#BCSM Transcript

Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.

ProfileTweet
NCI Cancer Stats @NCICancerStats
In 2014, there were an estimated 3.3 million women living with #BreastCancer in the United States. More stats here: https://t.co/YvNRoeQmwg #BCSM https://t.co/OMi8K8l5nm
Lex @Lex_in_CO
Checking in and chilling out #bcsm Cold in Colorado
Alicia C. Staley @stales
Good evening. #BCSM
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
Greetings from FL! Dx Mar 2014 Stage Ia bcs/chemo/rads, now on anastrozole and NED. Great mtg @coffeemommy at #SurvOnc18! #bcsm
Alicia C. Staley @stales
Hello everyone! #bcsm
Lex @Lex_in_CO
RT @stales: Tonight on #bcsm - How do you regain confidence and courage to move forward after a cancer diagnosis? Join us at 9 PM et
Alicia C. Staley @stales
@Elissa_Malcohn Hi there! Welcome #bcsm
Alicia C. Staley @stales
@DrAttai hi! #bcsm
Alicia C. Staley @stales
@Lex_in_CO hello, hello! #bcsm
Juan C Trabucco @Trabucco65
RT @NCICancerStats: In 2014, there were an estimated 3.3 million women living with #BreastCancer in the United States. More stats here: In 2014, there were an estimated 3.3 million women living with #BreastCancer in the United States. More stats here: https://t.co/YvNRoeQmwg #BCSM https://t.co/OMi8K8l5nm
Alicia C. Staley @stales
Tonight, we're talking about regaining confidence and courage after a cancer diagnosis. #bcsm
Alicia C. Staley @stales
We will get started in a moment. #bcsm
Alicia C. Staley @stales
Please take a moment to say hello. #bcsm
Dennis Keim @denniskeim
Howdy, #bscm peeps. Taking a break from watching "The Zookeeper's Wife" to participate tonight. Dx in 2013. Still NED in cold NE. #bcsm
Jamie Holloway, PhD @jamienholloway
Hi #bcsm friends! Jamie here in Northern VA. NED 5yrs after stage2 TNBC. Scientist and advocate.
IBC Research Fdn @IBCResearch
One eye on the computer & one on the Olympics here in balmy Indiana tonight #bcsm
Alicia C. Staley @stales
I'm Alicia - 3x cancer survivor, co-founder of #BCSM.
Alicia C. Staley @stales
@jamienholloway Hi Jamie! How are you? #bcsm
Howard Karpoff @doctorkarpoff
Hi all Breast Surgeon from slightly upstate NY lurking @DrAttai - what constitutes chilly in SoCal. 41 and raining here #bcsm
Dr_Dana @Dr_Dana
Good evening. Breast surgeon in Little Rock. @drattai what's chilly for you? Balmy 75 here today;) #bcsm
Alicia C. Staley @stales
@IBCResearch Hello there! #bcsm
Alicia C. Staley @stales
@denniskeim hi Dennis! #bcsm
Jamie Holloway, PhD @jamienholloway
@stales Good thanks! And you? Good to see you tonight! #bcsm
Dr_Dana @Dr_Dana
@doctorkarpoff @DrAttai Great minds think alike. lol #bcsm
Alicia C. Staley @stales
@Dr_Dana @drattai Hello from cold and rainy Boston! #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
hello from balmy Houston! 73F w 89% humidity...at 8pm. and its only February! #bcsm
Alicia C. Staley @stales
@IshwariaMD Hi there! #bcsm
Alicia C. Staley @stales
@jamienholloway Doing well! 2018 is off to fast start. Can't believe it's almost end of feb! #bcsm
Jamie Holloway, PhD @jamienholloway
@IBCResearch Me too, Ginny! Can't look away from the Olympics-- so much fun! #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@stales @Dr_Dana @DrAttai I remember those cold and rainy Boston days. :-) #bcsm
Alicia C. Staley @stales
@Brooksx2 @Elissa_Malcohn Hi there! How are you? #BCSM
Lex @Lex_in_CO
Dx in 2013 Stage 4 de novo & happily still here 🤪 mostly #bcsm
Dr_Dana @Dr_Dana
@DrAttai @doctorkarpoff Dang!That is chilly for y'all! #bcsm
Alicia C. Staley @stales
For more information on #BCSM --- check out: https://t.co/rUD9nLTZe4
Alicia C. Staley @stales
And for more on the mechanics of the tweet chat, check out: https://t.co/0KzBtOpPgz #bcsm
Alicia C. Staley @stales
If you are lurking, don't forget to send out a tweet with #BCSM to let us know you're here. (only if you want to)
Enlightening Results 💡 @GraceCordovano
Hi #bcsm! Grace, private cancer patient advocate, joining from crazy weather NJ. 5 inches of snow on the ground and 70 tomorrow.
