / palliative care is such an important topic - and not well understood by patients and physicians #bcsm |
| Jody Schoger @jodyms @fischmd @ctsinclair Q1: Let's start with clear distinctions between palliative care and hospice. Many lump these together. #bcsm |
 | Jane Houston Jones @jhjones Following http://t.co/ot5YuZNH Breast Cancer Social Media 6-7 Pacific, 9-10 Eastern right now.Subject Palliative Care tonight #BCSM |
 | Dr. Steven Eisenberg @drseisenberg Dr. E, breast cancer medical oncologist and co-songwriter with breast cancer patients. #bcsm |
| Alicia C. Staley @stales RT @jodyms: 2) Ill pose questions to @fischmd and @ctsinclair then open up the forum for questions and sharing. Hows that? #bcsm |
| Alicia C. Staley @stales Welcome to all the #fearlessfriends tonight. #bcsm |
| Michael Fisch MD MPH @fischmd T1: #HPM features: comprehensive, interdisciplinary, pts & families, context is serious illness, goal is prevent/relieve suffering #bcsm |
| CJ CorneliussenJames @CJMeta RT @jodyms: @fischmd @ctsinclair Q1: Lets start with clear distinctions between palliative care and hospice. Many lump these together. #bcsm |
| nancy @uvmer @DrAttai (: #bcsm |
 | JoAnn Baldwin-Glenn @JBaldwinGlenn Hi All; Newby to Twitter. 2nd #BCSM tweetchat. Stage 1A bc diagnosis 12/16/11. Grndfther had wonderful hospice care 25 yrs ago. #BCSM |
 | Social✽Fly @socflyny Hi All -- not home so will try my best via mobile. Hugs! #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair T1: I like to tell it as an origins story. Palliative care has really sprung from the hospice movement... #BCSM |
| Jody Schoger @jodyms My tweetchat is moving particularly slow this evening. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair ...to take the patient/family centered approach to symptom control, instead of disease focus. But with less focus on the prognostics #BCSM |
| Jody Schoger @jodyms RT @ctsinclair: T1: I like to tell it as an origins story. Palliative care has really sprung from the hospice movement... #bcsm |
 | 𝗅𝖾𝖾𝗂𝖺 ( leeia_randall on threads) @hey_leia I went through the hospice experience when my dad died in 2007 (cholangiocarcinoma) - I'm an only child and very grateful for hopsice #bcsm |
| Dr. Steven Eisenberg @drseisenberg Hospice peeps are the best on the planet! #bcsm |
| CJ CorneliussenJames @CJMeta Definitions pls. #bcsm |
| Jody Schoger @jodyms @ctsinclair @fischmd a patient/family centered approach with less focus on prognostics. I like that! #bcsm |
| Alicia C. Staley @stales RT @jodyms @fischmd @ctsinclair Q1: Let's start with clear distinctions between palliative care and hospice. Many lump these together #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Hospice and palliative care share a lot of themes: as @fischmd noted. Big difference is the hospice benefit is defined by prognosis. #BCSM |
| BestEndings @mybestendings RT @jodyms: @ctsinclair @fischmd a patient/family centered approach with less focus on prognostics. I like that! #bcsm |
| Michael Fisch MD MPH @fischmd T1: Good info about #HPM from NCI & ASCO (definitions, podcasts, clinical opinions) http://t.co/aNpleZWM http://t.co/kfSLok1b #bcsm |
| Nancy's Point @NancysPoint @danceswithpens hi donna. great to see you here. #bcsm |
| Ann Wax @annwax @ctsinclair When I first started oncology nursing Hospice and palliative care were only at talking stages re cancer. #bcsm |
| Jody Schoger @jodyms @CJMeta which part, CJ? They are defining what palliative care is now. #bcsm |
 | Timothy Craig Allen, MD, JD, FCAP @TimAllenMDJD RT @obogler: RT @DrAttai: 30 minutes until #BCSM - tonights chat - @fischmd & @ctsinclair on palliative care/hospice cc: @jodyms @st ... |
| CJ CorneliussenJames @CJMeta @jodyms Txs! ... was lost. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @CJMeta Palliative Care - is relieving the symptoms of a disease or disorder through a whole person approach not just disease focused #BCSM |
| Alicia C. Staley @stales RT @ctsinclair: Hospice & palliative care share themes: as @fischmd noted. Big difference is hospice benefit is defined by prognosis. #bcsm |
 | Scott Merville @smerv RT @obogler: RT @DrAttai: 30 minutes until #BCSM - tonights chat - @fischmd & @ctsinclair on palliative care/hospice cc: @jodyms @st ... |
| Jody Schoger @jodyms RT @ctsinclair: Hospice & palliative care share a lot of themes: as @fischmd noted. Big dif: hospice benefit is defined by prognosis. #bcsm |
| Alicia C. Staley @stales RT @fischmd: T1: Good info about #HPM from NCI & ASCO (defs, podcasts, clinical opinions) http://t.co/ooVGAf5G http://t.co/Kqh7cmc9 #bcsm |
| Jody Schoger @jodyms Everyone - please remember to keep your RT's down for now so we can see the answers to the questions. #bcsm |
| Michael Fisch MD MPH @fischmd T1: Great answers to common questions about #palliative care and #hospice http://t.co/oh5yGCLl #bcsm |
| Jody Schoger @jodyms RT @fischmd: T1: Great answers to common questions about #palliative care and #hospice http://t.co/pq15z9k6 #bcsm |
| Ann Wax @annwax @stales @ctsinclair @fischmd palliative care can be something as just checking on a homebound pt, just see if they r eating right. #bcsm |
 | TalkAboutHealth @talkabouthealth Excited about #hpm chat tonight on #bcsm! Murray here :) TY to @fischmd & @ctsinclair for sharing. |
 | MD Anderson Cancer Center @MDAndersonNews RT @fischmd: T1: Great answers to common questions about #palliative care and #hospice http://t.co/hfIpO8vW #bcsm |
| Canadian Virtual Hospice @VirtualHospice On our forum member explained, Palliative care is where you get to give info about yourself, not only ask for info about the disease. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Palliative care is for anyone diagnosed w/ a serious illness. "At any age, at any stage a PC team can help your quality of life" #BCSM |
| Jody Schoger @jodyms @fischmd T1a: from the links, what part do you like to emphasize with patients? Or someone new to the concept? #bcsm |
| Alicia C. Staley @stales RT @fischmd: T1: Great answers to common questions about #palliative care and #hospice http://t.co/MB6yds3I #bcsm |
 | Erica Griffin @SurvivorRunner #bcsm Here and lurking tonight:) Kind of nervous about the topic. |
| Alicia C. Staley @stales RT @jodyms: Everyone - please remember to keep your RTs down for now so we can see the answers to the questions. #bcsm |
 | David Kroll @davidkroll RT @jodyms: Everyone - please remember to keep your RT's down for now so we can see the answers to the questions. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @annwax We have come a long way. #BCSM |
| Jody Schoger @jodyms @fischMD @ctsinclair T1a: my sense is that few of us are familiar w/palliative services or how to obtain them. #bcsm |
| Canadian Virtual Hospice @VirtualHospice What is palliative care? http://t.co/Tuj42G9r #bcsm |
| Michael Fisch MD MPH @fischmd @jodyms I emphasize that #HPM is centered on the person and family. To understand the person is key to relief of suffering #bcsm |
| nancy @uvmer First heard the words palliative care in the very dire stages of partner's brain cancer...horrifying words to me. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @SurvivorRunner If anything we say makes you run the other way, DM me later and I'll make sure to clear up any confusion. #BCSM |
| Jody Schoger @jodyms @SurvivorRunner That's why we are talking about it. Just learning a little bit helps, I've found. #bcsm |
| Jody Schoger @jodyms RT @VirtualHospice: What is palliative care? http://t.co/SMoiMdoz #bcsm |
| Ann Wax @annwax @DrAttai Anyone can participate in comfort. I try to stress this with my patient's friends and family. Many feel they mst do something #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair T1a: Most access to palliative care is in the hospital with a PC team. But they are starting to move into clinics and outpatient #BCSM |
| kathy kastner @KathyKastner RT @jodyms: @SurvivorRunner That's why we are talking about it. Just learning a little bit helps, I've found. #bcsm |
| Social✽Fly @socflyny Q1 the difference between the two has never been clear. #bcsm |
| Erica Griffin @SurvivorRunner @jodyms I agree, just brings up fears that sometimes get buried I think. #bcsm |
| Ann Wax @annwax @ctsinclair We have come a long way. Hvr, more ppl are not aware of the benefits of hospice. #bcsm |
| Jody Schoger @jodyms T1: When I was in treatment the palliative care services were WAY off the beaten path...it was frightening to me then. No more. #bcsm |
 | Brenda Coffee @BCSisterhood Hello everyone. Brenda Coffee here. I will catchup with the conversation. So glad to see all of you. #BCSM |
| Canadian Virtual Hospice @VirtualHospice .@jodyms You're right there. Not only what is pall care, but when can I get it and where and how are common questions. #bcsm |
| Erica Griffin @SurvivorRunner @ctsinclair Thank you:) #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #BCSM |
 | Brandie185 @Brandie185 Evening all ... just jumping in now! #bcsm |
| Jody Schoger @jodyms @ctsinclair Q1b: are they readily identified as palliative care? I was wondering if wording varies. #bcsm |
