#BCSM Transcript

Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.

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Dr. Deanna Attai @DrAttai
Good evening everyone, it's time for the #bcsm chat. Deanna Attai, breast surgeon in LA - moderating solo tonight since @stales has the night off
Dr. Deanna Attai @DrAttai
Hello in advance to all who are joining tonight! Please take a few minutes to introduce yourselves and I'll post some background info #bcsm
Frantz M Berthaud @frantzmberthaud
RT @ESchattner: In breast cancer, disparities are "particularly egregious. In the United States, the rate of death from breast cancer is a striking 39 percent higher for African American women than for women of European descent." Lisa DeFerrari @after20yrs https://t.co/KT7k8K9t2s #bcsm
Sharon L Bober @DrSharonBober
@DrAttai @stales Good evening! Happy to be with you all and looking forward to frank chat about sex after cancer. #bcsm
Dr. Deanna Attai @DrAttai
@DrSharonBober Thanks so much for agreeing to participate - topic will be of interest I'm sure! #bcsm
Dr. Deanna Attai @DrAttai
Tonight's guest is @DrSharonBober who will lead us in a discussion about sexual health after breast cancer treatment https://t.co/dhWxEYRzkA #bcsm
Dr_Dana @Dr_Dana
@DrAttai @stales Good evening 👋🏻 Breast surgeon in Little Rock.Listening and learning. #bcsm
Dr. Deanna Attai @DrAttai
For those new to a tweet chat, here's some info on how to participate https://t.co/3edMkx5lEg #bcsm
Dr. Deanna Attai @DrAttai
@Dr_Dana hi there!! #bcsm
Inspire @teaminspire
Hello again to the #BCSM community, John Novack here from Inspire.
Neelima Denduluri @ndenduluri1
@DrAttai @DrSharonBober Breast Med onc in northern VA #bcsm
Tambre Leighn, MA, PCC she/her @tambreleighn
#bcsm Patient advocate and certified coach focused on improving the patient and caregiver experience through coaching and advocacy in healthcare...and clearly off my game tonight jumping the gun and forgetting the hashtag. Sigh. It's 2020.
Dr. Deanna Attai @DrAttai
For those new to the chats, here's some info on the #bcsm community https://t.co/pHWV1G7VII
Tambre Leighn, MA, PCC she/her @tambreleighn
#bcsm
PTCOG-NA @PTCOGNA
Check out this fantastic discussion about #proton therapy for breast cancers. It started with this #ASTRO20 abstract, which attempts to identify when proton therapy may be more cost effective than radiotherapy using photons. #RadOnc #bcsm @ASTRO_org https://t.co/TGhiTuQ9Uk
Dr. Deanna Attai @DrAttai
And our recently published paper on the (9 year!!) history of #bcsm, in @JPCRR https://t.co/kWhHOvMasd
Dr. Deanna Attai @DrAttai
@ndenduluri1 @DrSharonBober Hello Neelima! Thanks for joining #bcsm
Sharon L Bober @DrSharonBober
@DrAttai @JPCRR Congrats -that is fantastic! #bcsm
Dr. Deanna Attai @DrAttai
@tambreleighn it sure is... but thanks for joining #bcsm
Inspire @teaminspire
RT @DrAttai: And our recently published paper on the (9 year!!) history of #bcsm, in @JPCRR https://t.co/kWhHOvMasd
Dr. Kelly Shanahan @stage4kelly
Hi #bcsm fam 👋🏻 Kelly, former ob/gyn living with MBC x 7 yrs, checking in from finally chilly Lake Tahoe.
Dr. Deanna Attai @DrAttai
We'll get started with T1 in just a few minutes, please keep introducing yourselves #bcsm
Dr. Deanna Attai @DrAttai
@stage4kelly hi Kelly nice to see you this evening #bcsm
Neelima Denduluri @ndenduluri1
@DrAttai @JPCRR Congratulations!!! #bcsm
Tambre Leighn, MA, PCC she/her @tambreleighn
@stage4kelly So great to see you @stage4kelly Sending a big virtual hug to warm you up in chilly Tahoe. #bcsm
Arthur L. Garnes Society @GarnesSociety
RT @Breastcancerorg: What do women of color need to know before breast reconstruction? @DrParisButler, @DrD_BreastDoc, @DrMoniqueGary, and Dr. Donna-Marie Manasseh of @MaimonidesMC discuss health equity barriers, finding the right surgeon, and more. #breastcancer #bcsm https://t.co/VKzyv9WFmg https://t.co/scf5PY1Cah
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
@DrAttai Good evening! Matt Katz, radiation oncologist in MA/NH. Taking a break from #ASTRO20 to join #bcsm. Hi everyone!
Dr. Deanna Attai @DrAttai
@ndenduluri1 @JPCRR thank you! #bcsm
Ishwaria Subbiah, MD MS @IshwariaMD
@DrAttai @stales Hi #bcsm. #supportivecare doc in Houston listening and learning tonight (and every night)
Dr. Deanna Attai @DrAttai
@subatomicdoc hi Matt, thanks for joining - looks like (from the tweets) #ASTRO20 has been a good meeting so far #bcsm
IBC Research Fdn @IBCResearch
Hi all! Ginny, RN dx with #IBC in 1994 (dark ages). Tweet as non-profit that consumes life 24/7 😉#BCSM
Dr. Deanna Attai @DrAttai
@IshwariaMD thanks for joining! #bcsm
Dr. Deanna Attai @DrAttai
@IBCResearch Hello Ginny! #bcsm
Janice Cowden @JaniceTNBCmets
Hello from SW Florida. Janice, living with tnMBC x 4.5 years, NED nearly 4 yrs. Thanks for hosting @DrAttai! I hope @stales is enjoying the night off. Looking forward to tonight’s chat ~ here to listen & learn, until I can’t keep my eyes open one minute longer! 🥱 #bcsm
Dennis Keim @denniskeim
Howdy again, #bcsm peeps. Stage one in 2013. Still NED in NE. Good vibes to all.
