#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
– ().
See #BCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Dana-Farber @DanaFarber What Does a Breast Cancer Lump Feel Like? https://t.co/ENGQ7ui18e #bcsm https://t.co/zjmiqwgPDu |
 | Alicia C. Staley @stales Welcome everyone! #bcsm |
| Alicia C. Staley @stales It's time for #BCSM |
 | Andrea @BraveBosom Hi there #bcsm!! |
| Alicia C. Staley @stales @BraveBosom hi there! #bcsm |
 | Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins 👋 #bcsm Becca from @LombardiCancer , #lobular breast cancer research |
 | Lisa Rice #MaskUp (she/her) @LisaDTRice Are we there yet? Time for open mic night at #bcsm? https://t.co/JheGX7CuF5 |
 | Miami Gives @MiamiGives RT @DanaFarber: What Does a Breast Cancer Lump Feel Like? https://t.co/ENGQ7ui18e #bcsm https://t.co/zjmiqwgPDu |
| Alicia C. Staley @stales @DrAttai hi there! #bcsm |
| Alicia C. Staley @stales @LisaDTRice hey hey! #bcsm |
| Alicia C. Staley @stales @Prof_Riggins @LombardiCancer hi there! welcome! #bcsm |
 | Hillary (Stires) Andrews, PhD @HillStirSci @stales Hi everyone! I’m Hillary, a postdoc studying endocrine resistance in ER+ breast cancer at @LombardiCancer. #bcsm |
| Alicia C. Staley @stales @BraveBosom Welcome! #bcsm |
 | Kathy Gori @kathygori Hey there everybody 2x bc’er checking in from Sunny 🍷country Nor Ca #bcsm |
 | Erika Cromwell @rivereac Hi from SD. Stage IV ER+ PR+ #bcsm |
 | Beth Fand Incollingo @FandIncollingo Hi, Everyone. Beth from CURE magazine here. #bcsm |
| Alicia C. Staley @stales @rivereac hi there! #bcsm |
 | Dr. Priya Jadeja @drpriyajadeja Hello from #NJ! #bcsm |
| Alicia C. Staley @stales @FandIncollingo Welcome Beth! #bcsm |
 | Dennis Keim @denniskeim Hey, #bcsm peeps. Stage 1 in 2013 with ITCs. Still NED in NE. |
| Alicia C. Staley @stales @PJadeja16 hello NJ from BOS #bcsm |
| Alicia C. Staley @stales @denniskeim hey dennis! #bcsm |
| Alicia C. Staley @stales @rivereac welcome! hugs! #bcsm |
| Alicia C. Staley @stales @kathygori hello, hello! #bcsm |
| Alicia C. Staley @stales @HillStirSci @LombardiCancer hello! Great to see you! #bcsm |
| Alicia C. Staley @stales So nice to see all of you ! #bcsm |
 | Jamie Holloway, PhD @jamienholloway Hi all, Jamie in Northern VA, NED 5+yrs after early stage TNBC. #bcsm |
 | @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher Checking in to see what’s to ighr’s topic. I’m Cindy from NJ. #mmsm #bcsm |
 | NCI Cancer Stats @NCICancerStats Female #breastcancer is the most common invasive cancer in the United States. Find more statistics on this disease here: https://t.co/Ru6H32eazS #BCSM https://t.co/RQwICtOvO6 |
 | Howard Karpoff @doctorkarpoff #BCSM hi all breast surgeon from slightly upstate NY checking in on my phone |
 | Alyssa Cotler @AlyssaJoy71 Hello from Maryland! #bcsm |
| Alicia C. Staley @stales It's Open Mic night --- What's on your mind? #bcsm |
| Alicia C. Staley @stales @AlyssaJoy71 hi there #bcsm |
| Alicia C. Staley @stales @doctorkarpoff hello there! multi tasker! #bcsm |
| Alicia C. Staley @stales @itsthebunk hey! #bcsm |
| Dr. Priya Jadeja @drpriyajadeja RT @NCICancerStats: Female #breastcancer is the most common invasive cancer in the United States. Find more statistics on this disease here: https://t.co/Ru6H32eazS #BCSM https://t.co/RQwICtOvO6 |
 | Matthew Katz, MD 🟦 @subatomicdoc Good evening, everyone. Matt Katz, radiation oncologist joining #bcsm. I hope you are all well. |
| Alyssa Cotler @AlyssaJoy71 It's been 33 years today since my mom died from metastatic breast cancer. It's been 3 years this week since I was diagnosed with breast cancer. #bcsm https://t.co/H7n2CU0BfW |