| Alicia C. Staley @stales RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair T1a: But you will find most palliative care programs are attached/affiliated with hospice because of shared values and expertise. #BCSM |
| Ann Wax @annwax @BCSisterhood welcome! #bcsm |
 | Sandi @gmasandi1 @ctsinclair Hospice focuses on comfort when cure is not possible. Admission determined by Medicare guidelines #LCD #BCSM |
| Jody Schoger @jodyms RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice - obviously isn't tho, correct? #bcsm |
| kathy kastner @KathyKastner RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #BCSM |
| CJ CorneliussenJames @CJMeta Have been reading link. Hve trouble w concept. Have had mets six yrs. Def defines my treatment as palliative. Do u agree? #bcsm |
| Michael Fisch MD MPH @fischmd @DrAttai It is so important to integrate #palliative care early into course of serious illness...outpatient access is key #bcsm |
| Colleen Young @colleen_young Also important to note that palliative care is not necessarily end-of-life care. Can you elaborate @ctsinclair @fischmd #bcsm |
| Alicia C. Staley @stales RT @ctsinclair: T1a: you'll find most palliative care programs are attached/affiliated w/ hospice because of shared values & expertise #bcsm |
| Brenda Coffee @BCSisterhood @annwax Thanks:) #BCSM |
| Alicia C. Staley @stales RT @fischmd: @DrAttai It is so important to integrate #palliative care early into course of serious illness...outpatient access is key #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @jodyms T1b: Wording does vary 'Supportive Care' being the most common alternate name. http://t.co/lJx76Ms9 hasa good directory #BCSM |
| Brenda Coffee @BCSisterhood RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #BCSM |
| Canadian Virtual Hospice @VirtualHospice @ctsinclair In Canada we have home palliative care and home hospice care in many regions. Not so in US? #bcsm |
| Social✽Fly @socflyny @xeni love! Lol! #bcsm |
| Susan Zager❣️ @a4breastcancer I think friends and family misconceive because they both have to do with making the loved one as comfortable as possible #bcsm |
 | Mike D. Stellar Feed @mike_stellar RT @xeni: Non-cancer peeps: for the next hour, I'll be participating in the weekly Breast Cancer Social Media chat (#BCSM). Mute if you like. or STFU. |
| Nancy's Point @NancysPoint I wish I had understood the difference when my mom was ill a few years ago. #bcsm |
| Jody Schoger @jodyms Great comments frm @ctsinclair & @fischmd: if anything discussed is anxiety provoking ask add'l questions & get the answers u need. #bcsm |
 | Andrea Torres @miamicrime #bcsm (breast cancer social media) until 10 pm. Joining in a little late #scary subject |
| nancy @uvmer @colleen_young got the sense that palliative care and end of life care were pretty much the same...maybe stage we were in #bcsm |
| Ann Wax @annwax @gmasandi1 @ctsinclair Hvr, thr r some ppl that do get better on hospice and they get off hospice. #bcsm |
| TalkAboutHealth @talkabouthealth RT @fischmd: @DrAttai It is so important to integrate #palliative care early into course of serious illness...outpatient access is key #bcsm |
| Dr. Steven Eisenberg @drseisenberg RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #bcsm |
| Jody Schoger @jodyms RT @stales: RT @fischmd: @DrAttai It is so imp to integrate #palliative care early into course of serious illness..outpt access is key #bcsm |
| Michael Fisch MD MPH @fischmd @colleen_young #palliative care is an approach to care that is valid for all serious illness, and into long-term survivorship too #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Palliative Care teams in hospital can be called for in very complex situations like the ICU, but they can help upstream in care too. #BCSM |
 | Olumuyiwa Adeboye 🇳🇬🇬🇩🇧🇶🇦🇼🇺🇸 @moyecome RT @ctsinclair: T1a: Common misconception is palliative care is JUST another word for hospice (trying to dress it up, or deceive). #BCSM |
| Jody Schoger @jodyms Q1: From my experience w/a friend? Supportive services should begin long before the patient is in terrible pain. That is unnecessary. #bcsm |
| Alicia C. Staley @stales RT @fischmd: #palliative care is an approach to care that is valid for all serious illness, and into long-term survivorship too #bcsm |
 | Eileen Z. Fuentes, MA @EileenZFuentes Good Evening #BCSM'rs... joining in late but happy to be here now :) |
| Colleen Young @colleen_young @CJMeta That would be my understanding. You should be elligible for palliative care. #bcsm |
| Dr. Steven Eisenberg @drseisenberg RT @fischmd: palliative care is an approach to care that is valid for all serious illness, and into long-term survivorship too #bcsm |
| Brenda Coffee @BCSisterhood @colleen_young #palliative care is an approach to care that is valid for all serious illness, and into long-term survivorship too #BCSM |
| Jody Schoger @jodyms RT @fischmd: @colleen_young #palliative care is an approach that is valid for all serious illness & into long-term survivorship too #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @uvmer Palliative Care can handle EOL (end of life) situations and in hospitals this is often how they are used when starting up #BCSM |
| Alicia C. Staley @stales @miamicrime Yes - it's a scary topic for many of us. Good to learn about it tonight from the experts. #bcsm |
| Dr. Steven Eisenberg @drseisenberg It seems to me that every patient going through chemotherapy should have a palliative care team... #bcsm |
| Social✽Fly @socflyny @drseisenberg @ctsinclair #bcsm that's been my misconception too. |
| Ann Wax @annwax @jodyms In this day and age, a person should not be in pain. #bcsm |
| Jody Schoger @jodyms Q1: There are distinct differences; palliative services can be added at any time they are necessary in the course of survivorship. #bcsm |
| Oncology Education @mdanderson_poe @fischmd: how does one, MD Anderson for example, integrate #palliative care early into course of serious illness? #bcsm | |
| Christian Sinclair, MD, FAAHPM @ctsinclair Once a palliative care team is established they work hard to not just be the in-hospital EOL team. PC teams want to help earlier #BCSM |
| Brenda Coffee @BCSisterhood RT @drseisenberg: It seems to me that every patient going through chemotherapy should have a palliative care team... #BCSM |
| Sandi @gmasandi1 @annwax @ctsinclair True we do "graduate" some when they no longer meet the Hospice guidelines #BCSM |
| Colleen Young @colleen_young @uvmer My understanding is that palliative is symptom management, which may be at end of life, but also may not be end stage. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair RT @drseisenberg: It seems to me that every patient going through chemotherapy should have a palliative care team... "RTx1000" #BCSM |
| Jody Schoger @jodyms @annwax I agree. But it happens. #bcsm |
| Nancy's Point @NancysPoint @drseisenberg I agree. it should at least be discussed as an option. #bcsm |
| Andrea Torres @miamicrime @ctsinclair who are the members of a PC team? #bcsm |
 | alicia marini bloom @aliciabloom @colleen_young #palliative care has been shown to improve QoL & positively impact survival when provided concurrently with cancer tx #bcsm |
| Michael Fisch MD MPH @fischmd @stales I appreciate how difficult (and confusing) this topic can be...it is often discussed during vulnerable times #bcsm |
 | Donna Peach @danceswithpens some confusion exists also bc as stage 4 they tell us we are basically receiving palliative tx, which differs with the specialty #bcsm |
| Colleen Young @colleen_young @uvmer In other words, you may be discharged from a palliative unit. It's not the "death" place as it is often misconceived as. #bcsm |
| Erica Griffin @SurvivorRunner @drseisenberg Really? I've never heard it in reference to me... #bcsm |
| Jody Schoger @jodyms T2: So the question becomes, how/when does palliative care become part of the breast cancer discussion? #bcsm |
| Dr. Steven Eisenberg @drseisenberg RT @fischmd: @stales I appreciate how difficult (and confusing) this topic can be...it is often discussed during vulnerable times #bcsm |
| Colleen Young @colleen_young TY RT @fischmd: #palliative care is an approach to care that is valid for all serious illness, and into long-term survivorship too #bcsm |
| Ann Wax @annwax @DrAttai Many times simple hydration helps to relive pain. #bcsm. I find that many pt's r not well hydrated |
| Donna Peach @danceswithpens then when they say, donna, you should consult with palliative med, it is scary bc it feels like options are gone #bcsm |
| Brenda Coffee @BCSisterhood @danceswithpens So thrilled you're home! #BCSM |
| CJ CorneliussenJames @CJMeta Haven't seen palliative care offered separate of hospice. With mets u get treatment only. Shortly before death-hospice + palliative. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @a4breastcancer The word "Comfortable" can be overused in healthcare and people only start to see it as a code-word for hospice. #BCSM |
| nancy @uvmer @colleen_young I met the palliative care doc when I was taking my partner home from icu because we wanted to be home. #bcsm |
| Connie Engel @cleo4muse RT @breastcancerfnd: Now Undeniable: #BreastCancer That Comes With the Job. Jeanne Rizzo via @HuffingtonPost http://t.co/PdztNpLR #BCSM | |
