#BCSM Transcript
Healthcare social media transcript of the #BCSM hashtag.
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See #BCSM Influencers/Analytics.
| Profile | Tweet |
|---|---|
 | Linda Holden @lpholden RT @stales: 15 minutes until #BCSM - 9 PM ET https://t.co/j3sLsv7OCG |
 | Roberta A Albany @raalbany RT @stales: 15 minutes until #BCSM - 9 PM ET https://t.co/j3sLsv7OCG |
 | Dr. Deanna Attai @DrAttai good evening! #bcsm |
| Dr. Deanna Attai @DrAttai Happy Monday to the #bcsm crew, Deanna Attai, breast surgeon in LA |
 | Alicia C. Staley @stales Good evening everyone! #BCSM |
| Alicia C. Staley @stales Welcome to tonight's chat. #BCSM |
| Linda Holden @lpholden Good Evening from Northern California just south of San Francisco. Caregiver for my husband Bob. He has been living with MBC for almost 17 years. Bob just had his 59th treatment of Kadcyla. #bcsm |
| Alicia C. Staley @stales Please take a moment to say hello. Where are you from? What's your cancer story? #BCSM |
| Dr. Deanna Attai @DrAttai @stales hi there! #bcsm |
 | Jamil Kali @jamilkali RT @OncLive: @jsparano of @MontefioreNYC discusses using gene expression profiles as a means to guide therapy in breast cancer #bcsm https://t.co/hidrZthaYE |
| Linda Holden @lpholden @stales Good Evening to you too! #bcsm |
 | Double Whammy @double_whammied RT @itsnot_pink: @kimkater @itsthebunk @SpiveySandra @TheLizArmy @drdonsdizon @stage4kelly @double_whammied @ihatebreastcanc @marklewismd @wildwestannie @Fighting4Tatas @symplur @ASCO @corrie_painter @womenofteal @jamienholloway @coffeemommy @MyelomaTeacher @lgreco_ny @jillfeldman4 @ivybelkins @tmprowell @DrSGraff @IBCResearch @BidenCancer @NicoleKuderer @theNCI @GtownAdvocates @LombardiCancer @CRAGatUIUC @CedarsSinai @KeckMedUSC @cityofhope @UCLAHealth @Twitter @SurvivorshipIT @HugoOC @AMIAinformatics @SusanGKomen THIS👆is why advocates should be working with scientists! #bcsm |
| Alicia C. Staley @stales @DrAttai Hello, hello. #BCSM |
| Dr. Deanna Attai @DrAttai First time on a tweet chat? We've got you covered: https://t.co/3edMkx5lEg #bcsm |
| Alicia C. Staley @stales @lpholden Welcome #bcsm |
 | Liza B @itsthebunk RT @SeleneSeltzer: "Life w/a #seriousillness is a foreign landscape, one fraught w/new physical, social + existential realities/choices. #PalliativeCare is about empowering patients caught in circumstances that can feel defeating."- Sunita Puri MD https://t.co/lTXwcp3Bqr #cancer #bcsm #btsm #COPD https://t.co/HgvL0LM50V |
| Alicia C. Staley @stales Tonight we are talking about grief and loss #bcsm |
| Alicia C. Staley @stales @kim_builta hi there! #bcsm |
| Roberta A Albany @raalbany Hi All #bcsm |
| Alicia C. Staley @stales You can learn more about the #BCSM Community here: https://t.co/rUD9nLTZe4 |
| Alicia C. Staley @stales And you can learn more about the #BCSM tweet chat here: https://t.co/0KzBtOpPgz #bcsm |
| Alicia C. Staley @stales If you ever want to suggest a topic for #BCSM, send me a DM, our contact us here: https://t.co/mZtUOmyB6n #bcsm |
| Alicia C. Staley @stales Reminder: If you'd like to follow the chat more closely, log into https://t.co/reZgZVsLnl and track the BCSM hashtag #BCSM #bcsm |
| Alicia C. Staley @stales @raalbany Hi! #bcsm |
| Jamil Kali @jamilkali RT @SHAREing: Tomorrow, Dr. Cyrus M. Ghajar will discuss microenvironments within distant tissues and how they regulate dormancy & growth of disseminated tumor cells. Join in on this educational webinar by registering with the link here: https://t.co/McHF5n131g #bcsm |
| Alicia C. Staley @stales @SusanRuddick1 hi Susan, nice to see you. #bcsm |
 | Hillary (Stires) Andrews, PhD @HillStirSci @stales Hi! 👋🏼 I’m Hillary from the DC area. I was a research scientist and then my BFF was diagnosed with breast cancer, my brothers’ BFF died from brain cancer, and I switched my career to health policy with a side of cancer advocacy. #bcsm |
 | Rod Ritchie @malefitness Happy Tuesday from Australia. #bcsm |
 | Dr_Dana @Dr_Dana Good evening everyone! Breast surgeon in Little Rock. Listening and learning. #bcsm |
| Alicia C. Staley @stales RT @HillStirSci: @stales Hi! 👋🏼 I’m Hillary from the DC area. I was a research scientist and then my BFF was diagnosed with breast cancer, my brothers’ BFF died from brain cancer, and I switched my career to health policy with a side of cancer advocacy. #bcsm |
 | NCI Cancer Stats @NCICancerStats According to 2012-2016 data, the median age at diagnosis for female breast cancer is 62 years old. Read more here: https://t.co/wUKAVg2gqh #BCSM @BCSMchat https://t.co/ObcGG08j6m |
| Liza B @itsthebunk Hi to all on #bcsm! I am Liza in LA. Had 3 primary cases of invasive breast cancer, still (fingers always crossed NED). I light up for advocacy and art! I've had way too much experience with grief and loss, in & beyond cancer-land. Glad we are addressing this topic tonight. |
| Alicia C. Staley @stales @Dr_Dana Hi! nice to see you! #bcsm |
| Alicia C. Staley @stales @malefitness Hi Rod, how are you? #bcsm |