| Alicia C. Staley @stales Before we get started, you can learn more about #BCSM here: https://t.co/0KzBtOpPgz |
| Jamie Holloway, PhD @jamienholloway @itsthebunk Hey Liza!#bcsm |
| Alicia C. Staley @stales You can also learn more about the #BCSM Community here: https://t.co/rUD9nLTZe4 |
| Matthew Katz, MD 🟦 @subatomicdoc @itsthebunk Hi Liza! #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @stales Hi Alicia, good to join you #bcsm |
| Howard Karpoff @doctorkarpoff RT @LisaDTRice: Are we there yet? Time for open mic night at #bcsm? https://t.co/JheGX7CuF5 |
| Matthew Katz, MD 🟦 @subatomicdoc @doctorkarpoff Good evening! #bcsm |
| Kathy Gori @kathygori @itsthebunk Hi Liza! #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @stales Did anyone’s treatment team help them with finding mental healthcare either during or after treatment? So frustrated with the lack of care bff is getting post treatment. #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice #BCSM Hello from DC! |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @itsthebunk I was just thinking that! #bcsm |
 | Mary L Gorden @marylgorden Hi, all, Mary from CA foothills here Recently completed stage 2B bc tx #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @jamienholloway Hi Jamie! #bcsm |
 | Jorge Luis Lopez Esq @lopezgovlaw RT @DanaFarber: What Does a Breast Cancer Lump Feel Like? https://t.co/ENGQ7ui18e #bcsm https://t.co/zjmiqwgPDu |
| Matthew Katz, MD 🟦 @subatomicdoc @denniskeim Hi Dennis! #bcsm |
| Jamie Holloway, PhD @jamienholloway @subatomicdoc Hi there, Matt! #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @kathygori Hi Kathy! #bcsm |
| Alyssa Cotler @AlyssaJoy71 @itsthebunk Thank you. I'm glad to be here, too. #bcsm |
| Alicia C. Staley @stales @marylgorden hi there #bcsm |
 | Dr. Zeynep Hülya Gümüş 🕊️ @ZeynepHG RT @JAMAOnc: Potential to refine treatment decisions around adjuvant #hormonetherapy in patients with ER+, #HER2-neg early stage #BreastCancer by DNA analysis of somatic driver mutations. Learn more https://t.co/aBcAieWpD3 #BCSM https://t.co/P4GSOAEWQ2 |
| Alicia C. Staley @stales @LisaDTRice hey there! #bcsm |
| Alicia C. Staley @stales @subatomicdoc hi there! #bcsm |
| Alicia C. Staley @stales IT's open mic night - so it's up to you! #bcsm |
 | Dr_Dana @Dr_Dana Good evening all👋🏻 Breast surgeon in Little Rock #bcsm |
| Kathy Gori @kathygori @HillStirSci @stales One did the first time in 1990 w/ TNBC... I was in my 30s not a lot of young patients and so my onc really was active in suggesting mental health resources for me.. Without my even asking about or for it. #bcsm |
| Alicia C. Staley @stales T1: Question for #BCSM --- let us know |
| Andrea @BraveBosom I love open mic nights! Lots on my mind...mainly family this week #bcsm |
| Erika Cromwell @rivereac My thoughts...still reeling from last week's PET. Significant progression; it is now in the liver. Switched to Halaven. Fingers crossed.#bcsm |
| Alicia C. Staley @stales @Dr_Dana hi! #bcsm |
| Alicia C. Staley @stales @BraveBosom my favorite too! LOL #bcsm |
| Alyssa Cotler @AlyssaJoy71 @HillStirSci @stales Glad she's got you for an advocate. #bcsm |
| Kathy Gori @kathygori @subatomicdoc Hi there Dr. #bcsm 👋🏻 |
| Hillary (Stires) Andrews, PhD @HillStirSci @kathygori @stales That’s so awesome! I wish I could say the same. 😏 #bcsm |
 | Kistein Monkhouse, MPA @KisteinM @stales Just spoke with someone who shared her frustration with having to witness her mother battle with the insurance company as she was fighting with #breastcancer #bcsm 🙁 |
| Hillary (Stires) Andrews, PhD @HillStirSci @rivereac Fingers crossed and hugs! #bcsm |
| Alyssa Cotler @AlyssaJoy71 @rivereac So sorry to hear that @rivereac. Fingers crossed for you. #bcsm |