| Michael Fisch MD MPH @fischmd @colleen_young the goals of care for patients receiving palliative care vary, it depends on the individual situation #bcsm |
| Brenda Coffee @BCSisterhood RT @annwax: @DrAttai Many times simple hydration helps to relive pain. #bcsm. I find that many pts r not well hydrated #BCSM |
| Jody Schoger @jodyms @ctsinclair @fischMD I don't understand why palliative/supportive therapies aren't introduced from the get-go. #bcsm |
| Sandi @gmasandi1 @ctsinclair @uvmer Many of our Hospice patients begin in palliative care. #bcsm |
| kathy kastner @KathyKastner RT @jodyms: @ctsinclair @fischMD I don't understand why palliative/supportive therapies aren't introduced from the get-go. #bcsm |
| Dr. Steven Eisenberg @drseisenberg @SurvivorRunner If symptoms out of control during therapy than totally appropriate... #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair T2: palliative care can be an important addition to a good oncology team when working with patients with breast cancer #BCSM |
 | Remembering Lisa B. Adams @AdamsLisa discussion of palliative care going on at weekly #bcsm (breast cancer social media) chat until 10 PM /EST. |
 | Tank’s A Lot @DMWalsh618 @jodyms When? At the first visit. QOL and supportive care should be a part of treatment from day 1. #bcsm |
| Olumuyiwa Adeboye 🇳🇬🇬🇩🇧🇶🇦🇼🇺🇸 @moyecome RT @ctsinclair: T2: palliative care can be an important addition to a good oncology team when working with patients with breast cancer #BCSM |
| Michael Fisch MD MPH @fischmd @CJMeta Ideally, palliative care is delivered concomitant with treatment to control the disease. They work hand-in-hand. #bcsm |
| Alicia C. Staley @stales RT @ctsinclair: T2: palliative care can be an important addition to a good oncology team when working with patients with breast cancer #bcsm |
| Jody Schoger @jodyms @danceswithpens That is understandable; but it's important to know what they are offering, I think. #bcsm |
| Dr. Steven Eisenberg @drseisenberg That's what it's all about, yes! RT @DrAttai: @danceswithpens no - its about providing the best quality of life possible for you #bcsm |
| CJ CorneliussenJames @CJMeta When 1st DXd w mets, pts need palliative but don't get it. After they adjust, they don't need it until thgs get bad. #bcsm |
| Colleen Young @colleen_young @drseisenberg I would agree. A palliative referreral should be part of chemo. #bcsm Why is it not? |
| CJ CorneliussenJames @CJMeta RT @fischmd: @CJMeta Ideally, palliative care is delivered concomitant with treatment to control the disease. They work hand-in-hand. #bcsm |
| Alicia C. Staley @stales RT @jodyms: T2: So the question becomes, how/when does palliative care become part of the breast cancer discussion? #bcsm |
| Brenda Coffee @BCSisterhood RT @fischmd: @CJMeta Ideally, palliative care is delivered concomitant with treatment to control the disease. They work hand-in-hand. #BCSM |
| Jody Schoger @jodyms T2: A friend I was in treatment with received palliative services during treatment when her pain from radiation was terribly difficult #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @uvmer Your experience is not uncommon. If you went back to talk to that PC team, I bet they are working to not just be in the ICU. #BCSM |
| Dr. Steven Eisenberg @drseisenberg we need to make comfort, peace and overall patient experience from and center once and for all... #bcsm |
| CJ CorneliussenJames @CJMeta RT @colleen_young: @drseisenberg I would agree. A palliative referreral should be part of chemo. #bcsm Why is it not? #bcsm |
| Nancy's Point @NancysPoint why is palliative care not being discussed early on? #bcsm |
| Colleen Young @colleen_young @aliciabloom Exactly. #bcsm |
| Ann Wax @annwax @DMWalsh618 @jodyms QOL and supportive care is supposed to start on time before u sign up for treatment. #bcsm |
| MD Anderson Cancer Center @MDAndersonNews RT @fischmd: @CJMeta Ideally, palliative care is delivered concomitant with treatment to control the disease. They work hand-in-hand. #bcsm |
 | Lani @lanisia #bcsm good friend is palliative care doc. She says now that patient satisfaction getting emphasis oncologists now want her on team early on |
| Michael Fisch MD MPH @fischmd T2: #HPM is good medicine (pts feel better+avoid hospitals, it lowers costs). Dr. Tom Smith via youtube: http://t.co/z9yAfWOv #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @uvmer Palliative Care teams see a lot of suffering from disease and symptoms in hospitals, and the system can be too afraid to use PC #BCSM |
| Alicia C. Staley @stales RT @aliciabloom #palliative care has been shown to improve QoL & positively impact survival when provided concurrently with cancer tx #bcsm |
| Canadian Virtual Hospice @VirtualHospice Don't forget palliative care includes family and friends too, not just the patient. #bcsm |
| Jody Schoger @jodyms @NancysPoint That IS the question to me as well. #bcsm |
| Erica Griffin @SurvivorRunner @drseisenberg Maybe that's why I didn't hear about it? #bcsm |
| kathy kastner @KathyKastner RT @VirtualHospice: Don't forget palliative care includes family and friends too, not just the patient. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair You may be surprised to hear that doctors and nurses have similar misconceptions about palliative care and underutilize it. #BCSM |
| Lani @lanisia @fischmd I would think it increases compliance and therefore outcomes too. #bcsm |
| CJ CorneliussenJames @CJMeta RT @jodyms: T2: A friend received palliative services during treatment when her pain from radiation. Yes .they don't normally get it. #bcsm |
| Dr. Steven Eisenberg @drseisenberg Y RT @chemo_babe: good friend is palliative care doc. She says now that patient satisfaction getting emphasis oncologists now want #bcsm |
| Canadian Virtual Hospice @VirtualHospice @danceswithpens Palliative care should not be presented at last option. #bcsm |
| Alicia C. Staley @stales RT @chemo_babe good friend is palliative care dr. She says now that patient satisfaction getting emphasis oncs want her on team early #bcsm |
| Jody Schoger @jodyms RT @ctsinclair: Palliative Care teams see a lot of suffering frm disease & symptoms & the system can be too afraid to use #bcsm |
| Nancy's Point @NancysPoint @ctsinclair how do we change this? #bcsm |
| Michael Fisch MD MPH @fischmd One limitation to more ideal use and integration of palliative care is that the workforce (experts, teams) is too small. #bcsm |
| Sandi @gmasandi1 @NancysPoint It is all about educating the community about Palliative care. #BCSM |
| Alicia C. Staley @stales RT @ctsinclair: @uvmer Palliative Care teams see lot of suffering from disease & symptoms in hosp, and system can be afraid 2 use PC #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Palliative care teams often share a lot of values with the patient empowerment movement. Be informed, be involved. #BCSM |
| Jody Schoger @jodyms @ctsinclair @fischMD I started to learn so much from the weekly #HPM chats. Extremely comfortating, as cancer pt: to learn abt it #bcsm |
| Alicia C. Staley @stales RT @fischmd: One limitation to more ideal use and integration of palliative care is that the workforce (experts, teams) is too small. #bcsm |
| nancy @uvmer @ctsinclair Thats why I always assumed PC was the same as EOL care....which was so terrifying. Didn't want to even say the words #bcsm |
| Alicia C. Staley @stales RT @ctsinclair: You may be surprised to hear that doctors & nurses have similar misconceptions about palliative care & underutilize it #bcsm |
| Jody Schoger @jodyms Good point worth emphasizing: palliative care does not mean "the end of the road." #bcsm |
| CJ CorneliussenJames @CJMeta Ha! Before treatment. It can take weeks to get first MD appt after DX w mets. No one helps. Office staff attitude: deal with it. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @NancysPoint PC teams do a lot to try and break down misconceptions in hospitals. Takes a lot of time and 1:1 convos. #BCSM |
| Michael Fisch MD MPH @fischmd To some extent, since the expertise is too scarce, PC tends to be offered closer to the end-of-life. That will change... #bcsm |
| Jody Schoger @jodyms RT @ctsinclair: Palliative care teams often share a lot of values with the patient empowerment movement. Be informed, be involved. #bcsm |
| Donna Peach @danceswithpens @VirtualHospice I think it is more the perception by the patient perhaps than the reality. #bcsm |
| Andrea Torres @miamicrime #bcsm things are getting good for me. Finished treatment Jan.26. On tamoxifen & pain is manageable. The idea that 1 day I may need PC is sad |
| Alicia C. Staley @stales good pt RT @xeni: @drattai For many of us, palliative care = Rxs for pills. No broader discussion of other tools—massage, for instance #bcsm |
| Lani @lanisia @xeni @drattai right: proven therapies like acupuncture for neuropathy not covered by insurance #bcsm |
| Alicia C. Staley @stales RT @fischmd: To some extent, since the expertise is too scarce, PC tends to be offered closer to the end-of-life. That will change #bcsm |
| Brenda Coffee @BCSisterhood RT @ctsinclair: You may be surprised to hear that doctors & nurses have similar misconceptions about palliative care & underutilize it #BCSM |
