#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Alicia C. Staley @stales Hello everyone! #bcsm |
| Alicia C. Staley @stales Welcome to #BCSM |
 | Howard Karpoff @doctorkarpoff Hi every Breast surgeon from slighlty upstate NY checking in #bcsm |
| Alicia C. Staley @stales Tonight we're talking about Pet Peeves, Myths, and Fake news - and how it impacts the #BCSM community |
 | Rod Ritchie @malefitness @stales Hello, great topic today. #bcsm |
| Alicia C. Staley @stales @DrAttai hey! #bcsm |
 | Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn Greetings from Florida! Dx March 2014, Stage Ia, bcs/chemo/rads. Now on anastrazole and NED. #bcsm |
| Alicia C. Staley @stales @doctorkarpoff hi there! #bcsm |
| Alicia C. Staley @stales @malefitness hi there! nice to see you #bcsm |
| Alicia C. Staley @stales @Elissa_Malcohn welcome! #bcsm |
| Alicia C. Staley @stales Please take a moment to say hello and introduce yourselves. We will get started in a moment #bcsm |
| Howard Karpoff @doctorkarpoff @stales Hi Alicia. You've been traveling round the USA! @DrAttai Hi Deanna #bcsm |
| Alicia C. Staley @stales You can read more about #BCSM here: https://t.co/rUD9nLTZe4 |
 | Dennis Keim @denniskeim Hello, #bcsm friends. Dennis Keim here. Stage 1 BC in 2013. Node negative. ITCs. Surgery, 6x TC chemo and now tamoxifen. Still NED in NE. |
| Alicia C. Staley @stales You can also learn more about the #BCSM chat here: https://t.co/0KzBtOpPgz |
| Alicia C. Staley @stales @denniskeim hi Dennis! #bcsm |
| Alicia C. Staley @stales @itsthebunk hi! #bcsm |
 | Spannerinmyworks @SpannerInMe Hello. Happy Monday evening. ##BCSM |
 | Jamie Holloway, PhD @jamienholloway HI friends, I'm Jamie, scientist and NED 4yrs after TNBC. #bcsm |
| Alicia C. Staley @stales @doctorkarpoff @DrAttai yes! was just with @DrAttai and now I'm in Chicago for #DIA2017 - whirlwind! #bcsm |
| Alicia C. Staley @stales @jamienholloway HEY! #bcsm |
| Alicia C. Staley @stales @SpannerInMe Hello! #bcsm |
 | Robin Holmes @Majormac1 Joining you from Houston Rotary House bar. Can't be held responsible for tweets tonight #bcsm https://t.co/LOSgGJqKdq |
 | Susan Stein @CONNEXIONhealth RT @METUPorg: Great topic for the #MetastaticBC Community tonight. Join the conversation on tonight's #bcsm chat. https://t.co/3QNHMdD8rq |
| Alicia C. Staley @stales @Majormac1 Hi there! LOL #bcsm |
| Jamie Holloway, PhD @jamienholloway @itsthebunk Hi friend, miss you too! #bcsm |
 | David Sampson @djsampson @NCICancerStats I have heard many say they actually prefer the risks by decade, which is a more accurate reflection of an individual woman's risk. #BCSM https://t.co/QyNl9ITW9S |
 | IBC Research Fdn @IBCResearch Hello! #IBC nurse, dx 1994. Still working to end this crummy disease #bcsm |
| Alicia C. Staley @stales @IBCResearch hi there! #bcsm |
| Jamie Holloway, PhD @jamienholloway @stales Hi friend! Always happy to see you in a chat! #bcsm |
 | Dear Dr. Researcher, PhD @corrie_painter I'll be back in 10 minutes to talk about how this cancer nonsense is a conspiracy #bcsm |
 | Dr. Kelly Shanahan @stage4kelly Hello from beautiful but hot (for us -it's 85!!) Lake Tahoe #BCSM |
 | Dr_Dana @Dr_Dana Greetings from Little Rock.Breast surgeon here.Sounds like a fun topic! #bcsm |
 | Leslie @Leslieks Hi, #BCSM friends. I'm Leslie. 8/15 IDC Her2+ (lft) & DCIS (rt), mx 9/15, TCH protocol 1 yr. Nice to see you. |
| IBC Research Fdn @IBCResearch @stales Hi to you @stales #bcsm |
| Howard Karpoff @doctorkarpoff MYTHS: Needle biopsies DO NOT SPREAD anything. Opening a cancer does not spread it. Titanium Clips are fine. There. I've said it. #bcsm |
| Dr_Dana @Dr_Dana @doctorkarpoff Did you get all your stuff fixed?Gorgeous daughters btw! #bcsm |
 | Angela Alexander PhD @thecancergeek hello #bcsm, sorry running a little late tonight #bcsm |
 | Kathy Gori @kathygori 2xbc'er here checking in from hot hot Ca 🍷 country .. 96 right now and yet that's cooler than yesterday ! #bcsm |
 | Sandi Stanford @sandisues RT @ASCOPost: I-SPY 2 Trial: I-SPY 2 Trial: Combination of Pembrolizumab + Standard Neoadjuvant Therapy in High-Risk Breast Cancer https://t.co/gNHwXIqwr8 #ASCO17 #bcsm |
 | The IBC Network Foundation @TalkIBC HI, Sleepy in Texas! #bcsm |
| Alicia C. Staley @stales @kathygori hey there hot stuff! #bcsm |
| Leslie @Leslieks Wait. It's a myth that they spread or it's a myth that they don't spread? #bcsm https://t.co/iYLR8ofrTc |
| Howard Karpoff @doctorkarpoff @Dr_Dana Thanks about the girls. A/C units both replaced today. Pool heater still in Limbo #bcsm |
| Dr_Dana @Dr_Dana @doctorkarpoff The old 'letting the air in' myth. lol #bcsm |
| Jamie Holloway, PhD @jamienholloway @thecancergeek Hi Angela! #bcsm |
| IBC Research Fdn @IBCResearch @corrie_painter Bwa, ha, ha!! @corrie_painter Be sure to read from ur prepared script! #bcsm |
| Alicia C. Staley @stales @lindafrembes hi there! nice to see you #bcsm |
 | Erika Cromwell @rivereac Hi from SD #bcsm |
| Kathy Gori @kathygori @stales Ha! 106 yesterday .. heading to 103 Thursday! Yikes! #bcsm |
| Dennis Keim @denniskeim @kathygori Crazy hot. More like Baker than wine country. :/ #bcsm |
| Jamie Holloway, PhD @jamienholloway @TalkIBC Hi Terry! Sleepy here in VA, too! #bcsm |
| David Sampson @djsampson @NCICancerStats Actually, the "one in eight" might be a good "myth" to discuss. technically true; but not so useful? #BCSM |
| Alicia C. Staley @stales @Dr_Dana hi there! #bcsm |
| Dr_Dana @Dr_Dana @doctorkarpoff Just finished swimming in mine.Such great exercise. #bcsm |
| Kathy Gori @kathygori @denniskeim Yeah well at least it goes down at night... good 4 the 🍇 #bcsm |
| Robin Holmes @Majormac1 @stage4kelly in my case tonight going for three glasses!!! #bcsm |
 | Hillary (Stires) Andrews, PhD @HillStirSci Hi everyone! Hillary here. Post doc at #GUMC studying steroid hormone signaling in breast cancer. Oh and.... AND MY BFF IS NED. 💃🏼💃🏼💃🏼 #bcsm |
| Kathy Gori @kathygori @itsthebunk @stales Hi Liza #bcsm |
| Alicia C. Staley @stales @rivereac Welcome! #bcsm |
| Dr_Dana @Dr_Dana @stales Hello! Hope you are well. #bcsm |
| Jamie Holloway, PhD @jamienholloway @HillStirSci Was so glad to hear her news! #bcsm |
| Dr. Kelly Shanahan @stage4kelly Stress causes cancer, sugar causes cancer, being anything other than a vegan marathoning yogi causes cancer. #CancerMyths #BCSM |
| Alicia C. Staley @stales Alright, let's get this chat started! #bcsm |
| Kathy Gori @kathygori @stage4kelly Wow... that is hot for up there! #bcsm |
| Dennis Keim @denniskeim @kathygori One summer out here we had night time temperatures so high that the corn wouldn't mature properly. The new normal to come? #bcsm |
| Alicia C. Staley @stales Tonight - we're talking pet peeves, myths, and fake news. Let's start with T1.... #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @itsthebunk Sending good mojo your way that all goes well! #bcsm |
| Dr_Dana @Dr_Dana @DrAttai Are the kitties behaving? #bcsm |
| Leslie @Leslieks My friend- an organic only, vegan, marathoning, yogi (who breastfed her kids) got breast cancer. #Bcsm https://t.co/Glii4X5RjN |
| Alicia C. Staley @stales T1: What's your pet peeve about a cancer journey? #bcsm |
 | MD Anderson Cancer Center @MDAndersonNews #Breastcancer survivor finds success with the help of @PSchlembachMD: https://t.co/ya4ZZl2PxD #BCSM #endcancer https://t.co/Cz1BR0ocZF |
| Robin Holmes @Majormac1 My all time favorite tonight is drinking caused your cancer. Mac doesn't drink and I do! #bcsm |
| Rod Ritchie @malefitness @stales men waiting for bc treatment being asked: where’s your wife? #bcsm |