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
@DrAttai HI Deanna, yes - very interesting new research. Not as fun as in person, but actually I'm learning more because @ASTRO_org invested in a great platform. High value. #bcsm
IBC Research Fdn @IBCResearch
@teaminspire Hey there John! #BCSM
Dr. Deanna Attai @DrAttai
For those who want to follow along: https://t.co/dhWxEYRzkA #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
@DrSharonBober @DrAttai Hey Sharon! #bcsm https://t.co/i9mIOfCk48
Helen M. Johnson @HelenMJohnsonMD
@DrAttai Surgery resident planning a career in breast surgery. Looking forward to learning #bcsm
Dr. Deanna Attai @DrAttai
T1 @DrSharonBober Sexual health is more than just treating vaginal dryness – what are some of the factors that need to be considered and addressed? #bcsm
Dr. Deanna Attai @DrAttai
@HelenMJohnsonMD welcome! It's a great field #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrAttai: T1 @DrSharonBober Sexual health is more than just treating vaginal dryness – what are some of the factors that need to be considered and addressed? #bcsm
Dennis Keim @denniskeim
RT @DrAttai: And our recently published paper on the (9 year!!) history of #bcsm, in @JPCRR https://t.co/kWhHOvMasd
Dennis Keim @denniskeim
RT @DrAttai: For those new to the chats, here's some info on the #bcsm community https://t.co/pHWV1G7VII
RadiOncBOTjp @RadiOncBOTjp
RT @ggmspeijer: Cancer Breakthroughs @ASCO @eaonc 2108 RCT by S Khan Palliative surgery vs no surgery for primary stage IV #bcsm de novo ❌ OS PFS or QoL improvement ✅ surgery for palliation with #SDM Natural history helps to select for local therapy #ASCO20 #ASTRO20 https://t.co/wwxzmdBevo
IBC Research Fdn @IBCResearch
@DrAttai Hello & thanks for handling things tonight @DrAttai Hope @stales is still celebrating! 🥳😍💃 #bcsm
Sharon L Bober @DrSharonBober
@DrAttai I think sexual health is at the intersection of mind/body & relationship factors. When sexual health is disrupted, its really important to figure out all the pieces...often folks only hear bits and pieces like "use lube" or "use it or lose it" & we need a holistic approach! #bcsm
Kathy Gori @kathygori
Hey there all! 2x bc’er checking in from the hurricane zone otherwise known as Nor Ca 🍷 country. I stayed up all night last night (who could sleep with/ freight train winds ) and kept watch I’m now exhausted but the winds have stopped #bcsm
Kathy Gori @kathygori
@denniskeim Hey Dennis!!! #bcsm
Dr. Deanna Attai @DrAttai
@DrSharonBober Indeed - and I'm sure part of the challenge to addressing sexual health issues is there are so many components - physical, mental and more #bcsm
IBC Research Fdn @IBCResearch
@kathygori Hope you can stay safe @kathygori You folks have been through so much already, it's time for a break...a long one #bcsm
Susan Ruddick @SusanRuddick1
#bcsm Good evening all, Susan here from 🇨🇦. Hope everyone is well.
Kathy Gori @kathygori
@stage4kelly Did you guys have terrible winds last night? #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrAttai: @DrSharonBober Indeed - and I'm sure part of the challenge to addressing sexual health issues is there are so many components - physical, mental and more #bcsm
Sharon L Bober @DrSharonBober
@DrAttai I also get concerned that we often take a very narrow approach to defining "sexual health" meaning sexual intercourse. Sexual health is as much about how we think and feel, our identity, body image as it is about any physical activity. #bcsm
Dr. Deanna Attai @DrAttai
@denniskeim @kathygori hey. now - we're a legal chat - no voting often! #bcsm
Lauren Nye @DrLaurenNye
Listen to this rockstar @KUcancercenter #bcsm researcher. “I see a need for ACTION more than I see a need for awareness...most people in the country and the world are aware of breast cancer, perhaps not as aware as they should be of how many are still dying from this disease.” 🙌🏻
Dennis Keim @denniskeim
RT @DrAttai: Tonight's guest is @DrSharonBober who will lead us in a discussion about sexual health after breast cancer treatment https://t.co/dhWxEYRzkA #bcsm
Dr. Deanna Attai @DrAttai
Important message both for docs and for patients #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrSharonBober: @DrAttai I also get concerned that we often take a very narrow approach to defining "sexual health" meaning sexual intercourse. Sexual health is as much about how we think and feel, our identity, body image as it is about any physical activity. #bcsm
Dr. Deanna Attai @DrAttai
@denniskeim @kathygori don't get us into trouble! #bcsm
Dennis Keim @denniskeim
@DrAttai @kathygori Okay, no more Midwestern voting humor attempts. :) #bcsm
Tambre Leighn, MA, PCC she/her @tambreleighn
@DrSharonBober @DrAttai Yes! And intimacy...there is so much room and need for intimacy as part of the conversation around sexual health #bcsm
Reg Reader 😷 💉💉💉 @RegReader
RT @DrAttai: Important message both for docs and for patients #bcsm
Dr. Deanna Attai @DrAttai
RT @tambreleighn: @DrSharonBober @DrAttai Yes! And intimacy...there is so much room and need for intimacy as part of the conversation around sexual health #bcsm
Dr. Deanna Attai @DrAttai
T2 @DrSharonBober talking about sexual function can be difficult for docs and patients - are there "best practices" for initiating the discussion? #bcsm
Sharon L Bober @DrSharonBober
@tambreleighn @DrAttai I totally agree. I also think many couples feel very unsure how to communicate about changes in intimacy/sexuality because people may be unsure what to say, or don't want to hurt feelings. Sometimes its helpful to have a little guidance about how to start talking....#bcsm
SFDiva @SFDiva2
@DrAttai @DrSharonBober How does sexual health relate to the broader issues of chemo and AI/tamo induced menopause? #bcsm
Jennifer Plichta MD (she/her) @JenniferPlichta
RT @Breastcancerorg: What do women of color need to know before breast reconstruction? @DrParisButler, @DrD_BreastDoc, @DrMoniqueGary, and Dr. Donna-Marie Manasseh of @MaimonidesMC discuss health equity barriers, finding the right surgeon, and more. #breastcancer #bcsm https://t.co/VKzyv9WFmg https://t.co/scf5PY1Cah
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrSharonBober: @tambreleighn @DrAttai I totally agree. I also think many couples feel very unsure how to communicate about changes in intimacy/sexuality because people may be unsure what to say, or don't want to hurt feelings. Sometimes its helpful to have a little guidance about how to start talking....#bcsm
Dr. Deanna Attai @DrAttai
#bcsm
Kathy Gori @kathygori
@denniskeim @DrAttai We voted about a week ago and got my notification that the registrar of votes got my ballot and it’s being counted. Thanks Ca! #bcsm
Jennifer Douglas @mmejendouglas
Hi everyone! Just checking in now. Looks like a good dialogue tonight. @stales #bcsm
Dr. Deanna Attai @DrAttai
#bcsm
Dr. Deanna Attai @DrAttai
don't forget the #bcsm hashtag everyone!