| Alicia C. Staley @stales @KisteinM that is tough! So sorry #bcsm |
| Jamie Holloway, PhD @jamienholloway @rivereac So sorry. Hope the Halaven will turn you around. #bcsm |
| Andrea @BraveBosom RT @KisteinM: @stales Just spoke with someone who shared her frustration with having to witness her mother battle with the insurance company as she was fighting with #breastcancer #bcsm 🙁 |
| Mary L Gorden @marylgorden @HillStirSci @stales No mental healthcare The social workers associated with the oncology department seem to be the first (and in my experience the last) source of support beyond your doctor #bcsm |
| Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins @KisteinM @stales 😞 #bcsm |
| Alicia C. Staley @stales @jamienholloway hi there! #bcsm |
 | Denis Donoghue @denisdonoghue2 RT @DanaFarber: What Does a Breast Cancer Lump Feel Like? https://t.co/ENGQ7ui18e #bcsm https://t.co/zjmiqwgPDu |
| Kathy Gori @kathygori @HillStirSci @stales There wasn’t very much way back then ... they first gave me a hotline # for a cancer buddy.. the hotline was in Chi and I was in LA but it was a great idea putting a newly dx’ed patient with someone who’d been through it. #bcsm |
| Alicia C. Staley @stales T1: What's on your mind? How can #BCSM help you? |
| Matthew Katz, MD 🟦 @subatomicdoc @Prof_Riggins @KisteinM @stales All too common. Sorry to hear it #bcsm |
| Alicia C. Staley @stales T2: Any questions about treatment decisions? #bcsm |
| Dr. Rebecca B. Riggins 🇻🇮👩🏻🔬⛵️ @Prof_Riggins @rivereac I’m so sorry - 🤞🏼#bcsm |
 | 🏳️🌈 Kathy E Gill 😷 🇺🇦mastodon.social/@kegill @kegill @METUPorg This is the first I've seen this bell or poem. #BCSM |
| Hillary (Stires) Andrews, PhD @HillStirSci @marylgorden @stales Yeah that’s her experience. Now that she’s NED (🎉) they seem to not care about her at all. It’s insane to me. #bcsm |
 | Adela @adelapoite RT @JAMAOnc: Potential to refine treatment decisions around adjuvant #hormonetherapy in patients with ER+, #HER2-neg early stage #BreastCancer by DNA analysis of somatic driver mutations. Learn more https://t.co/aBcAieWpD3 #BCSM https://t.co/P4GSOAEWQ2 |
| Kathy Gori @kathygori @HillStirSci @stales Then he sent me to an oncologist who had also been a cancer patient for meditation lessons , and he found me a psychologist who had also had had bc young. She was great.. showed me her scars it was so helpful #bcsm |
| Alyssa Cotler @AlyssaJoy71 T2: My onc and I debated today whether there is sufficient data to extend AI tx past 5 years. She says, no. Not sure I agree #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @rivereac Sorry you"ve received such sucky news. I will send good vibes your way. #bcsm |
 | Enlightening Results 💡 @GraceCordovano HI #BCSM! Grace, private cancer patient advocate joining from balmy #Cleveland from the #PESummit https://t.co/Jfp6JC2ZyS |
| Hillary (Stires) Andrews, PhD @HillStirSci @kathygori @stales That’s awesome! The amazing @GraceCordovano suggested https://t.co/P1K40nbuKC. Sounds similar! #bcsm |
| Jamie Holloway, PhD @jamienholloway @HillStirSci @marylgorden @stales Ideally, there would be a survivorship appointment and one of the things they should assess is mental health. There should be resources even if her facility can't offer them. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @itsthebunk @marylgorden @stales @CanSurround Thanks Liza!!! #bcsm |
| Kathy Gori @kathygori @HillStirSci @stales You weren’t offered any mental health suggestions? I see you had HER2+... that was my latest.. #bcsm |
 | ann donovan @ann_donovan I’m here too. The HER//HR- #brainmets patient who was supposed to die in 2016 of LM I’m still here because of non-standard treatment #BCSM |