| IBC Research Fdn @IBCResearch @itsthebunk You got this @itsthebunk ! Will send good thoughts your way for a good day! #bcsm |
| Dennis Keim @denniskeim @DrAttai @Leslieks @doctorkarpoff But do needle biopsies generate ITCs? :) #bcsm |
| Robin Holmes @Majormac1 RT @malefitness: @stales men waiting for bc treatment being asked: @stales men waiting for bc treatment being asked: where’s your wife? #bcsm |
| Alicia C. Staley @stales RT @malefitness @stales men waiting for bc treatment being asked: where’s your wife? #bcsm |
 | Missy🌸Ryan @meoryan T1: that some how this journey imbues us with great wisdom and finding ourselves. Yuck! #bcsm |
| Kathy Gori @kathygori @itsthebunk Sending all the good juju 2 you #bcsm |
| Howard Karpoff @doctorkarpoff MYTH 4 All cancers are the same; Truth-All cancers are diff. Don't generalize across differnt types of Ca. Each patient is diff #bcsm |
| Alicia C. Staley @stales RT @stage4kelly Stress causes cancer, sugar causes cancer, being anything other than a vegan marathoning yogi causes cancer. #BCSM |
| Angela Alexander PhD @thecancergeek @malefitness that's a rude question! #bcsm |
| Leslie @Leslieks The "you're so brave". I'm not brace. I didn't have a choice about it. #bcsm https://t.co/VeQDQH0Uiw |
| Dr_Dana @Dr_Dana @denniskeim @DrAttai @Leslieks @doctorkarpoff What's an ITC? #bcsm |
| Alicia C. Staley @stales RT @itsthebunk T1. Pet peeves: there is a cure/you're cured. "Just be positive." "You had the good cancer" #bcsm |
| Alicia C. Staley @stales T1. Pet peeves: "You have an easy cancer" #bcsm |
 | shankar lal dhakar @shankarlal8094 RT @NCICancerStats: ~12.4% of women will be diagnosed with #BreastCancer in their lifetime. Get the facts at https://t.co/GagkAE11C6 #BCSM |
| Leslie @Leslieks *brave #bcsm https://t.co/IMW4Yb2pcy |
| Angela Alexander PhD @thecancergeek Myth: X person struggled with chemo....therefore I will too. Everyone's different. #bcsm |
| Dennis Keim @denniskeim T1: "Cancer free" instead of "No Evidence of Disease" (NED). It bugs me more than it should. :) #bcsm |
| IBC Research Fdn @IBCResearch @Majormac1 Probably cancer by association! Hubby says he has sympathetic #chemobrain ! #bcsm |
| Alicia C. Staley @stales T1. Pet peeves: "We are ALLLLL patients" --- says the nurse about to administer chemo... #bcsm |
| Howard Karpoff @doctorkarpoff Pet Peeves: things said by well meaning people.... #bcsm |
 | Barbara Jacoby @letlifehappen RT @MDAndersonNews: #Breastcancer survivor finds success with the help of @PSchlembachMD: #Breastcancer survivor finds success with the help of @PSchlembachMD: https://t.co/ya4ZZl2PxD #BCSM #endcancer https://t.co/Cz1BR0ocZF |
| Kathy Gori @kathygori T1: first it ain't a journey, maybe a forced march.. secondly neg thoughts, anger, or underwire bras don't cause cancer #bcsm |
| The IBC Network Foundation @TalkIBC Is this a "good" kind of cancer? or "hey caught it early right?" #bcsm |
| Dennis Keim @denniskeim @Dr_Dana @DrAttai @Leslieks @doctorkarpoff Isolated Tumor Cells. Identified in nodes but not growing. Considered a negative. #bcsm |
| Alicia C. Staley @stales T1. Pet peeves: "Just think positive" #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn T1 Any of the hype that simplifies the disease and leads to the proselytizing of quackery. #bcsm |
| Rod Ritchie @malefitness No public bc screening program for BRCA males. #bcsm |
| Leslie @Leslieks Not enough support for after active treatment, & most people believe you're "done" after active treatment. #bcsm https://t.co/VeQDQH0Uiw |
| Spannerinmyworks @SpannerInMe T1 “I knew someone who had cancer and … “ #BCSM |
| Erika Cromwell @rivereac T1: Positivity = better results. I do believe that positivity brings more life to my days, but it will not add days to my life. #bcsm #mbc |
 | David Evans @davesplace90 RT @MDAndersonNews: #Breastcancer survivor finds success with the help of @PSchlembachMD: #Breastcancer survivor finds success with the help of @PSchlembachMD: https://t.co/ya4ZZl2PxD #BCSM #endcancer https://t.co/Cz1BR0ocZF |
| Kathy Gori @kathygori @Leslieks Yeah, I was a vegetarian the first time... vegan the last time don't smoke or drink, thin yet still got it #bcsm |
| Dr_Dana @Dr_Dana @denniskeim @Dr_Dana @DrAttai @Leslieks @doctorkarpoff One theory I guess. #bcsm |
| Robin Holmes @Majormac1 Was told by an early stager not to look at the sick BC pts during early stage Tx. Said it wouldn't be Mac. I want to sock that women. #bcsm |
| David Sampson @djsampson @rivereac so well said. #bcsm |
| The IBC Network Foundation @TalkIBC "you inspire me" (which to me translates to they will not help me. Feeling inspired is enough #bcsm |
| Leslie @Leslieks #CancerPetPeeves #bcsm https://t.co/DV6sWwPoj9 |
| Leslie @Leslieks RT @doctorkarpoff: MYTH 4 All cancers are the same; Truth-All cancers are diff. Don't generalize across differnt types of Ca. Each patient is diff #bcsm |
| Alicia C. Staley @stales T1. Pet peeves: on hearing of a cancer dx: "Oh, have you tried a triple spinach kale sesame chocolate super shake? It cures cancer" #bcsm |
| Alicia C. Staley @stales RT @TalkIBC "you inspire me" (which to me translates to they will not help me. Feeling inspired is enough #bcsm |
 | paty @ytapsam RT @MDAndersonNews: #Breastcancer survivor finds success with the help of @PSchlembachMD: #Breastcancer survivor finds success with the help of @PSchlembachMD: https://t.co/ya4ZZl2PxD #BCSM #endcancer https://t.co/Cz1BR0ocZF |
| Rod Ritchie @malefitness @lindafrembes @itsthebunk @stales Wait, I was told that about prostate cancer, too. #bcsm |
| Leslie @Leslieks RT @stales: RT @itsthebunk T1. Pet peeves: RT @itsthebunk T1. Pet peeves: there is a cure/you're cured. "Just be positive." "You had the good cancer" #bcsm |
| David Evans @davesplace90 RT @MDAndersonNews: How a mom approached #breastcancer as a life lesson for the entire family: How a mom approached #breastcancer as a life lesson for the entire family: https://t.co/ZrInUMNxYz #BCSM #endcancer https://t.co/QDoHCsE3WT |
| The IBC Network Foundation @TalkIBC @SpannerInMe "they died a horrible death after suffering" Yes, I hear that alot. #bcsm |
| Alicia C. Staley @stales T1. Pet peeves: "Oh, my aunt died of cancer. How long do you have?" #bcsm |
| Angela Alexander PhD @thecancergeek "Gotta drink that alkaline water. An acidic body helps cancer to grow" #bcsm |
| Dr. Kelly Shanahan @stage4kelly Me too, Liza, me too. #BCSM https://t.co/igl6hYvGkT |
| Alicia C. Staley @stales another classic RT @thecancergeek "Gotta drink that alkaline water. An acidic body helps cancer to grow" #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @kathygori Underwire bras?! Never heard that one! Deodorant though. And someone said that to bff after she got diagnosed. 🙄🙄 #bcsm |
| Jamie Holloway, PhD @jamienholloway T1: I have to agree with all the food suggestions: do you eat broccoli/blueberries/kale... #bcsm |
| Robin Holmes @Majormac1 Having to watch Mac have a bone scan, cat scan & MRI all in one day. Is that even safe? #bcsm |
| Leslie @Leslieks I wish I had a nickel for every time I heard this (almost always ending in...fought bravely before she died.) #bcsm https://t.co/z3ZjAVDBgS |
| Alicia C. Staley @stales yes! RT @jamienholloway T1: I have to agree with all the food suggestions: do you eat broccoli/blueberries/kale... #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn T1 Hand-wringing. "I feel so bad for you!" in a tone of voice that tells me they want comfort from me. #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter T1 YOU LOOK SOOO GOOD (when in fact I looked like I felt) #bcsm |