| Alicia C. Staley @stales @itsthebunk Hi there! #bcsm |
| Liza B @itsthebunk @stales Howdy!! Long time no see/speak (for real this time!) #bcsm |
 | Andrea @BraveBosom HI #BCSM! @BraveBosom #BRCA Previvor here. |
| Alicia C. Staley @stales We will get started in a moment. Tonight, we're talking about grief and loss. Its a topic many have asked about. #bcsm |
 | Kathy Gori @kathygori Hey there all, 2x bc’er here checking in and lurking this evening from Nor Ca 🍷 country #BCSM |
 | Missy🌸Ryan @meoryan @stales Good evening #bcsm |
 | Cancer Health @cancerhealthmag Can FB help us screen for #breastcancer? A new tool allows individuals to access information about recommended health checkups, such as cholesterol tests and #mammograms, based on their age and sex. #BCSM @BCSMChat https://t.co/ha0DqhyrHL |
 | Renee Kaiman @MSCMommyLife @stales Hello! Renee from Toronto, Canada. Diagnosed with early stage breast cancer in 2015 at 33. Diagnosed with METS in 2017. Had my first progression this summer. Living my life to the fullest while I still can #bcsm |
| Andrea @BraveBosom @itsthebunk Hi beautiful!! #BCSM https://t.co/iH8KVFSwGE |
| Alicia C. Staley @stales @kathygori how are you? #bcsm |
| Andrea @BraveBosom RT @stales: We will get started in a moment. Tonight, we're talking about grief and loss. Its a topic many have asked about. #bcsm |
| Liza B @itsthebunk @BraveBosom Oooh la la!!!!!! And lol!! Hi gorgeous!!!!! #bcsm |
| Alicia C. Staley @stales @meoryan hi there. nice to see you. #bcsm |
 | Mary L Gorden @marylgorden Mary from the California foothills here. Dx stage 2 in July 2017. Last treatment in Oct 2018. Latest meeting with onc last week. Still ok #bcsm |
| Alicia C. Staley @stales @BraveBosom @itsthebunk yo! #bcsm |
| Missy🌸Ryan @meoryan Hello everyone from still warm ( for a few more hours anyway) Mississippi Gulf Coast #BCSM |
| Alicia C. Staley @stales T1 coming up..... #bcsm |
 | Sarah @2013BCSarah Good evening! From a snowy central Illinois. Dx 2013, stage 2B, ER+ & HER2-positive. I've loved learning the science and becoming an advocate for research. You all have taught me so much-thank you! #bcsm |
 | UNC Lineberger @UNC_Lineberger RT @ALLIANCE_org: Congratulations, Maki Tanioka, MD, PhD, of UNC Lineberger Comprehensive Cancer Center, for the 2018-2019 Alliance Most Significant Manuscript! https://t.co/j9NQfWnFS2 #AllianceFall19 #BCSM #NCI #NCTN https://t.co/gyCF2EZ5cw |
| Jamil Kali @jamilkali RT @BreastAdvocate: Why do women face higher heart disease risk after #BreastCancer? #bcsm https://t.co/vdBEciXU29 |
| Alicia C. Staley @stales T1: One of the hardest things to deal with as a cancer survivor is the sense of loss. Loss can mean many things. #bcsm |
| Liza B @itsthebunk RT @stales: T1: T1: One of the hardest things to deal with as a cancer survivor is the sense of loss. Loss can mean many things. #bcsm |
| Alicia C. Staley @stales T1: Loss can represent so many things - what does it mean to you? #bcsm |
| Alicia C. Staley @stales @radhachitale Hi there! #bcsm |
| Cancer Health @cancerhealthmag For women with the most common type of early-stage #breastcancer and high scores on the Oncotype DX test, receiving chemotherapy with hormone therapy after surgery can lead to excellent long-term outcomes. #BCSM @BCSMChat https://t.co/qMrLsPyUxl |
| Alicia C. Staley @stales @MSCMommyLife hi there. Thanks for checking in. #BCSM |
| Jamil Kali @jamilkali RT @Lex_in_CO: If you have @Cigna watch out. Seems they think to know better than oncologist - #ibrance is a proven Rx for many denials and delays are deadly - #stageivneedsmore #bcsm |
| Liza B @itsthebunk @stales Also, loss of our dreams for the future. Loss of possibilities (fertility, having children, etc).... #bcsm |
| Rod Ritchie @malefitness Loss means the absence of a loved one. #bcsm |
| Alicia C. Staley @stales T1: Loss can represent so many things - what does it mean to you? How do you deal with loss? #bcsm |
| Alicia C. Staley @stales RT @malefitness: Loss means the absence of a loved one. #bcsm |
| Liza B @itsthebunk RT @stales: T1: T1: Loss can represent so many things - what does it mean to you? How do you deal with loss? #bcsm |
| Andrea @BraveBosom Cancer previvors deal with incredible grief too. I have had to grieve through loss of every body part. Every loss of a loved one in my family due to #BRCA. #BCSM |
| Liza B @itsthebunk RT @BraveBosom: Cancer previvors deal with incredible grief too. I have had to grieve through loss of every body part. Every loss of a loved one in my family due to #BRCA. #BCSM |
| Liza B @itsthebunk RT @stales: RT @malefitness: RT @malefitness: Loss means the absence of a loved one. #bcsm |
 | LaTina Starling @latinastarling Hey all! Checking from a cold windy part of Texas. Diagnosed with breast cancer 10 years ago. #BCSM |
| Liza B @itsthebunk #bcsm |
 | Lisa Hagen @lisa_hagen22 Joining from Canada #bcsm |
| Rod Ritchie @malefitness T1. I deal with loss by helping others who’ve experienced loss. #bcsm |
