#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Liz Johnson @wired4story RT @SBC_org: Today on podcast Dr. Jimenez from Radiation Oncology (@MGHCancerCenter) reminds us that "You are never a bother, it is our job and privilege to take care of you!" Listen below let us know your favorite takeaways! #breastcancer #bcsm https://t.co/qWg10Pd7Mf |
 | Alicia C. Staley @stales Good evening everyone! Welcome to #BCSM |
 | Liz 🌊 🌊 🌊 🌊 @lizard817 Liz from Florida here #bcsm |
 | Dr. Deanna Attai @DrAttai @stales hello hello! #bcsm |
| Alicia C. Staley @stales Tonight, we're talking about asking for help, building a support team, and surrounding yourself with what you need during your treatment journey. We will get started in a moment. #BCSM |
 | Liza B @itsthebunk RT @bust_yor: How do I find a dr I trust who can treat bc in someone with endometriosis ? My dr’s keep telling me it’s not their fault I’m just “complicated” and someone else should have caught it. (Med onc blames gyn; gyn blames med onc, etc)#bcsm |
| Liza B @itsthebunk RT @bust_yor: I’m looking for a new team but the med oncs I’ve seen keep saying they have no idea about endo (again, “best in the world”) they only treat from the chest up. Are there med oncs who can treat a whole person? #bcsm |
| Liza B @itsthebunk RT @wwleslie: @bust_yor I know that in my cancer center the docs work together. So if you were here you might have two docs but they’d coordinate care. I’m sorry you’re having this not so coordinated experience. #bcsm |
| Alicia C. Staley @stales @DrAttai Hello! Nice to see you. #BCSM |
 | Erika Cromwell @rivereac Stopping by to just say hi. Feeling a bit iffy tonight. Brain radiation starting on Wednesday. #bcsm |
| Liza B @itsthebunk RT @bust_yor: Re-upping for tonight’s chat. #bcsm |
 | Roberta A Albany @raalbany @stales Hi Everyone!! #bcsm |
| Alicia C. Staley @stales @rivereac hello, hugs to you. Thanks for stopping in. #BCSM |
| Alicia C. Staley @stales @raalbany hello, how are you? #BCSM |
| Alicia C. Staley @stales @lizard817 Hello there! How are you? #BCSM |
| Liza B @itsthebunk RT @stales: Tonight, we're talking about asking for help, building a support team, and surrounding yourself with what you need during your treatment journey. We will get started in a moment. #BCSM |
 | Linda Holden @lpholden Good Evening from California. I am a Caregiver & Advocate. Bob is still in the hospital. Just checking in. #bcsm |
| Roberta A Albany @raalbany @stales I’m good. Looking forward to tonight’s chat #bcsm |
| Liz 🌊 🌊 🌊 🌊 @lizard817 @stales I’m good just very tired #bcsm |
| Liza B @itsthebunk Hi #bcsm :) Liza in LA. Had 3 primary dxs of breast cancer. Still (fingers always crossed) NED. It's been 26 years since my first dx, and just over 9 since my 3rd. Always happy to join the #bcsm crew! |
| Alicia C. Staley @stales We will get started in a moment. Please take a moment to say hello! #BCSM |
| Alicia C. Staley @stales Reminder: You can learn more about the #BCSM Community here: https://t.co/rUD9nLTZe4 |
| Alicia C. Staley @stales And you can learn more about the #BCSM tweet chat here: https://t.co/0KzBtOpPgz |
 | Matthew Katz, MD 🟦 @subatomicdoc RT @JoyRH: @sixnwstevies @TeamTelomereInc |
| Alicia C. Staley @stales If you ever want to suggest a topic for #BCSM, send me a DM, or contact us here: https://t.co/mZtUOmyB6n |
| Matthew Katz, MD 🟦 @subatomicdoc RT @sixnwstevies: #rare peeps 👇🏻 |
| Alicia C. Staley @stales Reminder: If you'd like to follow the chat more closely, log into https://t.co/reZgZVsLnl and track the BCSM hashtag #BCSM |
| Liza B @itsthebunk RT @stales: Reminder: Reminder: You can learn more about the #BCSM Community here: https://t.co/rUD9nLTZe4 |
| Liza B @itsthebunk RT @stales: And you can learn more about the #BCSM tweet chat here: And you can learn more about the #BCSM tweet chat here: https://t.co/0KzBtOpPgz |
 | Sylvie Leotin @sleotin Hello #bcsm, Sylvie from Silicon Valley, cancer blogger and entrepreneur |
 | Lisa Rice #MaskUp (she/her) @LisaDTRice @stales Hello! Here from DC, forever, the belly of the beast. #BCSM Cancer survivor and daughter of a cancer survivor. |
 | Lex @Lex_in_CO “Just keep swimming” in Colorado - Stage 4 de novo since 2013. Progression in 2015 #notdeadyet #BCSM https://t.co/3QLxV8wRQr |
| Liz Johnson @wired4story RT @stales: Join #BCSM tonight at 9 PM ET to learn how to ask for help, build your support team, and surround yourself with what YOU need during your treatment journey. cc: @itsnot_pink @HillStirSci @LisaDTRice @lpholden @Brooksx2 https://t.co/O92DyGKkcZ |
| Alicia C. Staley @stales @sleotin Welcome! #BCSM |
 | FollowHeidi @FollowHeidi Hello, family ! |
 | Dr. Kelly Shanahan @stage4kelly Hi all, Kelly, former ob/gyn current #MetastaticBreastCancer person checking in from too warm, no snow at all Lake Tahoe #bcsm |
 | NCI Cancer Stats @NCICancerStats In 2016, it was estimated that nearly 3.5 million women were living with #BreastCancer in the United States. More info can be found here: https://t.co/wUKAVg2gqh #BCSM https://t.co/9HsZaCKvZh |
| Alicia C. Staley @stales @LisaDTRice hey there! Glad you could make it tonight! #BCSM |
 | Jamie Holloway, PhD @jamienholloway Hi #BCSM friends. Jamie in DC, 7+ yrs NED after TNBC. Scientist and advocate. |
| Alicia C. Staley @stales @itsthebunk Hi there! #BCSM |
| Alicia C. Staley @stales @jamienholloway hey there! Good to see you! #BCSM |
| Liza B @itsthebunk @stales Hi stranger! ;) #bcsm |
| Alicia C. Staley @stales @stage4kelly hey there! #BCSM |
 | Dr_Dana @Dr_Dana Good evening everyone👋🏻 Breast surgeon in Little Rock listening and learning. #bcsm |
 | Kathy Gori @kathygori Hi all, 2 x bc’er here. Checking in from chilly Nor Ca 🍷 country. It’s not raining right now but at least we’re not on fire #bcsm |
| Alicia C. Staley @stales @Lex_in_CO hey there. nice to see you. #BCSM |
| FollowHeidi @FollowHeidi Here we go, community #bcsm |
 | Terri Coutee @6state Good evening from the #PNW in Seattle. 2x BC survivor here and now #PatientAdvocate for #BreastReconstruction #bcsm |
| Alicia C. Staley @stales RT @FollowHeidi: Here we go, community #bcsm |
| Alicia C. Staley @stales Don't forget to tag your tweets with #BCSM if you are joining the chat! |
 | NYorBust @bust_yor #bcsm hi all I’m 45/ dx’ed at 41, er/pr+ her2-. Wanted to know if there’s a med onc who knows how to treat a bc patient with endometriosis. I’ve only encountered shrugs from the ones I’ve talked to. |
 | Lisa Hagen @lisa_hagen22 Good evening from Canada #BCSM |
 | forthebreastofus @thebreastofus Hi #bcsm crew!! FTBOU is the first online community for #womenofcolor diagnosed with #breastcancer founded by two #BreastCancerBaddies @marissadt28 @BraveBeauty26 uplifting and sharing our stories https://t.co/nFDo1lR2ch |