| Alicia C. Staley @stales boom RT @corrie_painter T1 YOU LOOK SOOO GOOD (when in fact I looked like I felt) #bcsm |
| IBC Research Fdn @IBCResearch "so and so" lost their battle.....they didn't lose, cancer stole their life! #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci YES THIS. #bcsm https://t.co/NZULfnWXrQ |
| Alicia C. Staley @stales T1. Pet peeves: "You don't look sick" #bcsm |
| Rod Ritchie @malefitness @stage4kelly Pink charities that play down the fact that men get bc. #bcsm |
| Jamie Holloway, PhD @jamienholloway T1: Oh, I know someone who had that! She died... #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter @TalkIBC @SpannerInMe Yup, stories of how others suffered as they die.. never quite understood those attempts at comfort #BCSM |
| Dr. Kelly Shanahan @stage4kelly RT @IBCResearch: "so and so" lost their battle.....they didn't lose, cancer stole their life! #bcsm |
| Alicia C. Staley @stales RT @Leslieks: Not enough support for after active treatment, & most people believe you're "done" after active treatment. #bcsm https://t.co/VeQDQH0Uiw |
| Leslie @Leslieks RT @kathygori: @Leslieks Yeah, I was a vegetarian the first time... vegan the last time don't smoke or drink, thin yet still got it #bcsm |
| The IBC Network Foundation @TalkIBC @corrie_painter @SpannerInMe they are trying to relate to us but we need to teach them out. This is not how. #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter T1 people touching my head. WTF? #bcsm |
| Leslie @Leslieks RT @corrie_painter: @TalkIBC @SpannerInMe Yup, stories of how others suffered as they die.. never quite understood those attempts at comfort #BCSM |
| The IBC Network Foundation @TalkIBC @malefitness @stage4kelly Amen. pink and blue . Men matter. #bcsm |
| Rod Ritchie @malefitness @itsthebunk To which you answer, yes, we all will. #bcsm |
| Alicia C. Staley @stales -----> RT @corrie_painter T1 people touching my head. WTF? #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn T1 Having a SE ascribed by MO to something psychological before it was shown to be from steroid. (I gave him quite the side-eye.) #bcsm |
| Leslie @Leslieks Yes!!! #bcsm https://t.co/zaD9AzcBn4 |
| Alicia C. Staley @stales x100000000 RT @jamienholloway T1: Oh, I know someone who had that! She died... #bcsm |
| Alicia C. Staley @stales another classic RT @itsthebunk T1. Pet peeves: Are you going to die? #bcsm |
| Angela Alexander PhD @thecancergeek To be clear for my non-#bcsm followers - this is a myth. Not true. Our bodies manage pH perfectly fine w/o help. https://t.co/W9vzDzSz92 |
| Alicia C. Staley @stales @zmadak hi there! #bcsm |
| Smith-Brooks @Brooksx2 Lurking... #bcsm | |
 | Support Matters @supportmatters RT @stales: T1: T1: What's your pet peeve about a cancer journey? #bcsm |
| Jamie Holloway, PhD @jamienholloway @zmadak Hi Zeynep! #bcsm |
| Dr. Kelly Shanahan @stage4kelly T1: "you're so strong; I couldn't do it". It's not strength, its called being a mom and not wanting to put my daughter thru hell. #BCSM |
| Dennis Keim @denniskeim T1: I have to say as long as folks are well-meaning, I'm generally good with it. Even if I have to stifle a bit. :). #bcsm |
| Howard Karpoff @doctorkarpoff @stales @jamienholloway that is under the heading of "people are well meaning and stupid" #bcsm |
| Alicia C. Staley @stales T1. Pet peeves: on hearing I'm a 3x, 26+ year cancer survivor: "How are you still alive?" Gee, thanks lady. #bcsm |
 | Social✽Fly @socflyny RT @doctorkarpoff: MYTHS: MYTHS: Needle biopsies DO NOT SPREAD anything. Opening a cancer does not spread it. Titanium Clips are fine. There. I've said it. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @itsthebunk And the related "we're all gonna die". Yeah, bitch, but you have a chance to live to 82.4!! #bcsm |
| Alicia C. Staley @stales T1. Pet peeves: "I support breast cancer research by buying all these great products that have a pink ribbon" #bcsm |
| Kathy Gori @kathygori @itsthebunk Omg.. 1st time caught my bff telling another friend why she was cancelling something to go out w/ me... "we don't know how long" wtf...#bcsm |
| Social✽Fly @socflyny @stales @Elissa_Malcohn @zmadak @thecancergeek @kathygori @MightyCasey @jamienholloway @itsthebunk @corrie_painter Great topic -- sorry just jumping on. Don't want to inadvertently add things that have already been tweeted. #bcsm |
| Alicia C. Staley @stales some classics here tonight! #bcsm |
| Leslie @Leslieks Do you know the ring theory? Pet peeve - people who don't follow the ring theory. https://t.co/A4SyCcGofU #BCSM |
| IBC Research Fdn @IBCResearch RT @stales: T1. Pet peeves: T1. Pet peeves: "I support breast cancer research by buying all these great products that have a pink ribbon" #bcsm |
| Leslie @Leslieks RT @stales: T1. Pet peeves: T1. Pet peeves: "I support breast cancer research by buying all these great products that have a pink ribbon" #bcsm |
| The IBC Network Foundation @TalkIBC @stage4kelly @itsthebunk I have given ppl a little push & said, "pretend that was the bus that almost hit you. How do you feel now. #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @Leslieks I've got that LA Times article bookmarked: https://t.co/XzfxGcIOEh #bcsm |
| Alicia C. Staley @stales lol is right RT @lgotl1230 This chat is the best one ever!! Loling!! #bcsm |
| Kathy Gori @kathygori @stales @itsthebunk Oooooo... yes and How's your health... ??? Like I'm gonna answer that in the market... #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @stales Even though only 0.0001% of the money goes to patients or research. 🙄 #bcsm |
| Leslie @Leslieks @lindafrembes I plastered it all over my Facebook and mailed a hard copy to my mother. She ignored it. #bcsm |
| Rod Ritchie @malefitness Men excluded from bc trials. #bcsm |
| Robin Holmes @Majormac1 Going 2Oncology conferences & seeing the majority of mets advocates representing mets pts not impacted by the disease. Lack of urgency #bcsm |
| Smith-Brooks @Brooksx2 Thanks! #bcsm https://t.co/FtiiEzKiYq | |
| Kathy Gori @kathygori @zmadak @jamienholloway Waving hi! #bcsm |
| Alicia C. Staley @stales Okay, tweet out your final thoughts on T1 - pet peeves! #bcsm |
| Alicia C. Staley @stales T2 is coming up! #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @Leslieks I sent this to all of my family and friends when BFF was diagnosed! #bcsm |
| Alicia C. Staley @stales RT @malefitness Men excluded from bc trials. #bcsm |
| Alicia C. Staley @stales @Brooksx2 hi! nice to see you! #bcsm |
| Dennis Keim @denniskeim @corrie_painter I had an old guy who thought it was a trip that I had hairless arms. And touched them. That was pretty weird. #bcsm |
| Kathy Gori @kathygori @itsthebunk Wha????!!!! #bcsm |
| Dr. Kelly Shanahan @stage4kelly @malefitness Seriously! Major pet peeve and one @METUPorg is making noise about! #bcsm |
| The IBC Network Foundation @TalkIBC pushing products on us, they sell, to help us as they say drs are all in it for the $ #bcsm |
 | Meademark @meademark Preach! #bcsm🥊 https://t.co/YarA1U0WNp |
| Robin Holmes @Majormac1 Learning how much redundant research asking the same question wasting research $$$ is happening #bcsm |
 | Maroone Cancer at Cleveland Clinic Florida @Cancer_CCFla RT @LivingBeyondBC: The #AHCA would be devastating for people with cancer. Call 844-257-6227 and tell your Senators to #ProtectOurCare. #bcsm https://t.co/xK06CI672l |
| Alicia C. Staley @stales RT @HillStirSci: @stales Even though only 0.0001% of the money goes to patients or research. 🙄 #bcsm |
