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#BCSM Transcript

Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.

ProfileTweet
NCI Cancer Stats @NCICancerStats
Black women are more likely to die from #BreastCancer than women of other races and ethnicities: https://t.co/YvNRoeQmwg #BCSM https://t.co/gt7uKHX9Mu
Alicia C. Staley @stales
Good evening! #bcsm
Alicia C. Staley @stales
Welcome everyone! #bcsm
Alicia C. Staley @stales
It's Monday at 9 pm ET.... So, it's #BCSM time
Kathy Gori @kathygori
Hi everyone, 2x bc’er checking in from hot hot hot Northern Ca 🍷 country #bcsm
Gary L. Thompson @garyleethompson
@DrAttai @stales Good evening... a restful Monday night in Austin, Texas... happy to be "amongst" friends from around the world at #bcsm
Kathy Gori @kathygori
RT @NCICancerStats: Black women are more likely to die from #BreastCancer than women of other races and ethnicities: Black women are more likely to die from #BreastCancer than women of other races and ethnicities: https://t.co/YvNRoeQmwg #BCSM https://t.co/gt7uKHX9Mu
Alicia C. Staley @stales
@garyleethompson @DrAttai hello, hello! #bcsm
Alicia C. Staley @stales
@kathygori hi there! #bcsm
Kathy Gori @kathygori
RT @breastandsea: So grateful for @Stickit2Stage4 ‘s heartfelt testimony paving the way for compassionate end of life options in NY #bcsm https://t.co/kS5kQgCRiA
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
Greetings from Florida! Dx March 2014 Stage Ia, bcs/chemo/rads. Now on anastrozole and NED. #bcsm
Robin Holmes @Majormac1
Checking in from Memphis. Hello everyone #BCSM
Alicia C. Staley @stales
@Majormac1 hi there! #bcsm
Matthew Katz, MD 🟦 @subatomicdoc
@DrAttai Good evening, Deanna! #bcsm
Alicia C. Staley @stales
@Elissa_Malcohn hi there! #bcsm
Alicia C. Staley @stales
@garmischgirl Hi there! #bcsm
Kathy Gori @kathygori
RT @socflyny: THIS THREAD! 🚨👇Please read and share -- EVEN if you have an employer-sponsored health insurance, THIS AFFECTS YOU! Accidents and diagnoses don't care about political affiliation ... #BCSM #Cancer #LymeDisease #preexistingconditions #healthinsurance #obamacare #ACA #trumpcare https://t.co/SpaLTrIFuj
Matthew Katz, MD 🟦 @subatomicdoc
Hi #bcsm friends - Matt Katz, radiation oncologist here in Massachusetts. I hope you are all well.
Jamie Holloway, PhD @jamienholloway
Hi all-- Jamie in Northern VA. 5 yrs NED after stage2 TNBC. Scientist, advocate, and multitasking mom. In and out for tonight's chat! #bcsm
The IBC Network Foundation @TalkIBC
Howdy! #bcsm
Dennis Keim @denniskeim
Howdy, #bcsm folks. Am checking in by phone tonight. So may be less verbose. Dxed in 2013 with Stage 1 breast cancer. Still NED in NE.
Robin Holmes @Majormac1
@stales Hi @stales I love comedy shows. #bcsm
Alicia C. Staley @stales
@DrAttai LOL rookie! #bcsm
Alicia C. Staley @stales
@denniskeim hi there! #bcsm
Alicia C. Staley @stales
@TalkIBC Welcome! #bcsm
Alicia C. Staley @stales
@jamienholloway hey hey! #bcsm
Alicia C. Staley @stales
@subatomicdoc nice to see you! #bcsm
Jamie Holloway, PhD @jamienholloway
@itsthebunk Welcome back, friend! #bcsm
Matthew Katz, MD 🟦 @subatomicdoc
@stales Hi Alicia! Good to see you too #bcsm
Jamie Holloway, PhD @jamienholloway
@stales Hi there, friend! #bcsm
Jamie Holloway, PhD @jamienholloway
@TalkIBC Hi Terry! #bcsm
Alicia C. Staley @stales
Tonight is open mic night! What's open mic night, you may ask? Here you go! https://t.co/W9pT0hDioz #bcsm
Alicia C. Staley @stales
@itsthebunk well, hello there #bcsm
Gary L. Thompson @garyleethompson
@itsthebunk Welcome back Liza... good to "see" you here at #bcsm
Angela Alexander PhD @thecancergeek
Hello everybody. #bcsm
Matthew Katz, MD 🟦 @subatomicdoc
@DrAttai @ASBrS Totally understand - you've been very busy and in high demand! #bcsm
Dr. Kelly Shanahan @stage4kelly
Hi everybody!! Kelly, prior ob/gyn, current MBC patient & advocate, usually of Lake Tahoe, but currently in Philly after AACR (Chicago), LBBC (Philly), & meeting with the FDA (Bethesda). #bcsm
Gary L. Thompson @garyleethompson
@stales My mind is wandering... I can't help but think what if oncology wasn't patient-centric but patient-designed? What would it look like if we made it? #bcsm
Robin Holmes @Majormac1
@denniskeim Hi Dennis. Love to see guys on this chat. Mac’s (Stage 4 MBC) is on his big fishing trip with a bunch of pilots. #bcsm
Kathy Gori @kathygori
@itsthebunk Good to see you here again #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@stales Hi all. Palliative Care & Med onc in Houston. #bcsm
Dr. Kelly Shanahan @stage4kelly
Currently having a glass (well, maybe a bottle) of wine with @akknowles1, celebrating our successful @FDAOncology meeting #bcsm
Alicia C. Staley @stales
@IshwariaMD Welcome! #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
Breast Med Onc in Kansas City. Still wrangling littles to bed...I’ll catch up #bcsm
Jamie Holloway, PhD @jamienholloway
@DrAttai @subatomicdoc @ASBrS I always think that-- then it comes and I have a whole new list of things to do! #bcsm
Inspire @InspireIsHealth
Hello to #bcsm, John Novack from Inspire checking in.