Stephanie Graff, MD, FACP, FASCO @DrSGraff
34 in Kansas City! Hi all 👋🏻 #bcsm
Danielle Karber @danielle_dk
Hello from South Dakota! #bcsm
Enlightening Results 💡 @GraceCordovano
@stales Hi Alicia! So great to be here tonight! #bcsm
Jamie Holloway, PhD @jamienholloway
@GraceCordovano Hi Grace! Snow this weekend here in DC and 75 tomorrow! Crazy! #bcsm
Danielle Karber @danielle_dk
And it’s 15 degrees here. #bcsm
Jamie Holloway, PhD @jamienholloway
@DrSGraff Hi Stephanie! Good to see you here! #bcsm
Enlightening Results 💡 @GraceCordovano
@DrAttai NJ can't figure it out...snow on the ground and 70 tomorrow #bcsm
IBC Research Fdn @IBCResearch
@stales Hey Alicia! Which coast are you on tonight 😊? #bcsm
Social✽Fly @socflyny
RT @stales: Tonight, we're talking about regaining confidence and courage after a cancer diagnosis. #bcsm
Enlightening Results 💡 @GraceCordovano
@Elissa_Malcohn @coffeemommy Glad you could join! Some amazing work coming out of #Survonc18 #bcsm
Enlightening Results 💡 @GraceCordovano
RT @stales: Tonight, we're talking about regaining confidence and courage after a cancer diagnosis. #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@DrSGraff what's halfway b/w KC and Houston? Maybe its the perfect temp there! :) #bcsm
Enlightening Results 💡 @GraceCordovano
@denniskeim Nice to see you here Dennis! How's the movie so far? #bcsm
Alicia C. Staley @stales
@IBCResearch East Coast! #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@IshwariaMD Arkansas! #bcsm
Enlightening Results 💡 @GraceCordovano
@jamienholloway Hey Jaime! Hope you had a nice weekend #bcsm
Alicia C. Staley @stales
@GraceCordovano Hi Grace! #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@GraceCordovano @DrAttai Hot flash anyone? :) #bcsm
Alicia C. Staley @stales
@DrSGraff Hello, hello! #bcsm
Alicia C. Staley @stales
@danielle_dk hi there! nice to see you! #bcsm
Alicia C. Staley @stales
@MyBRCAJourney Hi there! Welcome! #bcsm
Smith-Brooks @Brooksx2
#bcsm https://t.co/RI88iJIxwV
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@GraceCordovano Was my 1st cancer conf. Took every chance I could to step up to the mic + give pt view. Great networking mtgs. #bcsm
Enlightening Results 💡 @GraceCordovano
@IshwariaMD Wow! We have 5 inches of snow, rain, heavy fog, and apparently 70 tomorrow in NJ. #bcsm
Dennis Keim @denniskeim
@GraceCordovano I'm 40 minutes in and the Nazi's have taken over Warsaw. And the Resistance is forming. #bcsm
Enlightening Results 💡 @GraceCordovano
@DrSGraff Great to see you Stephanie! #bcsm
Alicia C. Staley @stales
Okay! Let's get started! #bcsm
Enlightening Results 💡 @GraceCordovano
@jamienholloway Supposed to be 70 tomorrow. It's going to be a bit weird when I wear flip-flops tomorrow in the snow. #bcsm
Lex @Lex_in_CO
@IshwariaMD @GraceCordovano @DrAttai You know it. I have been known to just go outside for a minute. Even in the extreme cold FIRE AND ICE #bcsm
Nicki Boscia Durlester @NickiDurlester
RT @LguzzardiM: “All good things must come to an end. The time that I knew was borrowed must be given back soon, so it seems. “ @MsEmmaHannigan @BreastCancerIre #LetterstomyDaughters #hereditarycancer #bcsm #BRCA #Legacy #sharingiscaring #KindnessMatters #braveheart https://t.co/OsVgd34pC0
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@denniskeim @GraceCordovano That’s a confusing tweet out of context! 😜 #bcsm
Jen Campisano @JCampisano
Hi, all! Jen from Phoenix. I don’t even know how to classify my breast cancer story... Misdiagnosed with mets, treated for 4.5yrs, and almost 2 yrs out from that. Had a surprise miracle baby 3 mos ago. #bcsm
Alicia C. Staley @stales
T1: For many, a cancer diagnosis brings about major changes. It destroys confidence. How do you regain confidence after your dx? #bcsm
Alicia C. Staley @stales
@JCampisano Hi there. How are you? Nice to see you! #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@GraceCordovano I feel your pain. There was one day in Houston in January where temp was 74F at 730am and dropped to 41F at 4pm. There was no way to get dressed for that day. Summer dress in AM, Ski suit in PM. #bcsm
SPECFORD59 @SPECFORD59
@stales Lurking #BCSM. Regards symptoms of recurrence some insurers have set the PA bar too high. Physician’s should have immediate access to decision makers to approve critical imaging.
Dennis Keim @denniskeim
@DrSGraff @GraceCordovano Yes, better to take such conversations off chat. Sorry, all! #bcsm
Jamie Holloway, PhD @jamienholloway
@stales T1-- what kind of confidence are we talking? Probably several different answers there... #bcsm
Enlightening Results 💡 @GraceCordovano
@denniskeim My family is from Poland. Now I have to watch it. #bcsm
Hillary (Stires) Andrews, PhD @HillStirSci
@stales Hi all! I’m a postdoc at @LombardiCancer studying hormones and breast cancer. Happy #PresidentsDay2018! #bcsm
Jen Campisano @JCampisano
RT @stales: T1: T1: For many, a cancer diagnosis brings about major changes. It destroys confidence. How do you regain confidence after your dx? #bcsm
Alicia C. Staley @stales
@HillStirSci @LombardiCancer Welcome!! #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
T1: Didn't think in terms of confidence so much as physical frailty. Coped by finding workarounds, ways to adapt. #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
RT @stales: T1: T1: For many, a cancer diagnosis brings about major changes. It destroys confidence. How do you regain confidence after your dx? #bcsm
Alicia C. Staley @stales
@jamienholloway Let's start with self-confidence #bcsm
Jamie Holloway, PhD @jamienholloway
T1: I remember distinctly standing in my kitchen talking about a health issue-- "it's probably nothing. Though I feel like my body's let me down a lot lately..." Still struggle with health confidence. #bcsm