| Dr. Kelly Shanahan @stage4kelly RT @Majormac1: Going 2Oncology conferences & seeing the majority of mets advocates representing mets pts not impacted by the disease. Lack of urgency #bcsm |
| Alicia C. Staley @stales RT @kathygori: @stales @itsthebunk Oooooo... yes and How's your health... ??? Like I'm gonna answer that in the market... #bcsm |
| IBC Research Fdn @IBCResearch Irritating that media focuses on the "happy happy" BC stories, not real life experience. #bcsm |
| Dr. Kelly Shanahan @stage4kelly RT @Majormac1: Learning how much redundant research asking the same question wasting research $$$ is happening #bcsm |
 | Heather Swift Morrison @heatherswifty RT @djsampson: @NCICancerStats I have heard many say they actually prefer the risks by decade, which is a more accurate reflection of an individual woman's risk. #BCSM https://t.co/QyNl9ITW9S |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn T1 All the Pinktober hype AND all those who think everyone w/BC has bought into it. #bcsm |
| Alicia C. Staley @stales T2: Let's talk about cancer myths! https://t.co/KWJN9Js8Ko #bcsm |
| Angela Alexander PhD @thecancergeek Asking me if there will be "a cure" for breast cancer. Like there will be 1 magic answer to the whole spectrum of BCs. #bcsm |
| Alicia C. Staley @stales T2: What's a cancer myth you've seen in your community? #bcsm |
| Dr. Kelly Shanahan @stage4kelly @IBCResearch I will haunt anyone who says I lost my battle!! #bcsm |
| Kathy Gori @kathygori @malefitness I had no idea! Now that makes no sense. #bcsm |
| Alicia C. Staley @stales T2: Cancer Myths: Cancer is an automatic death sentence https://t.co/KWJN9Js8Ko #bcsm |
| Dr. Kelly Shanahan @stage4kelly RT @thecancergeek: Asking me if there will be "a cure" for breast cancer. Like there will be 1 magic answer to the whole spectrum of BCs. #bcsm |
| Dr_Dana @Dr_Dana @stales T2 Some ethnicities think cancer is contagious.I dispell that all the time:( #bcsm |
| Social✽Fly @socflyny T1: At least you got the "good" kind of cancer ... and let's not forget the ones who tie in the free "boob job". #icanteven #bcsm |
| Alicia C. Staley @stales T2: Cancer Myths: Sugar fuels cancer https://t.co/KWJN9Js8Ko #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter T2 during pre-chemo teeth cleaning, hygienist, 'How do you do it? How do you even wake up?' My mouth was stuffed, so I replied w hands #bcsm |
| Rod Ritchie @malefitness T2 Men don’t get breast cancer (do they?) #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn T2 Myths about the conspiracy of Big Pharma. #bcsm |
| Leslie @Leslieks That everyone responds the same way to the meds. Herceptin made me very sick. Hard to convince folks, sadly. #bcsm https://t.co/R7yIW1Fm2A |
| Alicia C. Staley @stales @corrie_painter I can name that tune with one finger #bcsm |
| Dennis Keim @denniskeim T1: When you first start telling friends and family of your diagnosis and they want you to keep in touch. The hyper attention. #bcsm |
| Spannerinmyworks @SpannerInMe RT @socflyny: T1: T1: At least you got the "good" kind of cancer ... and let's not forget the ones who tie in the free "boob job". #icanteven #bcsm |
| The IBC Network Foundation @TalkIBC @stales but then media goes the other way, if any NED time. Act like they are all "cured" Tell that to Olivia Newton John, right? #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter T2 Coffee enemas FTW #bcsm |
| Leslie @Leslieks RT @stales: T2: Cancer Myths: T2: Cancer Myths: Sugar fuels cancer https://t.co/KWJN9Js8Ko #bcsm |
| Social✽Fly @socflyny @HillStirSci Congrats!! Assume the surgery went well? Was thinking of her (and you!) #bcsm |
| Kathy Gori @kathygori T1 don't tell me about all your friends/ relatives who had what I have and same dr and died . Thanks. #bcsm |
| IBC Research Fdn @IBCResearch Totally agree @stage4kelly I detest that phrase and will join you in haunting 😬#bcsm https://t.co/xfYso94Kbe |
| Angela Alexander PhD @thecancergeek T2. Myth re. IBC (what I work on) - IBC is a disease of black women. AA have higher risk but not majority of IBC. #bcsm |
| Erika Cromwell @rivereac T1: Neither my insurance company or health system can figure out why I am past due for my yearly mammo. #mbc #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter @denniskeim ugg #BCSM |
| Kathy Gori @kathygori @socflyny Noooooooooo! Not that! #bcsm |
| Alicia C. Staley @stales T2: Cancer Myths: Deodorants cause breast cancer https://t.co/KWJN9Js8Ko #bcsm |
| The IBC Network Foundation @TalkIBC @thecancergeek yes, a problem #bcsm |
| Alicia C. Staley @stales T2: Cancer Myths: Big Pharma has the cure. #bcsm |
| Leslie @Leslieks RT @TalkIBC: @stales but then media goes the other way, if any NED time. Act like they are all "cured" Tell that to Olivia Newton John, right? #bcsm |
| Howard Karpoff @doctorkarpoff RT @stales: T2: Cancer Myths: T2: Cancer Myths: Deodorants cause breast cancer https://t.co/KWJN9Js8Ko #bcsm |
| Kathy Gori @kathygori @Dr_Dana @stales Oh yeah....some old Italian relations had that idea... why my mom told me to shut up about my cancer the 1st time #bcsm |
| Robin Holmes @Majormac1 Male Breast Cancer is just like female breast cancer #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter T2 you must be strong to beat this (still persists big time in rare cancers that are not part of the larger narrative) #bcsm |
| Howard Karpoff @doctorkarpoff Cell phones in your bra cause cancer #bcsm |
| Spannerinmyworks @SpannerInMe T2 Early detection = cure #BCSM |
| Alicia C. Staley @stales Winning RT @corrie_painter T2 Coffee enemas FTW #bcsm |
| Jamie Holloway, PhD @jamienholloway Was just about to say that one! Friends say they know it's not true. (But stopped wearing deodorant anyway) ;) #bcsm https://t.co/28j8bGZtQ0 |
| Social✽Fly @socflyny @Leslieks My favorite: Underwire bras ... How 👏 many 👏 times 👏 must 👏we 👏debunk👏 this 👏 insanity?? #bcsm |
 | Bora Lim, MD @naborala RT @stales: T2: Cancer Myths: T2: Cancer Myths: Deodorants cause breast cancer https://t.co/KWJN9Js8Ko #bcsm |
| Alicia C. Staley @stales RT @SpannerInMe T2 Early detection = cure #BCSM |
| Alicia C. Staley @stales RT @doctorkarpoff Cell phones in your bra cause cancer #bcsm |
| Leslie @Leslieks Pot is the cure, and doctors are hiding it from us. #bcsm #myths https://t.co/TJVvP1zH0r |
| Alicia C. Staley @stales RT @Majormac1 Male Breast Cancer is just like female breast cancer #bcsm |
| Leslie @Leslieks RT @stales: T2: Cancer Myths: T2: Cancer Myths: Deodorants cause breast cancer https://t.co/KWJN9Js8Ko #bcsm |
| Kathy Gori @kathygori @stales Yeah and they're not telling anyone....hate that one #bcsm |
| Angela Alexander PhD @thecancergeek @doctorkarpoff I have a colleague who is suspicious of this..... I find it difficult to believe there is a link. #bcsm |
| Leslie @Leslieks My breast surgeon told me this one. #bcsm https://t.co/Ev1zd6qqYE |
 | Nicole L. Stout DPT, FAPTA @NicoleStoutPT T2: A. don't ever life more than 5lbs for the rest of your life. B. You can't exercise you need to rest and 'get through' this first. #bcsm |
| Dennis Keim @denniskeim T2: If only my pH was a bit different this cancer would go away. Pass the baking soda. #bcsm |
| Erika Cromwell @rivereac T2: Bras cause cancer #bcsm |
| Leslie @Leslieks RT @socflyny: @Leslieks My favorite: @Leslieks My favorite: Underwire bras ... How 👏 many 👏 times 👏 must 👏we 👏debunk👏 this 👏 insanity?? #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci @stales Or the government. #bcsm |
 | FollowHeidi @FollowHeidi #bcsm myth: you have to blindly follow what others advise you to do regarding your cancer. Including your first opinion med team. @stales |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @stales @SpannerInMe I've got this from @coffeemommy bookmarked, too: https://t.co/yT3Urr7ppl #bcsm |