| Alicia C. Staley @stales @VeteranvsBC hi! Nice to see you. #bcsm |
| Alicia C. Staley @stales @lisa_hagen22 Hello canada! #bcsm |
| Alicia C. Staley @stales This! RT @malefitness: T1. I deal with loss by helping others who’ve experienced loss. #bcsm |
| Cancer Health @cancerhealthmag "The pink campaigns often fail to include people with advanced or metastatic #breastcancer who will be on lifelong therapy and are at risk of dying of the disease if we don’t find better treatments." #BCSM @BCSMChat https://t.co/G8TnuasI8I |
| Jamil Kali @jamilkali RT @OncologyTimes: Heavy Metal Exposure Increases #BreastCancer Risk Among Minority Women https://t.co/0GNRWEuSA9 #bcsm #fridaythoughts #minorityhealth via @uicpublichealth https://t.co/aUZ41GBSE1 |
 | FollowHeidi @FollowHeidi Life with cancer =loss has a new definition every day. Could be emotional, physical, financial ... even spiritual #bcsm |
| Mary L Gorden @marylgorden I'm one of the lucky ones but I'm grieving for the loss of endurance and physical capabilities. Still a long way from being back to where I was 2 1/2 years ago #bcsm |
| Alicia C. Staley @stales RT @FollowHeidi: Life with cancer =loss has a new definition every day. Could be emotional, physical, financial ... even spiritual #bcsm |
 | vincentv888 @vincentv888 “Amazingly, there is a fundamental cancer / heart disease connection, whereby the same physiologic solution solves both conditions” https://t.co/FEpCeuImGB #Cancer #heartdisease #health https://t.co/Tp7nJA5Rz7 |
| Alicia C. Staley @stales @FollowHeidi Yes, this is so important to note. #BCSM |
| LaTina Starling @latinastarling RT @stales: Tonight on #BCSM - we've heard you, crew. We're taking on the tough topic of loss and grief. Please join us for an important chat on this subject, 9 PM ET. https://t.co/Zd6hO3J9Hx |
| Alicia C. Staley @stales T1: without a doubt, we've all felt some sense of loss. #bcsm |
| Alicia C. Staley @stales T2 coming up #bcsm |
 | @changingourmindset @changermindset RT @DrGattiMays: Excited to have been part of this effort. #breastimmunotherapy #bcsm If we build it, they will come: Excited to have been part of this effort. #breastimmunotherapy #bcsm If we build it, they will come: targeting the immune response to breast cancer @Nature_NPJ https://t.co/tl48cyvdkb |
| Jamil Kali @jamilkali RT @ASCOPost: Regional Disparities in Metastatic Breast Cancer Survival Between 1990 and 2011 https://t.co/Q1tHHxXBId #bcsm #oncology #cancer |
| Alicia C. Staley @stales T2: Understanding loss and how it plays out in our lives is important to tackling the concept of grief. #bcsm |
 | Mighty #HeathenSlut Casey🇺🇦🌟 @MightyCasey RT @BraveBosom: Cancer previvors deal with incredible grief too. I have had to grieve through loss of every body part. Every loss of a loved one in my family due to #BRCA. #BCSM |
 | TreeCode Genomics @TreeCodeGenomes RT @PacBio: Double trouble for #cancer gene: Double trouble for #cancer gene: @VasanNeil & colleagues discover that multiple PIK3CA mutations can have big implications in targeted therapies for breast & other cancers. #bcsm @baselga1 @ScaltritiLab @sloan_kettering @MeyerCancer @IcahnMountSinai https://t.co/0Ugc34omgK https://t.co/An8Xl6TUiq |
| Liza B @itsthebunk RT @FollowHeidi: Life with cancer =loss has a new definition every day. Could be emotional, physical, financial ... even spiritual #bcsm |
| Liza B @itsthebunk RT @stales: @FollowHeidi Yes, this is so important to note. #BCSM |
| Rod Ritchie @malefitness @DrAttai T1. Helping others makes you more resilient and resilience is what gives you the ability to continue to help others. #bcsm |
| Alicia C. Staley @stales T2: Grieving is how we process and work through loss. https://t.co/FZ6D5U475u #bcsm |
 | Julia Maués @itsnot_pink @stales Hi #bcsm! Super late but happy to “see” you all! Julia in DC living with metastatic breast cancer, 6.5 years |
| Alicia C. Staley @stales T2: How do you process your loss? How do you grieve? What/who do you grieve for? #bcsm |
| Alicia C. Staley @stales @itsnot_pink HEY! nice to see you. #bcsm |
 | Katsuaki Maehara Ph.D. 🇯🇵 @KatsuakiMaehara RT @EnriqueSoto8: Remember that the @ASCO Election is still open for three more weeks! Cast your vote before December 2nd! #asco20 #gerionc #globaloncology #pallonc #bcsm Vote here 👉 https://t.co/WgBvNKOmfC https://t.co/qHZp7DuGbt |
| Alicia C. Staley @stales RT @malefitness: Helping others makes you more resilient and resilience is what gives you the ability to continue to help others. #bcsm |
| Alicia C. Staley @stales RT @malefitness: T1. I deal with loss by helping others who’ve experienced loss. #bcsm |
| Liza B @itsthebunk @FollowHeidi Yes (and hi, Heidi!).... financial loss and its impact. #FinancialToxicity. Makes me sick. When I think of what I might have been able to accomplish if I hadn't gotten cancer. But oh well.... here we are! Sigh :) #bcsm |
| Alicia C. Staley @stales RT @malefitness: @DrAttai T1. Helping others makes you more resilient and resilience is what gives you the ability to continue to help others. #bcsm |