| Terri Coutee @6state @lisa_hagen22 Great to see you here! #bcsm |
| Alicia C. Staley @stales @6state Thank you! #BCSM |
 | Black Health Matters @BHMinfo RT @LivingBeyondBC: Join us for the 2020 #LBBCMetsConf April 17-19 in Philadelphia to learn about the latest treatment updates as well as tips for living well after a #metastatic #breastcancer diagnosis. Learn more about keynote sessions and speakers: https://t.co/rQrgWlCllg #bcsm https://t.co/h1h1p8Zf0a |
 | IBC Research Fdn @IBCResearch Hi from Indiana...Ginny, dx 1994 TN #IBC. RN working in advocacy 24/7. Lurking tonight, not feeling the best. Need to see MD tomorrow. #bcsm |
 | Danielle Karber @danielle_dk Hey all! Here from SD!! #bcsm |
| Liza B @itsthebunk RT @bust_yor: #bcsm hi all I’m 45/ dx’ed at 41, er/pr+ her2-. Wanted to know if there’s a med onc who knows how to treat a bc patient with endometriosis. I’ve only encountered shrugs from the ones I’ve talked to. |
| Terri Coutee @6state @raalbany @stales Good to see you here, friend. Sending love and light to you and Bob @lpholden #bcsm |
| forthebreastofus @thebreastofus @6state Hi Terri👋🏽 #BCSM |
 | Howard Karpoff @doctorkarpoff Hi I'm sort of peeking in while catching up #bcsm |
| Liza B @itsthebunk @IBCResearch Sending hugs to you my friend! I hope it's not a big bad deal and that you feel better soon! #bcsm |
| forthebreastofus @thebreastofus RT @LivingBeyondBC: Join us for the 2020 #LBBCMetsConf April 17-19 in Philadelphia to learn about the latest treatment updates as well as tips for living well after a #metastatic #breastcancer diagnosis. Learn more about keynote sessions and speakers: https://t.co/rQrgWlCllg #bcsm https://t.co/h1h1p8Zf0a |
| Terri Coutee @6state @thebreastofus @6state Hello! #bcsm |
| Dr. Kelly Shanahan @stage4kelly @IBCResearch Post op something or crud that’s going around something? No matter what I hope you feel better soon! #bcsm |
| Lisa Hagen @lisa_hagen22 @6state Thanks Terri! I’m looking forward to tonight’s chat #bcsm |
| Alicia C. Staley @stales T1: Going through a cancer experience can be very difficult. For some, the situation can be overwhelming. At what point should you ask for help? And how do you ask for help? #BCSM |
 | Abigail Johnston, Esq (she/her) @AMJohnston1315 Current mood. Definitely do not recommend. #bcsm @ Royal Harbor Yacht Club https://t.co/kPoSyOxwUB |
 | Mandy Fenton @ohmandy66 RT @bccsi: Ahmazzing info! Scientists hope the finding is an important step forward for what is known as #immunotherapy to treat #cancers. We’re getting closer to ending #Cancer #BreastCancerCanStickIt #Hope #Cure |
| Liza B @itsthebunk RT @stales: T1: T1: Going through a cancer experience can be very difficult. For some, the situation can be overwhelming. At what point should you ask for help? And how do you ask for help? #BCSM |
| Liza B @itsthebunk RT @stage4kelly: @IBCResearch Post op something or crud that’s going around something? No matter what I hope you feel better soon! #bcsm |
| Alicia C. Staley @stales T1: "Asking for help" can take on many forms - what would you suggest for a person newly diagnosed with cancer? #BCSM |
| Liza B @itsthebunk @AMJohnston1315 Hugs, Abigail. I second your Definitely do not recommend. #bcsm |
| Liza B @itsthebunk RT @stales: T1: T1: "Asking for help" can take on many forms - what would you suggest for a person newly diagnosed with cancer? #BCSM |
| Danielle Karber @danielle_dk T1: Different for everyone. For me, it was my dog, advocacy, and FB groups. #bcsm |
| Kathy Gori @kathygori RT @thebreastofus: Hi #bcsm crew!! FTBOU is the first online community for #womenofcolor diagnosed with #breastcancer founded by two #BreastCancerBaddies @marissadt28 @BraveBeauty26 uplifting and sharing our stories https://t.co/nFDo1lR2ch |
 | Tess Thompson @drtessthompson RT @thebreastofus: Hi #bcsm crew!! FTBOU is the first online community for #womenofcolor diagnosed with #breastcancer founded by two #BreastCancerBaddies @marissadt28 @BraveBeauty26 uplifting and sharing our stories https://t.co/nFDo1lR2ch |
 | Barbara Jacoby @letlifehappen RT @LivingBeyondBC: Join us for the 2020 #LBBCMetsConf April 17-19 in Philadelphia to learn about the latest treatment updates as well as tips for living well after a #metastatic #breastcancer diagnosis. Learn more about keynote sessions and speakers: https://t.co/rQrgWlCllg #bcsm https://t.co/h1h1p8Zf0a |
| Alicia C. Staley @stales @thebreastofus @marissadt28 @BraveBeauty26 Welcome to the chat! What advice would you give to a person newly diagnosed with cancer - trying to find their way? Trying to figure out if they should ask for help? #BCSM |
 | Lisa T. Cresswell🐠🐬🌴🌊 @peach83352 @stales A1 - funny you should ask. My friend's sister was just diagnosed and I said stay off the internet if you can. Too much scary stuff out there #BCSM |
| Alicia C. Staley @stales @lisa_hagen22 Hello Canada! #BCSM |
| Alicia C. Staley @stales T1: Here are some great resources on asking for help: https://t.co/qGU1tIjCMS #BCSM |
| forthebreastofus @thebreastofus #BreastCancerBaddies here is another trial just for you and it looks easy to participate. Take a look and see if this fits for you! #BCSM |
| Dr. Deanna Attai @DrAttai RT @stales: T1: T1: Going through a cancer experience can be very difficult. For some, the situation can be overwhelming. At what point should you ask for help? And how do you ask for help? #BCSM |
| Sylvie Leotin @sleotin @stales A1. As a cancer patient living alone, without a caregiver, I had to ask for help from the very beginning. It was hard. I hate asking for help. But I had no choice. #bcsm |
| FollowHeidi @FollowHeidi Ask right away; ask for help with advice, finances, cleaning, spiritual care, everything. Not just for you but for caregiver, family-even pets. Don’t wait until everyone is exhausted and at wits end. #bcsm |
| Liza B @itsthebunk RT @sleotin: @stales A1. As a cancer patient living alone, without a caregiver, I had to ask for help from the very beginning. It was hard. I hate asking for help. But I had no choice. #bcsm |
| Alicia C. Staley @stales RT @FollowHeidi: Ask right away; ask for help with advice, finances, cleaning, spiritual care, everything. Not just for you but for caregiver, family-even pets. Don’t wait until everyone is exhausted and at wits end. #bcsm |
| Liz 🌊 🌊 🌊 🌊 @lizard817 T1 it’s also ok to turn down help. Friends that want to go to appts that I prefer to go alone #bcsm |
| Alicia C. Staley @stales RT @sleotin: @stales A1. As a cancer patient living alone, without a caregiver, I had to ask for help from the very beginning. It was hard. I hate asking for help. But I had no choice. #bcsm |