Alicia C. Staley @stales
@teaminspire hi!! #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@itsthebunk Welcome back! Glad the break was a restful one. #bcsm
Gary L. Thompson @garyleethompson
@Majormac1 @denniskeim It is especially an honor to be here amongst guys that are facing #breastcancer I am "simply" a grieving spouse who misses the dickens out of #theloveofmylife and wants to #ChangeTheFight with cancer. #bcsm
Alicia C. Staley @stales
@DrSGraff hey there! #bcsm
Alicia C. Staley @stales
@akknowles1 @stage4kelly What's up ladies?! #bcsm
Alicia C. Staley @stales
Okay - it's open mic night! #bcsm
Alicia C. Staley @stales
T1 is coming up! #bcsm
Alicia C. Staley @stales
T1: What's on your mind? Share with #BCSM
Kathy Gori @kathygori
@DrAttai @subatomicdoc @ASBrS What happens then? Vacation? #bcsm
Gary L. Thompson @garyleethompson
Music just went off in the house... every time somebody uses the downstairs bathroom, my sound system goes off. Need to figure out that 3-way switch... something is wrong somewhere... ;-) #bcsm
Alicia C. Staley @stales
@akknowles1 @stage4kelly very nice! #bcsm
Dr_Dana @Dr_Dana
Good evening! Breast surgeon in Little Rock.Counting down to ASBrS;-) #bcsm
Rebecca Pine @breastandsea
So powerful #bcsm https://t.co/KUuSbeNQb5
IBC Research Fdn @IBCResearch
Busy day with onc check-up & research meetings.....long term TN #IBC thriver, diagnosed 1994, #bcsm
Alicia C. Staley @stales
T1: What's on your mind? Share with the #BCSM crew
Dr. Kelly Shanahan @stage4kelly
That was a question the @FDAOncology team asked us today - what do we think are important endpoints, what would we like to see in trial design. I was so impressed with the receptiveness of all, especially @tmprowell & Richard Pazdur #bcsm https://t.co/BJyXn16Xdh
Katherine OBrien @ihatebreastcanc
It’s me, KOB...living with Stage IV breast cancer for nine years...bone and liver Mets...I am a former trade magazine editor turned (unpaid) patient advocate #bcsm
Jamie Holloway, PhD @jamienholloway
T1: Heading to the Hill tomorrow for @AACR & @AACI_Cancer Lobby Day! A little out of my normal advocacy "lane," but hoping for a good day! #bcsm
Kathy Gori @kathygori
@akknowles1 @stage4kelly Now you two stay out of trouble tonight! #bcsm
Alicia C. Staley @stales
@ihatebreastcanc hi there #bcsm
Alicia C. Staley @stales
@jamienholloway @AACR @AACI_Cancer Good luck! #bcsm
The IBC Network Foundation @TalkIBC
@stales lol! Share with the class, do you want the edited verison? #bcsm
Dr. Kelly Shanahan @stage4kelly
@DrAttai @subatomicdoc @ASBrS Gotta take care of yourself so you can take care of others, so take a minute and breathe now! #bcsm
Robin Holmes @Majormac1
@garyleethompson @denniskeim We need to get you into @METUP - This has been an unfair fight for those with MBC. Sorry for your loss. #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@stales T1: thinking about Bush 41 being admitted to the hospital days after the passing of his wife of 73 yrs. :( #bcsm #brokenheart
Dr. Kelly Shanahan @stage4kelly
@akknowles1 I need eyebrows. Thankfully @bethfairchildnc is giving me some in June! #bcsm
Alicia C. Staley @stales
@Brooksx2 hi there! #BCSM
Gary L. Thompson @garyleethompson
@stage4kelly @FDAOncology @tmprowell I would go a step further, though. Not how do we tweak the current system to make it better but how do we completely re-envision the whole thing? Everything? Top to bottom. #bcsm https://t.co/7NzFq7gdzb
IBC Research Fdn @IBCResearch
@ihatebreastcanc Hey Katherine! #bcsm
Alicia C. Staley @stales
@TalkIBC LOL - sure! #BCSM
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@jamienholloway @AACR @AACI_Cancer Wonderful! Thank you for being such a strong advocate. Keep us posted on your day! #bcsm
Dr. Kelly Shanahan @stage4kelly
If you haven't seen it yet, please check out @METUPorg die in #bcsm https://t.co/UsI0xA908Z
Dr_Dana @Dr_Dana
@DrAttai @subatomicdoc @ASBrS I bet your kitties are a big help. lol #bcsm
Kathy Gori @kathygori
@IshwariaMD @stales I know, that’s very difficult. my dad lasted just a few months after my mom died they’d been together so long he just couldn’t do it alone #bcsm
Robin Holmes @Majormac1
@ihatebreastcanc Howdy friend #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
T1: Am looking forward to inaugural mindfulness program at my rad ctr next month. Plus I'll speak at next mo BC grp on #SurvOnc18. #bcsm
Gary L. Thompson @garyleethompson