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrAttai: #bcsm
Jennifer Douglas @mmejendouglas
@DrAttai Agreed! This is key to helping us make progress and improve our sexual health. #bcsm
Dr. Deanna Attai @DrAttai
#bcsm
Lauren Nye @DrLaurenNye
@DrAttai @DrSharonBober T2 the topic is part of survivorship guidelines, so it can be framed in that way. I find it is a more natural transition to start by asking about physical symptoms (dryness, pain) and then transitioning in to libido, other sexual health concerns. #bcsm
Dennis Keim @denniskeim
@kathygori @DrAttai Good to hear! I got my ballot in the mail the other day. I still need to get the judges sorted. We can drop our mail-ins at our local libraries and can check online to make sure they got them okay. #bcsm
Dr. Deanna Attai @DrAttai
@DrLaurenNye @DrSharonBober thanks for chiming in! #bcsm
Jennifer Douglas @mmejendouglas
@DrSharonBober @SFDiva2 @DrAttai I was thankful that I had read about these challenges before starting treatment so that I could be informed and talk with my providers. #bcsm
Beverly A. Zavaleta MD @BZavaletaMD
@DrSharonBober @SFDiva2 @DrAttai Agree- very little discussion beforehand #bcsm
Beverly A. Zavaleta MD @BZavaletaMD
RT @DrLaurenNye: @DrAttai @DrSharonBober T2 the topic is part of survivorship guidelines, so it can be framed in that way. I find it is a more natural transition to start by asking about physical symptoms (dryness, pain) and then transitioning in to libido, other sexual health concerns. #bcsm
Sharon L Bober @DrSharonBober
@DrLaurenNye @DrAttai For sure. Every week I meet with women who are struggling with low libido but no one has helped them manage discomfort and pain with and without sexual activity. No one has desire when sex hurts and its crazy that we don't give everyone education about vaginal health #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
@DrLaurenNye @DrAttai @DrSharonBober T2. Are there any good guidelines for clinicians on how best to discuss sexual health concerns? #bcsm
Dr Jenny Ng Pfizer Vaccinated 💉🦠 @drjennyng
RT @mssrfcali: I’ve reached 25% of my ⁦@gofundme⁩ goal! Please help me reach or exceed my fundraising goal. Share/RT on any of your social media platforms, blogs, podcasts. Thanks so much! 🙏🏻💗 #breastcancer #gofundme #BreastCancerAwarenessMonth #mbc #tnbc #bcsm https://t.co/BSXwckTZeV
Kathy Gori @kathygori
@denniskeim @DrAttai Usually, we go down and drop our ballot off , some areas out in the country here don’t have close polling places.. So we go to the veterans hall where they have drop boxes but I was concerned about looooong lines this year so we just mailed em in. #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrSharonBober: @DrLaurenNye @DrAttai For sure. Every week I meet with women who are struggling with low libido but no one has helped them manage discomfort and pain with and without sexual activity. No one has desire when sex hurts and its crazy that we don't give everyone education about vaginal health #bcsm
Jennifer Douglas @mmejendouglas
This is so sad. It is really hard to enjoy intimacy with the combination of low desire and pain. Then you add cancer fatigue and it becomes even more difficult #bcsm
Erin Phipps @buttersy
Let’s do it for this wonderful person!!! ♥️♥️♥️♥️
Sharon L Bober @DrSharonBober
@subatomicdoc @DrLaurenNye @DrAttai YES! Thanks for asking. There is a great paper from the @cancersexnet that has an excellent clinical checklist that you can use for guiding inquiry...let me try to find it and pull it up! #bcsm
Jennifer Douglas @mmejendouglas
@subatomicdoc @DrLaurenNye @DrAttai @DrSharonBober I was extremely grateful to my doctors who listened to me and took the time to care and help me manage symptoms. #bcsm
SFDiva @SFDiva2
@DrAttai Is there any standard of care around these issues? if no, what orgs are on the forefront of this? #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
@DrSharonBober @DrLaurenNye @DrAttai @cancersexnet Great, thank you! #bcsm
Jennifer Douglas @mmejendouglas
@SFDiva2 @DrAttai Ohh, good question! #bcsm
Dr. Deanna Attai @DrAttai
cc @DrSharonBober @IshwariaMD @DrLaurenNye #bcsm
Beverly A. Zavaleta MD @BZavaletaMD
These issues get dwarfed by #1 -trying not to die early in the diagnosis #2-cancer fatigue as time goes by, meaning - feeling sick of being sick & wanting to get back to “normal.” It’s exhausting to spend so much time/energy betting better. Worth it! But hard to keep on #bcsm
Sharon L Bober @DrSharonBober
@mmejendouglas Agree but I think there is also room for creativity when it comes to exploring what is pleasurable...maybe looks different that it used to but often plenty of opportunity to expand the repertoire! #bcsm
Jennifer Douglas @mmejendouglas
@DrSharonBober Creativity is always a good thing! #bcsm
Tambre Leighn, MA, PCC she/her @tambreleighn
#bcsm
AdanRivas @ARIVAS863
Help Stephanie rach the rest of her goal.
