#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Terri Coutee @6state RT @DiepFlapBreast: PRMA experts weigh in on Google's new #BreastCancer screening technology here... #AI #Mammogram #bcsm https://t.co/gN… |
| @clairebotai RT @DiepFlapBreast: PRMA experts weigh in on Google's new #BreastCancer screening technology here... #AI #Mammogram #bcsm https://t.co/gN… | |
 | Jen Campisano @JCampisano Eight years ago today, I had my breasts amputated. Here were my thoughts leading up to surgery: https://t.co/QJxHOQnhD7 #bcsm |
| @SoCalDJA Good evening, it's time for the #bcsm chat! | |
 | Alicia C. Staley @stales Good evening everyone! #BCSM |
| Alicia C. Staley @stales Welcome to the #BCSM chat |
 | Howard Karpoff @doctorkarpoff RT @stales: Tonight on #BCSM - We are chatting about Cancer and Isolation. What happens when relationships, friendships, careers change bec… |
| @01bossuet I’m in the 7% who won’t recommend palliative care. In my experience it’s been a confusing, redundant waste of time. | |
 | Hillary Andrews, PhD @HillStirSci @stales 👋🏼👋🏼 #bcsm |
| Jen Campisano @JCampisano Jen in Phoenix here, reflecting on the anniversary of losing my breasts — EIGHT years ago now. #bcsm |
| @itsthebunk Hi to all on the #BCSM chat! | |
| Alicia C. Staley @stales @HillStirSci Hello, hello! #BCSM |
| Alicia C. Staley @stales @itsthebunk hey there! how are you? #BCSM |
 | Julia Maués @itsnot_pink @tmprowell @deniswirtz @advocacy @christeeny513 @GRASPtweets @SABCSSanAntonio @HillStirSci We’re big fans of your work in training scientists, @deniswirtz! Would love to talk about ways to connect scientists+patients living w diseases they study. @christeeny513 & I are living w MBC. @HillStirSci is a cancer researcher who turned her career around after meeting patients |
| Alicia C. Staley @stales @JCampisano Hey! how are you? My date was 1/14 - 12 years ago. #bcsm |
| @itsthebunk @stales Hi! Am ok, how are you? :) #bcsm | |
 | Inspire @InspireIsHealth Hello to #BCSM, John Novack here from Inspire. |
| Alicia C. Staley @stales Tonight on #BCSM - we're talking about isolation. We will get started in a moment. |
| Howard Karpoff @doctorkarpoff Hi all Breast Surgeon from slightly upstate, listening and learning...Hope all are well on this MLK day #bcsm |
| Alicia C. Staley @stales Please say hello! How are you doing this week? #BCSM |
| Jen Campisano @JCampisano @stales I’m getting over the flu 🤒 but otherwise good. Miss this space! And you! How are you? #bcsm |
| Alicia C. Staley @stales Reminder: You can learn more about the #BCSM Community here: https://t.co/rUD9nLTZe4 |
| Alicia C. Staley @stales And you can learn more about the #BCSM tweet chat here: https://t.co/0KzBtOpPgz |
 | Jamie Holloway, PhD @jamienholloway Hi #BCSM friends. Jamie here, 7+ yrs NED after TNBC. Tweeting along until my phone dies. 22% and counting down. |
| Alicia C. Staley @stales If you ever want to suggest a topic for #BCSM, send me a DM, our contact us here: https://t.co/mZtUOmyB6n |
 | Hopeless @gublugublug RT @MedscapeStudent: A #breastcancer surgeon developed breast cancer herself and thought she knew everything there was to know about the di… |
| Alicia C. Staley @stales If you'd like to follow the chat more closely, log into https://t.co/reZgZVsLnl and track the BCSM hashtag #BCSM |
| @itsthebunk @stales I have come to realize that every January I get into a bit of a funk, and then it dawns on me that maybe it's because 26 years ago, right after the #NorthridgeEarthquake, I was dx'd with my 1st breast cancer. I think the psyche remembers even if I don't commemorate. #bcsm | |
| Alicia C. Staley @stales @JCampisano Doing well! Trying to avoid the flu. Miss you too. Nice to see you tonight! #BCSM |
| Julia Maués @itsnot_pink @stales Hello #bcsm friends! Hope you all had a great weekend and MLK Day. I’m recovering from a cold, so will be going to bed early. Have a great chat! ❤️ |
| Alicia C. Staley @stales @itsthebunk doing well, having some cookies. #BCSM |
 | Lex @Lex_in_CO Here from my couch in Colorado. Dx Stage 4 de novo MBC with bone mets June of 2013. #bcsm |
| Alicia C. Staley @stales @itsnot_pink thanks for checking in! #BCSM |
 | Carol L Smith @MetaCarolSmith Excellent point @itsnot_pink . @jamecancerdoc please consider making an MRI for brain mets standard of care at @CleClinicMD for all HER2+ and TNBC pts at all stages. |
| Jen Campisano @JCampisano @itsthebunk @stales I feel this in August. I think the body remembers even when we consciously aren’t thinking about it. #bcsm |
| @itsthebunk @JCampisano HI Jen - heavy stuff. Sending hugs :) #bcsm | |
| Alicia C. Staley @stales Hello to all the lurkers out there. i see you :-) #BCSM |
 | NCI Cancer Stats @NCICancerStats Based on 2012-2016 cases, breast cancer is most common in middle-aged to older women (55-64 years). Learn more about it here: https://t.co/wUKAVg2gqh #BCSM https://t.co/COoFLIBPOE |