 | Eman Aljufairi, MD @EAljufairi Hi everyone #bcsm |
| Alicia C. Staley @stales RT @kathygori: @HillStirSci @stales You weren’t offered any mental health suggestions? I see you had HER2+... that was my latest.. #bcsm |
| Alicia C. Staley @stales @EAljufairi hi there. WElcome #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @kathygori @stales My best friend had Her2+. There was some help when she was going through treatment... but not as much as I expected. I thought they might have a list of names of psychologists or something but that didn’t really exist. #bcsm |
| Alicia C. Staley @stales Question via DM: @DrAttai can you provide a quick overview of what "AI" means #bcsm |
| Beth Fand Incollingo @FandIncollingo Shouldn't mental health care be included in a survivorship plan? #bcsm |
 | Mike @usmc701952 RT @kathygori: Hey there everybody 2x bc’er checking in from Sunny 🍷country Nor Ca #bcsm |
| Alicia C. Staley @stales RT @HillStirSci: @kathygori @stales My best friend had Her2+. There was some help when she was going through treatment... but not as much as I expected. I thought they might have a list of names of psychologists or something but that didn’t really exist. #bcsm |
 | Angela Alexander PhD @thecancergeek Hello #bcsm. I'm late! #bcsm |
| Alicia C. Staley @stales @thecancergeek i see you ! #bcsm |
 | Ian Pereira @IanJPereira Hi #bcsm. I"m a resident physician from Canada often inspired by online communities! |
| Matthew Katz, MD 🟦 @subatomicdoc @EAljufairi Good evening! Thanks for joining #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @IanJPereira Hi Ian! Good to see you tonight #bcsm |
| Kathy Gori @kathygori @HillStirSci @stales I was at Cedars Sinai in LA first time, now at UCSF. This time I knew how to get that help myself but UCSF offers it. #bcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RT @FandIncollingo: Shouldn't mental health care be included in a survivorship plan? #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @kathygori @stales Good to know some places are doing it! I hope others follow suit. 😊 #bcsm |
| Alicia C. Staley @stales @IanJPereira Always welcome here! nice to see you! #bcsm |
| Alicia C. Staley @stales RT @DrAttai #bcsm AI = aromatase inhibitor. |
| Adela @adelapoite RT @DanaFarber: What Does a Breast Cancer Lump Feel Like? https://t.co/ENGQ7ui18e #bcsm https://t.co/zjmiqwgPDu |
 | 🌼Dr:Rafela🌼د:رافلة 🌼 @rafelamoon RT @DiepFlapBreast: The importance of #nutrition and #exercise before and after surgery in optimizing recovery and healing #breastcancer #breastreconstruction #plasticsurgery #bcsm https://t.co/Da28I0c1Io |
| Angela Alexander PhD @thecancergeek And they work by suppressing the production of estrogen in the fat and other places (like adrenal glands). The net result is starving the cancer of its fuel. #bcsm https://t.co/Zye1WUzbMz |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @DrAttai @FandIncollingo Do all breast cancer patients get SCP? If so when? #bcsm #mmsm |
| Matthew Katz, MD 🟦 @subatomicdoc RT @thecancergeek: And they work by suppressing the production of estrogen in the fat and other places (like adrenal glands). The net result is starving the cancer of its fuel. #bcsm https://t.co/Zye1WUzbMz |
| Alicia C. Staley @stales Quick Poll for tonight - any of you on tonight's chat have a survivorship care plan? #bcsm |
| Beth Fand Incollingo @FandIncollingo But experts often tell us that, if docs and facilities don't provide or offer mental health services, patients should make sure to ask for them. #bcsm |
| Alyssa Cotler @AlyssaJoy71 @DrAttai @Brooksx2 Is risk assessed by stage at initial diagnosis? Or OncotypeDX? Or...? #BCSM |