| Jody Schoger @jodyms @CJMeta Or try a different referral network? Does that make sense? #bcsm |
 | CraftyChicky @craftychicky @chemo_babe I have clients that have done concurrent care w/oncology & palliative care for symptom mgmt. improved quality of life #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @uvmer You are not alone. Even PC teams feel frustration that palliative care often equated with hospital EOL care. #BCSM |
| CJ CorneliussenJames @CJMeta Never heard of a palliative team at the 3 diff cancer ctrs I've been to in yrs of mets. #bcsm |
| Jody Schoger @jodyms Yes @danceswithpens @VirtualHospice I think it is more the perception by the patient perhaps than the reality. #bcsm |
| Alicia C. Staley @stales RT @uvmer: @ctsinclair Thats why I always assumed PC was the same as EOL care....which was so terrifying. Didnt want to say the words #bcsm |
| Donna Peach @danceswithpens PC physician approached me w it's time for you to decide whether u want to keep treating or to do other things . . . scared me . . . #bcsm |
 | Carla Mazzone @carlamazzone1 Excellent book called The Best Care Possible by Ira Byock,MD. Great for clinical & lay persons. #bcsm |
| Lani @lanisia @craftychicky it's amazing but I paid out of pocket $$ #bcsm |
| Colleen Young @colleen_young @ctsinclair Family member given 12 months, I asked for palliative referreral. Oncologist said "Why, he's not symptomatic yet." argh #bcsm |
| Dr. Steven Eisenberg @drseisenberg We have to think of palliative care not as "pre-hospice", but QOL care from day one. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Palliative care teams are probably the most open to CAM therapies in nearly all the specialties. @xeni @DrAttai #BCSM |
| kathy kastner @KathyKastner RT @ctsinclair: Palliative care teams are probably the most open to CAM therapies in nearly all the specialties. @xeni @DrAttai #BCSM |
| Donna Peach @danceswithpens (cont) even tho my onc said i have more options; PC doc made it feel like I did not; maybe her style did not synch w me #bcsm |
| CJ CorneliussenJames @CJMeta @jodyms Dif referral network? Just seems if available it shld be evident. Wasn't evident at Hopkins or Georgetown. #bcsm |
| Michael Fisch MD MPH @fischmd T2: #Palliative care (broadly defined) is valid for #breastcancer pts integrated throughout the course of illness #bcsm |
| Lani @lanisia RT @drseisenberg: We have to think of palliative care not as "pre-hospice", but QOL care from day one. #bcsm |
| Canadian Virtual Hospice @VirtualHospice @DrAttai Unfortunately there is not equal access to palliative care and definitely not enough to hospice. At least not in Cda. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair RT @CarlaMazzone1: Excellent book called The Best Care Possible by @IraByock MD. Great for clinical & lay persons. "I second!" #BCSM |
| Alicia C. Staley @stales The word hospice used to scare me. Then my father-in-law got very sick and went into a hospice facility, now I understand the process #bcsm |
 | Lyra Serrano Sihra @lsihra RT @LizSzabo: Tonight at 9pm ET #bcsm will explore palliative care w/ @fischmd @ctsinclair. RT @ctsinclair @VirtualHospice |
| Brenda Coffee @BCSisterhood RT@drseisenberg We have to think of palliative care not as "pre-hospice", but QOL care from day one. #bcsm #BCSM |
 | Geoffrey Pille @gpille RT @VirtualHospice: Don't forget palliative care includes family and friends too, not just the patient. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @colleen_young Sigh, I have sadly heard that story too many times. But an empowered patient can demand/seek out palliative care #BCSM |
| Ann Wax @annwax @danceswithpens it can be scary when a pc physician puts that in front of you and u hv to decide ur future. #bcsm |
| Jody Schoger @jodyms @fischMD @CTSinclair One a pt's deepest fears? Abandonment. How does pt assure care is welll coordinated? #bcsm |
| Susan Zager❣️ @a4breastcancer not surprised doctors and nurses have misconceptions from experience of as patient and family member- #bcsm |
| nancy @uvmer @ctsinclair where are PC people "housed"...how do they become integrated? Only brought in by docs who understand what PC really is? #bcsm |
| Jody Schoger @jodyms @stales We can sharemore of these in a moment:) #bcsm |
| Dr. Steven Eisenberg @drseisenberg Nobody ever wants to go through treatment for breast cancer or any cancer. But if one must, they must be comfortable throughout such. #bcsm |
| Canadian Virtual Hospice @VirtualHospice @danceswithpens You're right and we hope our website helps debunk the myths around palliative care and hospice. #bcsm |
| Jody Schoger @jodyms Please friends: we all know the chat is underway. No more need to RT announcements about tonight's chat. #bcsm |
| CJ CorneliussenJames @CJMeta @ctsinclair Seek out palliative care? Only if they understd it. I bet almost none do. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Important point: Palliative Care teams love success/survivor stories too. I collect them. Not always about death and acceptance. #BCSM |
| Michael Fisch MD MPH @fischmd T3: "To prescribe pills is easy but to reach an understanding with people is very hard." -Franz Kafka #bcsm |
| CraftyChicky @craftychicky @chemo_babe @xeni @drattai some insurance plans (here in SD at least) are providing some acupuncture coverage. Nice change #bcsm |
| Alicia C. Staley @stales RT @ctsinclair: Palliative Care teams love success/survivor stories too. I collect them. Not always about death and acceptance. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @uvmer Right now because of low workforce numbers, hospital based consults is where most PC exists. Funding for outpatient is weak. #BCSM |
| Dr. Steven Eisenberg @drseisenberg @fischmd great one. #bcsm |
| Michael Fisch MD MPH @fischmd T3: No two people react the same to their illness or want the same exact things from their MD, nurse, family, friends.. #bcsm |
| Jody Schoger @jodyms fischmd T3: "To prescribe pills is easy but to reach an understanding with people is very hard." -Franz Kafka #bcsm |
| Dr. Steven Eisenberg @drseisenberg yay RT @craftychicky: @chemo_babe @xeni @drattai some insurance plans (here in SD at least) are providing some acupuncture coverage. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Hospice and Palliative Care is more than just opioids and pills (although important). Listening is our main tool. #BCSM |
| Alicia C. Staley @stales RT @ctsinclair: @colleen_young I have sadly heard story too many times. But an empowered patient can demand/seek out palliative care #bcsm |
| Jody Schoger @jodyms RT @fischmd: T3: No two people react the same to their illness or want the same exact things from their MD, nurse, family, friends.. #bcsm |
| Brenda Coffee @BCSisterhood @feistybluegecko Hello to the woman from tomorrow:) #BCSM |
| Alicia C. Staley @stales @feistybluegecko hospice and pallative care #bcsm |
| Dr. Steven Eisenberg @drseisenberg RT @ctsinclair: Hospice and Palliative Care is more than just opioids and pills (although important). Listening is our main tool. #bcsm |
| Alicia C. Staley @stales RT @ctsinclair: Hospice and Palliative Care is more than just opioids and pills (although important). Listening is our main tool. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Surgery is to a surgeon as a family meeting is to a palliative care team. #BCSM |
| Andrea Torres @miamicrime @fischmd I can relate to Dr. Smith's commentary on patient's denial #bcsm |
| Colleen Young @colleen_young @ctsinclair Don't you worry. I demanded it and got a consult on the spot And I have the @VirtualHospice & #hpm teams at my fingertips #bcsm |
| Jody Schoger @jodyms T3: It's so difficult for patients. No uniform services offered from one location to the next or even called the same thing. #bcsm |
| Dr. Steven Eisenberg @drseisenberg RT @stales: RT @ctsinclair: I have sadly heard story too many times. But an empowered patient can demand/seek out palliative care #bcsm |
| CJ CorneliussenJames @CJMeta OK ... family & friends. But most don't think of it as palliative care. U get the same when u have 24 flu & we don't call P-care. #bcsm |
| Nancy's Point @NancysPoint so impt!RT @ctsinclair: Hospice and Palliative Care is more than just opioids and pills Listening is our main tool. #bcsm |
| Alicia C. Staley @stales @ctsinclair does pallative care differentiate between physical comfort and emotional comfort? #bcsm |
| 𝗅𝖾𝖾𝗂𝖺 ( leeia_randall on threads) @hey_leia I noticed today that the cancer center where I'm being treated offers #sonic healing classes http://t.co/RhhSE5mG #BCSM |
| Anne Marie Mercurio @chemobrainfog Key point @fischmd: No 2 pts are the same. Must be difficult balancing act to determine what suits a particular pt/family. #bcsm |
| Jody Schoger @jodyms Awesome @ctsinclair Surgery is to a surgeon as a family meeting is to a palliative care team. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @CJMeta We are making inroads. But culture change doesn't usually come fast. Unless you are technology. #BCSM |
 | Lisa Fields @PracticalWisdom RT @ctsinclair: Surgery is to a surgeon as a family meeting is to a palliative care team. #BCSM |