Jennifer Douglas @mmejendouglas
I think I’ll need to read this! #bcsm
Tambre Leighn, MA, PCC she/her @tambreleighn
@mmejendouglas @drdonsdizon is fabulous! #bcsm
Kathy Gori @kathygori
The first time I had BC I was in my 30s so my drs at cedars asked my husband and me to make a video discussing sex after cancer. So, I can say we made a sex tape but everybody kept their clothes on. The problem back then was there were not many things for young patients #bcsm
Tambre Leighn, MA, PCC she/her @tambreleighn
#bcsm
Dr. Deanna Attai @DrAttai
#bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrAttai: #bcsm
Jennifer Douglas @mmejendouglas
Good to know! #bcsm
Larissa Nekhlyudov @DrN_CancerPCP
@subatomicdoc @DrLaurenNye @DrAttai @DrSharonBober See @asco endorsement of @CancerCare_ON guideline. https://t.co/xg28RK6Jvp @ASCO_pubs #bcsm
Dr. Donna Charlevoix 🌻 @dcharlevo
Hi everyone. Joining late. MBC since 7/2019. Very interested in the topic tonight - struggling mightily with all the meds. #bcsm
Dr. Kelly Shanahan @stage4kelly
@subatomicdoc @DrLaurenNye @DrAttai @DrSharonBober Start with “these treatments are know to cause sexual side effects like [vaginal dryness, vaginal stenosis with XRT to the pelvis, decreased libido, erectile dysfunction for the men with BC, etc]. Are you experiencing any of these?” NORMALIZE talking about sex/sexuality!! #bcsm
Jennifer Douglas @mmejendouglas
So many good resources tonight! #bcsm
Beverly A. Zavaleta MD @BZavaletaMD
#bcsm
Beverly A. Zavaleta MD @BZavaletaMD
RT @DrN_CancerPCP: @subatomicdoc @DrLaurenNye @DrAttai @DrSharonBober See @asco endorsement of @CancerCare_ON guideline. https://t.co/xg28RK6Jvp @ASCO_pubs #bcsm
Dr. Deanna Attai @DrAttai
#bcsm
Lauren Nye @DrLaurenNye
@DrAttai @DrSharonBober @IshwariaMD #bcsm ACS/ASCO guidelines include sexual health and provide some basic starting points for management. https://t.co/VKaNW9y9OK
Jennifer Douglas @mmejendouglas
@DrSharonBober @BZavaletaMD Oh that made me laugh!!! In a serious way, acknowledging the importance of this issue #bcsm
Sharon L Bober @DrSharonBober
@DrN_CancerPCP @subatomicdoc @DrLaurenNye @DrAttai @ASCO @CancerCare_ON @ASCO_pubs The problem is NOT a lack of guidelines! That is what is fascinating...its a cultural issue. And someone sexual health is simply never considered as important as other issues...."never enough time"....#bcsm
Beverly A. Zavaleta MD @BZavaletaMD
I like this approach/ wording. #bcsm
Jennifer Douglas @mmejendouglas
This is key! #bcsm
Dr. Kelly Shanahan @stage4kelly
@DrLaurenNye @DrAttai @DrSharonBober Of course, those of us with #metastatic disease are often excluded from survivorship programs, but that’s a whole ‘nother topic! #bcsm
Dr. Deanna Attai @DrAttai
T3 @DrSharonBober What works? What are some evidence-based practices that help patients manage sexual side effects from treatment? #bcsm
Dr. Kelly Shanahan @stage4kelly
@UppityCancerP @drdonsdizon Love Dr Don @drdonsdizon! #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrSharonBober: @DrN_CancerPCP @subatomicdoc @DrLaurenNye @DrAttai @ASCO @CancerCare_ON @ASCO_pubs The problem is NOT a lack of guidelines! That is what is fascinating...its a cultural issue. And someone sexual health is simply never considered as important as other issues...."never enough time"....#bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrN_CancerPCP: @subatomicdoc @DrLaurenNye @DrAttai @DrSharonBober See @asco endorsement of @CancerCare_ON guideline. https://t.co/xg28RK6Jvp @ASCO_pubs #bcsm
Jennifer Douglas @mmejendouglas
More good resources! I’m going to have a lot of reading! #bcsm
Janice Cowden @JaniceTNBCmets
Truth 👇🏻 #bcsm
Sharon L Bober @DrSharonBober
@stage4kelly @subatomicdoc @DrLaurenNye @DrAttai This is our paper with our clinical checklist!https://t.co/hH7iKaS80Q #bcsm
Dr. Deanna Attai @DrAttai
@stage4kelly @DrLaurenNye @DrSharonBober that's a topic when we have a few hours to cover it, for sure #bcsm
Missy🌸Ryan @meoryan
#bcsm. Checking in late from the soon to be ground zero for the latest hurricane this year. 5 years NED
Beverly A. Zavaleta MD @BZavaletaMD
A1 Another issue is the parter’s adjustments (to the cancer, the changes in the patient, the relationship) Partners also have feelings, bodies, needs. There is a need to start fresh in some cases, reacquaint. #bcsm
Dr. Donna Charlevoix 🌻 @dcharlevo
@stage4kelly @subatomicdoc @DrLaurenNye @DrAttai @DrSharonBober As a patient I'd really appreciate this approach. Factual and open ended allowing for just about any kind of response. #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
@stage4kelly @DrLaurenNye @DrAttai @DrSharonBober I do discuss those issues for pelvic radiation. For breast radiation, usually it's focused on radiation effects on cosmetic appearance, feel, and changes in nipple sensitivity during and after treatment #bcsm
Ishwaria Subbiah, MD MS @IshwariaMD
RT @DrLaurenNye: @DrAttai @DrSharonBober @IshwariaMD #bcsm ACS/ASCO guidelines include sexual health and provide some basic starting points for management. https://t.co/VKaNW9y9OK
Jennifer Douglas @mmejendouglas
@meoryan Good to see you! #bcsm
Beverly A. Zavaleta MD @BZavaletaMD
RT @DrSharonBober: @DrN_CancerPCP @subatomicdoc @DrLaurenNye @DrAttai @ASCO @CancerCare_ON @ASCO_pubs The problem is NOT a lack of guidelines! That is what is fascinating...its a cultural issue. And someone sexual health is simply never considered as important as other issues...."never enough time"....#bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrSharonBober: @stage4kelly @subatomicdoc @DrLaurenNye @DrAttai This is our paper with our clinical checklist!https://t.co/hH7iKaS80Q #bcsm
Larissa Nekhlyudov @DrN_CancerPCP
@DrSharonBober @subatomicdoc @DrLaurenNye @DrAttai @ASCO @CancerCare_ON @ASCO_pubs Agree, but also (you’ve heard me say this @DrSharonBober), clinicians are afraid to ask if they don’t know what to do with the information. Of course, having resources is great, but having you nearby is even better!! 🥰#bcsm