@Majormac1 @denniskeim @Metup Thank you Robin... Maureen 1st diagnosed while pregnant in 2003. "Came back" in 2009. Metastasized in late 2013. Said goodbye on 10.21.2014. Our baby in 2003 just turned 14 on 4.7.2018. Our 3 kids are my living reminder of my love. #bcsm
Angela Alexander PhD @thecancergeek
@stage4kelly what did you learn from your mtg with the FDA? #bcsm
Alicia C. Staley @stales
Please share. RT @thecancergeek @stage4kelly what did you learn from your mtg with the FDA? #bcsm
Dr. Kelly Shanahan @stage4kelly
@jamienholloway @AACR @AACI_Cancer Dang! I could have stayed in DC tonight and joined you. Don't head up to Boston to meet up with @MBC_Project team until Wednesday #bcsm
Dr_Dana @Dr_Dana
@Elissa_Malcohn Good for you! #bcsm
Jamie Holloway, PhD @jamienholloway
T1: Also looking forward to training this week to be part of @VHC_Hospital's first class of breast cancer peer mentors! #bcsm
Robin Holmes @Majormac1
RT @garyleethompson: @stage4kelly @FDAOncology @tmprowell I would go a step further, though. Not how do we tweak the current system to make it better but how do we completely re-envision the whole thing? Everything? Top to bottom. #bcsm https://t.co/7NzFq7gdzb
Kathy Gori @kathygori
@stage4kelly @akknowles1 @bethfairchildnc I want to hear about that... I’ve just never had them ...been drawing them on since I was a teenager #bcsm
Alicia C. Staley @stales
@Dr_Dana Hi there! #bcsm
Dr. Kelly Shanahan @stage4kelly
@kathygori @akknowles1 You should have seen us the other night! #bcsm
Gary L. Thompson @garyleethompson
@itsthebunk @akknowles1 @Majormac1 @denniskeim This is a special community. You've been there for me over all these years. @KylaGThompson will visit #bcsm again soon. Studying tonight. Sophomore. Misses her mom. Wants to #ChangeTheFight with cancer, too. #bcsm
Alicia C. Staley @stales
@stage4kelly @METUPorg Can you share more? #bcsm
Brandi Preston @_brandiii
Hey #bcsm friends! Brandi - #BRCA #previvor from Omaha, NE!
Alicia C. Staley @stales
@_brandiii hi there! #bcsm
Katherine OBrien @ihatebreastcanc
My mom died from inflammatory metastatic breast cancer in 1983, 2 weeks after my HS graduation. I am now about the same age as she was (52). She was a pt at Lake Forest which was a country hospital then; state of the art now as part of Northwestern Memorial #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@jamienholloway @VHC_Hospital Wonderful! #bcsm
Jamie Holloway, PhD @jamienholloway
@stage4kelly @AACR @AACI_Cancer @MBC_Project Rats! You're already gone, though? Have fun in Boston! #BCSM
Alicia C. Staley @stales
RT @jamienholloway: T1: T1: Also looking forward to training this week to be part of @VHC_Hospital's first class of breast cancer peer mentors! #bcsm
Katherine OBrien @ihatebreastcanc
RT @Majormac1: @ihatebreastcanc Howdy friend #bcsm
Dr. Kelly Shanahan @stage4kelly
@garyleethompson @Majormac1 @denniskeim Caregivers are vital and are simply anything other than people equally harmed by MBC #bcsm
Kathy Gori @kathygori
@stage4kelly @akknowles1 What happens in Philly, stays in Philly? #bcsm
Dr. Susan Love @DrSusanLove
RT @stage4kelly: That was a question the @FDAOncology team asked us today - what do we think are important endpoints, what would we like to see in trial design. I was so impressed with the receptiveness of all, especially @tmprowell & Richard Pazdur #bcsm https://t.co/BJyXn16Xdh
IBC Research Fdn @IBCResearch
RT @ihatebreastcanc: My mom died from inflammatory metastatic breast cancer in 1983, 2 weeks after my HS graduation. I am now about the same age as she was (52). She was a pt at Lake Forest which was a country hospital then; state of the art now as part of Northwestern Memorial #bcsm
Katherine OBrien @ihatebreastcanc
RT @IBCResearch: @ihatebreastcanc Hey Katherine! #bcsm
Dennis Keim @denniskeim
@_brandiii #GBR, Brandi. :) #bcsm
Alicia C. Staley @stales
RT @stage4kelly: @garyleethompson @Majormac1 @denniskeim Caregivers are vital and are simply anything other than people equally harmed by MBC #bcsm
Emily Monteleone @Emily_Monte
RT @NSABPFoundation: Watch this inspirational video of @jamecancerdoc of @ClevelandClinic discussing his relationship with NSABP, Neratinib and the importance of breast cancer clinical trials. https://t.co/YSpFaRIR3U #bcsm https://t.co/aLPaAdpTCJ
Gary L. Thompson @garyleethompson
@stage4kelly @Majormac1 @denniskeim I think caregivers/widows/widowers are part of the #collateraldamage of #cancer that @DrSusanLove so beautifully articulates. #bcsm