| Alicia C. Staley @stales @MyelomaTeacher SO Happy to see you! #bcsm |
 | cunmarket.com @ebscbwi RT @DanaFarber: What Does a Breast Cancer Lump Feel Like? https://t.co/ENGQ7ui18e #bcsm https://t.co/zjmiqwgPDu |
| Jamie Holloway, PhD @jamienholloway @MyelomaTeacher @DrAttai @FandIncollingo For early stage patients, it should happen after completion of primary treatment. (Though while still on hormone or her2 therapy). But depends on what the practice offers... #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @MyelomaTeacher @DrAttai @FandIncollingo It's increasingly common but not yet universally adopted. Our cancer center has survivorship care plans for patients, new and evolving #bcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @stales #BCSM. I have one I created myself with https://t.co/5dfmmewVv2 #mmsm |
| Matthew Katz, MD 🟦 @subatomicdoc @DrAttai @MyelomaTeacher @FandIncollingo Definitely a work in progress. #bcsm |
| Jamie Holloway, PhD @jamienholloway @itsthebunk @CancerAdvocacy I'll be in the neighborhood, will see if I can get to a tweetup! #bcsm |
| Alyssa Cotler @AlyssaJoy71 @stales Nope, maybe my calm demeanor led my team to believe I didn't need one. #bcsm |
| Dennis Keim @denniskeim Question. What's considered "standard of care" for male breast cancer patients when it comes to tamoxifen? Is five years enough? Ten? #bcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @DrAttai @FandIncollingo Myeloma doesn’t have guidelines for SCP- #bcsm #mmsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @itsthebunk @CancerAdvocacy In for a tweetup! #bcsm |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RT @subatomicdoc: @DrAttai @MyelomaTeacher @FandIncollingo Definitely a work in progress. #bcsm |
| Alicia C. Staley @stales RT @MyelomaTeacher: @stales #BCSM. I have one I created myself with https://t.co/5dfmmewVv2 #mmsm |
| Kathy Gori @kathygori @FandIncollingo Unfortunately in many places there’s a wait and not enough counselors #bcsm |
| Alicia C. Staley @stales @kegill You can learn more here: https://t.co/m6wcPknSjW #BCSM |
| Ian Pereira @IanJPereira @itsthebunk @HillStirSci @marylgorden @stales @CanSurround Looks interesting, Liza. Still not sure how it works from a quick glance at the site. Do you know anyone who has found it helpful? #bcsm #psychosocialsupport |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher RT @stales: @kegill You can learn more here: @kegill You can learn more here: https://t.co/m6wcPknSjW #BCSM |
| Matthew Katz, MD 🟦 @subatomicdoc RT @stales: @kegill You can learn more here: @kegill You can learn more here: https://t.co/m6wcPknSjW #BCSM |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @stales @kegill Journey Forward also helps create SCP. https://t.co/XvafcnKP2z #bcsm #mmsm |
| Kathy Gori @kathygori @itsthebunk @HillStirSci @stales My onc there is a great guy... Van Scoy-Mosher. He knew how to care for me when I didn’t even know I needed help #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: @kegill You can learn more here: @kegill You can learn more here: https://t.co/m6wcPknSjW #BCSM |
| Alicia C. Staley @stales T3: Question - Would you like to learn more about genetic testing/ancestry testing and what it means for cancer survivorship? #bcsm |
| Dennis Keim @denniskeim @DrAttai @NEJM I've always thought we used whatever protocol the women used and that that standard for tamoxifen went from five to ten years recently. #bcsm |
 | Social✽Fly @socflyny @stales @kegill They've been all the rage for the past 9 years since joining this rabbit hole, but I've yet to get one or meet anyone who has one ... #bcsm |
| Alicia C. Staley @stales @socflyny @kegill LOL --- good point #BCSM |