| Social✽Fly @socflyny @stales @doctorkarpoff Only if you keep the setting on vibrate ... (sorry) lolol #bcsm |
| Leslie @Leslieks @DrAttai You mean Dr, you! <shakes fist> #bcsm |
| FollowHeidi @FollowHeidi #bcsm myth: you can't have a baby during or after cancer diagnosis and treatment @stales |
| Dr. Kelly Shanahan @stage4kelly T2: "Your hair is back!! That must mean you're done with tx!!" No, I have MBC/stage4. "Oh, so when will you be done?" When I'm 😵 #BCSM |
| Dear Dr. Researcher, PhD @corrie_painter @Leslieks So many things are the cure, but scientists only promote what makes them money. (I will NOT die to keep the secret, promise!) #BCSM |
| Howard Karpoff @doctorkarpoff MYTH No BP, IVs phlebotomy or use of arm #bcsm |
| Social✽Fly @socflyny @SpannerInMe IF ONLY .... #bcsm |
| Kathy Gori @kathygori @stales @doctorkarpoff Damn I knew I should have carried it somewhere else!! #bcsm |
| Alicia C. Staley @stales RT @FollowHeidi: #bcsm myth: #bcsm myth: you can't have a baby during or after cancer diagnosis and treatment @stales |
| Leslie @Leslieks RT @corrie_painter: @Leslieks So many things are the cure, but scientists only promote what makes them money. (I will NOT die to keep the secret, promise!) #BCSM |
| FollowHeidi @FollowHeidi #bcsm myth: if you nurse your baby you won't get #breastcancer @stales |
| Alicia C. Staley @stales RT @FollowHeidi: #bcsm myth: #bcsm myth: you have to blindly follow what others advise you to do regarding your cancer. Including your first opinion med team. @stales |
| Alicia C. Staley @stales RT @HillStirSci: @stales Or the government. #bcsm |
| Alicia C. Staley @stales RT @Leslieks: My breast surgeon told me this one. #bcsm https://t.co/Ev1zd6qqYE |
| Alicia C. Staley @stales RT @Leslieks: Pot is the cure, and doctors are hiding it from us. #bcsm #myths https://t.co/TJVvP1zH0r |
| IBC Research Fdn @IBCResearch @doctorkarpoff I was told this....no cell phone in 1994, so don't think it caused mine 😆 Sadly I've heard it often and seen it in media reports #bcsm |
| Spannerinmyworks @SpannerInMe RT @Elissa_Malcohn: @stales @SpannerInMe I've got this from @coffeemommy bookmarked, too: @stales @SpannerInMe I've got this from @coffeemommy bookmarked, too: https://t.co/yT3Urr7ppl #bcsm |
| Alicia C. Staley @stales RT @corrie_painter: T2 you must be strong to beat this (still persists big time in rare cancers that are not part of the larger narrative) #bcsm |
| Alicia C. Staley @stales RT @stage4kelly: T2: T2: "Your hair is back!! That must mean you're done with tx!!" No, I have MBC/stage4. "Oh, so when will you be done?" When I'm 😵 #BCSM |
| Dr_Dana @Dr_Dana @doctorkarpoff That one's gonna be hard to dispell. #bcsm |
| Nicole L. Stout DPT, FAPTA @NicoleStoutPT RT @doctorkarpoff: MYTH No BP, IVs phlebotomy or use of arm #bcsm |
| The IBC Network Foundation @TalkIBC @FollowHeidi @stales I nursed five. Both breasts got cancer. The LLL still insists of teaching that falsehood. #bcsm |
| Howard Karpoff @doctorkarpoff @SeaGlass4Nicole But not for the majority of those without lymphedema Tha has been disproved and presented multiple times #bcsm |
| The IBC Network Foundation @TalkIBC @SeaGlass4Nicole @doctorkarpoff me, waving right arm air! #bcsm |
| Social✽Fly @socflyny T2: Headlines, journos, and well-meaning people who insist on telling those with metastatic disease, "you'll beat this" #bcsm |
| FollowHeidi @FollowHeidi #bcsm myth: women are the only ones who get breast cancer @stales |
| Alicia C. Staley @stales @verylightnosuga Sounds like a great idea! #bcsm |
| Alicia C. Staley @stales RT @FollowHeidi #bcsm myth: women are the only ones who get breast cancer @stales |
| Angela Alexander PhD @thecancergeek @seaglass4nicole there is data though that these things don’t increase LE risk. #bcsm |
| David Sampson @djsampson It'd be nice if folks could understand most cancers just... happen. You can lower your risk, sure, but don't try to explain each one #bcsm |
| Dr. Kelly Shanahan @stage4kelly @SeaGlass4Nicole @doctorkarpoff Recent studies have shown that these things do not contribute to the development of lymphedema. #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter T2 myth that NEEDS to be fixed: I didn't do enough (from the pt, from the family) #bcsm |
| Kathy Gori @kathygori @corrie_painter @Leslieks We're holding you to that! #bcsm 😉 |
| Alicia C. Staley @stales RT @djsampson: It'd be nice if folks could understand most cancers just... happen. You can lower your risk, sure, but don't try to explain each one #bcsm |
| Nicole L. Stout DPT, FAPTA @NicoleStoutPT @verylightnosuga @stales I still have pts tell me they heard this...like just yesterday, from some naturopath #Bcsm |
| FollowHeidi @FollowHeidi #bcsm myth: if you have insurance, you won't have financial difficulties after cancer |
| Dr_Dana @Dr_Dana @djsampson Exactly!It's all about risk factors and pot luck. #bcsm |
| Alicia C. Staley @stales RT @NicoleStoutPT: @verylightnosuga @stales I still have pts tell me they heard this...like just yesterday, from some naturopath #Bcsm |
| Angela Alexander PhD @thecancergeek @TalkIBC breastfeeding does on average dec BC risk, but not to zero. Can't overcome strong genetics like BRCA1 mutation w/ BF. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @socflyny Yeah, if you consider when I die the cancer dies, then I guess you can say I'll beat it! #bcsm |
| The IBC Network Foundation @TalkIBC @teamoncology Compare is the thief of joy. #bcsm |
| FollowHeidi @FollowHeidi #bcsm myth: if you don't find a lump, you don't have breast cancer |
| Alicia C. Staley @stales RT @corrie_painter: T2 myth that NEEDS to be fixed: T2 myth that NEEDS to be fixed: I didn't do enough (from the pt, from the family) #bcsm |
| Alicia C. Staley @stales RT @FollowHeidi: #bcsm myth: #bcsm myth: if you have insurance, you won't have financial difficulties after cancer |
| FollowHeidi @FollowHeidi #bcsm myth: if you find a lump, it is breast cancer |
| The IBC Network Foundation @TalkIBC @thecancergeek yes, and guess who is BRCA 1? me...#bcsm |
 | Gʀᴇɢᴏʀʏ Rɪᴇʟʏ @RielyMD RT @djsampson: It'd be nice if folks could understand most cancers just... happen. You can lower your risk, sure, but don't try to explain each one #bcsm |
 | Dr. Beth S. Linas(she/her) @bethlinas RT @djsampson: It'd be nice if folks could understand most cancers just... happen. You can lower your risk, sure, but don't try to explain each one #bcsm |
| Dr. Kelly Shanahan @stage4kelly @FollowHeidi I should show them my tax returns from year of mets dx - over 30k in out of pocket med expenses!! #bcsm |
 | Beth Caldwell @CultPerfectMoms Hi #bcsm--just popping in for a bit, had my first pembro/ipi treatment today, feeling achy and tired. How is everyone? |
| Rod Ritchie @malefitness @FollowHeidi @itsthebunk Unless you have inflammation... #bcsm |
| Social✽Fly @socflyny @djsampson Exactly! And the focus on RISK REDUCTION. The "prevention" narrative has GOT to go. #bcsm |
| Angela Alexander PhD @thecancergeek @TalkIBC exactly why I used that example... :) Playing the blame game re BF or not doesn't help anyone. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci People ask me all the time if I think the gov is hiding the cure - we just had 20,000 cancer scientists in DC for no reason. 🙄#AACR17 #bcsm |
| Howard Karpoff @doctorkarpoff Toilet Seats (or the beach) cause STDs ...Not breast cancer related but still cracks me up. & yes, i've been told that in the office #bcsm |