Andrea @BraveBosom
Stopping by to say hello!! #BCSM
Alicia C. Staley @stales
@BraveBosom hello #bcsm
Brandi Preston @_brandiii
Would love to see some advocacy for regulation and oversight in #genetictesting - variant classification, accuracy, a lab must be looking at the entire gene before they add it to a panel, etc. it’s like the wild, Wild West right now. #bcsm https://t.co/0nGp4PeaEm
Gary L. Thompson @garyleethompson
@kathygori @stage4kelly @akknowles1 Was in Philly with @KylaGThompson for a National Volleyball Qualifier a few weeks back. @tayl0rth0mps0n came up from Charlottesville to be with us. Great weekend with 2 out of the 3 kids. #bcsm https://t.co/ZiJmqSFAED
Angela Alexander PhD @thecancergeek
Random thing I realized when going over a pt's schedule today.....ASCO is 6 weeks away! Hopefully some interesting data to discuss #bcsm
Dr. Susan Love @DrSusanLove
No question! #bcsm https://t.co/BQ2sLNow5X
Dr. Kelly Shanahan @stage4kelly
@thecancergeek The breast onc team led by @tmprowell and @FDAOncology in general, including director of OCE, Richard Pazdur, really want to help patients. They truly listened, and Dr Pazdur gave the team marching orders. Sometimes the FDA is blamed for things they don't say/do.#bcsm
Gary L. Thompson @garyleethompson
@thecancergeek Looking forward to being up at ASCO this year... Maureen and I met in Chicago. Kids are coming up, too, for some family time afterwards. #bcsm
Andrea @BraveBosom
T1: On my mind: civic trusts as a better stewardship model for health data. #BCSM. https://t.co/ECceVBdLtq. @McDapper
Alicia C. Staley @stales
RT @garyleethompson: @stage4kelly @Majormac1 @denniskeim I think caregivers/widows/widowers are part of the #collateraldamage of #cancer that @DrSusanLove so beautifully articulates. #bcsm
Hillary (Stires) Andrews, PhD @HillStirSci
@stales Hi everyone! A bit late but excited to chat! #bcsm
Alicia C. Staley @stales
@HillStirSci hi there! #bcsm
Robin Holmes @Majormac1
Since it’s open Mic tonight..Mac goes for scans May 8. Just hit the 10 month mark on Ibrance & I’m scared shitless. Can’t get into any clinical trials. We need to light a fire 🔥 #BCSM
Dr. Susan Love @DrSusanLove
RT @BreastAdvocate: Let nothing stand in your way! #MondayMotivation #bcsm https://t.co/MdQGTvBUIV
Gary L. Thompson @garyleethompson
@akknowles1 @kathygori @stage4kelly @KylaGThompson @tayl0rth0mps0n Thank you... the key was marrying well... I was blessed by a truly beautiful bride that was and is #theloveofmylife This is my Maureen on our honeymoon to Denmark and Norway in 1990 #bcsm https://t.co/qzDl6EGkOo
Alicia C. Staley @stales
@Majormac1 Sending you a bug hug #bcsm
Alicia C. Staley @stales
T2 coming up.... #bcsm
Jamie Holloway, PhD @jamienholloway
@HillStirSci @stales Hi Hillary! #BCSM
Angela Alexander PhD @thecancergeek
@akknowles1 meetings are a way to disseminate and discuss breaking news in a way a press release/publication can't really replicate. #bcsm
Alicia C. Staley @stales
T2: How are you doing? How are you feeling? #bcsm
Dr. Kelly Shanahan @stage4kelly
@stales @METUPorg @METUPorg has been doing die-ins at @LivingBeyondBC #lbbcmetsconf since 2015 to bring attention to and to remember the 113 Americans that die every day from MBC. This year we added in speakers on disparities: @TerlisaFights @mkhealingwithin Deborah Croskrey. It was powerful #bcsm
Hillary (Stires) Andrews, PhD @HillStirSci
@jamienholloway @stales Hi Jamie! I can’t wait to hear about your day tomorrow. I have to get myself to something like that soon! #bcsm
Robin Holmes @Majormac1
RT @stage4kelly: @stales @METUPorg @METUPorg has been doing die-ins at @LivingBeyondBC #lbbcmetsconf since 2015 to bring attention to and to remember the 113 Americans that die every day from MBC. This year we added in speakers on disparities: @TerlisaFights @mkhealingwithin Deborah Croskrey. It was powerful #bcsm
Jamie Holloway, PhD @jamienholloway
@HillStirSci @stales YES!! This is with @AACR, and they love to have researchers at all levels participate! I'll be sure you get pinged the next time they have a lobby day! #BCSM
Gary L. Thompson @garyleethompson
@BraveBosom @McDapper T1: Would agree... new stewardship model for #healthdata critical. Here's a little piece following my #TEDx talk in Penang, Malaysia on a CLOUDy Future for the Internet to put "us" back in charge of our data. https://t.co/UoBm23qqZH #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@Majormac1 (((Hugs))) and fingers crossed. #bcsm