| Ian Pereira @IanJPereira @stales @kegill ^interesting. I like how it creates both a more personalized patient ("survivor") care plan and an explanation of what it is for #HCPs. I wonder if it can help fill the #healthliteracy gaps. #bcsm https://t.co/6EPsEupBCs |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher @stales Genetic testing vs Genomic testing #bcsm #mmsm |
| Jamie Holloway, PhD @jamienholloway T3: I think we'd need to be very careful talking about the direct to consumer genetic testing. I recently learned there is at least one that gives medical grade info, but most shouldn't be used for medical decisions. #bcsm |
| Alicia C. Staley @stales @TPollastro Here's the link on the survivorship care plan - I think it's more like a plan/checklist for making sure you are getting proper scans etc. https://t.co/vfOF8IiCxg #BCSM |
| Alicia C. Staley @stales RT @MyelomaTeacher: @stales Genetic testing vs Genomic testing #bcsm #mmsm |
| Alicia C. Staley @stales @MyelomaTeacher Great point! #bcsm |
| Dennis Keim @denniskeim @DrAttai @NEJM So time to flip a coin this fall? :) #bcsm |
| Alicia C. Staley @stales RT @IanJPereira: @stales @kegill ^interesting. I like how it creates both a more personalized patient ("survivor") care plan and an explanation of what it is for #HCPs. I wonder if it can help fill the #healthliteracy gaps. #bcsm https://t.co/6EPsEupBCs |
| Kathy Gori @kathygori @itsthebunk @HillStirSci @stales Well, I interviewed several oncs and then just met him and that was it! #bcsm |
 | Teri Pollastro @TPollastro @stales Kk. I misunderstood. :) #bcsm |
 | Gary L. Thompson @garyleethompson Good evening #bcsm friends... sorry to be checking in late but didn't want to miss another Monday! |
| Jamie Holloway, PhD @jamienholloway T3: That said, it might be good to walk through the different tests that are available and what their benefits and limitations really are... #bcsm |
| Ian Pereira @IanJPereira @itsthebunk @HillStirSci @marylgorden @stales @CanSurround With what seems to be limited #MentalHealth resources, I do hope it can help them stretch well (and thanks for the potential COI transparency :) #bcsm #DigitalHealth? |
| Kathy Gori @kathygori @FandIncollingo Sure, support groups are great and I’ve always been encouraged to reach out anywhere #bcsm |
| ann donovan @ann_donovan RT @DrSusanLove: If you are an experienced female clinician with a novel idea you are toast! ..... Why the Medical Research Grant System Could Be Costing Us Great Ideas via @NYTimes #bcsm https://t.co/aCNoWnl7X2 |
| Mary L Gorden @marylgorden @stales @TPollastro Thanks for sharing all of these links #bcsm |
 | Jack Warner @JackWarner16 RT @malefitness: Good news. Still awaiting a study to see if this applies to men too. #bcsm https://t.co/0IECcIsaOS |
 | Sangeeta (Helpsy) @sanHelpsy @stales Hi lovely #bcsm friends! Joining late ... |
 | Marleah Dean Kruzel, PhD @marleahdeank RT @LguzzardiM: @EMBOSU @btrfly12 "To be very blunt, I worry that women who undertake testing from @23andMe could believe that they do not carry a mutation when in fact they do, & as a consequence could die of breast or ovarian cancer," says Mary-Claire King, a University of Washington geneticist. #gcchat #bcsm |
 | Shanna Marzilli @Shanna_Marzilli @socflyny @stales @kegill My breast health center does them but it doesn’t seem to be integrated into what the physicians use for appointments. Kind of pointless. #bcsm |
| Dennis Keim @denniskeim @DrAttai Of course, will be talking to my onc. I just wanted to be up with any information that might assist in the decision. :) #bcsm |