| MD Anderson Cancer Center @MDAndersonNews RT @jodyms: T3: No two people react the same to their illness or want the same exact things from their MD, nurse, family, friends.. #bcsm |
| Alicia C. Staley @stales RT @jodyms: T3 Its so difficult for patients. No uniform services offered from one location to the next or even called the same thing #bcsm |
| Jody Schoger @jodyms T4: Let's open this up - do some of you have experiences w/either palliative and/or hospice that you'd like to share? Or questions? #bcsm |
| Andrea Torres @miamicrime @feistybluegecko palliative care and hospice #bcsm |
| Michael Fisch MD MPH @fischmd @miamicrime Denial is not a flaw, it is part of the process for many individuals. You are not alone... #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair We could have a whole chat just about family meetings and goals of care. @jodyms @DrAttai @stales #BookmarkForFuture #BCSM |
| Lisa Fields @PracticalWisdom RT @colleen_young: @ctsinclair Don't you worry. I demanded it and got a consult on the spot And I have the @VirtualHospice & #hpm teams at my fingertips #bcsm |
| Alicia C. Staley @stales RT @fischmd: T3: No two people react the same to their illness or want the same exact things from their MD, nurse, family, friends.. #bcsm |
 | Yvonne @YvonFitz RT @VirtualHospice: Don't forget palliative care includes family and friends too, not just the patient. #bcsm |
| Ann Wax @annwax Have to go. TY to everyone for allowing me to be connected to all of you. It is always a great chat #Bcsm |
| Jody Schoger @jodyms @DrAttai That's because YOU are an amazing physican. Hour-long meetings with breast surgeon is not the norm. #bcsm |
| Michael Fisch MD MPH @fischmd Holly Prigerson on grief: "the state of emotional unrest and frustration assoc with wanting what one cannot have http://t.co/crqxUVtO #bcsm |
| Alicia C. Staley @stales RT @jodyms: T4: Lets open this up - do some of you have experiences w/either palliative and/or hospice that youd like to share? ques? #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @stales Yes if you seen palliative care in one place, you can easily say you have seen palliative care in one place. #BCSM |
| Lani @lanisia @jodyms T4: I love hospice nurses. So much wisdom about #eol issues -- and pain management! #bcsm |
| Jody Schoger @jodyms @ctsinclair Great idea - bookmarked as noted:)P #bcsm |
| Canadian Virtual Hospice @VirtualHospice @ctsinclair I won't clog up the chat, but at the end I'll share some wonderful threads from our discussion forums about hopsice & pc. #bcsm |
| Alicia C. Staley @stales @annwax good night, thanks for joining us #bcsm |
| Jody Schoger @jodyms RT @fischmd: @miamicrime Denial is not a flaw, it is part of the process for many individuals. You are not alone... #bcsm |
| Social✽Fly @socflyny @fischmd It needs to -- and I hope it does. Survivorship is such a gray area and so many are uncomfortable with the term. #bcsm |
| Donna Peach @danceswithpens T4 How do i prepare for my PC OP consult? Husband and me #bcsm |
| Alicia C. Staley @stales RT @chemo_babe: @jodyms T4: I love hospice nurses. So much wisdom about #eol issues -- and pain management! #bcsm |
| Dr. Steven Eisenberg @drseisenberg BCSM = Because Comfort Serves Many #bcsm |
| Michael Fisch MD MPH @fischmd Recognizing and managing grief is a key part of #palliative care #bcsm |
| CraftyChicky @craftychicky #bcsm I wish there were more honest discussions on #palliative care at the outset of treatment so patients know their options. QOL key |
| Jody Schoger @jodyms @chemo_babe I agree - hospice nurses and pain management professionals that helped my mother were Godsends. #bcsm |
| Canadian Virtual Hospice @VirtualHospice @stales Palliative care includes both physical and emotional comfort. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @DrAttai Yes I think the family meeting has really been elevated in all specialties partly due to increase value on communication #BCSM |
| Dr. Steven Eisenberg @drseisenberg The best. RT @chemo_babe: @jodyms T4: I love hospice nurses. So much wisdom about #eol issues -- and pain management! #bcsm |
| CJ CorneliussenJames @CJMeta When father-in-law was dying in our home, social worker helped us all. I wasn't the patient but had palliative care from them. #bcsm |
| Sandi @gmasandi1 @chemobrainfog @fischmd Meeting patient/family goals are important. #BCSM |
| Dr. Steven Eisenberg @drseisenberg RT @fischmd: Recognizing and managing grief is a key part of #palliative care #bcsm |
| Canadian Virtual Hospice @VirtualHospice +1 RT @jodyms: Awesome @ctsinclair Surgery is to a surgeon as a family meeting is to a palliative care team. #bcsm |
| Nancy's Point @NancysPoint Agree! RT @DrAttai: the whole PC / hospice care team - made up of amazing people unlike any youll ever meet #bcsm |
| alicia marini bloom @aliciabloom RT @ctsinclair: Surgery is to a surgeon as a family meeting is to a palliative care team. #BCSM |
| Brenda Coffee @BCSisterhood That's so important for patient & family. RT @fischmd: Recognizing and managing grief is a key part of #palliative care #BCSM |
| Christian Sinclair, MD, FAAHPM @ctsinclair @DrAttai Not saying we have the market cornered on family meetings, but it is our most complex diagnostic and therapeutic tool in PC #BCSM |
| Dr. Steven Eisenberg @drseisenberg RT @DrAttai: the whole PC / hospice care team - made up of amazing people unlike any youll ever meet #bcsm |
| Jody Schoger @jodyms RT @DrAttai: @danceswithpens my suggestion - figure out what you want, whats realistic. Ask these questions. And see how they can help #bcsm |
| Aileen Graef @AileenGraef T4: 22 yr old went through experience of hospice In August with stage 4 mom. #BCSM |
| Christian Sinclair, MD, FAAHPM @ctsinclair @CJMeta The Social Worker is so undervalued in all of healthcare. I have learned a lot from the SWs I ahve worked with in hospice/PC #BCSM |
| nancy @uvmer Don't know if it was PC people or visiting nurses, but they allowed me to take my partner home so I could give care in end.v grateful. #bcsm |
| alicia marini bloom @aliciabloom i like to think about #palliative care as an extra layer of support & expertise for patients as they go through their cancer journey #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair We could have another chat just talking about interdisciplinary teams too. Lots of ground to cover there. #BCSM |
| CraftyChicky @craftychicky #bcsm I have with loved ones at end of life as well as with clients & dealing with insurance & bills #hospice is a blessing for pt/family |
| Beth White Thompson @QuiverVoice T4 So is there also a role for PC early in disease process then and can you speak more to how/with what goals we implement early? #bcsm |
| Jody Schoger @jodyms Q4: I found that I was amazed by the concern, compassion extended to use through my mother's illness. #bcsm |
| Canadian Virtual Hospice @VirtualHospice Here's a start http://t.co/tsFif35u RT @danceswithpens: T4 How do i prepare for my PC OP consult? Husband and me #bcsm |
| Jody Schoger @jodyms Good to see you - how are you doing? @AileenGraef T4: 22 yr old went through experience of hospice In August with stage 4 mom. #bcsm |
| Andrea Torres @miamicrime @xeni I'm starting to understand PC. I guess my psychosocial oncologist & lymphatic massage therapist are part of my PC team #bcsm xoxo |
| Brenda Coffee @BCSisterhood Is the increase in family meetings w/doctors because people are better informed--Internet--& have found their voice to ask questions? #BCSM |
| Alicia C. Staley @stales MT @aliciabloom i like to think #palliative care as extra layer of support & expertise for patients as they go through their journey #bcsm |
| Carla Mazzone @carlamazzone1 Don't forget spiritual care along with physical and emotional. Hospice does it all. #bcsm |
| Jody Schoger @jodyms RT @BreastCaUnder40: T4 So is there also a role for PC early in disease,can you speak more to how/with what goals we implement early? #bcsm |
| Michael Fisch MD MPH @fischmd #HPM classic @NEJM paper by Temel on early integration (in #lungcancer context) http://t.co/TFWmwxcU #bcsm |
| Lani @lanisia @jodyms T4: the hospice helped the whole family brought through the process of my brother's death. #bcsm |
| BestEndings @mybestendings RT @VirtualHospice: Here's a start http://t.co/tsFif35u RT @danceswithpens: T4 How do i prepare for my PC OP consult? Husband and me #bcsm |
| Alicia C. Staley @stales MT @xeni: Brief exp I had observing @milesobrien+@aileengraef+@katiegraefs interaction w/ hospice 4 Aileens care was profound for me #bcsm |
| Alicia C. Staley @stales RT @CarlaMazzone1: Dont forget spiritual care along with physical and emotional. Hospice does it all. #bcsm |
| Jody Schoger @jodyms @xeni @aileengraef @katiegraef And you all shared beautifully from that time. We won't ever forget the photo you posed. #bcsm |
| Alicia C. Staley @stales RT @chemo_babe: @jodyms T4: the hospice helped the whole family brought through the process of my brothers death. #bcsm |
| BestEndings @mybestendings yesssRT @ctsinclair: We could have another chat just talking about interdisciplinary teams too. Lots of ground to cover there. #BCSM |