Alicia C. Staley @stales
RT @jamienholloway: @HillStirSci @stales YES!! This is with @AACR, and they love to have researchers at all levels participate! I'll be sure you get pinged the next time they have a lobby day! #BCSM
Kathy Gori @kathygori
@Majormac1 Sending you good scan juju #bcsm
Hillary (Stires) Andrews, PhD @HillStirSci
@jamienholloway @stales @AACR Thank you!!! #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@thecancergeek @akknowles1 Sometimes national meetings are a larger stage; and peer review & publication take time—often meeting presentations ARE expedited. But good to remember that peer reviewed publication is standard—lots of changes happen between the stage and print. #bcsm
Randy C. Miles MD, MPH, FSBI @RMilesMD
RT @BreastAdvocate: 10 ways to overcome #anxiety when #worry gets out of control. @BCCare #breastcancer #bcsm https://t.co/oA5e9TTMUX
IBC Research Fdn @IBCResearch
@SWOG spring meeting lots of discussion on how we can broaden inclusion criteria for #cliicaltrials especially for metastatic patients, more like #reallife We're making progress but need to be faster! #bcsm
Dr. Kelly Shanahan @stage4kelly
@thecancergeek @akknowles1 Hoping some of you will tweet out any important news on #MBC. I'm not going to make it this year - too many meetings, too little money. #bcsm
Alicia C. Staley @stales
RT @IBCResearch @SWOG spring meeting lots of discussion on how we can broaden inclusion criteria for #cliicaltrials #bcsm
Gary L. Thompson @garyleethompson
@akknowles1 @kathygori @stage4kelly @KylaGThompson @tayl0rth0mps0n My son @taylorthompson put it best, "I wanted to do something not just mourning the breast cancer, but mourning the mom, the life, the friend, the architect, the person that did things for other people.” #bcsm
Stephanie Graff, MD, FACP, FASCO @DrSGraff
@stage4kelly @thecancergeek @akknowles1 I will be tweeting! #bcsm #ASCO18
Dr. Kelly Shanahan @stage4kelly
@IBCResearch @SWOG And need to get some MBC patients involved with @SWOG. #bcsm
Rachel Webb @raychwrites
Hi #bcsm butting my head in late. Distracted rewatching Marvelous Mrs Maisel with my mom.
Gary L. Thompson @garyleethompson
@akknowles1 @kathygori @stage4kelly @KylaGThompson @tayl0rth0mps0n We miss her, but we will honor her legacy by creating our own. We simply will not allow her memory to be defined by cancer but only by reflecting her love. https://t.co/Hq9PUtF8ej #bcsm
Alicia C. Staley @stales
@raychwrites hi there! #bcsm
Katherine OBrien @ihatebreastcanc
T1: Rembering our long drives, when I was first diagnosed with MBC I chose my onc for proximity. I later changed. very fortunate a comprehensive cancer center is 25 min away via train @LurieCancer #GoNorthwestern #bcsm
J Caldwell @thejhcaldwell
RT @malefitness: At The Underbelly, men join the discussion on breast cancer. Read why we have breasts too, and how our treatment is different. #bcsm https://t.co/xz4p29lpqq
Dr. Kelly Shanahan @stage4kelly
@DrAttai @DrSGraff @thecancergeek @akknowles1 Which is why we need you smart people giving us the really scoop. #bcsm
Kathy Gori @kathygori
@stales @IBCResearch @SWOG Now that would be great! #bcsm
Dr. Kelly Shanahan @stage4kelly
@DrSGraff @thecancergeek @akknowles1 We can always count on you! #bcsm
Ishwaria Subbiah, MD MS FASCO @IshwariaMD
@stage4kelly @thecancergeek @akknowles1 Will be there at #ASCO18 tweeting away! #bcsm
Compassion&ChoicesNY @CompNChoicesNY
RT @breastandsea: So grateful for @Stickit2Stage4 ‘s heartfelt testimony paving the way for compassionate end of life options in NY #bcsm https://t.co/kS5kQgCRiA
Robin Holmes @Majormac1
I love your thinking @garyleethompson - If we are going to change things we need to rethink and revamp a failed cancer research model. That is what Act UP did. No one wanted parallel trials. It was forced on the powers to be. Discoveries happened at a much faster rate #bcsm https://t.co/e3st8713qP
Gary L. Thompson @garyleethompson
@ihatebreastcanc @LurieCancer I was very fortunate when you took that same train last year so that we could have the opportunity to meet, as well as the chance to talk more at #SABCS #bcsm
Kathy Gori @kathygori
RT @Majormac1: I love your thinking @garyleethompson - If we are going to change things we need to rethink and revamp a failed cancer research model. That is what Act UP did. No one wanted parallel trials. It was forced on the powers to be. Discoveries happened at a much faster rate #bcsm https://t.co/e3st8713qP