Suzanne Gauvreau @Ptsbestfriend
Take a new class something you won't need to do at the top, just for fun. I took belly dance to hold my upper body in a better posture #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
RT @Elissa_Malcohn: T1: T1: Didn't think in terms of confidence so much as physical frailty. Coped by finding workarounds, ways to adapt. #bcsm
Howard Karpoff @doctorkarpoff
RT @Elissa_Malcohn: T1: T1: Didn't think in terms of confidence so much as physical frailty. Coped by finding workarounds, ways to adapt. #bcsm
Danielle Karber @danielle_dk
My main lack of confidence was hair loss...looking like a chemo patient. I HATE being pitied! #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
T1: Greatest emotional effect after dx was wistfulness at needing yard work help. Blow to self-sufficient mindset. Had 2 suck it up. #bcsm
Alicia C. Staley @stales
T1: I was surprised to find many studies about this topic: https://t.co/lTKzArvEmG #bcsm
Enlightening Results 💡 @GraceCordovano
@HillStirSci @stales @LombardiCancer Hi Hillary! Hope you had a nice weekend. #bcsm
Howard Karpoff @doctorkarpoff
RT @stales: T1: I was surprised to find many studies about this topic: T1: I was surprised to find many studies about this topic: https://t.co/lTKzArvEmG #bcsm
Howard Karpoff @doctorkarpoff
RT @danielle_dk: My main lack of confidence was hair loss...looking like a chemo patient. I HATE being pitied! #bcsm
IBC Research Fdn @IBCResearch
T1: I don't think I had much self-confidence before cancer. Dx was a wake-up & permission to take more risks. #bcsm
Jen Campisano @JCampisano
Body confidence? Which could be either trusting in your body again or being comfortable naked again (related: sexual confidence). Or do you mean emotional (I won’t cry every day) kind of confidence? #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
T1: Biggest workaround: turned to art when chemo interfered w/writing, reading. Long as I kept creative sanity I was okay. #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
Cancer exercise therapists have some really great strategies to help with that! @bewellwithsami leads a CrossFit class for cancer survivors. I think #exercise #strength #fitness are all great strategies to rebuild #bcsm https://t.co/KXBpke4U7k
Frank Ingram, MD @Chucktowndoc
Frank here. Community pathologist from NC. #bcsm
Lex @Lex_in_CO
#bcsm Ignorance is bliss 🤷‍♀️ sometimes I honestly pretend ... like back before I knew the cancer was there - if I could do it then why it NOW!
Dennis Keim @denniskeim
T1: I found my confidence coming back slowly over time as the side effects from chemo ebbed. Being patient with oneself is helpful. #bcsm
Suzanne Gauvreau @Ptsbestfriend
Belly dance required looking at myself in the mirror and using my body in different ways, shoulders & chest high, better than PT. #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
Body image has a major impact on self-confidence. A must read in Jan's @JCO_ASCO: Restoring Body Image After Cancer (ReBIC): Results of a Randomized Controlled Trial of an 8wk group intervention in women after BC treatment. https://t.co/h4EE21OITW #bcsm https://t.co/ukVSnUhZMK
Jen Campisano @JCampisano
Yoga and hiking helped me immensely when going thru treatment. I needed to remember my body was strong. #bcsm
Enlightening Results 💡 @GraceCordovano
#bcsm https://t.co/csmbReR6d1
Dennis Keim @denniskeim
@DrAttai Do what you can when you can. That was my mantra through chemo and after. Much more pacing at the end of chemo, of course. #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
Manual-based intervention combined expressive guided-imagery exercises+group-therapy principles-facilitated exploration of identity, development of new self-schemas, personal growth. Plus educational component on social/cultural factors affecting women’s self-esteem and BI. #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
T1: Limitations from being long-term caregiver helped me adapt via 1. coping tools 2. mindset--how best to care for partner during tx #bcsm
Alicia C. Staley @stales
RT @denniskeim T1: I found my confidence coming back slowly over time as the side effects from chemo ebbed. Be patient #bcsm
Liz Johnson @wired4story
RT @double_whammied: Good piece on #lymphedema after #breastcancer surgery and some new procedures that might help eradicate it. #bcsm 'She Survived Breast Cancer, But Says A Treatment Side Effect 'Almost Killed' Her' https://t.co/mnmBfdz36S
Alicia C. Staley @stales
@Chucktowndoc Hi there! Welcome! #bcsm
Lex @Lex_in_CO
#bcsm Body or physical confidence a little different. i dint wear high heels as much because trust issues with balance 🤪
Howard Karpoff @doctorkarpoff
RT @denniskeim: T1: T1: I found my confidence coming back slowly over time as the side effects from chemo ebbed. Being patient with oneself is helpful. #bcsm
Jen Campisano @JCampisano
But that carefree confidence (naïveté) of my pre-cancer days is gone. I know all too well that life is fragile and can be cut short. Hard to get that sense of innocence back. #bcsm
Alicia C. Staley @stales
Great points MT @Elissa_Malcohn T1: Limitations from being long-term caregiver helped me adapt via 1. coping tools 2. mindset-- #bcsm
Howard Karpoff @doctorkarpoff
RT @Elissa_Malcohn: T1: T1: Limitations from being long-term caregiver helped me adapt via 1. coping tools 2. mindset--how best to care for partner during tx #bcsm
Alicia C. Staley @stales
RT @IshwariaMD Body image has a major impact on self-confidence @JCO_ASCO: https://t.co/DUiBxMfDAh #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@IBCResearch Yes! I see this. A diagnosis creating opportunity to stand up, to fight for yourself. #bcsm