| Christian Sinclair, MD, FAAHPM @ctsinclair @stales Dame Cicely Sauders (grandmother of hospice) taught concept of 'Total Pain" to include emotional/spiritual and physical,) #BCSM |
| Sandi @gmasandi1 @CJMeta It's about the patient and Family. So happy your needs were addressed #BCSM |
| Aileen Graef @AileenGraef They are not only there for the patient but there for the caregiver. They helped me so much as well as my mom #BCSM |
| Jody Schoger @jodyms So glad you had that RT @chemo_babe @jodyms T4: the hospice helped the whole family brought through the process of my brother's death. #bcsm |
| CJ CorneliussenJames @CJMeta For me, most friends/fam aren't in role of PC. Many want to help but don't know how & it's sporadic. Takes exp to offer true PC #bcsm |
| CraftyChicky @craftychicky #bcsm #hospice allowed both my dad & father in law to maintain their dignity at the end of life & regain control after cancer took it away |
| Alicia C. Staley @stales It seems there's such a broad cultural fear of death and dying. After experiencing hospice for Father in law, the fear is gone #bcsm |
 | Phyllis @Groz_P Can we "unlink" pall care from hospice so pall care can exist separately from end of life/hospice? Separate discussions? #Bcsm |
| Canadian Virtual Hospice @VirtualHospice @danceswithpens PC consult not only to ask questions but give info about you, your husband, ur lifestyle, values, how u live/love life #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @BCSisterhood I think so. Family meetings are a great way to get closer to the idealized informed consent. Also discuss values/hopes #BCSM |
| Jody Schoger @jodyms @AileenGraef Yes - when they discuss bringing in the family as part of the team; that is the truth. #bcsm |
| Michael Fisch MD MPH @fischmd A favorite poem about grief and loss: Maya Angelou's "When Great Trees Fall" (via Jamie von Roenn) http://t.co/KdgBasrC #bcsm |
| Sandi @gmasandi1 Yep RT @CarlaMazzone1: Don't forget spiritual care along with physical and emotional. Hospice does it all. #bcsm |
| Alicia C. Staley @stales MT @xeni: #bcsm T4: @vnatc provided both visiting nurses and hospice inpatient care. Incredible compassion, QoC, and spiritual depth. #bcsm |
| Canadian Virtual Hospice @VirtualHospice Including anticipatory grief = future loss RT @fischmd: Recognizing and managing grief is a key part of #palliative care #bcsm |
| Lani @lanisia @Metsgrr often the same clinicians work in palliative care and hospice. #bcsm |
 | Shelley Hermer 🇨🇦 @ShelleyHermer RT @VirtualHospice: Don't forget palliative care includes family and friends too, not just the patient. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @CJMeta Yes PC has really grown into a field with a strong knowledge base. It is not just being nice to people. But that helps! #BCSM |
| Jody Schoger @jodyms @Metsgrr They have provided separate descriptions; because a patient is offered supportive care doesn't mean they are terminal. #bcsm |
| Alicia C. Staley @stales RT @AileenGraef: They are not only there for the patient but there for the caregiver. They helped me so much as well as my mom #bcsm |
| Brenda Coffee @BCSisterhood RT @stales: It seems theres such a broad cultural fear of death & dying. After experiencing hospice for Father in law the fear is gone #BCSM |
| Donna Peach @danceswithpens will be watching for recap for all of these links--will happen i hope :)--a little overwhelmed right now #bcsm |
| Anne Marie Mercurio @chemobrainfog "Palliative" and "end of life" are not interchangeable. Different types/reasons 4 care. Those words are thought to mean same thing. #bcsm |
| Aileen Graef @AileenGraef They not only were patient in explaining how I needed to care for her but had 24/7 help available if I needed it #BCSM |
| Alicia C. Staley @stales @AileenGraef that's a great point, thanks for sharing! #bcsm |
| Michael Fisch MD MPH @fischmd "It is difficult to get the news from poems yet men die miserably every day for lack of what is found there" --William Carlos Williams #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @Metsgrr That is a question that we talk about at every annual meeting. So much shared between PC and hospice, but different. #BCSM |
| Jody Schoger @jodyms @itsthebunk @stales Agree - once you've experienced seeing the services work as they are supposed to it changes. #bcsm |
| Brenda Coffee @BCSisterhood RT2fischmd A favorite poem about grief and loss: Maya Angelou's "When Great Trees Fall" (via Jamie von Roenn) http://t.co/R5kS2nv4 #BCSM |
| Jody Schoger @jodyms We have about ten mintues left but I can see a lot of questions remain. #bcsm |
| Michael Fisch MD MPH @fischmd "..compassion arises not from will but from a deep sense of goodness": Brilliant @NEJM essay http://t.co/xwD2zXhj #hospicenurses #bcsm |
| Alicia C. Staley @stales RT @ctsinclair: @Metsgrr That is a question we talk about every annual meeting. So much shared between PC & hospice, but different. #bcsm |
| Aileen Graef @AileenGraef As I’m not a doctor and my med exp. is applying hello kitty bandaids, I relied on them to help me with meds and emerg. Pain relief #BCSM |
 | Nancy S. @BuckeyeNancyS Sorry I'm late to the party! I won't lie... Today is the first I've heard of the term "palliative care". It goes beyond pain mgmt? #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @Metsgrr Also concern if you split PC from hospice, that PC is not established enough to do well, although that fear is fading. #BCSM |
| Sandi @gmasandi1 @ctsinclair It would be a wonderful conversation to discuss the IDT. #BCSM |
| Jody Schoger @jodyms @danceswithpens It's a lot:) #bcsm |
| Andrea Torres @miamicrime @stales it's the fear of pain and loss of independence that gets me #bcsm |
| Alicia C. Staley @stales @jodyms letting go of the fear of dying allows you to live more deeply. that's what's changed for me. #bcsm |
 | Linda Dalpé @LArtdelInfusion RT @VirtualHospice: Don't forget palliative care includes family and friends too, not just the patient. #bcsm |
| CJ CorneliussenJames @CJMeta Oncs I know distinguish zw palliative and aggressive treatment even stage IV. This seems to go against definition. Trying to understd #bcsm |
| Jody Schoger @jodyms @AileenGraef Kitteh bandaids:) #bcsm |
| Canadian Virtual Hospice @VirtualHospice @CarlaMazzone1 Yes. Spiritual care is a big part of palliative care. "Spirituality & Life Threatening Illness" http://t.co/3CrB7h9R #bcsm |
| Jody Schoger @jodyms @xeni It was amazing. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @broken_boobie Way beyond pain management, although that is a core area of expertise. All symptoms (not just physical) important #BCSM |
| Alicia C. Staley @stales RT @AileenGraef As I’m not a doctor and my med exp. is applying hello kitty bandaids, I relied on them 2 help me w/ meds & Pain relief #bcsm |
| Nancy's Point @NancysPoint @xeni once you've seen death up close, it's not as frightening somehow. does that make sense? #bcsm |
| Anne Marie Mercurio @chemobrainfog Have to leave my "lurking" ... STUPID pharmacy. I was dx'd w/infection. Prescribed anti-b. They refilled my femara instead. Hugs 2 all #bcsm |
| Aileen Graef @AileenGraef They also will offer volunteers to stay while you run errands and will grocery shop. When someone is dying, you dont think of that #BCSM |
| Anne Marie Mercurio @chemobrainfog THIS! RT @drseisenberg: It seems to me that every patient going through chemotherapy should have a palliative care team... #bcsm |
 | 🇺🇦vaxxedtothemax🇺🇦☮️ @pk_baldwin RT @drseisenberg: We have to think of palliative care not as "pre-hospice", but QOL care from day one. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Critical to know that palliative care CAN and SHOULD be offered concurrently with aggressive care. Both/and not either/or cc: @CJMeta #BCSM |
| nancy @uvmer @NancysPoint does make sense... #bcsm |
| Jody Schoger @jodyms @chemobrainfog Thanks for joining in - I'm really looking forward to seeing you next week! #bcsm |
| Alicia C. Staley @stales RT @AileenGraef They also have volunteers to stay while u run errands & will grocery shop. When someone is dying, u dont think of that #bcsm |
| Canadian Virtual Hospice @VirtualHospice You matter because you are you.... We will do all we can to help u, not only to die peacefully, but to LIVE until u die. Dame Saunders #bcsm |
 | Beej @goaliemom31 My step mother was legally able to murder my father by starving him to death via Hospice. #bcsm |
| CJ CorneliussenJames @CJMeta A stigma attached to palliative. Pts are frightened if palliative is recommended. Feel oncs have give up. #bcsm |
| Jody Schoger @jodyms @ctsinclair Critical to know that palliative care CAN and SHOULD be offered concurrently with aggressive care. Both/and not either/or #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @RannPatterson @BCSisterhood @DrAttai @annwax palliative researchers are very interested in this question. No strong evidence yet #BCSM |
| Alicia C. Staley @stales RT @ctsinclair Critical to know that palliative care CAN & SHOULD be offered concurrently with aggressive care. Both/and not either/or #bcsm |
| CraftyChicky @craftychicky @xeni that is such a beautiful picture. The #hospice house here in Sioux Falls allows pts to bring their pets-so important #bcsm |