| Sangeeta (Helpsy) @sanHelpsy @stales I'm very curious to see everyone's answer to this Q #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @denniskeim @DrAttai @NEJM Do you have any side effects on Tam? #bcsm |
| Alicia C. Staley @stales @sanHelpsy HI! #bcsm |
| Kathy Gori @kathygori @itsthebunk @HillStirSci @stales I probably rode up in the elevator with you! #bcsm |
| Alicia C. Staley @stales @garyleethompson hi Gary! #bcsm |
| ann donovan @ann_donovan @DrSusanLove @nytimes That’s why I’m still here, I went go art school and a web consultant, didn’t wait for non-existent studies. #BCSM |
| Dennis Keim @denniskeim @HillStirSci @DrAttai Not that I know of. I've had some concerns about blood clots but all three Dopplers were negative. #bcsm |
| Alicia C. Staley @stales 10 minutes left in tonight's chat.... #bcsm |
| Alicia C. Staley @stales @TPollastro all good! #bcsm |
| Gary L. Thompson @garyleethompson @stales Hi my friend!! Weird 2 weeks coming up... my son flew back to UVA on Saturday to be an orientation leader and my 2 girls are flying to be with Maureen's folks for 2 weeks. Longest stretch I will be alone since Maureen passed 10.21.2014. #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice @itsthebunk @CancerAdvocacy #BCSM Thanks. This year's death anniversary was particularly difficult. I can always use a re-read of that blog post. It pushes me right back where I need to be. |
| Hillary (Stires) Andrews, PhD @HillStirSci @denniskeim @DrAttai That’s good! Intrigued about side effects in men taking it and I’m just wondering if there are negatives to continuing to be “safe”. (Quotes bc we don’t know if it is.) ☺️ #bcsm |
| Dennis Keim @denniskeim @HillStirSci @DrAttai Sometimes it's hard to tell if something is a side effect unless you go off the drug in question, of course. #bcsm |
| ann donovan @ann_donovan There’s nothing like multiple #oncologists giving up on you to keep you motivated to not die #bcsm |
 | SPECFORD59 @SPECFORD59 #BCSM https://t.co/GrPhpQT4Bu |
| Gary L. Thompson @garyleethompson @itsthebunk @stales Thank you!! All part of the journey... not sure if shared my latest with y'all... Grief Is Not a Phase | The Unexpected Journey https://t.co/nm96i8Hdw9 #bcsm |
| Sangeeta (Helpsy) @sanHelpsy @ann_donovan that's brutal! What did they say? #bcsm |
| Jamie Holloway, PhD @jamienholloway Night all! #bcsm |
| Social✽Fly @socflyny @Shanna_Marzilli @stales @kegill If such plans were widely utilized and adopted, it would be one thing. But they are somewhat of an enigma and DIY (+common sense). It's a huge missed opportunity. (Biz idea, Alicia??) #bcsm |
| SPECFORD59 @SPECFORD59 @DrAttai Love seeing the surgeon follow folks long term. Recurrence and local regional issues may take years to show up. An ongoing relationship is vital. #bcsm |
| Sangeeta (Helpsy) @sanHelpsy @jamienholloway I agree @jamienholloway It can add some data points and encourage certain discussions or review of risk factors that may otherwise not have come up. #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice #bcsm I think there needs to a balance. Side effects may not be worth it, particularly if the patient is older or has other health issues. I think of my mother, 2nd bc diagnosis as #Alzheimer's patient. https://t.co/cHkNR5p7ru |
| @MyelomaTeacher - Cindy Chmielewski @MyelomaTeacher Sweet dreams #bcsm peeps |
| Gary L. Thompson @garyleethompson @itsthebunk @stales It is an honor... I discovered my writing when I wrote love letters to Maureen on her CaringBridge page... many asked me to keep writing. I'm glad I did. It is incredibly therapeutic. #bcsm |
| Alyssa Cotler @AlyssaJoy71 @DrAttai This is my viewpoint, too. I'm tolerating letrozole well, so happy to extend tx. #bcsm |