Suzanne Gauvreau @Ptsbestfriend
This 3rd time has been the most difficult, 3 surgeries, still not at my best. Ordered for PT to work on abdom scar tissue. Hope helps #bcsm
Cancer on the Clock @canceronthejob
T1: exercise class helped give me some semblance of control and kept confidence up. Nearing end of treatment, though, finding that waning. #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@DrSGraff @bewellwithsami I exercised all thru tx, incl chemo. But yard wk for me meant 3 hrs weed whacking in FL summer sun. Not compatible w/chemo; had to get help. #bcsm
Alicia C. Staley @stales
T1: Self-image, Self-confidence, self-esteem -- all can take a major hit during cancer diagnosis and treatment #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
Results in pic and below: Women in intervention group reported less concern/distress about body appearance, decreased body stigma, lower level of BC−related concerns vs women in control group. BC-related QOL was also better in the intervention group at 1yr f/u. #bcsm https://t.co/RNd8cSpkC5
L'Amazzone Furiosa 🦋 🇺🇦 @AmazzoneFuriosa
@JCampisano I had it back for a while after 7 years last summer. Then the dx anniversary came and then the scans #bcsm
Alicia C. Staley @stales
T1a: Advice to newly diagnosed? What to look for to help address confidence/self-esteem issues? #bcsm
Enlightening Results 💡 @GraceCordovano
@IshwariaMD @JCO_ASCO Interesting. Thank you for sharing! #bcsm
Alicia C. Staley @stales
RT @IshwariaMD: Body image has a major impact on self-confidence. A must read in Jan's @JCO_ASCO: Body image has a major impact on self-confidence. A must read in Jan's @JCO_ASCO: Restoring Body Image After Cancer (ReBIC): Results of a Randomized Controlled Trial of an 8wk group intervention in women after BC treatment. https://t.co/h4EE21OITW #bcsm https://t.co/ukVSnUhZMK
Stephanie Graff, MD, FACP, FASCO @DrSGraff
RT @IshwariaMD: Body image has a major impact on self-confidence. A must read in Jan's @JCO_ASCO: Body image has a major impact on self-confidence. A must read in Jan's @JCO_ASCO: Restoring Body Image After Cancer (ReBIC): Results of a Randomized Controlled Trial of an 8wk group intervention in women after BC treatment. https://t.co/h4EE21OITW #bcsm https://t.co/ukVSnUhZMK
Dennis Keim @denniskeim
@DrAttai Yes, some aspects of the "new normal" may be around to stay for a while if not longer. I've given up on my hair, for example. #bcsm
L'Amazzone Furiosa 🦋 🇺🇦 @AmazzoneFuriosa
Hi, Grazia from Italy/ England, currently in San Francisco #bcsm
Andrea Bradford, PhD @ABradfordPhD
RT @IshwariaMD: Body image has a major impact on self-confidence. A must read in Jan's @JCO_ASCO: Body image has a major impact on self-confidence. A must read in Jan's @JCO_ASCO: Restoring Body Image After Cancer (ReBIC): Results of a Randomized Controlled Trial of an 8wk group intervention in women after BC treatment. https://t.co/h4EE21OITW #bcsm https://t.co/ukVSnUhZMK
Suzanne Gauvreau @Ptsbestfriend
Some people are not comfortable in trad. Support group, online are good as are movement class, more action less ear stress #bcsm
IBC Research Fdn @IBCResearch
T1: I felt a sense of urgency, racing against the clock because I felt I had lots to do and little time (poor prgnosis). That pushed me when body might not have been ready yet. #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
T1a: 1. You are not alone. 2. Be gentle w/yourself. 3. When "one day at a time" doesn't work, try one nanosecond at a time. #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@JCampisano There’s great science to support that as well - Persons who exercise and stay physically active during cancer treatment do better, recover faster. #bcsm
Jamie Holloway, PhD @jamienholloway
T1a: You do you! I always felt more confident with good lipstick and good shoes. Bonus points if I could go on a short run in the morning. It made me feel strong so more confident. #bcsm
Alicia C. Staley @stales
@AmazzoneFuriosa hi there! Welcome #bcsm
Alicia C. Staley @stales
RT @IBCResearch T1: I felt a sense of urgency, racing against the clock because I felt I had lots to do and little time #bcsm
Jen Campisano @JCampisano
The transition off tx was a confidence ding. Chemo gave me (perhaps false) confidence that cancer would stay away. Letting go of that safety net after so many years was tough. Time & distance help, but I still panic occasionally. #bcsm
L'Amazzone Furiosa 🦋 🇺🇦 @AmazzoneFuriosa
@stales My self image was hit well after diagnosis when hormone treatment made me put weight on #bcsm
Alicia C. Staley @stales
T1: More research and thoughts on self-esteem/confidence after cancer: https://t.co/8uLPnqjaz6 #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
T1a: Do things at your own pace. Don't let anyone rush/pressure you. Do what is right for YOU and be extra patient w/yrself. #bcsm
Jamie Holloway, PhD @jamienholloway
The end of treatment was definitely harder (emotionally) than during treatment. Especially tough when everyone else thinks you're "all better" now... #bcsm https://t.co/H0PjcuZSuu
Jen Campisano @JCampisano
RT @Elissa_Malcohn: T1a: T1a: 1. You are not alone. 2. Be gentle w/yourself. 3. When "one day at a time" doesn't work, try one nanosecond at a time. #bcsm
The IBC Network Foundation @TalkIBC
Aroniza meet up started 11:30 am. Stopped at 2pm only because the cafe closed #breakfastcafe #bcsm
Jen Campisano @JCampisano
@Elissa_Malcohn I love this. Ditto to all of it. #bcsm
Lex @Lex_in_CO
If I am honest. Not loving the physical changes of cancer. But also get the “who cares”. I’ve got life to live. Put on a hat and forget about it 🤷‍♀️ #bcsm