| Alicia C. Staley @stales @Brooksx2 Hi there! Nice to see you! #BCSM |
 | IBC Research Fdn @IBCResearch Ginny here in chilly IN. Dx #IBC in 1994. Spend 24/7 in #advocacy & #research #bcsm |
 | Hina Saeed, MD @HinaSaeedMD @itsnot_pink @OncoAlert I think ppl would rather be informed.. |
 | Flori @CANsurvive Hi #BCSM feeling particularly isolated these days so good topic. |
| @itsthebunk @JCampisano @stales YES. #bcsm | |
| Alicia C. Staley @stales @jamienholloway Hey there! nice to see you! #BCSM the race against the battery has started. HA HA |
| Alicia C. Staley @stales @CANsurvive Sending you a hug! Thanks for stopping in tonight. #BCSM |
 | Shanna Marzilli @Shanna_Marzilli Hi #BCSM! 👋 NED almost 5 years 🤞 and joining from chilly Rhode Island. |
| Alicia C. Staley @stales @Shanna_Marzilli Hello, hello from frozen Boston! #BCSM |
| Alicia C. Staley @stales @IBCResearch hey there! #BCSM |
| Alicia C. Staley @stales @teaminspire Hi there! #BCSM |
| Jen Campisano @JCampisano @CANsurvive It comes in waves and then I reach out to members of this incredible community which always helps. #bcsm |
| Alicia C. Staley @stales @doctorkarpoff Hi, how are you? #bcsm |
 | FollowHeidi @FollowHeidi Here for #BCSM - from Atlanta |
 | Dennis Keim @denniskeim Howdy from what may be the biggest ice skating city in the USA, #bcsm friends. 6F outside. :) Stage 1 with ITCs in 2013. NED in NE. |
| Alicia C. Staley @stales @FollowHeidi Hello Atlanta! #BCSM |
| Jen Campisano @JCampisano @FollowHeidi Hi Heidi! Hope you’re doing well! #bcsm |
| IBC Research Fdn @IBCResearch @itsnot_pink @stales Sorry about the cold, dear friend. Feel better soon! 😨#bcsm |
| Alicia C. Staley @stales Alright, let's get started! #BCSM |
| Alicia C. Staley @stales T1: Tonight, we're talking about isolation - during and after a cancer dx. Did you feel isolated at any point during your cancer journey? #BCSM Discuss.... |
| Howard Karpoff @doctorkarpoff @stales Good, thanks. Except for laryngitis which made afternoon hours progressively tougher. How are yoyu #bcsm |
| @itsthebunk RT @stales: T1: Tonight, we're talking about isolation - during and after a cancer dx. Did you feel isolated at any point during your canc… | |
| IBC Research Fdn @IBCResearch @stales Hey! Glad to be #BackToNormal (or nearly so). 3 wk today I was coming home from surgery! #bcsm |
| @itsthebunk RT @JCampisano: @CANsurvive It comes in waves and then I reach out to members of this incredible community which always helps. #bcsm | |
| @itsthebunk RT @CANsurvive: Hi #BCSM feeling particularly isolated these days so good topic. | |
| @SoCalDJA RT @stales: T1: Tonight, we're talking about isolation - during and after a cancer dx. Did you feel isolated at any point during your canc… | |
| Alicia C. Staley @stales @doctorkarpoff Doing well. Hope you are feeling better! #bcsm |
| Jen Campisano @JCampisano @stales A1: absolutely. Writing about my experience helped, and connecting with community here. I actually felt more isolated after I was taken off treatment. A lot of people disappeared then. #bcsm |
| FollowHeidi @FollowHeidi TI: I was first diagnosed with Bcancer while pregnant, in my 30s and a mama to 3 little girls. I was- by DECADES-the youngest one in the chemo infusion room. I felt utterly alone. #bcsm |
 | Stephanie Graff, MD, FACP, FASCO @DrSGraff Little late. Hello #bcsm! Breast Med Onc in Kansas City. Excited to be here tonight. |
| Inspire @InspireIsHealth RT @stales: T1: Tonight, we're talking about isolation - during and after a cancer dx. Did you feel isolated at any point during your canc… |
| Jamie Holloway, PhD @jamienholloway T1: I had a good crew. The only time I felt remotely isolated was when treatment stopped— I was supposedly “all better...” #BCSM |
| Alicia C. Staley @stales @FollowHeidi I can't even imagine. that's so hard. #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff RT @stales: T1: Tonight, we're talking about isolation - during and after a cancer dx. Did you feel isolated at any point during your canc… |
| Flori @CANsurvive @stales A1: I can’t get out of bed. Don’t tell me abt the painter not showing up at ur remodel. #bcsm |
| Lex @Lex_in_CO @stales A1 this community is one way I combat the isolation that STILL comes. We are alone in a sea of uncertainty... together - each of us. #bcsm |
| @itsthebunk sharing to #bcsm. Agree. This translates beyond the treatment phase too. | |
| Shanna Marzilli @Shanna_Marzilli T1: Hell, yes! There is an invisible line between the people who have/had cancer and those who haven’t. Each stage of diagnosis and treatment brought a different kind of isolation. #bcsm |
| @itsthebunk RT @Lex_in_CO: @stales A1 this community is one way I combat the isolation that STILL comes. We are alone in a sea of uncertainty... togeth… | |