| Robin Holmes @Majormac1 RT @stage4kelly: @FollowHeidi I should show them my tax returns from year of mets dx - over 30k in out of pocket med expenses!! #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn Myth: No change in tumor after 3 yrs means it's benign (standard of care). Not true in my case! #bcsm |
| Alicia C. Staley @stales T2: Mammograms prevent breast cancer -- MYTH #bcsm |
| Kathy Gori @kathygori @SeaGlass4Nicole Yeah that's a good one #bcsm |
| FollowHeidi @FollowHeidi #bcsm myth: everyone already knows about breast cancer, so we don't have to focus on it anymore |
| The IBC Network Foundation @TalkIBC @thecancergeek yup. And we need full truth, not half truths. Tks for being a scientist. #bcsm |
| Alicia C. Staley @stales T2: Cancer Myths: Everyone who has a positive BRCA 1 or BRCA 2 test result will get breast cancer... MYTH #bcsm |
| Jamie Holloway, PhD @jamienholloway @CultPerfectMoms Hi Beth! So glad to see your got your meds today! Hope the achiness goes away quick! Hugs to you! #bcsm |
| FollowHeidi @FollowHeidi #bcsm myth: if your hair has returned, you are 'all done' with cancer |
| Leslie @Leslieks Hot flashes suck! Oh wait. That's not a myth. #BCSM |
| Social✽Fly @socflyny T1, T2, infinity: "You're too young to get breast cancer" ... No. BC is an equal opportunity disease; no ageism here. #bcsm |
| Alicia C. Staley @stales LOL RT @HillStirSci People ask me if gov is hiding cure - we just had 20,000 cancer scientists in DC for no reason #AACR17 #bcsm |
| Dennis Keim @denniskeim @doctorkarpoff @SeaGlass4Nicole Went to a discussion with a lymphedema therapist and came away with continuing to protect bad arm. #bcsm |
| Alicia C. Staley @stales RT @Leslieks Hot flashes suck! Oh wait. That's not a myth. #BCSM |
| Erika Cromwell @rivereac T2: 5 years cancer free = no recurrence #bcsm |
| Alicia C. Staley @stales RT @FollowHeidi #bcsm myth: if your hair has returned, you are 'all done' with cancer |
| Angela Alexander PhD @thecancergeek @stales lots of BRCA-related myths exist. I'm sure genetics counselors hear many. e.g. BRCA mutation can't come from dad. #bcsm |
| Dr. Kelly Shanahan @stage4kelly @DrAttai Related: you had chemo it won't come back. Tell that to my bones 5 yrs post bmx & AC+T. #bcsm |
 | Bob Tufts @TuftsB RT @stales: LOL RT @HillStirSci People ask me if gov is hiding cure - we just had 20,000 cancer scientists in DC for no reason #AACR17 #bcsm |
| Alicia C. Staley @stales @CultPerfectMoms hey there! how are you? xoxo #bcsm |
| Alicia C. Staley @stales T3 - coming up!!! #bcsm |
| FollowHeidi @FollowHeidi #bcsm myth: if you don't have a family history of #breastcancer you really don't have to worry about it @stales |
| Dennis Keim @denniskeim My hair is still dodgy after almost four years so I must be in a world of hurt if that's the recovery metric. :) #bcsm |
| Alicia C. Staley @stales Moving on from Cancer Myths..... Let's talk about a new trend.... #FAKENEWS #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter @CultPerfectMoms Hoping your T cells are priming as we type! #BCSM |
| Leslie @Leslieks Tamoxifen induced menopause means no more periods. #MYTH #AllTheSideEffects #NotThe1Benefit #bcsm |
| Rod Ritchie @malefitness T3: Today, the POTUS announced he was stepping down from the job of trainee president. #bcsm |
| Alicia C. Staley @stales T3: Fake News - Biggest fake news story in cancer? Share! #bcsm |
| Leslie @Leslieks RT @FollowHeidi: #bcsm myth: #bcsm myth: if you don't have a family history of #breastcancer you really don't have to worry about it @stales |
| The IBC Network Foundation @TalkIBC That mammos are the best ever for detection? #bcsm |
| Dennis Keim @denniskeim T3: Chemotherapy doesn't work. That one really ticks me off. #bcsm |
 | Sriganesh 'Maverick' Srihari @srigsri23 RT @theNCI: Genomic study seeks clues to help explain breast cancer disparities https://t.co/SPMkJ13EEj #bcsm #cancerdisparities #triplenegativebc https://t.co/rBTkj9e4oN |
| Dr. Kelly Shanahan @stage4kelly @CultPerfectMoms Hi Beth!! Hope this combo does the trick! #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter T3 related, how about hype/embargoes/paywalls around even the smallest hint of progress. Can we all move forward together please? #bcsm |
| Social✽Fly @socflyny @doctorkarpoff I've read that. Separately, wasn't there a study showing that sentinel node biopsies also carry a small risk of lymphedema? #bcsm |
| Nicole L. Stout DPT, FAPTA @NicoleStoutPT @denniskeim @doctorkarpoff @SeaGlass4Nicole It is a balance of understanding risk and mitigating it. Anecdotal evidence supports overly protective behaviors. Balance! #bcsm |
 | Amber Menezes, MD FRCSC @DrAmberMenezes Great #bcsm ongoing right now debunking myths of breast cancer |
| Kathy Gori @kathygori @doctorkarpoff Ha! Now you sound like the nuns at my school! #bcsm |
| Alicia C. Staley @stales T3: Great article from @WEGOHealth on Fake News https://t.co/yF9jLy8AeP #bcsm |
| Angela Alexander PhD @thecancergeek Hard to pinpoint a specific #fakenews story. However general class of "mouse experiment"->"cancer cure in pts" stories abound #bcsm |
| Alicia C. Staley @stales bingo! RT @DrAttai T3 too many headlines scream cure, turns out study was done in a handful of mice #bcsm |
| Dr. Kelly Shanahan @stage4kelly @rivereac This one!!! I was dx with mets 5 yrs and 2 mo after finishing surgery/chemo for@stage 2n dx #bcsm |
| Nicole L. Stout DPT, FAPTA @NicoleStoutPT @socflyny @doctorkarpoff Yes! Several studies show that SLNB reduces risk. But does not = 0 risk. #BCSM |
| Leslie @Leslieks Really?? #bcsm https://t.co/bHdogDDTIF |
 | Savvy Cooperative | #AskPatients @savvy_coop Tomorrow is the big pitch! Excited for the chance to show people how Savvy can help drive #patientcentered solutions in #metastaticBC. #bcsm https://t.co/K2Mh9d24TK |
| Kathy Gori @kathygori Myth: you're too young and "healthy" to get cancer don't worry about the lump ( actually said by my obgyn the 1st time) #bcsm |
| FollowHeidi @FollowHeidi #bcsm myth: when 'standard' treatment is over, you are cured and done. |
| David Sampson @djsampson This. In fact, some think this belief has led to complacency that has slowed the search for a better test. #bcsm https://t.co/H20x1HvB1V |
| Alicia C. Staley @stales RT @FollowHeidi #bcsm myth: when 'standard' treatment is over, you are cured and done. |
| Dear Dr. Researcher, PhD @corrie_painter @DrAttai This is my T1-3 Pet Peeve, Myth and Fake News #BCSM |
| Angela Alexander PhD @thecancergeek In my mind press releases about "gene X promoting metastasis (in mice)" automatically meaning we must study X inh in pts=#fakenews #bcsm |
| Dr. Kelly Shanahan @stage4kelly @malefitness We wish! #bcsm |
| Alicia C. Staley @stales RT @djsampson This. In fact some think this belief has led to complacency that slowed search for a better test #bcsm https://t.co/MINvbR9yR8 |
| Leslie @Leslieks Mammo AND u/s both missed my 9 cm DCIS tumor. (For all the years I had mammos.) #bcsm https://t.co/WGcHLEZ6Sh |
| Dr_Dana @Dr_Dana @SeaGlass4Nicole @stales They actually fund all kinds of grants, not just research.Many are very valuable. #bcsm |
| Alicia C. Staley @stales RT @FollowHeidi: #bcsm myth: #bcsm myth: if you don't have a family history of #breastcancer you really don't have to worry about it @stales |
 | Chris Barnes PT, PhD @CBarnesPT RT @stales: RT @FollowHeidi #bcsm myth: RT @FollowHeidi #bcsm myth: when 'standard' treatment is over, you are cured and done. |