Katherine OBrien @ihatebreastcanc
@IshwariaMD @stage4kelly @thecancergeek @akknowles1 Me too! #bcsm (I am fortunate to live in Chicago)
Gary L. Thompson @garyleethompson
@akknowles1 @DrSGraff @thecancergeek @ASCO This seems like one of the things that should be patient-designed. What if we were in charge? What if by controlling our data, through communities of shared disease, we could flip the model? #bcsm
Alicia C. Staley @stales
RT @IBCResearch: @SWOG spring meeting lots of discussion on how we can broaden inclusion criteria for #cliicaltrials especially for metastatic patients, more like #reallife We're making progress but need to be faster! #bcsm
Gary L. Thompson @garyleethompson
@Majormac1 Just a crazy guy that believes the world can be different. It is not just about doing old things in new ways but doing new things. #bcsm
Rachel Webb @raychwrites
@stales Gotta get back to my cancer survivor fitness group. Need it for self care. Tomorrow night is yoga. Yay! #bcsm
Enlightening Results 💡 @GraceCordovano
Waving hello to all of my #bcsm friends & wishing you a wonderful chat tonight! Be back soon! https://t.co/RJRTZOkfRD
Alicia C. Staley @stales
@GraceCordovano hi there! #bcsm
Rick Boulay,MD @journeycancer
RT @DrSusanLove: No question! #bcsm https://t.co/BQ2sLNow5X
Susan Rahn @Stickit2Stage4
RT @breastandsea: So grateful for @Stickit2Stage4 ‘s heartfelt testimony paving the way for compassionate end of life options in NY #bcsm https://t.co/kS5kQgCRiA
Alicia C. Staley @stales
T3 coming up #bcsm
Dr. Kelly Shanahan @stage4kelly
Absolutely. #NothingAboutUsWithoutUs #bcsm https://t.co/YXm2ERJ8CB
Alicia C. Staley @stales
T3: What's on tap for the next few weeks? Who's going to ASCO? ASBRS? Any vacations? #bcsm
Rachel Webb @raychwrites
@stales Feeling...optimistic. #bcsm
Dennis Keim @denniskeim
@raychwrites @stales Rachel, I've really fallen off the wagon this winter. Time to get with the program now the weather has improved. #bcsm
Dr. Kelly Shanahan @stage4kelly
@garyleethompson @Majormac1 And we need people like you, thinking outside the box, to be the change. #bcsm
Gary L. Thompson @garyleethompson
@stage4kelly It seems to me that the oncology ecosystem is a lot like Facebook. We put our data in and then we lose control of our own journey. Shouldn't the ones with cancer be the ones setting the rules? #bcsm
Angela Alexander PhD @thecancergeek
T3. Dana Farber has a mini conference coming up for IBC pts on Sat 5/5 @ 10am. @TalkIBC and I will attend too #bcsm
Rachel Webb @raychwrites
@stales Hoping to go to my summer camp reunion! I’d also like to get to a conference this year. Going to start looking for something that would be good for a first timer. #bcsm
Kathy Gori @kathygori
@denniskeim @raychwrites @stales I’ve got a live in hairy exercise machine aka a Siberian Husky #bcsm
Robin Holmes @Majormac1
@garyleethompson “Doing the same things over and over again and expecting different result is insanity” #bcsm
Katherine OBrien @ihatebreastcanc
My mom died in 1983...the walks, races etc. started a year or so later. I wasn’t interested...those were for happy people who were ok...I wanted to get very far away from cancer. And for many years I did... #bcsm
Social✽Fly @socflyny
@stales Still haven't made it to any conferences -- would love to attend. #bcsm
Rachel Webb @raychwrites
@denniskeim @stales Yes, the lack of spring isn’t helping. I just want to be under a blanket with a heating pad. #bcsm
Dr_Dana @Dr_Dana
@thecancergeek @TalkIBC Will be thinking of y'all from Orlando ASBrS.Can't wait! #bcsm
Gary L. Thompson @garyleethompson
@stage4kelly @Majormac1 You are most kind... I still had a lot of love left to share with Maureen... I now pour that love into my work in honor of her and each of you that face this damn disease. #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@kathygori @denniskeim @raychwrites @stales At least you don't have to wipe it down. It shakes itself dry. :-) #bcsm
Rachel Webb @raychwrites
@kathygori @denniskeim @stales My lab mix is getting to an age where she’s just as happy to sleep on the couch as she is to walk 3 miles. #bcsm
Gary L. Thompson @garyleethompson
@Majormac1 Patient to Doctor, it hurts when I bang my head against the wall! Doctor to Patient, then stop!! #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@Dr_Dana @thecancergeek @TalkIBC Will wave to you from ~100 mi away. :-) #bcsm
Dr. Kelly Shanahan @stage4kelly