| @itsthebunk RT @CANsurvive: @stales A1: I can’t get out of bed. Don’t tell me abt the painter not showing up at ur remodel. #bcsm | |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @jamienholloway I find this to be very common. One of the most common times I prescribe antidepressants is the first post-treatment follow-up. #bcsm |
| FollowHeidi @FollowHeidi Finding #bcsm and Jodi helped so much for my second dx |
| Alicia C. Staley @stales T1: If you can believe it, the main reason I joined twitter was to overcome the cancer isolation maze I found myself in. Twitter helped me find more cancer survivors to connect with... which lead to the start of #BCSM (with @jodyms!) |
| IBC Research Fdn @IBCResearch Being 1st person to have neoadjuvant tx for #breastcancer at my hospital & having #IBC set me apart...couldn't identify with others esp breast cancer folks. Also younger than most. #bcsm |
| Alicia C. Staley @stales RT @Shanna_Marzilli: T1: Hell, yes! There is an invisible line between the people who have/had cancer and those who haven’t. Each stage of… |
 | Carol Oxford @CarolOxford @CANsurvive Hi Flori! Hi #bcsm Tweeting from the train. |
| @itsthebunk RT @jamienholloway: T1: I had a good crew. The only time I felt remotely isolated was when treatment stopped— I was supposedly “all better.… | |
| @itsthebunk RT @Shanna_Marzilli: T1: Hell, yes! There is an invisible line between the people who have/had cancer and those who haven’t. Each stage of… | |
| Alicia C. Staley @stales @Shanna_Marzilli Yes, indeed. So many ways to reinforce the isolation and loneliness. #BCSM |
| @itsthebunk RT @DrSGraff: @jamienholloway I find this to be very common. One of the most common times I prescribe antidepressants is the first post-tre… | |
| @itsthebunk RT @stales: T1: If you can believe it, the main reason I joined twitter was to overcome the cancer isolation maze I found myself in. Twitte… | |
| @itsthebunk RT @IBCResearch: Being 1st person to have neoadjuvant tx for #breastcancer at my hospital & having #IBC set me apart...couldn't identify wi… | |
| Alicia C. Staley @stales @CarolOxford @CANsurvive Welcome! #BCSM |
| Dennis Keim @denniskeim T1: I'm a single guy and pretty much did it solo at home. I had a nurse navigator and responsive cancer center team. #bcsm |
| Alicia C. Staley @stales @IBCResearch Wow - thanks for sharing. #BCSM |
| @itsthebunk RT @denniskeim: T1: I'm a single guy and pretty much did it solo at home. I had a nurse navigator and responsive cancer center team. #bcsm | |
| Alicia C. Staley @stales RT @jamienholloway: T1: I had a good crew. The only time I felt remotely isolated was when treatment stopped— I was supposedly “all better.… |
| Hillary Andrews, PhD @HillStirSci RT @stales: T1: If you can believe it, the main reason I joined twitter was to overcome the cancer isolation maze I found myself in. Twitte… |
 | Sylvie Leotin @sleotin @stales A1: Yes, emotional isolation was a big issue for me. #bcsm I found I had no one to share my emotional suffering with. Mainly because it was not safe. I found myself feeling deflated in conversation with friends and family, so I stopped sharing. |
| Alicia C. Staley @stales @jamienholloway That's interesting. What was it about the end of treatment that made you feel that? #BCSM I felt a similar sense |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey Hey. Running in late. A1: I'll echo what @jamienholloway said, in active tx phase, had a great tribe. When that phase ended, I felt like, "now what?" #bcsm |
| Dennis Keim @denniskeim T1: Agree with Jamie about how you kind of fall off a ledge after active treatment stage is over. That's a problem area. #bcsm |
| Alicia C. Staley @stales @denniskeim I'm sure that was difficult. #BCSM |
| @itsthebunk RT @denniskeim: T1: Agree with Jamie about how you kind of fall off a ledge after active treatment stage is over. That's a problem area. #b… | |
| Carol Oxford @CarolOxford #bcsm ah, this is so much easier! |
| Lex @Lex_in_CO @Shanna_Marzilli Yes. And each subcategory - older or younger. Type and Dx ER/PR or triple neg. BUT we are all human. #bcsm |
| Carol Oxford @CarolOxford RT @LivingBeyondBC: In honor of #MLKDay, we are lifting up the work of our Young Advocates at @thebreastofus, who work to address health di… |
| Dennis Keim @denniskeim @stales I'm used to being alone normally. I got a lot of reading done since I was taking it easy during the worst of it. NOOK FTW! :) #bcsm |
| Alicia C. Staley @stales T1 - amazing insights so far - what made you feel isolated? answers: age differences, cancer vs non cancer friends, treatment differences, cancer staging differences. So much to consider. #BCSM |
| Alicia C. Staley @stales @lpholden Nice to see you! #BCSM |
| Jamie Holloway, PhD @jamienholloway @stales Probably a couple of things. Finally finished with the “work of treatment” and time to process the whole thing. And the expectation (of others and myself) to get back to “normal” but couldn’t emotionally or physically. #bcsm |