| Tess Thompson @drtessthompson RT @subatomicdoc: Maybe patients and caregivers should have a say on how to improve the website @ePatientDave @stales @JFreemanDaily @TheLizArmy @MatthewZachary @hedy_wald @MarksPhone @pfanderson @corrie_painter #ayacsm #bcsm #btsm #crcsm #lcsm #gyncsm |
| Lex @Lex_in_CO Resist being too proud to accept the help offered in the beginning. Let a close friend coordinate meal train type. It was a blessing to be sure. #BCSM |
| Alicia C. Staley @stales RT @peach83352: @stales A1 - funny you should ask. My friend's sister was just diagnosed and I said stay off the internet if you can. Too much scary stuff out there #BCSM |
| Alicia C. Staley @stales RT @danielle_dk: T1: T1: Different for everyone. For me, it was my dog, advocacy, and FB groups. #bcsm |
| Kathy Gori @kathygori T1: When I was dx’ed the 1st time back in 90 I was a young patient and there weren’t a lot of support groups . My onc found a young dr ( shrink) who was a former Bc patient and she ran a support group which he sent me to. It was a life saver #bcsm |
| Alicia C. Staley @stales @AMJohnston1315 hugs! #BCSM |
 | Stephanie Graff, MD, FACP, FASCO @DrSGraff RT @stales: Join #BCSM tonight at 9 PM ET to learn how to ask for help, build your support team, and surround yourself with what YOU need during your treatment journey. cc: @itsnot_pink @HillStirSci @LisaDTRice @lpholden @Brooksx2 https://t.co/O92DyGKkcZ |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @stales I'd recommend taking a moment (day, days, week) to absorb the news, after telling your significant other (spouse, parent, child, whomever). Then, read some high level info about cancer, in general. After that, touch base with someone you trust and ask them for help. #BCSM |
| Alicia C. Staley @stales RT @Lex_in_CO: Resist being too proud to accept the help offered in the beginning. Let a close friend coordinate meal train type. It was a blessing to be sure. #BCSM |
| Alicia C. Staley @stales RT @kathygori: T1: T1: When I was dx’ed the 1st time back in 90 I was a young patient and there weren’t a lot of support groups . My onc found a young dr ( shrink) who was a former Bc patient and she ran a support group which he sent me to. It was a life saver #bcsm |
| Liza B @itsthebunk RT @Lex_in_CO: Resist being too proud to accept the help offered in the beginning. Let a close friend coordinate meal train type. It was a blessing to be sure. #BCSM |
| Alicia C. Staley @stales RT @lizard817: T1 it’s also ok to turn down help. Friends that want to go to appts that I prefer to go alone #bcsm |
| Liza B @itsthebunk RT @lizard817: T1 it’s also ok to turn down help. Friends that want to go to appts that I prefer to go alone #bcsm |
| Jamie Holloway, PhD @jamienholloway A1: lots of friends feel helpless and want to do something to help. Be specific and ask for what you need or would enjoy. They want to help. #BCSM |
| Alicia C. Staley @stales RT @jamienholloway: A1: A1: lots of friends feel helpless and want to do something to help. Be specific and ask for what you need or would enjoy. They want to help. #BCSM |
| FollowHeidi @FollowHeidi Ask trusted people to consider you as they walk through their day; do they think it might be difficult for you to do those tasks with cancer? If so, that’s where they can help. #bcsm |
| NYorBust @bust_yor @stage4kelly Hi thank you. I was on tamoxifen for 2.5 yrs and it accelerated my endo. I lost my uterus. I’m looking for a med onc & bc team that can help me manage my risks. All the dr’s I’ve spoken to have told me it’s not their concern. #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff Hello #BCSM—checking in late. Breast Med Onc in Kansas City! |
| Alicia C. Staley @stales @jamienholloway This is great advice - be specific with what you need. be specific with the ask. #BCSM |
| Alicia C. Staley @stales RT @LisaDTRice: @stales I'd recommend taking a moment (day, days, week) to absorb the news, after telling your significant other (spouse, parent, child, whomever). Then, read some high level info about cancer, in general. After that, touch base with someone you trust and ask them for help. #BCSM |
 | Ishwaria Subbiah, MD MS FASCO @IshwariaMD RT @btfoundation: We have raised $15k; will you help us raise remaining $35k? @btfoundation cancer hospital needs your help in establishing mammography services. Donate here https://t.co/gBtv81WB32 @BCAction @BreastAdvocate @SusanGKomen #bcsm #globalhealth #Nepal https://t.co/EmYFAIYm8L |
| Kathy Gori @kathygori @peach83352 @stales Ha! There was NO internet when I got dx’ed the first time and hoo boy am I glad about that #bcsm |
| Danielle Karber @danielle_dk Don’t allow people to make you feel like you have to be positive all the time. If you need to cry or scream, do it. #bcsm |
| Alicia C. Staley @stales @LisaDTRice Great advice - take time to process, get your bearings, and go from there. #BCSM |
| Alicia C. Staley @stales RT @kathygori: @peach83352 @stales Ha! There was NO internet when I got dx’ed the first time and hoo boy am I glad about that #bcsm |
| Liza B @itsthebunk RT @danielle_dk: Don’t allow people to make you feel like you have to be positive all the time. If you need to cry or scream, do it. #bcsm |
| Alicia C. Staley @stales RT @FollowHeidi: Ask trusted people to consider you as they walk through their day; do they think it might be difficult for you to do those tasks with cancer? If so, that’s where they can help. #bcsm |
| Liz 🌊 🌊 🌊 🌊 @lizard817 @LisaDTRice @stales Great advice I took a week off work after my MBC diagnosis to absorb things #bcsm |
| Kathy Gori @kathygori RT @thebreastofus: #BreastCancerBaddies here is another trial just for you and it looks easy to participate. Take a look and see if this fits for you! #BCSM |
| Dr. Kelly Shanahan @stage4kelly A1. A good friend has just been dx with early stage BC so I’m going to appointments with her, writing summaries and explaining what the docs say. Fortunately she doesn’t need chemo. #bcsm |
| forthebreastofus @thebreastofus @stales @marissadt28 @BraveBeauty26 Be as open and honest with your oncologist about how you’re feeling and ask if they have a therapist/social worker on your care team that you can speak with. Websites like ours, @LivingBeyondBC have great resources and most importantly take it one day at a time #BCSM |
| Jamie Holloway, PhD @jamienholloway T1: and a great way to turn down help you don’t need/want is to ask for something that *would* help. (I don’t need dinner but I could use a friend to watch Project Runway with me) #BCSM |