| Liza B @itsthebunk RT @stales: RT @malefitness: RT @malefitness: Helping others makes you more resilient and resilience is what gives you the ability to continue to help others. #bcsm |
| Liza B @itsthebunk RT @malefitness: @DrAttai T1. Helping others makes you more resilient and resilience is what gives you the ability to continue to help others. #bcsm |
| Liza B @itsthebunk RT @stales: T2: T2: Understanding loss and how it plays out in our lives is important to tackling the concept of grief. #bcsm |
| Liza B @itsthebunk RT @stales: T2: T2: Grieving is how we process and work through loss. https://t.co/FZ6D5U475u #bcsm |
| Liza B @itsthebunk RT @stales: T2: T2: How do you process your loss? How do you grieve? What/who do you grieve for? #bcsm |
| Andrea @BraveBosom RT @stales: T2: T2: Understanding loss and how it plays out in our lives is important to tackling the concept of grief. #bcsm |
| Renee Kaiman @MSCMommyLife @stales The first time I was diagnosed I grieved after I completed all my active treatments. Therapy helped and still helps immensely I grieve for my kids and husband. My family and friends. The life I should of had before cancer interrupted it #bcsm |
 | Dennis Keim @denniskeim Oops. Late. Stage 1 in 2013. Still NED in NE. Howdy, friends. #bcsm |
| Alicia C. Staley @stales RT @MSCMommyLife: @stales The first time I was diagnosed I grieved after I completed all my active treatments. Therapy helped and still helps immensely I grieve for my kids and husband. My family and friends. The life I should of had before cancer interrupted it #bcsm |
| Andrea @BraveBosom I grieve for the loss of innocence and simplicity in my life. But I suppose something more purposeful has taken it's place. #bcsm |
| Liza B @itsthebunk RT @MSCMommyLife: @stales The first time I was diagnosed I grieved after I completed all my active treatments. Therapy helped and still helps immensely I grieve for my kids and husband. My family and friends. The life I should of had before cancer interrupted it #bcsm |
| FollowHeidi @FollowHeidi I find that my grief often becomes fuel to my fire. My tears as I lose my dear ones to this diesase will promulgate more activism, more assistance, more advocacy; in their honor and memory. #bcsm |
| Alicia C. Staley @stales @MSCMommyLife thank you for sharing. #BCSM |
| Liza B @itsthebunk RT @FollowHeidi: I find that my grief often becomes fuel to my fire. My tears as I lose my dear ones to this diesase will promulgate more activism, more assistance, more advocacy; in their honor and memory. #bcsm |
| Alicia C. Staley @stales RT @itsthebunk: @FollowHeidi Yes (and hi, Heidi!).... financial loss and its impact. #FinancialToxicity. Makes me sick. When I think of what I might have been able to accomplish if I hadn't gotten cancer. But oh well.... here we are! Sigh :) #bcsm |
| Alicia C. Staley @stales @denniskeim hey! how are you? #BCSM |
| Dennis Keim @denniskeim @stales Losing people. Losing that feeling of who you used to be before the Big C. #bcsm |
| Rod Ritchie @malefitness @stales T1. Medical professionals are trained to be resilient but they are not immune from the effects of forever giving out bad news, I’m sure. #bcsm |
| Dennis Keim @denniskeim @stales Hanging in there. About like usual, Alicia. :) #bcsm |
 | Beverly A. Zavaleta MD @BZavaletaMD @MSCMommyLife @stales Yup. Grieve for the life path that you had to leave, the person that you no longer are. #bcsm |
| Alicia C. Staley @stales @BZavaletaMD @MSCMommyLife very important part of the healing process. #bcsm |
| Liza B @itsthebunk RT @BraveBosom: I grieve for the loss of innocence and simplicity in my life. But I suppose something more purposeful has taken it's place. #bcsm |
| Alicia C. Staley @stales T2: Do we discuss the aspect of loss/grief enough to help the community? Can we do more? #bcsm |
| Liza B @itsthebunk @BraveBosom YES! So well said! Thank you :) #bcsm |
| Liza B @itsthebunk RT @malefitness: @stales T1. Medical professionals are trained to be resilient but they are not immune from the effects of forever giving out bad news, I’m sure. #bcsm |
| Alicia C. Staley @stales RT @BZavaletaMD: @MSCMommyLife @stales Yup. Grieve for the life path that you had to leave, the person that you no longer are. #bcsm |
| Alicia C. Staley @stales RT @malefitness: @stales T1. Medical professionals are trained to be resilient but they are not immune from the effects of forever giving out bad news, I’m sure. #bcsm |
| Alicia C. Staley @stales RT @denniskeim: @stales Losing people. Losing that feeling of who you used to be before the Big C. #bcsm |
| Liza B @itsthebunk RT @BZavaletaMD: @MSCMommyLife @stales Yup. Grieve for the life path that you had to leave, the person that you no longer are. #bcsm |
| Jamil Kali @jamilkali #bcsm checking in late..reviewing grants and helping with homework..living with MBC in PA for a year and a half |
| Liza B @itsthebunk RT @stales: T2: T2: Do we discuss the aspect of loss/grief enough to help the community? Can we do more? #bcsm |