Dennis Keim @denniskeim
T1: Body image issues hits most of us I suspect. Just after surgery I was wondering if I would be able to swim without a t-shirt on. #bcsm
Alicia C. Staley @stales
RT @jamienholloway: T1a: T1a: You do you! I always felt more confident with good lipstick and good shoes. Bonus points if I could go on a short run in the morning. It made me feel strong so more confident. #bcsm
Alicia C. Staley @stales
RT @Lex_in_CO: If I am honest. Not loving the physical changes of cancer. But also get the “who cares”. I’ve got life to live. Put on a hat and forget about it 🤷‍♀️ #bcsm
Alicia C. Staley @stales
RT @denniskeim: T1: T1: Body image issues hits most of us I suspect. Just after surgery I was wondering if I would be able to swim without a t-shirt on. #bcsm
Alicia C. Staley @stales
RT @Elissa_Malcohn: T1a: T1a: Do things at your own pace. Don't let anyone rush/pressure you. Do what is right for YOU and be extra patient w/yrself. #bcsm
Alicia C. Staley @stales
RT @Canceronthejob: T1: T1: exercise class helped give me some semblance of control and kept confidence up. Nearing end of treatment, though, finding that waning. #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
T1a: Support grps help me bc I can share what I learn/experience. Confidence in helping/focusing on others. #bcsm
IBC Research Fdn @IBCResearch
T1a: Newly dx advice....Allow others to help you, it's not a sign of weakness; surround yourself with people who bring you joy; and take care of yourself #bcsm
Alicia C. Staley @stales
RT @Elissa_Malcohn T1a: Support grps help me bc I can share what I learn/experience. Confidence in helping/focusing on others. #bcsm
Alicia C. Staley @stales
RT @IBCResearch: T1a: T1a: Newly dx advice....Allow others to help you, it's not a sign of weakness; surround yourself with people who bring you joy; and take care of yourself #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@jamienholloway Yes! I always wondered about all the sentiments that my patients experience after ringing the bell! #bcsm
Jamie Holloway, PhD @jamienholloway
T1: Honestly, having a plastic surgeon who really cares about things like self confidence and body image are HUGE! #bcsm
Alicia C. Staley @stales
RT @AmazzoneFuriosa: @stales My self image was hit well after diagnosis when hormone treatment made me put weight on #bcsm
Suzanne Gauvreau @Ptsbestfriend
Changing in a locker room is daunting. Especially after diep. Wear suit there, take off in stall or shower, dress there. #bcsm
Alicia C. Staley @stales
RT @IBCResearch T1a: Newly dx advice Allow others to help you, not a sign of weakness; surround yourself with people who bring joy #bcsm
L'Amazzone Furiosa 🦋 🇺🇦 @AmazzoneFuriosa
@IBCResearch Spoil yourself #bcsm
Alicia C. Staley @stales
@akknowles1 Hi April! #bcsm
Dennis Keim @denniskeim
@IshwariaMD @jamienholloway We didn't have a bell at our infusion center. I wish we had one. :) #bcsm
Jamie Holloway, PhD @jamienholloway
My plastic surgeon told me he wanted me to think that I looked good, not "good for having cancer." #bcsm
Jen Campisano @JCampisano
For me, drawing my eyebrows in & putting a little blush on helped. I didn’t like looking sick. Of course, I was still bald... Later, and to this day, I still swear by exercise. It’s my therapy. #bcsm
Jamie Holloway, PhD @jamienholloway
@akknowles1 Hi April! Glad you popped in! So fun seeing you last week! #bcsm
Jen Campisano @JCampisano
RT @IBCResearch: T1a: T1a: Newly dx advice....Allow others to help you, it's not a sign of weakness; surround yourself with people who bring you joy; and take care of yourself #bcsm
L'Amazzone Furiosa 🦋 🇺🇦 @AmazzoneFuriosa
I still want my body back as it was before hormone treatment #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
T1a: Intellectual curiosity also helped me--learning+sharing what I could. Called my cancer a "perilous adventure." #bcsm
Wendy Woodward MDPhD @IBCradiation
RT @ndenduluri1:
Jamie Holloway, PhD @jamienholloway
@IshwariaMD We don't have one either. A lot of my metastatic friends really hate hearing that bell ring when they're at the infusion center... #bcsm
Alicia C. Staley @stales
T2 coming up #bcsm
Cancer on the Clock @canceronthejob
T1a: be mad enough to fight to keep your life normal. Using a cold cap to keep my hair helped me immensely. #bcsm
Alicia C. Staley @stales
RT @Elissa_Malcohn T1a: Intellectual curiosity also helped me--learning+sharing. Called my cancer a "perilous adventure." #bcsm
Alicia C. Staley @stales
RT @AmazzoneFuriosa I still want my body back as it was before hormone treatment #bcsm
Lex @Lex_in_CO
#bcsm DURING treatment I had to paint my nails. Fingers and toes. No fake nails but couldn’t look at the ugly. Pretty nails made me feel better 💅
Dennis Keim @denniskeim
@akknowles1 I'm sorry to hear that, April. I hope they didn't make you ring it if you didn't want to. #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
Shameless plug—but watch this awesome story about a woman regaining strength after cancer. So much is possible with the right team! #bcsm #wellness https://t.co/cz723ZNiuR https://t.co/HxL4UKPvcb
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@IBCResearch Love it - this is great advice for just about anyone in general! #bcsm
Jen Campisano @JCampisano
When I thought I had mets, seeing others celebrate the end of tx would make me sob. When I had my last infusion, I refused the confetti and hoopla. #bcsm https://t.co/9dPQbSoDNN
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
T1: In a way cancer increased my confidence. Dealt w/insurance SNAFU during chemo; overcame fear bc I'M FIGHTING CANCER, B*TCHES! :-) #bcsm