Leslie @Leslieks
@DrAttai @DrSharonBober Awww, man! And I’m late to the party tonight! This is a topic I really need help with. #bcsm
Dr. Deanna Attai @DrAttai
@subatomicdoc @stage4kelly @DrLaurenNye @DrSharonBober although alterations in nipple sensitivity can have a big impact on sexual function. Something we discuss B4 surgery especially with periareolar incision or nipple-sparing mastectomy #bcsm
Dr. Deanna Attai @DrAttai
#bcsm
Sharon L Bober @DrSharonBober
@DrN_CancerPCP @subatomicdoc @DrLaurenNye @DrAttai @ASCO @CancerCare_ON @ASCO_pubs I appreciate that Larissa. But there are more and more resources on-line. And clinicians need to prioritize developing a referral network!! #bcsm
Leslie @Leslieks
@DrSharonBober @DrAttai But sometimes we WANT intercourse! #bcsm
Dr. Deanna Attai @DrAttai
@UppityCancerP @SamTalksSex thanks for sharing! #bcsm
Jennifer Douglas @mmejendouglas
@DrAttai @subatomicdoc @stage4kelly @DrLaurenNye @DrSharonBober Even without surgical changes to the nipple, there are also psychological issues I experience. I think I’m still traumatized with the experience. Plus radiation made my whole breast sore for a while. #bcsm
Maryam Lustberg MD MPH @maryam_lustberg
Important point for both clinicians and patients #survonc #sexualhealth cc @DrSharonBober @AllisonQuick9
Sharon L Bober @DrSharonBober
@DrAttai @subatomicdoc @stage4kelly @DrLaurenNye I am surprised at how many women are not prepared for loss of sensation - we put so much emphasis on the visual outcomes and we don't talk enough sensation IMHO. Also women often could use support with how to navigate those changes with a partner. #bcsm
Dr. Kelly Shanahan @stage4kelly
@DrN_CancerPCP @DrSharonBober @subatomicdoc @DrLaurenNye @DrAttai @ASCO @CancerCare_ON @ASCO_pubs More conversations between oncologists and gynecologists and PCPs would be helpful #bcsm
Beverly A. Zavaleta MD @BZavaletaMD
@DrSharonBober @DrAttai @ml_muliebrity is a great resource for pelvic floor rehab in Ireland. #bcsm #bccww
Jennifer Douglas @mmejendouglas
I like this idea. What else besides lube will help?#bcsm
Leslie @Leslieks
@DrSharonBober @SFDiva2 @DrAttai No one prepared me. No one. Menopause overnight between chemo and tamoxifen. That said, I still have bleeding every few months so who knows where I am. #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
@DrAttai @stage4kelly @DrLaurenNye @DrSharonBober Yes, I agree. That's where I usually try to bring it up in a matter of fact way if I can #bcsm
Malik Shepherd Nasir @malikshepherd13
RT @SanofiUS: Chawnte Randall, who lives with metastatic breast cancer (a form of breast cancer that has spread to other organs) knows firsthand the importance of continued research and solutions for the MBC community. #BCAM #bcsm #MBCDay #StageIVNeedsMore https://t.co/ii81m0NEeW
Dr. Kelly Shanahan @stage4kelly
@DrAttai @subatomicdoc @DrLaurenNye @DrSharonBober Are you doing the newer nerve sparing techniques yet? Not an option with I had my bmx in 2008. #bcsm
Leslie @Leslieks
@BZavaletaMD And some partners aren’t willing to go through that process. #bcsm
Larissa Nekhlyudov @DrN_CancerPCP
@DrSharonBober @subatomicdoc @DrLaurenNye @DrAttai @ASCO @CancerCare_ON @ASCO_pubs Yes, agree - building bridges with local resources needed all around for survivorship care! #bcsm
Dr. Meadow Maze Good, DO, FACOG, CPXP🥼🥋🐊🇺🇸 @MeadowGood
Nothing sexier than asking, “Hey baby, will you give me my shot in the Gluteus Maximus?” #bcsm #sexy #Cancer https://t.co/xaBIzhyz3L
Jennifer Douglas @mmejendouglas
@DrSharonBober @DrAttai @subatomicdoc @stage4kelly @DrLaurenNye I totally agree!!! #bcsm
Dr. Deanna Attai @DrAttai
@stage4kelly @subatomicdoc @DrLaurenNye @DrSharonBober I know a few plastic surgeons across the country doing this, @drchrysopoulo may want to chime in. Still not standard practice #bcsm
Beverly A. Zavaleta MD @BZavaletaMD
And sometimes so do partners #bcsm
Dennis Keim @denniskeim
RT @DrSharonBober: @stage4kelly @subatomicdoc @DrLaurenNye @DrAttai This is our paper with our clinical checklist!https://t.co/hH7iKaS80Q #bcsm
Jennifer Douglas @mmejendouglas
@MeadowGood Yeah, that can’t exactly help the mood... #bcsm
Sharon L Bober @DrSharonBober
@stage4kelly @DrAttai @subatomicdoc @DrLaurenNye @stacylindau is one of the brilliant minds working on this problem...not there yet but hopefully one day!! #bcsm
Jennifer Douglas @mmejendouglas
Can’t wait until more progress is made!!! #bcsm
Leslie @Leslieks
@DrAttai @subatomicdoc @stage4kelly @DrLaurenNye @DrSharonBober No one discussed with me other than to say I wouldn’t have feeling even if they had saved my nipples. I lost my preferred go to erogenous zones, in addition to “just” losing my breasts. It’s life altering in so many ways. 😭 #bcsm
Sharon L Bober @DrSharonBober
@Leslieks @DrAttai Absolutely!! #bcsm
Inspire @teaminspire
RT @DrN_CancerPCP: @subatomicdoc @DrLaurenNye @DrAttai @DrSharonBober See @asco endorsement of @CancerCare_ON guideline. https://t.co/xg28RK6Jvp @ASCO_pubs #bcsm
Jennifer Douglas @mmejendouglas
@Leslieks @DrAttai @subatomicdoc @stage4kelly @DrLaurenNye @DrSharonBober So much loss we end up experiencing #bcsm
Dr. Kelly Shanahan @stage4kelly
@DrSharonBober @DrAttai @subatomicdoc @DrLaurenNye @stacylindau And no one ever tells us that after a nipple sparing mastectomy (or even nipple reconstruction) those puppies are always “on”, so we still need a bra or cami under thinner shirts! #bcsm
Sharon L Bober @DrSharonBober
@Leslieks @DrAttai @subatomicdoc @stage4kelly @DrLaurenNye so many women find that nipple sensation is THE go-to for being able to reach orgasm. Huge loss when that is taken away and that never gets acknowledged! #bcsm
Dr. Deanna Attai @DrAttai
T4 @DrSharonBober Sexual health research not well funded. How can patients and advocates help? #bcsm
Leslie @Leslieks
Yes!!