| Renee Kaiman @MSCMommyLife @BZavaletaMD @stales I quit a job I loved. We made huge life changes once I got my terminal diagnosis. I keep busy but it’s not the same as working and feeling accomplished in my work which made such a difference in people’s lives. #bcsm |
| Hillary (Stires) Andrews, PhD @HillStirSci RT @FollowHeidi: I find that my grief often becomes fuel to my fire. My tears as I lose my dear ones to this diesase will promulgate more activism, more assistance, more advocacy; in their honor and memory. #bcsm |
| Andrea @BraveBosom RT @BraveBosom: I grieve for the loss of innocence and simplicity in my life. But I suppose something more purposeful has taken it's place. #bcsm |
| Renee Kaiman @MSCMommyLife @stales @BZavaletaMD I grieved for not having the third kid we planned for. That was hard. I know in my heart I was meant to be a mom to three. My kids ask all the time and it breaks my heart. They have the feeling that there is someone else who was meant for us #bcsm |
| Liza B @itsthebunk RT @MSCMommyLife: @BZavaletaMD @stales I quit a job I loved. We made huge life changes once I got my terminal diagnosis. I keep busy but it’s not the same as working and feeling accomplished in my work which made such a difference in people’s lives. #bcsm |
| Liza B @itsthebunk RT @MSCMommyLife: @stales @BZavaletaMD I grieved for not having the third kid we planned for. That was hard. I know in my heart I was meant to be a mom to three. My kids ask all the time and it breaks my heart. They have the feeling that there is someone else who was meant for us #bcsm |
| Alicia C. Staley @stales @jamilkali hi there! #bcsm |
| Alicia C. Staley @stales T2: Do we discuss the aspect of loss/grief enough to help the community? Can we do more to deal with this? #bcsm |
| Rod Ritchie @malefitness @stales T2. No, grief is not often discussed here. #bcsm |
| Liza B @itsthebunk Seeing a tweets from people on the chat sharing or touching on painful feelings and thoughts around grief and loss. Please know I see you and am sincerely sending my love. Trying to stay centered. 🧡 #bcsm |
 | Spannerinmyworks @SpannerInMe Hi 👋 now from Dallas, checking in after many many weeks. #bcsm |
| Liza B @itsthebunk RT @stales: T2: T2: Do we discuss the aspect of loss/grief enough to help the community? Can we do more to deal with this? #bcsm |
| Liza B @itsthebunk RT @malefitness: @stales T2. No, grief is not often discussed here. #bcsm |
| Alicia C. Staley @stales RT @FollowHeidi: I find that my grief often becomes fuel to my fire. My tears as I lose my dear ones to this diesase will promulgate more activism, more assistance, more advocacy; in their honor and memory. #bcsm |
| Renee Kaiman @MSCMommyLife @stales It’s def not discussed enough. I find all the “personal” stuff - finances, jobs, sexuality, body image, friendships/relationships are not discussed enough at all! They aren’t taboo! They are as important as our medication m/treatment is. I’m more than my cancer #bcsm |
| Liza B @itsthebunk RT @MSCMommyLife: @stales It’s def not discussed enough. I find all the “personal” stuff - finances, jobs, sexuality, body image, friendships/relationships are not discussed enough at all! They aren’t taboo! They are as important as our medication m/treatment is. I’m more than my cancer #bcsm |
| Alicia C. Staley @stales RT @MSCMommyLife: @stales It’s def not discussed enough. I find all the “personal” stuff - finances, jobs, sexuality, body image, friendships/relationships are not discussed enough at all! They aren’t taboo! They are as important as our medication m/treatment is. I’m more than my cancer #bcsm |
| Alicia C. Staley @stales RT @malefitness: @stales T2. No, grief is not often discussed here. #bcsm |
| Alicia C. Staley @stales RT @MSCMommyLife: @stales @BZavaletaMD I grieved for not having the third kid we planned for. That was hard. I know in my heart I was meant to be a mom to three. My kids ask all the time and it breaks my heart. They have the feeling that there is someone else who was meant for us #bcsm |
| Liza B @itsthebunk @MSCMommyLife @stales Do you know @double_whammied? She has written great great stuff on so many of these "personal" topics. #bcsm |
| Renee Kaiman @MSCMommyLife @itsthebunk @stales @double_whammied I do! I’ve read a lot of her stuff #bcsm |
| Dennis Keim @denniskeim @malefitness @DrAttai Helping others to help ourselves. As noted in this wonderful article. https://t.co/x1q6AUY91q #bcsm |
| Liza B @itsthebunk @MSCMommyLife @stales @double_whammied Yay! :) #bcsm |
| Alicia C. Staley @stales T2: More resources: https://t.co/1AhUQoROp0 #bcsm |
| Liza B @itsthebunk RT @denniskeim: @malefitness @DrAttai Helping others to help ourselves. As noted in this wonderful article. https://t.co/x1q6AUY91q #bcsm |
| Alicia C. Staley @stales T2: And more grief/loss resources here: https://t.co/6rFbTwzYg7 #bcsm |
 | mary @zebrafinch Tough topics but helpful and compassionate: #bcsm |