| Liza B @itsthebunk RT @bust_yor: @stage4kelly Hi thank you. I was on tamoxifen for 2.5 yrs and it accelerated my endo. I lost my uterus. I’m looking for a med onc & bc team that can help me manage my risks. All the dr’s I’ve spoken to have told me it’s not their concern. #bcsm |
| Lex @Lex_in_CO One friend from@work sent pizza gift card. So I didn’t have to figure out what to feed hubs and kiddo. If it reduces stress it’s a BIG HELP #bcsm |
 | Dr Dianne Shumay PhD @DianneSF Hi everyone, I’m listening and learning. What should a #cancerpsychologist know to make our programs and care better and meet your needs? @BCSMChat #BCSM |
| Sylvie Leotin @sleotin @stales A1. I had to ask for practical help: medical rides, groceries, chores, etc... It was difficult to ask for help and harder still to coordinate responses. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @DrAttai @bust_yor Correct Dr. A, my brain was off! Tam is pro-estrogen on reproductive organs, better choice is AI + ovarian suppression or oophorectomy. #bcsm |
| Alicia C. Staley @stales RT @sleotin: @stales A1. I had to ask for practical help: @stales A1. I had to ask for practical help: medical rides, groceries, chores, etc... It was difficult to ask for help and harder still to coordinate responses. #bcsm |
| Dr. Deanna Attai @DrAttai @jamienholloway that's a great way to turn down help you don't need, get what you do need, and make the helper still feel needed and valued #bcsm |
| Abigail Johnston, Esq (she/her) @AMJohnston1315 This is beautiful!! #bcsm |
| Alicia C. Staley @stales RT @jamienholloway: T1: T1: and a great way to turn down help you don’t need/want is to ask for something that *would* help. (I don’t need dinner but I could use a friend to watch Project Runway with me) #BCSM |
| Alicia C. Staley @stales RT @danielle_dk: Don’t allow people to make you feel like you have to be positive all the time. If you need to cry or scream, do it. #bcsm |
| Alicia C. Staley @stales @jamienholloway excellent advice on how to guide the conversation to something that works for you. #BCSM |
| Dr. Kelly Shanahan @stage4kelly @Lex_in_CO Pizza is perfect! #bcsm |
| Liza B @itsthebunk @DrAttai @bust_yor @stage4kelly Wow, I did not know this about #endometriosis and #tamoxifen. Seems like med oncs in breast cancer should know and address this, especially when patients already have a dx of endometriosis (which is a feat in and of itself: been there-done-that-would-not-recommend). #bcsm |
| IBC Research Fdn @IBCResearch TY @kathygori for saying that! Ppl think it must have been awful, no internet (1994)...it allowed me to believe i had a chance at life, even with #IBC & crummy prognosis. #bcsm |
| forthebreastofus @thebreastofus @stales @marissadt28 @BraveBeauty26 No question is a “dumb question” Your feelings, thoughts and concerns matter. #BCSM |
| Terri Coutee @6state @NancyLSeibel I moderate one over at https://t.co/fKkyVjdoii Lots of topics and keep it positive! Also #EvidenceBased #bcsm |
| Dr Dianne Shumay PhD @DianneSF RT @thebreastofus: Hi #bcsm crew!! FTBOU is the first online community for #womenofcolor diagnosed with #breastcancer founded by two #BreastCancerBaddies @marissadt28 @BraveBeauty26 uplifting and sharing our stories https://t.co/nFDo1lR2ch |
| Liza B @itsthebunk RT @sleotin: @stales A1. I had to ask for practical help: @stales A1. I had to ask for practical help: medical rides, groceries, chores, etc... It was difficult to ask for help and harder still to coordinate responses. #bcsm |
| Dr. Deanna Attai @DrAttai @itsthebunk @bust_yor @stage4kelly not everyone gets into trouble, and while lupron will put the ovaries to "sleep", the combo w/ aromatase inhibitor gets you the bone pains, bone loss of menopause. Not always a tradeoff a patient or their doc wants to make esp in young patient #bcsm |
| Liza B @itsthebunk RT @jamienholloway: T1: T1: and a great way to turn down help you don’t need/want is to ask for something that *would* help. (I don’t need dinner but I could use a friend to watch Project Runway with me) #BCSM |
| Alicia C. Staley @stales T2 coming up! #BCSM |
| Liza B @itsthebunk RT @DrAttai: @itsthebunk @bust_yor @stage4kelly not everyone gets into trouble, and while lupron will put the ovaries to "sleep", the combo w/ aromatase inhibitor gets you the bone pains, bone loss of menopause. Not always a tradeoff a patient or their doc wants to make esp in young patient #bcsm |
| Liz 🌊 🌊 🌊 🌊 @lizard817 @jamienholloway I’ll try that as I tend to let them come when I really don’t need them. I’ll think of something else they can do #bcsm |
| Kathy Gori @kathygori @DrAttai @stales I actually found it a semi relief to not be in control during treatment etc. it was shocking to me I felt that way but I finally had to say it’s out of my hands #bcsm |
| Alicia C. Staley @stales T1 recap: It's okay to ask for help. It will be hard to ask for help, be specific so people understand what will help you/won't help you. #BCSM |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @DrAttai @itsthebunk @bust_yor @stage4kelly Everything @stage4kelly and @DrAttai said! ✔️ #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @stage4kelly It's always good to have someone else there. I appreciated having my husband by my side. If I tired of asking questions, he picked up the slack. #BCSM |
| Terri Coutee @6state @NancyLSeibel @6state Thanks. We try. We also allow healthcare providers, surgeons, physical therapists, registered dietitian, etc. #bcsm |
| Alicia C. Staley @stales T1 recap: Ask for help with meals, rides, tasks, errands - whatever will help you on your treatment journey. #BCSM |
| Kathy Gori @kathygori @NancyLSeibel @lizard817 Yep, for me the last thing I was interested in was food #bcsm |
| NYorBust @bust_yor @DrAttai @stage4kelly Thank you. Yes it definitely made mine worse. I’m looking for a new team but the med oncs I’ve seen say they have no idea how tam interacts with endo, or how to diagnose endo. I live in nyc and I’ve been to the major cancer centers. #bcsm |
| Dr. Deanna Attai @DrAttai @DrSGraff @itsthebunk @bust_yor @stage4kelly thanks for the seal of approval! #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff RT @AMJohnston1315: This is beautiful!! #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff RT @jamienholloway: T1: T1: and a great way to turn down help you don’t need/want is to ask for something that *would* help. (I don’t need dinner but I could use a friend to watch Project Runway with me) #BCSM |
| Liza B @itsthebunk @DrAttai @bust_yor @stage4kelly I hear you—just saying that it would be important for the docs to tell their breast cancer pts who have a dx of endometriosis what the options are and obvs discuss risks/benefits etc. Nobody discussed that with me for my 2nd and 3rd cancers, meanwhile my endo dx was known. #bcsm |