Jennifer Douglas @mmejendouglas
@stage4kelly @DrSharonBober @DrAttai @subatomicdoc @DrLaurenNye @stacylindau Oh, I had no idea about that! #bcsm
Leslie @Leslieks
@DrSharonBober @DrAttai @subatomicdoc @stage4kelly @DrLaurenNye So much. #bcsm
IBC Research Fdn @IBCResearch
@Leslieks @DrAttai @subatomicdoc @stage4kelly @DrLaurenNye @DrSharonBober That's why some women opt for a single mastectomy (if an option) due to the importance of the breast in their love life. Not sure some of those issues are discussed by many of the reconstructive surgeons, sadly. #bcsm
Sharon L Bober @DrSharonBober
@Leslieks @BZavaletaMD I hear you both! In my own practice, I am often struck by how often partners really have no idea where to start or what to do...they need support as well! #bcsm
Dr. Deanna Attai @DrAttai
#bcsm
Dennis Keim @denniskeim
@DrAttai @DrSharonBober T4 - The only sex related issue that came up with my diagnosis was the question of using sperm banks. #bcsm
SPECFORD59 @SPECFORD59
@Leslieks @DrAttai @subatomicdoc @stage4kelly @DrLaurenNye @DrSharonBober I hear these complaints as a MedOnc but it’s during long term survivor follow up. Uniformly women don’t hear about this before surgery, it seems. #bcsm
Tambre Leighn, MA, PCC she/her @tambreleighn
#bcsm #Truth
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @IBCResearch: @Leslieks @DrAttai @subatomicdoc @stage4kelly @DrLaurenNye @DrSharonBober That's why some women opt for a single mastectomy (if an option) due to the importance of the breast in their love life. Not sure some of those issues are discussed by many of the reconstructive surgeons, sadly. #bcsm
Jennifer Douglas @mmejendouglas
Yes! It is so important to support partners as well. #bcsm
Leslie @Leslieks
It’s not just our breasts. It’s not just about appearance and body image. It’s an amputation. It’s loss of feeling youthful. It’s loss of libido. Loss of erogenous zones. Loss of my hair. Loss of parts of my digestive system. Loss of life as I knew it, in every way. #bcsm
Sharon L Bober @DrSharonBober
@SPECFORD59 @Leslieks @DrAttai @subatomicdoc @stage4kelly @DrLaurenNye When we do physician surveys (and there are lots of those) everyone says they need more training, more resources and more time. We really do have to figure out how to bring this topic into routine care...! #bcsm
Beverly A. Zavaleta MD @BZavaletaMD
Processing #grief is a big barrier to cancer healing in many areas, including sexual health. Losing the sex life you had “before cancer” is HUGE #bcsm #bccww
Dr. Deanna Attai @DrAttai
@denniskeim @DrSharonBober thanks for the comment, Dennis - definitely a need for more work to better understand how breast cancer treatments impact sexual health of men #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrSharonBober: @SPECFORD59 @Leslieks @DrAttai @subatomicdoc @stage4kelly @DrLaurenNye When we do physician surveys (and there are lots of those) everyone says they need more training, more resources and more time. We really do have to figure out how to bring this topic into routine care...! #bcsm
Tambre Leighn, MA, PCC she/her @tambreleighn
@UppityCancerP @Leslieks @DrAttai @subatomicdoc @stage4kelly @DrLaurenNye @DrSharonBober Sorry to hear about your experience @UppityCancerP Same for my husband and I - mid-30s in the process of trying to start a family and no one mentioned it once in three years. #bcsm
Jennifer Douglas @mmejendouglas
@Leslieks Well put. It is such a traumatic process. #bcsm
Rebecca Alleyne, MD FACS @BeckyAlleyneMD
Clinical checklist for discussing and improving women’s sexual health after a cancer diagnosis #bcsm
Leslie @Leslieks
@IBCResearch @DrAttai @subatomicdoc @stage4kelly @DrLaurenNye @DrSharonBober Wasn’t an option in my case. Cancer on both sides. #bcsm
Dr. Deanna Attai @DrAttai
3 minutes to go... last thoughts! #bcsm
Leslie @Leslieks
#bcsm Me neither.