 | Elle_Febbo @Elle_Febbo RT @BreastAdvocate: #BreastCancer researcher warns against online genetic tests #bcsm #GeneticTesting https://t.co/ppVwYGRwhz |
| Sangeeta (Helpsy) @sanHelpsy Good night everyone! Such a treat to stop by even if it's for few minutes. Have an awesome week! #bcsm |
| Alicia C. Staley @stales @MyelomaTeacher Great to see you! #BCSM |
| Alicia C. Staley @stales @jamienholloway Good night moon #BCSM |
| Alicia C. Staley @stales @sanHelpsy good night #bcsm |
| Howard Karpoff @doctorkarpoff always a treat listening to what's on everyone's mind. Have a great week #bcsm |
| Teri Pollastro @TPollastro Night from Seattle.#bcsm |
| Alicia C. Staley @stales @MyelomaTeacher Good night moon! #bcsm |
| SPECFORD59 @SPECFORD59 @DrAttai @LisaDTRice #BCSM Agree. AI more difficult than Tam in my experience. |
| Dennis Keim @denniskeim @marylgorden @HillStirSci @DrAttai Thanks, Mary. I don't have blood thinners as such but I do take a baby aspirin and three 1000mg fish oils a day. #bcsm |
| Alicia C. Staley @stales @TPollastro Good night from Boston #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @AlyssaJoy71 @DrAttai Tolerance plays a key role in that choice. Glad it's been reasonable for side effects #bcsm |
| Alicia C. Staley @stales Thanks for joining in everyone! Have a great week! #bcsm |
| Alicia C. Staley @stales As always, if you need something during the week, Sent out a tweet with the #BCSM bat signal! |
| Alicia C. Staley @stales GROUP HUG #bcsm |
| Matthew Katz, MD 🟦 @subatomicdoc @stales @jamienholloway Good night! Thanks everyone, always a pleasure. #bcsm |
| Lisa Rice #MaskUp (she/her) @LisaDTRice #BCSM Dang! That was a quick hour. Bless you all. Love you all! Good night. |
| Alicia C. Staley @stales @DrAttai We needed a nice and easy night after last week's ROCK STAR performance by you and @jrgralow @DrSGraff @ndenduluri1 #bcsm |
| Alicia C. Staley @stales @LisaDTRice right back at ya! #bcsm |
| Mary L Gorden @marylgorden Have a good week everyone #bcsm |
| Dennis Keim @denniskeim Have a super week, everyone! Stay cool Midwesterners. :) #bcsm |
| ann donovan @ann_donovan Arrange for hospice. Proposed older therapies that just extended life by a matter of weeks. Refuse to listen to me. #BCSM |
| Eman Aljufairi, MD @EAljufairi Good night everyone #bcsm It’s morning for me. Enjoyed the chat. |
 | Spook Nation Fitness @spooknationfit RT @DiepFlapBreast: The importance of #nutrition and #exercise before and after surgery in optimizing recovery and healing #breastcancer #breastreconstruction #plasticsurgery #bcsm https://t.co/Da28I0c1Io |
| Kathy Gori @kathygori Good night from the viney hills of Sonoma #bcsm |
 | IBC Research Fdn @IBCResearch Oops...missed out on the chat tonight. That's what happens when you stay out chasing lightening bugs (& swatting mosquitos!) #bcsm |
 | METUP @METUPorg Years of cancer advocacy panels, collaboration & cancer non-profits has failed us. That is why @CultPerfectMoms founded METUP. Together we can fight & get life saving metastatic cancer research funding from @NIH @theNCI #Silence=Death #bcsm https://t.co/FCG1QpCD2q |
| IBC Research Fdn @IBCResearch @itsthebunk @stales Sorry to miss out on the chat tonight. Went out to water plants and ended up chatting with a neighbor and watching fireflies (swatting mosquitos too) #bcsm |
| Ian Pereira @IanJPereira @socflyny @Shanna_Marzilli @stales @kegill If patients brought the HCP version in to clinical encounters, would this be an avenue to test & leverage the opportunity? #bcsm #navigation |
 | Wafik S. El-Deiry, MD, PhD, FACP @weldeiry The latest The Cancer Plus Daily! https://t.co/dKKHQV6AGl Thanks to @LacunaLoft @AmyHDeekenMD @ASlavitt #bcsm #healthcare |
#BCSM content from Twitter.