| Alicia C. Staley @stales RT @Lex_in_CO: @Shanna_Marzilli Yes. And each subcategory - older or younger. Type and Dx ER/PR or triple neg. BUT we are all human. #bcsm |
| Jen Campisano @JCampisano Have to check out for tonight but will try to join from Tucson next week. Hugs all around. #bcsm |
| @itsthebunk @denniskeim @stales Hi Dennis :) I too am used to being alone... but isolation, feeling like you don't fit in anywhere or like you used to, or feeling like there is no one to relate to is different, IMO from being comfortable being alone. What do you think? #bcsm | |
| Dennis Keim @denniskeim @stales It is disorienting after all the infusion nurses, phlebotomists, doctors and navigators to be pretty much on your own. #bcsm |
| FollowHeidi @FollowHeidi I have found that the best way for me to avoid isolation now is to help others who were/are in similar situations. Guide them to non profits or groups that will help them and their families. #bcsm |
| Alicia C. Staley @stales @jamienholloway Yes, I felt the same way. Treatment in some ways is like a safety net. When it was over, I felt.... lost. #BCSM |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey @stales @jamienholloway IMO the "doing" of tx - surgery, chemo, rads - gives sense of action in one's own defense. Once that's done, most non-patients figure it's "high five and onward" time. Took me years to feel "done." #bcsm |
| Alicia C. Staley @stales RT @MightyCasey: @stales @jamienholloway IMO the "doing" of tx - surgery, chemo, rads - gives sense of action in one's own defense. Once th… |
| @itsthebunk RT @jamienholloway: @stales Probably a couple of things. Finally finished with the “work of treatment” and time to process the whole thing.… | |
| @itsthebunk RT @stales: T1 - amazing insights so far - what made you feel isolated? answers: age differences, cancer vs non cancer friends, treatment d… | |
| Alicia C. Staley @stales Last thoughts for T1? T2 is coming up..... #BCSM |
| Shanna Marzilli @Shanna_Marzilli @jamienholloway @stales I think the lows experienced by those completing treatment are hard to understand if you haven’t been thru it. There is also societal pressure to be happy you are surviving when you might rather be sharing from the ledger of what cancer has taken from you. #bcsm |
| Alicia C. Staley @stales T2: Cancer impacts relationships - family, friends, co-workers. Did these changes add to feelings of isolation? #BCSM |
| Alicia C. Staley @stales RT @Shanna_Marzilli: @jamienholloway @stales I think the lows experienced by those completing treatment are hard to understand if you haven… |
| Flori @CANsurvive @stales A1: #bcsm My inability to truly ask friends/fam what I need from them leaves me the most isolated of all. IT IS SO HARD FOR ME TO ASK FOR HELP. |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @jamienholloway @stales I also think it is the disappointment of anticlimax. You still have doctors and medicine, your body still has healing & recovery. It’s not like you dance out of your last chemo or surgery. And the non-cancer community doesn’t understand that. #bcsm |
| @itsthebunk RT @stales: @jamienholloway Yes, I felt the same way. Treatment in some ways is like a safety net. When it was over, I felt.... lost. #BC… | |
| Alicia C. Staley @stales @Shanna_Marzilli @jamienholloway Yes, that's a good way of describing yet. Pressure from so many perspectives. #BCSM |
| Jamie Holloway, PhD @jamienholloway @stales Was kind of sad to be done seeing the plastic surgeon— because at least I was seeing *someone* with a medical degree every other week! #bcsm |
 | Tess Thompson @drtessthompson RT @stales: T1: Tonight, we're talking about isolation - during and after a cancer dx. Did you feel isolated at any point during your canc… |
| @itsthebunk RT @Shanna_Marzilli: @jamienholloway @stales I think the lows experienced by those completing treatment are hard to understand if you haven… | |
| Alicia C. Staley @stales RT @DrSGraff: @jamienholloway @stales I also think it is the disappointment of anticlimax. You still have doctors and medicine, your body s… |
| @itsthebunk RT @stales: T2: Cancer impacts relationships - family, friends, co-workers. Did these changes add to feelings of isolation? #BCSM | |
| @itsthebunk RT @CANsurvive: @stales A1: #bcsm My inability to truly ask friends/fam what I need from them leaves me the most isolated of all. IT IS SO… | |
| Sylvie Leotin @sleotin @stales A1: In addition, I found that psychosocial support services and tools for cancer patients are insufficient and/or inadequate to combat emotional isolation/devastation. #bcsm |
| Alicia C. Staley @stales RT @CANsurvive: @stales A1: #bcsm My inability to truly ask friends/fam what I need from them leaves me the most isolated of all. IT IS SO… |
 | SeleneSeltzer @SeleneSeltzer RT @LivingBeyondBC: In honor of #MLKDay, we are lifting up the work of our Young Advocates at @thebreastofus, who work to address health di… |