Dennis Keim @denniskeim
@SPECFORD59 @DrAttai @DrSharonBober As I recall, they had a deal at the local bank that let cancer patients have free use. #bcsm
Beverly A. Zavaleta MD @BZavaletaMD
For men, I suspect the issue of erectile dysfunction due to neuropathy (from chemo) is greater than we know. #bcsm
Sharon L Bober @DrSharonBober
@denniskeim @DrAttai Again, another way that we make so many assumptions...men struggle with so many of the same issues. I am sorry to hear this! #bcsm
Leslie @Leslieks
@DrSharonBober @BZavaletaMD Yes! The first time we tried - he tried to touch me. I freaked out, and that was the end. #bcsm
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
@DrSharonBober @SPECFORD59 @Leslieks @DrAttai @stage4kelly @DrLaurenNye There may be ways to balance the in-person education with other forms of education. It is hard to do everything in one visit, so has to be choreographed well #bcsm
Dr. Deanna Attai @DrAttai
#bcsm
Tambre Leighn, MA, PCC she/her @tambreleighn
@denniskeim @DrAttai @DrSharonBober Exactly. Same for us @denniskeim - and we were lucky that it was offered. Many young adults back then weren't. But we weren't offered any counseling on what to do if things didn't work out so when he passed, I faced a moral and emotional dilemma. #bcsm
Dr. Kelly Shanahan @stage4kelly
@DrSharonBober @SPECFORD59 @Leslieks @DrAttai @subatomicdoc @DrLaurenNye Multidisciplinary approach is probably the key - oncs and gyns and NPs should partner to address sexual health issues - add in PCP, urologists for men - and therapists for everyone! Oncs don’t need to know what to do if they know where to refer. #bcsm
Tambre Leighn, MA, PCC she/her @tambreleighn
#bcsm
Jennifer Douglas @mmejendouglas
@DrAttai Great discussion tonight. Thanks you #bcsm community!
Susan Ruddick @SusanRuddick1
#bcsm Have a good week and stay safe! 💕 https://t.co/i8t2bauws4
Rebecca Alleyne, MD FACS @BeckyAlleyneMD
Normalize discussing sexual health w cancer patients
Leslie @Leslieks
Oops #bcsm
Dr. Deanna Attai @DrAttai
Thank you to @DrSharonBober for joining us tonight to discuss sexual heath after breast cancer treatment - and thank you all for your questions and comments! Stay safe, everyone! #bcsm
Leslie @Leslieks
@mmejendouglas Yep. I have a good therapist. #bcsm
Dr. Kelly Shanahan @stage4kelly
@Leslieks @SPECFORD59 @DrAttai @subatomicdoc @DrLaurenNye @DrSharonBober ASCO guidelines indicate low dose vaginal estrogen is likely safe even in HR+ cancers and should be discussed. #bcsm
Beverly A. Zavaleta MD @BZavaletaMD
Many thanks all! 💕 #bcsm
Sharon L Bober @DrSharonBober
@Leslieks Its ok to acknowledge the grief and loss. That is so real and such a real part of the whole story. I hear you loud and clear. #bcsm
Dennis Keim @denniskeim
@BZavaletaMD Good to know. One of the problems is that the mean age for men getting breast cancer is something like 68. Stuff starts happening there anyhow. #bcsm
Thanks Cancer! @ThanksCancer
RT @BZavaletaMD: Processing #grief is a big barrier to cancer healing in many areas, including sexual health. Losing the sex life you had “before cancer” is HUGE #bcsm #bccww
Larissa Nekhlyudov @DrN_CancerPCP
@DrSharonBober - lots of surveys done, lots of available resources...time to bring sexual health awareness into routine cancer care! #survonc #bcsm 👇
Thanks Cancer! @ThanksCancer
RT @DrAttai: T4 @DrSharonBober Sexual health research not well funded. How can patients and advocates help? #bcsm
Dr. Kelly Shanahan @stage4kelly
‘Night all #bcsm
Leslie @Leslieks
@DrSharonBober @BZavaletaMD Well, we’re still at zero. #bcsm
Dennis Keim @denniskeim
Have a great week, everyone! #bcsm
Thanks Cancer! @ThanksCancer
RT @DrSharonBober: @DrLaurenNye @DrAttai For sure. Every week I meet with women who are struggling with low libido but no one has helped them manage discomfort and pain with and without sexual activity. No one has desire when sex hurts and its crazy that we don't give everyone education about vaginal health #bcsm
Leslie @Leslieks
@DrSharonBober @stage4kelly @SPECFORD59 @DrAttai @subatomicdoc @DrLaurenNye I don’t know how to get comfortable with this. My onc does not recommend. #bcsm
Lauren Nye @DrLaurenNye
@Leslieks @SPECFORD59 @DrAttai @subatomicdoc @stage4kelly @DrSharonBober I’ve recommended the Meet Rosy app to patients after we have made sure they have had a good exam (I work with great gynecologists 🙌🏻!) and while we manage any physical barriers. We are also lucky to have a sexual health psychologist locally #bcsm
Jennifer Douglas @mmejendouglas
@denniskeim You too! #bcsm
Janice Cowden @JaniceTNBCmets
No doubt it’s one reason why we see so many broken relationships after diagnosis & treatment. Loss of self, loss of sexual function & health, lack of effective communication, lack of helpful resources, all leading to loss of relationships. So much loss... #bcsm
Heidi✨ @Heidianns612
RT @DrSharonBober: @DrLaurenNye @DrAttai For sure. Every week I meet with women who are struggling with low libido but no one has helped them manage discomfort and pain with and without sexual activity. No one has desire when sex hurts and its crazy that we don't give everyone education about vaginal health #bcsm
Leslie @Leslieks
@DrSharonBober @stage4kelly @SPECFORD59 @DrAttai @subatomicdoc @DrLaurenNye And does that change libido or just moisture level and muscle tone? #bcsm
Sharon L Bober @DrSharonBober
@DrAttai LETS GET LOUD! I think there are tons of opportunities to partner together to advocate for funding from major funders to go for sexual health research! #bcsm
Tambre Leighn, MA, PCC she/her @tambreleighn
#bcsm Thank you @DrSharonBober and @DrAttai for bringing attention to the top of sexual health after #cancer treatment. Night all!