 | Paula Cabrera @anelcabrera RT @theNCI: Genomic study seeks clues to help explain breast cancer disparities https://t.co/SPMkJ13EEj #bcsm #cancerdisparities #triplenegativebc https://t.co/rBTkj9e4oN |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn T3 Hype surrounding any study, e.g., reverence 4 meta-analyses w/o acknowledging drawbacks. Great analysis: https://t.co/SOru3kQY8G #bcsm |
| Dennis Keim @denniskeim @kathygori So awful. This happened to another dear friend too. #bcsm |
| The IBC Network Foundation @TalkIBC @Dr_Dana @SeaGlass4Nicole @stales They do some good but I think they have egg on their face and need to clean up. #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn THIS! RT @SeaGlass4Nicole: @stales T3: FAKE NEWS—The majority of SUSAN G. KOMEN funds goes to bc research. #bcsm |
| Leslie @Leslieks @NicoleStoutPT @denniskeim @doctorkarpoff @SeaGlass4Nicole And for those of us that had lymph nodes removed on both sides, it's a challenge. #bcsm |
| Leslie @Leslieks RT @Elissa_Malcohn: THIS! RT @SeaGlass4Nicole: @stales T3: THIS! RT @SeaGlass4Nicole: @stales T3: FAKE NEWS—The majority of SUSAN G. KOMEN funds goes to bc research. #bcsm |
| FollowHeidi @FollowHeidi #bcsm myth: #breastcancer has been caused by actions/lifestyles/choices of the patient. |
| Rod Ritchie @malefitness T3: The Race For the Cure #bcsm |
| Dr. Kelly Shanahan @stage4kelly @Dr_Dana @SeaGlass4Nicole @stales But if you use the tag line "for the cure" you better be spending the vast majority of $ on research! #bcsm |
| Leslie @Leslieks Yup. I was told not to worry (by my Gyn) about my breast that had dramatically changed size. #bcsm https://t.co/K2rcb1MsL0 |
| David Sampson @djsampson 2010 study found 75% of women with br ca found it themselves https://t.co/yj2cliAFkU #bcsm |
 | DaveisAliveAndKickn @AliveAndKicknDD RT @stales: T1: T1: What's your pet peeve about a cancer journey? #bcsm |
| DaveisAliveAndKickn @AliveAndKicknDD RT @djsampson: It'd be nice if folks could understand most cancers just... happen. You can lower your risk, sure, but don't try to explain each one #bcsm |
 | Stephanie Graff, MD, FACP, FASCO @DrSGraff @itsthebunk T2: I tried to capture that in an article I wrote. So frustrating! Risk reduction is important, but no one chooses cancer. #bcsm |
| Robin Holmes @Majormac1 Off to bed to prepare for Mac's three scans tomorrow. Here is hoping for more time #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @Majormac1 Good luck to you both! #bcsm |
| Alicia C. Staley @stales RT @djsampson 2010 study found 75% of women with br ca found it themselves https://t.co/vfKx4Pvl71 #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff Super late--trying to read & catch up. Breast med onc! #bcsm |
| Rod Ritchie @malefitness T3: Without research there is no hope. #bcsm |
| IBC Research Fdn @IBCResearch Awareness walks and races don't cure breast cancer no matter who sponsors them! #bcsm |
| Dr. Kelly Shanahan @stage4kelly T3: recent headlines screaming that life expectancy ⬆️ for MBC - true but overall still < 3 yrs so orgasmic reporting unwarranted #BCSM |
| Dennis Keim @denniskeim @Majormac1 Best wishes as always. I'm up for a mammogram this week. #bcsm |
| Alicia C. Staley @stales @DrSGraff hi there! #bcsm |
| Leslie @Leslieks RT @stage4kelly: @Dr_Dana @SeaGlass4Nicole @stales But if you use the tag line "for the cure" you better be spending the vast majority of $ on research! #bcsm |
| Social✽Fly @socflyny @NicoleStoutPT @doctorkarpoff Thought I had read that. Do know a few that ended up with lymphedema despite SLNB. While not 0 risk, still very impt to inform pts. #bcsm |
| The IBC Network Foundation @TalkIBC @malefitness Why we are all about funding research. #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter @Leslieks I was told I was too young for breast cancer at 36 #bcsm |
| Kathy Gori @kathygori @lindafrembes Yeah and then there was the healthy person who died after an IV turmeric treatment .. I prefer to eat my turmeric #bcsm |
| Alicia C. Staley @stales me too at 33 RT @corrie_painter @Leslieks I was told I was too young for breast cancer at 36 #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @denniskeim Fingers crossed that all goes well! #bcsm |
| Leslie @Leslieks And frankincense! "Use these oils...." #bcsm https://t.co/smianunq0q |
| Hillary (Stires) Andrews, PhD @HillStirSci RT @malefitness: T3: T3: Without research there is no hope. #bcsm |
| The IBC Network Foundation @TalkIBC @thecancergeek yes, and that is why that is our mission. #bcsm |
| The IBC Network Foundation @TalkIBC @corrie_painter @Leslieks me too. and I was 49, but I "looked" younger...some how that matter to my dr. #bcsm |
| Leslie @Leslieks @corrie_painter Same. 45. My friend was 29 at her dx. No one is too young. We're all too young. #bcsm |
| Kathy Gori @kathygori @stage4kelly @Dr_Dana @SeaGlass4Nicole @stales Actually I'd like to see a race for stabilizing treatment for cancer similar to HIV cocktail #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @Leslieks @NicoleStoutPT @denniskeim @doctorkarpoff @SeaGlass4Nicole My office is working on updating out lymphedema material based on current SCIENCE, and I'll try to post & link #bcsm when it is up online. |
| Leslie @Leslieks It's better to look good than to feel good? #bcsm https://t.co/akizi3229I |
| Rod Ritchie @malefitness Just confirmed: I'm NED for both breast and prostate cancers. #bcsm |
| Kathy Gori @kathygori @djsampson I did , twice #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @malefitness Wonderful news! #bcsm |
| IBC Research Fdn @IBCResearch @malefitness Quality, patient-focused, peer-reviewed research projects are needed, not just 'same old, same old', IMHO #bcsm |
| Dennis Keim @denniskeim @malefitness Super to hear! #bcsm |
| The IBC Network Foundation @TalkIBC @DrSGraff @Leslieks @NicoleStoutPT @denniskeim @doctorkarpoff @SeaGlass4Nicole I want to see that. Wm dx with ibc are high LE risk #bcsm |
| Alicia C. Staley @stales Okay --- last few minutes on tonight's chat. Any last thoughts? #bcsm |
 | Double Whammy @double_whammied OMG, yes! #bcsm https://t.co/Ie4EleEGhh |
| Alicia C. Staley @stales RT @corrie_painter: T3 related, how about hype/embargoes/paywalls around even the smallest hint of progress. Can we all move forward together please? #bcsm |
| Double Whammy @double_whammied RT @corrie_painter: T2 myth that NEEDS to be fixed: T2 myth that NEEDS to be fixed: I didn't do enough (from the pt, from the family) #bcsm |
| Dr. Kelly Shanahan @stage4kelly @kathygori @Dr_Dana @SeaGlass4Nicole @stales I'd jump for joy if MBC could be rendered a chronic disease and I could live a normal/near normal life expectancy on treatment #BCSM |
| Alicia C. Staley @stales RT @stage4kelly: @kathygori @Dr_Dana @SeaGlass4Nicole @stales I'd jump for joy if MBC could be rendered a chronic disease and I could live a normal/near normal life expectancy on treatment #BCSM |
 | Amanda Magee she/her @AmandaMagee RT @stales: T1. Pet peeves: T1. Pet peeves: "I support breast cancer research by buying all these great products that have a pink ribbon" #bcsm |
| Dr. Kelly Shanahan @stage4kelly @malefitness Yay!! #bcsm |
| The IBC Network Foundation @TalkIBC @stales That if we don't tell them, who will? We need our message clear, science based & real. #bcsm |
| Leslie @Leslieks This was so cathartic! #bcsm https://t.co/nVidUjBG1x |
| Kathy Gori @kathygori @stage4kelly @Dr_Dana @SeaGlass4Nicole @stales None of us at any stage are really safe until they have that. I have HIV + friends who luckily now are living lives that are normal #bcsm |
| Alicia C. Staley @stales @Leslieks Glad you enjoyed it!!!! #bcsm |