| Sylvie Leotin @sleotin RT @stales: T1: Tonight, we're talking about isolation - during and after a cancer dx. Did you feel isolated at any point during your canc… |
| Dennis Keim @denniskeim @itsthebunk @stales Hey, Liza! I had a bit of that feeling too. Some of it being "new normal" stuff. New limitations. Being a little older probably tempered that for me. Things are changing normally as you age. #bcsm |
| Alicia C. Staley @stales @lpholden Yes, it's hard. Sending you hugs. Wish there was more I could say/do to make it easier. #BCSM |
| Howard Karpoff @doctorkarpoff RT @stales: T2: Cancer impacts relationships - family, friends, co-workers. Did these changes add to feelings of isolation? #BCSM |
| Lex @Lex_in_CO @denniskeim @stales And then reading the EOB’s making sure bills are right and getting paid. Not feeling right to talk about that part when folks ask how@is treatment going ( STILL to this day) #bcsm Who do you share THOSE frustrations with 🤷♀️ |
| @itsthebunk RT @DrSGraff: @jamienholloway @stales I also think it is the disappointment of anticlimax. You still have doctors and medicine, your body s… | |
| Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @stales: T1: If you can believe it, the main reason I joined twitter was to overcome the cancer isolation maze I found myself in. Twitte… |
| Dennis Keim @denniskeim @Shanna_Marzilli Yes, there was a bit of that. For instance, I don't think I was invited to the local bc support group because I was a guy. But I found this group. :) #bcsm |
| @itsthebunk RT @denniskeim: @stales It is disorienting after all the infusion nurses, phlebotomists, doctors and navigators to be pretty much on your o… | |
| Alicia C. Staley @stales @Excl_Holistic @teaminspire hugs to the son. #bcsm |
| Alicia C. Staley @stales RT @Lex_in_CO: @denniskeim @stales And then reading the EOB’s making sure bills are right and getting paid. Not feeling right to talk about… |
| Lex @Lex_in_CO And I am SO glad you did (even if the dogs insist that THIS is the hour they need attention) seriously though #bcsm is a real CONNECTION |
| Jamie Holloway, PhD @jamienholloway Same. #bcsm |
| Alicia C. Staley @stales @Lex_in_CO @denniskeim Such a good point - with the situation that a cancer dx puts you in, the experience is isolating, in and of itself. #bcsm |
| Alicia C. Staley @stales @Lex_in_CO @denniskeim it's like an isolation continuum. :-( #BCSM |
| Alicia C. Staley @stales @Lex_in_CO Thank you for saying that! Means so much! #bcsm xoxoxo |
| @itsthebunk RT @SeriFeliciano: Hello #bcsm !!! Here to appreciate this pioneering space for patient support. It is difficult to discuss loneliness open… | |
| Alicia C. Staley @stales @UppityCancerP @CANsurvive xoxoxo #bcsm |
| Alicia C. Staley @stales @UppityCancerP @CANsurvive ps hello! #bcsm |
| Alicia C. Staley @stales RT @Lex_in_CO: @stales A1 this community is one way I combat the isolation that STILL comes. We are alone in a sea of uncertainty... togeth… |
| Alicia C. Staley @stales @lpholden Happy almost birthday to Bob!! GO BOB GO! #BCSM |
| @itsthebunk @stales @Lex_in_CO @denniskeim OMG #IsolationContinuum. TRUTH. I am 26 years out of my first one, and have had two subsequent dxs (primaries). Am 10 years out from the third, and I STILL experience certain kinds of isolation due to it all. #bcsm | |
| @itsthebunk RT @stales: @Lex_in_CO @denniskeim it's like an isolation continuum. :-( #BCSM | |
| @StrongHeartNow1 @stales Hi everyone! I’m just getting here. Great topic!! ❤️ #bcsm | |
| FollowHeidi @FollowHeidi It’s important to recognize that the isolation felt by cancer patients can also extend to caregivers and family. They also feel alone and scared, I’m afraid @DrAttai @stales #BCSM |
| Alicia C. Staley @stales @SeriFeliciano Thanks for stopping by! Appreciate the kind words. #BCSM rocks! |
| @itsthebunk @CANsurvive @stales Oh man I hear you. So sorry if it seemed I assumed. #bcsm | |
| Sylvie Leotin @sleotin @stales A2: Absolutely, cancer has a way to change everything in our lives and relationships were not excluded. #bcsm I lost friends after my cancer diagnosis. It was painful. Some were scared. Others were uncomfortable dealing with someone with cancer. |
| Alicia C. Staley @stales @LT_Lymphomie hey there!!! how are you my friend? #bcsm |
| Flori @CANsurvive @itsthebunk @stales No—not at all, your advice is sound. I forget to say I’m 23 yrs fr original dx and 12.5 mbc. I think I just realized right here right now that it’s hard to ask for nurturing. That’s what I really need. Aka regression, I want my mommy. #bcsm |
| @itsthebunk [REDACTED USER] @stales @DrAttai @jamienholloway It can help to understand that this phase is coming. Some people call it the "cliff" of cancer... #bcsm | |
| @itsthebunk @CANsurvive @stales I so hear you. It is such a profound need. :( #bcsm | |
| @itsthebunk RT @CANsurvive: @itsthebunk @stales No—not at all, your advice is sound. I forget to say I’m 23 yrs fr original dx and 12.5 mbc. I think I… | |