 | Inspire @InspireIsHealth RT @stales: T2: And more grief/loss resources here: T2: And more grief/loss resources here: https://t.co/6rFbTwzYg7 #bcsm |
| Alicia C. Staley @stales And More here: https://t.co/xMWXFmhQWs #bcsm |
| Rod Ritchie @malefitness RT @stales: And More here: And More here: https://t.co/xMWXFmhQWs #bcsm |
| Liza B @itsthebunk RT @stales: T2: More resources: T2: More resources: https://t.co/1AhUQoROp0 #bcsm |
| Liza B @itsthebunk RT @stales: T2: And more grief/loss resources here: T2: And more grief/loss resources here: https://t.co/6rFbTwzYg7 #bcsm |
| Alicia C. Staley @stales "Grief is a person’s emotional response to the experience of loss." #BCSM https://t.co/xMWXFmhQWs |
| Dr. Deanna Attai @DrAttai @CancerDotNet and from @AmericanCancer https://t.co/mMb1kDFl6d #bcsm |
 | Leslie @Leslieks Hi, I’m Leslie. I’m perpetually late. #bcsm |
| Alicia C. Staley @stales RT @DrAttai: @CancerDotNet and from @AmericanCancer https://t.co/gwHPz77gDS #bcsm |
| Mary L Gorden @marylgorden My thoughts exactly #bcsm |
 | Social✽Fly @socflyny A2: Rebecca Soffer wrote a book and launched a website focusing on candid conversations about grief. #ModernLoss. https://t.co/dMk7JSLwgU #bcsm |
| Social✽Fly @socflyny A2: The biggest obstacle about discussing loss/grief in any community is that one size doesn't fit all. While some might find comfort in religion, others are non-believers or feel betrayed. #bcsm |
| Social✽Fly @socflyny A2: This isn't a perfect parallel, but this segment on @CBSSunday was excellent -- particularly regarding language. #bcsm https://t.co/NTLEJ7Q57B |
| Alicia C. Staley @stales RT @marylgorden: My thoughts exactly #bcsm |
 | Enlightening Results 💡 @GraceCordovano Hi everyone! Such an important discussion I had to make writing wait. #bcsm |
| Enlightening Results 💡 @GraceCordovano RT @stales: And More here: And More here: https://t.co/xMWXFmhQWs #bcsm |
| Alicia C. Staley @stales @Leslieks Hi Leslie! #BCSM |
| Social✽Fly @socflyny RT @stales: "Grief is a person’s emotional response to the experience of loss." #BCSM https://t.co/xMWXFmhQWs |
| Liza B @itsthebunk @SusanRuddick1 @stales Focusing on the "positive" can be destructive (and comparing too). It's helpful but difficult for many (& was for me) to be able to allow ourselves to feel the sadness, despair, grief, and other "negative" feelings that are part of being human. We all have our struggles :( #bcsm |
 | Gary L. Thompson @garyleethompson Quick check in with #bcsm friends from wintry Austin!! |
 | The Light Collective ☀️ @BeLikeLight RT @BraveBosom: I grieve for the loss of innocence and simplicity in my life. But I suppose something more purposeful has taken it's place. #bcsm |
| Social✽Fly @socflyny RT @stales: T2: T2: Do we discuss the aspect of loss/grief enough to help the community? Can we do more to deal with this? #bcsm |
| Alicia C. Staley @stales RT @BraveBosom: I grieve for the loss of innocence and simplicity in my life. But I suppose something more purposeful has taken it's place. #bcsm |
| Alicia C. Staley @stales @garyleethompson Wintery Austin?! WHHHAAAT? #BCSM |
| The Light Collective ☀️ @BeLikeLight RT @stales: "Grief is a person’s emotional response to the experience of loss." #BCSM https://t.co/xMWXFmhQWs |
 | Tami Dew Rich, MBA @bostonheartmom I grieve for the loss of innocence & simplicity in my son’s life. But in bearing witness, I also marvel at the shift that has taken hold in his very soul. Plus he says he wouldn’t change a thing about being Dx @ birth with #CongenitalHeartDisease Not one thing. ❤️ @BraveBosom |
| Liza B @itsthebunk @DrAttai @SusanRuddick1 @stales Thank you for saying this way better than I did! :-) #bcsm |
 | Howard Karpoff @doctorkarpoff RT @stales: "Grief is a person’s emotional response to the experience of loss." #BCSM https://t.co/xMWXFmhQWs |
| Leslie @Leslieks @DrAttai @stales I think of Beth @CultPerfectMoms daily. #bcsm |
| Dr_Dana @Dr_Dana @garyleethompson Was down your way for Formula 1 at COTA! So fun! #bcsm |
| Alicia C. Staley @stales @GraceCordovano Hi, thanks for joining in. Please feel free to add your thoughts on grief and loss. #bcsm |
| Gary L. Thompson @garyleethompson @stales Yeah... crazy!!! 72 at noon... 34 now... on edge of snow!!!! Seems@like #sabcs LOL!!! #bcsm |
| Enlightening Results 💡 @GraceCordovano @stales T2) Really see profound benefits of adding #PalliativeCare to one's care. Love the support social workers, counselors, chaplains, nurses, etc have to give on grief. #bcsm |
| Social✽Fly @socflyny @stales @garyleethompson Don't be jealous, Alicia ... there's a treat coming tomorrow, followed by 15 degree temps on Wed. 🥶🌨️❄️#bcsm https://t.co/9AMI9mhrSu |
| Social✽Fly @socflyny RT @GraceCordovano: @stales T2) Really see profound benefits of adding #PalliativeCare to one's care. Love the support social workers, counselors, chaplains, nurses, etc have to give on grief. #bcsm |
| Linda Holden @lpholden There are so many things to grieve. Friends lost, friendships lost, Bob’s QOL... even as a caregiver it is overwhelming at times. #bcsm |