| Liza B @itsthebunk RT @kathygori: @DrAttai @stales I actually found it a semi relief to not be in control during treatment etc. it was shocking to me I felt that way but I finally had to say it’s out of my hands #bcsm |
| Alicia C. Staley @stales T2: How do you build your "support" team - the family and friends that will be your go-to support team? It's not easy! What advice would you give to a person newly diagnosed with cancer? What made a difference for you? #BCSM |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @DianneSF @BCSMChat Welcome to #bcsm! Glad you are here! |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff RT @thebreastofus: @stales @marissadt28 @BraveBeauty26 Be as open and honest with your oncologist about how you’re feeling and ask if they have a therapist/social worker on your care team that you can speak with. Websites like ours, @LivingBeyondBC have great resources and most importantly take it one day at a time #BCSM |
 | susie wee @susiewee Words of wisdom from a very wise survivor @stales . #BCSM |
| Howard Karpoff @doctorkarpoff RT @stales: T1 recap: T1 recap: Ask for help with meals, rides, tasks, errands - whatever will help you on your treatment journey. #BCSM |
| Terri Coutee @6state @stales Great organization here @clean4reason https://t.co/qaiEsshOVJ #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff I encourage patients to come up with a list of needs they can reference when people ask how they can help—easier to plan than think on the fly! #bcsm |
| NYorBust @bust_yor @DrAttai @stage4kelly I no longer trust my team. They are blaming each other (gyn blames med on, med onc blames gyn) and no one is being straight with me about my risks or what happened to me. I think they are mainly concerned with protecting themselves. #bcsm |
| Dr. Deanna Attai @DrAttai @DianneSF sorry missed your introduction, welcome to the #bcsm chat@ |
| Alicia C. Staley @stales RT @DrSGraff: I encourage patients to come up with a list of needs they can reference when people ask how they can help—easier to plan than think on the fly! #bcsm |
| Alicia C. Staley @stales RT @6state: @stales Great organization here @clean4reason https://t.co/qaiEsshOVJ #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff RT @stales: T2: T2: How do you build your "support" team - the family and friends that will be your go-to support team? It's not easy! What advice would you give to a person newly diagnosed with cancer? What made a difference for you? #BCSM |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff RT @6state: @stales Great organization here @clean4reason https://t.co/qaiEsshOVJ #bcsm |
| Lex @Lex_in_CO Some local groups offer help with cleaning/light chores. I was glad to find reasonable wig. Holy $$ Cow! Surgery, chemo, life in a never ending tornado 🌪sometimes a HUG is biggest help. #BCSM |
| NYorBust @bust_yor @DrAttai @stage4kelly To quote, the last med onc said she only treats “from the chest up”. What do I do?#bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @bust_yor @DrAttai @stage4kelly I’m sorry you are having such a rough experience. Do you have options for a second opinion near you? #bcsm |
| Lex @Lex_in_CO RT @6state: @stales Great organization here @clean4reason https://t.co/qaiEsshOVJ #bcsm |
| Dr. Deanna Attai @DrAttai RT @stales: T2: T2: How do you build your "support" team - the family and friends that will be your go-to support team? It's not easy! What advice would you give to a person newly diagnosed with cancer? What made a difference for you? #BCSM |
| NYorBust @bust_yor @itsthebunk @DrAttai @stage4kelly I’m so sorry. I was repeatedly hospitalized for mine meanwhile they didn’t diagnose it and no one suspected it or took me off tam (or told me the risks). #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @stales Figure out who you trust, whose opinion you value, who knows you best. I reached out to @stales, @coffeemommy and @chemobrainfog, all of whom I met through my cancer advocacy. I became an advocate in the wake of my mother's 2nd bc diagnosis and my bf's #metastatic bc death. #BCSM |
| Liz 🌊 🌊 🌊 🌊 @lizard817 @bust_yor @DrAttai @stage4kelly Are you in NYC. If so I was diagnosed 9 years ago with early stage BC and can recommend a great surgeon #bcsm |
| Alicia C. Staley @stales RT @LisaDTRice: @stales Figure out who you trust, whose opinion you value, who knows you best. I reached out to @stales, @coffeemommy and @chemobrainfog, all of whom I met through my cancer advocacy. I became an advocate in the wake of my mother's 2nd bc diagnosis and my bf's #metastatic bc death. #BCSM |
| FollowHeidi @FollowHeidi instincts matter, don’t give time to people who aren’t on your side. Don’t waste effort with anyone who doubts what you feel is right. online community=good: many groups will help you w/answers to ? (in addition to your onc) and you can be uplifted from around the globe. #bcsm |
| Sylvie Leotin @sleotin @stales A2. My family lives in France, so it had to be from friends. Asking for help is a trial and error. You have to ask people to discover who is willing to help and who is not. You can't know until you ask. #bcsm |
| Kathy Gori @kathygori @IBCResearch I had a poor prognosis and a bankers box full of newspaper clippings one of which turned out to be a medicine ( Herceptin) that was being developed and I turned out needing later on. When the internet came in I finally threw the clippings out #bcsm |
| Alicia C. Staley @stales @SallyOkun @sleotin great idea! #bcsm |
| susie wee @susiewee @stales Thank you! Will do! Xoxo My brave survivor friend/sister! #BCSM |
| Liza B @itsthebunk @bust_yor @DrAttai @stage4kelly Arg, so sorry that this is what you went through :( For me thankfully it didn't exacerbate my endo (surgery revealed endo after I spent YEARS in pain knowing something was v wrong). I hope you find new docs who can help you with both dxs. Maybe a new gyn and a new Med Onc? #bcsm |
| NYorBust @bust_yor @lizard817 @DrAttai @stage4kelly Thank you. I’m in nyc but I’m looking for a med onc who can treat me as a whole person and not just “from the chest up” #bcsm |
 | Tom Siffringer @Kubtec3D RT @BC3C: We are looking forward to visiting your table. @Kubtec #breastcancer @BC3C |
| Liza B @itsthebunk @Lex_in_CO HUGS?! What are those strange things? LOL! Seriously, yes, a good hug is a wonderful thing! Sending hugs to you :) #bcsm |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @stales: T1: Here are some great resources on asking for help: T1: Here are some great resources on asking for help: https://t.co/qGU1tIjCMS #BCSM |