| Sylvie Leotin @sleotin @stales A2: Much much later I understood that the friends who disappeared were for the best. They did not have the skills to talk to someone with cancer. They would have hurt me more if they had stayed. #bcsm |
| IBC Research Fdn @IBCResearch As others have said, after a dx there are friends who disappear, even family may step away...new friends, due to cancer, may emerge. Often you can't go back because you've changed. Hard for ppl to understand. #bcsm |
| @SoCalDJA @UppityCancerP @lpholden @stales what the... I think that wins the prize for s*#t people say... #bcsm | |
| Alicia C. Staley @stales Metastatic Breast Cancer reality check....... ----> #BCSM |
 | 33 Years @thirty3years Nashville Tour Stop! #lovedontlivehere #lovedontlivehereanymore #nashvilletn #nashvilletourstop #nash #songwriter @theaaronschilb countrymusicjesus @nashtourstop belcourttaps @UndiscoveredNa1 @shop615… https://t.co/XXENFOVlzu |
| Alicia C. Staley @stales RT @IBCResearch: As others have said, after a dx there are friends who disappear, even family may step away...new friends, due to cancer, m… |
| Sylvie Leotin @sleotin RT @stales: T2: Cancer impacts relationships - family, friends, co-workers. Did these changes add to feelings of isolation? #BCSM |
| Alicia C. Staley @stales @SeriFeliciano Reach out anytime! #bcsm |
| Alicia C. Staley @stales T3 coming up! #BCSM |
| @itsthebunk @UppityCancerP @lpholden @stales What the eff is wrong with people??? Sorry, Uppity :( Keep dancing! #bcsm https://t.co/55pU8i3AsL | |
 | Enlightening Results 💡 @GraceCordovano RT @MightyCasey: Hey. Running in late. A1: I'll echo what @jamienholloway said, in active tx phase, had a great tribe. When that phase ende… |
| @itsthebunk RT @sleotin: @stales A2: Much much later I understood that the friends who disappeared were for the best. They did not have the skills to t… | |
 | Linda Holden @lpholden @DrAttai @UppityCancerP @stales I agree! #bcsm |
| Alicia C. Staley @stales T3: Isolation and feelings of isolation are real - and can be overwhelming when relationships change, friends disappear, nothing seems right. How do you deal with it? Advice to help the #BCSM community? What has worked for you? |
| Jamie Holloway, PhD @jamienholloway Phone battery check: 11%. I might make it to 10pm! #bcsm |
| @itsthebunk RT @sleotin: @stales A2: Absolutely, cancer has a way to change everything in our lives and relationships were not excluded. #bcsm I lost… | |
| Lex @Lex_in_CO Most isolating incident came after 1st Christmas letter the year Dx and treated. Got a call from a good friend lived far away. Angry and hurt - I didn’t reach out. “Don’t ever contact me again.” Because she was hurt - I think 😢 sorry #BCSM |
 | marylinn c. minor @marylinnminor1 RT @Deadline2020: Attn: #BCSM community and #breastcanceradvocates! #NBCC is now accepting applications for #ProjectLEAD 2020 (July 26-31,… |
| Alicia C. Staley @stales @jamienholloway LOL. I won't send a funny GIF so the battery power can be conserved. #BCSM |
| Alicia C. Staley @stales RT @sleotin: @stales A2: Much much later I understood that the friends who disappeared were for the best. They did not have the skills to t… |
| Jamie Holloway, PhD @jamienholloway @stales You’re tempting me! #bcsm |
| Sylvie Leotin @sleotin @stales A3: Dealing w/ emotional isolation was very difficult. #bcsm I tried many support groups, but none really felt right. Until one day I landed in a writing support group for cancer patients. That group I loved. I felt I could connect at a deeper level through writing and sharing. |
| Alicia C. Staley @stales @LT_Lymphomie That's alright! We're always here :-) HA HA So glad you could stop in. #BCSM |
 | Low Grade Glioma Registry @gliomaregistry RT @BTSMchat: Looking for some connection today? Our friends at #bCsm are hosting a tweet chat tonight focused on cancer and isolation. Th… |
| Alicia C. Staley @stales @sleotin Oh, that's so good to hear! Thank you for sharing. #BCSM |
| Alicia C. Staley @stales @jamienholloway hee hee hee......... #BCSM |
 | Alicia Aebersold @aliciacollin @DrAttai @stales I’m grateful for @stales and @DrAttai and #bcsm. |
| @itsthebunk [REDACTED USER] @stales @DrAttai @jamienholloway Well, you have a sense of humor so that WILL help! :-) Good ole Wile E. Coyote always seems to survive the drop! #bcsm https://t.co/9087Y0pncF | |
| Alicia C. Staley @stales You know what's totally underrated? The sense of humor the #BCSM crew shows in the face of some extremely challenging conversations. You always go to the strengths. XOXO #BCSM |
| Dennis Keim @denniskeim @Lex_in_CO @stales I was lucky in that a friend of mine who'd been through breast cancer treatment years ago called me to see how things were going. Nothing like having someone that gets you. And she's hilarious too. A real plus day for me. #bcsm |