Enlightening Results 💡 @GraceCordovano
@akknowles1 @IshwariaMD @jamienholloway I'm so sorry to hear that April. I wish you didn't have to carry that feeling for so long. #bcsm
Alicia C. Staley @stales
T2: Interesting report: https://t.co/b4uxeg5kmf showed 60% felt lack of confidence/ability to speak to care team as time goes on #bcsm
Dennis Keim @denniskeim
@Lex_in_CO Reminded of how hammered my nails got too. Was fortunate to only have lost a few. Recall someone saying they all might go. #bcsm
Social✽Fly @socflyny
RT @stales: T2: Interesting report: T2: Interesting report: https://t.co/b4uxeg5kmf showed 60% felt lack of confidence/ability to speak to care team as time goes on #bcsm
Mary L Gorden @marylgorden
Just finished radiation and I'm feeling adrift. Have a cancer survivorship clinic coming up the beginning of March. Hoping that helps with the what to do next #bcsm https://t.co/ajCBN0nEKk
Enlightening Results 💡 @GraceCordovano
@jamienholloway @IshwariaMD Yes, i've been there supporting someone with advanced cancer when it rang. Felt like the wind was knocked out of me (and I wasn't the one with advanced cancer). #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
T1 - I sometimes tell pts to ask friends to check in 3-6-12 month intervals; family/friends disappear when pts need them the most. Make them program it into their calendar! #bcsm
Alicia C. Staley @stales
T2: After your cancer diagnosis, as time goes on, do you feel more confident or less confident asking questions to your care team? #bcsm
Alicia C. Staley @stales
T2: I found that very surprising #bcsm
Jen Campisano @JCampisano
@denniskeim @Lex_in_CO I lost a couple of toenails. God, chemo is awful. #bcsm
Daniel Stover, MD, FASCO @StoverLab
Dan - Med Onc from Ohio, joining in for the last bit! #bcsm
Alicia C. Staley @stales
@StoverLab Hi Doc! #bcsm
Alicia C. Staley @stales
@marylgorden Hi Mary - that's for checking in. #bcsm
Enlightening Results 💡 @GraceCordovano
@akknowles1 @jamienholloway @IshwariaMD Very true! #bcsm
Alicia C. Staley @stales
RT @LAmourAngelique regaining confidence was found by helping others #bcsm
Jonathan Dembo @DenouncedRemedy
RT @double_whammied: Good piece on #lymphedema after #breastcancer surgery and some new procedures that might help eradicate it. #bcsm 'She Survived Breast Cancer, But Says A Treatment Side Effect 'Almost Killed' Her' https://t.co/mnmBfdz36S
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
+1000 Your needs, your rules. They shd respect MT @denniskeim: @akknowles1 I hope they didn't make you ring it if you didn't want to. #bcsm
Alicia C. Staley @stales
@Elissa_Malcohn That's one way to look at it! #BOOM #bcsm
IBC Research Fdn @IBCResearch
This is often the case for those of us with #breastcancer We gain strength when we share the little bit of strength we have left. #bcsm https://t.co/C2SwZMcq9D
Stephanie Graff, MD, FACP, FASCO @DrSGraff
T1- @AmericanCancer #LookGoodFeelBetter is a hit for so many of my patients; a chance to connect with others + awesome makeup kit & tips!? #winning #bcsm
Jen Campisano @JCampisano
@marylgorden One day at a time. I hope you get your bearings sooner than you expect. PM me if you ever need to talk. #bcsm
Dennis Keim @denniskeim
T2: I've never really had a problem asking questions. Do feel like I get a bit of a rush job on checkups which can be annoying. #bcsm
L'Amazzone Furiosa 🦋 🇺🇦 @AmazzoneFuriosa
T2: My problem isn't confidence. I no longer ask as many questions as in the past because I don't want to spend too much time at my doc's office #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
T2: I had a big mouth with my care team from the get-go. :-) Had 20+ Qs for 1st mtg w/my surgeon. Still speak up w/MO, RO, PCP. #bcsm
Jen Campisano @JCampisano
@akknowles1 @GraceCordovano @IshwariaMD @jamienholloway How did it feel? #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
Scalp-cooling technology like @DigniCap really makes a profound difference in sense of self for women I treat @HCAMidwest - Now if only insurance reimbursement would take note! #bcsm
Alicia C. Staley @stales
RT @IBCResearch: This is often the case for those of us with #breastcancer We gain strength when we share the little bit of strength we have left. #bcsm https://t.co/C2SwZMcq9D
Suzanne Gauvreau @Ptsbestfriend
T2: just saw recon dr 2day. He thinks I look fab ,rxd PT then looked at my notebk, u have ?s. He did answer them i felt lost, #bcsm
Alicia C. Staley @stales
RT @DrSGraff: T1- @AmericanCancer #LookGoodFeelBetter is a hit for so many of my patients; a chance to connect with others + awesome makeup kit & tips!? #winning #bcsm
Jen Campisano @JCampisano
@denniskeim That IS annoying! #bcsm
Shanna Marzilli @Shanna_Marzilli
T2: I worry about being “that annoying patient” doing all her own research, so I guess that would count as lacking confidence #bcsm
Social✽Fly @socflyny
@stales T2 More confident, however, there's an awkward "but". Once you get to that place, you're no longer the patient du jour (so to speak), Rightfully (?) resources are directed towards the newly dx'd or those still in treatment. There is definitely a gap/divide to be filled. #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
+ Googleplex RT @JCampisano: @denniskeim That IS annoying! #bcsm
Lex @Lex_in_CO
My Onc is the best. Love his nurse too. The center was merged with big health center - not as intimate but still great team almost 5 years later #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@akknowles1 @GraceCordovano @jamienholloway Brava to you! but glad it was your own decision to ring (or not to ring!). #bcsm
OncLive.com @OncLive