Jennifer Douglas @mmejendouglas
I love this! #bcsm
Sharon L Bober @DrSharonBober
@DrAttai Thank you for having me!! Honored to be with you tonight! #bcsm
Leslie @Leslieks
@DrLaurenNye @SPECFORD59 @DrAttai @subatomicdoc @stage4kelly @DrSharonBober Googles app #bcsm
Beverly A. Zavaleta MD @BZavaletaMD
RT @JaniceTNBCmets: No doubt it’s one reason why we see so many broken relationships after diagnosis & treatment. Loss of self, loss of sexual function & health, lack of effective communication, lack of helpful resources, all leading to loss of relationships. So much loss... #bcsm
Thanks Cancer! @ThanksCancer
RT @mmejendouglas: Yes! It is so important to support partners as well. #bcsm
Dr. Donna Charlevoix 🌻 @dcharlevo
#bcsm Thanks for insightful convo. 'night!
Janie H. @JanieH47560980
I would think about this especially agree most people having an rough time of this disease B. Cancer is an scariest thing to an person life.
Leslie @Leslieks
@DrSharonBober @DrAttai Thanks so much! #bcsm
IBC Research Fdn @IBCResearch
Good night & thanks all for the insightful conversation & resources. Don't forget to change your clocks (most of us) even if you don't want an extra hour of 2020! See ya next week! #bcsm
Abigail Johnston, Esq (she/her) @AMJohnston1315
RT @LivingBeyondBC: "My story isn’t pink and doesn’t come with ribbons or awareness.” Chris Corrigan reflects on #BreastCancerAwarenessMonth and the release of her memoir Again: Surviving Cancer Twice with Love and Lists: https://t.co/qf6GVGd24u #bcsm https://t.co/rbQyfvwdjv
Dennis Keim @denniskeim
@tambreleighn @DrAttai @DrSharonBober I'm so sorry to hear about the lack of professional support, Tambre. Such an awful situation to have to deal with on your own. Good thoughts to you as always. #bcsm
SPECFORD59 @SPECFORD59
@Leslieks @DrSharonBober @stage4kelly @DrAttai @subatomicdoc @DrLaurenNye It is quality of life issue, we treat to extend both quantity and “quality” of life. All of us balance risk benefit. In this there is benefit with little “proven” risk. #bcsm
Abigail Johnston, Esq (she/her) @AMJohnston1315
RT @AdvBreastCa_HU: What does being remarried with metastatic look like? https://t.co/wqdIth7VhE #bcsm #mbclife #livingwithmbc
Pilgrim125 @Pilgrim125
Sometimes I’m just tired of being an outlier and tired of being a support to so many who aren’t and then feeling guilty that I feel that way.. #BCSM #MoreforMBC #ClosedMetastaticBreastCancerSupportGroup
Matthew Katz, MD 🇺🇸 💜 @subatomicdoc
RT @DrAttai: T4 @DrSharonBober Sexual health research not well funded. How can patients and advocates help? #bcsm
Ian Pereira @IanJPereira
@subatomicdoc @DrLaurenNye @DrAttai @DrSharonBober I did come across some communication guidance by @drdonsdizon et al for discussing #SexualHealth issues: https://t.co/LEjNHHXf5E #bcsm T2 1/2 https://t.co/0cQ8017dCb
IBC Research Fdn @IBCResearch
RT @LivingBeyondBC: "My story isn’t pink and doesn’t come with ribbons or awareness.” Chris Corrigan reflects on #BreastCancerAwarenessMonth and the release of her memoir Again: Surviving Cancer Twice with Love and Lists: https://t.co/qf6GVGd24u #bcsm https://t.co/rbQyfvwdjv
Juan Carlos Pozo Parilli @pozoparilli
RT @NCIprevention: The following have little or no effect on your risk of breast cancer: Having an abortion Making diet changes Taking vitamins Cigarette smoking Using underarm deodorant or antiperspirant Taking statins Working night shifts Here is what we know: https://t.co/q91FsfR68p #bcsm https://t.co/LXFBbUfP8w
Kathy Gori @kathygori
I think I missed the end of tonight’s discussion, I sat down and fell asleep! Goodnight everyone stay safe and sane during the run-up to next week #bcsm
Hesham Elhalawani @HElhalawaniMD
#bcsm #ASTRO20 @ASTRO_org #radonc
Hesham Elhalawani @HElhalawaniMD
RT @DrN_CancerPCP: Updated Breast Cancer Surveillance Recommendations for Female Survivors of Childhood, Adolescent, and Young Adult Cancer From the International Guideline Harmonization Group #ayacsm #survonc https://t.co/jDt7F0FV5w
Ian Pereira @IanJPereira
@DrSharonBober @DrN_CancerPCP @subatomicdoc @DrLaurenNye @DrAttai @ASCO @CancerCare_ON @ASCO_pubs Interesting point....most guides (CCO, ASCO, ESMO/ESO BCY) & presentations I've noticed on the topic recommend discussing #SexualHealth issues routinely. Not sure how often it's actually done and the barriers - incl cultural #bcsm c @lbarbera123 @drdonsdizon @EK_Drake @DrAnneKatz
Ian Pereira @IanJPereira
@DrSharonBober @DrN_CancerPCP @subatomicdoc @DrLaurenNye @DrAttai @ASCO @CancerCare_ON @ASCO_pubs @lbarbera123 @drdonsdizon @EK_Drake @DrAnneKatz In modern #MedEd #CulturalCompetencies seem more ingrained (i.e. in #CanMeds2015 - communicator, collaborator, advocator, and other roles), but curious how much includes #SexualHealth and if/how it is taught. May be a ground up touch point. #bcsm 2/2
Mary L Gorden @marylgorden
RT @LivingBeyondBC: "My story isn’t pink and doesn’t come with ribbons or awareness.” Chris Corrigan reflects on #BreastCancerAwarenessMonth and the release of her memoir Again: Surviving Cancer Twice with Love and Lists: https://t.co/qf6GVGd24u #bcsm https://t.co/rbQyfvwdjv
sugarciare @sugarciare
Gene expression signatures that predict pCR and survival in CALGB40601 clinical trial. Important for future escalation and de-escalation treatment strategies in HER2+ breast cancer. Congratulations to @AranzazuFM and the rest of the team!
Tisha Felder, PhD, MSW @DrTishaFelder
You don’t want to miss hearing from these AMAZING patient experts about their experiences!!! Especially encouraging health professionals to attend and learn ways to improve how you care for your patients! #bcsm #MedTwitter #NurseTwitter #socialwork #blacktwitter
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