| Gary L. Thompson @garyleethompson @SpiveySandra Blessings to you... 🙏🏻🙏🏻 #bcsm |
| Alicia C. Staley @stales @DrAttai @SusanRuddick1 Absolutely - we must make time to allow for our individual paths. We all need to grieve and process our journeys. #BCSM |
| Liza B @itsthebunk RT @GraceCordovano: @stales T2) Really see profound benefits of adding #PalliativeCare to one's care. Love the support social workers, counselors, chaplains, nurses, etc have to give on grief. #bcsm |
| Liza B @itsthebunk RT @Leslieks: @DrAttai @stales I think of Beth @CultPerfectMoms daily. #bcsm |
| Linda Holden @lpholden @GraceCordovano @stales I agree. #bcsm |
| Leslie @Leslieks I mourn the loss of friends, I worry about friends who are in what appears to be final stages of their journey. I feel guilt for feeling triggered with anxiety simultaneously during my grief over their losses. Still trying to sort it all out. #bcsm |
| Leslie @Leslieks RT @GraceCordovano: @stales T2) Really see profound benefits of adding #PalliativeCare to one's care. Love the support social workers, counselors, chaplains, nurses, etc have to give on grief. #bcsm |
| Liza B @itsthebunk @DrAttai @SusanRuddick1 @stales Sigh #bcsm |
| Alicia C. Staley @stales @socflyny @garyleethompson HA HA!!!!! oh boy. #BCSM |
| Alicia C. Staley @stales RT @lpholden: There are so many things to grieve. Friends lost, friendships lost, Bob’s QOL... even as a caregiver it is overwhelming at times. #bcsm |
| Enlightening Results 💡 @GraceCordovano @DrAttai @SusanRuddick1 @stales Couldn't have been more beautifully said! #bcsm |
| Liza B @itsthebunk RT @Leslieks: I mourn the loss of friends, I worry about friends who are in what appears to be final stages of their journey. I feel guilt for feeling triggered with anxiety simultaneously during my grief over their losses. Still trying to sort it all out. #bcsm |
 | Janette Vardy @janette_vardy RT @hagsie: Another for the #Betterposters movement @EmmaKCarson @janette_vardy @BelindaKiely #COSA19 #BCSM #alcoholConsumption #SleepDisturbance #SuppOnc #sleep |
| Alicia C. Staley @stales #BCSM -- so important. |
| Enlightening Results 💡 @GraceCordovano @garyleethompson Hi Gary! Oh my, hope that passes! #bcsm https://t.co/eu9y6MKqRv |
| Gary L. Thompson @garyleethompson @stales @DrAttai @SusanRuddick1 As you all know with #bcsm Inhave written, as have kids, about our journey since 10.21.2014 both to process our grief and to share our story. We regret we are not alone on this crazy and devastating journey. |
| Liza B @itsthebunk RT @garyleethompson: @stales @DrAttai @SusanRuddick1 As you all know with #bcsm Inhave written, as have kids, about our journey since 10.21.2014 both to process our grief and to share our story. We regret we are not alone on this crazy and devastating journey. |
| Rod Ritchie @malefitness Of course, grief is a natural part of life. The older we get, the more we experience it. The more we can deal with it. #bcsm |
| Gary L. Thompson @garyleethompson @SusanRuddick1 @stales Yeah, having lived in Chicago previously, I know this is nowhere near as bad as elsewhere!! 🥶🥶🥶 #bcsm |
| Alicia C. Staley @stales RT @malefitness: Of course grief is a natural part of life. The older we get the more we experience it. The more we can deal with it. #bcsm |
| Enlightening Results 💡 @GraceCordovano RT @malefitness: @stales T1. Medical professionals are trained to be resilient but they are not immune from the effects of forever giving out bad news, I’m sure. #bcsm |
| Rod Ritchie @malefitness You’re right Lisa. Being hardened to grief is not really the answer. #bcsm |
| Alicia C. Staley @stales Only a few minutes left --- We will definitely cover this topic again in Jan 2020. #bcsm |
 | SFDiva @SFDiva2 @GraceCordovano @DrAttai @SusanRuddick1 @stales I was at deathbeds everyday for years during the AIDS crisis as a Peer Support volunteer for the Shanti Project in San Francisco. It was easier for me doing this in person rather than online. I saw the natural rhythms of life and death and this helped my grieving process.#bcsm |
| Linda Holden @lpholden @malefitness Grief comes with love. I feel if you didn’t love you wouldn’t grieve so hard. This helps me. #bcsm |
| Alicia C. Staley @stales Such an important topic. We will find more resources to discuss this with #BCSM in the coming months. |
| Alicia C. Staley @stales We #bcsm |
| Alicia C. Staley @stales We've heard you! and we will work with other cancer hashtag chats to address grief/loss on a larger scale. #bcsm |
| Alicia C. Staley @stales RT @malefitness: Of course, grief is a natural part of life. The older we get, the more we experience it. The more we can deal with it. #bcsm |
| Alicia C. Staley @stales RT @lpholden: @malefitness Grief comes with love. I feel if you didn’t love you wouldn’t grieve so hard. This helps me. #bcsm |