Dr. Traina of @sloan_kettering Discusses Neratinib in HER2+ Breast Cancer #bcsm https://t.co/4MUo7KLRQG
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@Shanna_Marzilli Don’t be! Informed, curious patients help us all practice the best medicine! #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
A good doc welcomes informed pts MT @DrSGraff: @Shanna_Marzilli Informed, curious patients help us all practice the best medicine! #bcsm
Jen Campisano @JCampisano
Since my re-diagnosis, I have so many more questions, but now have 4 times as many doctors to ask. My oncologist seems to want to spend less time w me and I don’t push it. I think I lost confidence in HIM after everything. #bcsm
Howard Karpoff @doctorkarpoff
RT @OncLive: Dr. Traina of @sloan_kettering Discusses Neratinib in HER2+ Breast Cancer #bcsm https://t.co/4MUo7KLRQG
Stephanie Graff, MD, FACP, FASCO @DrSGraff
RT @Elissa_Malcohn: A good doc welcomes informed pts MT @DrSGraff: A good doc welcomes informed pts MT @DrSGraff: @Shanna_Marzilli Informed, curious patients help us all practice the best medicine! #bcsm
Social✽Fly @socflyny
@DrSGraff @DigniCap @HCAMidwest Yeah, good luck with that ... at this rate. we'll be lucky if BC is still covered as a pre-existing condition. ☹️ #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@DrSGraff @Shanna_Marzilli Big point made at #SurvOnc18: collab bet informed pt + med team is desirable. Helps ease burdens on both. #bcsm
Enlightening Results 💡 @GraceCordovano
@akknowles1 @IshwariaMD @jamienholloway I wonder how many patients complete treatment and only ring the bell bc they are “encouraged” or “expected” to? I have heard so many stories of reluctance. Must be room for improvement here. #bcsm
Dennis Keim @denniskeim
T2: Had 4 articles on male breast cancer forwarded to my onc before I met for the first time. I knew I was a medical oddity. #bcsm
Liz Johnson @wired4story
RT @Maelli14: No one wants to be forced to face this, but many metsters are not given a choice. @METUPorg @METUPUKorg @MBCC_MHBT #bcsm https://t.co/TdqRbxreSB
Alicia C. Staley @stales
RT @socflyny: @stales T2 More confident, however, there's an awkward "but". Once you get to that place, you're no longer the patient du jour (so to speak), Rightfully (?) resources are directed towards the newly dx'd or those still in treatment. There is definitely a gap/divide to be filled. #bcsm
Social✽Fly @socflyny
RT @stales: RT @LAmourAngelique regaining confidence was found by helping others #bcsm
Mary L Gorden @marylgorden
@IshwariaMD @jamienholloway #bcsm I didn't want to ring it but it seemed important to the staff. Just because tx was over didn't mean that I'd recovered from all the side effects
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@akknowles1 Never assume. I have had patients crowd source the funds. And wealthy patients say they’d rather take a trip. #bcsm
L'Amazzone Furiosa 🦋 🇺🇦 @AmazzoneFuriosa
@akknowles1 @GraceCordovano @IshwariaMD @jamienholloway If they feel like celebrating #bcsm
Mary L Gorden @marylgorden
RT @DrSGraff: @Shanna_Marzilli Don’t be! Informed, curious patients help us all practice the best medicine! #bcsm
Suzanne Gauvreau @Ptsbestfriend
Never rang a bell or graduated from my treatments, just hugs and plans for something later, party or a trip. #bcsm
IBC Research Fdn @IBCResearch
When I asked quite a few questions I had a breast surgeon remind me she was the doctor & as a nurse and advocate I needed to remember that! I changed doctors!! #bcsm
Jen Campisano @JCampisano
Have to get my older kiddo to bed after a weekend of staying up too late watching whatever ice dancing is 🤷🏻‍♀️ Thanks for a great conversation (as always), @stales and everyone! #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@GraceCordovano @akknowles1 @jamienholloway Since so many of us want to know, this would be a great survey project in the infusion center. A qualitative interview based study on patient response to this ringing of the bell. #WheelsTurning #bcsm
Stephanie Luc-Kin @ruetholoze
RT @FirstDescents: #StayInformed about potential side-effects of cancer treatment so that you can ask informed questions on your next visit. Via @NPR : https://t.co/Iu2dTmv3sj #breastcancer #bcsm #outlivingit
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@AmazzoneFuriosa @akknowles1 @GraceCordovano @IshwariaMD @jamienholloway No bell at either chemo or rad. Got certs signed by staff. #bcsm
Lex @Lex_in_CO
I will ASK anything. No filters in drs office as far as cancer ? And side fx - life is too short to be embarrassed #bcsm
Dennis Keim @denniskeim
No bell ringing or celebration for my last chemo. Just "another day at the office." The emotional tipping point was about halfway. #bcsm
Social✽Fly @socflyny
@GraceCordovano @akknowles1 @IshwariaMD @jamienholloway With no disrespect to people who like the bell, to me, it feels like an extension of the "happy pink cancer narrative" that puts unnecessary pressure on patients to feel or act in a way they may not be feeling. #bcsm
Alicia C. Staley @stales
@JCampisano Good night! Great to see you! #bcsm
Suzanne Gauvreau @Ptsbestfriend
I had my newest onc remind me that I am a pt, not the dr at my last appt, told me all the oncs I consulted know their stuff -listen #bcsm
L'Amazzone Furiosa 🦋 🇺🇦 @AmazzoneFuriosa
RT @socflyny: @GraceCordovano @akknowles1 @IshwariaMD @jamienholloway With no disrespect to people who like the bell, to me, it feels like an extension of the "happy pink cancer narrative" that puts unnecessary pressure on patients to feel or act in a way they may not be feeling. #bcsm
Alicia C. Staley @stales
5 minutes left for tonight's chat! Time flew by tonight. #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