| Jody Schoger @jodyms We are coming up to the top of the hour... #bcsm |
| Aileen Graef @AileenGraef They also provide social services when you just need someone to talk and even help you through legal issues #BCSM |
| Sandi @gmasandi1 @ctsinclair PC/Hospice, very unique disciplines making a positive difference in many lives. #BCSM |
| Anne Marie Mercurio @chemobrainfog @jodyms You BET! ((hugs)) #bcsm |
| Susan Zager❣️ @a4breastcancer i have seen it work beautifully and also big disconnect- glad to hear pallative care should be at beginning #bcsm |
| Canadian Virtual Hospice @VirtualHospice @craftychicky Dignity is an important element of hospice care. #bcsm |
| Jody Schoger @jodyms @CJMeta That is an essential question to have answered: WHO is coordinating my care now..... #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @AileenGraef A palliative care team would embrace your Hello Kitty bandaids and make it part of your plan of care. #BCSM |
| Alicia C. Staley @stales @ctsinclair Can pallative care be used for some patients as "tune-up" of sorts? Pallative isn't necessarily the 1step toward hospice? #bcsm |
| Michael Fisch MD MPH @fischmd I love that notion of #HPM as an extra layer of support. Good medical and nursing care and loving family & friends make for the ideal #bcsm |
| Aileen Graef @AileenGraef They even told me after I moved I could call the local VNA to talk to someone during the grieving process #BCSM |
| Jody Schoger @jodyms RT @ctsinclair: @AileenGraef A palliative care team would embrace your Hello Kitty bandaids and make it part of your plan of care. #bcsm |
| Alicia C. Staley @stales RT @xeni: T4 most painfully, most gracefully, the hospice nurses helped Aileen & her daughters & brother know when to go in-patient. #bcsm |
| Nancy's Point @NancysPoint IMO dignity is everything. RT @VirtualHospice: @craftychicky Dignity is an important element of hospice care. #bcsm |
| Alicia C. Staley @stales wonderful RT @AileenGraef: They even told me after I moved I could call the local VNA to talk to someone during the grieving process #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Many 'innovative' patient/family centered care in hospitals you see now, really have been well established in hospice for a long time #BCSM |
| Remembering Lisa B. Adams @AdamsLisa Nurses, oncologists, or someone needs to define and explain (and offer) palliative services to patients. I have always had to ask #bcsm |
| nancy @uvmer Yes...take EOL fear out of it. RT @drseisenberg Have to think of palliative care not as "pre-hospice", but QOL care from day 1. #bcsm #bcsm |
| Canadian Virtual Hospice @VirtualHospice @broken_boobie You're exactly the person tonight's chat was for. Palliative care is a term too many people have never heard of. #bcsm |
| Jody Schoger @jodyms We've opened up a big topic tonight; the differences between palliative/hospice care. What both offer...I'm sure you still have ?'s. #bcsm |
| Aileen Graef @AileenGraef And they visit as often as needed. Any part of the team until the patient and your needs are met. #BCSM |
| Sandi @gmasandi1 @stales @ctsinclair Aggressive treatment is another difference between PC and Hospice #BCSM |
| MD Anderson Cancer Center @MDAndersonNews RT @VirtualHospice: @stales Palliative care includes both physical and emotional comfort. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @stales YES! I have done PC for patients early in cancer treatment with horrible symptoms. Once we got it controlled, chemo resumed #BCSM |
| BestEndings @mybestendings RT @MDAndersonNews: RT @VirtualHospice: @stales Palliative care includes both physical and emotional comfort. #bcsm |
| Jody Schoger @jodyms Agree RT @AdamsLisa: Nurses, oncs .. need to define & explain (and offer) palliative services to patients. I have always had to ask #bcsm |
| Alicia C. Staley @stales Remind me to share story about the night I slept over at hospice for my father-in-law and the wonderful interactions I had w/ staff #bcsm |
| Nancy's Point @NancysPoint Shouldn't have to ask. RT @AdamsLisa: Nurses, oncologists, or someone needs to define and explain palliative services to patients. #bcsm |
| Aileen Graef @AileenGraef She was in pain and they would not stop trying to get her pain to a 0 and managing her other symptoms. #BCSM |
| Alicia C. Staley @stales YES still have ?s RT @jodyms: Weve opened up a big topic tonight; the differences between palliative/hospice care. What both offer... #bcsm |
| Michael Fisch MD MPH @fischmd There is no standard playbook for care coordination. It is more like basketball than football in a sense. Ask explictly #bcsm |
 | Sahba Ferdowsi DO (conciergedoc) @DrFerdowsi RT @MDAndersonNews: RT @VirtualHospice: @stales Palliative care includes both physical and emotional comfort. #bcsm |
| Jody Schoger @jodyms And there is huge consensus: pain management is but one part of an overall compassionate treatment plan that pt/family understand. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Palliative Care could be seen as a tune-up of sorts. Intractable symptoms (nausea, pain, depression) make agg treatment hard to do. #BCSM |
| BestEndings @mybestendings RT @fischmd: One limitation to more ideal use and integration of palliative care is that the workforce (experts, teams) is too small. #bcsm |
| Alicia C. Staley @stales RT @xeni: #bcsm T4 I will never forget sweet, honest, fiercely empathetic interactions I witnessed btwn @vnatc hospice nurses & Aileen #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @NancysPoint @AdamasLisa starting to see more empowered patients/families tell the docs and nurses what PC is, and why they need it. #BCSM |
| Jody Schoger @jodyms I want to extend my thanks to @fischmd & @ctsinclair for talking with tonight. Your wisdom, links & experience detonated a lot for us. #bcsm |
| Lani @lanisia @jodyms @AdamsLisa treating cancer is a big job. But docs sometimes focus on disease and forget the person living with it. #bcsm |
| Alicia C. Staley @stales RT @ctsinclair Palliative Care could be seen as a tune-up of sorts. Intractable symptoms (nausea, pain, depression) make agg tx hard #bcsm |
| Nancy S. @BuckeyeNancyS @VirtualHospice Good! In 8 1/2 mos of treatment, that term has never been uttered. My comfort has always been highly considered tho. #bcsm |
| Michael Fisch MD MPH @fischmd @xeni: Sweet, HONEST, empathic care is such a blessing. #bcsm |
| Alicia C. Staley @stales RT @jodyms: And there is huge consensus: pain management is but one part of an overall compassionate tx plan that pt/family understand #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair @gmasandi1 @stales Although some hospices have a more open access model, and may consider aggressive tx for time limited trial #BCSM |
| Lani @lanisia So huge RT @xeni: #bcsm psych care ( experienced in cancer issues) is such a huge oft-overlooked part of palliative care (and EOL care). |
| Nancy's Point @NancysPoint Many thanks to @fischmd & @ctsinclair for talking with us tonight. #bcsm |
| Alicia C. Staley @stales RT @xeni psychological care (therapist experienced in cancer issues) is such huge oft-overlooked part of palliative care (& EOL care) #bcsm |
| Aileen Graef @AileenGraef In the last days I could not care for her. Her body was shutting down and they moved her to hospice house where she spent her last 24 #BCSM |
| Jody Schoger @jodyms YES! RT @xeni psych care (from therapist experienced in ca issues) is such a huge oft-overlooked part of palliative care (& EOL care) #bcsm |
 | Care Beyond Cure MH @carebeyondcures RT @VirtualHospice: What is palliative care? http://t.co/Tuj42G9r #bcsm |
 | ~MP~ @KnightsAlterEgo Ppl shld also consider doing Advance Directives w/PT early on to ensure their wishes are considered for Palliative/Hospice care. #bcsm |
| Lani @lanisia @DrAttai @jodyms @fischmd @ctsinclair @stales thank you all for making another great #bcsm chat. |
| Alicia C. Staley @stales YES!!! RT @jodyms: I want to extend my thanks to @fischmd & @ctsinclair. Your wisdom, links & experience resonated a lot for us. #bcsm |
| Colleen Young @colleen_young Incredible #bcsm @jodyms. You knew it would be. Well done. @stales @DrAttai |
| Christian Sinclair, MD, FAAHPM @ctsinclair @xeni psychology support is an area where PC teams are looking for the most support. Onc has done better is securing psy workforce. #BCSM |
 | rxnm @rxnm_ RT @xeni: #bcsm t4 @aileengraef yes, so few who haven't gone through this know that hospice nurses can help navigate so much more than just pain meds. |
| Aileen Graef @AileenGraef I could just be with her while the nicest people on earth cared for her. The hospice staff was my savior. #BCSM |
| Jody Schoger @jodyms @broken_boobie I missed earlier tweet - what term wasn't used? Didn't realize you were here! #bcsm |
| Alicia C. Staley @stales @AileenGraef That is so good that they were able to help you #bcsm |
| Alicia C. Staley @stales :-) RT @AileenGraef: I could just be with her while the nicest people on earth cared for her. The hospice staff was my savior. #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Wow! I had a blast tonight! Great questions all. I'll review my stream tomorrow and follow-up with any ?'s I missed. #BCSM |