| Alicia C. Staley @stales @aliciacollin @DrAttai "What's better than one Alicia? TWO ALICIAs" xoxo to @aliciacollin #boom #bcsm |
| IBC Research Fdn @IBCResearch Yes, this! #bcsm |
| @itsthebunk RT @denniskeim: @Lex_in_CO @stales I was lucky in that a friend of mine who'd been through breast cancer treatment years ago called me to s… | |
| Lex @Lex_in_CO #T3 Eat Love Pray. Be good to yourself. I decided I wasn’t like anyone else. 👌 We are all different and “they” can’t understand because I barely understand it on good days. #BCSM |
| Alicia C. Staley @stales RT @denniskeim: @Lex_in_CO @stales I was lucky in that a friend of mine who'd been through breast cancer treatment years ago called me to s… |
| @itsthebunk RT @stales: You know what's totally underrated? The sense of humor the #BCSM crew shows in the face of some extremely challenging conversat… | |
| FollowHeidi @FollowHeidi For me, it requires a constant and deliberate course of action. Reaching out to trusted friends, helping new fellow patients, going to cancer conferences, connecting with everyone who is open. But the BEST way is to help others- help with almost militant drive. #bcsm |
| Alicia C. Staley @stales @SusanRuddick1 ME TOO!!!!! #bcsm |
| Sylvie Leotin @sleotin @stales A3: I am now working on building a new company to address the emotional isolation of cancer with new technologies. #bcsm I have a background in technology, design, and now the experience of cancer. Stay tuned. |
| @itsthebunk @stales YES!! A sense of humor is one of the KEYS to combatting isolation! I had one MD w/the most bonkers & wonderfully dark sense of humor and it just clicked for me. I felt much more alone when she was no longer on my team (surgeon, so did not accompany me all the way through). #bcsm | |
| @itsthebunk RT @IBCResearch: Yes, this! #bcsm https://t.co/iS3WyfVtSn | |
| @itsthebunk RT @FollowHeidi: For me, it requires a constant and deliberate course of action. Reaching out to trusted friends, helping new fellow patien… | |
| Flori @CANsurvive @stales #bcsm A3: until recently I was part of a social dance community. Going out 2-3 x a week, connecting to community. Getting out of cancer world and getting out of my head chatter. HEAVEN! |
| IBC Research Fdn @IBCResearch Ppl talk about the #newnormal & it's true, you have to decide how to deal with the changes & isolation and build your community again. Some from before & some after cancer ppl. Build what works for you & keep finding joy. #bcsm |
| @itsthebunk @UppityCancerP @stales OMG! You are hilarious! You would have loved my surgeon (mentioned in another of my tweets) as we seem to have the same kind of wacky sense of humor about these things!! :-) #bcsm | |
| Sylvie Leotin @sleotin @CANsurvive @stales I love to dance! I used to be a pro ballerina. Now I don't dance anymore. I meditate and do yoga. I find it very healing. #bcsm |
| Alicia C. Staley @stales Final thoughts for tonight's chat on isolation? How can #BCSM help you? Need help? Need advice? let us know.... #bcsm |
| Jamie Holloway, PhD @jamienholloway T3: I relied heavily on a monthly in-person support group after finishing treatment. They could relate to the fears and frustrations that non-cancer friends just didn’t understand. #bcsm |
| Alicia C. Staley @stales @jamienholloway 2 minutes left..... GIPHY launch commences in 3...2...1.... #BCSM |
| @itsthebunk RT @jamienholloway: T3: I relied heavily on a monthly in-person support group after finishing treatment. They could relate to the fears and… | |
| FollowHeidi @FollowHeidi Another key factor to help with loneliness during #cancer-learning to avoid people that cause you heartache. They aren’t worth listening to, engaging with, working for if they cause you to feel even more isolation. A few that cares/understands> many that don’t #BCSM @stales |
| Alicia C. Staley @stales @jamienholloway Cookie break. #BCSM https://t.co/gtiZ1M4urk |
| Dennis Keim @denniskeim I'm fairly outgoing when it comes to talking about my experiences with breast cancer. I enjoy helping others where I can. #bcsm |
| @itsthebunk RT @IBCResearch: Ppl talk about the #newnormal & it's true, you have to decide how to deal with the changes & isolation and build your comm… | |
| @itsthebunk RT @FollowHeidi: Another key factor to help with loneliness during #cancer-learning to avoid people that cause you heartache. They aren’t w… | |
| Lex @Lex_in_CO RT @FollowHeidi: Another key factor to help with loneliness during #cancer-learning to avoid people that cause you heartache. They aren’t w… |
| Alicia Aebersold @aliciacollin @stales I usually just lurk & listen to all of you & that helps me a lot. I feel less alone just knowing you are there & reading your stories even if I don’t interact. So thank you #bcsm. |
 | OncLive SOSS @OncLiveSOSS Denise Yardley, MD, highlights the utility of CDK4/6 inhibitors in metastatic HR+/HER2- breast cancer #bcsm https://t.co/Rim7XUwrHr |