| Sylvie Leotin @sleotin @stales A2. Don't ask people sequentially. It takes forever and doesn't work. Make a list of people who may be able to help and email them all at the same time. Or use a tool like CaringBridge, etc. to post requests for help. #bcsm |
| Liza B @itsthebunk RT @stales: @SallyOkun @sleotin great idea! #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: T1: Here are some great resources on asking for help: T1: Here are some great resources on asking for help: https://t.co/qGU1tIjCMS #BCSM |
| Liza B @itsthebunk @sleotin @stales J'ai eu le même problème. #bcsm |
| Liza B @itsthebunk RT @FollowHeidi: instincts matter, don’t give time to people who aren’t on your side. Don’t waste effort with anyone who doubts what you feel is right. online community=good: many groups will help you w/answers to ? (in addition to your onc) and you can be uplifted from around the globe. #bcsm |
| Lex @Lex_in_CO T2 Avoid the drama but know your Stress is real so be honest. I broke down over Fridge magnets. Emotions are crazy. I needed STRONG and forgiving team members #BCSM |
| Liza B @itsthebunk RT @bust_yor: @lizard817 @DrAttai @stage4kelly Thank you. I’m in nyc but I’m looking for a med onc who can treat me as a whole person and not just “from the chest up” #bcsm |
| Liza B @itsthebunk RT @sleotin: @stales A2. Don't ask people sequentially. It takes forever and doesn't work. Make a list of people who may be able to help and email them all at the same time. Or use a tool like CaringBridge, etc. to post requests for help. #bcsm |
| NYorBust @bust_yor Just as a general quest for med onc’s: is it true that you don’t have to think about (know) the effects of tamoxifen on endometriosis when prescribing it? Is it unreasonable for me to want this? #bcsm |
| Alicia C. Staley @stales RT @sleotin: @stales A2. Don't ask people sequentially. It takes forever and doesn't work. Make a list of people who may be able to help and email them all at the same time. Or use a tool like CaringBridge, etc. to post requests for help. #bcsm |
| Alicia C. Staley @stales RT @Lex_in_CO: T2 Avoid the drama but know your Stress is real so be honest. I broke down over Fridge magnets. Emotions are crazy. I needed STRONG and forgiving team members #BCSM |
| Dr. Kelly Shanahan @stage4kelly @bust_yor @DrAttai In these days of specialization and subspecialization you will need to see a medical oncologist AND a gynecologist, maybe even a reproductive endocrinologist for medical management and a minimally invasive fellowship trained gyn for surgical management 1/2 #bcsm |
| Liza B @itsthebunk RT @bust_yor: Just as a general quest for med onc’s: Just as a general quest for med onc’s: is it true that you don’t have to think about (know) the effects of tamoxifen on endometriosis when prescribing it? Is it unreasonable for me to want this? #bcsm |
| Liza B @itsthebunk RT @stage4kelly: @bust_yor @DrAttai In these days of specialization and subspecialization you will need to see a medical oncologist AND a gynecologist, maybe even a reproductive endocrinologist for medical management and a minimally invasive fellowship trained gyn for surgical management 1/2 #bcsm |
| Alicia C. Staley @stales T3 coming up! #bcsm |
| Dr. Kelly Shanahan @stage4kelly @bust_yor @DrAttai Then those docs need to talk to one another to come up with the best options to present to you, based on your needs. 2/2 #bcsm |
| NYorBust @bust_yor Am I supposed to just understand the interaction (and diagnose endo) on my own? #bcsm again, gyn didn’t spot it and says it’s med onc’s responsibility. |
| Liza B @itsthebunk RT @stage4kelly: @bust_yor @DrAttai Then those docs need to talk to one another to come up with the best options to present to you, based on your needs. 2/2 #bcsm |
 | Sarah D. Wald @SarahDWald RT @thebreastofus: Hi #bcsm crew!! FTBOU is the first online community for #womenofcolor diagnosed with #breastcancer founded by two #BreastCancerBaddies @marissadt28 @BraveBeauty26 uplifting and sharing our stories https://t.co/nFDo1lR2ch |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @stales @coffeemommy @chemobrainfog Also, remain true to yourself throughout the process. I'm not on FB, never have been. I didn't join a FB group due to my diagnosis. I use the phone to call people every day. I called my team members to ask for what I needed, didn't email. #BCSM |
 | Dennis Keim @denniskeim RT @subatomicdoc: Maybe patients and caregivers should have a say on how to improve the website @ePatientDave @stales @JFreemanDaily @TheLizArmy @MatthewZachary @hedy_wald @MarksPhone @pfanderson @corrie_painter #ayacsm #bcsm #btsm #crcsm #lcsm #gyncsm |
| Alicia C. Staley @stales RT @LisaDTRice: @stales @coffeemommy @chemobrainfog Also, remain true to yourself throughout the process. I'm not on FB, never have been. I didn't join a FB group due to my diagnosis. I use the phone to call people every day. I called my team members to ask for what I needed, didn't email. #BCSM |
| IBC Research Fdn @IBCResearch @thebreastofus Hey there @thebreastofus ! How are things with you? #bcsm |
| forthebreastofus @thebreastofus Definetly bring a friend or family member with you to appts and have them record the visit. There’s soooo much information spewed at you with you’re dx it’s a lot to absorb. Going back to listen or having your family listen gives a 2nd or 3rd ear #BCSM |
| Liz 🌊 🌊 🌊 🌊 @lizard817 @bust_yor @DrAttai @stage4kelly My ONC is no longer in the city but she was good at listening and respecting my concerns sorry #bcsm |
 | Sangeetha Kolluri, DO, FACOS @BreastTexas Checking in! I don’t often get to be a part of the chat, but I’m #breastfeeding my 5 week old so I have a moment 😂🤱🏽 #BCSM |
| Alicia C. Staley @stales T3: What's one thing you learned on your journey about support, and building a support network that made a big difference for you? #BCSM |
| Dr. Deanna Attai @DrAttai RT @stales: T3: T3: What's one thing you learned on your journey about support, and building a support network that made a big difference for you? #BCSM |
| Howard Karpoff @doctorkarpoff RT @stales: T3: T3: What's one thing you learned on your journey about support, and building a support network that made a big difference for you? #BCSM |
 | Uppity Cancer Pt @UppityCancerP @bust_yor @lizard817 @DrAttai @stage4kelly I see my onc as the cancer expert. My #Palliative / Supportive Care doc is the full body expert #bcsm |