| Nancy's Point @NancysPoint thank you guests. thank you moderators. good night all. #bcsm |
| Canadian Virtual Hospice @VirtualHospice @ctsinclair @fischmd Thank you for all your insights tonight. It's not easy explaining palliative care in 140 sound bites. #bcsm |
| Michael Fisch MD MPH @fischmd When they say #palliative care is comprehensive, that refers to management of symptoms and issues not limited to just pain #bcsm |
| nancy @uvmer Yes...thank you so much RT @NancysPoint Many thanks to @fischmd & @ctsinclair for talking with us tonight. #bcsm |
| NursingScienceWatch @nurssciwatch RT @xeni: #bcsm T4 I will never forget the sweet, honest, fiercely empathetic interactions I witnessed between @vnatc hospice nurses &am ... | |
| Nancy S. @BuckeyeNancyS @jodyms I snuck in late... I had never heard "palliative care". Perhaps my chemo brain rejected it? ;) #bcsm |
| Jody Schoger @jodyms I'm grateful to all of you for participating, for your comments and courage. The more we know the more we can help others:) #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair 2 great resources to recc: #hpm (hospice and palliative med) tweetchat Wed at 8p CT and @pallimed blog (check out the arts sec) #BCSM |
| Jody Schoger @jodyms Thank you all - it's been a terrific chat tonight - thank you @drattai @stales #bcsm |
 | Ann Becker-Schutte @DrBeckerSchutte Ack--missed again! Darn life--keeps on happening. #bcsm |
| Alicia C. Staley @stales @fischmd & @ctsinclair - I have learned so much from you tonight! Thank you. Thanks @jodyms and @drattai for co-moderating this #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Thanks @stales @jodyms @DrAttai for the invite. And always great to hang out with @FischMD #BCSM |
| Susan Zager❣️ @a4breastcancer Many thanks to @fischmd & @ctsinclair for talking with us I am learning so much #bcsm |
| 𝗅𝖾𝖾𝗂𝖺 ( leeia_randall on threads) @hey_leia Great chat - thanks everyone #BCSM |
| Sandi @gmasandi1 @ctsinclair Thank you. I always learn something new. Even with 140 characters. #BCSM |
| Jody Schoger @jodyms RT @ctsinclair: 2 g8t resources to recc: #hpm (hospice & palliative med) tweetchat Wed @ 8p CT & @pallimed blog (check out arts sec) #bcsm |
| Alicia C. Staley @stales @jodyms I'm grateful you tackled this tough subject for us! #bcsm |
| nancy @uvmer YES! RT @chemo_babe: @DrAttai @jodyms @fischmd @ctsinclair @stales thank you all for making another great #bcsm chat. #bcsm |
 | NOBLE KLEAN LAUNDRY @Shamsutofa RT @fischmd: "..compassion arises not from will but from a deep sense of goodness": "..compassion arises not from will but from a deep sense of goodness": Brilliant @NEJM essay http://t.co/xwD2zXhj #hospicenurses #bcsm |
| ~MP~ @KnightsAlterEgo #MedlinePlus and #Medscape have several vetted studies for Onco PT Palliative/Hospice/EOL care. Good resource. #bcsm |
| Jody Schoger @jodyms Extra thanks again to @fischmd and @ctsinclair - you both rock. #bcsm |
| Michael Fisch MD MPH @fischmd Thanks to all for this open-hearted exchange of ideas and experiences! #bcsm |
| Andrea Torres @miamicrime #bcsm tk u. |
| NOBLE KLEAN LAUNDRY @Shamsutofa RT @fischmd: A favorite poem about grief and loss: Maya Angelou's "When Great Trees Fall" (via Jamie von Roenn) http://t.co/KdgBasrC #bcsm |
| Jody Schoger @jodyms GROUP HUG - and to all of you lurking:) Thanks for listening. Drop in anytime. #bcsm |
| Susan Zager❣️ @a4breastcancer @DrAttai @jodyms @fischmd @ctsinclair @stales thank you all for making another great #bcsm chat. #bcsm #bcsm |
| Christian Sinclair, MD, FAAHPM @ctsinclair Thanks for a great chat. You gave me fuel to make a late night drive to Omaha from Kansas City tonight! #BCSM |
| Jody Schoger @jodyms @fischmd Totally open-hearted - that is #BCSM. I knew you would appreciate this wonderful group and vice versa @ctsinclair. #bcsm |
| Andrea Torres @miamicrime #bcsm love you @xeni |
| Christian Sinclair, MD, FAAHPM @ctsinclair I will repeat my tweet from earlier. If you are more confused after tonight tweet me, I'll take time to clear anything up. #BCSM |
| Aileen Graef @AileenGraef Love all of you and I’m glad that my experience can help anyone who has to go through this ❤❤❤ #BCSM |
| Jody Schoger @jodyms @xeni @aileengraef - Aileen, you were wonderful. Thank you both for joining. #bcsm |
| Oncology Education @mdanderson_poe #bcsm. Thank you for sharing your insights and experiences. Lots learned. Will think about this chat as cme course in PC develops further.. | |
| Alicia C. Staley @stales RT @jodyms: GROUP HUG - and to all of you lurking:) Thanks for listening. Drop in anytime. #bcsm |
| Jody Schoger @jodyms @xeni Totally cool . #bcsm |
 | Dr_Dana @Dr_Dana @jodyms #bcsm Thanks again. Great lurk session. Gonna find out more re local resources.Im glad to hear other surgeons do family mtgs:) |
| Susan Zager❣️ @a4breastcancer Thank you everyone so much GROUP HUG******************Good night #bcsm |
| Jody Schoger @jodyms MT @ctsinclair: I will repeat my earlier tweet: If you are more confused aft tonight tweet me, Ill take time to clear anything up. #bcsm |
| Alicia C. Staley @stales YES! RT @xeni so cool to see a young woman like @AileenGraef in convo. Much love + respect for sharing candidly abt her recent loss. #bcsm |
| Jody Schoger @jodyms @MDAnderson_POE So many excellent questions raised. All valid, all important! #bcsm |
| Alicia C. Staley @stales <<<<<<<<GROUP HUG>>>>>>>>>> #bcsm |
| Alicia C. Staley @stales MT @ctsinclair: I will repeat my earlier tweet: If you are more confused aft tonight tweet me, Ill take time to clear anything up. #bcsm |
| Jody Schoger @jodyms @a4breastcancer Always wonderful to see you - thanks. #bcsm |
| Canadian Virtual Hospice @VirtualHospice #bcsm Are you more confused after tonight's chat? Tweet @ctsinclair, he'll take time to clear anything up. |
| Jody Schoger @jodyms @xeni Or don't call me I'll call you:) NIGHT! #bcsm |
| Alicia C. Staley @stales @AileenGraef Thank you for stopping by and sharing with us. We have learned a great deal from you. Wishing you the best. #bcsm |
 | Comfort Hospice Care @chospice RT @ctsinclair: Hospice and Palliative Care is more than just opioids and pills (although important). Listening is our main tool. #BCSM |
| nancy @uvmer To much conversation from a lurker....I guess I misrepresented myself. S: love to you all..... #bcsm |
| Alicia C. Staley @stales RT @xeni my participation was briefly interrupted by cancer bill collector’s phone call At 945pm. “Call back, man, it’s #BCSM time.” #bcsm |
| Brenda Coffee @BCSisterhood Despite all the cancer care, sometimes we just need a good laugh. Have you met Booker & Verlene? #BCSM http://t.co/11wef2gE |
 | J.Antre @j_antre RT @fischmd: A favorite poem about grief and loss: Maya Angelou's "When Great Trees Fall" (via Jamie von Roenn) http://t.co/KdgBasrC #bcsm |
 | Adriana Bello @adrianabello RT @MDAndersonNews: RT @VirtualHospice: @stales Palliative care includes both physical and emotional comfort. #bcsm |
 | CLOUDHealth™ @CLOUDHealth RT @trifiendurance: On #GivingTuesday, RT to send #cancer survivors to #delhi2013 with @VirginAtlantic #sbau http://t.co/Ocit43Wh #bcsm |
| Jody Schoger @jodyms I'm glad too. It's imp that #BCSM goes every place that cancer does @stales @jodyms I'm grateful you tackled this tough subject for us! |
| Erica Griffin @SurvivorRunner RT @DrAttai: and huge thanks to the ONE & ONLY #BCSM crew! #bcsm |
| Donna Peach @danceswithpens @stales @xeni billing ppl called me while i was hosp #bcsm |
| Alicia C. Staley @stales me too. unbelievable!! RT @danceswithpens: @stales @xeni billing ppl called me while i was hosp #bcsm |
| Canadian Virtual Hospice @VirtualHospice Here's how members on our forum describe palliative care http://t.co/Rhqdl3QL and hospice http://t.co/5ILGSWrU Hope this helps. #bcsm |
| Alicia C. Staley @stales RT @jodyms Im glad too. Its imp that #BCSM goes every place that cancer does @stales Im grateful you tackled this tough subject for us #bcsm |
| Adriana Bello @adrianabello RT @fischmd: Recognizing and managing grief is a key part of #palliative care #bcsm |
| Colleen Young @colleen_young Touché! MT @jodyms: Important that #BCSM goes every place that cancer does. |
 | WearPearl4LungCancer @WearPearlsforLC RT @MDAndersonNews: RT @fischmd: T1: Great answers to common questions about #palliative care and #hospice http://t.co/hfIpO8vW #bcsm |
| Jody Schoger @jodyms RT @colleen_young: Touché! MT @jodyms: Important that #BCSM goes every place that cancer does. |
| Alicia C. Staley @stales there's an analogy to the Orkin Man here. "#BCSM goes every place that cancer goes" that's right, we root it all out & smack it down! #bcsm |
 | Susie Bright @susiebright RT @drseisenberg: We have to think of palliative care not as "pre-hospice", but QOL care from day one. #bcsm |
 | gardengal @tkalex9052 Thank u 4sharing! RT @xeni: #bcsm T4 Here was the photograph. So much love + serenity in that sacred space of hospice. http://t.co/zli7PRLV |
| Andrea Torres @miamicrime @xeni #bcsm that makes me want to curse #debtsucks I think I'm on denial about that 2. |
| NOBLE KLEAN LAUNDRY @Shamsutofa RT @fischmd: Thanks to all for this open-hearted exchange of ideas and experiences! #bcsm |
#BCSM content from Twitter.