| Sylvie Leotin @sleotin @stales A3: Other things that have been very healing for me emotionally are reiki and healing touch. #bcsm I am lucky my local cancer support center offers such therapies for cancer patients. |
| Alicia C. Staley @stales RT @sleotin: @stales A3: Other things that have been very healing for me emotionally are reiki and healing touch. #bcsm I am lucky my loca… |
| Dennis Keim @denniskeim I retired last year and so that added another layer of disconnectedness. So I signed up for a co-working space downtown last year. #bcsm |
| Jamie Holloway, PhD @jamienholloway @stales My journey through tonight’s #bcsm: https://t.co/v6NS5iryrU |
| @itsthebunk RT @denniskeim: I'm fairly outgoing when it comes to talking about my experiences with breast cancer. I enjoy helping others where I can.… | |
| Lex @Lex_in_CO Ha. How about this for tonight #BCSM https://t.co/qkpYZwh5aO |
| Alicia C. Staley @stales @aliciacollin reach out anytime! xoxo so glad to know #BCSM helps |
| Alicia C. Staley @stales RT @jamienholloway: T3: I relied heavily on a monthly in-person support group after finishing treatment. They could relate to the fears and… |
| @StrongHeartNow1 A3 Giving myself full permission to practice self care without guilt, making changes in my life to follow my passion and purpose rather than doing what I think is "expected" of me. #bcsm | |
| Alicia C. Staley @stales Good night party people #bcsm |
| @itsthebunk @aliciacollin @stales Thank you for sharing this. It helps to be reminded that our tweets don't fall in a vacuum. I too learn so much and am comforted by knowing you are all there :-) #bcsm | |
| Alicia C. Staley @stales GROUP HUG #bcsm |
| Alicia C. Staley @stales Good night moon #bcsm |
| @itsthebunk @jamienholloway @stales Love this, Jamie! And HI AND HUGS!!! XOXOXO #bcsm | |
| Alicia C. Staley @stales @jamienholloway HA HA HA!!! OMG. of course there is a GIF for that!!!! #BCSM |
| @StrongHeartNow1 A3 Going all in as an advocate to bring about positive change... with the intent to transform the manure of cancer into fertilizer. This has created an amazing connection and community in my life. #bcsm https://t.co/P3Hyxtm90J | |
| Alicia C. Staley @stales @SeriFeliciano @DrAttai @gliomaregistry check out @healthhashtags and @symplur #BCSM |
| @itsthebunk Thanks as always @stales! Here's my contribution!! LOL! #bcsm https://t.co/nbKfkxOyS0 | |
| Dennis Keim @denniskeim My favorite funny moment was after my biopsy getting a pink bra cooling pad. Sometimes you have to laugh. :) #bcsm |
| Alicia C. Staley @stales cc: @jamienholloway #BCSM xoxo |
| Alicia C. Staley @stales Good night everyone! Great chat. See you next week! #bcsm |
| Sylvie Leotin @sleotin @stales I would love to connect with #bcsm patients who would like to provide input/feedback on a new social tech product to help cancer patients. |
| Jamie Holloway, PhD @jamienholloway @stales Good night! Off to charge up. 4% and dropping. #bcsm |
| Alicia C. Staley @stales @sleotin Would love to hear more! #BCSM |
| @SoCalDJA @SeriFeliciano @stales @gliomaregistry Here are 2 publications, both @subatomicdoc et al: https://t.co/1ZLO6jcz7a and https://t.co/W9VBfielZh #bcsm | |
| @itsthebunk @stales @SeriFeliciano @DrAttai @gliomaregistry @healthhashtags @symplur As @stales said... check out @symplur and explore https://t.co/2GwcWqHb9u... it might just blow your mind! (disclosure: I am a consultant for them) :) #bcsm | |
| IBC Research Fdn @IBCResearch Thanks for tackling an often overlooked topic. Have a great week...will miss next week as I'll be #ontheroad again! #bcsm |
 | Beverly Hills Women’s Center @obgyn90210 Swipe left for video ⬅️👨⚕️ #Endometriosis is often difficult or impossible to detect via ultrasound. In order to make a proper diagnosis of endometriosis, a #laparoscopy is often times needed.🙍♀️ During a… https://t.co/XmLJQhqwzb |
| IBC Research Fdn @IBCResearch @itsthebunk @stales I'm the happy little cloud up there in the sky 😁#bcsm |
| Sylvie Leotin @sleotin @stales That was my first #bcsm chat. It was great! Thank you! |
| @itsthebunk Tonight's #BCSM Transcript on Cancer and Isolation, January 20th 2020 https://t.co/P6wmEkPGEW via @symplur | |
| @itsthebunk The numbers: 391 Tweets. 49 Participants. 2,958,194 Impressions. January 20th 2020. More #BCSM 📊 here https://t.co/K5v335zENS via @symplur | |
 | Seri Feliciano @jmtfeliciano @itsthebunk @stales @DrAttai @gliomaregistry @healthhashtags @symplur We've actually worked with Symplur before. As a software engineer, I have an appreciation for @symplur and its ongoing role in lowering the technological barriers for healthcare analytics. |
| IBC Research Fdn @IBCResearch Check out this link on CDK 4/6 inhibitors in #metastatic #breastcancer Dr. Yardley @SarahCannonDocs #TenneseeOncology is a member of our Medical Advisory Board! #bcsm |
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