| NYorBust @bust_yor @stage4kelly @DrAttai Thanks. I see why this works in theory. But in my case gyn says it’s med onc and med onc says it’s gyn and I don’t know where to turn. #bcsm. Can someone tell me who I should ask? The med onc’s I’ve seen say they treat the chest up. |
 | Seth Rotberg @Srotberg15 RT @subatomicdoc: Maybe patients and caregivers should have a say on how to improve the website @ePatientDave @stales @JFreemanDaily @TheLizArmy @MatthewZachary @hedy_wald @MarksPhone @pfanderson @corrie_painter #ayacsm #bcsm #btsm #crcsm #lcsm #gyncsm |
| Dr. Kelly Shanahan @stage4kelly @bust_yor would you expect your electrician to know how to fix your leaky toilet? Training for oncologists and gynecologists is so different and it’s hard enough to know everything about one’s own speciality. We need a team to care for us if we have more than 1 condition. #bcsm |
| Lisa Hagen @lisa_hagen22 T2: My family lives in western Canada so I rely on friends for support. My best friend is a physician and that has been such a big help. I have an amazing network of friends and I very blessed that they are so helpful. #BCSM |
| Lex @Lex_in_CO Boundaries are good. Also make a list of things you don’t like. Personally I hate sunflowers. Also, let your team do drop offs. You don’t have energy to “visit” with each helper. #bcsm |
| IBC Research Fdn @IBCResearch @itsthebunk @Lex_in_CO I have a few for you next time we're in #huggingdistance @itsthebunk!! #bcsm |
| FollowHeidi @FollowHeidi Help others when you are ready and able. Someone else needs help with the lessons you’ve learned; share it all. Tell about the charity that helped you the most, the exercise that allowed you to regain movement, the diet that helped with side effects. #bcsm |
| forthebreastofus @thebreastofus Honestly, you don’t have to build a support team. Those who show up will and will build that “team” for you. They rally and stand in the gap for you #BCSM #forthebreastofus |
| NYorBust @bust_yor @stage4kelly I understand what you’re saying. But I would definitely expect my electrician to know that of she left wires in the bathtub I might get electrocuted. #bcsm |
| Liza B @itsthebunk @IBCResearch @Lex_in_CO Same to you my friend! 😊🧡 #bcsm |
| Alicia C. Staley @stales RT @thebreastofus: Definetly bring a friend or family member with you to appts and have them record the visit. There’s soooo much information spewed at you with you’re dx it’s a lot to absorb. Going back to listen or having your family listen gives a 2nd or 3rd ear #BCSM |
| forthebreastofus @thebreastofus RT @6state: @stales Great organization here @clean4reason https://t.co/qaiEsshOVJ #bcsm |
| Roberta A Albany @raalbany RT @stales: T3: T3: What's one thing you learned on your journey about support, and building a support network that made a big difference for you? #BCSM |
| Alicia C. Staley @stales RT @thebreastofus: Honestly, you don’t have to build a support team. Those who show up will and will build that “team” for you. They rally and stand in the gap for you #BCSM #forthebreastofus |
| Alicia C. Staley @stales RT @FollowHeidi: Help others when you are ready and able. Someone else needs help with the lessons you’ve learned; share it all. Tell about the charity that helped you the most, the exercise that allowed you to regain movement, the diet that helped with side effects. #bcsm |
| Alicia C. Staley @stales @IBCResearch @itsthebunk @Lex_in_CO hugs!!!! #bcsm |
| Alicia C. Staley @stales RT @Lex_in_CO: Boundaries are good. Also make a list of things you don’t like. Personally I hate sunflowers. Also, let your team do drop offs. You don’t have energy to “visit” with each helper. #bcsm |
| Alicia C. Staley @stales RT @lisa_hagen22: T2: T2: My family lives in western Canada so I rely on friends for support. My best friend is a physician and that has been such a big help. I have an amazing network of friends and I very blessed that they are so helpful. #BCSM |
| forthebreastofus @thebreastofus Yes! Also, for friends and family...just do!! A lot of times, the person going through cancer doesn’t know what they need or where to start. Something as small as gas gift cards or Amazon deliveries help. It’s the little things!! #bcsm #forthebreastofus |
| Alicia C. Staley @stales RT @lizard817: @bust_yor @DrAttai @stage4kelly My ONC is no longer in the city but she was good at listening and respecting my concerns sorry #bcsm |
| Dr. Kelly Shanahan @stage4kelly @bust_yor Wires and water definitely don’t mix. Did your oncologist know that you had been diagnosed with endometriosis?. #bcsm |
| Jamie Holloway, PhD @jamienholloway Yes! Someone suggested I put a cooler out on my porch if I was going to be out or napping (or didn’t want company) so friends could drop food on their schedule and I didn’t have to entertain. #bcsm |
| forthebreastofus @thebreastofus @IBCResearch We are good! Getting ready to take LA by storm at the @YSCBuzz Summit with some #BreastCancerBaddies. How are you? #BCSM |
| forthebreastofus @thebreastofus @jamienholloway Ooh this is an awesome idea! #BCSM |
| Kathy Gori @kathygori @thebreastofus Also just a day out with someone and NO mention of cancer just good times like before #bcsm |
| NYorBust @bust_yor @stage4kelly No I was undiagnosed but symptomatic and being treated for it by my whole team (hospitalizations, transfusions, pain meds...) #bcsm both gyn and med onc were treating me. And they were working together. |
| Liza B @itsthebunk @bust_yor @stage4kelly Sounds like this is a case for lots of self-advocacy on yr part (sorry but it's what we have to do much of the time) Sounds like it would be good for you to do some research into the correlation btwn endo/tam, & find like @stage4kelly said, the specialists you'll need. #bcsm |
| Liza B @itsthebunk RT @kathygori: @thebreastofus Also just a day out with someone and NO mention of cancer just good times like before #bcsm |
| Sylvie Leotin @sleotin @stales A3. Don't assume your best friends & closest loved one will be the most helpful. Be open to letting new people enter your life. Don't dwell on those who don't help. Make room for unexpected acts of kindness. I got the most help from friends I didn't know before cancer #bcsm |
| Liza B @itsthebunk RT @sleotin: @stales A3. Don't assume your best friends & closest loved one will be the most helpful. Be open to letting new people enter your life. Don't dwell on those who don't help. Make room for unexpected acts of kindness. I got the most help from friends I didn't know before cancer #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @stales 2 things: I learned that my son is my #1 fan. I learned that not everyone has the same perspective on cancer as I do. My support network was essential for those times when I needed to toss ideas, suggestions, etc., around. #bcsm |