@stales May is Taylor Swift concert & helping college daughter move out of off campus housing (to ????). No on ASCO - getting eyebrows from @bethfairchildnc, then crashing @akknowles1 FL beach house, then attending the @metavivor @MetastasisRS patient engagement conference in FL #bcsm
IBC Research Fdn @IBCResearch
RT @ihatebreastcanc: My mom died in 1983...the walks, races etc. started a year or so later. I wasn’t interested...those were for happy people who were ok...I wanted to get very far away from cancer. And for many years I did... #bcsm
Katherine OBrien @ihatebreastcanc
@garyleethompson @LurieCancer Oh yeah... I also take the water taxi to @LurieCancer https://t.co/DHgpWnayca #bcsm
Alicia C. Staley @stales
@akknowles1 me too! Let's buy a ticket #bcsm
Brandi Preston @_brandiii
@akknowles1 Same! #bcsm
Social✽Fly @socflyny
T3: This should be on ALL #bcsm radars -- these changes will include ALL healthcare plans, even thru employers. Accidents and illness are equal opportunity and don't care which side of the aisle you sit on. These changes will be devastating to many! 👇🚨 https://t.co/0oyePdY2Tz
Veronica Waks MD,ND. @doctorveronica
RT @stage4kelly: Absolutely. #NothingAboutUsWithoutUs #bcsm https://t.co/YXm2ERJ8CB
Dr. Kelly Shanahan @stage4kelly
What he said 👇🏻 #bcsm https://t.co/cg1u0CQva2
Gary L. Thompson @garyleethompson
@ihatebreastcanc This is a great video!! #bcsm https://t.co/S0ywPLcnp8
Kathy Gori @kathygori
@raychwrites @denniskeim @stales I get the wolfish stare down so ... yeah 5 mi ? Your wish is my command #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@socflyny Yep. Been submitting public comment + calling MoCs on this. #bcsm
Robin Holmes @Majormac1
RT @socflyny: T3: T3: This should be on ALL #bcsm radars -- these changes will include ALL healthcare plans, even thru employers. Accidents and illness are equal opportunity and don't care which side of the aisle you sit on. These changes will be devastating to many! 👇🚨 https://t.co/0oyePdY2Tz
Robin Holmes @Majormac1
@socflyny So depressing to see us take a step back to hell and beyond #bcsm
Andrea @BraveBosom
RT @stales: T2: T2: How are you doing? How are you feeling? #bcsm
IBC Research Fdn @IBCResearch
T3: Taking our first vaca in 14 yr in early May!! Will be at #ASCO2018 but leaving a bit early for another meeting....sigh #bcsm https://t.co/Z9HUHvrEMc
Andrea @BraveBosom
RT @stales: T3: T3: What's on tap for the next few weeks? Who's going to ASCO? ASBRS? Any vacations? #bcsm
Rachel Webb @raychwrites
@kathygori @denniskeim @stales Mine just wants to be wherever I am. She thinks that she and I are the couple. #bcsm
Gary L. Thompson @garyleethompson
It is a good thing that Twitter doesn't have audio... Sweet Caroline just came up on the playlist. @KylaGThompson and I are about to start belting it out!!! This is joy!!!! #bcsm
Kathy Gori @kathygori
@stage4kelly @stales @bethfairchildnc @akknowles1 @metavivor @MetastasisRS Did your daughter find an internship? A friends son is looking to go to Chapman in a couple of years #bcsm
Robin Holmes @Majormac1
RT @garyleethompson: @stage4kelly It seems to me that the oncology ecosystem is a lot like Facebook. We put our data in and then we lose control of our own journey. Shouldn't the ones with cancer be the ones setting the rules? #bcsm
Kathy Gori @kathygori
RT @socflyny: T3: T3: This should be on ALL #bcsm radars -- these changes will include ALL healthcare plans, even thru employers. Accidents and illness are equal opportunity and don't care which side of the aisle you sit on. These changes will be devastating to many! 👇🚨 https://t.co/0oyePdY2Tz
Social✽Fly @socflyny
@Elissa_Malcohn Glad to hear! We all need to be doing this. I've been all over this for months. #bcsm
Kyla Thompson @KylaGThompson
#bcsm friends. just fyi, my dad can’t sing !! https://t.co/JK5pFy0Ol7
Alicia C. Staley @stales
RT @thecancergeek: T3. Dana Farber has a mini conference coming up for IBC pts on Sat 5/5 @ 10am. @TalkIBC and I will attend too #bcsm
Robin Holmes @Majormac1
We can be in “more” control if we unit. That’s what Act Up did. #bcsm @METUPorg https://t.co/WQCsEAmQwB
Alicia C. Staley @stales
@thecancergeek @TalkIBC Do you have a link to send? #BCSM
Tatiana Prowell, MD @tmprowell
Grateful for input of @mkhealingwithin today. In 2014, @FDAOncology began asking companies to include men in #breastcancer trials unless scientific rationale for exclusion: https://t.co/gA60Lgxoj3. Happy to report that most BC trials designed after 2014 do allow men. #bcsm https://t.co/V2SH5p9tcU