Getting cert signed by staff at end of chemo made me moist-eyed; cd feel the <3 Prefer that to bell; some pts need peace+quiet #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@MIShouldTalk @stales @AmericanCancer .@AmericanCancer funds research (Dr. King work on BRCA, Herceptin are two big examples), lodging (Hope Lodge, Hotel partner) & rides for patients without transportation. Not to sound like a commercial- but they have a big impact & help all cancer types. #bcsm
Alicia C. Staley @stales
Last thoughts on regaining confidence, self-esteem, courage to move forward after a cancer diagnosis? #bcsm
Social✽Fly @socflyny
@danielle_dk @DrSGraff @DigniCap @HCAMidwest Sorry to bring that up. ☹️ Patients with any stage (or pre-existing condition) ignores what is going down at their own peril. These pesky details have been getting lost in the constant chaos. #bcsm
Smith-Brooks @Brooksx2
Me too...same experience! And, was going on to 38 tx of rad #bcsm https://t.co/p4kFOviZ7M
Suzanne Gauvreau @Ptsbestfriend
Keep moving forward, better than the alternative, keep it light, make things right for you #bcsm
L'Amazzone Furiosa 🦋 🇺🇦 @AmazzoneFuriosa
Is it really possible? #bcsm https://t.co/ZTxiwgBTg0
Enlightening Results 💡 @GraceCordovano
Curious in the various ways cancer centers may signify the end of a patient's treatment? Do you have a bell for patients to ring? A clap out? Has your organization chosen to NOT signify the end of treatment? Thoughts? #medonc #radonc #cancer #bcsm #lcsm #btsm #gyncsm https://t.co/QKBgQQr19m
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
For me, new limitations (esp SEs) are reality. They haven't changed my core self, + my core self is central to making adjustments. #bcsm
IBC Research Fdn @IBCResearch
Thanks @stales Always good to connect here....have a great week everyone! #bcsm
Dennis Keim @denniskeim
As I think about it, it would have been nice to have a selfie with my infusion nurses as a graduation present. So personal. #bcsm
Lex @Lex_in_CO
Have to say I will not be happy if my Inc moves or if I had to change. Don’t even like the backup as well. Would have to retrain a new Dr But seriously. He knows me. No fun to start over even if they have ur file #bcsm
Danielle Karber @danielle_dk
Who the hell are these oncs telling patients that they’re the doctor, just listen to me? That makes me sad & infuriated all at the same time. My oncologist will always ask me what I want to do, and for my input. So sorry to those that have had to deal with those 💩 #bcsm
Alicia C. Staley @stales
RT @Ptsbestfriend Keep moving forward, better than the alternative, keep it light, make things right for you #bcsm
Alicia C. Staley @stales
Some great advice tonight! Thanks everyone for sharing! #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@IshwariaMD @GraceCordovano @akknowles1 @jamienholloway My office is bell-less. I’ll be your control arm. I’m sure you can still overhear the “it’s your last one!!” congrats even without the bell. #bcsm
Dr_Dana @Dr_Dana
@denniskeim It means a lot to me when selfies with the doc are requested;) Y'all have a good week. #bcsm
Alicia C. Staley @stales
Next week, we will have some special guests joining us to tell us about the Open Notes movement. #bcsm
Katie Davidson @LovlyKatieLumps
I'm really trying to make an effort to attend #bcsm chats. I usually see the hashtag about 45 minutes in and I catch up by the end. I'll try harder and set a reminder in my phone. Thanks for sharing everyone - I really appreciate reading your views and validating experiences.
Alicia C. Staley @stales
Have a great weekend everyone! #bcsm
Alicia C. Staley @stales
@LovlyKatieLumps hi there! #bcsm
Alicia C. Staley @stales
GROUP HUG #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
Great chat -- (((Hugs))) to all! Have a wonderful week everyone! #bcsm
Mary L Gorden @marylgorden
@denniskeim #bcsm my head tech for radiation gave me a hug as I left for the last time. That was better than ringing a bell
Dennis Keim @denniskeim
Nice chat, my friends. Have a great week! #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@marylgorden @denniskeim Got great hugs from radiation techs. My support grps are there so I still get hugs yrs after tx. :D #bcsm
Enlightening Results 💡 @GraceCordovano
Have a wonderful week everyone! Until next time #bcsm https://t.co/Mj70BZc1sk
Katie Davidson @LovlyKatieLumps
@stales Hi! Sorry, I need to do better and stay engaged. #bcsm
L'Amazzone Furiosa 🦋 🇺🇦 @AmazzoneFuriosa
Ciao ciao #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@socflyny @danielle_dk @DigniCap @HCAMidwest Valuable reminder of how critical access to care is for everyone. #bcsm
Enlightening Results 💡 @GraceCordovano
RT @stales: Next week, we will have some special guests joining us to tell us about the Open Notes movement. #bcsm
Lex @Lex_in_CO
Great tweeting. Stay warm and “chill” this week all you good people 😁 #bcsm
Social✽Fly @socflyny
@stales There's no place for ANYONE who is toxic in your life -- drop them like it's hot! Still have a visceral reaction when social paths cross with a sociopath who felt threatened by concerned friends I'd lost touch with and reprimanded me that "no one cared about my cancer dx". #bcsm
Jamie Holloway, PhD @jamienholloway
Ahh-- sorry to miss the last 20 mins or so-- lucky that this is our first bit of girl drama with my almost 14 year old, but man, it's been a tough night! We're getting there... #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@jamienholloway Eek! Good luck. #bcsm
TalkAboutHealth @talkabouthealth
What inspired you to become a volunteer for SHARE? https://t.co/O3eQYam0hd #bcsm
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