 | Survivor SAKE @SurvivorSAKE RT @changermindset: @Beatthemedian Yep! It REALLY pisses me off. I keep asking myself why there is soooooooo little research on how progesterone receptors (& lack thereof) affect BC cell lines... I think we should start looking for researchers to take this up and push for funding. #bcsm |
| Alicia C. Staley @stales RT @SFDiva2: @GraceCordovano @DrAttai @SusanRuddick1 @stales I was at deathbeds everyday for years during the AIDS crisis as a Peer Support volunteer for the Shanti Project in San Francisco. It was easier for me doing this in person rather than online. I saw the natural rhythms of life and death and this helped my grieving process.#bcsm |
| Gary L. Thompson @garyleethompson @lpholden Blessings to you. Being a spouse and caregiver simultaneously was hard. Wanted to be husband and wife while also tending to mounting side effects and delicate reality of EOL. Crazy and hard. #bcsm |
| Dennis Keim @denniskeim RT @stales: T2: And more grief/loss resources here: T2: And more grief/loss resources here: https://t.co/6rFbTwzYg7 #bcsm |
| Liza B @itsthebunk @malefitness I've lost count of the number of pivotal ppl in my life (incl my father) who'd died by the time I was in late 30s (had already had 1 cancer by then). Then another one died & it broke me. Realized I'd never understood "grief," "mourning" "bereavement." Took work to "heal" #bcsm |
| Linda Holden @lpholden @garyleethompson Yes. Hard to keep the husband/wife relationship when you are a caregiver. Always trying. #bcsm |
 | Jamie Holloway, PhD @jamienholloway @stales Thwarted by time zones again. I miss #bcsm every time I’m in another time zone because my alarm is set for east coast time. #fail |
| Alicia C. Staley @stales GROUP HUG #bcsm |
| Rod Ritchie @malefitness Thought of the day IMO. #bcsm |
| Alicia C. Staley @stales @jamienholloway lol. How are you? #bcsm |
 | Ginger Riley ~Eternal Optimist~ @gingerly21 RT @NCICancerStats: According to 2012-2016 data, the median age at diagnosis for female breast cancer is 62 years old. Read more here: https://t.co/wUKAVg2gqh #BCSM @BCSMchat https://t.co/ObcGG08j6m |
| Alicia C. Staley @stales RT @malefitness: Thought of the day IMO. #bcsm |
| Gary L. Thompson @garyleethompson @lpholden @malefitness Agreed!! #bcsm |
| Enlightening Results 💡 @GraceCordovano @lpholden @malefitness This reminds me of a quote I saw, “Grief, I’ve learned, is really just love. It’s all the love you want to give, but cannot. Grief is just love with no place to go” ~ Jamie Anderson #bcsm |
| Rod Ritchie @malefitness Lovely. #bcsm |
| Linda Holden @lpholden Have a great week everyone. Thank you @stales. #bcsm |
| Liza B @itsthebunk @jamienholloway @stales Hi!!! Your ears must have been burning! I was just singing your praises to @draparente! Have you two met? If not, you must! I miss you my friend! XOXO #bcsm |
| Liza B @itsthebunk RT @stales: GROUP HUG #bcsm |
| Jamie Holloway, PhD @jamienholloway @stales Doing well— hope you are too! Miss all my #bcsm friends 💕💕 |
| Linda Holden @lpholden @GraceCordovano @malefitness ❤️ #bcsm |
| Missy🌸Ryan @meoryan T1: sometimes I have to step away from cancer twitter or chemo rides or lymphedema support. It gets to be too much. Therapy helps. My dogs help. #bcsm |
| SFDiva @SFDiva2 @stales Losing the founder of my group (age 33 with young children) brought this to light. There was a lot we did right. But there were many who couldn't separate what was happening with Seline with their own journeys. This was especially true of those who were Stage 0 and 1. #bcsm |
| Renee Kaiman @MSCMommyLife @stales Great and very important chat today. Thank you for discussing it! #bcsm |
| Liza B @itsthebunk RT @malefitness: Thought of the day IMO. #bcsm |
| Liza B @itsthebunk RT @meoryan: T1: T1: sometimes I have to step away from cancer twitter or chemo rides or lymphedema support. It gets to be too much. Therapy helps. My dogs help. #bcsm |
| Liza B @itsthebunk RT @MSCMommyLife: @stales Great and very important chat today. Thank you for discussing it! #bcsm |
| Linda Holden @lpholden Bob having his 59th kadcyla this past Wednesday. #bcsm https://t.co/ESPFagvEAV |
| Alicia C. Staley @stales @MSCMommyLife We will continue to discuss! #bcsm |
 | Mutant Strong @IrinaBrooke1 RT @FollowHeidi: I find that my grief often becomes fuel to my fire. My tears as I lose my dear ones to this diesase will promulgate more activism, more assistance, more advocacy; in their honor and memory. #bcsm |
 | Susan Ruddick @SusanRuddick1 @itsthebunk @stales Yes, we all deal with the struggles in our own way and our own time. There is no right or wrong way. #bcsm |
| Mutant Strong @IrinaBrooke1 @FollowHeidi #bcsm grieve is something that you go through. It’s a lifetime process. The pain never goes away. You just learn to compartmentalize it. |
| Mutant Strong @IrinaBrooke1 @MSCMommyLife @stales #bcsm I couldn’t agree with you more. |
| Alicia C. Staley @stales Good night everyone. Group hugs #bcsm |
| Susan Ruddick @SusanRuddick1 @DrAttai @stales It was a good topic to discuss. Thanks! #bcsm |
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