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@itsthebunk Goodnight and have a great week! #bcsm
Dr. Kelly Shanahan @stage4kelly
@socflyny @stales SABCS is fantastic - but overwhelming and often exhausting. Apply for @abreastcancer scholarship and program #bcsm
Angela Alexander PhD @thecancergeek
@stales IBC event deets --> https://t.co/Q6BLPbeTk3 #bcsm
Katherine OBrien @ihatebreastcanc
It always bothered me that my mom didn’t really have a proper obituary...my dad was a fine writer but too grief stricken. So it made me feel good to remember her https://t.co/J7wPThPgXf #bcsm
Dennis Keim @denniskeim
Thanks for the chat, everyone. Hope you all have a good week. Take care! #bcsm
Gary L. Thompson @garyleethompson
To see my dream, watch my talk at #TEDx Austin. It is my dream to create a new paradigm for the Internet so that Act Up and anyone else can build their dreams faster, easier, better. https://t.co/FoNsLtd2qs Maureen was still alive and in audience that day. #bcsm https://t.co/tt1J5iueCG
Alicia C. Staley @stales
RT @thecancergeek: @stales IBC event deets --> https://t.co/Q6BLPbeTk3 #bcsm
Enlightening Results 💡 @GraceCordovano
RT @tmprowell: Grateful for input of @mkhealingwithin today. In 2014, @FDAOncology began asking companies to include men in #breastcancer trials unless scientific rationale for exclusion: https://t.co/gA60Lgxoj3. Happy to report that most BC trials designed after 2014 do allow men. #bcsm https://t.co/V2SH5p9tcU
Alicia C. Staley @stales
@garmischgirl Good night, nice to see you! #bcsm
Robin Holmes @Majormac1
@tmprowell @mkhealingwithin @FDAOncology They did, but not with great success unfortunately. I was part of that push.Follow @malefitness #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
@DrAttai @Dr_Dana @thecancergeek @TalkIBC @ASBrSFoundation Oh, that's tempting! Will see how my schedule goes and will share with others here. Thanks! #bcsm
Alicia C. Staley @stales
@DrAttai aww... Thanks for sharing. #bcsm
Alicia C. Staley @stales
@denniskeim great to see you as always. #bcsm
Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn
Have a great week, everyone! (((Hugs))) to all! #bcsm
Social✽Fly @socflyny
@stage4kelly @stales @abreastcancer Thanks, Kelly! #bcsm
Dr_Dana @Dr_Dana
Y'all have a good week! #bcsm
Gary L. Thompson @garyleethompson
@DrAttai @KylaGThompson @akknowles1 Thank you Deanna... You, Alicia, and Jodi created a special community through #bcsm
Robin Holmes @Majormac1
Goodnight everyone! Sweet dreams #BCSM
Alicia C. Staley @stales
@Majormac1 Good night #bcsm
Kathy Gori @kathygori
Have a wonderful week everyone... a closing shot of petunias here in #sonoma #bcsm https://t.co/InhBf3fC7g
Dr. Kelly Shanahan @stage4kelly
@kathygori @stales @bethfairchildnc @akknowles1 @metavivor @MetastasisRS She found an unpaid internship and is pursuing others - and paid jobs as well! She heads to Europe mid Aug to meet new friends before going on Semester at Sea, and will spend about 10 days with me in Europe too! #bcsm
Alicia C. Staley @stales
RT @kathygori Have a wonderful week everyone... a closing shot of petunias here in #sonoma #bcsm https://t.co/RliKCsFtps
Kathy Gori @kathygori
@Majormac1 Goodnight to you ❤️#bcsm
Alicia C. Staley @stales
Good night everyone #bcsm
Kathy Gori @kathygori
@stage4kelly @stales @bethfairchildnc @akknowles1 @metavivor @MetastasisRS Sounds like an exciting summer! #bcsm
Katherine OBrien @ihatebreastcanc
RT @thecancergeek: @stales IBC event deets --> https://t.co/Q6BLPbeTk3 #bcsm
IBC Research Fdn @IBCResearch
Good to be with you all for another Monday night! Have a great week #bcsm❤️
Dr. Kelly Shanahan @stage4kelly
Goodnight all! Will see you next week when I'm finally home after 4 cities, 3 conferences. I miss my dogs. And husband. #bcsm
Kathy Gori @kathygori
@stage4kelly Safe travels ! #bcsm
Dr. Kelly Shanahan @stage4kelly
@ihatebreastcanc @akknowles1 @FDAOncology If you hadn't had that confirmation I would have invited you! #bcsm
Jamie Holloway, PhD @jamienholloway
Night all, talk soon! #BCSM
Dr. Kelly Shanahan @stage4kelly
If any of you can attend the @metavivor @MetastasisRS patient engagement conference in Tampa in June I highly encourage it. https://t.co/pNHzoiCZxM #bcsm
Josi williamson @josiwilliamson
RT @DrSusanLove: No question! #bcsm https://t.co/BQ2sLNow5X
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