| Roberta A Albany @raalbany RT @sleotin: @stales A3. Don't assume your best friends & closest loved one will be the most helpful. Be open to letting new people enter your life. Don't dwell on those who don't help. Make room for unexpected acts of kindness. I got the most help from friends I didn't know before cancer #bcsm |
| Kathy Gori @kathygori @stage4kelly @bust_yor Boy is that true ...dealing w/ that situation right now, two conflicting meds #bcsm |
| Alicia C. Staley @stales 3 minutes to go! Last thoughts for tonight's chat? #bcsm |
| Roberta A Albany @raalbany @sleotin @stales So true!! #bcsm |
| forthebreastofus @thebreastofus @kathygori That part!! We’ve had friends who didn’t want to tell us about their day because we have cancer🙄. It’s like NO, treat me like I’m normal so I don’t have to think about cancer in this moment! #BCSM |
| Liza B @itsthebunk RT @thebreastofus: @kathygori That part!! We’ve had friends who didn’t want to tell us about their day because we have cancer🙄. It’s like NO, treat me like I’m normal so I don’t have to think about cancer in this moment! #BCSM |
| Lex @Lex_in_CO T3 - biggest thing learned was be forgiving. 4 team members, care givers & YOURSELF. Have to forgive what gets done/said/left undone - all of it. CANCER is not pretty, regular rules don’t apply. ❤️ also count #BCSM crew as part of your sanity check team 💕 |
| NYorBust @bust_yor So med onc’s don’t know the interaction between tam and endo?#bcsm |
| Alicia C. Staley @stales RT @sleotin: @stales A3. Don't assume your best friends & closest loved one will be the most helpful. Be open to letting new people enter your life. Don't dwell on those who don't help. Make room for unexpected acts of kindness. I got the most help from friends I didn't know before cancer #bcsm |
| Alicia C. Staley @stales RT @jamienholloway: Yes! Someone suggested I put a cooler out on my porch if I was going to be out or napping (or didn’t want company) so friends could drop food on their schedule and I didn’t have to entertain. #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @sleotin @stales I am so lucky that I've had friends for the entirety of my life. My best friend, whom I've known since first grade, was a rock. We talked multiple times a week. She was in CO, I was in DC. She was here for my surgery. #bcsm |
| Liza B @itsthebunk Goodnight all! Thanks @stales and all for another great #BCSM chat! Have a great week! |
| forthebreastofus @thebreastofus @DianneSF @BCSMChat Welcome! We always say meet people where they are at. Ask them how are they doing, do they have basic needs covered for that week and what do they need in that moment from you #BCSM |
| Liz 🌊 🌊 🌊 🌊 @lizard817 @stales Thanks for tonight stales #bcsm |
| Dr. Deanna Attai @DrAttai great convo tonight on asking for help and support - thanks @stales and the entire #bcsm crew! |
| Alicia C. Staley @stales RT @Lex_in_CO: T3 - biggest thing learned was be forgiving. 4 team members, care givers & YOURSELF. Have to forgive what gets done/said/left undone - all of it. CANCER is not pretty, regular rules don’t apply. ❤️ also count #BCSM crew as part of your sanity check team 💕 |
| Alicia C. Staley @stales @lizard817 Good night. #BCSM |
| Lisa Hagen @lisa_hagen22 Goodnight. Have a great week! #BCSM |
| NYorBust @bust_yor @stage4kelly Yes thank you. I have a definitive diagnosis now. Just looking for a new med onc. #bcsm |
| Alicia C. Staley @stales Good night everyone! See you next week #bcsm |
| Lex @Lex_in_CO @stales Blessed to have this chat as part of my ongoing journey and support team. Thank you for all you do 😁 #BCSM |
| Alicia C. Staley @stales GROUP HUG #bcsm |
| Dr. Kelly Shanahan @stage4kelly Night all! #bcsm |
| Lex @Lex_in_CO RT @stales: GROUP HUG #bcsm |
| Liza B @itsthebunk RT @Lex_in_CO: @stales Blessed to have this chat as part of my ongoing journey and support team. Thank you for all you do 😁 #BCSM |
| Jamie Holloway, PhD @jamienholloway Good night all! #BCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @sleotin: @stales A3. Don't assume your best friends & closest loved one will be the most helpful. Be open to letting new people enter your life. Don't dwell on those who don't help. Make room for unexpected acts of kindness. I got the most help from friends I didn't know before cancer #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @stales Good night! Sleep tight. Great discussion tonight. Thank you! #bcsm |
| Alicia C. Staley @stales @Lex_in_CO Glad it helps! Happy to be able to host #BCSM week after week! |
| Alicia C. Staley @stales @lisa_hagen22 Glad we could help! #BCSM |
| Sylvie Leotin @sleotin RT @sleotin: @stales A1. As a cancer patient living alone, without a caregiver, I had to ask for help from the very beginning. It was hard. I hate asking for help. But I had no choice. #bcsm |
| Sylvie Leotin @sleotin RT @stales: T1: T1: Going through a cancer experience can be very difficult. For some, the situation can be overwhelming. At what point should you ask for help? And how do you ask for help? #BCSM |
| Sylvie Leotin @sleotin RT @sleotin: @stales A2. Don't ask people sequentially. It takes forever and doesn't work. Make a list of people who may be able to help and email them all at the same time. Or use a tool like CaringBridge, etc. to post requests for help. #bcsm |
| Sylvie Leotin @sleotin RT @stales: T2: T2: How do you build your "support" team - the family and friends that will be your go-to support team? It's not easy! What advice would you give to a person newly diagnosed with cancer? What made a difference for you? #BCSM |
| Sylvie Leotin @sleotin RT @sleotin: @stales A3. Don't assume your best friends & closest loved one will be the most helpful. Be open to letting new people enter your life. Don't dwell on those who don't help. Make room for unexpected acts of kindness. I got the most help from friends I didn't know before cancer #bcsm |
| Sylvie Leotin @sleotin RT @stales: T3: T3: What's one thing you learned on your journey about support, and building a support network that made a big difference for you? #BCSM |
| Kathy Gori @kathygori RT @subatomicdoc: Maybe patients and caregivers should have a say on how to improve the website @ePatientDave @stales @JFreemanDaily @TheLizArmy @MatthewZachary @hedy_wald @MarksPhone @pfanderson @corrie_painter #ayacsm #bcsm #btsm #crcsm #lcsm #gyncsm |
| Kathy Gori @kathygori Goodnight all.... sleep tight #bcsm |
| forthebreastofus @thebreastofus @DianneSF @BCSMChat @APOSHQ @IPOSPsychoOncol Thank you, we will!! #BCSM |
| forthebreastofus @thebreastofus #BCSM |
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