| Smith-Brooks @Brooksx2 Thank you...great chat! #bcsm | |
| Alicia C. Staley @stales LOL RT @double_whammied #canspiracieswithcorrie 😉 https://t.co/tsVisiiZS2 #bcsm |
| Kathy Gori @kathygori @Leslieks Oh and the flax oil.. stop already with the flax oil.. #bcsm |
| Alicia C. Staley @stales Thanks for joining us tonight everyone! #bcsm |
| Alicia C. Staley @stales GREAT chat! lots of fun! #bcsm |
| Dr_Dana @Dr_Dana I hope everyone has a great week.See ya next time.Stay cool, dry, and safe! #bcsm |
| The IBC Network Foundation @TalkIBC Love to all. See you next time! #bcsm |
| Alicia C. Staley @stales LOL - yup RT @kathygori @Leslieks Oh and the flax oil.. stop already with the flax oil.. #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn @itsthebunk Have a great evening! #bcsm |
| Dr. Kelly Shanahan @stage4kelly Thanks everyone for this great chat - gotta rest the thumbs now!! #BCSM |
| Alicia C. Staley @stales Take care everyone. Have a great week. #bcsm |
| Alicia C. Staley @stales GROUP HUG #bcsm |
| Rod Ritchie @malefitness Great chat, thanks all. Good Midday Tuesday. #bcsm |
| Elissa Malcohn (is this thing on?) 🇺🇸 🇺🇦 @Elissa_Malcohn Wishing everyone a great week! HUGS. #bcsm |
| Dennis Keim @denniskeim Have a super week, everyone! :) #bcsm |
| The IBC Network Foundation @TalkIBC @malefitness happy for your good news! #bcsm |
| Alicia C. Staley @stales PS - for next week - we're talking about "Cancer Survivorship Categories" Join us on 6/26 at 9 pm ET #bcsm |
| IBC Research Fdn @IBCResearch Need to share good, reliable sources of info and make sure we share the #goodstuff to stop spreading myths #bcsm |
| Leslie @Leslieks Ok one more? No one told me mastectomy is an amputation. I get that it IS, but I didn't get it. #PhantomPains #PhantomItching etc #BCSM |
| Kathy Gori @kathygori @DrSGraff @Leslieks @NicoleStoutPT @denniskeim @doctorkarpoff @SeaGlass4Nicole I had 18 LN out the first time , 2nd time only 3 SNLs my onc wanted me to do a lymphadema clinical trial at UCSF since I never got it #bcsm |
| Alicia C. Staley @stales @malefitness thanks for joining us tonight. great to see you! #bcsm |
| Alicia C. Staley @stales @zmadak good night #bcsm |
| Dr_Dana @Dr_Dana @malefitness lol. Queen is coming your way next year.If you get a chance it's one of the best concerts ever! #bcsm |
| Alicia C. Staley @stales GOOD NIGHT MOON #bcsm |
| Dear Dr. Researcher, PhD @corrie_painter @stales @double_whammied Fave # ever. #DianeAndAliciaTweetedMyFaveHashtag #BCSM #canspiracieswithcorrie |
| Nicole L. Stout DPT, FAPTA @NicoleStoutPT RT @stales: PS - for next week - we're talking about "Cancer Survivorship Categories" Join us on 6/26 at 9 pm ET #bcsm |
| Spannerinmyworks @SpannerInMe RT @stales: PS - for next week - we're talking about "Cancer Survivorship Categories" Join us on 6/26 at 9 pm ET #bcsm |
| Leslie @Leslieks @kathygori And chia! Eat what you like but.... #bcsm |
| Dr. Kelly Shanahan @stage4kelly @SeaGlass4Nicole @doctorkarpoff Absolutley true if you already have lymphedema. #bcsm |
| David Sampson @djsampson #bcsm As a non-profit PR guy, I can tell ALL of you that raising awareness of these issues is making a difference. It gives me ammo. |
| FollowHeidi @FollowHeidi Good night, my wonderful #cancer #community 💕 🌙 ✨ #bcsm |
| Jamie Holloway, PhD @jamienholloway @corrie_painter @stales @double_whammied Tin foil hats for everyone! #bcsm |
 | Ms Davis @fangpusskins RT @Leslieks: This was so cathartic! #bcsm https://t.co/nVidUjBG1x |
| Kathy Gori @kathygori @DrSGraff @Leslieks @NicoleStoutPT @denniskeim @doctorkarpoff @SeaGlass4Nicole However they turned me down because I'm not a cancer "virgin" though they were interested in why....looking 4 genetic markers #bcsm |
| Spannerinmyworks @SpannerInMe RT @stales: GROUP HUG #bcsm |
| Kathy Gori @kathygori @Leslieks Friend who's husband is an md felt I wouldn't have gotten bc if I'd eaten flax oil on cottage cheese #bcsm |
| Dennis Keim @denniskeim And now back to listening to the Vince Guaraldi Trio. :) #bcsm |
| Double Whammy @double_whammied I tried to tamp down the orgasmic reporting in my piece. Focused on the need to fill in #mets data gaps. #bcsm https://t.co/TGlGnhzJrT https://t.co/lN3vB8QbSb |
| IBC Research Fdn @IBCResearch Until next week....don't believe everything you read or hear! Night!! #bcsm |
| Dennis Keim @denniskeim @kathygori @Leslieks Yum! #bcsm |
| Kathy Gori @kathygori @denniskeim @Leslieks Yeah maybe for Nixon... #bcsm |
| Stephanie Graff, MD, FACP, FASCO @DrSGraff @djsampson @itsthebunk https://t.co/PWKQf6QsOt #bcsm |
| Kathy Gori @kathygori @jamienholloway @corrie_painter @stales @double_whammied Ha! Tin foil bras!! #bcsm |
| Alicia C. Staley @stales RT @corrie_painter @stales @double_whammied Fave # ever. #DianeAndAliciaTweetedMyFaveHashtag #BCSM #canspiracieswithcorrie |
| Double Whammy @double_whammied Needed this, @itsthebunk. There is so much to do, I get very discouraged at times. Don't know if anything I do helps one whit. 😕 #bcsm https://t.co/2H6HbUnZSS |
| Alicia C. Staley @stales @jamienholloway @corrie_painter @double_whammied I'll take a tin foil hat in a Large, please. Upgrade it to include the ear flaps too #bcsm |
| Alicia C. Staley @stales LOL RT @kathygori @jamienholloway @corrie_painter @stales @double_whammied Ha! Tin foil bras!! #bcsm |
| Alicia C. Staley @stales Great chat everyone! #bcsm |
 | Breast Cancer Sucks @estrogenplus RT @Leslieks: Ok one more? No one told me mastectomy is an amputation. I get that it IS, but I didn't get it. #PhantomPains #PhantomItching etc #BCSM |
| Alicia C. Staley @stales w/ avocado @kathygori @Leslieks Friend who's husband is an md felt I wouldn't have gotten bc if I'd eaten flax oil on cottage cheese #bcsm |
| Alicia C. Staley @stales @djsampson Thank you very much!!! #bcsm |
| Double Whammy @double_whammied Except vegan marathoning yogis get #cancer too. Hideous clutch of diseases. #bcsm https://t.co/r0KWRr4USy |
| Kathy Gori @kathygori Those myths tend to get me really stabby if I'm in a bad ptsd mood #bcsm |
| Rod Ritchie @malefitness @stales @kathygori @Leslieks Yuk. #bcsm |
| Howard Karpoff @doctorkarpoff Night all Have a good week. Be well #bcsm |
| Kathy Gori @kathygori @stales @Leslieks Hey... respect the avocado!! I eat them every day... oh maybe I shouldn't oh what the hell nobody lives forever . #bcsm |
 | ClearScan.org @clearscanorg RT @IBCResearch: @Majormac1 Probably cancer by association! Hubby says he has sympathetic #chemobrain ! #bcsm |
| Kathy Gori @kathygori Thanks to @stales and @DrAttai for doing this every Monday without fail #bcsm |
| Alicia C. Staley @stales lol RT @kathygori Those myths tend to get me really stabby if I'm in a bad ptsd mood #bcsm |
| Double Whammy @double_whammied RT @corrie_painter: @stales @double_whammied Fave # ever. #DianeAndAliciaTweetedMyFaveHashtag #BCSM #canspiracieswithcorrie |
| Hillary (Stires) Andrews, PhD @HillStirSci My friends an I are working on #scijack(ing). https://t.co/7n3Up95KqO #bcsm https://t.co/x3Fu5Jz0GY |
| Double Whammy @double_whammied RT @jamienholloway: @corrie_painter @stales @double_whammied Tin foil hats for everyone! #bcsm |
| Double Whammy @double_whammied LOL! #bcsm https://t.co/Y7Thg8KHZA |
| Double Whammy @double_whammied RT @stales: @jamienholloway @corrie_painter @double_whammied I'll take a tin foil hat in a Large, please. Upgrade it to include the ear flaps too #bcsm |
| Double Whammy @double_whammied RT @stales: LOL RT @kathygori @jamienholloway @corrie_painter @stales @double_whammied Ha! Tin foil bras!! #bcsm |
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